Cheat Codes: A Sickle Cell Podcast: Recent Episodes

BloodStream Media

Cheat Codes: A Sickle Cell Podcast, is led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan, and produced by BloodStream Media. Each episode of Cheat Codes: A Sickle Cell Podcast brings listeners a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Cheat Codes also features interviews with leading experts, moments from major conferences, and contributions from people living with sickle cell, all while Dr. Z and Dr. Mike keep the show fresh, fun, and off-the-cuff! Enjoy, share, and subscribe to Cheat Codes: A Sickle Cell Podcast.

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Dr. Z and Dr. C sit down with Dr. Sarah Gheuens, Chief Medical Officer and Head of R&D at Agios Pharmaceuticals, to break down one of the most frequently heard but least understood terms in the treatment conversation: FDA approval. From the phases of clinical development and the role of regulators, to the difference between traditional and accelerated approval pathways, Dr. Gheuens demystifies the science and the process in plain language. They also discuss why asking questions of physicians about their care is one of the most important things a patient can do.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts Drs. Ahmar Zaidi and Mike Callaghan are Agios employees.

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To commemorate World Sickle Cell Day 2026, the Cheat Codes podcast is re-releasing this powerful live episode from the 2025 National Alliance of Sickle Cell Centers (NASCC) meeting. In this episode, Dr. Z and Dr. C are joined by a powerhouse panel: Dr. Payal Desai, Dr. Seethal Jacob, Dr. Pat McGann, and Dr. Andy Ellner to unpack what truly defines great sickle cell care. It's a topic well in line with the theme of this year's World Sickle Cell Day, "Closing the Survival Gap: Equity in Sickle Cell Care."

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. With each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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This SCDAA Masterclass, a special episode of Cheat Codes, was recorded live at the Sickle Cell Disease Association of America, Inc. (SCDAA) 2025 Annual National Convention in Chicago and explores the portrayal of sickle cell disease in the media. Panelists share personal stories and discuss the importance of authentic representation, highlighting both the challenges and progress in raising awareness. The conversation emphasizes the power of storytelling to drive advocacy, reduce stigma, and humanize the experiences of those living with sickle cell disease. Listeners will hear insights from patients, filmmakers, and advocates on how media can shape public understanding and support for the sickle cell community. We also hear opening remarks from Brian Goff, CEO of Agios Pharmaceuticals.

Learn more about the Sickle Cell Disease Masterclass Series at https://scdaamasterclass.com/

To hear more episodes of Cheat Codes: A Sickle Cell Podcast, please visit https://www.bloodstreammedia.com/cheat-codes

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In this powerful episode of Cheat Codes, Dr. Z and Dr. C sit down with Dr. Santosh Saraf, one of the leading experts on kidney disease in sickle cell, to break down why renal complications are so common yet often overlooked. Dr. Saraf walks listeners through the early warning signs, the importance of routine monitoring, and how albuminuria, creatinine, and cystatin C can signal kidney stress long before symptoms appear. The discussion explores how anemia, hemolysis, blood pressure, and even treatment choices influence long-term kidney health, along with emerging therapies that offer new hope for protection and repair. This is an essential conversation for anyone living with sickle cell disease or caring for someone who is.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

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This special crossover episode brings together advocates from PK deficiency, thalassemia, and sickle cell disease to share insights from the Red Cell Revolution and the powerful connections formed across rare hemolytic anemias. NinaMaria Badalamenti leads a heartfelt conversation with Jill Welle, Laurice Levine, and Cassandra Trimnell about the common challenges these communities face, from fatigue to stigma to navigating complex care. Together, they explore how collaboration, shared education, and collective advocacy strengthen each individual movement. The episode offers hope, perspective, and a reminder that these rare-disease communities are stronger together.

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Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community. Learn more about thalassemia by visiting RethinkThalassemia.com. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. Thal Pals is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

This podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions.

TRANSPARENCY STATEMENT

Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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In this episode of Cheat Codes, Dr. Z and Dr. C sit down with Dr. Nirmish Shah of Duke University for a deep dive into how technology, wearables, and patient-reported outcomes are transforming the way clinicians measure quality of life in sickle cell disease. Dr. Shah shares the evolution of his work tracking daily symptoms, passive data, and long-term trends, and explains how these insights can help predict complications, personalize care, and strengthen the patient–provider relationship. The conversation explores everything from AI-driven analytics to hospital-based monitoring, highlighting how data can support—not replace—the human side of medicine. This episode offers a fascinating look at the future of sickle cell care and the innovations shaping it today.

To hear the episode with Dr. Charles Jonassiant and Jude Jonassiant referenced in the episode, CLICK HERE.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

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In this episode of Cheat Codes, Dr. Sharl Azar joins the hosts to discuss his journey from Oregon to leading the sickle cell program at Mass General in Boston. Dr. Azar shares the pivotal moments that inspired his passion for hematology and advocacy, including his work on groundbreaking legislation to improve care for sickle cell patients in Massachusetts. The conversation highlights the importance of community, systemic change, and the lived experiences of patients. Listeners will be inspired by Dr. Azar's commitment to equity, collaboration, and building a brighter future for those affected by sickle cell disease.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C welcome Shayan Siddiqui, founder of MiCaringHeart, to discuss his impactful work supporting sickle cell patients in Detroit. Shayan shares how his family's experiences inspired initiatives like Cabs for Kids, providing transportation to medical appointments, and Outsmart, offering free tutoring for children with chronic illnesses. The conversation highlights the challenges of healthcare access and the power of community-driven solutions.

For more information about MiCaringHeart, visit https://www.micaringheart.com/

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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In this special episode of Cheat Codes, Dr. Z and Dr. C hand the co-hosting mic to Dr. Julie Kanter for a lively walk through the history of the National Alliance of Sickle Cell Centers (NASCC) annual meetings. Alongside Dr. Sophie Lanzkron, Dr. Francis Coyne, and Dr. Alexis Leonard, they revisit key moments from 2022's belly-dancing dinner to 2025's record-breaking Vermont gathering. The conversation covers how NASCC consensus topics like pain management, iron overload, gene therapy readiness, and defining a "sickle cell specialist" have evolved year-to-year. Packed with behind-the-scenes stories, professional insights, and a look at NASCC's growing impact, this episode captures how a community of experts is shaping the future of sickle cell care.

For more information on the National Alliance of Sickle Cell Centers (NASCC), please visit: https://sicklecellcenters.org/

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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In this Rising Star episode from the NASCC meeting in Stowe, Vermont, Dr. Z and Dr. C spotlight Dr. Alyssa Schlenz, a psychologist transforming sickle cell care through early developmental screening and neuropsychological support. Dr. Schlenz shares her journey into the field, the critical role of prevention and early intervention, and the unique challenges faced by patients with neurodevelopmental disorders. She explains how routine, relationship-based screenings can identify issues early, reduce stigma, and improve long-term outcomes. This inspiring conversation highlights the power of psychology in comprehensive sickle cell care and the promising future being shaped by dedicated new leaders.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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In this live episode from the NASCC meeting in Stowe, Vermont, Dr. Z and Dr. C are joined by a powerhouse panel: Dr. Payel Desai, Dr. Seethal Jacob, Dr. Pat McGann, and Dr. Andy Ellner to unpack what truly defines great sickle cell care. The group explores the importance of comprehensive, continuous, and patient-centered models, from inpatient to outpatient settings, pediatrics to adulthood. They discuss integrating technology, clinical trials, and multidisciplinary teams to improve quality of life and prevent long-term complications. It’s an insightful look at how collaboration, innovation, and trust are shaping the future of sickle cell treatment.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. With each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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In this episode of Cheat Codes, Dr. Z and Dr. C sit down with Dr. Julie Kanter, Dr. Sophie Lanzkron, and Dr. Marsha Treadwell to spotlight the National Alliance of Sickle Cell Centers (NASCC). They explore how NASCC came to life, its mission to unite multidisciplinary teams, and its role in setting consensus guidelines for sickle cell care. From building a national registry to fostering collaboration between clinics, community organizations, and patients, the conversation captures a pivotal movement toward consistent, high-quality care nationwide. Listeners will hear how NASCC is shaping the present—and future—of sickle cell treatment.

For more information on the National Alliance of Sickle Cell Centers (NASCC), please visit: https://sicklecellcenters.org/

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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In this episode of Cheat Codes, Dr. Z and Dr. C are joined by renowned advocates TaLana Hughes and Cassandra Trimnell to explore what “the sickle cell community” truly means. They discuss how patients, caregivers, providers, and allies form interconnected, and often overlapping, communities that bring hope, support, and change. From building trust to celebrating wins, the conversation highlights the power of connection, the importance of access to information, and how to find your “tribe” in the sickle cell space. Whether local or global, online or in person, community remains the heartbeat of progress in sickle cell disease.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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On this episode of Cheat Codes, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, is joined by sickle cell advocates Teonna Woolford, Cassandra Trimnell, and Rae Blaylark discuss the challenges and rewards of sickle cell advocacy. They delve into personal journeys, the nuances of advocacy, and the importance of self-care. The conversation highlights the power of community, the significance of setting boundaries, and the need for therapeutic support. The advocates also reflect on the impact of their work and offer advice for the next generation of sickle cell advocates.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C. Callahan interview Dr. Isaac Odame, a leading figure in the field of sickle cell disease. Dr. Odame shares his life story, beginning in Ghana, his medical training in the UK, and his global contributions to sickle cell research, including involvement with the Global Sickle Cell Disease Network. The discussion covers his work in various countries, the challenges, and successes in treating sickle cell disease, and his family's influence on his career.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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Drs. Z and C welcome Dr. Wally Smith, a leading figure in sickle cell research from Virginia Commonwealth University, to discuss crucial issues affecting adults with sickle cell disease. They explore the neglect of adult patients, the need for dedicated centers, and the value of community health workers. Dr. Smith emphasizes the importance of holistic healthcare solutions, state-level policy initiatives, and community support to improve quality of life and outcomes for sickle cell patients.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

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On this inspiring episode of Cheat Codes, Dr. Z and Dr. C talk with an extraordinary group of individuals who embarked on a monumental climb up Mount Kilimanjaro to raise awareness and funds for sickle cell disease. Led by Dr. Alan Anderson and featuring sickle cell warrior Jimi Olaghere the group of Patrick Hines, MD, PhD, Eva Gallagher, PhD, and Audra Boscoe, PhD shares personal stories of perseverance, determination, and the powerful symbolism of their climb. They discuss the challenges they faced, both mental and physical, and the life-changing impact of their journey. With over $2 million raised, the episode concludes with a hopeful message for the future of sickle cell diagnosis and treatment in Sub-Saharan Africa. Audra Boscoe and Eva Gallagher are employees of Agios Pharmaceuticals.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

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On this episode of Cheat Codes, Dr. Z and Dr. C are joined by Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia. Tabatha shares her remarkable journey from systems engineer to leading the foundation, driven by a personal mission to enhance the lives of sickle cell warriors. The discussion delves into innovative programs like the Sickle Cell Sanctuary, holistic care initiatives, and the importance of community engagement and advocacy. An inspiring talk on leadership, resilience, and the transformative power of compassion in the fight against sickle cell disease.

To visit the Sickle Cell Foundation of Georgia, click here.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful mentors who have shaped her career.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

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In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients. Highlighting critical insights from her books, she emphasizes the importance of medical management, patient empowerment, and the need for diverse treatment options in fighting this disease.

For more information, visit the Sickle Cell Medical Advocacy website.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guest featured in this episode have been compensated for their time.

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Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts featured in this episode have been compensated for their time.

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Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharmaceutical companies, and legislators.

Panelists Include:

Rae Blaylark (Sickle Cell Foundation of Minnesota) - Twitter/X - Facebook - LinkedIn - Instagram

Howard Ffrench (SCDAA Miami) - Facebook

TaLana Hughes (Sickle Cell Disease Association of Illinois) - LinkedIn - Facebook - Twitter/X

Tabatha McGee (Sickle Cell Foundation of Georgia, Inc.) - LinkedIn - YouTube - TikTok - Twitter/X - Instagram

Dr. Wanda Whitten-Shurney (SCDAA Michigan Chapter) - Instagram - Facebook - LinkedIn

DeMitrious Wyant - Website

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts featured in this episode have been compensated for their time.

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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

Voice Over:

The following Agios Supported podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. The guests on today's show were paid to participate in this podcast.

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On this episode of Cheat Codes: A Sickle Cell Podcast, we’re live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of the episode. Dr. Shurney was unable to attend the recording but made a special appearance. A must listen!

SHOW DESCRIPTION:

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

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On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay’s Hope Cells.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

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This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

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hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA).

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

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http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions they may have or break down any myths that they have, about participating in a clinical trial. On this panel the docs speak with Teonna Woolford, Dominique Friends, Blaze Eppinger, Golie-Lorenzo Green & Tristian Jones.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.  

TRANSPARENCY STATEMENT

Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.” 

Learn more about Cayenne Wellness at https://cayennewellness.org

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.  

TRANSPARENCY STATEMENT 

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C talk to “The Avengers” of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.  

TRANSPARENCY STATEMENT 

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

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This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language. 

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.  

TRANSPARENCY STATEMENT 

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts Dr. Ahmar Zaidi, Dr. Mike Callaghanand guest Dr. Obiageli Nnodu have been compensated for their time.

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Dr. Z and Dr. C welcome “Sickle Cell Legend” Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts Dr. Ahmar Zaidi, Dr. Mike Callaghanand guest Dr. Obiageli Nnodu have been compensated for their time.

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We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field.

We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire to find common ground with these communities and their treaters.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Ahmar Zaidi, Kevin Kuo, Laurice Levine, Mike Callaghan, Cassandra Trimnell, Teonna Woolford, NinaMaria Badalamenti, Clarisse Lobo, Jill Welle, Tamara Schryver, Rae Blaylark, Ralph Colasanti, Rucha Shah, Alejandra Watson, Biree Andemariam, Charles Jonassaint, Sujit Sheth, Nirmish Shah have been compensated for their time.

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On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization.

Originally aired September 6, 2022.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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On this episode, we’re turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We’ll get to know them a little better and learn about their journey into medicine and sickle cell disease.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker.

The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of sickle cell CBOs, patients, caregivers and advisors, and is unique in that every session, presentation, panel and workgroup was chosen directly by the patient community to educate, empower and encourage ourselves and each other.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions.

View Details

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson.

The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of sickle cell CBOs, patients, caregivers and advisors, and is unique in that every session, presentation, panel and workgroup was chosen directly by the patient community to educate, empower and encourage ourselves and each other.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions.

View Details

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson.

The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers. Each year the Convention is hosted by a partnership of sickle cell CBOs, patients, caregivers and advisors, and is unique in that every session, presentation, panel and workgroup was chosen directly by the patient community to educate, empower and encourage ourselves and each other.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions.

View Details

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

View Details

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

Show Notes:

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios’ phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions they may have or break down any myths that they have, about participating in a clinical trial. On this panel the docs speak with Teonna Woolford, Dominique Friends, Blaze Eppinger, Golie-Lorenzo Green & Tristian Jones.

SHOW DESCRIPTION

Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.

TRANSPARENCY STATEMENT

Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host featured in this episode have been compensated for their time.

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On this episode, Dr. Z and Dr. C debut a series about the “Legends of Sickle Cell”. They interview Dr. Michael DeBaun and patient legend Shamonica Wiggins.

SHOW DESCRIPTION

Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!

TRANSPARENCY STATEMENT

The following Agios-supported podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Podcast hosts are employees of Agios and the guests have been compensated for their time.

Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

Show Notes:

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

Subscribe to and rate Cheat Codes

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

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Dr. Z and Dr. C talk shop with Dr. Wally Smith on how Patient Navigators are changing sickle cell disease. Show Notes:

Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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Dr. C and guest host Amy Board of BloodStream Media talk to Dr. Lydia Pecker about Reproductive Health in Sickle Cell. Hear Dr. Pecker’s thoughts on menstrual cycles with sickle cell, fertility, contraception and more on this important, little discussed topic. A must listen! Show Notes:

Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

Dr. Lydia Pecker on Twitter

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

Guest Host Amy Board on Twitter

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BloodStream Media

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With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community and being “fueled by connections,” join us as guest host, with special guest host, and patient advocate Blaze Eppinger returns to the show for a discussion with Agios’ and guest Sarah Gheuens, Chief Medical Officer, at Agios Pharmaceuticals. Show Notes:

Guest Host Blaze Eppinger on Instagram

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

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Cheat Codes welcomes Dr. Mark T. Gladwin to talk about Pulmonary hypertension in sickle cell disease with Dr. Z and Dr. C. Show Notes:

Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

Sickle Cell Disease (textbook) by Mark T. Gladwin, M.D.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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BloodStream Media

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On October 29th, 2021, Hertz Nazaire, a prominent sickle cell warrior and prolific artist, passed away at age 48. In honor of Hertz, we’re re-airing Dr. Z’s interview with him for Cheat Codes, originally published in December of 2020. Show Notes:

Homegoing Expenses for Hertz Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroit Program Notes:

Subscribe to Cheat Codes on Apple Podcasts

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media - Cheat Codes - Website

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With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community, join us as guest host, Blaze Eppinger speaks with Darrin Miles, the Chief Commercial Officer and Holly John, the Head of Patient Advocacy both of Agios Pharmaceuticals. Show Notes:

Guest Host Blaze Eppinger on Instagram

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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BloodStream Media

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Dr. Z and Dr. C chop it up with two of the foremost experts (Mitch and Vijay) on the science of gene therapy in sickle cell disease. Show Notes:

Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

Dr. Vijay Sankaran on Twitter

Dr. Mitch Weiss Email at St.Judes

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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BloodStream Media

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Dr. Nirmish Shah, the Director of Duke University’s sickle cell transition program, joins Cheat Codes to discuss the numerous challenges associated with helping patients with sickle cell disease successfully transition from pediatric to adult care. Show Notes:

Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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BloodStream Media

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Graham Serjeant, a British-born medical researcher best known for his multi-decade study of sickle cell disease in Jamaica, joins Cheat Codes to share stories and learnings from across his storied career.

Show Notes:

Episode Sponsor: Novartis, For 40 years Novartis has been committed to helping individuals living with sickle cell disease. Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

Graham Roger Serjeant on Wikipedia: https://bit.ly/GRSwiki

Link to Jamaican Cohort Study Article: https://bit.ly/38auoRO

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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Dr. Z and Dr. C chop it up with Dr. Lewis Hsu, CMO of Sickle Cell Disease Association of America to get an update on COVID-19 and sickle cell disease!

Show Notes:

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Subscribe to and rate Cheat Codes

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

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Mapillar Dahn is a woman on a mission. Her organization, MTS, is not going to be stopped by anyone. She is advocacy personified. Dr. Z and Dr. C spend some time gleaning insight from this immense figure in sickle cell advocacy.

Learn more about My Three Sicklers

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

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Find all of our bleeding disorders podcasts on BloodStreamMedia.com

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Featuring Dr. Patrick Hines of Functional Fluidics.

Functional Fluidics

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

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Find all of our bleeding disorders podcasts on BloodStreamMedia.com

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Santonio Holmes, Super Bowl XLIII MVP and founder of the III & Long Foundation is joined by Martenzie Johnson, writer for ESPN's "The Undefeated", on this week's episode as they discuss the importance of Sickle Cell screening and advocacy within sports organizations, as well as their close and personal connections to Sickle Cell Disease and Trait.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

Connect with BloodStream Media:

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Drs. Z and C welcome back Dr. Lakiea Bailey of the Sickle Cell Consortium and a fantastic crew of doctors and warriors as they recap highlights from the recent Foundation for Sickle Cell Disease Research (#FSCDR21) symposia in another installment of the “Best of Sickle Cell Conferences” series.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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Sickle Cell rockstars Mandy David and Maya Bloomberg join the show.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

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Find all of our bleeding disorders podcasts on BloodStreamMedia.com

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In this episode Dr. Z and Dr. C sit down with sickle cell difference makers at the Indiana Hemophilia Treatment Center.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

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Pain and health psychologist Dr. Rachel Zoffness joins to discuss a biopsychosocial approach to treating and managing pain.

Book for kids is here Adult book is here Follow Dr. Zoffness on Twitter @drzoffness Follow Dr. Zoffness on Instagram @TheRealDocZoff Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

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Dr. Z sits down with Dr. Wanda Shurney and Gary Gibson.

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BloodStream Media

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Dr. Ingrid Sarnaik ran the Sickle Cell Center in Detroit for decades. This is her legacy, and also ours.

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Dr. Z and Dr. C spend some time with Chief of Pediatric Infectious Disease at University of Florida, and nationally-recognized COVID-19 expert Dr. Mobeen Rathore to dispel some COVID-19 and vaccine myths.

Sponsored by Agios Pharmaceuticals

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Dr. Lakiea Bailey from the Sickle Cell Consortium and Warrior University joins an all star cast of Cheat Code veterans to discuss the best science from the December American Society of Hematology meeting.

Part 2 - pipeline therapies and new data for approved therapies

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Dr. Lakiea Bailey from the Sickle Cell Consortium and Warrior University joins an all star cast of Cheat Code veterans to discuss the best science from the December American Society of Hematology meeting.

Part 1 - Curative therapies

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Dr. Z and Dr. C hang out with Blaze Eppinger and learn about his journey with sickle cell disease.

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BloodStream Media

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Dr. Krish, a world-renowned bone marrow transplant/sickle cell physician from Children’s Healthcare of Atlanta, breaks down bone marrow transplant while talking about his road to prominence in the field.

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Phill Okwo is a warrior extraordinaire. He’s a father, a brother, and a son. He’s handling his business and giving us his wisdom along his journey. We are beyond thrilled to have him on Cheat Codes!

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BloodStream Media

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Dr. C and Dr. Z sit down with SCD advocate extraordinaire and reproductive health superstar Teonna Woolford, as well as public health expert Christie VanHorne.

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Dr Julie Kanter is a force to be reckoned with. Her passion, desire, and expansive to-do list is unmatched. She’s working constantly to improve access to and quality of care for sickle cell patients.

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Dr. Z and Dr. C get some one on one time with the legendary sickle cell physician, Dr. Elliot Vichinsky. We talk about who Dr. Vichinsky is and how he became a legend, transforming the field forever.

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Hertz Nazaire is our inspiration to be better doctors and, more importantly, better humans. Here is our most recent conversation with this Sickle Cell warrior.

Hertz Nazaire's work

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Dr. Z and Dr. C sit down with Dr. Lewis Hsu of University of Illinois Chicago to talk about his ongoing work in implementation science in sickle cell disease.

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In this LEGACY episode, Dr. Z and Dr. C sit down with the St. Jude Sickle Cell Team to talk about the legacy in Memphis. Dr. Winfred Wang, Dr. Mitch Weiss, Dr. Jane Hankins and Ms. Yvonne Carrol, join Cheat Codes guest alumni, Dr. Jeremie Estepp, to talk about the story that they helped build in the city of the Blues.

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Dr. Z and Dr. C sit down with the queen of leg ulcers. We chop it up about her story in sickle cell disease, what leg ulcers are and how she treats them.

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Sickle Cell and the White House: Admiral Giroir is Making Sickle Cell Lives Matter.

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Dr. Z and Dr. Mike sit down with the co-founder of Sick Cells and advocate extraordinaire, Ashley Valentine, to talk about her recent trip to the White House, what lobbying is, and how she is continuing to make a difference in the lives of sickle cell patients.

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Dr. Z and Dr. C talk to a rising star in sickle cell disease, Dr. Seethal Jacob, and her work at Riley Children’s Hospital.

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Dr. Z and Dr. Mike sit down with legendary sickle cell physician Dr. Wally Smith from VCU School of Medicine. Wally R. Smith, MD is the first recipient of The Florence Neal Cooper Smith Professor of Sickle Cell Disease. He also serves as the Vice-Chairman for Research of the Division of General Internal Medicine, and is the former Scientific Director of the Center on Health Disparities at Virginia Commonwealth University. He has authored over 100 publications, and served as an investigator on over 50 externally funded grants and contracts, including principal investigator on 26 federal or foundation-funded grants and contracts. Dr. Smith is an experienced implementation scientist and an expert in clinical and health services research in sickle cell disease. He’s a badass.

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BloodStream Media

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In episode 17 we sit down with advocate extraordinaire, Shamonica Wiggins to talk about her life as a warrior and advocate. We discuss disparities in healthcare and lack of funding in sickle cell disease! Dr. Ahmar Zaidi on Twitter

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On Episode 16, Dr C and Dr. Z welcome Dr. Jeremie Estepp, a pediatric hematologist and clinical researcher from St. Judes Research Center in Memphis, TN! The Dr's dive into talking about research and trials, including the tragic Tuskegee trial which took place between 1932 and 1972. How do researchers gain back trust in trials? Did any good come out of the exploitation that went along with the Tuskegee trial? Listen now to hear the Dr's discuss this controversial trial and how it led to the rules and regulations that are now in place at https://bit.ly/cheatcodespod Dr. Ahmar Zaidi on Twitter

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On Episode 15, Dr. Z and Dr. C welcome Dr. Patrick McGann, an Associate Professor of Pediatrics at Cincinnati Children's Hospital (one of the best sickle cell centers in the country, maybe even the world!) Dr. McGann always knew he wanted to be a pediatrician when he was growing up in Boston, but little did he know where that childhood dream would take him. He talks about how his path led him toward his love for sickle cell and speaks on the work he has done in Angola, noting how differently the disease affects communities outside of the United States. Dr. C, Dr. Z and Dr. McGann also discuss the positive effects of Hydroxyurea in the sickle cell community, the small portion of patients who have experienced negative side effects from this therapy, and how this medication is used in patients with sickle cell. Dr. Ahmar Zaidi on Twitter

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BloodStream Media

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On episode 14, Dr. C and Dr. Z welcome sickle cell warrior and recent college graduate, Alex Smith onto the show! Alex talks about the impacts of growing up with sickle cell; from missing school to not getting to participate in certain activities, and her ongoing fear of disclosing to others. Alex also touches on what it was like to transition from her pediatric hematologist to being an uninsured adult in college and her first experience visiting the ER on Medicaid. Additionally, Dr. C and Dr. Z go back in time with our Red Cell Research Review! The doctors break down the historic paper and discuss the sociology and psychology of patterns connected to sickle cell. Alex Smith on IG: @thealist.co

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BloodStream Media

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On episode 13, Dr. Ahmar and Dr. Mike talk about a place that hits close to home - their home, the great city of Detroit! Joined by prominent Detroit-based doctors, Dr. Wanda Whitten-Shurney and Dr. Patrick Hines, the four dive into the city's history, traditions, economic boom and downfall, and the effects these events have had on the disease and its community. The investigation into "Motor City" is the first of Dr. Mike and Dr. Ahmar's "Legacy" episodes, a series that highlights cities around the United States that have large sickle cell populations. The episode tops off with a conversation with Vice President of Medical Affairs for GBT, Dr. Ken Bridges. A Detroit native, Dr. Bridges' passion for medicine led him to Harvard Medical School, where he founded a sickle cell clinic, and eventually to his highly prominent position at GBT.
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BloodStream Media

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On Episode 12, which was recorded on World Sickle Cell Day and Juneteeth, Dr. Ahmar and Dr. Mike speak about how COVID-19 affects the Black community disproportionately and in turn the sickle cell community. Additionally, advocate Cassandra Trimnell joins to speak on her own journey with sickle cell and her organization Sickle Cell 101.

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On this episode, we learn how Dr. Patricia Kavanagh became a sickle cell advocate. Additionally, Dr. Mike talks about pain and Dr. Patrick Hines joins us as a guest co-host.

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BloodStream Media

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BloodStream Media hosts Ahmar Zaidi and Patrick James Lynch are joined by guests Phillip Okwo and André Marcel Harris for a discussion on race, violence, and healthcare in America. Take Action Right Now: https://8cantwait.org/ Guests: Phillip Okwo; André Marcel Harris Subscribe to The BloodStream Podcast

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A discussion with Dr. Andrew Campbell, sickle cell director at Children’s National in Washington, DC, and his recent international work. Dr. Mike talks about how genes show themselves, and a crucial study from Africa. Dr. Z shouts out some big time advocates. Listen, subscribe, and spread the word about Cheat Codes: A Sickle Cell Podcast from BloodStream Media.

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Doctor Z and Doctor Mike talk with the bad-ass stand-up comedian and actor about the “back of the bus” disease and how he manages being a sickle cell warrior with a thriving career. This is a special episode full of wisdom from Nore! Listen, subscribe, and spread the word about Cheat Codes: A Sickle Cell Podcast from BloodStream Media.

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Will gene therapy give you HIV? (spoiler: no), and what is a gene, anyway? Plus, an interview with Dr. Vijay Sankaran (@bloodgenes, aka the "blood gene whisperer") from Harvard/Boston Children's, and Dr. Mike takes us through the data on gene therapy so far. Listen, subscribe, and spread the word about Cheat Codes: A Sickle Cell Podcast from BloodStream Media.

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BloodStream Media

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Doctors Mike & Ahmar discuss nonsense being discussed on social media, explain the term immunocompromised, and learn about the SCDAA committee leading the fight against COVID-19. That and Dr. Mike takes us through the published literature about COVID-19 and Sickle Cell. Listen, subscribe, and spread the word about Cheat Codes: A Sickle Cell Podcast from BloodStream Media.

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BloodStream Media

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Sickle Cell Patient Latoria Brown shares her battle with Coronavirus.

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Doctors Mike & Ahmar discuss an unfortunate New York Times article covering sickle cell therapies, explain the significance of a vaso-occlusive crisis (or episode), and learn about Endari's journey through development during an interview with Emmaus Life Sciences CEO Dr. Yutaka Niihara. All that, plus Dr. Mike walks us through another piece of seminal research during the Red Blood Cell Research Review! Listen, subscribe, and spread the word about Cheat Codes: A Sickle Cell Podcast from BloodStream Media.

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BloodStream Media

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BloodStream's Patrick James Lynch is joined by Dr Ahmar Zaidi & Dr Mike Callaghan from Cheat Codes: A Sickle Cell Podcast to discuss the coronavirus (COVID-19) and what it means for people affected by sickle cell disease, hemophilia, and beyond.

NHF MASAC Letter Regarding Coronavirus CDC's "About Coronavirus" Page (regularly updated) Subscribe to and rate Cheat Codes: A Sickle Cell Podcast

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Doctors Mike & Ahmar debrief the social media buzz from the "November to Remember", discuss the role of adhesion in sickle cell, and present the story of Adakveo's development with Ameet Mallik and Dr. Mimi Huizinga from Novartis. All that, plus Dr. Mike walks us through another piece of seminal research in the Red Blood Cell Research Review! Listen, subscribe, and spread the word about Cheat Codes: A Sickle Cell Podcast from BloodStream Media.

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BloodStream Media

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Doctors Mike & Ahmar discuss the pros & cons of ICER, the FDA's approval of Voxeltor, and drug development with GBT CEO Dr. Ted Love. Plus, the Warrior Word of the Day, and so much more! Listen, subscribe, and spread the word about Cheat Codes: A Sickle Cell Podcast from BloodStream Media.

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BloodStream Media

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Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

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The docs debate the value of medicinal cannabis, breakdown the function of the spleen, and review seminal research of hydroxyurea. You'll also hear audio from Dr. Z's TEDxDetroit speech as well as from sickle cell patient and certified nutrition consultant Delisa O'Brien on the role diet can play in effectively managing sickle cell disease.

Dr. Ahmar Zaidi (@ahmaruroojzaidi) on Twitter

Dr. Mike Callaghan (@michaelucallag1) on Twitter

BloodStream Media (@bloodstreaminfo) on Twitter

Subscribe to Cheat Codes

Dr. Z's TEDxDetroit Appearance on YouTube

Lunula Nutrition Consulting (Delisa O'Brien)

Effect of hydroxyurea...sickle cell anemia Study 

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In Episode 2 of Cheat Codes, Dr. Z makes the case for hydroxyurea during the What's Happenin' Now segment, Dr. Mike provides clarity on what "hemoglobin" actually is during our Warrior Word Of The Day segment, the guys interview Dr. Baba Inusa during ASCAT 2019 in London England, and Dr. Mike opens the research book once again in the Red Blood Cell Research Review.  Enjoy this episode of Cheat Codes, produced by BloodStream Media. Be sure to spread the word and to subscribe to Cheat Codes wherever you listen to podcasts!

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Dr. Mike Callaghan (@michaelucallag1) on Twitter

BloodStream Media (@bloodstreaminfo) on Twitter

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ASCAT 2019

Stroke Prevention Trial in Sickle Cell Anemia (STOP)

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Welcome to Episode 1 of Cheat Codes: A Sickle Cell Podcast, led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan! Each episode of Cheat Codes brings you a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Cheat Codes also features interviews with leading experts, moments from major conferences, and contributions from people living with sickle cell, all while Dr. Z and Dr. Mike keep the show fresh, fun, and off-the-cuff! So sit back and enjoy the first-ever episode of Cheat Codes: A Sickle Cell Podcast, produced by Believe Limited, and don't forget to subscribe to Cheat Codes on your preferred podcast player!

Dr. Ahmar Zaidi (@ahmaruroojzaidi) on Twitter

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Jimi Olaghere (@olagherej) on Twitter

American Society of Hematology (ASH; @ASH_hematology) on Twitter

Sickle Cell Disease Association of America (SCDAA; @SCDAAorg) on Twitter

National Heart, Blood, and Lung Institute (NHBLI; @nih_nhlbi) on Twitter

Gene Therapy for Sickle Cell on 60 Minutes

Penicillin Prophylaxis in Children with Sickle Cell Disease