This Thing Called Life

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This Thing Called Life podcast host, Andi Johnson, announces that the podcast is taking a summer hiatus to recharge and prepare for the upcoming season.

Reflecting on Past Seasons: Andi highlights the diverse stories shared in the library of episodes, which include:

Donor families finding purpose through loss.
Recipients who received a second chance at life.
Living donors who made extraordinary choices to help others.
Individuals awaiting life-saving transplants.
Conversations with medical professionals and advocates about the donation process, myths, and the humanity behind medicine.

During the break, please explore the existing library of episodes via podcast platforms. We plan to return with new guests and conversations that continue to inspire hope.

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Episode Title: A Community of Hope: Sera's Journey to a Life-Saving Kidney Transplant

Episode Description:

In this inspiring episode of This Thing Called Life, host Andi Johnson sits down with Hali and Sera Davis to share their family's remarkable journey from uncertainty to hope. They reflect on the power of resilience, the unwavering support of their community, and how one young stranger's decision to become a living donor gave Sera the opportunity to live the childhood every parent dreams of. It's a heartfelt reminder that one act of generosity can transform an entire family's future.

Episode Highlights

Host Andi Johnson welcomes Hali Davis and her daughter Sera, who share the remarkable story of Sera's journey from critical illness to a thriving life after kidney transplantation.
Hali reflects on Sera's difficult birth, explaining how a placental abruption caused significant brain, liver, and kidney damage shortly before delivery.
While Sera's liver healed on its own, her kidneys were permanently affected, requiring dialysis throughout her early childhood as her family waited for a transplant.
Sera, now 12 years old, shares that she has very few memories of dialysis and instead enjoys talking about the life she's able to live today—from spending time with friends to looking forward to moving to a farm and finally getting the pet pig she's always wanted.
Hali explains that she made a conscious decision not to let kidney disease define her daughter. Instead, she encouraged Sera to focus on being a child by dancing, attending sleepovers, participating in activities she loved, and celebrating life's everyday moments.
As transplant became the next step, family members and close friends volunteered to be tested as potential living donors.
One promising donor was ultimately unable to proceed after being diagnosed with non-Hodgkin's lymphoma during the evaluation process—a reminder that donor screening can also uncover previously unknown health conditions.
After exhausting many personal connections, Hali turned to social media, sharing Sera's story in hopes that someone would step forward.
The post quickly spread throughout the community, being shared more than a thousand times and eventually reaching employees at Hali's husband's workplace.
Among those who saw the post was Alex, a 21-year-old who had watched his own mother endure two kidney transplants and felt called to spare another family from a similar journey.
Alex volunteered to be tested, was found to be a compatible living donor, and ultimately gave Sera the life-saving kidney transplant she desperately needed.
Hali and Sera reflect on the emotions surrounding transplant day and the overwhelming gratitude they continue to feel for Alex's extraordinary act of generosity.
Sera shares one of her favorite post-transplant memories: throwing the ceremonial first pitch at a University of Kentucky softball game—a milestone celebrating both her recovery and her new beginning.
Hali expresses heartfelt appreciation for Dr. Ancheta, the pediatric nephrology team, and the many healthcare professionals who cared for Sera throughout every stage of her journey.
Looking back, Hali encourages other families facing serious medical challenges to trust their healthcare team, advocate for their children, ask questions, and never lose hope.
Sera offers simple but powerful advice to other children experiencing difficult health journeys: stay hopeful, believe in yourself, and remember that brighter days are possible.

Key Takeaways

A Child's Diagnosis Doesn't Have to Define Their LifeHali intentionally focused on giving Sera a joyful childhood despite years of medical treatment, reminding families that children are more than their diagnosis.2. Community Has the Power to Change LivesA single Facebook post—and one stranger's willingness to help—led to the living kidney donation that transformed Sera's future, demonstrating the incredible impact of compassion and community.3. Hope Often Arrives in Unexpected WaysFrom medical breakthroughs to unexpected donors, Sera's story is a powerful reminder that perseverance, faith, and generosity can open doors when families least expect it.Tweetable Quotes

“I didn't want her to feel like all she is is kidney disease or getting a transplant. We took our medicine. Really focused on keeping our body healthy, good foods and stuff. And then we danced. We slam. We did all the things that Sarah enjoys, and really kept her going on that positive track.”

Hali Davis

“I took that next step: family, friends, and because there are so many people that rally behind Sera, so family friends got tested as well, and we had a match.”

Hali Davis

“I shared it on Facebook, and then it got shared over 1000s of times. So it really kind of made it throughout the community and even out to other states. And my husband's company also shared it with their employees.”

Hali Davis

“He (Alex, living donor) said his reasoning for wanting to do this is because he watched his mother go through two transplants, through two kidney transplants, and he didn't want a little girl to suffer like that.”

Hali Davis

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Network For Hope is in the community this weekend sharing information about Organ, eye, and Tissue donation and registering new donors to join the mission of saving lives. Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Episode Title: From Waiting to Living: Maria Valentina Almeida’s Journey After Kidney Transplant

Episode Description:

On this weeks episode of This Thing Called Life, just weeks after receiving the life-changing phone call she'd been praying for, Maria Valentina Almeida returns to share what life looks like after a successful kidney transplant. From years of declining kidney function to receiving a life-saving transplant through the National Kidney Registry's Voucher Program, Maria reflects on the journey that has transformed not only her health but her outlook on life.

Maria opens up about the emotional day she received "the call," her recovery, the generosity of her living donor, and the faith that carried her through every step of the process. Filled with gratitude, hope, and renewed purpose, this episode is a powerful reminder of the extraordinary impact of living donation and the importance of sharing stories that inspire others to become organ donors.

Episode Highlights

Host Andi Johnson welcomes Maria Valentina Almeida back to This Thing Called Life to celebrate her remarkable recovery following a successful kidney transplant.
Maria shares that she received her transplant on April 2 and has experienced an incredible improvement in kidney function—from just 9% before surgery to approximately 90% afterward.
She expresses profound gratitude for her living donor and reflects on the priceless gift of receiving a second chance at life.
Looking back on the months since her transplant, Maria shares how restored health has transformed her mindset, giving her renewed energy, optimism, and excitement for the future.
Andi and Maria celebrate several life milestones made possible by her improved health, including attending her sister's wedding and eagerly anticipating the birth of her first niece.
Maria reflects on the spiritual significance of receiving her transplant during Holy Week, describing the experience as a powerful reminder of God's timing, hope, and renewal.
She vividly recounts the emotional moment she received the long-awaited transplant call, sharing the shock, excitement, and overwhelming gratitude she felt as she told her family the life-changing news.
Maria describes the emotional reactions of her parents and sister, highlighting the unwavering support they provided throughout her health journey.
The conversation honors the late Liz Bonis, who gave Maria the opportunity to publicly share her transplant journey and advocate for organ donation. Maria reflects on Liz's generosity, kindness, and lasting impact on her life.
Maria explains how the National Kidney Registry Voucher Program made her transplant possible after a compassionate donor, who was not a direct match, chose to donate on her behalf.
She breaks down how the voucher program works, illustrating how one act of generosity can create a chain of life-saving transplants for multiple families.
Maria speaks about the deep gratitude she feels toward the donor whose selfless decision forever changed her life.
She also reminds listeners that transplantation is a treatment—not a cure—and discusses the lifelong commitment required after surgery, including medications, regular monitoring, and managing side effects.
Maria shares the unforgettable moment she woke up after surgery and immediately noticed the physical difference, describing increased energy, improved appetite, and a renewed appreciation for everyday life.
Inspired by her experience, Maria hopes to use her testimony to encourage others facing kidney disease and to advocate for organ, eye, and tissue donation.
She emphasizes the importance of faith, family, community, and self-advocacy, encouraging listeners to seek support, ask questions, and never lose hope during difficult seasons.
The episode concludes with Andi celebrating Maria's incredible journey and expressing excitement for the meaningful future that now lies ahead.

Key Takeaways

A Living Donor Can Change Multiple LivesMaria's story demonstrates how one selfless act through the National Kidney Registry Voucher Program created a pathway to a life-saving transplant, proving that generosity has the power to impact far more people than we often realize.
A Transplant Is the Beginning of a New JourneyReceiving a transplant is not the end of the story. Lifelong care, medication, and healthy habits remain essential, but they also open the door to renewed health, new opportunities, and a brighter future.
Faith, Community, and Hope Sustain Us Through Life's Hardest SeasonsMaria's journey highlights the incredible strength found in faith, supportive relationships, and the willingness to share one's story to encourage others facing similar challenges.

Tweetable Quotes

“I definitely have been just way more passionate about my future, about life, knowing that I have new restored health. My mindset of everything has completely shifted. I have so many goals set up. Every single day I'm just like trying to get better and better so that I can hit the next milestone.”

Maria Valentina Almeida

“It was just such a blessing and such a relief to hear. I was waiting for so long for those words. I wasn't sure if it was going to be a kidney, a diseased donor, or a living donor, and the fact that my national kidney registry voucher donor, her decision to donate on my behalf paid off because they found my match. It's just so incredible. I it just it really leaves you speechless.”

Maria Valentina Almeida

“I was just completely in shock, and yeah, I was. It just made me respect just the the the the value of life so much more, and respect her as a person, knowing that she was struggling with something, and still being such a selfless human.”

Maria Valentina Almeida on Liz Bonis’s loss.

“t all started was that there was this woman, who was interested in giving me the gift of life. However, she wasn't a direct match for me, so she couldn't donate her kidney to me. She decided to continue on and find resources to still give the chance and put me higher up in the list for for that kidney match. And so that's how she found out about the National Kidney Registry.”

Maria Valentina Almeida

“I'm just so humbled by the the opportunity that I got to be part of that voucher program and to have someone willingly want to give to someone else in order to help me. Like you don't see that every day.”

Maria Valentina Almeida

“I know that this is just confirmation that there is a plan for me. That God definitely wants me to do something with my life, and you know, use my testimony to continue, you know, bringing hope to people, giving faith to people that are struggling with the same disease”

Maria Valentina Almeida

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Episode Title:

A New Lease on Life: Jim & Kim Wildenmann's Journey of Hope, Love, and an Intestine Transplant

Episode Description:

For years, Crohn's disease slowly took more and more from Jim Wildenmann—until his body could no longer tolerate any nutrition, not even liquids. With few options remaining, Jim underwent a rare intestine transplant at the Cleveland Clinic, one of only a handful of centers in the country performing this life-saving procedure

But Jim's story is also Kim's story.

As Jim's health declined, Kim became his unwavering source of strength—working full-time, caring for Jim, raising their two children, and keeping their family moving forward through uncertainty and fear.

In this heartfelt episode of This Thing Called Life Podcast, Jim and Kim share their journey through illness, resilience, faith, and the incredible gift of organ donation. They reflect on the generosity of Jim's donor and the donor's family, whose selfless decision gave Jim a second chance at life.

This is a powerful conversation about perseverance, unconditional love, gratitude, and finding hope even in life's darkest moments.

Episode Highlights

Show Notes* Host Andi Johnson welcomes Kim and Jim Wildenmann to discuss their path to receiving a rare small intestine transplant * The Medical Diagnosis: Jim discusses his struggle with Crohn's disease and poor motility, which meant food could not move through his digestive system. * The Impact on the Family: Kim explains the challenge of Jim being hospitalized over 40 times in three years, often during COVID, while she balanced a full-time job and raising two children. * The Last Resort: After surgeries and liquid nutrition failed, a transplant became Jim's only chance for survival. * Seeking Specialized Care: Jim was referred to the Cleveland Clinic, one of the few places performing rare small intestine transplants—only 15 to 20 are done there annually. * Getting "The Call": The couple recalls receiving a midnight phone call in June 2022 and rushing to Cleveland to receive the organ. * Reflecting on the Donor: While waiting for the surgery, the couple reflected on the donor's family, acknowledging that their hope for life was connected to another family's grief. * A Life Restored: Jim describes the joy of being home for Thanksgiving after missing three years of holidays and attending his son's senior high school activities. * Connecting with the Donor Family: Jim shares that he wrote a heartfelt letter to the donor's family to express his gratitude for the gift of life. * Success as a "Model Patient": Jim’s surgeon now uses his recovery photos to inspire others, showing him eating pizza and enjoying outdoor activities like hiking and ziplining.

Key Takeaways

The Rarity of Intestinal Transplants: Small intestine transplants are exceptionally rare, with specialized centers like the Cleveland Clinic performing only about 15 to 20 per year.
Resilience of the Support System: Chronic illness impacts the entire family; Kim had to manage her career and children while taking on a nursing role and coordinating family visits during Jim's long recovery.
The Profound Impact of Organ Donation: Beyond saving a life, organ donation restores the recipient's ability to participate in major life milestones, such as high school graduations and family holidays.
Inspiring Others: Jim uses his experience to encourage others facing similar medical struggles, including successfully talking a client's husband into a necessary surgery.

Universal Need for Donors: Over 100,000 people are currently waiting for life-saving organ gifts. One donor can save up to eight lives and heal 75 others through tissue donation.

Tweetable Quotes

"Nothing worked, and it was our last resort. We had to have a transplant or he would not have been able to live.”

Kim Wildenmann

"We're here waiting for life, and they're dealing with death... and it's really hard."

Kim Wildenmann

"Thank you is never enough, right? But... it gave you your life back."

Jim and Kim Wildenmann

"I bore the cross for [my family]. But yeah, a lot of people just say... I'm a walking miracle."

Jim Wildenmann

"Just being able to do things that normal people do... the little things we take for granted."

Jim Wildenmann

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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This episode of TTCL will feature an interview with Luis Santiago from NFH on La Mega.
This monthly interview will inform the Spanish Community about Network For Hope and the incredible miracles that happen with Organ, Tissue, and Eye Donation.

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

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Episode Title: Connected by Hope: How Sister Keli and Stephanie Bates Found Friendship Through Transplant

Episode Description:

What happens when two people who have walked through illness, uncertainty, and waiting find each other on the other side of survival?

In this heartfelt episode of This Thing Called Life, host Andi Johnson welcomes Sister Keli and Stephanie Bates, whose connection began through transplant but became something much deeper—a sisterhood built on understanding, resilience, and hope. Together, they share their individual journeys through kidney disease, dialysis, setbacks, and ultimately transplantation.

Through moments of heartbreak, perseverance, and unexpected friendship, Stephanie and Sister Keli reflect on what it means to keep showing up, trust the process, and find purpose in giving back. Their stories are a powerful reminder that healing doesn’t happen alone—and sometimes the people who understand us best are the ones who have walked a similar road.

Episode Highlights

Host Andi Johnson welcomes Stephanie Bates and Sister Keli, two women whose lives became connected through their shared transplant journeys and commitment to supporting others.
Stephanie reflects on how her health journey began after a traumatic cesarean delivery in 1999 that caused damage to her kidney.
Years later, after noticing swelling in her leg, Stephanie sought medical care and was diagnosed with stage three kidney disease, beginning a long season of monitoring and treatment.
From 2003 to 2013, she managed her condition through regular nephrology care before eventually beginning dialysis as her disease progressed.
Stephanie shares the difficult but determined process of becoming transplant eligible, including being encouraged to lose weight in order to qualify.
Through dedication and support, she achieved her health goals and was officially added to the transplant list in 2018.
In 2019, Stephanie received her first kidney transplant, but unexpected complications during the COVID era eventually led her to undergo a second transplant in 2024.
Sister Keli shares her own experience of learning her kidneys had progressed into end-stage renal disease (ESRD) and initially struggling to fully accept the seriousness of the diagnosis.
She reflects on a turning point when conversations and encouragement from people around her helped her recognize the urgency of beginning treatment.
Sister Keli started with peritoneal dialysis, later transitioning to hemodialysis after complications and challenges with treatment.
Her journey included major life changes—including divorce and the eventual loss of a limb due to complications connected to inadequate dialysis treatment.
Despite those setbacks, she remained committed to her health and continued pursuing transplant eligibility.
Stephanie and Sister Keli describe meeting through a community connection event and immediately sensing a familiar understanding between them.
What started as an invitation to volunteer quickly developed into a meaningful friendship rooted in shared experience.
Both women speak openly about how transplant and dialysis journeys can feel isolating—and how finding someone who truly understands can change everything.
They reflect on the emotional complexity of receiving a transplant call: excitement, disbelief, fear, gratitude, and awareness that another family experienced loss.
The conversation highlights the emotional and physical realities of transplant while emphasizing the importance of hope, advocacy, and community support.
Stephanie and Sister Keli encourage listeners to stay committed to treatment plans, ask questions, lean on others, and remember that healing often happens in connection with community.

Key Takeaways:

Healing Is More Than Medical—It’s Relational

Recovery isn’t only about procedures and appointments. Community, connection, and shared understanding can become powerful parts of the healing journey.

Small Decisions Can Create New Possibilities

From staying committed to dialysis to making lifestyle changes for transplant eligibility, each step forward can open the door to life-changing opportunities.

Hope and Gratitude Can Coexist With Hardship

Transplant journeys carry both joy and grief. Receiving a second chance at life often comes with deep appreciation for donors and renewed purpose moving forward.

Tweetable Quotes

“You have to be in a certain BMI to receive a transplant. The doctor connected me with weight loss people, we got a weight loss plan together, and I dropped that weight. Then less than six months after I dropped that weight, I was listed.”

Stephanie Bates

“I feel like the Lord started sending people to talk to me. You get a call from somebody that you haven't heard from in a while, and they have a message for you. And so these people over the weekend started talking to me, and I said, "Oh no,” I said, "This is serious.” And so I reported, and they put me on peritoneal dialysis.”

Sister Keli

“This is why I'm here now, speaking out to people and letting them know, take your treatments seriously, don't cut off your treatments, don't skip your treatments, because the after effect of that? Sometimes you can't even come back from it.”

Sister Keli

“I'm like, something is familiar about her. And then I come to find her birthdays around my birthday, we just were familiar and able to link, but more than that, she understood where I had been, and I understood where she had been, and that was something I didn't have with any of my other friends.”

Sister Keli

“It (bond they share) creates a sense of like, “So there is someone who knows exactly what I'm going through.” Now our stories are not entirely the same. We've been through the same types of situations, the waiting process, “Is the kidney ever coming in?”, all the procedures, and all the testing. It feels daunting, it feels overwhelming.”

Stephanie Bates

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Episode Title: The Gift of Life: Inside Pediatric Transplants with Dr. Mo

Episode Description:

Saying “yes” to organ, tissue, and eye donation can change everything.

In this episode of This Thing Called Life, Dr. Monique “Dr. Mo” Goldschmidt from Cincinnati Children’s Hospital Medical Center shares her passion for pediatric transplantation and the journey that brought her to Cincinnati.

She reflects on the emotional connections she builds with her young patients and their families, and the extraordinary collaboration among care teams that makes successful outcomes possible.

This episode is a moving reminder of the power of compassion, teamwork, and the gift of life.

Episode Highlights

Host Andi Johnson welcomes Dr. Monique "Dr. Mo" Goldschmidt, Associate Director of Cincinnati Children's Intestinal Transplant Program and attending hepatologist with the Liver Transplant Program.
Dr. Mo explains her passion for pediatric transplantation and how liver and intestinal transplant care often overlap, with some children requiring both organs as part of their treatment journey.
She shares what initially drew her to Cincinnati Children's, citing its world-renowned reputation and the collaborative culture that inspired her to stay for more than two decades.
Dr. Mo reflects on her early fascination with medicine and how her experiences caring for critically ill patients ultimately led her to specialize in transplant medicine.
The conversation highlights the unique nature of pediatric care, with Dr. Mo emphasizing that children are not simply "small adults." Their medical, developmental, emotional, and psychological needs require a specialized approach.
She discusses the complexity of pediatric transplantation and the importance of a multidisciplinary team that includes physicians, surgeons, nurses, social workers, psychologists, dietitians, therapists, and families.
Dr. Mo shares the emotional realities of her work, explaining how deeply invested she becomes in the lives of her patients and how difficult it can be when outcomes do not go as hoped.
Andi and Dr. Mo reflect on the joy of watching children recover, grow, and reach milestones that once seemed impossible.
Family involvement is a central theme throughout the episode, with Dr. Mo describing how successful transplant care depends on strong partnerships between healthcare teams and caregivers.
She offers a glimpse into her daily work, which includes both inpatient and outpatient care, guiding children and families through every phase of the transplant journey—from evaluation and surgery to recovery and long-term follow-up.
Beyond patient care, Dr. Mo discusses her commitment to research and collaboration with transplant centers across the country to improve outcomes for pediatric patients.
The conversation addresses the challenges posed by declining donor availability and increasing demand for transplantable organs, particularly for children with complex medical needs.
Dr. Mo explains the importance of living liver donation and how it can provide life-saving opportunities when deceased donor organs are not readily available.
She discusses the unique challenges of intestinal transplantation, one of the rarest and most specialized forms of transplantation, which often requires collaboration among leading medical institutions.
The emotional toll of waiting for a transplant is explored, along with the importance of maintaining trust, communication, and hope throughout the process.
Dr. Mo identifies the relationships she builds with patients and families as one of the most rewarding aspects of her career, emphasizing the lasting connections that often extend well beyond the hospital.
She also highlights the importance of balancing professional responsibilities with personal well-being to remain fully present for patients and families.
The episode concludes with a call for greater awareness around organ donation and a reminder that every donor has the potential to transform a child's future.

Key Takeaways

Children Require Specialized Transplant Care

Pediatric transplant medicine is uniquely complex. Children have different physical, emotional, and developmental needs that require highly specialized care and collaboration across multiple disciplines.

Transplant Success Depends on Teamwork

Behind every successful transplant is a network of physicians, surgeons, nurses, researchers, families, donors, and advocates working together toward a common goal: giving children the opportunity to live healthy, fulfilling lives.

Organ Donation Creates Life-Changing Opportunities

Whether through deceased donation or living donation, organ donors make it possible for children facing life-threatening illnesses to receive a second chance and achieve milestones they might never otherwise experience.

Tweetable Quotes

“So it's a, it's a one big package that I really consider my life purpose, taking care of kids with liver and intestinal transplants.”

Dr. Mo

“Cincinnati Children's Hospital is, in my now biased opinion is the best. It's it brought me here for sure. I've come from Massachusetts, and I came here particularly just for the institution a long time ago, 20 years ago, and I haven't left.”

Dr. Mo

“I think there's this misconception that kids are just little adults, and that's fundamentally wrong. They're, they're not just little adults, they're their own little human beings.”

Dr. Mo

“And so that requires a unique skill set than dealing with adults who’s lifestyle is what drives some of the adult diseases, whereas with children it's congenital, it's metabolic, it's genetic, it's immune mediated, and that's a different realm in which you focus in caring for these kids, and then transplant, of course, adds a whole nother layer, right?”

Dr. Mo

“I struggle with not taking it personally, isn't probably the best way to phrase that, but I take these kids home with me, and they truly become my family, and I think that some would argue that is crossing a boundary with the patients and the families, and I would argue back that I can't do this in the way that they deserve without having that sense of ownership and commitment, and certainly empathy.”

Dr. Mo

“So, inpatient, outpatient care key, direct patient care is really my main focus.”

Dr. Mo

“ I find that connection and that trust to be immeasurable, and I think that's the most fulfilling piece for me. I will always show up for these kids. My kids know that I will show up for these kids, and sometimes they show up for these kids, which is really cool, and teaching them altruism and compassion and empathy, the family, the patient relationships, just they're unmatched.”

Dr. Mo

“But the bottom line is, is it's something that we talk about more now to save the lives of our children, because organ allocation is more and more challenging.”

Dr. Mo

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Episode Title: One Voice for Life: Imam Hossam Musa on Faith, Service & Organ Donation

Episode Description:

In this episode of This Thing Called Life, we sit down with Imam Hossam Musa, spiritual leader at the Islamic Center of Greater Cincinnati, for a thoughtful conversation about faith, service, and community leadership.

Imam Musa shares insight into the role of an Imam, the importance of interfaith collaboration, and how faith communities can come together with one voice to support life-saving education and compassionate decision-making around organ, tissue, and eye donation.

The partnership with Network for Hope has helped dispel misinformation surrounding donations while allowing Imam Hossam Musa to provide spiritual guidance and comfort to individuals and families navigating these difficult moments.

This conversation is a powerful reminder that compassion, education, and unity across faith traditions can help bring hope and healing to communities throughout Network for Hope and beyond.

Episode Highlights

Host Andi Johnson welcomes Imam Hossam Musa, spiritual leader of the Islamic Center of Greater Cincinnati, for a conversation centered on faith, service, and community impact.
Imam Musa explains the role of an Imam, sharing that his responsibilities extend far beyond leading prayers to include officiating weddings, counseling families, visiting hospital patients, conducting funerals, resolving disputes, and serving as a spiritual guide for both Muslims and non-Muslims alike.
He reflects on his journey into religious leadership, crediting his path to faith, family influence, and what he believes was God’s plan for his life.
Imam Musa shares how he memorized the Holy Quran at a young age and later pursued advanced studies in Islamic sciences while also earning a degree in computer science.
He discusses how his original goal was simply to deepen his understanding of faith, but over time, his passion for serving others led him into full-time ministry.
Andi highlights Imam Musa’s partnership with Network for Hope, recognizing his efforts to educate the Muslim community about organ, tissue, and eye donation.
Imam Musa explains the importance of replacing fear and misinformation with accurate education and compassionate dialogue grounded in Islamic teachings.
He describes several educational programs developed in collaboration with Network for Hope, where community members were able to ask questions openly and better understand both the donation process and its religious considerations.
The conversation emphasizes the importance of respecting cultural and religious values throughout the donation journey while ensuring families receive clear and trustworthy information.
Imam Musa shares the Islamic perspective on death and the afterlife, explaining that conversations about death are encouraged within the faith because they inspire reflection, purpose, and preparation for life beyond this world.
He notes that this openness can help individuals approach conversations around donation with greater understanding and acceptance.
Andi and Imam Musa discuss the broader role faith leaders play in supporting communities—not only spiritually, but also socially and emotionally.
Imam Musa speaks passionately about the importance of unity across communities and standing together against racism, injustice, poverty, homelessness, and other societal challenges.
He highlights the shared responsibility of both faith and non-faith leaders to work collaboratively toward the well-being of the greater community.
The conversation also touches on mental health support within the Islamic Center, where a team of professionals and community members help individuals navigate emotional and psychological challenges with compassion and care.
The episode concludes with Andi expressing gratitude for Imam Musa’s leadership, educational efforts, and commitment to bringing clarity, compassion, and hope to conversations surrounding organ donation.

Key Takeaways

Education Helps Replace Fear With Understanding
Open, honest conversations grounded in compassion and accurate information can help dispel misconceptions surrounding organ donation across all communities.
Faith and Service Go Hand in Hand
Imam Musa’s leadership demonstrates how faith communities can play a vital role in supporting individuals spiritually, emotionally, and practically during difficult moments.
Unity Creates Stronger Communities
Whether addressing organ donation, mental health, or social injustice, meaningful change happens when people work together with empathy, respect, and shared purpose.

Tweetable Quotes

“An Imam leads the Muslim community religiously. I serve as the Imam of the Islamic Center of Greater Cincinnati in West Chester, Ohio. We have a beautiful community and a beautiful mosque, which you have visited, and we've had the honor of hosting you and your fellow colleagues there many times, and we look forward to many more times in the future. “

Imam Hossam Musa

“I visit patients in hospitals, I give talks on-site and off-site. I give sermons, give lectures, and answer people's many questions, whether they're Muslim or non-Muslim. People have questions about faith or seek advice, and I try to be accessible to everyone.”

Imam Hossam Musa

“I firmly believe that God Almighty planned my journey for me, and I'm incredibly grateful for that. I love what I do. I sincerely and deeply love what I do, and am humbled and honored to do so, and that doesn't tire me.”

Imam Hossam Musa

“Around 13 or so, I was blessed to complete the memorization of the entire Holy Quran by heart.”

Imam Hossam Musa

“There are millions of Muslims who have memorized the entire Holy Quran by heart, from cover to cover. That's approximately 600 pages of text, and many men and women who have memorized the Holy Quran at various ages, mostly youngsters who start early and memorize the Holy Quran somewhere in their mid-teens.”

Imam Hossam Musa

“God plans, and his plans are the best plans, so eventually, after some time, I became a full-time imam for about 15 years now.”

Imam Hossam Musa

“First of all, I'm honored to assist and contribute in any small way towards this greater goal of raising awareness and spreading beneficial and useful knowledge in place of assumptions and misconceptions.”

Imam Hossam Musa

“I felt that my community needed that same knowledge, and that's why we've done, I think, around four or more programs in collaboration with (Legacy) Life Center, which later became Network for Hope, to sit with our community members, present to them the religious perspective and the process, and then answer the many questions they have, and put their concerns at ease.”

Imam Hossam Musa

“We actually are recommended to talk more often about death, because it helps us rectify the areas in our lives that need to be rectified for us to be better prepared for the inevitable time of leaving this world, for us, when we meet our creator, that He's pleased with us.”

Imam Hossam Musa

“So I feel like you know there are a lot of aha moments, but overall I feel that this work needs to be spread and awareness needs to be broadly shared and raised because if we don't have a proper legal option for organ and tissue donations, then the improper and illegal options will thrive.”

Imam Hossam Musa

“Muslim I am also a human being, and myself and my Muslim community live as a part of a larger community and and we all must live happily and peacefully side by side, and matters that harm any part of us or any particular community or sub community, we all need to stand together as a matter of principle when it comes to combating any type of racism or supremacy or injustice, poverty, homelessness, whatever you may, we may be facing as challenges as a larger and greater society.”

Imam Hossam Musa

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

This episode of TTCL will feature a radio interview of Tom Daskalakis from TriHealth Clinton Regional Hospital with Brett Milam the Community Relations Associate for Network for Hope on Healthcare Chat with Tom.

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

EP 144: When Everything Changes Overnight: Corie Blount on Fighting for His Son, CJ

Episode Description:

On this episode of This Thing Called Life, former University of Cincinnati standout and 11-year NBA veteran Corie Blount shares a deeply personal story far beyond the game.

His 25-year-old son, CJ, went from a simple headache and fatigue to a life-altering diagnosis: dangerously high blood pressure and severe kidney disease.

With no family history, the news came out of nowhere.

Now on dialysis, CJ is waiting for a life-saving kidney transplant as Corie and their family begin the emotional journey of seeing who might be a match.

This conversation is about more than basketball, it’s about fatherhood, resilience, and what it means to show up when everything shifts in an instant. Corie also reflects on life after the NBA—from co-hosting Legends Unplugged with Terry Nelson to his work on the Bob Huggins documentary.

It’s an honest, powerful look at how quickly life can change and the strength it takes to fight for the people you love.

Episode Highlights

Host Andi Johnson welcomes former NBA player Corie Blount, whose connection to both the University of Cincinnati and the organ donation community brings depth and perspective to the conversation.
Corie reflects on his basketball journey—from his time at the University of Cincinnati to an 11-year NBA career playing alongside legends like Michael Jordan, Kobe Bryant, Shaquille O’Neal, and Scottie Pippen.
He shares his deep connection to Cincinnati, describing it as home and a place that continues to shape his life beyond basketball.
The conversation shifts as Corie opens up about his son CJ’s sudden health crisis, which began with what seemed like minor symptoms—headaches and fatigue—but quickly escalated.
After being taken to the emergency room, CJ was diagnosed with extremely high blood pressure and severe kidney failure, leaving the family in shock.
Corie candidly describes the emotional impact of the diagnosis and the steep learning curve his family faced in understanding kidney disease, dialysis, and transplant options.
CJ is now undergoing dialysis treatments while awaiting a kidney transplant, and Corie shares how the family has rallied together to support him physically and emotionally.
Despite the challenges, CJ continues to show strength, positivity, and resilience, even after graduating from the University of Cincinnati with a degree in business.
Corie emphasizes the importance of being present as a family, recalling how loved ones stayed by CJ’s side in the hospital to ensure he never felt alone.
He shares his willingness to become a donor himself and speaks about the importance of maintaining a healthy lifestyle—both for donors and recipients.
The episode highlights the importance of organ donation awareness, particularly the need for more people to consider living donation.
Andi explains how simple it is to begin the donor testing process, often starting with a basic mouth swab.
The conversation introduces the concept of paired kidney exchange, where donors who are not a direct match can still help save lives through a matching network.
Corie expresses gratitude for organizations like Network for Hope, which help educate families and guide them through the transplant journey.
Beyond his family’s story, Corie shares updates on his life after basketball, including his podcast “Legends Unplugged” and involvement in the Bob Huggins documentary.
The episode concludes with a powerful call to action—encouraging listeners to get informed, consider donation, and support families navigating similar challenges.

Key Takeaways

Health Crises Can Happen Without Warning
CJ’s story is a reminder that serious health conditions can develop unexpectedly, even without a known family history—making awareness and regular checkups essential.
Support Systems Make All the Difference
In moments of crisis, the presence of family, community, and trusted organizations provides strength, stability, and hope.
Organ Donation Saves Lives—and Starts With Awareness
From simple testing to paired exchanges, understanding the donation process can open doors to life-saving opportunities for those in need.

Tweetable Quotes

“I have an indebtedness of gratitude to the city and the university, and that's why I'm still here, and this is home now.”

Corie Blount

“ It's more of a learning curve for me, and then just trying to make sure that let him know he's loved and that we're supporting him. He's never alone. Whenever he was at the hospital, our whole family was there sleeping on the couches and on the floors and everything, just to show our support. We're supporting it now through this; it's just a learning curve.”

Corie Blount

“I appreciate what you guys did with the program, that you guys have to bring awareness to his situation, and it kind of educated me also.”

Corie Blount

“I never even knew you could live with one kidney, right when you met someone saying that they needed a kidney, like, 'Man, if I get my kidney up. How am I going to live? How is my life going to be moving forward?’

But the good thing that I've learned is that you have to treat your body right, no matter what.”

Corie Blount

“And it's important also to say that to be tested to be a living kidney donor, it's actually a very simple process, and it starts with a mouth swab. They send you a Q tip, it's a longer Q tip, and they do a mouth swab, and that's how the process starts.”

Andi Johnson

“It's hard for someone that you know, being of such a young age, you know, I think too, though it is helpful that he is young and doing the dialysis versus being older.”

Corie Blount

“Well, our hope and prayer is that you are the match, and if not, it's someone else in the family or but I would, I would not be surprised if there aren't people just knocking down the door to see if they would be a match for CJ.”

Andi Johnson

“Interesting fact about the living kidney donation process is that even if you're not a match for CJ, or if anyone else wants to be tested, and they're not a match for CJ, but they can still be a donor. Then there's this program. It's called the Paired Kidney exchange. So then you, for example, would donate to someone else that you were a match for, and then someone else who was a match for CJ would then donate for him.”

Andi Johnson

“Man, this is phenomenal that I don't know how we would have been able to deal with what we deal with. And fortunately, organizations like yourselves are stepping up and getting people to understand what's going on, and it's definitely needed.”

Corie Blount

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

EP 142: Living Proof: How A Transplant at 7 months Sparked a Life of Impact

Episode Summary

Haley Williamson’s life began with a fight—and it turned into a mission. In this episode of This Thing Called Life, Haley shares her experience of receiving a liver transplant as an infant and how that second chance shaped her path. Now at 27 years old and working with Network for Hope, she connects with communities, spreading awareness and encouraging others through her story. This is a conversation about resilience, purpose, and making every day count.

Episode Highlights

Host Andi Johnson welcomes Haley Williamson, a liver transplant recipient whose journey began at just seven months old.
Haley shares that she was diagnosed with biliary atresia shortly after birth, leading her family to quickly explore transplant options, including the possibility of her mother becoming a living donor.
Although her mother was approved to donate, Haley ultimately received a liver from a deceased donor.
She reflects on growing up post-transplant and how, despite taking daily medication, she has been able to live a largely healthy and active life.
Andi and Haley discuss a common misconception—that transplant recipients immediately return to “normal”—while acknowledging that every journey is different and often includes ongoing challenges.
Haley shares how her early medical experiences influenced her career path, leading her to roles in healthcare and eventually to Network for Hope, where she now works in community outreach and education.
She opens up about the emotional challenges of body image, particularly growing up with a visible surgical scar, and how her mother supported her in building confidence and self-acceptance.
Haley reflects on the maturity she developed over time, including navigating social situations—such as college environments—while making choices aligned with her health.
She expresses deep gratitude for both her mother’s willingness to donate and the selfless gift from her donor’s family, recognizing the duality of loss and life in transplantation.
During an internship, Haley had the opportunity to mentor patients awaiting transplants, offering encouragement and perspective from someone who has lived through the experience.
Andi highlights Haley’s gift for breaking down complex topics around organ donation, making them more approachable for individuals who may feel hesitant or unsure.
Haley shares how education helps dispel fear, noting that many people become more open to donation once they truly understand the process.
Beyond her advocacy work, Haley shares glimpses of her personal life—including her love for concerts (especially One Direction and Taylor Swift) and her recent interest in tennis and pickleball.
The episode closes with Andi recognizing Haley as living proof of the impact of organ donation and celebrating her role in spreading hope and awareness.

Key Takeaways

A Second Chance Can Become a Life of Purpose
Haley’s journey shows that transplantation is not just about survival—it can inspire a life dedicated to helping and uplifting others.
Education Reduces Fear and Builds Trust
Many misconceptions about organ donation come from a lack of understanding. Honest conversations and real stories can change perspectives and encourage action.
Resilience Is Built Over Time—With Support
From navigating body image to making health-conscious decisions, Haley’s story highlights the importance of family support, self-acceptance, and personal growth.

Tweetable Quotes

“I think it is really a testament to how much medicine has improved since then, because now we have a ton of transplant centers near us, so that's great.”

Haley Williamson

“I've been very fortunate. I've lived a very normal life. I honestly don't think about it most of the time, unless it comes up, and then I'm able to share my story with people. But I know that's not the norm for everyone, so I hope, if nothing else, I can be a voice of hope for people who are awaiting a transplant, or their child's going through something, that there is good on the horizon, and you can live a normal life after a transplant.”

Haley Williamson

“So, Child Life is a program that they have in hospitals for kids. Okay, it's to help improve morale, but also to help things not seem so scary. And other examples are like putting a baby doll through an MRI, so kids know what to expect. They see that their dolls are going through it, so it's not that scary. And so I'm like, I really like this. I enjoy being in this environment.”

Haley Williamson

“I love getting to really break down organ donation to people. I've experienced a lot of hesitancy from people just in my day-to-day life. And so it can be scary going in to talk to people and thinking they're automatically going to say, No, I'm not interested, right? But as soon as you explain things to people, they're like, Oh, this is like, I had no idea. This is what was really going on.”

Haley Williamson

“My scar did not say the same size it was when I was a baby. It has stretched with me. It goes all the way across my stomach, and it's been like, that'd be hard. Yes, it's been like that my whole life. So, especially like in elementary school, for sure, other kids don't understand, right?”

Haley Williamson

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

EP 141: Hope Springs Eternal this Donate Life Month

Episode Summary

In this special episode of This Thing Called Life, host Andi Johnson shines a light on Donate Life Month, observed each April—a time dedicated to honoring organ, tissue, and eye donors, celebrating transplant recipients, and raising awareness about the life-saving power of donation.

Andi reflects on the profound impact of donation—not just as a medical process, but as a deeply human act of generosity that gives others a second chance at life. From the courage of donor families to the renewed hope experienced by recipients, this episode highlights the stories and purpose behind the mission of Network for Hope.

Listeners will also learn simple yet meaningful ways to get involved, from registering as a donor to starting conversations that can ultimately save lives.

This episode is both a tribute and a call to action—reminding us that hope is real, and it begins with a single decision.

Episode Highlights

Host Andi Johnson introduces the significance of Donate Life Month, observed each April to honor organ, tissue, and eye donation and the lives impacted by it.
She shares why this month holds deep meaning for Network for Hope, as it recognizes the extraordinary courage of donors and their families who make life-saving decisions during incredibly difficult times.
The episode celebrates transplant recipients, highlighting how donation provides not just survival—but more time, more milestones, and an improved quality of life.
Andi emphasizes that Donate Life Month is a powerful reminder that hope is made possible through generosity.
She outlines several ways individuals can show support, including wearing blue and green, as a visible sign of awareness and solidarity.
Listeners are encouraged to share personal stories—their own or those of loved ones—to help humanize the impact of donation and inspire others.
Andi highlights opportunities to get involved through local events, flag-raising ceremonies, and online engagement to help spread awareness within communities.
She underscores the importance of registering as an organ donor and, just as importantly, having open conversations with family members about that decision.
The episode reinforces the idea that normalizing conversations around donation is key—because informed, shared decisions are stronger and more likely to be honored.
Andi closes with a message of gratitude and purpose, honoring the legacies of donors while inspiring listeners to help build a future where no one has to wait for a second chance at life.

Key Takeaways

Donation Is a Powerful Legacy of Life
Every donor creates a ripple effect—impacting not just one life, but entire families and communities through the gift of a second chance.
Awareness Starts With Conversation
Talking openly about organ donation with your family ensures your wishes are known and helps normalize a life-saving decision.
Small Actions Can Make a Life-Saving Difference
From registering as a donor to wearing blue and green or sharing a story, simple actions can raise awareness and inspire others to take part.

Tweetable Quotes

“For us at network for hope, this month is deeply meaningful. It's about celebrating the heroes, donors and their families who made courageous decisions during incredibly difficult moments. It's about recognizing transplant recipients whose second chance means more time, more milestones, and a better quality of life.”

Andi Johnson

“You can wear blue and green to show your support. You can share a story. You can attend a local event, participate in a flag raising ceremony, or engage with us online to help spread awareness. You can register as an organ donor and talk with your family about your decision. Most importantly, you can help normalize the conversation, because donation starts with a decision, and decisions are stronger when they're informed and shared.”

Andi Johnson

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

EP 140: "Strength in Every Generation: Orlando Brown Jr. on Family, Football, and Understanding Type 1 Diabetes"

Episode Summary

Cincinnati Bengals Offensive Lineman Orlando Brown Jr. opens up about his family’s powerful story of resilience and awareness in the face of Type 1 diabetes. After losing his father to diabetic ketoacidosis and supporting his brother through the same diagnosis, Orlando has turned his personal loss into a mission for generational health.

In this episode of This Thing Called Life, Orlando discusses how going through the process of genetic testing, prioritizing dietary choices, and educating his family on the disease has shaped their understanding of health—and why awareness, prevention, and advocacy matter for every family.

Episode Highlights

Host Andi Johnson welcomes Cincinnati Bengals offensive lineman Orlando Brown Jr. for a meaningful conversation about family, football, and health advocacy.
Orlando shares his appreciation for being on the show and talks about continuing his journey with Cincinnati for two more seasons.
He explains the story behind his signature fox tail, a tradition that began in college as a good luck charm and has since become part of his identity.
Orlando reflects on his unique path to football, including how his father—former NFL player Orlando Brown Sr.—initially did not want him or his siblings to play sports because of the physical risks involved.
He shares how, despite that hesitation, his love for football continued to grow, eventually leading him to begin playing in the eighth grade.
Orlando talks about how his father later became one of his biggest supporters, helping him develop his game and encouraging his growth as an athlete.
The conversation takes a deeper turn as Orlando opens up about his father’s undiagnosed diabetes and the devastating impact it had on his family.
He discusses how cultural beliefs, distrust of the medical system, and reliance on home remedies can sometimes delay diagnosis and treatment—especially in communities where medical mistrust has been passed down over time.
Orlando also shares his family’s experience with his brother’s Type 1 diabetes diagnosis, and how that moment brought a new level of urgency and awareness to their lives.
He emphasizes the importance of early detection, prevention, and education, especially for families who may be at greater risk.
Orlando speaks candidly about the steps he now takes to protect his own health, including monitoring his body closely and making intentional lifestyle choices to avoid the same health challenges that affected his family.
He shares how supporting his brother and others living with Type 1 diabetes deepened his understanding of the daily realities of the disease.
Orlando highlights his advocacy work, including efforts to make insulin more affordable, raise awareness, and support research aimed at prevention and a cure.
He discusses participating in preventive testing and trials, using his platform to encourage others to take action before health issues become crises.
Orlando also opens up about the meaning behind several of his tattoos, including one honoring his father and another connected to his brother’s diagnosis.
He shares the story of one of his most meaningful tattoos—a portrait of his grandfather—and reflects on the powerful influence his grandfather had on his life and values.
The episode also touches on Orlando’s commitment to long-term wellness through nutrition. He explains why he hired a full-time nutritionist to help reduce inflammation, improve recovery, and better understand how food affects his body.
He talks about preventative health practices, natural remedies, and the importance of using today’s science and resources to avoid the chronic health issues many former athletes face later in life.
Orlando closes by speaking about his role on the field, his love for protecting his quarterback, and the importance of being a consistent, vocal leader for his team.

Key Takeaways

Family health history matters more than many people realize.
Orlando’s story is a powerful reminder that understanding your family’s medical history can help you make informed, life-saving decisions earlier.
Awareness and early action can change outcomes.
From genetic testing to prevention efforts, this episode underscores the importance of paying attention to warning signs and taking proactive steps before a health crisis occurs.
Personal pain can become purposeful advocacy.
Orlando has transformed his family’s loss and challenges into a mission to educate others, support research, and use his platform to drive meaningful change.

Tweetable Quotes

“My football story is really unique. My so my dad played in the NFL for 13 years, and he didn't start playing till he was in 11th grade in high school, and his biggest thing for me and my siblings were he didn't want us playing sports.”

Orlando Brown Jr.

“I would always go to the practices. I kept up with it. So I've always had a real passion for the game of football, but he would not let me play. For him, football is a dark sport in a way, you know, and I've been fortunate in my path to get here, I was drafted, and I've had better opportunities than he did.”

Orlando Brown Jr.

“Southern black culture isn't, you know, the hospitals and doctors and medicine, it's more about remedies and, you know, things like that. That was my family. Distrust of the medical system.”

Orlando Brown Jr.

“ It's so important because, you know, as you said, experiencing it firsthand. You know, I always want to make sure that somebody can learn from my mistakes and or my family's mistakes. And that's so important. It's so important to be able to get ahead of it.”

Orlando Brown Jr.

“I've spent a lot of time, I feel like all over the US. I've gone to the Senate and talked about making insulin more affordable. I've gone to different children's Mercy hospitals across the US and work with them on finding a cure. I've completed the trial net, which is the preventive version of type one, just to make sure you don't have the antibodies.“

Orlando Brown Jr.

“My nutritionist does this food test where she's able to tell you what food you can and can't eat that inflames your body.”

Orlando Brown Jr.

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

EP 138: "A Leap Of Faith, Chelsea's Altruistic Kidney Donation Journey"

Episode Summary

Chelsea McNicholas, a Hospital Partnership Liaison with Network for Hope, joins This Thing Called Life to share how a social media post and her faith led her to become an altruistic kidney donor for a Child. Chelsea recounts starting the testing process after hearing about a friend’s mother's need. Although she was not a match, it led her to another post about a child's need for a kidney, so she continued the testing. Ultimately, she was not needed because that child found a donor.

She walks us through her personal journey, the emotional and logistical realities of altruistic donation, and why community education about organ, tissue, and eye donation matters. Hear a personal, hopeful story that demystifies donation and inspires listeners to learn how they can help save lives.

Episode Highlights

Host Andi Johnson welcomes listeners and introduces guest Chelsea McNicholas, a dedicated advocate for organ donation and a valued member of the team at Network for Hope.
Chelsea shares her professional background in healthcare and explains how becoming a mother helped inspire her decision to transition into her role with Network for Hope, where she could make a meaningful impact on the lives of others.
As a Hospital Partnership Liaison, Chelsea explains that her work centers on building and maintaining strong relationships with hospital teams to ensure the organ donation process is handled with care, compassion, and efficiency.
She describes the unique dual advocacy role she plays—supporting both hospital partners and the Network for Hope team throughout the donation process to ensure every step honors the donor and their family.
Chelsea discusses her day-to-day responsibilities, which include hospital education, policy updates, compliance support, and continuous follow-up to strengthen collaboration between healthcare teams and the donation network.
The conversation highlights how strong hospital partnerships are essential to ensuring successful donation outcomes and providing families with compassionate support during difficult moments.
Chelsea shares some of the challenges of her role, particularly when unexpected issues arise within hospital systems. In those moments, creativity, adaptability, and problem-solving become essential.
She praises the leadership at Network for Hope for fostering a supportive culture that empowers team members to think innovatively and find solutions that best serve donors, recipients, and healthcare partners.
Andi and Chelsea reflect on the fulfillment that comes from working alongside passionate colleagues who are united by a shared mission to save and improve lives through donation.
The conversation also addresses the scrutiny and misinformation that can sometimes surround organ donation. Chelsea emphasizes the importance of transparency, education, and trust in maintaining strong relationships with hospitals and the public.
They discuss the important role donation ambassadors play in sharing personal stories that build understanding and confidence in the donation process.
Chelsea then shares her deeply personal journey as a living donor. Before working in the field, she had little direct connection to organ donation until she began seeing social media posts from former classmates searching for kidney donors.
Moved by their stories, Chelsea began exploring the possibility of becoming a donor herself. She describes the emotional and physical process of testing and waiting to see if she would be a match.
Faith played a central role in her decision, along with the encouragement and support she received from her family.
Chelsea recounts the powerful moment she met Reed, the young man who would ultimately receive her kidney, and learned more about the health challenges he and his family had faced due to kidney failure.
She reflects on the emotional experience of donation surgery and the immediate bond formed between her and Reed’s family.
Chelsea also discusses the recovery process for both herself and Reed, highlighting the strength, faith, and support systems that carried them through the journey.
Today, Chelsea continues to stay connected with Reed and his family, witnessing firsthand the life-changing impact of living donation.
She shares how the experience has shaped conversations with her own children, teaching them the importance of compassion, generosity, and helping others whenever possible.
The episode concludes with Andi expressing deep admiration for Chelsea’s courage, compassion, and dedication to the mission of organ donation—recognizing her as both an advocate and a source of hope for many families.

Key Takeaways

Organ Donation Is Built on Trust and Relationships
Strong partnerships between hospitals, donation organizations, and families are essential to ensuring the donation process is handled with compassion, integrity, and respect.
One Person’s Courage Can Transform Multiple Lives
Chelsea’s decision to become a living kidney donor demonstrates how a single act of generosity can profoundly impact not only a recipient but their entire family.
Personal Stories Inspire Awareness and Action
Sharing real experiences helps break through misinformation and encourages others to learn more about organ donation and consider how they might make a difference.

Tweetable Quotes

“We are the glue that holds the process together. I believe that our team is kind of a dual advocate in the donation process. “

Chelsea McNicholas

“When things go awry at a hospital, that is challenging because the work is not flawless. The work is never done, if you will. So there are always challenges that arise. “

Chelsea McNicholas

“I think it leans back into that strong relationship and strong trust. So knowing the truth right, like we know the truth right, and we have strong relationships with our hospitals to the point where they trust us. We've built that culture of trust and connection with our partners.”

Chelsea McNicholas

“So I think again, a great opportunity for me to be an advocate and to educate people in my circle, my husband, and my entire family, was incredibly supportive.”

Chelsea McNicholas

“I think when I can look back on my life, faith was the foundation through every step and every decision, maybe in the moment, not as easy to see, but now looking back, I can absolutely identify that.”

Chelsea McNicholas

“It's really wild to think that a part of me is living on and someone else, and that most days I completely forgot I even did it, because I am right back to where I was, you know, five months ago, prior to the surgery.”

Chelsea McNicholas

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

EP 137: Reborn at 51: Jamie Mahaffey’s Second Chance at Life

Episode Summary

What does it mean to be reborn at 51?

In this powerful episode of This Thing Called Life, heart transplant recipient Jamie Mahaffey shares his extraordinary journey of survival, resilience, and purpose. After undergoing a heart transplant, the former athlete, coach, and Athletic Director at North College Hill City Schools discovered a renewed calling to lead with greater intention. Becoming a John Maxwell Coach inspired him to launch his own company focused on helping others achieve their goals and elevate their lives.

Jamie’s story is a masterclass in perseverance, perspective, and personal leadership—proof that you don’t match the energy around you… You set the standard.

Episode Highlights

Host Andi Johnson welcomes Jamie Mahaffey and invites him to share the health crisis that changed everything.
On November 11, Jamie became lightheaded at work and was rushed to UC Hospital, where doctors discovered a serious infection in his LVAD (Left Ventricular Assist Device).
Facing two life-altering options—replace the LVAD or undergo a heart transplant at Vanderbilt University—Jamie chose the transplant after prayer, reflection, and encouragement from trusted advisors.
While driving to Vanderbilt on January 17, Jamie was shocked by his defibrillator 42 times, a harrowing moment that underscored the urgency of his condition.
Within days of being upgraded to Status Level One on the transplant list, a donor heart became available. Surgery was scheduled for January 21.
Jamie remained in a coma until January 24. When he awoke, he was reunited with his wife Robin and their children in an emotional and life-defining moment.
Robin’s meticulous advocacy and unwavering presence became a critical part of Jamie’s survival and recovery.
Jamie reflects on the deep gratitude he feels for his donor—and the profound awareness that his second chance came through another family’s loss.
A letter from the donor’s mother became a pivotal moment, inspiring Jamie to move forward boldly in launching his leadership company.
Post-transplant recovery included the unexpected amputation of his leg—an emotional and physical challenge Jamie describes as even harder than the transplant itself.
Through faith, family support, and resilience, Jamie developed a renewed vision for his life centered on impact and purpose.
He shares his journey to becoming a certified John Maxwell Coach and his vision of speaking, writing, and helping others live beyond their potential.
Jamie emphasizes living with integrity, leading intentionally, and choosing purpose over comfort.

Key Takeaways

Adversity Clarifies Purpose
Life-threatening challenges often strip away distractions and reveal what truly matters. Jamie’s second chance forced him to reevaluate his priorities and commit fully to purposeful leadership.
Leadership Starts With Personal Responsibility
You don’t match the energy around you—you set the standard. Jamie’s story demonstrates that leadership is not about position, but about the example you choose to live daily.
Gratitude Changes Everything
Understanding that his new heart came at a great cost reshaped Jamie’s perspective. Gratitude became fuel for impact, reminding him to live in a way that honors both the gift and the giver.

Tweetable Quotes

“So I had two weeks of tests. Everything you can imagine. You know dentists, too. That's another thing, if you don't take care of your teeth, that's an affection of your heart. So those appointments are important, something that I didn't do regularly.”

Jamie Mahaffey

“My defibrillator shocked me 42 times. And so the cardiologist came down, and he was like, Okay, we have to admit him. And so that's when I stayed there. And on January 18, the doctor came in that morning, and he said, You go from level three to level one a. Level one is where you need a transplant. “

Jamie Mahaffey

“I was in a coma for five days because my heart wasn't initiating with my body.”

Jamie Mahaffey

“God was giving me another opportunity to listen to him. It was a time. I mean, I was just always busy. I was a head coach and won state titles and played college ball and played overseas, and I was always moving, but I was always looking after other people as a man. We are fathers, and we take care of our house, and I was an ad, and I was a coach, I was a mentor, so I'm looking after everybody else but myself. And it was a time he was saying, it's your turn.”

Jamie Mahaffey

“I know there's a purpose for me to just keep having people to not live off their potential, but pursue their destiny. And so that's why I teach a lot of kids. A lot of people are still in life, living off potential but not pursuing their destiny. “

Jamie Mahaffey

“Maxwell certification was a stepping stone to a vision. I always heard about myself, about being a motivational speaker, about writing books, about having normal eyesight in life.”

Jamie Mahaffey

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

EP 134 Title: Honoring the Gift of Life: Erica Randall’s Journey with Network for Hope and Organ Donation

Episode Summary

In this heartfelt episode, Erica Randall, Community Partnership and Events Manager at Network for Hope, shares her inspiring journey in building stronger communities and advocating for organ donation. Erica opens up about her role within the organization, highlighting the rewarding experience of organizing the annual Network for Hope Community Breakfast. But the conversation takes a deeply personal turn as Erica reflects on her family’s connection to organ donation, including the passing of her cousin Jason, who became an organ donor after a tragic car accident, and her mother-in-law Gail, who gave the gift of sight through cornea donation. Erica also discusses the creation of the SODA (Student Organ Donation Advocates) chapter in Cincinnati, which has now grown to 7-8 thriving chapters, and her deep passion for honoring both donors and recipients. Tune in to hear about Erica’s mission to spread awareness, inspire others, and make a lasting impact on the lives of those touched by organ donation.

Episode Highlights

Erica Randall discusses her role at Network for Hope as the Community Partnerships and Events Manager, where she builds bridges between communities and the life-saving mission of donation.
They recently held their annual breakfast event, themed “Voices of Hope,” where speakers reflected on the joy, resilience, and positivity of children and young adults impacted by donation.
The event was visually brought to life through participants’ paintings surrounding the word hope, creating a powerful representation of lived experiences.
Andi and Erica highlight Keegan, a young boy waiting for a lung transplant whose optimism and enthusiasm inspired everyone in the room.
Erica shared the story of Jaylynn, a cornea recipient who is now thriving as a high-school senior, illustrating how donation restores independence and possibility.
Erica has spent nine years in the OPO field and is deeply committed to educating communities about how the donation process truly works.
Erica shares how the loss of her cousin Jason, who became an organ donor after a fatal car accident at 23, introduced her to the world of donation.
She reflects on more than a decade of donation support services, building meaningful relationships with donor families during their most vulnerable moments.
Erica explains why specific medical questions are asked during tissue donation, emphasizing safety, ethics, and protection for recipients.
Erica’s mother-in-law Gail was diagnosed with liver cancer yet still became a cornea donor at age 66, restoring sight to two people in Saudi Arabia.
Gail’s story highlights the importance of educating the public that certain donations are still possible—even with active cancer diagnoses.
Erica shares her work with the Student Organ Donation Advocates (SODA) chapter in Ohio, where over 550 students registered as donors.
She emphasizes how today’s teenagers are setting a powerful standard for social impact and advocacy.
Andi thanks Erica for her transparency, leadership, and dedication to sharing knowledge that empowers informed decisions about donation.

Key Takeaways

Education dispels fear. Accurate, compassionate education helps families and communities understand donation and make informed decisions rooted in truth—not misinformation.
Hope has many voices. From children waiting for transplants to recipients thriving years later, each story demonstrates the ripple effect of donation.
Legacy lives on through giving. Personal loss, like Erica’s experience with her cousin Jason, can transform grief into purpose and lifelong advocacy.

Tweetable Quotes

“So our theme is voices of hope. And we did feature children and young adults. And I liked that idea because I wanted to show people it's not just adults who go through this. It does impact, you know, children at birth, or it does impact children very young age.” - Erica Randall

“So Jalen scratched her cornea when she was two years old and had to receive a cornea transplant. She is now a senior in high school in cosmetology. I'm so proud of her, and she is a signed professional Fisher woman. Oh, my God, and to see her just thrive all because of a cornea transplant, and how her life, I mean, she could be 17 years old with no eye, or she could have no vision.” - Erical Randall

“At 23 years old, he (Jason, Erica’s cousin) became a superhero, and he was able to donate his heart, his liver, his kidneys, and he was a tissue donor. So that completely flipped our lives upside down, but introduced me to a world of donation I had no clue even existed.” - Erica Randall

“I think it's an honor to give them the chance to have that light that somebody gave me when Jason became a donor. It gave us some positivity to his death. It gave us some glimpse of hope, some light in our lives, and to give that, to pass that on to somebody else, to have that chance was a great privilege.” - Erica Randall

“She (Gail, Erica’s Mother-in-Law) became a cornea donor at the age of 66 in her corneas, or in Saudi Arabia. So two people in Saudi Arabia have the gift of sight because of her. So, again, great moment here to educate people that can be cornea donors and have active cancer.” - Erica Randall

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Title: EP 133: “Walking by Faith: Maria’s Story of Survival and Purpose”

🎙️ Episode Summary

In this episode of This Thing Called Life, we meet Maria Valentina Almeida — a college graduate, a passionate advocate, and a woman whose faith has carried her through a lifetime of medical battles.

Born with sepsis and a rare Colecta malformation that led to kidney failure, Maria now shares her story to bring hope, dignity, and strength to others living with disabilities. Her journey is still unfolding, and she is in urgent need of a kidney donor — but her spirit remains unshakeable. This conversation shines with resilience, purpose, and the power of believing in something bigger.

✨ Episode Highlights

Maria shares her background, including her mother's history with kidney disease and transplants.
Maria's mother was diagnosed with kidney failure at 19 and underwent multiple transplants, inspiring Maria.
Maria's mother had Maria and her twin sister during her second transplant, highlighting her resilience and determination.
Maria was born in Venezuela with sepsis and underwent emergency surgery on her first day of life.
She spent 45 days in the NICU and faced alarming prognoses from doctors, but she has proven them wrong.
Maria had her kidney removed at nine years old during a surgery in the United States in 2011.
Despite her health challenges, Maria has always tried to live a normal life and take her treatments seriously.
Maria discusses the impact of her chronic illness on her life, including feeling different from her peers.
She emphasizes the importance of not seeing herself as a victim and using her challenges as a strength.
Maria shares her faith and how it has helped her through her difficult times.
She talks about the power of sharing her story and connecting with others who have similar challenges.
Maria graduated from college early due to her kidney failure symptoms and received two degrees in journalism and public health.
She also has a minor in health behavior analysis and plans to use her education to advocate for others.
Maria's faith and family support have been crucial in her journey, and she aims to continue sharing her story.
She expresses her desire to use her platform to help others who may not have the same resources or support.
Maria's twin sister has been a strong advocate for her, creating a Canva campaign and getting billboards to raise awareness.
Maria's parents have also been very supportive, attending her appointments and taking care of her.
Maria's faith and family support have helped her stay positive and hopeful through her challenges.
She shares her dreams of receiving a transplant and how it would change her life.
She encourages others to reach out for help and support, and to continue dreaming and achieving despite their challenges.
Andi Johnson concludes the podcast by thanking Maria and reminding listeners of the importance of living donation and kindness.

📝 Key Takeaways

Resilience is cultivated, not accidental. Maria’s journey — from emergency surgery at birth to kidney removal at age nine and ongoing health battles — reflects a life shaped by determination, faith, and a refusal to see herself as a victim.
Family support and advocacy can change outcomes. From her mother’s perseverance through three transplants to her sister launching awareness campaigns and her parents accompanying her to appointments, Maria’s story is a testament to the life-saving power of community.
Sharing your story can create purpose and hope. With degrees in journalism and public health, Maria is committed to helping others navigate illness and disability. By speaking boldly about her own journey — and her need for a kidney donor — she offers courage, information, and connection to others on the same path.

📢 Tweetable Quotes

“She is a third-time transplant survivor, and she's just my biggest inspiration. But something that stands out a lot about my mom is that she had my twin sister and me during her second transplant, after her second transplant had happened. It's just so motivating to see how she persevered and how she had this goal of being a mom, even despite what she went through since such a young age.”

- Maria on her Mother’s experience with Kidney Disease

“The doctors gave my parents a lot of alarming prognoses of just my future, and even told them that it would take a miracle for me to just live to make it. And if I were to make it, I would have a lot of complications. I would not be able to walk. Talk, talk, I would not be just a normal human being, and I have just proven them wrong. I am so blessed, and that just comes to show how much God loves me.”

- Maria’s first day out into the world and her first surgery

“I went through a couple of surgeries from the very beginning to correct my condition that I was initially born with, which was cloaca malformation to colorectal malformation, and my kidney was removed at nine years old when I came to the United States in 2011.”

- Maria on her surgery to remove her kidney at 9 years old

“So I was managing finishing school and symptoms and just life the last four months, five months of the year of 2024, and it was a challenge, but I made it. I walked across that stage with two degrees and a technical.”

- Maria Valentina Almeida

“Yes, I I know that I'm called to share my story, to continue to do this as a as a long term thing, as a lifelong thing, just stand and raise my voice for for my vulnerability, but also the vulnerability of others that are not able to have this platform, that are that don't know where to start, that don't have just the motivation, or don't have the support or the resources. “

- Maria Valentina Almeida

“I dream of my kidney. I have had many dreams where I am literally lying in a hospital bed waiting to go into the or and I wake up, and I say, Maybe today's it. So I'm not gonna lie. I'm very eager, and sometimes I get very desperate, but that's normal.”

- Maria Valentina Almeida

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Title: EP 131: “Three Hearts, One Journey: The Massie Family’s Journey with Alport Syndrome”

🎙️ Episode Summary

In this episode of This Thing Called Life, we meet Katelyn Massie, whose family’s story is one of strength, resilience, and hope. Katelyn, her mother Amanda, and her brother Hunter all live with Alport Syndrome, a rare genetic condition that leads to kidney disease and, for many, the need for a transplant. Katelyn shares how her family’s challenges have turned into a powerful story of advocacy, awareness, and gratitude for the gift of life.

Katelyn has turned her personal challenges into purpose — pursuing a Master’s Degree in Bioengineering at the University of Washington and working on developing a portable dialysis device that could change the future for patients like her.

Andi Johnson introduces Katelyn Massie, the daughter of Amanda and sister of Hunter, who joins the podcast from Vanceburg, Kentucky, where she is currently receiving dialysis treatment.
Katelyn shares her background, including her Alport Syndrome diagnosis, her Master’s Degree in Bioengineering, and her innovative work on a portable dialysis device at the University of Washington — a project inspired by her own experience as a patient.
Katelyn addresses the widespread misconceptions surrounding organ donation, encouraging listeners to research thoroughly and rely on credible medical sources instead of fear-based narratives.
She clarifies that being a registered organ donor does not affect the quality of medical care you receive — an important myth to dispel.
Katelyn emphasizes making informed decisions based on facts and personal conviction rather than hearsay or outdated assumptions.
Andi inquires about the process of learning more about living kidney donation and how individuals can register as donors.
Katelyn highlights the UK Living Donor Clinic, sharing her positive experience and the inspiring number of people willing to get tested for potential matches.
She mentions that her father was told he didn’t need to get tested because there were already so many individuals in the pipeline — a beautiful testament to generosity in action.
Katelyn encourages others to take initiative, reminding listeners that every potential donor adds hope for someone waiting.
When asked about her daily life, Katelyn opens up about her family’s shared journey, explaining the emotional and physical toll of living with kidney disease.
She shares that she and her brother attend dialysis together, which helps them both find comfort and strength in shared understanding.
Katelyn recounts emergencies when her low hemoglobin levels required hospitalization — moments where her brother’s presence made all the difference.
Andi expresses deep gratitude to Katelyn for her courage and transparency, wishing her family continued strength and healing as they wait for transplants.
The episode closes with a heartfelt reminder from Andi: over 100,000 people are currently waiting for a life-saving transplant — 90,000 of whom need kidneys.
Listeners are encouraged to register as organ donors or consider living donation through trusted platforms such as RegisterMe.org and Network for Hope.

📝 Key Takeaways

Knowledge Over Fear: Katelyn reminds listeners that misinformation is one of the biggest barriers to organ donation. By turning to medical and scholarly resources, individuals can make empowered, informed decisions rooted in truth rather than fear.
The Power of Family Support: Facing dialysis alongside her brother Hunter, Katelyn’s story highlights how shared strength and empathy within families can turn even the hardest challenges into moments of connection and resilience.
Innovation and Hope for the Future: Through her studies in bioengineering and her work on a portable dialysis device, Katelyn represents the next generation of changemakers — patients turned innovators who are redefining what’s possible for kidney health.

📢 Tweetable Quotes

“I think that there are a lot of misconceptions surrounding organ donation and that that gives people a lot of hesitation, but I would just encourage people to do your research and really look into it and look at it from scholarly sources, rather than, like, fear mongering.”

- Katelyn Massie

“And I've actually had really great success with that, because UK has told me that they just have a massive list of people willing to get tested to the point where they haven't even, like they contacted my dad when he was willing to get tested and told him, like, we have plenty of people in the pipeline. We don't need you, and they haven't called him back to ask him to get tested.”

- Katelyn Massie

“It's stressful for sure, because I'm worried about myself, but then I also have to worry about Hunter and mom as well.”

- Katelyn Massie

“It gives me a lot of anxiety just worrying about them all the time, but at the same time, it's kind of nice to have people that understand what I'm going through and that I can relate to, like Hunter and I go to dialysis together.”

- Katelyn Massie

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Title: “The Ripple Effect: Maggie Luken’s Journey of Loss, Love, and Life”

🎙️ Episode Summary

In this deeply moving episode of This Thing Called Life, host Andi Johnson welcomes Maggie Luken, whose story reminds us that even in profound loss, love can create ripples of life.

When tragedy struck, Maggie Luken chose compassion. In this moving interview, she reflects on a year marked by major back surgery, the loss of two brothers, and the life-giving decision that followed. Inspired by her brother Brendon’s organ donation, Maggie became a living donor herself. Now an Ambassador for donation, Maggie's story is a testament to resilience, purpose, and how one act of kindness can create ripples of life.

✨ Episode Highlights

Andi Johnson welcomes Maggie Luken, setting the stage for a story of resilience and hope.
Maggie opens up about her lifelong battle with back issues due to a genetic defect — a condition that began affecting her as early as age 12.
Over time, severe back pain led her to use a wheelchair and undergo extensive physical therapy.
After having two children, Maggie’s condition worsened, leaving her unable to stand for more than five minutes and suffering intense nerve pain.
She describes her bilateral spinal fusion and discectomy — a major surgery that replaced damaged discs with metal rods and screws. Maggie recalls the painful recovery but also the immediate relief she felt when the nerve pain vanished.
Now, 2.5 years post-surgery, Maggie shares her gratitude for a full recovery and no longer needing medical visits for her back.
Tragedy struck when her 24-year-old brother Brendan suffered a heart attack while at the gym. Maggie recounts the devastating details, including a delay in help and the family’s desperate hope as Brendan was placed on ECMO life support for a week.
Despite their faith in a miracle, scans revealed irreversible brain damage, forcing the family to face the unimaginable.
Maggie shares the heartfelt decision to donate Brendan’s organs, knowing his legacy would live on through others.
She finds comfort in knowing that Brendan’s heart, kidneys, and eyes gave life and sight to multiple people.
Reflecting on his legacy, Maggie describes Brendan as a source of inspiration, pushing her to continue his story through advocacy.
She also reveals the unexpected loss of her second brother, Colin, just months later, to an accidental overdose — a loss that deepened her purpose in helping others.
Maggie shares how she was inspired by a podcast episode and a local kidney recipient’s story to become a living donor herself.
With the unwavering support of her husband and community, she embarked on the journey to donate a kidney — describing the procedure as less invasive than her back surgery and the recovery as surprisingly manageable.
Maggie speaks candidly about her emotional healing after the surgery and how the experience became part of her process of grief and renewal.
She encourages listeners to consider organ and living donation, reminding them that it’s not only life-changing for the recipient but healing for the donor as well.
Maggie shares how her advocacy inspired Carrie, a local dietitian, to donate her own kidney to a stranger — a ripple effect that continues to grow.
She closes by reflecting on her brothers’ legacies, her mission to honor them, and the hope that others will be moved to give life through organ donation.
Andi Johnson thanks Maggie for her openness and courage, closing with a message of gratitude for those who turn tragedy into purpose.

📝 Key Takeaways

Turning Pain into Purpose: Maggie’s story shows how personal tragedy can become a powerful catalyst for compassion. Her choice to become a living donor transformed grief into hope — not only for herself but for others in need.
The Ripple Effect of Donation: From Brendan’s selfless organ donation to Maggie’s own kidney gift — and now Carrie’s — one act of kindness can inspire a chain of generosity that touches countless lives.
Healing Through Advocacy: Maggie’s work as an organ donation ambassador highlights how sharing personal stories can encourage others to register, donate, and change lives while preserving the memory of loved ones.

📢 Tweetable Quotes

“After having two children, you carry two babies and your back. It really does a number on it, right? So, yeah. By the end of 2022, I couldn't stand for more than five minutes at a time. My nerve was completely pinched. I had been told I wasn't allowed to pick up my kids anymore.”

Maggie Luken

“And so I have like, two metal rods and four screws and a fake disc in my back now, yeah, but I feel great. It's, I mean, as soon as I woke up from surgery, the nerve pain was gone. It's, you know, it's awful their recovery. I'm not gonna lie, it's the hardest thing physically that I've ever gone through.”

- Maggie Luken

“We found out that he had a heart attack at the gym where he worked at Planet Fitness, and nobody tried to help him. They just walked around him for almost five minutes before they tried to help or called 911, and so by the time the paramedics got there, they were able to restart his heart, but it had been 40 minutes…”

- Maggie Luken on her brother, Brendan’s heart attack

“It's really crazy to think that you know somebody out there is literally seeing the world through my brother's eyes. Somebody's heart is pumping blood through his heart valves. You know, there's somebody who has a personal liver now, and people have kidneys, and we got a message from someone who received like tissue and they were able to heal from something that they had been struggling with.”

- Maggie Luken

“So the actual incisions for where it's done are very small, and then they do take it out in one piece, and so you have the larger, like, it's basically a C-section score. So I kind of just felt like I didn't have a C-section with either of my children, but I kind of just felt like I had to chill again. Like, after you have a baby, you're just taking it easy.”

- Maggie Luken on her surgery

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Title: "Meeting My Kidney Sister: Sarah Green-Moore’s Story of Healing and Purpose"

🎙️ Episode Summary

In this heartfelt episode of This Thing Called Life, we sit down with Sarah Green-Moore, a kidney transplant recipient whose story is as inspiring as it is extraordinary. Sarah shares the unforgettable moment she met her “kidney sister” — the woman receiving the other kidney from the same donor — in the hospital lobby just before their transplants. Now, thriving with a new lease on life, Sarah is paying it forward by caring for her 8-year-old daughter who needed her when she was least expecting it. This is a moving story of second chances, sisterhood, and the power of showing up when it matters most.

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✨ Episode Highlights

Sarah Green-Moore shares her story, beginning in 2015 when her primary physician referred her to a specialist for kidney issues, and a moment that would soon change her life.

Ignoring the warning signs, Sarah initially brushed off her doctor’s advice, believing she was healthy and active. But her mother’s illness with multiple myeloma in 2012 became a turning point that reminded her of the fragility of life.

Determined to face her health head-on, she decided to take responsibility for her well-being to avoid burdening her siblings, who relied on her strength and support.

When her specialist advised starting dialysis, Sarah resisted the idea, struggling to reconcile how someone who “felt fine” could be so sick.

The emotional weight of the diagnosis sank in, and she had to come to terms with the reality of living with kidney disease.

Sarah shared the difficult news with her oldest brother, whose heartbreak reflected the entire family’s shock and concern.

In seeking answers, Sarah researched her family’s health history, only to find that chronic kidney disease (CKD) didn’t run in the family — making her condition even more puzzling.

She decided to break the news to her family through a picnic, a setting filled with love yet marked by emotional reactions and tears.

Visiting dialysis centers opened Sarah’s eyes to the reality of the journey ahead, stirring both fear and uncertainty, yet also courage.

She remained steadfast in her resolve to maintain her independence and dignity, refusing to let illness define her.

With family encouragement, Sarah focused on getting healthier and being placed on the transplant waiting list.

In 2017, she received the call that changed everything — her time for a transplant had come.

In an extraordinary twist, Sarah met another patient in the hospital and soon discovered they were both receiving kidneys from the same donor, forming an unbreakable bond as the “kidney sisters.”

Eight years later, Sarah reflects on life post-transplant and her journey as a mother, a caretaker, and an advocate for others walking similar paths.

Her “kidney sister” became her accountability partner and emotional anchor, proving how shared experiences can create lasting friendships.

Sarah believes in the power of speaking openly about her experience to encourage others to face their health fears and seek help early.

She and Andi discuss the need to educate the public about organ donation, dispelling misconceptions and promoting understanding.

They highlight the benefits of the Paired Kidney Exchange Program, which helps match living donors and recipients more efficiently.

Sarah closes by encouraging everyone to consider organ donation and embrace the opportunity to give life to others.

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📝 Key Takeaways

Listening to your body can save your life. Sarah’s story reminds us that even when we feel “fine,” it’s crucial to pay attention to medical advice and early warning signs — prevention and awareness can make all the difference.
Connection brings healing. Meeting her “kidney sister” turned a medical journey into a story of shared hope, mutual strength, and lasting friendship — showing how donation can create unexpected bonds.
Advocacy through authenticity. By sharing her experiences openly, Sarah helps others overcome fear, understand the truth about kidney disease, and see organ donation as an act of compassion and courage.

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📢 Tweetable Quotes

“And so when I decided to listen, I went to the specialist, and the specialist was like, It's time for you to do dialysis. I'm looking at him like, ‘You're whack’, I'm not having any symptoms, and I've always dealt with being anemic from when I started my menstrual cycle, so that was nothing new to me.”

Sarah Green-Moore on being recommended for dialysis

“ I had to tell him the only thing that's wrong with your sister. She needs a kidney. That's the only thing that's wrong with me.”

Sarah Green-Moore on sharing the news with family

“I almost started wanting to fight again, especially when it was time for me to get my access, I was like. I could not fathom being connected to a machine that I knew would save my life.”

Sarah Green-Moore on starting dialysis

“This doesn't define me. This doesn't say who I am, but I have to be honest about going through that journey and visiting the different centers and things that scared the fool out of me.”

Sarah Green-Moore

“To be able to have somebody where I could just be there for each other, just hold her hand, and she can hold my hand.”

Sarah Green-Moore on having her kidney sister

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Title: "Legacy in Life and Loss: Adria Johnson on Her Son’s Gift of Hope"

🎙️ Episode Summary

In this powerful and emotional episode of This Thing Called Life, we sit down with Adria Johnson, President and CEO of Metro United Way in Louisville, Kentucky, as she shares the deeply personal story of losing her son, KJ, in a tragic car accident. KJ made the selfless decision to become an organ donor — a choice that gave the gift of life to others even in his passing.

Joined by Barry Massa, CEO for Network for Hope, this episode also sheds light on the critical difference between DCD (Donation after Circulatory Death) and brain death, offering clarity and compassion for families navigating organ donation.

Together, Adria and Barry bring heart, hope, and understanding to a conversation that touches every aspect of life, love, and legacy.

✨ Episode Highlights

Guests introduced: Host Andi Johnson welcomes Barry Massa and Adria Johnson, who share their experiences with organ donation.
Adria’s story: She recounts losing her son, KJ, in a car accident and the remarkable impact of his donation — his heart saved a 36-year-old man, and his kidneys gave two mothers renewed life.
Barry’s perspective: He reflects on how KJ’s story fuels his passion for the mission of organ donation and inspires his work every day.
Support from COTA: Adria and her family received compassionate care from the Children’s Organ Transplant Association, which walked alongside them during the most difficult moments.
KJ’s decision: Paperwork revealed that at just 18 years old, KJ had already elected to be an organ donor, a decision that turned his loss into hope for others.
The Honor Walk: KJ’s hospital held a moving ceremony to honor his life and gift of donation, a moment that deeply touched his family.
Hospital partnerships: Barry stresses the critical role of strong hospital relationships in ensuring organ donation success.
Understanding donation: The episode clearly explains the difference between brain death and DCD. Brain death occurs when all brain function ceases, while DCD is donation after the heart stops — both allowing for organ donation under specific conditions.
Family acceptance: Adria shares how she fully supported her son’s decision, finding comfort in his selflessness.
Aftercare support: Network for Hope’s Aftercare department provided Adria’s family with ongoing emotional and memorial support, helping them through grief and connection with recipients.
Organizational challenges: Barry speaks about recent challenges in the field, including investigations, corrective action plans, and congressional hearings around organ procurement modernization.
Medical recommendations: HRSA guidance calls for neuro exams every 12 hours for DCD cases to ensure accurate assessment.

📝 Key Takeaways

The power of one decision: At only 18 years old, KJ’s choice to register as an organ donor transformed his tragic passing into a legacy of life, saving and improving the lives of multiple recipients.
Compassion and support matter: From COTA’s care to Network for Hope’s Aftercare team, Adria’s family experienced how vital emotional and practical support is for donor families navigating both loss and healing.
Education brings clarity and courage: Understanding the differences between brain death and DCD helps families make informed decisions, reduces fear, and fosters greater trust in the organ donation process.

📢 Tweetable Quotes

“You know, it was hard enough to prepare to say goodbye to my son and know that KJ would no longer be here, but he had elected at the age of 18 to be an organ donor, unbeknownst to us, and certainly, I consider him probably the premier selfless hero that I will know in my lifetime because of that gift.”

- Adria Johnson

“You know, it really takes a lot of dedication, and if you're just in it for a job, you'll never make it. You have to be passionate about the mission.”

- Barry Massa

“And when that decision was made, what I really appreciated was, again, just the tenderness, the comprehensive way in which they prepared us for all of it, you know, just what needed to take place for the duration of K J's hospital stay.”

- Adria Johnson

“And very early on in when I became Executive Director of Life Center, before becoming CEO of Network for Hope, I felt like relationships with their hospitals were going to be the key for our success to honor those gifts of donation.”

- Barry Massa

“ I didn't have any reservations, like I said, from the minute all of this started for us, and even just in being made aware that you know your son did elect to be an organ donor, and if you know that is something you all want to pursue.”

- Adria Johnson

“I mean, from the minute we had to get through all of that painful episode, and you're now kind of adjusting to life without this person, it was. I mean, just consistent check-ins:

‘How is your family doing?’ I mean, even the you know, helping us in terms of, ‘do you want to try and have some connectivity with the folks that have been the recipients of his gifts?’ So there's all of that also added an element of support. “

- Adria Johnson on receiving support from the AfterCare Team

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Title: Twice Gifted: Beth Otto’s Journey As a 2 Time Kidney Recipient

🎙️ Episode Summary

In today’s episode of This Thing Called Life, host Andi Johnson interviews Beth Otto. At just 25 years old, Beth Otto received her first life-saving kidney transplant from a deceased donor. Years later, a second transplant — this time from a selfless friend — gave her a renewed lease on life. In this inspiring episode, Beth opens up about her journey as a two-time kidney recipient and how those experiences shaped her purpose. Motivated by the care she received, Beth became a nurse, dedicating her life to helping others. This episode is a powerful reminder of the impact of organ donation and the resilience of the human spirit.

✨ Episode Highlights

Beth’s Journey as Patient and Nurse: Beth Otto, a two-time kidney transplant recipient, shares her dual perspective as both a nurse and a patient.
35 Years in Healthcare: Beth has worked as a nurse for over three decades, bringing compassion and purpose to every role she has held.
Symptoms Overlooked: Early warning signs such as back pain and fatigue were ignored until Beth discovered her blood pressure was alarmingly high—260 over 180—before teaching an aerobics class.
First Transplant Experience: Beth recalls her first kidney transplant from a deceased donor and the time she spent on peritoneal dialysis beforehand.
Living with Gratitude: She reflects on the gift of life she was given, sharing how she now lives with deep gratitude and purpose, never taking moments for granted.
Choosing Nursing as a Calling: Inspired by the care she received, Beth pursued nursing school and built a career dedicated to patient care.
Diverse Nursing Career: Over the years, Beth worked in physical medicine and rehabilitation, cardiac care, and wellness, blending personal passion with professional expertise.
A Family Friend’s Gift: Beth’s second transplant came from her mother’s longtime friend—who became her perfect living donor match.
The Difference with Living Donation: Beth shares how the experience of having a living donor was unique—allowing her to build an ongoing relationship and celebrate life together.
Community Inspiration: Beth believes her donor’s act of generosity inspired many others in the Fort Thomas community to register as organ donors.
Raising Awareness Through Storytelling: Her journey has helped alleviate fears and spread awareness about the importance of organ donation.
The Power of Living Donation: Beth emphasizes how living kidney donors can make a profound and immediate difference in someone’s life.
Celebrating Milestones: Every September 18th, Beth and her donor celebrate their transplant anniversary together, honoring the bond and the gift of life they share.

📝 Key Takeaways

Every Organ Donation Extends Far Beyond One Life. Beth’s story shows how organ donation not only restores health but also inspires communities to register, talk openly, and advocate for donation.
Living Donors Create Unique Bonds. A living donation carries a special connection between donor and recipient—allowing them to celebrate milestones together and share a lifetime of gratitude.
Purpose Through Gratitude. Beth transformed her personal health journey into a 35-year nursing career, using her experiences to fuel compassion, service, and advocacy for others facing similar challenges.

📢 Tweetable Quotes

“So then went to the hospital. They ended up finding out that I had just had complete renal failure. They tested me, and I had no kidney function whatsoever.”

- Beth Otto on her firsthand experience of Kidney Failure

“Thank you from the bottom of my kidney. I don't ever take a moment for granted. I live every day as hard and as fast as I can, and try as hard and as fast as I can to help everybody else have that same joy.”

- Beth Otto

“So that's why I went back to nursing school, and that's where I felt like what I gained from being in the hospital, and the care that I received while I was getting my transplant, I was like, Okay, this is I gotta do this.”

- Beth Otto on going to nursing school

“And so I really always wanted to become a heart nurse, okay? And so I ended up getting and working in cardiac and the cardiac unit cardiac rehab, and I did that for 19 years, and then I worked alongside wellness and cardiac care.”

- Beth Otto on her roles as a heart nurse

“And the perfect match is obviously an identical twin. She was the second-best thing, just a perfect match. She said the only thing that would have been better was if I had had a twin.”

- Beth Otto on her 2nd kidney transplant

“I guess they differ because I have the ability now to be with my donor all the time. Yeah, we go out frequently. We, you know, celebrate each other's successes, stories, and lives. We're all family, right? Her husband always says, “they're all here”, and so that's just a really fun way, and it's really true.”

- Beth Otto on how the 2 transplants differ

“That's what I hear often from people who have been donors, living kidney donors, as much of a blessing as they have been to that person that they're able to help, they feel they were equally as blessed because they were able to give this gift.”

- Andi Johnson

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

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Title: One Family, Three Transplant Journeys: Life with Alport Syndrome

🎙️ Episode Summary

In this heartfelt episode of This Thing Called Life, host Andi Johnson speaks with Amanda and Hunter, a mother and son living with Alport Syndrome—a rare genetic disease that affects just 1 in 50,000 live births. Their story is one of resilience, family strength, and the life-changing power of organ donation.

Amanda and Hunter share their family’s long history of transplants and the challenges of living with this condition, which impacts not only the kidneys but also the ears and eyes, leading to hearing and vision loss over time. From Amanda’s first transplant on New Year’s Day 2015, to Hunter’s sudden kidney failure at age 20, to Caitlin’s emergent transplant journey—this episode paints an intimate picture of how one family continues to navigate illness, hope, and healing together.

Most importantly, Amanda and Hunter underscore the critical importance of organ donation and living donors, emphasizing how education and awareness can make a profound difference for families like theirs.

✨ Episode Highlights

Introducing the Guests: Andi welcomes Amanda and Hunter, who both live with the rare genetic disease Alport Syndrome.
What is Alport Syndrome?: Amanda explains that it affects type four collagen in the kidneys, also present in the ears and eyes, leading to kidney failure, hearing loss, and vision loss over time.
A Family History: Amanda recounts her lifelong connection to the disease, being diagnosed in infancy, and how her grandparents also faced kidney disease.
Amanda’s First Transplant: At age 31, on New Year’s Day 2015, Amanda received her first kidney transplant after traveling to Arkansas when a match was found through the University of Kentucky.
10 Years of Health, Then Rejection: The transplant allowed her to live relatively healthy for a decade, until October of last year, when she was diagnosed with chronic rejection. Her kidney function has now dropped to 9%, and she is preparing for dialysis access surgery.
Hunter’s Journey: Diagnosed young, Hunter went into kidney failure suddenly at age 20. Now on hemodialysis, he shares the physical exhaustion and emotional toll of treatment while awaiting a kidney transplant.
Milestones Interrupted: Hunter turned 21 while on dialysis, reflecting on the difficulty of celebrating life milestones while facing health challenges.
Caitlin’s Emergent Case: Amanda’s daughter, Caitlin, experienced a different path, requiring an emergent ICU stay. She had a tunnel calf, placed her GFR, and got down to four or five before she started dialysis.
Facing Uncertainty: Hunter opens up about the mental and emotional strain of waiting for a transplant, but finds reassurance in his family’s shared experiences.
Searching for Hope: Amanda, Hunter, and Caitlin are currently seeking a living donor, while also remaining on the waiting list.
The Power of Living Donation: Amanda discusses how living donors have transformed her family’s story and recalls the touching moment she received a letter from her donor.
Holding on to Dreams: Hunter shares his hope to return to his passion for music, which has been put on hold due to his health.
Closing Gratitude: Andi thanks Amanda and Hunter for their openness and for shining a light on the life-saving importance of organ donation.

📝 Key Takeaways

Alport Syndrome Impacts More Than Just the Kidneys. The disease affects collagen in the kidneys, ears, and eyes—causing kidney failure along with hearing and vision loss. Families living with Alport face a multifaceted battle that extends beyond dialysis and transplants.
Living Donation Changes Lives. Amanda and her family’s story highlights how living donors can provide not just organs, but hope, extra years of health, and renewed possibilities for families facing genetic diseases.
The Emotional Toll Is Real, But So Is Resilience. From Amanda’s transplant journey to Hunter’s daily dialysis struggles, the episode underscores both the emotional challenges of waiting for a transplant and the strength families draw from one another while navigating uncertainty.

📢 Tweetable Quotes

“Alport Syndrome is a relatively rare genetic disease. I think it affects my daughter has all the stats, like one in 50,000 live births, about 200,000 people across the United States. It affects the type four collagen in the kidney, which is also found in the ears and the eyes. So, along with deterioration of the kidneys, it also causes hearing loss, vision loss over time.” - Amanda

“So I got the call. We were getting ready to have dinner for New Year's Eve, and I got a call from UK (University of Kentucky) saying we have a match out of Arkansas. I went to the hospital by myself, and they did all of my testing, and then everything was perfect. Somehow it was kind of miraculous, and they did the transplant the next day.” - Amanda

“I noticed kind of recurring symptoms…They did a biopsy at that point and showed signs of just chronic rejection, which the average lifespan is about 10 to 12 years for a kidney, so they really couldn't find a cause for it. They just said it was chronic.” - Amanda

“Well, it was kind of just out of nowhere, when it first happened, when I first knew I was going into kidney failure. It was literally just no warning, in one day. It's like a switch flipped, and that was just the case.” - Hunter

“It leaves you pretty drained… once you're off of it, the rest of the day, you're pretty much useless. It just saps everything out of you; you're not really left with much energy. So usually it's just getting off dialysis. If I have anything that needs to be attended to, I'll just do it real quick and then just go home and breathe, you know, fall asleep immediately.” - Hunter

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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"Full Circle: Interview with Markeyah Lewis on Life, Lupus, and the Gift of a Kidney"

Markeyah Lewis was diagnosed with Lupus, leading to early kidney failure. When her mother wasn’t a direct transplant match, they turned to Advanced Kidney Donation—a life-changing decision that helped Markeyah receive her transplant in 2022. Now a mother and soon-to-be Doctor of Occupational Therapy, Markeyah shares her powerful story of resilience, motherhood, and the miracle of second chances.

✨ Episode Highlights* Andi introduces Markeyah Lewis and invites her to reflect on how they first met four years ago, during her battle with lupus. * Markeyah shares her inspiring story of resilience and hope amid life-altering circumstances. * She describes undergoing hemodialysis during her senior year of college. * Her mother, although not a direct donor match, was determined to help. * Markeyah explains how Advanced Kidney Donation allowed her mother to donate to another person—making Markeyah a priority on the transplant list. * In 2022, her mother donated a kidney to a stranger named Charlie, with whom they still keep in touch. * Andi and Markeyah discuss the importance of honoring the gift of life after a transplant. * Markeyah offers heartfelt advice for those battling chronic illness, emphasizing the importance of a strong support system. * They explore the role of faith in navigating health struggles and finding purpose. * Markeyah shares her deep gratitude for her mother’s selfless act. * She opens up about her pregnancy journey, which was unexpectedly smooth despite the risks associated with lupus and kidney disease. * Markeyah also details her mother’s donation journey and her current health. * She expresses thanks to their medical team and looks forward to becoming an occupational therapist. * The episode concludes with Markeyah reflecting on her first Mother’s Day.

📝 Key Takeaways* Markeyah's story sheds light on the power of organ donation and the impact of Advanced Kidney Donation. Her mother’s courage to donate a kidney to a stranger not only saved a life but also gave Markeyah a new beginning. * Despite the challenges of chronic illness, Markeyah’s journey illustrates the importance of faith, community, and perseverance. * Her experience of motherhood and her educational pursuits underscore the promise of living life fully post-transplant.

📢 Tweetable Quotes“I believe it's called advanced kidney donation, where she is not able to donate to me, but she is able to donate to someone else who is in need of a transplant, and that essentially makes me a priority.”

Markeyah Lewis

“So your mom affectionately named her kidney that she donated brown sugar. Yes. So brown sugar is doing well with Charlie.”

Markeyah Lewis

“And so I think that is like the biggest promise that I can keep, again, to my donor and their family and myself, is just to continue to live my life fully.”

Markeyah Lewis

“It was often hard for me to imagine what my life would be like, not on dialysis or, you know, not battling a chronic illness. And it may seem simple, but really truly, just don't give up.”

Markeyah Lewis

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

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Title: "The Gift of Life: A Conversation with Dr. Alex Ancheta, Transplant Surgeon"

🎙️ Episode Summary

In this inspiring episode, we sit down with Dr. Alex Ancheta, a transplant surgeon at the UK HealthCare Transplant Center. Dr. Ancheta shares his journey into the world of transplant surgery, from his educational path to the personal motivations that drew him to this life-saving field. He opens up about the emotional and professional drive behind his work, as well as the vital importance of clear and compassionate communication, especially when addressing generational concerns surrounding organ donation. Join us for a powerful discussion on what it truly means to give, receive, and advocate for the gift of life.

✨ Episode Highlights

Meet Dr. Alex Ancheta. Andi welcomes Dr. Ancheta, a transplant surgeon at UK HealthCare's Transplant Center, who shares his career journey from EMT to physician, and what drew him into transplant surgery.
The Rewards and Challenges of Transplant Surgery. Dr. Ancheta opens up about the emotional rewards of helping save lives, while also reflecting on the ethical and logistical challenges of organ donation—such as finding suitable matches and ensuring fair allocation.
The Role of AI and Data. He discusses how artificial intelligence and advanced data systems are helping improve organ allocation and streamline transplant logistics.
Patient Stories and Lifelong Impact. Andi and Dr. Ancheta discuss how patients’ courage and gratitude inspire their continued work. Dr. Ancheta shares that his responsibility doesn’t end after surgery—it continues as patients live on with their new organs.
Restoring Faith in Humanity. Dr. Ancheta reflects on the power of witnessing anonymous organ donation, saying that moments like these reaffirm his belief in the goodness of people.
Clarifying Misconceptions Around Registration. He debunks a common myth: registering as an organ donor doesn’t guarantee donation. Only a small percentage of people become eligible at the time of death, but registering still matters.
Addressing Mistrust and Misconceptions. Dr. Ancheta talks about the mistrust in underserved communities, and how open dialogue, education, and firsthand stories from organ recipients can begin to rebuild understanding and hope.
Breaking Down Barriers to Transplant Evaluation. Together, Andi and Dr. Ancheta discuss the importance of making transplant evaluation more accessible, including the role of support groups and education in guiding patients through the process.
The Power of Living Donation. Dr. Ancheta shares how he encourages kidney patients to consider living donation as a life-extending option, and highlights the incredible stories of connection between donors and recipients.
A Memorable Reunion. Witnessing a transplant recipient meet the donor’s family—an emotional and unforgettable exchange that shows the far-reaching impact of one person’s decision.
Looking Ahead. The episode wraps with a discussion on how technology continues to transform organ transplant practices, from evaluation to recovery.

📝 Key Takeaways

Transplant Surgery Is More Than a Procedure—It’s a Lifelong Commitment. Dr. Ancheta emphasizes that his role extends far beyond the operating room. The relationships with patients and their stories continue long after surgery, making the work deeply personal and meaningful.
Misinformation Is One of the Biggest Barriers to Donation. Many people misunderstand what it means to register as an organ donor. Dr. Ancheta advocates for open, honest education and cultural sensitivity, especially in underserved communities.
Technology Is Advancing the Future of Transplant Care. AI and data analytics are helping make the organ allocation process more efficient and equitable, bringing hope to patients waiting for life-saving transplants.

📢 Tweetable Quotes

“People who have organ failure from different causes, and being able to see the transformation that you can make the difference in their lives and how much, how much it changes them.”- Dr. Ancheta

“I think transplant as a specialty is a fairly young specialty, and, you know, dealing with the immune system compatibility, there's, you know, such an incredibly complex field that there's still, honestly, a lot to discover.” - Dr. Ancheta

“I think AI can be very useful in helping us to analyze the, you know, the outcomes data and the allocation processes. So I think that's going to be one of the biggest roles that AI is going to help us in determining how we can always, how we can improve the way that we're allocating organs, so how we can improve the way that we're assessing donors.” - Dr. Ancheta

“So it's very gratifying to see you know someone who's had a transplant 10 years ago, and they tell you about their life and the family that they've started…” - Dr. Ancheta

“It requires, you know, a lot of stars to align to be able to donate.” - Dr. Ancheta

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

RegisterMe.org/NetworkforHope

View Details

🎙️ Episode Summary

In this heartfelt and eye-opening episode, host Andi Johnson sits down with Hannah Boylan, a Family Support Supervisor at Network for Hope, to explore the delicate and vital world of organ donation. Hannah offers a behind-the-scenes look at how her team supports families during one of the most difficult moments of their lives—navigating the decision to donate a loved one’s organs.

With a background in bioethics, Hannah shares how she became involved in this work during the COVID-19 pandemic and how her training helps her think clearly through emotionally complex situations. The episode dives deep into the concept of dual advocacy—supporting both donor families and recipients—and emphasizes the importance of accurate information, compassionate care, and honoring each donor’s legacy.

Listeners will gain a new appreciation for the unseen emotional and ethical work that goes into organ donation and walk away with a better understanding of how memory-making items like heartbeat recordings, Medals of Honor, and Honor Walks play a crucial role in healing and closure.

✨ Episode Highlights

Introducing Hannah Boylan: Hannah shares how she discovered her calling during a clinical ethics lecture and transitioned into organ donation work during the height of the pandemic.

The Power of Bioethics in Real Life: Her background in Bioethics allows her to step back, analyze difficult situations, and support families with clarity and compassion.

Understanding Dual Advocacy: Hannah explains the critical need to balance the needs of donor families and patients on the transplant waitlist—both of whom deserve care, attention, and respect.

Writing About Moral Distress in the Field: Hannah discusses her published work addressing the emotional toll and moral complexities faced by those in organ procurement—an area often left unspoken in bioethics literature.

Behind-the-Scenes at Network for Hope: Andi and Hannah talk about the collaboration between organ procurement organizations and hospitals, how and when Family Support teams get called in, and the sensitive timing involved.

Compassionate Keepsakes for Donor Families: From teddy bears and heartbeat recordings to Medals of Honor, Hannah shares how these items help families process their grief while celebrating the heroic choice of donation.

Honor Walks: Some hospitals line the halls with electric candles and staff members during an Honor Walk, paying silent tribute as the donor is moved toward the operating room—a deeply moving moment of collective respect.

Misinformation and Myths About Donation: Hannah discusses the widespread misunderstandings about organ donation and urges the importance of education and transparency in order to empower families to make informed decisions.

📝 Key Takeaways

Dual Advocacy Is Critical: Organ donation professionals must walk a fine line between supporting grieving donor families and honoring the urgent needs of those on the waitlist. Both require empathy, ethics, and balance.
Memory-Making Matters: Keepsakes like heartbeat recordings, Medals of Honor, and Honor Walks offer comfort and help transform a painful moment into a lasting, meaningful tribute.
Education Is Empowerment: Combating myths and misinformation ensures that families can make donation decisions rooted in truth, compassion, and clarity, not fear or misunderstanding.

📢 Tweetable Quotes

“ It's an honor to work with people who're having the worst day of their life, right? And they're able to step away from that grief for a moment, and they're thinking about those people on the wait list…” - Hannah Boylan

“And I think to do this work, you have to be thinking about the recipients on the wait list, but you also have to know that you're providing that comfort to the donor families that you're working with.” - Hannah Boylan

“I think also, when I go into this ethics training, that it changes my mindset. I can separate myself from the situation and look more objectively. If I break down the problems and think about ethical principles that I've been trained in, and that helps me, even if it doesn't give me a clear answer, it lets me think about things in a little bit of a different way, which I find really helpful.” - Hannah Boylan

“Donation is so rare, right? We think that's important to highlight, I think that's something that people don't realize.” - Hannah Boylan and Andi Johnson

“I think donation can be scary. It's a big decision. It's a decision that can't be taken lightly. Families deserve to make the decision that's best for them, but they deserve to have that right information.” - Hannah Boylan

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.networkforhope.org/stories-of-hope/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

RegisterMe.org/NetworkforHope

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Title: "Bridging the Gap: The Power of Organ Donation in Kentucky"

🎙️ Episode Summary

In this powerful episode, host Andi Johnson sits down with Shelley Snyder, Executive Director of Donate Life Kentucky Trust, to explore the life-changing impact of organ donation across the Bluegrass State. Together, they discuss how the organization supports those waiting for tranplants, honors donor families—true heroes in the community—and works to educate Kentuckians on the critical importance of registering as organ donors. Shelley shares heartfelt stories and explains how Donate Life Kentucky fills the gaps in care, awareness, and advocacy, one life-saving conversation at a time.

✨ Episode Highlights

Andi Johnson welcomes guest Shelley Snyder, who shares the mission and outreach of Donate Life Kentucky Trust.
Shelley explains how the organization supports every aspect of the donation journey:
➤ Those waiting for transplants
➤ Recipients of life-saving organs
➤ Families of heroic donors
She proudly highlights partnerships with Network for Hope and the Kentucky Transportation Cabinet, with Commissioner Matt Cole serving as board chair.
Shelley details key programs:
Scholarships for youth
Support for children on transplant waiting lists
Financial aid for transplant recipients and donor families
The Transplant Patient Assistance Fund (est. 2001) has provided over $800,000 in care-related expenses.
The Donor Family Support Program has distributed approximately $100,000 in aid, covering needs such as hotel stays, meals, and living essentials.
Shelley clarifies the distinction between the work of Organ Procurement Organizations (OPOs) and the Trust’s role in wraparound support and community outreach.
Her personal story includes:
The sudden loss of her father, Dennis Evren, whose tissue donation restored sight and helped someone walk.
Her mother’s successful surgery was thanks to donated tissue.
Shelley shares touching stories, including:
A family who lost a daughter and the life-changing impact of her donation.
Jonathan is a transplant recipient, turned powerful advocate.
She emphasizes how circuit court clerks were instrumental in founding the Trust, and how public speaking, community engagement, and media partnerships fuel the mission.
The impact of media portrayals, such as Grey’s Anatomy and The Pit, on raising awareness is explored.
Shelley highlights multiple ways people and businesses can support:
Sponsorships
Third-party fundraising
One-time and recurring donations
She also introduces the “Gift of Life Stories” section on the website, a collection of inspiring personal testimonies.
The episode closes with a heartfelt encouragement to register as an organ donor and get involved in this life-giving mission.

📝 Key Takeaways

The Donate Life Kentucky Trust supports not only organ donation education but also provides real-life aid to those on the transplant journey.
Through philanthropic support, the Trust has helped provide over $900,000 in aid across programs for recipients and donor families.
Shelley’s personal experience—from the loss of her father to her mother’s surgery—deeply informs her work and passion.
The organization was founded by circuit court clerks and continues to rely on that community involvement to grow its reach.
You can make a difference by registering as a donor, sharing the message, or supporting the organization financially.

📢 Tweetable Quotes

“Our real focus is on supporting all areas connected to donation and transplantation, so those who are on the waiting list, those who have received the precious gift of life and those incredible heroes and their families who gave.”

- Shelley Snyder

“I should say, and the registry is so key, as you know, to ensuring that lives are saved. “

- Shelley Snyder

“I've always said, If I ever win the lottery, all my money would go to helping these incredible, heroic donor families who have given the gift of life at the worst time in their lives.”

- Shelley Snyder

“I say that with the OPOs, because there's a clear distinction of what our role and responsibilities are. So it's just it's great to have that partnership with the trust. “

- Andi Johnson

“I just, I love this mission so much. It's been a part of my life since I was 17 years old.”

- Shelley Snyder

“His gift of tissue is going to help someone walk. And we learned later that he gave sight to a 22-year-old and a 29-year-old.”

- Shelley Snyder

“People can be organ donors and save a life, and we need to get the word out. And so they started doing that through driver's license, accepting the $1 donations, and that went into a trust, and that's what our organization was founded on, and that was in 1992.”

- Shelley Snyder

“We find that public speaking is really, really impactful, because we are able to share the facts and talk directly to people and open the door.”

- Shelley Snyder

“We rely on businesses and individuals to work with us to make all of these programs possible. And we have a wonderful team.”

- Shelley Snyder

Resources:

Donatelifeky.org

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

View Details

This episode of TTCL will feature an interview with Luis Santiago on La Mega.
This monthly interview will inform the Spanish Community about Network For Hope and
the incredible miracles that happen with Organ, Tissue, and Eye Donation.

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

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🎙️ Episode SummarySpreading Realistic Positivity: David Galbenski’s Mission to Champion Living Donation

When David Galbenski received a life-saving liver donation from his brother-in-law, it was more than a second chance—it was a call to action. In this powerful episode, David shares his personal journey from transplant recipient to national advocate for living donation. Discover how his gratitude turned into purpose through the creation of the Living Donor Awareness Games, a movement spreading hope, education, and inspiration across the country. Tune in to hear how one extraordinary act of generosity is now saving countless lives.

✨ Episode Highlights

Andi opens the episode by introducing David Galbenski and invites him to share why today’s venue, the Great American Ballpark, holds special meaning and its connection to living donation.
David explains how the Cincinnati Reds have been strong partners in hosting the Living Donation Awareness Games—an annual event that brings awareness to the power of living donation.
He shares how the energy of the game helps paint a vivid picture of what living donation represents.
The conversation turns personal as David reflects on living with a rare autoimmune disease for six years before pursuing a transplant.
With the unwavering support of his wife Lynn, they embraced living donation as an option—an act of courage and love that led to his brother-in-law, Mark, stepping up as the donor.
David highlights how vulnerability is a key part of the recipient’s journey and underscores the emotional rewards for living donors that are often overlooked.
Faith played a central role in David’s healing and recovery, providing strength through uncertainty.
Mark’s own journey as a donor came with challenges, but he had the blessing of a brother who is a surgeon, guiding him through the process.
David shares how baseball became a powerful platform for spreading hope and awareness, including the upcoming launch of a new national observance—“National Want-To-Have-A-Catch Day,” celebrated every second Saturday of May.
He also honors the medical professionals behind transplant surgeries and their life-saving work.
The discussion touches on legislative efforts to support living donors—such as ending insurance discrimination, offering tax credits, and introducing a 12-week leave policy.
David and Andi explore the research from Kindness.org, which found that becoming a living donor for a friend ranked as the number one act of kindness.
Finally, David shares the emotional tools that helped him through recovery—visualization, music, and keeping faith alive during the waiting period.

📝 Key Takeaways

The Cincinnati Reds have been long-time partners in the Living Donation Awareness Games, helping bring the message of hope and generosity to a wide audience.
David’s transplant journey began after living with a rare disease for six years, and his story shows how love, faith, and family can lead to life-saving decisions.
His brother-in-law Mark’s heroic donation reminds us of the incredible emotional and spiritual rewards of being a living donor.
Baseball has become a unique platform for David to inspire stories of hope, raise awareness, and advocate for policies that remove barriers for donors—including financial and workplace support.
Through kindness, advocacy, and storytelling, David’s mission continues to save lives and bring light to the gift of living donation.

📢 Tweetable Quotes“Well, the Reds have been a tremendous partner in launching Living Donor Awareness games that we've been doing now for three or four years.”

David Galbenski

“And so what we loved about that was baseball was this perfect vehicle, yes to allow living organ donation to come to life. And then here's the beauty of living organ donation yes tied to baseball, another great metaphor, the ultimate double play.”

David Galbenski

“I really leaned in my faith on this journey…”

David Galbenski

“So I call it Realistic positivity, right? Let's embrace life with everything, but let's make sure we're confronting the facts right, acronym head-on, right. But then doing it with optimism, absolutely, doing it with faith, doing it with a desire to say, when I get through this, I'm going to pay it forward.”

David Galbenski

“And they surveyed 10s of 1000s of people to say what would be the biggest overall kind act that someone could do. The number one overall act of kindness, out of 1692 acts that they surveyed, was giving and becoming a living donor for a friend.”

David Galbenski

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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🎙️ Episode Summary"Full Circle: Interview with Markeyah Lewis on Life, Lupus, and the Gift of a Kidney"

Markeyah Lewis

“So your mom affectionately named her kidney that she donated brown sugar. Yes. So brown sugar is doing well with Charlie.”

Markeyah Lewis

“And so I think that is like the biggest promise that I can keep, again, to my donor and their family and myself, is just to continue to live my life fully.”

Markeyah Lewis

“It was often hard for me to imagine what my life would be like, not on dialysis or, you know, not battling a chronic illness. And it may seem simple, but really truly, just don't give up.”

Markeyah Lewis

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Episode SummaryIn this heartfelt episode, we sit down with Gretchen Starnes, Family Aftercare Manager with Network for Hope (Louisville), an organization that also supports families after the loss of a loved one through organ donation. Gretchen shares the deeply human side of her work—walking with families through the grief process, offering comfort, connection, and compassion in the wake of profound loss. We explore how the gift of life through donation can bring a measure of hope to unimaginable sorrow, and how Gretchen and her team help families navigate that journey with care and grace.

✨ Episode Highlights Gretchen Starnes discusses her role as a Family Aftercare Manager at Network for Hope. * She describes the Aftercare Department’s mission to support donor families and ensure their needs are met with compassion and understanding. * Gretchen shares her personal journey, beginning as a Family Support Worker and transitioning to Aftercare, highlighting the critical role of empathy in her work. * She reflects on working with grief and the full spectrum of emotions that come with it, reminding us: “There’s nothing wrong with you when you’re grieving.”* * Andi asks Gretchen about the myths and misconceptions surrounding grief and bereavement support. * Gretchen explains that support systems often fade after the first year of loss and shares her experience that, for many, the second year is even harder. * The organization offers 15 months of ongoing support through mailings, in-person meetings, and online resources. * Families find healing and comfort in sharing stories, memories, and legacies of their loved ones. * Donor families play a vital role in encouraging and supporting newly bereaved families through direct connections. * Gretchen talks about the emotional challenges donor families face when reaching out to donor recipients and how the organization offers guidance through that process. * They reflect on the powerful impact of the Holiday Honor Walk, which brings donor families together to foster connection, support, and healing. * Gretchen emphasizes the importance of saving lives through organ donation and the value of being surrounded by a strong, supportive community. * She also highlights the importance of self-care, a healthy team environment, and emotional support to navigate the difficulties inherent in this deeply meaningful work.

📝 Key Takeaways* Gretchen Starnes shares insight into her work as a Family Aftercare Manager at Network for Hope and the organization's mission to meet the needs of donor families with compassion. * She and Andi explore the realities of grief, the range of emotions involved, and the common myths and misconceptions about supporting grieving families. * Gretchen explains how donor families approach donor recipients and describes how the donor community's connection fosters healing, hope, and resilience.

📢 Tweetable Quotes"I think that is the honor that all of us in aftercare have, to walk beside these families during their grief and really establish rapport and relationship with them." — Gretchen Starnes

"Doing this work really restores my faith in humanity." — Gretchen Starnes

"There's nothing wrong with you when you're grieving. What you need is someone to walk beside you, to help you take that next breath, the next step, and to help support them." — Gretchen Starnes

"One of the greatest fears for most people who are grieving is that people will stop saying their loved one's name, or that they will forget those details of their loved ones." — Gretchen Starnes

"There are moments it's okay to be sad and where we need to cry, and tears are cleansing. Yet we also want to show that hope that comes from the amazing gift that loved one gave, so I think the Honor Walk kind of brings all of those things together." — Gretchen Starnes

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Episode SummaryIn this powerful episode, we sit down with Jon and Felicia Rohman to share the remarkable journey of their daughter Hadlee, who underwent a life-saving heart transplant in 2020—right amid a global pandemic. What began as a terrifying health issue became a testimony of faith, resilience, and appreciation for the incredible gift of life. Years later, Hadlee is thriving, healthy, joyful, and full of gratitude. Join us as Andi Johnson interviews the Rohmans, who open up about their challenges, the community that rallied around them, and the beautiful, beating heart of their daughter’s second chance at life.

✨ Episode Highlights

Andi Johnson welcomes Jon and Felicia Rohman, a husband-and-wife team and proud parents of four.
The conversation centers around Hadlee, their third child, who was born with hypoplastic left heart syndrome.
Felicia recounts Hadlee’s birth in 2017 and the significant right-sided heart failure she experienced by late 2019, which made organ donation the only viable option.
Jon discusses the mental and emotional preparation required as they faced the reality of a potential heart transplant.
The couple acted quickly, getting Hadlee placed on the transplant list in January 2020. She received her new heart on May 28, 2020—coincidentally, their son’s birthday.
Jon reflects on the emotional toll of the process, including a failed donation and navigating the challenges brought on by the COVID-19 pandemic.
Felicia shares the complexity of maintaining infection control while managing the needs of their other children. During this time, Jon resigned from his job to be with Hadlee full-time at the hospital.
Jon honors Felicia’s strength as she worked two jobs—80 hours a week—while homeschooling and caring for their children at home amid the pandemic.
Today, Hadlee is flourishing with a new baby sister and enjoys activities such as swimming, soccer, and dancing.
The Rohmans express deep gratitude to the donor family, highlighting the life-changing impact of the transplant.
Felicia reflects on how their faith sustained them through hardship and the emotional conversations they had with their children.
The couple emphasizes the vital importance of organ donation and the hope it brings to families in need.
Jon encourages other families to lean into their communities and be open to receiving help.
They also speak to the power of social media in spreading Hadlee’s story and building a network of support.
The Rohmans express appreciation for organizations such as Donate Life and Network For Hope for amplifying their journey and giving them a platform to share.

📝 Key Takeaways

The Rohmans candidly share their daughter Hadlee’s powerful story of survival through a heart transplant during the global pandemic.
They reflect on their mental and emotional journey as parents navigating uncertainty, especially at the height of COVID-19.
Their testimony highlights the sacrifices they made, their unwavering faith, and the critical support of their community, family, and social media network.

Tweetable Quotes:

“At the beginning of 2020, she started to have a pretty significant right-sided heart failure. So really, at that point, our only hope was organ donation and transplant.” - Felicia Rohman
“They said she was one of the quickest to be put on the transplant list — So January, 2020, and then she actually had her transplant, May 28 of 2020, which is ironically our son's birthday.” - Felicia Rohman
“I don't think I fully appreciated everything that she (Felicia) was doing while I was in the hospital with Hadlee. But with me having quit my job, she was working two jobs, 80 hours a week, with the other two kids at home, navigating COVID, and then having to do homeschooling, and everything else in that capacity.” - Jon Rohman
“There were a lot of tears on the way back home because they didn't understand the full magnitude of everything that was going on. But yeah, I think just supporting each other and just kind of trying to maintain some sense of normalcy through things with our faith, it is really kind of what got us through.” - Felicia Rohman
“It just gives hope, not only to the recipient families, but as those things are going on, hope that something better can come out of it and and to just be able to acknowledge that you can see good following a storm.” - Felicia Rohman

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Episode SummaryIn this inspiring episode, Zach Wells a TV sports anchor shares his incredible journey of receiving a kidney donation from his brother. Zach opens up about the unexpected news that his kidney was failing and the challenges he faced battling kidney disease, and the profound lessons he learned about hope, resilience, and the importance of prioritizing health. Tune in as Zach offers a raw and honest conversation about overcoming adversity and the power of family, health, and seizing the moment.

Episode Highlights

Zach Wells was diagnosed with kidney disease in 2007 and experienced a gradual decline in kidney function before receiving a transplant in 2018.
He recalls the moment he first learned something was wrong—his wife left him a message from a business trip, urging him to check his test results after his doctor raised concerns about his creatinine levels.
Determined to manage his condition, Zach relied on diet, exercise, and medication but ultimately knew that a transplant was the best path forward.
Before his diagnosis, Zach was a self-proclaimed workaholic, often neglecting his health in favor of his career. He later realized that without prioritizing his well-being, his time was limited.
He reflects on the physical toll of kidney disease—the fatigue, nausea, and other symptoms—while balancing parenthood and work responsibilities.
Throughout his journey, Zach found unwavering support from his wife, Caroline, and his family, which made all the difference.
His brother turned out to be a perfect donor match, bringing renewed hope and gratitude.
Zach discusses the emotional and physical impact of his illness, the dedication of his medical team, and the perspective he gained through this experience.
Inspired by Zach’s story, Andi sheds light on the kidney transplant crisis and the need for greater awareness about living donors.
Prospective donors undergo rigorous screening, but their generosity can transform the lives of over 100,000 people currently on the transplant waitlist.
When asked for advice to men facing kidney disease or dialysis, Zach encourages them to stay present, be patient, and stay committed to their medical care and fitness routines.
He highlights the importance of hope, scientific advancements, and the skilled professionals who make transplants possible.
Zach expresses deep gratitude for his transplant surgeon, doctors, and everyone who played a role in his recovery.

Key Takeaways

Zach’s journey with kidney disease began in 2007, leading to a transplant in 2018.
His initial reluctance to seek medical care due to work commitments taught him a valuable lesson about balance and self-care.
The support of his family, medical team, and a generous kidney donation from his brother gave him a second chance at life. He now finds joy in the little things and is committed to raising awareness about kidney disease and transplantation.

Tweetable Quotes:

“So about managing the disease, doing everything I could to be as healthy as I could, drink as much water as I could, have the best diet that I possibly could, knowing that probably the chances of this reversing, the chances of this having a better outcome, were not going to be a very high so it's a long road.” - Zach Wells
“I think transplants really reward the patient. They reward the dutiful, they reward the optimistic.” - Zach Wells
“I was a workaholic. All I thought about was work. And I thought that I can't deal with this or go to the doctor, because that's going to interfere with my work schedule. But I learned very quickly that if I didn't get balance and prioritize this as another full-time job, that I wasn't going to be around very long.” - Zach Wells
“I was not feeling well at all. I was run down. I had like, bags under my eyes. I would randomly sweat, I felt nauseous.” - Zach Wells
“I think that that's one of the many areas where I've been so lucky, is just having an incredible support network of people that have really helped me. That's amazing.” - Zach Wells
“What I want to do is, like, really draw attention to the fact that this is an incredibly solvable problem. Yes, like the people that are waiting, like, the waiting list is over 100,000.” - Zach Wells

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Episode SummaryIn this episode of This Thing Called Life, Andi Johnson interviews Means Cameron, a successful entrepreneur from Cincinnati and the founder of the clothing brand BlaCkOWned™ Outerwear. Means shares the inspiration behind launching BlaCkOWned™ Outerwear in 2011, influenced by his cultural experiences and the importance of representation. He discusses the significance of community ownership, legacy, and his personal connection to organ donation.

Cameron highlights the impact of organ donors on his friends' lives, including a fraternity brother who received a kidney transplant. He also addresses common misconceptions about organ donation within the Black community, emphasizing the need for education, trust, and personal storytelling to make the topic more relatable.

The discussion underscores the power of local narratives in raising awareness about organ donation and encourages open conversations within families and communities.

Episode Highlights Origins of BlaCkOWned™ Outerwear: Means Cameron shares how the brand was born out of his desire to embrace identity, cultural heritage, and community pride. * Meaning Behind the Brand Name: "BlaCkOWned™ wasn’t just about a Black-owned business—it was about owning who we are as a people, our culture." * Legacy and Impact: Means expresses his vision for his legacy: "Fostering Black creativity and dialogue, and showing people they have options."* * Connection to Organ Donation: + Means discusses his personal experiences with organ donation, including friends and family members who have received transplants. + He highlights the challenges of mistrust and misinformation about organ donation in the Black community. * Addressing Misconceptions: + Many individuals fear that becoming an organ donor could put their lives at risk in medical settings. + In reality, only 1% of registered organ donors pass in a way that allows for organ donation, while thousands remain on transplant waiting lists. * The Importance of Storytelling: Means emphasizes the need to humanize the organ donation process by sharing real-life experiences to build trust and awareness. * Encouraging Open Dialogue: + Andi asks Means how he would approach someone hesitant about organ donation. + Means stresses the importance of respecting different perspectives while sharing personal experiences to help others make informed decisions. * Final Reflections: Andi expresses gratitude for the meaningful discussion and appreciates Means’ insights on business, legacy, and organ donation advocacy.

Key Takeaways:

Means Cameron’s journey as an entrepreneur reflects his deep commitment to identity, community, and legacy.
His personal experiences with organ donation have fueled his advocacy for increasing awareness and addressing misconceptions.
Andi and Means then dig deeper into educating ourselves and others about how organ donation can help address mistrust and save lives and the importance of humanizing the organ donation process by sharing personal stories and the faces who make it more relatable and trustworthy.

Tweetable Quotes:

“Cincinnati needed something for the culture, something that spoke to our culture, to give us something to be proud about, to speak about our heritage, and for not to just be in private rooms, but for us to be able to take it out into the world. “ - Means Cameron
“So the idea of BlaCkOWned™ came out of me, wanting to have ownership of who I am and never losing it.” - Means Cameron
“And so BlaCkOWned™ wasn't just about a black-owned business. It was about owning who we are as a people, our culture and the name black owned, just came to me. “ - Means Cameron
“One of the most challenging things in our community is that we believe that if we become organ donors, that someone is going to take our organs if we ever are sick or in a doctor's bed and our life is on the line.” - Means Cameron
“ I guess the best thing I can do for anyone that is on the fence is just to share with them my own experiences. “ - Means Cameron

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

View Details

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

View Details

In this episode of This Thing Called Life, Andi Johnson sits down with Joel Chase, Vice President of Organ Services at Network for Hope, to discuss his role and how it has evolved following a recent merger. Joel shares insights into the integration of two smaller Organ Procurement Organizations (OPOs) into Network for Hope, the strategic changes that followed, and how he is leading a growing team.

Joel walks through the organ donation process, from the initial referral to organ recovery, emphasizing the importance of supporting donor families, transplant recipients, and OPO staff who navigate these complex and life-changing moments. He also reflects on his career journey, the challenges of balancing leadership with personal life, and the impact of medical advancements on the field of organ donation.

Episode Highlights:* Joel’s Role & the Organ Donation Process: He oversees the entire donation process, from organ referral and evaluation to allocation and recovery. * Navigating Growth Post-Merger: The transition from 32 full-time employees at Legacy Life Center to over 90 at Network for Hope has required new leadership strategies. * Evolving Case Timelines: The duration of cases has expanded from 24 to over 50 hours, depending on testing and logistical challenges. * What Drives Joel: He is motivated by mission-driven work, helping people, and witnessing his team’s success. * Biggest Leadership Challenge: Time management in an organization that never stops and balancing work with family life. * Leadership Philosophy: Leading with openness, support, and grace while prioritizing an inclusive leadership style. * Memorable Moments: Joel shares a powerful story of how a leader’s critical decision helped save three lives, a defining learning experience in his career. * Public Awareness: He encourages open conversations about organ donation with loved ones and addresses concerns from those hesitant to register.

Key Takeaways:1. Leadership in Organ Donation: Joel shares insights into leading a non-profit OPO, managing growth, and the importance of learning through challenges ("failing forward"). 2. The Organ Donation Process: Understanding how OPOs evaluate, allocate, and recover organs while collaborating with hospitals to ensure successful transplants. 3. Encouraging Public Awareness: Addressing misconceptions about organ donation and why open conversations with family are essential.

Tweetable Quotes:

“I've always been fascinated with medicine, so you get to kind of play nurse or doctor without necessarily having to have the license. So I thought that that was just a great, intriguing career.” - Joel Chase
“We are there to help facilitate, to make donation happen in the best way possible, and in these 24 hour shifts that a lot of the team members are working and all the things that they're doing, it's very hard to expect perfection when a lot of staff want to do their best all the time, and it's just not possible. We're all humans, and we have to have some grace for each other too.” - Joel Chase
“I think that we should learn from our experiences, whether they're good or bad. If we don't learn from them, then I think that's more of a failure. Otherwise, it's an opportunity to improve and do better the next time. So I definitely like that mindset, and it kind of ties into knowing that we're not perfect people, and I don't think we're ever going to have a perfect A to Z case” - Joel Chase
“It's the OPOs job to evaluate the patient's medical record and their current clinical condition for organ donation potential. A lot of times that could mean that the patient ends up surviving their injury, and they go through the rehabilitation process” - Joel Chase

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

View Details

This episode of TTCL will feature an interview with Julie Luebbers on La Mega.
This monthly interview will inform the Spanish Community about Network For Hope and
the incredible miracles that happen with Organ, Tissue, and Eye Donation.

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation. In this episode, we talk with Lincoln Ware from WDBZ the Buzz of Cincinnati talk station.

Resources

https://registerme.org/

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation. In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati.

Resources

https://registerme.org/

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Episode 106: The Donation Coordinator's Responsibility within the Donation Process of the Organ Procurement Organization, with Christienne King

During this episode of This Thing Called Life, host Andi Johnson talks about the donation process from the OPO (Organ Procurement Organization) lens. This week, Andi is speaking with Christenne King. She is the Senior Donation Coordinator. She meets family in very difficult times. Tune in to hear about her experiences as it relates to the important process of organ donation.

Episode Highlights:

Many people believe that organ, eye, and tissue donation is just a service of the hospital but Andi shares how it is much bigger than that and requires the collaboration of many.
Christenne has been with the Life Center for over 20 years and is currently the Senior Donation Coordinator. She explains her role as one of the individuals who handles the evaluation, medical management, organ placement, and logistics of the operating room for an organ donation.
Andi asks Christenne to share what kind of training and background is required to do work as she does.
Christenne shares her personal experience with organ donation about her sister, Adrienne King who had epilepsy and cerebral palsy.
What does brain dead mean? Christenne shares facts that listeners may not be aware of. She explains the difference between that and a vegetative state or coma.
Organ donation and the education around it have grown significantly over the years.
Christenne explains her connection to Network For Hope and how meaningful it has been to her on several levels.
Christenne put herself to paramedic school and applied as an organ coordinator.
Andi asks Christenne how she prepares for her day and meeting with families in desperate times.
What happens at the bedside to evaluate potential organ donation?
Christenne shares that some cases have changed her forever and how it has been a blessing.
What goes into supporting the families who are in contact with them?
Andi talks about how COVID-19 caused many people to reflect and seek more meaningful jobs.
Andi asks Christenne to share what a typical workday looks like for a donation coordinator.
Logistics and time frames are very important in the process; Christenne explains.
A lot of communication is required for this job because of the many pieces that must come together.
An average case lasts about 72 hours so that the right thing is accomplished with the donor.
Christenne talks about when organ gifts are placed in other locations.
The donation coordinators are very passionate about giving each individual the best preservation options.
Have you thought about registering to be a donor? Find out more at https://lifepassiton.org/

3 Key Points

Christenne shares her personal experience with organ donation when her sister, Adrienne King passed away and saved several other lives.
Organ donation happens through the collaboration of many. Andi and Christenne talk through the organ coordinator role and the piece it is in the overall process.
Emotional taxation is high in the role that Christenne has. She talks about the challenges, and blessings, and how she perseveres through them.

Tweetable Quotes:

“Organ, eye, and tissue donation does not happen without collaboration.” -Andi
“There are intricacies of this life-giving, life-saving process.” -Andi
“When someone has been deemed as potential to help someone through donation, a donation coordinator will be onsite for 24 hours/day through the end of the process.” -Christenne
“For those who do not know, when a person is declared brain dead, it is a legal pronouncement of death, it is the time that will go on their death certificate.” -Christenne
“My sister was one of only 39 organ donors in Cincinnati in 1992. It was so rare.” -Christenne
“Donation can have such a positive effect on those that are donor families. “ -Christenne
“This role requires you to be strong and sensitive to the fact that a family is going through the worst possible time.” -Andi
“We are intimately involved with the families in the room and with the donors in the room, it is difficult.” -Christenne
“Other than being a parent, this job is the most rewarding thing I will do in my life.” -Christenne

Resources Mentioned:

https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO

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LifeCenter ahora es Network For Hope! (LifeCenter now is Network For Hope!)
This episode of TTCL will feature an interview with Julie Luebbers on La Mega.
This monthly interview will inform the Spanish Community about Network For Hope and
the incredible miracles that happen with Organ, Eye, and Tissue Donation.

Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

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A Transplant Surgeon’s Journey To Help Others, with Dr Madison Cuffy

During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Dr. Madison Cuffy, an Associate Professor at UC Health. Dr. Cuffy has built trust-filled relationships with his transplant patients throughout the years and loves nothing more than to see them live their lives to the fullest after getting their transplant.

Episode Highlights:

Dr. Cuffy started his medical journey back in 2002 which led to a multi-organ transplant fellowship at New York Presbyterian.
Growing up in Brooklyn, Dr. Cuffy was first introduced to Cincinnati by Talib Kweli and Hi Tek.
As a 14-year-old, Dr. Cuffy became interested in medicine while volunteering in a hospital cleaning instruments.
Even to this day, no one in Dr. Cuffy’s family has experience in medicine, nor any clue what a transplant surgeon does.
Dr. Cuffy was born in the Caribbean and grew up with his great aunt in New York.
One of the most common misconceptions surrounding organ donation is that the medical community will let you die.
After being in transplant and seeing how one can help create life during a time of despair, Dr. Cuffy became an organ donor.
The medical community is not out to harm organ donors in order to harvest their organs, contrary to popular belief.
According to the statistics, on average, 22 people die every day waiting on an organ transplant.
While most of his focus is on kidney transplants, Dr. Cuffy does work with all transplant organs.
There is an access problem for people who need a kidney transplant and are on dialysis.
Dr. Cuffy facilitates living kidney donation as the best option to treat end-stage renal disease.
Andi has noticed that people of color tend to shy away from sharing their donation needs with other people.
Socioeconomic issues and disadvantages can make it more difficult for certain patients to share their stories.
People who don’t want to share their stories need a donor champion to do it for them.
There are different forms of literacy, so Dr. Cuffy makes sure his patients know that there is no stupid question.
It’s important for patients to speak up about their questions to their doctor so that they don’t get misinformation from another source.
If your physician is too busy to answer your questions now or in the future, you may need to find a different provider.
Dr. Cuffy feels rewarded by his job when he sees his patients experiencing life after their transplant.
His grandmother’s advice was “Always be yourself”, even when things get tough, this message helps Dr Cuffy get through hard days.
Raised without his parents in Brooklyn, Dr. Cuffy knows first hand that you can do anything you set your mind to.
Dr. Cuffy has always had an extra gear that has allowed him to outwork everyone around him.
When he goes back to Brooklyn now, Dr. Cuffy gets a different kind of respect from the people he grew up with.
Dr. Cuffy thoroughly enjoys going to J. Alexanders in Cincinnati because of the sheer amount of professional African Americans that go there.

3 Key Points:

While volunteering at a hospital with the hopes of staying off the streets as a 15-year-old boy, Dr. Cuffy had the opportunity to watch a kidney transplant up close, and that’s how he chose the transplant route.
Unlike in other cities that have multiple transplant programs with different surgeons, Cincinnati has a single transplant program where the doctors act as one unit.
Living donor kidneys last anywhere from 15 to 20 years, recipients don’t have to wait on a list to get one, and the quality is usually very good.

Resources:

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://getoffthelist.org/

https://www.uchealth.com/en/transplant

Dr Madison Cuffy

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series, we talk to community leaders, share important information about organ, eye and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation. In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati.

Resources

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series, we talk to community leaders, share important information about organ and tissue donation, and honor those who have been instrumental in saving lives through the gift of donation. In this episode, we talk with Don Juan from 100.3 FM Cincy's R&B station in Cincinnati.

Resources

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Welcome to today’s episode of This Thing Called Life, where we delve into the ever-evolving care plan of organ, eye, and tissue donation. In this episode, we’re joined by Andi Johnson and Dr. Jordan Bonomo to explore a key recommendation from the 2021 National Academies of Sciences, Engineering, and Medicine (NASEM) report aimed at transforming organ donation and transplantation practices to create a more equitable system. Dr. Bonomo shares insights into a groundbreaking initiative—the establishment of a donor care unit within UCMC’s new Flex ICU. This innovative, first-of-its-kind model is designed to improve organ donation outcomes by providing comprehensive, compassionate care to both donors and their families. Tune in for this important conversation on enhancing the donor experience and advancing the future of organ donation.

Episode Highlights:

Introducing Dr. Jordan Bonomo. He is a physician at the University of Cincinnati Medical Center. He's the Medical Director of the flex ICU and a professor of Emergency Medicine, neurology, neurosurgery, and neurocritical care. He is also the attending physician for anesthesia, critical care, and ECMO, and he's the medical director for donor management, for Network For Hope, formerly Life Center.
Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity.
The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs.
Specialized units can focus on the needs of the donor from a physiological standpoint and the needs of the family from an emotional standpoint. This aims to provide a much more synchronized environment and holistic care for the families and adhere to the donor wishes.
All the staff are fully trained and they're vetted and vested at the same time in the process of donation. The purpose is to have the best donor care unit available anywhere in the country.
The unit is staffed 24/7 by dedicated teams to support the mission of Network for Hope.
The unit is limited to donors who have been declared dead by neurologic criteria. Note that in the month of October, the first month of the launch of Flex ICU, there were zero patients declared brain dead in the region.
Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed.
The Flex ICU aims to respect the wishes of donors and families, facilitating their involvement in the donation process.
Dr. Bonomo discusses the potential impact of the Flex ICU on organ donation
The goal is to optimize the process for donors, families, and organ recipients, balancing the need for timely transplantation with the potential for increased donation.
Andi adds that the DCU, which is housed within the flex ICU, has been discussed as a key part of the flex ICU with providers, nurses, and physicians who will be working in this unit.
The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role.
The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation.
The process of establishing the unit has been lengthy, involving multiple stakeholders and legal considerations.
He shares that this is an organ procurement organization initiative that really is somewhat independent of the healthcare system.
The belief that donation can bring healing and good from tragedy has been a driving force for Dr. Bonomo.
Dr. Bonomo has a strong foundation in bioethics, having earned his undergraduate degree in the field. Throughout his career, organ donation has been a central focus of his work in biomedical ethics.
Dr. Bonomo invites listeners to ask questions and seek education about the organ donation process.
The importance of accurate information and understanding the process is important for effective collaboration and support.

3 Key Points:

Dr. Bonomo explains the long-term development of the Flex ICU, emphasizing its multifaceted purpose to serve critically ill patients and enhance organ donation capacity. The Flex ICU aims to provide specialized care for organ donors, improving the yield and survival rate of donated organs.
The unit is limited to donors who have been declared dead by neurologic criteria. So brain dead donors, and brain dead vernacular term death by neurologic criteria. Dr. Bonomo explains the intentional design of the unit to accommodate donor families, offering them the option to be with their loved ones or to step back as needed.
The Flex ICU has attracted dedicated professionals who are passionate about improving organ donation and transplantation. The team is committed to doing right by donors, recognizing the privilege and obligation that comes with their role.

Tweetable Quotes:

“Dr shutter explained to me that we do our best to save them, but when you can't, your obligation doesn't end, and the opportunity to donate is an absolute good when done well…” - Dr. Bonomo
“So the the flex ICU has been in design and development for a really long time, I mean, north of 15 years, and we've had fits and starts, and we finally were able to construct it…” - Dr. Bonomo
“We have teams that are dedicated to supporting the mission and network for hope, formerly Life Center…” - Dr. Bonomo
“I think every family is interested in knowing that their loved one is well cared for and that their wishes are being respected.” - Dr. Bonomo

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

View Details

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series, we talk to community leaders, share important information about Organ, Tissue, and Eye donation, and honor those who have been instrumental in saving lives through the gift of donation.

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Welcome to today’s episode of This Thing Called Life, where we explore the evolving landscape of organ, tissue, and eye donation. Join us as we chat with Andi Johnson, featuring Jennie Wright, a double lung transplant recipient, and her daughter, Siri Imanin.

Jennie, diagnosed with sarcoidosis and pulmonary hypertension, waited a year to be listed for a transplant and another two years to receive the lungs. She recounts the challenges, including antibiotic-resistant infections and the emotional toll on her family. Siri shares how her mother's journey influenced her music and activism, emphasizing the importance of organ donation education in the Black community. They discuss the need for proactive health awareness and the impact of supportive networks on their recovery.

Episode Highlights:

Andi Johnson introduces the mother-daughter duo Jennie Wright and Siri Imani, and asks Jennie to share her transplant journey
Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump.
It took a year to get Jennie listed and two years before she got her transplant
Jennie recounts the emotional and physical challenges, including contracting antibiotic-resistant infections and the decision to postpone the transplant due to her condition.
Andi asks about the support journey for both mother and daughter
Siri, Jennie’s daughter answers that she was happy once everything was settled because she recalls the long period where her mother’s life felt limited and the journey they had to go through in organ donation.
Andi asks Siri, who is an artist, creator, activist, & cultivator, how the journey influences her music and the work that she does from a creative standpoint.
Siri answers that it influenced everything and that she grabs inspiration from her mother and grandmother in every way. Siri shares that when they first got the diagnosis, she documented and made music about it.
Andi asks Siri to share her favorite memory with her grandmother
Andi asks what they would like to share with others, particularly in the black community, after just living through this experience.
Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness.
Andi questions what they would like to say to their donor family.
Jennie expresses her deep gratitude to the donor family for their selflessness and the opportunity to continue living.
Jennie and Siri discuss the activities and experiences they can now enjoy, such as walking and attending events.

3 Key Points:

Jennie shared that she had sarcoidosis, and as a result, her lungs were severely damaged, which caused pulmonary hypertension. So before the donation, she had a backpack that had oxygen and a fanny pack that had a heart pump. It took a year to get Jennie listed and two years before she got her transplant because there were certain conditions to be met for her to get the transplant.
Siri, Jennie’s daughter recalls the long period where her mother’s life felt limited and the journey they had to go through in organ donation. Siri is also an artist, creator, activist, & cultivator, and she found inspiration in her mother’s journey.
Siri shares her personal journey of overcoming misinformation and distrust, emphasizing the need for education and awareness. The conversation touches on the historical context of distrust in the medical system within the Black community and the importance of updating that narrative.

Tweetable Quotes:

“...with that waiting process, the stars have to be perfectly aligned, because you have to be, to be at the top of the list, you got to be the sickest of the sick, right? But you can't be too sick.” - Andi Johnson
“My faith helped to sustain me, and I feel like God showed me a moment on the other side of this. And I just kind of held on to that.” - Jennie Wright
“I think a lot of our work with people experiencing homelessness just came from the understanding early that life could take you anywhere, no matter what type of person you are, no matter where you come from, you can place where you just need people.” - Siri Imani
“I was always planning on making sure, like, people knew who my mama was, people knew who my grandma was, and really remember because they made it clear who they were in their lifetimes.” - Siri Imani

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/@NetworkforHope.

https://aopo.org/

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Resources:
https://getoffthelist.org/
https://www.networkforhope.org/
https://www.networkforhope.org/about-us/
https://www.facebook.com/NetworkForHopeOPO
https://aopo.org/

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In this heartfelt episode of This Thing Called Life Podcast, host Andi Johnson sits down with Mario Jarrett and his mother, Kesia, to discuss Mario's incredible journey following a cardiac arrest at just 16 years old. They share the challenges and miracles that shaped his need for a heart transplant, highlighting the unwavering love and support that surrounded him throughout this life-altering experience. Mario's story is a testament to resilience, faith, and the determination to embrace life fully. Join us as they delve into the power of hope and the importance of striving for personal growth every day. Don’t miss this inspiring conversation!

This episode is dedicated to Mario’s Heart Donor Amanda and her family!

Episode Highlights:

Mario Jarrett shares what led to his need for a Heart Transplant.
Mario was a high school Athlete participating in Baseball, Football, and Track & Field.
Mario’s cardiology team thought he suffered mini heart attacks over a period of time without knowing it. Mario indicated he felt like he was just dehydrated.
In May of 2021, while preparing for the state track and field competition, he went into cardiac arrest.
Doctors told Mario and his family that he needed to have a heart transplant.
Mario received a heart transplant at Children's Hospital in Cincinnati on July 26, 2021.
Mario talks about how his Faith helped him get through his Health Crisis.
Kesia Jarrett, Mario’s mom, shares her gratitude for the donor's family, health providers, pastoral family, and all the family and friends who were there for her family.
Kesia reveals that Mario’s Doctors thought his health issues were stemming from Asthma but never expected it was his heart.
Kesia remembered her spiritual nudge to seek a specialist for Mario.
Kesia shares her family's motto to Live life and remember to help others in any way you can.
Andi encourages Mario and Kesia to continue to share their story because it will help many understand the need for Organ Transplants.

3 Key Points:

Even young athletes can experience health conditions, that require the need for an Organ Transplant.
Remember self-care if you are a caregiver for someone going through a health issue.
Share your gifts and create access and awareness of necessary resources for those in need, because, in the blink of an eye, it could be you. And always remember we are meant to be in community with one another.

Tweetable Quotes:

“Step out of your comfort zone every day.” - Mario Jarrett
“I am grateful for every opportunity that we get to spread more light and awareness for individuals to consider being a donor for children like Mario.” - Kesia Jarrett
“I am not bitter. I know it happened for us…not to us.” - Kesia Jarrett
“Stay in the space of understanding that even though you are going through this journey it is not the end… until it is.” - Kesia Jarrett

Resources:

https://getoffthelist.org/

https://www.networkforhope.org/

https://www.networkforhope.org/about-us/

https://www.facebook.com/NetworkForHopeOPO

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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Welcome to today’s episode of This Thing Called Life, where we explore the evolving landscape of organ, tissue, and eye donation. Join us as we chat with Dorrie Dils, the CEO of Gift of Life Michigan and the new President of the AOPO.

In this episode, Dorrie and Andi Johnson delve into Dorrie’s journey as a female CEO in the transplant field, discussing the challenges and triumphs she’s faced along the way. They’ll also highlight the significant increase in donations following expanded donor criteria, reflect on Dorrie’s impactful speech, and uncover the steps that led her to this pivotal role. Don’t miss this insightful conversation!

Episode Highlights:

Dorrie Dils, president and CEO of Gift Of Life Michigan and the new president of the Association of Organ Procurement Organizations, shares her experience in her inaugural year as president.
Dorrie shares that she has been in this field for 33 years, and there's been tremendous pressure from Congress, the White House, and outside entities to drive donation forward.
There have been concerns due to change in metrics which may cause a rise in decertified OPO’s and what that will do for patients who are waiting and for donors and donor families who wish to donate.
There has been a lot of change but Dorrie shares that she feels better today than ever before.
Dorrie shares that the other big thing, which can't be denied, is just the massive increase in donations after circulatory death or ECD.
Andi asked Dorrie what other positions she has worked in the OPO, Andi wanted to take a minute to have Dorrie share, as a woman in this field, what she did to reach her position of leadership today.
Dorrie shares that she was in Critical Care Nursing, then a Donation Coordinator, and at times needed to be in hospital development, PR and Public Education. Leadership opportunities led her to becoming procurement director then Chief Clinical Officer, before becoming the president, and CEO.
Dorrie talks about her speech and what motivated her to talk about correlating the Barbie Movie (2023) and the need to be perfect in the transplant world.

3 Key Points:

President and CEO of the Gift Of Life Michigan and the new president of the Association of Organ Procurement Organizations, Dorrie Dils shares her experience in her inaugural year of presidency, and the challenges due to changes.
Dorrie shares that the other big thing, which can't be denied, is the massive increase in donation after circulatory death or ECD.
Dorrie shares her years of experience, the steps that she had to take before stepping into her leadership role as a woman CEO, and the role of her deep passion for her working field.

Tweetable Quotes:

“I've been in this field for 33 years, and it truly is the biggest change I've ever seen in our work, and there's been tremendous pressure from Congress and the White House and outside entities to drive donation forward, which has been a good thing.” - Dorrie Dils
“We have in the world, have the best system for organ transplantation. And I think sometimes that gets forgotten.” - Andi Johnson
“But I think the biggest ‘aha’ moment is just how I've always been a hard worker. I've always felt in control of my success.” - Dorrie Dils
“This field has evolved so much, and one of the things that I really hope will be my legacy is the evolution of how women are seen and treated in this field.” - Dorrie Dils

Resources:

https://getoffthelist.org/

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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"Uniting for Hope: The Merger Transforming Organ, Eye and Tissue Donation”

We're thrilled to be back after our summer break, kicking off with exciting news about a transformative merger aimed at enhancing access to life-saving transplants. In this episode, hosts Andi Johnson, Julie Bergin, and Barry Massa delve into the merger between Kentucky Organ Donor Affiliates (KODA) and LifeCenter Organ Donor Network. Both organizations have a rich history of excellence in organ donation advocacy, and together they will rebrand as “Network for Hope.” This partnership will harness their combined strengths to bolster advocacy and community outreach efforts.

Join us as Julie and Barry share their inspiring personal journeys and reveal how their leadership has shaped this merger, paving the way for a brighter future for organ recipients in need of support. Don’t miss it!

Episode Highlights:

Andi Johnson introduces guests Julie Bergin and Barry Massa and the upcoming merger of KODA and LifeCenter.
Barry explains the merger journey, starting with their initial meetings at airports heading to national conferences, and the proximity of each organization.
The conversation about the future of organ procurement organizations eventually led to discussions about merging the two organizations.
The boards of both organizations were supportive of the merger.
Julie shares her experience as a new leader in the industry and the support she received from Barry.
Julie highlights the synergies between the two organizations, even before the merger conversation began.
Barry discusses the smaller size of LifeCenter compared to other organ procurement organizations and the potential for both organizations to flourish together.
Andi asks about the challenges faced during the merger process.
Barry discusses the unique nature of organ procurement organizations and the need to work through nuances.
Julie talks about the challenge of change and the importance of reassuring staff that the changes are for the betterment of the mission.
Andi asks about the meaning of "Network for Hope" and its significance.
Julie explains the importance of the word "network" in "Network for Hope," highlighting the collaborative nature of the mission.
Barry adds that the name "hope" is crucial, as it represents the hope brought to donor families and recipients.
Andi asks what advice Barry and Julie have for other OPO’s who are aiming for the same goal of merging.
Barry says it is important to pick the right partner.
The guests share their own experiences about some of the donors who have benefited from the gift of donation.
Both Barry and Julie highlight the importance of community engagement and meeting people where they are.
Julie brings up the special team that supports donor families.
She also stresses the importance of one-to-one connections and providing resources for staff to better connect with families.
Julie shares a personal story.
Barry discusses the importance of providing emotional support.
Resilience is a leader's responsibility and emotional support is crucial for staff to continue to work effectively.

3 Key Points:

Andi Johnson and guests Julie Bergin and Barry Massa discussed the merger between Kentucky Organ Donor Affiliates and LifeCenter Organ Donor Network.
Barry and Julie discuss the unique nature of organ procurement organizations and the need to work through nuances. They also talk about the challenge of change and the importance of reassuring staff that the changes are for the betterment of the mission.
They (Barry & Julie) express optimism about the future of Network for Hope and the importance of everyone working together to achieve their goals.

Tweetable Quotes:

“Barry was somebody who I was able to lean on as a new leader in this industry…” - Julie Bergin
“So I think we realized that there was synergies there, even before the conversation turned to to merge our organization.” - Julie Bergin
“We see an opportunity to really do things better…” - Julie Bergin
“None of us do everything exactly the same…” - Barry Massa
“Change in general is really hard for people, and our staff have had to deal with constant change, or the assumption that it's going to change, that has been a huge challenge, helping to inform them, reassure them, guide them.” - Julie Bergin
“I think that's the thing that people probably fear most, is losing that culture that each had. And yeah, it's going to change a little bit, but it's going to be better in the long run, right?” - Barry Massa
“Our whole job is to come to where they are, you know, see what their needs are, and to work with them to to allow donation to happen and still be respectful and mindful of the needs that they have as individuals.” - Julie Bergin

Resources:

https://getoffthelist.org/

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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This Thing Called Life Podcast will be on a summer hiatus returning this fall. The essence of our mission remains. When we return, you can expect more powerful organ, eye, and tissue donation stories from the donors, recipients, families, and frontline healthcare workers.While we're on this break, if you or someone you know is seeking information about organ, eye, and tissue donation, I strongly encourage you to visit lifepassiton.org. It’s a rich source of resources, stories, and opportunities for you to make a difference.

Remember, every act of giving, no matter how small, has the potential to change a life. Even in our absence, let's continue to spread the word, encourage others to register as donors, and keep the spirit of "This Thing Called Life" alive and thriving. Thank you for your unwavering support, understanding, and compassion for us and our guests throughout this journey.

Until we meet again, take care of yourselves and each other.

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Episode 93: Family Genetics That Lead To The Need For a Liver Transplant For Tony Burdette

On this episode of This Thing Called Life, Andi will speak with Mr. Tony Burdette, who will discuss his involvement with organ donation. Tony's life was saved in August 2019 via a liver transplant. His father passed down a genetic disease called alpha-1 antitrypsin deficiency to him. He was diagnosed in the early 1990s, with symptoms including exhaustion and low platelet counts. Tune in for his great story.

Episode Highlights:

Tony had never given much thought to organ donation, but sometimes it takes a crisis to bring it to the forefront of your mind.
Tony's father underwent a liver transplant in 1997, but it was a painful experience since, after 14 hours, the surgeons came out and told them that he probably wouldn't survive. But, happily, doctors were able to get it to work sufficiently, and he received a second transplant two days later.
The hereditary condition does not impact everyone. They can live perfectly well without it. However, something triggered Tony's liver in early 2019, and his liver began to fail rapidly.
Tony had all the excess fluid in his body, common for people with liver failure. So, he had to have the procedure called a thoracentesis, and over seven months, he had to have that procedure done 52 times.
Tony couldn’t keep having these procedures every other day. So at the University of Cincinnati Medical Center for evaluation at the Transplant clinic, he was put on the list rather quickly around the beginning of May and received his liver on August 3rd, 2019.
It was a quick illness for Tony and a painful one, but thankfully his transplant and the surgery were very successful. He was discharged from the hospital just five days later without any complications.
Tony has a brother. He obviously has the deficiency, but he hasn’t had any symptoms so far. He is under the care of a GI, and they are keeping close tabs on him.
Both of Tony’s children have a deficiency as well, and they are under the care of the liver transplant team at children just out of precaution. The doctors check them every year and have liver scans done to keep a check on them and make sure everything is ok.
About three weeks after Tony’s transplant, he received two letters in the mail from elementary-age girls who wrote him a letter and said that they just wanted to let him know that he had received their mother’s liver.
Tony has studied music at the University of Cincinnati College-Conservatory, one of the greatest in the world, and it is such an honor to be accepted there.
Tony is the artistic director of an organization called Aviva Voices Choral Organization. It’s an organization that he founded, and it provides high-quality community choirs for children, youth, and adults.
The program’s cornerstone is the brand new work for a course and orchestra called the breath of life, and it was written actually before the pandemic.
Often, being open with what you are going through can impact other people. When Tony was going through all this, we posted periodically about this on social media as encouragement for people.
Tony encourages people to not be afraid no matter what you are going through in life. Be open, share, and find people that you can talk to and know that your story can impact people.

3 Key Points:

Alpha-1 antitrypsin is an enzyme and it is created in the liver. The deficiency is that the enzyme gets trapped in the liver and creates a deficiency in the lungs. But when that enzyme gets trapped in the liver, it can cause liver damage.
Tony has spent his whole career serving as a professional musician, singing professionally with opera and orchestras around the country, and doing a lot of conducting with choirs and teaching singing.
Tony’s concert’s date is Saturday, April 30th, the last day of the month and the last day of donating life month. The concert is taking place at Christ Church Cathedral, which is a huge, beautiful venue.

Tweetable Quotes:

“The dichotomy of organ donation is that, a life has to be lost in order to give life, but it’s also a beautiful thing of sacrifice.” - Tony
“You never know how donation and transplantation will work, but Tony thinks it’s probably healing in many ways for both the donor family and the recipient.” – Andi
“One of our core values is to be able to use the power of music to shed light on important things, and when we started this organization, we said that we wanted to have at least one concert once a year.” – Tony
“Creating a free concert is based on the theme of life, the celebration of life, and use it woven together with stories. And the interesting thing about it is to bring awareness and make people aware of the power of organ donation.” – Tony
“We are a core organization, and we specialize in classical music. You don’t have to be affected by classical music or anything because there will be various music.” - Tony

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.vivavoices.net/about/
https://www.facebook.com/tony.burdette.5

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This episode of TTCL will feature an interview with Julie Luebbers on La Mega. The monthly interview will provide the Spanish Community with information about "Network For Hope" (New Name, formally Life Center, but the same passion for saving lives) and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

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A Calling To Find A Kidney Donor For All In Need

Darcy Gibson and Andy Johnson discuss the challenges faced by kidney transplant recipients and their families. In this episode they shared their experiences highlighting the importance of storytelling and education when raising awareness about kidney disease, emphasizing the impact of personal stories on building empathy and creating a sense of community.

Episode Highlights:

Andi Johnson introduces Darci Gibson and the non-profit organization “Off The List”.
“Off the List” aims to support individuals on the kidney transplant list and their families through their journey of waiting for a kidney and provide them with tools and resources to help them share their stories to find donors
Darci shares what motivated her to start this non-profit and the passion behind the project.
Darci tells us that her father needed a Kidney transplant, so she leveraged her background in Marketing to share her family story and get the word out about his need.
Andi shares the importance of taking action and control over one's health, particularly for those with kidney disease or type 2 diabetes.
Darci highlights the need for creating awareness and conversations around these conditions, as people often accept them as their fate without realizing they can take action to prevent or manage them.
Darci shares an "aha" moment about the number of young people calling for kidney transplants, highlighting the need for early education and resource sharing.
Darci offers encouragement to frustrated dialysis patients, emphasizing hope and support from others, including the possibility of finding a living donor.
Andi asks how many families are “Off The List” helping now, and Darcy shares that they are currently working with 80 families.
For those who want to contribute, the easiest way would be to go to their website https://getoffthelist.org/
There are programs through the National Kidney Registry where you can donate a kidney. It's called their advanced Donation Program, and you can designate up to five people in your family should they ever need an organ donation.

3 Key Points:

Darci Gibson tells us about their non-profit organization called ‘Off The List’ and shares how she was pushed into that journey by her own experiences.
She also highlights the importance of early education for the next generation to help prevent kidney disease and to have the strength to believe that they could still take steps to manage it.
Darci offers words of encouragement to a frustrated dialysis patient, emphasizing hope and support from others, including the possibility of finding a living donor.

Tweetable Quotes:

“... You have to share personal information. And that's hard to do, as humans, it's hard to ask people for help. And so I felt like there was a gap there that we could help fill and partner with the transplant centers and dialysis and nephrology to be able to just really dig in and personally with families through that and give them the tools.” - Darci Gibson
“We just want them to know that we're here.” - Darci Gibson
“And it's interesting how when I look back now, all of those things, was preparing me to do this. I mean, there was a reason and a purpose and that's why God was preparing me for this work.” - Darci Gibson

Resources:

https://getoffthelist.org/

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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In this episode of This Thing Called Life, Andi talks with Marty and Bonnie Garneret. Bonnie is not only Marty’s wife but also his kidney champion. Marty and his wife have been married for 42 years this month, and he says that he married an angel without wings. They share their special journey and you are not going to want to miss it!

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Resources:
https://lifepassiton.org/
https://www.facebook.com/LifeCenterOH
Life Center Phone # 513-558-5555

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This episode of TTCL will feature an interview with Julie Luebbers on La Mega. The monthly interview will provide the Spanish Community with information about Life Center and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

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Coach Darryn Chenault's Kidney Transplant Journey

It's April so it's time to celebrate the tremendous generosity of those who have saved and healed others as organ eye and tissue donors. Today we introduce Coach Darryn Chenault, to share his Transplant Journey and discuss how he broke the cycle of not communicating about Kidney Disease in his family.

Episode Highlights:

Andi introduces Coach Darryn Chenault and how she heard his story on TV
Darryn shares with us his love for being on the field coaching and how one day there was a change in how his body responded to high-energy activities.
Darryn explains how he thought it was a hereditary disease, ignoring the risk and thinking he was young and healthy. Darryn eventually figured he would have to take meds like he had witnessed with his dad, but when he got COVID, it took his Kidney Issues from Stage 2 to Stage 5.
Darryn shares that since he was “That Guy” a police officer, a hero to his family, and someone who works out every morning, he didn’t want to feel like he was not in control.
Going through the struggles of his disease, Darryn had a hard time adjusting to not being “Out and about”, that’s when he decided that he needed a Kidney.
Darryn shared how he was saved by a friend who advertised to the community that he needed a kidney transplant.
Darryn’s nephew, Arryn, called and said he was a match and wanted to donate his kidney.
Darryn’s family encouraged him to receive this gift.
Andi and Darryn discuss the issue that Black families have with higher rates of kidney disease and diabetes, which can lead to the need for dialysis and transplants.
Darryn suggests a lack of education, on the topic, prevents black families from stepping up at the same rate to be living donors.
Darryn's actual birthday is April 9 but now he tells people that his new birthday is June 6, his Transplant Date, because he got more time.
Darryn and Arryn have a unique bond after sharing this kidney transplant experience, inspiring others at family gatherings.
Darryn extends gratitude for his ability to spend time with family and enjoy activities they couldn't do before, while also acknowledging the importance of self-care and education for transplant recipients.

3 Key Points:

Coach Darryn was always there for his players and the community, he was someone everyone looked up to. Being on the receiving side was an adjustment requiring him to have new routines and acceptance of the gift of life.
Coach Darryn shares his wonderful gift of receiving the Kidney Transplant from his nephew Arryn on June 6, and how their bond got even stronger and inspired other people in their family.
Darryn shares gratitude for being able to spend time with family and enjoy activities they couldn't do before, while also acknowledging the importance of self-care and education for transplant recipients.

Tweetable Quotes:

“ Because here I am thinking I'm the guy like I work out in the morning. Good kids are looking up to me. I'm a police officer. I'm a superhero to my kids and my family. so to speak. I just wanted to be that guy.” - Darryn Chenault
“And that's what I learned throughout this whole process that I needed to lean on my family.“ - Darryn Chenault
“I mean, it was it was a tough ride, but we did it.” - Darryn Chenault
“Black families have higher rates of kidney disease and diabetes, which many times lead to needing dialysis and a transplant yet we do not as a community… as a race, we don't step up at the same rate to be living donors as white people” - Andi Johnson
"We gotta open up our heart and let them help us." - Darryn Johnson

Resources:

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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Resources:
https://lifepassiton.org/
https://www.facebook.com/LifeCenterOH
Life Center Phone # 513-558-5555

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From Transplant to Triumph: A Nurse's Journey of Healing, Giving Back and Finding Love

Today we introduce Asia Werner, a transplant recipient and nurse with UC Health. Tune in to hear Asia's incredible story of receiving her heart transplant as an infant, her decision to become a nurse, and her advice for young people who might have to go through an organ transplant journey.

Episode Highlights:

Andi introduces our guest, Asia Werner.
Asia shares that she received her heart transplant on her 1st birthday
Andi asks Asia how she felt after receiving media attention as she grew up
Asia tells us that when she received her heart, it was around Christmas, and that made her story more interesting to the public
Andi asks Asia about her nursing career decision
Asia's love of taking care of others and making people feel better
Asia worked with many spinal cord injury patients, which she sees as a sign of the universe guiding her toward this role.
Andi asks about Asia’s participation in the Transplant Games
The Transplant Games are the Olympics but for the transplant team, so recipients, donors, and even some medical professionals participate.
Asia tells us that everybody who participates in the games goes through the same situations and they can all relate to each other and agree that they shouldn’t take life for granted.
Andi asks Asia what her advice would be for young people going through the same situation as she did
Asia advises people who will go through the transplant journey that they can still do what normal people do but with caution. The most important thing is to make sure that they maintain follow-up doctor visits for check-ups and listen to their doctor's recommendations
Asia reflects on her transplant experience, which provided her the freedom to pursue a normal life, and the importance of donors
Asia expresses gratitude to their donor's family, acknowledging their life-saving decision

3 Key Points:

Asia tells her amazing story about receiving her heart on her 1st birthday, which was close to Christmas, and how it got media attention
Asia explains what got her into nursing. She tells us that at first, she thought she wanted to be a doctor but when she witnessed the difference between the direct impact of patient care nurses provided, it made it more clear what her choice would be.
Asia shares her experience in the Transplant games and how the people participating relate to each other.

Tweetable Quotes:

“So it was really nice having somebody that I knew and was comfortable with because I was able to kind of open up a little more with him.” - Asia Werner
“I know what it's like to have good nurses and I know what kind of a difference a good nurse can make.” - Asia Werner
“Basically, it is the Olympics but for transplant people, so recipients, donors, and even some medical professionals are there.” - Asia Werner
“Everybody is kind of in a similar situation. My theory is that everybody knows how precious life is there and they understand, kind of, just how precious it is and how they don't take life for granted. They don't use their life to be mean to people.” - Asia Werner

Resources:

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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Heartbeat Chronicles - Pioneering Heart Transplant at Christ Hospital With Guest Terri and George Cecere

February is American Heart Month, where women are encouraged to focus on their cardiovascular health. In today’s episode, we want to introduce you to George and Terri Cecere. Tune in and hear about their journey together managing heart disease and ultimately a heart transplant as Husband and Wife.

Episode Highlights:

Andi introduces George and Terri Cecere
George and Terri tell the story of how they met and Terri being diagnosed with Hodgkin's Lymphoma early in their relationship
In 2002, Terri was diagnosed with Cardiomyopathy at 43 years old
Terri found a cardiologist with experience in heart failure treatment, which helped manage her condition until the time she needed a heart transplant at age 62
Andi asks about the symptoms of Cardiomyopathy
Terri explains her symptoms and relates them to common heart failure
Terri lived with cardiomyopathy for 17 years, receiving treatment and care from Dr. O'Brien and the advanced heart failure team
Her condition gradually worsened over time, leading to the recommendation of a heart transplant
Terri received a heart transplant at Christ Hospital Health Network, becoming the first recipient of the program
Andi asks Terri about how she feels about all the media attention
Terri shares her story and advocates for heart health awareness with the help of her husband George and Life Center
Terri expresses gratitude to the donor family for giving her the gift of life, acknowledging their difficult decision to donate
Terri also talks about how the reality of having to care for someone with heart disease is challenging and the gift George has been through this journey

3 Key Points:

Terri and George talk about how they thrived through 17 years of Heart Disease
They share their experiences for 17 years leading up to the heart transplant and express gratitude for how they were cared for by their doctor(s) and hospital
Terri now advocates for heart health awareness with the help of her husband George and Life Center

Tweetable Quotes:

“Heart disease is the leading cause of death for women.” - Andi Johnson
“I decided I needed a cardiologist who had experience with heart failure in particular, because it makes a huge difference.” - Terri Cecere
“But I do think that intellectually we knew that at the end of the journey, the heart transplant was possible.” - George Cecere
“Since Terri's transplant, which was, you know, only about 15 months ago, they've completed 19 heart transplants, which is an astounding number considering you know, how new the program is.” - George Cecere
“And there's not a better person to have as your caregiver than George. I mean, he's, he was amazing.” - Terri Cecere

Resources:

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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Resources:
https://lifepassiton.org/
https://www.facebook.com/LifeCenterOH
Life Center Phone # 513-558-5555

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A Guide Through Loss And Transformation, With Kelly Gunnels Valines

In today’s episode, we want to introduce you to Kelly Gunnels aka author K.R.V. Gunnels as she discusses her story of advocacy and activism following the murder of a family member in 2017. Through the passing of her brother, she shares the importance of addressing systemic issues affecting black communities and how you can help others through organ donation. Kelly also talks about her book “A Widows Guide” and the inspiration behind it.

Episode Highlights:

Kelly Gunnels shares her story of advocacy and activism following the murder of her brother Reco in 2017.
Reco just renewed his license and when he was asked to be an organ donor, he said yes. Reco’s decision gave Kelly the confidence and comfort to contact Life Center.
When Kelly was asked to speak about stopping gun violence in the community her journey of activism and leadership began.
So often, in the black community, organ donation is not discussed but when Reco died, his family was able to honor his wishes and donate his organs, which helped several people in need.
Kelly recalls the moments when Reco was brought to the ER, and how the hospital staff fought for his life.
Kelly also experienced the loss of her husband which inspired her book; a Widows Guide. Her journey in writing made her recognize something about herself, she writes when she’s in pain.
She recounts her journey through grief after losing her husband suddenly, including an investigation which enhanced her struggle to come to terms with the loss.
Kelly met a fellow author who introduced her to a spiritual mentor, who helped her find faith and surrender to God's plan.

3 Key Points:

Kelly Gunnels talks about the passing of her brother Reco and how the tragedy launched her journey to use her voice and talk about the reality of violence in the community and the importance of organ donation.
She talks about her family’s legacy and how she started writing. The passing of her husband and the difficulty of the situation inspired her to write her book “A Widows Guide”.
Organizing a blood drive and healing after loss.

Tweetable Quotes:

“We're all working to be the best that we can be.” - K. Gunnels
“Everyone's not going to be a match for you. But you have to decide.” - K. Gunnels
“So yes, they will fight for you, even if you sign up to be a donor they will still fight for your life.” - K. Gunnels
“What I recognize about myself, is that I always write when I'm in pain.” - K. Gunnels
“God shows up for us all the time.” - K. Gunnels

Resources:

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

https://www.amazon.com/s?k=widows+guide+journey+through+insanity

Facebook: Kelly Gunnels - https://www.facebook.com/kgunnels

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This episode of This Thing Called Life will feature an interview with Julie Luebbers on La Mega. The monthly interview will provide the Spanish Community with information about Life Center and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

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The Four Year Journey Of Waiting For A Kidney Donation

In today’s episode we want to introduce you to Carmelita C Jones. Carmelita discusses how she dealt with the realities of kidney failure, diabetes, high blood pressure, adulting, and why it is important for her to be an advocate for her circumstances. By understanding the real struggles of kidney disease and the symptoms associated she hopes to help the next generation avoid long term damage to the kidneys and help them live a better and healthier life!

Episode Highlights:

Carmelita Jones shares her story of needing a kidney transplant and her passion for giving and loving others
She shares about career changes and medical challenges after a car accident
She talks about her diagnosis and treatment options for Kidney Failure.
Life before the accident, Carmelita knew she had diabetes and high blood pressure.
Carmelita discusses diabetes, the organ transplant waitlist, and the black community.
“Make better choices, eat to live, not just live to eat.”
She points out the importance of teaching the next generation about nutritional value because they risk making the same mistakes as the past generation.
There is a rise in children being diagnosed with diabetes at a much younger ages.
There are more organizations to help with better nutrition, such as fresh fruits and vegetables in grocery stores, cooking classes, community gardens, etc. that could help with the problem.
Carmelita describes her dialysis routine, including early morning appointments and time spent in the bathroom. She also describes how COVID-19 affected her financial situation.
Carmelita shares her struggles with kidney disease and the impact on her daily life, including the importance of regular dialysis treatments and the need for a kidney transplant
Carmelita advocates for normalizing conversations about mental health and wellness in the black community, emphasizing the importance of being open and honest about one's struggles.
She reflects on the importance of a supportive tribe in navigating adulting and its challenges.
She provides contact information for those interested in learning more or donating, emphasizing the anonymous process and the positive impact on donors' lives.

3 Key Points:

Carmelita Jones shares the reality of having Kidney Failure and how she found it out after an accident. She also shares that prior to the accident, she knew she was diabetic and had high blood pressure.
Carmelita discusses a brief connection of the african american history and how we pass on the generational curse of bad choices when it comes to our health.
Carmelita advocates for normalizing conversations about mental health and wellness in the black community, emphasizing the importance of being open and honest about one's struggles

Tweetable Quotes:

“High blood pressure is another major factor. Not to specify one particular group, but you know, African Americans suffer from high blood pressure because of our history literally on slave boats.” - Carmelita Jones
“We need to teach our children first and foremost. So we don't give them our bad habits.” - Carmelita Jones
“If you look at obesity, and our young people, it's off the charts. It's ridiculous. And it's because they're following our habit.” - Carmelita Jones
“Adulting is hard. It requires so much patience. And a lot of times we take that time to take care of ourselves.” - Carmelita Jones

Resources:

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

Christ hospital call Bree @ 513-585-1427 for answers to any questions about the process of kidney donation for Carmelita

Facebook: Carmelita C. Jones - https://www.facebook.com/carmelita.c.jones

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Todos Pueden Ser Donantes

During this episode of This Thing Called Life, host Andi Johnson speaks with Courtney Schapier, a liver donor, the sister of a liver recipient, and one of the Organ Donation Coordinators at LifeCenter. Upon learning about her brother’s need for a liver, Courtney made the incredibly brave decision to make a difference. Her story is simply amazing!

Episode Highlights:

Courtney has been an Organ Donation Coordinator at LifeCenter for the past 6-7 years.
Donation Coordinators handle the medical management and evaluation for organ donors.
Amongst other responsibilities, Courtney plays a large part in matching organs to donors.
Sometimes, organ donation acts as the silver lining to families that are going through an incredibly hard time.
Donation coordination is a 24-hour job because donation does not run on a 9-5 schedule.
From the time that a case opens to the time it closes, Courtney is on the clock for 36 hours.
Courtney uses CrossFit and a great support system as outlets for the high stress levels of this job.
With such a high-stress job, it’s no surprise that there is a high level of turnover.
There have been times where the stress of the job has made Courtney question her desire to be here.
COVID brought everything to a screeching halt when it first exploded back in March.
The sheer amount of unknown information has made the ongoing global pandemic that much scarier.
Things have finally begun to get back to normal, meaning more lives are being saved via organ donation.
In 2016, Courtney’s brother discovered a huge mass on his liver that required a transplant.
Unfortunately, Courtney lost her father when she was only 2 months old, so her brother acted as a father to her.
Courtney was informed that she was a donor match for her brother while supporting a family that was pulling life-support.
The weight of the situation started to feel heavy when Courtney sat on the pre-op table.
Sitting outside the OR doors on the pre-op table, Courtney was rolled back for surgery after only 20 or 30 minutes.
There were a handful of signs that something was wrong with Courtney’s brother’s liver long before the doctors caught it.
After everything was said and done, it took a 10-hour procedure for Courtney to donate over half of her liver.
The first thing that Courtney can remember is getting sick immediately after surgery.
Courtney finally got to see her brother when she was transferred to the ICU.
It was a complete shift in lifestyle for Courtney from the moment that she found out she was a donor match for her brother.
Finding living liver donors is more rare than finding living kidney donors.
Both Courtney and her brother fully recovered and are as healthy as they can be today.
TX Jet was kind enough to donate its services to fly Courtney and her family out for surgery.
After her donation, Courtney was sure that she was at the right job at LifeCenter.
Courtney was comforted by the knowledge that everything in her life made her the perfect donor for her brother.
This year, Courtney is focusing on being more present when she is with loved ones.
The amazing thing about donation and transplantation is the opportunity to potentially save a life.

3 Key Points:

Organ Donation Coordinators manage everything from the moment a donor decides to donate, to the time that the organ is sent to its recipient.
It takes a very special person to not only manage the responsibilities of being a Donation Coordinator, but also the rollercoaster of emotions that come with the job.
Courtney donated just over 50% of her own liver, which was oversized, to begin with, to save her brother’s life.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
TX Jet (website)

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Episode 76: MAY 2023 Appreciation and Community Impact Events

It’s been a minute! April was National Donate Month, and we honored and celebrated our donor heroes across the region. Now sliding into May, we extend our gratitude to nurses and teachers, Happy National Nurses Week, National Transplant Nurses Week, and National Teacher Appreciation Week!

Episode Highlights:

Life Center partnered with Hospitals across the region to honor donors, healthcare teams, and recipients.
They also celebrated the donor heroes from 2022 with the Anual Donor Family Recognition ceremony.
Life Center also partnered with the Center For Closing the Health Gap to discuss generational health and the Black Community at the Annual Health Expo
A partnership with the Cincinnati Reds also kicked off by honoring a donor hero
Sliding into May, we extend our gratitude to nurses and teachers, Happy National Nurses Week, National Transplant Nurses Week, and National Teacher Appreciation week!
103,871 Men, Women, and Children need life-saving organ transplants, and 21 people will die because what they need isn’t available.
Learn the importance of registering to be a donor, and why it matters!

3 Key Points:

Life Center partnered across the Region to honor and celebrate donors, healthcare teams, and recipients.
May will be a month of gratitude towards Nurses and Teachers!
We must learn the importance of registering as a donor, why it matters, and the truth about organ donation.

Tweetable Quotes:

“Today, 103,871 Men, Women, and Children need life-saving organ transplants, and 21 people will die because the organ they need isn’t available.” - Andi
“Take a moment to learn why donation matters, and why registering to be a donor absolutely matters.” - Andi

Resources:

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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On this episode of This Thing Called Life, Andi Johnson speaks with Aimee Cordrey. She will be sharing the gift of life that her son, Nicholas has given to many recipients and how influenced others to do the same. She will also be reflecting some light upon the life of her son and sharing her story of grief and pathway to healing. Tune in now for this special story.

Episode Highlights:

Aimee Cordrey is married to Darren Cordray. They have been married for over 20 years and been together for a little bit longer than that. They met in college, and they have two sons Richard, a 19 year old, and Nick, who would be 17, but he is forever 15. Both of them are athletes, very different yet very similar in their interests and just how they approach life.
In the middle of the pandemic Aimee and her family had been quarantined like everyone else for quite some time. School had just ended. Nick had just finished freshman year of high school and it was Memorial Day. Nick and Aimee went shopping that day to get some hamburgers and some vegetables and different things to grill out.
Nick hadn't seen his friends because of quarantine. Aimee allowed him to go meet some of his friends at a local ice cream shop that was within walking distance of their house because one of his best friends was leaving for vacation the next day and she was going to be gone for two weeks.
Nick decided to take a shower at night. All of a sudden Aimee heard the water go on and then they heard some really heavy, intense breathing, they were shocked. They thought it was our other son Richard, playing video games. She went to the basement, but it was not Richard, it was Nick.
Nick loved life and he approached everything with this attitude of – "I can do it." His family really believed he was going to be okay and pull through.
Aimee explains how and when they went about the conversation of Nick being an orgn donor. The hospital staff acknowledged all the protocols that they have in place, and they contacted Life Center.
Nick had not yet been able to get his temps. He would have been eligible for them. The month that everything happened, he had actually registered as an organ donor.
The letter that Aimee received said that Nick saved five people with seven organs, and probably impacted 40 to 50 others. The only thing Nick was unable to donate was his intestines, which they initially believed he was going to be able to do until they started doing the surgery.
Aimee shares her thoughts on what it all meant to her, Darren and Richard to know that Nick helped so many people by donating his organs.
“Learning that sometimes bad things happen to good people and learning to be ok with that and it is not even being ok with it, it's just accepting it- that is one piece of it. The donation piece brings that pride.” -Aimee
Aimee thinks that being able to talk about organ donation enables her to talk about Nick.
Andi feels like Aimee is doing so much just to help people understand the magnitude of the donation and its impact.
Andi asks Aimee about the project that she is working on at his school in his honor.
One of Nick's friends, Grayson, started a change.org petition. He wanted to have the school board name the soccer field after Nick.
There isn't a lesson here when it comes to losing a son. The only lesson that Aimee has learned is that bad things happen to good people, and she has learned that when you encounter a loss like this you integrate it into your life, you don't overcome it.
Grief is something that has stages and some stages may be re-visited at times. It is ongoing.
Nick loved everything. All of the time he was researching, reading to understand deeply, caring deeply, everything was with passion, everything was with full intent. He didn't do anything without truly caring about it. If he was gonna do it, he was doing it 100% all in and that's what Nick was, and he is.

3 Key Points:

Nick had a brain aneurysm that his family didn't know about. Nick did not complain of a headache that day. He didn't have any signs of anything that day. He had an amazing day, and it was that quick. They called 911. They were very quick, they took him to the hospital, his aneurysm ruptured three times. At the hospital, they did surgery on him and for 9 days his family thought Nick was going to make it.
Aimee tells the listeners how Nick was able to help other people through the gift of life that he was able to give.
Each one of us is different. Unique as people, Aimee thinks everyone's grief is very unique. She needed to be around other people. Aimee thinks that the donor family council is amazing. They are a source of strength. They are unshakable.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website

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Episode 74: The Incredible Journey Of Receiving A Kidney

On this episode of This Thing Called Life, Andi is going to talk to Marty and Bonnie Garneret. Bonnie is not only Marty’s wife but his kidney champion also. Marty and his wife have been married for 41 years this month, and he says that has married an angel without wings. He shares his special journey; You don’t want to miss it!

Episode Highlights:

There are two types of diabetes, type one, which you are born with, and in that, your body does not produce any insulin, so you are on insulin shots from the time you are born. The second type comes from heredity, bad eating, lack of exercise, or all the bad stuff you do - lifestyle factors.
If the doctor says you are prediabetic, that means your sugar is running high regularly, and it is destroying your body. So, you need to get to a specialist or endocrinologist.
It is not a disease to be taken lightly because it leads to chronic kidney disease, which Marty has. If you don’t pay enough attention to it, then you are graded on a scale of stage one to stage five transplant material, and that is where Marty is at 70 years of age.
When you first start out with kidney disease, you are one of about 100 to 150,000 people on a list of possible recipients. Marty is lucky enough to meet a gal named Darcy Gibson, who has a foundation, a charitable organization, called Off The List, inc.
To go through initial testing is a rigorous process. There are three different people you meet with. One is a social worker to check your mental capacity, the second is a nutritionist to manage your diet, and the third is a team of doctors and nurses that help you through tests.
To get off the list, you have to receive a donor’s kidney, and Bonnie has done this through Facebook, through yard signs, emails, and extensive, unbelievable work this woman has done on Marty’s behalf.
The list that Marty is talking about is a list to receive a deceased donor kidney. To get a living donor kidney, you must find someone willing to donate, a friend, a relative, or just a generous donor, and it is tough.
It is a completely anonymous process, as someone is tested on your behalf. You would never know that because hospitals take that very seriously, and they want to ensure that the person who is doing this wants to do it for the right reasons and that there is no sense of pressure.
Bonnie decided that UPPO would be perfect because people would have to ask a question and start the conversation. What is UPPO, or who is UPPO? Life for UPPO is a Facebook page, and we are working with Christ Hospital, and Trisha is the donor coordinator.
The typical diabetic signs that Marty paid no attention to was he slept 12 hours and felt like he didn’t sleep 5 minutes. He drank unbelievable amounts of liquid, whether it be coffee, pop, water, and he lost a lot of weight.
The diet you have to be on when looking for a kidney is extremely difficult. There are many things to avoid and take care of.
There are two categories of people when it comes to the conversation about being a living donor. We need to do a better job of filling the gap of information and helping people understand this is something they can do.
Children’s hospitals prefer to give it to children, and they should. But if something happened and there aren’t any children who would need it, then the adult on that list would receive a kidney.
One of Marty’s dreams has always been that he would like to start in Maine and eat lobster all the way down the East Coast until they have to get an oversized bus to take him home.
Marty looks good on the outside, but he’s not good on the inside, and that's what a lot of people don’t understand because he looks great. But they don’t understand that the kidney function is still going down, and you can’t see that.
If people understood how grateful recipients were, it would cause a lot more people to donate because they are heroes and become angels without wings.
Bonnie has read a lot on the national kidney Instagram page and other places that donors live longer than people who have not donated.

3 Key Points:

Marty and Bonnie tell the listeners about the Facebook page they set up for people. The Facebook page is called life for UPPO. UPPO is Marty just because their oldest grandson when he was very young, can’t say Grandpa, and he came out with UPPO.
Marty doesn’t think people understand how serious this disease is, and it will kill you. Many thousands of people die every day from kidney failure, and several things work against you.
Marty and Bonnie talk about the misconception surrounding kidney donation.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.facebook.com/life4uppo
Tricia Monson Christ Hospital Donor Coordinator 513-585-1440
Marty and Bonnie Garneret
Off the list inc, Darci Gibson

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On this episode of This Thing Called Life Podcast, host Andi Johnson is going to talk to Shelly Sherman and Stephanie Jackson. They are discussing kidney health and an exciting new project that is being launched to shed light on kidney disease as well as prevention. No doctor or medical expert will kill you for your organs; In fact, no medical professional is aware of your donor status until your death is declared. Tune in for more information!

Episode Highlights:

Host Andi Johnson has a few big asks. Will you join us and be a part of this interconnected life sustaining community by registering to be an organ, eye, and tissue donor? Will you make the commitment to become more educated about living donation and championing the donation cause?
Shelly is associated with the Cincinnati, Ohito chapter of The Links, Incorporated and she served as the Health and Human Services Facet Committee chair.
The Ohio central chapter was granted an award by Baxter International for increasing the awareness of kidney health in the communities in which Shelly lives and primarily in the African American community.
What is GFR? Shelly has been working hard in the community to make sure people know where they are regarding their GFR, which lets them know how well their kidneys are functioning and what they can do to maintain kidney health.
The Links organization was founded in 1946 on the premise of friendship, and Shelly wants to uplift and elevate people by providing health information.
Stephanie and Shelly first met through collaboration with The Center For Closing the Health Gap.
Shelly had goals in mind based on the grant they received regarding the number of people that they needed to touch and the number of community partnerships that they needed to do.
Shelly and Stephaine share the experiences they have had with training sessions and connecting in the community. They hope people will continue to listen to the podcast and continue doing some things and spreading the word in their communities.
When people are ill, you can see it on their skin and eyes. You can notice the effects of kidney and liver illness on the skin and other body systems.
Garlic is great for decreasing inflammation; It has Vitamin C, Vitamin B6, and Manganese, a great alternative for your seasoning. If you want to decrease your psyllium, you can add more garlic, which is great for your heart and your kidney.
The one thing is to avoid canned and packaged chicken breast because those can contain sodium and other preservatives.
Raising awareness and making small changes goes such a long way in promoting healthier lifestyles. There is a great ripple effect too when you share information like this with those in your family and circles.

3 Key Points:

Blueberries are an important food for kidney patients. They serve as antioxidants and are very good for healing. In addition, they help your body to increase urination.
People talk about dialysis and transplant, and these are things that you want to avoid. By opting for a healthier lifestyle and changes in the food you eat, you can do that.
There are so many ways you can just move your body, and Stephanie always tells people 15 to 20 minutes is sufficient. Make sure that your body is doing something that it doesn’t do every day.

Tweetable Quotes:

“Whatever we are putting in our body, the body is going to use, and if we don’t put in things that our body can use, then our body is not going to be able to function the way it’s supposed to.” – Stephaine
“Your body does need fat but only healthy fats because it helps everything stay lubricated and work well in all facets.” – Stephaine
“So much of what happens to us is preventable, and a lot of it is due to a lack of information that is sometimes missed in our community.” – Shelly
“Sometimes, we do have a mistrust of the medical systems, and we don’t get some of the information that we need to have, but we can share it and start to educate each other.” - Shelly

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.cincinnatilinks.org/black-kare-initiative
https://www.facebook.com/CincinnatiLinks
https://www.instagram.com/cincinnatilinks/
https://www.yoursweetestlife.com/
https://www.facebook.com/yoursweetestlifewithstephaniej
https://www.instagram.com/yoursweetestlifewithstephaniej/

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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March is National Kidney Month. On this episode of This Thing Called Life, host Andi Johnson talks with Mike McConnell about kidney health and community outreach.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

https://aopo.org/

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

https://www.instagram.com/lifecentercincy/

https://www.youtube.com/user/LifeCenterOH

https://twitter.com/LifeCenterCincy

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March is National Kidney Month. On this episode of This Thing Called Life, host Andi Johnson talks with someone who saw a vital need and acted on it in regards to living kidney donation, Brett Milam. Tune in to hear his journey as a living kidney donor.

Episode Highlights:

Andi previews National Kidney Month and the importance of education. Kidney disease, diabetes is often referred to as the silent killer.
There are more than 37 million Americans who have Kidney disease and high blood pressure which often leads to kidney failure.
More than 90,000 people are waiting for a life-saving kidney transplant.
To get more information about kidney health and prevention, please visit lifepassiton.org or nkf.org today.
Guest, Brett Milam, shares when he first thought about kidney donation. He saw a fellow journalist through Instagram who made it seem really doable.
Andi asks Brett to talk about the process to become a donor. He went through UC Medical Center.
Brett says you don't pay anything to be a living donor and the commitment was not overwhelming. The Medical Center even reimbursed his parking tickets.
Andi talks about the safeguards in place for routes of discrimination.
How long do you need to be off work?
Brett shares what it feels like when your organs are reconfiguring after surgery.
Brett has visited dialysis centers and talks about what it is like.
What if your family needs a kidney after you have previously donated?
The fall after his surgery he went skydiving for the second time in his life. He talks about the drawal to do it.
He overcame his fear of public speaking to champion this cause and in 2022, Brett decided to work for Life Center.
Andi asks Brett to talk about mental health. He had a personal journey with depression that he navigated through and what helped him overcome.
What is talk therapy?
If you are struggling with mental health, Brett has advice for you. He said do not fear telling your primary care physician that you are struggling mentally. You may have to go through different therapists and/or medications but it is very worth it.
Andi talks about recognizing managing new normal after covid and how Life Center decided to offer counseling to their staff.
Brett loves to read. He talks about what he enjoys reading. He recently read Stranger In The Woods.
Brett did not know who his donor recipient was but it was still such a fulfilling experience.
Andi reminds listeners that there are 103,933 men women and children who need life saving organ transplants. What can you do to help?

3 Key Points:

March is National Kidney Month. Many Americans have kidney disease and high blood pressure which often leads to kidney failure which then in turn requires dialysis or kidney transplant. It is important to be educated to be out in front of the disease in prevention.
Brett Milam shares that it was a simple calculation for him to decide to be a living kidney donor.
Life Center’s mission and purpose drew Brett in. He thought he would work in journalism forever until a perfect turn of events led him to use his skills for this specific organization.

Resources:https://lifepassiton.org/https://lifepassiton.org/board-of-directors-leadership/https://www.facebook.com/LifeCenterOHhttps://www.youtube.com/user/LifeCenterOHhttps://aopo.org/

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On this episode of This Thing Called Life, host Andi Johnson highlights March as National Kidney Month. Kidney disease is often referred to as the “silent killer” because so many people have experienced it and complications that cause it without knowing it for an extended period of time. Tune in so you can be educated about this important topic and proactive with your own health.

Episode Highlights:

Do you know what Kidney health is?
Do you understand your family history as it relates to kidney disease?
Andi says, “More than 37 million Americans have kidney disease, high blood pressure, and diabetes, all of which lead to kidney failure often.” What does that mean?
More than 90,000 people in the US are waiting for life saving kidney transplants.
Andi lists the signs of kidney disease and encourages the listeners to visit nkf.org for more information.
How can you create generational health?
In Cincinnati, LifeCenter is working with The Links Incorporated and Closing The Health Gap and will be holding their first ever forum on this issue of diabetes and kidney disease.
Andi says they have seen an increase in children being diagnosed with type 2 diabetes and that is the wrong way to be trending.
Andi says the partnership forum will open the conversation for physicians and others who have been through the experience so that everyone can be educated to take steps they need to for generational health.
You can find out more about Closing the Health Gap at https://closingthehealthgap.org/
There will be a lot more content coming on the podcast this year. For previous episodes visit https://lifepassiton.org/

Tweetable Quotes:

“More than 37 million Americans have kidney disease, high blood pressure, and diabetes, all of which lead to kidney failure often.” -Andi
“More than 90,000 people in our country are waiting for life saving kidney transplants.” -Andi
“This is a great month to start the conversation about kidney health and understand if this may impact you.” -Andi

Resources:

https://closingthehealthgap.org/

https://www.kidney.org/

https://aopo.org/

https://lifepassiton.org/

https://lifepassiton.org/board-of-directors-leadership/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

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Resources:https://lifepassiton.org/https://www.facebook.com/LifeCenterOHLife Center Phone # 513-558-5555

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During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Donna Jones Baker who recently received the gift of life through the donation of a kidney and a heart. Donna has learned to appreciate organ donation and its ability to help save so many lives!

Episode Highlights:

February 14th is National Donor Day, a day to honor all those who have been affected by organ donation.
Donna was originally born in Paducah, Kentucky and went to Murray State University.
After getting married, Donna lived in Baltimore for 22 years before moving to Cincinnati to become the CEO of The Urban League.
Had it not been for the heart attack that she suffered, Donna believes she would still be at The Urban League.
Initially, Donna received a Z-pack for what she thought to be a cold or a flu.
Donna was able to make it to the hospital after suffering from a heart attack where she was equipped with an LVAD.
Doctors wanted to give Donna a heart transplant, but couldn’t because they discovered cancer on her kidney.
After doctors removed her kidney, Donna was placed on the transplant list for a new heart and kidney.
According to the numbers, people of color suffer disproportionately from the effects of COVID.
The months between her kidney removal and kidney/heart transplant were very scary for Donna.
Doctors feared that Donna’s remaining kidney would not be able to support her and that she would have to go on dialysis.
The same doctor that fixed Donna’s LVAD performed her heart and kidney transplant.
Donna had to be careful with the medications that she took because the heart and kidney don’t want the same things.
With the help of her husband, Greg, Donna was able to make it through a transplant during a pandemic.
Donna advises those going through a similar situation to try not to think about it all the time.
The gifts of life and grandchildren keep Donna grateful for every day that she opens her eyes.
Through the pandemic, Donna has remained in touch with her children and grandchildren via Zoom.
Working in organ donation is a tough job, but one that saves many lives.
Donna hopes to schedule a trip to Baltimore to visit her grandchildren once the pandemic is over.
Right now, there are over 100,000 people in need of a life-saving transplant surgery.

3 Key Points:

After initially thinking she had the flu, Donna agreed to host a round table event on Friday the 13th. That following Sunday, she suffered a heart attack from Giant Cell Myocarditis.
Many African Americans decline to become organ donors out of a fear that if someone of note needed an organ, doctors would take it from them without consideration for their lives.
To stay in touch and grow with her family members, Donna has started a Sunday night Zoom Bible study.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Donna’s Story
Urban League Of Greater Southwestern Ohio

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On this episode of This Thing Called Life, host Andi Johnson finishes up the series of exploring all the parts and roles in the donation process at the OPO. Many different entities come together to make it all possible. Today, Tracie Shelton, the Chief Administration Officer joins the show to share about her role in the organization. Tune in!

Episode Highlights:

Andi reviews the departments that she has spoken with over this series and the value of how so many come together for the life-saving gifts of organ donation.
The nature of working in an OPO is very gratifying and mission-focused. If you are looking to move into something that has more meaning and a way to give back to the community, a role at LifeCenter or in an OPO may be for you.
Andi introduces Tracie Shelton, who is new to the OPO and is the current Chief Administration Officer.
Tracie has extensive experience in healthcare. She is a nurse by background and has held a lot of leadership roles at high performing hospitals in the area.
Life Center has been the opportunity of a lifetime for Tracie, she says. She explains when she came in and went to the community breakfast right away.
Andi asks Tracie what it has been like to switch from larger organizations to a smaller one. She shares the benefits.
Regulations are Tracie’s speciality and she wants to add value to support the mission and all teams.
What does a typical day look like for the Chief Administration Officer since it can look different each day? Who reports to this role?
The level of professionalism and work at LifeCenter is amazing, Tracie says.
The relationships between LifeCenter and donor families are so strong. Tracie talks about that importance as she has seen the other transplant side in healthcare.
What skills are necessary for a role like Tracie’s?
Andi reminds the listeners that there are 104,398 men, women, and children who need an organ transplant. How can you help?

3 Key Points:

Tracie sees being at LifeCenter as an opportunity of a lifetime because of the mission-focused and life-saving work.
What does a typical day look like for the Chief Administration Officer since it can look different each day?
You have what it takes when you have the leadership skills, you often need to just be. Tracie talks about confidence building, communication, and the feeling that you can really rely on each other.

Resources:https://aopo.org/https://lifepassiton.org/https://lifepassiton.org/board-of-directors-leadership/https://www.facebook.com/LifeCenterOHhttps://www.youtube.com/user/LifeCenterOH

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On this episode of This Thing Called Life, host Andi Johnson finishes up the series on ‘The Donation Process Through The Lens Of The OPO’, exploring how things work and who is involved. There will be two additional guests for the series that will join in to share what they do within the OPO. Today, Matt Niles joins the show to discuss his new role at Life Center as the Chief Operations Officer. Tune in!

Episode Highlights:

Andi reminds the audience that she has interviewed people in every department of the OPO because each one plays a critical role in the donation value chain. You can check out any of the interviews from previous episodes at : https://lifepassiton.org/ or wherever you listen to your podcasts.
It truly takes a community to facilitate donation. Andi reviews everyone who is involved.
The purpose of this series has been two-fold: 1) to explain more about the OPO’s role and functionality so that the audience understands how the organ, eye, and tissue donations come to be as well as the intricacies of the life-saving and life-healing process. 2) If you are considering a career change, especially to something with deeper meaning to you, you can learn more about the different roles to the piece of the puzzle.
Andi introduces Matt Niles who is new to Life Center specifically but not new to the OPO world.
Matt Niles shares his background in Organ Procurement. He has been in the donation field since 2001.
Matt is from a small rural town in Pennsylvania. His family was very big on volunteering and he volunteered in their small community hospital when he was in junior high school.
At age 14, he saw a pamphlet about organ donation in the hospital. He filled out the donor card that evening with his parents.
Matt has been with Life Center for 3 months. Previously, he has been in many different roles that ultimately led him to being the COO here.
Matt shares his goals as he has taken over the role of CEO with Life Center. He says a lot of changes are happening in the industry and he wants to best prepare everyone for moving forward in those changes.
The field of transplant is relatively new, only being around for about 40 years so there are a lot of innovations and changes everyday.
Matt has had friends who have received transplants and he has had a friend who passed away waiting on the National Transplant Waiting List and he is a donor family. He is very passionate about it being his life’s work.
Organ transplantation doesn’t happen without donation so it is an incredibly important process.
Matt talks about everything that he oversees. Andi asks him to share the expertise that he brings.
Matt shares the personal story of his grandfather who was a donor.
Donor families and the people waiting are Matt’s WHY and focus.
Andi talks about the value of Matt’s outside perspective and ability to challenge Life Center for growth.
Matt has the perspective of a donor family, as an ICU and ER nurse where he cared for patients at their bedside, and as a clinician being a part of the process when the OPO comes in and provides the opportunity of donation to a family. He started out as a donation coordinator at the OPO in Pittsburg, PA
When he wanted to go back to grad school he switched over to a large hospital as a director of the medical ICU and dialysis centers. He remained the chair of the hospital donor committee.
After grad school, he had the opportunity to return to OPO as a director in Washington D.C.
Andi asks Matt to share what a day in his work looks like and how it starts.
What about the philosophy of some people in the community who believe that if they are a registered donor they will be killed for their organs?
What does it take to qualify to be a donor?
There are so many misconceptions in healthcare in general and even more in donation and transplants. Matt says it is their responsibility to acknowledge the doubts and fears but also bring the powerful truths and educate so families can make the right decision for them.
Andi asks Matt to share what he finds most challenging about his role today.
What does it take to be a COO at an Organ Procurement Organization?
Andi reminds everyone that there are 104,398 men, women, and children who need a life-saving organ. Learn what being a donor really means or register as a donor at https://lifepassiton.org/or https://registerme.org/

3 Key Points:

Matt Niles shares that his school of thought has always been that he won’t need his organs anymore when he is gone so he should give them to someone who does; It has been a very straightforward decision for him since he was 14 and led him to his career and where he is today.
Transplant is a relatively new field, only having been around about 40 years. Matt says there are innovations and changes everyday that they need to stay on top of and ahead of and ultimately eliminate the deaths that are occuring on the waiting list.
Matt clarifies what it takes to qualify to be an organ donor and that the hospital always 100% of the time tries to save all patient lives.

Resources:

https://aopo.org/
https://lifepassiton.org/
https://www.facebook.com/LifeCenterOH
https://www.youtube.com/user/LifeCenterOH

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Resources:https://aopo.org/https://lifepassiton.org/https://www.facebook.com/LifeCenterOHhttps://www.youtube.com/user/LifeCenterOH

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Resources:https://lifepassiton.org/https://www.facebook.com/LifeCenterOHLife Center Phone # 513-558-5555

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Resources:

https://aopo.org/
https://lifepassiton.org/
https://www.facebook.com/LifeCenterOH
https://www.youtube.com/user/LifeCenterOH

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During this episode of This Thing Called Life podcast, host Andi Johnson talks to Debbie Hayes. She is a healthcare leader in Cincinnati, and specifically she leads a number one ranked hospital in the Cincinnati region. Tune in to hear her experiences and perspective on kidney donation.

Episode Highlights:

Debbie began as a nurse at Christ Hospital. She worked her way up to being CEO, also led the Board of Directors at LifeCenter Organ Donor Network for 9-10 years.
She started her career 34 years ago as a student nurse aide. The one thing that always amazed her about this organization is that you are given opportunities to grow and develop your talents.
The pandemic was one of the most challenging times in the history of healthcare, but it has also been one of the most rewarding times. Because of the extraordinary efforts of an incredible team of people working they have still kept that mission of the organization at the forefront of everything that they do despite every challenge.
“We are definitely grateful for all of our hospital partners throughout our service area who are able to facilitate organ, eye, and tissue donation”, says Andi.
Many people who have organ failures of any kind are not able to fully experience what life is all about,which is why Debbie is passionate about this.
Andi inquires, during the pandemic, “Did that affect patients waiting for kidney transplants at Christ Hospital?”
One of the trends that she has noticed during her time at the Life Center is that living kidney donation continues to increase. Debbie explains her thoughts about why we are seeing more people making that choice to be a living kidney donor.
Andi had the opportunity to interview a young woman who was actually waiting for a kidney, and she was listed at Christ, and she just could not say enough about what a positive experience has been with her team there.
There are probably a million-plus surgeries that occur in the country requiring donor tissue, which is very interesting.
Andi recalls a story about a young woman who was a volunteer and ambassador, and she has been waiting for a kidney for about three years, and unfortunately, she passed away. But she was able to be a cornea donor, and it just meant so much to her husband and young daughter.
Debbie talks about who/what experience has helped shape her into the leader she has become.
Andi asks Debbie to give advice to someone who is just starting out in their career in healthcare and may be inspired to lead a healthcare system down the road.

3 Key Points:

Debbie shares how she maintains the passion for the work that she has been doing. She was recently named CEO of the Christ Hospital after serving as interim for a period of time, and just as an outsider looking in, it seems like health care leaders don’t tend to stay put with this same place for so long. She shares what it is that kept her at Christ all of this time.
During the pandemic, things at the LifeCenter were quite dramatic. Debbie talks about the changes they have had to undergo during this time to attract people to sign up to be donors.
There are about 750,000 people a year in the United States that have kidney failure. If we could get a transplant for every single one of those patients when they needed it, wouldn’t that really make an impact in the United States?

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.donatelife.net/nmdam/

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life, host Andi Johnson talks with Sarah Kepf to continue the series on “The Donation Process From The Lens of The OPO” where she has been taking listeners through step by step how the donation process works and all of the different departments and people involved within the Organ Procurement Organization (OPO). If you want to know more about how the gift of life comes to be through donation, tune in now!

Episode Highlights:

Andi reviews the previous speakers in this series of exploring the process of donation through the OPO- Organ Procurement Organization.
The Process begins in Donation Support services with donation coordinators as the following step. There are also the family services coordinators, organ recovery specialists, and tissue recovery technicians. Andi has interviewed people in each of these departments - if you missed it be sure to check the episode list!
Organ, eye, and tissue donation is deeply collaborative. It takes a community of hospitals and staff, transplant centers, the OPO, sometimes the coroner, and funeral homes.
Did you know that a donor can have an open casket? Andi says, “The body of a donor is treated with the utmost care and integrity.”
The Quality Assurance Department is critical to the donation chain. They ensure that the OPO is compliant in the recovery process as well as all policies are correct. They work closely with regulatory agencies to make sure that the organization is working in line with them.
Sarah Kepf introduces herself. She has been with Life Center for 11 years; She started as a tissue chart reviewer and is now the Quality Assurance Manager.
Fresh out of nursing school Sarah joined The Life Center. She shares how she journeyed through her career to where she is now.
Andi asks Sarah to talk about The Quality Department’s role in the donation value chain.
Sarah’s department works closely with auditors and surveyors from a regulatory standpoint.
There is also a safety standpoint of the Quality department; Sarah is the safety officer. If an event occurs, she is interviewing staff members or she is testing different incidents.
Sarah says they are also heavily involved in process improvement which is up and coming to ensure that the organization is running as smoothly as possible and staying up to date with any new changes.
The Quality department started with two people and they now have eight.
Sarah talks about how they continue to stay true to the mission of enhancing lives and honoring all in the very important process they follow.
Andi asks Sarah to give examples of incidents that she may have to investigate.
If an error occurs it is a chance for improvement. The other departments have an understanding of how Quality is improving work for everyone.
How can someone get involved in the quality department? Sarah shares that it is beneficial to have a medical background as well as attention to detail and ability to critically think.
Andi asks Sarah what is most challenging about her role.
Healthcare is ever-changing so Quality really has to stay on top of changes and who the changes will impact as it could be one department or could trickle down to another as well.
Sometimes people question how regulated organ donation is. Andi and Sarah discuss myths people believe. Sarah brings up how they have laws that heavily regulate everything.
If you are interested in life center career opportunities or becoming a donor, you can check at https://lifepassiton.org/

3 Key Points:

Organ, eye, and tissue donation takes a community working together. Hospitals and their staff, transplant centers, many in the OPO, coroners, and funeral homes.
The Quality Assurance department ensures that the organization remains audit ready and that they are compliant with their regulatory and government bodies. Sarah shares how they do that.
The Life Center continues to grow and flourish with their mission to enhance lives through donation while honoring those who gave. Sarah and Andi talk about how it is done in such a way that looks out for everyone.

Resources:https://aopo.org/https://lifepassiton.org/https://www.facebook.com/LifeCenterOHhttps://www.youtube.com/user/LifeCenterOH

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During this episode of This Thing Called Life, host Andi Johnson speaks with Chamoda Palmore, a father to a son that was fatally injured in a motorcycle accident on his way to football practice in 2014. As a man, Chamoda knows that he might grieve differently than other people, but as someone going through his own journey of grief, he knows it’s important to find a way to grieve.

Episode Highlights:

Chamoda is a business owner that lost his son, Chamoda Kennedy-Palmore, to a motorcycle accident.
Throughout his journey of grief, Chamoda has experienced a rollercoaster of emotions.
It takes a lot of patience to get through the grieving process.
Chamoda has leaned heavily on his faith, friends, family, and various support organizations.
After meeting a woman who lost 2 children to a car crash, Chamoda was able to put things into perspective.
Even 6 years later, it doesn’t feel real to Chamoda, it feels like someone is missing.
Chamoda found it difficult to engage with other people, staying away from family functions and gatherings.
If you have other children or people that depend on you, it’s important to find some level of normalcy again.
Giving back through Chamoda’s Candy Cafe and Chamoda’s foundation has helped Chamoda heal.
Right now more than ever, people all over the world need support and care from anyone that can give it.
Chamoda’s 2 daughters and wife have all dealt with Chamoda’s death in different ways.
When tragedy first strikes, it’s like the rainy season in April and it moistens up your heart to bloom in May.
It’s important to plant the right things, love, support, passion, during the initial phase of grieving.
Chamoda understood that it was a slippery slope to turn to a path of destructive behavior if grief is not handled correctly.
For about 2 months after his son died, Chamoda couldn’t open the bible.
Chamoda is comforted by knowing that as a tissue donor, Chamoda’s death was able to help many people.
The local driver’s ed has incorporated Chamoda’s organ and tissue donation into its program.
It’s hard for men to speak about their grief, but it’s important to find someone to talk to about their feelings.
Men feel that they have to be so strong for the family but that doesn’t mean they can’t let it out somewhere else.
Around the holidays, it’s important to find different ways to express your grief.
Chamoda helped more than 30 people as a tissue and cornea donor.
When his son died, Chamoda felt like an infant that just needed to be held.
Have patience with those in your life that has lost someone; eventually, it will slow down, but for now, listen.

3 Key Points:

Chamoda likens his journey of grief to that of a baby’s journey of learning to walk. Right now, he is holding onto the banister as he guides his feet.
Giving back to other people out there that are hurting can help someone heal and get through their own grief.
Chamoda’s organ and tissue donation, now a part of their local driver’s ed video, has helped encourage others to become donors.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Chamoda’s Candy Cafe (website, Facebook)
What's Your Grief
Grief In Common
Refuge In Grief
The Center for Loss

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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Episode Highlights:

Aimee Cordrey is married to Darren Cordray. They have been married for over 20 years and been together for a little bit longer than that. They met in college, and they have two sons Richard, a 19 year old, and Nick, who would be 17, but he is forever 15. Both of them are athletes, very different yet very similar in their interests and just how they approach life.
In the middle of the pandemic Aimee and her family had been quarantined like everyone else for quite some time. School had just ended. Nick had just finished freshman year of high school and it was Memorial Day. Nick and Aimee went shopping that day to get some hamburgers and some vegetables and different things to grill out.
Nick hadn't seen his friends because of quarantine. Aimee allowed him to go meet some of his friends at a local ice cream shop that was within walking distance of their house because one of his best friends was leaving for vacation the next day and she was going to be gone for two weeks.
Nick decided to take a shower at night. All of a sudden Aimee heard the water go on and then they heard some really heavy, intense breathing, they were shocked. They thought it was our other son Richard, playing video games. She went to the basement, but it was not Richard, it was Nick.
Nick loved life and he approached everything with this attitude of – "I can do it." His family really believed he was going to be okay and pull through.
Aimee explains how and when they went about the conversation of Nick being an orgn donor. The hospital staff acknowledged all the protocols that they have in place, and they contacted Life Center.
Nick had not yet been able to get his temps. He would have been eligible for them. The month that everything happened, he had actually registered as an organ donor.
The letter that Aimee received said that Nick saved five people with seven organs, and probably impacted 40 to 50 others. The only thing Nick was unable to donate was his intestines, which they initially believed he was going to be able to do until they started doing the surgery.
Aimee shares her thoughts on what it all meant to her, Darren and Richard to know that Nick helped so many people by donating his organs.
“Learning that sometimes bad things happen to good people and learning to be ok with that and it is not even being ok with it, it's just accepting it- that is one piece of it. The donation piece brings that pride.” -Aimee
Aimee thinks that being able to talk about organ donation enables her to talk about Nick.
Andi feels like Aimee is doing so much just to help people understand the magnitude of the donation and its impact.
Andi asks Aimee about the project that she is working on at his school in his honor.
One of Nick's friends, Grayson, started a change.org petition. He wanted to have the school board name the soccer field after Nick.
There isn't a lesson here when it comes to losing a son. The only lesson that Aimee has learned is that bad things happen to good people, and she has learned that when you encounter a loss like this you integrate it into your life, you don't overcome it.
Grief is something that has stages and some stages may be re-visited at times. It is ongoing.
Nick loved everything. All of the time he was researching, reading to understand deeply, caring deeply, everything was with passion, everything was with full intent. He didn't do anything without truly caring about it. If he was gonna do it, he was doing it 100% all in and that's what Nick was, and he is.

3 Key Points:

Nick had a brain aneurysm that his family didn't know about. Nick did not complain of a headache that day. He didn't have any signs of anything that day. He had an amazing day, and it was that quick. They called 911. They were very quick, they took him to the hospital, his aneurysm ruptured three times. At the hospital, they did surgery on him and for 9 days his family thought Nick was going to make it.
Aimee tells the listeners how Nick was able to help other people through the gift of life that he was able to give.
Each one of us is different. Unique as people, Aimee thinks everyone's grief is very unique. She needed to be around other people. Aimee thinks that the donor family council is amazing. They are a source of strength. They are unshakable.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life, Andi will speak with Mr. Tony Burdette, who will discuss his involvement with organ donation. Tony's life was saved in August 2019 via a liver transplant. His father passed down a genetic disease called alpha-1 antitrypsin deficiency to him. He was diagnosed in the early 1990s, with symptoms including exhaustion and low platelet counts. Tune in for his great story.

Episode Highlights:

Tony had never given much thought to organ donation, but sometimes it takes a crisis to bring it to the forefront of your mind.
Tony's father underwent a liver transplant in 1997, but it was a painful experience since, after 14 hours, the surgeons came out and told them that he probably wouldn't survive. But, happily, doctors were able to get it to work sufficiently, and he received a second transplant two days later.
The hereditary condition does not impact everyone. They can live perfectly well without it. However, something triggered Tony's liver in early 2019, and his liver began to fail rapidly.
Tony had all the excess fluid in his body, common for people with liver failure. So, he had to have the procedure called a thoracentesis, and over seven months, he had to have that procedure done 52 times.
Tony couldn’t keep having these procedures every other day. So at the University of Cincinnati Medical Center for evaluation at the Transplant clinic, he was put on the list rather quickly around the beginning of May and received his liver on August 3rd, 2019.
It was a quick illness for Tony and a painful one, but thankfully his transplant and the surgery were very successful. He was discharged from the hospital just five days later without any complications.
Tony has a brother. He obviously has the deficiency, but he hasn’t had any symptoms so far. He is under the care of a GI, and they are keeping close tabs on him.
Both of Tony’s children have a deficiency as well, and they are under the care of the liver transplant team at children just out of precaution. The doctors check them every year and have liver scans done to keep a check on them and make sure everything is ok.
About three weeks after Tony’s transplant, he received two letters in the mail from elementary-age girls who wrote him a letter and said that they just wanted to let him know that he had received their mother’s liver.
Tony has studied music at the University of Cincinnati College-Conservatory, one of the greatest in the world, and it is such an honor to be accepted there.
Tony is the artistic director of an organization called Aviva Voices Choral Organization. It’s an organization that he founded, and it provides high-quality community choirs for children, youth, and adults.
The program’s cornerstone is the brand new work for a course and orchestra called the breath of life, and it was written actually before the pandemic.
Often, being open with what you are going through can impact other people. When Tony was going through all this, we posted periodically about this on social media as encouragement for people.
Tony encourages people to not be afraid no matter what you are going through in life. Be open, share, and find people that you can talk to and know that your story can impact people.

3 Key Points:

Alpha-1 antitrypsin is an enzyme and it is created in the liver. The deficiency is that the enzyme gets trapped in the liver and creates a deficiency in the lungs. But when that enzyme gets trapped in the liver, it can cause liver damage.
Tony has spent his whole career serving as a professional musician, singing professionally with opera and orchestras around the country, and doing a lot of conducting with choirs and teaching singing.
Tony’s concert’s date is Saturday, April 30th, the last day of the month and the last day of donating life month. The concert is taking place at Christ Church Cathedral, which is a huge, beautiful venue.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.vivavoices.net/about/
https://www.facebook.com/tony.burdette.5

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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During this episode of This Thing Called Life podcast, host Andi Johnson talks to Dr. Govil,who has been in health care for many years, specifically working in the area of kidneys and kidney health He is a professor of medicine at UC Health as well as Director of Transplant and Chief Section of Transplantation.

Episode Highlights:

Dr. Govil shares has been in this field for over 20 years and he has dedicated more than 15 years of that time to take care of patients needing kidney transplants.
Dr. Govil shares why he chose this area of medicine to practice in.
One of Dr. Govil’s first exposures as a medical resident was with a patient who had trace protein in the urine. All of them, as residents, ignored that component of lab finding and did not realize that their finding was a world-renowned figure in diabetic kidney disease.
One in six of the US population is at risk for kidney disease, and more importantly, one in 10 out of the US has some element of kidney disease or chronic kidney disease.
Dr. Govil says kidney disease is very silent. You may only have pain in the kidneys when you have physical problems like kidney stones or any cyst that is hurting you.
The only way you discover kidney disease is through the blood test and routine numbers analysis.
Diet does play a role in making kidney disease worse or stable, but a lot of that has to be done with how we manage our primary disease, which is causing kidney disease.
It is very difficult to ask one patient to stop eating salt because everything we eat around us is loaded with salt, and it is very difficult to break that cycle, says Dr. Govil.
Andi asks, “Is this kidney disease more prevalent here in America, or is it more prevalent in other parts of the world?”
There are definitely certain aspects of kidney disease that we do not understand, which means that they may have familial clustering, says Dr. Govil.
As we progress, we now can identify certain genes that make one more prone to have kidney disease, which does not mean that everyone who has it will present with it.
Andi asks about Dr. Govil’s experience specifically, “Do you see more of Caucasian patients? Do they seem to have more success in identifying living kidney donors? And if so, why do you think that is?”
When we look at the transplant or people who are receiving dialysis, 1/3 of them are African American, which means that there is definitely more propensity of any disease in this group of patients than any other group.
Dr. Govil says, “When we look at the number of people on the list compared to the people who get transplanted and then compare it to the number of people who are on dialysis, they just don't add up completely.”
Dr. Govil clarifies the myth that kidney donation can harm a donor in the short run and in the long term.
As per Dr. Govil, education is the key, and that is what he feels when he goes to multiple outreach clinics in the tri-state area, and he realizes a lot of these barriers are related to misinformation.
Dr. Govil gives recommendations for keeping your kidneys healthy.
Don't count on kidney pain as one of the symptoms because kidney pain really is not a symptom of kidney disease -that is just a mechanical problem, which could be because of a stone in the kidney or some cyst.
Diseases are frightening in many aspects; These are things that could be prevented if we took the proper steps and proactively saw our doctors.
Changes in organ allocation will generally increase some of the volume, but it will definitely increase the volume for certain centers to do more transplants.
A donor that may have hepatitis is now able to give organs to the patient in need of a transplant, and then that can be treated, says Andi.
The dialysis survival is really dismal over a period of time. So, a 10-year survival on dialysis is around 10%.

3 Key Points:

Dr. Govil explains what leads someone to having kidney failure. We have to realize that the kidneys are affected by a lot of things that happen in our body, whether it be high blood pressure, diabetes, or any other changes that may be related to some problems happening at the level of the kidney itself.
Kidney disease means we are in a tier of the kidney, which is a very silent process and so essentially, your kidneys really do not have to hurt and actually they do not hurt at all when you fail your kidneys over a period of time.
If we have a healthy, balanced diet to stabilize our diabetes and high blood pressure, it will indirectly help keep our kidneys happy and healthy.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.donatelife.net/nmdam/

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life, host Andi Johnson is talking with Sandra Wright. She has a special testimony to share. The goal of this podcast is to help listeners understand what organ donation is and isn’t and how it truly impacts others. February is Black History Month and American Heart Month. Sandra is a transplant survivor and the founder of The Greater Cincinnati African American Heart Association. Tune in now for her special story!

Episode Highlights:

Sandra is a heart transplant recipient. In 2014, she contracted a virus that was never named but lingered and left her with a side effect of shortness of breath. Later that year, she was on vacation when it all kind of climaxed.
She shares her story of going to the hospital and the dire state she was in. She was told she had Heart Failure but she went into immediate denial. She cautions the listeners against denial because then you don’t do what you need to do.
There will be a book coming out to tell Sandra’s full story in the future to help many.
Christ Hospital in Cincinnati set her on the path of her life being saved.
Prior to Sandra’s visit at Christ Hospital, every two months she would go for maintenance care to control the edema but other than that she wouldn’t take the medicine or change her lifestyle until 2017 when her heart would no longer serve her.
Sandra shares how her faith got her through the scary time of being in need of a heart.
The Greater Cincinnati African American Heart Association was created by Sandra to help provide others support, to create a community where they feel respected, heard, and understood. She shares about the services and her vision for down the road.
For those who hear they have CFH, Congestive Heart Failure, that is all they are going to think about and can come unexpectedly and at vulnerable times.
Andi shares how the healthcare system is not accessible for all and how detrimental it is for many, especially people of color.
Sandra shares a sad story of talking with her granddaughter who said she ‘hated being black’ and how that ideology fuels her heart and mission to create an environment of support for the African American Community.
Andi asks Sandra to share any encouraging thing she is experiencing or new strength she sees in the community.
Andi reminds listeners that today, 106,494 people are waiting for life saving organ transplants and more than 3,400 need heart transplants. Can you think about your decision to be a donor and save a life?

3 Key Points:

Sandra shares a shocking story of her journey with heart failure and the danger of being in denial of the diagnosis.
The African American community is at the highest risk and has the greatest fatality which led Sandra to create The Greater Cincinnati African American Heart Association as a community of support.
Sandra shares that living 65 years in this world, we are beginning to understand the necessity of working together and supporting each other and that is encouraging and exciting.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Sandra Wright |swright.gcaaha@gmail.com |513-484-4772
The Greater Cincinnati African American Heart Association

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life, Andi speaks with Stephanie Gastaldo. This is our 6th episode in our series of exploring how the donation process works from the OPO lens.. Stephanie talks about her role in the department as a connector to the hospital partners and just keeping the education going and the lines of communication open. Tune in now!

Episode Highlights:

The purpose of the series is twofold; Andi wants to explain more about the OPOs role in functionality so that you can understand how the gifts of organ, eye and tissue donation come to be as well as just understand everything that goes into this life saving and life healing process.
Stephanie talks about her role at the Life Center. She also talks about how her brother was an organ and tissue donor.
Stephanie talks about her work at the Life Center as a Hospital Services Coordinator. She says that the best part of her job is to tell her elder brother's story and make people aware of organ, eye and tissue donation.
Stephanie's role is to make sure she is first and foremost and building relationships with the teams that includes physicians, bedside nurses, chaplain respiratory therapist, a hospital unit coordinator, patient care support staff to make sure that she is building these relationships, that they know who is life center, why we need to work together specifically educating that it's a center for Medicare and Medicaid services requirement.
Daily at 7:00 AM Stephanie takes a call with all the coordinators and the staff they connect to discuss what's going on, what the day is going to look like as it's always changing.
Apart from her day-to-day duties Stephanie also focuses on building education and scheduling events.
Stephanie talks about the challenges faced by her department during the pandemic and how they coped up in the entire situation.
As a Hospital Unit Coordinator, you can't be super reactionary to things, you will have to be a hustler and good responder to challenging situations, says Stephanie.
As a Hospital Unit Coordinator, you have to have really good skills of just listening and responding to what people are telling you and then being able to find the important information from what they are telling you.
The biggest challenge of Stephanie's job is to slow down amidst all the hustle-bustle around her.
One of Stephanie's ways to reset her emotional dial is to hear a donor story or a donor family story or to hear the recipient's stories.
Stephanie talks about her biggest challenge in community relations.
Not everyone has this same understanding or experience or level of support of donation that others may have made, says Andi.
Stephanie's goal every day is just to make sure that her hospital staff is aware of the process to ultimately give these families what they deserve, which is the most respectful supportive braces through donation.

3 Key Points:

Stephanie talks about her life altering experience post losing two of her brothers.
Stephanie shares the importance of relationship building and how she trains and motivates the staff and educates them so that they become ready to deal with patients and their families.
Stephanie shares the skill sets and characteristics that are required to succeed as a Hospital Unit Coordinator.

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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Today on This Thing Called Life, Andi leads the discussion for the the 5th episode of the special series- The Donation Process From the Lens of the OPO (Organ Procurement Organization). In this episode, Andi talks with Michele Meyers, a tissue recovery tech, to discuss the tissue recovery side of this process. If you have missed the previous episode in this series, please go back to follow along the fascinating journey of organ donation with its intricate details and required collaboration. Tune in now to catch the new part of this series.

Episode Highlights:

With this series of podcast, Andi has been explaining more about OPO roles and functionality so that you can know how the gift of organ and eye tissue donation come to be as well as the intricacies of this lifesaving and life healing process.
Michele was a surgical tech and she decided that she wanted to do something else, but she still wanted to kind of stay in the surgery field. There was somebody who mentioned tissue recovery tech and she thought that was something that she could do.
Michele enjoys the feeling of knowing that she is helping change and save someone's life with tissue that they recover.
Michele works in three-man teams. They have two tissue recovery techs and a team lead. The team lead role is to receive the donor, do the paperwork, and the physical assessments.
The donor age creates a lot of challenges to work with, especially if it is a child as a donor, but we have a really supportive team, says Michelle.
There have been many times when Michelle came across people who didn't even know about tissue recovery.
The first thing to start as tissue recovery tech, you have to have a sense of humor because it gets you through a lot of things, Michelle.
Michelle has never worked at a company where the CEO knows everybody's name.

3 Key Points:

Michele talks about what it looks like when the tissue recovery process happens.
What are the skills and traits one needs to have in order to become a tissue recovery tech?
In addition to what Michelle does as a tissue recovery technician, she also volunteers her time to help on the community education side.

Resources Mentioned:

https://aopo.org/

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life, host Andi talks about the donation process from the lens of the OPO, where they explore how the donation process unfolds within the Organ Procurement Organization. OPO is central for the multi-faceted process that is donation and transplantation. Today's guest is Ethan Fuqua who is an organ recovery specialist at Life Center. Tune in to hear more about the next steps in the process!

Episode Highlights:

Before working at Life Center Ethan was employed as an EPIC analyst with Mercy Health and then before that he was a nurse's aide at Cincinnati Children's Hospital Medical Center.
The family service coordinator works with the family to walk them through the process of their loved one being a donor and then there is a transition where the ORS becomes a part of this process, says Andi.
Once we have consent for donation, we begin an allocation process and that process is facilitated by the donation coordinators, says Ethan.
ORS arrives at the OR before the patient comes to the OR. ORS arrives at OR to set-up equipment, to talk with staff about what they can expect, what they will need during the procedure and similar things.
Once the donor is in the OR, we help with getting them onto the OR table, prepping, draping, and the procedure begins when our surgeon has formed a timeout, says Ethan.
Ethan always thinks that someone is going to have a significant increase in their quality of life because of what he is doing today.
Every department within the life center is working together, all integral and all working towards the same goal for the same mission, and he thinks that's what makes Life Center so good.
It is kind of surprising for a lot of people when they hear that we send kidneys on commercial flights, says Ethan.
Ethan has such a positive attitude, and he is super professional and very easygoing. Ethan talks about the most challenging part of his role as an ORS.
While ORS are performing a lifesaving mission, they are also dealing with death and the emotional parts.
Ethan doesn't know any OPO that absolutely requires a person to complete a specific degree program in order to be an Organ Preservationist or ORS.
When you are working with the surgeons, you can't be timid. You got to know what you are talking about, where you are and what you're doing, says Ethan.
Everybody has their role in the OR and we all have to be on point because there is no room for not knowing what you're doing, says Ethan.
Ethan wanted a job that allowed him to make an impact that was positive on the world because as per him the goal in life should be to leave the world a little bit better than what we came into it as.
In transplant you are intersecting so many different disciplines within science. There is just so much to learn in this field and so much to take in if you are someone who likes lifelong learning, says Ethan.
It is extremely important that everybody become registered as a donor because please consider the gift that you can give is literally life. It is the ability for somebody else to live, says Ethan.

3 Key Points:

A person in the role of ORS has the ability to multitask and understand the various specific steps that have to happen because of rescuing the organ. “There really is not much room for error”, says Andi.
Through a team collaborative effort, we can really get a lot of work done and all the ORS have a great collaborative relationship with each other and all other teams, says Ethan.
Leadership recognizes that this is heavy work, and we need to be able to speak to people who can help us process hard feelings because sometimes debriefing with colleagues isn't enough, says Ethan.

Resources Mentioned:

https://aopo.org/

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

https://www.youtube.com/user/LifeCenterOH

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Resources:

https://lifepassiton.org/
https://www.facebook.com/LifeCenterOH
Life Center Phone # 513-558-5555

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During this episode of This Thing Called Life, host Andi Johnson continues the series on the full donation process from beginning to end; If you have missed the previous episodes in this series, you are encouraged to go back and listen to get the full picture. Today Andi speaks with Jen Malof, who is a Family Services Coordinator. Tune in.

Episode Highlights:

Andi reviews the speakers in this series and the collaborative process of the organ donation process.
Jen Malof has been with Life Center for just over a year. Andi explains how the Family Services Coordinators are the third critical piece in the donation cycle.
What does a Family Services Coordinator do to facilitate donation?
Andi asks Jen what led her into this field.
Jen was looking to do something that felt larger than myself and helped other people, and working on a team.
What is the training and background needed for someone who is a Family Services Coordinator?
Jen shares about the variety of backgrounds that make up the current team they have.
Jen explains how they set realistic expectations in the interview process and also shares that it is a very supportive culture.
Family Service Coordinators are on call a certain number of times. Jen explains how it works.
Andi and Jen discuss the unique dynamic of the role of Family Service Coordinator.
It all begins with the family. You are a nurturer as a Family Service Coordinator. Jen explains the importance of the team members noting and setting up the next one who will carry on with the family in a successful way.
Andi asks Jen what she considers to be the most challenging part of her role.
There are office responsibilities, trainings, and on call for the position.
Donation actually brings meaning and something positive to the donor families; In a way it brings some peace, comfort, and benefit to them. Jen explains how they see and experience that from the up close relationship with the families.
There is extreme caution and care with analyzing the health of a potential gift and never move forward unless it is healthy enough for recovery. In rare cases, a dcotor can be in surgery and realize the organ is not viable. Jen explains the heartbreak and challenge that is.
Organ donors all have after care no matter what the circumstance.
Andi asks Jen what is most rewarding about her job and Jen says she doesn’t have enough time to share all of the ways.
What is the honor walk in honor of the donor?
There are other memory making support services; Jen shares about them.
What is the skill set of a Family Service Coordinator? There is a lot of information to communicate in real time and a lot of non-verbal skills as well.
Families have to receive a lot of stats and information and there is a lot of paperwork and recording that has to take place also.
Jen shares that she is a long time breast cancer survivor and how her life experiences help her relate to the families she works with.
For more information, check out https://aopo.org/

3 Key Points:

The organ donation process begins with a person who designated themselves to be a donor or their family who made the decision for that individual to be a donor.This life saving and life-changing gift all begins with that and is a collaborative process from start to finish.
Family Service Coordinators fulfill the role of being the main point of contact for that family whose loved one has either chosen to be a donor or if that family makes that decision to move ahead with donation: to support them , to educate them, to answer their questions, adn to be with them throughout the entire process.
Donation actually brings meaning and something positive to the donor families; In a way it brings some peace, comfort, and benefit to them. Jen explains how they see and experience that from the up close relationship with the families.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
https://aopo.org/

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation. In this episode we talk about the renewal symbolized by the month of June, Pride month and Mens health month.

Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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This episode of TTCL Community Heros will feature an interview with Julie Luebbers on La Mega. The monthly interview will provide the Spanish Community with information about Life Center and the incredible miracles that happen with Organ, Eye, and Tissue Donation.

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During this episode of This Thing Called Life, host Andi Johnson continues the series on the donation process from the OPO (Organ Procurement Organization) lens. In the last episode we heard from Erica Randall of Donation Support Services. This week, Andi is speaking with Christenne Wilson, a long time staff member at Life Center; She is the Senior Donation Coordinator. She meets family in very difficult times. Tune in to hear about her experiences as it relates to the important process of organ donation.

Episode Highlights:

Many people believe that organ, eye, and tissue donation is just a service of the hospital but Andi shares how it is much bigger than that and requires the collaboration of many.
Christenne has been with the Life Center for over 20 years and is currently the Senior Donation Coordinator. She explains her role as one of the individuals who handles the evaluation, medical management, organ placement, and logistics of the operating room for an organ donation.
Andi asks Christenne to share what kind of training and background is required to do work like she does.
Christenne shares her personal experience with organ donation about her sister who had epilepsy and cerebral palsy.
What does brain dead mean? Christenne shares facts that listeners may not be aware of. She explains the difference between that and vegetative state or coma.
Organ donation and the education around it has grown significantly over the years.
Christenne explains her connection to the Life Center and how meaningful it has been to her on several levels.
Christenne put herself to paraemedic school and applied as an organ coordinator.
Andi asks Christenne how she prepares for her day and meeting with families in desperate times.
What happens at the bedside to evaluate potential organ donation?
Christenne shares that some cases have changed her forever and how it has been a blessing.
What goes into supporting the families who are in contact with ?
Andi talks about how COVID caused many people to reflect and seek more meaningful jobs.
Andi asks Christenne to share what a typical work day looks like for a donation coordinator.
Logistics and time frames are very important in the process; Christenne explains.
A lot of communication is required for this job because of the many pieces that must come together.
An average case lasts about 72 hours so that the right thing is accomplished with the donor.
Christenne talks about when organ gifts are placed in other locations.
The donation coordinators are very passionate about giving each individual the best preservation options.
Have you thought about registering to be a donor? Find out more at https://lifepassiton.org/

3 Key Points

Christenne shares her personal experience with organ donation when her sister passed away and saved several other lives.
Organ donation happens through the collaboration of many. Andi and Christenne talk through the organ coordinator role and the piece it is in the overall process.
Emotional taxation is high in the role that Christenne has. She talks about the challenges, blessings, and how she perseveres through.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
https://aopo.org/

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation. Resources: https://www.donatelife.net/ndlm/ https://lifepassiton.org/ 513-558-5555

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During this episode of This Thing Called Life, host Andi Johnson speaks with Courtney Schapier, a liver donor, the sister of a liver recipient, and one of the Organ Donation Coordinators at LifeCenter. Upon learning about her brother’s need for a liver, Courtney made the incredibly brave decision to make a difference. Her story is simply amazing!

Episode Highlights:

Courtney has been an Organ Donation Coordinator at LifeCenter for the past 6-7 years.
Donation Coordinators handle the medical management and evaluation for organ donors.
Amongst other responsibilities, Courtney plays a large part in matching organs to donors.
Sometimes, organ donation acts as the silver lining to families that are going through an incredibly hard time.
Donation coordination is a 24-hour job because donation does not run on a 9-5 schedule.
From the time that a case opens to the time it closes, Courtney is on the clock for 36 hours.
Courtney uses CrossFit and a great support system as outlets for the high stress levels of this job.
With such a high-stress job, it’s no surprise that there is a high level of turnover.
There have been times where the stress of the job has made Courtney question her desire to be here.
COVID brought everything to a screeching halt when it first exploded back in March.
The sheer amount of unknown information has made the ongoing global pandemic that much scarier.
Things have finally begun to get back to normal, meaning more lives are being saved via organ donation.
In 2016, Courtney’s brother discovered a huge mass on his liver that required a transplant.
Unfortunately, Courtney lost her father when she was only 2 months old, so her brother acted as a father to her.
Courtney was informed that she was a donor match for her brother while supporting a family that was pulling life-support.
The weight of the situation started to feel heavy when Courtney sat on the pre-op table.
Sitting outside the OR doors on the pre-op table, Courtney was rolled back for surgery after only 20 or 30 minutes.
There were a handful of signs that something was wrong with Courtney’s brother’s liver long before the doctors caught it.
After everything was said and done, it took a 10-hour procedure for Courtney to donate over half of her liver.
The first thing that Courtney can remember is getting sick immediately after surgery.
Courtney finally got to see her brother when she was transferred to the ICU.
It was a complete shift in lifestyle for Courtney from the moment that she found out she was a donor match for her brother.
Finding living liver donors is more rare than finding living kidney donors.
Both Courtney and her brother fully recovered and are as healthy as they can be today.
TX Jet was kind enough to donate its services to fly Courtney and her family out for surgery.
After her donation, Courtney was sure that she was at the right job at LifeCenter.
Courtney was comforted by the knowledge that everything in her life made her the perfect donor for her brother.
This year, Courtney is focusing on being more present when she is with loved ones.
The amazing thing about donation and transplantation is the opportunity to potentially save a life.

3 Key Points:

Organ Donation Coordinators manage everything from the moment a donor decides to donate, to the time that the organ is sent to its recipient.
It takes a very special person to not only manage the responsibilities of being a Donation Coordinator, but also the rollercoaster of emotions that come with the job.
Courtney donated just over 50% of her own liver, which was oversized, to begin with, to save her brother’s life.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
TX Jet (website)

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During this episode of This Thing Called Life podcast, host Andi Johnson kicks off a series about how the donation process works from the perspective of the Organ Procurement organization, which is what Life Center is. Andis guest today is a staff member of Life Center, Erica Randall. Have you ever wondered how the gifts of organ, eye, and tissue donations come to be? Tune in for the intricacies of this life-saving and life-healing process.

Episode Highlights:

The LifeCenter of Cincinnati, Ohio is 1 of 47 Organ Procurement Organizations that are under the umbrella of AOPO:The Association of Organ Procurement Organizations. There are about 56 in total.
The donation process is collaborative; Andi shares about the organizations that are involved and how they are interconnected.
Today’s guest, Erica Randall, shares her role in donation support services, or DSS.
What exactly is DSS and what do they do?
Erica explains guidelines and how they reach out to families.
What does it take to work in the DSS?
Andi asks Erica to share what motivates her to go into the DSS everyday and do her work especially when she is meeting with families in tough circumstances who have often unexpectedly lost a loved one.
There is a misconception that to be a donor, you have to be in perfect health. That is not the case. Andi asks Erica to explain.
Erica’s mother-in-law was diagnosed with cancer and asked if she could still be a donor. In her case, she was and she was able to give the gift of restoring eyesight for two people when she passed. Erica shares how it changed the perspective for her family.
Andi asks Erica to share with honesty what she finds most challenging about her role.
There is a major ripple effect in the donation process for all of the families.
The DSS is open 24/7, 365 days a year. Erica explains the shifts and needs.
In 2006, Erica’s cousin was killed in a car accident by a drunk driver. He became an organ and tissue donor. That is the first time she had ever heard of organ and tissue donation and the first time she had an experience with LifeCenter.
In nursing school, for her senior capstone project, she chose to work with Life Center and sent up a table at the Batavia, Ohio BMV where they were educating people about donation. She knew she wanted to work for LifeCenter at that time.
Andi shares about how Erica’s cousin’s family has done so much in the community to fuel the education efforts that LifeCenter does.
Interested in positions at LifeCenter? Visit https://lifepassiton.org/who-we-are/careers/
Erica speaks from experience and explains how it is so rewarding to work for LifeCenter and be a part of the positive difference.
Andi talks about the after-care department that follows families for 18 months after the death of a loved one. In a coming episode, there will be more information about it and someone from that department as well as the in-between pieces with coordinators.
There are 106,065 people who are waiting for life-saving organ transplants and about 90,000 of those people need kidney transplants. Your decision to be a donor matters. For more information visit https://lifepassiton.org

3 Key Points:

The Donation Support Services (DSS) are at the core of organizing organ, eye, and tissue donation through the stages. They give their all to the families providing comfort and remaining professional while collaborating with hospitals, coroners, etc.
Erica shares what motivates her to work in the DSS and the impact that the work has.
Andi and Erica discuss the opportunity in donation and how it provides healing and hope for so many involved on all sides.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
https://aopo.org/

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During this episode of This Thing Called Life podcast, we are re-airing an incredible interview with Dr Shimul Shah, the head of the Liver Transplant Program at UC Health. Dr. Shah and his team are utilizing ever-evolving medical technologies to help all those facing the liver-transplant process. He knows that it is vitally important to try to understand what the patient is going through so that they can best be served with their health problems. Tune in.

Episode Highlights:

Dr. Shah runs one of the largest liver transplant programs in the country to help as many people as possible.
In his 9th year with UC Health, Dr. Shah and his team have done over 750 liver transplants.
COVID has presented some challenges in the world of liver transplantations because of its immunosuppressed patients.
There are a number of things that must be considered with the introduction of a global pandemic before conducting transplants.
Though they didn’t understand what was happening around the world, Dr. Shah’s team went ahead with multiple transplants.
Many healthcare professionals had to come together when making protocols for transplantations during COVID.
There has been a lot of success with telehealth and that proved useful for the Liver Transplant Team.
After protocols were put in place, liver transplants were resumed at the same rate as before.
Programs all over the country were forced to shut their doors for a small period of time while they figured out how to get ahead of COVID.
There are more donors in the Midwest and South than there are on the East Coast and West Coast.
A national policy of “sickest first” has allowed organs to be shared throughout a wider geographical region.
Clinical trials are underway for pumps that pump the livers continuously during travel.
The pump presents an opportunity to repair the damage that has been done to organs before transplants are conducted.
Because of technology, more organs are being used today that would have never been used 5-10 years ago.
Dr. Shah uses complete transparency when he gives his patients past results of treatment options.
Patients can donate their livers at much older ages because liver cells constantly repair themselves.
Dr. Shah originally wanted to be a liver and pancreas cancer expert, but a fellowship in liver transplant shifted his path if only slightly.
Patients know when the care that a doctor shows is authentic and that they are all in on the process.
It’s important to talk to patients as people and try to understand what they are going through.
Dr. Shah helped lead the Living Liver Donor Program that launched earlier this year.
New patients find out how sick they actually are and what all their options are before moving forward.
Dr. Shah and his team do everything they can to help people get better without a transplant.
During his free time, Dr. Shah enjoys playing tennis, basketball, and taking afternoon naps.
COVID has made Dr. Shah’s family’s favorite activities, eating out and traveling, a little tricky.

3 Key Points:

People with compromised immune systems are more susceptible to COVID-19, thus bringing a learning curve to those in the liver transplant field.
Transplant systems all over the country were forced to shut down their programs when COVID first hit, but have since been able to resume transplants after implementing protocols.
Patients with an extensive medical history have benefited greatly from advancements in technology due to the larger amount of organs that are now available.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Dr. Shimul Shah (website)
UC Health | Liver Transplant Program
In Shock - (Book)
Dewey’s Pizza

In Shock: My Journey from Death to Recovery and the Redemptive Power of Hope

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life, host Andi is speaking with Chastity Williams. She will tell her life story of how she ignored her high blood pressure problem and ended up on dialysis and the difficulties that led to a kidney transplant. Tune in now to hear her story.

Episode Highlights:

Andi shines light on the truth about donations. There is no age limit or medical conditions that prevent you from registering to be a donor or having the potential to be a donor. Even if you have been cancer-free for five years and have not received treatment during those five years, you could be a donor. Even if you have hepatitis, you could still be a donor. People who are into their 80s and 90s have been donors and have given the healing gifts of tissue and cornea.
Even if you have active cancer, you can be a cornea donor. Andi encourages the listeners to renew and not remove yourself from the registry. If you say yes to donation, this is your opportunity to bless others when you have passed away; You can bless them as a donor.
Chastity shares about her high blood pressure and how the doctor could not let her leave because it was so high; He ended up calling an ambulance and took her to the hospital.
Chastity was young, 20 or 21 years old. She was always told that blood pressure affected older people, people who didn't eat right and people who were overweight and she didn’t fit any of those descriptions.
Chastity has the habit of googling things and sometimes Google is very helpful. It told her about the White Coat syndrome.
Andi explains what a White Coat syndrome is. It might be the feeling of anxiety that someone gets while visiting the doctor.
Chastity's mother and father passed away when she was three years old. Her grandmother raised her and at the time when she got Chastity, she was pretty old.
On top of high blood pressure, she developed an allergy that they couldn't figure out where it came from. They said it could be stress induced hives.
Chastity wasn't consistent enough taking her medicines. One time she went to the emergency room, and they ran some tests, and they said, your kidneys look like they are starting to suffer.
Every time Chastity went to a doctor’s appointment, she ended up being hospitalized.
Chastity's blood pressure reached 180/139. So, the doctors pumped her with all the medicine. It was then that she realized it was her new home till January as her baby was due then.
Her baby was born on November 25th and he weighed 2 pounds and 14 ounces. He is Chastity's miracle son. Today he's 16 years old. He's doing fine. He had nothing wrong with him.
Chastity started going to the doctor regularly and they just couldn't figure out why she was walking around every day with high blood pressure. She used to be on at least anywhere between 8 and 10 blood pressure pills twice a day. Every time she would go to the hospital, they would say that they had never seen somebody on so many pills who still had hypertensive episodes from time to time, and she ended up on dialysis.
The dialysis made her look at life so much differently. That was when she just sat down and realized that she had been running at full speed for so long, and now she had slowed down and evaluated life.
Andi and Chasity discuss when it came time that she needed a kidney, how she asked people in her circles about donation, and who became her ultimate donor.
For Chastity the first-week post-transplant was absolutely great. But after some time, her health deteriorated. She shares about the struggles and treatments.
Chastity gives her insights into the patients who are kind of following the same pathway of ignoring some signs and some doctor's orders.

3 Key Points:

Chastity shares how even though her blood pressure was high why she waited a year to go to the hospital.
When Chastity used to work at a hospital, she used to tell her patients not to leave the room if they still had questions and to make sure the doctor answered those questions.
Chastity was one of the people who thought if you get a transplant, you get better. But that didn't happen for her. She shares the journey and importance of taking care of your health and the role that organ donation has.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://cerebral.com/
http://nomi.org/

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation. In this episode we talk to Lincoln Ware from Radio One about organ donation and encourage older Americans to renew, don’t remove your name from being a donor because people of all ages can donate organs and tissues to those in need.

Resources

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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Episode Highlights:

Aimee Cordrey is married to Darren Cordray. They have been married for over 20 years and been together for a little bit longer than that. They met in college, and they have two sons Richard, a 19 year old, and Nick, who would be 17, but he is forever 15. Both of them are athletes, very different yet very similar in their interests and just how they approach life.
In the middle of the pandemic Aimee and her family had been quarantined like everyone else for quite some time. School had just ended. Nick had just finished freshman year of high school and it was Memorial Day. Nick and Aimee went shopping that day to get some hamburgers and some vegetables and different things to grill out.
Nick hadn't seen his friends because of quarantine. Aimee allowed him to go meet some of his friends at a local ice cream shop that was within walking distance of their house because one of his best friends was leaving for vacation the next day and she was going to be gone for two weeks.
Nick decided to take a shower at night. All of a sudden Aimee heard the water go on and then they heard some really heavy, intense breathing, they were shocked. They thought it was our other son Richard, playing video games. She went to the basement, but it was not Richard, it was Nick.
Nick loved life and he approached everything with this attitude of – "I can do it." His family really believed he was going to be okay and pull through.
Aimee explains how and when they went about the conversation of Nick being an orgn donor. The hospital staff acknowledged all the protocols that they have in place, and they contacted Life Center.
Nick had not yet been able to get his temps. He would have been eligible for them. The month that everything happened, he had actually registered as an organ donor.
The letter that Aimee received said that Nick saved five people with seven organs, and probably impacted 40 to 50 others. The only thing Nick was unable to donate was his intestines, which they initially believed he was going to be able to do until they started doing the surgery.
Aimee shares her thoughts on what it all meant to her, Darren and Richard to know that Nick helped so many people by donating his organs.
“Learning that sometimes bad things happen to good people and learning to be ok with that and it is not even being ok with it, it's just accepting it- that is one piece of it. The donation piece brings that pride.” -Aimee
Aimee thinks that being able to talk about organ donation enables her to talk about Nick.
Andi feels like Aimee is doing so much just to help people understand the magnitude of the donation and its impact.
Andi asks Aimee about the project that she is working on at his school in his honor.
One of Nick's friends, Grayson, started a change.org petition. He wanted to have the school board name the soccer field after Nick.
There isn't a lesson here when it comes to losing a son. The only lesson that Aimee has learned is that bad things happen to good people, and she has learned that when you encounter a loss like this you integrate it into your life, you don't overcome it.
Grief is something that has stages and some stages may be re-visited at times. It is ongoing.
Nick loved everything. All of the time he was researching, reading to understand deeply, caring deeply, everything was with passion, everything was with full intent. He didn't do anything without truly caring about it. If he was gonna do it, he was doing it 100% all in and that's what Nick was, and he is.

3 Key Points:

Nick had a brain aneurysm that his family didn't know about. Nick did not complain of a headache that day. He didn't have any signs of anything that day. He had an amazing day, and it was that quick. They called 911. They were very quick, they took him to the hospital, his aneurysm ruptured three times. At the hospital, they did surgery on him and for 9 days his family thought Nick was going to make it.
Aimee tells the listeners how Nick was able to help other people through the gift of life that he was able to give.
Each one of us is different. Unique as people, Aimee thinks everyone's grief is very unique. She needed to be around other people. Aimee thinks that the donor family council is amazing. They are a source of strength. They are unshakable.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website

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Resources

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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Episode Highlights:

Tony had never given much thought to organ donation, but sometimes it takes a crisis to bring it to the forefront of your mind.
Tony's father underwent a liver transplant in 1997, but it was a painful experience since, after 14 hours, the surgeons came out and told them that he probably wouldn't survive. But, happily, doctors were able to get it to work sufficiently, and he received a second transplant two days later.
The hereditary condition does not impact everyone. They can live perfectly well without it. However, something triggered Tony's liver in early 2019, and his liver began to fail rapidly.
Tony had all the excess fluid in his body, common for people with liver failure. So, he had to have the procedure called a thoracentesis, and over seven months, he had to have that procedure done 52 times.
Tony couldn’t keep having these procedures every other day. So at the University of Cincinnati Medical Center for evaluation at the Transplant clinic, he was put on the list rather quickly around the beginning of May and received his liver on August 3rd, 2019.
It was a quick illness for Tony and a painful one, but thankfully his transplant and the surgery were very successful. He was discharged from the hospital just five days later without any complications.
Tony has a brother. He obviously has the deficiency, but he hasn’t had any symptoms so far. He is under the care of a GI, and they are keeping close tabs on him.
Both of Tony’s children have a deficiency as well, and they are under the care of the liver transplant team at children just out of precaution. The doctors check them every year and have liver scans done to keep a check on them and make sure everything is ok.
About three weeks after Tony’s transplant, he received two letters in the mail from elementary-age girls who wrote him a letter and said that they just wanted to let him know that he had received their mother’s liver.
Tony has studied music at the University of Cincinnati College-Conservatory, one of the greatest in the world, and it is such an honor to be accepted there.
Tony is the artistic director of an organization called Aviva Voices Choral Organization. It’s an organization that he founded, and it provides high-quality community choirs for children, youth, and adults.
The program’s cornerstone is the brand new work for a course and orchestra called the breath of life, and it was written actually before the pandemic.
Often, being open with what you are going through can impact other people. When Tony was going through all this, we posted periodically about this on social media as encouragement for people.
Tony encourages people to not be afraid no matter what you are going through in life. Be open, share, and find people that you can talk to and know that your story can impact people.

3 Key Points:

Alpha-1 antitrypsin is an enzyme and it is created in the liver. The deficiency is that the enzyme gets trapped in the liver and creates a deficiency in the lungs. But when that enzyme gets trapped in the liver, it can cause liver damage.
Tony has spent his whole career serving as a professional musician, singing professionally with opera and orchestras around the country, and doing a lot of conducting with choirs and teaching singing.
Tony’s concert’s date is Saturday, April 30th, the last day of the month and the last day of donating life month. The concert is taking place at Christ Church Cathedral, which is a huge, beautiful venue.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.vivavoices.net/about/
https://www.facebook.com/tony.burdette.5

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life Podcast, host Andi Johnson is going to talk to Shelly Sherman and Stephanie Jackson. They are discussing kidney health and an exciting new project that is being launched to shed light on kidney disease as well as prevention. No doctor or medical expert will kill you for your organs; In fact, no medical professional is aware of your donor status until your death is declared. Tune in for more information!

Episode Highlights:

Host Andi Johnson has a few big asks. Will you join us and be a part of this interconnected life sustaining community by registering to be an organ, eye, and tissue donor? Will you make the commitment to become more educated about living donation and championing the donation cause?
Shelly is associated with the Cincinnati, Ohito chapter of The Links, Incorporated and she served as the Health and Human Services Facet Committee chair.
The Ohio central chapter was granted an award by Baxter International for increasing the awareness of kidney health in the communities in which Shelly lives and primarily in the African American community.
What is GFR? Shelly has been working hard in the community to make sure people know where they are regarding their GFR, which lets them know how well their kidneys are functioning and what they can do to maintain kidney health.
The Links organization was founded in 1946 on the premise of friendship, and Shelly wants to uplift and elevate people by providing health information.
Stephanie and Shelly first met through collaboration with The Center For Closing the Health Gap.
Shelly had goals in mind based on the grant they received regarding the number of people that they needed to touch and the number of community partnerships that they needed to do.
Shelly and Stephaine share the experiences they have had with training sessions and connecting in the community. They hope people will continue to listen to the podcast and continue doing some things and spreading the word in their communities.
When people are ill, you can see it on their skin and eyes. You can notice the effects of kidney and liver illness on the skin and other body systems.
Garlic is great for decreasing inflammation; It has Vitamin C, Vitamin B6, and Manganese, a great alternative for your seasoning. If you want to decrease your psyllium, you can add more garlic, which is great for your heart and your kidney.
The one thing is to avoid canned and packaged chicken breast because those can contain sodium and other preservatives.
Raising awareness and making small changes goes such a long way in promoting healthier lifestyles. There is a great ripple effect too when you share information like this with those in your family and circles.

3 Key Points:

Blueberries are an important food for kidney patients. They serve as antioxidants and are very good for healing. In addition, they help your body to increase urination.
People talk about dialysis and transplant, and these are things that you want to avoid. By opting for a healthier lifestyle and changes in the food you eat, you can do that.
There are so many ways you can just move your body, and Stephanie always tells people 15 to 20 minutes is sufficient. Make sure that your body is doing something that it doesn’t do every day.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.cincinnatilinks.org/black-kare-initiative
https://www.facebook.com/CincinnatiLinks
https://www.instagram.com/cincinnatilinks/
https://www.yoursweetestlife.com/
https://www.facebook.com/yoursweetestlifewithstephaniej
https://www.instagram.com/yoursweetestlifewithstephaniej/

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Community Heroes is a special extension of This Thing Called Life’s podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation. Resources: https://www.donatelife.net/ndlm/ https://lifepassiton.org/ 513-558-5555

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On this episode of This Thing Called Life Podcast, host Andi is going to talk to Mr. Idris Gray, who will share his experience about kidney donation. Mr. Idris is extremely resilient, and he had some health challenges throughout his life, but he always maintained, “I can do it, don’t quit, push forward attitude.” Tune in now for his story.

Episode Highlights:

Idris used to play football but didn’t maintain his lifestyle. Due to poor eating habits, family history, and sedentary lifestyle at the age of 16 he was diagnosed with type 2 diabetes.
At the age of 27, something wasn’t right about Idris’s body. One day at home, coming back from the office, he collapsed on the couch. The doctor at the hospital told him that he needed to control his diabetes and get more rest because he had acute kidney failure.
The doctor told Idris that if he didn’t receive a kidney in two years, he would start dialysis, and he was right. Idris experienced other health conditions like diabetic retinopathy, which rendered him blind for three months. He was blessed to have surgery on his left eye, but his right eye is still gone.
Idris also has a diabetic condition called diabetic circles, which is a deterioration of the midfoot joining the right foot.
In July 2013, Idris received a phone call from the kidney and pancreas transplant department at UC, and they asked if he was ready for kidney transplant.
This donation and transplantation journey isn’t like a linear path. Idris explains.
Many times, the more we ignore the symptoms, the diseases grow into a bigger monster than they could have been before.
Idris’s keypoint to share is prevention over intervention because you are going to have to deal with it, but you have a chance to stop it from forming complications.
It took about a month and a half for Idris to recover from immune suppression and anti-rejection medications because those medications are extremely strong.
We live in one of the wealthiest countries in the world, and people should not have to choose what they can pay for when it comes to medications that will keep them healthy.
Creatinine is crucial in your body, created by the kidneys, and the higher the creatinine levels, the more prone that your kidney is to go through failure. Creatinine level 1,1.2, or 1.3 is a good range for kidney patients, but Idris’ level was about 3.4.
In November 2019, Idris again started experiencing the major symptoms like itching of the skin, fatigue, swelling, and he started outpatient dialysis in March 2020, in the middle of the pandemic.
There are certain blood tests you have to do, and you have to go through orientation, and there is a whole different process that you have to do just to become a candidate for another transplant.
As humans, we tend to try to put our best foot forward for people to see, and when we are candid about certain things, it gives other people strength to be candid as well.
Idris had parathyroid surgery, and many people don’t understand what parathyroids do, but it controls certain hormones in your body, including your calcium.
Idris follows the law of divine oneness too. Everything is connected to everything elsewhere, and the same feeling and belief have a corresponding effect on others and the universe around us.
Your health is wealth. If you are not feeling well or ever exhibiting any of the symptoms, please go and get tested.

3 Key Points:

People tend to ignore symptoms that they are experiencing. In Idris’s situation, he ignored it out of fear and thinking that he didn’t have time for his health.
Idris explains the process that one has to go through for a second kidney transplant.
Your health is wealth. Idris often looks at other people’s situations and says, you know what, mine is not that bad. He knows he has to move on, and be an advocate for other people.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
nkf.org

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On this episode of This Thing Called Life, Andi is going to talk to Marty and Bonnie Garneret. Bonnie is not only Marty’s wife but his kidney champion also. Marty and his wife have been married for 41 years this month, and he says that has married an angel without wings. He shares his special journey; You don’t want to miss it!

Episode Highlights:

There are two types of diabetes, type one, which you are born with, and in that, your body does not produce any insulin, so you are on insulin shots from the time you are born. The second type comes from heredity, bad eating, lack of exercise, or all the bad stuff you do - lifestyle factors.
If the doctor says you are prediabetic, that means your sugar is running high regularly, and it is destroying your body. So, you need to get to a specialist or endocrinologist.
It is not a disease to be taken lightly because it leads to chronic kidney disease, which Marty has. If you don’t pay enough attention to it, then you are graded on a scale of stage one to stage five transplant material, and that is where Marty is at 70 years of age.
When you first start out with kidney disease, you are one of about 100 to 150,000 people on a list of possible recipients. Marty is lucky enough to meet a gal named Darcy Gibson, who has a foundation, a charitable organization, called Off The List, inc.
To go through initial testing is a rigorous process. There are three different people you meet with. One is a social worker to check your mental capacity, the second is a nutritionist to manage your diet, and the third is a team of doctors and nurses that help you through tests.
To get off the list, you have to receive a donor’s kidney, and Bonnie has done this through Facebook, through yard signs, emails, and extensive, unbelievable work this woman has done on Marty’s behalf.
The list that Marty is talking about is a list to receive a deceased donor kidney. To get a living donor kidney, you must find someone willing to donate, a friend, a relative, or just a generous donor, and it is tough.
It is a completely anonymous process, as someone is tested on your behalf. You would never know that because hospitals take that very seriously, and they want to ensure that the person who is doing this wants to do it for the right reasons and that there is no sense of pressure.
Bonnie decided that UPPO would be perfect because people would have to ask a question and start the conversation. What is UPPO, or who is UPPO? Life for UPPO is a Facebook page, and we are working with Christ Hospital, and Trisha is the donor coordinator.
The typical diabetic signs that Marty paid no attention to was he slept 12 hours and felt like he didn’t sleep 5 minutes. He drank unbelievable amounts of liquid, whether it be coffee, pop, water, and he lost a lot of weight.
The diet you have to be on when looking for a kidney is extremely difficult. There are many things to avoid and take care of.
There are two categories of people when it comes to the conversation about being a living donor. We need to do a better job of filling the gap of information and helping people understand this is something they can do.
Children’s hospitals prefer to give it to children, and they should. But if something happened and there aren’t any children who would need it, then the adult on that list would receive a kidney.
One of Marty’s dreams has always been that he would like to start in Maine and eat lobster all the way down the East Coast until they have to get an oversized bus to take him home.
Marty looks good on the outside, but he’s not good on the inside, and that's what a lot of people don’t understand because he looks great. But they don’t understand that the kidney function is still going down, and you can’t see that.
If people understood how grateful recipients were, it would cause a lot more people to donate because they are heroes and become angels without wings.
Bonnie has read a lot on the national kidney Instagram page and other places that donors live longer than people who have not donated.

3 Key Points:

Marty and Bonnie tell the listeners about the Facebook page they set up for people. The Facebook page is called life for UPPO. UPPO is Marty just because their oldest grandson when he was very young, can’t say Grandpa, and he came out with UPPO.
Marty doesn’t think people understand how serious this disease is, and it will kill you. Many thousands of people die every day from kidney failure, and several things work against you.
Marty and Bonnie talk about the misconception surrounding kidney donation.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.facebook.com/life4uppo
Tricia Monson Christ Hospital Donor Coordinator 513-585-1440
Marty and Bonnie Garneret
Off the list inc, Darci Gibson

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

For more information visit: http://nkf.org/

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On this episode of This Thing Called Life, host Andi Johnson is talking with Sandra Wright. Sandra is a transplant survivor and the founder of The Greater Cincinnati African American Heart Association. She is back on the podcast today to discuss the importance of understanding organ donation because it extends life. Don’t miss it!

Episode Highlights:

Andi encourages the listeners to be educated about what organ donation is and how it impacts all of us.
March is National Kidney Month. Andi shares a few helpful ways to keep your kidneys healthy like staying healthy and fit, monitoring your blood sugar, monitoring your blood pressure, monitoring your weight, and more.
Delaying and denying when something is off with your body does you no good. Everyone should be as proactive with their health as possible.
Did you know that African Americans make up the majority of people on the National waiting list for kidney transplants. Research shows that african americans may carry a gene that creates a higher salt sensitivity which increases the risk of high blood pressure and heart disease.
Last time on the podcast, Sandra shared her story of being a heart transplant survivor. If you missed it, go back and listen! (Episode 40)
Andi asks Sandra, “Why do you think so many African Americans remain opposed to organ donation?
Sandra shares when she had heart failure what changed for her in her thinking on the path she was on.
Andi asks Sandra, “Was registering to be a donor ever talked about around the time you were getting your license?”
In the times we live in, we are now inundated with information. Andi and Sandra share how everyone should take an active role in their health. We have to embrace how precious our lives are and do everything we can to be present.
How do we begin the conversation about generational health?
Andi discusses the criteria for being able to go with organ donation from a donor.
Sandra encourages listeners to take this podcast seriously and if you want to, go do some of your own research.
Have you thought about the ability to help others even after you yourself transition?
Andi asks Sandra to talk about her organization, The Greater Cincinnati African American Heart Association. She feels an obligation and is so honored to share information from traveling the journey herself in a real way. She spreads awareness with authentic truth.
Today, over 106,380 people are waiting for a life-saving organ transplant and more than 3,000 are in need of heart transplants.

3 Key Points:

March is National Kidney Month. It is important to know how to keep your kidneys healthy and the warning signs that they are not.
Sandra Wright is a heart transplant survivor who shares her story to educate and give hope to others. She shares about barriers, lack of access, and the importance of understanding your heritage and family history.
There are so many lies mixed in with a little truth that circulates in the community about organ donation and creates mistrust and opposition. Knowledge is key. Get educated about the topic and take a proactive role in your health.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Sandra Wright |swright.gcaaha@gmail.com |513-484-4772
The Greater Cincinnati African American Heart Association

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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Episode Highlights:

Sandra is a heart transplant recipient. In 2014, she contracted a virus that was never named but lingered and left her with a side effect of shortness of breath. Later that year, she was on vacation when it all kind of climaxed.
She shares her story of going to the hospital and the dire state she was in. She was told she had Heart Failure but she went into immediate denial. She cautions the listeners against denial because then you don’t do what you need to do.
There will be a book coming out to tell Sandra’s full story in the future to help many.
Christ Hospital in Cincinnati set her on the path of her life being saved.
Prior to Sandra’s visit at Christ Hospital, every two months she would go for maintenance care to control the edema but other than that she wouldn’t take the medicine or change her lifestyle until 2017 when her heart would no longer serve her.
Sandra shares how her faith got her through the scary time of being in need of a heart.
The Greater Cincinnati African American Heart Association was created by Sandra to help provide others support, to create a community where they feel respected, heard, and understood. She shares about the services and her vision for down the road.
For those who hear they have CFH, Congestive Heart Failure, that is all they are going to think about and can come unexpectedly and at vulnerable times.
Andi shares how the healthcare system is not accessible for all and how detrimental it is for many, especially people of color.
Sandra shares a sad story of talking with her granddaughter who said she ‘hated being black’ and how that ideology fuels her heart and mission to create an environment of support for the African American Community.
Andi asks Sandra to share any encouraging thing she is experiencing or new strength she sees in the community.
Andi reminds listeners that today, 106,494 people are waiting for life saving organ transplants and more than 3,400 need heart transplants. Can you think about your decision to be a donor and save a life?

3 Key Points:

Sandra shares a shocking story of her journey with heart failure and the danger of being in denial of the diagnosis.
The African American community is at the highest risk and has the greatest fatality which led Sandra to create The Greater Cincinnati African American Heart Association as a community of support.
Sandra shares that living 65 years in this world, we are beginning to understand the necessity of working together and supporting each other. That is encouraging and exciting.

Resources Mentioned:

LifeCenter | Website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Sandra Wright |swright.gcaaha@gmail.com |513-484-4772
The Greater Cincinnati African American Heart Association

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode of This Thing Called Life, host Andi Johnson is talking with E. Denise Peoples. She is a comedian, actress, singer, writer, producer, radio host, and motivational speaker. She is a double lung transplant recipient, and most importantly, she is a Christian. African Americans are at a higher risk of heart disease. Research suggests that African Americans may carry a gene that makes them more salt sensitive, which increases the risk of high blood pressure and heart disease. Tune in for her story and great knowledge.

Episode Highlights:

In December 2000, while coming from the second floor of the house, Denise was short of breath, which lasted until February. She went to her primary doctor, and she was treated for pneumonia but nothing got better.
Denise got diagnosed with idiopathic pulmonary fibrosis (IPF), which at that time was an older white male smoker’s disease. The only alternative is a lung transplant or double lung transplant as this disease progresses.
After being selected for a play audition and receiving health-related confirmation from a pulmonologist, Denise learned a lot about her body and herself while in Paris.
When they came home at the end of 2003, things just started going down, and the disease was progressing so fast. Denise ended up on oxygen 24 hours a day.
One night around 10 o’clock Denise told her manager that she was so tired of living like this. Soon she had a call from the hospital and they said, “Miss Peoples, we’ve got lungs, we need you to get to the hospital.”
The next day after surgery, Denise woke up and felt her face, but the nurse asked, “Are you looking for the cannula? She said it’s there, but you are breathing on your own.” These are the absolute best words she had heard in years.
Andi asks Denise, “You are with New Jersey Sharing Network, which procures organs and tissue for transplant, and they have 57 OPO’s throughout the country. How did you end up there?
Andi asks, “What do you believe is the reason why African Americans don’t register or think about being a living kidney donor?
For COVID vaccination, many of us refuse to be vaccinated because of distrust. We want to roll the dice and do something different, and we are just seeing that’s not working, says Denise.
When Denise got to the emergency room for the Covid swab test, sitting there and waiting for hours was the worst experience because she wondered, “Why do you have a lung transplant patient sitting with everybody else?”
Once Denise returned home after 21 days in the hospital, she was doing good, was never on oxygen, and was always at room temperature. Her oxygen levels never went under 90. But her body was stiff, and she focused on getting her strength back.
Andi asks, “

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

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On this episode of This Thing Called Life, host Andi is going to talk with Kelly Williams about her connection to donation. There is a lot of misinformation and falsehoods about donation. One of the goals of this podcast is to really dive in and help listeners better understand what donation is and how it truly impacts others. It can be best accomplished by hearing from the people who have lived it, who have walked, can speak, and share their experiences. Tune in for Kelly’s life saving story.

Episode Highlights:

Kelly donated her left kidney 13 years ago to Caleb, and Caleb was 12 years old at the time. Caleb celebrated his 25th birthday a few days ago, and he is in such a good place. It is the power of organ donation.
Andi asks Kelly to take the listeners 13 years back when she was working, she was young and kind of getting her career going, and she met Caleb’s mom at her place of employment.
The process started in September, and then in December, they ended up getting the call that our transplant date was confirmed, and we were on the books for January 15th, and we did it, says Kelly.
In the African American community, there are some barriers to donation, and one of them is the lack of transplantation awareness.
Andi asks, how do you think we’re doing at breaking down the donation-related barriers, and what do you think we could be doing better? Unfortunately, people are not taking the time to get that transplant awareness, and it could ultimately be a death sentence for many people.
Growing the living kidney donor base of people of color who can stand in front of somebody else and say, you can do it as I did it will probably be most impactful, says Kelly.
Kelly doesn’t think there are things that she can’t do, and she genuinely doesn’t have any limitations.
Ask as many questions as possible and determine if kidney donation is something that you can do and if you can’t do it, take that knowledge and share it with somebody else.
The waitlist continues to increase, and that’s the part that Kelly thinks is so important to highlight. People of color make up the majority of that waitlist for kidney transplants.
It has been amazing to see over the years the number of people who are stepping up to say, “I will be a generous kidney donor. I don’t know who I can donate to, but I’m going to walk through this process, and I will do it.”

3 Key Highlights:

When you do something like kidney donation, it gives you such a surge of purpose and energy, and it feels like the best possible outcome that could have ever happened, says Kelly.
Kelly was young in her 20s when she decided on kidney donation. She tells the listeners how her parents fely about this decision.
Kidney donation is a big decision, and it is worth contemplation for sure. You want to make sure it is the right thing for you and your family to do.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website

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Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone #: 513-558-5555

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On this episode of This Thing Called Life, Andi is going to talk to Katie Beurket. She is a program coordinator at Fernside. Fernside is an exceptional organization in Greater Cincinnati. The fernside staff is very honored to continue their legacy of supporting grieving children and families. Katie says they provide peer support groups for children ages 3 to 18 and their parents or legal guardians. Tune in to hear about their valuable work.

Episode Highlights:

We must understand that many people are struggling right now. They could be grieving a variety of different things or could be mourning the loss of a loved one. So we will talk about those feelings of sadness and how we try to best get through during times like this, says Andy.
Fernside is a children’s grief center,the second oldest children’s grief center in the country. They were founded 35 years ago by Rachel and Paul Burrell, says Katie.
Andi asks Katie to share about the switch to virtual during covid and how that has been going.
Andi asks Katie, “You are very passionate about the work you do; What led you to this?”
Grief will change throughout your lifespan based on your developmental age. There are different signs of grieving children that correlate with the period that they are at.
Unfortunately, kids at a young age are experiencing loss, but if we are not educating them and telling them what it means now, they will hear about it later on, and it can affect them badly. Educating kids is also part of grief.
The 3rd, 4th, and 5th graders are one of Katie’s favorite age groups because they do start to understand what death means. They understand the permanence of death, and that is when they begin to really ask questions.
Fernside has over 100 direct service volunteers. They have different lesson plans that are given to them.
Programs like Fernside and what they offer allow individuals to keep memories alive of their person and create a safe space to talk about it which is so important.
The National Alliance for Children Grief is an excellent resource for finding things even outside the region. They have a wealth of other information on how to help children who are breathing in different resources, says Katie.

3 Key Points:

Katie says that they do orientation in their office, and they help give tours to suffering children and families. There is a program called the Pit Crew at Fernside. It is a philanthropy and training.
A lot of kids don’t understand what happens when people die, they think they are going to come back or don’t understand the permanence of death.
Fernside is helping families have healthy coping skills to figure out how to move forward because they don’t want anyone to be stuck in their grief forever.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.fernside.org/grief-resources/
https://childrengrieve.org/
https://www.fernside.org/
https://www.fernside.org/about-fernside/staff

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Resources:

https://www.griefincommon.com/

https://whatsyourgrief.com/

https://www.fernside.org/

National suicide Prevention Lifeline 1-800-273-8255

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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On this episode, host Andy is going to talk to Pastor Chris Beard. He is the leader and pastor of the People’s Church located near the University of Cincinnati. They are discussing how the concept of faith intersects with the idea of organ, eye, and tissue donation.

Episode Highlights:

We just wrapped up national donor Sabbath month, the time when faith leaders or people in their congregation take time out to highlight organ donations within their places of worship, says Andy.
Chris shares about his congregation statistics and the church.
The church has been in the process of 20 years of moving from homogeneity into a multicultural reality, which led to a church name change about ten years ago. It was an intentional decision to follow the Scriptures and the vision of Jesus, Chris shares.
Chris shares how speaking of life means speaking the truth. He calls for continued thought towards and prayer for there to be able people, willing, and a good matches for donation.
Being created by the creator, we have the ability for creative thinking, and let us trust the scientists, the artists, and the engineers of this world to do what they do to bring the quality of life, says David.
Andy asks, “For many people who may not be happy this time of year because they are grieving a loss… as a pastor, what would you offer to encourage our listeners?”
There is a sadness from a loss that will never be fully overcome, and grief is something that has been with us for a lifetime.
There is healing in sharing with other friends about the memories, feelings, and losses of people who are dear to us.
A poor theology of new earth and new heaven causes an effect on a lot of decisions in the current day out of lack of knowledge.
Some of America’s racism and medical history was sinfully, wrongfully made concerning people of color, and that story still keeps people of color from life and health.
The telling of the true stories will diminish the power of the myths, which is very powerful.
David asks the listeners to be strategic about organ and tissue donation to the new and younger generation. He says that we need more stories of those who receive the donation and the quality of life added, and hearing their stories will inspire others.

3 Key Points:

There is a sense in the Christian tradition within evangelicalism or fundamentalism that ‘If my body isn’t buried whole, how will I be raised from the dead properly?’
David shares his thoughts on what he would say to someone who is very ingrained in their faith in God but doesn’t want to be a donor.
Andy highlights the myths around tissue and organ donations that sit in the families for generations and somehow become factual.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Pastor Chris Beard https://www.peopleschurch.co/

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40 Years Of Saving Lives In Cincinnati

Community Heroes is a special extension of This Thing Called Life’s podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation. In this episode we talk to Lincoln Ware from Radio One about the celebration of Life Center’s 40th year of saving lives in the greater Cincinnati market.

Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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During this episode of This Thing Called Life Podcast, host Andi Johnson speaks with Debbie Pollino, a Donate-Life Ambassador for LifeCenter. Unfortunately, Debbie’s experience as an ambassador found its roots in the death of her son Nick after a car crash in 2014. Debbie knows firsthand that grief looks different for everyone and she hopes that sharing her son’s story can help others deal with their own tragedies.

Episode Highlights:

In January 2014, Debbie lost her son Nick to a car accident, suffering a brain injury that he could not recover from.
Debbie had no idea that her son Nick was very passionate about organ donation until he noticed that she was one on her license.
Nick was able to save multiple lives with the organs that were donated from his body.
4 months after the death of her son, Debbie attempted to become a Donate-Life Ambassador, but it was still too soon.
After about 18 months of recovering from the death of her son, Debbie started sharing Nick’s story at schools.
Nick was a very adventurous and outdoorsy person, driving across the country multiple summers in a row to Northern California.
After attending Northern Kentucky for college, Nick transferred to a school in Northern California for a forestry program.
What was supposed to be a 3-month trip to Hawaii for Nick, turned into a 5 ½ year trip.
The Bernie Madoff pyramid scheme collapse brought an end to Nick’s trip to Hawaii.
Debbie’s nephews and nieces were like siblings with Nick in life, children to her after Nick’s death.
Fortunately for Debbie, her family continued to talk about Nick, keeping his spirit all around them.
Nick had the kind of spirit that makes people proud to remember who he was as a person.
Debbie had a meltdown recently when she was looking through pictures and realized that she will never have a current one.
Nick made it all the way to Lima, Peru on a buddy pass for New Years, sleeping in the airport for a week.
The first time that Debbie went to visit Nick in Hawaii, he jumped off a 60-foot cliff and climbed back up.
With how up and down the grieving process is, it’s important to have people that you can ask for help.
Though support groups work for some people, Debbie felt it was more beneficial to be around positive reinforcement.
Nick was very spiritual in his own way, using nature as his church, as a way to find peace.
Debbie and her family celebrate Nick on a variety of occasions, especially Thanksgiving, his favorite holiday.
On August 4th every year, Nick’s birthday, Debbie’s family throws a party to celebrate his life.
Debbie had the pleasure of meeting Nick’s heart recipient, Brian, and welcoming his family into her family.
Brian looks and acts the same as Nick, with a similar build and a love for outdoor adventure.
The pandemic has been especially difficult for Debbie, given how close she is with her family.
Though it’s hard during the pandemic, don’t hide away from other people while you are grieving.

3 Key Points:

Debbie lost her 36-year-old son, Nick, after a car accident in January of 2014. Because of his passion for organ donation, he was able to save multiple lives.
While most days are good, filled with great memories, some days are rough for Debbie when all she wants is a hug from her son.
Nick’s heart recipient, Brian, a father of 2, has since become a part of Debbie’s family, along with the rest of his family.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Nick’s Heart YouTube Video
What's your Grief
Grief in Common
Fern Side

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The Holidays Can Be Tough, If You Are Struggling Reach Out And Ask For Help...

Resources:

https://www.griefincommon.com/

https://whatsyourgrief.com/

https://www.fernside.org/

National suicide Prevention Lifeline 1-800-273-8255

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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During this episode of This Thing Called Life Podcast, host Andi Johnson speaks with Kris Grigsby, an incredible human being that has acted as the primary support system for a loved one. After struggling with Cystic Fibrosis for his entire life, Kris’s husband Joe had to have a lung transplant in 2012. Listen in to hear all about Kris and Joe’s inspiring story!

Episode Highlights:

Organ donation doesn’t just affect the donor, but also changes the lives of the close friends and family.
Not all transplant stories have a happy ending, but at the same time, not all stories end in tragedy.
Kris’s husband Joe was diagnosed with Cystic Fibrosis as an infant, beating the odds and living well beyond his initial life expectancy.
When their twins were 3-years-old, Joe was operating at only 20-30% lung capacity.
Lung donation requires a donor that has already passed away.
Due to Joe’s convenient blood type, Joe only had to wait just over 3 months on the waitlist before getting his transplant.
Spending 6 weeks at the hospital for the transplant, Joe and Kris went 5 weeks without seeing their children.
Just 16 hours after his transplant, Joe was able to walk 150 feet.
After the transplant, Kris had to change her mindset from one of a caregiver to one of a more normal wife.
Kris continued to work full-time throughout the entire process for insurance purposes, but it also gave her some relief.
Both Joe and Kris, very independent humans, had to learn how to say yes when people offered help.
It took over 2 years to connect with the donor’s family, and now Kris and Joe are very actively connected with them.
Staying connected with the donor’s family has helped with the healing process on both sides.
Kris and Joe’s children do not remember the time when Joe was sick and unable to live an active lifestyle.
Going through the transplant process alone is impossible, so it’s important to accept the help that is offered.
The transplantation process is a journey for both the donor and their family/friends.
As a result of the different recipient and supporter groups, Joe and Kris have connected with people all over the country.
Kris’s grandpa passed away in April unexpectedly after marrying his new wife just a year and a half before.
The funeral home director advised Kris’s grandpa’s widow to deny the option for her deceased husband to be an organ donor.
It should be the #1 responsibility for transplant centers and funeral homes to support the family.
We must all advocate for ourselves and our loved ones for what’s right in the moment of a donation decision.
Leave the decision on whether you can or cannot be a donor up to the medical professionals.
Tissue and cornea donation has the potential to help up to 50 people from one donor, and can change/save lives.
Science is constantly evolving and as a result, the number of people that can donate is constantly increasing.
Transplant is not a fix-all option and it’s important to remember that there will still be rough times.
2020, while chaotic, has presented an opportunity for everyone to grow closer to their families.
Faith has acted as an essential support beam throughout the transplant process and life in general for Kris.
Support groups are incredible resources for those affected by transplantations.

3 Key Points:

Unlike kidney and liver donation where you can have a living donor, lung donation requires a donor that is already deceased.
Kris and Joe actually watched the accident on the news that involved Joe’s donor but didn’t know it until later.
A misguided funeral home director gave incorrect advice to Kris’s grandpa’s widow and ultimately swayed her to turn down his option to be an organ donor.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Kris Grigsby (Facebook)
Matthew West (musician)

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Don’t Forget To Register For The Virtual Community Breakfast. It starts at 9am on 11-17. Register At https://lifepassiton.org/

Andi Johnson joins Lincoln Ware on WDBZ and today they discuss November Events for Life Center.

Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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November is the month of National Donor Sabbath, where people of all faiths highlight organ donation within their places of worship. During this episode of This Thing Called Life podcast, host Andi Johnson talks with Renee Paige and Sarah Green who have a beautiful connection that formed a few years ago, tune in for this inspiring story!

Episode Highlights:

Renee and Sarah recall the details of meeting each other for the first time when they received kidney transplants from the same donor on the same day.
They both share their belief in God and how they knew they had a connection.
Did you know that lupus can cause renal failure? Renee shares her journey with it.
Sarah shares what brought her to the place of needing a kidney transplant and how she wrestled with the news.
Diabetes and hypertension are precursors to kidney disease.
Andi emphasizes that Kidney disease is a silent killer and many want to be in denial.
Renee recalls her thoughts about transplant donation prior to her journey with it.
Some have a fear of death and therefore just don’t want to address the topic of organ donation.
Sarah shares her time of working in the medical field starting as a candy striper and how she learned the purpose of organ donation.
Renee and Sarah share about how they got to go through the whole process of receiving an organ together. They are each other’s kidney champions of support.
If you received an organ, what would you say to your donor’s family? Renee and Sarah share their responses.
After receiving a kidney transplant, new freedom is achieved. Renee and Sarah explain the difference between before and after.
When you are vulnerable and share your journey, more people can relate, be encouraged, and be motivated to address their own health issues too.
There are opportunities to advocate for the organ donation process, support others who are on that journey, and offer hope.
How does kidney donation impact people of color?
For those that are waiting for an organ, keep the faith. It can happen for you. Don’t feel as though you have a death sentence. When you open your eyes each day, be thankful and keep moving forward.
By signing your name as an organ donor, you can save lives. Educate yourself on the importance of organ donation.
There are more than 90,000 men, women, and children in need of life-saving kidney transplants in our country today.

3 Key Points:

There are many misconceptions about organ donation that cause resistance to being organ donors. Renee and Sarah share how their viewpoints on the matter changed.
Doctors and medical teams' only duty is to save lives. The donation piece is secondary and it’s not until death has been declared that organ donation becomes a part of the end of life conversation.
Renee and Sarah share the limitations of living life on dialysis three days a week and the freedom they have after being given a second chance at life through kidney donation.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.donatelife.net/nmdam/
Life Center’s Community Breakfast Virtual Edition will be November 17th 9-10am EST: This is a free event, open to the public, register at lifepassiton.org.

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Life Center’s Community Breakfast, Will Be Virtual This Year On November 17, 2021 at 9am. Join us To Hear Some Amazing Uplifting Stories

Resources:

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

Life Center Phone # 513-558-5555

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During this episode of This Thing Called Life, host Andi Johnson speaks with John Mock, a salesman for a large wheelchair manufacturer. His life took a turn two years ago when his liver failed after 56 years of perfect health. It took a ridiculous set of miracles for John to get his new liver, but he did, and his story is absolutely inspiring!

Episode Highlights:

John details his background as a traveling sales manager for a large wheelchair manufacturer.
John discusses the moment, two years ago, when he realized that something was wrong with his liver.
The doctors could not figure out what was going on with John’s liver because he passed all tests that they could throw at him.
The ammonia build-up from liver failure was taking away John’s ability to focus.
Excessive sleeping led John to the conclusion that something was definitely going wrong.
John’s liver specialist sent him to the University of Cincinnati’s transplant program.
MELD (Model for Endstage Liver Disease) goes from 6 (years to live) to 40 (death); John was a 24.
After some mini-miracles, John was able to accelerate the process of getting on the transplant waiting list.
A battery of tests and blood work stood between John and getting on the transplant list.
Expecting a long wait to get on the list to get the tests run, a cancellation got John in for his test two days after his acceptance into the program.
Canceling the family vacation was tough, but John had to be close enough to get to the hospital.
John was accepted onto the transplant list and found a donor within the same day.
Recipients have to manage their expectations because there is a chance the organ is not a good match.
It was important for John to reach out to the family of the donor to express his gratitude and condolences.
Only 6 weeks after his surgery, John was on a plane to his national sales meeting in Colorado.
Relying on others for everything was incredibly humbling for John as a natural go-getter.
27 days after his surgery, John and his family were able to meet his donor family and they hit it off.
The liver that John has now is not his own, but has been inside two other people along the way.
It’s incredibly difficult to have a healthy relationship between the recipient and the donor family.
What it was like connecting with his donor family and how hard it remains for them to this day.
If both sides can see that through donation, it can help both sides move forward.
The gift of life is shared between two families, two worlds really, in the case of organ donation.
It all starts with the decision that two people do not have to die.
You see life from a completely different perspective when you come so close to death.
John works tirelessly as an advocate to make sure that his donor’s family would be proud.
Hope doesn’t get people to become donors, but it is a strategy.
Anyone can be a registered organ donor and give hope to someone in need.

3 Key Points:

John’s life completely changed when his liver failed two years ago. Through some mini-miracles, John was able to get in front of the board of the University of Cincinnati’s transplant program.
Organ recipients tend to question what they have done to deserve to live and why someone else had to die. The harsh reality of life sets in at some point.
It’s incredibly humbling when your body and mind stop you from doing certain things and you are forced to rely on others to do things for you.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
John Mock (Facebook)
Hope is Not a Strategy - Book
United Network for Organ Sharing (UNOS)
University of Cincinnati Medical Center

Hope Is Not a Strategy: The 6 Keys to Winning the Complex Sale: The 6 Keys to Winning the Complex Sale

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Did You Know You Can Donate A Part Of Your Liver? Andi and Lincoln Ware Of WDBZ Discuss, in this episode of Community Heroes.

Lincoln Ware and Andi Johnson discuss Life Centers involvement in the community educating and advocating for those in need of a transplant. In this episode they focus on expressing gratitude for the employees of the BMV who are on the front line of creating awareness for the opportunity to become an organ, eye and tissue donor.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

Americantransplantfoundation.org

Liverfoundation.org

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Episode Highlights:

Dr. Govil shares has been in this field for over 20 years and he has dedicated more than 15 years of that time to take care of patients needing kidney transplants.
Dr. Govil shares why he chose this area of medicine to practice in.
One of Dr. Govil’s first exposures as a medical resident was with a patient who had trace protein in the urine. All of them, as residents, ignored that component of lab finding and did not realize that their finding was a world-renowned figure in diabetic kidney disease.
One in six of the US population is at risk for kidney disease, and more importantly, one in 10 out of the US has some element of kidney disease or chronic kidney disease.
Dr. Govil says kidney disease is very silent. You may only have pain in the kidneys when you have physical problems like kidney stones or any cyst that is hurting you.
The only way you discover kidney disease is through the blood test and routine numbers analysis.
Diet does play a role in making kidney disease worse or stable, but a lot of that has to be done with how we manage our primary disease, which is causing kidney disease.
It is very difficult to ask one patient to stop eating salt because everything we eat around us is loaded with salt, and it is very difficult to break that cycle, says Dr. Govil.
Andi asks, “Is this kidney disease more prevalent here in America, or is it more prevalent in other parts of the world?”
There are definitely certain aspects of kidney disease that we do not understand, which means that they may have familial clustering, says Dr. Govil.
As we progress, we now can identify certain genes that make one more prone to have kidney disease, which does not mean that everyone who has it will present with it.
Andi asks about Dr. Govil’s experience specifically, “Do you see more of Caucasian patients? Do they seem to have more success in identifying living kidney donors? And if so, why do you think that is?”
When we look at the transplant or people who are receiving dialysis, 1/3 of them are African American, which means that there is definitely more propensity of any disease in this group of patients than any other group.
Dr. Govil says, “When we look at the number of people on the list compared to the people who get transplanted and then compare it to the number of people who are on dialysis, they just don't add up completely.”
Dr. Govil clarifies the myth that kidney donation can harm a donor in the short run and in the long term.
As per Dr. Govil, education is the key, and that is what he feels when he goes to multiple outreach clinics in the tri-state area, and he realizes a lot of these barriers are related to misinformation.
Dr. Govil gives recommendations for keeping your kidneys healthy.
Don't count on kidney pain as one of the symptoms because kidney pain really is not a symptom of kidney disease -that is just a mechanical problem, which could be because of a stone in the kidney or some cyst.
Diseases are frightening in many aspects; These are things that could be prevented if we took the proper steps and proactively saw our doctors.
Changes in organ allocation will generally increase some of the volume, but it will definitely increase the volume for certain centers to do more transplants.
A donor that may have hepatitis is now able to give organs to the patient in need of a transplant, and then that can be treated, says Andi.
The dialysis survival is really dismal over a period of time. So, a 10-year survival on dialysis is around 10%.

3 Key Points:

Dr. Govil explains what leads someone to having kidney failure. We have to realize that the kidneys are affected by a lot of things that happen in our body, whether it be high blood pressure, diabetes, or any other changes that may be related to some problems happening at the level of the kidney itself.
Kidney disease means we are in a tier of the kidney, which is a very silent process and so essentially, your kidneys really do not have to hurt and actually they do not hurt at all when you fail your kidneys over a period of time.
If we have a healthy, balanced diet to stabilize our diabetes and high blood pressure, it will indirectly help keep our kidneys happy and healthy.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.donatelife.net/nmdam/

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It’s National BMV (DMV) Appreciation month, And We Want To Recognize Their Commitment To The Donate Life Mission In This Interview with Lincoln Ware on WDBZ

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During this episode of This Thing Called Life podcast, host Andi Johnson talks to Debbie Hayes. She is a healthcare leader in Cincinnati, and specifically she leads a number one ranked hospital in the Cincinnati region. Tune in to hear her experiences and perspective on kidney donation.

Episode Highlights:

Debbie began as a nurse at Christ Hospital. She worked her way up to being CEO, also led the Board of Directors at LifeCenter Organ Donor Network for 9-10years.
She started her career 34 years ago as a student nurse aide. The one thing that always amazed her about this organization is that you are given opportunities to grow and develop your talents.
The pandemic was one of the most challenging times in the history of healthcare, but it has also been one of the most rewarding times. Because of the extraordinary efforts of an incredible team of people working they have still kept that mission of the organization at the forefront of everything that they do despite every challenge.
“We are definitely grateful for all of our hospital partners throughout our service area who are able to facilitate organ, eye, and tissue donation”, says Andi.
Many people who have organ failures of any kind are not able to fully experience what life is all about,which is why Debbie is passionate about this.
Andi inquires, during the pandemic, “Did that affect patients waiting for kidney transplants at Christ Hospital?”
One of the trends that she has noticed during her time at the Life Center is that living kidney donation continues to increase. Debbie explains her thoughts about why we are seeing more people making that choice to be a living kidney donor.
Andi had the opportunity to interview a young woman who was actually waiting for a kidney, and she was listed at Christ, and she just could not say enough about what a positive experience has been with her team there.
There are probably a million-plus surgeries that occur in the country requiring donor tissue, which is very interesting.
Andi recalls a story about a young woman who was a volunteer and ambassador, and she has been waiting for a kidney for about three years, and unfortunately, she passed away. But she was able to be a cornea donor, and it just meant so much to her husband and young daughter.
Debbie talks about who/what experience has helped shape her into the leader she has become.
Andi asks Debbie to give advice to someone who is just starting out in their career in healthcare and may be inspired to lead a healthcare system down the road.

3 Key Points:

Debbie shares how she maintains the passion for the work that she has been doing. She was recently named CEO of the Christ Hospital after serving as interim for a period of time, and just as an outsider looking in, it seems like health care leaders don’t tend to stay put with this same place for so long. She shares what it is that kept her at Christ all of this time.
During the pandemic, things at the LifeCenter were quite dramatic. Debbie talks about the changes they have had to undergo during this time to attract people to sign up to be donors.
There are about 750,000 people a year in the United States that have kidney failure. If we could get a transplant for every single one of those patients when they needed it, wouldn’t that really make an impact in the United States?

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://www.donatelife.net/nmdam/

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Its National DMV Appreciation Month

This month is National DMV Appreciation Month and we want to thank and show our appreciation of our DMV partners and their dedicated employees across the country. They are a critical component of creating awareness and registering the public to become organ and tissue donation and we want to take this time to say thank you.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During this episode of This Thing Called Life podcast, host Andi Johnson talks with Karyn Frost. This Thing Called Life introduces you to powerful stories about organ, eye, and tissue donation from individuals, families, and health care teams whose experiences will inspire you and remind you that while life is hard, unpredictable, and imperfect, but also beautiful. Tune in to hear Karyn’s story!

Episode Highlights:

Karyn is living a very normal life. She and her husband of over 20 years just dropped off their oldest at a college. However, a part of Karyn's story has shifted some things for her.
At Ohio State, Karyn met her husband, Damon Frosty, who is from Cincinnati. They have two children, two daughters, one as Andy mentioned, is a freshman at Tennessee State University in Nashville and the second one is a junior in high school at Indian Hill High School.
When Karyn was a sophomore in college, she was diagnosed with lupus. It can impact many different organs in the body, and she was lucky enough that lupus impacted her kidneys.
Karyn's kidneys were not functioning properly, but they weren't terrible or in need of dialysis or a transplant; It was just one of those situations where they said, "we are going to watch this."
Andi asks, "Did your doctor at that time talk about the possibility of needing a transplant at some point?"
Andi inquires, "You mentioned a family history of diabetes. Did anyone in your family ever need a kidney transplant because of diabetes?" Karyn affirms, her father received a kidney donation 15 years ago. It lasted for about five years, and then he had to go back on dialysis, but he did receive a kidney transplant.
There are a lot of things you have to do after you receive a transplant which some are not prepared for. There are other people who can't get a transplant for financial reasons because that is a big part of it. You have to be able to afford the medication, and Medicare doesn't cover everything.
Karyn has been on dialysis since May 2018, and honestly, she should have been on dialysis since 2016 because that is when her doctor noticed that her blood work in her physical exams and the biopsies indicated that she needed to start dialysis.
When you have a certain level of toxins in your body, your body just decides if your kidneys can't get rid of it, we are going to get rid of it one way or another, says Karyn.
Karyn has a lot of people around to support her; between immediate and extended family and people in organizations that she is a part of.
Most of the people on the kidney and organ donation lists who are waiting for transplants are people of color. So, we need to have the organizations that were part of be supportive and joining the fight, says Karyn.
Karyn has heard people say that they are not going to save her because they want her organs. She is interested in the statistics on how many African Americans agree when they are renewing their license to be registered.
Andi asks, "Do you think that part of the issue with chronic kidney disease is that it's one of those conditions where you know it is there, but if it is not really impacting your day-to-day life?"
As young people, we are naturally more self-centered, and she is much more focused on helping others.
Karyn wanted to tell her story to get awareness for herself but also to get awareness for other people.
Andi asks, "If someone is interested in being tested to be your kidney donor, how might they go about that?"

3 Key Points:

Karyn's doctor mentally prepared her for what she was dealing with today, so it wasn't like a shock. And one day, he just said, "Hey, you are going to do dialysis. He did a good job of preparing me for it."
Karyn shares details about her body's way or your kidney's way of saying help. Her kidneys were not functioning, so all those toxins stayed in her body anytime she ate or drank anything. They weren't being filtered out.
"If you could tell your younger self, having a great time at The Ohio State University and also just starting to realize that there are some medical issues that are going to be a part of your life, what would you say to that, Karyn?" asks Andi.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
https://linksinc.org

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During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Dr. Madison Cuffy, an Associate Professor of Surgery and the Kidney Director at the University of Cincinnati. Dr. Cuffy has built trust-filled relationships with his patients throughout the years and loves nothing more than to see them live their lives to the fullest after getting their transplant. In case you missed it, tune in now!

Episode Highlights:

Dr. Cuffy started his medical journey back in 2002 during his residency, before doing a transplant fellowship at New York Presbyterian.
Growing up in Brooklyn, Dr. Cuffy was first introduced to Cincinnati by Talib Kweli and Hi Tek.
As a 14-year-old, Dr. Cuffy was volunteering in a hospital cleaning instruments.
Even to this day, no one in Dr. Cuffy’s family has experience in medicine, nor any clue what a transplant surgeon does.
Dr. Cuffy was born in the Caribbean and grew up with his great aunt in New York.
One of the most common misconceptions surrounding organ donation is that the medical community will let you die.
After being in transplant and seeing how one can help create life during a time of despair, Dr. Cuffy became an organ donor.
The medical community is not out to harm organ donors for their organs, contrary to popular belief.
COVID has disproportionately impacted the African American community, leading to a rise in a renewed mistrust of the medical community.
It’s who passes on the information about medical issues like COVID that is important.
Despite all the concerns and misinformation that has been passed along, Dr. Cuffy highly recommends getting the COVID vaccination.
According to the statistics, on average, 22 people die every day waiting on an organ transplant.
While most of his focus is on kidney transplants, Dr. Cuffy does work with all transplant organs.
There is an access problem for people who need a kidney transplant and are on dialysis.
Over the span of a year, Dr. Cuffy performs around 70 kidney transplants.
During the pandemic in 2020, the transplant team was able to get recipients in and out with anyone contracting COVID.
Dr. Cuffy facilitates living kidney donation as the best option to treat end-stage renal disease.
Andi has noticed that people of color tend to shy away from sharing their donation needs with other people.
Socioeconomic issues and disadvantages can make it more difficult for certain patients to share their stories.
People who don’t want to share their stories need a donor champion to do it for them.
There are different forms of literacy, so Dr. Cuffy makes sure his patients know that there is no stupid question.
It’s important for patients to speak up about their questions to their doctor so that they don’t go get misinformation from another source.
If your physician is too busy to answer your questions now or in the future, you may need to find a different provider.
Dr. Cuffy feels rewarded by his job when he sees his patients experiencing life after their transplant.
His grandmother’s advice to be who he is, even when things get tough, gets Dr. Cuffy through his hard days.
Raised without his parents in Brooklyn, Dr. Cuffy knows first hand that you can do anything you set your mind to.
Dr. Cuffy has always had an extra gear that has allowed him to outwork everyone around him.
When he goes back to Brooklyn now, Dr. Cuffy gets a different kind of respect from the people he grew up with.
Dr. Cuffy thoroughly enjoys going to J. Alexanders in Cincinnati because of the sheer amount of professional African Americans that go there.

3 Key Points:

While volunteering at a hospital with the hopes of staying off the streets as a 15-year-old boy, Dr. Cuffy had the opportunity to watch a kidney transplant up close, and that’s how he chose the transplant route.
Unlike in other cities that have multiple transplant programs with different surgeons, Cincinnati has a single transplant program where the doctors act as one unit.
Living donor kidneys last anywhere from 15 to 20 years, recipients don’t have to wait on a list to get one, and the quality is usually very good.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Dr. Madison Cuffy (website)
University of Cincinnati Kidney Transplant

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Lincoln Ware and Andi Johnson discuss Life Centers involvement in the community educating and advocating for those in need of a transplant. This month is National Minority Awareness Month and our mission is to make sure there is accurate information about donation being discussed and the conversation is driven by facts not myths.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During this episode of This Thing Called Life podcast, host Andi Johnson talks to Carolyn Henry Glaspy- a mother, grandmother, community advocate and wife. She shares her personal story with organ, eye, and tissue donation and how her life was changed forever on December 17th, 2009.

Episode Highlights:

August is National Minority Donor Awareness Month. It is a month-long observance to highlight organized tissue donation with respect to communities of color. People of color suffer from a higher rate of disease that often leads to them leaving transplants, particularly kidney transplants, so this is an opportunity to educate yourself and learn more about what you can do.
You can register to be a donor. You can also talk with your physician about what it means to be a donor, but the most important thing is that you get the facts correct. So please visit https://lifepassiton.org/ to get more information.
In 2005, hurricane Katrina hit New Orleans, Louisiana, and Carolyn and her family members were trapped in their home for two days. Luckily they made it out safely, but since there was no other place to go, they had to shift to Cincinnati.
Since 2009, Carolyn has been a great supporter of organ donation; that was the year that her son, Chris suffered a traumatic brain injury post falling from a truck.
The doctors said that they did absolutely everything to save his life, but he didn't make it.
Losing Chris was the hardest part of Carolyn’s life; It is a feeling that just doesn't go away.
Carolyn has been a great ambassador for donations. She has been sharing her story at different events and in the community.
Doctors work under oath, and their main target is to save lives. So, getting registered for organ donation won’t change a doctor’s oath.
People’s initial hesitation for registering for organ donation is similar to their reaction to the COVID 19 vaccine, says Andi. She asks Carolyn to tell the listeners more about Chris.
Chris was totally the opposite of what the world has seen; They have seen the bad Chris Henry, but she sees a loving, kind, and giving young man who had a dream for a long time to do something with his life in the NFL. That dream came true, it is just that it came with a lot of baggage.
Carolyn and her family have felt the gratitude that many donor families feel. For them, just knowing that their loved one is able to live on and help others, that did bring a sense of peace. Finally, Carolyn was able to make sense of Chris’s passing.
No other family member would understand losing a child quite like the mother, but the realization that the child’s organ will give someone a second life is a wonderful feeling. You can also be part of that person’s life too if they are willing.
Carolyn shared her excitement with the listeners when she met the recipients and the family members.
Before Chris’s tragic death, Carolyn had never heard about organ, eye, or tissue donation. She says, “You don’t see that on TV, you don’t see it on billboards, you don’t have a conversation about it. It almost doesn’t exist until it happens to you.” Carolyn explains why that makes it so important for people to do their part in getting educated and being proactive so that when that situation comes, they know what they want to do, and the family can honor their wishes.
Andi inquires about Carolyn’s involvement with Life Center’s Donor Family Council, “Does she find it to be helpful to be around other people who have experienced a similar loss?”
Carolyn shares the fondest memory that she has about Chris.
Andi is impressed by Carolyn’s positive attitude towards life. She asks how she managed to hold herself up after the hurricane Katrina tragedy and then later after Chris’s death.
Carolyn wants families to know that being an organ donor or organ tissue donor is not the last; It’s just the beginning of a new life for someone. You may or may not get to meet them, but a great feeling will fill your heart because you still have a part of your son or daughter walking around and living life.

3 Key Points:

Carolyn clarifies the misconception about folks, especially people of color, who feels that doctors won’t do anything they can to save you if they know you’re a registered owner.
Chris Henry was an American football wide receiver who played five seasons in the National Football League for the Cincinnati Bengals. He played college football at West Virginia and was drafted by the Bengals in the third round of the 2005 NFL Draft.
Carolyn shares her thoughts about her experience with the donation and with Chris becoming a donor, what she learned about organ, eye, and tissue donation.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Carolyn Henry

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During this episode of This Thing Called Life podcast, host Andi Johnson talks to Robin Tackett and Monica Weakley. They share from raw, personal experiences of how organ donation has touched their lives; this is a beautiful inspirational story that you don’t want to miss!

Episode Highlights:

In 2006, Monica’s friend Katie got sick from a virus that attacked her kidney. Monica voluntarily decided to support her friend and donate her kidney. It has been 14 years since the donation both Monica and Katie are doing great.
A couple of years ago, Monica realized that her mother was going through an early stage of kidney failure. She and her mom both have a rare blood group. For a moment, she felt certain that her kidney would have matched for her mother. But she kept her calm, knowing that karma was on her side.
Monica’s mom is 73 years old, her condition kept deteriorating, and during Covid, she was in the stage of renal failure. Her mom was reading too much information on the internet and getting misinformed.
One day, Monica put out a video on Facebook to friends and acquaintances asking them if they would get tested for kidney donation. The initial response was great, but as the talk progressed, people started dropping out. When the time for actual testing came, there were only a handful of people left. Finally, Robin, who got tested and was a perfect match.
It is unlikely to find someone outside the family circle with such a perfect match; Monica and her mom Nancy were overwhelmed with emotion. Andi inquires, “Was there a time when your mom said no to going ahead with the surgery?”
Andi shares a concern that older people often say no to kidney transplantation.
Monica shares how Robin and her mom got very close when she was taking care of Robin’s dog. Her mom was relieved when she heard that a known person was donating her the kidney.
Andi asks, Talk about the days leading up to the transplant and how you were preparing for that. “Was there anyone in your circle or your family that said, ‘Hey, maybe you want to think this through a little bit more?” or anyone trying to dissuade you from making the decision?
Robin shares her situation during the pandemic, how the hospital was vacant, and the fear of getting infected. For the surgery, she said, “We checked in on Monday night to get a COVID test. Surgery was at 7:00am Tuesday morning, and I was home by 3:00pm Wednesday.”
Monica talks about her nervousness during the surgery and the emotional ride that her entire family took.
Nancy is really grateful to Robin; She loves and appreciates her constantly. Robin shares her motivation to educate people about kidney donation.
Andi asks, “How is Nancy doing these days? Is she feeling good?” She is living the life of a rock star, says Monica. But they are taking precautions because of Covid.
Robin has no regret post donating her kidney; She feels it is like a badge of honor. She celebrated with them afterward!
There are thousands and thousands of more stories like Nancy’s, and the reality is that many people will not survive because their story didn’t end with them receiving a transplant.
In the last few months, Andi has lost two friends who were waiting for kidney transplants that just did not come in time, but the other reality is that we can prevent this and have a wonderful donation experience like Robin or Monica.
Andi asks the listeners to visit Lifepassion.org and check out the many stories about donation. You can learn more about the people who became donors, read about the recipients who received the miraculous gifts of organ tissue and cornea donation, and how their lives have changed, and you can also read about the individuals who are living donors.

3 Key Points:

Monica Weakley, a kidney donor, talks about what she experienced when her own mom’s kidney failed and she had to look for donors.
Robin shares her side of the story and how people discouraged her once she got tested for kidney donation.
At present, Robin is trying to raise awareness around kidney donation and educating people from her own personal experience.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website

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Healing through the gift of tissue donation, an interview with Lincoln Ware on WDBZ

Lincoln Ware and Andi Johnson discuss Life Centers involvement in the community educating and advocating for those in need of a transplant. The key is making sure there is accurate information about donation being discussed and the conversation is driven by facts not myths.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During this episode of This Thing Called Life podcast, host Andi Johnson talks to Ickey Woods, a former American football player - Cincinnati Bengals Fullback. Sadly, he lost his son, Elbert Jovante Woods, 10 years ago. Now Ickey and his family are trying to make a difference in the world by educating others about organ donation and asthma.

Episode Highlights:

Ickey shares his story about being outside doing yard work when he received a call from home that his son, Elbert had collapsed.
As Ickey rushed to the spot, he saw an ambulance, and in that, they were trying to resuscitate his son. They all soon headed to the hospital.
The moment Ickey entered the hospital and opened the door, he saw a Chaplain.
His son’s brain had been without oxygen for about 30 minutes while he was being taken to the hospital
Due to lack of oxygen, Jovante’s brain had started to swell, which the doctor said was not a good sign.
A couple of days later, in a heart-breaking turn of events, the doctor pronounced Ickey’s son as Brain Dead. Ickey and his wife decided to pull the plug.
Two women from the life center visited them and informed Ickey and his wife that their son had said yes on the driver’s permit that he wanted to donate his organs.
Ickey had never heard anything about organ donation, and in the African American community, there aren’t many organ donors. So, he was really taken aback hearing about his son’s choice.
Ickey discussed organ donation with his wife, and they mutually made their decision based on what Jovante wanted.
Ickey talks about the foundation that he and his family members have created in memory and honor of Jovante.
Through the foundation, Ickey and his wife’s goal is to educate people about asthma and organ donation.
Ickey shares details about the scholarship that they provide to students through the Jovante Woods Foundation.
Andi asks Ickey how he coped with Jovante’s untimely demise.
Ickey talks about his heart-breaking efforts to stay strong and support his family.
Finally, launching the foundation in Jovante’s memory gave Ickey some direction and peace of mind.

3 Key Points:

Ickey Woods takes the listeners on an emotional ride while sharing details of his son’s death. He also talks about Jovante’s decision for organ donation.
Jovante saved 4 lives with his organs and countless others with his tissues. Ickey felt really proud of his son and had registered himself and his family members for organ donation.
Andi and Ickey talk about the misconceptions surrounding organ donation and the importance of educating people.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Jovante Woods Foundation

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The Journey Of Kidney Disease And The Impact On A Family & Community

This week’s episode explores the journey of Mr. Todd Cade, who is in need of a kidney. It all started over 13 years ago when Todd received a kidney donation from his brother. This episode explores the fears, relationships and struggles that occur to an individual and their family as they manage this next phase of the journey.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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In today’s episode host Andi Johnson talks to Rick Greene about his decision to be a living kidney donor. He shares his personal story of taking step by step to line up for a perfect match.

Episode Highlights:

Andi asks Rick to share his story and what led him to the place where now he wants to help someone as a living kidney donor.
Rick says he had a habit of grabbing the TV remote when he got home. In 2014, one night on entertainment tonight, he saw Marvin Gaye seeking a kidney donor. Rick reached out and called the number, after 4 days he went for the testing.
Marvin’s wife informed Rick that six people before him were rejected because of poor matching.
Rick says he doesn’t believe in his body anyway, and he only believed that all belongs to God.
Post donating his kidney, Rick says his surgeon told “The more you walk, the more you will heal.” Slowly he started feeling better each day.
In seven years, “Have you had any issues as a result of donating a kidney?” asks Andi.
Andi asks Rick, what would he say to someone who is considering being a living kidney donor?
Rick says he and Marvin Gaye III talk all the time, and he is doing great. By the grace of God, he got his life back.
Andi applauds Rick for all he has done and says he is a giver, and it feels like God has moved him to a place where he can help people.
Rick and Andi agree to a simple and right message that is “Choose Love.”
Rick says we make things more complicated than they need to be.
Everyone should pray about it and talk to God about it; If you can be considered as an organ donor and if you are comfortable donating, do it, says Rick.
Do you feel like you inspire other people to do what you do by sharing your story? Andi asks Rick.
Rick says he prays that people would consider donation and how it could bless someone to move forward in life.

3 Key Points:

Rick talks about the donation and healing process so that people can understand more about what it means to be a living kidney donor.
Andi asks Rick for his opinion about “Why many people of color, specifically American African’s, don’t want to donate their organs?”
We learn to share and exchange information, and that is how we help and support one another, says Andi.

Resources Mentioned:

LifeCenter website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website

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Advocacy For Organ And Tissue Donation In The Community, an interview with Lincoln Ware on WDBZ

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During episode 23 of This Thing Called Life podcast, host Andi Johnson talks to Bobby Schrichten; He is a manager at the Tissue Services Department and a long-time staff member at the LifeCenter. Andi and Bobby discuss how organ donation happens and the moving parts that contributes to giving the gift of life. Tune in for this important, informative talk!

Episode Highlights:

Bobby talks about his journey at the LifeCenter, where he joined 15 years ago as a Perfusionist.
A perfusionist is an individual who is available in the operating rooms and makes donations happen from respective organizations and teams for recovery.
A perfusionist is also a transporter and logistic role who travels all over to recover organs and bring them back to the center.
Andi confirms that so much happens for an organ to recover from the patient. Transporting an organ requires a lot of effort; It also has to be matched with a patient in a short period of time.
Bobby says he took a short time break from the Perfusionist position and joined the community center, which is now a donation support service center.
The donation support service team manages and deals with all referral aspects of individuals and hospitals.
Andi informs that the law requires hospitals to report every death to LifeCenter and other organ procurement organizations throughout the country.
Bobby’s career journey led him to return to his role of perfusionist and after 3 years, Bobby got the responsibility of the Tissue recovery center at the LifeCenter.
Andi asks Bobby “Before working at the LifeCenter, what did you know about organ or tissue donation?”
Bobby shares about the EMS program that he has created.
The person who dies on the scene are tissue donors, not the organ donor, because in order to become an organ donor, you have to be in the hospital.
Ensuring that his team is emotionally and physically well is the most challenging thing for him at the LifeCenter, because they have to make a recovery and also have to cope with families who have lost their loved ones.
Andi addresses organ, eye, and tissue donation in regards to the LGBTQIA community. She asks Bobby to share his insights and what the restrictions are around donation?
Due to a lifestyle that is allegedly associated with gay men, the Tissue Banking industry has decided that we can’t donate tissue, says Bobby. They allow donated organs, but not eye or tissue.
There are so many tests to make sure that everything is safe and can be transplanted.
As demand is increasing, we will see many changes in the coming years when it comes to tissue, eye, and organ donation. It will allow more people to help more people, and that’s what is most important.
The HIV Organ Policy Equity act was passed, and it allows organ donation between HIV-positive individuals.
Bobby says that due to the HIV act, required organs are available for needed folks to live on, make changes, and be the people in society that they were supposed to be.

3 Key Points:

Bobby talks about his love to help people, save lives, and change lives forever. He also talks about the motivating factors that push him forward.
Andi refers to Bobby as a compassionate leader who truly cares for every person on his team. He comes every day and gives everything to the LifeCenter.
Bobby says he loves everything about LifeCenter, not because of his position but due to the people he works with, the team he has, and the overall mission and vision of the LifeCenter.

Resources Mentioned:

LifeCenter website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Bobby Schrichten | https://lifepassiton.org/who-we-are/leadership/

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Melissa Armstrong and Andi Johnson join Liz Bonis for an interview on What’s Happening In Health that airs every Sunday on WKRC TV. This interview focuses on the 40 year anniversary celebration and the planting of live trees at Mt. Echo Park creating the Path of Life. Melissa shares her story of her battle with a genetic kidney disease and how long she has been waiting for a kidney. We all can learn something from this very powerful message.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During episode 22 of This Thing Called Life podcast, host Andi Johnson talks to Audrey Holtzman, Diversity Outreach and Educator Associate at LifeCenter. Audrey is educating high school kids about organ donations so that they can make an informed decision.

Episode Highlights:

Audrey is working with LifeCenter as a Diversity Outreach and Educator Associate and recently celebrated her second work anniversary with LifeCenter.
When students get ready to get their driver’s license, that is when they decide if they are going to register as a donor.
Audrey wishes to empower young people just to be the best they can be.
She came to know about organ donation through her brother Henry. Henry had an accident while riding his bike.
Sadly, Henry suffered severe head injuries and was in ICU with a life support system. Her sister-in-law told Audrey that he was a registered donor.
The doctors asked Audrey’s mother’s permission to recover Henry’s organs as he was a registered organ donor, and it was his decision.
The fondest memory of Henry for Audrey is the way he interacted with his friends and the way he loved being a teacher.
Donation is not a topic that people talk about, which makes her job in high school more crucial because it is a conversation the community needs to have to help save lives.
Henry saved the lives of 8 people with his choice to donate his organs.
It is a personal choice to be a donor but people need to have the clear and correct information.
More conversations about donation and also about the process will help encourage people to be willing to register as organ donors.
Audrey says, “We do a great job here at LifeCenter to walk our families through the whole process even when we know they are grieving. “
Andi says it is important to have the conversation with our family members so that if something happened suddenly, the family would know what to do.
When talking to leaders of different communities and asking what their faith believes about donation, not a single one of them said no we don’t believe in donation because if it is as a gift, it is not against our religion.
People just need to take a moment to look into the information and get to know what it means, and that could remove apprehension about being able to do something beautiful.

3 Key Points:

Audrey shares about her life journey. She was born in Liberia, West Africa came to America at the age of thirteen, and in 2016 received American citizenship. Before joining LifeCenter she was a registered organ donor, and it’s been about 10 years now.
When it comes to organ donation, parents have both cultural and religious thinking. There is a lot of helpful information to consider about being able to donate.
Andi asks about Audrey’s experience while working in this field, being immersed in the community and talking to people about donation, especially in the community of color and the areas where people are poor and underserved. She inquires “What stood out to talk to them about the donation?”

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website

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The Path Of Life, For Those Who Donated

Andi joins Radio One’s Lincoln Ware for a conversation about The Path Of Life at Mount Echo park that honors 40 years of Organ Eye, and Tissue Donation. This episode also honors the Nurses in our community for the service they provide.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During episode 21 of This Thing Called Life podcast, host Andi Johnson talks to Robert Wilder. Robert shares his story and who he is fighting for in this season of his life. Andi reminds the listeners that our nation is in the midst of an organ shortage, and in order to minimize that, more people are needed to register for organ donation.

Episode Highlights:

Andi asks Robert to share about his beautiful, spunky, fun-loving wife and also about his family story.
Robert's wife developed kidney disease which pushed her to a point where she was not able to work anymore.
A couple of months ago, she had a heart attack due to a lack of oxygen in her organs and instigated the need for a kidney transplant.
Privacy sometimes has to do with embarrassments; some people don’t want to tell others what’s happening inside their homes.
Going through mental health struggles, people don’t want to talk about that because of the stigma of appearing weak.
Lupus is what destroyed her kidneys, which is typical for patients with the condition.
Robert says his daughter is the biggest blessing for him and his wife; she lives her best life and is a rock for their family. She trusts the process.
His wife is now becoming healthy and bouncing back, and he is excited that she is going to be home in a few days.
Andi asks Robert, “When you were growing up, what was your view about donation?”
Their daughter is 11years old now, and he has to be strong for her because she depends on him and his wife. There are so many responsibilities that keep Robert going in hard times.
Robert shares about his faith and says you must believe and try to give it up to God.
They are excited for Tysha and the progress she has made with better communication.
Andi says his wife is a fighter, a beautiful partner, and a beautiful mother to their daughter, and she is blessed to have him as her champion.

3 Key Points:

Robert talks about his personal journey to get his wife a kidney.
Andi refers to the love and support from family and his daughter’s school friends, and what it means to him.
Robert says he has learned that people genuinely want to help if they know you need help.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Robert’s Story

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A Mothers Beautiful Gift To Her Daughter

Tabatha Allen and her daughter Emma were featured on WKRC TV and shared this special story of a mother’s love.

Resources

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During episode 20 of This Thing Called Life podcast, host Andi Johnson talks to Ickey Woods, a former American football player - Cincinnati Bengals Fullback. Sadly, he lost his son, Elbert Jovante Woods, 10 years ago. Now Ickey and his family are trying to make a difference in the world by educating others about organ donation and asthma.

Episode Highlights:

Ickey shares his story about being outside doing yard work when he received a call from home that his son, Elbert had collapsed.
As Ickey rushed to the spot, he saw an ambulance, and in that, they were trying to resuscitate his son. They all soon headed to the hospital.
The moment Ickey entered the hospital and opened the door, he saw a Chaplain.
His son’s brain had been without oxygen for about 30 minutes while he was being taken to the hospital
Due to lack of oxygen, Jovante’s brain had started to swell, which the doctor said was not a good sign.
A couple of days later, in a heart-breaking turn of events, the doctor pronounced Ickey’s son as Brain Dead. Ickey and his wife decided to pull the plug.
Two women from the life center visited them and informed Ickey and his wife that their son had said yes on the driver’s permit that he wanted to donate his organs.
Ickey had never heard anything about organ donation, and in the African American community, there aren’t many organ donors. So, he was really taken aback hearing about his son’s choice.
Ickey discussed organ donation with his wife, and they mutually made their decision based on what Jovante wanted.
Ickey talks about the foundation that he and his family members have created in memory and honor of Jovante.
Through the foundation, Ickey and his wife’s goal is to educate people about asthma and organ donation.
Ickey shares details about the scholarship that they provide to students through the Jovante Woods Foundation.
Andi asks Ickey how he coped with Jovante’s untimely demise.
Ickey talks about his heart-breaking efforts to stay strong and support his family.
Finally, launching the foundation in Jovante’s memory gave Ickey some direction and peace of mind.

3 Key Points:

Ickey Woods takes the listeners on an emotional ride while sharing details of his son’s death. He also talks about Jovante’s decision for organ donation.
Jovante saved 4 lives with his organs and countless others with his tissues. Ickey felt really proud of his son and had registered himself and his family members for organ donation.
Andi and Ickey talk about the misconceptions surrounding organ donation and the importance of educating people.

Resources Mentioned:

LifeCenter | website | Facebook | Instagram | YouTube| Twitter
Andi Johnson website |LinkedIn
Organ Donation Website
Jovante Woods Foundation

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Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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Host Andi Johnson introduces the listeners to powerful stories about organ, eye, and tissue donations. In this episode, Andi talks to Missy Holiday, who has spent around 28 years in organ, eye, and tissue donation.

Episode Highlights:

Andi reminds listeners that April is “National Donate Month”. This is the best month to learn about organ, life, and tissue donation.
Missy talks about her career path of almost three decades. She went to nursing school and had a goal to become a pediatric nurse.
After a couple of years, her sister had a car accident. She was air-lifted to the University of Cincinnati Hospital, where all attempts to save her life failed.
Upon entering the hospital, Missy and other family members got the news that her sister’s condition was not good.
As a newly graduated nurse, Missy had some exposure to donations. Missy was really young back then and she had never imagined that donation would touch her life. She couldn’t have been more wrong.
After conducting several tests, the doctors informed the family that Missy’s sister was brain dead.
Her family said “YES” to organ donation and this changed Missy’s career path.
In 1993, 2 years after her sister passed away, she joined Life Center because she wanted to be a part of the change.
She wanted to change how families are approached for this rare opportunity of organ donation.
Joining Life Center, Missy shared her story with the leadership and raised the concern that other families might not consider donation because of how they are approached.
Over the years, she has ensured that requesters at the Life Center go through very extensive training.
Requesters at the Life Center make sure families have a complete understanding of their loved one’s condition.
Missy joined The Life Center in 1993 when only 12-15 people worked there, and now they have 80+.
Families often hesitate to donate organs, either due to misconceptions or grief.
When it comes to organ donation, the base myth that Missy hears the most is that - the hospital will not do everything to save his/her life if a person opts for organ donation.
Recently Life Center was involved in the “first-ever organ recovery”. They were able to recover a heart for transplantation from a donor, which was impossible. This donor was able to save six people.
COVID does not exclude someone from becoming a donor. People working at Life Center look at every case individually.
“Honor Walks” were introduced at Life Center 3 years ago. They wanted to honor the gifts and make sure that the families feel that.
When it comes to work-life balance, Missy credits her husband. Her parents and kids are proud of what she does.
The Life Center serves 35 hospitals in the greater Cincinnati area, and they work closely with several partners to make sure that the entire process of organ donation is respectful and supportive.

3 Key Points:

Missy talks about her personal experience with organ donation. Her sister had a fatal accident and after conducting several tests, was declared brain dead. Initially, the diagnosis was confusing for the family because her body was warm and other body parts were functioning.
Requesters at the Life Center ensure that empathy is central to their discussion when talking to families about donations. It is not about somebody who is in need. It is about knowing that this can comfort a family in the days and months ahead.
Life center is celebrating 40 years of serving the community and the nation. As a veteran at the Life Center, Missy talks about the most significant changes since she joined.

Resources Mentioned:

LifeCenter Cincinnati Website | Facebook| Instagram| Twitter | YouTube | Leadership
Donate Life
Visit https://lifepassiton.org/ to register or to get involved in organ donation. You can also buy or donate life cookies in-store or online at busken.com. For each cookie purchase - an original cookie will be given to a healthcare hero who works with the Life Center’s Hospital Partners.

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Andi Johnson joins Rodney Lear on Sunday Morning Magazine discussing organ donation and Life Center's role in the community.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During episode 18 of This Thing Called Life podcast, host Andi Johnson interacts with Lisa Cooney – a retired anchor from WLW-TV. She shares exciting incidents from her 30+ career journey. This Thing Called Life podcast is dedicated to share stories about acts of giving, kindness, compassion, and humanity. Andi reminds listeners that April is the perfect month to learn more about organ, eye, or tissue donation and determine how you can help others.

Episode Highlights:

Talking about Lisa’s media journey, Andi inquires, “While you were engaged with WLW-TV, what was your favorite story that you covered?”
Lisa shared a few good and bad situations, especially her coverage on organ donation.
She proudly shared about winning an Emmy award for covering an exciting story on Cincinnati's fire department.
Since Lisa has retired after a fulfilling career, Andi curiously asks, “What are you up-to-now?”
Lisa shared a few fun moments from her personal life as well as professional journey.
She shares about her current engagement as a consultant where she teaches people how to handle media and crisis.
Lisa proudly talks about her kid’s achievements; She says the secret to her kid's success is hard work and dedication towards their goal.
They discussed the pandemic and Andi pointed out that the locked-down forced everybody to slow down and connect with family members.
Andi talked about organ donation and what emotional turmoil the donor and receiver go through.
Hearing that, Lisa shared like any other first-time donor, she too was scared but decided to take the plunge.
She proudly shares about her family’s support and how they recently celebrated the day with a kidney-shaped cake.
Andi inquired, "What would you say to someone who is considering to be a living kidney donor?"

3 Key Points:

Lisa Cooney shares a life-changing incident about organ donation that happened 20 years ago.
Not everything on the internet is true, do not take it as gospel, seek out correct information from designated authorities.
The pandemic changed everyone’s way of life, Andi and Lisa brainstorm what they have learned from it. Listeners learn about how they adjusted, respected each other’s comfort zone, and looked at the positive side of it.

Resources Mentioned:

LifeCenter Cincinnati Website | Facebook| Instagram| Twitter | YouTube |
Organ Donation Website: https://www.donatelife.net/
Lisa Cooney: lisacooneyconsulting@gmail.com

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In this episode, Andi talks with Life Center Executive Director, Barry Massa about the 40 year anniversary of Life Center.

Resources:

https://lifepassiton.org/

https://lifepassiton.org/who-we-are/leadership/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During episode 17 of This Thing Called Life podcast, host Andi Johnson speaks with Robert Winter, a man that has worked in the field of eye and tissue donation for over twenty-five years. Though it’s difficult, Robert and his team do their best to comfort grieving families while educating them on the benefits of donating!

Episode Highlights:

There is a lot of misinformation about organ donation that exists because of a mistrust of the healthcare system.
Robert has been in the field of tissue donation for over twenty-five years.
The medical field has been a strong interest of Robert’s for his entire life because it provides the opportunity to help people.
Robert has noticed that everyone in his field shares a common interest in wanting to make a positive difference.
The most life-saving gift for tissue donation is one of the human-skin graphs for burn victims.
Jason Schechterle suffered third and fourth-degree burns as a police officer in Phoenix when his car exploded after getting hit.
The details of Jason’s survival came down to seconds of circumstances and now he shares his story all over the country.
Hearing the stories of burn victims and survivors gives people perspective on just how important tissue donation is.
Danny Happy suffered his burn injuries as a ten-year-old and spent months in acute care, receiving over two-hundred feet of skin that saved his life.
Robert and his team are approaching families on one of the worst days of their lives.
Being able to express that tissue donations are going to help someone down the road is necessary when talking to families that have lost a loved one.
Families who have lost a loved one are burdened with making a lot of decisions and dealing with the decisions of their loved one.
The knowledge that their loved one is going to save someone’s life brings some sort of comfort to grieving families.
There are many stories of competitive athletes being able to return to their respective sports as a result of tissue donations.
AlloSource acts as step two of a three-step process by preparing tissue donations to be used in a surgical environment.
A disconnect exists between medical practitioners and the origin of tissue donations for their patients.
Great joy can be brought to donor families by hearing back from those that have received the donation.
It’s very challenging to deal with families who have gone through an extreme loss on a day-to-day basis.
Sometimes, families refuse to donate regardless of the fact that their loved one made the decision to do so.
Robert finds that knowing that people’s lives are being saved and dramatically improved is the most rewarding part of his industry.
Focusing on the recipients and the donor families makes it easy for Robert to love his job.
The goal of organ and tissue donation must be to educate as many people as possible.

3 Key Points:

Burn patients are very susceptible to infection and thermal regulation, making human-skin graphs incredibly vital to their survival.
Jason Schechterle and Danny Happy are both motivational speakers who survived their burn injuries as a result of life-saving tissue donation.
One of the difficulties with expressing the benefits of tissue donation to grieving families is that it could be a long time before the positive effects are felt from the donation.

Resources Mentioned:

LifeCenter Cincinnati | Website | Facebook| Instagram| Twitter | YouTube |
Survivor Stories |Jason Schechterle | Danny Happy
AlloSource
The American Association of Tissue Banks

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Andi and Lincoln talk about National Kidney Donation Month on WDBZ

Resources

https://lifepassiton.org/

https://www.facebook.com/LifeCenterOH

513-558-5555

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During episode 16 of This Thing Called Life podcast, host Andi Johnson speaks with Dr. Madison Cuffy, an Associate Professor of Surgery and the Kidney Director at the University of Cincinnati. Dr. Cuffy has built trust-filled relationships with his patients throughout the years and loves nothing more than to see them live their lives to the fullest after getting their transplant. March is national kidney month!

Episode Highlights:

Dr. Cuffy started his medical journey back in 2002 during his residency, before doing a transplant fellowship at New York Presbyterian.
Growing up in Brooklyn, Dr. Cuffy was first introduced to Cincinnati by Talib Kweli and Hi Tek.
As a 14-year-old, Dr. Cuffy was volunteering in a hospital cleaning instruments.
Even to this day, no one in Dr. Cuffy’s family has experience in medicine, nor any clue what a transplant surgeon does.
Dr. Cuffy was born in the Caribbean and grew up with his great aunt in New York.
One of the most common misconceptions surrounding organ donation is that the medical community will let you die.
After being in transplant and seeing how one can help create life during a time of despair, Dr. Cuffy became an organ donor.
The medical community is not out to harm organ donors for their organs, contrary to popular belief.
COVID has disproportionately impacted the African American community, leading to a rise in a renewed mistrust of the medical community.
It’s who passes on the information about medical issues like COVID that is important.
Despite all the concerns and misinformation that has been passed along, Dr. Cuffy highly recommends getting the COVID vaccination.
According to the statistics, on average, 22 people die every day waiting on an organ transplant.
While most of his focus is on kidney transplants, Dr. Cuffy does work with all transplant organs.
There is an access problem for people who need a kidney transplant and are on dialysis.
Over the span of a year, Dr. Cuffy performs around 70 kidney transplants.
During the pandemic in 2020, the transplant team was able to get recipients in and out with anyone contracting COVID.
Dr. Cuffy facilitates living kidney donation as the best option to treat end-stage renal disease.
Andi has noticed that people of color tend to shy away from sharing their donation needs with other people.
Socioeconomic issues and disadvantages can make it more difficult for certain patients to share their stories.
People who don’t want to share their stories need a donor champion to do it for them.
There are different forms of literacy, so Dr. Cuffy makes sure his patients know that there is no stupid question.
It’s important for patients to speak up about their questions to their doctor so that they don’t go get misinformation from another source.
If your physician is too busy to answer your questions now or in the future, you may need to find a different provider.
Dr. Cuffy feels rewarded by his job when he sees his patients experiencing life after their transplant.
His grandmother’s advice to be who he is, even when things get tough, gets Dr. Cuffy through his hard days.
Raised without his parents in Brooklyn, Dr. Cuffy knows first hand that you can do anything you set your mind to.
Dr. Cuffy has always had an extra gear that has allowed him to outwork everyone around him.
When he goes back to Brooklyn now, Dr. Cuffy gets a different kind of respect from the people he grew up with.
Dr. Cuffy thoroughly enjoys going to J. Alexanders in Cincinnati because of the sheer amount of professional African Americans that go there.

3 Key Points:

While volunteering at a hospital with the hopes of staying off the streets as a 15-year-old boy, Dr. Cuffy had the opportunity to watch a kidney transplant up close, and that’s how he chose the transplant route.
Unlike in other cities that have multiple transplant programs with different surgeons, Cincinnati has a single transplant program where the doctors act as one unit.
Living donor kidneys last anywhere from 15 to 20 years, recipients don’t have to wait on a list to get one, and the quality is usually very good.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Dr. Madison Cuffy (website)
University of Cincinnati Kidney Transplant

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During episode 15 of This Thing Called Life podcast, host Andi Johnson speaks with Paula Franckhauser, a woman who has been in the fight for a long time but is now retiring from the kidney transplant game. Paula knows all things kidney and has dedicated almost half of her life to changing the lives of so many!

Episode Highlights:

Paula turned 65 recently and thinks that after over 20 years of service, it’s time for younger nurses to take over the fight.
For the last 5 years, Paula has taken over the responsibility of handling the kidney transplant waitlist.
Some people have to wait years on the kidney transplant wait list depending on their blood type.
Paula feels as though she has become part of the families of those who are waiting on a kidney transplant.
After working on the floor as a nurse and as a case manager for a few years, Paula fell in love with her role in the transplant office.
Paula’s 30-year nursing career started out in long-term care but she has held a plethora of roles since then.
When Paula first started at Christ’s hospital in Cincinnati, there was only one nurse.
Most people are severely undereducated about how their kidneys work, thus leading to unhealthy habits.
The morning after a transplant, people have color back in their eyes and a smile on their face.
Many people don’t know how well they can do after a kidney transplant with only one kidney.
People make the mistake of thinking that just because they don’t match their loved one, they can’t make a difference.
The National Kidney Registration, NKR, offers a solution to a massive issue in a network that stretches across the country.
Paula has enjoyed watching friendships evolve from kidney transplants between the recipients and the donors.
Kidney donation programs are incredibly picky with living donors, but 20-years ago, there wasn’t enough known genetically.
The biggest problem that non-compliant recipients have is that Medicare goes away after 3 years.
If any complications come from the kidney transplant for donors, Medicare covers them for life.
Paula has found an incredible amount of joy in making the phone calls to long-waiting recipients to tell them they have a kidney.
For young nurses and doctors who are looking to join the transplant field, they need to get involved in their off-time.
The Transplant Breakfast and Kidney Walks are great ways for young medical professionals to get involved.
2020 has taught everyone the importance of coming together as a community to lift each other up.
One of the biggest myths surrounding healthcare is that medical professionals will not save a life if they are a registered donor.
The communication between donation centers and hospitals has improved an incredible amount over the last 20 years.
Paula, unfortunately, lost a patient at the beginning of her career but did everything she could to comfort his wife.
When you are as involved in and connected with the lives of recipients as Paula is, a bond is formed forever.
The Kidney Foundation is always accepting volunteers, so don’t be afraid to reach out.
Through the pandemic, The Christ Hospital only slowed down a little with living donors but did as many overall as they ever do.

3 Key Points:

The education process around kidney function is massively underdeveloped, and Paula would love to establish better education starting in high school.
The parent-kidney donation program involves someone who doesn’t match their loved one but does match with someone else on the list and vice versa.
Medicare stops covering prescriptions after only 3 years, so many of the recipients who don’t work are forced to find jobs in order to afford their medicine.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
The Christ Hospital

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During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Donna Jones Baker who recently received the gift of life through the donation of a kidney and a heart. Donna has learned to appreciate organ donation and its ability to help save so many lives!

Episode Highlights:

February 14th is National Donor Day, a day to honor all those who have been affected by organ donation.
Donna was originally born in Paducah, Kentucky and went to Murray State University.
After getting married, Donna lived in Baltimore for 22 years before moving to Cincinnati to become the CEO of The Urban League.
Had it not been for the heart attack that she suffered, Donna believes she would still be at The Urban League.
Initially, Donna received a Z-pack for what she thought to be a cold or a flu.
Donna was able to make it to the hospital after suffering from a heart attack where she was equipped with an LVAD.
Doctors wanted to give Donna a heart transplant, but couldn’t because they discovered cancer on her kidney.
After doctors removed her kidney, Donna was placed on the transplant list for a new heart and kidney.
According to the numbers, people of color suffer disproportionately from the effects of COVID.
The months between her kidney removal and kidney/heart transplant were very scary for Donna.
Doctors feared that Donna’s remaining kidney would not be able to support her and that she would have to go on dialysis.
The same doctor that fixed Donna’s LVAD performed her heart and kidney transplant.
Donna had to be careful with the medications that she took because the heart and kidney don’t want the same things.
With the help of her husband, Greg, Donna was able to make it through a transplant during a pandemic.
Donna advises those going through a similar situation to try not to think about it all the time.
The gifts of life and grandchildren keep Donna grateful for every day that she opens her eyes.
Through the pandemic, Donna has remained in touch with her children and grandchildren via Zoom.
Working in organ donation is a tough job, but one that saves many lives.
Donna hopes to schedule a trip to Baltimore to visit her grandchildren once the pandemic is over.
Right now, there are over 100,000 people in need of a life-saving transplant surgery.

3 Key Points:

After initially thinking she had the flu, Donna agreed to host a round table event on Friday the 13th. That following Sunday, she suffered a heart attack from Giant Cell Myocarditis.
Many African Americans decline to become organ donors out of a fear that if someone of note needed an organ, doctors would take it from them without consideration for their lives.
To stay in touch and grow with her family members, Donna has started a Sunday night Zoom Bible study.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Donna’s Story
Urban League Of Greater Southwestern Ohio

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During this episode of This Thing Called Life, host Andi Johnson speaks with Betsy Morgan, the Donation Support Services Trainer at LifeCenter. Betsy trains members of her team on how to approach families for donation interviews while remaining supportive in their time of need.

Episode Highlights:

Betsy began at LifeCenter as a Donation Support Specialist Coordinator back in 2015.
In her role, Betsy and her team approach and support families during the organ donation process.
Before coming to LifeCenter, Betsy was a nurse manager, something she attributes to her love of helping people.
Betsy loves her job because she gets to see the good things in life, even though the rest of the world is chaotic.
Sometimes the right thing to say is to say nothing; just showing support is something that people need.
You can decide the right thing to say to a donor family based on where they are in their donation journey.
People just want to be heard sometimes, so it can be as simple as picking up the phone and listening.
With her previous work experience, Betsy knew about organs but didn’t know there were so many ways to donate.
As technology and healthcare methods change and move forward, there are more and more ways to help those who need donation.
The process of interviewing the families is a long and difficult one, but Betsy focuses on all the good that the gifts will do.
Answering the interview questions can be a very difficult and arduous process but is necessary to ensure safe donations.
During a past Donor Family Ceremony, Betsy comforted a crying woman that she had actually interviewed over the phone.
Dealing with death every day is difficult but workers at LifeCenter are given purpose when making connections with families.
It takes a high level of compassion and belief in the job to comfort people in their time of need.
Conducting interviews over the phone, due to COVID, makes it more difficult to read emotions.
Betsy must stay open-minded and understanding when approaching a family, especially over the phone.
In such an emotionally taxing role, Betsy relies heavily on the support system at LifeCenter.
Talking about and debriefing on the more difficult cases provides Betsy and her team with a form of relief.
Teams that feel supported and encouraged tend to feel more confident and do better in their individual roles.
When coming into such difficult and emotionally heavy conversations, it’s important to remain your authentic self.
Though donor families will feel very alone, especially during a pandemic, there are always people/organizations out there to support them.
Finding people that can relate to the process or pain can be a great way for grievers to find an outlet.
Betsy made it her goal this year to simplify life and find the good amongst the sea of bad.

3 Key Points:

In a world filled with so much negativity and bad things, Betsy loves her job at LifeCenter because she gets to see so much positivity and good.
While the interview process is filled with difficult and uncomfortable questions for donor families, it must be completed to ensure that the organs being donated go to the right recipients.
COVID has forced Betsy and others in her position to learn how to have these talks over the phone where emotion is harder to translate.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)

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During this episode, host Andi Johnson speaks with Renee Mahaffey Harris, President and CEO of the Center for Closing the Health Gap in Cincinnati. Renee and the CCHG are working tirelessly to educate everyone on the hidden factors that contribute to the racial disparity in the health of the American population!

Episode Highlights:

Think about all the resources that you have available to meet all the needs in your life.
Some people have to make a choice between necessities.
CCHG works to close the health disparity that exists between races and socioeconomic classes in the Cincinnati area.
According to multiple research studies over the last 40+ years, there is a disproportion of health amongst black and brown communities.
COVID-19 has had a disproportionate effect on the black and brown communities.
Last year, the pandemic and systemic racism combined to create a public health crisis.
Renee has played a major role in the declaration of racism as a public health crisis in the Cincinnati area.
Transportation planning is one example of a factor that contributes to systemic racism.
The inhumanity of the murder of George Floyd sparked a movement in this country to fight systemic racism.
Differences in police presence between BLM protests and the storming of the capital is a clear sign of systemic racism.
Based on multiple studies, income has very little to do with one’s health outcome.
A perception that black people have a higher threshold for pain has led to a disparity in prescriptions for black people.
Systemic racism in this country can find its roots all the way back to slavery in the United States.
Today, Cincinnati is the 5th most segregated city in America.
Renee was actually told that she couldn’t run for class president when she was in 6th grade because she was black.
Stress that is placed on black people by systemic racism plays a large role in their socioeconomic status.
2020 has taken the problem of systemic racism beyond conversation and into policy review and renovation.
With such a small margin of profit, grocery stores will continue to locate in places that are easier for people to drive to.
Early on, Renee did not want to be an organ donor because of a myth that perpetuated through the black community.
Across the board in just about every area of today’s issues, there is a mistrust of the governmental system.
CCHG has gathered information from black professionals in the health community in an attempt to garner more trust around the vaccine.
Scientists were able to use information from the SARS epidemic to speed up the creation of finding a vaccine for COVID.
Those that don’t believe there is racial disparity in the healthcare system simply need to look at the numbers from various research studies.
Taking the bias out of the healthcare system has to start in medical school and medical training.
CCHG started 16 years ago and is the only health disparity organization that both conducts its own research and houses its own data.
Education is only as good as its ability to be understood by those it was created for.
The “We Must Save Us” campaign is aimed at educating people around all the impacts of COVID-19.

3 Key Points:

Multiple studies conducted since the Reagan Administration have shown that black and brown communities are disproportionately affected by health problems.
How you treat people from other races is largely influenced by how segregated your childhood was and contributes to the systemic racism that we see today.
Many people that distrust the speed at which the COVID-19 vaccine was created need to know that scientists were given a head start by the information available from the SARS epidemic in the early 2000s.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Center for Closing the Health Gap (website, WMSU Campaign)
COVID-19 Resources

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During this episode of This Thing Called Life, host Andi Johnson speaks with Chamoda Palmore, a father to a son that was fatally injured in a motorcycle accident on his way to football practice in 2014. As a man, Chamoda knows that he might grieve differently than other people, but as someone going through his own journey of grief, he knows it’s important to find a way to grieve.

Episode Highlights:

Chamoda is a business owner that lost his son, Chamoda Kennedy-Palmore, to a motorcycle accident.
Throughout his journey of grief, Chamoda has experienced a rollercoaster of emotions.
It takes a lot of patience to get through the grieving process.
Chamoda has leaned heavily on his faith, friends, family, and various support organizations.
After meeting a woman who lost 2 children to a car crash, Chamoda was able to put things into perspective.
Even 6 years later, it doesn’t feel real to Chamoda, it feels like someone is missing.
Chamoda found it difficult to engage with other people, staying away from family functions and gatherings.
If you have other children or people that depend on you, it’s important to find some level of normalcy again.
Giving back through Chamoda’s Candy Cafe and Chamoda’s foundation has helped Chamoda heal.
Right now more than ever, people all over the world need support and care from anyone that can give it.
Chamoda’s 2 daughters and wife have all dealt with Chamoda’s death in different ways.
When tragedy first strikes, it’s like the rainy season in April and it moistens up your heart to bloom in May.
It’s important to plant the right things, love, support, passion, during the initial phase of grieving.
Chamoda understood that it was a slippery slope to turn to a path of destructive behavior if grief is not handled correctly.
For about 2 months after his son died, Chamoda couldn’t open the bible.
Chamoda is comforted by knowing that as a tissue donor, Chamoda’s death was able to help many people.
The local driver’s ed has incorporated Chamoda’s organ and tissue donation into its program.
It’s hard for men to speak about their grief, but it’s important to find someone to talk to about their feelings.
Men feel that they have to be so strong for the family but that doesn’t mean they can’t let it out somewhere else.
Around the holidays, it’s important to find different ways to express your grief.
Chamoda helped more than 30 people as a tissue and cornea donor.
When his son died, Chamoda felt like an infant that just needed to be held.
Have patience with those in your life that has lost someone; eventually, it will slow down, but for now, listen.

3 Key Points:

Chamoda likens his journey of grief to that of a baby’s journey of learning to walk. Right now, he is holding onto the banister as he guides his feet.
Giving back to other people out there that are hurting can help someone heal and get through their own grief.
Chamoda’s organ and tissue donation, now a part of their local driver’s ed video, has helped encourage others to become donors.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Chamoda’s Candy Cafe (website, Facebook)
What's Your Grief
Grief In Common
Refuge In Grief
The Center for Loss

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During this episode of This Thing Called Life Podcast, host Andi Johnson speaks with Jenn Proffitt, one of Andi’s coworkers at LifeCenter. Jenn is a Family Aftercare Coordinator, working to help support the families of donors after the donation process takes place. With so much experience of supporting people in their own grief, Jenn has unique insight into what grief really looks like.

Episode Highlights:

Jenn helps donor families after the donation process by providing resources and emotional support.
Family Aftercare Coordinators work with all sorts of organ donor families, from eyes all the way to the liver.
Before she was a Family Aftercare coordinator, Jenn was a Family Services Coordinator.
Family Services Coordinators support families through the entirety of the donation process.
It takes a special individual to sit with a family that has experienced such an unexpected loss.
Right now is a very heavy time for people all over the country.
Jenn became a licensed social worker in 2003, working with many different demographics.
After years of social work, Jenn decided to take a hiatus and became a nurse in 2013.
A particular case as a nurse involving a baby inspired Jenn to support a loved one emotionally and join LifeCenter.
Andi and Jenn have both realized the importance of listening to those that just want to be heard.
Everyone grieves differently, so what you see from one grieving person may not be the signs shown by other grievers.
Debbie Pollino is an example of someone who made the choice to not get stuck in the deep dark hole that is grief.
Support and connection plays a large part in someone’s ability to deal with their grief.
Grievers should seek out help when they find themselves in a dark place for a long period of time.
When people offer to help, it’s important to accept it and let people love you.
Society falls short when it comes to supporting someone who is grieving in the long-term.
Andi had a very hard time at night when her son was having trouble breathing as a baby.
Nighttime represents a time when you have to be alone with your grief, things such as journaling and meditation can help.
Scheduling plans over the holidays gives grievers the ability to be around support while honoring their loved one.
At the end of the day, there is no universal answer because there is no universal way of grieving.
You never know what someone is going through, so, be kind to everyone and show grace.
When Jenn is feeling overwhelmed, she likes to take a walk or sometimes watch Netflix.

3 Key Points:

Jenn has served as both a Family Services Coordinator and a Family Aftercare Coordinator, supporting donor families throughout the entirety of the donation and post-donation process.
Loved ones that are in the room for a medical emergency have no idea what’s going on and need the support that is often not offered to them.
Grief looks different for everyone. Everybody reacts differently, but just because one person cries and one holds it in doesn’t mean that one is hurting less than the other.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Jenn Proffitt (Linkedin)
This Thing Called Life Episode 09
What's Your Grief
Refuge In Grief
Grief In Common

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Episode Highlights:

In January 2014, Debbie lost her son Nick to a car accident, suffering a brain injury that he could not recover from.
Debbie had no idea that her son Nick was very passionate about organ donation until he noticed that she was one on her license.
Nick was able to save multiple lives with the organs that were donated from his body.
4 months after the death of her son, Debbie attempted to become a Donate-Life Ambassador, but it was still too soon.
After about 18 months of recovering from the death of her son, Debbie started sharing Nick’s story at schools.
Nick was a very adventurous and outdoorsy person, driving across the country multiple summers in a row to Northern California.
After attending Northern Kentucky for college, Nick transferred to a school in Northern California for a forestry program.
What was supposed to be a 3-month trip to Hawaii for Nick, turned into a 5 ½ year trip.
The Bernie Madoff pyramid scheme collapse brought an end to Nick’s trip to Hawaii.
Debbie’s nephews and nieces were like siblings with Nick in life, children to her after Nick’s death.
Fortunately for Debbie, her family continued to talk about Nick, keeping his spirit all around them.
Nick had the kind of spirit that makes people proud to remember who he was as a person.
Debbie had a meltdown recently when she was looking through pictures and realized that she will never have a current one.
Nick made it all the way to Lima, Peru on a buddy pass for New Years, sleeping in the airport for a week.
The first time that Debbie went to visit Nick in Hawaii, he jumped off a 60-foot cliff and climbed back up.
With how up and down the grieving process is, it’s important to have people that you can ask for help.
Though support groups work for some people, Debbie felt it was more beneficial to be around positive reinforcement.
Nick was very spiritual in his own way, using nature as his church, as a way to find peace.
Debbie and her family celebrate Nick on a variety of occasions, especially Thanksgiving, his favorite holiday.
On August 4th every year, Nick’s birthday, Debbie’s family throws a party to celebrate his life.
Debbie had the pleasure of meeting Nick’s heart recipient, Brian, and welcoming his family into her family.
Brian looks and acts the same as Nick, with a similar build and a love for outdoor adventure.
The pandemic has been especially difficult for Debbie, given how close she is with her family.
Though it’s hard during the pandemic, don’t hide away from other people while you are grieving.

3 Key Points:

Debbie lost her 36-year-old son, Nick, after a car accident in January of 2014. Because of his passion for organ donation, he was able to save multiple lives.
While most days are good, filled with great memories, some days are rough for Debbie when all she wants is a hug from her son.
Nick’s heart recipient, Brian, a father of 2, has since become a part of Debbie’s family, along with the rest of his family.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Nick’s Heart YouTube Video
What's your Grief
Grief in Common
Fern Side

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During this episode of This Thing Called Life, host Andi Johnson speaks with Donerik Black who she has known for over 20 years. Donerik had no experience with organ transplants until the day his father told him that he needed a kidney. A deep love for his father made it an easy choice. That, however, was just the beginning of his donor journey!

Episode Highlights:

Donerik absorbed his parents’ values and work ethic which helped him become the successful entrepreneur he is today.
After college, Donerik returned to run a PR company and start a newspaper, The Dayton Weekly, both with his father.
The Dayton Weekly hoped to deliver content that focused on the underserved black community in the Dayton area.
While in college in Washington DC, Donerik played collegiate basketball while carving out his niche as a government employee.
Donerik decided to leave his life as a government employee and return to work with his father.
With his feet dipped into multiple pools of employment, Donerik knew that either you were making or losing money.
After spending 5 years on dialysis, Donerik’s father was told that he needed to have a kidney transplant.
Donerik was first introduced to organ donation when he donated a kidney to his father in June of 2006.
Working the newspaper and getting married in the same time period as the transplant presented various challenges.
Due to complications from his kidney transplant, Donerik’s father was not able to make it to his wedding.
Donerik’s father kept an open-door policy and that helped him establish deep roots throughout the Dayton community.
During a regular check-up with his doctor, it was discovered that Donerik might have something wrong with his heart.
After not addressing his heart issues, fluid began to fill up his lungs to the point where he couldn’t breathe.
Donerik had to have a pig valve transplanted into his heart when it was decided that he was too far gone.
Doctors decided to put a defibrillator into Donerik’s chest in case he started to have a heart attack.
Donerik chose to own the narrative of his new reality and share his story and do more for the community.
In late 2012, Donerik’s defibrillator had to activate on a regular basis because of consistent heart flutters.
What Donerik believed to be a quick-fix procedure ended up seeing him flatline in the outpatient facility.
It became more and more apparent that Donerik would need a heart transplant.
In the back of his mind, Donerik didn’t think that he was going to survive, so he made sure to set up his business to run in the future.
Donerik was forced to resign from his job and withdraw from graduate school while in ICU.
The outpouring of support and respect that Donerik received is something that he feels that he can never repay.
The hospital psychologist helped Donerik deal with the issue of someone else dying in order for him to live.
Donerik chose to use a TAF, or a Total Artificial Heart, to buy himself more time until he matched with a donor.
On his birthday, Donerik was surprised by the hospital staff that they had found a heart for him, getting a transplant later that night.
Donerik kept a glass-half-full mentality throughout this process, learning to focus on what was in his control.
A clinician actually claimed that Donerik was an “unsalvageable patient,” giving Donerik the motivation that he needed.
When looking back, it’s hard for Donerik to fathom his journey and the great luck that he has had.
After going through what he went through, Donerik has made it his mission to share the knowledge that he has gained with as many people as possible.
In such a crazy year, Donerik’s goal is to grow his business and create great relationships.
Donerik makes sure that he spends his time now with people who he can benefit and that will have a positive impact on his life.

3 Key Points:

Donerik’s father was a business owner and entrepreneur for his entire life, imprinting on him the fire that drives him to be a successful entrepreneur today.
After avoiding a suspected heart issue and inconsistent symptoms, Donerik had to have a valve replaced in his heart with an organ from a pig.
When Donerik went in for a simple heart procedure, he flatlined and had to be shocked 74 times with over 45 minutes of CPR to come back.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
United Network for Organ Sharing

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Episode Highlights:

Organ donation doesn’t just affect the donor, but also changes the lives of the close friends and family.
Not all transplant stories have a happy ending, but at the same time, not all stories end in tragedy.
Kris’s husband Joe was diagnosed with Cystic Fibrosis as an infant, beating the odds and living well beyond his initial life expectancy.
When their twins were 3-years-old, Joe was operating at only 20-30% lung capacity.
Lung donation requires a donor that has already passed away.
Due to Joe’s convenient blood type, Joe only had to wait just over 3 months on the waitlist before getting his transplant.
Spending 6 weeks at the hospital for the transplant, Joe and Kris went 5 weeks without seeing their children.
Just 16 hours after his transplant, Joe was able to walk 150 feet.
After the transplant, Kris had to change her mindset from one of a caregiver to one of a more normal wife.
Kris continued to work full-time throughout the entire process for insurance purposes, but it also gave her some relief.
Both Joe and Kris, very independent humans, had to learn how to say yes when people offered help.
It took over 2 years to connect with the donor’s family, and now Kris and Joe are very actively connected with them.
Staying connected with the donor’s family has helped with the healing process on both sides.
Kris and Joe’s children do not remember the time when Joe was sick and unable to live an active lifestyle.
Going through the transplant process alone is impossible, so it’s important to accept the help that is offered.
The transplantation process is a journey for both the donor and their family/friends.
As a result of the different recipient and supporter groups, Joe and Kris have connected with people all over the country.
Kris’s grandpa passed away in April unexpectedly after marrying his new wife just a year and a half before.
The funeral home director advised Kris’s grandpa’s widow to deny the option for her deceased husband to be an organ donor.
It should be the #1 responsibility for transplant centers and funeral homes to support the family.
We must all advocate for ourselves and our loved ones for what’s right in the moment of a donation decision.
Leave the decision on whether you can or cannot be a donor up to the medical professionals.
Tissue and cornea donation has the potential to help up to 50 people from one donor, and can change/save lives.
Science is constantly evolving and as a result, the number of people that can donate is constantly increasing.
Transplant is not a fix-all option and it’s important to remember that there will still be rough times.
2020, while chaotic, has presented an opportunity for everyone to grow closer to their families.
Faith has acted as an essential support beam throughout the transplant process and life in general for Kris.
Support groups are incredible resources for those affected by transplantations.

3 Key Points:

Unlike kidney and liver donation where you can have a living donor, lung donation requires a donor that is already deceased.
Kris and Joe actually watched the accident on the news that involved Joe’s donor but didn’t know it until later.
A misguided funeral home director gave incorrect advice to Kris’s grandpa’s widow and ultimately swayed her to turn down his option to be an organ donor.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Kris Grigsby (Facebook)
Matthew West (musician)

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We would love for you to join us for LifeCenter's Virtual Community Breakfast on Wednesday, November 18th 2020 from 9 am - 10 am est. We will be sharing inspiring stories and honoring the heroes of organ donation. You can register for this FREE event at lifepassiton.org.

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Episode Highlights:

November 13th-15th is National Donor Sabbath, a time for everyone to recognize the miracle that is an organ, eye, and tissue donation.
Courtney has been an Organ Donation Coordinator at LifeCenter for the past 6-7 years.
Donation Coordinators handle the medical management and evaluation for organ donors.
Amongst other responsibilities, Courtney plays a large part in matching organs to donors.
Sometimes, organ donation acts as the silver lining to families that are going through an incredibly hard time.
Donation coordination is a 24-hour job because donation does not run on a 9-5 schedule.
From the time that a case opens to the time it closes, Courtney is on the clock for 36 hours.
Courtney uses CrossFit and a great support system as outlets for the high stress levels of this job.
With such a high-stress job, it’s no surprise that there is a high level of turnover.
There have been times where the stress of the job has made Courtney question her desire to be here.
COVID brought everything to a screeching halt when it first exploded back in March.
The sheer amount of unknown information has made the ongoing global pandemic that much scarier.
Things have finally begun to get back to normal, meaning more lives are being saved via organ donation.
In 2016, Courtney’s brother discovered a huge mass on his liver that required a transplant.
Unfortunately, Courtney lost her father when she was only 2 months old, so her brother acted as a father to her.
Courtney was informed that she was a donor match for her brother while supporting a family that was pulling life-support.
The weight of the situation started to feel heavy when Courtney sat on the pre-op table.
Sitting outside the OR doors on the pre-op table, Courtney was rolled back for surgery after only 20 or 30 minutes.
There were a handful of signs that something was wrong with Courtney’s brother’s liver long before the doctors caught it.
After everything was said and done, it took a 10-hour procedure for Courtney to donate over half of her liver.
The first thing that Courtney can remember is getting sick immediately after surgery.
Courtney finally got to see her brother when she was transferred to the ICU.
It was a complete shift in lifestyle for Courtney from the moment that she found out she was a donor match for her brother.
Finding living liver donors is more rare than finding living kidney donors.
Both Courtney and her brother fully recovered and are as healthy as they can be today.
TX Jet was kind enough to donate its services to fly Courtney and her family out for surgery.
After her donation, Courtney was sure that she was at the right job at LifeCenter.
Courtney was comforted by the knowledge that everything in her life made her the perfect donor for her brother.
This year, Courtney is focusing on being more present when she is with loved ones.
The amazing thing about donation and transplantation is the opportunity to potentially save a life.

3 Key Points:

Organ Donation Coordinators manage everything from the moment a donor decides to donate, to the time that the organ is sent to its recipient.
It takes a very special person to not only manage the responsibilities of being a Donation Coordinator, but also the rollercoaster of emotions that come with the job.
Courtney donated just over 50% of her own liver, which was oversized, to begin with, to save her brother’s life.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
TX Jet (website)

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During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Dr. Shimul Shah, the head of the Liver Transplant Program at UC Health. Dr. Shah and his team are utilizing ever-evolving medical technologies to help all those facing the liver-transplant process. He knows that it is vitally important to try to understand what the patient is going through so that they can best be served with their health problems.

Episode Highlights:

Dr. Shah runs one of the largest liver transplant programs in the country to help as many people as possible.
In his 9th year with UC Health, Dr. Shah and his team have done over 750 liver transplants.
COVID has presented some challenges in the world of liver transplantations because of its immunosuppressed patients.
There are a number of things that must be considered with the introduction of a global pandemic before conducting transplants.
Though they didn’t understand what was happening around the world, Dr. Shah’s team went ahead with multiple transplants.
Many healthcare professionals had to come together when making protocols for transplantations during COVID.
There has been a lot of success with telehealth and that proved useful for the Liver Transplant Team.
After protocols were put in place, liver transplants were resumed at the same rate as before.
Programs all over the country were forced to shut their doors for a small period of time while they figured out how to get ahead of COVID.
There are more donors in the Midwest and South than there are on the East Coast and West Coast.
A national policy of “sickest first” has allowed organs to be shared throughout a wider geographical region.
Clinical trials are underway for pumps that pump the livers continuously during travel.
The pump presents an opportunity to repair the damage that has been done to organs before transplants are conducted.
Because of technology, more organs are being used today that would have never been used 5-10 years ago.
Dr. Shah uses complete transparency when he gives his patients past results of treatment options.
Patients can donate their livers at much older ages because liver cells constantly repair themselves.
Dr. Shah originally wanted to be a liver and pancreas cancer expert, but a fellowship in liver transplant shifted his path if only slightly.
Patients know when the care that a doctor shows is authentic and that they are all in on the process.
It’s important to talk to patients as people and try to understand what they are going through.
Dr. Shah helped lead the Living Liver Donor Program that launched earlier this year.
New patients find out how sick they actually are and what all their options are before moving forward.
Dr. Shah and his team do everything they can to help people get better without a transplant.
During his free time, Dr. Shah enjoys playing tennis, basketball, and taking afternoon naps.
COVID has made Dr. Shah’s family’s favorite activities, eating out and traveling, a little tricky.

3 Key Points:

People with compromised immune systems are more susceptible to COVID-19, thus bringing a learning curve to those in the liver transplant field.
Transplant systems all over the country were forced to shut down their programs when COVID first hit, but have since been able to resume transplants after implementing protocols.
Patients with an extensive medical history have benefited greatly from advancements in technology due to the larger amount of organs that are now available.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Dr. Shimul Shah (website)
UC Health | Liver Transplant Program
In Shock - (Book)
Dewey’s Pizza

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Episode Highlights:

John details his background as a traveling sales manager for a large wheelchair manufacturer.
John discusses the moment, two years ago, when he realized that something was wrong with his liver.
The doctors could not figure out what was going on with John’s liver because he passed all tests that they could throw at him.
The ammonia build-up from liver failure was taking away John’s ability to focus.
Excessive sleeping led John to the conclusion that something was definitely going wrong.
John’s liver specialist sent him to the University of Cincinnati’s transplant program.
MELD (Model for Endstage Liver Disease) goes from 6 (years to live) to 40 (death); John was a 24.
After some mini-miracles, John was able to accelerate the process of getting on the transplant waiting list.
A battery of tests and blood work stood between John and getting on the transplant list.
Expecting a long wait to get on the list to get the tests run, a cancellation got John in for his test two days after his acceptance into the program.
Canceling the family vacation was tough, but John had to be close enough to get to the hospital.
John was accepted onto the transplant list and found a donor within the same day.
Recipients have to manage their expectations because there is a chance the organ is not a good match.
It was important for John to reach out to the family of the donor to express his gratitude and condolences.
Only 6 weeks after his surgery, John was on a plane to his national sales meeting in Colorado.
Relying on others for everything was incredibly humbling for John as a natural go-getter.
27 days after his surgery, John and his family were able to meet his donor family and they hit it off.
The liver that John has now is not his own, but has been inside two other people along the way.
It’s incredibly difficult to have a healthy relationship between the recipient and the donor family.
What it was like connecting with his donor family and how hard it remains for them to this day.
If both sides can see that through donation, it can help both sides move forward.
The gift of life is shared between two families, two worlds really, in the case of organ donation.
It all starts with the decision that two people do not have to die.
You see life from a completely different perspective when you come so close to death.
John works tirelessly as an advocate to make sure that his donor’s family would be proud.
Hope doesn’t get people to become donors, but it is a strategy.
Anyone can be a registered organ donor and give hope to someone in need.

3 Key Points:

John’s life completely changed when his liver failed two years ago. Through some mini-miracles, John was able to get in front of the board of the University of Cincinnati’s transplant program.
Organ recipients tend to question what they have done to deserve to live and why someone else had to die. The harsh reality of life sets in at some point.
It’s incredibly humbling when your body and mind stop you from doing certain things and you are forced to rely on others to do things for you.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
John Mock (Facebook)
Hope is Not a Strategy - Book
United Network for Organ Sharing (UNOS)
University of Cincinnati Medical Center

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During this episode of This Thing Called Life podcast, host Andi Johnson speaks with Monica Weakley, a living kidney donor, who shares her inspiring story. Learn how Monica made the important decision to donate, how she feels about her decision thirteen years later, and how you can share her important message.

Episode Highlights:

Monica shares her donation story. She was born and raised in Cincinnati. She sells real estate.
Learn how Monica made the decision to be a living donor.
Monica had a friend that needed a kidney and didn't have a match in her family.
Something inside of Monica told her she was going to help her friend. This is a common feeling among donors.
Monica describes getting the call learning she was a good match for her friend.
Thirteen years later, Monica feels amazing.
Monica describes her recovery time. She had to have an open nephrectomy.
Monica knew the level of gift that was for her friend but feels it was just as much a gift to be a donor.
Monica tells us about her mother who is in renal failure. She is officially on the donor list.
Monica made a plea on Facebook to find a donor for her mother.
Andi and Monica discuss the impact of COVID-19 on the transplantation.
The living donor program is everything to families like Monica's.
Andi describes the success of the paired kidney exchange program.
Some people have loved ones who need a lifesaving gift but do not volunteer for donation.
Monica isn't sure she would try to persuade anybody. She would simply tell her story.
Over the years, there has been an increase in altruistic donors.
The donation list is not a mountain that we can't climb.
Monica lives her life with gratitude and peace.
Learn how to contact Monica if you're interested in getting tested to help her mother, Nancy.
The one myth Monica wants to dispel is that being a donor changes your health. The one thing that has changed for her is that she can't take Advil.
Monica shares what she takes with her on every trip.
Monica and Andi discuss books they’ve read recently.
Monica's goal for this year is to get her mom a kidney.
Monica loves Top 40 radio and the movie Bridesmaids.
Andi and Monica discuss traveling and where they like to eat in Cincinnati.
Monica thinks the world needs more authenticity right now. She speaks to the value of turning inwards every single day.
Ask how you would show up today if you weren't being watched.
Monica shares what she has learned during the pandemic.
This podcast is here to help eliminate the list of people waiting for a lifesaving transplant.
Living donation is absolutely a possibility to help bring people off of that list.

3 Key Points:

Living donation can be a huge gift to the donor as well as the recipient.
Sharing stories saves lives and helps dispel myths.
The living donor list is not a mountain we can’t climb. That list provides hope to families like Monica’s.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Monica Weakley (Facebook)
The Four Agreements (book)
White Fragility (book)

The Four Agreements: A Practical Guide to Personal Freedom (A Toltec Wisdom Book)

White Fragility: Why It's So Hard for White People to Talk About Racism

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During this episode of This Thing Called Life Podcast, host Andi Johnson speaks with Barry Massa, the executive director of LifeCenter Organ Donor Network. They discuss what it’s like to recover organs and tissues during a pandemic.

Episode Highlights:

Barry Massa started at LifeCenter as their CFO and has been their executive director for twelve years.
LifeCenter handles organ and tissue donation for the Cincinnati area.
In 2019 they had a record year for organ and tissue donation due to community outreach and their relationship with local hospitals.
The federal government created organ procurement organizations. Two different teams work with donor families. The team that is trying to save the donor's life and the donation team.
All U.S. organ procurement organizations (OPOs) are non-profits.
OPOs are heavily regulated. Medicare governs organ donation and the FDA oversees tissue donation. The United Network of Organ Sharing maintains the organ waitlist.
Barry shares the biggest surprise he's experienced during his time at LifeCenter.
There are currently 114,000 people on the waitlist.
OPOs do not operate in the living donation space.
Living donation impacts the waitlist in a positive way.
Barry shares about a good friend of his that needed a heart and lung transplant long before he was involved in LifeCenter.
Not all hospitals do transplants.
Barry shares how the pandemic has affected donation.
During the coronavirus, donation really went down. There was a 40% drop in donors while hospitals were shut down.
There wasn't a game plan in place for a pandemic so they took it day by day.
They had to add in testing for COVID-19 in donors. There were testing delays.
There were a lot of donation opportunities that did not occur that would have occurred in the past.
Barry describes how staff worked together during coronavirus.
They had to approach families for organ donation over the phone or via Zoom.
Communicating empathy for the family can be more difficult in a virtual environment.
Barry explains how donation works.
Every hospital in their area calls LifeCenter when the patient meets certain clinical triggers that could possibly result in organ donation.
Through August 1st, donation is back to where it was last year.
Those waiting for lungs are having a more difficult time during this pandemic.
Barry thinks the list of people who need a lung will increase during this time.
Kidneys are the most needed organ on the waiting list.
Barry discusses the scarcity of PPE and how that has played a role.
Collaboration between hospitals could have increased even more during this time.
People feel comfortable fulfilling their roles while taking necessary precautions. The staff has a real passion for their mission.
Barry tries to communicate with staff more regularly, at least on a weekly basis.
The mental aspect of this pandemic is tough in so many ways.
Barry would advise someone waiting for a transplant to stay as healthy as they can during this time.
Today's honor moment is for all of the front line staff in all of the organ procurement organizations across the country that are working tirelessly to facilitate organ, eye, and tissue donation.
Get to know Barry with his answers to fun personal questions at the end of the show.

3 Key Points:

Deceased organ donation is unique in that the patient has to have suffered a non-survivable brain injury, which is only about 1% of the deaths that occur.
During the onset of COVID there was a 38% decrease in organ donation across the U.S.
Consistent communication, being flexible and checking on staff has been key during this time of the pandemic.

Resources Mentioned:

LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
Andi Johnson (website) (LinkedIn)
Barry Massa (website) (LinkedIn)

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Host Andi Johnson discusses why This Thing Called Life was created.

This Thing Called Life: Recent Episodes

LifeCenter