The Patient is In: Recent Episodes
StuffThatWorks
In "The Patient is In,” the StuffThatWorks podcast, community members recount their personal stories about dealing with chronic illness and disease, and share how a mix of strength, courage and science helped them through.
Hear stories showcasing what’s possible when people are empowered to advocate for their own health, or the health of their loved ones.
Bethan Youd has Polycystic Ovarian Syndrome, or PCOS. It’s a hormonal condition so common that one in ten women of reproductive age have it. Many of them, like Bethan, will be told upon diagnosis that it’s primarily a reproductive issue that can cause fertility problems. But Bethan’s message is that although it can mean difficulties getting pregnant, it should also be seen and treated as an overall medical condition – one that can cause significant weight gain that is not easily remedied by intensive exercise and diet, as well as blood sugar spikes, irregular periods, inflammation and hair loss. In this episode Bethan explains what major holistic based changes in lifestyle and how she eats has helped her overcome her symptoms.
Bethan Youd on Instagram: https://www.instagram.com/healing_pcos_mama/?hl=en
Wellbeing Magazine: Why is PCOS Misunderstood
The New York Times : Polycystic Ovary Syndrome: What It Is, How to Manage It
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the PCOS Community
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
When Heather Foisy was diagnosed with an autoimmune illness called Sjogren's Syndrome, she felt her world was falling apart. The disease had already been making her nauseous at every meal, and had caused such bad abdominal pain that even walking down the hallway could bring her to tears. But now, with the diagnosis, depression and loneliness set in. At the same time, however, so did a measure of denial. Heather, intent on distracting herself, continued to go out frequently with her hard-partying friends. That is, of course, until her body crashed and she realized she had to retool her life, all the way down to the way she socialized and made friends. In this episode Heather describes what she learned in forging a supportive network of friends and family in the wake of chronic illness.
Related Links:
Heather Foisy's advocacy blog: Phoenix Soul Warrior
Heather on TikTok: @PhoenixSoulWarrior
Free Prepping For Your Rheumatologist Appointment Worksheet: https://www.phoenixsoulwarrior.com/resources-1
Facebook Online Support Group
Sjogren's Foundation
Butyoudontlooksick.com: The Spoon Theory
The New York Times: Five Things I wish I'd known before my Chronic Illness
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Sjogren Community
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Phantom limb pain is the very real, sometimes excruciating pain and discomfort that occurs after a limb has been amputated. As many as 80 percent of amputees experience it. For some, it is accompanied by a related issue: residual limb pain, which refers to pain in the part of a limb that remains after amputation. Listen in to this conversation between two experts: Kiera Roche, a life-long athlete whose right leg was amputated below her knee after a car accident and Keren Fisher, a psychologist who researches this type of pain and helps people adjust to limb difference.
Related Links:
Limb Power: Advocacy for individuals with limb difference
The Financial Times: Breakthrough in amputation narrows gap between human and machine
Amplitude Magazine: New Wrinkles in Phantom Limb Treatment
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Phantom Limb Syndrome and/or Residual Limb Pain Communities
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Ellie Angold, a college student in California has Celiac disease, an autoimmune disorder of the gut triggered by gluten proteins in wheat and other grains. Her case is so severe that even trace amounts of gluten can leave her violently ill. When she found out there was such a thing as a gluten detection dog she decided to train a dog herself. So she bought an Australian Shepherd puppy and got to work. This is their story.
Related Links:
The Today Show: Gluten-sniffing dogs help people with celiac disease
Celiac Disease Foundation: Can Service Dogs Help Sniff Out Gluten?
The New York Times: Should You Screen Your Child For Celiac Disease?
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Celiac Community
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Related Links:
The New York Times: What It Feels Like to Live with Parkinson’s
Brain and Life: Boxing withParkinson’s Puts the Disease on the Ropes
Cleveland Clinic: Exercise for People with Parkinson’s Disease
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Parkinson's Community
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
More from Nathan Edwards:
Nathan’s website: https://www.crohnsnaturally.com/
Related Articles and Resources:
- The New York Times: Crohn’s Disease Is on the Rise
- MedPage Today: Dietary Interventions May Prove Helpful in Curbing Development of Crohn's Disease
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Crohn's disease community.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
More from Kaitlyn Cervi:Kaitlyn will soon be launching her own podcast called "Health of Everyday Life."
You can check it out here:
- Facebook Page
Related Articles and Resources:
- The Washington Post: Exercising with MS Should Be tailored to Each Patient
- John Hopkins Medicine: Multiple Sclerosis: Why are Women More at Risk?
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the multiple sclerosis community.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Related Articles and Resources:
- The New York Times: PCOS: What it is. How to Manage it
- Allure: Women with PCOS Facial Hair Explain Why They Choose to Celebrate Their Facial Hair
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the PCOS research community.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Related Articles and Resources:
- Kleine-Levin Syndrome Foundation
- Information from the National Organization for Rare Diseases
- The New York Times Magazine: "A Mysterious Sleeping Disorder That Turns Life Into a Waking Dream"
- Fox5 New York: "What is Sleeping Beauty Syndrome?"
Related Articles and Resources:
- Clare's Blog
- IC Facts from The National Institute of Diabetes and Digestive and Kidney Disease
- Washington Post: I’ve gained my life back’: New tests may help those with persistent urinary tract infections
- The Better Bladder Book, by Wendy L. Cohan
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Interstitial Cystitis research community.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Related Articles and Resources:
- Scientific American: Autism, It's Different in Girls
- Wired Magazine: The Underdiagnosis of Autism In Girls Is a Story of Gender Inequality
- Explaining Humans, award-winning book by Dr. Camilla Pang
- LISTEN Movie, by CommunicationFIRST, a 5 minute film by nonspeaking autistics
Organizations:
- Autistic Women & Nonbinary Network (AWN)
- Ollibean Blog and Amy Sequenzia, a non-speaking autistic woman blogger
- CommunicationFIRST: Nonprofit dedicated to protecting the civil rights of the 5 million Americans who are unable to rely on speech alone to communicate
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Autism Spectrum Disorder research community.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Resources and Links
- Despite Lupus: Sara's book chronicling her experience with lupus
- The Despite Lupus blog
- Pillfold: fashionable medication pouches and totes designed by Sara
Health Policy Partnership: Into the Unknown: Navigating Treatment Decisions during Pregnancy
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Resources and Links
Dr. Karkowsky's book: High Risk: Stories of Pregnancy, Birth and the Unexpected
- The New York Times: The Evolution of the Robot Doctor: Where just last year, communication with patients and families through a screen felt crass, now it’s the compassionate thing to do
- News Medical: What is Telemedicine?
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Resources and Links
- Pain Revolution: Tools for understanding pain science and how it can help
- The New York Times: If ‘Pain Is an Opinion,’ There Are Ways to Change Your Mind
- Glamour Magazine: For years, doctors told me I was just being dramatic. It wasn't until my endometriosis almost killed me that I was finally taken seriously
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Endometriosis community.
- Find your condition community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
Read more about Paula Dumas here.
Related Articles and Resources:
- MigraineAgain.com
- Migraine World Summit
- The New York Times: New Home for Migraine Sufferers
- Washington Post: The pandemic is a headache — and for some people, it’s causing migraines
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Migraine community
Music for The Patient Is In courtesy of Blue Dot Sessions.
More from Denise Fixsen
"I have dedicated my life to HS and to helping others who suffer. I have been an HS advocate for 29 years now and for 28 of those years an HS patient advocate for others. I have been to doctors appointments, surgeries, and ER visits with them and helped them navigate insurance issues, get proper treatments etc. I have met, helped and worked with hundreds of HS sufferers. Not only has it been an honor working with so many fabulous warriors, but this entire journey has taught me SO much about this illness above and beyond research.
I have worked with and continue to work with researchers, scientists, HS specialists, and other advocates. I have attended several HS medical conferences and seminars. I have enjoyed putting together several successful face-to-face support groups around the United States and have and still do spend countless hours researching up-to-date published medical research studies regarding hidradenitis suppurativa and comorbidities. HS facts and factual awareness is VERY important to me.
Due to other illnesses, part of my HS advocate journey came to a halt, at least the physical aspect of it. I continue to be an HS advocate and I do what I can to help other sufferers; it’s now just done via email, online, video, phone, and is one of the main reasons why I created the HS support group Hidradenitis Suppurativa Unique Fun Facts and the organization, HS Connect.
I have suffered with HS for 42 years now; it started when I was 8 years old. I've been dealing with severe stage 3 since age 25. For about 21 years of my life, 87% of my body has been touched by hidradenitis. I have been through everything imaginable with this, including all the mistakes that go along with this illness. I have also had several invasive wide excision surgeries, which I am still undergoing to date.
I am an open book when it comes to my HS and I understand your pain as well as the mental and emotional toll this can take on you. Please feel free to ask me any questions about anything HS related or my personal HS case."
Related Articles and Videos
- The New York Times: Patient Advocates Help Navigate Healthcare
- HBO: Patient Advocates Can Help Save You Money and Your Life
- HS Connect Awareness Video: "We are HS Warriors"!
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the HS Community on StuffThatWorks
Music for The Patient Is In courtesy of Blue Dot Sessions.
Related Articles:
- The New York Times: Let the Mind Help Tame an Irritable Bowel
- Washington Post: Exploring the Mind’s Power over the Body
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to Ulcerative Colitis community
- Contribute to the Primary Sclerosing Cholangitis community
Music for The Patient Is In courtesy of Blue Dot Sessions.
Related Articles:
- Yale Medicine: Ventilators and COVID-10: What You Need to Know
- Washington Post: First, Coronavirus Infections Increased. Then, Hospitalizations. Now, Deaths Are on the Rise
- The Atlantic: Long-Haulers Are Redefining COVID-19
- ABC News: Long-haul COVID-19 patients will need special treatment and extra support, according to new guide for GPs
- Healthline: From Back Pain to Coughing, Life with Long-Haul COVID-19
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and learn how COVID-19 affects those of us with preexisting conditions.By sharing information about the impact of the coronavirus pandemic on your daily life, you can play a major role in helping advance research.
Contribute to the Research
(Everyone can contribute, even if you do not have the virus.)
Music for The Patient Is In courtesy of Blue Dot Sessions.
More from Maya Wolff:
- Maya's Instagram account where she has been documenting her struggle with Long Haul COVID:
- Maya's website
More on Long Haul COVID-19:
- Body Politic's COVID-19 Support Group
Articles:
- The Atlantic: Long-Haulers Are Redefining COVID-19
- ABC News: Long-haul COVID-19 patients will need special treatment and extra support, according to new guide for GPs
- Healthline: From Back Pain to Coughing, Life with Long-Haul COVID-19
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and learn how COVID-19 affects those of us with preexisting conditions.By sharing information about the impact of the coronavirus pandemic on your daily life, you can play a major role in helping advance research.
Contribute to the Research
(Everyone can contribute, even if you do not have the virus.)
Music for The Patient Is In courtesy of Blue Dot Sessions.
Erdely works at Ctrl M Health as head of content. It's a new platform and app which offers strategies for those who suffer from headache and migraine.
In the past she was a journalist, focused on long-form narrative writing, especially about crime, health and social issues.
Related Articles and Resources:
- The New York Times: New Medications for Migraine
- The American Migraine Association
- Migraine Again
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Migraine community
Music for The Patient Is In courtesy of Blue Dot Sessions.
More on Joe Landson and Chronic Fatigue Syndrome:
- Joe's 2014 public comment to the The Chronic Fatigue Syndrome Advisory Committee which advises the U.S. Department of Health and Human Services
- Further public comment
Articles on CFS/ME:
- The New York Times: Getting it Wrong on Chronic Fatigue
- Stat: Why We Shouldn't Call it Chronic Fatigue Syndrome
- Medical Express: Stigma of Chronic Fatigue Adds to Suffering
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Chronic Fatigue/ME community
Music for The Patient Is In courtesy of Blue Dot Sessions.
More about Jessica Apple
Jessica Apple grew up in Texas. She is co-founder and editor of the nonprofit diabetes magazine, ASweetLife. Jess has been on a low-carb diet since 2009, and has written about diabetes for many publications. When she's not working on diabetes advocacy, Jess writes essays and fiction. Her work has appeared in the New York Times, Financial Times, Southern Review, and others. Jess loves spending time with her family, drinking coffee, and hanging out with her cat.
- Follow Jessica on Twitter (@jessapple)
- Read Jessica's Blog: The Natural Diabetic
- Jessica founded and is the editor of A Sweet Life Magazine
eBooks by A Sweet Life Magazine:
- How To Eat In The Time Of Covid-19: Begin Improving Your Metabolic Health Now
- A recipe book: Sweet and Savory Keto Muffins
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Diabetes Type 1 community
- Contribute to the Diabetes Type 2 community
- Contribute to the Prediabetes community
- Contribute to the Diabetes due to Pancreas Damage community
Music for The Patient Is In courtesy of Blue Dot Sessions.
More About Natalie Hayden
Natalie is a former TV news anchor and reporter living in the Midwest. Her mission in life is to be an advocate for those battling inflammatory bowel disease and to show that a chronic illness doesn’t have to dull your sparkle. Natalie was diagnosed with Crohn’s disease in July 2005, two months after graduating from college. After several hospitalizations, countless medications and flare ups, she underwent bowel resection surgery in August 2015.
Along with her blog, Lights, Camera, Crohn's, Natalie is part of the Patient Advisory Board for IBD Social Circle (#IBDSC), a Patient Ambassador for Gali Health, a Patient Leader for WEGO Health, and a contributor to Everyday Health, Healthy Women, the IBD Healthline app, Mamas Facing Forward, and IBD Moms. She is also an active volunteer and spokesperson for the Crohn’s and Colitis Foundation, specifically the Mid-America Chapter.
Read more from Natalie in her blog Lights, Camera, Crohn's
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Crohn's Disease community
Music for The Patient Is In courtesy of Blue Dot Sessions.
More About Annette Leonard
For Annette, what started out as mono, morphed into CFS, then fibromyalgia, then a life-threatening cluster of autoimmune diseases called antisynthetase syndrome. She writes, "living with pain and uncertainty have been unwelcome educators. My illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what our disease status, we can work toward our wellness, our wholeness."
Learn more about Annette here
Listen to her podcast: “Chronic Wellness”
Read more from Annette in her blog on The Mighty.
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data about chronic conditions and treatment effectiveness.
- Contribute to the Fibromylagia community
- Contribute to the Chronic Fatigue Syndrome (CFS/ME) community
- Contribute to the Sjogren's Syndrome community
Music for The Patient Is In courtesy of Blue Dot Sessions.
Lynda Pickett and Laura Murphy live on opposite sides of the globe and have never met in person, but they consider each other the best of friends. They both suffer from Premenstrual Dysphoric Disorder, or PMDD, a condition that at times has upended both of their lives. Their connection has been a lifeline, getting one another through their darkest moments with PMDD, including, at one point, Lynda’s suicidal thoughts.
PMDD is a hormone-based mood disorder, which can arise during the premenstrual phase of a woman’s monthly cycle. It can prompt extreme rage, anxiety, mood swings, and at its worst - suicide. About 30% of women with PMDD try to take their own lives. This is the story of Lynda and Laura’s PMDD journey and how their friendship and the peer support and treatment information they exchange, has made all the difference.
For information:
See Vicious Cycle, the patient-led PMDD group co-founded by Laura Murphy. Lynda Pickett runs their Australian branch.
More on the Topic
- Q and A with Laura
- Q and A with Lynda
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and learn more about PMDD and treatment effectiveness.Contribute to the PMDD Research
Music for The Patient Is In courtesy of Blue Dot Sessions.
After his family's battle with rhabdomyosarcoma, Oded launched MyChild’sCancer.org, a nonprofit dedicated to providing personalized mentorship, education and resources to parents and caregivers of children with cancer. My Child’s Cancer developed a unique database that captures personal accounts of family's experiences with different treatments, medical facilities and best practices - stuff you won't find on Google.
More about Oded Grinstein
- My Child’s Cancer
- Profile in The Jewish Standard
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and learn more about Rhabdomyosarcoma and treatment effectiveness.Contribute to the Research
Music for The Patient Is In courtesy of Blue Dot Sessions.
Shortly before the coronavirus pandemic swept the United States, Dr. Jo Shapiro was training fellow physicians at an Air Force base in Dayton, Ohio.
After returning home to Boston, Jo, a head and neck surgeon and a professor at Harvard Medical School, started to feel congested. But it was no ordinary congestion. She describes it as the weirdest upper respiratory symptoms she’d ever experienced.
As a physician, she found herself fascinated by—and even studying—how her body was experiencing the disease. As a patient, she grew sicker and sicker over the three weeks she was ill. And then there was the day she thought she might have to check into the hospital. She knew this could signal a downturn from which she might never recover.
In this week's episode of The Patient is In, Dr. Shapiro shares what she learned about COVID-19 now that she’s on the other side of the disease.
More about Dr. Jo Shapiro
- Professional Website
- Twitter: JoShapiro3
More on the Topic
- Hear Dr. Jo Shapiro speak about Reducing Burnout and Increasing Well-Being among Clinicians: Watch Video
- Read about COVID-19’s Emotional Toll on doctors: Read Article
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and learn how COVID-19 affects those of us with preexisting conditions.By sharing information about the impact of the coronavirus pandemic on your daily life, you can play a major role in helping advance research.
Contribute to the Research.
(Everyone can contribute, even if you do not have the virus.)
Music for The Patient Is In courtesy of Blue Dot Sessions.
More from Marjorie Ingall
Marjorie Ingall is a writer and editor at Tablet Magazine and author, most recently, of “Mamaleh Knows Best.”
http://marjorieingall.com/
Marjorie's Essays on COVID-19:
- On Recovery and Rainbows, Tablet Magazine
- Plagues 10, Covid-19: We're sick, and the meaning of this holiday seems more potent that ever, Tablet Magazine
More on Families getting the Coronavirus
- When Parents Get Sick, Who Cares for the Kids? New York Times
- Her Grandmother Got the Coronavirus. Then So Did the Whole Family, New York Times
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and learn how COVID-19 affects those of us with preexisting conditions.By sharing information about the impact of the coronavirus pandemic on your daily life, you can play a major role in helping advance research.
Contribute to the Research
(Everyone can contribute, even if you do not have the virus.)
Music for The Patient Is In courtesy of Blue Dot Sessions.
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and figure out together which treatments work best for lupus.
Contribute to the Lupus Research Community.
Music for The Patient Is In courtesy of Blue Dot Sessions.
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and learn how COVID-19 affects those of us with preexisting conditions.By sharing information about the impact of the coronavirus pandemic on your daily life, you can play a major role in helping advance research.
Contribute to the Research
(Everyone can contribute, even if you do not have the virus.)
Music for The Patient Is In courtesy of Blue Dot Sessions.
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.
We're using crowdsourcing to gather data and figure out together which treatments work best for autism.
Contribute to the Autism Spectrum Disorder Research
Music for The Patient Is In courtesy of Blue Dot Sessions.
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom.
Learn more about StuffThatWorks.