If you or someone you love is affected by a rare disease, you likely have more questions than answers. That’s why we’re here.
Rare Disease Connection, and our additional resources on RareDisease.com and YourDNA.com, brings together the people whose expertise can explain what you’re facing. From diagnosis, to prognosis, to treatment options, all the way to questions like “Who do I talk to? Where are the people who’ve been through this before?”. We have the answers, direct from the experts and those who've faced your disease.
Alisa Saleh
Rare Disease Report
Lupin, India
Syed Saqib Ali
Aicardi Goutieres Syndrome Advocacy Association (AGSAA)
Jeremy Moeller
Isabella Costa Bravo
Maggie Finn
B. Gonzalez
Part of the Health Unmuted Audio Library
Steven M. Croft, M.D.
Vincent Lau
Pediatric emergency medicine physician
National Psoriasis Foundation
julio dominguez
SE Plyler
Onella fernandes
CheckRare
Raising Rare
Association of Migraine Disorders®
Bhutan
Micaela Stevenson
MGH Psychiatry Academy
SRNA
Susan @ handtherapy
DoctorPodcasting.com
BenCarson
askdrdevi kumar
Maahin.D
Dr. Masha Makeeva
Neurosearch
None
Hana Barata
William L Hoover, II, M.D. and Gordon MacPherson, Medical Media Producer
Barry Singer, MD
BloodStream Media
Kristina Bauer
F.A. Davis
BridgeBio Pharma
Natasha Kelly
Sofia Faillaci
Oxford University
EvergreenHealth
BrightFocus Foundation
Oxford University
askdrdevi kumar
julian@luveu.com
Tina Masoum
Dr. Daniel Sadowski and Dr. Adriana Lazarescu
CTSI of Southeast Wisconsin
Pranayam Lung Institute
BloodStream Media
Ashok Gupta
Karlee Ryan
Shae Harrison
Austin Winn
Allyson McQuinn
The Mental Health Center
The Lancet Neurology
National Psoriasis Foundation
CheckRare
Dr. Max Cohen
ben pfaller
Laura Kolaczkowski
Cleveland Clinic Digestive Disease & Surgery Institute
Amritanjay Srivastava, MBBS
Nikki McIntosh
synergypharmaceuticals
Grey Genetics
Acehomoeopathy
The Lancet Neurology
Our Leaders: Pooja, Liesha, Anirudh, and Cayla!
Neuro Talks International
Blake
Sam Weiner
PsychEd
ean.org
Oxford University Press
UCTV
UCTV
AADC deficiency podcast series. For healthcare professionals
Omprakash Solanke
TLC Sessions
Habib Olapade
Arthritis Unpacked
BrightFocus Foundation
Dr. HARNARAYAN SINGH
Effie Parks
Nassir Ghaemi
Daphne Fullmighter
Britt Daniel
American College of Phlebology
Kristine Hoestermann
Parkinson’s Foundation
Lauren Freedman
Blood Over Water
Think Neuro
Oxford University
The Lancet Gastroenterology & Hepatology