Living with Lymphoma: Recent Episodes
Lymphoma Research Foundation
The Lymphoma Research Foundation (LRF) understands that a diagnosis of lymphoma may bring about many different emotions and that everyone’s journey is personal. LRF’s Living with Lymphoma podcast is here to help the lymphoma community better understand how to cope with the unique circumstances that a diagnosis of lymphoma presents. Listen in as experts and patients discuss psychosocial topics related to a diagnosis with lymphoma and other forms of cancer. Join Izumi Nakano and Victor Gonzalez from the Foundation’s Helpline as they explore various survivorship topics.
There are many oral anticancer drugs approved or under investigation to treat lymphoma that can be taken by mouth, either in liquid or tablet/capsule form. Oral agents are just as effective and can have similar side effects as anticancer drugs that are given intravenously. It is critical that patients take all medications as prescribed to maximize the effectiveness of the treatment and minimize toxicity and adverse therapeutic outcomes. Keeping track of medications and side effects can be complicated, particularly when a combination of medications is prescribed, each with different dosing schedules. Getting into a routine early is important when starting…
Since the COVID-19 pandemic, many healthcare professionals have increased their virtual offerings — like video conferences — to continue to care for patients while following guidelines set by the Centers for Disease Control and Prevention (CDC) to mitigate the spread of the virus. This is just one example of telemedicine (also known as telehealth), which is distributing health-related services and information via electronic information and telecommunications, and the need is on the rise. With telemedicine trending to be a mainstay in how healthcare professionals treat patients, Brian Link, MD, University of Iowa, provides an overview of telehealth and how it affects lymphoma patients and survivors.
Helpful Resources:
- LRF Helpline (800-500-9976; helpline@lymphoma.org)
- COVID-19 Learning Center
- Patient Perspectives: Understanding Telemedicine
- Telehealth Best Practices Factsheet
Podcast: Living with Lymphoma
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Oral Therapy and Adherence in Lymphoma An increasing number of lymphoma and chronic lymphocytic Disease generally characterized by the overproduction of abnormal or immature white blood cells that circulate or are present in the blood. (CLL) patients receive their Treatment with drugs to stop the growth of rapidly dividing cancer cells, including lymphoma cells. not from Through the vein. More treatments administered in a hospital or clinic, but via a pill, taken at home on a regular basis. These oral therapies have become a more standard part of patient care, and for a growing number of patients, oral therapies are their only option. Living with Lymphoma hosts, Victor Gonzalez and Izumi Nakano, sat down with LRF Lymphoma Scientific Research Mentoring Program grantee, Craig Portell, MD (University of Virginia) who explained oral therapies and its use for the treatment of certain types of lymphoma. They were joined by chronic lymphocytic Disease generally characterized by the overp
Podcast: Living with Lymphoma
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CAR-T Cell Therapy and Other Novel Therapies for Lymphoma In 2015, Robyn Stacy-Humphrie’s diffuse large B-Cell lymphoma (DLBCL) relapsed and she was faced with a tough decision – to follow the standard of care and receive a stem cell transplant, or opt for a new treatment called CAR-T cell therapy which at the time, was still in the A research study to test how well new medical approaches work in people. phase. Living with Lymphoma host, Victor Gonzalez, sat down with Robyn to discuss her decision to enter a A research study to test how well new medical approaches work in people. and receive CAR T and what her experience was receiving this cutting-edge therapy. They were joined by LRF Scientific Advisory Board member, Andrew M. Evens, DO, MSc, FACP (Rutgers Abnormal cell growth that cannot be controlled by the body's natural defenses. Cancerous cells can grow and eventually form tumors. Institute of New Jersey) who explained CAR-T cell therapy and its use for the treatment of certain types of lymphoma, as well as other novel therapies being used to treat relapsed/refractory DBCL. This episode was a special video event recorded for LRF’s YouTube channel.
Podcast: Living with Lymphoma
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Careers and Rights Amid Pandemic In the blink of an eye, COVID-19 swept the world and disrupted the way we interact, communicate, conduct business and live. The world has experienced an enormous economic impact, forcing several companies to make difficult decisions regarding staff reductions and salaries, and in some cases closing businesses entirely. For Abnormal cell growth that cannot be controlled by the body's natural defenses. Cancerous cells can grow and eventually form tumors. patients and survivors, staying safe and healthy throughout a global pandemic, while worrying about the financial impact that comes with the loss of income, can be overwhelming. Experts Joanna Morales of Triage Cancer and Rachel Becker of Cancer and Careers, discuss what Abnormal cell growth that cannot be controlled by the body's natural defenses. Cancerous cells can grow and eventually form tumors. patients should know regarding insurance, laws that can help aid patients during this difficult time, returning to work during COVID-19, and resources to help navigate it all. This episode was a special Facebook Live event recorded for the Living with Lymphoma Podcast.
Helpful Resources:
- LRF H
Podcast: Living with Lymphoma
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A Clinical Trial Saved My Life Clinical Trials are important to helping advance research and provide access to the most cutting-edge treatment options. Rich Zavadowski felt a A research study to test how well new medical approaches work in people. was his best chance of survival when he was diagnosed with The extent of cancer in the body, including whether the disease has spread from the original site to other body parts. Through the vein. More peripheral A type of white blood cell that participates in immune responses by destroying harmful substances or cells. lymphoma (PTCL) – a rare subtype of lymphoma with no standard of care. Living with Lymphoma host, Izumi Nakano, sat down with Rich to discuss his decision to enter a A research s
Mindfulness and Meditation Studies have shown that practicing meditation can promote healing, both physically and emotionally/psychologically for Abnormal cell growth that cannot be controlled by the body's natural defenses. Cancerous cells can grow and eventually form tumors. patients. Mindfulness Leadership and Coach, Amy Jin, joined hosts Victor Gonzalez and Izumi Nakano to discuss the importance of mindfulness and how meditation can help lymphoma patients and their loved ones slow down during an incredibly stressful time in their lives.
Helpful Resources:
- LRF Helpline (800-500-9976; helpline@lymphoma.org)
- Lymphoma Support Network
- Lymphoma Survivorship Fact Sheet
- Mindfulness Webinar
- Resources for Financial Assistance Fact Sheet
Podcast: Living with Lymphoma
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Coping with Cancer During the Holidays Dealing with a Abnormal cell growth that cannot be controlled by the body's natural defenses. Cancerous cells can grow and eventually form tumors. diagnosis is hard, but during the holidays it can feel even more burdensome. Lymphoma survivor, Dexter Neal sits down with hosts, Victor Gonzalez and Izumi Nakano on the inaugural episode of, Living with Lymphoma to talk about how he dealt with a Abnormal cell growth that cannot be controlled by the body's natural defenses. Cancerous cells can grow and eventually form tumors. diagnosis right before the holidays. Clinical Social Worker, Kristie Redfield of Memorial Sloan Kettering Cancer Center gave us advice about how to ask for help and how caregivers can offer the best support to their loved ones.
Helpful Resources:
- LRF Helpline (800-500-9976; helpline@lymphoma.org)
- Lymphoma Support Network
- Lymphoma Survivorship Fact Sheet