Friends For Life Podcast: Recent Episodes
Tony Stuart
The Friends for Life Podcast dives deep into the topic of Developmental Disabilities, and also discusses topics such as hard work, motivation and entrepreneurship for those who are disabled.
In this insightful episode of IDD Health Matters, Dr. Craig Escudé is joined by nurse educator Michael Sigelman, who brings a wealth of experience and passion to improving healthcare practices for people with intellectual and developmental disabilities (IDD). Michael shares how his early experiences shaped his career and how he now plays a crucial role in training registered nurses and direct support professionals across his state. Together, they discuss the importance of structured nurse education, the value of trained medication employees (TMEs), and the essential role of accurate documentation in providing consistent and person-centered care. Michael also emphasizes the power of listening, knowing individual baselines, and taking time—three simple yet impactful practices that can vastly improve health outcomes. Through real-world examples, Michael and Dr. Escudé highlight the challenges and opportunities in achieving health equity, the significance of interprofessional collaboration, and the critical need for increased clinical training in IDD care. Whether you're a clinician, DSP, policymaker, or advocate, this episode offers actionable insights into creating a more inclusive, responsive, and informed healthcare system. 👉 Learn more about the tools and training mentioned in this episode at replacingrisk.com 👉 Explore career opportunities in IDD services at friendsforliferc.com 🎧 IDD Health Matters is a joint production of Friends for Life and IntellectAbility. Subscribe for more conversations on health, wellness, and equity for people with IDD.
Born in France in 1809, Louis Braille lost his sight at the age of three—but that didn’t stop him from leaving a lasting mark on the world. In this inspiring episode, we explore how a tragic childhood accident led to one of the most transformative inventions in history: the Braille writing system. As a student at the Royal Institute for Blind Youth in Paris, Braille was introduced to a military code called “night writing.” Finding it overly complex, he began developing a simpler, more intuitive system of raised dots. By age 15, he had created the foundation of the tactile writing system that now bears his name. The Braille system revolutionized communication for blind and visually impaired people, opening doors to literacy, education, and independence across the globe. Today, Braille is used in nearly every language and found on everything from books and menus to elevator buttons and banknotes. Join us as we uncover how one young man's resilience and innovation sparked a movement for accessibility and empowerment that continues to impact millions of lives. Louis Braille’s legacy is a powerful reminder that adversity can lead to extraordinary breakthroughs. 🔔 Don’t forget to like, comment, and subscribe for more stories that changed the world. #LouisBraille #BrailleSystem #Accessibility #Invention #DisabilityAwareness #BlindCommunity #InspirationalStory #HistoryMatters #EducationForAll
Megan Bomgaars is a trailblazing advocate, entrepreneur, and star of the Emmy-winning show Born This Way. Born with Down syndrome, Megan rose to national prominence through her viral video Don't Limit Me, where she passionately called for inclusion, opportunity, and respect for people with developmental disabilities. Her message has inspired millions: see potential, not limitations.
In this video, we explore Megan's journey—from public speaking and fashion design to business ownership and national advocacy. Megan continues to challenge stereotypes and redefine what it means to live boldly with a disability.
#MeganBomgaars #DontLimitMe #BornThisWay #DownSyndromeAwareness #DisabilityAdvocate #InclusionMatters #DevelopmentalDisabilities #Inspiration #DisabilityRepresentation #SpecialNeedsAdvocate
In this episode, Tony Stuart, CEO of Friends for Life, shares practical, experience-based strategies for individuals with developmental disabilities looking to increase their waiver hours. With over 20 years in the field, Tony explains why using your current waiver is essential, how to properly document medical and functional changes, and how incident reports can influence approval for more support. He also discusses the importance of realistic hour requests, the value of waiver add-ons, and the role of agency providers in advocating for increased care. Whether you're a provider or someone receiving services, this episode is packed with crucial insights that can help you navigate the waiver process more effectively.
Are you or someone you support working to increase waiver hours? Tune in and learn how to advocate for the care and support you deserve.
Zack Gottsagen is breaking barriers and reshaping Hollywood. In this inspiring video, we explore Zack’s groundbreaking journey as an actor with Down syndrome—from his unforgettable leading role in The Peanut Butter Falcon alongside Shia LaBeouf and Dakota Johnson to making history as the first person with Down syndrome to present at the Academy Awards.
Zack's story is more than a personal triumph—it's a cultural milestone. He’s a powerful example of what happens when talent, determination, and true inclusion come together. By pursuing his dream despite all odds, Zack has shown the world that people with developmental disabilities deserve not only visibility but respect and opportunity in the entertainment industry and beyond.
Join us as we celebrate Zack Gottsagen’s legacy and the vital message he shares with the world: representation matters.
🔔 Don't forget to like, subscribe, and share to help amplify voices that deserve to be heard.
#ZackGottsagen #DisabilityRepresentation #DownSyndromeAwareness #ThePeanutButterFalcon #InclusionMatters #HollywoodDiversity #DevelopmentalDisabilities #DisabilityInFilm #BreakingBarriers #RepresentationMatters
On this episode of IDD Health Matters, Dr. Craig Escudé sits down with two remarkable nurses—Patty Haberkorn and Deanna Cox—at the Illinois Developmental Disabilities Nurses Conference. With a combined four decades of experience supporting people with intellectual and developmental disabilities (IDD), Patty and Deanna share powerful insights into nursing, advocacy, communication, and the often-overlooked emotional rewards of this career path.
Patty, who began her journey as a nurse and now serves as Executive Director at Futures Unlimited, and Deanna, a dedicated nurse who found her calling in DD care after working in long-term care, both reflect on how they "fell into the field" and stayed out of passion. They open up about the gaps in nursing education regarding IDD, the importance of understanding non-verbal communication, and the critical role of baseline behavior in diagnosing health issues.
This episode covers:
- The value of advocacy from nurses and direct support professionals
- Real-world challenges in educating physicians and gaining respect for individuals with IDD
- Why knowing a person's baseline behavior is crucial for accurate medical care
- The emotional connection between care staff and the individuals they support
- Staffing and funding challenges in the IDD sector—and why passion still keeps them going
Whether you're a nurse, DSP, administrator, or someone curious about working in disability services, this conversation offers heartfelt stories and essential wisdom about the importance—and joy—of working in this field.
🔗 Learn more about IDD Health Matters and explore career opportunities: Friends for Life Residential Care – https://www.friendsforliferc.com IntellectAbility – https://www.replacingrisk.com
In this episode of the Friends for Life Podcast, Tony Stuart—CEO of Friends for Life and a veteran Direct Support Professional with over 20 years of experience—explores a critical but often overlooked skill in the field: emotional intelligence.
Tony shares personal stories and practical insights on how DSPs can better connect with the individuals they support by being more self-aware, empathetic, and emotionally responsive. From learning to truly listen without reacting, to knowing when to be vulnerable, Tony offers a raw and honest look at what it means to support someone beyond just the task list.
Whether you're a new DSP or have been in the field for years, this conversation is a must-listen for anyone looking to deepen their impact and build more meaningful relationships in disability services.
Topics Covered:
- Signs of lacking emotional intelligence as a DSP
- How emotional reactions can damage trust
- The importance of asking “How are you?”—and meaning it
- Balancing vulnerability and professionalism
- Why timing is everything in emotional communication
🔗 Resources mentioned:
- IntellectAbility – ReplacingRisk.com
- Assured Health Services – assuredhealthohio.com
- Reliable Drug & Alcohol Testing – reliabdrugtest.com
- THS Remote Supports – thsrss.com
🎧 Tune in, reflect, and join the conversation on how emotional intelligence can transform the lives of those we support—and our own.
Ludwig van Beethoven's legacy goes far beyond his music—it's a powerful testament to the strength of the human spirit. Though he began to lose his hearing in his late 20s, Beethoven refused to let disability define him. Instead, he found new ways to compose, using vibration, intuition, and innovation to craft some of the most iconic works in classical music history.
In this inspiring video, we explore how Beethoven overcame his profound hearing loss to create masterpieces like the Ninth Symphony, whose Ode to Joy remains a global symbol of hope and unity. Beethoven’s life proves that genius and creativity are not limited by physical ability. His story continues to inspire millions, showing us that true greatness lies in perseverance, passion, and the refusal to be silenced.
In this inspiring episode of IDD Health Matters with Dr. Craig Escudé, we welcome Tony Thomas, Executive Director of Welcome House in Cleveland, Ohio. With over 24 years of leadership experience, Tony shares his remarkable journey into the field of intellectual and developmental disabilities (IDD) — from a life-changing family discovery to a lifelong career dedicated to empowering individuals and advancing health equity.
Tony discusses how frontline Direct Support Professionals (DSPs) are the heart of the disability services field, his innovative initiatives to improve healthcare access for people with IDD, and how Welcome House is creating clear career pathways for DSPs, including specialized medical support roles. He also talks about the urgent need to address workforce shortages and improve wages for caregivers.
If you’re passionate about making a difference, building a meaningful career, or learning how true inclusion transforms lives, this episode is packed with wisdom, hope, and practical ideas for the future of IDD services.
🎙 Topics Covered:
- Tony's personal journey into disability services
- The importance of DSP career growth and training
- Innovative healthcare solutions for people with disabilities
- Advocacy for higher wages and better workforce support
- Why working in this field is both rewarding and life-changing
🔔 Subscribe for more conversations on health, wellness, and equity for people with intellectual and developmental disabilities!
#IDDHealthMatters #DisabilityAdvocacy #DirectSupportProfessionals #DevelopmentalDisabilities #HealthEquity #DSPCareers #Inclusion #WelcomeHouse #HealthcareAccess
Are you feeling burnt out as a Direct Support Professional (DSP) or caregiver? You're not alone. In this episode of the Friends for Life Podcast, Tony Stuart — with over 20 years of experience in the field — opens up about the tough reality of burnout. From working endless hours, juggling personal responsibilities, and striving to serve others, Tony shares how even the most passionate advocates can hit their limits. He discusses his recent health wake-up call, the hidden factors that contribute to burnout, and why self-awareness is crucial for long-term success in the caregiving profession. If you've ever wondered why burnout seems inevitable — and how to recognize and prevent it — this candid conversation offers personal insight, hard-earned lessons, and encouragement to prioritize your well-being while continuing to support others.
Tune in and take a moment for yourself — because taking care of others starts with taking care of you.
🔗 Learn more about Friends for Life at friendsforliferc.com
Frida Kahlo, the legendary Mexican painter, is celebrated not only for her vivid and emotionally raw self-portraits but also as a timeless icon of disability pride and resilience. From childhood polio to a catastrophic bus accident at 18, Kahlo endured lifelong physical pain and countless surgeries—yet she transformed that suffering into some of the most powerful artwork of the 20th century.
In this episode, we explore how Frida used her chronic pain and disability as fuel for creativity, boldly redefining what beauty, identity, and strength look like. Her unapologetic self-expression and refusal to conform to societal expectations continue to inspire people around the globe—especially those living with disabilities.
Join us as we celebrate the life, art, and lasting impact of Frida Kahlo—an artist whose legacy proves that pain does not limit power, and disability does not diminish vision.
🔔 Don’t forget to like, comment, and subscribe for more stories that challenge perspectives and celebrate resilience.
#FridaKahlo #DisabilityAwareness #ArtHistory #DisabilityRepresentation #WomenInArt #ChronicPainWarrior #MexicanArt #FridaKahloLegacy #InspiringStories #DisabilityPride #FeministIcon #SelfPortraitArt
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Dr. Alice Bacherini, a postdoctoral research fellow at the University of Perugia in Italy, to explore how psychological research is helping dismantle biases in healthcare for people with intellectual and developmental disabilities (IDD). Dr. Bacherini discusses her groundbreaking work developing tools to measure erroneous assumptions and self-efficacy among physicians when treating individuals with IDD. Together, they dive into how clinician attitudes impact health equity, the role of social dominance orientation in perpetuating stereotypes, and why direct interaction and inclusive communication are essential to better care outcomes.
Tune in to hear why IDD-specific training—especially hands-on experiences—can shift perspectives and improve quality of care. Dr. Bacherini also shares where to find her published scale, the Beliefs About Adults with ID (BAAID), and her three key pieces of advice for creating a more inclusive healthcare system.
Learn more at: replacingrisk.com Career opportunities with Friends for Life: friendsforliferc.com
🎧 IDD Health Matters is a joint production of Friends for Life and IntellectAbility.
In this thought-provoking episode of the Friends for Life Podcast, host Tony Stuart—CEO of Friends for Life and a DSP with over 20 years of experience—dives into the complex realities of supporting individuals with developmental disabilities (DD). Are we truly helping the people we serve, or are we sometimes just putting a band-aid on deeper issues? Tony explores the contradictions in the field, particularly when it comes to accountability, behavioral challenges, and the importance of consistent consequences.
Drawing from real-world experience, including time spent navigating court systems and difficult behavioral interventions, Tony challenges the one-size-fits-all mindset and calls for a more nuanced, team-based approach. Whether you're a DSP, administrator, or family member, this episode offers valuable insight into creating sustainable, individualized support through collaboration and honest communication.
Brought to you in part by IntellectAbility, Assured Health Services, Reliable Drug & Alcohol Testing, and THS Remote Supports.
In this inspiring episode, we explore the extraordinary life and legacy of Stephen Hawking—a brilliant physicist whose mind reshaped our understanding of the universe, even as his body battled the devastating effects of ALS. Diagnosed at just 21 and given only a few years to live, Hawking defied the odds for decades, contributing groundbreaking work to cosmology, black hole theory, and the nature of time.
Through his best-selling book A Brief History of Time and countless lectures powered by a computerized voice system, Hawking proved that physical limitations cannot contain the power of human thought. His journey is more than a scientific triumph—it’s a symbol of resilience, determination, and the unbreakable human spirit.
Whether you're interested in science, disability advocacy, or simply need a reminder of what’s possible in the face of adversity, this episode is a must-watch.
🔭 Topics Covered:
- Hawking’s battle with ALS
- His contributions to black hole and time theory
- The global impact of A Brief History of Time
- How he inspired people with disabilities worldwide
🧠 "However difficult life may seem, there is always something you can do and succeed at." – Stephen Hawking
#StephenHawking #ALS #Physics #DisabilityAwareness #BriefHistoryOfTime #BlackHoles #ScienceIcons #Inspiration #Cosmology #MindOverMatter
In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with longtime civil rights attorney, disability advocate, and former Acting Administrator of the Administration for Community Living, Alison Barkoff. Now serving as the Hirsch Health Law and Policy Professor at George Washington University’s Milken Institute School of Public Health, Alison shares her personal journey rooted in her experiences as a sibling of a person with an intellectual disability—and how that shaped her life’s mission to advance health equity, civil rights, and inclusion for people with intellectual and developmental disabilities (IDD).
Together, they explore:
- The historic update to Section 504 of the Rehabilitation Act—modernizing anti-discrimination protections in healthcare for the first time in nearly 50 years.
- The hard truths about ableism, medical bias, and discriminatory crisis standards of care exposed during the COVID-19 pandemic.
- The urgent need to incorporate clinical care curricula into medical and health professional training to eliminate health disparities for people with IDD.
- The challenges of navigating a fragmented service system—and why it's still worth the fight.
Alison also shares her top three calls to action for improving the lives of people with IDD: building personal connections, embracing inclusive healthcare reform, and confronting the systemic complexity with commitment and compassion.
If you're a healthcare professional, policymaker, or advocate looking to better understand the intersection of disability rights, healthcare, and public policy—this is an episode you don't want to miss.
🔗 Learn more about Alison Barkoff’s work and resources mentioned in the episode in the show notes.
Is practical intelligence the secret ingredient missing from your workplace? In this episode of the Friends for Life Podcast, host Tony Stuart—CEO of Friends for Life and a DSP with over 20 years of experience—dives into what it really means to think practically in the world of disability services. Forget the clichés about "common sense." Tony breaks down how true practical thinking is rooted in logic, personal accountability, and understanding your own strengths. You'll hear real talk about: - Why not every DSP or supervisor operates the same way—and why that’s okay - How to handle disciplinary action with maturity and strategy - The dangers of asking for roles you're not ready for (and how to get there instead) - What taking it "on the chin" really looks like in a high-stress caregiving environment - Why self-awareness and humility are crucial in human services Whether you're a DSP, agency provider, or administrator, this episode challenges you to rethink how you operate, communicate, and grow within the system—all in service of the people who rely on you most. 👇 Share your toughest day or your biggest “aha” moment in the comments! 🔔 Subscribe for more honest discussions on leadership, growth, and real-world problem solving in disability services.
Once known around the world as Superman, Christopher Reeve became a true symbol of strength and resilience after a tragic accident in 1995 left him paralyzed from the neck down. Rather than retreat from the public eye, Reeve transformed his adversity into a powerful mission—advocating for spinal cord injury research and championing the rights of people with disabilities.
Through the Christopher & Dana Reeve Foundation, he became a leading voice for change, working to improve access to medical care, technology, and independence for millions. His unwavering determination sparked national conversations about inclusion, accessibility, and what it truly means to be a hero.
In this video, we reflect on Christopher Reeve’s extraordinary journey—his advocacy, public speaking, directing, and continued impact long after his acting career. His famous words still echo: “A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.”
Reeve’s story reminds us that disability isn’t the end—it’s the beginning of a new chapter filled with hope, purpose, and lasting legacy. 🌟
#ChristopherReeve #DisabilityAwareness #Inspiration #SpinalCordInjury #Advocacy #Inclusion #Superman #DisabilityRights #ChristopherAndDanaReeveFoundation #Hope #TrueHero
In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with renowned disability advocate Liz Weintraub to explore what true health equity looks like for people with intellectual and developmental disabilities (IDD). Liz, a senior policy specialist at the Association of University Centers on Disabilities (AUCD), brings her lived experience and professional expertise to the conversation—sharing insights on advocacy, accessible healthcare, and the importance of plain language in medical settings.
Liz discusses AUCD’s national impact through 62 university-based centers across the U.S. and territories, her work on Capitol Hill, and key legislative priorities like ending subminimum wage (14c) and expanding home and community-based services. She also opens up about her own healthcare journey after a diabetes diagnosis, emphasizing the need for clear communication and respect for patient autonomy.
Listeners will also learn about Tuesdays with Liz: Disability Policy for All, Liz’s YouTube show that makes complex policy issues accessible to everyone. She shares how self-advocacy helped her transition out of institutional care and inspired her to empower others to do the same.
Tune in to hear Liz’s three essential tips for improving healthcare for people with IDD and why her message of "healthcare for all" is more important than ever.
🔗 Learn more about Liz’s work and resources mentioned in this episode by checking out the show notes. 🎙 IDD Health Matters is a joint production of Friends for Life and IntellectAbility.
In this heartfelt and honest episode of the Friends for Life Podcast, Tony Stuart returns to share what it’s really like to juggle the responsibilities of being both a dedicated Direct Support Professional (DSP) and a parent. From moments of overwhelming frustration to unexpected joy, Tony gets real about the challenges many DSPs face—especially those who are single parents or working long hours to make ends meet.
He opens up about the emotional toll of trying to be present at work while worrying about sick kids at home, the guilt that can creep in, and how essential it is to remember your why—both for your family and for those you support. But it’s not all struggle—Tony also shares beautiful stories of bringing his children along to events and how DSP work can actually teach valuable life lessons to the next generation.
Whether you’re a parent working in the field, an agency leader, or someone considering a career in direct support, this episode is a must-watch. You’ll walk away with inspiration, insight, and a deeper appreciation for the unsung heroes who keep showing up, day after day.
👇 Let us know in the comments: How many hours a week do YOU put in as a DSP?
📢 Don’t forget to like, comment, and subscribe for more conversations about the real-life impact of DSPs across the country.
Franklin D. Roosevelt, the 32nd President of the United States, is remembered not only for leading the nation through the Great Depression and World War II, but also as a powerful symbol of perseverance for people with disabilities. Diagnosed with polio at the age of 39, Roosevelt was left permanently paralyzed from the waist down—yet he rose to the highest office in the land. In this inspiring video, we explore how FDR's physical limitations did not stop him from becoming one of the most influential leaders in American history. Through the use of leg braces, wheelchairs, and the support of aides, he maintained a commanding public presence. But behind the scenes, it was his resilience, determination, and deep compassion—shaped in part by his own experiences with disability—that truly defined his leadership. Roosevelt’s legacy reminds us that disability is not a disqualifier for greatness. His story is a beacon of hope for anyone facing adversity, showing that with courage and resolve, it's possible to overcome obstacles and leave a lasting impact on the world. 🔔 Don’t forget to like, comment, and subscribe for more stories that inspire and empower! #FDR #DisabilityAwareness #Inspiration #History #GreatLeaders #FranklinDRoosevelt #Polio #AmericanHistory #NewDeal #Perseverance #Motivation #DisabilityRights
🎬 Beloved Back to the Future star Michael J. Fox has proven he's more than just a Hollywood legend — he's a global symbol of hope, strength, and perseverance. Diagnosed with Parkinson’s disease at just 29 years old, Fox turned a personal challenge into a mission that would change lives around the world. In this powerful video, we explore how Michael J. Fox became one of the most influential advocates for Parkinson’s disease awareness and research. From keeping his diagnosis private to founding the Michael J. Fox Foundation — now the largest nonprofit funder of Parkinson’s research globally — his story is one of courage, compassion, and relentless optimism. 🧠 Learn how his foundation has raised over $1 billion for groundbreaking scientific work. 📚 Hear how Fox continues to inspire through his books, interviews, and personal journey. 💬 Be inspired by his quote: “Acceptance doesn’t mean resignation. It means understanding that something is what it is and that there’s got to be a way through it.” Michael J. Fox’s story is more than a celebrity narrative — it’s a life lesson in how to face adversity with grace and determination. Whether you're battling illness, supporting a loved one, or simply seeking inspiration, this video is a reminder that the human spirit can shine even in the darkest times. 🔔 Don’t forget to like, subscribe, and share to help spread awareness and honor Michael J. Fox’s incredible legacy. #MichaelJFox #ParkinsonsAwareness #Inspiration #BackToTheFuture #ParkinsonsResearch #MichaelJFoxFoundation #ChronicIllness #HealthAdvocacy #Resilience #CelebrityStories #OvercomingAdversity
Stevie Wonder is not just a musical legend—he’s also a powerful advocate for disability rights and inclusivity. Born Stevland Hardaway Judkins in 1950, Wonder lost his sight due to complications from premature birth. Despite this, he became a child prodigy, signed to Motown Records, and went on to revolutionize music with his soulful voice, innovative compositions, and socially conscious lyrics. Beyond his musical genius, Wonder has used his platform to push for legislative change, promote accessibility, and inspire millions. He played a key role in advocating for the establishment of Martin Luther King Jr. Day as a national holiday, demonstrating his commitment to civil rights and equal opportunities for marginalized communities, including people with disabilities. He was also a strong supporter of the Americans with Disabilities Act (ADA), which was signed into law in 1990, ensuring legal protections against discrimination in employment, transportation, and public accommodations. As a blind musician, Wonder has championed adaptive technology in the music industry, encouraging the development of tools that allow blind and visually impaired artists to compose and record their work. His advocacy has paved the way for greater accessibility in the arts. Perhaps most importantly, Stevie Wonder’s life and career prove that disability does not define potential. Through his activism, music, and influence, he has not only transformed the entertainment industry but also advanced disability rights and awareness worldwide. 🔥 Don't forget to like, comment, and subscribe for more inspiring stories! 🔥 #StevieWonder #DisabilityRights #MusicLegend #Inspiration #ADA #Accessibility #Motown
In this inspiring episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Ben Warner, a healthcare professional whose unique journey spans from dental practice to medical school—all fueled by a lifelong desire to serve those with the greatest needs.
Dr. Warner shares how his early experiences volunteering in hospitals sparked a deep commitment to healthcare and how that commitment evolved from dentistry to medicine. His story is one of resilience, family support, and a calling to provide equitable, compassionate care for individuals with intellectual and developmental disabilities (IDD).
Now a board member of the American Academy of Developmental Medicine & Dentistry (AADMD), Dr. Warner discusses his role in advancing the mission of healthcare equity, and how his work has consistently centered around improving access and quality of care for people with complex health needs.
Tune in to hear Dr. Warner’s three key takeaways for improving healthcare: recognizing that we are all patients, prioritizing care for those with the greatest needs, and embracing the importance of service and cooperation in creating a better healthcare system for all.
Learn more about AADMD at aadmd.org and explore tools to enhance health equity at replacingrisk.com.
This podcast is a joint production between Friends for Life and IntellectAbility. Visit friendsforliferc.com to explore career opportunities in the IDD field.
In this episode of the Friends for Life Podcast, Tony Stewart breaks down everything you need to know about the essential paperwork involved in starting and running an agency provider business in the DD (Developmental Disabilities) world.
From policies and procedures to tax documentation, injury reports, training logs, communication methods, and even thank-you cards for your team — Tony dives deep into the practical, real-world knowledge that every provider should know. Whether you're just getting started or looking to level up your operations, this video is packed with valuable tips to help you stay organized, compliant, and ready for success.
📌 Key Topics:
- Where to find generic policies & procedures
- Why you’ll want to customize your documents
- Paper vs. digital records: pros & cons
- CPA advice and the reality of small business taxes
- Why injury documentation is critical
- In-service logs and the power of training
- Scheduling communication best practices
- Networking with SSAs, guardians, and families
- Promotional materials: how to get the word out
- The importance of thank-you cards for staff
💼 Whether you’re running your business solo or scaling up, Tony shares lessons from the field with honesty and humor.
👉 Need help or want us to dive deeper into a specific topic? Drop a comment or message us!
🔔 Don't forget to like, subscribe, and hit the bell for more real talk about building a successful agency in the DD space.
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Richard Chapman, Assistant Director for Disability Leadership at the Partnership for People with Disabilities in Richmond, Virginia. With a background in mental health counseling and a deep commitment to advancing equity, Richard shares his journey and current work at the intersection of mental health and self-determination for people with intellectual and developmental disabilities (IDD).
Richard dives into how increasing self-determination—the ability for individuals to make their own life choices—can lead to better mental health outcomes and an improved quality of life. He discusses his current research, supported by the National Research Consortium on Intellectual Disability and Mental Health, which aims to show a causal relationship between self-determination and reduced psychopathology.
Throughout the conversation, Richard highlights the importance of inclusion, cautions against the overuse of polypharmacy, and advocates for restraint-free support systems. He emphasizes that people with IDD not only deserve access to psychotherapy but also thrive when they’re empowered to make their own decisions.
Don’t miss this powerful discussion on redefining support systems, challenging outdated models, and building a more equitable future for people with IDD.
👉 Learn more about Richard's work and the resources mentioned by checking the show notes. 🎧 IDD Health Matters is a joint production of Friends for Life and IntellectAbility.
In this special solo episode of the Friends for Life Podcast, host Tony Stuart goes deep on a topic that’s been buzzing in the DD (Developmental Disabilities) field—starting your own agency or becoming an independent provider. Tony lays out the real-life challenges, hard truths, and important steps involved in launching a successful agency—from understanding your "why", choosing between becoming an independent provider or opening an agency, and navigating the complex startup process, including Medicaid applications, staffing ratios, office setup, and more. If you're thinking about becoming your own boss in this field just to "get away from a bad job" or chase money, Tony gives a reality check. But if your heart is in the right place and you're truly passionate about providing excellent care, this episode is packed with insight, actionable advice, and honest encouragement. 📌 Topics Covered: Knowing your true why before launching Choosing between independent vs. agency provider Understanding staff ratios & client tiers (A, B, C) Budgeting: why you may need $10K–$12K to start Navigating Medicaid licensing and inspections Real talk on leadership, sacrifice, and business mindset Preparing for the long game of being a provider This is Part 1 of a new series where Tony will walk through what it takes to build a successful, people-first agency in the DD world. ✅ Whether you're serious about making a change in your career or just exploring your options, this episode is a must-listen. 🔗 Sponsored by: 🧠 IntellectAbility - Tools for Health Equity | ReplacingRisk.com 🏡 Assured Health Services - Helping Others Succeed | assuredhealthohio.com 🧪 Reliable Drug & Alcohol Testing | relidrugtest.com 🖥️ THS Remote Supports | thsrs.com 📲 Like, comment, and subscribe to stay tuned for Part 2, where we’ll cover the business side of running an agency—sales, growth, and sustainability. #FriendsForLifePodcast #DisabilityServices #AgencyStartup #DevelopmentalDisabilities #Caregiving #IndependentProvider #OhioDD #BusinessInHealthcare #DSP #LeadershipInCaregiving
In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with Eddie Tuduri, a world-class drummer whose career included playing with legends like The Beach Boys, Loggins & Messina, Del Shannon, and Ricky Nelson. But in 1997, a life-altering accident left him paralyzed—an event that ultimately led him to create the Rhythmic Arts Project (TRAP), a groundbreaking program that uses rhythm and percussion to enhance learning, communication, and rehabilitation for individuals with intellectual and developmental disabilities (IDD).
Eddie shares his inspiring story of resilience, the impact of music in therapy, and how his passion for drumming transformed into a global movement. He and Dr. Escudé discuss the importance of presuming competence, staying inquisitive, and the power of volunteering in making a meaningful impact on the lives of people with disabilities.
🔗 Learn more about TRAP at traplearning.org 📧 Contact Eddie at traplearning@gmail.com
Don't miss this powerful conversation about overcoming adversity, the healing potential of music, and how one man turned a tragedy into a mission that has changed thousands of lives worldwide. 🎶💙
Becoming a DD provider isn’t just a career—it’s a lifestyle that demands deep commitment and sacrifice. In this episode, Tony Stuart, CEO of Friends for Life, draws from over 20 years in the IDD field to break down the realities of this work. From missing family events and losing sleep to struggling with income stability and sacrificing personal time, Tony candidly discusses the challenges that come with dedicating yourself to serving individuals with disabilities. If you’ve ever considered starting an agency or working in the DD field, this episode is a must-listen. Are you ready to make the sacrifices needed to truly make a difference? Tune in now and join the conversation! 📢 Sponsored by: ✅ IntellectAbility – Improving health equity for people with IDD. Learn more at replacingris.com. ✅ Assured Health Services – Helping others succeed through residential and adult day services. Visit assuredhealth.com. ✅ Reliable Drug & Alcohol Testing Clinic – Fast, affordable pre-employment and occupational testing. Learn more at reliabledrugtest.com. ✅ THS Remote Supports – Enhancing independent living through personalized remote services. Visit thsrss.com. 🎧 Listen now and subscribe for more insights into the world of IDD support!
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Rachel Potts, a dedicated nurse and Director of Nursing for ICF homes, to discuss the challenges and rewards of providing healthcare for individuals with intellectual and developmental disabilities (IDD). Rachel shares her journey into the field, beginning as a school nurse for children with autism, and how she quickly developed a passion for understanding and communicating with non-verbal individuals.
Throughout the conversation, Rachel and Dr. Escudé explore the critical need for better training and resources for healthcare professionals, the importance of observation skills in diagnosing health concerns, and the role of direct support professionals (DSPs) in advocating for individuals with IDD. Rachel also shares real-world experiences, including a powerful story about learning to recognize subtle health cues that might otherwise be overlooked.
Tune in to learn about the barriers in IDD healthcare, the importance of collaboration between providers, and how simple tools—like augmentative communication apps—can make a big difference. Whether you’re a healthcare provider, caregiver, or advocate, this episode offers valuable insights into improving healthcare equity for people with IDD.
🔗 Learn more about supporting individuals with IDD and access valuable resources by checking out the show notes!
#IDDHealthMatters #HealthcareEquity #DisabilityAdvocacy #IDD #MedicalTraining #CommunicationMatters
n this episode of the Friends for Life Podcast, CEO Tony Sttuart tackles an important and often overlooked question: Can you lose your IO waiver? While losing a waiver is uncommon, it can happen—most often due to underutilization of services. Tony breaks down the reasons behind this, the implications for individuals relying on these services, and what can be done to avoid losing access to crucial support.
The discussion delves into the state's perspective on waiver funding and the push for greater independence among individuals with disabilities. With the rise of remote support services, there’s an increasing focus on reducing one-on-one direct care in favor of technology-driven solutions. But what happens when someone becomes too independent and stops using their allocated hours? Tony explains the risks, including the long and difficult process of reapplying for a waiver if it is lost.
Additionally, Tony provides practical advice on selecting the right provider to meet individual needs, covering the key questions to ask during the agency selection process. Not all providers specialize in the same areas—some excel in medical care, others in community outings or behavioral support—so finding the right fit is essential.
Whether you’re a waiver recipient, a caregiver, a DSP, or simply someone looking to understand the ins and outs of waiver services, this episode offers valuable insights to help navigate the system and ensure ongoing access to support.
💬 Have thoughts or questions? Drop a comment and join the conversation!
🎧 Tune in now to stay informed and empowered!
#FriendsForLifePodcast #WaiverServices #DSP #DisabilitySupport #RemoteSupports #CaregiverResources #IOWaiver #IndependentLiving
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Chris Helfrich, a dedicated nurse and an integral member of the Developmental Disabilities Nurses Association, live from the DDNA annual conference in New Orleans. Chris shares her unexpected journey into the field, her experiences navigating healthcare for individuals with developmental disabilities, and the critical need for better education and training for healthcare providers.
Chris also discusses her groundbreaking work in Illinois, where she has been instrumental in opening specialized community-based homes for individuals with Prader-Willi syndrome. She highlights the challenges of healthcare disparities, the importance of structured environments for individuals with unique needs, and the inspiring impact of these initiatives on both individuals and staff.
Tune in for an insightful conversation about the evolving landscape of healthcare for people with IDD, the strides being made in nursing education, and what the future holds for better, more inclusive healthcare solutions.
In this episode of the Friends for Life Podcast, Tony Stuart dives into the importance of emotional intelligence in the field of developmental disabilities (DD) and beyond. He explores how self-awareness, empathy, and adaptability play a crucial role in supporting individuals with disabilities, emphasizing the need to truly listen, affirm feelings, and respond with kindness.
Tony shares personal experiences and insights on how emotional intelligence impacts not only professional interactions but also personal relationships, parenting, and navigating the complexities of society. He breaks down key strategies for DSPs, SSAs, and administrators to cultivate emotional intelligence, ensuring they can connect with and support those they serve more effectively.
Whether you're in the DD field or just looking to improve your emotional awareness, this episode is packed with valuable takeaways. Tune in and start building better connections today!
#EmotionalIntelligence #DevelopmentalDisabilities #FriendsForLife #Podcast #Empathy #ListeningSkills
In this episode of the Friends for Life Podcast, we explore the incredible journey of Stevie Wonder, a musical legend who defied the odds and reshaped the industry despite being blind. From his early days as a child prodigy to his groundbreaking use of technology and activism for disability rights, Stevie’s story is one of perseverance, innovation, and inspiration. Tune in as we discuss how his talent, determination, and advocacy continue to break barriers and inspire millions worldwide.
In this dynamic episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Bob Sattler—whose extensive experience and passion for person-centered care have transformed developmental disability services. Recorded live at the NASD Conference in Portland, Oregon, this conversation delves into Bob’s unique journey from a camp counselor and direct support professional to a pioneering consultant and co-founder of Support Development Associates (SDA).
Bob Satler shares how his career evolved alongside the movement toward true person-centered practices, emphasizing that treating individuals as people first is far more than a buzzword—it’s a transformative approach that empowers both service recipients and their support teams. He explains how effective person-centered care involves not only ensuring safety and health but also fostering autonomy, fulfillment, and genuine quality of life. Through real-life examples and insights from his work, Bob highlights the importance of listening to the very people whose lives are at the heart of these services, and the challenges of reshaping organizational cultures to make person-centeredness the norm.
Join Dr. Escude and Bob Sattler as they explore the balance between safety and autonomy, discuss innovative strategies to integrate person-centered practices into everyday operations, and envision a future where support systems are as dynamic and compassionate as the people they serve. Tune in for an enlightening conversation that promises to inspire professionals and advocates dedicated to advancing health equity for individuals with intellectual and developmental disabilities.
In this candid episode of Friends for Life with Tony Stuart, Tony dives into one of the most challenging decisions in workforce management—terminating employment for Direct Support Professionals and administrators. Drawing on over 20 years of experience, he explores the delicate balance between maintaining high standards and recognizing the human element in every workplace decision.
Tony unpacks:
- The Emotional Side of Termination: How emotional intelligence plays a key role, even when policies seem clear-cut.
- When to Draw the Line: Real-world indicators, from repeated infractions to critical health and safety concerns, that signal it might be time to part ways.
- Beyond the Policy: Why understanding personal accountability and the nuances of workplace relationships (yes, even dating among co-workers) is essential for fair and effective discipline.
Join Tony as he shares practical strategies, reflective questions, and personal insights that challenge traditional disciplinary methods. Whether you're managing a team in a sensitive environment or seeking to refine your leadership approach, this episode offers thoughtful guidance on making those tough decisions with both compassion and confidence.
In this episode of the Friends for Life Podcast, we dive into the alarming news that over 700,000 people in Ohio could lose Medicaid due to proposed budget cuts. For individuals with developmental disabilities, Medicaid isn’t just healthcare—it’s a lifeline. These cuts could mean the loss of essential home and community-based services, personal care assistance, and access to specialized therapies that promote independence and quality of life.
We discuss how these changes could increase institutionalization, place overwhelming strain on caregivers and families, and lead to devastating gaps in necessary medical care. With Medicaid already stretched thin, what would happen to the thousands of people who rely on it for daily support?
Join us as we break down the real impact of these proposed budget cuts and explore why protecting Medicaid is crucial for people with disabilities. If you care about inclusion, independence, and fair access to healthcare, this is an episode you won’t want to miss.
🔊 Tune in now and be part of the conversation!
#MedicaidCuts #DisabilityRights #DevelopmentalDisabilities #HealthcareForAll #FriendsForLifePodcast
In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous.
John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real stories and achievements within the IDD field.
Throughout the conversation, John and Dr. Escudé explore the importance of mental health and gratitude in a field that is often stressful but deeply rewarding. They discuss how sharing stories fosters connection, increases retention among DSPs, and strengthens community support for IDD services.
John also shares a powerful success story of how his company’s videos have helped counties pass critical funding levies and amplified the voices of individuals with disabilities, proving that visibility and awareness can drive real change.
Tune in for an inspiring conversation about the impact of storytelling, the importance of celebrating even the smallest victories, and the dedication of those working in the IDD field.
🔗 Learn more about John’s work at Silfies Media 🔗 Explore resources from IntellectAbility at ReplacingRisk.com
In this episode of the Friends for Life Podcast, host Tony Sttuart, CEO of Friends for Life, tackles a tough question: Is the disability field doomed? With ongoing political shifts, threats to Medicaid funding, and the inconsistent distribution of resources, the future of disability services remains uncertain.
Tony dives into the challenges DSPs face, from stagnant wages to healthcare concerns, and highlights the importance of staying informed and advocating for sustainable solutions. Using the Toledo Water Crisis as a powerful analogy, he emphasizes the need for preparedness and unity in uncertain times.
Join the conversation and share your thoughts—how do you see the future of disability services unfolding? Don’t forget to subscribe, like, and follow for more critical discussions.
In this episode, we explore the incredible life and legacy of Stephen Hawking, one of the greatest scientific minds of our time. Despite being diagnosed with ALS at just 21, Hawking defied all odds, revolutionizing our understanding of black holes, the Big Bang, and the nature of time. His groundbreaking theory on Hawking radiation reshaped modern physics, while his best-selling book, A Brief History of Time, made complex science accessible to the world. Beyond his research, Hawking became a global icon, proving that physical limitations do not define one’s potential. Join us as we dive into his remarkable journey, his contributions to science, and the lasting inspiration he left for future generations.
On this episode of IDD Health Matters, Dr. Craig Escudé sits down with Johnathon Crumley, Chief Operations Officer of IntellectAbility, to discuss his unexpected journey into the field of intellectual and developmental disability (IDD) support. Originally planning a career as a military chaplain, Jonathan's path shifted when he discovered his passion for improving services and quality of life for individuals with IDD. In this insightful conversation, Johnathon shares how person-centered thinking, proactive healthcare approaches, and celebrating small wins can transform support systems. He also dives into the critical work IntellectAbility is doing to provide tools, training, and resources that enhance care for people with IDD. Tune in to learn how balancing health, safety, and personal choice leads to a more fulfilling life for individuals with disabilities. For more information on IntellectAbility’s resources, visit ReplacingRisk.com.
In this heartfelt episode of the Friends for Life Podcast, we take a journey through cherished memories, laughter, and the deep bonds of family as we remember Uncle Larry. His story is one of resilience, joy, and the unwavering love of his siblings, nieces, and nephews.
Through candid storytelling, we hear about Larry’s mischievous moments, his love for music and dancing, and the impact he had on those around him. His family recalls the joy of growing up together, treating him no differently than any other sibling, and the challenges they faced navigating the world of developmental disabilities. From hilarious childhood antics to the emotional weight of advocacy and protection, this episode highlights the importance of family support, inclusion, and ensuring dignity for individuals with disabilities.
We also explore deeper topics, including the hidden struggles within the disability community—such as vulnerability to abuse—and the importance of speaking out for those who cannot always advocate for themselves. The conversation shifts between joy, nostalgia, and reflection, ultimately emphasizing the lasting impact of love, legacy, and the power of community.
Join us for this moving tribute to Uncle Larry, a man whose happiness came from the little things in life and whose presence will never be forgotten.
🎧 Tune in now and be part of the conversation on love, inclusion, and the importance of family.
#FriendsForLifePodcast #IDDCommunity #FamilyLegacy #InclusionMatters #Advocacy #UncleLarry
In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Sharon Parker Love, a nurse with 56 years of experience, to discuss her journey in the field of intellectual and developmental disabilities (IDD) nursing. Recorded at the Illinois Developmental Disabilities Nurses Association Conference, Sharon shares her remarkable career—from starting with a state grant program to dedicating over three decades to Trinity Services, where she has helped individuals with dual diagnoses and complex medical needs.
Sharon dives into her work in crisis prevention, recounting heartbreaking and inspiring stories of individuals in need, including an individual who spent eight months in an emergency room before receiving proper care. She emphasizes the importance of observation skills, direct care staff training, and a detective-like approach to uncovering hidden medical conditions that often manifest as behavioral challenges.
Tune in for invaluable insights into the evolving role of nurses in IDD care and the crucial need for more professionals in this field.
Join Tony Stuart on this heartfelt episode of Friends for Life as he reflects on the profound impact of his Uncle Larry—a man whose spirit, love, and joy continue to inspire. In honor of the values and memories that shaped his journey, Tony is joined by three of the most influential people in his life: his beloved partner Sher, Uncle Wayne, and Uncle David. Together, they take us on an intimate trip down memory lane, sharing candid stories about growing up in a family bound by unconditional love and resilience.
In this deeply personal conversation, the group recalls the playful yet poignant moments of caring for Uncle Larry—from the early days of childhood mischief and backyard cookouts to the challenges and rewards of being his caregiver. Listeners will be treated to vivid anecdotes of dancing contests, humorous family rivalries, and the unique ways in which Larry’s free-spirited nature brought everyone together. Amid laughter and tender reminiscences, the episode also explores the importance of family support, the strength found in overcoming adversity, and the life lessons learned from embracing each other’s differences.
Whether you’re looking for inspiration, a reminder of the power of family bonds, or simply a story told with warmth and humor, this episode is a celebration of life, love, and the enduring legacy of those who shape us. Tune in for a conversation that’s as entertaining as it is moving—an episode that truly embodies what it means to live a life of friendship and care.
In this episode of the Friends for Life Podcast, we dive into the remarkable life of Helen Keller, a woman who defied all odds to become one of the most influential advocates for people with disabilities. Born in 1880, Keller lost her sight and hearing as a toddler, but with the guidance of her teacher, Anne Sullivan, she broke through the barriers of communication and became the first deaf-blind person to earn a college degree. Her journey didn’t stop there—Keller dedicated her life to fighting for disability rights, women’s rights, and social justice on a global scale. Join us as we explore her incredible story of perseverance, advocacy, and the lasting impact she left on the world.
Welcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London.
Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings of the PETAL study in the UK, designed to offer multimodal interventions to those in need.
Dr. Sheehan discusses his role as a senior clinical lecturer and psychiatrist, focusing on patients with learning disabilities who encounter legal issues. He highlights the significance of utilizing large data sets to improve care delivery and touches upon the disparities in psychotropic medication use among the IDD population.
Together, they discuss the intricacies of the UK's National Health Service and the critical need for specialized training and capacity building in the field of intellectual disability psychiatry.
This episode not only sheds light on innovative research and clinical practices but also emphasizes the importance of incorporating lived experiences to enhance intervention strategies.
For more insights and detailed discussions on improving healthcare outcomes for the IDD community, tune into this episode of IDD Health Matters. Don't forget to check the show notes for more information and links to further resources.
In this episode of the Friends for Life Podcast, Tony Stuart tackles one of the most challenging aspects of being a supervisor—deciding when to terminate an employee. Tony dives into the complexities of balancing staff shortages, maintaining work ethics, and ensuring that decisions align with both company policies and personal values.
He discusses key factors that supervisors must consider, such as health and safety risks, adherence to company policies, timeliness, and overall attitude. Tony emphasizes the importance of clear documentation and how it plays a crucial role in state compliance and reimbursement. He also sheds light on the need for self-reflection, urging supervisors to assess their own management style and communication methods to create a more positive and productive workplace.
Whether you're a seasoned leader or new to a supervisory role, this episode offers valuable insights and practical strategies to navigate the difficult but necessary process of employee termination.
Tune in and join the conversation with Tony Stuart as he shares his experiences and tips for making informed, fair, and compassionate decisions in the workplace.
In this insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, welcomes Dr. Brandi Kelly, the Clinical Director for Louisiana's Developmental Disability Office. Dr. Kelly discusses her pivotal role in overseeing the state's virtual Resource Center, focusing on enhancing community and provider skills to better serve individuals with co-occurring intellectual, developmental, behavioral, and complex medical needs. Highlighting the unique challenges and innovative solutions in Louisiana, Dr. Kelly shares her personal connection to the field through her sister's experiences and emphasizes the importance of wellness, relationships, and clear communication in healthcare. Join us as we explore how simple adaptations in treatment and care can significantly impact health equity for those with intellectual and developmental disabilities.
In this empowering episode, Tony Stuart dives into practical tips for Direct Support Professionals (DSPs) looking to advance their careers and make a bigger impact in the IDD field. From obtaining certifications like med pass and 60-hour training to the importance of being presentable and professional, Tony shares actionable advice for growing your value, earning potential, and opportunities in the workplace.
Learn how small changes—like maintaining a driver’s license, building strong teamwork, and understanding supervisory roles—can lead to big transformations in your career. Whether you're aiming for leadership or just want to excel in your role, this episode is packed with insights to help you succeed.
💡 Tune in to discover how you can make a difference for yourself and those you support!
🌟 Friends for Life Residential Care is dedicated to providing exceptional care and support for individuals with disabilities. Their team works tirelessly to ensure that everyone they serve reaches their full potential in a safe, inclusive, and empowering environment. Learn more about their services and mission at Friends for Life Residential Care.
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In this episode of the Friends for Life Podcast, we dive into the transformative Think Differently Database Act, a groundbreaking new law signed by President Joe Biden. Tony Stuart joins us to discuss how this legislation will create a first-of-its-kind national clearinghouse for disability resources, empowering individuals with disabilities, their families, and caregivers. We explore what this means for access to essential services like Medicaid, mental health care, and community support, all searchable by zip code.
We also highlight the bipartisan effort behind this initiative, championed by leaders like former Rep. Marc Molinaro and Senators Eric Schmitt and Jon Ossoff, and what it signals for the future of disability advocacy. Tony shares insights into how this law, along with other recent measures to improve disaster relief and accessibility at federal buildings and Amtrak stations, represents a step toward fulfilling the promise of inclusion and equity for all.
At Friends for Life Residential Care, we are proud to be a provider of essential services for individuals with disabilities in Northwest Ohio. We are dedicated to supporting people in achieving their goals and living fulfilling lives. Learn more about our work and services at friendsforliferc.com.
Tune in for an enlightening conversation about the path to a more accessible and supportive future for people with disabilities!
Welcome to another enlightening episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, where we delve into health, wellness, and equity for individuals with intellectual and developmental disabilities. In this episode, we are joined by the talented Cody Clark, a magician and autistic self-advocate from Louisville, Kentucky. From a magical beginning in Gulf Shores, Alabama, Cody shares how a family vacation and an inspiring stage moment sparked his journey into the world of magic at the age of eleven. This episode isn't just about tricks; it's about transformation and advocacy. Cody discusses how embracing his autism publicly became a crucial part of his performances, allowing him to connect deeply with audiences and foster understanding about autism through his art. Cody also sheds light on how healthcare providers can better support individuals with autism, stressing the importance of clear communication and sensory-friendly environments. From the quietness of a dentist's office to the challenges at the pediatrician, Cody's insights offer invaluable advice for medical professionals. Tune in as Cody performs a couple of his thoughtful magic tricks live, demonstrating how magic can not only entertain but also educate and advocate for the autism community. Don't miss this magical blend of art and advocacy that Cody brings to our show. For more about Cody's work or to book him for an event, visit CodyClarkMagic.com. Dive deeper into this episode's content by watching the video version on our YouTube channel at IDD Health Matters Podcast.
In this episode of the Friends for Life Podcast, Tony Stuart dives deep into the power of social intelligence and how mastering this skill can transform both personal and professional relationships. Tony shares valuable tips on approaching problems with empathy, fostering better communication, and building stronger teams. From being “soft on the person and hard on the problem” to the importance of remembering names, Tony highlights practical strategies that anyone can use to make meaningful connections.
He also emphasizes the significance of praising publicly and criticizing privately, avoiding gossip, and taking action when faced with challenges instead of dwelling on complaints. Whether you're a direct support professional, a leader in the field, or simply someone looking to enhance your interpersonal skills, Tony’s insights will inspire you to lead with compassion and positivity.
Tune in for this impactful conversation and take away actionable tips to improve your social interactions and foster a more supportive community!
Join Dr. Craig Escude in this enlightening episode of IDD Health Matters as he sits down with Robert Scholz from the University of New Hampshire's Institute on Disability. Robert shares in-depth insights into the National Center for START Services, a pioneering program designed to provide mental health support and crisis prevention for individuals with intellectual and developmental disabilities (IDD). Starting in the late 1980s in Massachusetts, START has expanded nationwide, aiming to address healthcare disparities and improve access to mental health services for the IDD community. Listen as Robert discusses the program's origins, its evolution, and the real-world impact it has on families and individuals across the country. This episode is a must-hear for anyone interested in mental health advocacy and the innovative approaches to supporting those with IDD. For more details on START and how it could benefit your community, visit the link in our show notes.
In this episode of the Friends for Life Podcast, we take a deep dive into the essential field of care for individuals with developmental disabilities. This vital work goes far beyond basic services—it’s about fostering independence, promoting inclusion, and ensuring that individuals with unique needs can lead fulfilling lives within their communities.
We explore how specialized care, including speech therapy, occupational therapy, and job coaching, empowers individuals with developmental disabilities to build essential life skills, access employment, and participate meaningfully in society. This care not only benefits individuals but also provides much-needed support for families navigating the complex challenges of caregiving.
Historically, people with developmental disabilities faced marginalization and exclusion. Today, caregivers and advocates play a critical role in ensuring that these individuals are treated with dignity and respect. By promoting policies and programs that protect their rights, developmental disability services strengthen the social fabric of our communities and create a culture of acceptance and understanding.
This episode is a powerful reminder that investing in the field of developmental disability care isn’t just about meeting physical and emotional needs—it’s a moral imperative that reflects our collective values of compassion, dignity, and equality.
Tune in to learn more about how caregivers, advocates, and service providers are creating a brighter, more inclusive future for everyone.
In this compelling episode of IDD Health Matters, Dr. Craig Escudé sits down with Cathy Service, a nurse practitioner with decades of experience in the field of intellectual and developmental disabilities (IDD). Cathy shares her inspiring journey, from her early days working in a state institution to becoming a leader in dementia care for individuals with IDD.
Listen as Cathy discusses the challenges and triumphs of transitioning from institutional care to community-based supports, the importance of education and training for healthcare providers, and her pioneering work in dementia care. She emphasizes the need to honor each individual's unique story and highlights strategies for fostering well-being across the lifespan.
From her research on aging and dementia to her advocacy for inclusion and kindness in community settings, Cathy’s insights are both thought-provoking and practical. Whether you're a healthcare professional, caregiver, or advocate, this episode offers valuable lessons on creating meaningful, person-centered care for people with IDD.
Tune in for an engaging conversation filled with wisdom, compassion, and actionable advice.
🎧 Learn more about resources mentioned in this episode by visiting the links in the show notes!
In this heartfelt episode of the Friends for Life Podcast, we sit down with the remarkable Mike Hayes, winner of the prestigious Annie Sullivan League Award, to explore his inspiring journey of service, creativity, and advocacy. Mike shares stories from his early days mentoring youth through theater and music, his transition to working with adults in the developmental disabilities community, and his philosophy that everyone is “enabled, not disabled.”
With decades of experience, Mike reflects on his passion for creating inclusive spaces where individuals can express themselves through music and the arts. He discusses his groundbreaking program, Heart Beats of Life, which celebrates our shared humanity through rhythm and connection, and his belief in the transformative power of understanding and respect.
Join us as Mike recounts his lifelong commitment to empowering others, the mentors who shaped his path, and the joy of seeing others discover their potential. This episode is a moving reminder of the power of compassion, creativity, and the simple act of truly seeing one another.
Tune in and be inspired by a life dedicated to making a difference.
In this inspiring episode of the IDD Health Matters Podcast, Dr. Craig Escude is joined by three dedicated occupational therapists from UC Health at the University of Colorado. Bree Williams, Kelly Corley, Margaret Ries share their journeys into the field of occupational therapy and their specific involvement with individuals with intellectual and developmental disabilities (ID). They delve into the details of the Sunflower Program, an initiative they’ve pioneered to enhance the hospital experience for patients with ID. The therapists discuss innovative methods they employ, such as holistic evaluations and tailored environmental adjustments, to ensure comprehensive care. This conversation not only highlights the significance of inclusive health practices but also serves as a beacon for other institutions aiming to improve health equity. Tune in to learn how the Sunflower Program is making a meaningful difference in the lives of patients by integrating sensory considerations, behavioral plans, and a multidisciplinary approach to patient care.
In this episode of the Friends for Life Podcast, we sit down with Chris Hart and Jane Meyer from the Lucas County Board of Developmental Disabilities. With a combined 47 years of experience, Chris and Jane share their vital work in the Provider Support Department, ensuring compliance, fostering provider growth, and enhancing the quality of care for individuals with developmental disabilities.
From navigating the challenges of provider compliance to collaborating with law enforcement and Adult Protective Services for emergency response, Chris and Jane shed light on the multifaceted role they play in supporting providers and safeguarding individuals. They discuss the importance of DSP retention, the impact of reimbursement rates, and how the Board partners with providers to create sustainable and rewarding environments for care.
Hear their insights on embracing challenges, fostering long-term growth, and the joy of helping providers discover their niche in serving individuals and families. Plus, they share a glimpse into the lighter side of their work with holiday traditions and staff celebrations that bring the team together.
Whether you’re a seasoned provider, new to the field, or simply curious about the critical work behind developmental disabilities services, this episode offers a mix of practical advice, inspiration, and heartfelt dedication.
📧 Reach out to the Provider Support Department at askprovidersupport@lucasdd.org or call 419-384-0000 to learn more!
In this episode of the Friends for Life Podcast, we dive into the U.S. Department of Labor's groundbreaking proposal to phase out 14(c) certificates, a decades-old provision allowing employers to pay workers with disabilities less than minimum wage. This historic move marks a pivotal step toward ending subminimum wage employment and fostering greater economic equity and community inclusion for individuals with disabilities.
We explore the legal and policy advancements that have dramatically expanded employment opportunities since the 1938 Fair Labor Standards Act and discuss the significant decline in the use of 14(c) certificates over the years. With nearly half of the workers under this model earning $3.50 an hour or less, advocates argue that the time has come to prioritize fair wages and competitive employment.
However, the proposed changes are not without controversy. We examine the challenges raised by those who believe sheltered workshops still play a critical role for individuals with severe disabilities requiring highly specialized support. Additionally, we discuss how disability advocacy groups like the Autistic Self Advocacy Network are urging Congress to pass legislation that would ensure a smooth transition to inclusive employment opportunities for all.
Join us for an in-depth look at this crucial moment in disability rights history and the ongoing debate about how best to support individuals with disabilities in achieving meaningful, dignified work.
In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Bethany Toledo and Becky Watson from the Ohio Alliance of Direct Support Professionals (OADSP). Together, they discuss the vital role of Direct Support Professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Bethany and Becky share OADSP's mission to educate, elevate, and empower DSPs through innovative programs like DSP University, which introduces high school students to the profession via education and hands-on experience.
Explore the credentialing pathways, leadership development initiatives, and advocacy efforts that are transforming the DSP field. From state-wide programs like the DSP Experience to leadership retreats like Launchpad, this episode highlights how OADSP is elevating DSPs and strengthening the IDD community. Bethany and Becky also emphasize the importance of recognizing health destabilization in individuals supported by DSPs and the value of self-care for those in the field.
Whether you're a current DSP, exploring the profession, or seeking to implement similar programs in your area, this episode offers invaluable insights and resources. For more information, visit oadsp.org or explore free tools on OADSP TV Plus. Don’t miss this inspiring conversation about building a stronger, healthier future for the IDD community!
In this episode of the Friends for Life Podcast, Tony Stuart dives deep into the heart of what it means to be a Direct Support Professional (DSP) and, more importantly, a compassionate human being. Reflecting on the core purpose behind the work, Tony challenges listeners to reconnect with the "why" behind their roles.
From navigating workplace frustrations to addressing the chaos caused by negativity, Tony speaks candidly about the importance of morale, accountability, and staying true to the mission of helping others. Through thought-provoking examples, he explores how morality and humanity intersect, offering insight into the decisions we make and the impact they have on those around us.
This episode is packed with raw honesty and deep reflections that will leave you inspired to approach your work—and your life—with greater purpose and integrity. Tune in for a conversation that blends humor, humanity, and hard truths.
In this episode of the Friends for Life Podcast, we dive into an inspiring story of resilience, innovation, and hope. Christopher Moore, a father of four with three children on the autism spectrum, shares his journey of understanding his children’s unique needs and behaviors. After years of trial and error, Moore discovered the potential of artificial intelligence (AI) to bridge the communication gap for individuals with autism.
Now a doctoral candidate in computer science, Moore is collaborating with researchers at the University of New Orleans to develop groundbreaking AI tools that analyze behavioral patterns in children with autism, translating cues like gestures and eye movements into meaningful insights. Funded by a $300,000 grant, their work aims to empower parents, caregivers, and professionals with a deeper understanding of autism behaviors, offering practical solutions for daily life and critical scenarios alike.
Join us as we explore the challenges, triumphs, and future of this innovative research. Learn how Moore’s project could revolutionize how caregivers interact with individuals on the autism spectrum, ensuring that everyone has a voice, even in the most difficult situations.
This episode is a must-listen for parents, caregivers, and anyone passionate about inclusivity and advancing autism support through technology.
In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé sits down with Dr. David Fray, a trailblazer in dentistry and healthcare for individuals with intellectual and developmental disabilities (IDD). Dr. Fray shares his inspiring journey, from growing up in a disability-friendly household to a career that has spanned private practice, teaching, global health initiatives, and leadership roles in state and international healthcare systems.
Together, they discuss the importance of collaborative care, the need for person-centered and lifespan-focused health planning, and the transformative power of cultural empathy in supporting individuals with IDD. Dr. Fray also highlights his work with the American Academy of Developmental Medicine and Dentistry (AADMD) and the impact of global initiatives in advancing healthcare equity.
Don’t miss this enlightening conversation filled with practical insights, personal stories, and a call to action for a more inclusive healthcare system.
In this insightful episode of the Friends for Life Podcast, Tony Sttuart shares essential tips for navigating the sometimes complex process of choosing the right provider or independent provider agency. With a focus on recognizing red flags, Tony offers practical advice for individuals and families to ensure they find a provider that truly meets their needs.
Tony discusses key considerations, including evaluating a provider's website, checking their mission statement, and assessing the professionalism and preparedness of their staff. He highlights the importance of matching staff to clients effectively and provides valuable insights into transportation logistics, the impact of appearance during interviews, and even addressing concerns about drugs and alcohol in the professional setting.
If you’re seeking guidance on making informed decisions about your care or are simply interested in understanding the nuances of provider selection, this episode is packed with actionable advice and real-world examples. Tune in for Tony’s honest and experienced perspective on this vital topic!
In this episode of the Friends for Life Podcast, we delve into the U.S. Department of Justice’s lawsuit against Pennsylvania, highlighting claims of discrimination under the Fair Housing Act. The discussion centers around the state's controversial requirement for automatic sprinkler systems in community homes for individuals with intellectual disabilities and autism, a mandate not imposed on other residential housing. These homes, designed to offer a supportive, family-like environment and avoid institutionalization, already meet stringent fire safety standards.
We explore the financial and logistical burdens of this requirement, which can cost up to $30,000, limiting housing options and accessibility for residents. The DOJ argues that this policy unfairly restricts opportunities for individuals with disabilities, while Pennsylvania defends the regulation as a necessary safety measure. Join us as we unpack the broader implications of this lawsuit, the balance between safety and accessibility, and the critical need for equitable housing solutions for people with disabilities.
In this special episode of IDD Health Matters, Dr. Craig Escudé is joined by John Dickerson, a lifelong advocate and innovator in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). Recorded live at the NASDDDS conference in Portland, Oregon, John shares his inspiring journey that began in 1973 with The Arc, his commitment to empowering individuals with IDD, and the pivotal moments that shaped his career.
John discusses the creation of Quillo, a transformative platform designed to inspire and educate families, individuals, and staff through microlearning. Learn how Quillo is addressing key challenges such as staff turnover, communication gaps, and the need for person-centered approaches in disability services.
John also shares profound insights on advocacy, positivity, and finding joy in everyday moments. His practical advice, including lessons from positive psychology and the importance of being present, will leave you inspired to make a difference in your community.
Tune in to discover how small changes and innovative tools can lead to big impacts in the lives of individuals with IDD and those who support them.
For more information on Quillo, visit MyQuillo.com.
Show Notes:
- Learn about Friends for Life Residential Care: friendsforliferc.com
- Explore tools to improve health equity for individuals with IDD: ReplacingRisk.com
Don’t miss this heartfelt conversation filled with wisdom, optimism, and actionable strategies to create a better future for all.
In this episode of the Friends for Life Podcast, Tony Stuart dives into the world of Adult Day Support (ADS) programs and how they can serve as a bridge to greater independence and personal growth. He challenges the misconception that ADS programs are just about filling time and highlights their potential to teach valuable life skills, from creative projects to physical activities like basketball and baseball.
Tony emphasizes the importance of choosing an ADS program that meets individuals where they are while fostering opportunities for growth and development. He encourages families and individuals to look beyond the surface, ensuring staff are passionate about helping participants achieve their goals, not just following a routine.
Beyond ADS, Tony discusses the value of Vocational Guidance (VOG) services, which can help individuals with disabilities enhance their professional and financial futures. With a focus on positivity, kindness, and effort, Tony reminds us that success is attainable for everyone.
Tune in for practical insights, inspiring ideas, and a call to action to rethink how we approach ADS and VOG programs for individuals with developmental disabilities.
In this episode of the Friends for Life Podcast, we dive into the looming threats to Medicaid and what they could mean for individuals with developmental disabilities. With Republicans set to take control in Washington, disability advocates are raising alarms about proposals to reshape Medicaid through measures like block grants and work requirements. These changes could undermine the nation’s system of home and community-based services (HCBS), leaving many vulnerable individuals and families without essential support.
We explore the potential impact of these proposals on a system already under strain. With nearly 700,000 people on waiting lists for Medicaid waivers and widespread staffing shortages in disability services, the stakes couldn’t be higher. Our discussion highlights the stories and concerns of advocates like Nicole Jorwic and Kim Musheno, who are fighting to preserve and strengthen Medicaid to ensure that individuals with disabilities can live independently and with dignity.
Join us as we examine the critical importance of Medicaid, the challenges facing the HCBS program, and the call for action to defend and expand these services. Whether you’re a caregiver, advocate, or simply want to understand how these policy changes could affect millions of lives, this episode is a must-listen.
In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives.
From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual’s unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits.
Kelley also highlights the often-invisible yet critical role of DSPs in ensuring individuals with IDD thrive, describing her work as "stepping into the shadows so those she supports can shine in the light." Her three key tips—embracing new experiences, recognizing everyone's gifts, and standing up for oneself—are valuable lessons for anyone involved in this field.
Join us for this heartfelt conversation that sheds light on the profound impact of DSPs and celebrates the small but significant victories that make a difference in the lives of individuals with IDD.
In this episode of the Friends for Life Podcast, we sit down with Nabil Shaheen, Community Outreach and Communications Manager for the Lucas County Board of Developmental Disabilities. Nabil shares his journey from journalism and marketing into a role that blends his professional passions with meaningful advocacy work. He discusses the rewarding challenges of shaping the board’s messaging, celebrating the achievements of individuals served, and breaking down stereotypes about government agencies and people with disabilities.
Nabil also highlights upcoming events, including the quarterly Family Forum and Story Social, while emphasizing the board's legacy of innovation and inclusion. With a commitment to person-centered planning and a focus on evolving communication strategies, Nabil’s work ensures that individuals with developmental disabilities have every opportunity to live life to the fullest.
Tune in to hear how storytelling, advocacy, and collaboration drive meaningful change in the community.
In this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care.
Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She also highlights the transformative power of listening and observing to truly understand and support individuals, particularly those who communicate in unique ways.
Listeners will gain valuable insights into balancing what is important to a person versus what is important for a person, the significance of people-first language, and how small shifts in perspective can foster inclusion and dignity. Deb’s passion, humor, and wisdom make this episode a must-listen for anyone involved in supporting individuals with IDD.
Tune in to hear why Deb believes this field attracts “the best people in the world” and how her commitment to this work continues to make a lasting impact—even in retirement.
In this heartfelt episode of the Friends for Life Podcast, Tony Sttuart speaks directly to parents and guardians of individuals with intellectual or developmental disabilities (IDD). Tony highlights the unique challenges caregivers face—balancing long work hours, providing Direct Care at home, and dealing with unreliable resources—all while striving to ensure the best for their loved ones.
Tony shares how Friends for Life goes beyond serving individuals with IDD by also supporting their families, addressing caregiver burnout, and fostering meaningful connections within the community. From creating reliable teams of DSPs to promoting understanding and inclusion in society, Friends for Life is committed to improving the lives of individuals with IDD and their caregivers alike.
This episode is a must-listen for anyone navigating the joys and struggles of caregiving. Tune in to hear Tony’s compassionate insights and learn how Friends for Life is making a difference for families and caregivers every day.
In this episode of the Friends for Life Podcast, we explore the challenges facing the direct support professional (DSP) workforce, despite recent increases in hourly wages. Although DSPs saw an average hourly wage of $15.79 nationwide in 2022—a historic first—the high turnover rate of over 40% continues to strain disability service providers, who are struggling to maintain adequate staff. Many providers report having to refuse new referrals or reduce services, highlighting the urgent need for sustainable workforce solutions. Temporary support from the 2021 American Rescue Plan provided essential funding to boost wages, but this relief is set to expire in 2025, raising concerns about long-term stability in the field.
Barbara Merrill, CEO of ANCOR, and Armando Contreras, president of United Cerebral Palsy, emphasize the critical need for more consistent support to ensure DSPs receive competitive compensation and people with developmental disabilities can access essential services without prolonged delays. With over half a million individuals still on waiting lists for services, the conversation underscores how years of underinvestment in Medicaid have limited providers’ ability to address the workforce crisis fully, jeopardizing the right of people with disabilities to live independently in their communities.
In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects focused on improving service accessibility and vocational programs.
Julie also delves into the importance of integrating people with disabilities into the broader community, emphasizing dignity, respect, and person-centered support. She discusses Louisiana’s innovative programs, such as Operation House Call, which trains medical residents to better understand the unique experiences of individuals with disabilities. The episode wraps up with Julie’s three key insights on advancing support and advocacy in the field, including promoting community awareness, expanding employment opportunities, and honoring individual choice in all aspects of life. Tune in for an inspiring look at transformative initiatives that aim to foster a more inclusive and supportive community for all.
In this episode of the Friends for Life Podcast, our guest shares a heartfelt journey into the world of Direct Support, highlighting the deep connections he’s built with those he cares for and the personal growth he’s experienced. Since starting his career nearly two years ago, he’s not only found joy in supporting others but has also received support himself, especially in pursuing his dream of becoming a radiology technician. He explains how the job has equipped him with resources for schooling and even scholarships, emphasizing the power of community and opportunity in his workplace.
Music plays a huge role in his life, both personally and professionally. As a hip-hop and rap artist who explores various genres, he discusses how music serves as a universal language that uplifts spirits and creates meaningful connections—especially for the people he supports. His love for music extends beyond entertainment; he believes music’s unique frequencies bring comfort and healing, especially in caregiving.
Through his experience working with individuals with different needs, he’s learned invaluable skills, from patience and resilience to sign language and handling pressure. His advice to anyone entering this field? Approach each day with kindness, patience, and a smile, as even small gestures can profoundly impact those in need. Tune in to hear more about his journey, his music, and his inspiring perspective on making a difference. Follow his music on all streaming platforms under the name LurXSion to experience his creative energy firsthand.
In this episode of the Friends for Life Podcast, we dive into recent research that reveals a striking rise in autism diagnoses across the United States, up by 175% over the last decade. This increase spans all age groups, but some groups are experiencing even higher rates, especially young adults and minority children. The study, published in JAMA Network Open, shows autism prevalence has more than doubled since 2011, underscoring the need for better awareness and support systems. Lead researcher Luke Grosvenor suggests that while universal developmental screenings may account for part of this rise, the diversity in diagnosis rates across age, gender, and ethnicity points to a more complex picture.
As the adult autism population continues to grow, the healthcare system faces the challenge of adapting to meet the unique needs of autistic adults, from employment support to mental health resources. In today’s conversation, we explore the implications of these findings and discuss the urgent need for inclusive healthcare solutions that offer lifelong support for autistic individuals. Join us as we take a closer look at the changing landscape of autism diagnoses and what it means for the future of care.
In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii.
Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can vastly improve outcomes for individuals with IDD. They discuss the concept of “diagnostic overshadowing,” where medical professionals might attribute symptoms solely to a disability rather than exploring underlying health issues. By encouraging more training and awareness among health practitioners, Mary and Dr. Escudé advocate for a future where IDD patients receive the comprehensive care they deserve.
The episode also highlights Mary’s work with the National Association of State Directors of Developmental Disabilities Services (NASDDDS). She explains how the organization provides invaluable federal-level advocacy, technical support, and guidance to help state agencies better serve their communities. Reflecting on the collaboration during the COVID-19 pandemic, Mary shares her belief in the power of partnerships and the importance of balancing dedication to work with personal well-being.
In this episode of the Friends for Life Podcast, Tony Stuart dives into the effects of political ads on the individuals within the IDD community. Drawing on his extensive experience as a Direct Support Professional (DSP), Tony reflects on how divisive messages in the media can impact those with intellectual and developmental disabilities, often causing confusion and frustration. He encourages a focus on humanity over politics, stressing the importance of helping individuals exercise their right to vote while maintaining a respectful, open-minded approach to differing beliefs.
Tony shares insights from his time in local government, highlighting the slow pace of change and the dedication required to create meaningful impact in the community. He advocates for finding common ground, listening more, and supporting the people around us without letting political labels define our actions. Join Tony in this candid discussion about unity, empathy, and the real challenges of navigating the political landscape as both a DSP and an advocate for the IDD community.
Listen in to explore how we can all be better humans, focusing on understanding and respect above all else.
In this episode of the Friends for Life Podcast, we dive into a timely update for Supplemental Security Income (SSI) recipients who will notice a unique payment schedule in the coming months. With a few quirks in the calendar, SSI beneficiaries will receive two payments in November as December's payment will arrive early due to the first of the month falling on a weekend. This adjustment means no payment will be issued at the start of December, though recipients can still plan on a New Year’s Eve payment for January and other similar shifts in the early part of 2025. Alongside these adjustments, a 2.5% cost-of-living increase will take effect, offering some additional support as inflation rises.
We’ll break down what this means for SSI recipients and discuss how the Social Security Administration’s payment schedule ensures that recipients receive their benefits on time. For those unfamiliar with the differences between SSI and Social Security benefits, we’ll also shed light on the basics. SSI serves as a need-based benefit for older adults, people with disabilities, and those who are blind, regardless of work history, while Social Security benefits are earnings-based. Join us as we simplify these financial shifts and help recipients understand what to expect over the next few months.
In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP’s mission to redefine DSP training as meaningful development, focusing on professional growth rather than just compliance-based instruction.
John also discusses the critical need for a standardized credentialing and certification system for DSPs—something he likens to a medical residency, providing DSPs with hands-on, guided experience rather than simply checking off boxes for required trainings. He emphasizes that DSPs are often left underprepared by traditional entry-level training models, which typically focus on emergency response rather than the nuanced daily support most individuals with IDD require. With over 1.5 million DSPs in the United States, the push for a more formalized development structure and recognition as a legitimate profession is a priority for NADSP, which actively works on advocacy and policy initiatives to achieve this goal.
In this heartfelt episode of the Friends for Life Podcast, we meet a dedicated nursing supervisor who found her calling in home care after a life-changing shift during the pandemic. Transitioning from long-term care in 2020, she discovered a deep passion for home health services, where she quickly rose to a supervisory role. In this position, she provides critical oversight, ensuring patients' medications are managed, doctor’s orders are processed, and care remains seamless. Through her journey, she has found profound fulfillment in advocating for individuals who might otherwise lack a voice, striving to create a supportive, person-centered approach to healthcare.
As the episode unfolds, our guest shares the personal connection she has to Friends for Life. Her son, a young man with severe autism, receives 24/7 support from the organization, which has become a lifeline for her family. She describes the immense relief of knowing that Friends for Life not only cares for her son but actively works to support his development, providing the structure and encouragement he needs. Through the organization’s resources and compassionate staff, she has witnessed her son achieve milestones she never imagined possible, bringing an immeasurable sense of hope and security to her family.
Listeners will be moved by her stories of the engaging programs at Friends for Life, where individuals enjoy a variety of enriching activities—from outings to apple orchards and pumpkin patches to cooking classes and team-building exercises. These experiences provide clients with valuable life lessons and avenues for social connection. For families like hers, Friends for Life offers more than just care; it creates an environment where individuals can thrive, build friendships, and experience the joy of community. This episode is a testament to the power of compassionate care and the positive, lasting impact it can have on families and individuals alike.
In this episode of the Friends for Life Podcast, Tony Stuart dives into the untapped political power of the disability community, exploring how an estimated 40.2 million eligible voters with disabilities could influence the upcoming presidential election. This episode highlights eye-opening statistics from Rutgers University and examines the growing influence of this often-overlooked electorate, which accounts for a third of all eligible voters when including households with people who have disabilities. Despite their significant numbers, presidential candidates have yet to prioritize issues crucial to this community, raising concerns among disability advocates.
Tony Stuart discusses the frustrations of advocates who have received little to no response from the campaigns of former President Donald Trump and Vice President Kamala Harris regarding vital issues like subminimum wage, Supplemental Security Income, and the inclusion of people with disabilities in policymaking. While Harris has proposed expanding Medicare for in-home care, advocates stress the need for both candidates to address the direct support workforce crisis and improve community-based services for people with developmental disabilities.
As Election Day approaches, Tony also highlights efforts by organizations like The Arc to ensure that people with disabilities can exercise their right to vote. From hosting voter registration events to providing plain-language resources and taking legal action against voter suppression, advocates are working hard to mobilize the disability vote. Tune in to learn more about the pivotal role this community could play in shaping the future of American politics.
In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation in the field.
During the conversation, Valerie reflects on the successes and ongoing challenges of deinstitutionalization, particularly the transition from large institutional settings to smaller community homes. While progress has been made in creating residential and employment supports, Valerie notes the initial missteps of replicating institutional models in smaller settings and the importance of fostering truly integrated community living. She also highlights the impact of the Centers for Medicare and Medicaid Services (CMS) Settings Rule, a landmark policy change that has advanced the rights of individuals with IDD to live more independent and self-directed lives.
The discussion delves into broader systemic issues, including the workforce crisis in the caregiving profession and the need for enhanced training and support for Direct Support Professionals (DSPs). Valerie emphasizes the value of self-direction for individuals with IDD, enabling them to take control of their own care and use personalized budgets to hire staff. Her insights provide a long view of the field, tracing its evolution and underscoring the need for continued progress to ensure equitable healthcare and meaningful community inclusion for people with IDD.
In this episode of the Friends for Life Podcast, we sit down with Jasmine Wingate, who shares her incredible journey with the organization. Starting as a Direct Support Professional (DSP), Jasmine reflects on how her path evolved through the encouragement and support of the Friends for Life team. She talks about the growth she's experienced, both personally and professionally, and the genuine connections she's formed with the individuals she serves. Jasmine also highlights the unique culture at Friends for Life, where support and opportunities are abundant, allowing staff to thrive. She discusses the importance of passion in this field, the challenges that come with balancing family and work, and her vision for expanding resources like child care for passionate caregivers. Tune in to hear Jasmine's inspiring story of dedication, advocacy, and why Friends for Life stands apart from other organizations in the industry.
In this episode of the Friends for Life Podcast, we dive into the recent announcement from the Social Security Administration about a 2.5% increase in Social Security and Supplemental Security Income (SSI) benefits for 2025. This cost-of-living adjustment (COLA) is tied to inflation and will provide a much-needed financial boost to millions of Americans, including many individuals with disabilities. We discuss how the new maximum federal SSI benefits will rise to $967 per month for individuals and $1,450 for couples, with some states contributing additional funds. Listeners will also learn about the simplified notifications beneficiaries will receive, providing clear details on their updated payments.
Join us as we explore how this adjustment will impact the 7.5 million Americans relying on SSI payments, many of whom are part of the disability community. We'll take a closer look at the significant increases in COLA over the past few years and how these adjustments help people keep up with rising living costs. This episode provides an essential update for anyone receiving benefits or supporting someone who does, with critical information on what to expect in the coming months.
In this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care.
Together, they discuss the importance of training healthcare professionals to meet the needs of people with IDD and the groundbreaking partnerships Valerie is building with medical and dental schools in Philadelphia. This episode is filled with powerful insights on the necessity of presuming competence, seeing individuals with disabilities in their full humanity, and making meaningful differences within your sphere of influence. Valerie also opens up about her personal dream of pursuing medical school and continuing her advocacy for people with disabilities throughout her career.
Tune in to hear Valerie’s inspiring story and learn more about how healthcare can evolve to be more inclusive for people with disabilities.
In this episode, Tony Stuart and the Friends for Life team are back to touch base on the latest developments. Tony shares his personal journey of growth, both as a leader and as a business owner. He dives deep into the challenges of balancing non-stop movement with results-driven success, emphasizing the importance of dedication and passion in the Direct Support field. The conversation explores the exciting progress of their Adult Day Services (ADS), their expanding team, and how music therapy with Mike Hayes is bringing joy to individuals' lives. Tony also reflects on the evolution of Friends for Life, from humble beginnings to a growing organization with a thriving new office and an unwavering commitment to helping individuals reach their goals.
Whether you’re an entrepreneur or in the DSP field, Tony’s insights on building strong teams, embracing specialization, and overcoming setbacks will inspire you to keep pushing forward. Tune in to hear how Friends for Life is making an impact, and why Tony believes that hard work, passion, and staying true to your values are the keys to long-term success.
Don’t miss this engaging episode filled with practical advice and powerful reflections on the journey of running a mission-driven business.
In this episode of the Friends for Life Podcast, Tony Stuart dives deep into the crucial role Direct Support Professionals (DSPs) play in enhancing the lives of individuals with intellectual and developmental disabilities (IDD). DSPs are at the heart of empowering individuals with IDD by helping them build skills for greater independence. From learning personal care routines to managing daily tasks, DSPs work side by side with individuals, fostering self-confidence and encouraging them to take charge of their own lives.
The conversation also highlights the importance of social inclusion and community engagement. Tony explores how DSPs serve as advocates, ensuring individuals with IDD are included in everyday social activities. Whether it’s participating in events or simply accessing community resources, DSPs help break down barriers that can isolate people with disabilities, fostering a sense of belonging and improving emotional well-being.
Tune in to hear more about the emotional and behavioral support that DSPs provide and the positive impact they have on both individuals and families. Tony Stuart shares real-life examples of how DSPs collaborate with families, healthcare providers, and other professionals to create a well-rounded, supportive environment, ensuring individuals with IDD can live fulfilling and dignified lives.
Join Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with disabilities.
Dr. Nye-Lengerman shares the challenges and strategies involved in enhancing health equity through her involvement with the START National Training Institute, which aims to advance practices that support individuals and families in the most inclusive and equitable ways possible. This conference, enriched by contributions from people with lived experiences and community partners, showcases the significant progress being made in the field. The conversation also touches on the common misinterpretations of behavioral symptoms as mental health issues, highlighting the necessity of recognizing underlying medical conditions which can be treated to prevent unnecessary suffering.
The episode concludes with a powerful discussion on the role of direct support professionals and the critical need for proper training and recognition of this workforce to achieve real inclusion and participation for people with intellectual and developmental disabilities. Dr. Nye-Lengerman's passionate advocacy for equitable health care and her belief in the transformative power of inclusive higher education shine through, offering valuable insights and inspiring listeners to consider the deep impact of educational and support systems in enhancing the lives of people with disabilities.
In this engaging episode of the Friends for Life Podcast, Tony Stuart addresses a compelling question: Are you too old to be a Direct Support Professional (DSP)? Tony dismantles the common misconception that age disqualifies individuals from contributing effectively in the disability support field, especially within intellectual and developmental disability (IDD) communities. He passionately argues that older adults can bring invaluable experience and a rich array of skills to roles that don't necessarily demand physical labor, such as in Adult Day Services or programs emphasizing arts and culinary skills. Tony encourages listeners to rethink their capabilities and consider how their unique experiences and passions can make a significant impact in the lives of those with IDD.
As the discussion unfolds, Tony highlights the increasing demand for support within the IDD community, noting rising autism and intellectual delay diagnoses. He emphasizes the importance of recognizing and utilizing one's skills to aid in fostering independence among individuals with IDD. Tony issues a challenge to listeners, urging those between the ages of 25 to 55 to engage more actively with their communities by volunteering a few days as a DSP. This involvement, he suggests, could range from hands-on assistance to strategic roles in hiring and training within local agencies, highlighting the diverse ways one can contribute.
Wrapping up the episode, Tony extends a warm invitation to join the Friends for Life community, reinforcing that no one is ever too old to make a difference. He reminds listeners that Friends for Life Residential Care is actively hiring and always open to new members who are passionate about enhancing the quality of life for individuals with developmental disabilities. Whether you're looking to make a big or small impact, Tony encourages taking that step towards becoming part of a community that values every individual's contribution, proving that your ability is indeed stronger than any disability. Join Tony next time for more insightful discussions on the Friends for Life Podcast.
In this episode of the Friends for Life Podcast, Tony Stuart dives into the modern challenges faced by professionals working in the field of intellectual and developmental disabilities (IDDs). One of the biggest hurdles is the severe shortage of qualified personnel, particularly direct support professionals (DSPs), who provide essential care and support. The conversation sheds light on how high turnover rates, low wages, and burnout are affecting the quality of care and limiting access to vital services for individuals with IDDs.
Tony also highlights the gaps in training that leave many DSPs underprepared to meet the complex needs of those with IDDs. From medical care to behavioral support, there is a growing need for specialized training that is often inaccessible due to funding and geographic limitations. The episode also tackles the healthcare disparities individuals with IDDs face, and how miscommunication and a lack of specialized services can lead to ineffective or even harmful care.
Finally, the discussion explores the impact of societal stigma and the ongoing challenges of integrating individuals with IDDs into communities, education, and employment. Tony emphasizes the need for continued advocacy, better funding, and increased awareness to ensure that those with IDDs are given the opportunities and dignity they deserve. Tune in to learn more about the systemic issues facing the IDD field and how professionals are working to overcome these barriers.
In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michelle Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michelle’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care.
Michelle highlights the unique mission of Achievable Health, emphasizing its integrated care approach, including medical services, behavioral health, and therapy. The clinic, although small, is growing rapidly and has recently received a significant grant from the Mackenzie Scott Foundation to expand its services. Michelle and Dr. Escudé discuss the importance of creating an accessible, welcoming environment for people with IDD, as well as the collaborative work with California's regional centers to ensure comprehensive care and support for patients with disabilities.
Throughout their conversation, Michelle and Dr. Escudé explore key issues in healthcare for people with IDD, including the systemic discrimination patients often face and the lack of proper training among healthcare providers. They also delve into the broader need for healthcare professionals to approach care with humility and a willingness to learn, ensuring that individuals with IDD receive the compassionate, competent care they deserve. This insightful episode sheds light on the ongoing efforts to improve healthcare equity for people with IDD.
In this episode, Tony Stuart dives deep into the process of finding the right agency or independent provider for individuals and families navigating care decisions. Drawing from his extensive experience and charismatic personality, Tony offers valuable insights on what to look for when choosing a provider. From meeting the staff to understanding their experience, pay rates, and benefits, he emphasizes the importance of asking the right questions. Tony highlights that the initial meeting should be followed by a second interview to get a fuller picture of the team that will be supporting you or your loved one.
Tony also discusses the often-overlooked differences between agency providers and independent providers, helping listeners assess which option might suit their needs. He encourages listeners to ask about staffing levels, healthcare benefits, and longevity within the organization to get a clear sense of what to expect. His personal experience in the field, along with his passion for personalized care, offers a unique perspective on how to build trust and connection with those who will be working in your home during vulnerable moments.
The episode wraps up with a reflection on the origins of Friends for Life, a company Tony founded with his Uncle Larry in mind. Tony shares how his personal experiences inspired him to create an organization that emphasizes friendship and family in care settings. He encourages listeners to reach out with questions or concerns, offering his advice and guidance for those navigating the complex process of choosing a provider. Whether you're searching for care or are a provider looking to connect, this episode is packed with practical tips and thoughtful advice.
Welcome to this enlightening episode of the Friends for Life Podcast, where we delve into the intricate world of healthcare for adults with intellectual and developmental disabilities (IDDs). In this episode, we explore the severe, chronic nature of IDDs, which can manifest before the age of 22 and impact individuals throughout their lives. Our discussion highlights the types of IDDs, such as cerebral palsy, epilepsy, Down syndrome, and fetal alcohol syndrome, emphasizing the importance of early diagnosis and adaptive behavior in managing these conditions effectively.
The conversation shifts to the significant health disparities that adults with IDDs face, including challenges in accessing care, the quality of healthcare provided, and the financial constraints due to reliance on public funding. We address how these factors contribute to poorer health outcomes and discuss systemic changes needed to improve healthcare delivery for this vulnerable population. Our experts discuss the role of family medicine in bridging these gaps through community-focused initiatives and direct care services in group homes.
Rounding off the episode, we focus on the urgent need for enhanced medical education and training in handling IDDs. The gap in healthcare providers’ readiness to treat individuals with IDDs calls for a restructured approach in medical education and residency programs. Join us as we advocate for a multifaceted strategy to healthcare that not only improves outcomes for adults with IDDs but also creates a more inclusive and effective healthcare system for all. Tune in to gain a deeper understanding and learn how we can all contribute to a better healthcare environment.
In this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years.
Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic addresses complex medical, behavioral, and psychosocial challenges, working closely with families and care teams to find effective solutions. Through thoughtful case studies and examples, Dr. Benton emphasizes the importance of collaborative, interdisciplinary healthcare, highlighting how their evaluations have transformed lives.
Listeners will also hear about the clinic’s capacity-building efforts, where Dr. Benton’s team teaches and supports local clinicians to ensure long-term care improvements. Dr. Benton offers practical tips for professionals working with individuals who cannot communicate verbally, stressing the importance of listening with more than just ears and recognizing subtle signs during physical exams.
Tune in for a deep dive into this unique model of care and discover how collaboration and dedication can enhance health outcomes for people with IDD.
In this episode of the Friends for Life Podcast, Tony Stuart delves into a significant issue faced by Direct Support Professionals (DSPs): resignations. Tony addresses the common tendency for DSPs and even those in executive and administrative positions to leave a job when faced with challenges. While understanding that some positions may not be the right fit, he encourages individuals to ask themselves important questions before making the decision to resign. Are they leaving a situation that is truly unchangeable, or are they missing an opportunity to be the positive change within their environment? Tony stresses that taking the time to evaluate their role, skills, and impact can lead to professional growth and even potential promotions.
Tony emphasizes the importance of giving time to adjust, especially for those newer to the field. He shares that discomfort is part of every career journey and that success often comes from pushing through difficult moments. For those working in the DSP field, especially in environments that are unpredictable or stressful, he advises sticking it out for a while longer, honing skills, and improving their surroundings. He also acknowledges that some disabilities can be hard to adjust to, but emphasizes the importance of taking time to learn and grow within the field rather than leaving prematurely.
Furthermore, Tony offers practical advice for those contemplating resignation, encouraging them to communicate with their administrators and seek solutions to improve their situation before making a final decision. He highlights the importance of leaving a job respectfully, providing adequate notice, and ensuring that clients are not negatively impacted by the departure. Whether it’s due to personal or professional reasons, Tony’s message is clear: plan ahead, communicate effectively, and always aim to make a positive difference.
In this enlightening episode of the Friends for Life Podcast, we delve into the transformative concept of neurodiversity in the workplace. Discover how leading companies like Microsoft and SAP are not just accommodating but actively seeking out neurodiverse individuals to enhance their workforce. Through initiatives like Microsoft's "Neurodiversity Hiring Program" and SAP's "Autism at Work," these pioneers are setting a precedent for the entire corporate world, showcasing the untapped potential and unique abilities that neurodiverse employees bring to the table.
We explore the myriad benefits that a neurodiverse workforce offers to companies. From boosting innovation and creativity to reflecting a broader range of customer needs, the inclusion of individuals with neurological differences such as autism and ADHD is proving to be a strategic advantage. Listen in as we discuss real-world case studies and firsthand accounts from companies that have witnessed significant improvements in problem-solving capabilities and operational effectiveness through their diverse teams.
Join us as we discuss the future of workplace inclusion and the ongoing efforts to embrace neurodiversity. This episode not only highlights the challenges faced in integrating neurodiverse individuals into mainstream roles but also provides insights into the solutions companies are implementing, like tailored onboarding programs and flexible work policies. Tune in to understand how these pioneering initiatives are not only changing lives but are also reshaping the future of employment in our increasingly diverse society.
In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the realm of healthcare access and social inclusion.
The conversation delves into the critical need for improved healthcare services for people with IDD, with Ann highlighting the disparities in medical care that individuals face in both institutional and community settings. She discusses issues like inadequate dental care, polypharmacy, and the lack of training among healthcare providers to address the unique needs of this population. Ann and Dr. Escudé explore how these challenges can be overcome through better training for clinicians and more person-centered approaches to healthcare, ensuring that people with IDD receive the care they deserve.
Ann also shares exciting initiatives underway at the New York Alliance, including a new executive leadership development program aimed at building future leaders in the field of disability services. She emphasizes the importance of fostering a strong, value-driven network of professionals who are committed to inclusion, diversity, and innovation. Throughout the episode, Ann underscores the power of relationships and advocacy, encouraging listeners to share their stories and continue pushing for greater acceptance and equity for people with disabilities.
In this candid episode of the Friends for Life Podcast, Tony Stuart dives into a conversation that might challenge your perspective on the field of Direct Support Professionals (DSP). Tony addresses the common complaint that "there’s no money in this field" and offers a different take—there is money, but it’s tied to skill development and personal growth. He reflects on his own journey and the realization that expanding your skill set is essential for professional advancement.
Tony also tackles the sacrifices DSPs often make, like working long hours and prioritizing material goals over time with loved ones. With his usual no-nonsense approach, Tony encourages listeners to make the most of their downtime, invest in learning, and push themselves out of their comfort zones. Whether you’re a DSP or someone in a leadership position, this episode is packed with insights about growth, time management, and challenging the notion of staying stagnant in your career. Tune in to rethink what’s possible in this field and get inspired to take your career to the next level.
In this episode of the Friends for Life Podcast, we explore a groundbreaking development in the field of autism diagnosis—artificial intelligence (AI). As families across the globe seek faster and more accurate diagnoses for their children, the traditional process can be slow and overwhelming. We dive into the latest research on how AI is being harnessed to transform this process, potentially cutting down the wait time for a diagnosis and helping children access the critical early intervention services they need. This episode offers a glimpse into the future of healthcare, where technology and human expertise come together to enhance lives.
We discuss the incredible potential of AI to standardize and accelerate the diagnostic process across different healthcare settings. Imagine a world where no matter where you live, you have access to the same high standard of care. AI is making this a reality by analyzing vast amounts of data to identify subtle markers of autism that might be missed in traditional assessments. However, we also address the ethical considerations and challenges that come with integrating AI into such a sensitive area of healthcare. From ensuring data privacy to avoiding over-reliance on technology, these are important issues that must be navigated carefully.
Join us as we delve into how AI is not just a tool for the future but a promising ally in the ongoing effort to provide timely, equitable, and accurate autism diagnoses. This episode is a must-listen for anyone interested in the intersection of technology and healthcare, and for families who are looking for hope in the often daunting journey toward understanding and supporting children with autism. Tune in to learn how innovation is paving the way for better outcomes and brighter futures.
Dr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD.
His career began during the deinstitutionalization movement in Ohio, and over time, he became a strong advocate for improving healthcare systems and training physicians to meet the specific needs of this population. Dr. Tyler's work includes research, scholarship, and contributions to medical literature, and he has helped integrate specialized care for individuals with IDD into mainstream medical training programs.
In addition to his clinical and educational work, Dr. Tyler has authored several key resources, including the book Intellectual Disability at Your Fingertips, which provides practical guidance for healthcare providers working with this population.
In this episode of the Friends for Life Podcast, Tony Stuart explores the vital role that DSPs (Direct Support Professionals) play in maintaining strong relationships with physicians to ensure individuals with disabilities receive the best medical care possible. He emphasizes that DSPs are often the bridge between the individual and their physician, responsible for observing any changes in behavior, tracking health conditions, and relaying essential information that the individual may not be able to express on their own. This episode highlights how DSPs can play a crucial role in helping physicians make more informed decisions, especially when the individuals they care for have communication or cognitive challenges.
Tony addresses a common issue within agencies: not all staff have the same level of dedication or understanding when it comes to medical care. He stresses the need for agencies to create specialized roles, such as a medical liaison, to manage and streamline medical appointments, medication, and communication with physicians. By doing so, agencies can localize medical care responsibilities, ensuring that someone with expertise and focus is keeping the individual's health a priority. Tony gives a shout-out to Hannah, their medical liaison at Friends for Life, for being a phenomenal asset to their team and urges other agencies to consider implementing a similar position.
The episode wraps up with practical advice for DSPs, including the importance of being aware of every aspect of an individual's life that could affect their health. By closely monitoring their diet, activities, and any pain or discomfort, DSPs can provide valuable insights to physicians. Tony also shares a personal anecdote to illustrate how difficult it can be to describe medical symptoms, making it even more critical for DSPs to understand the individual's unique communication abilities. This episode is packed with insights on improving medical care through better communication and attention to detail, encouraging agencies to take proactive steps to ensure the health and well-being of those they serve.
In this episode of the Friends for Life Podcast, we dive into a critical issue that is affecting millions of Americans with disabilities: the nearly $1 billion in federal funds for disability services that have gone unspent. These funds, allocated under the American Rescue Plan Act, were meant to enhance home and community-based services during the COVID-19 pandemic—a time when the need for such services has been more urgent than ever. Yet, due to bureaucratic delays and workforce shortages, this money remains untouched, leaving countless individuals and families struggling without the support they desperately need.
We explore the real-world impact of this unspent funding on individuals with disabilities and their families. From the loss of essential services that allow people to live independently to the overwhelming burden placed on family caregivers, the consequences of this funding failure are profound and far-reaching. The episode sheds light on how the lack of direct support professionals and administrative hurdles are compounding the challenges, putting the quality of life for many at risk.
Join us as we discuss the long-term implications of this issue and what needs to be done to ensure that these critical funds are utilized to their fullest potential. This episode is a must-listen for anyone invested in disability rights, social justice, and the ongoing fight to secure necessary services for all. Don't miss this important conversation about accountability, advocacy, and the urgent need for action in the disability services sector.
Welcome to another insightful episode of the IDD Health Matters Podcast with Dr. Craig Escude. In this episode, Dr. Escude is joined by two remarkable guests, Nanette Wrobel and Jessica Jacobs from Tarrytown Expocare Pharmacy, a leading provider of pharmacy services for individuals with intellectual and developmental disabilities (IDD). Nanette, a seasoned pharmacist with nearly 40 years of experience, and Jessica, a pharmacy technician with a strong background in mental health and IDD, share their unique journeys into the IDD field. They discuss the critical role that specialized pharmacy services play in supporting individuals with IDD, emphasizing the importance of tailored medication management and the need for continuous education for healthcare providers. Throughout the conversation, Dr. Escude and his guests delve into the nuances of medication management for people with IDD, including the challenges of recognizing and addressing non-verbal communication of symptoms and side effects. They also explore the broader implications of health equity in this field, highlighting the progress made and the ongoing need for collaboration among healthcare professionals to improve the quality of care. Tune in to hear inspiring stories, practical advice, and a deep dive into the collaborative efforts required to enhance the lives of individuals with IDD. Whether you're a healthcare professional, caregiver, or advocate, this episode is packed with valuable insights that can help you make a positive impact in the IDD community. Don't miss the "Three in Three" segment, where Jessica and Nanette offer actionable tips for improving health and wellness for people with IDD, emphasizing the power of education, volunteerism, and an open-minded approach to learning. Join us for this enlightening discussion that reinforces the importance of compassionate care and continuous learning in the IDD field.
In this episode of the Friends for Life Podcast, we tackle one of the most challenging aspects of working in the Intellectual and Developmental Disabilities (IDD) field—coping with the death of those we care for and support. Whether it’s the passing of a long-time client, colleague, or friend, the emotional toll can be overwhelming, and finding ways to process grief in a healthy manner is essential. Our hosts share personal stories and experiences, offering a compassionate perspective on how to navigate these difficult moments while continuing to provide the best possible care for others. The conversation dives into the unique bond that often forms between caregivers and those with IDD, making the loss particularly profound. We discuss the importance of acknowledging grief, both personally and within the workplace, and explore strategies for supporting one another through such times. From professional counseling services to informal support networks, this episode highlights the resources available to help individuals and teams cope with the emotional challenges of loss. In addition, we explore the significance of honoring the lives of those who have passed and the positive impact they’ve had on the community. By remembering their contributions and celebrating their achievements, we ensure that their legacy lives on. This episode is a heartfelt exploration of grief and resilience in the IDD field, offering listeners valuable insights and practical advice for managing loss while maintaining a sense of purpose and connection.
In this episode of the Friends for Life Podcast, we dive into the critical discussions happening in Congress as the deadline for the Autism CARES Act reauthorization looms. The Autism CARES Act, a vital piece of legislation that has been the backbone of federal support for autism since 2006, is set to expire on September 30, 2024. With both the Senate and House proposing their versions of the bill, the future of autism research, services, and support hangs in the balance.
We explore the key differences between the proposed bills and what they mean for the autism community. From increasing funding to introducing new provisions that focus on aging and speech limitations, these changes could significantly impact the lives of individuals with autism. The episode also discusses the importance of ensuring that federal investment aligns with the community's needs, particularly for those requiring 24-hour care and young adults transitioning to adulthood.
As the deadline approaches, the urgency for action becomes more apparent. Join us as we unpack the potential implications of the Autism CARES Act's renewal and what it could mean for millions of people across the country. Will Congress come together to secure the future of this critical legislation, or will the autism community face a gap in essential support? Listen in to find out.
Join Dr. Craig Escude in this insightful episode of IDD Health Matters, recorded live from the ANCOR conference in Chicago. In this episode, Dr. Escude welcomes Catherine Thibedeau, who shares her remarkable journey from entering the field of supports and services for people with intellectual and developmental disabilities (IDD) by necessity, to becoming the executive director of Independence Advocates of Maine. Catherine discusses the array of services her agency provides and highlights her dual role in influencing policy and professional development through state and national provider networks.
Catherine's story illustrates the career opportunities within the IDD service field, emphasizing the potential for rapid advancement and professional growth. Additionally, she dives into the innovative health initiatives her organization is pioneering, such as the use of telemedicine to improve accessibility and quality of care for people with IDD, especially in rural settings.
Listeners will gain valuable insights into the importance of inclusive hiring practices and the transformative impact of thoughtful, person-centered caregiving. Whether you’re a provider, a caregiver, or someone interested in the field of IDD services, this episode is packed with inspiring stories and practical advice for fostering health equity and empowering individuals with disabilities.
Tune in to learn how engaging with and supporting the IDD community can enrich lives and enhance the quality of care across the board.
In this episode of the Friends for Life Podcast, Tony Stuart delves into the complexities of communication, a topic that everyone seems to value but often struggles to execute effectively. Tony begins by highlighting a common paradox—people often claim they prioritize communication, yet their actions, like ignoring calls or leaving voicemails unchecked, tell a different story. He reflects on his own experiences and the challenges he's observed, even among professionals in multimillion-dollar companies, where communication is consistently cited as an area needing improvement. This episode isn't just about the act of communicating but also about how our messages are received and interpreted by others.
Tony goes on to explore the various forms that communication can take, from emails and text messages to phone calls and face-to-face interactions. He emphasizes the importance of understanding the different ways people perceive communication, noting that what might seem like a simple text to one person can come across as aggressive to another. He also discusses the nuances of verbal communication, where tone, body language, and enthusiasm can drastically alter the message being conveyed. For those in the direct support professional (DSP) field or any professional setting, understanding these subtleties is crucial. Tony shares his approach to communication, which involves using multiple channels to ensure the message is received and understood, depending on its importance.
Finally, Tony addresses the significance of adaptability and the role of apologies in effective communication. He encourages listeners to be mindful of how they communicate and to be willing to adjust their style to better connect with others. In a world where everyone is constantly changing, Tony reminds us that it's okay to apologize if we've unintentionally offended someone. He also offers practical advice for improving communication, such as clearing out full voicemails and actually listening to the messages people leave. As the episode wraps up, Tony leaves listeners with a simple yet powerful challenge: to communicate something positive to someone today. This episode is a must-listen for anyone looking to enhance their communication skills and foster better relationships in both personal and professional settings.
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In this episode of the Friends for Life Podcast, we dive into the transformative impact of the Individuals with Disabilities Education Act (IDEA), a landmark piece of legislation that has reshaped the educational landscape for children with disabilities. We’ll explore the historical context that led to the creation of IDEA, tracing its roots back to the civil rights movement and the push for equal educational opportunities for all. From its origins as the Education for All Handicapped Children Act in 1975 to its evolution into IDEA in 1990, this law has been a beacon of hope for millions of students and their families.
We’ll break down the key provisions of IDEA, including the right to Free and Appropriate Public Education (FAPE) and the requirement for education in the Least Restrictive Environment (LRE). You’ll learn how the Individualized Education Program (IEP) serves as a personalized roadmap for each student’s success, ensuring that their unique needs are met with tailored support. We’ll also discuss the procedural safeguards that protect students and their families, and the critical role that parents and students play in shaping their educational journey.
Join us as we reflect on the profound impact IDEA has had on promoting inclusion, independence, and academic success for students with disabilities. We’ll also touch on the challenges that remain, from funding issues to disparities in implementation, and consider what the future might hold for this vital legislation. Whether you’re a parent, educator, or advocate, this episode offers valuable insights into the ongoing fight for educational equity and the rights of all students to reach their full potential.
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In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Art Dykstra, a veteran in the field of intellectual and developmental disabilities (IDD). Art, who currently serves as the director of the Trinity Foundation and has previously led Trinity Services as CEO, shares his inspiring journey from an unexpected start in the IDD field to becoming a pivotal figure in providing support and resources for individuals with disabilities across Illinois.
Art's story begins with a simple job posting that led him to work with a young man with autism, a transformative experience that steered him from philosophy to psychology and ultimately into a lifelong commitment to the IDD community. Throughout the conversation, Art reflects on the importance of making a difference in people's lives and how his early experiences shaped his career. His insights into the challenges and rewards of working in this field provide a deep understanding of the complexities and the profound impact one can have on individuals and their families.
Dr. Escudé and Art discuss the vital role of interdisciplinary collaboration in supporting individuals with IDD, emphasizing the need for integrating mental and physical health care. They also explore the concepts of happiness and joy, the importance of self-awareness, and the value of serving others. Art’s dedication to improving the lives of those with IDD is a testament to the power of compassion and commitment, offering valuable lessons for anyone interested in making a difference in this field. Tune in for a heartfelt and enlightening conversation that underscores the profound impact of dedicated service in the lives of others.
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In this episode of the Friends for Life Podcast, Tony Stewart dives into the essential yet often overlooked skill of teaching within the caregiving community. Teaching isn't confined to classrooms; it's a responsibility shared by everyone in the field, regardless of their role. Tony highlights how, at Friends for Life, teaching is a core value that empowers every team member to be both a leader and a mentor. He emphasizes that the ability to teach and lead is not just for those in managerial positions but is crucial for anyone dedicated to improving the lives of others.
Tony challenges the mindset that teaching is someone else’s job, urging listeners to embrace the role of a teacher in their everyday interactions. By sharing personal insights and experiences, he underscores the importance of developing teaching skills as a way to enhance not only individual growth but also the overall success of the organization. Tony draws a powerful parallel between teaching and other skills, reminding us that just like riding a bike, teaching requires practice and dedication.
Listeners will leave this episode with a renewed perspective on the value of teaching in their professional lives. Tony's message is clear: teaching is not just about imparting knowledge but about fostering a culture of learning, growth, and excellence. Whether you’re a seasoned professional or new to the field, this episode offers valuable takeaways on how to cultivate the skill of teaching to elevate both yourself and those around you. Tune in to discover how you can contribute to a culture of continuous learning at Friends for Life.
In this episode of the Friends for Life Podcast, we dive deep into the often-overlooked history of how individuals with intellectual and developmental disabilities (IDD) were treated before the modern era. From ancient civilizations that saw these individuals through the lens of superstition and fear, to the dark periods of the Middle Ages where they were often subjected to inhumane treatments, we explore the societal attitudes that shaped their lives. The episode sheds light on how these perceptions were influenced by religious beliefs, ignorance, and a lack of medical understanding, leading to severe marginalization and mistreatment.
As we move through history, the episode examines the shift during the Enlightenment and early modern period, where there were initial stirrings of change but still widespread mistreatment. Despite the emergence of more compassionate discussions and a growing emphasis on human dignity, the reality for most people with IDD remained bleak, with many confined to asylums and institutions. The episode also touches on the 19th century's rise of institutionalization and the troubling influence of eugenics, which further stigmatized and isolated individuals with disabilities.
Join us as we unravel this important and sobering history, highlighting the long journey toward recognition, dignity, and rights for people with intellectual and developmental disabilities. This episode serves as a reminder of how far we've come and the importance of continuing to advocate for inclusion and respect for all individuals, regardless of their abilities.
In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Karyn Harvey, a passionate advocate for trauma-informed care in the field of intellectual and developmental disabilities (IDD). Recorded live from the ANCOR conference, Karyn shares her deep understanding of the behavioral challenges often faced by individuals with IDD, revealing how these behaviors are frequently symptoms of unrecognized trauma, such as post-traumatic stress disorder (PTSD).
Karyn discusses the critical need for access to therapeutic support for those with IDD, emphasizing the profound impact of trauma on their mental health. She delves into the three essential components of trauma-informed support: emotional safety, connection through meaningful relationships, and empowerment. Through her years of experience, Karyn highlights the vital role that direct support professionals (DSPs) play in the healing and growth of individuals with IDD, stressing that the most significant transformations occur when DSPs are compassionate, understanding, and supportive.
Tune in to hear Karyn’s inspiring stories, learn about her latest book "Trauma and Healing," and discover practical strategies for creating environments where individuals with IDD can thrive. This episode is a must-listen for anyone interested in health equity, trauma-informed care, and making a lasting difference in the lives of those with intellectual and developmental disabilities.
About Karyn: Karyn Harvey, PhD, is a well-respected psychologist and expert in the field of intellectual and developmental disabilities (IDD), particularly known for her work on trauma-informed care. She has spent over three decades working with individuals with IDD, focusing on mental health, behavioral interventions, and therapeutic support. Dr. Harvey is a passionate advocate for recognizing and addressing the trauma experienced by people with IDD, which is often overlooked or misunderstood.
She is the author of several books, including "Trauma-Informed Behavioral Interventions" and "Trauma and Healing," which provide valuable resources for caregivers, direct support professionals, and others working in the IDD field. Her work emphasizes the importance of creating safe, connected, and empowering environments for individuals with IDD to help them heal and thrive. Dr. Harvey is also a frequent speaker at conferences and a sought-after expert in the area of mental health and trauma for people with intellectual and developmental disabilities.
In this episode of the Friends for Life Podcast, host Tony Stewart dives deep into the impact of habits on both our personal and professional lives, particularly in the context of caregiving. Drawing from his own experiences, Tony discusses how our moods and habits can influence not only our work but also the well-being of the clients we serve. He shares a heartfelt story about his own struggles with smoking and the profound effect it had on his life, especially after losing his mother to COPD.
Tony also tackles the challenges faced by Direct Support Professionals (DSPs) who work in environments where both they and their clients may have unhealthy habits, such as smoking. He offers practical advice on how to replace these habits with healthier alternatives, emphasizing the importance of leading by example.
Whether you're a DSP, an administrator, or anyone looking to make positive changes in your life, this episode provides valuable insights and tips for creating a healthier, more positive environment for both yourself and those you care for. Tune in to learn more about the power of habits and how small changes can lead to big transformations.
In this episode of the Friends for Life Podcast, we delve into the complex world of developmental disabilities. Join us as we explore the various factors contributing to these conditions, from genetic abnormalities like Down syndrome, caused by an extra chromosome 21, to environmental influences such as prenatal exposure to harmful substances, infections, and poor maternal nutrition. We'll discuss the impact of birth complications, including oxygen deprivation, premature birth, and low birth weight, on a child's development. Additionally, we'll examine postnatal factors like injuries, malnutrition, and environmental toxins that can lead to developmental disabilities. Tune in to gain a deeper understanding of these challenges and learn about the importance of early intervention and ongoing support for affected individuals and their families.
In this episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Meera Gandhi, the dedicated Clinic Director at Kramer Davis Health Clinic in Nashville. Meera shares her inspiring journey, from coaching Special Olympics athletes in California to becoming a passionate advocate and leader in healthcare for people with intellectual and developmental disabilities (IDD). She discusses how her early experiences shaped her career and led her to Kramer Davis Health, where she now plays a pivotal role in providing comprehensive care.
Dr. Escude and Meera delve into the unique, holistic approach of Kramer Davis Health, emphasizing integrated care that brings together medical, dental, therapeutic, and psychological services under one roof. Meera explains how this model is transforming medicine, especially for IDD patients who often face significant challenges in traditional healthcare settings. They highlight the importance of transdisciplinary care and the benefits of having all specialists collaborate closely to address the complex needs of their patients.
Meera also shares her insights on the critical need for better training and awareness among clinicians regarding IDD healthcare. She discusses the initiatives at Kramer Davis Health to educate and train future healthcare providers, ensuring that more clinicians are equipped to deliver high-quality care to this underserved population. Tune in to hear how Meera and her team are making a significant impact on the lives of IDD patients and their families, and learn about the future goals of Kramer Davis Health in revolutionizing care for people with intellectual and developmental disabilities.
In this episode of the Friends for Life Podcast, host Tony Stewart tackles a challenging and often uncomfortable question: "Who's lying here—the client, the Direct Support Professional (DSP), or the agency?" Tony dives into the complex dynamics that agency providers face when trying to discern the truth in various scenarios, from minor household issues to significant major unusual incidents (MUIs).
Tony explores how different perspectives and motivations can influence the perceptions of each party involved. Whether it's a DSP fearing job loss, a client with a history of making allegations, or an agency under scrutiny from regulatory bodies, understanding the underlying objectives of each person is crucial.
Tony emphasizes the importance of teamwork, open communication, and adhering to established protocols to navigate these situations effectively. He shares his belief that coming together as a team and holding meetings is the key to resolving conflicts and ensuring the best outcomes for everyone involved.
Tune in to gain insights on how to handle disputes, foster collaboration, and build trust within your team. Whether you're an agency provider, a DSP, or someone interested in the field of caregiving, this episode offers valuable perspectives on addressing and resolving conflicts with integrity and empathy.
In this episode of the Friends for Life Podcast, we dive into the heart of how professionals in the field of intellectual and developmental disabilities (IDD) are making a transformative impact on the lives of those they support. Join us as we explore the multifaceted approaches used to empower individuals with IDD to live more independently and confidently.
We'll discuss the creation of personalized support plans that cater to unique needs and strengths, the importance of skill development in daily living, and how vocational training opens doors to meaningful employment. Listen in to hear inspiring stories of social and community integration, and learn about the vital role of advocacy and rights education in promoting autonomy.
Moreover, we'll uncover the exciting advancements in assistive technology that are breaking down barriers and enabling greater independence. This episode is a must-listen for anyone passionate about inclusivity, empowerment, and the incredible work being done to enhance the quality of life for individuals with IDD.
Tune in and be inspired by the dedication and innovation of IDD professionals who are not just changing lives but also building a more inclusive and diverse community.
In this insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude, we welcome Dr. Steven Merahn, Medical Director at Partnership Solutions, to discuss the crucial aspects of healthcare and support services for people with intellectual and developmental disabilities (IDD). Dr. Merahn shares his journey from medical school at Albert Einstein College of Medicine to his current role, highlighting the pivotal moments that shaped his dedication to this field.
Dr. Merahn delves into the significance of understanding diversity of ability rather than viewing it as a disability, stressing the importance of adapting environments to support individuals' unique needs. He shares experiences from his time working with the New York City Health Department and the ID community, advocating for a holistic, person-centered approach to healthcare.
Listeners will gain valuable insights into the challenges and triumphs of integrating healthcare with support services, the importance of coordinated care, and the impact of social determinants on health outcomes. Dr. Merahn also discusses his book, "Care Evolution," which explores health as a social imperative, emphasizing the need for a societal commitment to health similar to that of education and law enforcement.
Join us for an enlightening conversation that underscores the necessity of removing barriers and fostering an inclusive environment for people with IDD. Discover practical steps you can take to contribute to improving healthcare and support for this community.
In this insightful episode of Friends for Life, host Tony Stewart tackles the critical topic of relationships within the social work field. Tony explores the dynamics between social workers, clients, executive staff, and Direct Support Professionals (DSPs), shedding light on how these relationships form a vital circle of trust that is sometimes lacking. He emphasizes the need for fluid and open communication among all parties to ensure everyone understands each other's perspectives and contributions.
Tony delves into the specific challenges faced in Ohio, where Service and Support Administrators (SSAs) interact with agency providers and DSPs. He discusses the importance of speaking up when something feels morally wrong and the responsibility each individual has to address issues constructively. Tony candidly addresses the difficulty of handling criticism and how it can lead to high turnover rates if not managed properly.
Listeners will gain valuable insights into how to foster better relationships by talking to colleagues, getting to know them, and accepting their unique work styles. Tony underscores that understanding and respect are crucial for building a supportive and effective work environment. He also provides practical tips on how agency providers can accept and implement constructive criticism to benefit clients and improve service delivery.
Join Tony as he navigates the complexities of these essential relationships, offering thoughtful advice and actionable strategies for making meaningful improvements. This episode is a must-listen for anyone involved in social work, from frontline DSPs to executive staff, as it highlights the importance of collaboration, empathy, and mutual respect in achieving the best outcomes for clients.
Tune in to Friends for Life and discover how stronger relationships can transform the social work landscape for the better.
In this enlightening episode of the Friends for Life Podcast, we dive deep into the world of Direct Support Professionals (DSPs) and their indispensable role in supporting individuals with intellectual and developmental disabilities (IDD). Join us as we explore the diverse responsibilities of DSPs, from personal care and health management to social engagement and skill development. We'll discuss how DSPs foster independence, advocate for inclusion, and enhance the quality of life for those they serve.
Our conversation will also cover practical tips for DSPs to provide the best care possible. Learn about the importance of empathy, effective communication, continuous learning, and a person-centered approach. Discover how team collaboration and self-care can help DSPs excel in their roles while maintaining their well-being.
Whether you're a seasoned DSP, new to the field, or simply interested in learning more about the critical work these professionals do, this episode offers valuable insights and inspiration. Tune in to understand how DSPs are making a difference and creating a more inclusive and compassionate society.
Join Dr. Craig Escude in this insightful episode of IDD Health Matters, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Natalie Symons, a dedicated registered nurse and the director of the Milestone Health Care Quality Unit (HCQU) in Western Pennsylvania, shares her extensive experience and innovative approaches to supporting individuals with IDD.
In this episode, Natalie discusses her role in providing training and technical assistance to agencies across nine counties in Pennsylvania. She highlights the critical work her team does, including offering over 250 medical and behavioral training topics, providing free technical assistance, and developing a new DSP app to support direct support professionals and family members. Natalie also shares their innovative use of virtual reality for training, which enhances learning retention and provides a safe environment for making mistakes.
Additionally, Natalie recounts her journey into the field of IDD health care, emphasizing the importance of listening to and advocating for individuals with IDD. She shares valuable advice on increasing activity, paying attention to subtle health cues, and the rewarding nature of working with this community.
Tune in to learn about the innovative tools and practices that are making a difference in the lives of individuals with IDD, and be inspired by Natalie’s passion and dedication to this vital field.
Three Key Takeaways:
- Increase activity levels for individuals with IDD to improve overall health.
- Listen attentively and observe carefully to understand and address health needs.
- Embrace the rewarding nature of working with individuals with IDD and advocate tirelessly on their behalf.
For more information on Milestone HCQU, visit Milestone PA and explore the DSP app and other resources.
Listen now on your favorite podcast platform!
Hey everyone, it's Tony here with another episode of the Friends for Life Podcast. Today, we're diving into a critical topic: injuries in the workplace. It's a complex issue, especially in our field, where there are a lot of moving parts.
In this episode, I emphasize the importance of disclosing any injuries either at the time of employment or immediately if the injury happens at work. From both a compassionate and a business owner's perspective, understanding how workers' compensation works is crucial. Non-disclosure can lead to significant financial strain on the company, affecting budget allocations that could otherwise benefit staff, particularly those at the lower levels such as DSPs and middle management.
Moreover, not disclosing an injury can put you in harm's way. If you provide this information upfront, it helps ensure you are placed in roles that won't exacerbate your condition. Concealing an injury can lead to perceptions of favoritism and discrimination, which we strictly do not tolerate at Friends for Life. We hire individuals for their uniqueness and dedication to caring for all, not to pick and choose which disabilities they want to work with.
I hope this episode clarifies the importance of transparency regarding workplace injuries and helps everyone understand the broader implications. Thanks for tuning in!
In this episode, we delve into the significant challenges people with disabilities faced before the landmark Americans with Disabilities Act (ADA) of 1990. Prior to the ADA, public spaces were often inaccessible, lacking ramps, elevators, and other essential accommodations. This made it incredibly difficult for individuals with mobility impairments to navigate and participate in everyday activities, severely limiting their independence and quality of life.
Education was another area fraught with barriers. Many schools were ill-equipped to support inclusive education, leading to students with disabilities being placed in separate, less rigorous educational tracks or excluded from the education system entirely. Without necessary resources such as sign language interpreters and assistive technologies, these students struggled to learn and thrive academically, impacting their future opportunities.
Employment discrimination was rampant, with many employers reluctant to hire individuals with disabilities due to misconceptions about their abilities and the presumed cost of accommodations. Those who did find work often faced an unsupportive environment, lacking reasonable adjustments needed for success and well-being. This led to higher unemployment rates and economic disadvantage among people with disabilities, further marginalizing this community.
Social stigma and a lack of understanding about disabilities compounded these challenges, resulting in social isolation and discrimination. Healthcare was also a critical area of concern, with inaccessible medical facilities and inadequate care due to untrained providers. The ADA's passage was a turning point, addressing these issues and establishing civil rights protections to promote inclusion and equal opportunities. Join us for an insightful discussion on life before the ADA and the importance of continued advocacy for disability rights.
Welcome to another episode of the IDD Health Matters Podcast with Dr. Craig Escudé. In this episode, Dr. Escudé is joined by Terry Broda, a seasoned nurse consultant with over 30 years of experience in the field of intellectual and developmental disabilities (IDD). Terry shares her unique journey into the field, which began unexpectedly and evolved into a lifelong passion.
Together, they delve into critical topics such as health equity, the importance of understanding medical issues like constipation and seizures, and the vital role of proper diagnosis in improving the quality of life for individuals with IDD. Terry's extensive background in psychiatry, neurology, and her work with First Nations communities provide rich insights and compelling stories that highlight the nuances of healthcare for people with IDD.
Listen in as they discuss the necessity of educating clinicians and supporters, the impact of medical comorbidities on behavior, and the importance of recognizing and treating underlying health issues. Terry also shares actionable steps that listeners can take to support this field, emphasizing the need for greater exposure, acceptance, and resource accessibility.
This episode is a must-listen for anyone involved in or interested in the health and wellness of individuals with intellectual and developmental disabilities. Tune in to gain valuable knowledge and inspiration from Terry Broda's extensive experience and dedication to this important work.
Join us for an enlightening conversation on the IDD Health Matters Podcast!
Welcome to the Friends for Life Podcast, where we delve into the nuanced world of providing support for individuals with developmental disabilities. In this episode, we discuss the complexities surrounding pet ownership among our clients. Pets can offer comfort and companionship, but they also bring challenges in care, training, and company liability.
Join us as we share practical tips for Direct Support Professionals (DSPs), Service and Support Administrators (SSAs), and agency providers. We emphasize the importance of efficient team meetings, understanding the unique needs of both individuals and their pets, and navigating scenarios where allergies, past traumas, or cultural beliefs come into play.
We also explore alternative pet options and stress the importance of safety for both caregivers and clients.
Learn more about our mission to empower and improve the quality of life for individuals with disabilities through services like Adult Day Support and Home Health Care. We are dedicated to the motto "my ability is stronger than my disability" and invite passionate individuals to explore career opportunities with us.
For more information and career opportunities, visit friendsforliferc.com.
In this episode of IDD Health Matters, Dr. Craig Escude is joined by Elizabeth Martin, the CEO of Living Resources, recorded live at the New York Alliance for Inclusion and Innovation annual conference. Elizabeth shares her experiences and insights since joining Living Resources in September 2020, navigating the challenges of the pandemic and her transition from working with physical disabilities to intellectual and developmental disabilities (IDD).
Elizabeth details the wide array of services offered by Living Resources, an organization with nearly 50 years of history in empowering individuals with disabilities. She highlights their residential programs, day programs, community habilitation, employment services, self-direction, and innovative college programs in partnership with several institutions.
A significant portion of the conversation focuses on the pressing issue of workforce shortages in the field and how Living Resources strives to provide a fulfilling career for its staff despite financial challenges. Elizabeth emphasizes the importance of health and wellness, discussing their comprehensive nursing and clinical services, including Dialectical Behavioral Therapy (DBT).
Elizabeth also shares the organization's efforts to foster greater independence and control for individuals with disabilities through a citizenship approach, person-centered support, and assistive technology. She concludes the episode with three pieces of advice for listeners: question the status quo, navigate regulations creatively, and maintain hope and optimism in the face of challenges.
Join Dr. Craig Escude and Elizabeth Martin as they delve into the intricacies of providing high-quality services and support for people with intellectual and developmental disabilities, sharing valuable insights and strategies for overcoming common obstacles in the field.
Key Takeaways:
- Insights into the diverse services provided by Living Resources.
- Discussion on workforce shortages and the importance of creating fulfilling career opportunities.
- Emphasis on comprehensive health and wellness support, including nursing and DBT.
- Innovative approaches to enhancing independence and control for individuals with disabilities.
- Three pieces of advice for professionals in the field: question established practices, creatively navigate regulations, and maintain hope and optimism.
Tune in to gain a deeper understanding of the challenges and innovations in the field of disability services from an experienced leader dedicated to making a difference.
4o
Hey everyone, it's Tony again with Friends for Life. One of the most challenging aspects of being deeply immersed in our field is the feeling of never truly being "off." Even during personal time with friends and family, it can feel like you're stuck in work mode, which can be mentally exhausting. To help combat this, I have a few activities that I enjoy and that might be beneficial for you too.
First, I love taking long walks. If I have the time, I'll go for a two-mile walk to enjoy nature. I wasn't always a believer in the benefits of walking, but now I find it incredibly refreshing and grounding. Secondly, I enjoy reading, especially audiobooks since I'm often on the road. Listening to something unrelated to work can be a great mental break.
Spending quality family time is crucial. We often say we'll have family time, but it ends up being more about us than them. Truly engaging in activities your family enjoys can be rejuvenating. Swimming is another favorite of mine. The connection with water is incredibly relaxing and soothing for the soul.
Exercise is also a great way to recharge. It doesn't have to be intense—just a 15-20 minute session of simple exercises like squats, push-ups, or a short run can boost your mood through endorphins. Lastly, if you're looking for something less active, try a 10-minute meditation. There are plenty of guided breathing exercises available online that can leave you feeling decompressed and stress-free.
These are a few methods I use to reset and recharge, and I hope they can help you too.
Welcome to another episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, Dr. Escude talks with Eric Pines, Esq., a nationally recognized federal employment lawyer, mediator, and attorney business coach. Eric discusses his work in advocating for reasonable accommodations for federal employees, particularly veterans, and those with disabilities.
Eric Pines provides insights into his legal practice, emphasizing the importance of understanding and asserting one's rights under laws such as the Americans with Disabilities Act (ADA) and the Rehabilitation Act. He shares real-world examples, including helping veterans with PTSD secure work-from-home arrangements and assisting a federal employee with epilepsy by having the government build a special workspace.
Eric's credentials are impressive. He represents federal employees and acts as in-house counsel for over fifty thousand federal employees through his work as a federal employee labor union representative. A former federal employee himself, Eric began his federal employment law career as in-house counsel for AFGE Local 1923, located at the Social Security Administration’s headquarters and known as the largest federal union local in the world. He presently serves as AFGE 1923’s Chief Counsel, as well as in-house counsel for all FEMA bargaining unit employees and numerous Department of Defense and Veteran Affairs unions.
The conversation highlights the critical role of accommodations in the workplace and the challenges faced by individuals with disabilities in securing these accommodations. Eric underscores the significance of being well-informed about one’s legal rights and the resources available to assist in obtaining necessary accommodations.
For those seeking more information, Eric recommends the Job Accommodation Network (JAN) at askjan.org, which offers creative solutions and comprehensive guides on accommodations. He also points to his website, Pines Federal (pinesfederal.com), which features a wealth of resources, blogs, and case studies on disability accommodations.
Eric’s passion extends to his own podcast, "Disability Inclusion and Accommodation in the Workplace," where he discusses innovative accommodation solutions and shares stories of individuals who have thrived despite their disabilities. This podcast is available on major platforms like Spotify and Apple Podcasts.
As the episode concludes, Eric encourages listeners to assert their rights and pursue accommodations confidently, reminding them that the law is often on their side when it comes to ensuring equitable treatment in the workplace.
This episode is a valuable resource for anyone interested in disability rights and workplace accommodations, offering practical advice and inspiring stories of advocacy and resilience.
Hey everybody, it's Tony again. I've been observing a lot of issues with teamwork, or rather the lack of it, lately. In our current generation, there's such a strong emphasis on individual accomplishments that we often overlook the immense benefits of working as a team. I'd love to see more collaboration in the DD (Developmental Disabilities) space.
Paul and I have spent a considerable amount of time connecting various aspects of social media and production for numerous shows. In this process, we've collaborated with multiple agencies and noticed that some are hesitant to work together due to negative competition. Don't get me wrong, I love competition and won't hesitate to show I'm better at something, but I'll also help others reach my level because I see competition as motivation.
That's the mindset I want to foster in our group at Friends for Life. Often, there's a misconception among staff that one person must outshine another by making them look bad. I don't support this approach. Instead, we empower each staff member to become a leader in their domain, which in turn benefits the individuals we support.
Instead of trying to outwork someone negatively, let's do it positively. There's a saying I like: to build the biggest building, you can either tear down others or build yours bigger. I prefer the latter. So, today, I encourage you to work kindly with others and learn about their struggles. Understanding and collaboration impress more than working alone.
Friends for Life Residential Care specializes in supporting individuals with developmental disabilities. We offer services like Adult Day Support and Home Healthcare, emphasizing empowerment and quality of life, living by the motto, "My ability is stronger than my disability." We're currently hiring passionate individuals. Learn more and explore career opportunities at friendsforliferc.com.
Welcome to "IDD Health Matters," the podcast dedicated to exploring health, wellness, and health equity for individuals with intellectual and developmental disabilities. Hosted by Dr. Craig Escude, each episode delves into the unique challenges and innovative solutions within this specialized field of healthcare.
In this episode, Dr. Escude takes a road trip to Hermitage, just outside of Nashville, to visit Dr. Matt Holder, the driving force behind Kramer Davis Health. Dr. Holder shares his journey from the Lee Specialty Clinic in Louisville, Kentucky, to establishing Kramer Davis Health, a pioneering transdisciplinary outpatient healthcare center dedicated to adults with intellectual and developmental disabilities. They discuss the comprehensive services offered, including medical, dental, physical therapy, speech therapy, psychiatric care, and behavioral analysis, all coordinated under one roof for optimal patient care.
Dr. Holder emphasizes the importance of personalized, patient-centered care, recounts inspiring patient stories, and shares insights into the complexities of healthcare systems and insurance challenges. This episode provides a deep dive into the innovative approaches that are transforming healthcare for individuals with IDD.
Join Dr. Escude and Dr. Holder as they discuss the mission, challenges, and successes of Kramer Davis Health, and explore the future of inclusive healthcare. Tune in for an inspiring and informative conversation that highlights the importance of compassion, creativity, and advocacy in improving health outcomes for people with intellectual and developmental disabilities.
Welcome back to "Friends for Life," the podcast where we dive deep into the realities and nuances of working in the field of developmental disabilities. I'm your host, Tony, and today we're tackling the often daunting topic of Major Unusual Incidents (MUIs). From personal experience and countless conversations with professionals, I know that facing an MUI can be stressful, but it doesn't have to be a nightmare.
In this episode, we'll discuss practical strategies for staying calm during an MUI, the importance of meticulous documentation, and why it's crucial to stick to the facts. We'll also explore common mistakes people make during these situations and how to avoid them. Remember, MUIs are about documenting facts to prevent future issues, not about assigning blame.
For those new to this topic, I encourage you to check out our previous episodes on MUIs and reach out to your local departments for more information. As always, we are here to support you with valuable insights and resources to help you navigate your career in developmental disabilities.
Sponsored by:
- Friends for Life Residential Care: Specializing in support for individuals with developmental disabilities, offering Adult Day support and Home Health Care.
- IntellectAbility: Providing health risk screening tools, e-learning courses, and person-centered training.
- Assured Health Services: Helping individuals reach their goals through residential care and ADS services.
- Reliable Drug & Alcohol Testing Clinic: Offering pre-employment and occupational testing services.
- THS Remote Supports: Improving independent living through dynamic and personalized services.
Tune in, stay informed, and remember: Your ability is stronger than your disability. For more information and career opportunities, visit friendsforliferc.com.
About Friends for Life: Friends for Life Residential Care specializes in empowering individuals with developmental disabilities by providing top-notch support services that enhance quality of life. We live by the motto "My ability is stronger than my disability." We're currently hiring passionate individuals who want to make a difference. Learn more at friendsforliferc.com.
Welcome to another insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, we delve into the critical aspects of health, wellness, and equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Ernest "Ernie" McNutt, joins us from the New York Alliance for Inclusion and Innovation, where he plays a pivotal role in care coordination for people with IDD.
Ernie shares his journey into the field, which began during his college days working in a group home. He discusses the evolution of care coordination organizations (CCOs) in New York State, established in 2018, which aim to provide holistic care management. These organizations serve as independent advocates for individuals with IDD, helping them access necessary services and integrate into their communities.
Ernie elaborates on the role of care managers in developing personalized life plans that address the unique needs and desires of each individual. He emphasizes the importance of viewing people with disabilities not just through the lens of their disabilities but as individuals with unique differences and abilities. Through stories of successful interventions and personal growth, Ernie highlights the transformative impact of dedicated care and support.
Dr. Escude and Ernie also discuss the broader implications of this work, including the importance of volunteering and fostering a more inclusive society. They encourage listeners to see beyond disabilities and recognize the rich contributions that individuals with IDD can make to their communities.
Tune in to learn more about the vital work being done to support people with IDD and the ongoing efforts to promote health equity and inclusion. Whether you're a professional in the field, a family member, or simply interested in making a difference, this episode offers valuable insights and inspiration.
Welcome to the Friends for Life Podcast! Hosted by Tony and Paul, this podcast delves into the ongoing lives and issues faced by individuals with developmental disabilities, aiming to spark positive change in the field—all while having a lot of fun.
In this episode, Tony emphasizes an important lesson: common sense is not common. He urges listeners to abandon the ideology that everyone inherently knows the same things. This episode highlights the importance of documented standards and procedures in the field of developmental disabilities, explaining that without them, management and supervision would be unnecessary. Tony illustrates this by discussing how personal differences in cleaning and cooking standards demonstrate the need for consistent, documented guidelines.
He further advises that when training new hires, one should not assume they know everything. It's crucial to provide thorough teaching, showing, and helping until the new tasks become habitual. Tony mentions that creating a new habit typically takes about three weeks, though this can vary from person to person. He concludes by encouraging listeners to embrace better practices and to give feedback on the podcast's content.
Tune in for this insightful discussion and let us know what topics you'd like to hear about next time!
Join Dr. Craig Escude on this enlightening episode of "ID Health Matters," where we delve into health, wellness, and health equity for individuals with intellectual and developmental disabilities. In today's episode, we are thrilled to welcome Dr. Harold Reitman, affectionately known as "Hackie," joining us from Fort Lauderdale, Florida. Dr. Reitman shares his inspiring journey from a young aspiring doctor in Jersey City to becoming a renowned orthopedic surgeon and an advocate for neurodiversity.
Listen as Hackie recounts his unique path through medical school, his unexpected venture into the world of boxing as a Golden Gloves champion, and his profound personal experiences that led him to work in the field of neurodiversity. Discover the origins and mission of DifferentBrains.org, a non-profit organization dedicated to fostering understanding and inclusion for people with neurological differences. Dr. Reitman's story is not just about overcoming the odds; it's a passionate call for empathy, understanding, and the celebration of individual strengths in a diverse world.
Join Tony and Paul as they bring you inspiring stories and important discussions about the lives and issues faced by people with developmental disabilities. At Friends for Life Residential Care, we specialize in providing top-notch support services, including Adult Day Support and Home Health Care, all aimed at enhancing empowerment and quality of life. We live by the motto, "My ability is stronger than my disability."
We are actively hiring individuals passionate about making a difference. Discover more about our services and career opportunities at friendsforliferc.com.
Management Tips and Best Practices
In today's episode, we delve into the challenges of middle management and share essential management etiquette tips:
- Confidentiality: Respect and maintain the confidentiality of sensitive information.
- Appearance: Dress appropriately for different occasions while adhering to company policies.
- Handling Frustration: Manage frustration constructively, remembering the primary goal of serving individuals.
Welcome to the IDD Health Matters Podcast with Dr. Craig Escude, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). In this episode, Dr. Escude hosts Lorene Reagan, a seasoned professional with 40 years of experience in IDD nursing.
Lorene shares her journey into the field, which began by chance in 1984 when she took a job at a school for children with IDD. She describes her diverse career, from clinical nursing and working in group homes to serving as the Nurse Coordinator for the New Hampshire Department of Health and Human Services. Her extensive experience includes administrative roles, working with the New Hampshire Board of Nursing, and consulting for a National Medicaid firm. Currently, she contributes her vast knowledge and expertise at IntellectAbility.
The conversation delves into the significant challenges in achieving health equity for people with IDD. Lorene and Dr. Escude discuss issues such as the lack of preventive care, untreated chronic conditions, and systemic barriers that contribute to these health disparities. Despite these challenges, they also highlight positive changes, such as the shift from institutional to community-based support systems and the increased focus on health equity by national and international organizations.
Lorene emphasizes the importance of education and the evolving role of developmental disabilities nurses. She encourages nurses to get involved with professional organizations like the Developmental Disabilities Nurses Association (DDNA) and to stay informed about the latest clinical practice guidelines.
In a segment called "Three in Three," Lorene offers three actionable suggestions for improving health care for people with IDD:
- Get to know individuals with IDD and their families to better advocate for their healthcare needs.
- Become involved in interdisciplinary teams and support the broader community of IDD healthcare professionals.
- Stay updated with the most current clinical practice guidelines to provide the best care possible.
Join Dr. Escude and Lorene Reagan for an insightful discussion filled with valuable advice, personal anecdotes, and a shared passion for improving health equity for individuals with intellectual and developmental disabilities.
Discover essential tips and strategies to perform exceptionally well in a job interview for a Direct Support Professional (DSP) role in the Intellectual and Developmental Disabilities (IDD) field. This video covers key areas such as understanding the responsibilities of a DSP, showcasing relevant skills and experiences, preparing for common interview questions, and demonstrating your commitment to providing high-quality care. Learn how to effectively communicate your passion for helping individuals with IDD and stand out as a top candidate.
In this episode of IDD Health Matters, host Dr. Craig Escude is joined by Adam White from TruFit, a company dedicated to creating adaptive health and wellness solutions for individuals with intellectual, developmental, and physical disabilities. Adam discusses the innovative TruFit app, which customizes exercise programs and activities based on individual needs, offering a holistic approach to health that includes physical fitness, emotional wellness, life skills training, and nutrition. The conversation covers TruFit's pilot programs in schools and collaborations with nonprofit organizations, assisted living homes, and therapy providers, aiming to enhance the overall well-being of people with disabilities. Adam shares insights on the importance of proactive health measures and the need for advocacy and recognition for the disabled community. Tune in to learn more about TruFit’s mission to make health and wellness accessible and effective for everyone.
Welcome to the Friends for Life Podcast, where hosts Tony and Paul bring you insightful discussions on the lives and issues faced by individuals with developmental disabilities. Our mission is to spark positive change, foster a supportive community, and have a lot of fun along the way.
About Us
At Friends for Life Residential Care, we specialize in empowering individuals with developmental disabilities through comprehensive services like Adult Day Support and Home Health Care. We live by the motto, "My ability is stronger than my disability," and strive to enhance the quality of life for those we support. We are always looking for passionate and dedicated individuals to join our team. If you are interested in making a difference, explore career opportunities at friendsforliferc.com.
Episode Highlights
In this episode, we dive deep into the everyday challenges and strategies involved in supporting individuals with developmental disabilities to make healthier life choices without infringing on their rights. We discuss practical approaches to encourage better decisions, such as:
- Diabetic-Friendly Options: How to provide healthier alternatives for individuals with diabetes while respecting their choices. For example, offering diabetic-friendly cookies instead of regular ones and making these options more appealing.
- Positive Reinforcement: Techniques for promoting healthier behaviors by creating positive incentives. This might include offering rewards for making healthier choices or adding enjoyable activities that promote well-being.
- Balancing Rights and Health: Understanding the delicate balance between respecting an individual's rights and guiding them towards healthier habits. We share experiences and tips on how to navigate these situations effectively.
Being a Direct Support Professional (DSP) or an agency provider can be challenging. Our discussion provides valuable insights and practical advice to help you support individuals in making positive lifestyle choices while maintaining their autonomy and rights.
Join the Conversation
Join us on the Friends for Life Podcast to learn, grow, and support each other in making a difference in the lives of individuals with developmental disabilities. Whether you are a professional in the field, a family member, or someone interested in learning more, our podcast offers valuable perspectives and actionable tips to help you on this journey.
If you find our content helpful, please reach out and let us know. We are here to support you and provide more resources and information to enhance the quality of care for individuals with developmental disabilities.
In this engaging episode of IDD Health Matters, Dr. Craig Escude welcomes Patrick Paul, a dynamic leader in the field of intellectual and developmental disabilities, at the New York Alliance for Inclusion and Innovation conference. Patrick, the seasoned Executive Director/CEO of Anderson Center for Autism, and shares his comprehensive journey from being a CPA conducting audits for the organization to leading it. He delves into the challenges and successes faced by those with autism, particularly around accessing healthcare and the risk of diagnostic overshadowing—a critical issue highlighted by a recent Joint Commission alert. Throughout the discussion, Patrick outlines the extensive services his organization offers, from residential schooling for children to international training programs that attract professionals worldwide. He emphasizes the importance of integrated care and the need for medical professionals to understand and swiftly respond to the health needs of non-verbal individuals. Closing the episode, Patrick shares inspiring insights and experiences, emphasizing the potential within crisis to drive innovation and change in healthcare for individuals with developmental disabilities.
Welcome to our podcast, where we explore the vital role of assistive technology in supporting individuals with developmental disabilities. Technology enhances the quality of life for those facing communication challenges, with remote supports and communication devices serving as lifelines. These tools empower users by providing them with the means to express themselves, engage with the world, and receive care that respects their autonomy and individuality. For individuals who cannot speak, communication devices—often referred to as Augmentative and Alternative Communication (AAC) devices—are essential. Ranging from simple picture boards to sophisticated speech-generating devices (SGDs) that can be operated through touch, eye movement, or even brain waves, these tools provide a voice to those without one. This technology enables individuals to express their needs, desires, and emotions, which is fundamental to human dignity and autonomy. Remote supports involve the use of technology to monitor and assist individuals with developmental disabilities without the need for a caregiver to be physically present at all times. This includes sensors and alarms that notify caregivers of potential issues, video conferencing tools for remote check-ins, and smart home technologies that allow individuals to control their environment. These supports promote independence and ensure safety, reducing the need for constant direct supervision and allowing individuals more personal space and privacy. For care providers, these technologies are transformative. They allow for more efficient allocation of resources, ensuring that direct support professionals can focus on individuals who need in-person care while remotely assisting others. By leveraging technology, caregivers can enhance their responsiveness and flexibility, adapting to the needs of the individual in real-time. Technology also plays a pivotal role in social inclusion. For many individuals with developmental disabilities, traditional forms of social interaction and community participation are challenging. Communication devices open new avenues for interaction and socialization that were previously inaccessible. Social media platforms, online communities, and virtual environments can all be navigated using these assistive devices, allowing individuals to forge connections and participate in community life more fully. Despite their benefits, the implementation of these technologies is not without challenges. Accessibility, cost, and training are significant barriers. Ensuring that devices are user-friendly and tailored to meet individual needs requires both time and expertise. Furthermore, there is an ongoing need for funding to support the widespread adoption of these technologies, particularly in low-income areas. The importance of technology in the field of developmental disabilities cannot be overstated. Assistive devices and remote supports are not just about providing care—they are about enabling independence, dignity, and participation in a broader social world. As technology advances, the potential to improve the lives of individuals with developmental disabilities grows. It is imperative for policymakers, providers, and communities to invest in these technologies and ensure they are accessible to all who need them. Through such commitment, the promise of full and enriching lives for individuals with developmental disabilities can become a closer reality. Join us as we delve into these topics and more on our podcast.
In this engaging episode of "IDD Health Matters," Dr. Craig Escude, broadcasting from the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into the innovative integration of dental and occupational therapy for patients with intellectual and developmental disabilities. His guests, Dr. Meelin D. Chin Kit-Wells DDS, M.Ed., a pediatric dentist, and Elizabeth Thompson, an occupational therapist, share their pioneering approach to specialized dental care.
Dr. Wells highlights the unique setup of their practice, which incorporates a full-time occupational therapist to enhance patient care. This collaboration has proven essential in understanding and meeting the unique needs of their patients through pre-visit interviews, optimized communication strategies, and tailored patient support during dental procedures.
Elizabeth Thompson discusses her role in preparing patients for visits, which includes gathering detailed personal and medical histories and designing bespoke interventions to improve patient comfort and cooperation during dental treatments. These strategies include desensitization techniques to familiarize patients with dental procedures and environments gradually, aiming to reduce anxiety and improve overall care outcomes.
The episode also covers the importance of education for healthcare providers, emphasizing compassion and understanding in treating patients with disabilities. Dr. Wells and Ms. Thompson share valuable insights into creating more inclusive and effective healthcare environments, reflecting on the broader implications of their work in fostering health equity.
Dr. Escude's podcast offers a profound look into the advancements in healthcare for individuals with developmental challenges, spotlighting the dedication and innovation driving change within the field.
Tune into the "Friends for Life Podcast," hosted by Tony and Paul, for insightful discussions on the lives and challenges of people with intellectual and developmental disabilities (IDD). This podcast shines a light on important issues within the IDD community and explores innovative solutions to improve quality of life and promote inclusivity.
Each episode features in-depth conversations about Adult Day Services (ADS), crucial programs that provide meaningful daily activities and social interactions for adults with IDD. ADS play a vital role in preventing isolation, enhancing skills, and offering vocational opportunities, thereby supporting individuals to live more independently and engage actively in their communities.
Whether you're a professional in the IDD field, a caregiver, or an advocate for disability rights, the "Friends for Life Podcast" offers a rich blend of expert opinions, real-life stories, and strategic discussions aimed at fostering empowerment and systemic change in the field of developmental disabilities. Join us to stay informed and inspired as we navigate the complexities and celebrate the achievements of the IDD community.
Welcome to another enlightening episode of IDD Health Matters, where we delve into crucial health topics for individuals with intellectual and developmental disabilities. In today's episode, sponsored by Neurocrine Biosciences, we shed light on the often overlooked issue of Tardive Dyskinesia (TD) in people with IDD. Join Dr. Craig Escude as he welcomes Dr. Sharon Cahoon-Metzger, an expert in the field, to explore the burden and impact of TD.
Dr. Cahoon-Metzger expertly guides us through the complexities of TD, describing it as a condition characterized by abnormal involuntary movements resulting from prolonged use of certain medications. She emphasizes the importance of early recognition and diagnosis, highlighting the significant risk factors associated with TD, including age, medication potency, and anti-cholinergic treatment.
Throughout the episode, Dr. Cahoon-Metzger paints a vivid picture of the diverse manifestations of TD, from orobuccal movements to limb dyskinesia, underscoring the challenges in diagnosis and management. She shares compelling case studies that illustrate the profound impact of TD on individuals' daily lives, from social isolation to diminished independence.
Dr. Escude and Dr. Cahoon-Metzger stress the crucial role of interdisciplinary collaboration in identifying and addressing TD symptoms. They emphasize the need for heightened awareness among caregivers and healthcare professionals, advocating for regular monitoring and early intervention.
Listeners are encouraged to leverage available resources, including educational materials provided by Neurocrine Biosciences, to enhance their understanding of TD and improve patient outcomes. As the episode draws to a close, Dr. Escude and Dr. Cahoon-Metzger urge listeners to join the collective effort in mitigating the long-term impacts of TD, ultimately striving to enhance the quality of life for individuals with IDD.
Tune in to gain invaluable insights into TD and empower yourself to make a difference in the lives of those we support.
In this episode of the Friends for Life Podcast, hosts Tony and Paul delve into the transformative role of technology in the lives of individuals with developmental disabilities. Joined by expert guests, they explore how technology not only enhances communication but also fosters independence, dignity, and social inclusion. The heart of the episode revolves around technology's pivotal role in communication and remote support. Augmentative and alternative communication (AAC) devices are explored as essential tools for individuals who cannot speak, providing them with a voice to express their needs and emotions. Remote support technologies, ranging from sensors to smart home systems, are examined for their ability to promote independence while ensuring safety and personalized care. The hosts stress the transformative impact of these technologies on both individuals and caregivers, enabling more efficient resource allocation and enhancing responsiveness. Join Tony and Paul as they navigate the intersection of technology and empowerment in the lives of individuals with developmental disabilities, leaving listeners inspired by the possibilities for positive change. F
In this episode of "Disability Support And Parenting with Sarah Davies," Sarah engages with Charles and Michael from Film Toledo, an organization dedicated to fostering the local film community. Both guests share their journey in the film industry, starting from independent filmmaking to creating a collaborative network that supports diverse film projects and local talents. The conversation also highlights their roles in Film Toledo, with Charles as the executive director and Michael as the networking coordinator. They discuss the challenges and triumphs of running the organization, the importance of networking, and their efforts to boost the local economy by providing more job opportunities in the film sector. The episode delves into the specifics of Film Toledo's initiatives, including community events and partnerships that aim to enrich the local film scene. It also touches on their involvement in community projects, like the community film festival, which collaborates with local film professionals to help individuals from the disability community bring their creative visions to life. This inclusive approach not only improves the quality of local cinema but also empowers people with disabilities by providing a platform for their voices and stories. Additionally, the discussion covers the broader impact of their work on personal growth and community development, emphasizing the power of film as a tool for advocacy, education, and social connection. This engaging dialogue underscores the transformative potential of inclusive community efforts and the significant role of arts and culture in fostering understanding and cohesion in diverse communities.
In this episode of IDD Health Matters, Dr. Craig Escude welcomes Andrew Kelly to discuss health services for individuals with intellectual and developmental disabilities (IDD). With a background in healthcare insurance and pharmacy management, Kelly shares his unintentional but impactful journey into the IDD field. Initially joining a pharmacy owned by a large agency, he moved through various roles that emphasized the importance of accessible and effective medication management for IDD individuals. His career progression led him to a technology-based company, where he currently focuses on improving documentation and operational efficiencies through electronic health records and other tech solutions.
Kelly underscores the critical role of Direct Support Professionals (DSPs) in managing complex medication regimens and the enhancements brought by integrating technology to support these efforts. He discusses his current work with iCare Manager, an enterprise solution providing comprehensive electronic documentation to improve health outcomes and operational management within IDD services. Highlighting the importance of accurate and thorough documentation, Kelly illustrates how such practices are essential not just for compliance but for enhancing the quality of care and supporting better health outcomes for individuals with IDD. The episode touches on the satisfaction derived from making a meaningful difference in the lives of others, a recurring theme in careers within the IDD care sector.
Join hosts Tony and Paul on the Friends for Life Podcast, where they delve into the vibrant lives and pressing issues facing individuals with developmental disabilities. This episode not only entertains but also educates listeners on the significant history and evolution of disability care in the United States. The discussion traces the journey from early informal family care through the dark period of the Eugenics movement, to the transformative post-World War II era, and the civil rights activism of the 1960s and 70s.
The narrative continues through the legislative advancements that shaped today’s disability care, highlighting the Rehabilitation Act of 1973 and the landmark Americans with Disabilities Act of 1990. Today’s approach to disability care in the U.S. emphasizes principles of inclusion, accessibility, and equal opportunity, showcasing a significant transformation from past practices.
Whether you're a professional in the field, someone looking for services, or just interested in learning more about the historical context of disability rights, this episode offers comprehensive insights and a reflection on how far we have come in recognizing and respecting the dignity and rights of people with disabilities. Tune in to be informed and inspired.
In this enlightening episode of IDD Health Matters, Dr. Craig Escude engages with two specialists, Dr. Jennifer Lecomte and Dr. Wendy Aita, who are making significant strides in healthcare for individuals with intellectual and developmental disabilities. The discussion centers on their innovative practice in Southern New Jersey, which uniquely integrates primary medical care with behavioral health services.
Key Discussion Points:
- Interdisciplinary Care: Dr. Jennifer Lecomte, a med-peds physician, outlines her practice's approach to providing comprehensive care for patients with both intellectual disabilities and mental health conditions. This includes embedded behavioral health within the primary care setting to ensure holistic management of patients.
- Behavioral Health Integration: Dr. Wendy Aita, a clinical psychologist and co-director of the Risen Center, discusses the integration of behavioral health into primary care. She explains the "three touches" model: primary care assessment, social work intervention, and psychological evaluation, which collectively address both the physical and mental health needs of their patients.
- Specialized Facilities and Services: The practice is noted for its thoughtful design, featuring amenities like ceiling lifts and wheelchair scales in every suite, underscoring their commitment to accessibility and preventive care. They also focus on sensitive areas such as reproductive health and screenings, often overlooked in this population.
- Challenges and Innovations: The conversation also covers the specific challenges faced by individuals with dual diagnoses of intellectual disability and mental health issues. The guests emphasize the importance of understanding and dismantling the barriers to care, including caregiver support and the need for trauma-informed approaches.
- Outreach and Education: Dr. Lecomte and Dr. Aita share insights into their efforts to spread their integrative care model through partnerships and educational initiatives aimed at improving care accessibility and quality for this underserved population.
Impact and Vision: The episode not only sheds light on the specialized needs of people with intellectual and developmental disabilities but also provides a model of care that prioritizes inclusivity, accessibility, and comprehensive management. Drs. Lecomte and Aita express a hopeful vision for the future of healthcare in this field, aiming to expand their integrative approach to more communities.
Conclusion: IDD Health Matters continues to be a pivotal platform for discussing advanced healthcare strategies and advocating for enhanced health equity among the intellectually and developmentally disabled population, with this episode further enriching the conversation.
In this episode of the Friends for Life Podcast, we delve into the profound impact of the Americans with Disabilities Act of 1990 (ADA), a pivotal piece of civil rights legislation in the United States. Designed to eliminate discrimination against individuals with disabilities, the ADA spans several critical areas including employment, public accommodations, government services, telecommunications, and transportation. We explore how the ADA has transformed societal views and infrastructures, from increasing employment opportunities to enhancing physical access through innovative assistive technologies like wheelchair ramps and Braille signage. This legislation not only safeguarded rights but also heralded a new era of inclusion and equality, ensuring that people with disabilities enjoy the same freedoms and opportunities as everyone else. Join us as we discuss the ADA's ongoing legacy of fostering a more inclusive society, where diversity is not just acknowledged but celebrated.
In this enlightening episode of IDD Health Matters, host Dr. Craig Escude is joined by Lisa Burck from The Arc of Mississippi. With decades of experience in the field of intellectual and developmental disabilities (IDD), Lisa shares her profound insights into the dynamic and responsive nature of advocacy work. The conversation delves into the multifaceted roles that The Arc plays in Mississippi, from handling abuse investigations and training direct support professionals, to innovative programs like their Archangel Christmas initiative and addiction programs tailored for community integration challenges.
Lisa highlights the transformative power of supported decision-making—a dignified alternative to guardianship that honors individual needs and preferences. The episode also explores the critical importance of direct support professionals and the severe impact of staffing shortages on employment opportunities for individuals with disabilities, a crucial aspect of life that fosters purpose and integration.
Join Dr. Escude and Lisa as they discuss the practical challenges, emotional rewards, and the ongoing journey towards better health equity and quality of life for people with IDD. This episode is a must-listen for anyone involved in or caring about the disability support sector.
Join hosts Tony and Paul on the "Friends for Life Podcast," a dynamic and engaging series dedicated to exploring the lives, challenges, and triumphs of individuals with developmental disabilities. Each episode delves into meaningful discussions aimed at sparking positive change within the field, featuring a mix of expert interviews, insightful stories, and in-depth analysis of relevant issues.
Whether highlighting innovative care solutions from companies like Assured Health Services, showcasing inspiring guests like Scott DeFel, or exploring effective advocacy with veterans like Mr. John Dickerson, this podcast offers a comprehensive look into the intersection of healthcare, advocacy, and personal empowerment. Listeners will also find practical advice on navigating and improving care systems, all while the hosts maintain a light-hearted and enjoyable atmosphere.
The Friends for Life Podcast is not just a source of information but also a community platform that celebrates achievements and addresses critical needs within the developmental disabilities field. It's an essential listen for caregivers, family members, professionals, and anyone interested in making a difference in the lives of people with developmental disabilities.
In this insightful episode of the IDD Health Matters Podcast, host Dr. Craig Escude welcomes Joe MacBeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), to discuss the crucial role and challenges of direct support professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Joe shares the origins and mission of the NADSP, founded in the mid-1990s with an influential push from John F. Kennedy Jr., focusing on advocating for the direct support workforce amidst ongoing workforce issues.
The conversation delves into the persistent systemic failures to adequately address workforce challenges, highlighting the transition of the NADSP from its humble beginnings to its current state of moderate success and growth. Joe also reflects on the pivotal role of DSPs during the COVID-19 pandemic, their adaptability in the face of unprecedented challenges, and the critical importance of recognizing and compensating DSPs fairly for their multifaceted contributions to health, wellness, and quality of life for those they support.
Dr. Escude and Joe explore the transformative potential of training and professional development for DSPs, emphasizing the NADSP’s eBadge Academy which focuses on enhancing skills, knowledge, and values to improve quality support for individuals with disabilities. Additionally, Joe shares his personal journey from starting as a DSP to leading a national organization, underscoring the profound learning and growth opportunities in the field.
This episode not only highlights the invaluable work of DSPs but also calls for greater recognition, support, and investment in the direct support profession as a career path filled with growth, learning, and the chance to make a significant impact in the lives of individuals with disabilities.
In this captivating episode of the Friends for Life Podcast, hosts Tony and Paul delve into their ongoing commitment to positively impacting the lives of individuals with developmental disabilities. The episode starts with an enthusiastic introduction to the core mission of the podcast: sparking change in the field, ensuring individuals achieve their personal goals, and engaging in meaningful conversations that lead to actionable solutions.
The excitement builds as the hosts reveal the newly constructed Friends for Life podcast studio. Tony and Paul share the story of building the studio from the ground up, emphasizing the intimate, well-lit space designed to enhance the podcast experience. They express their pride in the studio's new setup and hint at their plans to innovate the podcast's format with solo episodes, teaching segments, and enriching interviews.
Tony explains the reasoning behind the new studio, focusing on the philosophy of embracing discomfort to promote growth. He outlines their vision for a format that is not only accessible to newcomers but also provides educational value to listeners unfamiliar with the developmental disabilities field. The conversation takes a personal turn as they recount the blood, sweat, and tears shed during the studio's construction, demonstrating their unwavering commitment to the project.
Accessibility is a key theme, with Paul and Tony emphasizing the studio's design to be welcoming for all. They discuss their ambition to create a community space beyond the podcast, reflecting on their community involvement, including a film festival, as evidence of their commitment to using their unique skills for the greater good.
The discussion shifts towards the upcoming eclipse and its potential effects on the community, highlighting the importance of adaptability and offering solutions rather than just discussing problems. They stress the need for resolution-focused dialogues in addressing the challenges faced by those in the developmental disabilities field.
As the episode concludes, Tony and Paul contemplate the future of the Friends for Life Podcast and their broader mission. They share insights from their business experiences, the significance of consistency over talent, and personal growth stories. This episode not only reaffirms their dedication to making a positive impact in the developmental disabilities field but also offers listeners a blend of informative content, personal stories, and visions for the future of the Friends for Life Podcast.
In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude welcomes Kirsten Sanchirico, a graduate of the University of Vermont's LEND (Leadership Education in Neurodevelopmental Disabilities) program. Kirsten shares her unique experiences navigating the intersection of disability, policy, and education, particularly highlighting the challenges she faced attending the Disability Policy Seminar in Washington D.C. due to her physical disability and the accommodations required for travel.
Kirsten's story sheds light on the broader issues of accessibility and inclusivity, from the difficulties of securing appropriate accommodations on flights to the financial implications of receiving a stipend while on a fixed income due to disability benefits. Her journey underscores the importance of understanding and advocating for the rights and needs of individuals with disabilities, both in educational settings and beyond.
This episode is a powerful reminder of the ongoing struggles for equity and access faced by people with disabilities and the critical role of education and advocacy in driving positive change in policy and practice.
In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul delve into the vibrant world of advocacy, education, and empowerment for individuals with developmental disabilities. They are joined by special guests who share their personal journeys, insights into the importance of self-determination, and the impact of community involvement in promoting inclusivity and support for people with disabilities. The conversation highlights the transformative power of advocacy groups like OSDA (Ohio Self-Determination Association) and the significance of initiatives like Project STIR (Steps Toward Independence and Responsibility), emphasizing the role of education and community support in enhancing the lives of individuals with developmental disabilities. This episode is a testament to the collective effort required to foster a more inclusive society and the belief that everyone has a vital role to play in advocacy, with no one left on the bench.
In this enlightening episode of IDD Health Matters, Dr. Craig Escude is joined by Dina Pizzurro-Smith, BSN, RN, CDDN, Director of Client Services at IntellectAbility, and Daleigh Tallent, MSN, RN, CDDN, Clinical Quality Coordinator at IntellectAbility. Both guests share their unique journeys into the field of nursing for individuals with intellectual and developmental disabilities (IDD), highlighting the challenges and rewards that come with serving this underserved population.
Dina and Daleigh discuss the critical need for specialized training and education for nurses in the IDD field, emphasizing the lack of IDD-specific content in traditional nursing curricula. They explore the importance of understanding the complex healthcare needs of individuals with IDD and the role of nurses in providing tailored care and advocacy to ensure these needs are met.
The conversation also covers the challenges individuals with IDD face in accessing healthcare, including physical barriers and the reluctance of some healthcare providers to treat patients with IDD. Dina and Daleigh stress the importance of building relationships with community healthcare providers and the need for comprehensive training that includes clinical skills, disability competency, and advocacy.
This episode is a must-listen for healthcare professionals, nursing students, and anyone interested in improving health equity for people with intellectual and developmental disabilities. Through their stories and insights, Dina and Daleigh inspire listeners to advocate for better training, awareness, and inclusion in healthcare for the IDD community.
In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul dive into the vibrant lives and pressing issues facing individuals with developmental disabilities. They aim to spark positive change in the field while ensuring that these individuals achieve their personal goals, all while having a great time. The episode features insightful conversations with guests Dustin and Jordan, who run an art studio in Highland County, Ohio, where adults with disabilities create a wide array of artworks, from woodworking to canvas paintings. They discuss the studio's unique approach to empowering artists with disabilities by bringing their creations to life and selling them at festivals and sales.
Additionally, the episode explores the work of RHDD (Residential Home for the Developmentally Disabled), which has been providing a variety of services to support independent living in the community for over 47 years. From housing and job assistance to transportation and adaptive equipment, RHDD's comprehensive approach aims to meet all the needs of individuals with developmental disabilities.
The podcast also delves into the importance of technology in enhancing the lives of people with disabilities. It highlights how technology can be used not just for basic needs but also for expanding one's support network and living more independently. The discussion covers the use of technology for everyday tasks, such as online banking and grocery shopping, and how it can be personalized to suit individual needs and preferences.
This episode of the Friends for Life Podcast is a must-listen for anyone interested in the field of developmental disabilities, offering a blend of inspiring stories, innovative solutions, and a deep commitment to improving the lives of individuals with disabilities.
In this enlightening episode of IDD Health Matters, host Dr. Craig Escude sits down with Dr. Owen Doody, an Associate Professor at the University of Limerick and a registered Intellectual Disability Nurse. Dr. Doody shares his extensive experience and passion for intellectual disability nursing, a field he has been dedicated to since qualifying in 1997. With a career spanning over three decades, Dr. Doody has made significant contributions to nursing management, education, and research, focusing on the well-being of individuals with intellectual disabilities and their families.
Recorded at the Developmental Disabilities Nurses Association annual conference in New Orleans, Louisiana, Dr. Doody delves into the keynote address he delivered on the value and contribution of intellectual disability nursing in Ireland. He discusses his personal journey into the field, driven by a lifelong interest in caring for people and making meaningful changes in their lives. Dr. Doody emphasizes the satisfaction derived from enabling individuals with intellectual disabilities to achieve small but impactful strides towards independence and a better quality of life.
The conversation also covers the challenges and opportunities in health equity and access for people with intellectual and developmental disabilities. Dr. Doody highlights the importance of specialized training for nurses in this field, the role of health passports in improving healthcare visits, and the need for systemic adjustments to better accommodate individuals with disabilities.
Listeners will gain insights into the critical role of intellectual disability nursing in supporting community living, the significance of research in advancing the field, and the profound fulfillment that comes from working closely with individuals with disabilities and their families.
Tune in to discover how Dr. Owen Doody's work is shaping the future of intellectual disability nursing and making a difference in the lives of many.
In this enlightening episode of the Friends for Life Podcast, hosts Tony and Paul delve into the rich history and evolving landscape of care for individuals with developmental disabilities. With a focus on sparking positive change and having fun along the way, this episode features a deep dive into the personal journeys of those who have dedicated their lives to this field.
From the early days of institutional care to the modern push towards more inclusive and supportive services, our guests share their experiences and insights. Learn about the origins and growth of Assured Health Services, a beacon of hope for those seeking residential care and ADS services. Discover how Assured Health stands out in helping individuals achieve their personal goals, emphasizing the importance of success for everyone involved.
The episode takes us back to 1969, where one of our guests began their career in public service, marking the start of a lifelong commitment to improving the lives of those with intellectual disabilities. We explore the transition from institutional settings to more personalized care approaches, highlighting the significant milestones and challenges along the way.
Hear from Dr. Craig ESC, president of IntellectAbility, on how state developmental disability agencies, managed care organizations, and providers across the United States are using innovative tools to improve health equity for people with intellectual disabilities.
Additionally, we're introduced to the personal stories of individuals who found their calling in this field, often influenced by family connections and a desire to make a meaningful difference. From architectural backgrounds to fine arts degrees, our guests share how their unique paths led them to contribute to the developmental disabilities care sector in unexpected and rewarding ways.
This episode is not just a look back at where we've come from but also a hopeful gaze into the future of care and support for individuals with developmental disabilities. Join Tony, Paul, and their guests on a journey of discovery, compassion, and dedication on the Friends for Life Podcast.
In this episode of IDD Health Matters, Dr. Craig Escude welcomes Patricia Calandra, a passionate advocate for individuals with intellectual and developmental disabilities. Broadcasting from the New York Alliance for Inclusion and Innovation conference, they delve into Patricia's personal journey as a parent of two adult children with autism, her role as a self-direction broker, and her innovative work as a Master Housing Navigator.
Patricia shares her family's experiences navigating the complexities of self-direction and residential living, highlighting the challenges and triumphs of seeking independence and appropriate support for her children. She emphasizes the importance of personalized care, the transformative power of technology in enhancing independence, and the critical role of telehealth services, especially during the COVID-19 pandemic.
The conversation also explores the concept of non-certified housing, offering individuals with disabilities more autonomy over where and how they live. Patricia's insights into the need for better compensation for support workers, the exhaustion families face from constant advocacy, and the potential for technology to reduce reliance on human services are thought-provoking.
This episode is a must-listen for anyone interested in the intersection of health, wellness, and disability advocacy, offering valuable perspectives on improving the lives of individuals with intellectual and developmental disabilities.
In this episode of the Friends for Life Podcast, hosts Tony and Paul welcome Jason Schaffer, PhD, from Life Bridge Remote Supports, to dive deep into the transformative world of remote supports for individuals with developmental disabilities. Jason shares his journey from skepticism to advocacy for remote supports and assistive technologies, highlighting how these innovations not only cut costs but significantly enhance the quality of care and independence for individuals served.
Life Bridge Remote Supports, under Jason's leadership, emerged from recognizing the inevitable shift towards integrating technology in care. Initially hesitant, Jason's perspective changed after understanding the broader implications and benefits of remote supports, leading him to secure a grant and mentorship to explore this field further. His experience with Brian Hart from LADD in Cincinnati was a turning point, offering him insights into the complexities and potential of remote supports.
Jason discusses the challenges and opportunities in convincing agency providers about the financial and operational benefits of adopting remote supports. He emphasizes the importance of viewing remote supports not just as a cost-saving measure but as a strategic business decision that can improve service quality and outcomes for individuals.
One of the most compelling parts of the conversation revolves around real-life success stories. Jason shares anecdotes of individuals who thrived under remote supports, including a person who transitioned from 2-to-1 staffing to minimal drop-in services, highlighting the profound impact on independence and self-sufficiency. These stories underscore the potential of remote supports to transform lives by promoting independence, reducing reliance on physical staffing, and fostering stronger relationships between caregivers and individuals.
The podcast episode is a call to action for providers, caregivers, and stakeholders in the developmental disabilities field to embrace remote supports and assistive technologies. By sharing his insights and experiences, Jason Schaffer invites listeners to reconsider traditional care models and explore the vast potential of technology to enhance the lives of individuals with developmental disabilities.
Listeners interested in learning more about Life Bridge Remote Supports and how they can leverage these technologies can visit LifeBridge Remote for more information.
In this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes David Ervin, a seasoned expert in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). With a career sparked by a pragmatic need that turned into a lifelong passion, Ervin shares his journey from a direct support professional to becoming the CEO of a community-based organization in Rockville, Maryland, named Mome. This episode delves into the critical importance of health equity, wellness, and the development of health care systems tailored to the unique needs of the IDD community.
David Ervin discusses the challenges and triumphs of creating multidisciplinary clinics and healthcare collaboratives aimed at providing culturally competent and accessible care to individuals with IDD. He emphasizes the transformative impact of such specialized care on the quality of life and health outcomes for this population. The conversation also explores the potential of Medicaid Managed Care models to revolutionize care by integrating acute medical services, long-term supports, and a holistic approach to wellness.
Listeners will be inspired by Ervin's vision for a future where health care systems are inclusive, equitable, and capable of meeting the diverse needs of all individuals, especially those with IDD. This episode is a must-listen for anyone interested in health equity, the power of community-based solutions, and the ongoing efforts to ensure that individuals with IDD can access the high-quality care they deserve.
Tune in to IDD Health Matters for a deep dive into how health, wellness, and equity intersect in the lives of people with intellectual and developmental disabilities, featuring insights from one of the field's most passionate advocates, David Ervin.
In this episode of the Friends for Life Podcast, Tony and Paul provide a comprehensive recap of the Synergy Conference, highlighting the vibrant discussions, personal stories, and educational sessions that took place. The episode features engaging interviews with conference attendees who share their experiences, insights, and the impact of the conference on their lives and work in the field of developmental disabilities. The podcast kicks off with an introduction to Assured Health Services, emphasizing their commitment to helping individuals with developmental disabilities achieve their goals. The hosts then dive into conversations with Mel and Shavah, who discuss the significance of addressing racism within the context of developmental disabilities and share personal experiences of cultural integration and advocacy. Listeners are treated to a variety of perspectives, including insights from Kim and Dennis from Wood County, who talk about their involvement in People First and Action Club, advocating for the rights and voices of people with disabilities. They highlight the importance of community service and personal advocacy, sharing how these activities enrich their lives and the lives of others. The episode also features Michael and Melissa, who discuss their favorite parts of the Synergy Conference, including sessions on mental health and safety on the internet. They share their experiences with Special Olympics and Action Club, emphasizing the importance of community involvement and support. Throughout the episode, the hosts and their guests underscore the value of the Synergy Conference as a platform for learning, sharing, and fostering a sense of community among individuals with developmental disabilities, their caregivers, and professionals in the field. The discussions reveal a shared commitment to advocacy, personal growth, and the pursuit of independence and fulfillment. This episode of the Friends for Life Podcast not only recaps the highlights of the Synergy Conference but also celebrates the stories, challenges, and achievements of individuals with developmental disabilities, offering listeners inspiration and insight into the power of community and advocacy. #podcast #idd
In this enlightening episode of IDD Health Matters, host Dr. Craig Escude engages in a captivating conversation with Rick Guidotti, a former fashion photographer turned advocate for changing perceptions of beauty. Guidotti, the founder of Positive Exposure, shares his journey from capturing the glitz and glamour of the fashion world to spotlighting the unique beauty of individuals with intellectual and developmental disabilities (IDD). Positive Exposure, a nonprofit organization, leverages photography, film, and educational programs to foster a more inclusive society by celebrating human diversity and challenging the stigmas associated with IDD.
Guidotti recounts his pivotal moment of inspiration upon encountering a young girl with albinism, a condition rarely represented in conventional beauty standards. This encounter propelled him to research albinism, only to find dehumanizing representations in medical textbooks. Motivated by this discovery, Guidotti embarked on a mission to transform public and medical perceptions through Positive Exposure. The organization collaborates with medical schools and advocacy groups worldwide, providing an alternative narrative that emphasizes the humanity and individuality of people with various conditions.
The episode delves into Positive Exposure's innovative projects, including "Frame," a series of films that present medical conditions through the personal stories of those who live with them, and "Textbook Beauty," a forthcoming platform aimed at redefining medical education imagery. Guidotti's work extends beyond photography to include collaborations with artists and performers with IDD, further amplifying their voices and stories.
Guidotti's message is clear: the beauty of diversity must be recognized and celebrated. His call to action—seeing, hearing, and belonging—resonates as a universal need, underscoring the importance of inclusivity and acceptance in building a more compassionate world. This episode not only highlights the transformative power of Positive Exposure but also serves as a reminder of the shared humanity that unites us all.
In this episode of the Friends for Life Podcast, hosts Tony and Paul delve into the exciting developments and changes happening with their podcast and the broader mission of Friends for Life. They kick off the conversation by discussing the move to a new studio and office, highlighting the growth and expansion of Friends for Life. This move is not just a physical transition but also marks a significant step forward in their commitment to supporting individuals with developmental disabilities.
Tony and Paul share their enthusiasm for introducing new programs that aim to enhance the lives of the people they serve. They touch on the addition of Adult Day Support (ADS) and vocational services, areas they've been cautious about venturing into previously. Tony, with his extensive experience in residential care, transportation, and vocational skills, expresses a renewed perspective on expanding their services to meet the growing needs of their community.
The conversation shifts to the challenges and rewards of running a business in the developmental disabilities field. They candidly discuss the realities of managing staff, the importance of documentation and communication, and the personal growth that comes from navigating the complexities of their work.
Listeners are given a behind-the-scenes look at the thought process behind the podcast's new direction, including the redesign of the studio and the goal of making the podcast more engaging and educational. Tony and Paul emphasize their desire to create content that not only entertains but also educates and inspires their audience.
The episode also touches on broader themes of personal and professional development, the value of perseverance, and the impact of positive leadership. They encourage listeners to embrace challenges, learn from their experiences, and contribute positively to their communities.
As the Friends for Life Podcast embarks on this new chapter, Tony and Paul invite their audience to join them in this journey of growth, learning, and making a difference in the lives of individuals with developmental disabilities.
In this episode of IDD Health Matters, Dr. Craig Escude welcomes back Dr. Seth Keller for a deep dive into the latest advancements in the treatment and understanding of dementia, particularly in individuals with intellectual and developmental disabilities. Dr. Keller, a seasoned expert in neurology with a focus on Alzheimer's disease, shares groundbreaking insights into the diagnosis and management of dementia, emphasizing the significant strides made in research over the past few years.
The conversation begins with an overview of the challenges faced in diagnosing Alzheimer's disease, highlighting the shift towards more accurate diagnostic methods through biomarkers. Dr. Keller discusses the development of blood tests and imaging techniques that can now confirm the presence of Alzheimer's disease with much greater certainty than before. This advancement is particularly crucial for individuals with Down syndrome, who are at a higher risk of developing Alzheimer's at an earlier age due to genetic factors.
Dr. Keller then delves into the latest treatments aimed at combating Alzheimer's, including the promising field of anti-amyloid therapy. These therapies, which are still in the research phase for broader application, focus on removing or reducing amyloid plaques in the brain, a hallmark of Alzheimer's disease. He shares the complexities and challenges of ensuring these treatments are safe and effective for people with intellectual and developmental disabilities, stressing the need for inclusive research that addresses the unique needs of this population.
The episode also touches on the importance of health equity and access to cutting-edge treatments and research for people with intellectual and developmental disabilities. Dr. Keller calls for a unified effort among advocacy groups, researchers, and healthcare providers to ensure that advancements in Alzheimer's treatment are accessible to all, regardless of their developmental status.
In a broader context, the discussion emphasizes the critical role of early diagnosis and intervention, the potential impact of new treatments on quality of life, and the ongoing efforts to include people with developmental disabilities in Alzheimer's research. Dr. Keller offers hope and optimism for the future, highlighting the collaborative efforts underway to improve the lives of those affected by dementia.
As the episode concludes, Dr. Escude and Dr. Keller reflect on the importance of continued advocacy, research, and education to advance the understanding and treatment of dementia in the IDD community. They underscore the need for a comprehensive approach that combines medical, social, and preventive strategies to address the challenges faced by individuals with intellectual and developmental disabilities and dementia.
The Friends for Life Podcast, hosted by Tony and Paul, delves into the lives and challenges faced by individuals with developmental disabilities, aiming to foster positive change in the field while engaging in meaningful discussions. In this episode, they welcome Michele Myerholtz, who shares her journey within the developmental disabilities (DD) field, starting from her high school volunteering experiences to her professional growth and current role. Myerholtz discusses the importance of community involvement, the evolution of the DD field, and the significance of mutual trust, respect, and kindness in both personal and professional settings. The conversation also touches on the challenges and learning opportunities faced by service and support administrators (SSAs) and the broader DD community, emphasizing the continuous effort towards improvement and acceptance. This episode offers insights into the complexities of the DD field, the impact of supportive relationships, and the ongoing efforts to enhance the quality of life for individuals with developmental disabilities.
Join Dr. Craig Escude on a compelling episode of IDD Health Matters, where he engages in an enlightening conversation with Cathy Ficker Terrill, a seasoned expert with 48 years of experience in the field of supports and services for people with intellectual and developmental disabilities (IDD). This episode delves into Cathy's extensive career, highlighting her roles from a direct support professional to an influential figure in promoting inclusion, quality, and employment within the IDD community.
Cathy shares transformative stories and insights from her journey, including her pivotal role as a court monitor in a landmark case that led to the eradication of subminimum wage employment for people with IDD in a particular state. She discusses the shift from sheltered workshops to community-based employment, emphasizing the importance of job coaches and the positive impact of employment on individuals with IDD.
The conversation also covers the evolution of person-centered planning, the significance of listening to and empowering individuals with IDD to make their own decisions, and the role of technology in modernizing supports and services. Cathy highlights the critical need for better communication between healthcare providers, supporters, and individuals with IDD, advocating for supported decision-making and the use of technology to enhance the lives of those with IDD.
Dr. Escude and Cathy Ficker Terrill explore the challenges and successes in the quest for health equity and inclusion for people with IDD, offering valuable advice for professionals, families, and individuals alike. This episode is a must-listen for anyone interested in understanding and advancing the field of IDD health and wellness.
Welcome to the "Friends for Life Podcast," hosted by Tony and Paul. In this enlightening episode, we delve deep into the importance of mindfulness and how it impacts the lives of individuals with developmental disabilities, as well as the professionals and caregivers who support them. Our special guest, Jenn McCullough, shares her inspiring journey from a special ed teacher to a mindfulness and yoga instructor, emphasizing the transformative power of mindfulness in both personal and professional settings. Jenn's story begins in the 1900s when she discovered the profound effects of yoga and mindfulness on her stress levels while working with students facing learning and behavioral challenges. This experience ignited her passion for incorporating mindfulness into education, leading her to explore deeper into meditation and the broader aspects of yoga. Throughout the episode, Jenn guides us through a practical mindfulness session, offering listeners an opportunity to experience the calming effects of focused breathing and body awareness. Her approach demystifies mindfulness, making it accessible to everyone, regardless of their background or beliefs. The conversation also touches on the similarities between Eastern and Western philosophies regarding mindfulness, highlighting its universal relevance and applicability. Jenn emphasizes that mindfulness is not about perfection but about continuous practice and self-awareness. Listeners will also discover practical tips for integrating mindfulness into their daily routines, whether at work, in the classroom, or in personal relationships. Jenn's insights provide valuable strategies for managing emotions, reducing stress, and fostering a more compassionate and understanding environment for all. For anyone seeking to enhance their well-being or better support those with developmental disabilities, this episode of the "Friends for Life Podcast" is a must-listen. Jenn McCullough's expertise and warm, engaging teaching style will leave you inspired to explore mindfulness more deeply in your own life. To learn more about Jenn's work and access mindfulness resources, visit integration.yoga or contact her at integrationyogawithjenn@gmail.com. Whether you're new to mindfulness or looking to deepen your practice, Jenn's guidance and the insights shared in this episode are invaluable resources on your journey to a more mindful life.
The podcast "IDD Health Matters" hosted by Dr. Craig Escude features an episode with Dr. Beau Ances, an adult neurologist specializing in adults with Down syndrome, particularly focusing on the early detection of Alzheimer's disease in this population. Dr. Ances explains that individuals with Down syndrome are at a higher risk of developing Alzheimer's disease at a younger age due to having three copies of chromosome 21, which leads to an overproduction of amyloid precursor protein, a hallmark of Alzheimer's.
Key points discussed in the episode include:
- Early Signs of Alzheimer's in Down Syndrome: Dr. Ances highlights early signs such as social withdrawal, forgetfulness, changes in sleep patterns, increased falls, and the onset of seizures as indicators of Alzheimer's in individuals with Down syndrome. He notes that seizures, which may occur early in life and then reappear as cognitive decline sets in, are a significant sign of the disease's progression.
- Challenges in Diagnosis: The conversation also covers the difficulty in diagnosing Alzheimer's in individuals with Down syndrome due to pre-existing communication challenges and varying baseline cognitive abilities. Dr. Ances emphasizes the importance of observing changes from an individual's baseline behavior and abilities as a key diagnostic tool.
- Caregiver Observations: The role of caregivers in monitoring and reporting changes in behavior, skills, and abilities is crucial for early detection and diagnosis. Dr. Ances shares an example of how a patient's progression of Alzheimer's was observed through changes in her ability to color over the years, illustrating the disease's impact on her cognitive and motor skills.
- Importance of Baseline Assessments: Establishing a baseline of cognitive and functional abilities in individuals with Down syndrome is vital for early detection of Alzheimer's. Dr. Ances advises getting baseline assessments in the 20s or 30s to track any decline or changes over time.
- Advancements in Alzheimer's Diagnosis: The episode touches on new diagnostic methods for Alzheimer's, including PET imaging and spinal taps, which can indicate the presence of Alzheimer's pathology before symptoms appear. These advancements offer hope for earlier and more accurate diagnosis, not only in the general population but also specifically in individuals with Down syndrome.
Dr. Ances's insights provide valuable information on the intersection of Down syndrome and Alzheimer's disease, highlighting the unique challenges and considerations in diagnosing and managing Alzheimer's in this population. The discussion underscores the importance of early detection, caregiver involvement, and the need for tailored diagnostic approaches to improve outcomes for individuals with Down syndrome facing the risk of Alzheimer's disease.
In this enlightening episode of the Friends for Life Podcast, hosts Tony and Paul welcome Bethany and Becky from the Ohio Alliance of Direct Support Professionals (OADSP) to discuss the transformative work they're doing in the field of developmental disabilities. Recorded at the OADSP conference, this conversation sheds light on the innovative approaches and programs OADSP is implementing to support direct support professionals (DSPs) and frontline supervisors, aiming to spark positive change and ensure individuals with developmental disabilities achieve their goals.
Bethany and Becky dive into the latest happenings at OADSP, including their efforts in leadership development and the impactful DSPU program. This unique high school program is designed to equip seniors with the skills and credentials needed to embark on a career as a DSP, offering a blend of education, internships, and competency-based achievements. They emphasize the program's role in addressing workforce crises, fostering purpose-driven work, and laying a solid foundation for various career paths.
The episode also explores the challenges of maintaining a stable DSP workforce, the importance of advocacy, and the personal growth opportunities available through OADSP's leadership programs. With a mix of personal anecdotes, program insights, and a shared passion for making a difference, Bethany and Becky highlight the critical role of DSPs in creating a better world for individuals with developmental disabilities. Whether you're a seasoned professional in the field, considering a career as a DSP, or simply interested in learning more about the impactful work being done to support some of the most vulnerable members of our community, this episode offers valuable perspectives and inspiring stories of change and empowerment.
In this insightful episode of "Disability, Support, and Parenting," host Sarah Davies engages in a deep and meaningful conversation with guest Marie Wilbanks. Together, they explore the complexities and nuances of parenting in the context of disability, offering a fresh perspective that goes beyond mere survival to thriving in challenging circumstances.
Highlights:
Emotional Honesty: Sarah and Marie discuss the importance of acknowledging and embracing one's emotions, especially in the face of life's challenges. They emphasize the need for parents, particularly those dealing with disabilities, to give themselves permission to feel and process their emotions without guilt.
Personal Growth and Therapy: The conversation delves into the transformative power of therapy, with both Sarah and Marie sharing personal insights and experiences. They highlight how therapy can aid in understanding and navigating the unique challenges of parenting and supporting a child with disabilities.
Challenging Stereotypes: Marie passionately addresses the common misconceptions and narratives surrounding disability. She advocates for a more empowering and realistic portrayal of individuals with disabilities, moving away from pity-based narratives to ones that highlight capability and potential.
The Concept of Thriving: The episode focuses on redefining success and thriving for individuals with disabilities. Sarah and Marie discuss the importance of creating opportunities and environments where children with disabilities can thrive according to their own standards and preferences.
Parenting Strategies: Practical parenting strategies are discussed, including setting boundaries, managing energy, and ensuring that children have access to opportunities while respecting their choices and individuality. Conclusion:
This episode is a must-listen for anyone seeking a deeper understanding of the joys and challenges of parenting in the context of disability. Sarah and Marie's conversation is not only enlightening but also filled with moments of humor and relatability, making it a truly engaging and informative experience.
Welcome to another insightful episode of IDD Health Matters, hosted by Dr. Craig Escude, a renowned expert in the field of Intellectual and Developmental Disabilities (IDD) healthcare. In this episode, we are honored to have Tony Stuart, the dynamic CEO of Friends for Life, as our special guest.
Tony Stuart, a visionary leader and advocate in the IDD community, joins Dr. Escude to discuss the transformative work being done at Friends for Life. This organization is at the forefront of providing support and resources to individuals with intellectual and developmental disabilities, ensuring they lead fulfilling and empowered lives.
Throughout the episode, Tony shares his journey and the driving force behind his commitment to the IDD community. He delves into the innovative programs and services offered by Friends for Life, highlighting how they are tailored to meet the unique needs of individuals with IDD.
Dr. Escude and Tony engage in a thought-provoking conversation about the challenges faced by those with IDD and their families. They explore the importance of community involvement, advocacy, and the role of healthcare professionals in enhancing the quality of life for individuals with IDD.
Listeners will gain valuable insights into the latest trends and developments in IDD care, as well as practical advice on how to support and advocate for those with IDD in their own communities.
This episode is not just informative but also inspiring, shedding light on the positive impact that organizations like Friends for Life have on society. It's a must-listen for healthcare professionals, caregivers, family members, and anyone interested in making a difference in the lives of those with intellectual and developmental disabilities.
Tune in to this episode of IDD Health Matters with Dr. Craig Escude and be part of a meaningful conversation that champions inclusion, empowerment, and better health outcomes for the IDD community.
In this episode of the Friends for Life Podcast, the hosts welcome Dr. Craig Escude, an expert in the field of healthcare for individuals with intellectual and developmental disabilities. Dr. Escude shares his insights and experiences, delving into the unique challenges and needs of this population in the healthcare system. He discusses his journey in the medical field, highlighting how his career has been shaped by his passion for improving healthcare services for people with disabilities. Throughout the episode, Dr. Escude emphasizes the importance of specialized training for healthcare providers to better understand and meet the needs of patients with intellectual and developmental disabilities. He also touches upon the common misconceptions and gaps in the current healthcare system that can lead to disparities in care for these individuals. Listeners will gain valuable knowledge about the intersection of healthcare and disability, as well as the efforts being made to enhance medical care and accessibility for all. Dr. Escude's expertise and dedication to this cause make for an enlightening and inspiring conversation, offering both professional insights and personal anecdotes that underscore the significance of his work in this field.
In this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Dr. Seth Keller, a neurologist specializing in the care of adults with neurological complications, including those with intellectual and developmental disabilities (IDD). The episode, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into Dr. Keller's journey in the field, his insights on health equity, and his extensive work on dementia, particularly in individuals with Down Syndrome.
Key Topics Covered
Dr. Keller's Background and Evolution in IDD Care: Dr. Keller shares his transition from a general adult neurologist to an expert in complex epileptic care in developmental disabilities. He reflects on his early years in institutionalized care and his growing awareness of the social and medical needs of individuals with IDD.
Healthcare Disparities and Advocacy: The conversation highlights the unfortunate reality of healthcare disparities faced by people with IDD. Dr. Keller discusses the challenges in training healthcare providers to understand and effectively treat individuals with IDD, emphasizing the importance of behavior as a form of communication.
Dementia in Down Syndrome: Dr. Keller provides a detailed explanation of the increased risk of early-onset Alzheimer's disease in individuals with Down Syndrome. He discusses the importance of understanding baseline functioning to diagnose dementia and the development of tools to track changes in daily living activities. The National Task Group on Intellectual Disabilities and
Dementia Practices (NTG): As co-president of the NTG, Dr. Keller talks about the organization's role in addressing aging-related issues in people with IDD. He explains the use of tools like the Early Detection Screen for Dementia (EDSD) to identify changes in individuals with IDD.
Experience in Ukraine: Dr. Keller shares his poignant experiences in Ukraine, where he observed the state of institutionalized care for individuals with IDD. He discusses the cultural and systemic challenges in these settings and the impact of the ongoing conflict on people with disabilities.
Future Directions in Neurology and Dementia: The episode concludes with a teaser for a future discussion on the latest developments in neurology and dementia, particularly relating to Down Syndrome.
In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul welcome guests Michael Nuzum and Melissa Frizado. The podcast focuses on discussing the ongoing lives and challenges faced by people with developmental disabilities, aiming to spark positive change in the field while having fun.
Michael and Melissa share their experiences at the Synergy conference, highlighting their favorite parts, including discussions on mental well-being and internet safety. They emphasize the importance of positive thinking and being cautious on social media platforms to avoid hackers and other online threats.
The conversation shifts to how Michael and Melissa became friends through their involvement in Action Club and Special Olympics. Michael expresses his passion for flag football and his excitement about participating in the State competition. Melissa shares her love for bowling, revealing her impressive high score.
Both guests are actively involved in Action Club, with Michael serving as the secretary. They discuss their commitment to helping people, especially those with disabilities, and their efforts to spread awareness about the club. They also touch upon their enjoyment of the dance event at the conference, discussing their favorite music genres - Christian music for Michael and country music for Melissa.
The episode concludes with the hosts thanking Michael and Melissa for their insightful and inspiring conversation, wishing Michael good luck in his upcoming State competition. Key Topics: Experiences at the Synergy conference Importance of mental well-being and internet safety Involvement in Action Club and Special Olympics Personal interests and music preferences Advocacy for people with developmental disabilities
In this insightful episode of "IDD Health Matters," host Dr. Craig Escude engages in a profound conversation with Suzanne Meiklejohn, a seasoned professional in the field of intellectual and developmental disabilities (IDD). With over 38 years of experience, Suzanne shares her journey from starting as a Direct Support Professional to her current role overseeing operations at Schenectady ARC.
Key Discussions:
Career Journey: Suzanne recounts her unexpected entry into the field of IDD support and services, highlighting her progression through various roles and the deep fulfillment she found in her work.
Impact of COVID-19: The episode delves into the significant challenges faced by individuals with IDD during the pandemic, including setbacks in services, skill regression, and social isolation.
Health Equity and Wellness: The conversation shifts to the critical topic of health equity and wellness within the IDD community. Suzanne discusses the unique health care services provided by Schenectady ARC, emphasizing the importance of specialized care for individuals with IDD. Personal Stories: Suzanne shares moving stories from her career, illustrating the profound impact of support services on individuals with IDD and their families.
Challenges in the Field: The discussion addresses the financial and recognition challenges faced by direct support professionals, advocating for greater societal appreciation and support for their vital work.
Call to Action: Suzanne encourages listeners to explore the field of IDD, emphasizing the diverse opportunities for employment, volunteering, and personal growth.
Conclusion: This episode of "IDD Health Matters" offers a deep dive into the world of intellectual and developmental disabilities, shedding light on the challenges, triumphs, and profound human connections that define this field. Dr. Craig Escude and Suzanne Meiklejohn provide listeners with a compelling narrative that is both educational and inspiring, urging a greater understanding and involvement in supporting the IDD community.
In this inspiring episode of the Friends for Life Podcast, hosts Tony and Paul welcome Kim Paxton and Dennis Miller, two remarkable advocates from Wood County, Northwest Ohio. The conversation, recorded at the Synergy conference, delves into their experiences and contributions in the field of developmental disabilities.
Kim, the president of People First in Wood County, shares her passion for empowering individuals to use their voice, especially in advocating for disability rights. She talks about her role at Wood Lane School, where she assists students with severe disabilities in expressing themselves. Kim's commitment to advocacy is evident as she encourages everyone to share how they've used their voice in their weekly meetings.
Dennis, sporting an "I Dance" shirt, brings a vibrant energy to the episode, discussing his love for dancing and his involvement in community activities. Working at the University, Dennis finds joy in his job and emphasizes the importance of enjoying what you do.
Both guests are also part of the Action Club, where they engage in community service, such as volunteering at senior centers and supporting local initiatives. Their stories highlight the impact of advocacy and community involvement, inspiring listeners to use their voice and make a difference.
The episode also touches on the importance of handling stress and trauma, as shared in one of the Synergy conference sessions. Additionally, the anticipation of hearing from a WWE wrestler at the conference adds an exciting element to their experience.
This episode is not just about the challenges faced by individuals with developmental disabilities but also celebrates the joy, advocacy, and community involvement that enriches their lives. Kim and Dennis' stories are a testament to the power of voice and action in making positive changes in the world.
Key Topics:
Advocacy and leadership in People First
The joy and community involvement in dancing
Volunteering and community service in Action Club
Personal experiences and insights from the Synergy conference
#IDD #disability
In this insightful episode of IDD Health Matters, host Dr. Craig Escude engages in a deep and meaningful conversation with Dr. Benjamin Margolis, MD, a colleague and expert in neurobehavioral care for individuals with intellectual and developmental disabilities (IDD). Dr. Margolis, who also specializes in psychiatry and neurology, shares his journey into the field of IDD, highlighting the importance of understanding and addressing the unique health needs of this population. Throughout the episode, Dr. Margolis emphasizes the critical role of communication in providing effective care. He discusses the challenges and rewards of working in this specialized area, including the complexities of behavioral health needs in individuals with IDD. Dr. Margolis also touches on his experiences with movement disorders, neurodegenerative disorders, and post-TBI care, underscoring the diverse needs of his patients. The conversation further delves into the systemic issues in healthcare for individuals with IDD, with both Dr. Escude and Dr. Margolis sharing their experiences and insights on improving health equity and respect for this community. They discuss the American Academy of Developmental Medicine and Dentistry (AADMD) and its efforts to enhance clinical competency and provide comprehensive care. Listeners will gain a deeper understanding of the nuances of neurobehavioral care in the IDD community, the importance of multidisciplinary approaches, and the value of organizations like AADMD in fostering collaboration and advocacy in this field. This episode is a must-listen for healthcare professionals, caregivers, and anyone interested in the intersection of neurobehavioral health and intellectual and developmental disabilities. Join Dr. Escude and Dr. Margolis for a thought-provoking discussion that sheds light on the challenges, innovations, and heartfelt dedication in the world of IDD health care.
In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul sit down with Heather Campbell at the Synergy event. Heather, with her extensive experience in nonprofit work and her current role in marketing and communications, brings a unique perspective to the table. The episode kicks off with a discussion about the innovative "graffiti wall" at Synergy, a creative outlet for attendees to express their experiences and thoughts. Heather shares her journey in the nonprofit sector, emphasizing the importance of creating memorable experiences. She delves into the challenges and triumphs of marketing for such events, highlighting the significance of capturing the essence of Synergy beyond traditional media. The conversation also touches upon the inclusivity and accessibility of the event, with Heather praising the accommodating nature of the Kalahari staff and the venue's suitability for diverse needs. The podcast takes a deeper dive into the behind-the-scenes aspects of organizing Synergy, including the need for sponsorships, signage, and volunteer support. Heather openly discusses the future plans for Synergy, expressing a desire for mid-year reunions and expanded outreach. The episode concludes with Heather encouraging listeners to engage with Synergy through various platforms and to consider contributing to its growth. Listeners are treated to an insightful and heartfelt conversation that not only highlights the logistics of organizing such an event but also the human stories and connections that make it worthwhile.
In this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes a remarkable guest, BJ Stasio, an advocate renowned for his work in the field of intellectual and developmental disabilities (IDD). BJ's journey is not just inspiring but also a beacon of hope and empowerment for many in the IDD community.
Throughout the episode, BJ shares his personal experiences and challenges, shedding light on the unique healthcare needs and barriers faced by individuals with IDD. His stories are a powerful testament to the importance of self-advocacy and the need for inclusive healthcare practices.
Dr. Escude, with his deep expertise in IDD healthcare, engages in a thought-provoking dialogue with BJ, exploring topics such as:
The importance of self-advocacy in healthcare settings.
Navigating the healthcare system as an individual with IDD.
Overcoming communication barriers between patients with IDD and healthcare providers.
The role of policy and community support in improving healthcare for the IDD population.
This episode is not just informative but also a call to action for healthcare professionals, caregivers, and policymakers to foster a more inclusive and understanding healthcare environment for those with IDD.
Tune in to this episode of IDD Health Matters for an insightful and heartening conversation that highlights the strength and resilience of the IDD community, and the ongoing efforts to ensure equitable healthcare for all.
In this powerful episode of the Friends for Life Podcast, dedicated to exploring and advocating for individuals with Intellectual and Developmental Disabilities (IDD), we are honored to welcome Mel and Sheevah Feizkhah. Both guests bring a wealth of experience and passion to the table, discussing the intersection of creativity, storytelling, and IDD advocacy. Mel, with her background in the arts, shares how artistic expression can be a vital tool for empowerment and communication for individuals with IDD. She talks about her work in creating inclusive art programs and workshops that cater to diverse abilities, highlighting the transformative power of creativity in enhancing the lives of people with IDD. Sheevah Feizkhah, a storyteller and advocate, delves into the importance of narrative in shaping public perception and policy regarding IDD. She discusses her efforts in bringing to light the stories of individuals and families affected by IDD, aiming to foster a deeper understanding and empathy in society. Sheevah's work emphasizes the need for inclusive storytelling that represents the true diversity and richness of experiences within the IDD community. Together, Mel and Sheevah explore how art and storytelling are not just forms of expression but also powerful tools for advocacy and change. They discuss the challenges faced by the IDD community, the importance of inclusive practices, and their vision for a more understanding and supportive society. This episode of the Friends for Life Podcast is a must-listen for anyone interested in learning more about the impact of creativity and storytelling in the world of IDD advocacy. Whether you are directly involved in the IDD community, an ally, or simply seeking to broaden your understanding, Mel and Sheevah's insights and experiences are both enlightening and inspiring. Join us as we delve into a conversation that celebrates diversity, champions inclusion, and underscores the importance of giving a voice to all members of our community.
Join us in this compelling episode of "Disability, Support, and Parenting," where host Sarah Davies welcomes John Ross Comes, a remarkable individual living with a disability. In a candid discussion, John Ross shares his experiences and insights, offering a unique perspective that is enlightening for parents, caregivers, and anyone interested in understanding the nuances of disability. This episode delves into various aspects of living with a disability, as John Ross Comes opens up about his life's journey. His experiences provide valuable lessons and viewpoints, particularly relevant to those involved in parenting and supporting individuals with disabilities.
Key topics covered in this episode include:
Life with a Disability: John Ross Comes talks about his personal experiences, challenges, and the common misconceptions about living with a disability.
Support Systems and Empathy: The conversation explores the critical role of empathy and robust support systems in improving life quality for those with disabilities.
Guidance for Parents: Although not a parent himself, John Ross provides thoughtful advice for parents raising children with disabilities, focusing on the importance of patience, understanding, and resilience.
Inclusion and Community: Sarah and John Ross discuss the significance of community support in promoting inclusivity and how societal views on disability are changing.
Overcoming Obstacles: John Ross reflects on his journey of personal growth, discussing how he has navigated and overcome various challenges.
This episode is more than a discussion about the difficulties associated with disabilities; it's a testament to the strength, courage, and optimism that can flourish in challenging circumstances. Whether you're directly involved in the disability community, a parent, or simply someone seeking a deeper understanding of these experiences, this conversation with John Ross Comes is sure to be enlightening and inspiring.
In this enlightening episode of IDD Health Matters, Dr. Craig Escude engages in a thought-provoking conversation with two distinguished guests, Alexandra Bonardi and Lindsay Dubois. The episode delves into the intricacies of health, wellness, and health equity for individuals with intellectual and developmental disabilities.
Key Discussions: Lindsay
Dubois' Mission: Lindsay emphasizes the importance of conducting meaningful research that directly benefits people with disabilities. She advocates for research that leads to actionable insights, aiming to transform systems for better accessibility and understanding.
Alexandra Bonardi's Focus: Alexandra discusses her commitment to improving service systems for people with disabilities. She highlights her work on various projects, including the National Center on Advancing Person-Centered Practices and Systems, which aims to develop systems centered around the needs and preferences of individuals.
National Core Indicators (NCI): Alexandra explains the NCI, a program designed to collect data directly from individuals receiving support services. This initiative focuses on understanding their experiences and outcomes to enhance service systems.
Human Services Research Institute (HSRI): Both guests discuss their work with HSRI, an organization dedicated to improving human service systems. They explore how HSRI uses data to inform and improve support for people with disabilities, including those with behavioral health needs.
Personal Journeys: Alexandra and Lindsay share their personal paths that led them to their current roles, highlighting their experiences and motivations in working within the field of intellectual and developmental disabilities.
Advice and Insights: The episode concludes with each guest sharing three pieces of advice or insights they believe can positively impact the world for people with intellectual and developmental disabilities.
Episode Highlights: The significance of person-centered approaches in service systems. The challenges and opportunities in disability research and service improvement. The importance of communication and understanding in providing effective support. Insights into the evolution of service systems and the role of data in driving change.
Dr. Escude wraps up the episode by expressing gratitude for the guests' contributions and their ongoing efforts to enhance the lives of individuals with intellectual and developmental disabilities. The episode not only sheds light on the complexities of the field but also inspires hope and action towards a more inclusive and understanding society.
In this engaging episode of the Friends for Life Podcast, hosts Tony and Paul welcome Maria McWhirt from Mpower Me. The discussion revolves around the innovative use of technology in assisting individuals with developmental disabilities and how Mpower Me is making strides in this field.
Key Highlights:
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Introduction to Mpower Me:
- Maria discusses the mission of Mpower Me, emphasizing its focus on using technology to expand resources and support networks for individuals with developmental disabilities.
- She highlights the importance of enabling these individuals to use technology for everyday tasks like online banking and grocery shopping.
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Innovations in Assistive Technology:
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Maria shares recent advancements in Mpower Me's technology, including the ability for users to build their own apps and checklists for daily activities.
- She explains how their technology empowers users to control their own schedules and seek support when needed, using examples like grocery shopping guides and remote support.
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AI and Privacy Enhancements:
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The podcast delves into the new features of Mpower Me's technology, such as AI-assisted messaging that filters out triggers and inappropriate content.
- Maria discusses the importance of responsible AI, ensuring it aids individuals in a safe and constructive manner.
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Customization and User Empowerment:
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The conversation touches on how Mpower Me's technology is customizable to individual needs, from daily routines to emergency situations.
- Maria emphasizes the role of technology in enhancing independence and decision-making for individuals with disabilities.
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Real-Life Applications and Challenges:
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The hosts and Maria discuss practical applications of the technology, including sensitive topics like sexual education and personal care.
- They explore the challenges and ethical considerations in implementing AI and technology in the field of developmental disabilities.
Conclusion: The episode concludes with Maria reiterating the contact information for Mpower Me and emphasizing their commitment to empowering individuals through technology. The hosts express their admiration for the continuous innovation and impact of Mpower Me's work.
The podcast "IDD Health Matters," hosted by Dr. Craig Escude, features guest Maulik Trivedi. In this episode, the discussion revolves around important health-related topics concerning individuals with intellectual and developmental disabilities (IDD). Dr. Escude, an expert in the field, leads an insightful conversation with Maulik Trivedi, who brings his unique perspectives and experiences to the table. Throughout the episode, they delve into various aspects of healthcare for people with IDD, addressing challenges, innovations, and best practices. The conversation touches on the importance of personalized care, the role of technology in enhancing healthcare delivery, and strategies for improving the overall health and wellbeing of individuals with IDD. Listeners can expect an engaging and informative dialogue, filled with practical advice, thought-provoking ideas, and a deep understanding of the complexities involved in healthcare for the IDD community. This episode is a must-listen for healthcare professionals, caregivers, and anyone interested in the advancement of health services for people with intellectual and developmental disabilities.
In this insightful episode of the Friends for Life podcast, hosts Tony and Paul engage in a meaningful conversation with Dana Charlton, the executive director of the Ohio Self-Determination Association (OSDA). The discussion centers around advocacy, policy, and empowerment in the field of developmental disabilities.
Key Points Discussed:
Dana Charlton's Career Path: Dana shares her extensive experience, tracing her career from her start in 1973 with the state of Ohio to her current role at OSDA, highlighting her contributions to positive change in the field.
Project STIR Training: A significant portion of the conversation is dedicated to Project STIR (Steps Toward Independence and Responsibility), a leadership training initiative for people with disabilities. Dana explains the program's impact on self-advocacy, problem-solving, and essential life skills.
The Mission of OSDA: Dana delves into the mission and activities of OSDA, emphasizing its role as a policy advocacy organization that strives to give more control and choice to people with disabilities and their families.
Self-Directed Services Concept: The podcast touches upon the concept of self-directed services, where individuals with disabilities can take charge of hiring and managing their support staff. Experiencing the
Synergy Conference: The hosts and Dana discuss the inclusive and barrier-free environment of the Synergy Conference, highlighting its significance in the developmental disabilities community.
Personal Stories and the Power of Connections: Throughout the episode, personal anecdotes are shared, reflecting on the impact of connections and experiences in shaping careers and perspectives in the developmental disabilities sector.
Clarifying Advocacy and Lobbying: Dana addresses misconceptions around lobbying, explaining how it involves advocating for better rights and support for people with disabilities in their context.
Conclusion: This episode offers a comprehensive look into the challenges and achievements in the field of developmental disabilities, with Dana Charlton providing valuable insights and experiences. It's an essential listen for anyone interested in understanding and supporting the empowerment of individuals with disabilities.
In this enlightening episode of the Friends for Life podcast, hosts Tony and Paul engage in a deep and insightful conversation with Lisa, a representative from RHDD. Celebrating its 47th anniversary, RHDD is an organization dedicated to providing residential care and a range of services for individuals with developmental disabilities.
Key Discussion Points:
RHDD's Mission and Evolution: The episode kicks off with a look at RHDD's history, starting from its inception by families seeking better residential options for their adult children with intellectual disabilities. Lisa shares the organization's journey from opening its first group home to expanding services in response to the Medicaid waiver program.
Comprehensive Services: RHDD's commitment to offering a wide array of services is highlighted. They assist with housing, employment, transportation, home modifications, adaptive equipment, and remote services, aiming to foster independent living in the community.
Personal Journey into the Field: Lisa shares her personal story of how she entered the field of developmental disabilities, beginning with a chance encounter at a grocery store. This heartwarming story underscores the impact of personal connections and the importance of finding one's calling.
Advocacy and Legislative Involvement: The conversation shifts to Lisa's role in advocacy and her involvement in legislative changes and budget cycles through her work with Opera, a board representing provider agencies in Ohio.
Challenges and Progress in the Field: The episode also touches on the challenges of working with federal government regulations and the progress made in societal perceptions and treatment of people with developmental disabilities.
Embracing Technology and Future Plans: The discussion delves into the importance of integrating technology in the field and RHDD's plans to develop new ways to connect individuals they serve with various stakeholders using digital platforms.
Conclusion: This episode of the Friends for Life podcast is a must-listen for anyone interested in the field of developmental disabilities. It offers a blend of personal stories, insights into organizational growth, and a look at the future of service provision in this vital sector.
In this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Ron Wakefield, the State Director for Developmental Disability Services in Georgia. Broadcasting from the NASDDDS (National Association of State Directors of Developmental Disability Services) conference, this conversation delves into the complexities and triumphs of providing services for individuals with intellectual and developmental disabilities.
Key Highlights:
Role and Responsibilities: Ron Wakefield discusses his role as the State Director, emphasizing the importance of stakeholder engagement, policy development, and ensuring access to necessary services for about 14,000 individuals under two waivers in Georgia. Focus on Health and Wellness: The episode highlights Georgia's unique approach to health and wellness for individuals with disabilities, including the establishment of a dedicated office to oversee and develop policies across the state.
Journey into the Field: Ron shares his personal journey from Jamaica to the United States, initially aspiring to work in hotel management, and how a visit to his mother working at an institution led him to a fulfilling career in supporting individuals with disabilities.
Advocacy and Employment: Ron stresses the importance of overcoming fear, creating employment opportunities, and fostering partnerships for the betterment of services for individuals with disabilities. He shares powerful stories about the impact of employment on the lives of individuals with disabilities.
Collaboration and Listening: Emphasizing the power of partnership and collaboration, Ron acknowledges the collective efforts of various stakeholders, including self-advocates, families, and providers, in advancing the field.
Conclusion: This episode offers a deep dive into the world of developmental disability services, showcasing Ron Wakefield's passion and dedication to the field. His insights provide valuable lessons on advocacy, inclusion, and the transformative power of employment and community support for individuals with intellectual and developmental disabilities.
In this inspiring episode of IDD Health Matters, Dr. Craig Escude engages in a profound conversation with Justin Steinberg, a research assistant at Stanford University, a board member of the American Academy of Developmental Medicine and Dentistry (AADMD), and a Special Olympics athlete and leader. At 33, Justin's journey is a testament to resilience and multifaceted talent.
Key Highlights: Justin's Background: Justin shares his journey, highlighting his roles as a research assistant, a self-advocate representative, a percussionist in a symphonic band, and his involvement in Special Olympics. Despite being on the autism spectrum and visually impaired, Justin has achieved remarkable academic success, including a master's degree in special education. Advocacy and Public Speaking: Justin discusses his role as a Special Olympics Global Messenger, advocating for inclusion and fundraising. His advocacy extends to educating medical students on caring for people with intellectual disabilities and promoting respectful language. Health and Wellness: Justin opens up about his experiences with healthcare, emphasizing the importance of understanding and accommodating differing abilities. He shares insights into the challenges and benefits of telehealth, particularly for mental health services. Challenges in Transportation: A significant focus is placed on the challenges faced by individuals with disabilities in accessing reliable transportation, a crucial aspect of healthcare and social participation. Empowerment and Advice: Justin encourages listeners not to let labels define them and to find their niche in the world. He emphasizes treating people with disabilities as individuals first and understanding their unique needs and communication styles.
Conclusion: This episode is a blend of personal narrative, advocacy, and practical advice, offering listeners a deeper understanding of the experiences and capabilities of individuals with intellectual and developmental disabilities. Justin's story is not just one of overcoming challenges but also of embracing and excelling in his diverse abilities.
Welcome to another exciting episode of the Friends for Life Podcast! Join hosts Tony and Paul as they dive into a lively discussion with Cory, a returning guest known for his adventurous spirit and involvement in the community.
🎙️ In This Episode: Cedar Point Adventures: Cory Wade shares his experiences working at Cedar Point during the Halloween season, including his role as 'Pumpkin Head' and the thrills of scaring visitors. Behind the Scenes: Get a glimpse into the life of a scare actor, from costumes to character rules, and the unique challenges they face. Humanity and Kindness: Cory talks about his acts of kindness and the importance of making a positive impact on others' lives. Dungeons & Dragons: A dive into the world of D&D and exploring new hobbies and interests. Lifestyle Discussions: From Starbucks favorites to pumpkin carving, join us for a casual and fun conversation covering a wide range of topics.
🌟 Special Guest: Cory Wade- A multi-talented individual with a passion for community service and bringing joy to others.
📅 Stay Tuned: Don't forget to subscribe for more episodes where we discuss life, community, and making a positive impact. Share your thoughts in the comments below!
🎧 Listen to Us: Available on all major podcast platforms.
In this heartfelt and insightful episode of "DSP: Disability, Support and Parenting," host Sarah Davies and guest Lisa Comes delve into the complexities and joys of parenting, with a special focus on raising children with disabilities. They share their personal experiences and the lessons they've learned along the way, offering a blend of humor, honesty, and wisdom. The discussion covers a range of topics, including the value of including children with disabilities in regular activities like karate or swim classes, emphasizing the benefits of socialization and seeing others face similar challenges. They also explore the role of schools in children's lives, advocating for the value of experiences outside the traditional educational system, such as family vacations and advocacy events. Lisa and Sarah share their parenting philosophies, highlighting the significance of listening to their children, validating their feelings, and fostering open communication. They challenge conventional views on parenting, discussing how to balance respecting children's opinions while guiding them as a parent. The conversation touches on building resilience in children, recognizing their individual strengths and weaknesses, and avoiding overemphasis on diagnoses or labels. The hosts offer practical advice on parenting, from using sticker charts for behavior management to understanding that as a parent, it's okay to change your mind based on new information. Lisa and Sarah conclude the episode with a reminder that parenting is a journey of progress, not perfection. They encourage parents to love their children the best they can, understanding that there's no one-size-fits-all approach to parenting. Listen to this episode if you're a parent seeking guidance, inspiration, or just a sense of camaraderie in the often challenging but rewarding journey of raising children, especially those with unique needs. Note: This description is based on the transcribed content of the YouTube video provided. The actual video should be referred to for complete details and context.
Dr. Craig Escude introduces the podcast "IDD Health Matters," focusing on health, wellness, and health equity for people with intellectual and developmental disabilities (IDD). Melissa DiSipio, the guest for the episode, is welcomed. Melissa DiSipio is the director of Philadelphia Coordinated Healthcare (PCHC), a unique program in Pennsylvania. PCHC, part of eight Healthcare Quality Units in the state, was established over 30 years ago to bridge the gap between providers, families, and individuals needing access to community healthcare professionals. HICUs provide indirect services, including education, training (both in-person and online), consultation, record reviews, and assistance in transitions for individuals with IDD. They address complex medical conditions like dysphasia, dementia, diabetes, and behavioral health issues. PCHC offers a wide range of training topics, including physical health (diabetes, aging, dysphasia, seizures, constipation, sepsis, dehydration) and behavioral health (trauma training, psychotropic medication). Training is available for provider agencies, nurses, staff, and individuals with IDD. Emphasis on low literacy and plain language training for better understanding among individuals with IDD and their caregivers. PCHC engages in outreach to hospitals and clinicians to increase awareness and education about IDD. Collaboration with mental health clinicians and organizations for training and support. Melissa DiSipio discusses her involvement with AAIDD, including her progression to the role of president-elect. Emphasizes the importance of networking, learning, and mentorship within the organization. PCHC is involved in a Statewide initiative to assist children with complex medical conditions transition from long-term care facilities to community settings. Focus on increasing support and training for children receiving skilled nursing care. Emphasis on dental health and ensuring access to quality dental care for individuals with IDD. Melissa DiSipio shares three key points for improving health and wellness in individuals with IDD: outreach to medical professionals, student mentorship and education, and empowering individuals with IDD to take control of their healthcare. Dr. Escude thanks Melissa DiSipio for her contributions and work in the field. Website Mentioned: www.pchc.org - For accessing documents, online training, and virtual trainings related to health care for individuals with IDD. The podcast episode with Dr. Craig Escude and Melissa DiSipio focuses on the critical role of healthcare quality units in supporting individuals with intellectual and developmental disabilities, emphasizing the importance of education, training, and community collaboration.
🎙️ Welcome to a special episode of the Friends for Life Podcast! Join hosts Tony and Paul as they delve into the vibrant world of the Synergy Conference, a unique gathering that celebrates and empowers individuals with developmental disabilities. 🌟 About This Episode: In this episode, we're excited to bring you an inside look at the Synergy Conference. Our hosts, Tony and Paul, engage in insightful conversations with key figures in the community, exploring the conference's impact, its inclusive atmosphere, and the diverse range of topics covered. 🔍 Highlights: The Essence of Synergy: Discover why Synergy is more than just a conference – it's an experience that keeps attendees returning year after year. Inclusive Discussions: Learn about the wide range of topics, including those once considered taboo, that are openly discussed at Synergy. Community and Growth: Hear from attendees about their personal growth and the sense of community fostered at the event. Vendor Insights: Gain insights into the expanding role of vendors and the unique networking opportunities available at Synergy. Venue Selection: Find out how the venue, like the beautiful Kalahari, is chosen to accommodate the large number of attendees and facilitate a variety of activities. Future of Synergy: Explore the growth trajectory of the conference and its potential expansion beyond Ohio. 🤝 Join the Conversation: We invite you to be a part of this enlightening discussion. Whether you're a professional in the field, someone with a developmental disability, a family member, or just interested in learning more, this episode offers valuable perspectives. 👍 Like and Subscribe: Enjoyed this episode? Don't forget to like, subscribe, and share! Your support helps us continue to spark positive change and bring important conversations to the forefront.
Welcome to another enlightening episode of IDD Health Matters, hosted by Dr. Craig Escudé, MD, FAAFP, FAADM. In this episode, we are honored to have Dr. Deven Unadkat, an Emergency Physician with 19 years of experience, specializing in healthcare for individuals with intellectual and developmental disabilities (IDD).
Join us as Dr. Unadkat shares his journey into the world of IDD healthcare. He recounts his experiences in an emergency department near an IRA in New Jersey, where he noticed a pattern of patients with IDD frequently visiting for minor issues. This observation led him to explore telehealth solutions, aiming to provide better, more accessible care for these individuals.
Discover how Dr. Unadkat and his colleagues pioneered a telemedicine service, partnering with provider agencies before the widespread adoption of such technology. Learn about the challenges and successes of implementing telehealth, particularly in the context of health equity for people with IDD.
This episode delves into the significant impact of telehealth services on quality of life, healthcare costs, and the overall healthcare experience for people with IDD. We discuss the importance of primary care physicians, the unique design of patient portals for this demographic, and the crucial role of communication between healthcare providers.
Dr. Unadkat emphasizes the significance of persistence, advocacy, and education in improving health equity for individuals with IDD. He shares his wisdom on how these elements can foster a more inclusive and equitable healthcare system. For more insights and to learn about the innovative services offered by StationMD, visit stationmd.com.
Don't forget to subscribe for more episodes on health, wellness, and health equity in the IDD community. Your support helps us continue these important conversations. Thanks for watching!
Join Tony and Paul on the Friends for Life Podcast as they dive into the inspiring world of art created by adults with disabilities. In this episode, we're thrilled to have Dustin and Jordan from an art studio in Highland County, Ohio, where they empower individuals with disabilities to express themselves through various art forms, from woodworking to papier-mâché. Jordan details the studio's unique process, where artists with disabilities create designs that are then transformed into beautiful wooden wall plaques. Dustin, an artist at the studio, shares his journey and his unique, cartoon-inspired style. They discuss the creation of diverse art pieces, including personalized commissions, and the joy of bringing these creations to festivals and sales. The episode also explores the history and inspiration behind their art studio, highlighting the transition from a gun store to a vibrant art space. The duo shares insights into the studio's upcycling projects and their commitment to originality in every piece. Tony and Paul delve into the broader implications of art in the community, discussing the importance of advocacy, individual expression, and the impact of art on personal growth. The podcast ends with a look at the future plans for the studio, including the development of an online presence and expanding the studio into a gallery. For more stories of inspiration and creativity, and to support the incredible work of these artists, visit Assured Health Services at assuredhealthohio.com. Learn more about the art studio by following them on Facebook and Instagram @UpAndBeyondArt, and stay tuned for their upcoming website.
Join Dr. Craig Escude in this inspiring episode of the IDD Health Matters podcast, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado. Our special guest, Amanda Harnnauth, a poet, Special Olympics athlete, and an advocate for people with disabilities, shares her journey and insights. Amanda talks about her experiences in Special Olympics, her advocacy work, and how she uses poetry as a tool for self-expression and empowerment. She also discusses the importance of kindness, respect, and inclusion in healthcare and society, especially for individuals with intellectual and developmental disabilities. Tune in to hear Amanda's powerful story and her moving poetry, showcasing her unique perspective and unyielding spirit.
🌟 In this inspiring episode of Friends for Life, we sit down with the remarkable Kristi Schroder. Dive into Kristi's unique story as she shares her experiences, challenges, and triumphs. Whether you're looking for motivation, insight, or just a fascinating story, this episode is a must-watch!
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👍 Like, comment, and share this video to support our journey in bringing you inspiring content. #KristiSchroder
🎙️ Episode 1: "The Power of Community and Personal Growth" In this episode, Sarah Davies and Tony Stuart dive deep into the essence of community, the challenges of personal growth, and the importance of vulnerability in leadership. Join us as we share candid moments, personal stories, and insights on the dynamics of teamwork and the value of individual experiences.
🔗 Timestamps: [00:00] - Introduction: The Essence of Community [05:00] - The Challenges of Personal Growth [15:00] - Vulnerability in Leadership [25:00] - The Dynamics of Teamwork [35:00] - Valuing Individual Experiences [45:00] - The Role of Spirituality and Faith [55:00] - Conclusion: Looking Ahead
📌 Key Takeaways: The importance of being genuine and open in a community. How personal experiences shape our perspectives and drive. The balance between personal ambition and collective growth.
🔔 Subscribe for weekly episodes and make sure to hit the notification bell to stay updated!
Join Dr. Craig Escude as he dives deep into the world of health, wellness, and health equity for individuals with intellectual and developmental disabilities. In this episode, we're thrilled to have Craig Sever, a consultant pharmacist who specializes in the IDD population. From chart reviews to medication interactions, Craig sheds light on the unique challenges and rewards of working in this specialized field.
🔍 Key Highlights: The importance of understanding non-verbal communication in the ID population. Real-life examples of how medication can impact individuals differently. The challenge of "diagnostic overshadowing" and the need for individualized care. The evolving landscape of aging within the ID community. The critical need for funding in areas like sedation dentistry for the ID population.
🔗 Connect with Us: Subscribe to ID Health Matters for more insightful discussions on health and wellness. Join our community and share your thoughts in the comments below.
📌 Remember, every individual deserves personalized care and understanding. Let's make a difference together!
Welcome to another episode of the Friends for Life podcast with your hosts, Tony and Paul! Dive deep into discussions about the lives and challenges faced by individuals with developmental disabilities. In this episode, we touch on the importance of sparking positive change in the field and ensuring individuals achieve their set goals. We also delve into the role of Assured Health Services in providing residential care and ADS services. Special guests, Kathy and Lisa, join the conversation, sharing their insights and experiences. From haunted hotel rooms to the significance of the Roman Empire, no topic is off-limits! Plus, we address the often-overlooked issue of addiction within the DD community and explore potential solutions. Don't miss out on this enlightening and engaging conversation!
🔔 Subscribe to Friends for Life for more episodes and join our mission to make a difference.
👍 Like, share, and comment to show your support.
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In the 1990s, Dr. Steve Perlman and Eunice Kennedy Shriver met in Washington, D.C. to discuss the lack of access to health care for people with intellectual disabilities, who were often denied treatment by doctors and health-care systems. From those initial talks, Dr. Perlman created Special Olympics Special Smiles to provide free dental screenings for Special Olympics athletes. Today, this is one of eight disciplines offered by Special Olympics Healthy Athletes, a program that offers free health screenings to Special Olympics athletes worldwide. Meet Dr. Perlman and the athletes who are thriving today, thanks to this life-saving intervention.
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Join Tony and Paul on the Friends for Life podcast as they dive deep into the world of remote supports, technology, and the benefits it brings to individuals with developmental disabilities. In this episode, they chat with Mark from Safe and Home about the evolution of tech in the care sector, the rise of AI, and how it's reshaping the way we think about support. Discover real-world success stories, the importance of individual-centric solutions, and the future of tech in ensuring independence. Whether you're curious about the latest in assistive technology or seeking insights into the world of remote care, this episode is a must-listen. #friendsforlife #RemoteSupports #SafeAndHome #TechInCare
Welcome to IDD Health Matters with Dr. Craig Escude! In this episode, we dive deep into the world of healthcare for individuals with intellectual and developmental disabilities. Our special guest, Maria Saladino, a registered nurse with over 20 years of experience, shares her transformative journey from maternal nursing to becoming a passionate advocate for those with developmental disabilities.
Discover: Maria's "aha" moment that reshaped her perspective on patient care. The challenges and rewards of working in this specialized field. The importance of advocacy, education, and resources in delivering quality care. Real-life stories that highlight the genuine connections made in this profession. Whether you're a healthcare professional, a caregiver, or someone interested in health equity, this episode offers valuable insights and heartwarming stories that will inspire and inform. Join us as we explore the importance of understanding, compassion, and dedication in the world of IDD healthcare.
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Join Tony, Paul, Audrey, and Nick in this exciting episode of the Friends for Life podcast as they dive deep into the world of improvisation with the Improvaneers! Discover how improvisation can build essential life skills, especially for those with special needs. From storytelling games to quick-thinking challenges, experience the joy and creativity of improv. Plus, get a sneak peek into their upcoming live show! Don't miss out on this blend of fun, learning, and inspiration.
🎟️ Upcoming Show: December 10th, 7:30-9:30 PM
👍 Like, Share, and Comment to support our community and spread the joy of improvisation!
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Join Dr. Craig Escude on IDD Health Matters as he delves into the world of health, wellness, and health equity for individuals with intellectual and developmental disabilities. In this episode, we welcome Justin Amoyal, CEO of Impruvon Health, who shares his personal journey into the IDD sector and how his company is revolutionizing medication management. Discover how Impruvon Health's innovative solutions, driven by cutting-edge technology and user-centric design, are addressing challenges faced by care providers and enhancing the lives of those they serve. Dive into the conversation about the importance of person-centered approaches, the future of health tech in the IDD sector, and much more. Don't miss this insightful discussion!
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📸 Dive into the world of disability advocacy through the lens of a photographer! 📸 Join Tony and Paul from the Friends for Life Podcast as they engage in a heartfelt conversation with Jordan Young of Toledo Community Photography, exploring the intersection of photography and disability advocacy. Jordan shares his journey from discovering his passion for photography to utilizing it as a medium to celebrate, empower, and authentically represent individuals with developmental disabilities. 👥 In this episode, you'll discover: The inspiration behind Jordan's venture into photography and disability studies. The significance of capturing genuine, dignified, and honest moments in the lives of people with disabilities. Jordan’s personal experiences and stories related to his twin sister with autism. The importance of avoiding 'inspiration porn' and focusing on real, unfiltered stories. How photography can be a powerful tool to spark positive change and awareness in the disability community. 📢 Let's amplify the voices and stories of individuals with disabilities, ensuring they are seen, heard, and celebrated! 👉 Subscribe for more inspiring stories and insights into the lives of people with developmental disabilities. Let's spark change together!
IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
🎙️ Podcast Guest: Grace Gould, Account Manager at IntellectAbility and IntellectAbilityGalen School of Nursing-Tampa Bay Liaison 🌟
Join us on this episode as we sit down with Grace Gould, a seasoned Account Manager at IntellectAbility, and a dedicated liaison for the IntellectAbilityGalen School of Nursing program in Tampa Bay, Florida. With a passion for technology and education, Grace brings a unique perspective to the intersection of healthcare and IT. More Friends for Life Here: https://bit.ly/3m0Pec7
Produced by Paul Fuzinksi
Editor: Mike Balonek
Critty Buenconsejo of Creative Housing and Creative Renovations tells us how they work to make housing accessible and affordable for individuals with disabilities.
Learn More Here: https://creativehousing.org
https://www.accessibilityrenovations.org
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Kim Hing is the Special Olympics Athlete Leader of Special Olympics of Northern California and is on their board of directors. Special Olympics Northern California provides free year-round programs for children and adults with intellectual disabilities. We offer training and competitions in 11 sports, inclusive schools programs, health & wellness activities, leadership training and more!
Learn More Here: https://sonc.org
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Sean Moore is the Community Relations Manager of Open Door Columbus and on this episode of the Friends for Life Podcast we discuss the importance of art not only in the IDD community but in life.
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Brandi’s Hope Community Services began operations in June 2010 after being a long time dream of owner and CEO, Danny Cowart. Danny and his wife Brenda are the proud parents of our company’s name sake, Brandi Erin Cowart. For almost ten years he and his wife Brenda received services/supports for their daughter who was born with Trisomy 18, a rare and fatal chromosomal disorder. They were determined to give her the opportunity to live at home and have a typical life. The Cowarts wanted to share their dreams for Brandi with other individuals with intellectual and developmental disabilities. They saw firsthand the great need for these supports as parents and advocates. Mr. Cowart also experienced this need as the CEO of a service provider that offered these types of services statewide. What the Cowarts began to realize was a genuine need for more personalized and individual driven supports. The goal and purpose for beginning Brandi’s Hope Community Services is to do just that: support individuals the way they choose to be supported. Choice is a fundamental driving force in the philosophy that all members of Brandi’s Hope share.
Brandi's Hope: https://www.brandishope.com
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We went down to the Lucas County Board of DD Fall Festival to talk to everyone to see what they are doing out in the community.
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Jamie Valis, PhD is the Vice President of Training, Development, & Engagement and Kristin Compton, DMD, MHA, FAADD is the Vice President of Clinic Operations for Kramer Davis Health. As a national, transdisciplinary clinic-based system, Kramer Davis are the leading destination for accessible and seamless healthcare focused on people with intellectual and developmental disabilities, (IDD) and their families.
ARC Industries mission is to help people with disabilities achieve their life goals. They do that by supporting individuals as they access the community where they live and work, helping them develop independence, self-advocacy and skills important to employment and community membership.
Learn More Here: https://arcind.com
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Julian Trollor leads an internationally recognised translational research program that aims to reduce the health inequalities experienced by people with intellectual or developmental disability. He also is the inaugural Chair of Intellectual Disability Mental Health at UNSW Sydney, Head of the Department of Developmental Disability Neuropsychiatry (3DN) within the Discipline of Psychiatry and Mental Health and NHMRC Leadership Fellow. He took on his first full time clinical academic position at UNSW in 2009 and continue clinical responsibilities within the local health district.
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Jed Morison details a 54 year career in the world of public service, most recently serving as the superintendent and CEO of the Franklin County Board of DD
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Margaret A. Nygren, EdD, Executive Director & CEO of AAIDD since 2010, is responsible for the executive direction, leadership, and management of operations of the organization. Dr. Nygren oversees the organization’s core functions of education, publications, public policy, and member services. In addition, she serves on a number of national advisory and scientific committees and frequently speaks at regional, national, and international conferences and events.
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Listen as individuals with disabilities detail how they live their lives and advocate for a better future.
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
The Association on Aging with Developmental Disabilities (AADD) was initially formed in 1989 as a special interest group and became incorporated in 1994. AADD has a primary objective of bringing the aging and developmental disability fields together to create and provide best practices for people aging with developmental disabilities (autism spectrum disorder, cerebral palsy, down syndrome, learning disabilities, epilepsy, and intellectual disability—formerly known as mental retardation). It is a one of a kind organization in the United States, serving three area counties through ongoing programs and providing consultation and education beyond the geographical service area. In particular, AADD offers an Annual Conference on Aging with Developmental Disabilities. Under the leadership of Executive Director, Pamela J. Merkle, programs for people with developmental disabilities supported by AADD have been successful with progressive growth over the last 20 plus years.
We all started, usually in a unexpected way. How did you get your start in the IDD field?
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Diane has been a Registered Nurse for 37 years and has worked in the field of developmental disabilities nursing for over 30 of those years. She is a Certified Developmental Disabilities Nurse, being certified in the specialty of developmental disabilities nursing for over 25 years. She has provided nursing support and clinical oversight to individuals with intellectual and developmental disabilities (IDD) across the lifespan and across the spectrum of support settings. Over the years, Diane has educated and mentored many nurses working with individuals with IDD, providing clinical guidance and supervision in the specialty. In addition to having experience in providing supports to persons with IDD in a variety of settings, she has experience with policy development and implementation and has participated in task forces to address practice issues in Texas.
Learn More Here: www.DDNA.org
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Fair housing ensures that more people have access to quality schools, good jobs, and other key services that help them realize their potential and strengthen our community. By promoting diversity, fair housing also enhances the fabric of our neighborhoods.
Learn More Here: toledofhc.org
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Corey Wade talks to Tony and Paul from Tech Fest about what technology he's found useful and how he loves his job at Cedar Point.
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Since joining NASDDDS in 2014, Mary has worked to provide technical assistance to many state members on their systems of support for individuals with I/DD. She also continues long-standing partnerships with Federal agencies, providing input on and suggestions for national policy strategies to further opportunities for individuals with I/DD to live and thrive in their homes and communities. Ms. Sowers also has had the opportunity to regularly work closely with a number of key research and policy partners on projects essential to the field of I/DD nationally.
Learn More Here: https://www.nasddds.org
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MPower Me founder, Dr. Maria McWhirt has over 30 years of experience in social work and policy research. As she faced the service cliff with her youngest son who has autism, she recruited his older brother, born with severe vision impairment, to develop MyGuide™. The mother-son team worked together with clinicians and teachers to develop do-it-yourself tech-based tools to empower everyone with temporary or permanent special needs to participate more meaningfully in their own lives.
Learn More Here: https://www.mpm.care
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Michael Seereiter serves as the President and CEO of the New York Alliance for Inclusion and Innovation (New York Alliance), an organization created through the 2018 merger of the New York State Association of Community and Residential Agencies (NYSACRA), and the New York State Rehabilitation Association (NYSRA). Michael’s appointment as President and CEO of the New York Alliance began on October 1, 2019, immediately prior to which Michael served as the Executive Vice President and Chief Operating Officer for the New York Alliance. As President/CEO of NYSRA previously, Michael played a critical role in facilitating the merger that resulted in the New York Alliance, which is now the largest statewide association representing intellectual and developmental disability (IDD) service provider organizations. During Michael’s time with New York Alliance, Michael has served as the campaign manager for the #bFair2DirectCare campaign and has helped establish the New York Alliance as NYS’ statewide technical assistance resource on managed care preparedness for the IDD sector.
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Today we interview Molly Dible of the Synergy Fun Committee who we met at the Clearwater COG Tech Fest in Tiffin, Ohio.
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
Gabrielle Sedor joined ANCOR as its Chief Operations Officer in February 2015 to assist the CEO in day-to-day operations and supervise ANCOR’s Communications, Marketing, Membership and Education teams. She was named the ANCOR Foundation Director in October 2018.
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Carly Dauch joins us to talk about the new Twin Tech Home 2.0 Y
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IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM details how medical professionals in the IDD field can help doctors, dentists, nurses and other medical professionals better assist individuals with disabilities. On this episode he sits down with Rick Rader, MD, FAAIDD, DHL.
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Today we are joined by Daniel Ingram of Huron County and we talk about his path of independence and his work helping others in the community gain that same independence.
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Today we are joined by Shaleea Shields of Lumicare Inc and we discuss what Lumicare can offer to individuals with IDD.
Learn More Here: https://www.lumicaretech.com
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Rachel Schultz and Valerie Frey of OCALI discuss the new and innovative ways that they can share technology with individuals with IDD across the state of Ohio.
Learn More Here: https://www.ocali.org/
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Learn how to have a safe and happy 4th of July while working with individuals with IDD.
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Tony and Paul sit down with Kevin Miller Director of Opportunities for Ohioans with Disabilities and talk about what OOD offers, Kevin's work in the field of IDD and much more!
Learn More Here: https://ood.ohio.gov/home
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Craig De Fasselle of Blitz Creative Speaks on how to retain DSPs in these tough times.
Learn more here: https://www.blitzcreative.com
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Craig De Fasselle Speaks on how to retain DSPs in these tough times.
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Craig De Fasselle Speaks on how to retain DSPs in these tough times.
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Craig De Fasselle Speaks on how to retain DSPs in these tough times.
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Craig De Fasselle talks to Tony about Retention in the IDD Field
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We recently visited Licking County to learn waht great things their providers have to offer to individuals with IDD.
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Craig Escude MD and Paul talk about his upcoming show IDD Health Matters which will be added to the Friends for Life Podcast lineup here in the coming months!
Today we sit down with Kasey Hogan of Friends for Life Residential Care and learn how she got into the DD field and why she has found her calling.
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Tony outlines his top 5 tips for new providers who want to start their own business in the IDD Space.
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Tony and Paul sit down to recap the last few months of travel and to talk about the future of the Friends for Life Podcast.
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Connor has a passion for podcasting and media and lives right here by us at the Friends for Life Podcast so of course we were excited to talk with him! Connor has a lot of drive and passion and brings a lot of energy to the show!
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We sit down with Scott Kid Psy.D of the Montgomery County Board of Developmental Disabilities and learn about mental health and psychology services help individuals with developmental disabilities.
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Today we discuss the partnership between Boundless and CareSource. Boundless is a non-profit organization that provides comprehensive services to individuals with intellectual and developmental disabilities and other complex needs. CareSource, on the other hand, is a managed healthcare provider that offers Medicaid and Medicare plans to underserved communities. Together, they have teamed up to improve access to healthcare and support services for some of the most vulnerable members of our society. Join us as we learn more about their collaborative efforts and the impact they're making in the lives of those they serve.
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On this episode of the Friends for Life Podcast we sit down with Kathleen Duffin Recreation Manager for the Montgomery County Board of Developmental Disabilities and discuss all the great programs they have to offer.
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We sit down with Jennifer Corcoran of Changing Spaces Ohio and discuss the importance of why adult changing tables are needed throughout the state and country.
Learn more here: https://www.changingspacescampaign.com/ohio
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Latisha Martin and Chelsea Viets talk about self advocacy, navigating flying and large cities as a person with a disability and why this matters.
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Paul puts Tony and Sarah's knowledge of acronyms commonly (and not so commonly) used in the Developmental Disabilities field to the test. Loser has to drink nasty flavored soda. Play along to see how well you know your facts!
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We sit down with Meredith Tekin, President of The International Board of Credentialing and Continuing Education Standards and discuss how their work helps individuals with disabilities.
Learn More Here: https://ibcces.org
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We sit down with Sherrie Hathaway and Kelley Watson of Lucas County Special Olympics and discuss this amazing program that helps individuals with disabilities get active and compete in their favorite sports!
Learn More Here: lucasdd.org/special-olympics
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We sit down with Lisa Poiry and discuss her career in the developmental disability world and how she is working to recruit more people to come work in this field.
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Sarah Diesch and Erica McElmurry of Lucas County Board of DD MUI sit down with us to peel back the curtain on the MUI process, why you shouldn't be scared of it and what yo can learn from it.
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Welcome back Jason Abodeely of Sunshine Communities. We return to our talks on the state of the disabilities world in regards to pay, staffing and much more on this episode of the Friends for life Podcast.
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https://www.sunshine.org
We sit down with Jeff Rawlins Pickaway County Board of DD President and discuss his worth at the board and how his life was changed forever when his child was diagnosed with a disability.
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Jada and Mitchell are a riot on this episode. We talk about living life with a disability, gaming, movies and how physical therapy assists individuals with disabilities.
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We are joined by Anne Allen and Heather Foll of the Pickaway County Board of DD. We discuss life growing up with family members with developmental disabilities, why we choose to work in this field and much more.
Learn more Here: https://pickawaydd.org/
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Amanda Gambrell of Restore sits down and discusses how Restore can help individuals with disabilities stay active and engaged with their awesome gaming platform!
Learn more here: https://restoreskills.com/
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AngelSense’s mission is to create a safer world for those with autism and special needs.
Learn more Here: https://www.angelsense.com
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Tiffany and Shawn talk about their experience at the Tech Fest in Tiffin Ohio. Tiffany details her work as an SSA and Shawn details his love for photography and technology.
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We sit down with Cindy Moyer and learn why it is so important to self advocate and how technology can assist those with disabilities.
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Jessica Sherrard and Amanda Smith talk about life as SSAs and how technology can aid in bettering the lives of people with Disabilities.
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
We sit down and talk with Ken Smith of Abiliytech to learn more about how technology can improve the lives of people with disabilities.
Learn More Here: https://www.myabilitytech.com/
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Tony and Paul sit down with Dan Lyons of Silfies Media at the Tiffin Tech Fest put on by DODD.
Learn more Here: https://silfiesmedia.com/
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We traveled to the Clearwater & OSDA Tech Fest and sat down with Kelly Schuck of DODD to discuss the many benefits of technology for individuals with Disabilities.
Learn more Here: www.dodd.ohio.gov
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We traveled to the Clearwater & OSDA Tech Fest and sat down with Kelly Schuck of DODD to discuss the many benefits of technology for individuals with Disabilities.
Learn more Here: www.dodd.ohio.gov
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We traveled to the Clearwater & OSDA Tech Fest and ran into our good friend Jimmy Finley of THS Remote supports and caught up on how things are going in the remote supports world.
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We traveled to the Clearwater & OSDA Tech Fest and ran into our good friend Jimmy Finley of THS Remote supports and caught up on how things are going in the remote supports world.
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Dr. Craig Escude details Disability Clinical Competency. You can take the course at the link below.
Course: www.replacingrisk.com/curriculum-in-idd-healthcare-elearn
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Dr. Craig Escude details Disability Clinical Competency. You can take the course at the link below.
Course: www.replacingrisk.com/curriculum-in-idd-healthcare-elearn
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
On this episode Tony and I take a look back over the last 100 episodes and add some behind the scenes commentary on some of our favorite and most impactful conversations over the last few years!
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On this episode Tony and I take a look back over the last 100 episodes and add some behind the scenes commentary on some of our favorite and most impactful conversations over the last few years!
More Friends for Life Here: https://bit.ly/3m0Pec7
Dr. Craig Escude details Health Equity for Individuals with IDD.
.You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Dr. Craig Escude details Health Equity for Individuals with IDD.
.You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Sarah and Allyson discuss the intersection of disabilities, parenting, gender and much more on this episode of the Friends for Life Podcast.
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Sarah and Allyson discuss the intersection of disabilities, parenting, gender and much more on this episode of the Friends for Life Podcast.
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Dr. Craig Escude details Diagnostic Overshadowing in individuals with IDD.
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Sarah sits down with Marie Wilbanks of the Pickaway County board of DD and they discuss the intersecting lines of working in the DD field and being parents of children with disabilities.
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Sarah sits down with Marie Wilbanks of the Pickaway County board of DD and they discuss the intersecting lines of working in the DD field and being parents of children with disabilities.
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
Amanda Kick details her travels and legal battles while adopting 2 children from Africa. She sued the government, was stuck in Africa for months and made it a point to advocate for her children. She also details the struggles of not knowing how the system operates here in the United States for getting assistance for children with special needs.
You can watch or listen to the entire episode here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude MD details Neighborhoods and Social Determinants of Health for Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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On this episode of Medical Monday Craig Escude MD details Healthcare and Social Determinants of Health for Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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We sit down with Kim Waldren of the Licking County Board of DD and discuss how the education system interacts with individuals who have disabilities.
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On this episode of Medical Monday Craig Escude MD details Educational Access and Social Determinants of Health for Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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We sit down with Meagan Withrow of Newark Resident Homes and discuss a career in and out of the DD Field, getting rid of the red tape and much more.
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On this episode of Medical Monday Craig Escude MD details the Social Determinants of Health in Individuals with IDD and Economic Stability
To learn more please visit: www.ReplacingRisk.com
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We sit down with Brandi Body and Anna Jeffries and discuss the innovative work Licking County Board of Developmental Disabilities is doing here in Ohio!
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On this episode of Medical Monday Craig Escude MD details the Social Determinants of Health in Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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Jamye Griffin of Center for Disability Services discusses her work in the field of IDD and some of the things we can work on improving for a better future.
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On this episode of Medical Monday Craig Escude MD details Skin Pressure Injuries in Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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Sarah and Scott discuss the important issues surrounding the staffing emergency, solutions and debate the pronunciation of OPERA.
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On this episode of Medical Monday Craig Escude MD details Skin Pressure Injuries in Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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Sarah and Dr. Tana Schiewer discuss how language affects the way things are viewed and how that shapes people perceptions.
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On this episode of Medical Monday Craig Escude MD details Skin Pressure Injuries in Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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Sarah and Christine Touville discuss ongoing topics in the IDD world including how to advocate and work within the system for a better world.
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On this episode of Medical Monday Craig Escude MD details Skin Pressure Injuries in Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
More Friends for Life Here: https://bit.ly/3m0Pec7
Sarah sits down with Sarah Buffie of Soul Bird Consulting and they discuss ongoing topics in the field of IDD. Specializing in trauma-responsive care, she helps organizations and individuals disrupt current models of thinking by building empathy and understanding around the effects of trauma. Sarah has worked in community organizing- specifically, Asset Based Community Development, for over a decade and has a deep passion for her work. Her focus is to spread awareness about how trauma affects the brain and body, and teach effective approaches for developing resilience within the people organizations strive to serve, and the people closest to the work, caregivers, and direct providers.
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On this episode of Medical Monday Craig Escude MD details Skin Pressure Injuries in Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
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On this episode of Medical Monday Craig Escude MD details Skin Pressure Injuries in Individuals with IDD
To learn more please visit: www.ReplacingRisk.com
More Friends for Life Here: https://bit.ly/3m0Pec7
Michelle Madden of Independence of Portage County sits down with Sarah Davies of River View Industries to discuss relevant topics about hiring DSPs, raising wages and how to be vulnerable in this day and age.
Learn more at: https://bit.ly/3NKXuKw
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On this episode of Medical Monday Craig Escude MD details On this episode of Medical Monday Craig Escude MD details Preventative Care for Individuals with IDD To learn more please visit: www.ReplacingRisk.com.
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Avenues for Autism's Mission is to expand opportunities to enrich the lives of individuals and families affected by autism. On this episode of the Friends for Life Podcast we sit down with Stacy Harper and Alexis Eggenberger to learn more about how they are helping individuals with Autism.
Learn more Here: https://avenuesforautism.org
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On this episode of Medical Monday Craig Escude MD details On this episode of Medical Monday Craig Escude MD details General Safety Precautions for the Outdoors for People with IDD.
To learn more please visit: www.ReplacingRisk.com.
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John Silfies of Silfies Media discusses his passion for storytelling and making videos for people in the IDD profession including DSPs and Individuals with disabilities.
Learn More: https://silfiesmedia.com/
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On this episode of Medical Monday Craig Escude MD details General Safety Precautions for the Outdoors for People with IDD.
To learn more please visit: www.ReplacingRisk.com
Warm Weather Resources: https://replacingrisk.com/download/the-great-outdoors-warm-weather-edition/
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Steve Pelton of Hchoice.com discusses community and corporates wellness on this episode of the Friends for life Podcast
Learn More here: https://hchoices.com/
https://allchoicesmatter.org/
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On this episode of Medical Monday Craig Escude MD details Heat Stroke and Individuals with IDD.
To learn more please visit: www.ReplacingRisk.com
Warm Weather Resources: https://replacingrisk.com/download/the-great-outdoors-warm-weather-edition/
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Kevin Fong the Inclusion Strategy Coordinator for the Toledo Zoo discusses inclusion, access and how he got involved in the field of IDD on this episode of the Friends for Life Podcast.
Learn More Here: https://www.toledozoo.org/accessibility
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On this episode of Medical Monday Craig Escude MD details Insects and the Individuals with IDD.
To learn more please visit: www.ReplacingRisk.com
Warm Weather Resources: https://replacingrisk.com/download/the-great-outdoors-warm-weather-edition/
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This week we sit down with Cara Lloyd and John Hannah from OSDA
Learn More Here: www.osdaohio.org
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On this episode of Medical Monday Craig Escude MD details Hydration in the Great Outdoors for Individuals with IDD.
To learn more please visit: www.ReplacingRisk.com
Warm Weather Resources: https://replacingrisk.com/download/the-great-outdoors-warm-weather-edition/
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We sit down with Katie Shelley of the Toledo Art Museum and Dawn Bentley of CAIRE and discuss disability rights, inclusion and accessibility.
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On this episode of Medical Monday Craig Escude MD details Sun Precautions in the Great Outdoors for People with IDD.
To learn more please visit: www.ReplacingRisk.com
Warm Weather Resources: https://replacingrisk.com/download/the-great-outdoors-warm-weather-edition/
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John Dickerson details actions to resolve the staffing crisis for DSPs in the IDD Field.
Learn More Here: https://myquillo.com
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On this episode of Medical Monday Craig Escude MD details Assumptions About People with IDD.
To learn more please visit: www.ReplacingRisk.com
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Tony and Paul sit down and discuss the new direction for Friends for Life and the Podcast and what that means for you.
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On this episode of Medical Monday Craig Escude MD details Medication Side Effects and Behaviors in individuals with IDD. To learn more please visit: ReplacingRisk.com
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Tony and Paul sit down with Scott de Fasselle of Blitz Creative on marketing strategies to help get and retain staff in the IDD field during the staffing crisis
www.Blitzcreative.com
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On this episode of Medical Monday Craig Escude MD details BioPsychoSocial Causes of Behaviors in individuals with IDD To learn more please visit: ReplacingRisk.com
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Today we sit down with Sarah and discuss in detail the importance of communication in the IDD field for both individuals and workers. More Friends for Life Here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude MD details Hidden Causes of Pain in Individuals with IDD. To learn more please visit: ReplacingRisk.com More Friends for Life Here: https://bit.ly/3m0Pec7
On this episode we sit down with Dakota and Isaiah and Dakota details all of his artwork as well as teaches us about Greek Mythology and Pokemon.
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On this episode of Medical Monday Craig Escude MD details Health Equity Framework for People with Disabilities. To learn more please visit: ReplacingRisk.com More Friends for Life Here: https://bit.ly/3m0Pec7
Today we sit down with Roshonda Woodley of A Good Life Services and discuss her career in the DD field, as well as some relevant topics regarding independence and sex for individuals with developmental disabilities.
Learn more Here: www.agoodlfeservices.com
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On this episode of Medical Monday Craig Escude M.D. explains Oral Healthcare in Individuals with IDD You can learn more at www.Replacingrisk.com
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Tony and Paul discuss a few ways in which to avoid burnout in the field of IDD
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On this episode of Medical Monday Craig Escude M.D. explains Medications Causing Adverse Behaviors in Individuals with IDD
You can learn more at www.Replacingrisk.com
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On this episode of Medical Monday Craig Escude M.D. explains Medications Causing Eating Difficulties in Individuals with IDD.
You can learn more at www.Replacingrisk.com
More Friends for Life Here: https://bit.ly/3m0Pec7
Today we sit down with Jimmy and David of THS Remote Support Services and discuss how remote supports can help individuals with developmental disabilities achieve greater independence.
https://thsrss.com
On this episode of Medical Monday Craig Escude M.D. explains Medications Affect on Skin Integrity in Individuals with IDD.
You can learn more at www.Replacingrisk.com
More Friends for Life Here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains Incontinence in Individuals with IDD.
You can learn more at www.Replacingrisk.com
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On this episode of the Friends for Life Podcast Tony and Paul go over a laundry list of quotes and try to see how they relate to the DD field.
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This week we are joined by Roy Cherry of The Epilepsy Center of Northwest Ohio and we discuss how he came into the CEO position, important work in the DD Field, facts about Epilepsy and much more.
https://www.epilepsycenter.org
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On this episode of Medical Monday Craig Escude M.D. explains considerations to take in individuals with down syndrome.
You can learn more at Replacingrisk.com
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Pat Stephens details the human trafficking industry and how this affects individuals with developmental disabilities.
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On this episode of Medical Monday Craig Escude M.D. explains swallowing issues in individuals with developmental disabilities.
You can learn more at Replacingrisk.com
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Tony and Paul sit down with one of our clients Brad and Friends for Life employee and Tony's son Isaiah to learn more about life as a worker in the DD field.
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On this episode of Medical Monday Craig Escude M.D. explains Osteoporosis in individuals with developmental disabilities.
You can learn more at Replacingrisk.com
More Friends for Life Here: https://bit.ly/3m0Pec7
Accountability is often discussed but rarely put into practice.
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On this episode of Medical Monday Craig Escude M.D. explains spasticity in individuals with developmental disabilities.
You can learn more at replacingrisk.com
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Tony and Paul sit down with Megan O'Brien of Luther Home of Mercy to discuss this wonderful organizations and relevant topics in the world of IDD care.
https://lutherhome.org/
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On this episode of Medical Monday Craig Escude M.D. explains Consenting for Procedures in individuals with developmental disabilities.
Toolkit: https://iddtoolkit.vkcsites.org/
You can learn more at Replacingrisk.com
We sit down with Bob Klever, father of one of our clients and just discuss life. Living with a family member that has a disability can be challenging but also will change your perspective. Bob tells all here.
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On this episode of Medical Monday Craig Escude M.D. explains Communicating a Person with developmental disabilities baseline .
You can learn more at Replacingrisk.com
We sit down with Kelly Tong of Kaitlyn's Cottage Respite Care and discuss this awesome organization
https://www.promedica.org/location/kaitlyns-cottage
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On this episode of Medical Monday Craig Escude M.D. explains Important Information to Improve Healthcare Visits for individuals with developmental disabilities. You can learn more at Replacingrisk.com
We sit down with Tanya and Caden Laney of Conquering CHD NW Ohio to learn more about CHD and the organization as well as asking a LOT of really wild Rapid Fire questions! conqueringchd.org/ohio/ https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains aging and individuals with developmental disabilities. You can learn more at Replacingrisk.com
On this epsode of the Friends for Life Podcast we talk with Emily Martinez Director of Community Services for the Mahoning County Board of Developmental Disabilities!
www.mahoningdd.org
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On this episode of Medical Monday Craig Escude M.D. explains if a do not resuscitate order is appropriate for individuals with developmental disabilities.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Kylee Cromley, a mother of a child with autism and learn more about what it is like from her perspective as someone who does not work in the DD Field. More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of the Friends for Life Podcast we sit down with Kylee Cromley, a mother of a child with autism and learn more about what it is like from her perspective as someone who does not work in the DD Field. More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains falling in individuals with developmental disabilities.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Kim Baker of Fulton County Festival of Trees and learn more about this great event, how it was started and much more.
https://www.fcfot.com/
On this episode of Medical Monday Craig Escude M.D. explains environmental factors as causes for injury in individuals with developmental disabilities.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Torri Wright, Owner and CEO of BECHA, a software company that tracks behaviors over time and uses the data to help increase the living stands for individuals!
Learn more at: behca.com
On this episode of Medical Monday Craig Escude M.D. explains person centered thinking for individuals with developmental disabilities.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Sarra Burnham and discuss working in the DD field, specifically with children as well as the importance of unplugging and mental health More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains person first language for individuals with developmental disabilities.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Emily and Bethany of OADSP and discuss their OADSP TV Plus network of resources and we learn a lot about the IDD field and have a lot of fun discussing future goals and podcast ideas! https://www.oadsp.org/ More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains depression, anxiety and loneliness in individuals with developmental disabilities.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast we do a special hot wing challenge with Sarah Millimen as we discuss some of our favorite Halloween topics! More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains if feeding tubes need to be permanent or not.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast we take a look back at some our favorite Rapid Fire questions over the last year to lighten the mood a bit! More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains Feeding Tubes for Nutrition.
You can learn more at Replacingrisk.com
On this episode of the Friends for Life Podcast Tony and Paul sit down with Physical Therapist Assistant Kelly Ellis to discuss health and and functional exercises that he uses with some of our clients here at Friends for Life.
More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains Improving Bowel Function with Active Movement and Positioning
On this episode of the Friends for Life Podcast Tony and Paul sit down and discuss one word: Responsibility. More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains Active Body Positioning for patients with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Steven Lewis, founder of the Delroy Chance Angel Wings Foundation and Emergency Heartbeat CPR LLC. https://www.delroychance.org https://emergencyheartbeatcpr.com More Friends for Life here: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains Nose Navel Knees Alignment for Safer Eating for patients with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast Tony and Paul discuss DSP appreciation week, like tips on working in the DD field and recent dealing with loss. You can learn more about Friends for Life at: friendsforliferc.com
On this episode of Medical Monday Craig Escude M.D. explains physical therapy needs for patients with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast we ask some of our individuals about the DSPs that work with them everyday!
On this episode of Medical Monday Craig Escude M.D. explains Dementia in patients with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast Paul and Tony sit down with Brian Jones and we discuss his almost 30 year career in the DD field and his passion for music, and how these two loves overlap! More Friends for Life: https://bit.ly/3m0Pec7
On this episode of Medical Monday Craig Escude M.D. explains Pica in Individuals with Developmental Disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast we speak with Jennifer Wolfe of the Lucas County Trauma Informed Care Coalition.
On this episode of Medical Monday Craig Escude M.D. explainsSeizure Medications for those with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast Tony and Paul discuss the new announcement from President Joe Biden on the new mandates on vaccinations for Medicaid funded organizations as well as providing a few tips for workers in the developmental disabilities field.
On this episode of Medical Monday Craig Escude M.D. explains Medications and Metabolic Syndrome with patients with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast we go old school by having Paul and Tony discuss the podcasts growth, new directions and upcoming issues!
On this episode of Medical Monday Craig Escude M.D. explains the Dangers of Polypharmacy with patients with developmental disabilities. You can learn more at replacingrisk.com
We decided to take a little road trip and head out to RVI's Open House/ADA anniversary celebration and we are joined by a few really awesome guests from throughout Ohio's DD field.
On this episode of Medical Monday Craig Escude M.D. explains Psychotropic Medications and Patients with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Andrea Jaworski of Assured Health and discuss the issues around language in the disability field as well as the ongoing staffing crisis. You can learn more about Assured Health here: https://www.assuredhealthohio.com/
On this episode of Friends for Life's Midweek Mini we sit down and discuss how to raise children to be comfortable around those who have disabilities.
https://happiful.com/how-to-talk-to-children-about-disability/
On this episode of Medical Monday Craig Escude M.D. explains Mental Health Conditions that impact those with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Sarah Millimen and Chris Storrs to discuss the staffing crisis in the DD field and to brainstorm solutions to this ever present issue.
On this episode of Friends for Life's Midweek Mini we discuss a lawsuit over parents and a facility suing over wanting to CONTINUE shock therapy on individuals with developmental disabilities!
On this episode of Medical Monday Craig Escude M.D. explains Mental Health Conditions that impact those with developmental disabilities. You can learn more at replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Ryan Wichman, Meteorologist at Channel WTOL 11 and founder of Wood County Plays which is a new non-profit that creates inclusive playgrounds for kids with (and without) disabilities. We learn a lot about Ryan's passion for creating these inclusive playgrounds, his love of meteorology, storm chasing and... Power Rangers? You can learn more at https://www.wcplays.org/
On this episode of Friends for Life's Midweek Mini we discuss the announcement that the Toledo Zoo has created a new program to allow teens with disabilities to volunteer! What great news to hear!
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Urinary Tract Infections and Associated Behaviors in those with an IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we wit down with Jason Abodeely, the CEO and President of Sunshine Communities (Sunshine.org) and we discuss in detail the DSP staffing shortage as well as the history and future of Sunshine!
On this episode of Friends for Life's Midweek Mini we discuss the announcement that Amazon Studios plans to add significantly more films and series about disabilities with actors who represent these roles accurately and have disabilities themselves. You can read the source article here: https://www.disabilityscoop.com/2021/06/22/amazon-studios-prioritizing-disability-inclusion/29389/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Pneumonia and Associated Behaviors in those with and IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Anna Jeffries and Brandi Body of the Licking County Board of DD and we discuss their upcoming podcast that they are launching, the DSP staffing crisis, eating strange food and much much more. You can learn more about the Licking County Board of DD at the link below.
On this episode of Friends for Life's Midweek Mini we discuss continued education for those with developmental disabilities. You can read the source article here: https://www.disabilityscoop.com/2021/06/15/nonprofit-aims-adults-autism-falling-off-cliff/29376/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Medication Side Effects and Behaviors in those with an IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast Tony and Paul travel to Lott Industries for their open house and get to speak to a variety of guests about Lott, the work they do and much much more!
On this episode of Friends for Life's Midweek Mini we discuss how one person is making waves to make Hollywood more accessible for those with a developmental disability. You can read the source article here: https://www.disabilityscoop.com/2021/06/03/meet-manager-open-doors-people-disabilities-hollywood/29361/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Headbanging Behaviors and what they Indicate in those with an IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Friends for Life employee Mike Hayes and we learn about his passion for music and helping others through that gift! To learn more about Friends for Life please head over to friendsforliferc.com
On this episode of Friends for Life's Midweek Mini Tony and Paul discuss summer camps re-opening for those with disabilities and what that means moving forward. you can read the source article here:
https://www.disabilityscoop.com/2021/05/13/masks-at-the-campfire-summer-camps-for-kids-with-special-needs-adapt-to-covid-19/29339/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Hand Mouth Behaviors in those with an IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with India Jones of Services for Independent living and we discuss her new passion for her career in the DD field, transportation issues, the movie the Peanut Butter Falcon and we play our favorite game, RAPID FIRE!!!! If you would like to learn more about Services for Independent Living follow the link below. http://sil-oh.org/
On this episode of Friends for Life's Midweek Mini Tony and Paul discuss Police interactions with those who have developmental disabilities. You can read the source article here. https://www.disabilityscoop.com/2021/05/18/lawmakers-police-reforms-aimed-disabilities/29345/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Dental Causes of Behaviors in those with IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for life Podcast we sit down and talk with Z, one of the clients we serve here at Friends for Life. Z loves hip Hop, making music and telling stories about his life's struggles.
On this episode of Friends for Life's Midweek Mini Tony and Paul discuss why accountability is so important no matter what field of work you are in.
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Behaviors and Signs that Indicate Constipation in those with IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Alan Jones, one of our clients and discuss his passion for the Special Olympics, movies, video games and we play our favorite game, RAPID FIRE with some interesting results!
On this episode of Friends for Life's Midweek Mini we discuss the DSP job shortages that are talked about almost non-stop today.
Read the source article here: https://www.disabilityscoop.com/2021/05/04/pandemic-exaggerated-pressures-on-dsps-report-finds/29324/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of Chest Pain and Behaviors for those with IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Nicole Khoury, founder of Acoustics for Autism, Municipal Court Judge and Rocker! She shares the history of the organization, some interesting facts about her musical career and gives some funny answers to our Rapid Fire Questions! To Learn more visit: acousticsforautism.com/
On this Midweek Mini we discuss how pediatricians are assessing those with disabilities for abuse.
You can read the source article here: https://www.disabilityscoop.com/2021/04/23/nations-pediatricians-told-to-look-out-for-abuse-of-kids-with-disabilities/29307/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risks and signs of sexual abuse for those with IDD. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Laura Kuhlenbeck of Courageous Community Services (Camp Courageous) and discuss their new facilities, new camp plans and some other... really strange topics. You can learn more about Courageous Community Services at: www.ccsohio.org
On this Midweek Mini we discuss the recent announcement from Elon Musk on SNL that he has Asperger's Syndrome. You can read the full article here: https://www.disabilityscoop.com/2021/05/10/elon-musk-says-he-has-aspergers/29332/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risk of GERD for those with IDD as part of the "Fatal Five Plus" series. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Tim Menke of Lott Industries to discuss his career in the disabilities field, his interesting background in trucking and construction sales and ongoing issues in the disabilities field.
https://lottserves.org/
On this Midweek Mini Tony and Paul discuss new regulations that are going into place to get rid of subminimum wages for those with disabilities and we detail how unfair this practice is!
You can read the source material here: https://www.disabilityscoop.com/2021/04/16/new-push-underway-to-eliminate-subminimum-wage/29295/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risk of Sepsis for those with IDD as part of the "Fatal Five Plus" series. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Fran Nichols of Anne Grady Services and discuss her career in the disabilities field, her personal interests and changes we would like to see for those with disabilities. You can learn more about Anne Grady at the link below. https://annegrady.org/
On this Midweek Mini we discuss how missed schooling for those with disabilities leads to missed opportunities down the road. You can check the source material at the link below: https://www.disabilityscoop.com/2021/04/21/sent-home-early-lost-learning-in-special-education/29301/
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risk of dehydration for those with IDD as part of the "Fatal Five Plus" series. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down with Steve Mentrek of Bittersweet Farms, who is arguably one of the most positive and cheery people we have ever met. Steve discusses his career in the disabilities field, adapting equipment to allow those with disabilities to be able to participate on their own in sports and loving his job!
On this Midweek Mini Tony and Paul discuss the film Crip camp available on Netflix. This was a great film and opened up a lot of further discussions between us and future guests! There is so much to learn about people with disabilities and the struggles they have had to overcome!
On this episode of Medical Monday Craig Escude MD of IntellectAbility details the risk of seizures for those with IDD as part of the "Fatal Five Plus" series. If you would like to learn more please visit replacingrisk.com
On this episode of the Friends for Life Podcast we sit down and talk with Katherine Hunt Thomas of the Abilities Center and learn about her career as a lawyer advocating for those with disabilities, and much to the enjoyment of Paul, we also talk Game of Thrones.
On this Midweek Mini we discuss the upcoming Community Film Festival put on by the Ohio Association of county Boards and run by previous podcast guest Lisa Comes. To learn more head over to Communityfilmfest.org! Wolvereem Vs Silvertooth: https://youtu.be/WE_qo3DzAnQ