The Joel Nelson Podcast: Recent Episodes
Joel Nelson
Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality.
Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.
In this episode, we are joined by Wes Michael, the founder and president of Rare Patient Voice, who discusses the importance of including patient voices in healthcare decisions.
Rare Patient Voice connects patients with researchers and companies for interviews and studies, compensating them for their time and insights. Wes shares his background in market research and the experience that led him to create Rare Patient Voice.
The discussion highlights the shift towards patient-centricity, the unique experiences of patients with both rare and non-rare conditions, and the challenges faced by caregivers.
Wes also explains the various ways patients can participate, emphasising the importance of reaching diverse populations and ensuring inclusivity in research. Interested individuals are encouraged to visit the Rare Patient Voice website to learn more and get involved. You can also find them on Facebook and LinkedIn.
Follow the HOST:https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Friend of the show, Amy Wescott, a children's occupational therapist living with juvenile idiopathic arthritis, returns to the Chronic Pain Club after her first interview with us went on to receive thousands of views.
We discuss Amy's journey to becoming an occupational therapist [12:16], her experience living with arthritis [15:48], the challenges she faced [22:18], and how her personal experience has influenced her career [27:01]. Amy also talks about occupational therapy [34:36], her research [39:31], and the Children's Chronic Arthritis Association (CCAA) [48:15].
Follow the HOST:https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here:https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Angela Laborde, who lives with psoriatic arthritis, among other conditions, returns to the show to share with us why she volunteers and plays an active role in peer support communities online.
In Part 1 (https://open.spotify.com/episode/5KH7EINV5kCI4fK618ngX7?si=3afPdtoRQm-zAkqRkm0hag), we discussed Angela's journey to diagnosis with multiple chronic and autoimmune conditions, the challenges she overcame to get those diagnoses and the daily impact that has had on her.
In this bonus second episode, we discuss her volunteering work, how she helps others, why it's important, and how volunteering can help you cope with your health challenges.
Follow our GUEST:https://www.instagram.com/a_schiro/
Follow the HOST:https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here:https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Filmed live between World Arthritis Day and World Psoriasis Day, we are joined by special guest Angela Laborde, an American who lives with psoriatic arthritis, among other conditions.
In Part 1, we discuss Angela's diagnosis journey with multiple chronic and autoimmune conditions, the challenges she overcame to get those diagnoses and the daily impact that has on her. We also touch upon the vital role that community and advocacy play in her life now.
Come back for Part 2, where we will also discuss her volunteering work, how she helps others, why it's important, and how volunteering can help you cope with your health challenges.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: https://www.instagram.com/a_schiro/
Follow the HOST:https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here:https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE onYouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Dr Catherine O'Leary, a Clinical Psychologist and person living with psoriasis, joins the Chronic Pain Club Talk Show to provide invaluable insight into the psychology of psoriasis.
With her extensive training in Cognitive Behavioural Therapy, Family Therapy and Interpersonal Psychotherapy, Catherine brings a wealth of expertise to our discussion.
We learn about her personal experiences living with psoriasis, her work as a clinical psychologist, and techniques you can use to manage psoriasis. We also discuss her new book, Coping with Psoriasis, and how she hopes it can help.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: https://copingwithpsoriasis.com
Follow the HOST:Socials & Links: https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
In this episode, we are joined by Angela Gibbons, patient advocate, research partner and founder of The HS Support Network UK and Ireland.
We explore her journey of multiple chronic illnesses and how she went from "not telling a soul" to gradually seeking opportunities for change.
Today, Angela is involved in numerous national and international projects and has set up a charity supporting those with the often overlooked and misunderstood condition of hidradenitis suppurativa.
Like so many, we'll discuss how this pursuit of advocacy and action is part of Angela's coping strategy and how you can get involved.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: Instagram: https://www.instagram.com/the_hs_support_network Facebook: https://www.facebook.com/profile.php?id=100087939407891
Follow the HOST:Socials & Links: https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
In this episode, we learn about the importance of antimicrobial resistance (AMR) and how to combat this growing global health threat.
Vanessa Carter holds the esteemed titles of Antimicrobial Resistance Patient Survivor, Founder and Executive Director of The AMR Narrative, and Chair of the WHO Taskforce of AMR Survivors.
After a car accident required ten years of facial reconstruction, three of which were spent fighting resistant infections, such as MRSA, Osteomyelitis (bone infection) and surgical site infections, Vanessa emerged with a facial disfigurement and the challenge of learning about what it meant to live with Antimicrobial Resistance (AMR).
Hear about Vanessa's journey to advocacy and the challenges facing us with antimicrobial resistance.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:Facebook: https://www.facebook.com/theAMRnarrativeInstagram: https://instagram.com/theAMRnarrativeTwitter/X: https://twitter.com/thramrnarrativeWebsite: https://amrnarrative.org/
Follow the HOST:Socials & Links: https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Here is a quick update from me as we share the exciting news that The Joel Nelson Podcast is now part of the Spotify family!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow the HOST:Socials & Links: https://linktr.ee/Joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Recorded just before the EULAR Congress 2024 in Vienna, we are joined by Dr Simon Stones, a multiple award-winning patient advocate who is making his first appearance on the Chronic Pain Talk Show.
In this insightful conversation, Simon shares his personal journey living with juvenile arthritis and his passion for improving patient experiences. We delve into the importance of patient involvement in research, the power of advocacy, and the impact of shared decision-making.
Key topics covered in this episode:
Simon's personal experience with juvenile arthritis
The role of patient advocacy in healthcare
The importance of shared decision-making between patients and healthcare providers
The future of patient involvement in research
Don't miss this inspiring conversation with Dr Simon Stones.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://instagram.com/simonrstones
Twitter/X: https://twitter.com/simonrstones
LinkedIn: https://www.linkedin.com/in/simonstones
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Psoriatic disease can cause pain and stiffness in the joints, making it challenging to stay active. However, exercise is crucial for managing the condition.
In this episode, we're joined by Craig Young, a sports fan living with psoriatic disease. Along with his diagnosis journey, Craig will share his tips and tricks for staying active and how he has adapted to his diagnosis to continue to enjoy sports despite the challenges of the disease.
Little did we know that this conversation would lead to Craig joining Joel in founding Psoriatic Disease UK, a new patient-led charity in England and Wales that supports equally those affected by psoriatic disease, including psoriasis, psoriatic arthritis, and associated comorbidities. Proving that conversations really do change lives. Find out more here: https://psor.org.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us.
Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes.
We talk about the iPRePaRe Study, which explores how patient research partner engagement is implemented in research, and his involvement in the QUICK study, which aims to help quantify chronic pain's impact on engagement in paid work by creating a means to measure it.
These are vitally important topics and ones that regularly feature on the show when we share people's lived experiences with chronic illness, so we are grateful to get a researcher's insight into the ongoing work around these burdens of our disease(s).
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Twitter/X: https://x.com/MartjStevens
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
In the second of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.
Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.
In part two, we dive into why Heather plays games like Minecraft to distract themself and cope with the realities of living with multiple chronic illnesses and how they put their unique twist on it by linking it to their love of history.
Listen to hear a novel and alternative way to manage your pain.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
YouTube: https://www.youtube.com/@archaeoplays
Twitch: https://www.twitch.tv/archaeoplays
Instagram: https://www.instagram.com/archaeoplays/
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX.
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
In the first of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.
Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.
In two episodes recorded in front of a live audience on the Chronic Pain Club Talk Show, Heather first shares with us their story of chronic illness before, in part two, we dive into why they play games like Minecraft to distract and cope with the realities of living with these, and how they put their unique twist on it by linking it to their love of history.
Check out this episode for our usual lived experience story, but come back for Part 2 to hear a novel and alternative way to manage your pain.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
YouTube: https://www.youtube.com/@archaeoplays
Twitch: https://www.twitch.tv/archaeoplays
Instagram: https://www.instagram.com/archaeoplays/
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
For the 50th episode of the Joel Nelson Podcast, we are joined by the fabulous Ali DiGiacomo!
Diagnosed with Juvenile Idiopathic Arthritis at 15 and then hit with severe Rheumatoid Arthritis at 22, Ali went from competitive swimming to giving up fitness entirely. But a decade later, she decided to fight back, one workout at a time.
Whether you're struggling with chronic pain, looking for a fresh perspective on fitness, or simply in need of a dose of inspiration, Ali's RA story is a must-listen.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://instagram.com/AnotherDayWithRA
TikTok: https://tiktok.com/@AnotherDayWithRA
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
In this episode, we are joined by Chloë Hammond, a trailblazing clinical nurse who is breaking down barriers in the healthcare industry, and her amazing assistance dog, Ocho.
Despite being a wheelchair user and an assistance dog owner after being diagnosed with a rare disease at the age of 15, Chloë thrives in her role as one of the few disabled nurses in the UK.
In this episode, we'll explore Chloë's unique journey as a nurse with a disability, the importance of assistance dogs, how Ocho enhances Chloë's life, and the shockingly low representation of disabled individuals in the healthcare workforce and what needs to change.
This engaging conversation will challenge your perspective, ignite inspiration, and leave you with valuable insights on disability inclusion and achieving dreams despite adversity.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://instagram.com/wheelie.nurse.with.a.dog & https://instagram.com/watchochogrow
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
On Day Three of the EULAR Congress in Vienna, we have a bumper episode for you as the podcast series becomes a talking point of the conference!
In this episode, you will hear from:
- Raquel Vaz, Scientific Project Leader at IFPA
- Paul Studenic, Researcher and Rheumatologist at Medical University of Vienna
- Rebecca Beesley, Volunteer at Juvenile Arthritis Research (JAR Project)
- Souzi Makri, Past Chair of EULAR PARE and Vice President of the Cyprus League for People with Rheumatism
- Katy Antonopoulou, PARE Committee Member and President of Sjogren’s Europe
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
We are putting the patient voice into the EULAR conversation on Day 2 of the Congress as we are joined by Andreas Dam, developer of the RheumaBuddy app, and award-winning patient advocate and Chair-elect of the EULAR PARE Committee, Dr. Simon Stones.
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
As we record LIVE from EULAR 2024 on IFPA’s booth to raise awareness of psoriatic disease and the Good Care for PsA project, we speak to some brilliant guests as the Congress heats up.
In this episode, you will hear from Ingvar Ingvarsson, Vice President of IFPA, Zoë Clark, Programme Manager at NASS, and Loreto Carmona, Rheumatologist, Epidemiologist, and EULAR Advocacy Chair. We talk about their hopes, plans, and work at Europe’s largest Rheumatology gathering.
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Hidradenitis Suppurativa (HS) affects countless individuals, causing painful abscesses and scarring and impacting every aspect of life. Yet, it often remains shrouded in silence and misunderstanding. Join us for a powerful conversation with Barry McGrath, co-founder of HS Ireland, patient advocate, and former scientific clinical researcher, as we shine a light on this chronic condition.
Barry discusses his own experience with HS and the challenges faced by people with the condition. He also provides advice for people who are newly diagnosed with Hidradenitis Suppurativa, including finding a good medical team, joining a patient support group, and advocating for themselves.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our awareness work. <3
Follow our GUEST:
Website: http://hsireland.ie
Instagram: https://www.instagram.com/hs_ireland
Twitter: https://twitter.com/hsireland1
LinkedIn: https://www.linkedin.com/company/hs-ireland
YouTube: https://www.youtube.com/@HSIreland
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
For Lupus Awareness Month in May, we are joined by Melissa Chieza, an occupational therapist and mental health practitioner who has been living with Type 1 Diabetes and Lupus since she was a child.
In the episode, Melissa discusses her experiences living with Lupus and Type 1 Diabetes since she was a child. She talks about the challenges of managing both conditions, including the emotional toll and the importance of self-care. Melissa also offers advice to others who are living with chronic illnesses, such as finding a support system, advocating for yourself, and learning to say no.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://instagram.com/melcee97
Twitter/X: https://twitter.com/@mel_chieza
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
In this brief unscripted update, we bring the exciting news that the Podcast is heading out this summer—and its first stop is the EULAR Congress in Vienna!
Keep an ear out for a special mini-series recorded live at the conference in June and for more announcements about other stops and countries on the tour soon!
If you enjoy this podcast, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this Podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Chery Crow has amassed tens of thousands of followers on social media through her informative and energetic videos. She hosts the hugely popular 'Arthritis Life' podcast and website, where she works towards her vision of a world where every patient feels empowered and equipped to participate in meaningful daily activities with more confidence.
Cheryl also shares her Rheumatoid Arthritis story, what made her take to social media to share it, and why she founded the popular 'Rheum to Thrive' self-management and support programs.
Finally, we touch upon Acceptance and Commitment Therapy and why acceptance is not a bad word.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://www.instagram.com/arthritis_life_cheryl/
TikTok: https://www.tiktok.com/@arthritislife
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
Please note that this show contains the following TRIGGER WARNINGS: Suicide, Grief, and Depression - please consider this when deciding how and where you listen.
In this show, my long-time friend, Ben Veal, founder and director of Second Mountain Comms, shares his personal experiences with anxiety and depression and how he managed his mental health during the COVID-19 pandemic. We'll talk about the recent loss of his father and the impact it's had on Ben's self-identity journey.
As fathers, we'll discuss the challenges of raising children today and how Ben is trying to improve his relationships and find purpose in his life, particularly with his work.
Whether you're struggling with your mental health, navigating grief, or figuring out who you are and what you want from life, we hope you'll find something to relate to in this show.
If anything in this episode affected you and you need support, you can find it local to you here: https://findahelpline.com/
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://instagram.com/secondmountaincomms
TikTok: https://www.tiktok.com/@secondmountaincomms
LinkedIn: https://www.linkedin.com/company/secondmountaincomms
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
On World Parkinson's Day, join us for a poignant and inspiring conversation with Dr. George Ackerman, a passionate advocate for Parkinson's disease and dementia awareness. Driven by the memory of his mother, Sharon, who bravely battled the disease, Dr. Ackerman has dedicated his life to raising awareness, furthering research, and offering hope to millions impacted by Parkinson's.
Hear Dr. Ackerman share his mother's journey with Parkinson's, the profound impact she had on his life, and his work, including his organisation, "Together for Sharon," and how it's making a difference in the lives of patients and their families.
This is more than just a talk show; it's a platform for inspiration, action, and hope.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://www.instagram.com/togetherforsharon/
YouTube: https://www.youtube.com/channel/UCIeBLOelhaLQNvgeNMzu-5g
Twitter/X: https://twitter.com/togetherforsha1
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Osteoarthritis (OA) doesn't discriminate.
It can affect people of all ages, including young adults and even children. In this episode, we talk to Rebecca Kudyk, who was diagnosed with severe Osteoarthritis at the age of 25.
Rebecca shares her story of living with OA and how she has managed to not only maintain a high-profile job and young family, but thrive.
In this episode, you will learn:
- How OA can affect people of all ages
- The challenges of living with OA and other comorbidities
- How to stay positive and find ways to manage pain, fatigue and family
- Rebecca's tips for managing OA and maintaining a high-functioning lifestyle
If you or someone you know is living with OA, this episode is for you.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://instagram.com/chronically_bex
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
In this episode, we ask what role gender plays in delays to diagnosis.
We are incredibly fortunate to be joined by Professor Yeliz Prior, Professor of Clinical Rehabilitation at the University of Salford, who lives with axial spondyloarthritis (axSpA) and osteoarthritis.
Alongside exploring her personal lived experience journey and the great work she does as a prominent figure in the Rheumatology community, we discuss diagnostic delay and how gender and different patterns of clinical presentation across them can impact this.
Listen now to what was, at the time of recording, our most-watched live show ever - and for good reason!
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Twitter: @ProfYelizPrior
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon by Gideon Murray
Ahead of Rare Disease Day, we welcome Rachel Rimmer and Mark Telkman from Rare Autoinflammatory Conditions Community UK (RACC-UK) to illuminate the often-overlooked world of these chronic illnesses and how they differ from autoimmune diseases.
RACC-UK is a UK-based charity supporting individuals living with rare autoinflammatory conditions, their families, and carers. They work tirelessly to improve their lives through information, support, advocacy, working alongside healthcare professionals and informing policy.
Discover how RACC-UK creates a lifeline for patients facing isolation and empowers them to become active participants in their healthcare. Learn about their valuable resources and initiatives that make a real difference in the lives of those living with autoinflammatory conditions.
Join us as Rachel shares her poignant diagnosis journey in the search for answers. Despite symptoms from birth, it took over a decade for her to be diagnosed with Mevalonate Kinase Deficiency (MKD). We learn about this experience and how it led to advocacy and becoming the Director of RACC-UK.
This conversation is more than just a medical exploration; it's a call to action. We'll discuss the challenges of raising awareness, receiving a timely diagnosis, and ensuring a better future for all affected by these complex conditions.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: https://instagram.com/@racc_uk
Website: https://raccuk.com/
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
We are incredibly fortunate to be joined by not only Ass. Prof. Dr. Rachel Sommer, Head of People-Centered Health Care Research and Psychodermatology at University Medical Center Hamburg-Eppendorf, but a surprise guest in leading Dermatologist Prof. Dr. Matthias Augustin, Director of the Institute for Health Services Research in Dermatology and Nursing of the same institution who discuss the vitally important work they both do in people-centered healthcare.
Person-centered healthcare (PCHC) is a holistic approach to healthcare that puts the patient's needs and preferences at the centre of care.
In PCHC, the patient is seen as an active partner in their own healthcare, involved in all aspects of their care, from setting goals to making decisions about their treatment. This approach has been shown to provide improved patient outcomes and quality of life.
We will explore the relevance of PCHC, especially in the context of mental health and dermatological conditions, discuss the benefits, how to implement it in practice, and current projects related to PCHC in dermatology.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
In this final episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, 'Joel vs Arthritis' Twitch community member Lauren Gibbons shares her story of living with Ulcerative Colitis and how she believes childhood trauma and stress contributed to the development of her autoimmune condition.
She discusses her journey to diagnosis, her decision to undergo total colectomy surgery, and how she is managing her Ulcerative Colitis today - including by using peer support communities and gaming as escapism.
Lauren also shares her insights on the connection between stress and autoimmune disease and offers advice to others struggling with similar challenges.
Discussion Topics:
What is Ulcerative Colitis?
Lauren's journey to diagnosis
The decision to undergo total colectomy surgery
Managing Ulcerative Colitis on a daily basis
The connection between stress and autoimmune disease
Advice for others living with autoimmune disease
Using peer support communities as part of the management of long-term health conditions
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Instagram: @theless.eye.know
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here.
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
In this second episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview Matthew Gibbons, who lives with Crohn's Disease.
Crohn’s disease is a type of inflammatory bowel disease that causes digestive tract inflammation.
Joel and Matthew talk about a variety of topics related to Crohn’s disease, including:
- The challenges of living with Crohn’s disease, such as managing symptoms and finding the right treatment
- The importance of staying active and athletic, even with a chronic illness
- How to raise awareness about Crohn’s disease and other chronic illnesses
- The interview is interspersed with Joel’s reflections on living with chronic pain and questions from viewers.
Overall, the talk show is an upbeat and informative discussion about living with Crohn’s disease. Matthew is an inspiring example of someone who has been able to overcome the challenges of his illness and live a full and active life with suitable adaptions.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
YouTube: youtube.com/@VolumeMayVary
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
In this first episode of a three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview community member Kevin Gibbons, who has relapsing-remitting multiple sclerosis.
We discuss Kevin's experience with the condition, including his diagnosis, symptoms, and how he manages his life with MS. We also talk about the importance of patient advocacy, peer support and how sharing stories can help others.
Here are some of the specific topics that are covered in the show:
- Kevin's diagnosis with MS and how he came to terms with it
- The different symptoms of MS that Kevin experiences
- How Kevin manages his MS on a daily basis
- The importance of staying positive and hopeful when living with a chronic illness
- The importance of peer support and how being a part of a community that understands helps
The show is an excellent resource for anyone interested in learning more about MS or chronic pain in general. It is also a source of hope and inspiration for people who are living with chronic conditions.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Petra Phoenix has been living with chronic pain for many years. She has seen many doctors, but she has never been given a specific diagnosis. This has made it difficult for her to access the help she needs.
In this show, Petra shares her story of navigating chronic pain without a label. She talks about the challenges she has faced in accessing support, the resources she has found, and how she manages her pain.
Petra's story is a reminder that chronic pain is a real and debilitating condition, even without a formal diagnosis. It is also a reminder that there is hope for those who are living with chronic pain.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST:
Twitch: https://twitch.tv/petraphoenix
Fediverse: @petraphoenix @mendeddrum.org
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter/X: https://twitter.com/joelvsarthritis
Twitch: https://twitch.tv/joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Transverse myelitis (TM) is a neurological disorder characterised by spinal cord inflammation. This inflammation disrupts the normal transmission of nerve signals between the brain and the rest of the body, leading to various and sometimes life-threatening symptoms.
Joining us to share their harrowing experience of Transverse Myelitis is someone who needs little introduction to regulars of our YouTube Channel; Chiara last joined us on World Psoriasis Day to talk about the fantastic work she does as a psoriasis patient advocate and founder of Psoriasis Indonesia.
In this episode, however, we will discuss her terrifying experience of TM, the importance of her family as a support network and how she recently overcame paralysis from a flare.
A brilliant speaker and wonderful human being, this one is not to be missed.
Have your tissues at the ready!
Follow our GUEST:
Instagram: @chichilionel & @transversemyelitis.id
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Join our Online Community and Discord server here: https://discord.com/invite/dUean4vDcX
All Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Our podcast turns three years old, and with it comes a makeover!
In this short update, Joel explains the reason for the change and the exciting things to come.
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Dr Eleanor Chatburn, Clinical Psychologist, Lecturer, and Ambassador for The British Skin Foundation, joins us at the end of a marathon stream on World Psoriasis Day to discuss the mental health impact and burden of living with a chronic skin condition.
We discuss ways of coping, alternative therapies, such as pain management and talking therapies, and the stigma people with skin conditions face.
Plus, we get valuable insight into the psychology of living with a skin condition straight from the expert!
Follow our GUEST:
Instagram: https://instagram.com/dreleanorchatburn
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Eczema and psoriasis are common skin conditions that can cause significant discomfort and disruption to everyday life. This talk show provides practical tips and advice on managing these conditions and living more comfortably from various lived experience perspectives.
We talk to experts in the field of skincare, as well as people who have lived with eczema and psoriasis, to get their insights and experiences. We also cover topics such as:
How to identify and avoid triggers
Alternative treatments and medications
How to manage stress and anxiety
The emotional and social impact of eczema and psoriasis
Tips for living a full and active life
Our guests include:
Nadav Shraibom, MSc in Traditional Chinese Medicine (TCM), and Scientific founder of Medovie, a skincare company that combines the wisdom of traditional Chinese medicine with advanced scientific research to develop safe, natural, and efficacious skincare and dermatological products.
Jo Greenslade, Managing Director of Eczema Clothing, a company that provides super soft, sustainable clothing and sound advice to people with itchy skin and who has personal experience with eczema in her family.
The talk show is hosted by Joel Nelson, a father of one and Psoriasis Patient Leader, who has lived with psoriasis since childhood. He shares his story of how he has learned to manage his condition.
Follow our GUESTS:
Medovie
https://www.facebook.com/MedovieOfficial/
https://www.instagram.com/medovieofficial/
https://www.linkedin.com/company/medovie/
https://twitter.com/medovieofficial/
https://www.instagram.com/medovienadav/
Eczema Clothing
https://www.facebook.com/EczemaClothing/
https://www.linkedin.com/company/eczema-clothing/
https://www.instagram.com/eczema_clothing/
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
On this episode of the podcast, we are joined by somebody who needs little introduction in the UK access and disability space.
Broadcaster, Journalist, Musician and disability advocate Mik Scarlet joins us to talk about his lifelong relationship with pain, the darker side of living with pain and how he uses humour to cope, the amazing work he does for access, disability and inclusion and touches upon his incredible and varied career.
Please be aware that this episode contains some language and themes (including suicide and painkiller addiction) that may be unsuitable for younger audiences. If any of the topics discussed in this episode have impacted you, please visit: https://en.wikipedia.org/wiki/List_of_suicide_crisis_lines for signposting to support.
Follow our GUEST:
Instagram: https://www.instagram.com/mikscarlet
Twitter: https://twitter.com/MikScarlet
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
In this episode, we are joined by the wonderful Ian Taverner, aka Mr Cookfulness.
Ian becomes an instant favourite with our live audience as we talk about adjusting to chronic pain, the mental health impact pain can have and how Ian turned to cooking to cope with his change in circumstances. Following Ian’s incredible journey from the grief of pain and the impact on his family to how he now owns the stage at events like Naidex, this episode is sure to not only inspire you but likely have you reaching for the tissues, as two men talk candidly about their mental health and the burden you can feel with living with a chronic illness.
You can find Ian’s book, ‘Cookfulness: A Therapeutic Approach To Cooking’ on Amazon here: https://amzn.eu/d/a5fri3f
Follow our GUEST:
Instagram: https://instagram.com/cookfulness
Twitter: https://twitter.com/cookfulness
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Tracy lived with Antiphospholipid Syndrome for 17 Years, from her first symptom to diagnosis, resulting in internal damage.
Over the years, Tracy learned to use art to process and began painting her condition as she saw and experienced it.
Now a patient advocate for Antiphospholipid Syndrome, Invisible Disability and Chronic Pain, Tracy joins us on the Chronic Pain Club Talk Show to talk about this often-overlooked autoimmune condition and how, quite brilliantly, she paints it.
Follow our GUEST:
Instagram: https://www.instagram.com/tjallowart
Twitter: https://twitter.com/peculiari01
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
On this episode, we are joined by Katy Pieris to talk about parenting with Rheumatoid Arthritis, the importance of exercise, why she volunteers and hear her arthritis story.
This felt more like two friends chatting at the bus stop than a video call between two people for the first time, and I really hope that mutual respect, candidness and relaxed conversation comes across in the recording. :)
Follow our GUEST:
Instagram: https://instagram.com/joint.adventure
Facebook: https://www.facebook.com/jointadventure.info
Twitter: https://twitter.com/KatyPieris
Follow the HOST:
Instagram: https://instagram.com/joelvsarthritis
Facebook: https://www.facebook.com/joelvsarthritis
Twitter: https://twitter.com/joelvsarthritis
Links: https://linktr.ee/Joelvsarthritis
Watch The Chronic Pain Club and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
We are joined by special guest Russ Cowper - Psoriatic Arthritis Patient Advocate, Charity Trustee and Poet - to hear why they advocate and how writing poetry helps them live with a chronic condition. This one, and the live poetry readings, proved very popular on our YouTube channel at the time of recording.
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook), or for full links, click here.
Watch The Chronic Pain Club and these interviews LIVE on YouTube and join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
On this episode of The Joel vs Arthritis Podcast, we are joined by inspirational special guest Sukhjeen Kaur. We talk about her path to equality and inclusion advocacy, her founding of Chronically Brown and why Intersectionality is so important.
Follow our GUEST:
Instagram: @chronicallybrown
Facebook: chronicallybrown
Twitter: @chronicbrown
Website: chronicallybrown.com
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)
Watch The Chronic Pain Club and these interviews LIVE on YouTube to join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
I report to you live from EULAR 2023 in Milan in a very special mini-series!
Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes.
Join me every day this week live from EULAR!
For live tweeting during sessions, follow me on Twitter: https://twitter.com/joelvsarthritis.
For the IFPA Psoriatic Awareness Project: Click here
For links to our Twitch and YouTube liveshows: Click here
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
I report to you live from EULAR 2023 in Milan in a very special mini-series!
Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes.
Join me every day this week live from EULAR!
For live tweeting during sessions, follow me on Twitter: https://twitter.com/joelvsarthritis.
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
I report to you live from EULAR 2023 in Milan in a very special mini-series!
Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes.
Join me every day this week live from EULAR!
For live tweeting during sessions, follow me on Twitter: https://twitter.com/joelvsarthritis.
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
This week, we are joined by special guest Molly Schreiber, Patient and Community Director of Savvy Cooperative, who shares with us their Rheumatoid Arthritis and Type 1 Diabetes lived experience and their work at Savvy Cooperative, helping to amplify patient and caregiver voices.
Find our Guest: @mollyeschreiber (Instagram) @mollyschreiber (Twitter)
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)
Watch The Chronic Pain Club and these interviews LIVE on YouTube to join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
The Chronic Pain Club returns as Zoë Clark joins us to talk about her Ankylosing Spondylitis journey, how it feels to go through multiple and sometimes incorrect diagnoses, disability identity and how her work as an Allied Health Professional and patient advocate helps her and many others.
Find our Guest: @ZoeTheOsteo (Instagram) @ZoeClarkOsteo (Twitter).
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)
Watch The Chronic Pain Club and these interviews LIVE on YouTube to join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
The Chronic Pain Club has more real patient stories and chronic illness awareness.
This week, we were joined by James Hillery - Ankylosing Spondylitis patient and two-time contestant on the Great British Bake Off. He shares his AS journey candidly, and we get lots of behind-the-curtain insider info on what is happening on the set of The Great British Bake Off! This one was a must-watch/listen! - Watch the Chronic Pain Club live on our YouTube Channel (https://www.youtube.com/@JoelvsArthritis) on Sunday Evenings!
You can find our guest on Twitter here: https://twitter.com/Cluckmuckcook and Instagram here: https://www.instagram.com/cluckmuckcook
Follow the HOST: @joelvsarthritis (Insta/Twitter/Facebook)
Watch The Chronic Pain Club and these interviews LIVE on YouTube to join the conversation!
Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
In this episode, originally recorded in August 2022, we are joined by the inspirational Emma Townley for a Psoriasis Awareness Special, where we discuss Psoriatic Arthritis, its co-morbidities and how it impacts your mental health. We hear Emma's emotional journey from diagnosis to raising awareness to help others.
Recorded live on Twitch as part of 'The Chronic Pain Club' weekly talk show - Watch it live and for free at https://www.twitch.tv/joelvsarthritis.
SHOW NOTES Connect with our guest: Twitter / Instagram
Our new YouTube Channel: https://www.youtube.com/c/joelvsarthritis
The video recording of this interview: https://youtu.be/z6VBUdqX-oY
If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Get in touch with me at: You can find me on Facebook/Twitter/Instagram '@joelvsarthritis'
For a full list of links, websites, words, videos and content: https://linktr.ee/Joelvsarthritis Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club Join our Discord Server
THE PAIN COMPANY This podcast is sponsored by The Pain Company - created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain.
Does your invisible illness ever make you feel like a fraud?
We have a special guest as the wonderful Amy joins us to talk about her Juvenile Idiopathic Arthritis journey, the awareness she is raising to change future experiences and how it influenced her decision to train as an Occupational Therapist.
Part of The Chronic Pain Club weekly chat show - Watch it live at https://www.twitch.tv/joelvsarthritis.
SHOW NOTES Connect with our guest: https://twitter.com/amyface91
CCAA UK JIA Charity: https://www.ccaa.org.uk/
Our new YouTube Channel: https://www.youtube.com/channel/UCZrEJm2eWSSpXx8qMTjdgWA
The video recording of this interview: https://www.youtube.com/watch?v=Wh7G0-sEIi8
If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: You can find me on Facebook/Twitter/Instagram '@joelvsarthritis'.
For a full list of links, websites, words, videos and content: https://linktr.ee/Joelvsarthritis Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
In this special episode recorded during Mental Health Awareness Week here in the UK, I am honoured to be joined by fellow WEGO Health Award Winner and TEDx speaker Dr Ashley Perkins.
In a break from our usual arthritis-based content, Ashley candidly shares her eye-opening journey with anxiety, agoraphobia and OCD and how they significantly impacted her life and career. We learn how an upsetting and dangerous event, along with discrimination in the workplace, started her incredible advocacy journey and how she's making a real difference in the awareness of mental health and illness today.
Please note that this episode comes with a Trigger Warning, with suicide, depression, and substance abuse discussed throughout the show due to the nature of this conversation. Please see the links below for support should any of the subjects discussed in this episode affect you.
SHOW NOTES Our Guest
Dr Ashley on Twitch
Dr Ashley on Instagram
We Matter Too Inc.
Mental Health Support (UK)
https://www.rethink.org/
https://www.samaritans.org/
Get help from a mental health charity — NHS (www.nhs.uk)
Joel on Twitch (where this episode was recorded in front of a live audience)
If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: twitch.tv/joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
This episode is sponsored by THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
World yOung Rheumatic Diseases Day (WORD Day) is an annual event on 18th March to raise awareness that children and young people get rheumatic diseases.
On Saturday the 19th March, Joel hosted an 8-hour marathon stream on his Twitch Channel to raise awareness of WORD Day 2022 and rheumatic disease in children and raise funds in aid of Juvenile Arthritis Research https://www.jarproject.org.
In this second part of three special interviews hosted on the day, Joel talks to JIA patient, parent, volunteer at Juvenile Arthritis Research and all-around inspirational friend Rebecca Beesley about her work and JIA journey as both a patient and a mum.
SHOW NOTES Joel on Twitch
Donate to WORD Day/JAR Project Fundraiser
To request a free support pack (UK only): www.jarproject.org/hope
To read more about JIA: www.jarproject.org/myjia
Web resources for younger children: www.jarproject.org/kipo
Web resources for teens and older children: www.jarproject.org/teen
To request a free School Toolkit (UK only, must be requested by the school/educational setting itself): www.jarproject.org/toolkit
To find out more about our resources overall: www.jarproject.org/journey
And Sophie's story that we mentioned in the interview: www.jarproject.org/stories/sophie
If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
World yOung Rheumatic Diseases Day (WORD Day) is an annual event on 18th March to raise awareness that children and young people get rheumatic diseases.
On Saturday the 19th March, Joel hosted an 8-hour marathon stream on his Twitch Channel to raise awareness of WORD Day 2022 and rheumatic disease in children and raise funds in aid of Juvenile Arthritis Research https://www.jarproject.org.
In this first part of three special interviews hosted on the day, Joel talks to friend, blogger and advocate Ali Daggett, about her diagnosis journey, the Chronically Connected project and why she shares her story.
SHOW NOTES Joel on Twitch
Donate to WORD Day/JAR Project Fundraiser
Ali Daggett on Instagram
Chronically Connected
Under Young Skin Blog
If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
Has the Covid pandemic impacted the care we receive for our arthritis or chronic illness?
In this 'round table' chat, full of insight, lived experience and heartbreak, we discuss the experiences of Jacyln, Safia and Ashleigh to understand how their 'normal' care has changed over the last two years.
From lifelong conditions to the recently diagnosed, we take a sample of stories from across the country to get a snapshot of how treatments and appointments may have been impacted, what shielding was like and how Covid-19 has changed the perception of chronic illness and disability.
You can also contribute to this episode by completing a survey HERE to share your experiences during the pandemic. As discussed in the show, we will be using this data to start honest conversations with decision-makers, so your voice makes a difference!
SHOW NOTES The Pandemic and your Care Survey
Jaclyn Fielden on Instagram (@jaclynleefielden)
Safia Awil on Instagram (@snapkrackleandpop)
Ashleigh Clarke on Instagram (@ashleighclarke2112)
If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
In the latest episode of the podcast, the first to be streamed live over on Twitch, we welcome Debbie Wilson, Young Persons Project Co-ordinator at the National Rheumatoid Arthritis Society (NRAS).
We talk about life with Juvenile Idiopathic Arthritis, the challenges of being a parent of a young person with JIA and all of the incredible work Debbie is currently involved with at NRAS.
Show Notes
NRAS Website
JIA at NRAS
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
In this special Podcast episode for World Arthritis Day 2021, I document a day in the life of somebody with arthritis - sharing my routines, the management of my condition and talking about the raw, unseen side of arthritis and the suffering that goes on behind closed doors. I also answer some of the questions you sent in on the day.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
In this special episode for #WearPurpleforJIA, we are joined by Suruthi Gnanenthiran of @fightrheumatoidarthritis on Instagram, who shares her story of JIA from the age of 3 and also talks about her awareness work and the importance of NRAS's campaign this week to raise awareness of JIA.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
After a short break due to health reasons, Joel is back with another insightful episode of the Joel vs Arthritis podcast. In this instalment, we are joined by the wonderful Lucy Chambers, who has had psoriasis since childhood.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
In this special edition of the Joel vs Arthritis podcast, Joel is joined by Rebecca Beesley of the charity Juvenile Arthritis Research. They discuss the amazing work JAR Project does and their plans for WORD Day 2021 on 18th March.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
The 'Joel vs Arthritis' podcast hosts its first guest, as Joel takes up the role of interviewer and welcomes an old friend to discuss men's mental health.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
The 'Joel vs Arthritis' podcast returns in 2021 with audio improvements, news about upcoming changes and a reading of popular article: The die has been cast as part of Joel's 'Chronically talking about pain' awareness campaign in January.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
In this first full-length episode of the Joel vs Arthritis Podcast, I share my arthritis diagnosis experience and explain how my arthritis didn't just impact me as a child, but everyone around me.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.
Welcome to the first episode of The Joel vs Arthritis Podcast - Joel starts a pod! In this introduction to the podcast, I talk about why I have taken this step.
If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email.
It helps massively and allows me to improve future content and episodes.
Follow me on social media for daily news and awareness stories.
Get in touch with me at: Twitter: @joelvsarthritis Facebook: facebook.com/joelvsarthritis Instagram: @joelvsarthritis Twitch: /joelvsarthritis Website: https://joelvsarthritis.co.uk Facebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club.
Quick Reference Links (Linktree)
The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.