Living free with RP: Recent Episodes
Michael Tubiak
A weekly podcast where I will interview a different person who has the eye disease known as Retinitis Pigmentosa.
It was great to have the Biohacker back on the podcast. Her is someone that really influenced some changes in my RP journey. Enjoy!
In this “where are they now?” episode we bring back Becky Andrews and find out what she’s been doing all these years.
In this very special episode I bring back on some amazing guys who I not only met because of the podcast I have met in real life and have become great friends with them. These are my RP brothers and I’m beyond grateful to have them in my life.
This season rolls on with Abby! I felt like a proud father listening to how well Abby is doing. Enjoy the episode!
Continuing along on our “Where are they now?” Season. We got Justin today! Check it out!
Episode 2 of our “where are they now?” Series continues. Let’s see what Amy has been up to.
This season it is all about “where are they now?”. Let’s find out what Morten has been up to since 2020.
Day 12 of the 12 Days of Living Free with RP is here! If you have heard of the Chuck Norris memes then you know who Ian is. Enjoy this final episode of season 5!
Day 11 of the 12 Days of Living Free with RP brings us Alison! RP brought her into the world of adaptive surfing and wait until you hear her success with that! Enjoy!
Day 10 of the 12 Days of Living Free with RP brings us Itay. He’s a speech therapist at a hospital in Israel and overall just has such a great attitude about dealing with RP. Always nice to have a big fan of the show on the show. Enjoy!
Day 9 of the 12 Days of Living Free with RP brings us Laurent! All the way from France. He isn’t letting RP stop him as he has continued to teach for the past 20 years!
Day 8 of the 12 Days of Living Free with RP brings us Ryan! A big supporter of The RP Show and myself. Always nice to have someone like him on the show! Enjoy!
Day 7 of the 12 Days of Living Free with RP. Back in Canada with Mary Beth! She’s been at this for 10 years now. Find out how she’s been handling it! Enjoy!
Day 6 of the 12 Days of Living Free with RP is here! Today we got Sarit! She doesn’t only have RP. She’s got Ushers Syndrome. The double wammer as she calls it. Enjoy!
Day 5 of the 12 Days of Living Free with RP is here! Today it’s Makuru! Getting the diagnosis was tough for him. See how he’s doing today in this episode. Enjoy!
Day 4 of the 12 Days of Living Free with RP. Ipiluni is an actress in California who not only has RP but also is autistic. Both together interestingly kinda help each other. Find out how in this episode. Enjoy!
Day 3 of the 12 Days of Living Free with RP! Prabath was born with RP. Check out how he’s handled it. Enjoy!
Kicking off the 12 days of Living Free with RP with Yassine! Check out how he’s handled RP for the past 24 years. Enjoy!
I always love taking to someone who is into fitness. Toby may have RP but he hasn’t let that stop him from being a personal trainer. Enjoy!
Usually driving with RP is taken away early but Kelli is fortunate enough to still be able to do it at the age of 53. But she knows her days are numbered.
What’s it like being the parent of someone who has RP? You will find out today in today’s episode!
This was special. Bethany aka Grinspoongirl is a big supporter of The RP Show on YouTube and after awhile I asked her if she would like to come on the podcast and share her journey. So here you go!
A lot of people with RP are artistically talented and Katelynne is no different. She has a passion for doing makeup. Check her out on Instagram!
Getting the diagnosis really hit hard for Cam and you will find out why in this episode.
Edward is a very cool 62 year old gamer. I think gaming kept him young because he doesn’t sound 62. And hey maybe it’s a reason he still has vision…well who knows. You be the judge.
Nick may be an average Joe but having to deal with RP is no average task. Find out how Nick has handled it over the years!
I love it when people with RP pick careers that they want to do, not what RP tells them they should do and Tom Watts is no different. What does he do?Listen and find out!
Christina used to do stand up comedy way back but since having RP she had decided to get back into it and see where it goes.
Once Frederic found out he had RP he decided he would do better in a whole different country. So he up and moved to Paris, France! Find out how that has been going and more!
Vinnie is a really awesome guy with a great attitude about RP. He has recently started to “come out” about his RP. Like many of us he hid it. So check it out!
MJ is new RPer. Having been diagnosed very recently. She found The RP Show and it really helped her out. I loved her energy so much that I wanted her to share her journey on the podcast! Enjoy!
Many of you know The Blind Poet and what he does but I think during this interview you will learn a few things about Dave that you never knew! Enjoy this very special episode!
Despite having 2 other siblings with RP the recent diagnosis Claire received still was a big hit. Listen and see how she is handling it a week after hearing that she has RP.
Heidi is not only a super awesome woman she also the author of “Dial E for Endearment”. You will learn all about this and more! Enjoy!
Rose is from Canada and enjoys being an artist, baker, and a runner! She loves technology! She uses it a lot to assist her in her daily life dealing with both RP and Ushers syndrome.
Avelash’s journey with RP began simply by going in for a routine eye exam. He’s gone through some tough times but has risen back to the top and isn’t letting RP affect him negatively anymore.
Mary is very awesome woman who is giving back to the visually impaired and blind community having co-founded a local support group called Eye See Hou based in Houston, Texas. She is not only the co-founder, she is also the president.
Dianne comes to you all the way from Australia. She’s single and has some good opinions on how she approaches that in today’s dating world while dealing with RP.
Dave is a Veteran of the U.S. Coast Guard and in his spare time he plays the bag pipes. A great all around family man. Listen and enjoy!
Diagnosed at 5, Penny who is now 65 has a lot of experience with RP. And she is not the only one in her family with the disease. Check it out!
Jacqueline noticed her vision seemed like static on a tv shortly after the birth of her second child. She knew something wasn’t right…
Alex is a super passionate man and host of his own podcast The Blind American. Hope you enjoy his view on dealing with RP.
Diagnosed 7 years ago at the age of 26, Maranda does her best dealing with RP. Luckily she’s not alone in this journey. Other members of her family also have RP.
Sylvia unlike most with RP was born blind. But that hasn’t stopped her from living life at all. Check out her story!
Diagnosed in 1979 at a time when not much was known about RP, Lynn found a Doctor who knew exactly what she had and gave her some sound advice.
I always enjoy talking to a fellow RPer whose journey is similar to my own. Lance got diagnosed around the same time as me and has a mom with RP. It was like talking to me at 30. Lol He was awesome! Enjoy!
We are back in the UK again! Tracey has a wonderful outlook on dealing with RP! Enjoy!!!
Diagnosed 35 years ago, Lorelei keeps a positive frame of mind with the help of her comedian husband. Enjoy!!!
We are back in the UK again! Joe like most of us with RP is just living life to the fullest one day at a time.
This episode we look at the other side of RP. Lindsey doesn’t have RP but her brother does. So check out how that has effected her life. Enjoy!
It’s always fun to chat with people in other countries who have RP. Even though so far away and in a much different culture our journeys connect us. Enjoy!
A man who literally walked in to get lasik done and walked out with a diagnosis of RP. But he got over the initial shock of that and had continued on with his life not letting RP get in the way!
Have you ever been asked if you have super gearing like Daredevil? Well Wynston has. Just one of many different thoughts that people have when they hear you are going blind. But he handles it well! Enjoy!
Initially thinking his life was over, Dustin now has a whole new look on life with RP. We talk a lot about the mental health aspect of RP. Enjoy!
On this episode you might question whether you have RP because Tod and his brother have an eye disease that mirrors RP. Check it out!
Abigail is 15 and is just beginning her journey with RP. She struggles with bullies in high school but deals with it very well. She has a great attitude and a good head on her shoulders. The future is bright for Abigail!
There is a possibility you have seen some of Morten’s work. He works at LEGO! So maybe your kids might have seen his work. Also now an author of a book as well! He has a great attitude! Enjoy!
Adam is in Arizona getting things done. RP has caused a job change for him but he is cool with that. Having his brother by his side dealing with RP as well is a big help.
Another great episode! Justin has a great outlook on RP. It takes time to get there. Enjoy!
The biohacker has arrived!!! Victor shared so many amazing things. You will learn a lot in this episode! Enjoy! And be on the lookout for his documentary!
This episode symbolizes what it is like dealing with RP. Adapting and overcoming. Amanda has Ushers and is 95% deaf. But with the help of her loving fiance we made it work. Enjoy!
Ida doesn’t have to worry about wet floor signs in Finland. She has a wonderful attitude about RP!
My brother from another mother. Haha! We are truly very much alike. You will definitely love his attitude and you will see more of us in the future! Enjoy!
Diagnosed at a very early age, Hossam doesn’t let RP stop him from completing his schooling and getting into fitness. A very great attitude when dealing with RP!
With the help of her “rock” aka her boyfriend, Destenee is adapting well with dealing with RP.
Today’s forecast calls for another great RP Journey! Carl use to be a weatherman and now is helping out the disabled over at Lighthouse. Enjoy!
The blind blogger joins me in this episode. We have a great conversation about dealing with RP. Enjoy!
I look forward to seeing how Syed does in the comedy world. He was a lot of fun to talk to. You will love it!
She’s been around the world and back. Now she is still loving life and writing books. She’s on number 5! After this episode please check out her books! Thank you!
Ashley like me has his own podcast about RP and he’s also a runner. Very inspiring man. Enjoy!
Josephine has such a fun personality. A great outlook on her disability. She still rides around on her scooter. Soon to be married and enjoying life!
Having RP and living in India definitely proposes a lot more challenges than most of us are use to. Ajay loves a challenge though!
A journey that begins in California and currently is in Spain. Kayana continues to see the world despite her condition.
Angelica has been facing some new challenges moving to a new country. As we know RP is all about routines and throwing those off is tough to deal with but Angelica is handling it well! Hope you enjoy this one!
A future paralympic gold medalist in the making! This girl will go far in life. It was awesome talking to Clara. And yes that is her last name! Enjoy!!!
Another great RP journey coming out of Canada! Karen like many others has such a wonderful attitude towards dealing with RP. You all will enjoy this episode!
Laura has a wonderful sense of humor when dealing with RP. We had a great time chatting about how she handles RP and it hasn’t stopped her from playing music or doing craft work. Enjoy!!!
A fellow blind runner with a great energy about her. She is living life and RP isn’t shaking her. Enjoy!
Always nice to talk to a fellow martial artist. Especially someone who has the same eye disease. I hope Eric starts training again someday. He will be back on the show! Enjoy!
Just a straight down to earth woman. Navigating the world just fine with her advanced form of RP. Enjoy!
Kathy is fully enjoying life with RP. Such a wonderful attitude. Another great episode! Enjoy!
You are going to love her attitude and personality! So much fun listening to her share her story. Definitely having her back on again! Enjoy!
I felt this was a very therapeutic episode! If you are feeling down about RP and maybe are wondering what to do next I’d give this episode a listen. Enjoy!
Another fun episode! I hope after this episode airs the #rpwetfloorsignchallenge becomes a thing! Amanda was a lot of fun to chat with. Enjoy!
Wayne was great to talk to. Definitely learned a lot chatting with him. If you are into the technology side of dealing with RP this episode is for you. Enjoy!!!
This was an amazing interview. So much fun that James will be returning in a future episode. Check it out and enjoy!
Not only is Jon my RP twin, he also has a brother that is also his RP twin. He was awesome to talk to. Everyone will love this episode!
This week we get to Chris Caldwell! A straight to the point kinda guy. He's gonna do what he wants when he wants. RP will not change that! Enjoy!
This one was a lot of fun. We shared a lot of the same interests and we got diagnosed around the same age. Nothing will stop JP from doing what he loves to do! Enjoy the show everyone!
This episode we talk to Beth Verdico. She had a lot to say and I loved hearing about it. Hope you all enjoy it too!
In today's episode we talk to Tyler McCauley. She was recently diagnosed not too long ago. If you are a parent with RP definitely give this episode a listen.
In this first episode I’ll tell you all about me and my journey with RP. When I was diagnosed, if I use a cane, how I feel about wet floor signs, etc etc.