DBTD: Recent Episodes
A.J.Martens
Photographer AJ Martens and blogger and former Miss wheelchair Fl 2010 Shannon Horne will bring a unique and informative guest to each episode of don't burn the day otherwise known as DBTD. The host of the show has not let the diagnosis of cerebral palsy slow them down from what it is they want to pursue and in this podcast, you will find out many of the ways that they have succeeded In life. We invite you to join our Patreon community by going to www.patreon.com/dbtd The DBTD team thanks everyone for your continued support. join us at www.facebook.com/dbtdpod Support this podcast Mission of DBTD: The " Don't Burn The Day'' team strives to be a podcast that motivates and inspires our listeners to pursue their passions, never forgetting that you only get one life, therefore what you do with it is up to you! Life is precious, DON'T BURN THE DAY!
In this episode, AJ sits down with Adrianne Mascho from Feeldom to talk about the new products and the feedback that the company has received over the past year. Please go to https://www.feeldomlife.com/ and use code 1life2live at checkout to get 10% off your order. Also, don't forget to check us out on our social media platforms and Like, Share, and Subscribe.
we are often reminded when it is too late that relationships are truly what matters and should be treated like it was something that is living in a fast-paced life we often get caught up in our own situations and forget to slow down and value those true relationships I hope this episode reminds someone to call whoever you may not have been in contact with for a while.
https://www.feeldomlife.com/
www.dbtdmedia.com
In this episode, the team gives our thoughts on the life and work of the disability icon and trailblazer Auti Angel. Plus details on upcoming events such as the Family Cafe www.familycafe.net May 27-29
Abilities Expo www.abilitiesexpo.com
https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/ https://www.facebook.com/dbtdpod https://www.dbtdpod.libsyn.com
On this episode of DBTD, AJ is joined by Alicia Dorough Campiglia to talk about the last year of her life since overcoming a horrific motorcycle accident on April 10th, 2021. In the episode, she discusses how she engages with young children who ask questions and also o how her working with people with disabilities at a young age helped her during this time in her life during this drastic change https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/ https://www.facebook.com/dbtdpod https://www.dbtdpod.libsyn.com
In this episode, the DBTD team sits back and chats with AJ's younger brother and roommate KC Adams. https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
in this episode the DBTD team meets with Adriene Mascho representative of Feeldom to discuss some new things that they have going on such as Valentine's Day sale where you can get 50% off their merchandise on their Amazon store as well as use the code 1life2live at checkout at feeldomlife.com you can catch the Feeldom team at the abilities expo in April in Philidelphia and New York
Link to Feeldome Shop and Sale: https://www.amazon.com/feeldom?maas=m... https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
in this episode, AJ discusses his thoughts on the Mental Health Day 2022 that was hosted by agencies all across Vermont but it was done through Zoom so anyone could attend this informative event He also gives an update on future plans for the team and his feelings on winter and its effects on disabilities. For more info go to National Alliance On Mental Health | Vermont (namivt.org) and DRVT 1-800-834-7890 – 141 Main St., Ste. 7 Montpelier, VT 05602 (disabilityrightsvt.org)
Thank you to our sponsors; Feeldom https://www.feeldomlife.com/ use the code 1lfe2live to save 15% off premium mobility gear. and Friendlyshoes www.friedlyshoes.com use the code frienz4lyfe and save 10% off
In the first episode of a brand new season of Don't Burn The Day the team gives tips for finding self-love within the disabled community and tips on being kind to yourself so that you can help in your segment of the world in which you live but you cant give to others what you don't have so we break down some daily routines that we think may bring you value in 2022 and beyond
https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
in this episode, the DBTD team looks back at a great 2021 and also looks ahead at what's to come in 2022 we look at the great moments we've shared with our guests this year https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
in this episode, the DBTD team shares gift ideas and coupon codes for this holiday season from some of our valued partners
https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
in this episode, we speak with Adrianne Mascho of Feeldom about their great bags that are perfect for anyone who uses a wheelchair and we are proud to offer our listeners a 15% off coupon code by using 1life2live at checkout www.feeldomlife.com
https://www.feeldomlife.com/discount/... Use code: 1LIFE2LIVE for 15% off any item https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
in this episode DBTD is joined by Mason Hall Morris as we give advocates ideas on how they can make an impact in 2022. Mason shares her journey as an activist
Mason's Instagram: https://www.instagram.com/mhmorris/ Join us December 11th for our Virtual Holiday Bonanza at the link below: https://www.dbtdmedia.com/virtual-hol... https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
The DBTD crew gives some ideas on how you can spend your Thanksgiving holiday and we tell you what each of us are thankful for http://www.rescuemissionga.com/ https://www.clarawhitemission.org/ https://us.depaulcharity.org/depaul-h... https://foodpantryofgreencovesprings.... https://jaxhumane.org/ https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
In this episode, the DBTD team meets with author, consultant, and small business owner Robin Williams Evans to talk about her family's journey with raising a child with cerebral palsy and her journey of starting a small business called Wyatt Wear a collection of fashionable bibs dedicated to anyone that doesn't want to keep doing more laundry because there is food on your shirts :p Robin is an author of a book called Living A Happy Life With A Special-Needs Child this book is a resource for new parents of children with disabilities with the aim of being sort of a road map of what to expect
Robin's Book: https://www.amazon.com/Living-Happy-L... https://wyattwear.com/ Use code: DBTD10 for 10% off your entire order https://friendlyshoes.com/ Use code: frienz4lyfe for 10% off your entire order https://pattiandricky.com / Use code: DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
Shannon is joined by Ryan Garcia of Friendly Shoes in this episode they discuss the fusion between fashion and function of the Friendly shoes for anybody they also discuss the new kids line the I can 2 line of fashionable shoes this line is perfect for kids with sensory issues you can find out more information by going to www.friendlyshoes.com
https://friendlyshoes.com/ Check out their new line of shoes for kids, the iCan2: https://friendlyshoes.com/ican2 https://pattiandricky.com / DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
in this episode, the story of Kai and his mom is one of unconditional love and understanding as Kai has become one of the youngest drag queens in the Madison, Wisconsin area as he performs at The Five Nightclub the Derubis family is a tight-knit family that advocates for many LGBTQIA causes such as the trover project and it gets better as the impossible project.
https://www.thetrevorproject.org/ https://itgetsbetter.org/ https://pflag.org/ See more about the I'm Possible project and Kai's Photos here: https://www.facebook.com/ArrowStarPho... https://friendlyshoes.com/ https://pattiandricky.com / DBTD10 for 10% off your entire order https://www.dbtdmedia.com/
DBTD had an open conversation with The Loneliness Coach, Nathan Todd, who walked us through some eye-opening exercises that we hope you will get value from. This is a wonderful, insightful hour that we hope helps a lot of listeners.
DBTD meets with Jacob Pacheco, pro surfer, model, and entrepreneur in this interview Jacob speaks about the difficulty of growing up with cerebral palsy and often facing challenges that knocked him down but it's about how he was able to get back up and become a Ted talk speaker and owner of his own company Prone to Ride for more information https://www.pronetoride.com
https://www.youtube.com/watch?v=viMqN77jno4 More information and all our previous episodes can be found atwww.dbtdmedia.com
in this episode, AJ and Shannon provide some interesting information about cerebral palsy as we celebrate World Cerebral Palsy Day and the millions of reasons there needs to be more education and awareness surrounding the largest group of people that have a disability. We hope that you enjoy this informative episode for more information you can go to www.worldcerebralpalsyday.org #worldcerebralpalsyday #millionofreasons
you can also go to the DBTD facebook page www.facebook.com/dbtdpod
Josh Smith from the Cerebral Palsy Conference joins AJ for part 2 of their interview discussing the upcoming Cerebral Palsy Conference topics include mind and body connection and parenting a child with cerebral palsy There is still time to register for this great conference go to www.cerebralpalsyconfernce.org for all the information
Shannon and A.J. are joined by Jessica Ducan former classmate of Shannon's reunites to talk about a bit of their high school history as well as Jessica's work now as curator of Fun 4 Tally Kids, a website that collects activities events, and family-related information for things to do around the Tallahassee Fl area for more information go to www.fun4tallykids.com If you are looking to bring a website like this to your community reach out to Jessica for more details. Thank you to our sponsors Cerebral Palsy Conference, Green Mountain Support Services, Friendly Shoes, and Patti & Ricky
in this episode, AJ sits down with award-winning photographer and speaker Jaleel King and talks about how he got started in photography and how other people with disabilities could find creative outlets through picking up a camera among other topics. Find out more about Jaleel at his website www.jaleelking.com
in this episode, we sit down with the head of Green Mountain Support Services to talk about the upcoming Cerebral Palsy Conference taking place October 1-2. Join us for this informative conversation and you can find more information about the 6th annual Cerebral Palsy Conference by going to www.cerebralpalsyconference.org you can also check out the work of Green Mountain Support Service by visiting www.gmssi.org we will see you all at the 6th annual CP conference a reminder that registration is free so come get informed
Over the years of producing our show we have often been asked the same question "what Don't Burn The Day means to us" we hope to answer this and also touch on what it's like to be a social media influencer with a disability. In this episode we talk about a book event that happened this evening that you can go to our youtube channel DBTD youtube channel we would also like to thank our sponsors Cerebral Palsy Conference - www.cerebralpalsyconference.org October 1 and 2 this will be a virtual event
Green Mountain Support Service - www.gmssi.org
Friendly Shoes -www.friendlyshoes.com
Patti and Ricky - www.pattiandricky.com use code DBTD10 at checkout for 10% off
Whitney Bailey is on a mission to educate society while advocating for the needs of the disabled community and motivating others to maximize their potential. She is the host of the podcast, Spastic Chatter which features stories from those in the cerebral palsy community. Whitney has a bachelor's degree in Rehabilitation Services and a master's degree in Special Education. She has worked with various disability organizations and is currently the project manager for Diversability. http://whitbailey.com/ https://friendlyshoes.com/ https://pattiandricky.com / DBTD10 for 10% off your entire order The CP conference is coming up! It is a virtual event held on October 1st and 2nd. Cerebral Palsy Conference Registration: https://cerebralpalsyconference.org/ Sponsored by Green Mountain Services: https://www.gmssi.org/ https://www.dbtdmedia.com/
We had the chance to sit down and speak with an advocate and new author of the book "Queens to Queens How the Madison Drag Community Saved My Life" Jaimie Sherling. We also spoke about the many projects she is involved with as an advocate and also her growing popularity on Instagram thanks to her Formal Friday's post that she has done for 69 consecutive Fridays while going through chemo. There is more to this great chat so we hope you enjoy. Follow us at www.facebook.com/dbtdpod and www.dbtdmedia.com Thank you to all our sponsors www.cerebralpalsyconference.org www.friendlyshoes.com www.pattiandricky.com www.gmssi.org
DBTD had the chance to sit down with content creator Emily Bottinick from the Youtube channel, Emily's Life On Wheels, to talk about some of her experiences as a content creator and much more. If you want to find out more about Emily here are her links
Facebook: https://www.facebook.com/emily.bottinick Instagram: emilyslifeonwheels YouTube: https://www.youtube.com/user/EmilyBot...
We would also like to thank our wonderful sponsors Friendly Shoes, Patti and Ricky, and Green Mountain Support Services who is hosting the 6th annual Cerebral Palsy Conference
Friendly Shoes: https://friendlyshoes.com/
Patti and Ricky: https://pattiandricky.com use code DBTD10 at checkout for 10% off your entire order
Green Mountain Services: https://www.gmssi.org/
Cerebral Palsy Conference Registration: https://cerebralpalsyconference.org/
DON'T BURN THE DAY - https://www.dbtdmedia.com/
in this episode the DBTD team celebrates the 31st anniversary of the ADA while discussing ways that it can be improved. we also discuss our opinions on why it is so important for the restoration of social security act to be put into law to help many of us who are on SSI. https://grijalva.house.gov/sites/grijalva.house.gov/files/documents/SSI%20Restoration%20Act%202021%20Sec%20by%20Sec.pdf
https://www.disabilityscoop.com/2021/07/27/on-ada-anniversary-biden-recommits-to-disability-rights/29424/?fbclid=IwAR2bl9G3LPMj2pQWiDGSjEnI_4et9r9w2vhYw8ZuvtGGUlxYiELxqiuNF4A
https://www.amazon.com/Being-Heumann-Unrepentant-Disability-Activist/dp/0807002801/ref=sr_1_1?crid=1A7BYPET9GUWO&dchild=1&keywords=being+heumann&qid=1627573373&sprefix=being%2Caps%2C250&sr=8-1&fbclid=IwAR1jBcptv-3Pw4CTjuazK_Q6-NcLj_NDPoEQrO8HIypahpAj6BkZfOYYbpI
https://www.instagram.com/tv/CRzXekvnNo0/?utm_medium=share_sheet&fbclid=IwAR01hDi3kwSOkPJMvQ360uJuXv-Ejk8o2h5AbHtcIdV226Hn5icRK5gNm4s Check out the work of Lauren "lo-lo" Spencer abd sitting pretty productions she is a great content creator with a great message to share in unique ways
The DBTD team wanted to share our thoughts on the proposed bill that would give more people on social security a raise in their benefits along with other perks that aren't allowed now this biss would help many people be more productive in their communities so if you have a person in your life who is on disability please push for this bill to be passed
It's been said that young people can change the world or the world around them well this is exactly what a 15 year old Louis Braille did when he made the braille system that would change the world for many visually impaired people around the world. This is his story.
When you think of the word inclusion themeparks aren't first to come to mind but this isn't the case in San Antonio, TX as they have the first ultra accessible themepark Morgan's Wonderland. Don't Burn The Day was able to speak with Nikki Young the edutainment director for Morgan's Wonderland. We spoke about everything that is happening. What it's like to be the first of its kind and much much more. This is an insightful conversation that will hopefully let people in on the exciting things happening with this wonderful organization. For more information you can visit www.morganswonderland.com and the Morgan's Wonderland Inclusion Foundation www.mwif.com
In episode 2 of our Pioneers of the ADA series, DBTD looks at the contributions of Ed Roberts, who many would say is the father of the independent living movement. Ed would be instrumental in opening the door for people with disabilities to attend UCLA at Berkley among many different accolades which we will cover in this episode. We hope you enjoy this episode of DBTD's Pioneers of the ADA series.
Every July the disability community celebrates the passage of the Americans with Disabilities Act (ADA) and Don't Burn The Day will take this month as an opportunity to profile many of the men and women that helped to open the door for many of us. We are starting the series by looking at the life of Mr Justin Dart Jr and his take no for an answer attitude. We hope you enjoy this series over the coming weeks.
in this episode of DBTD we are joined by Alex Herold the founder and ceo of www.pattiandricky.com the largest adaptive fashion marketplace on the internet. In our discussion we disciss the foundation of PattiandRicky.com and also where Alex sees the industry going in the future and we were able to partner together to give our listeners 10% off anything sitewide if you use the code DBTD10 at checkout the site has everything you could need if youre looking for adaptive clothing or accessories.
in this teo part interview Kat Jones opens up about her work as an artist and a musician and an activist this is a very insighful episode but it is not for children there are many different things you will be able to take away from this episode on topics like mental health and not being afraid to be yourself. www.katjonesmusic.com
the team discusses the video that went viral over the past few weeks about the wheelchair that was damaged by Delta airlines we discuss the ways that the travel industry can better serve their disabled passengers note Our apologies for the name mix up. Bree was the friend and Gabrielle was the lady that it https://www.newsweek.com/woman-claims-delta-airlines-broke-her-wheelchair-during-flight-viral-video-1595009?amp=1&fbclid=IwAR1_xoutWJphMmd6XLpcXGQfnk4lzrahLx3gqUUoVXYmAJ1x8-knOuGxI2g www.dbtdmedia.com
My cohost Shannon along with the other team members of the DBTD team put together a birthday celebration for me and we thought you would enjoy some bonus content featuring the music of Kat Jones who will be our guest on June 7th you can find more information about her by going to www.katjonesmusic.com once again I would like to thank the DBTD team for putting this event together. For more information about the Don't Burn The Day podcast by going to www.dbtdmedia.com
The team from Friendly Shoes join us to discuss their new lines in adaptive footwear for everyone Joeseph and Ryan will take us through the journey of the conception of Friendly and where they are headed in the future www.friendlyshoes.com we also unveil our new Dont Burn The Day website which is www.dbtdmedia.com
the team behind Don't Burn The Day compiled our most asked questions and we took little while to answer just a few of them we hope you enjoy this episode of the show if you have any questions you can send them to dontburntheday2021@gmail.com or message them to us via our facebook page www.facebook/dbtdpod
joining Don't Burn The Day is Krystal Monteros in this episode we will discuss the topics of mental health and domestic violence within the disability community this isn't a subject for young kids the national center for domestic violence can be reached at 18007997233 check out the links below Disability & Domestic Abuse information and resources from the Ann Craft Trust
information from the national domestic abuse hotline about abuse and the disability communities
Let's Talk Depression and Mental Health– Slick Chicks (slickchicksonline.com) Stand Up. Sit Down. Speak Out!– Slick Chicks (slickchicksonline.com)
in this episode we will discuss the opportunity that the film makers of the Netflix documentary Crip Camp had in being up for an Oscar Award. We share our opinions on the film and the fact that the community did not choose the film and we also discuss the history behind the film as well as Don't Burn The Day has coming up in future episodes for more information go to our Facebook page www.facebook.com/dbtdpod Find out about our Youtube live event https://www.facebook.com/events/477744356830358
We mention this book during the show along with the great Netflix documentary Crip Camp if you haven't already please check them out you most definitely won't be disappointed! Click the link below and grab the book now... IT IS EXCELLENT! https://amzn.to/3b1uX2k
in this episode DBTD announces some major things coming down the road that our fans will be interactive in one of these is a youtube live where we will take your questions on May 13th you can send your questions to our facebook page www.facebook.com/dbtdpod or you can email them to dontburntheday2021@gmail.com the show is at 6 eastern if you are a supporter of the show and would like to help out with producing better content heres how you can help out https://www.ablegifting.com/OH/SqTXvs
Former Miss Wheelchair Washington Krystal Monteros joins the show to talk about a wide range of topics but the most important topic she will discuss is hoping that Don't Burn The Day listeners could help find her 12 year old niece Destiny who has been missing for several days. We at DBTD know our community will do their best to help in this situation so if you are in the Tacoma, Washington area please pay special attention to this episode.
KC joins DBTD for a very honest discussion about both growing up as a sibling of a older brother with a disability and then becoming his caregiver. Shannon and AJ and KC have an array of topics surrounding the home healthcare industry and why the best thing for AJ is having KC as his full time aide. We hope you get some insight into what its like to be a sibling of someone with a disability. For more info please go to www.facebook.com/dbtdpod
on the next episode of Don't Burn The Day AJ's brother joins the show to give his perspective on growing up with a sibling with a disability as well as being his aide. The two will share funny stories from the years of travel and other experiences along the way. The interview will be out April
the DBTD team discusses the future of the show and how you guys could be a part of the show. In this episode we talk about future episodes and partnerships that we will be entering into to offer you the best content we can provide. Check our facebook page for updates. www.facebook.com/dbtdpod
Tonight the duo is back and we A.J. and Shannon are getting real about a topic that is close to both of us so Aging with C.P. you will hear our genuine thoughts and feelings on the subject and maybe even gain some insight into what we deal with on the daily so grab an afternoon snack settle into a comfy space and enjoy the conversation. Oh and don't forget to find us on Facebook and add to the conversation! We will be releasing a second part to this episode soon. www.facebook.com/dbtdpod
On the next episode of Don't Burn The Day, AJ and Shannon will be discussing aging with cerebral palsy and giving our experiences thus far along with sharing some funny stories along the way . This show will drop Monday April 5th in the afternoon
the Abilities Expo went virtual this weekend bringing together the top companies in adaptive technology as well as other companies around the disability community and brought them together for a two day event for more information go to abilities.com and find out where the expo is coming near you
in this episode we get a better understanding of life with ALS through a poem by Jamie Caglia- Berry called "Hurricane ALS" we also look at the cause of both ALS and PLS and contrast the two we also pay homage to Stephan Hawking who was diagnosed with ALS in 1963 and died at the age of 76 on March 15, 2018, we also look at the FDA approval of nurown that patients are hopeful will help with curing ALS as well as PLS. resources can be found at www.als.org and find out more about Jamie Caglia By checking out her website at www.berry-strong.org
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DBTD looks at the life of Terry Fox and the way his life would change how a country looks at cancer. Imagine being a famous high school athlete one minute and the next having your right leg amputated due to a form of bone cancer. Well this is the case for Terry Fox. And while he was hospitalized he saw the impact that cancer had on young people and wanted to find a way to help. So months later, he would put together a marathon of hope where he would try to raise money by going cross country and this is his story.
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in this episode of DBTD AJ tells the story of disability icon Ed Roberts and the legacy that he has left behind by starting the Center For Independent Living movement that has now gone global and opening the center on disabilities which is a thinktank for lecturers and other people wanting to research the effects of disability and culture
--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/dbtd/message Support this podcast: https://anchor.fm/dbtd/support
introducing the faces of a movement multi-episode series of DBTD that will profile the icons of the disability rights movement and this series will be separate from the other DBTD episodes we will profile icons like Ed Roberts, Judith Heumann, Terry Fox, Rick Hanson, and many many more. if you would like to nominate someone to be profiled please go to our Facebook page www.facebook.com/dbtdpod #DisabilityRights
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We invite everyone to check out an episode of Spastic Chatter hosted by Whitney Bailey featuring the DBTD co-host Shannon Horne she talks about real life with CP during this interview https://youtu.be/Y8e1UTevchs here is a link to the youtube episode in this update AJ also discusses future plans for the podcast
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it has been 44 days since New Year's Eve and I for one have put little work into my resolutions so I am creating the Dont Burn The Day Accountability Challenge to both help myself stay accountable for the goals that I want to achieve and I want to be an accountability partner for many of you. The way this will work is you will go to www.facebook.com/dbtdpod and let us know what your goals are and we will come alongside you and help you through the process of obtaining this goal the hope with this is to build a connection with other DBTD community members to help one another. there will be bi-weekly progress reports by AJ as well as a few video check-ins during the process. this is a nonjudgmental process we want to encourage each other but at times it will be a difficult process in saying all this if you are ready to be accountable come join us. Note this consists of all areas of life.
--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/dbtd/message Support this podcast: https://anchor.fm/dbtd/support
Alicia Searcy opened up about a great number of topics during this interview that we are happy to bring listeners Alicia started Fashion Is For Everybody in 2016 giving people the opportunity to strut their stuff down the runway while providing methods of empowerment through photoshoots and other outlets find out more about this work during this eye-opening interview. Find out more by going to the fashion is For everybody website www.fashionisforeverybody.com and follow Alicia's blog Spashionista
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while not always the case, the depression rates within the disabled community is 3 times higher than our able bodied counterparts. many of the reasons being lack of job security, difficulty getting around from place to place depending on your disability and needs, or pain that comes along with many disabilities, and the lack of connection in these times of covid-19 not being able to do your normal routine. in this episode AJ gives his thoughts on many of these different scenarios. two places you can share your story is www.themighty.com and www.medium.com I know for me getting y point across often makes me feel better and if you're looking for job information or have an idea to start a business go to Synergies Work – Where Ability Meets Opportunity they have class starting in march for starting up your own business and one final thought if you need any assistance please reach out to us at www.facebook.com/dbtdpod
resource Facts & Statistics | Anxiety and Depression Association of America, ADAA
Causes of Depression: Genetics, Hormones, and Trauma (healthline.com)
Common symptoms include:
- sadness
- tiredness
- trouble focusing or concentrating
- unhappiness
- anger
- irritability
- frustration
- loss of interest in pleasurable or fun activities
- sleep issues (too much or too little)
- no energy
- craving unhealthy foods
- anxiety
- isolation...
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AJ gives an update on the status of the podcast and we will be back very soon better than ever so keep coming to facebook.com/dbtdpod for questions of the day and to interact with other DBTD community members thank you for your support see you very very soon
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in this episode, AJ discusses many of the opportunities people have to get into a wheelchair and adaptive sports through organizations such as Life Rolls On Move United and the American Association of Adaptive Sports Programs. there have never been more opportunities for people to stay active and build a community of friends and a support system like there is today. so we at DBTD highly recommend these programs. 3 great websites https://www.moveunitedsport.org/sports/adaptive-sports/ www.brooksrehab.org/services/adaptive-sports/ www.adaptedsports.org For info on the two camps that I mentioned to look up camp dream warm springs and camp aska easter seals
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in this episode, the DBTD team discusses what it's like trying to get into the workforce with a disability. we discuss the benefits of starting your own business and discuss some ways to do so if that's an avenue you would like to take you may find more info on our FB page www.facebook.com/dbtdpod We recommend that you check out an organization called Synergies Work at their website www.synergieswork.org
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in this episode, the DBTD team discusses a wide range of disability hacks and different ways of doing things that our audience has suggested. we would like to thank you all for participating in this episode and if you have any more ideas on the topic please reach out to our Facebook page www.facebook.com/dbtdpod Thanks Kathleen Orsetti and Aryah Carr for your feedback
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AJ and Shannon look Back at the swearing-in of the 46th president Joseph R Biden and And his call for Unity. we also look back at the poetry of Amanda Gorman. We also ask the question What does the next 4 years look like for the disability community as well as the rest of our nation. Reminder to the Don't Burn The Day community to join the D.B.T.D. team at the New beginings virtual mixer Jan 23, at 6 pm est for information go to our Facebook page or host www.pattiandricky.com
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listeners note: everyone should consult with a practitioner before beginning any alternative regiment in today's episode AJ and Shannon discuss many of the different types of alternative medicine that may be beneficial for people with disabilities we discuss the different methods that we have tried and give our suggestions we hope that this is a useful episode for everyone and if you want more information please check out our Facebook page www.facebook.com/dbtdpod
Sidenote: regarding chiropractic and massage care, not everyone with a disability can have chiropractic care due to surgeries with rods or hardware in their body so consult with the physician before beginning but a chiropractor and masseuse can realign your body, and that way you won't hurt as frequently as before it might take a few treatments to see a difference I predict you will see a difference once you are realigned.
on the topic of CBD and cannabis, CBD is available in all 50 states.. there are over 100 cannabinoids found in cannabis and CBD is just 1 CBD which is short for cannabidiol is nonpsychoactive so you won't get the high or stoned feeling. There have been numerous medical benefits to using CBD such as helping with PTSD, stopping seizures in epilepsy, helps with chronic pain and spasms, helps with anxiety, and helps with Alzheimer's just to name a few. Other cannabinoids that are found to be beneficial also nonpsychoactive meaning no high feeling are CBG and CBN.
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in this episode of Dont Burn, The Day AJ talks with Greg Hogan on a wide range of topics including his role in keeping the Bibb County School system up and running in the age of online schooling during covid. he also discusses life as a father with a son who has hemophilia and the resources that are out there and he also discusses his passion for astrophotography. There are 30,000 to 33,000 of cases hemophilia in males in the US.
www.facebook.com/greghoganphotography
resource for info on this subject Hemophilia of Georgia
follow us on Facebook at www.facebook.com/DBTDPod
Join our community on Patreon by going to www.patreon.com/dbtd
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in this episode both AJ and Shannon hope to enlighten people about some of the issues surrounding many of the government programs that many disabled people are on we will go over some facts and figures that truly shocked us and we want to hear your stories surrounding this topic you may leave your comments on our Facebook page www.facebook.com/dbtdpod
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in this episode AJ discuses, the great topics that Dont Burn The Day have on tap for this week Wednesday we will be discussing government benefits and whether or not they are truly beneficial in many cases Thursday we have a guest Mr. Greg Hogan will be speaking about life having a son with hemophilia and how life has changed in this time we live in and Friday we will tackle whats all the hype with alternative medicine and does it benefit the disability community if you have any stories about of these topics please reach out via our social media channel facebook.com/dbtdpod and our Patreon page is: www.patreon.com/dbtd
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In this episode both AJ Martens and Shannon Horne open season 2 of Dont Burn The Day with a part New Years resolution show and as well as we give new listeners a background on the origins of Dont Burn The Day and what you can expect in season 2 of DBTD for more information you can go to www.facebook.com/DBTDPod if you have any questions or would like to be a guest on the show please reach out to us via email dbtdpodaj@gmail.com or shannon.cohost.dbtd@gmail.com we also have a patreon page which can be found at www.patreon.com/dbtd We value your feedback we would like to know what type of content you would like to see from us in season 2 leave your feedback on our Facebook page thank you all for your great support of our show we are very excited to be back for another great season
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the Don't Burn The Day team would like to thank all our listeners for a great year and we also would like to thank all our guest who made it informative year and we promise to provide listeners with more great guests in the coming year we at Don't Burn The Day has a safe and happy holiday and please stay tuned for more great content coming your way in the next few weeks. Follow us on Facebook at www.facebook.com/DBTDPod .
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A.j and Shannon give their ideas on how we can all give back this holiday season. The Don't Burn The Day team would like to wish everyone a Happy Thanksgiving and Holiday season. We invite you to send your Thanksgiving and holiday season images and stories to www.facebook.com/DBTDPod
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in this episode both AJ and Shannon give their final analysis of the election and look ahead to the Biden Harris transition and the years to come we will have more to say on this topic in the days and weeks to come as the inauguration draws closer
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Do you have a passion for helping others? if so find out how your experiences can help others. in this episode of Don't Burn The Day learn more about life coaching as a great business opportunity for people with disabilities
Joining Don't Burn The Day is Liz venendaal is a Fowler International Academy Certified Professional Coach, Certified Disaster Recovery Coach and Certified Master Trainer. As a woman living with cerebral palsy, she has built her career around her passion for helping others who feel limited by their circumstances. She has created her home-based coaching business while balancing the needs of her three beautiful children as a stay-at-home mom.
Liz is also the Director of Fowler International Academy of Professional Coaching's We Live Without Limits division. She and Fowler International's Founder, Berry Fowler, (who is also the founder of Sylvan® Learning Centers) see the tremendous need for rewarding, profitable career options for individuals whose circumstances require home-based work. Liz has personally felt this limitation first-hand and feels such joy to have found coaching. Now, through FIA's We Live Without Limits division, Liz provides remote coach training to others who want to break through that barrier just as she has and begin their own successful life coaching business from home.
Liz graduated summa cum lade from the New York Institute of Technology with a bachelors degree in the professional studies of business, behavioral sciences and communication arts. Liz has additional training and certification in alcohol and substance abuse counseling (CASAC-T) and applied suicide intervention skills (ASIST).
Prior to the birth of her children, Liz worked for a non-profit mental heath association in her local county. There she saw first-hand the positive impact that active listening, support and encouragement can have on the lives of others.
Liz feels compelled to raise awareness and help expand opportunities for individuals with disabilities. Towards those efforts, Liz has volunteered on local committees including the Network of Women with Disabilities, Accessible Long Island and Universal Design Long Island.
She is also a published author whose work has been featured by HBO, The Cerebral Palsy Foundation and The Mighty. She and her husband raise their son and twin daughters in Liz’s hometown on Long Island, New York.
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trump 214 Biden 264more info to come
From The Associated Press
The Associated Press has not called the RACE
264
270 to win
Donald Trump
214
Joe Biden
Democratic Party
253
50.3%
70,965,184
Donald Trump
Republican Party
214
48.1%
67,958,179
Show mo
Swing st
Biden
Trump
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The 2020 election coming down to the wire
- the two candidates for president of the United States are not yet Calling it Quits still many states whose votes have yet to be fully counted, I personally am having flashbacks to election nights from 20 years ago where The election came down to one state Florida and it looks like it will be different states this election year. With Michigan, Pennsylvania, and Georgia Bing just three of the Battleground States in 2020
In this episode, I give my view on a history-making time in our lives.
#TrumpvsBiden #USAVotes #closecallelection
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Don't burn the day show notes
The final days of the 2020 presidential elections are in full swing make sure you get your vote cast by Tuesday And if early voting is still available in your state I would highly recommend doing so very very quickly. I know this year has been a very strange year for many people but what have you learned over this past year but you didn't know previously and what would you still like to learn in the remaining months of 2020?
Book review actor Matthew McConaughey has recently published a book entitled "Greenlights" Yes while the book does talk about McConaughey's time as a Hollywood leading actor the book is A playbook for life of sorts with jokes as well as Poems and short stories. Green lights can be purchased wherever you buy books.
another book that has the chance to read was by Judith Heumann entitled “Being Heumann” The book tells the story of her role in the passage of disability rights in the fight still goes on today. I would highly recommend both of these outstanding books purchase at your favorite book retailer or Audible. Happy Halloween from don't burn the day be sure to check out our Facebook page at www.facebook.com/DBTDPod We would like to see how you’re spending your Halloween.
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The second debate was much more presidential compared to debate number one in my view, both campaigns made their case to the American public with just 10 days remaining. We at Don't Burn the Day does not endorse either campaign however the website linked below goes into vice president Biden's plans for helping people with disabilities over the next few days DBTD will look into Mr Trump's plans for this important segment of the American population https://www.joebiden.com/disabilities/#
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With the final debate just hours away I can wholeheartedly say like many people out there I'm sure they are still struggling to decide who they will vote for in just 12 days.
I speak as one voter who has not heard either candidate speak to the issues that truly matter to me as well as other members of the Dont Burn The Day community I speak on their behalf when I say we would like to hear from the candidate what they are both willing to do to help give people with disabilities opportunities to both earn a living wage and also be productive members of society without fear of their benefits being cut? This topic has yet to be addressed by either campaign I know they’ve talked about preexisting conditions but they haven’t spoke about other factors of life when it comes to life with a disability and the barriers many face.
Don't burn the Day would like to welcome We live with without limits to the DBTD Family
We Live Without Limits is an Online Life Coach Training and Certification for individuals who have faced challenges, overcome adversity and are ready to change the narrative on limitations by supporting others through coaching. We Live Without Limits is a proud division of Fowler International Academy of Professional Coaching, who has trained over 10,000 in 90 countries world-wide since 2008.
Are you living with a disability and ready to create your own home-based coaching business? Learn more by visiting www.welivewithoutlimits.com or contact Director, Liz Venendaal at Liz@fiacoaching.com or 631-440-1443 to schedule your Free Discovery Call Today! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/dbtd/message Support this podcast: https://anchor.fm/dbtd/support
In this episode A..J. and Shannon give you insight into some of the stories that you might also find to be important as well. If you are a fan of our show and would like to help out with any project. please go here https://www.ablegifting.com/OH/SqTXvs or email shannon.cohost.dbtd@gmail.com also dbtdpodaj@gmail.com
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Your voice your vote.
Wednesday night it was the number two in command turn to-step up on stage and make a case as to why Their candidates should be president. AJ. does this episode solo and share his thoughts on the Vice Presidential race
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Don't burn the day crew discusses last night’s first round of the 2020 debate "What a start it was and by far unlike any other in US history with the major winners being the TV networks. A.J. and Shannon also give advice and information to ensure that people know the voting process. The "Don't Burn The Day" podcast releases major news so listen to this episode
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DBTD gets out the vote
The newest episode of don't burn the day we discuss different ways to vote in different organizations that are out there to help you register to vote we talked about the importance of voting in general.
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Don't burn the day had the opportunity to speak with Doug Jackson deputy director of The stable account never before has it been easier for people with disabilities to be able to save money .Mr. Jackson walks Don't burn the day of listeners through the process of how to set up a stable account in what it can be used for as well as many other important topics surrounding stable accounts. If you would like more information about able Act and stable accounts You can go to www.stableaccount.com
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A few tips for combating dyslexia and other learning disabilities
In this episode of don't burn the day, I will give you some options on ways to overcome learning disabilities as well as different ways to make things easier when reading. Tip number 1for parents search learningally. org & your child up for the program If your child is of school-age this is a great tool for them with books from grade level 0 to 12 contact your child's school for more information to see if they are involved with learning ally. tip number two for those that like reading newspapers search out Newsline which is a 1-800 number that you can dial into it will read newspapers over the phone from home 50 states and around the world TV Guide listings and much more. #advice #helpwithDylexia
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Today on don't burn the day we will be discussing cerebral palsy and the things that parents can look out for in their child to recognize the signs of Cerebral palsy, signs your child is not hitting Milestones like children of the same age group activities such as rolling over as well as Sitting up on their own these are just a few examples we touch upon in this episode. We talked about the many support groups are out there to support people with cerebral palsy the doctors will be working alongside you and your child throughout their life to keep them healthy. Find more information about United Cerebral Palsy by going to www.ucp.org as well as easterseals.org just to name a few of the charities that will be able to help along the way. For information about IEP'S check out https://www.facebook.com/GiversRUs/photos/a.144676546088279/740218326534095/ On October 8&9 Get the latest news about Cerebral Palsy at www.cerebralpalsyconference.org
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In this episode Shannon tells us about her experiences with the adapted sports charity called Life Rolls on more info can be found at www.liferollson.org she also chats about adaptive fashison and working for the largest adapted fashion website on the web at www.pattiandricky.com
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Interview with adapted extreme sports enthusiasts, mother, and former Miss wheelchair Florida Shannon Horne on today's Don't burn the Day we will talk about her advocacy work through the years motherhood and what she's doing these days for the adaptive clothing website www.pattiandricky.com Which is the largest website for adaptive clothing on the internet today Serving fashionable people of all disability types.
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,In this episode of don't burn the day, I will talk about a complex issue that people with disabilities face every day with members of their families and support team and the many complicated topics that loved ones of an individual with a disability often fails to notice. #CerebralPalsy #life
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Discussing a few pet peeves when dealing with the public. I go in to some examples of how not to approach a person with a disability. One of the biggest pet peeves I have as well as many other I know is when a member of the public doesn't take in account that we are adults and many cases treats the person with a disability as if they were a child. I go into detail about some of the craziest interactions that I have had throughout the years. If you have any of your own stories that you would like to share, please share them at www.facebook.com/dontburnthedaypodcast or you leave me a voicemail at www.anchor.fm/dontburntheday also if you would please rate our show wherever you listen to your podcasts thank you
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In the new episode of Don't Burn The Day, I cover a variety of topics such as my view on the medical insurance rules when it comes to physical therapy and the number of visits a patient can have before the patient is deemed to be cured. With birth defects like cerebral palsy and other physical disabilities, there is no cure, there's just maintaining a healthy fitness routine and with insurance companies saying that after X number of visits you are magically “cured”, also the need for long-term rehab for people with cerebral palsy and other neurological disorders whose insurance will only pay for about ten sessions of physical therapy, as well as other topics. "Don't Burn The Day would like your view on the subject either leave a voice mall at www.anchor.fm/dontburntheday or leave a comment on our Facebook page. www.facebook.com/dontburnthedaypodcast
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joining don't burn the day this Friday Ryan Brown who is one of the most successfully coaches of the American association of adapted sports program he will discuss his impact on his team throughout the years as well being a pillar of the Warner Robins GA community
#Adapted sports #YOUTHSPORTS #CHAMPIONSHIPS
This podcast will be up Friday afternoon. For more information about the American Association of Adapted Sports Programs go to www.adaptedsports.org and for more information on the Houston County Sharks you can contact Ryan Brown or Christy Jones
To support the podcast go to www.anchor.fm/dontburntheday/support or www.paypal.me/AaronMartens thanks for your support of Don't Burn the Day podcast. You also want to check out the art work by Martens Arts the website is: www.martensarts.com
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I look back at the first year of the podcast as well as talk about the 30th anniversary of the Americans with Disabilities Act below is an interview done by NuMotion with one of the disability activist that helped in getting the ADA passed as well as letting people know the struggles of people with disabilities I also ask for your suggestions on future topics
https://www.numotion.com/blog/july-2020/14-questions-with-judy-heumann?fbclid=IwAR3desmlY_Sa1-2l7_JdQ0tRg9CM_vnL4MpCoKjf9tasDAFaAZ1XfZLH3UU
Here is the link to the book "Being Heumann"
https://www.amazon.com/Being-Heumann-Unrepentant-Disability-Activist/dp/0807019291/ref=sr_1_1?dchild=1&keywords=being+heumann&qid=1596138611&sr=8-1
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We've all had some changes to our daily routines due to the COVID-19 outbreak how has your life been affected? what are you doing to minimize drastic changes? also how are you remaining positive? in this episode i give some ideas on these topics and much more to share your ideas you may go to www.facebook.com/dontburnthedaypodcast or leave a message here on anchor.fm/dontburntheday your participation is greatly appreciated thanks and don't burn the day. Don't Burn The Day can be heard on your Alexa via apple podcast .
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In this episode I answer questions that I'm often asked on the topic of Cerebral Palsy, Topics include cause of C.P. , types, helpful information on support for new parents log on to The United Cerebral Palsy website located at www.ucp.org every state has a local chapter I suggest going to your states local chapter for more information
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I was asked by DisabilityHorizons.com how and why I began Don't Burn The Day and I put together this podcast to answer some of those questions if you have any questions that arent answered here you may reach DBTD on Facebook at www.facebook.com/dontburnthedaypodcast you can also check out my photography and my fiance's artwork at www.martensarts.com
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Whatever happen to the concept Do Unto Others As You Would Have Them Do Unto You? Has this concept been lost? I hope after seeing the events over the past couple of years and more recent events that this concept can come once again and focus as we seen more and more communities standing together for a common purpose. My hope is that more change will come spring out of this movement not only the topics of police brutality and race and move into other issues that also need to be addressed such as homelessness and many others. Please send your thoughts to anchor.fm/dontburntheday as well as facebook.com/dontburnthedaypodcast
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In this episode I give my opinion on the images and protests across the country and share my view on how we could work together to solve some of these major issues that America has dealt with for years. Id like to hear your feedback you can send me a voicemail on Anchor.fm if you are a DBTD listener please consider supporting my podcast by going to www.anchor.fm/dontburntheday/support and subscribe for as low as $4/mo. I would greatly appreciate the support and you can also share your opinions on this important topic by going to our Facebook page www.facebook.com/dontburnthedaypodcast
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In this episode I review a book by Youtuber Shane Burcaw as well as give best wishes to all the armed forces and speak about my birthday coming up . www.anchor.fm/dontburntheday/support
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Thanks to all family members whom day in and out stand in the gap with a family members with disabilities, your support doesn't go unnoticed
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Ways to stay sane during the past little while listen to Audible books, watch informative Netflix and Gaia documentaries, and stay connected through Zoom and other technology. These and many more topics are covered in this episode of Dont Burn The Day
www.martensarts.com is offering fans of the program 10% off anything site wide use the code: KLDFJV during checkout
https://www.youtube.com/watch?v=ybcQbpSVo3c
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A wide range of topics on this episode
1 response to covid-19
- Bringing new meaning to live concerts in the "Age of Covid-19"
3. "Movie time" Review of Tiger KING
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In this episode, I look at the lack of "Real people with disabilities "in the media as well as college and pro sports. The Tv show "Speechless" starring Micah Fowler is one of the first television shows that I have seen with an actual person with a disability that is not an able-bodied actor. I recommend watching Speechless to anyone that wants a comedic look at life with cerebral palsy.
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