Hadley Presents: A Conversation with the Experts: Recent Episodes
Hadley (podcast@hadleyhelps.org)
Listen in as we get the inside scoop from experts on a wide range of topics unique to vision loss. We will ask the questions that get to the heart of the matter for you... And have some fun along the way. Our host is Ricky Enger.
Have an idea for a show? Contact us at 847-784-2870 or podcast@HadleyHelps.org
For many, vision loss means giving up the car keys and with that can come complexity, inconvenience, and frustration, among other challenges. We chat with two members of the Hadley community, Dia Kraft and Tara Perry, as they share some of the creative solutions they've found. From rural areas to urban environments, they offer some valuable perspectives about growing more comfortable and confident while navigating life after vision loss.
Do you have transportation advice to share? Please share it with your Hadley neighbors. Email us at Podcast@HadleyHelps.org or leave us a voicemail at 847-784-2870. We will revisit the topic in a future episode and share more insights.
Listen in as Hadley team members share tips, tools, and their favorite apps to help make shopping a little easier for people with vision loss.
Resources mentioned in this podcast: Hadley’s Grocery Shopping Series Hadley’s Taking Notes Workshop Hadley’s Seeing AI Series
Braille is often only associated with how people with no vision are able to read books. But there are many other ways braille may be of use, even for those who still have some vision. In this episode, members of the Hadley community share how they have found braille to be helpful in their everyday lives.
Charles Bonnet Syndrome, visual hallucinations that can accompany vision loss, is often overlooked or worse, misdiagnosed. We chat with the founder of Mary Carmel’s Light, an organization dedicated to supporting those facing Charles Bonnet Syndrome (sometimes called CBS).
Previous episode on this topic: Vision Loss and Charles Bonnet Syndrome
Website: Mary Carmel’s Light
For many, losing vision can make everyday kitchen tasks more challenging and even scary. Debra Erickson, founder of The Blind Kitchen, was no different. Then she decidedly faced her fears and learned some tips. Listen in to hear how Debra grew to love cooking now more than when she was fully sighted.
It's quite common to feel like you're all alone when facing vision loss. And feeling lonely can make the vision loss journey all the rougher. That's why Hadley created a community forum to share stories, insights and bits of inspiration to remind us that we aren't alone on this journey.Ricky Enger and Marc Arneson spend time reintroducing us to Insights & Sound Bites, a community-generated show where others facing vision loss share what has helped them cope and adjust. Find out why fans tell us they listen to this show over and over again when feeling down.
With the Aira app, people with vision loss connect to vetted, live, expertly trained assistants. Using the camera on your smartphone, they walk you through whatever task you're struggling to see your way through.
Join us as Judy Davis shares her personal experience of facing a hurricane and its aftermath with vision loss. She shares how she managed to stay safe, informed, and connected throughout the ordeal.
Listen to our previous podcast: Disaster Preparedness with Vision Loss
The Foundation Fighting Blindness funds research to find treatments and cures for eye diseases. They also host local chapter events where you can meet others going through similar challenges. Join us for a conversation with Ben Shaberman, Vice President of Science Communications.
From navigating airports to making the most of airline assistance services, we talk about ways to make air travel with vision loss a little easier. We're joined by James Ashworth, vice president of customer care at Southwest Airlines, who is also living with macular degeneration.
Medical appointments can be stressful for anyone. When you add in vision loss, these appointments can feel overwhelming. From navigating buildings and rooms to filling out forms and signing your name, there can be lots of stumbling blocks. Listen in as we share tips and advice to help make managing medical appointments a bit easier.
February is Glaucoma Awareness Month, and we are revisiting our informative 2021 conversation with Dr. Jullia Rosdahl, a glaucoma specialist from the Duke Eye Center. Listen in as we ask Dr. Rosdahl common questions we hear about glaucoma, its risk factors, and treatment options. PLUS: at the end of the interview with Dr. Rosdahl, we've added on an episode from our sister podcast, Insights & Sound Bites, featuring Angela Delgado sharing her story about living with glaucoma.
Join us as we chat with Ron Peterson, a retired scientist and engineer who is also a member of the Hadley community. Ron found a way back to doing what he loves, nature walks and volunteering after losing his sight to glaucoma.
Vision loss can be emotionally overwhelming. In this episode, we chat with a clinical psychologist who is legally blind herself, Dr. Ann Wagner. She shares how learning from and connecting with our emotions can bring about healing and transformation.
Preparing for a disaster is important for everyone. But for people with vision loss, it requires some extra thought and planning. In this episode, we share some ideas on how you can prepare.
Did you know that veterans are eligible for vision services and equipment through the Veterans Administration even if their vision loss developed many years later and was not as a result of service? Learn more as we chat with a representative of the Hines VA.
Voting can be tricky if you've lost some vision. In this episode, we discuss a variety of ways to cast your ballot, no matter your level of vision.
The Bright Focus Foundation funds research to find cures for macular degeneration and glaucoma, among other conditions. In this episode, we learn about their glaucoma and macular degeneration monthly chats. These sessions with scientists are open to the public and offer insights into the latest breakthroughs, treatments, and promising research on the horizon.
Artificial Intelligence (AI) has a lot to offer people with vision loss. Whether it's reading menus, describing pictures, or even narrating scenery, AI can make a big difference. This week we chat with Steven Scott, host of the Double Tap podcast, about some of the best AI-powered tools out there… so far. Link to Double Tap on Apple Podcasts.
When the doctor says, "there's nothing more I can do for you," what next? Who can help you make the most of your remaining vision and learn how to live more comfortably with vision loss? We break it down for you.
This week we talk to Dave Epstein, the visually impaired creator of the All Terrain Cane. He shares about his life with a progressive eye disease and his love of hiking. These two pieces of Dave lead him to develop his unconventional cane.
When you have vision loss, scams can be even more challenging to avoid. Listen in as we get some tips and tricks from Veronica Lewis who runs a low vision assistive technology website.
Be My Eyes CEO, Mike Buckley, joins us to talk about how this free, smart phone app merges technology and human kindness and how it's now using AI to describe the world in front of you.
Recently retired, David Tatel served for decades on the US Court of Appeals for the D.C. Circuit. He also happens to be visually impaired. In this episode, he and Ricky talk about his recently written memoir, a book about his life as a judge, a husband, a father, a grandfather, and how all of these roles intersect with his experience with vision loss.
This week we talk smartphone tools and when you might want to use the different options. Jennifer Shimon from the Wisconsin Office for the Blind and Visually Impaired joins Ricky.
Sometimes, navigating life with vision loss goes a bit sideways. Things don't always turn out exactly as we've planned, and it can help to just laugh at these strange situations.
We've shared several episodes of listeners' stories, what we're calling vision loss bloopers. Today, Ricky Enger and Doug Walker share some more of these bloopers along with a few of their own.
Prevent Blindness' patient advocacy program empowers people facing vision impairment. Patients learn how to promote change with their physicians, their families, drug companies, and even policy makers.
Ever thought about getting a guide dog? Listen in as we chat with members Jeff Flodin and Ed McDaniel about their experiences with guide dogs and some common misperceptions.
The National Library Service has a free talking book program for anyone in the US with vision loss. Tonia Bickford, an advisor from Michigan's talking books program, joins us to discuss how to get the most out of this free service.
This week we learn more about visual hallucinations that sometimes accompany vision loss, a condition called Charles Bonnet syndrome.
Sometimes vision loss can make us feel less secure. This week we talk about personal safety with Hadley's Chief Program Officer, Ed Haines.
For many living with vision loss, watching TV is less enjoyable as they can't see what's happening on the screen very well anymore. Audio description fills the void by narrating key visual elements. Listen in as Ricky chats with Hadley member and avid audio description user, Judy Davis.
Listen in to our conversation with Dr. Mondal, a low vision optometrist and professor at the University of Wisconsin. We chat about what to expect from a visit to a low vision specialist and the kind of help they can offer.
Have you listened to Hadley's community-generated audio podcast yet? In this episode, Ricky and Marc Arneson, Hadley's Director of Community, share a few stories from Insights & Sound Bites and discuss how to contribute your own story. Insights & Sound Bites | Hadley
Listen in as artist Chloe Duplessis explains how a degenerative eye disease changed, and didn't change, her life and love of art. "I thought art required sight. I was wrong."
Dr. Judy Box, a Hadley member living with macular degeneration, shares her tips for managing those important conversations with your eye doctor.
In this episode, the Hadley team talks all things gifts. Giving them, getting them, what's on their wish lists, and how vision loss may, or may not, impact these activities.
Friendships often change when one has vision loss. Whether it's adaptations to the activities you enjoy together, asking for help, or turning that help down … there are conversations to be had. Let's tune in as two Hadley members, Eugenia DeReu and Tara Perry, share their experiences with what's changed for them — and what's stayed the same.
Losing some vision can make for shopping challenges. Here are a few mishaps that Hadley members have run into. Have your own to share? Email us at podcast@HadleyHelps.org
This week we chat with the chief technology officer from Envision as he shares how their free mobile app or camera-enabled glasses can help those with vision loss. It speaks aloud written information, describes surroundings and objects, and even tells you who's nearby.
Lots of questions, concerns, and stereotypes connected to use of the white cane. In this episode, we address several of them from past discussions on the topic.
Listen in as Hadley's Director of Community, Marc Arneson, chats with Hadley members Bill Massey and Gregory Peterson about their participation in Hadley's new Peer-to-Peer program. To learn if getting a peer connection is for you, call us at 1-800-323-4238.
Listen in as we chat with animal lovers Debbie Worman and Sheri Robinson about the joys and challenges of caring for a pet when you have vision loss.
Listen in as Hadley member, Wendy Spencer Davis, shares why she decided to learn some braille and how it's helping her in everyday life.
Ed McDaniel, a psychologist with low vision, joins us to talk about common emotional triggers people with vision loss face and how to recognize and manage them.
Jessica Grogan from the American Diabetes Association joins us to talk about managing your blood sugar with vision loss.
Tune into our chat with Sarah Clark, a visually impaired marriage and family therapist, as she offers her unique insight into some common family dynamics that often make adjustment more challenging and how to navigate through them successfully.
Join us as we chat with Hadley member, Kris, about her experience living with vision loss in a senior community.
Listen in as Hadley staff share their real-life bloopers—times when things didn’t quite go as planned.
Listen in as Pastor Scott Himel shares his advice for participating in religious services no matter your level of vision.
Join us to learn about how ScripTalk technology translates medication labels into speech and where you can find a participating pharmacy.
Join occupational therapist from Duke Eye Center, Fay Tripp, in a conversation about bioptic glasses—what they are and who can benefit from them.
Listen in as we chat with birding expert Freya McGregor who shares her tips on how you can enjoy this hobby, no matter your level of vision.
Listen in as Hadley's Doug Walker and Ricky Enger chat about how they use GPS in their daily lives. From walking directions to finding items or assisting a driver by navigating a trip, GPS can be a very handy tool.
Listen in as we discuss some common situations that can make us feel unsafe and share ideas on how to address them. We're joined today by Christy Ray and Ricky Jones of STRIVE4You.Org
Unfortunately, it's not uncommon for feelings of shame to creep in when we've lost some vision. Join social worker Jeff Flodin and psychologist Ed McDaniel, both visually impaired themselves, as they explore where these feelings come from and how they have worked through these emotions in their own lives.
Listen in as Dorrie Rush of OE Magazine shares how she resisted using a white cane for years, the stigma she feared, and the confidence and security she found once it was in her hand.
Learn how CVS pharmacy customers throughout the US can access a free service that reads aloud prescription medication information.
Join us as we chat with author Hannah Fairbairn about the tips and tricks she has learned to take some of the stress out of holiday get-togethers, no matter your vision.