Living With Scanxiety: Cancer Podcast: Recent Episodes
Rosaria Kozar
Join Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is to inform, support, and promote hope.
Season 6 Episode 2 When Scott, a childhood cancer survivor turned advocate, and Rosalie, the director of government relations and advocacy from St. Baldrick's Foundation, joined me, Rosaria Kozar, the conversation was nothing short of inspiring. Our dialogue cut through the complexities of advocacy, unraveling how crucial policies like the STAR Act shape the landscape of pediatric cancer care. We shared the often unseen struggles that follow the victory of 'beating' cancer — the continuous health battles, risks of secondary cancers, and the psychological toll on families.
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Season 6 Episode One: Join me at the mic with Dr. Pei Wang, who is the Vice President of Clinical Development and Technical Operations, and Dr. Nicole Nunez, who is the Manager of Regulatory Affairs and Patient Engagement of Eureka Therapeutics. Eureka Therapeutics is a clinical-stage biopharmaceutical company located in the Bay Area of California, focused on developing novel therapies for cancer treatment, specifically solid tumors such as liver cancer.
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Season 5 Episode Join me as I interview Stacey of The Rare Patient Voice! I am so excited to publish this episode! She joined the Rare Patient Voice team in 2021. She is personable, empathetic, and caring about childhood cancer. Additionally, she builds long-lasting relationships with patients and family caregivers. The Rare Patient Voice connects patients and caregivers with research opportunities and more.
More about the Rare Patient Voice:
They are celebrating our 10th anniversary and have raised their patient and family caregiver reward to $120 an hour. Rare Patient Voice has over 100,000 participants in our panel and over 3,000 Referral Partners.
For more information and show notes:
www.livingwithscanxiety.org
Organization Website:
www.rarepatientvoice.com
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Season 5 Episode 7- Join me at the mic with Ashley Brooks. She is down to Earth and breaks down her experience as a young survivor. She discusses the ups and downs of her experience and how she is rising above her late effects.
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Season 5 Episode 6: Meet me at the mic with Bonnie Trainer for an authentic and raw conversation about what it means to be a caregiver and caretaker. Hear her suggestions for parents and also identify with her on childhood cancer treatment. [This was recorded before the end of treatment]
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Season 5 Episode 5: Join me at the mic with Chris Woodruff, the CEO of Lighthouse. Lighthouse is a non-profit located in Georgia. Lighthouse's mission is to strengthen families living through childhood cancer by offering restorative retreats and helpful resources. Tune in to hear about what they can provide for your family and the history behind what they do.
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Season 5 Episode 4 Join me at the mic with Meg Gallagher, who discusses everything from friendship and the end of treatment. What she says about childhood cancer and aya cancer might surprise you. She gives a fresh perspective on life with and after cancer and advice for caregivers—a remarkable young woman and survivor of Leukemia.
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Season 5 Episode 3 Join me as I interview Adriana Lewin, a momcologist of a fantastic survivor. Hear her story of triumph during hardship and what she is up to now in the childhood cancer world. She is revolutionizing the coming together of caregivers through mental health and more.
For Show Notes Visit:
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Season 5 Episode 2 Join me with Jessica Nelson of My Cancer Story. She is not only a podcaster but a thriver following a battle with Thyroid Cancer. As a thirty-year-old AYA patient, she struggled with cancer on multiple levels. Now thriving, she tells her story here on Living With Scanxiety.
For Show Notes:
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Season 5 Episode 1: Join me while I speak with Kris Jerome, CEO of Anna's Pals believes that childhood cancer patients need a safe environment, away from the clinics and hospitals, to bond with family and friends. Listen and learn how they want to provide a place for immune-compromised children that will improve their morale and mindset.
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Season 4 Episode 7: Join me as I interview activist and advocate for childhood cancer, Chad Ehlers. We discuss everything from his presence on social media to caregiving his child Mia, who is currently battling Leukemia.
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Season 4 Episode 6: Listen and find out how you and your child can benefit from their services for sarcoma patients. A philanthropy professional, Alyssa O’Driscoll has been at the helm of the Sarcoma Alliance since 2017. She has a family history of sarcoma and knows the important role patient advocacy has when facing a difficult diagnosis. Alyssa’s experience includes leadership at healthcare nonprofits such as Harvard teaching hospital, Dana-Farber Cancer Institute, and Intermountain Healthcare.
She received her undergraduate degree from the University of Kentucky and holds both her MBA and MPA. In May 2021 she completed her Nonprofit Management Certificate from Harvard University Extension School.
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Season 4 Episode 5: Sit with me as I chat with a board member of the non-profit, Stupid Cancer, David Richman. We touch on AYA cancer, Stupid Cancer, the non-profit, his experiences with oncology, and his work as a humanitarian. For all the details of this episode, tune in. The childhood community can't miss this one!
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Season 4 Episode 4: Join me as a chat with author and momcologist Samarrah Clayman gives a summary of her son's journey as a warrior of brain cancer, sibling, and more. She also discusses her book. Her story is touching and she is vulnerable discussing her pediatric cancer journey as a mom.
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Season 4 Episode 3: This is part 1 with Dr. Frances Baumgarten of Fran's Place: Center for Cancer Counseling. In this part, we discuss all things childhood cancer in relationship to parenting and caregiving. Tune in to hear more.
For Show Notes Visit:
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Season 4 Episode 4: Part II with Dr. Frances Baumgarten of Fran's Place: Center for Cancer Counseling. In this part, we discuss pediatric cancer, and how her Çancer for Counseling can help all people involved in the journey on a mental health level.
For Show Notes Visit:
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Season 4 Episode 2: Self Proclaimed coffee-loving, cancer Survivor, advocate, positive thinker, and philanthropist joins me at the mic for an intimate look into his story. We discuss so much, from hiding his diagnosis and how parents can better communicate and his fall and rise as an advocate.
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Season 4 Episode 1: Join me as I talk with the mother of Vincent The Conquer. He is currently battling pediatric brain cancer. We discuss all things cancer and Vincent's journey as a cancer warrior. Everything from neurosurgery to research and even social media is touched upon through her perspective. Learn how to better help your child through her story as a momcologist.
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Season 3 Episode 12: Join me as you get an inside look at the non-profit Strong Little Souls. From customized care packages to wishes, they are worldwide accessible. But they offer so much more. Please tune in to find out what they can do for your child with cancer, also how this pediatric oncology support started.
For Show Notes:
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Season 3 Episode 11 Join me for a therapeutic look at what trauma can do to a relationship and how to hold it together with Valerie Hamaker; LPC, NCC, CPT, SATP. She is also the host of Voices About Living, which she will summarize during this show. So tune in and hear about siblings, marriage, and more during the face of childhood cancer.
For Show Notes Visit:
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Season 3 Episode 10: Join me with Joel, angel Mia Ojeda’s father. He was born in El Paso, Texas, and raised in Sunland Park, New Mexico. Joel discusses a father's role and expectations from his experience in the childhood cancer world. Pediatric oncology was new to him while medicine was not; he works in ophthalmology surgery. His vulnerability and his suggestions for the community are the first of their kind on Living With Scanxiety. Tune in because this episode will not disappoint!
Show Notes:
www.livingwithscanxiety.com/shownotes
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Season 3 Episode 9: Join me as I interview Josh Aryeh, the CEO and founder of Smiles Through Cars. Learn about his mission, legacy, and devotion to making children smile. Whether it's dressing up, coordinating events, or more, he’s there for kids with cancer to smile. Childhood cancer has made a huge impact on his calling in life, and tune in to see how.
For more information, visit:
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Season 3 and Episode 8 Sit down with your host Rosaria Kozar, the mother of a warrior that battled Rhabdomyosarcoma. She answers numerous questions about her podcast, Living With Scanxiety, the Cancer Podcast that focuses on giving support, providing information, and promoting hope. The aim is at caregivers of a child who has cancer. But this episode focuses on the 'why' of the podcast.
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Season 3 Episode 7 Join me with CEO Ali Hornung of Glimmer of Hope Foundation. We discuss the inspiration, the value of children having a connection to normalcy during childhood cancer, and more. It is an amazing organization with a bright future as it helps more and more children every day!
For Show Notes Visit:
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Season 3 Episode 6 This is part II with Juanita Prada about late-term effects after surviving Leukemia twice as a young child and later as a teen. She gets personal with her own struggles and how they made her who she is today, an advocate, and more. Join me, tune in to find out how and why.
For Show Notes and More Visit:
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Season 3 Episode 5
This is part one of a two-part series with Juanita Prada. She is a two-time survivor of ALL (Acute Lymphoblastic Leukemia), a childhood cancer. Join me as we cover her story, her struggles, her triumphs, and her passion for advocating for late-term effects. She overcame a stroke, language barriers, and more! Tune in to find out more about how this young child from Colombia dealt with culture shock, cancer, and now is in the process of dealing with side effects known as late effects.
For Living With Scanxiety Show Notes Visit:
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Season 3 Episode 4: Join Tyler Stover, the CEO of Hope vs. Cancer. His love for Crackerjack temporary tattoos as a child led him to love tattoos as an adult. This love led to a unique idea, giving a tattoo to a child with cancer to wear. Seeing the child's response to the Disney tattoo took his selfless heart and pointed it to the pediatric cancer world. Find out how this small idea branched out to Tyler's larger mission through Hope vs. Cancer and the ripple effect of improving children's mental health.
Living with Scanxiety Show Notes for more information:
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Season 3 Episode 3. Join me for this one! Cerys Davies is a warrior and survivor of Osteosarcoma. She gives an intimate look into transforming her life as an amputee and what it means to have cancer in high school. She talks about bullying and more.
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Season 3 Episode 2
Join me as I interview American Childhood Cancer Organization's Public Relations Coordinator, Blair Scroggs. We don't keep it simple in this interview. We look at the organization's inner dynamics, the progress since it started, and where they see themselves in years to come. There is so much more than meets the eye, and you'll be pleasantly surprised by what they have to offer you and your family.
For Show Notes Visit:
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Season 3 Episode 1: We start this season off with a BANG! Grace Eline is 12 years old. Her ability to tell her own story as a pediatric warrior is done with such vulnerability and poise. Join me as this young lady tells her story of beating cancer and becoming an advocate through her own non-profit, With Grace Initiative. She also represented the Childhood Cancer initiatives at a White House State of the Union Address.
New to season 3, the ending has something special in store for you.
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Season 2 Episode 28: Maintaining side effects through nutrition is key. We all know food choice, appeal, or lack thereof is limited during treatment. Nichole Giller joins me for an episode from the LWS vault on how to manage symptoms due to childhood cancer treatments, such as chemotherapy and radiation. These symptoms include but are not limited to diarrhea, vomiting, and mouth sores.
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Season 2 Episode 27
Join me with advocate Brandi Benson. She not only shares her story of AYA cancer, Ewing’s Sarcoma but also of the acceptance of the 'new Brandi.' She went from a very active and positive individual to a depressed one. But listen and find out how she overcame her trauma and became the amazing and inspirational person she is today.
Show Notes Please Visit:
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Season 2 Episode 26 Part II With Efren Gonzalez, MD, the director, Ocular Oncology Service, and Director, Pediatric Retina Program at Boston Children's Hospital. Do you wonder what happens when your child is taken into surgery? Join me as Dr. Gonzalez discusses the specifics of eye removal surgery.
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Season 2 Episode 25 Part I With Efren Gonzalez, MD, theDirector, Ocular Oncology Service and Director, Pediatric Retina Program at Boston Children's Hospital. Join me as we discuss the ins and outs of eye cancers. We focus on Retinoblastoma.
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Season 2 Episode 24. Join me as I discuss mental health with seasoned Doctoral Fellow Alexandra Neenan. We discuss singular and co-existing, comorbid diagnoses. We cover a lot of ground on mental health concerning childhood cancer including therapy. You are sure to learn a lot, much of which applies to your own struggles.
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Season 2 Episode 23
Join me as I interview author Rosaria Calafati. It is her goal to better the lives of children that are struggling with anything, including cancer. Her books' heroes are bald and highly identifiable with children struggling with cancer. So tune in to hear more.
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Season 2 Episode 22: Ashlie Gauthier, a warrior, speaks on AYA cancer in the childhood cancer community. Also, we focus on friendships of varying degrees. How different friendships are affected by cancer and how new ones are made. Please join me for an intimate portrait of a warrior that is wise beyond her years.
For Show Notes Visit:
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Season 2 Episode 21 Join me as I sit with Catie, the Family Service Manager from Christopher's Haven. She opens up about her experience as a mother with a child, Kenny, that needed treatment. She discusses the ups and downs and the strain it can put on a family. The most important part of his treatment was radiation. She chose to stay at Christopher's Haven, a short walk from the clinic. Catie was taken back by all they have to offer in contrast to standard communal living with their styled and fully furnished apartments and loft area. She took to it so much she decided to stay but now works directly with the kids as a manager.
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Season 2 Episode 20 At 18 years young, Matthew, a writer, and runner, shares his story of a reoccurrence of brain cancer. While they are separate forms of cancer, both are located in the same region, except this time, it is terminal. Join me as I interview Matthew and hear his story and positive outlook on life, dreams, and hopes.
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Season 2 #19 Join me as I interview warrior Ava Paige, known for her music and grace. She was well on her way to achieving her dreams when Leukemia stopped her in her tracks. She is an amazing soul that shares a song with us, her story of childhood cancer (AYA), information about her charity, and the importance of taking a stand as a teen. This is a great one you do not want to miss!
For Show Notes Visit:
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Season 2 Episode 18: Join me at the mic with Jackie McMullen, a momcologist of the cutest little warrior, Ollie. Ollie is currently battling ALL Leukemia. But Jackie’s not here to only discuss his story. She is going to talk about the choice she and her husband made to grow their family. Since the recording of the interview, Jackie had a healthy little boy. She comes with an open heart and talks about mental health, maintaining a solid marriage through this trauma, pregnancy, and her own outlet through her podcast A.L.L. Mama Care
Show Notes:
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Season 2 Episode 17-The wife of the director of Frozen I and Frozen II, Shelley Buck, dives deep into AYA cancer alongside her best friend, Kathy Curtis. You will hear about anticipatory grief, personal stories, and grief itself. Everyone’s way of grieving is different; as you will hear in this episode, hearing others' stories can sometimes jumpstart a healthy way for our own grieving. But this episode also does more than that; it discusses sharing a story through a book the two best friends authored about AYA warrior Ryder Buck, "Leave Your Light On.” His legacy will leave a permanent imprint in the world, listen and find out why.
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Season 2 Episode 16 Part II Join me at the mic for the second part of this episode with Luby Myrthil. In this episode, she discusses her son's diagnosis, pregnancy, and survivor's guilt. Tune in to find out more.
Show Notes:
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Season 2 Episode 15 PART I Join me at the mic with Luby Myrthil, a momcologist, and lawyer, out of Tampa, FL. She discusses why Estate Planning is very important for those in the cancer community or just in general. Those of us with pediatric age children or adult children facing cancer truly need to look into Estate Planning. Living Wills, Proxy's, and more are all described in full.
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Season 2 Episode 14 Join me at the mic with Erin Murray who started Comfort Cuddles for children with medical complexities, like cancer. She has donated numerous blankets that are designed specifically for the child receiving their blanket. That's right the child at the hospital, or home chooses the blanket's style! Tune in and find out more.
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Season 2 Episode 13 Join me as I interview Scott Kramer, who's inspiration sets on his daughter's battle with cancer. Maddie was a girl with such strength and had a genuine love for life. She adapted quickly to every challenge she faced. After losing Maddie, Kramer and his wife decided to honor her by writing two books and founding the non-profit, Dancing While Cancering.
For Show Notes, Please Visit:
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Season 2 Episode 012 Join me at the mic with Katie Taylor, a certified Child Life Specialist. She discusses what it takes to become a specialist, their role in their care team, how they work with children, even those with compromised immune systems, and more.
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Season 2 Episode 11 Grace B Charrier, survivor and author of "Impossicant!: Quirky Inspirational Cancer Survivor," is my guest, and we are talking about all things radiation. I felt that an adult survivor would be best suited because little ones with childhood cancer can't explain what they are going through. With Grace's words, you can understand what your child will experience, has experienced, or is experiencing. She also has experience discussing cancer on her YouTube channel, Cancer Convo's With Grace B, catering towards adult cancer. Tune in for this fantastic episode on a rarely touched upon subject, radiation.
For Show Notes:
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Season 2 Episode 10
I am so excited that orthopedic surgeon, Dr. Alex Christ of both Keck Medical and Children’s Hospital of LA joined Living With Scanxiety for a look into the world of pediatric orthopedics and childhood cancer. We discussed everything limb salvage versus amputation, operating rooms, and a breakdown of the type of resections. It is all around a fantastic episode with a very well rounded, published, and an educated specialist.
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Season 2 Episode 9 -Camille, 17, was diagnosed with Osteosarcoma at the age of 10 and since then she has relapsed 4 times! Now living with what her oncologists call chronic cancer she dives deep within herself to maintain balance in her life. Join me for a vulnerable and honest portrait of a young woman facing what no one should face. See how she copes with scanxiety, utilizes the hospital supports, and more.
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Season 2 Episode 8: Join me at the mic with CEO of Campaign One At A Time. We chat about the childhood cancer community in regards to this truly organic-based dream-making non-profit. Yes, they grant wishes, but they do so much more. But what is special about this non-profit is not only what inspired Brodi Nicolas to start it but also the relationship the organization maintains with each child. Please tune in to find out more about this new-ish organization and how awesome their CEO is in relationship to his inspiration, motivation, and more.
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Season 2 Episode 007: Part II with Christine Handy. She discusses all aspects of courage as she joins me at the mic for this episode. Again, as seen on NBC, Fox News, Fox News Radio, and more, she is a motivational speaker following her journey as a warrior. Join me in this episode to discuss an important topic she covers, often, within her speeches, and that is courage. She dives deep into how it is like a 'muscle' and how to gain it so we can continue this journey as caregivers for our children battling cancer.
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Season 2 Episode 006: Join me at the mic with author and cancer survivor Christine Handy. This episode is like nothing we’ve done before on Living With Scanxiety: Cancer Podcast. Christine conveys the emotional aspects of her journey as a warrior and how it affected her and her children. While this gives us a glimpse into the world we so badly wish we could have, taking cancer away from our child, the take away based on her feelings is what I would imagine everyone’s to be, listen and find out why.
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Season 2 Episode 005: Join me at the mic with Ellie Waters. She is a medical student and an advocate for AYA, Teen Cancer, and childhood cancer. Her main focus is to inform not only cancer patients but also caregivers and doctors about the mental health aspects surrounding the diagnosis of cancer. She was diagnosed with Stage IV Alveolar Rhabdomyosarcoma nearly five years ago (as of July 2020). Transcripts are published for those that are hard of hearing.
For Show Notes Links and More:
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Season 2 -004- Kate Blair is Miss America's Outstanding Teen of Maricopa County in Arizona. In this episode, she recounts her feelings after her sister, Elizabeth, was diagnosed with childhood cancer (Non-Hodgkins Lymphoma Stage IV). Kate watched as her sister, two years younger, faced cancer and its' side effects. Kate also discusses her current life goals as an advocate. Tune in to find out more about her story and how she advocates for children with cancer.
Please Visit This Link for Show Notes and More:
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Season 2 Episode 003: Join me as I interview the 'guru' of pediatric oncology massage, Kerri Padgett. She well versed in all aspects of the pediatric oncology world. She was thrust into the cancer world when she heard, "Your son Kai has cancer." After he lost his battle, she decided she wanted to help the community and the children. She chose massage therapy. Tune in to hear why it is so beneficial, when to consider it, and how it can apply to your child.
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Season 2 Episode 002 - Join me for the interview with Jorge Fernandez. He is a social worker for the Dana Farber Cancer Institute’s pediatric oncology program located in Boston, MA. He takes some of the guesswork out of his area of helping patients. Working on the emotional, behavioral, and supportive side for caregivers and children with a cancer diagnosis allows him to support each family differently and meet their individual needs. Tune in to find out what a typical day is for him, what exactly he does, how he fits into a family’s journey, and more.
For Show Notes and Links Visit:
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Season 2- Episode 001 Heather, a mother of a survivor of childhood cancer, discusses three surprises for her from start to finish of her son, Matt's diagnosis and treatment. She is a mother of two and also offers insight into how she made sure her daughter, Lucy, did not feel left out. Tune in to hear about the ups and downs and suggestions she has for parents.
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035- For the good days, we all want our child to have a smile reaching from ear to ear. Sometimes as parents, it is difficult to provide that, however, join me for a discussion with Amy Reid and find out how it can be made accessible. Due to Covid-19, so many small businesses had to make changes, and the difference she made has a direct impact on the pediatric cancer community. Our children can finally participate and socialize with children their age doing fun and exciting activities. Tune in to find out more.
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-034- Lindsey Pacios, the founder of Team Cure, was interviewed concerning her part in helping children with cancer. She brings smiles to children all over. She communicates directly with parents and provides a bit of happiness in the most difficult of times. Tune in to find out her inspiration, what exactly she does, how she can help your child, and her long term goals.
For Links and Show Notes Visit:
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-033- Join me as I interview Katie, a survivor of childhood cancer. While we discuss the lows of long term survival, we also talk about the highs. She was diagnosed at such a young age most of her story is told to her, but she deals with the side effects daily. She has a witty personality that makes you easily connect with her and want to hear more about her accomplishments and struggles.
For show notes, please visit:
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-032-This episode focuses on opening the lines of communication between you and your child’s oncology team of doctors even though it might be painful. Sophia Zilber, a writer, joins me to discuss her coping style, personal story, and why opening the lines of communication is so important.
For Show Notes Please Visit:
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-031- Join me for an interview with Casey O Anaru, a mother of a baby who has Rhabdomyosarcoma. Mason, her son, and the family are navigating treatment and COVID. Tune in for an inside look.
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-030- Join me as I interview Sara Manjikian, working as a nurse for COVID-19 patients in the ICU at Brigham Women's Hospital in Boston, MA. We discuss protocols, testing, personal protective equipment, working overtime, and more.
For show notes visit:
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Please note Sara is in her internship and graduates in May 2021 as a Registered Nurse.
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-029- Join me as I speak with Lisa Moore, RN, with 40 years of experience. She is currently working as a home nurse for children with pediatric cancer, with referrals coming from the Jimmy Fund and other children's hospitals. While many of these children are vulnerable in general (e.g., neutropenia), she reviews new policies with the COVID-19 crisis. She assures parents their children will be taken care of to the best of her ability.
For Show Notes Visit:
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-028- A teen cancer survivor, Sergio Gabaldoni, discusses his story of being one of the first recipients of a procedure that saved his life following relapse. He was so courageous in his battle, which led him to overcome cancer when his oncologists said otherwise. He was told he was going to die, yet with one final treatment option took a leap of faith. Cancer never took over his life until today, in a positive way. Now, he has become a motivational speaker and plans to author a book about his journey.
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-027- Summer, inspired by her late brother who battled pediatric cancer, started a company known as Brave Gowns. Join me and find out more about the Brave Gowns mission, how to get one, and hear her story. Her gowns provide not only comfort and privacy/modesty through their construction but also hope.
The episode was recorded before the United States becoming number one in cases of Covid-19, so now she is heavily involved in making face masks for those in need. Everything she makes is manufactured in the USA.
For Show Notes Please Visit:
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-026- Join me while I interview a singer/songwriter and four-time survivor of childhood cancer, Ryan Hamner. We review the initial diagnosis, the importance of hobbies, and focus on side effects before and after treatment. At the same time, taking chemotherapy and going through radiation, he explains how his relationship with music grew and how family played a role during his time in treatment leading to an honest legacy of his grandmother. He works hard to give back to the community and has essential advice for families. The main way he gives back is through Bamba Boxes or boxes that contain small gifts for children undergoing treatment. This episode also includes information about his life as a survivor and what that means. Stay tuned until the end of the episode for a real treat from Ryan!
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-025- Jessica Scutt's son was diagnosed with a rare form of kidney cancer. She struggled through the ups and downs of diagnosis. As a mother homeschooling her children, she not only had to find help for herself and her son, Tucker, but her other children as well. Tucker is a fun-loving boy that seemed to be okay before he started to show increasingly strange behavior. Mother's intuition stepped in after reading a Saint Jude's pamphlet asking for donations on one side and listing symptoms of cancer on the other. She pushed her way towards a diagnosis, and thanks to that, her son has successfully completed treatment. As a result of her overcoming cancer as a family, she founded Tucker's Torpedos, which aims at helping other families and children with the strain cancer puts on the family both psychologically and financially.
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-024- Christina Gonzalez of Go Gold For Childhood Cancer shares her passion for helping children in an eight-minute episode. You will learn how to support her, join in the pediatric cancer community through stories she shares on her social media, and how she can help you raise money for you're child's treatments or treatment. She has had success in helping raise awareness and funds for pediatric oncology patients as you will hear in this episode. She completely embodies the idea of community and I am so thankful she took this time for this interview.
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-023- Join me as I interview Jenna Smith, the mother of Angel Emery, about her journey through diagnosis, battling cancer, parenting, and community. She discusses the ups and downs of treatment. Jenna gets into the difficulties she had to overcome to speak up and question the oncologists. She became her very young child's voice. Jenna discusses the challenges behinds scanxiety and the gut-wrenching feelings waiting for results. Most importantly, she discusses the mission of the Emery's Memory Foundation. The mission centers on helping other pediatric oncology patients and families.
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-022- Join me as I interview the mother of micro-premies, one of whom was diagnosed with cancer. Her child, Sophia, faced incredible odds and at the time of the recording, December 2019, she was being weaned off of oxygen and currently still had a trach. Sarah was faced with the most awful thing a parent could go through followed by a diagnosis of childhood cancer with Sophia, she was vigilant in her daughter's care. It was with community she was able to care for her daughter. And now, later, she describes life outside the hospital and advocacy for those battling childhood cancer and children with a tracheotomy.
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-021- Join me as I interview Lyon Herron, who has dealt with tumors and cancer starting at the age of 7, now twenty years and counting. His life's mission is to spread awareness and hope through his journey. We discuss his journey, his body's rejection of chemotherapy, transfer from pediatric to adult oncology, his good days, his goals, and more. You will truly get a glimpse of his positivity, and hopefully, you can apply it to your journey. The first time he was diagnosed with childhood cancer was at the age of seven with colon cancer. Life is fragile, but Lyon is a true warrior taking on a positive mental attitude stretching throughout these 20 years. His mother and father pushed him to take on his disease and live life to its' fullest.
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-020- Fabian Bolin is the co-founder of the War on Cancer app. Join me while he tells his story about his diagnosis of Leukemia. Also, how this not only turned him into an advocate for patients and others alike but how it prompted him to start a movement, The War on Cancer. Tragedy to triumph is visited in this episode as we discuss mental health, community, Post Traumatic Growth, creating a sense of normalcy, the coping skills he utilized, and his mission. While my episodes are geared towards caregivers of children with childhood cancer, I also encourage all family members and members of the AYA cancer community to join in. Cancer does not stop after treatment, and this APP provides a community for you and your child throughout your entire journey. You have to check it out!
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-019- Have you ever wondered what is Chemotherapy or even Radiation and Immunotherapy? Well, oncologist Dr. O'Neill is back to tell you all about them and a little bit about her daily life at work. You will gain a wealth of knowledge listening to this pediatric oncology based episode concerning treatment. Treatable children and kids with cancer are bound to experience one of the three; chemotherapy, radiation, or immunotherapy, so it is essential to be informed about what they do and what they are. So tune in as Dr. O'Neill of Boston's Dana Farber Cancer Institue describes these therapies for you.
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-018- Join me as I interview author, advocate, life coach, and momcologist Christina Johnson. Her son, David, was diagnosed with childhood cancer (High-Risk Neuroblastoma) due to circumstances, discussed in the episode, she felt alone. She used her journal, now a book, to cope and release her emotions. She also knew she had to stand up for her son, as you do your child because, before diagnosis, no one would listen. She went to the emergency room, pediatricians, and finally saw a pediatric oncologist to get the care David needed. She not only explains her story but also gives tips to parents on how to manage through this horrible time, diagnosis of pediatric cancer, treatment of cancer, and life after treatment. Cancer does not have a stopping point, and she gets into details about what this means. So please tune in, I think you can get a lot out of this episode on coping skills and also identifying with a fellow parent.
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017- Join me while I interview Kelly West, a 25-year veteran Registered Nurse (RN) and a board-certified pediatric hematology oncology nurse. But she is currently working on infection control in relationship to childhood cancer at a hospital in Colorado. Despite her current position, she is representing herself not the hospital. Her mission in this episode is to help parents going through or those that have gone through the trauma of childhood cancer. She is very passionate about her work, which led her to start her own business, The Resilient Soul, to help families. She also discusses the feelings of flight, fight, or freeze as a reaction to one's child being diagnosed. More interestingly, she has become profoundly interested in neuropsychology. So tune in to find out how she can help you, parents, and more about neuropsychology.
The first 9 minutes describe Kelly's background and how she is able and why she is able to help parents.
At 9 minutes Kelly really gets into the 'meat' of the topics.
At 17 minutes Kelly addresses the trauma that parents feel and how to address it.
At 23 minutes Kelly addresses self-care and how it should be defined.
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- 016 - Join in for an interview with Julie Abel. She describes the ins and outs of the Make A Wish process. Everything from popular wishes to the history of Make A Wish is covered. Also, have you ever wondered if a wish can be fulfilled in the child or pediatric oncology unit, well she describes that here too? Everything from the referral process from a parent or caregiver and their doctors (oncologists, pediatricians, etc…) are explained. From trips to Florida to meeting famous movie stars to trips across the country are described. Also, what are the limitations? Well, Julie of the Massachusetts and Rhode Island brach discusses that too. Remember this is an international organization so as Julie noted, you might be eligible and not even know it so, fill out a referral to find out.
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-015- Kenny Clutch, a father of four, found his purpose in life following his son’s diagnosis of cancer. He was a dancer and still is but not as active as he once was; instead, today, you can find him reaching out with motivational and inspirational speeches. He is also an advocate for children, like his son, that has Down Syndrome. Let’s just put it out there, this man is amazing. He has been on shows such as Steve Harvey, Good Morning American, BBC, and more. Join me in listening to how his son's journey with pediatric oncology or cancer (specifically Luekimia) changed him, the pain on initial diagnosis, how his family of four managed to stay together through his son’s treatment, and his journey to happiness.
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-014- By utilizing the community and outside resources your child can be a 'kid' outside of the hospital. Jasmin was diagnosed with cancer, Leukemia, as a child. She was apprehensive about participating in Camp Ronald Mcdonald, but when she attended, she made life long friendships with other pediatric oncology patients. Varying activities and onsite healthcare services with doctors and nurses make this free experience safer than a camp for healthy children. Camp Ronald McDonald has weeks specific to Spanish Speakers and also weeks dedicated to just the children versus the whole family. One of the beautiful parts of this camp is the degree of community it promotes; once a child/family has attended, they are still considered family and can take part in alumni events. Jasmin loved her time at camp so much she is now the Family Relations and Recruitment Coordinator.
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013 - Pam Bernard was an Early Childhood Center/Daycare Director when she had a student with cancer. The child was allowed to attend based on the oncologist's approval. However, she and the daycare played a pivotal role, ensuring there were constant communications and a partnership between the pediatric oncology patient, parents, and the teachers. Social workers were welcomed into the daycare to help educate teachers on what to expect. Not every child can attend daycare, but if your child can or does at any point, this episode will benefit you greatly.
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012 - Sara Quiriconi, better known as Live Free Warrior, is a survivor of childhood cancer, motivational speaker, and model. After listening to this episode, parents should have a better understanding of what a child might think and feel during treatment, how to communicate with their child, how a child might feel after survival in the oncology world, and a how they feel about the procedures. After extended stays in the pediatric oncology unit and surviving childhood cancer, Sara has come to take on cancer with a different understanding, acknowledging this is her one life, and she has to live it to its fullest. She authored the book "Living Cancer Free," which highlights her ups and downs, many of which are discussed in this episode. As a side note, she offers her opinion for oncologists to better help those with medical issues compacted with a cancer diagnosis.
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011 - Dr. May Carter, a pediatrician, explains the role of the pediatrician following a pediatric cancer diagnosis and after remission. She discusses the sensitivity pediatricians have during treatment for kids with cancer inside and outside of the doctor's office. Additionally, Dr. May Carter expands on how pediatricians take care of their patients (survivors) following chemotherapy, radiation, or other types of treatment that lead to remission and beyond. Due to the sensitivities and possibilities of reoccurring cancers or relapse in children exposed to the world of oncology, they are treated slightly different when a seemingly simple issue might arise.
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010 - Mette de Fine Licht, was a teen when diagnosed with cancer. She drew from the strength of the community during treatment. Currently, she is a writer and advocate located in Denmark. Friends and supportive parents surrounded her. Mette realized the real value of friendship and love, even though it could not cure her. She used their support to separate herself, whenever possible, from, as she calls it 'sick Mette.' Mette also discusses the emotional struggles and loss of self when all people lose hair due to cancer treatment. And to wrap up the episode, she gives some helpful hints for parents of newly diagnosed children.
I had a cold during the recording so I apologize for my voice being off.
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009 - Author Angus Olsen found himself lost in the world of pediatric cancer. Thrust into the caretaker position due to unusual circumstances; he had to adapt quickly. In his new job as a caretaker, Angus used doodles and art to help his young daughter and himself understand the world around them. Today, he uses his talents as an artist to help others that are in his shoes. He has authored several children's books used throughout many hospitals. I hope you will learn from his story and understand why explaining cancer using his strategy can be helpful for younger children.
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008 - Talented Author Tara Geraghty and public speaker/figure explains the insights within her book, Making Cancer Fun: A Parent's Guide. Tara provides us with her story, her daughter's battle with neuroblastoma, and how she 'dealt' with it. She turned her coping technique into a prevalent book amongst the pediatric caregiving oncology community. I hope you can learn that while not everyone copes the same way, you need to choose your path. Celebrating milestones is one of many means to make kids with cancer emotionally comfortable during treatment, and I highly suggest you give this book a shot.
Join me as I interview her, and we examine what 'fun' means. She is a delight to listen to and has so much support to offer for parents and caregivers. I think you will enjoy hearing her approach and maybe make it your own.
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007 - Your son has just been diagnosed with a rare form of childhood cancer, and you feel lost and defeated. Well, that's what John, an English professor in New Hampshire, discusses in this episode. With the help of his 'tribe' and family, he chooses hope. Because of his choice, his son is now in remission, and John has learned not to pay attention to statistics. He also offers some advice and support for parents of newly diagnosed children as they enter the world of pediatric oncology.
This episode conveys to parents or caregivers a sense of security in going against their initial fears and choosing hope. While hope does not mean everyone will be like Henry and survive, it does give your child the basic fundamental need from a caregiver, positive reinforcement throughout their journey.
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006 - Poetry and medicine unite. Dr. Portman of the Moffitt Cancer Center in Tampa, Florida, explains how she ties poetry into her services as the head of the Department of Supportive Care Medicine. She reads her poem, Scanxiety, and also gives listeners a real treat by reading her favorite poem intended to stir up conversation in the medical community. As a professional in Supportive Care medicine, she ends the episode by explaining the differences between hospice and palliative care medicine.
I hope you find this portrayal of scanxiety, through poetry, as a way to help illustrate and cope with your feelings. And I hope you gain a new understanding of what palliative care is versus hospice. Join me as I interview her and remember to subscribe to my podcast.
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005 - What can a child oncology patient eat? How should they eat? Do they have particular foods they might enjoy? Well, in this episode, Nichole Giller will explain the ins and outs of nutrition during treatment. Remember to follow the doctor's orders, but this episode will definitely stir up some conversation for listeners.
I hope you enjoy this episode with Nichole Giller and form a new understanding of nutrition during treatment. She is passionate about healthy foods and oncology. I wish I had this knowledge during my son's journey.
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004 - What is momcology? So many terms will surface as you progress through treatment, and one is momcology. While it can apply to dads, in this case, we interview a momcologist, Liz Cirillo. In this episode, we learn about her journey and also how she came across the term momcology. Being the mother or father of a cancer patient is not easy, but Liz Cirillo shares her story of how she adapted to the worst time in her child's life.
I hope you enjoy this episode with Liz Cirillo. I hope that you can identify with various topics she discusses and maybe even identify with some of her 'survival skills' towards your journey. Join me as I interview her and remember to subscribe to my podcast.
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003 Join Rosaria Kozar as she interviews David Hagan, the Executive Director of Why Me in Worcester, MA. He will discuss the ups and downs upon initial diagnosis and how connecting with other families helped him overcome so many of the obstacles that deal with pediatric cancer.
Your host, Rosaria Kozar, hopes you will identify with some of the aspects David shares and also learn the importance of connecting with other 'cancer' families.
If you would like show notes about this episode head to:
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-002- Join Rosaria Kozar as she interviews Dr. O'Neill, a researcher, and practitioner from the Jimmy Fund's Dana Farber Cancer Institute located in Boston, MA. Dr. O'Neill gives a summary of the four most common types of scans. She also helps us to understand scanxiety; what it means and ways to help alleviate it.
I hope you enjoy this highly informative podcast regarding scans and scanxiety. It brings a mix of the medical aspects of scans as well as the human aspects of scanxiety. Join me as I interview her and remember to subscribe to my podcast.
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001 - Why should you listen to Living With Scanxiety is the first thing you will find out in this introductory episode.
If you are a parent or caregiver of a newly diagnosed child with cancer, a child going through treatment (chemotherapy, immunotherapy, radiation, etc...), or wrapping up treatment this show is for you. Additionally, family members, friends, and those who are just curious are encouraged to listen. The ultimate goal is to expose you, the listeners, to things you might experience or question along the way. I explain, in this episode, my journey with my son, Brody, and more. I also share with you methods of contacts and release information about upcoming guests.
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Join Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is to inform, support, and promote hope.
Support the show (https://paypal.me/Scanxiety)