The Celiac Project Podcast: Recent Episodes
Michael Frolichstein and Cameron Weiner
The Celiac Project Podcast: 2 Guys Talking Gluten Free--hosted by Michael Frolichstein (Director of The Celiac Project Documentary) and Cam Weiner. Join Mike and Cam as they discuss living with celiac disease and navigating a safe gluten free lifestyle. They will feature special guests in the gluten free community, discuss current events and topics of interest.
Mike is back from an unforgettable Alaskan adventure! In Part 1 of this special two-part series, he shares the highs and lows of traveling to Alaska, practical gluten free travel tips, and the incredible experience of boarding the Celiac Cruise. From navigating unexpected travel challenges to breathtaking glacier views, Mike and his family enjoy unforgettable family moments while whale watching, and indulging in amazing gluten free meals at sea.
Registered dietitian Erin Kenny, founder of The Celiac Space, returns to the podcast to discuss what happens when people with celiac disease still don't feel well, even after following a strict gluten free diet. Erin explains the differences between celiac disease and non-celiac gluten sensitivity, common conditions that can mimic gluten exposure, how to interpret celiac blood work, and why balancing gut healing with living a full life is so important. It's an informative conversation filled with practical advice for anyone navigating life with celiac disease.
Cam shares highlights from a spring road trip to Asheville, NC, and the Smoky Mountains of Tennessee. From dedicated gluten free restaurants and incredible comfort food to mountain golf and scenic views, he recounts a memorable gluten free travel experience packed with great eats, fun adventures, and plenty of tips for anyone planning a visit to the area.
Mike and Cam tackle a wave of misinformation and negativity swirling through the celiac and gluten-free community after recent viral comments dismissed gluten-related illnesses as "not real." They unpack why these jokes miss the mark, how misinformation spreads, and the importance of pushing back with facts, humor, and unity. Along the way, they explore divisions within the gluten-free world, social media fatigue, and why authentic community support matters now more than ever.
Celiac Cruise founder and friend of the podcast, Maureen Basye, joins Mike and Cam to share her incredibly exciting new sailing opportunity! Maureen reveals plans for the first ever fully gluten-free large cruise ship experience in 2028, sailing through Ireland, Scotland, and the British Isles. They also discuss the growth of the Celiac Cruise community, upcoming destinations, and what makes these vacations so special for people living gluten-free.
Mike's daughter Jessica returns to share her college decision — and the school that checked every box from academics to safe dining for celiac students. Hear how she narrowed down her choices, weighed the vibes and the food, and ultimately found her new college home for the next 4 years. Plus, Mike, Cam and Jess dig into what makes her chosen school's gluten free program stand out for students managing food allergies.
Mike and Cam love to kick off Celiac Awareness Month with their annual "Celiac State of the Union!" This year, the guys reflect on the current state of the celiac community, from the inspiring youth movement and advocacy efforts at the University of Chicago to the latest updates on FDA labeling, and the psychological toll of hypervigilance. Mike and Cam break down the major wins and ongoing challenges of the past year, taking a closer look at the future of celiac research, the disappearing "gluten-free" labels on over-the-counter meds, and a hopeful outlook for the next generation of advocates.
Mike, Cam, and producer Ellen return for a spring update featuring Jim's recovery saga and his surprising search for a gluten-free Z-Pak. The guys explore new research linking antibiotic-disrupted microbiomes to non-celiac gluten sensitivity and share a UK listener's story on international diagnosis hurdles. They also celebrate a long-time listener who was inspired by the podcast to launch her own gluten-free business to help others. Mike and cam wrap up the episode with a look at the "human factor" in restaurant safety, and sobering global data on celiac diet adherence.
Buckle up! Today, Mike and Cam are joined by TCP Inner Circle member and world traveler Lyle Smart to recap his recent "magical journey" through Uruguay and Argentina. Lyle shares how he navigated long-haul flights with limited gluten free meal service and discovered why Buenos Aires is widely considered one of the most celiac-friendly cities on the planet. From 100% dedicated steakhouse dinners to finding safe empanadas in a Panama airport, Lyle proves that a celiac diagnosis shouldn't keep you from seeing the world.
Grab your pens and your gluten-free snacks! Today, Mike and Cam are filling out the first-ever Sour 16 Bracket. We're ranking the most annoying, inconvenient, and downright difficult parts of living with Celiac disease to find the "Most Sour" winner of them all. From travel hurdles to the mystery of the "May Contain" label, we're covering it all with plenty of laughs and a little bit of madness.
Play along with us: Head over to our Facebook page to see the bracket and tell us—did your #1 seed get upset?
Join Mike and Cam as they recap an epic four-night "travelogue" exploring college campuses through the eyes of two Celiac travelers. Mike's daughter, Jessica, is officially an admitted student to a number of schools, and the search is on to find the perfect fit—both academically and in the dining hall! From "head-exploding" fish and chips at Fretboard Brewing to authentic Mexican fare at Maize at the Station, Mike shares the best gluten-free finds across the University of Illinois, Indiana University, and Miami of Ohio. Beyond the food, they dive into the realities of vetting campus dining halls, managing "awkward" student tours, and the emotional journey of a parent helping their child navigate a major life transition while staying safe and gluten-free.
In this Winter News & Notes episode of The Celiac Project Podcast, Mike and Cam share powerful listener updates and real life celiac journeys. From insurance battles and refractory celiac disease to mental health, OCD, and navigating college gluten free, this episode highlights both the challenges and the progress happening in the community. They also discuss advocacy efforts around FDA labeling and helpful resources for checking whether medications are gluten free.
Mike and Cam are joined by Anne Moon and Dr. Annemarie Rompca from the Seattle Children's Celiac Disease Program, to discuss how comprehensive, community-focused care can help kids and families thrive after a celiac diagnosis. They cover early challenges, mental health support, youth mentorship, community outreach with restaurants, and the future of celiac research — all through the lens of both medical expertise and lived experience.
🎥 You can also watch this episode on YouTube at youtube.com/@celiacproject
https://youtu.be/8JFEw9x-l4g
In this episode of The Celiac Project Podcast, Mike checks in on Cam to see how his return to college life at the University of Illinois Chicago is going. Cam shares the realities of living in a dorm, navigating a required meal plan with celiac disease, and advocating for safe gluten-free food on campus. Cam shares what's working, where systems fall short, and the challenges of getting glutened and securing academic accommodations. A candid, informative conversation for anyone with celiac disease, or anyone helping a student prepare for college life gluten-free.
*]:pointer-events-auto scroll-mt-[calc(var(--header-height)+min(200px,max(70px,20svh)))]" dir="auto" tabindex="-1" data-turn-id= "request-WEB:c843e682-b89c-40c7-bc84-bcc53f20c568-2" data-testid= "conversation-turn-6" data-scroll-anchor="true" data-turn= "assistant"> Mike and Cam kick off 2026 with more "Stump Mike and Cam" fun as they continue tackling questions from the Beyond Celiac Harris Poll. They break down what the public gets right about celiac disease, where misconceptions still exist, and how those perceptions compare to the real-life experiences of people living with celiac disease. Mike and Cam share personal insights, revisit key community questions, and look ahead with optimism for greater awareness and understanding in the year ahead.
Mike and Cam close out the year with a fun and thought-provoking New Year's episode. They dive into surprising results from a Harris Poll by Beyond Celiac, for a "Stump Mike and Cam" style podcast, revealing some stunning insights on how the general American public really understands celiac disease. With gluten-free beers in hand, they react to questions about dining out, travel, and social situations while sharing honest takes, a few laughs, and reflections on where awareness is improving—and where there's still work to do. Join them for a festive, eye-opening way to ring in the New Year and celebrate 2025!
Mike and Cam are back with a fun bonus holiday episode! Fresh off a road trip to Vermont, Cam shares all the gluten-free highlights from the journey, including amazing food stops, surprise skiing and snowboarding, and the legendary Vermont sock sale that inspired the entire trip. From Chicago Pizza packed for the drive, to a standout gluten-free brunch in Buffalo, to jaw-dropping views of Niagara Falls, this adventure is filled with great eats, unexpected laughs, and a few wild animal encounters. Cam also talks about discovering incredible craft ciders and tips for handling awkward moments when restaurants aren't as safe as expected. Join Mike and Cam for a cozy holiday show packed with gluten free travel tips, foodie finds, and plenty of stories from the road.
Mike and Cam are thrilled to welcome back one of their all-time favorite guests: Erin Smith, the Gluten-Free Globetrotter! Erin shares her top holiday travel and party tips, from smart airport food strategies to navigating gatherings with confidence. She also gives an update on life in Montreal, talks about celebrating Christmas in Mexico, and offers practical advice on researching safe spots to eat both locally and abroad. A perfect episode to help you stay prepared, calm, and gluten-free throughout the holiday season!
Mike and his family head to St. Louis for his daughter's softball tournament—but when rain washes out most of the games, the real action happens off the field. With unexpected downtime, Mike goes on the hunt for the best gluten-free eats the city has to offer. From mouthwatering Missouri-style BBQ to a creative spin on tacos, plus a surprise college visit complete with a gummy-bear bonus, this trip delivers plenty of delicious discoveries. Join Mike as he turns a soggy weekend into a gluten-free adventure packed with standout finds!
Mike and Cam are thrilled to welcome author and illustrator Jennifer Schiano to the podcast! Jennifer opens up about her personal journey before and after her celiac diagnosis and how she turned her challenges into creativity. Her new book, The Bread Devil's Guide to Gluten Free, uses humor, heart, and art to help children understand celiac disease while sparking meaningful conversations about living gluten free.
In addition to listening to the podcast, you can also watch it on YouTube @celiacproject
https://youtu.be/cbtCkH4UjH4
Mike and Cam are back with their Fall News and Notes! They kick things off with exciting research on a potential new blood test that could diagnose celiac disease without a gluten challenge. The guys also share powerful listener stories—from Jim's ongoing health journey to Julie's late diagnosis and resilience. We wrap up the show looking at some interesting research coming out of UC Santa Barbara on wheat. Is it possible there will be a gluten free strain of wheat in the future?
Mike and Cam are thrilled to sit down with Dr. Deanna Kelly, Professor of Psychiatry at the Maryland Psychiatric Research Center at the University of Maryland School of Medicine and co-author of the groundbreaking new book Get Your Brain off Grain. In this engaging conversation, Dr. Kelly dives into the latest research linking gluten to psychiatric disorders and explains how gluten can impact the brain in both people with celiac disease and those with non-celiac gluten sensitivity. From groundbreaking science to real world implications, this episode uncovers how disruptions in the gut can directly affect the brain and why understanding that connection is crucial for anyone living with celiac disease or gluten sensitivity.
You can also watch this episode on YouTube:
https://youtu.be/Uy6gwv_9FE0
Cam is kicking off a brand new chapter as he heads back to school at the University of Illinois at Chicago (UIC)! He shares how he’s setting himself up for success—from meeting with administrators about accommodations, to working with dietitians and dining staff to ensure safe gluten free meals. Mike and Cam dive into the challenges, preparations, and excitement of Cam’s upcoming semester. There are great lessons in this episode for anyone who needs to advocate for themselves or a loved one in any situation!
Mike and Cam keep the summer vibes going in part two of their end-of-summer celebration, packed with gluten-free highlights. Cam shares some exciting updates as he heads back to school, while Mike reflects on the growing strength and connection of the celiac and gluten-free communities. And of course, no party is complete without a toast—this time with Holidaily’s crisp and refreshing Fruited Blonde Sweet Melon.
Summer might be over, but Mike and Cam are keeping the vibes alive! They crack open some special Holidaily brews (thanks to Gluten Free Dave and the Celiac Cruise) and throw a little end-of-summer party. From unforgettable eats to gluten-free adventures, there was too much fun for just one episode—so consider this Part 1 of the celebration!
Mike and the crew hit the road for a summer college tour in Indiana—finding not just great options for Jessica’s future, but unforgettable food along the way! Between campus visits, they chased down dedicated gluten-free havens, pizza and pasta worth writing home about, a gummy bear factory sugar rush, and plenty of classic family road-trip shenanigans.
Mike and Cam are excited to welcome Dr. Maureen Leonard back to the podcast! Dr. Leonard is Clinical Director of the Center For Celiac Research and Treatment at Mass General Hospital for Children (MGHfC) and an Assistant Professor of Pediatrics at Harvard Medical School (HMS). Dr. Leonard shares an update on her groundbreaking work on the CDGEMM study, which follows infants from birth through childhood to learn more about the many factors that can contribute to the development of celiac disease. She shares her thoughts on some of the other exciting advancements that are taking place in celiac research and treatment. Plus, Mike and Cam find out about how she navigates her busy life as a doctor living with celiac disease.
Mike and Cam are traveling again and it's a crazy coincidence that they are both in Wisconsin the same weekend! Cam goes camping and has a great time, but discovers a crafty critter has invaded his campground, making off with some of his best gluten free goodies. Meanwhile, Mike heads to Oconomowoc, Wisconsin for an exciting softball tournament with his daughters. The guys share great info about the places they found to eat and some travel tips, including why a putter might be a handy tool at a campsite.
Mike and Cam welcome Jenny Levine Finke to the podcast. Jenny is the founder of Love Me Gluten Free and Good For You Gluten Free. Jenny shares her personal celiac journey that led her to a successful career as a blogger and, after that, to write her book, Dear Gluten It's Not Me, It's You. We also discover how she turned a very awkward situation into her latest success, her Love Me Gluten Free subscription box company.
You can also watch this month's episode on YouTube:
https://youtu.be/zQA-d3qJJsw
It's officially summer and a perfect time to roll out the latest episode of News and Notes! Mike and Cam share some great letters from listeners who have recently been diagnosed, plus a longtime listener who has had a few happy voyages on the Celiac Cruise. We also talk about an intriguing kissing study, debrief an eventful Celiac Awareness Month, and much more!
Mike and Cam are so happy to welcome Dr. Benjamin Lebwohl, MD and Randi Wolf, PhD, MPH from the Celiac Disease Center at Columbia University Medical Center, to the podcast. They are currently collaborating on an exciting study, the GLUTECH Trial, which explores how gluten detection technology may improve the treatment of people who are newly diagnosed with celiac disease. In this informative conversation, we also discuss the state of celiac research and the need for more studies dealing in the social and emotional wellness of celiac patients.
Mike and Cam are excited to welcome returning guest, Dr. Marty Linseisen, for our final Celiac Awareness Month podcast of the year. Marty has the unique perspective of being a medical doctor who also happens to have celiac disease. Marty is passionate about helping to raise awareness as well as help people with celiac disease live their best life. He shares some of his top strategies for staying healthy with celiac disease and navigating life on a gluten free diet.
As Celiac Awareness Month continues, Mike and Cam are excited to welcome State Senator, Sally Turner, to the podcast. Senator Turner and her team have constructed Senate Bill 1288 requiring all food handlers in Illinois to complete training on celiac disease and the safe handling of gluten-free foods. We believe that this important bill could be a template for other states to follow. Find out what inspired Senator Turner to author this bill, as she advises the gluten free community on how we can become more active in helping this type of legislation to pass.
With another Celiac Awareness Month upon us, Mike and Cam share their 10th Annual Celiac State of the Union. The guys take the pulse on where the celiac and gluten free community stand in a number of categories including: gluten free products, dining out, cost of gluten free living, celiac education, and much more!
Mike and Cam sit down with Dr. Ritu Verma, Chief of Pediatric Gastroenterology and Medical Director of University of Chicago's Celiac Disease Center. Dr. Verma helps the guys with some "myth busting" relating to celiac disease and a gluten free diet. They tackle both big and small topics including: Are there actually ways to reduce the chances of offspring developing celiac disease? How careful do kids really need to be while eating gluten free at home and at school? Is wheat starch safe for celiacs? And so much more!
Mike's daughters, Jessica and Melanie, join the guys on today's podcast. They share their recent trip to see the University of Wisconsin at Madison. It was quite an adventure as they started with a tour of Taste Republic facilities and learned some of their secrets to great pasta making. They also had some standout gluten free meals while in town. Most importantly, the University tour was fantastic, complete with a quick primer of the dining halls and some first hand experience seeing what campus life would be like as a student with celiac disease.
The guys delve into some recent articles debating gluten free labeling, and also safe restaurant protocols. Mike and Cam discuss some of their own recent experiences on this subject and take a deep dive into some of the latest articles and posts. These include the various gluten free certifications to look for on products, as well as their insights about why buying certified gluten free products is almost always the safest choice.
Cam is just back from hitting the slopes in Utah! His snowboarding adventure had some challenges, as he and his girlfriend were the lone gluten free eaters dealing with a small rental and an even smaller kitchen. Cam shares the tips that kept him safe on his journey, which included more dining out than he expected, but they found a few gems between many great runs down the mountain!
Winter News and Notes heats up this season as Mike and Cam reach into the mailbag to hear what their listeners are sharing. In this episode, a super frustrating tale of getting glutened. On the flip-side, there's nothing more comforting than biting into a delicious burger on a trip to the West Coast, as one listener joyfully points out. Plus, hear about an amazing safe gluten free travel adventure in Japan! Also, Mike and Cam get an inspiring check in with a college student who is making lasting changes to improve campus life for her and her fellow students.
Mike and Cam are excited to welcome Dr. Jenny Jagers, PhD, to the podcast. Jenny uses her experience as both a medical professional and a celiac patient. Her goal is to make an impact on how we diagnose and recognize celiac disease, with the goal of transitioning the diagnosis stories we hear from "luck" to becoming a routine process. In this dynamic conversation, Jenny shares some amazing tips, ranging from how to talk to your doctor about celiac disease, to the different kinds of bias that a patient can face when trying to get a celiac diagnosis, and much more!
You can find this episode at YouTube.com/@celiacproject
Welcome back for Part 2 of Mike and Cam's epic 10th Birthday bash! We continue this dynamic trip down memory lane with more clips that will blow your mind. On this episode the guys talk about the mind-gut connection, revisit some special moments in gluten free travel and share a truly unique full circle podcast moment thanks to A.I.
Mike and Cam kick off this very special New Year's show celebrating The Celiac Project Podcast's 10th birthday! We use the occasion to hit the rewind button, highlighting some of the most definitive moments of the podcast throughout the years. With so many great shows to choose from, we made it a two part celebration!
Mike and Cam end the year with a special "Holiday Party" podcast! Their year-end bash wouldn't be complete without a signature drink, so they try out the Chi-Claw-Go Handshake, (White Claw Ruby Red Grapefruit mixed with Malort)! Cam talks about his Thanksgiving tailgate at the Packer's game, and the guys share more holiday tips for you. They also share an easy way for friends and family to find out if they might be at risk for celiac disease courtesy of CDF. This jam-packed show wouldn't be complete without a little "Stump Mike and Cam!" Wishing everyone a Happy Holiday Season and we will see you in 2025 for our special 10 Year Birthday podcast January 8th!!! Time flies when you're having fun!
Returning guest and founder of Baltimore Gluten Free, Andrea Tucker, joins Mike and Cam for a great conversation! In this episode, Andrea shares her recent travel adventure to London, England, and was completely blown away by all of the incredible gluten free offerings! In addition, she talks with the guys about her exciting work helping students with celiac disease or gluten intolerance navigate the transition to college with her Gluten Free College 101 group. Along the way they share some great tips on how to find a school that's going to be a good fit.
If you want to watch this episode go to https://www.youtube.com/@celiacproject
As Thanksgiving and the holidays approach, the guys share some incredible tips from a recent trip of Cam's, to help make your travel plans and visits to family and friends a bit easier during the holidays and beyond. Mike and Cam are also feeling very thankful and share that gratitude with their wonderful listeners and supporters!
It's Fall News and Notes time! Mike and Cam share some listener emails and news that will not disappoint! Big news to share about celiac disease and the doctors doing such great research, finally getting their time in the spotlight. Plus, amazing listener letters including an author who is also getting much deserved attention, a conversation about the different kinds of fiber, and a long-time listener who brings up some important questions about the neurological impact of celiac disease.
It's that ghoulish time of the year, so Mike and Cam share some "tricks" and "treats!" Drink along as the guys try a Pumpkin Cider to get into the "spirit" of the season. Cam found a fall fest that had some fun gluten free offerings. An update on a most tragic story that could have repercussions in how restaurants handle allergy and gluten free diners. Plus, a celiac study that is just a little creepy. Also, tips for finding safe gluten free candy and more!
Mike and Cam know first hand how quickly they can fall into a rut when eating gluten free. The guys share some of their top tips on how to spice things up and hit refresh when the old routines have become a bit stale. Along the way, accidents do happen, and Cam shares a recent experience of a mysterious glutening, and how he was able to fight through it to still have a great time, despite a less than ideal situation.
Mike and Cam welcome Mike's daughter, Jessica, back to the podcast! Jessica is now a junior in High School - how time flies! She shares many updates on her life, including how she handles eating at school, her thoughts on visiting colleges, and some recent health challenges she has had to navigate. We also get to hear briefly from her younger sister, Melanie, as they both share their top gluten free meals from their trip to Ohio.
Mike recently took his family on a trip through Ohio. On this high energy vacation they encountered intriguing colleges, a long awaited visit to the Rock and Roll at the Hall of Fame, and so many memorable gluten free dining treats! While it was only about a four day trip, Mike and his family made it though Oxford, Cincinnati, Cleveland, Toledo and more! Journey with us, and hear about some of the best places to visit and eat when you plan your own adventure through Ohio!
Mike and Cam welcome Danielle Altonaga to the podcast. Danielle lives in Canada and shares her story of resilience after years of unexplained and complicated symptoms and medical issues. Danielle also has a unique perspective on living gluten free, as she had already been following the strict observance of living Kosher. You will be so inspired by Danielle as she has re-framed her struggles before and after getting diagnosed with celiac disease, living with an attitude of gratitude!
You can also watch this month's episode on YouTube:
https://youtu.be/WTQeqS7E6qY
It's time for Summer News and Notes! Mike and Cam share some incredible listener letters including a long time listener who is faced with confusion over pre-packaged meals that may or may not contain gluten. We also go behind the scenes, sharing the latest court documents on one of Mary Vargas's most compelling and gut wrenching cases that is still in litigation, and much more!
Summer travel is in full swing so Mike and Cam share a couple of exciting recent trips! While Cam ventures back to Sin City, Las Vegas and is mostly on a good roll, he shares a cautionary moment where things go a little off the rails. Mike's latest adventure with his family takes him to Milwaukee for Lakefront Brewery's incredible Maifest celebration. It's a gluten free fest unlike anything Mike has ever attended and you won't believe the culinary highlights he experiences!
Mike and Cam are excited to welcome fashion designer, Richa Ranawat, all the way from India. Richa shares her incredible story of immense suffering all while desperate to find answers before finally being diagnosed with celiac disease. Along the way, she was diagnosed with other auto-immune conditions and allergies. After seeing 35 doctors and struggling with a myriad of symptoms, she finally started to get answers. Richa takes us on her journey of trauma, self discovery, and an unwavering resilience as she fights for her safety at every turn. We are so excited to share this incredible episode, and you can also watch it (along with captions) on YouTube! https://youtu.be/cW13RNdoS8s
Mike and Cam both embarked on recent trips to Michigan at the same time, and they both share some interesting gluten free dining experiences. Cam finds confusion with some store bought cheese with a troubling label. Meanwhile Mike brings the family to visit a couple of college campuses, and is blown away by the gluten free and allergen free offerings at one of the schools. Grab some gluten free snacks and road trip along with the guys!
Our 400th episode was loaded with so many surprises and fantastic information, that we kept the celiac awareness party going into June! This week, we throw the curtain back for Episode 401, where Mike and Cam have their pressing questions answered by Dr. Benjamin Lebwohl and Dr. Alessio Fasano! Plus, GI psychologist, Dr. Elyse Bedell, also shares great information on dealing with the psychological and social effects of celiac, and some tips to help you navigate emotions when times get tough.
We did it! Show 400! We decided to make it a special Celiac Awareness Party and we have incredible surprise guests checking in! So many guests that 400 is the first of a 2 part show. Mike and Cam also reminisce and have a toast with a twist on an old favorite. Don't miss this special show!
Mike and Cam are so excited to welcome Doctor Alessio Fasano to the podcast. Dr. Fasano has a lot of optimism about the future of celiac treatment and diagnosis. In this special Celiac Awareness Month episode, Dr. Fasano shares his reflections from the past 10 years on celiac disease, and sheds light on what types of treatments to manage the disease will be realistic in the near future. Plus he shares his knowledge about how personalized medicine is the best way to treat celiac patients more effectively and with better results. You can watch this incredible episode on YouTube!
https://youtu.be/EH2QhdGX6RQ
Go to YouTube.com/@celiacproject and subscribe to our brand new YouTube Channel!
Mike and Cam are kicking off another Celiac Awareness Month with their 9th Annual Celiac State of the Union show. This year they examine a number of areas that they feel are most important to the celiac and gluten free community. They also look at how society has changed since the beginning of the podcast in 2016 to the present, based on their own expectations of where they thought it would be nearly a decade later.
Mike and Cam welcome Gluten Free Beer Brian to the show. Brian is an expert at gluten free brewing and beermaking, and the guys sample some of Brian's homemade brews as he gives them an introductory primer, sharing some helpful tips along the way. Pull up a barstool and find out what it takes to brew a top tier gluten free beer! The guys also preview their spectacular Celiac Awareness Month line up that will include 3 very special shows--including episode 400!!!
It's time for Spring News and Notes! In this lively episode, Mike and Cam share some entertaining letters. A listener who had a similar hospital experience as Mike, news about a blood pressure medication that causes celiac-type symptoms, and some clarity about "In and Out Burger" gluten free offerings. Plus, they have a comical debate over a curious way to label donuts--are they gluten-less or do they just have less gluten? You be the judge!
Mike and Cam welcome back attorney Mary Vargas, for part 2 of their compelling, and at times very personal conversation. In this episode, Mary shares her struggles helping her newly diagnosed son navigate college with celiac disease, which Mary has dealt with, ironically, in her own litigation of a case against a university. Along the way they share important tips for what many parents of young adults heading off to college know to be a daunting process. They wrap up by talking a little bit about other institutions that can be challenging for those with celiac including hospital stays, nursing homes, and long term care facilities.
Returning guest and Disability Rights Lawyer, Mary Vargas, joins us for an eye opening conversation, so much so that it's a 2 part episode! In this week's show, Mary shares updates on some landmark cases including JD vs. Colonial Williamsburg, and the ripple effects of the case. We also revisit an ongoing case involving a man with celiac disease who was not given safe food in jail. In part 2, we dive into navigating some of the issues that can arrive in college, a topic that Mary has faced personally with her own son.
Mike and Cam are excited to welcome back Vanessa Weisbrod to the podcast. Vanessa discusses her new position at the Celiac Disease Foundation (CDF), where she is the Chief Education and Community Engagement Officer. Vanessa has hit the ground running and shares many of the exciting plans, programs and initiatives that she is working on at CDF. Included in the topics covered are Vanessa's vision for the future of celiac thought leaders, her work with Celiac Cruise, tackling food insecurity on a larger scale, and some of the hurdles that we face trying to change and reform gluten free labeling for food and drugs.
Cam is on the move again and his first trip in 2024 is snowboarding in Colorado! He decided to head back there after ending the year on a bit of a sour note. But on this trip he got back on his feet and, as usual, finds some gems to eat and drink and also shares some travel tips to stay safe and cut costs while shredding on the slopes!
Mike's daughters, Melanie(11) and Jessica(15) return to share updates! Jessica has lived with celiac disease since she was 3 years old, and Melanie learned from a very young age how to help advocate for her and her dad. More recently, Melanie has been learning to navigate life with a dairy intolerance. Having to deal with social situations like turning down food at parties, has given her a deeper understanding of how Jessica, her dad, and many others live every day.
Mike and Cam kick off 2024 with an old favorite - Stump Mike and Cam! In this episode, the guys test their knowledge on various celiac and gluten free topics. Test your knowledge and play along with them. Will Mike and Cam come out winners or will they be stumped!
As 2023 draws to a close, Mike and Cam explore some of the reasons they believe that 2024 could be the best year yet for the celiac and gluten free community. From positive recent changes they have observed, to better supports and understanding of living a safe gluten free life, Mike and Cam are excited to see our community thrive as we move into 2024. We toast to a fabulous New Year ahead!
Mike and Cam welcome Clinical Psychologist, Monique Germone, PhD to the podcast. Monique is a Pediatric Psychologist at the Colorado Center for Celiac Disease, Digestive Health Institute at Children's Hospital Colorado and an Associate Professor at University of Colorado School of Medicine. Monique discusses some of the unique psychological and emotional challenges facing kids and families with celiac disease and gluten issues. They also talk about how the holidays can add extra stress around food and social gatherings plus some strategies to make sure the holidays are joyful for everyone.
As the end of the year draws near, Mike and Cam reflect on their biggest takeaways from 2023 from a celiac and gluten free perspective. They come away with a wide range of observations, some that affected them very personally, and others that they see as larger issues that impact all of us.
Mike and Cam are excited to welcome Jax, Jon, and Leslie Bari to the podcast. Jax is an impressive young celiac advocate who has been featured on "ABC World News Tonight with David Muir," and met with President Biden! Jax and his parents are on a mission to advocate for change, and Jax authored a citizen's petition in his efforts to require the labeling of GLUTEN as a major food allergen, making all gluten containing grains labeled in the future. You will be so inspired by the work that Jax, Jon, and Leslie have done to create positive change moving forward!
The guys wrap up Part 2 of Fall News and Notes with a fun story about a podcast fan and his near meet-up with Mike in Madison. They share their thoughts about a NY Times article about the rise of students who need gluten free and allergen free foods in college. Also, a new listener who is still coming to terms with her daughter's celiac diagnosis.
Mike and Cam dig into their mailbag for part 1 of Fall News and Notes! First they share the story of a special birthday at sea on the Celiac Cruise, then a troubling tale of a father who still can't process the seriousness of his daughter's celiac disease, taunting her with gluten. We also talk about Italy's amazing plan to test all kids for celiac and Type 1 diabetes between the ages of 0-17 years old, and much more!
Mike and Cam welcome back special guest Maureen Basye, founder of Celiac Cruise, to the show! The Celiac Cruise has had an epic year of global travel with their expanded sailing opportunities. Maureen doesn't stop there! Her deeply rooted passionate vision and mission to bring gluten free families safe travel and social experiences abroad, while simultaneously giving back to the community through her fundraising efforts, is the driving force in how she views success. We learn the exciting destinations that Celiac Cruise has in store in 2024 and beyond! Hop aboard...a great adventure awaits!
Are there really people with celiac disease who are "more sensitive" than others? Mike shares his latest family get-together and how even after 14 years of being diagnosed with celiac disease, making a documentary, having a podcast and otherwise shouting from the rooftops, this condition can still be confusing--even for folks who think they understand the disease. Mike and Cam also talk about the level of awareness of Crohn's and Colitis as they relate to celiac disease, and why we celebrate Celiac Awareness Day, which was just last Wednesday.
It's been an eventful summer for Cam! In an exciting turn of events, he has recently discovered a new doctor who is helping him finally get to the bottom of some of his ongoing health issues. In addition to this, he just headed back to school after a long hiatus. Mike helps him unpack some of his takeaways from the latest exciting chapter of his life. On the subject of "back to school" they also share some distinctions between 504 plans, IEP's, and college accommodations.
Mike and Cam welcome Teona Khaindrava, founder and owner of Senza Gluten in New York City. Senza Gluten is truly one of the top gluten free restaurants in the world. Teona shares her passion for making sure that everyone who visits Senza Gluten has a memorable experience whether they need to eat gluten free or not. She also shares how the community has lifted her up during challenging times and what drives her to make sure that her customers at Senza Gluten eat the most delicious and safe gluten free Italian food possible!
Mike and Cam welcome Rep. Dean Phillips, member of the U.S. House of Representatives in Minnesota's 3rd DIstrict. Rep. Phillips introduced the Allergen Disclosure In Non-Food Articles (ADINA) Act into congress, named after a young girl by the same name who had a health scare at camp. If this bill becomes law, medications must adhere to the same labeling laws as food and beverages. Rep. Phillps shares how he learned about Adina's story, some of the challenges to getting this type of legislation passed, and his hopes that the president will soon be signing this bill into law.
In Summer News and Notes Part 2 we share recent letters, including updates on at-home celiac tests, how to deal with snarky comments about celiac disease and eating gluten free, and a restaurant chain wanting to improve their protocols in order to provide a safe dining experience for celiacs. We also talk about our celiac walk and more!
Mike and Cam share some great listener letters in their Summer News and Notes Part 1! There is a definite travel theme going on as Cam also recounts his recent road trip to Colorado which had some epic highs, but landed on a bit of a sour note. We also share a news story about a woman with celiac disease who has the worst plane trip of her life! Along the way we share lots of helpful tips and takeaways to help make sure that all of your summer travel is safe and gluten free.
Mike and Cam take a unique journey into the world of artificial intelligence from a celiac and gluten free perspective. Cam guides Mike down the "rabbit hole" to explore Chat GPT and to see how accurate its answers are to questions they submit about celiac and gluten free living. It gets personal when they ask Chat GPT to answer questions pertaining to them, including some hidden talents that Cam didn't even know he had! An entertaining and eye-opening episode!
It has been a rough few weeks for Mike! What he initially thought was the stomach flu turned out to be so much more! In hindsight, Mike unpacks part of the mystery as to what might have caused some of his recent digestive issues. He chronicles his health scare to Cam, and the stress of having to stay in the hospital. He also shares some near miss moments of getting gluten and tips on how you can stay safe at the hospital.
To conclude our special Celiac Awareness Month podcasts, Mike and Cam sit down with Dr. Marty Linseisen. Marty has the unique point of view of being a doctor whose celiac disease diagnosis directly coincided with finishing medical school. He shares his dramatic story of diagnosis, which included many missteps along the way. Marty's own celiac journey has made him passionate about raising awareness, busting myths, and helping advocate for the celiac community.
Mike and Cam welcome dentist and oral health educator, Melissa Ing. Melissa is passionate about raising awareness about celiac disease within the dental community. She is at the forefront of dental research and education, and talks to us about her efforts to bridge the gap between the medical and dental health professionals as it relates to celiac disease. Melissa shares some of her tips about how to make sure you are approaching your dental health in the best ways possible.
A native of India and currently studying abroad in the UK, celiac advocate, Annika Dhariwal, has been working to raise awareness about celiac disease in India. Diagnosed as a child, Annika created her own website, Gluten Free Jio, finding countless ways to help raise awareness and support the celiac community. Annika's story and message are truly inspiring--she is a great asset to the celiac and gluten free community!
Mike and Cam welcome Dr. Benjamin Lebwohl, gastroenterologist and researcher at the Celiac Disease Center at Columbia University. Dr. Lebwohl is one of the leading experts in the field! Mike and Cam have a far reaching conversation, including the latest in research and treatment of celiac disease, and how to increase awareness both within the medical community as well as the general population. Dr. Lebwohl also talks with us about what future treatment for celiac disease patients might look like, plus the changes and innovations in treatment that he is most looking forward to.
May is Celiac Awareness Month, and that means it's time for our 8th Annual, "Celiac State of the Union" Podcast! Mike and Cam check the rear view mirror on what's been happening in the celiac and gluten free community and share their top insights and takeaways. One thing is clear to the guys: while it can still be a struggle to live with celiac disease and gluten intolerance, there are many things to feel optimistic about moving forward. We hope everyone has a great Celiac Awareness Month!
Spring News and Notes is bursting with fascinating emails and news! Mike and Cam hear from an author with a diagnosis story that is "all in the family!" We also discuss some tips for cleaning gluten off of surfaces when traveling. Also, a friend of the podcast, who happens to be a scientist, checks in with some very ingenious tests that she has run, and you won't believe the results!
Spring News and Notes are here! Mike and Cam kick off part 1 with an update from Donna, who has six teenagers and is trying to assess which ones have gluten issues and if there is any other celiac disease within her family tree. The guys also discuss the disheartening story of a "gluten free" bakery that was actually filled with gluten. Plus, news of some fun events coming up in Celiac Awareness month and beyond.
Mike and Cam welcome author, Neva Ryan, to the podcast. Neva has just published her second children's book, Sabina's Celiac Story, about her daughter's celiac journey. It's also a family affair, as we hear about Neva's mother's diagnosis leading to both her and Sabina getting diagnosed. Hear about the wonderful story that Neva wrote to educate Sabina's class about celiac disease and how it eventually transformed into a powerful learning tool for families everywhere. Purchase a copy and learn more about the book at nevaryanbooks.com.
Grab your favorite gluten free beer and pizza and pull up a bar stool at the Celiac Project Pub! Mike and Cam are excited to welcome back Craig and Lyle to sample the best Chicago gluten free pizza from Chicago Pizza and try 5 incredibly unique beers from Otherwise Brewing in San Francisco. You will feel like you stumbled on the best gluten free bar and pub with a few old friends. Cheers!
Mike and Cam welcome Jessica Lebovits, registered dietician at the Celiac Disease Center at Columbia University, and fellow celiac, to the podcast. Jessica shares her recent research on the impact of celiac disease on dating. There are many eye opening takeaways, including the surprising number of people who intentionally ingest gluten on a date. Jessica also shares some of her reasons for conducting this type of research, insights that she took away from it, and her desire to look even deeper into this subject.
Finding time for self-care is important, and it's especially true when you have a condition like celiac disease or gluten intolerance. Mike and Cam share some of their own self-care tips and talk about some of the stratagies they employ on a daily basis to rejuvenate and recharge!
Mike and Cam are excited to sit down with Orly Gottesman, founder and owner of Modern Bread and Bagel. Orly shares her personal story about her husband's celiac diagnosis, leading her on an international culinary journey of discovery. Orly’s fascination with finding a way to replicate her gluten filled favorites ultimately led her to creating an amazing line of gluten free flours, gluten free breads, donuts, and bagels that are so amazing they are indistinguishable from the gluten filled versions.
During a recent get together, Mike has a sinking feeling that he got glutened. Thanks to the help of his NIMA Partners sensor, that fear is confirmed. He shares some of his takeways from this strange situation and the guys discuss other tools that might be helpful after a suspected contamination. Mike also shares some tooth troubles and his detective work to see if having celiac disease contributed to the problem.
Mike and Cam welcome Meghan Donnelly, registered dietician and Senior Manager of Nutrition Services at ScharUS. Meghan talks about the unique approach that Schar takes by having dieticians in key roles at the company around the world. They also discuss some of the innovative ways that Schar makes their products, including growing their own grains as well as the important work that they are doing to help to reduce food insecurity in the gluten free community.
Mike's daughter and returning guest, Jessica, joins her Dad and Cam to talk about high school drama. But not the typical roller coaster, the celiac kind! Jessica shares her insights and how she stays positive despite some of the challenges she's encountered lately, including a teacher who made her happy she has a 504 Plan, tumbling into a misstep at gymnastics practice, and a big decision to make on whether to participate in a class trip.
Part 2 of Winter News and Notes is a jam packed episode filled with great stories and advice! Mike and Cam comment on an incredible email from a newly diagnosed listener with a house full of teenagers and a whole lot of unanswered questions. They also share lists of some of the top gluten free ballparks and some of their own tips on how you can be prepared and stay safe when heading out to a sporting event. You will also find out about the intriguing saga of KC Potato Girl and so much more!
We've got surprising updates plus great listener letters from our Mailbag. In part 1 of Winter News and Notes, Mike and Cam share the intriguing story of a woman who was diagnosed in High School, and still struggled as a graduate student until she was finally able to find excellent medical support in her area. They also give an update on some of the demographic breakdown of celiac disease and much more! Stay tuned for next week's show where the guys turn to thoughts of Spring, talking about safe gluten free options at ballparks and their advice on what to do before heading out to the old ballgame!
Mike and Cam welcome back Dr. Denis Chang and Vanessa Weisbrod from Boston Children's Hospital Celiac Disease Program. They continue their discussion about some of the top takeaways from the past year's International Celiac Disease Symposium (ICDS 2022). In part two they talk about a wide range of topics including oats, facts about dating with celiac, how Dr. Chang became the "TikTok Doc" and so much more!
The International Celiac Symposium (ICDS) happens every 2 years. It's where the top celiac researchers, doctors and advocacy groups convene to discuss the future of celiac disease diagnosis and treatment. This past October, ICDS was in Sorrento, Italy. Mike and Cam are excited to bring Dr. Denis Chang and Vanessa Weisbrod, of The Celiac Disease Program at Boston Children's Hospital, who both attended ICDS, to share some of their top takeaways. There was so much great information that we made it a two part podcast. In part 1, join us to hear about new approaches to diagnosing celiac, why the celiac diet and lifestyle is not a "one size fits all" treatment, and so much more!
Do you suffer from skin irritations or flare ups due to celiac disease or gluten intolerance? Mike and Cam reveal some of their own struggles with skin issues while discussing some of the common skin conditions that can present to people with gluten intolerance and celiac disease, including: DH, eczema, alopecia and more. They also share some tips on what you can do to help minimize those itchy and irritating skin outbreaks that are no fun at all.
Ring in the New Year with a fun and festive episode, part 2 of our epic Holiday podcast party! Mike and Cam are excited to welcome back our 3 special guests; Craig Carlino, Lyle Smart and Craig Hardgrove as they continue to work their way through 9 of Groundbreaker Brewing's amazing gluten free beers. All five guys look ahead to 2023, sharing their hopes as well as trying to predict what lies ahead for the gluten free and celiac community. Whether simple and straightforward, like hopes for expanded treatment options, or seemingly insurmountable, like NASA Craig who's just looking for a good gluten free Italian Beef sandwich, it'll have you laughing your way into 2023 :)
To celebrate the Holidays, Mike and Cam put together a special pair of podcasts. For the first time ever, they sit down with three great members of the TCP Inner Circle for an amazing live holiday party podcast! They welcome Craig Carlino, Lyle Smart, and Craig Hardgrove to sample great gluten free beers courtesy of Ground Breaker Brewing. In part 1 the group looks back at some of their 2022 gluten free highlights, including their favorite travel, snacks and more. Stay tuned for part 2 next week as they ring in the New Year by looking ahead and toasting to all the promise that they hope 2023 will bring.
As 2022 winds down, Mike and Cam reflect on some of the events and moments that have them feeling grateful as they look back at some personal highlights of the past year. Find out some of their most surprising gluten free realizations about themselves and each other, and how they're feeling about their gluten free experiences moving forward. They are so fully appreciative of you, the listeners, who have found this podcast to help you on your gluten free journey. Wishing everyone a safe and joyous Holiday Season!
Planning a wedding or formal party can be stressful to say the least. Add to that making it 100% gluten free and the learning curve can be off the charts! Mike and Cam welcome Alla Miller (Farrell), fresh off her successful gluten free wedding. Alla shares the tools she used and some of the speed bumps she came up against while planning her big day. Whether you're planning your own nuptials, or any formal gluten free gathering, you will learn some great planning hacks to make it a memorable event!
Tailgating season is in full swing. We thought it would be a perfect time to share Cam's recent trip to the frozen tundra of Lambo Field and get some of his top tips for a spectacular gluten free tailgate. He makes a special beer run to Madison before the big game, plus a fantastic Venezuelan meal to fill his belly before they roll into Green Bay and set up shop. Cam has thought of everything, so his advice can help you get a win before the big game even if your favorite team doesn't.
The holiday season can be a stressful time for anyone, but add in a large dose of celebrations around food while living with celiac disease and the heightened feelings of stress, anxiety, and depression can feel even more overwhelming. Mike and Cam welcome licensed clinical social worker, Megan Berry, to talk about tools and strategies that can help alleviate some of the holiday stress and help you live your best life with celiac disease. Megan shares her own personal story of getting diagnosed and is candid about some of the hurdles that she faces living with celiac disease.
What is a better side dish to your Thanksgiving feast than a super sized helping of The Celiac Project Podcast? Part 2 of Mike's Danube adventure on the Celiac Cruise concludes with so many exciting moments traveling through Vienna, Bratislava and Budapest. Highlights include life changing schnitzel, a European gluten free food truck compliments of Schar and so much more!
Mike just got back from his incredible journey down the Danube River on the Celiac Cruise in Europe. Mike has so much to share, so you will be getting a couple of "super sized" episodes. In Part 1, Mike describes some of his favorite dishes of the trip, which is difficult as there were so many! Mike and Cam also listen back to a series of audio recordings that Mike sent to Cam while he was on his vacation along with extra commentary. It's a magical journey filled with a gluten free Oktoberfest, many helpings of Eggs Benedict, a Gnome museum and so much more! Stay tuned next week for Part 2.
Mike and Cam are excited to welcome Holidaily Brewing Founder, Karen Hertz. Karen shares her personal journey that led her to start Holidaily. In addition to learning about what drives Karen to make the most amazing gluten free beer, we also learn about some of the unique challenges that come along with Karen's obsession with not just making great gluten free beer, but incredible beer that anyone can enjoy whether they are gluten free or not.
October is in full swing! To celebrate the start of Fall, Mike and Cam put together a fun show filled with Oktoberfest and Halloween trivia. Grab your favorite gluten free beer and candy and play along with us. Find out some of the origins behind Oktoberfest and Halloween and can you guess the #1 candy?
Mike's nephew and fellow celiac, Sam, is fresh off a trip from South Africa with his girlfriend. Sam shares his adventures and his many travel highlights including sampling the local cuisine, an amazing safari with a white rhino named Grumpy, and so much more. Sam also talks about how he planned for this big trip and gives his tips for gluten free travelers who want to make the journey to South Africa.
Mike and Cam welcome Dr. Travis Wilkes M.D., Medical Director of empowerDX, a leader in at home medical tests. Dr. Wilkes shares how empowerDX got started, and their mission to support consumers to better collaborate with their doctors. In addition to having a plethora of at-home test kits, empowerDX has a very specialized celiac gene test. They have an eye opening conversation about helpful ways that you can become a more active participant in your healthcare.
Part 2 of our Late Summer News and Notes features more great listener letters, including a few frustrating stories; one leading to multiple family members getting diagnosed, and a second from someone who is still searching for answers. We also report on a registry with way too many false negative celiac blood tests and a Beyond Celiac post showing that we are all in need of treatments in addition to the gluten free diet. Shout outs to our TCP Inner Circle and much more!
Mike and Cam reach into their mailbag and share some current events for Part 1 of late summer News and Notes. They share a listener's unbelievable tale of restaurant misconduct that reminds the guys of the JD's challenges at Colonial Williamsburg. Even worse is a story from Newsweek about a man whose sister crosses the line in his gluten free kitchen. Also a couple from Colorado known for pizza and so much more!
Mike and Cam reach into their mailbag and share some current events for Part 1 of late summer News and Notes. They share a listener's unbelievable tale of restaurant misconduct that reminds the guys of the JD's challenges at Colonial Williamsburg. Even worse is a story from Newsweek about a man whose sister crosses the line in his gluten free kitchen. Also a couple from Colorado known for pizza and so much more!
September 13th was National Celiac Awareness Day, which got us thinking things like "why is there both a day and a month devoted to celiac disease awareness?" So we decided it was a perfect time for another edition of "Stump Mike and Cam." In this episode, the guys test their knowledge on celiac awareness topics. Play along with us at home and hope you learn something along the way. I know that we did!
September 13th was National Celiac Awareness Day, which got us thinking things like "why is there both a day and a month devoted to celiac disease awareness?" So we decided it was a perfect time for another edition of "Stump Mike and Cam." In this episode, the guys test their knowledge on celiac awareness topics. Play along with us at home and hope you learn something along the way. I know that we did!
Mike and Cam are excited to welcome Kendra Williams to the podcast. Kendra and her dog, Suki, have become fixtures on social media, sharing their adventures in gluten detection far and wide. Kendra explains how having Suki has changed her life, and illuminates the guys on both the positives and the challenges of having a gluten detection dog-a truly illuminating conversation.
You can also learn more about Kendra and Suki on Instagram, Facebook and TikTok @sukipwd and their website https://www.sukipwd.com/ and also on YouTube https://youtube.com/channel/UCU8IQrsCnbz4ZyRj44v_8lw
Mike and Cam are excited to welcome Kendra Williams to the podcast. Kendra and her dog, Suki, have become fixtures on social media, sharing their adventures in gluten detection far and wide. Kendra explains how having Suki has changed her life, and illuminates the guys on both the positives and the challenges of having a gluten detection dog-a truly illuminating conversation.
You can also learn more about Kendra and Suki on Instagram, Facebook and TikTok @sukipwd and their website https://www.sukipwd.com/ and also on YouTube https://youtube.com/channel/UCU8IQrsCnbz4ZyRj44v_8lw
Marilyn Geller, CEO of the Celiac Disease Foundation (CDF) is back to join Mike and Cam to talk about some of the exciting work that they are doing. Learn more about CDF's recent campaign for their ICureCeliac registry, how you can get involved to help find treatments, and hopefully an eventual cure for celiac disease. As Cam says, become a "Pioneering Patient!" In addition, Marilyn talks about the CDF's efforts to communicate with the FDA to improve their gluten free labeling of products.
Marilyn Geller, CEO of the Celiac Disease Foundation (CDF) is back to join Mike and Cam to talk about some of the exciting work that they are doing. Learn more about CDF's recent campaign for their ICureCeliac registry, how you can get involved to help find treatments, and hopefully an eventual cure for celiac disease. As Cam says, become a "Pioneering Patient!" In addition, Marilyn talks about the CDF's efforts to communicate with the FDA to improve their gluten free labeling of products.
The conclusion of Mike's summer road trip is filled with so many fantastic moments. The highlights include a visit with Gluten Free Dave and his awesome family, the magnificent and interactive City Museum in St. Louis, and a lesson on all things Abraham Lincoln in Springfield, Illinois. Of course there are many more gluten free finds along the way as well!
It's summer road trip time for Mike and his family. While planning is usually key for this type of vacation, Mike is thrown a few early curveballs and he hits the road with some trepidation. Things improve quickly as some hidden gems start to materialize. Part 1 of this wild ride ends with Mike returning to a stressful college moment, but with the help of his trusty NIMA device and some amazing food, he makes it through with a new positive perspective.
Mike and Cam sit down with Jordan Clark, group leader of the GIG of Greater Oakland support group. Jordan shares his frustrating story of getting diagnosed with celiac disease while finishing college, and how his search for others trying to understand how to live a safe gluten free life led him to becoming an unlikely support group leader. We talk about the benefits to being part of this type of community, and Jordan shares his thoughts on the first steps to take if you are interested in starting a support group in your own area.
Mike and Cam are happy to welcome Kyle Dine, allergy educator and founder of Equal Eats. Kyle's childhood was spent navigating his life with a number of life threatening food allergies, leading him to feel isolated in his early years. Kyle set out to make the world more accessible for everyone to eat safely no matter if they have allergies or celiac disease. His vision coupled with his passion to support the allergen and celiac community is truly inspiring!
Cam is back in Vegas, and this time he won't be "rolling the dice" in hopes of getting safe food, because one of his travel companions is the NIMA sensor. Cam and his sister Peyton put the NIMA through its paces as the NIMA came through big time for him. Cam shares some challenging moments while eating out and educates us on how to really get the most out of using this clever and helpful device.
Cam is back in Vegas, and this time he won't be "rolling the dice" in hopes of getting safe food, because one of his travel companions is the NIMA sensor. Cam and his sister Peyton put the NIMA through its paces as the NIMA came through big time for him. Cam shares some challenging moments while eating out and educates us on how to really get the most out of using this clever and helpful device.
Mike and Cam are happy to welcome back Maureen Basye, founder of the Celiac Cruise. Maureen reflects on some of the highlights that she and Mike experienced on the last Celiac Cruise. We learn about the great lengths that she and her team go through to ensure everyone has a safe experience. She also shares details on their exciting upcoming offerings, including a European gluten free adventure and cultural experience that will truly be life changing!
Vanessa Weisbrod and Stacy Walker of Boston Children's Hospital sit down with Mike and Cam to talk about food insecurity and the ambitous food pantry that they have set up that includes gluten free offerings. Boston Children's is at the forefront of supporting people in their community who are in need of these types of important services and we discuss how similar programs can have a positive impact in other communities.
Mike and Cam are joined by Tricia Timney, founder of SLNG Consulting (Spread Love Not Gluten). Tricia shares her dramatic story of getting diagnosed with celiac disease, and how her desire to eat out safely in her area led her to come up with a new business. Tricia's is now working to help businesses ensure that they are following the best protocols and practices in providing safe gluten free food to diners. Tricia also tells us some of her personal tips to staying safe when eating out.
It's summer grilling time and Mike and Cam sit down with Jennifer Reynolds, founder of Sauce Goddess. Jennifer is a master griller, and shares with the guys some of her top tips and tricks for your next summer get together. Jennifer also shares her concept of "GFQ" and how to create the most inclusive grilling experience for all your guests, gluten free or not.
Mike had a recent visit to Holidaily Brewing in Golden Colorado, where he was invited, along with others, to create the soon to be released, "The Blogger Bunch Ube Dragon Fruit Blonde Ale!" While there he was able to reconnect with some old friends and sample some of the best gluten free beer, pizza, tacos and churros ever! Come along for this fantastic voyage and learn about Mike's unique brewing adventure and some Colorado spots that are not to be missed!
Mike and Cam are thrilled to be joined by social media sensation, Phil Hates Gluten! Phil shares his fascinating journey to getting diagnosed with EOE that started him on his gluten and dairy free adventure. We learn about Phil's motivation to start posting about his life and struggles in a positive way on social media and what keeps him energized as he continues on his path as an influencer.
Mike and Cam are excited to be joined by fellow celiac, Lyle Smart. Lyle offers so many fascinating insights including the unique challenges of being diagnosed with celiac disease during a global pandemic and his experiences traveling for work and pleasure. Lyle is originally from England, but now lives in Mike's hometown. Lyle compares and contrasts his time spent back in the UK to living with celiac in the US.
GI Psychologist, Dr. Rosie Satherley, is back this week to talk about Type 1 diabetes and celiac with the guys. Rosie knows both conditions intimately, both as a researcher and therapist and someone who has both autoimmune conditions. Rosie talks about the challenges of living with both, and some of the specific details of managing life successfully with celiac and Type 1 diabetes.
Mike and Cam are excited to be joined by GI psychologist and researcher, Dr. Rosie Satherley. In addition to working with patients with celiac disease, Rosie has celiac herself. She shares her surprising diagnosis story and her approach to treating patients with celiac disease. While most of us living with celiac disease deal with a level of stress, Rosie helps us understand when stress and anxiety can cross over into disordered eating. Rosie also has type 1 diabetes, so look for next week's podcast where Rosie enlightens us about the challenges for those living with both autoimmune conditions.
The guys finish up their Spring News and Notes with a bang! Mike and Cam take a deep dive into all 19 dedicated gluten free breweries in the U.S. and share more incredible listener emails. They also talk about a fascinating study that could finally show that celiac disease is much more prevalent than what has for years been considered the status quo.
In Part 1, Mike and Cam are excited to dig into their mailbag to share listener letters including some who are struggling to get clear answers about their symptoms, and a newsworthy article showing optimism for the many angles that researchers are looking for treatments and possible cures for celiac disease.
As we enter Celiac Awareness Month, Mike and Cam sit down for their 7th annual "Celiac State of the Union." Looking back at this past year they share their thoughts on what they feel improved the most in the celiac and gluten intolerant community, and what they believe needs the most improvement.
In part 2 of his Celiac Cruise adventure, Mike shares some of the amazing activities and events on the ship, including the first ever screening of the Celiac Project documentary at sea! Mike and Cam also get a quick visit from Mike's daughters, Jessica and Melanie, who pop in to share their favorite moments on the cruise. We can't wait to set sail again!
After 2 1/2 long years of no long distance travel, Mike took his family on the incredible Celiac Cruise to the Caribbean! In part 1 Mike shares his gluten free highlights and how he felt connecting with so many incredible folks in our community. Stay tuned next week for part 2 highlighting some special events and we'll have some cool surprises along the way!
We have had so much fun talking about Cam's travel adventures lately. In this episode we talk about his recent snowboarding trip to Colorado. Cam hits a couple of health snags along the way, but is able to bounce back and find some excellent gluten free dining options...including maybe some of the best tacos he has ever eaten! Stay tuned next week for part 1 of Mike's Celiac Cruise adventure!
Marne Platt, author of Easy, Tasy, Gluten Free, joins Mike and Cam all the way from Switzerland! Following many health struggles, Marne was inspired to write her book after going gluten free, when she became obsessed with perfecting gluten free treats for her and her friends. The recipes became such a hit that she decided to write a cookbook that will get even the most novice bakers on the right path to cooking success!
Cam's travel adventures continue with a spontaneous trip to Miami to celebrate his mom's birthday, and take in a Chicago Bulls game. While the NBA action isn't what they had hoped for the food was a veritable "March Madness" of goodness, including a great dedicated GF bakery and a one-of-a-kind Japanese steakhouse.
You know him and love him from his creative and entertaining Instagram posts, meet Dave Stubler, the man behind Gluten Free Dave. Dave enlightens Mike and Cam with his own harrowing journey being diagnosed with Alpha Gal Syndrome and EOE as well as celiac disease. Dave also talks about what inspires him to share his amazing creations on Instagram and how he stays positive despite any curveballs that come his way.
Mike and Cam sit down with the Sauce Goddess herself, Jennifer Reynolds, as she shares how she built her gluten free woman owned sauce company from the ground up. Her goal has always been to inspire others through her love of cooking. She passes on some of her favorite recipes and some of the most surprising uses for her sauces and rubs.
They say what happens in Vegas...stays in Vegas, but that rule doesn't apply to Cam. Fresh off a bachelor party weekend for a good friend, Cam shares his gluten free ups and downs in Sin City. Let's just say you can never pack enough snacks!
Mike and Cam sit down with Dave DellaFave, CEO of NIMA Partners. Dave explains his holistic vision and reasons for acquiring NIMA Partners as well as his advocacy for education and his mission to put the needs of the gluten free community front and center.
Barstool Sports makes a lame attempt of poking humor at gluten free eaters that we find less than appetizing. Speaking of unappetizing, Cam gets badly glutened at a big event despite being extremely careful, and shares his takeaways and how he survived to make it through the rest of the weekend (and triumph)!
Part 2 of Winter News and Notes covers a whole lot of ground! From emotional letters of struggle and resilience to a Gluten Free guest whose love of frosting shows no limits (and no shame)! We also talk about a surprising survey detailing the high level of stress and challenges for celiacs on the dating scene.
We love when we get a chance to share your amazing notes and letters! In part 1 of our Winter News and Notes we hear from a few listeners who have been saved by the NIMA on a number of occasions. We also discuss a new study that shows that people who are newly diagnosed have better outomes, including less GI distress, when they meet as a group.
The most commonly held belief in celiac disease diagnosis has been that it's most typical to have GI and digestive symptoms. A new article, "Atypical Celiac Disease: Diagnosing Nonintestinal Cases in Primary Care," enlightens us on some amazing facts and figures. Mike and Cam explore what this could mean for celiac diagnosis in the future and share some of their personal takeaways about these fascinating findings. Thanks to Rachel Ziganti, MPA, PA-C and Stevie Redmond, MPA, PA-C for their illuminating article from Clinical Advisor!
Mike and Cam are excited to talk to Ben Hampton, joining us from Australia. Ben, who goes by A Gluten Free Family (@a.gffamily on Instagram), has really let his voice be heard in just one year since his diagnosis. Ben speaks candidly about his diagnosis, his struggles, and shares why it was so important for him to become a vocal member of our community. Ben has also recently launched his own podcast, A Gluten Free Podcast, which you can listen to wherever you listen to podcasts.
Mike and Cam are excited to welcome Cam's younger sister, Peyton, for her maiden voyage on the podcast. Fresh off her 21st birthday, Peyton travels to Minnesota where she samples Burning Brothers Brewery, Olivia's Organic Cafe and Sift Gluten Free Bakery. Then Peyton, Cam, and their parents make the pilgrimage to Lambo Field to see their beloved Packers. After some challenges to their tailgating adventure, hear how they turn things around and bring home a big win!
Cam recently journeyed with a few friends to Michigan and completely stepping out of his comfort zone by eating out at a number of restaurants with gluten free offerings. Armed with his trusty Find Me Gluten Free App, he was able to discover a number of surprising and fantastic dining establishments including; Blackbird Waterhouse, Renee's Gourmet Pizzeria and Brown Iron Brewhouse. Come along with us, and bring your appetite!
As 2022 waits in the wings, Mike and Cam look ahead by sharing their personal thoughts on the meaning of making resolutions, including theirs for the New Year, as well as their hopes for the celiac and gluten free community in 2022 and beyond. Mike and Cam also want to hear from you--what are your resolutions this year? Share your thoughts with us on social media or on our "share your story" page on our website: www.celiacproject.com Wishing you all a very happy and healthy New Year!
Mike and Cam discuss a disturbing news story out of Canada, where a woman with celiac disease was not given safe gluten free food for over 40 hours while in quarantine. We also look at a study that talks about connections between loneliness and a compromised gut biome.
In the Chicagoland area, when we think of gluten free treats, look no further than Sweet Ali's bakery. Mike and Cam are excited to sit down with Ali herself and hear what inspired her to change up her career. She bakes some of the most delicious cookies, cakes and cinnamon rolls out there!
The Holiday Season is underway, and having celiac disease or gluten intolerance can add extra stress to holiday events. Mike and Cam offer up some of their top holiday survival tips to help get you through this festive time and keep your wits. Wishing you all a very Happy Holiday Season!
Join us on this special episode as we celebrate our 300th podcast by looking back at some of our most "mind blowing" moments that have had the most impact on us personally. We also thank the many guests that have each made such a big impression on us along our own journey.
Join in on the exciting conclusion of Stump Mike and Cam Vodka Palooza Part 2! Find out if Mike and Cam continue to get stumped by interesting vodka trivia and laugh along as they learn more hilarious and fascinating vodka facts. Most importantly. find out if they are able to decipher any of the mystery vodka ingredients, as we toast next week's special 300th episode!
Do you like vodka? Are you confident that you could taste the difference between vodkas made from different ingredients? Mike and Cam try their best to guess five different vodkas, while also answering vodka trivia and vodka fun facts. Drink along with us in part 1 of what can only be called Vodka Palooza 2021! Bottoms Up!
Mike and Cam welcome returning guest, Cinde Little, founder of Everyday Gluten Free Gourmet. Cinde shares some of her great cooking tips for Fall and the Holiday Season. In addition to talking about her cooking classes she announces her new "Healthy Me" course, aimed at helping those who are struggling to shift over to the gluten free lifestyle, to make a smooth transition.
We wrap up another entertaining News and Notes podcast with a letter about bipolar disorder and the gluten-free diet. We also share a listener's exciting NIMA updates and some of our own thoughts about the NIMA sensor. We also briefly revisit Mike's summer gluten free adventures in Wisconsin and shout outs to the TCP Inner Circle.
Mike and Cam share some amazing letters as well as current eye-opening news of a study finding. Part 1 includes a concerned listener sharing a disturbing picture from a local grocery store, a very promising drug out of Europe, that so far is nearly 100% effective in trials, plus talk of some favorite Halloween candy and more!
Mike and Cam sit down with Maya Tomasello, fellow celiac and founder and owner of The Inn Berlin in Berlin, Maryland. After losing her restaurant job due to the pandemic, Maya and her husband channeled their energy into opening a stunning Inn that everyone could enjoy that happens to be a dedicated gluten free establishment in an area that sorely needs it. You will not believe how quickly she got the Inn opened, and the amazing response that they have received from their guests!
Beyond Celiac recently published a thought provoking article entitled "Shattering the Myth: The Gluten Free Diet Isn't Enough to Treat Celiac Disease." In the post, they lay out the five main reasons that people with celiac disease need more treatments than the gluten free diet alone. Mike and Cam share their perspective on each of these points and takeaways from the article.
Mike and Cam are excited to welcome back Josh Schieffer, founder of The Guided Buyer. Josh shares exciting news on how and why he expanded The Gluten Free Buyers Guide and Awards to include other types of dietary guides. Josh also tells us about how he turned his passion for surfing into a non profit, WatermansWarehouse.org, which provides free swim lessons to children in his community without easy access to pools.
Much of the time when we talk about the manifestation and symptoms of celiac disease we talk about G.I.symptoms. In recent years we are learning more and more that neurological and psychological issues are more common than once believed. Mike and Cam dig deep into some of the connections. Included in their candid conversation is a recent study showing that a large portion of folks diagnosed with ADHD actually have undiagnosed celiac. Mike also shares some of his childhood neurological challenges and his own issues around ADHD.
Mike and Cam are happy to sit down with Mike's daughter Jessica, who is now officially a teenager. Jessica shares some of the ups and downs of her summer from a celiac perspective and how she feels about going back to school in person for the first time in almost 2 years! Jessica talks candidly about some of her takeaways from her remote schooling, what she's looking forward to about returning to school in person, and the things that are adding to her stress. She certainly isn't looking forward to the cafeteria food fights!
It's September, which for many means heading back to school, so Mike and Cam sit down with Andrea Tucker of Baltimore Gluten Free to talk about some of the challenges of going back to school with celiac disease or gluten intolerance. She also points out some issues that may have changed for the better due to pandemic protocols. We also discuss the importance of 504 plans and how to plan for success when your student is heading off to college. Andrea has many tips and tricks and shares news of an upcoming webinar and her excellent GF College 101 Course.
Mike and Cam are so pleased to sit down with Dr. Daniel Leffler, Senior Medical Director at Takeda Pharmaceuticals, Director of Research at the Celiac Center at Beth Israel Deaconess Medical Center, and an Associate Professor of Medicine at Harvard Medical School. Dr. Leffler is at the forefront of celiac disease research and treatment. This illuminating conversation covers far reaching topics ranging from the mechanisms that turn on celiac disease to some of the very promising treatments and cures coming down the pipeline. Dr. Leffler also shares his candid thoughts about what the future looks like for the celiac community.
Last week Mike shared the details of his exciting trip to Madison, WI. The following week he packed up his family and went to Milwaukee to take in a Major League Baseball game and enjoy the downtown area. Although it seemed that there were going to be lots of great gluten free places to visit on the journey, there were also some challenges to finding safe options along the way. Learn about how their family's quickly planned trip had some highs, lows and avoidable mistakes. Get Mike's top restaurant picks and places that you might want to skip.
Mike took a couple of consecutive weekends to visit two great Wisconsin cities and see what they had to offer from a gluten free perspective. First up is Madison for a softball tournament. While there, Mike and his family had some amazing Venezuelan food and gluten free pizza, allowing them to eat like everyone else (and skip the lines). In next week's episode, their journey to Milwaukee at times turned into a scavenger hunt for safe meals.
Mike and Cam are excited to be joined again on the podcast by "Chef Brian,"(also known as Cam's Dad). Brian shares some of his favorite summer meals, tips and recipes and they reminisce about an incredible 4th of July meal prepared by Brian. In addition, the three guys each chime in about their summer must have meals.
There are new studies looking at the correlation between celiac disease and IBS. Mike and Cam talk about their personal diagnosis of both conditions and talk about some of the similarities and differences that they see between the two. They also examine the fact that some people with IBS who are not diagnosed with celiac disease (but have a celiac gene), tend to do better on a gluten free diet. Hopefully studying celiac and IBS together will lead to more medical breakthroughs!
Long time friend of the show, Erin Smith, of Gluten Free Globetrotter fame, joins Mike and Cam to talk about her 40 years of living with celiac disease. Since Erin's initial diagnosis as a very young child, much has changed in the celiac and gluten free world. Erin shares some of her most profound takeaways living a life with celiac both from the perspective of a child and an adult. She also shares what got her started advocating for people with celiac disease and what keeps her going.
Mike and Cam sit down with Carla Carter, Director of Outreach and Programing at National Celiac Association (NCA). Carla shares her own personal celiac story as well as the origin story of NCA. We also learn about some of the exciting programs and initiatives that NCA is doing to support those with celiac disease. This includes online and in person support groups, their exciting "Feeding Gluten-Free" program to help those with food insecurity, and so much more!
In the exciting conclusion of our 2 part Summer News and Notes podcast, Mike and Cam share more fascinating letters from listeners. This includes questions about gluten detection dogs and oats, how we go about dining out, and some important work being done by the National Celiac Association. The guys also share their thoughts on a recent Italian study that might prove that celiac is more common than previously thought.
It's time again for Mike and Cam to dig into their mailbag and share some amazing letters, including a listener who gets help with a diagnosis of another autoimmune condition from tuning into a past podcast! Plus, hear about how the NIMA sensor saved the day involving a meal out that went wrong in so many ways. The boys also share some news including their thoughts on Men's Health Awareness Month.
Mike and Cam sit down with Dr. Francisco Leon, renowned celiac researcher, immunologist, and founder of Provention Bio Inc. Dr. Leon is a leader in the research efforts to find treatments for celiac disease and shares with Mike and Cam some of the promising research efforts as well as the different forms that these treatments will take. Hear his compelling reasoning about why there isn't more celiac research in general as well as his insights about a possible celiac cure one day, when that might happen, and what it might look like.
Mike and Cam sit down for a fascinating conversation with the author of "Celiac Mom," Ann Campanella. Ann shares the challenges that she faced as a first time mother, suddenly thrust into learning the ins and outs of raising a child with celiac disease. These struggles were amplified by the fact that cooking did not come naturally to her. Ann illuminates Mike and Cam on some of her biggest takeaways from her celiac and gluten free journey.
In the exciting conclusion of Cam's 2 part Colorado snowboarding adventure, we try another delicious Holidaily Brewing offering, this time a fantastic stout! Cam also discusses some celiac related challenges that he faced on and around his trip. He also shares some "edge of your seat" moments that came at 12,000 feet as Cam battled back from some scary moments alone in the wilderness!
Cam and a close friend recently took a road trip to Colorado to hit the slopes and to sample some of the finest gluten free beers, courtesy of Holidaily Brewing. In part 1 Cam recounts his gluten free food packing strategy, we sample a few beers and hear about some of the challenges from both a food and weather perspective that comes with a road trip like this.
As Celiac Awareness Month winds down, Mike and Cam reflect on some of their specific takeaways. They also discuss ways they believe that we as a community can amplify and focus our efforts to make celiac awareness resonate on a larger level and create ways to provide more support for those in need.
Many Americans have been struggling financially, trying to figure out a way to get food on the table. It's even more challenging for people who need to be on a gluten free diet and can't find safe food at their local pantry. Mend Hunger is there to lend a hand with "Pantry Direct," a program shipping safe gluten free food boxes nationally! Mike and Cam sit down with the founders and talk about how they have pivoted, from supporting folks locally to expanding their reach on a much larger scale.
Claire Baker, Senior Communications Director of Beyond Celiac, joins Mike and Cam to talk about some great initiatives going on at Beyond Celiac, including "Raise Your Voice" and their work toward identifying celiac disease in underserved communities, helping to support and diagnose people who might otherwise be left without answers.
May is Celiac Awareness Month, so Mike and Cam kick it off once again with their annual "Celiac State of the Union" podcast. Hear Mike and Cam's personal list of 5 things that they think have improved in the arena of celiac awareness, and 5 things that they both think need some work. Most importantly, Mike and Cam hope that this year, celiac awareness month will lead to some important improvements to those of us living with celiac disease!
Mike and Cam are excited to sit down with Dr. Dale Lee, Director of the Celiac Disease Program at Seattle Children's and board member and parent, Anne Moon. Dr. Lee describes his refreshing and holistic approach to treating celiac disease at Seattle Children's. Anne shares her perspective of how involving the kids, their families and the medical staff has been a transformative experience for all. Dr. Lee is one of the forward thinking celiac physicians leading the charge in transforming the way that celiac patients are treated.
Maureen Basye, founder of the Celiac Cruise, is back to share some exciting updates and details about the Celiac Cruise in 2022. Maureen has also put together a smaller, more intimate European cruise, a truly unique adventure! Her desire is more than just a gluten free trip--her passion is to provide unique opportunities for our celiac community to connect with one another and be well informed all while having a blast!
Mike and Cam are excited to announce that they are both part of the phase 3 study of Larazotide Acetate. They share a few of the early details and their individual reasons for why they both felt it was important to take part. They also share some celiac related COVID and vaccine updates.
Mike and Cam welcome author, Michal Babay, to talk about her brand new children's book: "I'm a Gluten Sniffing Service Dog." Michal shares the fascinating and, at times harrowing, journey that led her daughter to getting their service dog, Chewy. We also learn about what inspired Michal to write the book and her hopes to educate and inspire others who are struggling with celiac and other food intolerance.
Every March folks put together a bracket for March Madness to try and pick the best college basketball team in the land. This year our friend Erin Smith, Gluten-Free Globetrotter, decided to have fun with another type of madness, the crazy terms people try and use to describe gluten free. She ran these terms into "brackets" through her Instagram page, and now Mike and Cam do their best to prognosticate what was voted the truly best "worst" term to describe gluten free. Find out if your least favorites make it to the championship!
Mike and Cam welcome returning guest, Disability Rights Attorney, Mary Vargas. Mary discusses an important and often overlooked topic; how the prison and jail systems handle inmates with celiac disease or other food intolerance/allergies. Mary is currently representing a man who, despite being diagnosed with celiac disease, was not given safe food while in jail. We go deep into this subject and talk about the need for the government to provide better support.
Mike and Cam are quizzed on all things Irish in honor of St. Patrick's Day on their first ever, "Stump Mike and Cam" podcast. In addition they try possibly the strangest spirit ever created, called Malort, and share the strange and entertaining story behind this quirky Chicago tradition that can be best described as motor oil with a twist of grapefruit. So grab a bottle of Malort, and test your Irish trivia!
Mike and Cam are excited to be joined by returning guest, Katie Jones. When we last talked to Katie (EP 71 and then EP 119) she was struggling mightily with her health. Katie has multiple autoimmune diseases including: brittle bone disease, MALS and POTS, in addition to celiac disease. Now in a much better place health wise, Katie is following her wanderlust, purchasing a van and setting out on a new life adventure with her gluten detection dog, Piper. She shares some of her plans and tips for those with celiac disease who want to go on similar adventures.
Mike and Cam are excited to be joined again by Marilyn Geller, CEO of the Celiac Disease Foundation. Marilyn joins us on the eve of the CDF's second Patient Education & Advocacy Summit. Learn all about this groundbreaking event and how you can be a part of it. Marilyn also shares more exciting news about other ways that the CDF is helping to advance legislation and research for celiac disease.
Mike and Cam, again joined by Mike's wife Ellen, dive into part 2 of Winter News and Notes, talking about a very promising phase three drug study. They also get to more of your incredible emails and the show ends with Mike giving Ellen a very "cheesy" challenge.
Mike's wife and the show's producer, Ellen, joins Mike and Cam to read some of the fantastic letters from our amazing listeners! Today, they discuss the shocking story about a wife and her husband's blood test mix up, plus an email looking for answers about when being on the gluten free diet isn't enough. Join us next week in Part 2 as we discuss more of your emails and share news of a very promising study.
The Celiac Project Podcast is excited to help with a big announcement! Mike and Cam are joined by Cutting Costs for Celiacs founder, Lexie Van Den Heuvel, and COO of GIG, Channon Quinn as they share that GIG will be taking Lexie's Wisconsin-based non-profit, which she began as a teenager, nationally. She and Channon explain the process of how GIG plans to support Lexie's mission to help folks with celiac who are struggling to get by on a much grander scale.
The "Big Game" is this weekend so we invited Sam and Brian to join this week's show! We get you ready by tasting a couple of ciders and beers and talk about our game day favorite foods. The discussion quickly turns to beer cheese, Welsh Rarebit, Nachos and something called Schmooey on Toast. It might sound cheesy, but is everything just better with cheese? Grab a cold one and decide for yourself as we get you ready for Sunday's "Big Game!"
The mind/gut connection is powerful and very real, especially with those who have celiac disease and other related GI conditions. Mike and Cam sit down with Dr. Alyse Bedell of the University of Chicago, who specializes in this phenomenon, to talk with us about her approach in treating patients who are seeking relief. Dr. Bedell shares her advice for our listeners who are struggling with some of these issues.
Last week, Mike and Cam had a blast reacting in real time to the survey questions from the latest edition of the Gluten Free Buyers Guide, without first knowing the results. There were some shockers! Tune in to Part 2, where these questions and results get even crazier!
The latest edition of the Gluten Free Buyers Guide published a fascinating survey of around 600 readers. Mike and Cam don't know the results, so they decide to go through the survey blindly and give their answers and prediction of how other celiacs answered. They had so much fun it became a two part show!
We celebrate our 5th year Anniversary of producing the podcast by each sharing our five takeaways over the duration of the show. We also celebrate the numerous incredible guests and thank our wonderful loyal listeners for continuing to listen, interact and support the work we do. Looking forward to a great 2021!
As we crawl to the end of 2020, we thought it would be appropriate to toast its much-anticipated end with Ghost Pepper Saison Beer made by Ghost Fish. Reflecting on the strange year that was, it's fitting that Cam shares his mom's recent experience with COVID and the puzzling test results in their home. Ending on a sweet note, we look ahead to what we believe will be a much better 2021, toasting our listeners with a tasty Carmel Cocoa Cider by Stem. Happy New Year to all!
Mike and Cam have an illuminating conversation with Dr. Ritu Verma from the University of Chicago Celiac Center. Dr. Verma shares her unique perspective on treating celiac disease not only as a doctor, but as a parent of two children with celiac disease. Dr. Verma talks about her holistic approach to treating patients because she knows firsthand that moving forward with a celiac disease diagnosis is not a one size fits all proposition. She also shares her thoughts on the U of C's recent Autoimmunity and Beyond symposium.
Mike and Cam sit down with Cinde Little, Health Educator, and passionate home cook who founded Everyday Gluten Free Gourmet. Cinde shares her personal story of how she became such a passionate advocate for supporting folks with celiac disease and helping people learn to love to cook gluten free. She also tells us some of her top cooking tips over the holidays and beyond including her "seasonal strategy" for rotating fresh ingredients when they are in season.
The life of a college athlete has may challenges. Add into that mix having celiac disease, and there can be many added speed bumps along the way. Laura Carpenter, a former college soccer player, explains what it was like to navigate the world of college athletics while being away from the safety net of her home and family for the first time. Laura also offers great tips to students and their families, athletes or not, on important factors to look for and think about when looking at schools.
Thanksgiving can present unique challenges to people with celiac disease or gluten intolerance. This year we have the added strain of dealing with COVID-19. Mike and Cam discuss what the changes will be for them this year as well as tips on how to stay safe during the holidays. They also share their insights on using the pandemic as an example for how careful we have to be in our lives avoiding gluten.
Lori Welstead, Registered Dietician and Nutritional Advisor at the University of Chicago Celiac Disease Center, joins Mike and Cam to share her own incredible story of her celiac diagnosis. Lori also talks about her approach working with newly diagnosed celiac patients. We also hear about the University of Chicago's upcoming Celiac Disease, Autoimmunity & Beyond virtual symposium that is coming up on Saturday, November 21st.
Mike and Cam are excited to be joined by Jeanne Reid and Laura Allred of the Gluten Intolerance Group (GIG). They share the big news with us that GIG is changing the Gluten Free Certification Organization (GFCO) seal, the GF in the circle that we have all come to know and trust over the years. We learn the details and thought process behind this decision and why it will benefit the celiac and gluten free community moving forward.
Mike and Cam sit down to discuss three new fascinating studies that were done in conjunction with The Celiac Disease Foundation's, iCureCeliac Patient Registry. We also talk about the early results of research just in time for Thanksgiving. This one showed that combining turkey amino acid (tryptophan) with probiotics was found to reduce gluten-triggered inflammation and improve the response to a gluten-free diet in people with celiac disease.
This week we wrap up our Fall News and Notes podcast with a couple of uplifting messages from our listeners, an update on how the Nourished Festival went including shout outs to the companies who sent us some samples to try. On that topic we discuss examples of some of the struggles that gluten free businesses are having during this time and what we can do to support the small companies and restaurants who are working so hard to support us.
Mike and Cam sit down to discuss some of the current topics in the celiac and gluten free world, and also read some letters from our amazing listeners. In part one of this special two part fall episode, we share a listener's emotional family story, talk about a promising study about how gluten being introduced to infants might impact them getting celiac disease, and the latest on the Nima sensor situation.
It has been treacherous navigating daily life during the COVID outbreak. Students with celiac returning to school have been put under extra stress, as many schools have fewer resources devoted to students with celiac or other food intolerances. Some colleges have abandoned special food programs all together. Andrea Tucker is working hard to support students and their families who are facing these obstacles. She has a Facebook group Gluten Free College 101 and is announcing a new subscription platform to provide this very important support.
Disability Rights Attorney, Mary Vargas, returns to the podcast representing her clients in two landmark cases within the celiac community. J.D., whose case against Colonial Williamsburg sent shockwaves through the celiac and gluten free community, and Hannah, who's involved in a case against the University of Maryland. Both courageous guests share their experiences about these tough situations, how and why they decided to go to court, and their long term hopes about how their cases can hopefully effect positive change moving forward.
Returning author and blogger, Debbie Simpson of Gluten Free Respect, has just released her newest book "Gluten Free: The Emotional Side of Dietary Differences." Debbie, Mike and Cam have a frank discussion about the emotions that come with having celiac disease or gluten intolerance, and some of the steps and challenges that they all experienced in order to move through their lives both pre-diagnosis and post.
Nima was recently sold to the company Medline, and not everything has gone so smoothly. Most importantly, people who rely on the Nima have found that replacement capsules are no longer available for purchase. It has been difficult finding answers from Medline, so Mike and Cam want to share the latest on the situation and offer some of their thoughts and ideas that could make things easier moving forward.
The pandemic has affected so many businesses, and for the Gluten Free Expos and Festivals more people attending these large gatherings means more success. So Jen Cafferty, the founder of everyone's favorite gluten free and allergy friendly Expo, the Nourished Festival, didn't just fold up her tent when COVID-19 struck. Instead, she got right to work creating an innovative new online platform. Learn all about the amazing work that Jen is doing to bring this exciting version of the Nourished Festival to you!
You don't need us to tell you that this has been a summer like no other,. That said, Mike and Cam each want to take some time to reflect on the top five things that have kept us in a positive head space during the pandemic. We are so honored that you choose to listen to us each and every week and bringing the podcast to you is certainly high on our list of things that are keeping us moving forward. Thanks for your support!
Mike and Cam are pleased to sit down with returning guest, Josh Schieffer, owner and founder of the Gluten Free Buyers Guide and Gluten Free Awards. Josh gives us a fascinating look behind the scenes at how the Buyers Guide and Awards are put together, including how you, the consumer, ultimately pick the winners! Josh also tests Mike and Cam's Springsteen knowledge with a unique quiz bridging "The Boss" and gluten free.
Blogger and world wide traveler, Jen Fitzpatrick, of the Nomadic Fiztpatricks, has found creative ways to bring travel home during the pandemic. Though most of us aren't doing much extended travel right now, including Jen, she is bringing various cultures to her home by cooking different world cuisines and then taking a deep dive into each given culture. She is also exploring her own town and community in ways she hadn't done before. Also hear about her exciting new E-book coming out this September.
Cam recently had his first ever camping experience with a couple of buddies. Despite being a novice, he brought his A-game to this adventure. He became the de-facto chef for the excursion, and in doing so, made this mere camping trip into much more of a high end outing. In fact, Mike introduces the term glamping to Cam and believes that he might just be a full on "Glamper."
In part 2 of our dynamic conversation with attorney, Mary Vargas, we revisit the historic J.D. v. Colonial Williamsburg case and talk about the outcome and why this was such a landmark case for defending the rights of those with celiac and food allergies. We also talk to Mary about a current case in which she is representing a former University of Maryland student who was given far from equal treatment by the food services at the school.
Attorney, Mary Vargas, has been a maverick dealing in cases concerning Disability Rights. This week, Mary shares how she became interested in Disability Law and her thoughts on the FDA temporary policy change on food labeling requirements. Next week in part 2, Mary updates us on her client's well publicized and historic case, J.D. v. Colonial Williamsburg and also shares another dramatic case involving a celiac student at the University of Maryland.
People with celiac disease or gluten intolerance are constantly monitoring what we put in our bodies, but what about what you put on your body? Our guest, Dr. Liia Ramachandra, co-founder and CEO of Epilynx, has made it her mission to formulate skincare products that are safe for people with celiac disease, allergies and other autoimmune conditions. She also makes a hand sanitizer that is safe for your skin and not on the long and scary list of recalled hand sanitizers out this week.
We have way too much fun in part 2 of our summertime spectacular featuring Cam's dad, Brian and Mike's nephew, Sam. Topics include summer grilling, both meat and meatless options, some amazing donuts that Sam has fried up, and a seltzer that tastes a little too much like suntan lotion. Mike and Cam also realize during the podcast that Mike's affection for seltzer is likely greater than the three of them combined.
It's summertime and although we are still sadly dealing with the realities of the coronavirus, we aren't going to let that ruin our fun. Mike and Cam sit down with Cam's dad Brian and Mike's nephew, Sam (from a social distance) to taste and rate a couple of adult beverages and talk about what they have been cooking up during the pandemic. Part 1 includes Sam's foray into gluten free sourdough, a strange wedding you won't believe plus Brian's quest to find yeast. They also try High Noon Sun Sips Vodka & Soda and Odd Side's Fuzzy Navel.
Marilyn Geller, Chief Executive Officer of the Celiac Disease Foundation (CDF), joins Mike and Cam, candidly sharing her own personal story. Marilyn connects how her experience has led to her life's mission of creating a better world for people with celiac disease. We hear about all that the CDF is doing to support advocacy and an update on the search for new treatments and a cure for celiac. She also shares how you can get involved to make real systemic change for the better for those with CD and gluten intolerance.
Fellow Celiac, Julie Morgenlender, joins Mike and Cam to discuss her new nonfiction anthology, "The Things We Don't Say: An Anthology of Chronic Illness Truths." In the book, Julie shares her own health journey among a compilation of at times jaw-dropping stories from other sufferers. She explains why giving the medical community and the general public a better understanding of what living with chronic illness looks like is so important. Julie also talks about some of the biggest challenges people with chronic illness face on a day to day basis.
You can purchase the book on Amazon:
https://amzn.to/3i1rtyJ
For part 2 of the Spring Mailbag, Mike and Cam share one listener's amazing journey to diagnosis that they found to be highly relatable. They also talk about a possible correlation between schizophrenia and celiac disease. Plus, an update on The Celiac Project Documentary. Keep sharing your stories and comments with us and you might just make it on an upcoming podcast.
Mike and Cam dig down into their mailbag to share questions and comments from you, our amazing audience! Topics included in part 1 are a new listener who shares her road to diagnosis plus emails about pregnancy and child rearing with celiac disease.
The FDA has made some changes to labeling laws during the pandemic to make things easier for manufacturers to "tweak" their "lesser" ingredients without reflecting these changes on the label. Mike and Cam explore these new regulations and give their thoughts on the ramifications it can have on the gluten free and allergen free communities.
Before the pandemic, we interviewed Maureen Basye just after her very successful Celiac Cruise in January. After much discussion with her, we ultimately felt it would still be great to share the adventure. So, we recorded an updated intro including a short discussion with Maureen on cruising in the future and what it might look like. After that, you'll hear the original podcast from January--with all of the sheltering in place, you can come sail away on this truly one-of-a-kind gluten free adventure!
Mike and Cam are happy to welcome back Dawn Scheu, owner and trainer at Willow's Service Dogs. Dawn discusses the final stages of Cam's journey training his dog Lacy to be a gluten detection dog and some of the challenges they faced. In addition to talking about what a person should take into account before thinking about the process of a gluten detection dog, Dawn talks about the things you need to think about before getting a pet in general and specifically during the pandemic.
Advocacy for celiac disease comes in all shapes and sizes. This is clearly apparent with two of our favorite young guests, Mike's daughters, Jessica (11) and Melanie (8). On the occasion of Melanie's 8th birthday she shares her experience of what it's like to be the only non celiac or gluten intolerant member of her household. Mike and his family have employed unique strategies to make sure Melanie can still enjoy a little gluten while keeping the rest of the family safe.
This year we do a new twist on our annual Celiac Awareness Month "State of the Union" podcast. We wanted to get an expanded view of what life has been like during this pandemic, so we brought in Aaron Bull, who is located in Virginia, to share his perspective on living with celiac disease during this unprecedented time. Mike, Cam and Aaron share their takeaways and tips that they have each used to get through life with celiac under quarantine.
To learn more about Aaron and the work he does:
https://www.bullcm.com/
It's Celiac Awareness Month and we want to make it special despite the continued need for social distancing. Today our guest, Andrea Tucker of Baltimore Gluten Free, shares what she is doing to help advocate for and educate young adults and their families who are making the transition from high school to college. This can often be a rocky road due to the fact that there is a vast range of support levels from school to school. Andrea helps guide families with the right tools to make the best decision of where to attend.
Here is the link to Andrea's GF College101 Facebook group:
https://www.facebook.com/groups/glutenfreecollege/?ref=share
Here is her list of "Must Ask Questions Every GF HS Student Should Have When Looking at Colleges":
https://mailchi.mp/fd9f9db44444/mustaskquestions
Do you have issues taking traditional recipes and converting them to gluten free recipes? Alex Hutchinson, who was diagnosed with celiac disease early in his life, made it his mission to help folks do just that. He created the app and website Recipe Revolution to help consumers and restaurants take traditional favorites and turn them into equally tasty gluten free versions.
Returning guest, Leah Davis, connects with us from Berlin, Germany. When we first talked to Leah (Episode 162) she told us what it was like to be newly diagnosed with celiac disease while also navigating living in a new country. Leah is now pregnant with her first child, and she shares her experiences as a celiac. She shares her top takeaways and tips to others with celiac who are considering having a baby.
Before quarantine started, Mike and Cam sat down to talk about new research including the exciting new mouse model being conducted at the University of Chicago. Other topics include some reasons why it can be so hard at times to figure out if you were glutened at a restaurant.
Coral Barajas, founder of Serving Celiacs and the podcast, You & Me Gluten Free, stops by to chat with Mike and Cam. We also are excited to be joining Coral on her podcast, so make sure to check that out on Tuesday of this week. Learn all about Coral and what inspired her passion for helping people on their celiac and gluten free journey.
After a couple of weeks of special guests talking about the coronavirus we are back today with part 2 of Cam's California adventure. Cam tells us about his journey to Big Bear National Park. We hear about the amazing food that he and his father Brian cooked up between skiing and snowboarding. The trip was not without setbacks as Cam had to push through a sinus infection at the tail end of their vacation, but that didn't stop him from checking out his favorite comedy show.
As things continue to evolve with COVID-19, we are joined by world renowned celiac expert Dr. Peter Green, Professor of Clinical Medicine and Director of the Celiac Disease Center at Columbia University in New York City. Dr. Green illuminates us about the need for further studies to really understand how those with celiac disease will be affected by this virus and is currently setting up an international database to forward his research.
This has been a challenging and scary time to say the least, so to gain some clarity on the Coronavirus and Celiac Disease we reached out to Dr. Benny Kerzner, Pediatric Gastroenterologist and creator of the Division of Gastroenterology, Hepatology and Nutrition at Children's National Health System. Dr. Kerzner helps shed some light on how the virus impacts those of us with celiac disease.
Cam hasn't done much long distance travel lately, but he and his dad, Brian, recently packed their bags and headed to the Los Angeles area and ultimately on a trek to Big Bear National park for some skiing and snow boarding. In part 1 of their adventure, we hear about how they prepped for their trip, a rough beginning at the airport in Chicago, and how they satisfied their huge hunger once they arrived. Look for part 2 next week!
We are so excited that the Gluten in Medicine Disclosure Act was introduced as a Bill in Congress at the end of 2019. It been a long time coming and we hope it becomes a law soon! We also speculate on celiac diagnosis rates. Is it time for some of the numbers related to celiac diagnosis to be updated? Is it time for a "celiac census?"
General Mills recently put out feelers on a new line of products that they term "gluten friendly." These products start with gluten free ingredients, but would not necessarily be made on gluten free lines or made in gluten free facilities. We weigh in on this and also talk about the downside of the term "gluten friendly" as it is being used for restaurants and how we feel it negatively impacts our community.
New takeaways have been published pertaining to the 2018 Doggie Bag Study. This study was the first of its kind as it tested actual samples from the participant's food and then studied the reaction that the food had on each of the subjects (all with celiac disease). The major finding from this study is that it might, sadly, be impossible to live completely gluten free.
Mike and Cam welcome guest Vanessa Weisbrod, the Executive Director of the Celiac Disease Program at Children's National Hospital. Vanessa shares her personal celiac story, and talks about the work she is doing, including the groundbreaking cross-contact studies for home and school, which sent shockwaves throughout the celiac and gluten free communities. Vanessa explains why these studies are so important moving forward.
Justin Bieber recently took to Instagram to announce he is gluten intolerant. This got Mike and Cam thinking about some of the gluten free celebrities who have already claimed gluten free status. They discuss what having a high profile spokesperson might do for the gluten free world. Also, the confusion around some of these celebs, in that one website might say that they are gluten intolerant and another will say they have celiac. We discuss whether it is something that should matter to our community.
Come along with Trey, Mike and Cam on one fantastic journey! Trey French, an avid long distance hiker, joins us to talk about what life is like on the trails having celiac disease. He has covered approximately 6,000 miles including the Vermont Long Trail, Pacific Crest Trail and Continental Divide Trail to name a few. Hear the amazing story of the long distance celiac hiker who inspired Trey to take his first leap into the world of hiking.
In an interesting preliminary study, some Australian scientists may have found a link between gluten proteins and some proteins found in bacteria. Might these bacteria actually mimic gluten and lead to the development of celiac disease? Mike and Cam also look at a study that is attempting to set safe guidelines in schools for celiac children handling things like Play-Doh, dry pasta and paper mache.
Back from his European adventures, Mike's nephew Sam joins the guys in the studio to talk about the rest of his fantastic trip! Sam fills us in on the rest of his time in Spain, France and he is blown away by how celiac friendly Italy is. He also shares some of his top tips and take-aways from this type of travel.
Mike and Cam connect with Mike's nephew and fellow celiac, Sam, as he tours Europe. He shares his biggest challenges and triumphs during his first time traveling through Europe, and he is doing much of it solo. Sam's shares his biggest hurdles as well as helpful tips on being a gluten free traveler. Check out part 2 next week, when Sam is live in the studio to tell about the last leg of his adventures, sharing his take-aways about his entire trip.
We are ringing in the New Year by sitting down to reflect on the past year and make it extra fun by sampling some drinks for the first time. Wishing you a safe and happy Gluten Free 2020!
We are serving up an extra large helping of The Celiac Project Podcast as our holiday gift to you. Hear our thoughts about reducing stress at this time of year plus a couple of holiday lists that will hopefully keep everyone happy and healthy. We will be off on Christmas, but look forward to toasting the New Year with everyone on January 1st!
We all know how stressful gluten free travel can be! Mike took his family to San Francisco and somewhat to his surprise, they ended up eating only at 100% gluten free establishments. Find out about all the amazing places they visited as well as some fantastic friends in the celiac community who they "broke GF bread" with!
We have made it to episode 200--what a ride it has been! Mike and Cam take time to reflect on the journey so far, and how the podcast has grown and evolved from where it started 4 years ago. We also talk about the origin of how we met and what prompted us to embark on this adventure. Most importantly, we are happy that you have shared this experience with us!
In Part 2 of our Fall Mailbag we hear from a childhood friend of Priyanka Chugh, who now specializes in memes on Instagram. Plus, gluten detection dogs, Celiac Cruises and special "shout outs" to our TCP Inner Circle on Patreon.
Our amazing listeners have opened up to tell us stories that are both touching and inspirational in Part 1 of our Fall Mailbag. We revisit our recent conversation on trauma, hear from a mother inspired by Jessica's celiac advocacy in school, and a gluten free home brewer who has a whole lot in common with Mike.
Erin Heidenreich, Registered Dietician, and founder of The Celiac Space joins us to talk about some of the unique issues that come up with working with clients who have celiac and other related conditions. As someone with celiac herself, Erin has a shared perspective and provides tools that she has used in her own life navigating living gluten free. She passes this knowledge to her clients to help them get through their own physical, emotional and mental hurdles.
Mike and Cam share an intriguing article about a woman who is encouraged to get tested for celiac disease based on an at-home genetic test. In addition, Mike shares his recent frustrations trying to get answers to confirm if a prescription drug is indeed gluten free.
In the last week or so the celiac world has been buzzing with the news of a potential groundbreaking new celiac disease treatment that could be available soon. In a small phase 2a study, this nanoparticle being called CNP-101/Tak-101, enters the body like a "Trojan Horse" that might be able to prevent the body from triggering an immune reaction in the body. While the study is small, this has so much potential to change not only the lives of those of us with celiac disease, but hopefully can lead to a breakthrough in treatment of other autoimmune diseases.
It has been a while since we read a published piece that has set us off. This week Mike and Cam take a dive into a New York Post article that completely trivializes any health benefits of the gluten free diet. They give a lot of weight to a new study that was done on a very small scale.
A new, controversial study, indicates that there might not be as large a risk of cross contamination for those of us with celiac disease. The study includes findings that cross contact including the use of a separate toaster to toast gluten free bread might not actually be needed. Mike and Cam are more than a little skeptical as they explore the findings.
Have you ever fantasized about taking a sabbatical and traveling the globe for 6 months? Our guest, Jennifer Fitzpatrick, whose blog is "The Nomadic Fitzpatricks," decided to do just that. She and her husband took what they called a "gap year" and grabbed their backpacks to see the world! Jen didn't let her celiac slow her down! She shares some of the greatest, as well as most challenging, locations from her amazing journey.
Cam has finished the training with his dog Lacy to be a gluten detection dog. Their journey has been amazing, with plenty of ups and downs and some unexpected hurdles to overcome. One thing is for sure, it has been absolutely life changing for Cam and how he deals with his celiac disease, helping him to stay completely gluten free!
We love all the new studies coming out and discuss two in particular on the podcast. The first study indicates that folks with first degree relatives may may have a much larger chance of developing celiac disease. The second study shows that there could be a higher incidence of celiac in children who consume more gluten when they are young.
Last Friday was National Celiac Awareness Day, but did you know that it shares the date with lesser known days such as, "Blame Someone Else Day?" Mike and Cam discuss a myriad of this somewhat strange and sometimes arbitrary group of special days. We also talk about the meaning of Celiac Awareness Day, and some of our hopes for better celiac awareness and understanding.
Real life celiac superhero, Priyanka Chugh, creator of the blog, The Adventures of Anti-Wheat Girl, joins us. Priyanka, currently in medical school, shares her challenges growing up with mostly asymptomatic celiac disease in a family with a celiac brother and non-celiac sister, leading to some unique challenges. Ironically, Priyanka's mother, Dr. Ritu Verma, happens to be one of the top pediatric gastroenterologists in the world. Priyanka illuminates us as to how celiac disease is being taught now (still not great), and her efforts to help educate her fellow medical students about celiac and other chronic health conditions.
Mike has made two trips to Madison, Wisconsin this summer. The second was with the great crew from GIG Chicago. He shares fantastic tales of other-worldly gluten free treats including refreshing beer from Alt Brew, tasty poke bowls, the most amazing waffles ever (?), and wait for it...gluten free deep fried cheese curds, Tachos (think nachos, but with tater tots) and FUNNEL CAKES!
It's back to school time again, so Mike and Cam decided to sit down with Mike's daughter, Jessica. Jessica is starting middle school this year and there will surely be new challenges. They talk to her about some of her strategies that have been helpful up to this point and what she is looking forward to and nervous about in the upcoming year.
New studies show that their might be a link between childhood trauma and the development of celiac disease. Mike and Cam discuss these studies, and open up about the toll that trauma and stress has had on their own lives, both pre-diagnosis and post.
Wouldn't it be amazing if there was an app for finding 100% dedicated gluten free establishments around the world? Well now there is and our friend Carrie Veatch from "For Gluten Sake" made it happen! We find out what inspired Carrie to make her app and why she wanted to include only dedicated gluten free businesses.
Pull up a bar stool and sample along with us a few gluten-free summer "adult beverages." We also reminisce about the fantastic 4th of July vacation that Mike and Cam and our families went on together, which included Cam's first ever wine tasting and an out of this world #PizzaFriday. Cheers and happy summer to all!
Jessica Hanson is back! Jessica had a great approach to simplifying the process of making her wedding gluten free. She t shares her amazing gluten free culinary adventures on her honeymoon in Italy. We knew that Italy was an incredible celiac destination, but you won't believe just how accommodating they are. After this conversation, Mike and Cam are ready to pack their bags!
After finding that Nexvax2 did not provide, "meaningful protection from gluten exposure when compared with placebo," ImmusanT pulled the plug on their trial. Mike and Cam share their thoughts and also discuss a highly informative article written by Kelly Carter, a participant in the study. In the end, we are optimistic that more good will come out of this down the line, and we talk about why trials like these are so important to help us hopefully find a cure for celiac disease.
Our guest, Kristen Adam, at age 11 is the author of the book "Dear Celiac." Kristen tells us about her celiac journey and what inspired her to write her fantastic book. The story unfolds beautifully due to her bold imagination and amazing illustrations, and she shares her insights on how and why she decided to put pen to paper.
Taylor Miller, of Hale Life Blog talks candidly about his diagnosis, plus some of the huge challenges that he faced in his teens and what inspired him to share his experiences at such a young age. Taylor shares his thoughts on a variety of topics including how he handles some of the awkwardness of broaching the topic of celiac and being gluten free on the first date.
All seemed bleak for the prospects of the boy (known as J.D.) and his father who were forced out into the rain to eat their own food while on a school trip to Colonial Williamsburg. After an appeal, however, a panel of 3 judges has ruled 2 to 1 that the case will go to trial after all. Mike and Cam share their thoughts of why this is such a monumental case for the celiac and allergy communities.
In part 2 of our summer mailbag we dig into more of your heartfelt emails and comments. Hear about two listeners (and former guests) who connected in Berlin through the podcast. We also talk a little about how to advise friends and relatives who are looking to get tested. In addition, inspired by all the amazing comments we received about Jessica's appearance on a previous podcast, we discuss the next generation of up and coming young advocates.
It's mailbag time again! We love hearing from you, our loyal listeners, so we are digging into the mailbag to talk about some of your incredible emails and social media questions and comments. In part 1 we hear from a newly diagnosed baseball executive, talk about safe gluten free alcohol choices and also revisit some of the reactions from the controversial "Know Celiac" campaign.
Worlds collide for Cam as the guys are joined by Paintball Pro, and fellow celiac, Matt Kling. Matt is 21 and currently plays professional paintball for the top team, San Diego Dynasty (the Yankees of paintball). His celiac diagnosis coincided closely to his rise to the top of his sport. Matt shares some of the struggles that he endured along the way. His team has traveled all around the world and some of the destinations have been much easier to navigate than others. He ultimately has not let these challenges slow him down or get in the way of his passion for paintball.
Mike and Cam talk a little bit about some of Cam's favorite podcasters. They also talk about an article written by an inmate with celiac who is not getting treated well by the prison system. Finally, they talk about gluten in their dreams. Do you have dreams that you are eating gluten (both fantasy and the nightmare variety)? If so, please share them with us!
Mike and Cam get to know Matt Hansen, celiac traveler and blogger at Wheatless Wanderlust. Matt's celiac story doesn't start in a typical way. He would get food caught in his throat and eventually was diagnosed with both EoE and celiac at the same time. Matt talks about his early struggles to find the courage to travel with these two auto-immune disorders, eventually learning to slowly push out of his comfort zone. Matt is now a celiac world traveler and has made gluten free guides for many cities around the world. Matt shares his top tips for celiac travel as well as his favorite destinations around the world.
Mike and Cam are pleased to be joined by Bob Goodman, founder and CEO of Goodman Gluten Free. Bob shares his fascinating experiences in the food industry spanning a lifetime. From his early years as a butcher to his training in pastry in France, we hear what ultimately inspired him to come out of retirement to start a gluten free company for the first time.
Each year during Celiac Awareness Month, Mike and Cam take the pulse of the celiac world by putting out their "Celiac State of the Union." This year's episode is extra large and especially interesting as they look at the now very controversial "Know Celiac" campaign put together by many of the top celiac groups. They also share their thoughts on the Columbia Study that found that 32% of food tested at restaurants were found to contain gluten, and find out which states are Googling "celiac" the most.
Hot off the trails of her first school over-nighter, Mike's daughter, Jessica (10), shares the ups and downs she encounters as a first time solo celiac traveler. Even well planned trips like this one have some mishaps, and Jessica handles them like a champ!
Our guest, Maureen Basye, is taking the world of cruising by storm, creating the first ever Celiac Cruise! Maureen tells us how and why she was inspired to make this dream of a Celiac Cruise a reality. Despite some of the challenges that she has discovered along the way, Maureen's passion for safe travel for those with celiac disease and gluten intolerance can't stand in the way of making this awesome vision come to life.
Mike and Cam are joined by pilot and fellow celiac, Marcia Wescott. Marcia talks about the specific challenges that she faces in her career as a professional pilot. Hear how she prepares for her 8 day trips and her often frustrating experiences with airport catering.
We check in with Cam on the way back from a road trip to St. Louis where he and his sister Peyton were on a quest for comedy. One of their favorite comedians, Tony Hinchcliffe, does a unique show called "Kill Tony", where audience members are able to put their names in a hat for the opportunity to get critiqued (or roasted in many cases) by Tony himself. We talk about how Cam prepped for his trip foodwise and find out if Cam or Peyton had the nerve to put their names in the hat!
In part 2 of our talk with scientist, Craig Hardgrove, we get deeper into some of the psychological effects of dealing with pre and post diagnosed celiac. On a lighter note, we also talk about our shared love of Chicago style beef sandwiches, and debate how to prepare the perfect sandwich--just don't forget the giardiniera!
In part 1 of our talk with Craig Hardgrove, Craig shares his story of how he used his ill health and angst to propose an audacious plan to NASA using tiny spacecrafts to find hidden hydrogen on the moon....spoiler alert...they accepted it! Mike, Cam and Craig discuss how their celiac (both pre and post diagnosis) have at times motivated them while other times they've held themselves back due to celiac.
Inspired by the bizarre New York Times interview with Gwyneth Paltrow, where she takes credit for popularizing the gluten free diet (among other things), we examine that brand of crazy plus some of the other celiac and gluten free myths that are being perpetuated.
As if adjusting to a gluten free diet isn't enough of a challenge, the loss of enjoying a variety of great beer can be a bummer...unless you're gluten free home brewer extraordinaire and founder of Zero Tolerance Homebrew Club, Joe Morris. Morris is a gluten free brewing dynamo! We learn about how Joe first started the club, made the transition from traditional home brewer to gluten free, and recently became an award winning brewer himself. Joe also gives some tips on how you can get started with gluten free home brewing!
It is hard for anybody getting diagnosed for the first time with celiac disease to navigate a new way of life. Now imagine that you just moved to another country when that happened. Our guest, Leah Davis, who joins us from Berlin, Germany, did just that. Leah got her diagnosis just a few months after moving there. She talks about the multitude of challenges she faced getting diagnosed all while navigating a new language and a new country.
Dr. Peter Green and Dr. Benjamin Lebwohl, both of the Celiac Disease Center at Columbia University, served as editors on a recent journal publication updating some long held beliefs on celiac disease. Mike and Cam share their thoughts, and are hopeful that the changing face of celiac will lead to higher diagnosis rates and even more breakthroughs in research as better treatments and a possible cure draw nearer.
It's been a long time since Mike's nephew, Sam, has been a guest on the podcast. He joins the show to talk about his recent trip to Israel with a group from college. As a vegetarian with celiac disease, Sam often has increased miscommunications, especially when ordering a meal in advance. We talk about some of the challenges he faced on the trip as well as his top tips for eating gluten free in Israel.
We talk to Jani Tuomi, co-founder of Imaware, the first ever home celiac blood tests. One test is given if you suspect that you have celiac and another (that Mike and Cam took) is for follow up testing to ensure that you are not getting cross contamination. Imaware assembled an impressive team including Dr. Guandalini and Dr. Schuppan to make sure that they were focusing on the most important details and metrics. We talk to Jani about the overall vision for Imaware and how they are helping to blaze and new trail, allowing patients to take a more active role in managing their health care. Mike and Cam also share the results of their recent Imaware blood test.
In part 2 of Mike's incredible adventures at Disney World, he highlights many more amazing gluten free treats to be found in the parks. In addition, there are some bumps in the road including a hotel breakfast that nearly goes wrong and a Chicago ice storm that prolongs the trip. Mike and his family quickly turn lemons into lemonade as the one day extension allows them to stay at a Disney run hotel and compare and contrast the experience.
Besides having way too much fun on the Pirate's of the Caribbean ride, he and his family attempted to sample as many of the amazing gluten free treats and meals as they possibly could. Some highlights in part 1 include Mike's new addiction, the amazing Dole Whip, and the boys don't see eye to eye about one of the classic Disney rides.
Friend of The Celiac Project, and one of our favorite guests, Erin Smith, Gluten Free Globetrotter, joins us to talk travel! We share many tips including planning a trip plus smart first steps to take while traveling when newly diagnosed. Although it happens infrequently to us, we also share some of the ways to keep moving forward if you get glutened on a trip.
We're starting this year with news of some promising breakthroughs in celiac treatment and diagnosis. This week we share information tests and products that are either newly on the market or in the late testing stages including ImmusanT and Imaware.
We have such fantastic listeners and are so inspired by hearing your stories that we are sharing more great emails in part 2 of our special New Year's mailbag. Inspired by one of these listener emails, Cam is inspired to take action on his own health.
We love our listeners, so what better way to start of the New Year but to celebrate you with a special 2 part mailbag? Mike and Cam talk about some of last year's episodes and events that have made the most impact on you.
In the conclusion of our 2 part "Holiday Cheers" series, Mike and Cam sample some truly unique spirits in order to get in the holiday "spirit!" We consider all of you listeners to be our extended celiac and gluten free family and wish you the happiest of Holidays and an amazing New Year!
Sit back and relax as Mike and Cam prepare you for the Holidays with our "Holiday Cheers" series. For part 1 grab your favorite gluten free beer and pull up a bar stool as the boys sample 2 unique brews and talk about their epic Thanksgiving celebration. Get ready for next week as they sample a few more unique selections! Happy Holidays!
This week Mike and Cam talk to blogger and mom, Julie Pintozzi, of "It's a Wheatless Life." Julie talks extensively about her son Noah's diagnosis and some of the challenges they faced on his journey. We all share some tips for keeping you and your children safe and gluten free during the holiday season.
Cam has had an amazing season of Paintball, culminating with a trip to the Nationals near Orlando, Florida. Cam's preparation to take a trip like this is very involved. You won't believe all that it takes just to get him past airport security!
Mike recently traveled to Portland, Oregon for the Gluten-Free Food Allergy Fest, making frequent stops at the jaw-dropping, mouth-watering gluten free establishments along the way in this truly gluten free mecca, and sharing his takeaways!
In part 2 of our informative discussion with author and functional medicine Doctor, Dr. Tom O'Bryan, Dr. Tom drops more knowledge about ways we can improve our brain health and autoimmune issues. He also gives a sneak peek on his exciting upcoming "International Symposium on Wheat Related Disorders, Beyond Celiac, Beyond the Gut."
Functional Medicine doctor and author of "The Autoimmune Fix," Dr. Tom O'Bryan joins Mike and Cam in part 1 of the 2 part podcast, discussing highlights from his new book, "You Can Fix Your Brain." In a world full of toxins, we discuss some of the small "base hits" we can do in our every day life to begin to reclaim our brain health. Look for part 2 next week.
Mike and Cam are happy to be joined by the winner of MasterChef UK 2018, Jane Devonshire. Jane talks to us about why it was so important for her to cook gluten free while on MasterChef and what inspired this mother of 4 to apply to be on the show. We also talk about her amazing new cookbook, Hassle Free Gluten Free, and her passion for making gluten free food delicious and accessible to all!
A weekend getaway for Mike and his family turns from fun, to a sort of, "house of horrors," after the wrong tortillas are purchased and consumed. Find out the aftermath of this mistake on our special extra spooky Halloween edition of the podcast!
It's scary and dangerous when people try and sell gluten containing products as gluten free. Mike and Cam examine some recent and not so recent examples of this, including a baker who is near the end of a prison term for doing just that. Shout outs to our friends Erin Smith @gfreefun and Jessica Hanson @tastymeditation.
Mike and Cam are pleased to be joined by Becca Hawkins, founder of the brand new non-profit, Portland Celiac, whose mission is to build a more inclusive community for those affected by celiac disease and gluten intolerance in the Portland metro area. Becca talks about what inspired her to start Portland Celiac and some of the biggest hurdles that she has faced. She also discusses how local groups like hers can serve our community and ultimately make systemic changes to improve the lives of people with celiac and gluten sensitivities.
This week we look at what's been happening in the world of gluten free labeling. It still feels like two steps forward and two steps back, but hopefully things are starting to change for the better. Also, Mike came across a person with a huge YouTube following who could use a little help understanding what organic and gluten free mean, and that there is actually a difference between the two.
Join Mike and Cam as they talk to Beyond Celiac's Chief Scientific Officer, Dr. Marie Robert and get a sneak peak at Beyond Celiac's upcoming 2nd Annual Research Symposium. They are doing exciting work to help bridge the patient/doctor gap and sponsoring research to find new treatments and therapies for celiac disease.
Mike and Cam weigh in on the latest information coming out about the Nima Sensor. They also discuss the reality that many gluten free replacements for foods can be quite unhealthy, while there is a lot of confusing information that is actually trying to sell gluten free foods as a "healthier alternative."
Mike and Cam discuss Susan Cohen's important new article in Gluten Free Living Magazine called "Extra-intestinal Symptoms of Celiac Disease in Children," highlighting research that a larger percentage of children are exhibiting non-intestinal celiac symptoms than previously thought. Are "atypical" symptoms more the norm, but because many people do not exhibit classic symptoms, doctors are just not testing for celiac disease? We discuss what it would take to change the conversation in the public's perception and within the medical community.
Mike took a family vacation and there were some gluten free highs and lows. The boys share some of their traveling tips when hitting the road. We also hear a quick update on Cam's gluten detection training with his dog Lacy.
Mike and Cam are excited to be joined, all the way from Vietnam, by Carrie Veatch founder of "For Gluten Sake." Carrie is a celiac who has traveled far and wide and her passion and mission is helping the celiac and gluten free world to navigate the sometimes murky waters while traveling abroad. Carrie's latest project is compiling a comprehensive list of 100% gluten free restaurants around the world. You will not believe how many she has already added!
It's back to school time and Mike and Cam are happy to be joined by Debbie Simpson. Debbie is an educator who, after her celiac diagnosis, became passionate about helping the education world understand the realities of celiac disease in the classroom. She wrote 2 versions of her book, Adam and Hailey's Gluten Free Surprise, inspiring us to discuss some of the top strategies to keep your child healthy and happy in school.
Part 2: We talk about the frustration and issues that arise when only one parent supports a child on a gluten free diet. Also, a listener's scary symptoms and finally finding the surprising cause of her gluten contamination. Thanks again for all the great contributions to the podcast. Please keep your comments coming!
We love our listeners! You, our devoted fans, have written us some amazing emails and we are sharing some of these today. Part 1: One listener shares how owning chickens can have adverse effects on your celiac disease (and possibly your sanity). Please keep your amazing emails and comments coming! Part 2 next week.
Mike and Cam sit down to talk to Baltimore Gluten Free founder and celiac advocate, Andrea Tucker. We hear Andrea's story and have a discussion about advocating for ourselves and others. Also, with school just around the corner we get into our personal thoughts and experiences with school 504 plans. The Celiac Project and Baltimore Gluten Free want you to have the best information available, so Baltimore Gluten Free has put together a special Celiac Resource sheet for our listeners.
Go to: www.baltimoreglutenfree.com/celiacproject
Inspired by an article on DailyMail.com entitled; "'I could have died': Coeliac wonan, 27, is rushed to hospital after a restaurant wrongly told her that her chicken and waffles were gluten-free." Mike and Cam look at some spotty and bad gluten free information on the web. We also talk about some tips of how we handle challenging situations when eating out.
We are pleased to be joined by Christin Osborne, from Portland, Oregon. Christin tells a harrowing tale about her unbelievable health struggles before finally getting some answers, including her sons' diagnoses. We also talk about Portland as a gluten free mecca, with many dedicated gluten free bakeries and restaurants.
Inspired by Susan Cohen's great article in Gluten-Free Living featuring Mike's nephew, Sam Frolichstein-Appel, Mike and Cam discuss silent celiac disease in great detail. The article, that also features an interview with Dr. Alessio Fasano sheds many insightful and fascinating details about some of the unique challenges of having and diagnosing asymptomatic celiac.
Dr. Marie Robert, a top celiac doctor, pathologist and researcher is now Beyond Celiac's CSO. She talks with us about the exciting plans that she has in her new position. Dr. Robert also tells us about some of the changes and innovations that she has seen in the celiac world and some exciting new treatments and therapies that are in the pipeline.
It's summer time and that means it's grilling season! Mike and Cam discuss their tips to stay gluten free at cookouts and barbecues. We also share some of our favorite foods to toss on the grill and some that we are looking forward to trying soon.
Though it might not get discussed very often, airborne gluten can cause a reaction. Mike and Cam talk about two farmers whose celiac symptoms would not subside due to inhaling gluten while feeding their livestock. We also look at some surprising sources of airborne gluten and some tips on protecting yourself when gluten is in the air.
It's been a while, so this week we dig through our mailbag. Special thanks his week to Andrea Tucker, of Baltimore Gluten free, who put together and submitted her list to us: "5 Facts a Celiac Doctor Wants you to know about Celiac Disease." We love our listeners and you are the fuel that keeps us going!
Mike and Cam want to thank Burning Brothers Beer company in Minnesota for providing beer to try on today's podcast. Friend of the show, Laura Eash, brought this gluten free micro brew to us at a recent Expo. We give our thoughts on their pale ales, and some of our opinions on beer in general. Cam also shares a quick update on some of the positive work that his dog, Lacy, has been doing in detecting some surprising sources of hidden gluten in his home.
Mike recently returned from an amazing trip to San Fransisco. He shares navigating his gluten free dining experiences, along with some of his advice for visiting SF and some great travel tips in general. Most importantly, he learned - don't ever call the Cable Cars "Trolleys!"
Author and fellow Celiac, Keith Van Sickle, join Mike and Cam for a second time, this time with Keith's wife, Val. They share with us some of the main differences living gluten free in France versus the U.S. They also share some of their top tips navigating restaurants and social situations, which in France, almost always involve food. You'll feel like you've just visited Provence after this captivating discussion!
We look at 2 seemingly conflicting recent studies. A recent study conducted by the FDA says that food labeled gluten free almost always adheres to the gluten free standards in the U.S. The other study from The American Journal of Clinical Nutrition showed that most celiacs are consuming a much higher level of gluten than is safe. So what gives? We speculate on some of the reasons why we think this is happening.
Happy Celiac Awareness Month to everyone! Mike and Cam take a look at the current state of celiac awareness in the community and abroad. In addition, they talk about their personal approaches to spreading awareness in their own lives.
Just one year ago, Mike and Cam met fellow celiac advocate, Katie Jones, and heard her harrowing story about living with brittle bone disease and how her dog, Piper, helped her heal from that. Katie updates us on her latest challenges of being diagnosed with MALS and POTS. Find out how she's turned her latest road blocks into ways to inspire and support others!
Mike and Cam dive into Casey the College Celiac's post, 13 "Harmless" Comments that Actually Hurt People with Celiac Disease. What follows is a spirited and entertaining discussion of these sometimes outrageous comments.
This week the guys go deep into an interesting post by Janaki Jitchotvisut entitled " 9 Myths about Celiac Disease..." published on the website "Insider". You will hear which of the "myths" Mike and Cam strongly agree with and which they think need slightly more clarification. Next week in part 2 of this series, they talk about the post, 13 "Harmless" Comments that Actually Hurt People with Celiac Disease, by Casey the College Celiac.
Mike and Cam are excited to be joined again by gluten free travel expert and blogger, Erin Smith. Erin talks about the steps that went into planning her completely gluten free wedding. In addition, Erin, Mike and Cam share their best tips for staying gluten free at these types of events.
Mike and Cam discuss Willem Karel Dicke, a pioneer in understanding that the gluten free diet is the key to treating celiac disease. In an article titled, "How Famine Under the Nazis Revealed the Cause of Celiac Disease," we see for the first time, how this great doctor used the tragic situation of the famine in the Netherlands to begin to really understand CD. We also compare Dicke's work to that of Dr. Sidney Haas who popularized the "banana diet" to treat celiac disease starting in the 1920s, and how that might ultimately still be holding the U.S. back.
Cam gives an update on the latest developments with his dog Lacy's gluten detection training. We find out what the biggest challenges to date have been and give more tips to listeners who are considering going down this road as well.
Mike and Cam do a tequila blind tasting with 5 different tequilas and Mike tries to stump Cam with tequila trivia. They also talk about some fascinating and surprising facts about this fabulous gluten free spirit! Play along with the boys and tell us which ones are your favorites.
Mike and Cam are excited to welcome Josh Schieffer to the podcast. In 2010 Josh, along with his wife Jayme, founded the Gluten Free Awards, an industry awards program designed to connect those with Celiac Disease to the best products and services. He has published several bestselling books and continues to be a Celiac advocate. We talk to Josh about how he got started with the awards and Buyers Guide and some of the challenges that they have faced to make sure that they bring our community the best information possible.
Mike and Cam discuss a number of recent labeling issues and blunders, including a couple of product recalls in the U.S. and abroad. Gluten free labeling seems to be improving overall, but there is still work to be done. Thanks to Gluten free Watchdog (@GFWathchdog) for bringing these issues to the forefront. Also, Cam's dog, Lacy, makes an interesting discovery during her gluten detection training.
Mike and Cam ponder the results of a new Columbia University study that shows that people with celiac disease who are hypervigilent about their gluten free diet actually have a lower quality of life. While we are not surprised about these findings, we talk about how it relates to our own lives and work on solutions that can help all celiacs have a better quality of life overall. We also want to thank Beyond Celiac for publishing an article about the study, which we reference in the podcast.
Mike and Cam are so excited to be joined once again by Dr. Maureen Leonard (previously on EP 43)*. Dr. Leonard is involved in the groundbreaking CDGEMM study at Mass General and talks about the amazing progress of the study, as well as some other fascinating research that she has been involved in. Among the topics discussed is the fact that TTG might not be as accurate as we thought for followup care of celiac disease. You don't want to miss this informative episode!
Dr. Leonard is the Clinical Director of the Center For Celiac Research and Treatment at MassGeneral Hospital for Children (MGHf*C) and an Instructor of Pediatrics at Harvard Medical School (HMS).
Mike and Cam examine the positives and negatives that have come out of Party City's troubling commercial. Might this actually become our "tipping point" to show the world that celiac disease and eating gluten free are no laughing matter! Thanks to Andrea Tucker, founder of Baltimore Gluten Free, for her contributions to the show.
The Celiac Project is hitting the road! Mike goes to NYC and gets an awesome meal at the 100% GF Tali Restaurant. His co-host this week is Jessica Hanson of Tasty Meditation. In addition to sampling some delicious food, Mike and Jessica talk about her upcoming wedding plans and some hot topics in the celiac and gluten free world.
Mike pays tribute to the passing of his father by discussing recent gluten free culinary adventures with his sister in New York. It was a special, one-of-a-kind trip, dedicated to a one-of-a-kind person!
In this week's episode Mike and Cam talk with newly diagnosed celiac, Wendy Giman. Wendy, a journalist, covers a myriad of topics in her travels. We talk to Wendy about how she got diagnosed, her lack of symptoms, her love of food and New York City and the fact that she never really liked wheat to begin with! Follow her kitchen exploits, her giant dog, Archie, travels and everyday adventures on her Instagram account – WendyWalksArchie.
Mike and Cam react to the study originally published in the Journal of Gastroenterology, showing that of the major GI diseases funded by the National Institutes of Health (NIH), celiac disease is woefully behind the others. Why is this?! To gain insight, we talk about Alice Bast's recent article on the topic published in the Huff Post. We speculate on some of the reasons that CD is so behind and discuss possible answers as to how we can help facilitate change.
Mike and Cam welcome Liis Windischmann. Liis is an inspirational speaker, on-air TV personality and top model. Her health journey with autoimmune Gluten Ataxia and Hashimoto’s has transformed her world, motivating her to empower others to lead proactive lives. Liis is excited to have recently launched Falling Into Zen: 10 Guided Meditations Under 10 Minutes on major digital platforms worldwide. She’d love to connect with you at www.liisonlife.com and on social media through @liisonlife.
Mike and Cam ring in 2018 by discussing promising news concerning medications and the pharmaceutical industry. The FDA proposes recommendations for labeling gluten in medications -- it's a start! We also talk about the GIG's ongoing struggles to protect their certified GF logo. What are your hopes for the celiac and gluten free world in 2018? Mike and Cam share theirs.
The conclusion of our special 100th Episode (Episode 101). The guys continue their entertaining trip down memory lane with a impressive variety of guests and topics from their first 99 episodes.
Special 100th Episode! The guys take a trip down memory lane as they share some of their most illuminating moments from the first 99 episodes (Part 1).
Keith Van Sickle grew up near San Fransisco and has had a successful career in the tech industry. Twenty years ago, he was transferred to Switzerland and it changed his life. He and his wife decided later to quit their jobs, work as consultants, and split their time between France and California. Since the move, Keith has been diagnosed with celiac and talks about what it is like to navigate the gluten-free lifestyle in the land of baguettes and croissants.
Bonus Holiday Episode! Join Mike and Cam as we discuss our big, upcoming 100th Episode of The Celiac Project Podast. WE WANT TO HEAR FROM YOU!!! What are your favorite episodes, moments, guests, topics?
It's Holiday time and Mike and Cam get in the Holiday "spirit" by sampling a couple of spirits! They also talk about Mike's recent trip east that was full of gluten free goodness.
Mike and Cam are extremely pleased to be joined by celiac and gluten free trailblazer Jules Shepard. Jules is an associate editor of Gluten Free & More magazine. We talk to Jules about the challenges she faced finding safe gluten free food during a recent hospital stay, and ways that we can all advocate for ourselves when faced with these types of situations. We also discuss Jules' longtime work as a celiac advocate and how a giant gluten free cake ultimately lead to initial gluten free labeling rules and enforcement by the FDA.
Jules is author of several special-diet books, including Free for All Cooking (Da Capo Press), available at GlutenFreeAndMore.com. Jules is also the creator of gfJules Gluten Free Flour and Baking Mixes which can be found at gfJules.com.
Mike and Cam sit down to talk about the early stages of Cam's training with Dawn Scheu of Willow Service Dogs. We talk about how Cam was able to find out that his dog Lacy was a candidate for the program. Cam discusses the time commitment, some of the challenges that go into it, and some of the reasons that this type of training is different and more challenging than obedience training.
Mike and Cam discuss the latest Cheerios announcement: Cheerios is removing the gluten-free labels from their cereal in Canada, but not the U.S. Troubling to say the least! Also, celebrity chef, Jamie Oliver, is in hot water with GiG and it looks like a new celebrity is part of the "Celiac Club!"
Mike and Cam are excited to be joined by lawyer turned blogger Jodi Ettenberg. Jodi founded the site Legal Nomads, where she "tells stories through food." Jodi shares with us the painstaking process of how she developed her innovative celiac travel cards. We also learn about her fascinating life and adventures, including a culinary regret that she has involving a llama empanada. In addition she encourages all of us to not let our celiac disease hold us back when we travel, and shares some of her top travel tips!
In part 2 of our podcast recorded on location at the GFFAF Expo, Mike is happy to be joined again by bloggers Erin Smith and Margaret Clegg. In this podcast we dive into many more fascinating topics, from labeling issues to Beyonce during Erin's Endoscopy??? We also discuss what we would change about having celiac disease, and what we would like the world to understand about our condition in order to make it easier for those of us with celiac and food allergies.
Join Mike and Cam for their first podcast recorded live on location with their special guests, Erin Smith (Gluten Free Globetrotter and GFreefun) and Margaret Clegg (miglutenfreegal). We have a spirited roundtable discussion about all things celiac and gluten free. This is part 1 of our exciting, interactive presentation in Indianapolis. We answer great questions from the audience as well.
Mike and Cam are pleased to be joined again by Alice Bast, Founder and CEO of Beyond Celiac. In part 2 (part 1 was episode 86), Alice talks with us about the exciting Go Bold Beyond Celiac Symposium, launching on November 9th. The symposium is going to be "talk show" style with experts talking about how to better cope with celiac disease and the gluten free diet and what the future holds for treatment. Find out how you can be a part of this exciting event, and amazing celiac resource - and it is totally free!
Mike and Cam are happy to be joined by Shireen Yates, the CEO and Co-founder of the NIMA gluten detection device. Shireen tells us how she came up with the idea for the NIMA and how its development and innovation is, in large part, driven by feedback and interaction with the celiac and gluten-free community. We also discuss what Shireen's vision for NIMA and allergen detection are and hear about some of the strange things that the community has tested. If you are curious about the NIMA, this podcast will give you many insights as to what it is all about.
In part 2 of our illuminating discussion with Dr. David Thoele, we get deeper into some of Dr. Dave's innovative approach to treating and connecting with his patients - spoiler alert! He actually partners with them, listens to their stories and issues, and admits when he doesn't have all the answers. In addition, we hear about his exciting work on the forefront of the Narrative Medicine Program.
We also talk about his struggles to find and make safe and edible gluten free foods for him in his family back in the mid 90s and hear more about his thoughts on current celiac diagnosis methods and the modern gluten free diet.
Mike and Cam interviewed Dr. David Thoele, a Pediatric Cardiologist at Advocate Children's Hospital. In part 1, Dr. Dave talks to us about the struggles that he and his daughter encountered while getting diagnosed with celiac, the struggle to find safe gluten-free food options in the mid-nineties, and how both of their diagnoses were by no means a "straight line." He shares with us some of his frustrations with what is viewed as the "gold standard" in celiac testing and how there might be some "grey area" to folks who are not able to get a traditional celiac diagnosis.
Mike and Cam put the NIMA gluten detection device through its paces, testing out “gluten free” fast food and even a paintball! The results are surprising! They give their first thoughts on seeing the machine in action and speculate on the ways that this type of technology can be a real game changer for the community.
Mike and Cam are pleased to be joined again by Alice Bast, Founder and CEO of Beyond Celiac. In part 1 Alice talks with us about the brand new launch of the Go Beyond Celiac digital community. This is an exciting, first of it's kind on-line hub that will connect our community, help us to find research studies we can participate in, and ultimately lead to positive changes in celiac research and our quality of life. You don't want to miss hearing about this incredible new way of connecting with and becoming a part of this dynamic community.
As summer winds down, Mike talks to his nephew Sam about his recent gluten free adventures, including a trip up the East coast and Canada. Sam shares some of his top tips and you don't want to miss talk of gluten free poutine!
Mike and Cam review on air the Starbucks gluten free breakfast sandwich. They also talk about the bizarre decision by Papa John's Pizza to make a gluten free pizza that is NOT safe for those of us with celiac disease and gluten intolerance. This leads to a discussion about some of the restaurant chains that are doing a better job delivering on safe gluten free options.
Mike and Cam talk with guest Margaret Clegg about the ruling by the Pope that there needs to be at least some wheat in the communion wafer. Margaret has written a number of blog posts on the subject of faith and helps to illuminate some of the truths about what taking communion really means and how wheat is a part of that in biblical history. She also has suggestions for approaching clergy and how to have a meaningful discussion on the topic. Mike and Cam also talk briefly about their experience in navigating some of the Jewish traditions that involve gluten.
Mike and Cam are joined by Aleksa Hacker, Founder & Director of Mend Hunger. Mend Hunger is a nonprofit organization whose mission is to work with food pantries to provide gluten free and allergy safe food to those with a medically restricted diet and financial need. Aleksa tells us how she founded the organization, what they do, and what each of us can do in our own communities to help those in need.
Join Mike and Cam for a fascinating, candid talk with Dr. Edwin Liu, pediatric gastroenterologist and the Taplin Endowed Chair for Celiac Disease at Children’s Hospital, Colorado. We discuss Dr. Liu’s groundbreaking research that shows the incidence of Celiac Disease is higher in the most recent generation of adolescents in the Colorado area than previously thought. Are we on the verge of a new “celiac epidemic?”
We also hear Dr. Liu’s thoughts on his approach to treating kids with celiac, and that it is often not a “one size fit’s all” diagnosis. Dr. Liu also shares his hopes and vision for the future for celiac diagnosis and treatment.
Mike and Cam share their strong views on the recent occurrence on a school trip at Colonial Williamsburg involving an 11 year old boy and his inability to be allowed to eat his gluten-free meal at one of the historic site's Taverns. They also give their opinions about the lawsuit, the way that the pub and Colonial Williamsburg treated this boy and his father, and the response that people have had on social media (both good and bad).
Dawn Scheu, owner and professional trainer at Willow Service Dogs, returns to talk about a recent harrowing experience she had with a medication that she believed to be safe for her. In addition to talking about the need for more oversight on medications with allergens, we talk in detail about what goes into owning a service dog. Also, can you teach an old dog new tricks? Stay tuned as Dawn lets us know if Cam's dog Lacy is a candidate for gluten detection work.
Erin Smith's wisdom will blow you away! She was instrumental in building the New York City Celiac Disease Meetup into the largest celiac support group in the world! You can read about Erin's adventures on her 2 great blogs, Gluten-Free Fun and Gluten-Free Globetrotter.
Today, Erin talks all about celiac support groups, which are near and dear to her heart. She has some wild stories, and shares some thoughts and tips about starting or joining a support group in your area. We all need some peer support and Erin is excellent at connecting. Learn from one of the best!
Inspired by a fan request and Cam's recent trip downstate, we talk about summer travel. Cam paints the picture of what it's like being on the road in the competitive paint ball circuit. We also dig into some comments we've received about summer travel from Facebook and Twitter from you, our listeners!
In part 2 of our "celiac in the workplace" episode, we are joined by guest Cathy Weller Sloan. Cathy talks to us about her challenges she faced in her previous work environment after her celiac diagnosis. Cathy is currently pursuing a new career track and talks about the many obstacles she has encountered during her search. Mike, Cam and Cathy are all candid about what they see as some of the hurdles that those with celiac face when interviewing for a new position, and if (and when) someone should talk about it at all.
Cam has started a couple of new jobs. This inspired us to tackle the subject of celiac disease in the workplace. In this episode Cam shares some of his challenges returning to the workforce. He also talks about specific struggles and setbacks he has experienced. Mike talks about some of his gluten-free career anecdotes past and present.
Finally, celiac organizations and hospitals are beginning to publish protocols for celiac patient follow up and treatment, which is long overdue! We cover the Celiac Disease Foundation's recommendations for post-diagnosis follow up care. Mike and Cam talk about which specific tests and treatments were recommended for them, which were overlooked and a couple of helpful additions to the list that we would like to see.
In 1945 Dr. Douglas Arnold believed that a diet consisting manly of bananas was the cure for celiac disease. Obviously, later in life when gluten was reintroduced, these patients became ill again. Mike and Cam take a deep dive into the "banana diet." In addition they look at a new study that shows that children who are diagnosed with CD tend to bounce back more quickly than adults.
It has been an strange celiac awareness month for Mike and Cam, including Mike's struggles to find safe options on a trip to California. They had a number of takeaways about the current state of being gluten free in this day and age. If you are playing the celiac project podcast drinking game at home, you can drink every time the guys say "celiac awareness month." Bottoms up!
Mike and Cam are happy to be joined this week by Katie Jones. Katie shares her dramatic story about her celiac diagnosis and brittle bone disease that ultimately led to her down the road to getting Piper, and training her through Willow Service dogs, to detect for gluten. In addition to talking more about the process of training a gluten detecting service dog, we talk to her about the challenges Katie faces as a teenager living with celiac. Katie's story is amazing and she is a true inspiration and fantastic celiac advocate.
Mike hits a snag eating out on the first day of Celiac Awareness month. Mike and Cam reflect on the challenges of staying safe eating out while traveling. They also go over a new infographic put out by Beyond Celiac that illustrates some of the larger frustrations experienced within the celiac community.
Edwin Liu, MD of Children's Hospital of Colorado, completed a recent study that shows that celiac disease may be much more common in children than previously thought. We're confused by how the celiac diagnosis rates can differ so much across the board. Mike and Cam also talk a little about their experiences and takeaways at the recent Gluten Free Allergen Friendly Expo.
We're kicking off celiac awareness month with our interview with Mary FioRito. Mary has three daughters and the way that they find out about celiac disease in their family is highly unusual. The story of the FioRito's is amazing and you don't want to miss this important and informative episode.
Mike's nephew Sam joins the show to talk about a couple of recent "speed bumps" he had over spring break. The most harrowing story has to do with his trip to China town, with a new group of acquaintances, that didn't end so well for Sam. Mike and Cam help Sam break it all down and they discuss what could be done differently to avoid such pitfalls and some useful tools to turn to when thrust into these kinds of situations.
Mike and Cam discuss the U.S. panel's decision to forgo universal celiac testing and what the repercussions might be for the gluten-free world and our society in general. We also take a look at some other hot celiac health topics including the relationship that has been found between CD and anorexia and an the common virus that may trigger celiac disease. The latter is a huge breakthrough, could it ultimately lead to a vaccine?
Cam gets "glutened" by a product that doesn't contain any gluten ingredients. This leads us to a "deeper dive" into the things that make us feel safe or less safe when buying products at the store or going to a restaurant. We also talk about a couple of Nima posts that our friend Jessica Hanson of Tasty Meditation and The Gluten Free Watchdog have shared.
- New article tracing some of the history of celiac disease and the gluten free diet.
- Another article that, somewhat disturbingly, tries to make a connection between the gluten free trend and eating disorders.
- Starbucks announces their first gluten free breakfast sandwich (the sandwich in a plastic bubble).
Excited by some of the first research done on the subject, Mike and Cam take a close look at gluten free vs gluten removed beer. We look at some of the missteps that the restaurant and retail world, and discuss a recent webscast on the topic that GIG (Gluten Intolerance Group) sponsored. Pull up a cold one and have a listen.
Mike and cam are excited to be joined this week by Brandy Trafman. Brandy is a kindergarten school teacher who has celiac disease. Brandy has been a celiac advocate ever since she was diagnosed in college. She talks to us about the challenges of being truly gluten-free from the perspective of a teacher and as someone with celiac disease. Brandy shares her amazing tips on navigating the school system with celiac or food allergies including her thoughts on 504 plans. This is a hugely informative interview that you won't want to miss.
Mike talks to Cam about all things colonoscopy. He talks about some speed-bumps in the prep, how the test went, and what the results were. Cam also talks more about some of his conclusions from a few of the dietary tweaks that he has made recently.
On the eve of his colonoscopy/endoscopy prep, Cam shares with our listeners how he is feeling both physically and emotionally. We also share some of the great emails and posts that we have received from our fantastic listeners. In addition, we find out that pet food is not the culprit of his recent elevated celiac blood test, and we learn more about his dog Lacy and her amazing health and diet.
Mike and Cam do an on air taste test, inspired by finding a whole new adult beverage category. Tasting choices are based on beverages neither Mike or Cam have ever consumed. They start with hard seltzer and also try a few ciders and a unique beer with ginger. This is HARD work...bottoms up!
Cam is slightly disturbed by the results of a positive celiac blood test even after being hyper-vigilant about his gluten free diet. He talks openly to Mike about the test and they speculate on what might be the cause. Cam also talks about the more extensive tests he has coming up and his hope to get some answers about some of his ongoing health issues.
Cam's dad, Brian, sheds light on some of the struggles the entire family endured as well as triumphs they encountered once Cam was diagnosed with celiac and on the long road to recovery. He also shares with us some of his best gluten-free cooking tips.
Mike and Cam discuss the need for more consistency for gluten free labeling, and the need for a worldwide standard level of accepted parts per million. They look at the fact that there are some promising changes on the horizon as scientists have come up with a "universal gluten cross-contamination checklist" for use in the food service industries.
A couple of weeks ago (on EP 52) Mike and Cam discussed a new column on Tampa Bay's Creative Loafing website called, "#BecauseGluten: Me? Celiac? Impossible!" This week we have the and Arts and Entertainment Editor, Cathy Salustri on to discuss her frustration being diagnosed with celiac disease and the challenges she faces adapting to the gluten-free lifestyle. She talks candidly to us about how she went from not wanting to share her diagnosis with anyone, to deciding to make it the focus of her column.
Ellen joins the podcast to tell us what it is like to be severely gluten intolerant and living gluten free without having celiac disease. We also talk about a new acronym that has burst onto the scene, PWAGs: "People without celiac disease avoiding gluten." We dig into a Washington Post article talking about PWAGs and the idea that the gluten free movement is less of a fad than was previously thought. You don't want to miss the fascinating discussion that ensues.
We love following Mike's nephew, Sam, through life's twists and turns. Today, Sam talks about his transition off the college meal plan (freshman year) and into an independent cooking environment this year. He shares some of his top tips for gluten-free college survival and we also talk about our recent family travels.
Mike and Cam dig deep into two recent blog posts that could not have taken a more different approach about what it means to be gluten free. In the post "#BecauseGluten: Me? Celiac? Impossible!," published in Creative Loafing Tampa Bay, Cathy Salistri talks about the horror of her recent celiac diagnosis. She clearly is not happy being stuck with the label of what she calls, "a trendy disease."
We contrast this post with Fawn Burgess' article entitled "Lovin' that Gluten-Free Feeling." Fawn speaks about how gluten saved her dog's life and that she is now feeling the health benefits (despite not have celiac disease) going gluten free herself.
Happy 2017 everyone! Mike and Cam take a trip back and look at what an incredible first year The Celiac Project Podcast has had. We talk about the moments and guests that were most impactful and game-changing to us. We also look forward to a new year with even more amazing moments and guests from the celiac and gluten free world!
We are so happy to be joined by Jill Hillhouse, Certified Nutritional Practitioner and returning guest, Lisa Cantkier, Certified Holistic Nutritionist, co-authors of "The Paleo Diabetes Diet Solution." Jill and Lisa are full of knowledge on the topic and offer up the basics and benefits of the paleo diet. We also discuss the relationship between celiac disease and diabetes. Is the paleo diet for you? Find out more.
The holidays and New Year's are a great time to celebrate and have a couple of "adult beverages." However there is still a lot of confusion over which drinks are safe for those with celiac disease or gluten intolerance. Mike and Cam weigh in on gluten removed beers, alcohol distilled from gluten containing grains, and more. Also, Jessica Hanson of Tasty Meditation shares a story about a recent issue that she had trying to get a drink that was safe.
The Holidays are a great time of joy, but let's be honest, they can be stressful too. It can be especially hard navigating holiday parties and family get togethers that often revolve around food. We are devoting a special hour long podcast to share holiday tips in which we are joined by blogger and fellow celiac, Jessica Hanson (Tasty Meditation). Jessica, Mike and Cam talk strategy to make sure the holidays are as festive and free of stress as possible.
Mike and Cam dig deeper into gluten detection. We talk more about gluten and allergen sniffing dogs, the new Nima device and give our two cents. We also speculate about the future of gluten detection and talk about innovations we would like to see looking ahead.
We are happy to be joined by Dawn Scheu, owner of Willow Service Dogs: trainer of celiac and allergen service dogs. Dawn shares her own celiac story and tells us about the many fascinating details that go into training a dog to detect gluten. Is a gluten sniffing dog for you? Find out in this illuminating podcast.
This week we continue our conversation about Cam's on-going health issues. We take a look at the gluten free candy list and air our frustrations with how products are labeled in general. We also discuss more about the new findings that not every celiac recovers completely on a gluten free diet.
Celiac research has recently found proof that not everyone heals fully on a gluten free diet alone. Mike and Cam discuss their own celiac journeys and speculate on some of the reasons that they still struggle to reach optimal health.
Mike and Cam are excited to be joined by Dr. Maureen Leonard MD (who has celiac disease herself), Clinical Director of the Center for Celiac Research and Treatment at Harvard Medical School. Dr. Leonard is one of the lead researchers along with Dr. Alessio Fasano working on a ground-breaking new study involving infants and the microbiome.
This study is absolutely first of its kind and seeks to find connections to what makes celiac disease go live in certain people. The hope is that this study could lead to a breakthrough in predicting who will get celiac disease and in how it is treated. They are still looking for candidates to join the study. You don't want to miss this amazing and illuminating podcast!
Mike and Cam are excited to be joined, all the way from Australia, by Cyndi O'Meara. Cyndi is a best selling author, nutritionist and filmmaker, whose newly released film, "What's with Wheat," dives into some of the issues that make today's wheat so troubling.
Her ground breaking book "Changing Habits Changing Lives" (1998) became an instant best seller and from there she has grown a successful organic food company, certified online education program and exciting new documentary.
Mike and Cam have devoted numerous podcasts debating the downside of the gluten free trend. On this show we talk about some of the positive effects that the gluten free "fad" dieters and celebrities who started this avalanche have had on our community.
Is all gluten free food created equal? When something is "certified" gluten free does that guarantee that the product is for sure under 20 PPM gluten free? Based on some research conducted by The Gluten Free Watchdog, Mike and Cam discuss the realities of gluten free labeling and the fact that we might not always be getting something that is completely safe for someone with celiac disease or who is very gluten sensitive.
Inspired by many listener emails and messages, Mike and Cam have a candid conversation about the correlation between anxiety and celiac disease or gluten sensitivity/intolerance--and it gets personal! They discuss the differences between the anxiety pre-gluten free vs. post-gluten free diet. They also share some of their own tips on dealing with anxiety when it rears it's ugly head.
We are excited to be joined by Maizy Boosin, the outspoken young celiac, who was winner of an episode of this season's Chopped Jr. (Season 4 episode entitled "Cup of Glee"). Maizy talks about how she got on the show, what's inspires her as a chef, and why it is so important to her to advocate for celiac disease.
Have you ever wondered what's really going on in your gut? For people with autoimmmune issues such as celiac disease, there are studies that talk about healing the gut by changing the microbiome/flora in the intestines. In this episode, we discuss those articles and talk about what you can do to continue your healing process. Fascinating stuff, especially if you are someone whose symptoms didn't disappear by simply going gluten free.
In this episode Mike and Cam talk about a restaurant in Ireland with an extreme stance on serving gluten free. You have to have celiac disease and you have to have a doctor's note. They then take to Twitter to share their policy. We also talk about a bagel store owner in New York who found a way to persevere after his diagnosis of celiac.
In part 2 of our lively interview with Dr. Tom we go deeper into our discussion about autoimmunity and some of the potential causes and solutions to some of the problems that can arise to those with celiac, non-celiac gluten or wheat sensitivity (or other conditions and autoimmune disease).
Dr. Tom is an internationally recognized speaker and workshop leader in the complications of Non-Celiac Gluten Sensitivity, Celiac Disease, and Autoimmune Disease as they occur inside and outside the intestines. He is the founder of www.theDr.com and the Gluten Summit and author of The Autoimmune Fix.
We are so excited to be joined by Dr. Tom O'Bryan. Dr. Tom is an internationally recognized speaker and workshop leader in the complications of Non-Celiac Gluten Sensitivity, Celiac Disease, and Autoimmune Disease as they occur inside and outside the intestines. He is the founder of www.theDr.com and the Gluten Summit.
In our lively interview with Dr. Tom we discuss many topics related to the facts of living with celiac and gluten sensitivities. We also talk about his exciting new book coming out this month, "The Autoimmune Fix: How to Stop the Hidden Autoimmune Damage That Keeps You Sick, Fat, and Tired Before It Turns Into Disease." Be sure to come back next week for the conclusion of our discussion next week.
Mike and Cam discover that another labeling law change is slated for the next couple of years, this time for nutrition information on the products. This leads to a discussion over the confusion of current serving sizes (you mean I'm supposed to only eat half of this sausage?!?!) We also talk about the recent "Trends in Gluten-Free Nutrition: 2016 Conference" that recently took place. We share some of the companies that are doing the best job self-policing themselves to keep you safe.
Mike and Cam are excited to be joined by special guest and longtime listener Aaron Bull. Aaron is a fellow celiac and a talented web designer and owner of Bull & Company MediaWorks. He and his company created the updated Celiac Project website. In addition, Aaron is an avid cyclist. We talk about some of the challenges of being on long rides & some helpful hints to make them easier. We also discuss some of the reasons that many people with celiac disease choose to work for themselves.
Mike and Cam talk about the Olympics, athletes who are gluten free, and some of the benefits they might be getting. We also discuss the difference between the placebo and nocebo effect.
The Food Network "Chopped Junior" champion, Maizy Boosin, doesn't just have celiac disease, she advocates for awareness on an episode. Watching the show we were so impressed with Maizy as she pledged, if she won, to give half of her $10,000 prize to one of the celiac groups to help raise awareness! On the subject of food, we talk about two great celiac bloggers and authors, their obsessions with the Food Network (Erica Dermer) and one who staged her own version of Chopped Junior (April Peveteaux).
24 hours after the news comes out that Columbia University has developed a test for non-celiac gluten sensitivity (called wheat sensitivity in the test), Mike and Cam discuss. They also talk about their hopes for a celiac test for people who have already gone off gluten. To this point, they take a deeper look at the so called "gluten challenge,"some of the issues with it, and the fact that the medical community can't come to an agreement about how to actually administer the gluten challenge.
It is summertime and a perfect opportunity to talk about Cam's latest trip to Michigan. He talks about the ritual and preparation that helps him most enjoy his family's vacations. Mike and Cam also share many of their top travel tips to stay safe on the road including an app (and website) that no celiac or gluten-free eater should be without.
This week's podcast takes a look at a Buzzfeed video, in which four of their employees agree to go gluten free for a month. Mike and Cam share their many thoughts on this kind of "not so scientific" testing (including one woman who continues eating her veggie bacon not knowing it contains gluten #readtheingredientspeople!) You might be surprised by some of the outcomes of this experiment and some of our opinions of it.
In Part 2 of our special restaurant series, Ashley Mazur, Marketing & Media Director of the world famous Berghoff restaurant in Chicago shares some of the amazing history of the restaurant (including the fact that they were the first in Chicago to receive a liquor license after prohibition ended)! We go in depth from the restaurant's point of view as well as how they became one of the very first restaurants to go through Beyond Celiac's "Great Kitchens" program. You won't want to miss this informative, eye-opening episode as we hear some of the biggest challenges that a restaurant faces in order to keep its celiac and allergic guests safe.
We all have learned by now that not all gluten free restaurants and kitchens are created equally. On this week's podcast, Beckee Moreland talks about her mission to change that one kitchen at a time. Beckee helped start the GREAT Kitchens program, assisting restaurants, colleges and camps to have safe gluten free kitchens including the education of cooks and servers through an accreditation program.
This week Mike and Cam are joined by special guest Erin Smith, the Gluten Free Globetrotter. We talk to Erin about all things gluten free travel. Erin shares with us many of her top travel tips, thoughts and negotiating the world safely as a celiac. She has a unique perspective as she has traveled extensively and been diagnosed with celiac at a very young age. Erin shares her thoughts on which countries, in her eyes, are most gluten free friendly.
Mike and Cam take a closer look at the Elle Cartoon as they discuss the blog post from the Huffington Post, "Gluten-Free Shaming is not OK" by chef and food writer Jackie Ourman. They share their thoughts on people's attempts at gluten-free humor and why it usually falls flat.
Mike tells Cam about a recent visit to a local pizza place that goes very wrong. Three pizzas are purchased, but which ones are gluten-free, and which is not? Are there ways that these types of restaurant "horror stories" can be avoided? Or at the very least, what should restaurants do to improve safety for their gluten free diners?
We have be receiving so many great emails and comments from our listeners that we decided to do a podcast completely dedicated to talking about some of them. This podcast covers great topics and fascinating personal stories. Thanks to all who have shared with us and keep those emails coming--you might be mentioned on a future show!
Thanks to a fan recommendation (thanks Sara), this week's podcast is devoted to talking about dating with celiac disease. In this illuminating discussion, Mike and Cam are joined by Mike's nephew Sam and they look at some of the challenges to dating with celiac. They give many shout outs to Jessica Hanson (Tasty Meditation) who has been good enough to share here past dating experiences. They look at everything from the awkwardness of asking a date to brush their teeth to online dating. You won't want to miss Sam's prom "horror" story.
This week's podcast is an exploration of an article from US News and World Report titled: 5 Myths About Celiac Disease, written by Stacy Colino. Mike and Cam have a fascinating discussion on such topics as, "should everyone be screened for celiac disease?" and "is celiac disease serious?" spoiler alert...it is. Along the way we find out strange things including how Cam found out he is allergic to cock roaches. Seriously we can't make this stuff up!
In their last podcast of Celiac Awareness Month 2016, Mike and Cam discuss an article that was published in the Atlantic Magazine online that talks about the idea that the gluten-free diet should not be attempted without medical assistance. They also reflect back on the true meaning of Celiac Awareness month.
We are pleased to be joined by yet another fantastic guest for Celiac Awareness Month. Melinda Arcara (who also goes by Gluten-Free Bebe) shares her personal story which eventually led to her writing her fantastic new book: 3 Steps To Gluten-Free Living. In this helpful guide, she shares her practical step-by-step method to a happy and healthy gluten free life.
In our second episode of Celiac Awareness Month, we are joined by guest Lisa Cantkier (pronounced: Cont' e yay). Lisa is a holistic nutritionist in the Toronto area. She has an amazing amount of information on celiac disease and you won't believe her own incredible story of getting diagnosed -- at only 18 months old!
We are kicking off Celiac Awareness Month in style with special guest, Alice Bast. Alice is the founder, CEO and President of Beyond Celiac (formerly the NFCA). Our fascinating discussion with Alice includes everything from her group’s recent name change to how their mission has evolved over the years. We also get into many of the struggles faced by the celiac community including social isolation and the continued challenges to insure that we get safe gluten free options.
We are joined again by Alexandra "Lexie" Van Den Heuvel and talk about the growing, and very troubling trend of food allergy bullying. We also learn that the issues of peer pressure and bullying reach far beyond just school aged kids.
Alexandra Van Den Heuvel is one busy and impressive young woman. Seeing a need to help low income families affected by celiac disease to afford the increased grocery bills that accompany the gluten free diet, Lexie successfully started a non-profit. Oh, and did we mention that she began this group before she even set foot in High School? Amazing!
Mike and Cam have a casual discussion of Mike's spring break trip with his family to Mazatlan, Mexico. They talk about some of the challenges traveling abroad and some of the unexpected issues that popped up.
Mike and Cam are happy to be joined by celiac blogger Jessica Hanson. They discuss with Jessica what inspired her to become a blogger and talk about some of her great blog posts. We also find out what it's like to run the largest celiac and gluten free meetup in the world!
Mike and Cam look at a quintessential uninformed blog post that we feel hits all of the stereotypical wrong notes about women living gluten free. The post is from The Cat's Pajamas, written by Brian Huba and is published online in the Albany Times Union. Also, we look at a petition in our community that was able to get an astounding 50,000+ signatures in order to get a shirt pulled off the market. You have our attention!
Beyond Celiac survey yields some surprising results! Also, “11 Confessions from people with celiac disease will make you realize that going gluten-free is more than just a ‘craze’”, an article compiled from a popular app called Whisper that provides an anonymous platform for people to share their thoughts. We found some fascinating take-aways from this story.
Co-host and millennial snowboarder extraordinaire, Cam, opens up about his love of the outdoors, not letting his gluten free lifestyle curb the excitement of the adventure, and his newfound appreciation for the sporting life post-diagnosis. Cam reveals his personal tricks that help him succeed.
Mike and Cam welcome Cathy Sloan in our first phone interview. She shares her journey to diagnosis including the challenges she has faced before and after finding out that she has celiac disease. She also talks about some of the obstacles she faces finding good gluten free food and medical assistance in North Carolina.
Mike and Cam talk about the controversial comments of presidential candidate Ted Cruz. Also, a conversation about jobs besides the military that might be challenging to get for people with celiac and gluten issues. Plus, we discuss NHL hockey player, Max Domi, who manages both celiac and type 1 diabetes.
This week's topic is The Washington Post article: How I told my happy, healthy daughter about her medical diagnosis, about the celiac diagnosis of an 11 year old girl, sending her mother into a state of panic and denial, and wondering whether to even tell her the news! Mike and Cam talk it out.
Mike and Cam are joined by their guest Ellen Frolichstein. Ellen shares her very unique insights of being both the wife and mother of two individuals with celiac disease. In addition, Ellen talks in depth about her own struggles with gluten and eventual diagnosis of gluten intolerance.
Mike and Cam have a spirited discussion about some of the recent articles about the gluten free lifestyle, sharing their thoughts on the way that the media and commercials portray the gluten free lifestyle.
We have our first guest, Sam (Mike's nephew) and we learn some fascinating facts about him. Sam was diagnosed with celiac disease almost 3 years ago, despite being symptom free. In addition, Sam is a life-long vegetarian and a college freshman. He talks about the challenges of eating gluten free safely at college and has great tips for those who are going to be starting college soon.
Episode #2: Learn more about us - Cam's involvement in the CeliAction Study. Is there really a pill that will help celiacs with cross-contamination issues? Also, Mike talks about his birthday dinner gone wrong and Cam shares his amazing birthday feast at Da Luciano's restaurant.
The Celiac Project Podcast: 2 Guys Talking Gluten Free--hosted by Michael Frolichstein (Director of The Celiac Project Documentary) and Cam Weiner. Join Mike and Cam as they discuss living with celiac disease and navigating a safe gluten free lifestyle. They will feature special guests in the gluten free community, discuss current events and topics of interest.