Caring Conversations: Recent Episodes
Caregiving Podcast Network
This podcast features the voices of those who care. We share stories, perspectives and insights about the caregiving experience.
Claire Day shares updates on how to manage a family member with dementia while worrying about coronavirus. Claire is Chief Program Officer for the Alzheimer's Association Northern California and Northern Nevada Chapter.
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Beth, who cared for her father, shares how she’s giving herself peace of mind as we worry about the impact of the coronavirus. Beth supports family caregivers through her business, Caregiving Pathways. She’s a Certified Caregiving Consultant, Educator and Facilitator and End of Life Doula. Connect with Beth on her website, https://caregivingpathways.com.
You can download your state's advance directive forms from the AARP website: https://www.aarp.org/caregiving/financial-legal/free-printable-advance-directives/
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Sharon Hall will be joined by Nansi Gregor-Holt, RN, MSN, MPH, NP from UNC Neurology. Nansi will answer questions recieved through ftdpodcastquestions@yahoo.com we will take as many questions as we have time for during the broadcast
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Ellen, our wealthness expert, will talk out how we stay connect to our coping strategies when we're faced with uncertain times.
About Ellen Rogin, CPA, CFP® and Abundance Activist®
Ellen has made her life’s work educating, counseling, and guiding people to grow their prosperity and to use it as a force for good in their lives and in the world.
She is the co-author of NY Times best-seller, Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.
Ellen speaks across the globe on creating success and abundance.
Chock full of “left-brain” credentials (MBA, CPA, CERTIFIED FINANCIAL PLANNER™), Ellen also walks on the “right” side, balancing values, big picture ideas, meditation and a sense of humor with her professional training. She’s as comfortable talking about the power of compound interest as she is the power of belief.
Ellen is a TEDx presenter, and her work has been quoted in such national publications as The New York Times, Money, Time.com, Forbes.com, and The Huffington Post.
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Theresa Wilbanks, Certified Caregiving Consultant™, Certified Caregiving Educator™, joins Denise to talk out their plans for the unexpected, including the coronavirus. Theresa cares for her 98-year-old father and Denise helps her 88-year-old father and 85-year-old mother.
Visit CareGiving.com and SustainableCaregiving.com for more insights and resources.
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Sharon Hall will be joined by Rebekah Wilson, MSW, https://www.agingcarecoach.com/ to discuss the hard decisions we need to make in the care of those with Frontotemporal Dementia (FTD). When do I take away the car keys? When do I consider placement? How do I decide on when to call hospice? How do I brace myself for end of life decisions like when to no longer give antibiotics?
These are the questions that haunt us as care partners to those with FTD. We hope this podcast will give you some guidance and support in making those hard decisions. The emotions can be overwhelming and we second guess ourselves. This podcast will put those doubts in perspective.
Join our FTD Care Chat every Monday and Saturday at 7:00pm ET on caregiving.com to talk to other care partners.
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When we feel like we're in the midst of a financial crisis, how do we find our calm?
Ellen Rogin joins me to share tips to help us calm the panic when we're struggling to get enough.
Ellen wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business.
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Denise’s guest is Angie Ardolf, who cares for her daughter, Ruby. In 2017 a video of Angie and Ruby went viral on Instagram which created a new role for Angie — social media disability advocate. Angie shares photos, videos and stories on her social media channels to help shift the narrative about disability issues and to make the world a kinder, more accepting and inclusive place for all.
Angie’s YouTube channel, Angie and Ruby, now numbers 164,000 subscribers.
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At our Fourth Annual National Caregiving Conference, we awarded Life Solutions, the maker of ChuckMates, the winner of our Fourth Annual National Caregiving Technology and Product Pitch Event. Lauren Somma, President of Life Solutions, joins us to share about the inspiration for ChuckMates and her mission to help family caregivers and professional caregivers.
ChuckMates is placed under a cloth or disposable Chuck, which is game-changing when it comes to providing in-bed patient care. ChuckMates help prevent back injuries by significantly aiding caregivers while maneuvering all bedridden patients. Thus providing caregiver solutions far beyond helping with elderly care alone. ChuckMates create huge boost in caregiver confidence when it comes to rotations, repositioning, and all other in-bed patient maneuvering. To learn more, visit https://chuckmates.com.
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As the youngest of her parents’ 16 children, and the only one who went into the healthcare profession, Margaret Fitzpatrick was the natural choice to be a caregiver to both of her parents as they aged into their 90’s.
Additionally, Margaret is the healthcare POA for several of her siblings who are dealing with health challenges (end-stage Multiple Sclerosis, complications from alcoholism and heart disease).
Margaret has been a critical care nurse for over a decade and a nurse anesthetist with her Master’s degree in anesthesia for ten years. She is a leader in the movement to help patients and families to set individual healthcare goals that reflect their values for the last chapter of their lives. She is dedicated to helping people make better decisions, have less stress and to prevent suffering for themselves and for the loved ones for whom they are caring.
Mark Servais’ professional life has been about creating technical solutions for companies around content, branding, and marketing efforts. As a technology leader and a 5-time Sitecore Technical MVP, Mark has created solutions that fit customer needs and abilities. He current works for Humana providing guidance and expertise with the content managment platform.
Mark’s non-professional life consists of being a full-time co-caregiver to his son with Duchenne Muscular Dystrophy. For the past 16 years, Mark and his family have learned to adapt and find ways to solve challenges as Mark's son's condition has progressed.
Mark’s technical background along with his caregiver role has spawned effective solutions to challenges with daily activities using elements of home automation with his family needs to help assist in those daily activities of care giving activities.
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Jeff joins us at this year's conference to talk about grieving, coping and finding your way during tough times.
Jeff cared for his “Lyme Warrior” wife Cherie who amazed him daily with her courage in fighting this horrible disease. Jeff was also a co-caregiver for his father for 5 years, during his battle with Idiopathic Pulmonary Fibrosis.
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Sharon Hall will be joined by Nansi Greger-Holt, RN, MPH, MSN, a Geriatric and Family Nurse Practitioner, BC, at UNC Neurology Clinic in the Cognitive Disorders Division, in Chapel Hill, NC. She has been helping patients and their family/caregivers navigate, understand, manage, and treat symptoms of their dementia to maximize their quality of life since 2012, when she started specializing in dementia care.
Nansi has been an RN in North Carolinafor over 40 years, and a Family and Geriatric Nurse Practitioner for 22 of those years. She graduated from the University of Vermont with a B.A. in Psychology and an A.S in Nursing in 1978. She is a NC Tarheel and has earned a Master of Public Health in Health Education in 1986 and Master in Nursing in 1997 from UNC- Chapel Hill. She has worked in hospitals, longterm care, geropsych, home health, hospice, geriatrics and primary care.
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We may think our prosperity begins with our bank account. Ellen Rogin, our wealthness expert, believes it begins with our mind. She'll help us see what's possible as we picture our prosperity.
About Ellen
Ellen Rogin, CPA, CFP® and Abundance Activist® has made her life’s work educating, counseling, and guiding people to grow their prosperity and to use it as a force for good in their lives and in the world.
She is the co-author of NY Times best-seller, Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.
Ellen speaks across the globe on creating success and abundance.
Chock full of “left-brain” credentials (MBA, CPA, CERTIFIED FINANCIAL PLANNER™), Ellen also walks on the “right” side, balancing values, big picture ideas, meditation and a sense of humor with her professional training. She’s as comfortable talking about the power of compound interest as she is the power of belief.
Ellen is a TEDx presenter, and her work has been quoted in such national publications as The New York Times, Money, Time.com, Forbes.com, and The Huffington Post.
She was the founder and president of a wealth management firm in the Chicago area, and currently serves on the Board of Directors for Metropolitan Capital Bank in Chicago and The Ghana Scholarship Fund.
Ellen wants to live in and help create a world where everyone is a rock star at handling their money, everybody’s life’s work is filled with meaning, generosity and abundance, and kids think their moms are forever cool.
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Bobbi Carducci shares about her presentations at this year's National Caregiving Conference. You can meet Bobbi and learn more about her work here: https://www.caregiving.com/ncc19/presenters/bobbi-carducci/
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Tobin Ward, a market research manager with Genworth, joins us to discuss the focus groups she’ll hold at the Fourth Annual National Caregiving Conference. You can join us at the conference virtually or in person on November 7-10 in Chicago at the Chicago Marriott O’Hare, 8535 W. Higgins.
While you’re attending our conference, please consider joining Tobin during one of her one-hour focus groups. You’ll receive a $30 Visa gift card for sharing your insights and experiences in one of the focus groups. To learn more, visit https://www.caregiving.com/ncc19/focus-groups/
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Sharon Hall will be joined by Rebekah Wilson, MSW, www.agingcarecoach.com for this podcast on helping diminish the "anti-social" behavior and re-engage the FTDer.
We will discuss why they disengage and what a care partner can do to get them to socialize anfeel comfortable in day centers, etc.
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Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, join us to discuss this question: How do we cope when our caregiving experience could increase our risk for dementia?
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Sharon Hall will be joined by Nansi Greger-Holt, RN, MPH, MSN, a Geriatric and Family Nurse Practitioner, BC, at UNC Neurology Clinic in the Cognitive Disorders Division, in Chapel Hill, NC. She has been helping patients and their family/caregivers navigate, understand, manage, and treat symptoms of their dementia to maximize their quality of life since 2012, when she started specializing in dementia care.
Nansi has been an RN in North Carolinafor over 40 years, and a Family and Geriatric Nurse Practitioner for 22 of those years. She graduated from the University of Vermont with a B.A. in Psychology and an A.S in Nursing in 1978. She is a NC Tarheel and has earned a Master of Public Health in Health Education in 1986 and Master in Nursing in 1997 from UNC- Chapel Hill. She has worked in hospitals, longterm care, geropsych, home health, hospice, geriatrics and primary care.
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Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to share updates from this year's Alzheimer's Association International Conference®.
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My guest, Warren Hebert, and I share our thoughts about our most crucial caregiving conversations.
About Warren
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Kara joins us to share how she manages the care of her brother, Rafe, and her career.
Rafe has a serious and persistent mental illness, which has been exacerbated by his loss of vision. His daily and ongoing needs are complex and unique. Following an incident, while he was hospitalized at a reputable psychiatric hospital, in which he blinded himself, he spent many months at a second large mental hospital with insufficient psychiatric support. This hospital was unable to provide comprehensive therapeutic and transitional care required for Rafe to progress in his recovery. Kara was able to find an out-of-network, private mental health facility in Connecticut, Silver Hill Hospital, which agreed to meet Rafe, and ultimately accepted him into their program.
Kara has been a tireless caregiver for Rafe, unabashedly using all of her resources to help get him the best care available and making sure there is wrap-around care to address his very complicated needs. She also cares for more personal things, like buying him a guitar for Christmas (he loves playing!) and making sure he can get his hair and nails cut, too. There is nothing too big or too small when it comes to Kara caring for Rafe and his overall well-being.
Read more about Kara: https://www.caregiving.com/ncc19/coty-kara-guerriero/
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Sharon Hall will be joined by Teresa Webb, the founder of FTDARN. She will discuss how FTDARN came into existence, what its mission is, and how they have helped FTD families. She will also make a very exciting announcement that will show how much this small, all volunteer, non-profit is reaching out to help FTD families. This is the organization that produced the brochure many of you use, listing the symptoms of FTD and featuring the Johnson Family, Teresa, and another board member, Amy Shives.
They know what it is like to live FTD and they know the financial burdens that can come with FTD. To learn more, or donate to their efforts, visit www.ftdarn.org and join us for the big reveal!!!
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Dean Regan and Frank McKenna have been together for 23 years and married in 2008. They live in a 3-bedroom midcentury ranch home in San Fernando Valley of Los Angeles. Recently Dean’s mother and sister moved in with them creating a household of senior citizens. They use their love for one another and their faith to establish and nurture this new family dynamic. Through their business, “Living in Concert with Life!,” Dean and Frank have a personal commitment to supporting people’s choices for living their best life. The four use these principles along with their faith to work through this big transition for the family.
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Brenda, one of our Certified Caregiving Consultants™, is also now a Certified Caregiving Educator™ and Certified Caregiving Facilitator™. Brenda is also one of our 2019 Family Caregiver of the Year Award winners.
Brenda is the proud and passionate caregiver of her 25-year-old daughter, Nikki, who has significant physically and developmental disabilities that make her medically fragile and dependent on technology for survival. Brenda was part of the first Family Faculty at her regional children’s hospital, teaching healthcare providers and students about the needs of children with health challenges and their families. She participated in the inaugural healthcare and caregiver collaboration aimed at enhancing the transition of children from pediatrics to adult healthcare services. Most recently, she started Coaching for Caregivers Canada in an effort to provide support and guidance to caregivers whose needs are often overlooked in their caregiving journeys. Above all else, Brenda’s meaning, wisdom, and inspiration is found in being mother to Nikki, a young lady who brings infectious love and laughter to the world everyday!
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Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter join us to discuss the latest release of Alzheimer's Disease Facts and Figures.
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Sharon Hall will be joined by Rebekah Wilson, MSW (agingcarecoach.com), to discuss what makes families scratch their heads and be resentful, anosognosia. When someone is diagnosed with FTD, they often say there is nothing wrong with them, you are just trying to make them sick. They insist they can drive, grocery shop, work, and be totally independent. Yet, they have accidents, bring home only cookies from the store, get fired due to someone else's fault, and leave the front door wide open when they leave the house.
We will discuss this weird word, anosognosia, and give advice on how to work around it when you have an FTDer who is "just fine" and will not give up driving, independence, or applying for jobs.We will realistically discuss what "might" work and definitely discuss what will "never" work.
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The kitten roar of a gentle breeze sweeping past you. The trumpet blasts of car horns on a busy urban street. The hymns you hum to yourself without even realizing. These are the songs of life that surround you. I pray that your soul finds peace in the harmony that surrounds you today.
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A 30+ year caregiver for his wife, Gracie, who lives with severe disabilities, Peter Rosenberger understands the caregiver’s journey, and is on a mission to strengthen the family caregiver. Through his books, music, and weekly radio show heard on more than 200 stations, Peter demonstrates an unswerving commitment to those who put themselves between a vulnerable loved one and even worse disaster.
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So often, the end of the day can bring with it the weight of guilt as you think on all of the promises you made that were unfulfilled. But when guilt threatens to overwhelm, there is the promise of love and grace to sustain you another day. This episode is a prayer for you to rest in that promise.
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Mike Eidsaune created Carely, a free mobile app designed for caregivers, in order to create a purposeful communication environment that empowers family caregivers to come together around the care of their loved one.
In planning for the business, Mike made the decision that, no matter what, the app would always be free for families to use. After five years, and multiple iterations, that decision still holds true. The Carely family app is available on any smart device and can be utilized by families for free. Families use Carely to communicate, coordinate, make decisions, and support one another. It helps families, who are often busy with work or spread apart geographically, answer the simplest questions: “Who saw mom/dad last?”; “Who’s going to see her/him next?”; and “How did those visits go?”
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Warren Hebert and Denise shares their thoughts on how we can make good for good days when the bad days seem to be never-ending.
About Warren
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Sharon Hall will be joined by Rebekah Wilson, MSW, www.agingcarecoach.com for this podcast on connecting to those living with dementia.
Can you connect to the person you married or a family member in a different way after diagnosis? Should you? Many care partners had a very rocky pre-diagnosis time. Some dealt with firings over inappropriate behavior, some with affairs, some with loss of a life savings, some with arrests, gambling, drinking, and reckless behavior and even violence. Some dealt with law suits over auto accidents, sexual harrasment, shoplifting and other legal issues.
How do you heal those awful wounds of betrayal? Can you just "shut off" the negative feelings and accept these issues were driven by a dying brain? Many people struggle to "love" the person they care for after they caused devastation in their lives.
We will discuss what love means before and after diagnosis and how it might change. We will talk about how you can survive and even thrive, even after events that broke you in ways that seemed irreperable. We will talk about surviving and thriving during this diagnosis.
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Rachel has been the primary caregiver for her grandmother for three years, and has used the knowledge and experiences gained over the past twelve years building a career helping disabilities at the individual, organizational, and systems levels to help her grandma have a good life and age in place. She also cared for her dear friend, Calvin, who died last year. Calvin’s death changed Rachel’s perspective on how she wanted to live. She now lives to help and support fellow family caregivers. To learn more about Rachel, visit her website, https://takingcareofgrandma.com.
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Ellen Rogin, our wealthness expert, helps us form a story about our money that works.
Ellen wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business.
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Through her company, Kikupal, Naomi is on a mission to change the way we give and receive help. Naomi launched her company after caring for her husband, Greg, while she managed her career and raised their two young children.
Naomi is changing the way we support caregivers in the most significant way -- by helping them delegate daily tasks. On average, caregivers spend 13 days a month on tasks such as shopping, food preparation, housekeeping, laundry, transportation, and giving medication. By delegating these tasks, a family caregiver can use time more effectivey on what matters most.
Kikupal helps family and friends gift helpful services by purchasing KikuPoints, which can be redeemed to help the family caregiver with meals, house cleaning, and more. For more information, visit https://www.kikupal.com.
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My guest, Warren Hebert, and I share our thoughts about how to effectively communicate our stress.
About Warren
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Sharon and Tia Powell, MD will discuss bringing joy into dementia caregiving. There is a lot of life between diagnosis and end stages and we need to live with joy.
Sharon Hall cares for her mother and her husband. Her husband has FTD and lives at home. Sharon is an active advocate for FTD and those families living with the diagnosis.
Dr. Tia Powell directs the Center for Bioethics and Masters' in Bioethics at Montefiore Health Systems and Albert Einstein College of Medicine. She holds the Shoshanah Trachtenberg Frackman chair in biomedical ethics and is Professor of Epidemiology and Psychiatry. Her bioethics scholarship focuses on dementia, public health policy, end of life care, and bioethics education. She served four years as Executive Director of the New York State Task Force on Life and the Law, the state bioethics commission. She has worked with the National Academies of Medicine on many projects, and served as an advisor to the CDC, and to Health and Human Services and its National Alzheimer's Project Act. She is frequently invited to speak at professional meetings (APA, ASBH, AAIC) at medical schools (Albert Einstein, Columbia, Cornell, Harvard, NYU, Yale), and colleges (Vassar, Princeton). She is a board-certified psychiatrist and Fellow of the New York Academy of Medicine, the American Psychiatric Association and The Hastings Center.
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Shawn, who cares for her husband, launched a non-profit called Caregivers on the Homefront. Through her non-profit, Shawn leads Caregiver Mental Health and Wellness Restorative Weekends.
"One of the things that we teach in our restorative weekends is how caregiving is a role that we play," Shawn says. "It is NOT our identity. When we lose our identity that is when the stress of caregiving can step in a wreak havoc on our lives. It is a hard enough journey in itself. We must find a way to not lose ourselves in the process."
Read more of Shawn's story here: https://www.caregiving.com/ncc19/cva-shawn-moore/.
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Monika Gross, a 2019 Caregiving Visionary Award Winner, developed The Poise Project to help family caregivers build their resilience. Monika joins us to share her vision for supporting family caregivers around the world.
You can learn more about Monika through her website, www.thepoiseproject.org.
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On World Alzheimer’s Day 2016, Julie Fleming launched The Purple Sherpa, a nonprofit organization that’s designed to educate, encourage, and support dementia family caregivers. Today there are 65,600 followers on Facebook, almost 4100 members in the online closed support group, and almost 450 members in the closed The Purple Sherpa Grief Support Group.
Julie described her seven-year caregiving experience for her father as “the most exhausting, frightening, and loving experience I’ve ever had.”
Learn more about Julie's story and her work.
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Marcia Burr, one of our 2019 Caregiving Visionary Award nominees, joins us to share how caring for her wife with Alzheimer's drives her to help and support those who currently care for a family member with Alzheimer's.
Marcia formed a support group in her community and recently launched a new playlist on her YouTube Channel called Care Partners Tip of the Day.
You can read more of her story on CareGiving.com.
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Sharon Hall, an FTD care partner and Rebekah Wilson, MSW, The Aging Care Coach (agingcarecoach.com) will discuss what has been in the news a lot lately, intimacy and love in the middle of dementia.
B Smith has Alzheimer's, and a recent article about her husband having a female companion who he brings into their home and who also helps with B's care has caused quite a curfuffle. This subject is brought up a lot in the FTD community because so many are so young and have a full life ahead of them, beyond care parterning for their spouse.
Let's get this out in the open and talk about it. Rebekah has talked about sex and dementia and she will share her insights. Sharon will share how she feels about this, as well. Join us for an open, honest discussion. If this is not your cup of tea, please understand this will be R rated.
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Denise Brown and her guest, Warren Hebert, and I share our thoughts about how to effectively communicate about the challenging and overwhelming days.
About Warren
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Sharon Hall and Janelle Drake, who both have husbands diagnosed with FTD, will discuss what we had to learn the hard way and what we want people newly diagnosed to know that will help them deal with this diagnosis.
No one can know what it is like to live through a frontotemporal dementia diagnosis better than those who have been there. Sharon and Janelle will share their trials and tribulations that followed the diagnosis. It takes an average of 4 years to get a frontotemporal diagnosis. During that time, the frustration and the feeling of not being heard becomes overwhelming. When we finally get a diagnosis, the relief and grief set in and we then say, now what?
We will try to address the now what question, by telling you what we found to be the most valuable information.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
Episode 32 with Crystal Kelliher
I had a great time interviewing Crystal Kelliher with www.DoYouMama.com on my Empowered Family Caregiver podcast. We talked about her journey as a mom and entrepreneur. Time management tips, working through emotions, self-care and three steps to simplify your schedule and life await in this episode.
Catch our blog interview highlights and learn more about Crystal HERE.
I invite you to join our private and supportive Facebook group, especially for family caregivers HERE.
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This podcast is hosted by Sharon Hall, whose husband has been diagnosed with bvFTD. It was created to give FTD families a resource for valuable information that deals with having FTD present in your life. All episodes are archived by subject, so if this month's subject is not something you need now, you can listen in the future.
This month we will discuss Palliative and Hospice care. Sharon will be joined by Rebekah Wilson, MSW, www.agingcarecoach.com and Tina Ketchie Stearns, www.itsabouthowyoulive.com to discuss why palliative care is important and how hospice works and the 5 myths of hospice.
To contact Sharon, email sharonhall419@yahoo.com. You can suggest topics to be covered on the podcast, or tell us how you like, or dislike, this format. We enjoy hearing from our listeners.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
Episode 31 Interview with Beth Scibienski
Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
Episode 31 Interview with Beth Scibienski
I had the distinct pleasure of interviewing Beth Scibienski on my Empowered Family Caregiver podcast. We talked about her journey with her late husband, Pete and the power of compassion and vulnerability. We also discussed Beth’s new book, Who Is God When We Hurt? and what inspired her to write this book. Beth shares a useful and thoughtful tip about the power of having a sacred inner circle.
We also talked about how difficult things can be during the holiday. Hear Beth’s advice to reduce caregiver stress, how she found her best during what seemed like her worst, what she is grateful for and her advice for keeping hope alive.
Beth Scibienski is the pastor of Grace Presbyterian Church, a vibrant congregation in central NJ, who loves, learns and laughs together. She started working at Grace one month before her late husband was diagnosed with Secondary Progessive Multiple Sclerosis. Learn more about Beth here: www.bethscib.com
I invite you to join our private FB group here: https://www.facebook.com/groups/empoweredfamilycaregiver/
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Many people believe that addiction and substance abuse are only problems young people struggle with. That is sadly, a huge misconception. In reality, substance abuse in baby boomers and older generations is a growing public health concern and can cause havoc in families and much stress in caregivers.
My guest today is Dr. Julie Davelman who is a Clinical Psychologist with Abrams Psychological Services. Dr. Davelman and I discuss such important topics as how large a problem is this, what arethe warning signs families should be aware of, unique triggers in an older person and how can families raise this issue and begin seeking help.
You can learn more about Dr. Davelman and connect with her for further questions and advice by visiting her website at www.abramspsychservices.com and read her blog at https://drdavelman.wordpress.com/
I will also be posting some further resources on my Facebook Page - "On The Frontlines of Caregiving" - www.facebook.com/FrontlinesofCaregiving
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When it doesn't look like we have enough, how do we believe we have enough?
About Ellen
Ellen Rogin wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business.
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Does the thought of the upcoming holidays fill you with dread instead of joy? Does seeing all the sparkly commercials with bright eyed children playing pianos and cute dogs snuggled by the fireplace wearing hats make you question your own life? Well - you're not alone!!
The holidays can be wonderful, joyous times, but for caregivers also come with unique stresses and feelings of loss.
On today's show, I have a great conversation with Rick Lauber who is the author of 2 caregiving books - "Caregivers Guide for Canadians" and "The Successful Caregivers Guide." We discuss some down to earth tips to help you navigate this time and hopefully reduce your stress.
Rick also is offering free copies of his book "The Successful Caregivers Guide" as a gift to you.
Head on over to: Facebook Page: "On the Frontlines of Caregiving" In the comments section - post a picture of your stress-busting pet or write 1 way you have found useful to combat holiday stress Rick and I will select three lucky winners and your book will be shipped to your home.
Good luck and I sincerely hope you can carve out some time for yourselves and your holidays bring you joy and peace.
Lynette
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Claire E. Day, Chief Program Officer for the Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to share tips on coping with dementia care during the holidays.
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Jennifer Levin was a caregiver for her father who had Progressive Supranuclear Palsy, a rare degenerative brain disease. Since then, she has gone on to write about her experience as a Millenial caregiver for Cosmopolitan and created and moderate the Caregiver Collective support group on Facebook. Jennifer's goal is to bring awareness to the startling statistic of Millenials who care for family, the ways caregiving affects them differently than previous generations, as well as encourage these caregivers to seek support.
We discuss a range of issues ranging from the specific challenges that Millennial caregivers face, why it's so important to identify as a caregiver and how to handle job pressures and advocate for your rights as a caregiver.
You can connect with Jennifer on her Facebook Support Group - CaregiverCollective and through Twitter - @classiclevin.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: EP 30 Interview with Christy Vacchio - Caring for the Rare Disease Child
Tune in to episode 30 of the Empowered Family Caregiver podcast with guest, Christy Vacchio. November is #DiabetesAwarenessMonth and Christy has two children with DEND syndrome. DEND is a very rare, generally severe form of neonatal diabetes mellitus characterized by a triad of developmental delay, epilepsy, and neonatal diabetes. Christy shares her journey caring for two rare disease children and the reality of being a pioneer. Check out our blog article with an overview of our podcast HERE.
Christy Vacchio is a full-time mom, wife, and instructional coach by day. By night, she runs a small business, helps support families as they join this new world of DEND syndrome and Neonatal Diabetes, and occasionally posts on her two blogs and runs a store on Shopify with graphic designs for rare diseases and special needs toys. Connect with Christy via her Blog/Shopify Store: https://babieswithdiabetes.org/
Connect with other family caregivers via my supportive and private Facebook group HERE.
Take this quick free quiz to discover your caregiver personality and get useful tips for caregiving without the overwhelm HERE.
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Most of us do not think of humor when we think about Alzheimer's disease. But, that is going to change if my guest Dani Klein Modisett has anything to do with it!
Dani is a former comedian who finds herself like so many of us - being the caregiver for her mother. Dani experienced first hand how humor connects people and brings back wonderful memories when she was performing. She wanted this for her own mother too even as she watched her go deeper and deeper into the illness.
Learn how Dani began her business "Laughter on Call" and the exciting ways she is spreading the power of humor to break down barriers and reconnect with those we love.
You can learn more about Dani at www.laughteroncall.com and contact Dani at danikinla@gmail.com
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Sharon will be joined by FTD carepartner, Marcia. They are going to discuss how they found support, what works for them and where to look for support. Marcia will also share information about a Mindfulness for Dementia Caregivers course she is taking.
We all need to have support through an FTD journey. This is not a journey you can live through alone. We need to break the cycle of people "abandoing" us when we get a diagnosis and learn how to find our own support.
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Empowered Family Caregiver Podcast with Tandy Elisala
Listen to the episode 29 of the Empowered Family Caregiver podcast with guest, Kate Schutt, right here. We had a tender conversation about her journey as a caregiver for her mother and how she changed the conversation around death and dying. It's a beautiful story of love, compassion, courage, determination, peace, and music. Music is a universal language. Kate used her music to share her caregiving experience in a powerful way.
Check out our blog interview highlights and more about her journey HERE.
Kate Schutt is a singer, songwriter, guitarist and producer living in New York City.
Connect with Kate via her website, Instagram, Facebook, Twitter, and LinkedIn.
Join us over at the Empowered Family Caregiver Facebook page where we continue the conversation.
Find out your caregiver personality HERE and get tips on how to leverage your strengths as a family caregiver.
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Sharon Hall is a caregiver for her 96 year old mother who has dementia and her 66 year old husband who has Frontal Temporal Dementia. She received the "Advocate of the Year" at the 2017 National Caregiving Conference and will be a presenter at this years conference.
Sharon joined me to discuss her personal story of the challenges she experienced in getting an accurate diagnosis for her husband after he began to exhibit troubling behaviors. Frontal Temporal Dementia (FTD) is often misdiagnosed and attributed to someone going through a "mid-life" crisis.
Through her path to diagnosis, Sharon now advocates for caregivers and provides excellent insight into this illness and advice about where to seek help. She also hosts "Talking FTD with Geri" podcast on www.caregiving.com and leads an FTD Care Chat every Monday and Saturday at 7:00 PM EST.
Sharon can be contacted by emailing her at sharonhall419@yahoo.com and can be found on Twitter @SRHall419.
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Two caregivers walk into a room. They may not have met previously, but, they absolutely know each other. They talk the same language, share the same emotions and understand deep down what it's like going through the myriad of emotions that arise during their care journey.
Ron Simons is a three-time Tony Award-winning producer, four-time Sundance Film Festival selected producer and actor of stage, film and television. Ron is also the Founder and CEO of SimonSays Entertainment. Take a look at his bio!
I read an interview with Ron where he talked about caring for his mother for close to 30 years. While reading his story, I felt like I knew him, despite us coming from totally different worlds.
So, I found an email for him, requested 15- 20 minutes of his time and hit "SEND." Never in a million years did I think I would hear back. To my surprise and delight, I did hear back and Ron agreed to be a guest on my podcast to share his very personal and very touching story of being a caregiver for his mother.
His mother, diagnosed with Alzheimer's disease was a proud, independent woman who looked on the bright side of life until this awful illness took a toll on her. Being an only child and long-distance caregiver was a role that Ron took on lovingly, but also was extremely challenging.
I think the lesson for all of us in the trenches is that being a caregiver is the great equalizer. Ron could not have been nicer or kinder to this rookie podcaster and our conversation about his journey and challenges lasted 30 minutes.
Thank you Ron for sharing your story, you make all of us feel less alone.
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EFC: EP 28 - Interview with Dr. Nicole Rochester
I had the privilege of interviewing Dr. Nicole Rochester on my Empowered Family Caregiver podcast. Hear how and why Dr. Nicole left her 17-year medical career to work with families on the receiving end of medical care. We had a great conversation about the importance of and how to empower family advocates. Dr. Nicole offers some serious value with specific phrases to use with medical care professionals to get their attention. She also shares valuable tips for working with the healthcare industry to help your loved one get the best care possible while you are in the ‘know’ about how health care really works.
During the "Take 5 With Tandy Round", hear Dr. Nicole’s advice on how to reduce caregiver stress, how she found her best during what seemed like her worst, what she is grateful for and her sage advice for keeping hope alive.
Dr. Nicole generously created a free hospital guide on what to do when your loved one is hospitalized. Grab your free guide here: bit.ly/hospitalguidegps
Dr. Nicole T. Rochester is a physician expert on health care navigation, patient and family caregiver advocate, speaker, author, blogger, and the CEO of Your GPS Doc, LLC. She is a board-certified physician and Clinical Assistant Professor with over two decades of experience teaching and practicing medicine. www.yourgpsdoc.com
Go HERE for a blog chat overview of our interview.
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Caregivers will discuss how they used out of the box options to help them get some free time. We will discuss some out of the box ways to get some respite time, where to look, how to be creative and how to use your circle of care.
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Empowered Family Caregiver Podcast EP: 27 with guest, Virginia Hunter Sampson.
Tune in for Virginia's 3 best tips for practicing self-compassion and more!
I had the privilege of interviewing Virginia Hunter Sampson on my Empowered Family Caregiver podcast. We had a great conversation about the importance of exercising radical self-compassion. Virginia offers some serious wisdom with 3 ways family caregivers can embrace self-compassion. She also shares a meltdown tip that is so easy it will blow your mind.
During the "Take 5 With Tandy Round", hear Virginia’s advice on how to reduce caregiver stress, how she found her best during what seemed like her worst, what she is grateful for and her advice for keeping hope alive. Click the link below to hear our entire chat. See below for interview highlights if there is a particular part you are interested in hearing.
More about Virginia: Virginia received her J.D. degree from Loyola Law School in Los Angeles. She has been a practicing litigation attorney for almost 35 years. She started in the legal field when few women were litigators. She was a judge for several years. She currently practices elder law helping seniors with their legal issues.
She has been a full-time caregiver to her husband, a victim of domestic violence, a single parent to four children, a widow, a divorcee, a step-parent and more. Her husband was diagnosed with ALS when her youngest child was two weeks old.
Learn more about Virginia and her NCC18 presentation on “Preventing Burnout HERE.
Comment on your aha's on this episode for a chance to WIN one of her books! Comment here on our FB page: http://www.facebook.com/EmpoweredFamilyCaregiver and be entered to WIN!
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Ep 26 of the Empowered Family Caregiver podcast with guest, Lynette Whiteman. Join us as we chat about:
Her caregiving journey and professional life. Lynette shares THE biggest thing you need to do when you first become a caregiver & how to get the help you need. She also uncovers the biggest things to remember when you're feeling guilty. During the "Take 5 With Tandy Round", hear Lynette's advice to reduce caregiver stress, how she found her best during what seemed like her worst, what she is grateful for and her advice for keeping hope alive.
Lynette Whiteman wears 2 hats. She is the Executive Director of Caregiver Volunteers of Central Jersey and also the caregiver for her mother who has dementia and lives with her. She began her career as a Physician Assistant and has a Masters in Geriatric Medicine. As Executive Director, she oversees a nonprofit agency which is dedicated to providing free support to older adults and caregivers who strive to remain independent. Through a vast network of volunteers, their programs include medical transportation, grocery shopping, friendly visits, calls and an Alzheimer's Respite Care Program. Lynette is also the founder of Caregiver Canines - a therapy dog program that provides free visits to the homebound and those with dementia for tail-wagging joy. Her caregiving journey began as her parents aged and her dad gave up driving. After her dad's passing in Nov. 2011, her mother became unable to manage day-to-day life and she moved into Lynette's home. Lynette is the host of the podcast “On the Frontlines of Caregiving” and is a contributing blogger for Caregiving.com.
Check out our interview highlights HERE and learn more about Lynette and where to find her across the web.
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As a caregiver myself, I know that it is not always easy to know how to talk about dying. It can be awkward, embarrassing and can cause a lot of fear. This can lead us to miss opportunities to connect on a deeper level with those who are dying or comfort those who are grieving.
Katie Chambers is an End of Life Doula for Holisticare Hospice. In a kind and sensitive manner, Katie helps us prepare for the loss of our loved one so that when the time comes, we can face this time knowing we did everything we could. Katie answers common questions dealing with how to approach an older person who says "I just want to die, I'm done' and when to seek help in the grieving process.
One of the books that Katie recommends to the families she visits is Grief 365. She finds these daily meditations to be very helpful in bringing peace. If you would like to contact Katie to ask any follow up questions, her email is: kchambers@hositicarehospice.org and here is a link to Hositicare Hospice.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: Ep 25 - 3 Ways to Bounce Forward From Option C (The Caregiving Club You Didn't Want to Join)
In this episode, I will share with you the 3 Proven Steps to decrease stress, improve your mindset and keep hope alive moment by moment so you can bounce forward with grace and ease. The general ideas around these 3 steps are: You have the power within! I’m going to show you simple mindset tips to shift negative thinking so you can worry less. I used these tips to help heal.Navigating the emotional terrain - I’m going to help you uncover the secret to keeping hope alive moment by moment even if you are in the middle of chaos. See the Heart, Not the Chart –I’m going to share how to see beyond daily caregiving responsibilities so you can create profound meaning as a caregiver. Listen in as we break these ideas down.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
Join our private FB Group @ facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast, please subscribe and give my show a + review.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: Ep 24 - 24 Family Questions About 4 Senior Living Options
As a family caregiver, one of the most important and difficult decisions you will make is how to choose the right type of living community is right for your loved one when they aren’t able to age in place at home anymore.
The choices are many and include independent living, assisted living, nursing home, memory care and a continuing care retirement community or a life plan community. Asking yourself these questions will help you determine which community is the best choice for your family’s needs. How you answer these questions is a good indicator of what type of senior living community will be a good fit. We're chatting about:
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Independent Living
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Assisted Living
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Memory Care
4. Continuing Care Retirement Community (CCRC) or Life Plan Community
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation. 9/9/18 - 9/15/18, I'm going live daily to chat about #NationalAssistedLivingWeek
Subscribe to this podcast and leave a review! If you find value in this podcast, please click the subscribe button, share with family and friends, and give my show a positive review.
One legal option I recommend is Legal Shield. Learn more about LS here: https://bit.ly/coachtandyls
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: Episode 23 11 Ways to Keep Your Family Safe Financially
Here are some key ways to keep your loved one’s safe financially that we discuss in more detail in this episode:
- Financial planning
2. Switch to generics
- Find less expensive brand name drugs
4. Switch to a mail-order pharmacy
- Find a better Medicare drug plan
6.Apply for the Extra Help program
7.Free or reduced medication costs. Several sites to check include: www.needymed.com. RxAssist.org
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Negotiated medical bills
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When evaluating nursing home options and if you opt to have a nursing home manage funds, find out if trust funds managed on their behalves are insured and bonded.
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Seek legal counsel to evaluate your financial situation and needs. One option I recommend is Legal Shield. Learn more about that option here: https://bit.ly/coachtandyls
11. Evaluate their expenses on a regular basis to ensure the appropriateness of spending patterns and habits.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer’s Institute, will join Sharon Hall to discuss how to know when you need more help and how to get that help. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions @ yahoo.com prior to the show.
CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer’s disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC Episode 22: 5 Best Ways to Embrace the Now When Your Brain Stays in Overdrive
Tune in for 5 Best Ways to Embrace the Now When Your Brain Stays in Overdrive. As a caregiver, your mind is always going a mile a minute. Here are 5 tips to help your brain embrace the present moment.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast, please click the subscribe button, share with family and friends, and give my show a positive review.
Send in a voice message: https://anchor.fm/caring-conversations/message
Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC Episode 21: 7 Ways You Can Combine Self-Care and Legacy
Tune in for my 7 best ways you can integrate self-care and legacy building activities with your loved one.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast, please click the subscribe button, share with family and friends, and give my show a positive review.
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This month, my co-host, Lisa B Capp, and I take a closer look at this question: How do we change our viewpoint on death?
About Lisa B Capp
Lisa is a blogger, an activist and a dementia caregiving survivor. As a High Tech Change Consultant, Lisa worked with leaders of global business, governments and non-profits. Her passion for empowering strength through transition in her professional work is now focused on those living a care partner life.
For more information visit her website at www.lisabcapp.com. Connect on Twitter @lisabcapp and LinkedIn at Lisa B Capp.
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Sometimes as a caregiver, no matter how much we do, it seems like it's not enough. Even when people tell us we're doing a good job, we don't let that sink in and continue to have negative self-talk. Dr. Julie Davelman is a psychologist with Abrams Psychological Services in Tinton Falls, NJ. She works with caregivers to ease their burdens and strengthen their mental outlook during difficult times. Today, she gives me useful tips to handle the negative emotions of guilt and shame which I hope will help all caregivers in their day to day lives.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer’s Institute, will join Sharon Hall to discuss how to know when you need more help and how to get that help. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can email questions ftdpodcastquestions @ yahoo.com prior to the show.
CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer’s disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC Episode 20: Best Advice for Caregivers
Tune in for my best advice for new caregivers and key lessons shared by current and former family caregivers.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast, please click the subscribe button, share with family and friends, and give my show a positive review.
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My guest, Warren Hebert, and I share our thoughts about when less is more in terms of communication.
About Warren
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Nneka Njideka, who cares for her mom, is one of our five Family Caregiver of the Year honorees. Nneka, who also is a Licensed Clinical Social Worker and a trained mediator, shares her story of how she cares for her mom as well as herself.
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Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to discuss the latest in Alzheimer's research.
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Summer Escapes: Escape from Mistakes with Tandy Elisala
Reframe what you think about mistakes
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC Episode 19: How 31 Boxes Helped My Mom Let Go: Lessons Learned About Peace and Compassion
Tune in for insights into how 31 boxes of "stuff" mailed from New Hampshire to Arizona helped my Mom let go of "things" and have peace. This episode shares how one of my worst caregiving moments turned into one of the BEST caregiving moments. Uncover what we learned and how dread turned to blessings.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast, please click the subscribe button, share with family and friends, and give my show a positive review.
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This is party of the summer series, Caregiving Escapes
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We want to give you a break this July that won't cost you money and won't cost you time trying to organize it. We'll give you a break right in your house.
We'll sharing short podcasts that take you away. We'll take you on meditations and visualizations while giving you a chance to float on hope. With our Summer Escapes podcasts, we'll transport you away from your stress and into our believe that you are enough and that you do enough.
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Denise and her guest, Stephanie Wissig, discuss how to navigate the fragmented health care system to get what you need for yourself and for your caree.
About Stephanie
Stephanie has focused her career on improving patient's health outcomes and experience of the healthcare system. After earning her MD and PhD in neuroscience from Albert Einstein College of Medicine, she has worked in a variety of roles to develop and implement quality improvement programs. She now serves as Clinical Product Lead at AssuredAllies, a venture-backed start-up with a mission to make sure that every family caregiver gets the support they need.
In recent years Stephanie has also found herself taking on the role of family caregiver. This personal experience, along with her passion to help the 45 million family caregivers who form the unseen backbone of the healthcare system, lead her to join AssuredAllies as a founding member.
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Summer Escapes: Escape from Worry with Tandy Elisala
Here's a tip to let go of worry.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC Episode 18: Driving and Seizures Don't Mix: A Worst Caregiving Moment Turned Good
2 Ways One Of My Worst Caregiver Moments Turned Good. Tune into this episode where I share the time when my dad thought he could drive (during one of HIS worst moments) and the positive lessons that came from this experience.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
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On my show today we are going to delve into the awful time in caregivers lives when they need to discuss talking to their loved ones about no longer driving. It hits so deeply on so many levels - self worth, independence, end of life, etc. There is no easy answer to how to have this conversation, but there are tips we can learn and use to make this easier for caregivers.
My guest is Penny Patnaude, the founder of Caregiver Strategist LLC, located in New Jersey. The company is devoted to training front-line health professionals implement best care practices, protection, assistance, acknowledgment and communication techniques for individuals living with cognitive impairment.
As a former caregiver with decades of experiences, Penny knows firsthand the devastation diseases like Alzheimer’s and Dementia cause. Penny provides families with information and strategies to develop skills in managing difficult behaviors, crisis planning and creating safer environments.
Penny holds a Masters of Degree with a Concentration in Training and Education; Bachelors Degree in Psychology; she is Certified Alzheimer’s Disease and Dementia Care Trainer; Certified Dementia Practitioner; Certified Dementia Support Group Facilitator and national speaker. For more information about Penny and contact information visit her web site The Caregiver Strategist.
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Summer Escape: Escape from Grief with Tandy Elisala
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We want to give you a break this July that won't cost you money and won't cost you time trying to organize it. We'll give you a break right in your house.
We'll sharing short podcasts that take you away. We'll take you on meditations and visualizations while giving you a chance to float on hope. With our Summer Escapes podcasts, we'll transport you away from your stress and into our believe that you are enough and that you do enough.
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Summer Escape: Escape from Guilt with Tandy Elisala
Escape from Guilt... Remember this?
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC Episode 17: 7 Ways to Survive Being Sandwiched
Maintain your sanity and save time with these caregiving tips. If you are part of the sandwich generation and taking care of your aging or ill parents while raising your own family, then THIS episode is for you!
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast, please click the subscribe button, share with family and friends, and give my show a positive review.
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What does self-compasion look like for Caregivers? As Virginia Sampson explains it, the first step is recognizing that there is no such thing as a "perfect caregiver." As a consultant, writer, and author, Virginia passes along some of her wisdom which even includes giving yourself a hug, when no one else is around to do that for you. Virginia will be a presenter at the NCC !8 Conference in Chicago in November and she is looking forward to explaining more of her wonderful tips and advice.
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This month, my co-host, Lisa B Capp, and I take a closer look at this question: How do we change our viewpoint on courage?
About Lisa B Capp
Lisa is a blogger, an activist and a dementia caregiving survivor. As a High Tech Change Consultant, Lisa worked with leaders of global business, governments and non-profits. Her passion for empowering strength through transition in her professional work is now focused on those living a care partner life.
For more information visit her website at www.lisabcapp.com. Connect on Twitter @lisabcapp and LinkedIn at Lisa B Capp.
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Denise and her guest, Jacqueline Boyd, discuss the words we use to describe our situations. For instance, does "adult orphan" effectively describe a situation? We'll talk about the words used during a caregiving experience and how we find the words that fit.
About Jacqueline
Jacqueline brings passion and expertise to the field of aging and LGBTQ+ advocacy. A dynamic speaker, facilitator and entrepreneur, Jacqueline is the owner of The Care Plan. The Care Plan (www.the-care-plan.com) is the country's first LGBTQ+ centered care management company. The Care Plan’s innovative model of client directed care provides advocacy, care navigation and advance planning for successful aging experiences. Jacqueline is a co-founder of Project Fierce Chicago, an LGBTQ+ youth housing initiative. Jacqueline has the pleasure of sitting on the advisory board of Pride Action Tank, and the Services Committee for Little Brothers Friends of the Elderly.
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We want to give you a break this July that won't cost you money and won't cost you time trying to organize it. We'll give you a break right in your house.
We'll sharing short podcasts that take you away. We'll take you on meditations and visualizations while giving you a chance to float on hope. With our Summer Escapes podcasts, we'll transport you away from your stress and into our believe that you are enough and that you do enough.
Send in a voice message: https://anchor.fm/caring-conversations/message
Summer Escapes: Escape from Stress with Tandy Elisala
Take a 30-second vacation from stress!
Escape from stress with this 30 second vacation visualization.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: Episode 16 - 5 Ways to Protect your Energy From Negative People and Situations
Tune in for proven ways to get and stay grounded and preserve your precious energy. It can be TOUGH to manage your emotions when you are stuck on the rollercoaster of caregiver emotions. These proven tips helped me preserve my life force energy, maintain energetic boundaries and helped me feel more balanced.
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I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast, please click the subscribe button, share with family and friends, and give my show a positive review.
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Denise and her guest, Warren Hebert, share their thoughts about how to effectively communicate with health care professionals.
About Warren
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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We want to give you a break this July that won't cost you money and won't cost you time trying to organize it. We'll give you a break right in your house.
We'll sharing short podcasts that take you away. We'll take you on meditations and visualizations while giving you a chance to float on hope. With our Summer Escapes podcasts, we'll transport you away from your stress and into our believe that you are enough and that you do enough.
Send in a voice message: https://anchor.fm/caring-conversations/message
Denise and her guests, Susan Rowe and Anne Tumlinson of Daughterhood.org, discuss what's new in our business of caregiving. During today's podcast, the three ponder this question: How will the home care and hospice space change?
Anne Tumlinson founded Daughterhood and is also a long-time researcher and aging expert in Washington, DC. She has worked for many years on improving how we pay for and provide care to the nation’s most frail older adults and their caregivers.
Susan Rowe joined Daughterhood at its inception in January 2015. She brings her natural gift for empathy to bare in her current role as Daughterhood Programs Coordinator, where she works forming and supporting daughterhood circles and their group of awesome volunteer leaders from Florida to Los Angeles
To learn more about our discussion, you can read the following articles:
Let's talk about Honor's pivot: https://homehealthcarenews.com/2018/05/honor-raises-50-million-to-target-hundreds-of-new-partners/
and Humana's entree into hospice: https://www.nytimes.com/2018/06/22/health/hospice-humana-private-equity.html?smid=tw-nythealth&smtyp=cur
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Summer Escapes: Escape From Fear with Tandy Elisala
Today's summer escape is about how to think differently about fear.
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EP 15: Empowered Family Caregiver Podcast with Tandy Elisala
Let Go, Let Be and Love
Tune in for 16 Quick Ways To Let Go, Let Be and Feel Love.
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I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver Click the link and join us!
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re spreading at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give our show a positive review.
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How do we go about taking a summer escape and leaving some our emotional baggage on the airport carousel. We hope this Caregiving Boost will give you some ideas to get started!
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Beth Suereth is the founder of HaveHealth, LLC and has a passion for using her expertise to help other caregivers manage the times when their loved ones are admitted to a hospital. Through using a different approach and respecting the roles of the nurses, doctors and hospital staff, caregivers can be a strong advocate for their loved ones while also becoming a trusted part of the caregiving team.
Beth will be sharing her knowledge at the upcoming National Caregiving Conference through 2 presentations and we are lucky enough to hear her give her top 3 tips in todays podcast.
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Relaxing is good for us. But how we do destress in order to relax?
Erica Hornthal will share ways we can use our body to release our stress so that we can find our relaxation.
Erica is a licensed clinical counselor and board certified dance movement therapist and the owner and CEO of Chicago dance therapy. Her body-based approach to psychotherapy has been used with individuals as young as 3 and as old as a 107.
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EFC: Powerful Forgiveness Visualization Exercise
Episode 14 of the Empowered Family Caregiver Podcast with Tandy Elisala
In this episode, experience a powerful release of emotions that no longer serve you. Through this short visualization, you'll feel lighter and more at peace. Repeat this exercise as often as you need.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver Click the link and join us!
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re spreading at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Ellen Rogin, our wealthness expert, helps us listen to our messages about money.
Ellen Rogin wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business. She lives in the Chicago area with her husband, and they have two Gen Z kids who by all accounts are turning out to be financially responsible adults.
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Episode 13: Empowered Family Caregiver Podcast with Tandy Elisala
EFC: 3 Ways to Celebrate Older Americans Month
Tune in to hear 3 powerful yet easy ways you can celebrate older Americans month with those you love.
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I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver Click the link above and join us!
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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How do we navigate this stage in our life most of us dread and don't want to enter into? I'm talking about facing the decision to place our loved one in a nursing home.
My guest this week is Lisa Marie Chiricho who created Nursinghomeology.com.
Lisa was the caregiver for her own dad for 15 years after he was diagnosed with Alzheimer's disease. In the last 5 years of his life he lived in a nursing home. Lisa's passion now is helping other caregivers manage, monitor and organize the care their loved ones receive. Her major lesson learned - the responsibility of the family actually increases once their loved one moves into a skilled nursing facility.
We explore this and other tips to make life easier for caregivers in this segment of their journey.
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Episode 12 of the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: What Cookies Can Teach Us About Gratitude
How this story can help you reframe a bad day
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I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver Click the link and join us!
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Excited to share this great conversation with Dr. Tandy Elisala who will be one of the presenters at the National Caregiving Conference in November 2018 in Chicago. Tandy and I discuss her own amazing caregiving journey which began when she was 13 years old! Through the years, Tandy has devoted her life to making life better and more stress free for caregivers and has created the Facebook Group - The Empowered Family Caregiver. We discuss Tandy's thoughts on ways that caregivers can leave a legacy while also caring for themselves and also Tandy willg give us a hint of her great topics for the upcoming conference.
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Cathy, who cares for her mom, and Lillie, who cared for her mom and helps her brother, share their caregiving days.
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Meet Pam Ludwick, who cares for her son.
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Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to discuss the 2018 Alzheimer's Disease Facts and Figures.
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Meet CJ Golden, one of our 2018 Family Caregivers of the Year.
Author CJ Golden is a writer and inspirational speaker who, through her last two books, shares the Tao philosophy of serenity and acceptance with women and girls.
In her newest book, “One Pedal at a Time: A Novice Caregiver and Her Cyclist Husband Face Their New Normal With Courage, Tenacity and Abundant Love,” she brings the same principals to help ease the burden that face family caregivers.
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Episode 9 of the Empowered Family Caregiver Podcast with Tandy Elisala
7 Differences Between Care TAKING and Care GIVING
May these 7 different perspectives on caregiving help shift your thoughts on the tough days.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation. Grab a printable version of the 7 points we discussed today that you can print and remind yourself of these things... only available in our group! www.facebook.com/groups/EmpoweredFamilyCaregiver - Click the link and request to join today.
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Meet Amanda Singleton, one of our 2018 Caregiving Visionary Award winners.
Amanda Singleton is the owner of Singleton Legal, a caregiver-centered law firm. Through her experiences as a family caregiver, she was led to become an advocate for all caregivers. Her vision is to see her clients plan to care and be cared for, so that they are prepared and supported when the time comes.
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We're talking about "talking points" -- words we can use during difficult situations. We can start with interactions with health care professionals -- what we can say when we're concerned about care issues or feel the staff may be minimizing our concerns. We can then move to family and talk about how to address those who may doubt what we're doing and how we're doing it.
About Warren
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer’s Institute, will join Sharon Hall to discuss how to know when you need more help and how to get that help. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions @ yahoo.com prior to the show.
CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer’s disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
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Lark, who cares for her husband, shares her caregiving story.
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Episode 8 of the Empowered Family Caregiver Podcast with Tandy Elisala
6 Ways To Help Loved Ones Feel More Independent (Even When They Really Aren't)
Tune in to hear 6 ways you can help your loved ones feel more independent even if they live with you.
Many of my clients are concerned about how decisions will impact them and those they are caring for from a financial, emotional, physical and spiritual perspective. I created a comprehensive guide that addresses:
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Caregiving myths
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How to balance independence and safety
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31 ways to keep your loved ones safe physically at home
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How to keep your loved ones safe financially (including a disturbing and growing trend with nursing homes)
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How to keep your loved ones safe emotionally & spiritually
You may find this guide in my Etsy Store here: https://www.etsy.com/listing/589895821/family-caregiving-safety-at-home-guide?ref=shop_home_active_5
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I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review!
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Episode 10 of the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: 12 Ways To Live Your Life: My Mother's Day Tribute
Here are the 12 lessons my mother left as part of her legacy.
I'm sure you'll agree with me when I say that having a good mother in your life is key to how you raise your own family. It's important to have conversations of the heart with those you love because we all want to be remembered. In this article, I'm sharing the 12 Ways to Live Your Life that my mother shared with me. Through this tribute, I hope you all work to create and hone your legacy and your own pillars for living.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Empowered Family Caregiver Podcast - Episode 7 with Tandy Elisala
19 Questions to Ask the Medical Community on Behalf of Your Loved One
If you are an advocate or anticipate you will make health care decisions for a loved one, this episode is for you. If you would like to avoid the caregiving mistakes I made, this is definitely for you. We have a responsibility to our family to be a voice when our loved ones need it most; when they are unable to do so themselves. This episode addresses the 19 areas/questions to ask before surgery and as discharge planning happens. I'm also sharing the biggest MYTH about hospitalizations. This will shift your perspective about hospital experiences and help you better manage the discharge process.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver A copy of all the checklist items we discuss today is available in our facebook group!
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Meet Heather Oglesby , one of our five Family Caregiver of the Year award winners. Heather and the other four winners will be honored during a reception on the evening of November 8 at the Third Annual National Caregiving Conference.
Heather is a 45-year old woman who is currently caring for her mother with Alzheimer's. Along with being a caregiver, she works full time for the Centers for Disease Control and Prevention. Prior to becoming a caregiver for her mother, Heather traveled the world serving in multiple voluntary roles in Africa, Romania, and Egypt.
At age 40, Heather began noticing something different with her mother. She began asking for money to pay the same bills, over and over again. Her mom would come to visit her and get lost, even though she had visited many times. Her mom appeared disheveled and confused most of the time, but at age 60, Heather just attributed her mom's behavior to getting older. Heather moved over 800 miles away from her mother to take a job in Atlanta, Georgia. As the symptoms worsened, Heather's mom could not verbalize over the phone what was happening in her life. The only words her mother could utter was that she was evicted and sleeping in her car. Heather's mom ended up in a women's shelter due to complications associated with Alzheimer's at the age of 64. Heather and her husband rushed to her mother's side and at the age of 42 became a full-time caregiver for her mother with Alzheimer's.
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Lillie, who cared for her mom, joins us to share an update. And, Cathy, who cares for her mom, shares how she and her mom are doing.
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Meet three of our five Caregiving Visionary Award winners: Bev Foster, Bruce McIntyre,
Bev Foster is the founder and executive director of the Room 217 Foundation, a community health arts organization that uses music to change the care experience. Compelled by her own caregiving journey, Bev and her team deliver music care products, programs, and educational services to healthcare providers, family and volunteer caregivers across Canada.
Bruce McIntyre serves as the Executive Director of the Parkinson Foundation of Oklahoma. As a 14-year caregiver for his wife, Kathy, and as the author of Thrive Anyway, Parkinson Positive, Graceful Transitions, and Resilient Life, Bruce shares his expert guidance and warm humor with thousands of people each year.
Sheila Warnock is the Founder & President of ShareTheCaregiving (aka Share The Care) and co-author of Share The Care, How To Organize A Group To Care For Someone Who Is Seriously Ill.
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This month, my co-host, Lisa B Capp, take a closer look at this question: How do we change our viewpoint on hope?
About Lisa B Capp
Lisa is a blogger, an activist and a dementia caregiving survivor. As a High Tech Change Consultant, Lisa worked with leaders of global business, governments and non-profits. Her passion for empowering strength through transition in her professional work is now focused on those living a care partner life.
For more information visit her website at www.lisabcapp.com. Connect on Twitter @lisabcapp and LinkedIn at Lisa B Capp.
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Michelle Seitzer, who cares for her daughter, joins us to share an update.
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Denise and her guests, Susan Rowe and Anne Tumlinson of Daughterhood.org, discuss what's new in our business of caregiving. During today's podcast, the three ponder this question: Will innovations in health care and help for family caregivers come from outside our space?
Anne Tumlinson founded Daughterhood and is also a long-time researcher and aging expert in Washington, DC. She has worked for many years on improving how we pay for and provide care to the nation’s most frail older adults and their caregivers.
Susan Rowe joined Daughterhood at its inception in January 2015. She brings her natural gift for empathy to bare in her current role as Daughterhood Programs Coordinator, where she works forming and supporting daughterhood circles and their group of awesome volunteer leaders from Florida to Los Angeles
To learn more about our discussion, you can read the following articles:
http://time.com/5128377/amazon-and-friends-takes-on-a-new-industry-health-care/
https://www.investors.com/news/walmart-pillpack-merger-talks-humana-hints-healthcare-disruption/
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Denise and her guest, Warren Hebert, share their thoughts about which organizations earned a Best in Family Caregiving honor for their understanding of the caregiving experience.
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Geri Hall and Sharon Hall will talk about the most asked questions in sessions at the Annual FTD conference which took place earlier this month.
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What if you could give yourself Grace? What does that mean? We hear this word in our journey all the time. What does it mean to you? How can you give yourself Grace?
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Caregiving Boost: Acceptance with Tandy Elisala
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Episode 6 of the Empowered Family Caregiver Podcast with Tandy Elisala
The Ultimate Caregiver Guide To Staying Organized
Tune in to this episode where we get practical and talk about the 12 things you need to stay organized as your loved one's advocate.
This really helped me keep everything straight between all the hospital visits, surgeries, rehabilitation stays, assisted living stints, lawyers, doctors and more.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver A copy of all the checklist items we discuss today is available in our facebook group!
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Hello Everyone and Welcome to The Caregiving Circus - Part of the Caregiving Podcast Network.
Please welcome my cohost - Marti Hannon from World Changer Consulting and I’m Jackie Schwabe, the Reluctant Ringmaster, from the Caregiving Circus continue their six part series on the Six Stages to a Meaningful Journey. The ladies will describe the sixth stage, God Speed Caregiver, discuss the key coping strategies, stumbles, and steadies of the stage.
The unique component of their discussion with be the point of view of each host. Marti works mostly with caregivers that are taking care of someone with dementia and Jackie mostly interacts with her autistic child. Stay tuned as we work through what it means to go through the journey in a healthy and happy way.
Visit World Changer Consulting at https://www.worldchangerconsulting.com/
Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
The Caregiving Years, Six Stages to a Meaningful Journey by Denise M. Brown
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Caregiving Boosts are part of the Caregiving Podcast Network. The month of April every day a special caregiving boost will be done for caregers, by caregivers just like you.
Today's boost deals with the duality of the meaning of words and what meaning you will hold for yourself.
Thank you Denise Brown, of Caregiving.com, for your thoughtful consideration in creating the caregiving boosts.
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Cathy, who cares for her mom, joins us to share her story.
Table Talk airs every Monday with Denise and her guests talking about caregiving.
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Kim Falk, an Advanced Certified Caregiving Consultant, joins Denise to share how she cares for her son while making sure she cares for herself.
About Kim
As an Advanced Certified Caregiving Consultant, Kim brings 20 years of experience working with clients who need support, alternatives, and information to progress in life. Her passion is to help people do life well. Her degree in Social Work has allowed her to work with ages 4 – 94 in hospitals, assisted living facilities, nursing homes, schools and group homes.
Professionally, Kim is a Licensed Clinical Social Worker, so she can assist caregivers with discovering where thoughts and feelings may be bringing imbalance. As caregivers take on the hefty role of caregiving, sometimes the load seems unbearable and increased support is needed. Kim is happy to come along side you in your journey of caregiving to collaborate with you on your needs.
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Caregiving Boost: Strength and Trust with Tandy Elisala
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Caregiving Boost: Deciding to be Happy with Tandy Elisala
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Welcome to our first podcast in a new monthly series about family caregivers as change leaders. Each month, we'll answer this question: So what do we want to change?
This month, my co-host, Lisa B Capp, take a closer look at this question: What if we changed our definition of success?
About Lisa B Capp
Lisa is a blogger, an activist and a dementia caregiving survivor. As a High Tech Change Consultant, Lisa worked with leaders of global business, governments and non-profits. Her passion for empowering strength through transition in her professional work is now focused on those living a care partner life.
For more information visit her website at www.lisabcapp.com. Connect on Twitter @lisabcapp and LinkedIn at Lisa B Capp.
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Hello Everyone and Welcome to The Caregiving Circus - Part of the Caregiving Podcast Network.
Please welcome my cohost - Marti Hannon from World Changer Consulting and I’m
Jackie Schwabe, the Reluctant Ringmaster, from the Caregiving Circus continue their six part series on the Six Stages to a Meaningful Journey. The ladies will describe the fifth stage, Transitioning Caregiver, discuss the key coping strategies, stumbles, and steadies of the stage.
The unique component of their discussion with be the point of view of each host. Marti works mostly with caregivers that are taking care of someone with dementia and Jackie mostly interacts with her autistic child. Stay tuned as we work through what it means to go through the journey in a healthy and happy way.
Visit World Changer Consulting at https://www.worldchangerconsulting.com/
Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
The Caregiving Years, Six Stages to a Meaningful Journey by Denise M. Brown
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What do we do when we are feeling down? It is going to happen. Emotion is linked to Movement - so, if you want to change your emotion ... change your motion.
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Cindy Thompson joins us to share about her book about dementia care stories.
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Episode One of the Contemplative Caregiver Podcast
Join me as I introduce some of the ideas that I have for the podcast and listen as I share my caregiving story. Join me on May 1st for a special podcast on the Caregiving Podcasting Network's "30 Days of Caregiving Boosts."
As always be well and excel.
To learn more visit Contemplative Caregiver.com and Caregiving.com
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Here's today's short caregiving boost on HOPE with Tandy Elisala
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Meet Priya Soni, who cared for her father and used her personal experience to work to improve the lives of family caregivers.
Priya is the Founder and CEO of The Caregiving Effect LLC, a platform and service launched to create a space for adults who have cared for their parent(s)/parental figures due to aging, illness and/or disability. She has developed a mission to build a movement of mentors, caregiver visionaries, who are utilizing their stories as a tool to help the many who will or are walking the path of caregiving. As a coach and certified caregiving consultant, she aids adults in turning the unexpected role of being a caregiver into a role of a lifetime—The Caregiving Effect- a term she coined.
Priya has earned a B.S. in Theatre and Psychology from Towson University and M.A. in Disability Studies from City University of New York’s School of Professional Studies. She has worked in a variety of settings including working with women who have substance abuse; women who have been affected by domestic violence; and with children and adults with disabilities. One of her greatest passions is creating community. Reach out to Priya at www.priyasoni.net.
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Ellen Rogin, our wealthness expert, helps us figure out what to spend today so we have enough for tomorrow.
About Ellen:
Ellen Rogin wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business. She lives in the Chicago area with her husband, and they have two Gen Z kids who by all accounts are turning out to be financially responsible adults.
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CaregivingBoost - Today's caregiving boost is helps us think about the doing vs the love of the doing.
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In today's #CaregivingBoost, we are talking about courage.
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Denise and her guest, Warren Hebert, share their thoughts about what makes a community friendly to a caregiving experience and situation.
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years.
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Welcome to Episode 5 of the Empowered Family Caregiver Podcast with Tandy Elisala
EFC: What Family Caregivers Think and Don't Always Say
If you know a caregiver, you'll gain a lot of insight into a day in the life of a caregiver and learn what to say and what NOT to say.
Join us for a little bit of humor, story, sass, and reality as we break down the biggest things family caregivers think. We'll also share what to say and what NOT to say to a family caregiver.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Christian Dockter joins us on the Caregiving Circus on the Caregiver Postcast Network. Christian was only 17 when his father and he switched roles. One day a 17 year old teenager, the next day a primary caregiver. Join Marti Hannon and Jackie Schwabe as they interview this fantastic young man as he tells us about his father's traumatic brain injury and how he went from angry, anxious and sad to a mission based caregiver. Chrisitian says when his mindset changed, so did his life.
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Lynette Whiteman, who cares for her mom, joins us to share how she manages her personal caregiving responsibilities and her work helping family caregivers.
Lynette blogs about her caregiving experiences on CareGiving.com and recently launched a podcast, On the Frontlines of Caregiving.
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Empowered Family Caregiver -EFC Episode 4: How to Manage Caregiver Guilt with Tandy Elisala
In this episode, we are talking about why caregiver guilt happens, the three ways guilt creeps into our lives and 7 tips to manage the guilt gremlins so you can have more peace.
WHY guilt happens? Guilt happens when we start 'should'ing on ourselves. When we have feelings we don't think we should have. There are 4 ways guilt happens: Resentment, caree health changes, childhood/rearing issues, caregiver health changes
3 WAYS guilt manifests:
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Asking questions
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Doubting your decisions
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Doubting your feelings
7 Tips to Manage Guilt When It Creeps Up:
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Acknowledge
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Change expectations
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Ask for help
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Self compassion
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Self care
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Embrace
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Recognize/accept
BONUS TIP: How to balance the balls that matter. This analogy will help you think differently about boundaries and guilt.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, where we continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
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AJ Bryant, founder of Achieving I’m-Possibilities, and author of The Revocation, a legal thriller, and upcoming book, Self-Conservation, the Art of Self-Care tells us how her journey led to her love for words and a focus on Self-Conservation. Join us as AJ gives us some tips on how to be healthier caregivers.
Bio Snippet:
In kindergarten, I was terrified to learn to read .... how does someone terrified to read write two books? What does this have to do with caregiving?
Learn more about AJ at http://caregivingcircus.com/ajbryant
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer’s Institute, will join Sharon Hall to how to manage when a caree lives with a family unit which includes children. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions @ yahoo.com prior to the show.
CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer’s disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
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How do we give our carees (and ourselves) peace at end of life? Dr. Samuel Harrington, author of a new book, At Peace: Choosing a Good Death After a Long Life, joins us to guide us toward a peaceful end.
Most people say they would like to die quietly at home. But overly aggressive medical advice, coupled with an unrealistic sense of invincibility, results in the majority of elderly patients misguidedly dying in institutions while undergoing painful procedures, instead of having a better and more peaceful death they desired.
AT PEACE outlines specific active and passive steps that older patients and their health care proxies can take to insure loved ones pass their last days comfortably at home and/or in hospice, when further aggressive care is inappropriate.
Through Dr. Harrington's own experience with his parents and patients, he describes the terminal patterns of the six most common chronic diseases; how to recognize a terminal diagnosis even when the doctor is not clear about it; how to have the hard conversation about end-of-life wishes; how to minimize painful treatments and when to seek hospice care. The current estimated U.S. senior population 65 and older is well over fifty million strong. AT PEACE is a relevant and necessary resource for families across the board. Samuel Harrington, MD, a graduate of Harvard College and the University of Wisconsin Medical School, concentrated his practice at Sibley Memorial Hospital. His work as Sibley's patient safety officer representative to the Johns Hopkins Medicine Board of Trustees and his service on the board of a nonprofit hospice in Washington D.C. informed his passion for helping aged patients make appropriate end-of-life decisions.
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Marti Hannon from World Changer Consulting and Jackie Ann Schwabe, the Reluctant Ringmaster, from the Caregiving Circus will have a special guest this week from White Lie Living. Meet Roberto A. DiPietrantonio, a self proclaimed travler and former family caregiver as he gives us his unique perspective on self care.
The unique component of their discussion with be the point of view of each host. Marti works mostly with caregivers that are taking care of someone with dementia and Jackie mostly interacts with her autistic child. Stay tuned as we work through what it means to go through the journey in a healthy and happy way.
Visit World Changer Consulting at https://www.worldchangerconsulting.com/
Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
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Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala
Episode 3: How to Prioritize Self-Care Even When You Don't Have Time
Self-care is important because:
- The busier you are, the more important self-care becomes. ?Are you among these caregiver statistics?
2. CHRONIC Stress impacts our immune system - Listen in to see if you are affected by one of these 15 things.
How to prioritize self-care even when you don’t have time
1. Evaluate these 3 technology time suckers
- Make self-care non-negotiable. Hear how I did this in my CAR.
3. Evaluate your tolerance list for energy-draining areas.
Connect with us @ www.facebook.com/EmpoweredFamilyCaregiver, to continue the conversation.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button and share.
Get your FREE Never Be Overwhelmed Again: Quick-Start Guide to Empowerment and Calm here: http://bit.ly/byeoverwhelm
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Cynthia Thompson began caring for her husband six years ago. With the help of other family caregivers, she is currently in the process of compiling submitted journey's from dementia caregivers, in their own words, into a book. This book is intended to support other caregivers as well as to help family members, friends, co-workers and employers understand the journey of a dementia caregiver.
As opposed to a book written by one person's experiences, we are confident anyone who reads this book will find valuable information and will be able to relate to numerous submissions and will help others understand the journey of the caregivers.
The deadline for submissions is April 1, 2018 and the book will be available June 1, 2018. To submit your story, visit www.journeypublish.com.
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Marti Hannon from World Changer Consulting and Jackie Ann Schwabe, the Reluctant Ringmaster, from the Caregiving Circus continue their six part series on the Six Stages to a Meaningful Journey. The ladies will describe the stage, discuss the key coping strategies, stumbles, and steadies of the stage. Marti will continue telling her personal journey as it presents itself in stage 3.
The unique component of their discussion with be the point of view of each host. Marti works mostly with caregivers that are taking care of someone with dementia and Jackie mostly interacts with her autistic child. Stay tuned as we work through what it means to go through the journey in a healthy and happy way.
Visit World Changer Consulting at https://www.worldchangerconsulting.com/
Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
The Caregiving Years, Six Stages to a Meaningful Journey by Denise M. Brown
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The number of family caregivers in the U.S. varies from source to souce. Some count more than 90 million, some more than 60 million. Finding the right count can depend on how we define "family caregivers." Susan Rowe joins me to talk through this question: When counting family caregivers, who counts?
About Susan Rowe
After a career in IT and as a worship leader in the Methodist church, Susan Rowe joined Daughterhood at its inception in January 2015. As a young woman, she gained first-hand experience working as an aide in a nursing home run by the Little Sisters of the Poor and again as a care giver for her mother who suffered from dementia. Most recently, she's working toward completing her caregiver's consultant certification through caregiving.com. She brings this experience and her natural gift for empathy to bare in her current role as Daughterhood Circle Coordinator, where she works forming and supporting daughterhood circles and their group of awesome volunteer leaders from Florida to Los Angeles.
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We need help caring for a family members with dementia. Most important, we need help who understands the disease process and knows how to manage the challenging behaviors. How do we find these trained individuals? How we train the help we need?
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us for a conversation about training the help we need.
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Episode 1: 5 Best Caregiver Tips For Getting Family To Help with Tandy Elisala
Do you struggle to get the family to help you take care of a loved one? One of the biggest challenges I hear from family caregivers is how to get family members to help them in some capacity or another.
Sometimes, people think we are doing such a great job and don’t complain so we must not need help. Other times, family or friends are busy living their lives and don’t stop to think about your needs. One of the biggest things we can do for ourselves is to ask for help! Don’t wait until you are overwhelmed and exhausted to ask for help. Here are my 5 Best Caregiver Tips For Getting Family To Help (so you can stress less):
Tip #1: Be prepared with a list of ways others can support you. Listen in for a list of specific tasks others can do to get your juices flowing.
Tip #2: Choose who to ask for help and what to ask them for based on their time, preferences, abilities and strengths.
Tip #3: Be specific when asking for help. Listen in for my communication tips on how to be specific with your ask.
Tip #4: Take a “no” answer as a no for now.
Tip #5: Have a list of 3-5 emergency contacts. Listen in for details of this critical tip to help ease caregiver stress and overwhelm for both the caregiver and care recipient.
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, comment and engage on our episodes. www.facebook.com/EmpoweredFamilyCaregiver
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Get your Daily Dose of Hope here: >> http://bit.ly/ddohope
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Ep2: 3 Ways to Set Healthy Boundaries and 7 Ways to Graciously Say No with Tandy Elisala
Tune in to hear my caregiving and parenting boundaries stories and how I was able to shift my hoarding parents' habits and reclaim my space and help my kids P.L.A.N better.
Three boundary tips:
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Respect yourself enough to set boundaries that are true to you.
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Stop taking on responsibility for others.
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Ask for what you need. Be specific. Listen to episode 2 for my 3 step process to rally your support system.
7 Gracious Ways to Say NO: I’m unable to commit to that right now. I really appreciate you asking me, however, I’m unable to do xxx.I’m going to say no for now. I’ll let you know if that changes.I’m honored that you would ask me, however, my answer is no.I understand you really need my help but I’m just not able to say yes to that.I appreciate you thinking of me but I'm not the right person for this. This isn't in line with my goals or priorities right now. Tune in for a few extra ways to reframe a no!
Connect with our Facebook page @EmpoweredFamilyCaregiver where we continue the conversation. www.facebook.com/EmpoweredFamilyCaregiver
Get your Daily Dose of Hope for Inspiration and Empowerment here:>> http://bit.ly/ddohope
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A caregiving experience that begins during the teen-age years will share your life. For Marti Hannon, her experience of caring for her mom shaped her career choices. She now helps those who care.
About Marti
Marti Hannon has a passion to educate, equip, empower and encourage families, and professional care teams in taking care of themselves while serving others. She started her caregiving journey as a 16 year old providing care to a mother dying of cancer. She went on to carry out numerous personal and professional caregiving roles over the past 25 years. Her primary focus now is to provide coaching and educational services to nuture families. She is constantly growing in learning how to live out self care practices, compassionate communication, and showing grace to herself and others.
Marti loves adventures, challenging and encouraging others to grow, and being creative. Professionally, she is a Certified Therapeutic Recreational Specialist, Certified Caregiving Consultant Educator, Certified Ageless Grace Educator, and a Certified Nursing Assistant.
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Listen in as I share a bit about who I am and why I created this podcast.
The Empowered Family Caregiver Podcast is a combination of an Interview-Based and Topic-based show. We’ll address hot topics, common issues family caregivers face and will periodically feature guest experts including current and former caregivers, aging experts, and more. We’ll release episodes weekly. Most episodes will be between 15-20 minutes long because you are busy enough with daily responsibilities. I want to ensure you get maximum value for your time.
This podcast is about supporting sandwiched caregivers in their journey, helping you know you aren’t alone, empowering you to be a voice for your loved one, helping you cultivate self-care and providing resources and tools to ease caregiver stress because daily caregiving responsibilities are tough enough… taking care of yourself doesn’t have to be. This podcast is different because I bring the unique perspective of a full-time family caregiver AND experience as a care receiver. Having been on both sides of the caregiving spectrum and raising 3 kids as a single mom, I understand the challenges you face. Each episode delivers specific nuggets you can immediately implement.
Thank you for listening! I’m so grateful you are here. it’s a pleasure to virtually meet you. Until next time… stay empowered and calm!
Follow/connect with our facebook page @EmpoweredFamilyCaregiver, comment and engage on our episodes.
I invite you to join my private FB group @ www.facebook.com/groups/EmpoweredFamilyCaregiver
Subscribe to this podcast and leave a review! If you find value in this podcast and the message we’re trying to spread at Empowered Family Caregiver, then click the subscribe button, share with family and friends, and give my show a positive review.
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Marti Hannon from World Changer Consulting and Jackie Ann Schwabe, the Reluctant Ringmaster, from the Caregiving Cirucs continue their six part series on the Six Stages to a Meaningful Journey. The ladies will describe the second stage, Freshman Caregiver, discuss the key coping strategies, stumbles, and steadies of the stage.
The unique component of their discussion with be the point of view of each host. Marti works mostly with caregivers that are taking care of someone with dementia and Jackie mostly interacts with her autistic child. Stay tuned as we work through what it means to go through the journey in a healthy and happy way.
Visit World Changer Consulting at https://www.worldchangerconsulting.com/
Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
The Caregiving Years, Six Stages to a Meaningful Journey by Denise M. Brown
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Denise and her guests discuss the upcoming National Caregiving Conference and how they're doing.
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What are top challenges faced by family caregivers? Denise and her guest, Warren Hebert, share their thoughts about what makes a caregiving experience difficult.
Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations , health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer’s Institute, will join Sharon Hall to how to manage when a caree lives with a family unit which includes children. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions @ yahoo.com prior to the show.
CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer’s disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Description:
Marti Hannon from World Changer Consulting and Jackie Ann Schwabe, the Reluctant Ringmaster, from the Caregiving Cirucs join Shakina Cooley the founder of the https://sheshesaysblog.wordpress.com blog. Her blog focuses on relationships and selfcare while raising two little dudes after a divorce.
You will be surprised at all the parrallels to 'standard' caregiving and 'parent' caregiving in this great episode.
Visit https://sheshesaysblog.wordpress.com for more great advice from Shakina.
Visit World Changer Consulting at https://www.worldchangerconsulting.com/
Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
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Tonight, we connect with Lillian Lake, who cared for her mother, grandmother and cousin and currently cares for her husband.
In addition, Lillie Fuller and Cathy Jones will tell us about the chats on CareGiving.com.
About Lillian
Lillian is a Community Visionary. Besides defending her daily jolt of java, she staunchly advocates for several important political and social causes all rooted in an ideal of finding compassionate responses. She started her own business connecting farmers with communities and working on food policy. Through this work, she learned about human trafficking and soon chose to educate on human trafficking. In the mix she has raised a family and filled the role of caregiver to her mom when the “sandwich generation” was more of an idea, rather than the norm. A couple of months after her mom’s passing, she helped as caregiver for her husband’s grandmother. A few years later, she left her business, community, and family to take care of her cousin who was dying from cancer. Today she is caregiver to her spouse.
Some people dub her “caregiver to the world”. She claims she is an accidental caregiver. What she’s learned is the power of compassion which she emphasizes in her organizing, writing, and presenting.
Currently Lillian writes a weekly newspaper column, a weekly blog, and is writing a book expressing her caregiver roles through the power of angels, as well as including interviews of other caregivers. Lillian serves on several community boards and task forces. Over a cup of coffee or glass of wine, she often will wax into issues of human rights and food. She enjoys reading, running, Pilates and visiting museums. Check out her website at lillianlake.com.
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Marti Hannon from World Changer Consulting and Jackie Ann Schwabe, the Reluctant Ringmaster, from the Caregiving Cirucs start their six part series on the Six Stages to a Meaningful Journey. The ladies will describe the stage, discuss the key coping strategies, stumbles, and steadies of the stage. The Caregiving Years, Six Stages to a Meaningful Journey was developed and written by Denise M. Brown of CareGiving.com.
The unique component of their discussion with be the point of view of each host. Marti works mostly with caregivers that are taking care of someone with dementia and Jackie mostly interacts with her autistic child. Stay tuned as we work through what it means to go through the journey in a healthy and happy way.
(Note: During the show, the hosts discuss choice and the choice not to be a family caregiver. Responsibly making the choice not to care also means putting in place a plan so the caree receives the care he/she needs. Contact your local Area Agency on Aging and dissease-specific organizations, like the Alzheimer's Association, for help putting that plan in place.)
Visit World Changer Consulting at https://www.worldchangerconsulting.com/
Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
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In today's episode, Michelle Seitzer, who cares for her daughter, drops by to share an update. In addition, Lillie Fuller and Cathy Jones will tell us about the chats on CareGiving.com.
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Marti Hannon and Jackie Ann Schwabe, the Reluctant Ringmaster, discuss getting in the mood. As natural wellness advocates, Marti and Jackie discuss what love potions can be made to help you provide calming, healing support for your caree. They give a few tips for you, too, which hopefully will help you find the time to take a bath and shave your legs.
Want to continue to support our show. Please visit our patreon site at https://www.patreon.com/jackieschwabe - any support is appreciated.
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Sometimes, we wait for the crisis to think about respite care.
What if planning for a break became part of our routine? Perhaps you can take a break only once a year for a few days -- that's okay. Planning for and organizing whatever break you can manage can happen today.
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, helps us begin the planning and organizing process so we can take a break.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss a caree's obsession with eating. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
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The Global Caregiving Virtual Summit, a free event, will take place from January 20-26. More than 60 spakers from 17 countries will share their perspectives and stories about the caregiving experience. In addition, they'll share tools to help you cope and strategies to keep you going.
Kari Henley, Founder, Producer & Host of Age Without Borders, will share why she launched the Global Caregiving Summit and what she learned from the participating speakers.
To get your FREE Pass to the Summit click here: http://awbcaregiving.com
About Kari
Kari is a social entrepreneur and an "aging enthusiast," with decades of experience in startups, virtual content development, international tele-seminars, blogging for the Huffington Post, facilitating for corporate and private clients and private consulting to bring out the best in thought leaders. Kari has a Masters degree in psychology, masters coursework in Organizational leadership, and is passionate about the aging industry's global transformation.
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Jackie Schwabe is your host and the Reluctant Ringmaster of The Caregiving Circus Talk Show, part of the Caregiving Podcast Network.
The Caregiving Circus is a talk show that connects with the resources, tools and support you need to participate in the Greatest Show on Earth -- your life. Join Jackie and her guests as they share tips on how to manage your own three ring circus.
Mari Hannon from World Changer Consulting join us today to share how we can play with purpose. Marti, C.T.R.S, C.C.C., is the founder of World Changer Consulting. Marti is specialized in using games, activities, and leisure interests to help caregivers connect to the heart and soul of their caree while working on engagement and memory functioning.
Marti holds certifications as a Certified Therapeutic Recreational Specialist, Certified Caregiving Consulting, and Certified Nursing Assistant.
She began her journey as a small child visiting friends in nursing homes. At 17 she was the primary caregiver to her mother battling with cancer. After her mother’s passing, she began her professional journey in various hospital setting as a nurse’s aide/patient care technician, and then transitioned into activities.
In 2015 Marti graduate with her degree as a Certified Therapeutic Recreational Specialist. She first applied her C.T.R.S. credentials in psychiatric centers and in healthcare settings serving individuals with memory loss.
She is actively involved in community outreach and partnership, and has been a featured presenter at various conferences throughout the Midwest. She spreads a message of love, joy, adaptability and connectedness in every interaction.
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As we begin the New Year, Denise shares 18 wishes for you to carry you through your moments, days, weeks, months and year.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss keeping youself safe and sane. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
I hope you enjoy our twelve podcast, Best. We worry this may be the last Christmas with everyone here so we put pressure on ourselves to make it the best. How do we manage the expectation around best?
For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
Resources Webinar: How to be Your Best During the WorstWebinar: The Art of Being During Caregiving
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I hope you enjoy our eleventh podcast, Possible. During the holidays, it seems anything is possible. But what's possible during a caregiving experience?
For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
Additional Resources Webinar: Using Caregiving to Help Your CareerWebinar: Creating Your Future
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I hope you enjoy our tenth podcast, When. When I ask for help, will I be okay with what happens next?
For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
Additional Resources Webinar: How to Ask for HelpWebinar: Telling Your Truth to Build Your TeamWebinar: Who Am I, Under All This Caregiving?
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For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. I hope you enjoy our ninth podcast, Behind. Caregiving can seem to put us in behind in what we want from life. How do we catch up?
Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
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I hope you enjoy our eighth podcast, Choice. When we see another’s choice, how we do avoid doubting ours?
Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
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For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. I hope you enjoy our sixth podcast, Drip. How do you keep going when every day feels like Monday?
Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
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For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. I hope you enjoy our fifth podcast, Public. Caregiving feel like such a private experience. When you're out in public, how much do you share?
Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
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For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. I hope you enjoy our fourth podcast, Home. Caregiving changes so much, including how our home feels to us. How do we manage when we feel we’ve lost what once was our home?
Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
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For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. I hope you enjoy our third podcast, Rejected. Just like the misfit toys, we can feel shipped off to an island, left alone to manage during caregiving. How do we cope with the rejection?
Be sure to visit our Holiday Survival Guide for more podcasts, resources and comforts. For more comforting words, check out my “Take Comfort” books.
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For 12 days, beginning December 11, we’ll share a short and sweet podcast to bring you holiday comfort. I hope you enjoy our third podcast, Bites. How do you avoid the holiday’s temptation, especially when the holidays bring up what’s difficult?
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We wish everyone got along. The reality is, though, that our family may be divided because of disagreements about caregiving decisions or in denial because of a caregiving situation.
In this podcast, I share some tips to help you manage the family fracture during the holidays.
Additional Resources Podcast: Finding Your Holiday SpiritWebinar: Healing the Life-Long Family RiftsYour Greatest Skill: You Know HowThe Fracture Becomes the Routine10 Ways to Get Even with the No-Help Sibling
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When we run out of the holiday spirit, how do we get more?
Our quick podcast is part of our special series, "The 12 Podcasts of a Caregiving Christmas."
For more comforting words, check out Denise's "Take Comfort" books.
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When it's all about counting in order to get, how do we stay in for the count?
Our quick podcast is part of our special series, "The 12 Podcasts of a Caregiving Christmas."
For more comforting words, check out Denise's "Take Comfort" books.
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Shirley Riga, who cared for her daughter, joins us to talk about managing grief during the holidays.
Shirley’s life changed dramatically in 1981 when her youngest daughter was born with two pediatric liver diseases. Shirley spent half of her life as the main caregiver, advocate, supporter and cheerleader for her daughter. For her own sanity, she continually searched for tools that she could use to help her and her family survive and thrive. In 2016, she was able to bring these experiences together into a self-help memoir entitled Tools for the Exceptional Parent of a Chronically-Ill Child. At present, Shirley is a Feel the Fear and Do It Anyway® trainer in the Boston area teaching workshops and classes on going beyond fear to live a happier and more fulfilling life. She is a hospice singer and a practitioner of Psychosynthesis, a holistic form of counseling. A sought-after speaker in the caregiving community, Shirley facilitates a caregiver support group and is currently seeking certification as a Spiritual Director.
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Meet the winner of our Second Annual National Caregiving Technology and Product Pitch Event: Quikiks™. Steve Kaufman, Founder and CEO of Hands-Free LLC, joins us to talk about his inspiration to create Quikiks™, the first fully supportive, totally HANDS-FREE shoes! Now you can easily step into your shoes and have them securely fasten without the need to bend over or use your hands!
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Ellen Rogin, our wealthness expert, helps us meet 2018 with goals to ensure we make the most of 2018.
Ellen Rogin wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business. She lives in the Chicago area with her husband, and they have two Gen Z kids who by all accounts are turning out to be financially responsible adults.
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Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to talk about how we can adjust our holiday traditions to better meet our caree's needs as well as our own.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to surviving the holidays. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Scott Williams, Vice President, Head of Global Patient Advocacy and Strategic Partnerships at EMD Serono, join us to talk about the companys' new initiative, Embracing Carers.
About Scott
Scott is actively sought out as a speaker and resource on health issues by the media, policymakers, public health professionals, physician key thought leaders, and patient advocacy leaders. He has been featured as an expert in the New York Times, CNN, MSNBC, Washington Post, Baltimore Times, Medicare Reimbursement Weekly, Chicago Tribune, National Public Radio, St. Petersburg Times, Inside CMS, Dallas Morning News, Seattle Post-Intelligencer, among others.
Scott has been a peer reviewer and contributing author to the American Journal of Men’s Health, a SAGE Publication. He also founded the Men’s Health Caucus within the American Public Health Association. Scott is the former President of the Sigma Phi Epsilon Alumni Volunteer Corporation, and former member of the Moravian College Alumni Association Board.
Prior to joining EMD Serono, Scott was Managing Director, Strategic Partnerships at the American Cancer Society Cancer Action Network (ACS CAN), Senior Vice President at Men’s Health Network (MHN), Public Relations Manager for sanofi pasteur in Swiftwater, PA, and Senior Analyst of Strategic Services at PharmaStrat, Inc. based in Flemington, NJ. Scott received his BA in Political Science with Honors and a minor in Business Management from Moravian College in Bethlehem, PA. Scott also has a Master’s in Public Administration (MPA) from American University in Washington, DC.
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Gael Chiarella Alba joins Denise to talk about her presentations ("Keep YOU in the Circle of Care" and "A Caregivers Voice") she'll deliver at the National Caregiving Conference. You can connect with Gael at the Second Annual National Caregiving Conference, which happens November 10 and 11 at the Chicago Marriott O'Hare. Join us in Chicago or vritually.
About Gael
Author Gael Chiarella Alba E-RYT, C-IAYT, CCC is best known as a meditation teacher and yoga therapist. Gael experienced the joy of family throughout childhood in a Brooklyn walkup with her beloved grandparents living just steps away. She also witnessed enormous everyday stress in both her Grandmother and her Mother as they cared for their spouses through many years of illness, leading her to research the relationship between caring for self and caring for others through psychology, spirituality and the healing arts. In mid-life, her holistic toolbox became the container for managing the traumatic injury care of her own adult son. Her path as a therapist intersected over and over again with her own experience of how we return to balance in caregiving, and ultimately this brought her to the question of how we use our voice. As she walked this path herself, she turned her direction toward Leadership Development for Caregivers. As founder of The Yokibics Institute, she developed mindful trainings for individuals and teams through SelfCareOasis.com. With a mind, body, spirit embrace, those who care for others are given a framework for engaging this essential role with a peaceful, present, and embodied approach.
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Join Denise and Lisa Riggi for a 30-minute check-in show. Call us during our live show and let us know how you're doing. How will you spend Halloween? Will you join us in Chicago for the Second Annual National Caregiving Conference? How are you feeling about the upcoming holiday season?
When you call in, you could win either a in-person or virtual registration to NCC17.
Thanks to our show's sponsor, Jibo, which is available for order!
About our co-host Lisa Riggi:
Lisa was raised in a caregiving home since birth. Her maternal grandmother lived with her parents since their wedding and she witnessed them care for several family members either in their home or at a facility. They became her carees in 2006 when they moved in with Lisa and her family.
Lisa experienced a “Is this all there is in life?” moment after her dad passed away in 2014. Struggling to keep her focus on her home-based business, she Googled caregiving support and found Caregiving.com and Denise Brown. She immediately connected with Denise and completed the Certified Caregiving Consultant and Certified Caregiving Educator training classes. She has opened her caregiving consultant business, The Serene Harbor, which offers caregivers and their families a place of peace and safety as they navigate their caregiving journey. She also presents Denise Brown's book, The Caregiving Years: Six Stages to a Meaningful Journey.
Lisa's mission is to help as many family caregivers know that there is support and help available. She only wishes she found Denise and Caregiving.com sooner.
Currently, Lisa cares for her elderly mother, an adult daughter who suffers from Fibromyalgia and cardiac issues and her adult son who has Type 1 diabetes.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss the stigma of dementia. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Christopher-Charles Chaney joins us to share how he healed after caregiving and how he helps others heal during caregiving. You can connect with Christopher at the Second Annual National Caregiving Conference, which happens November 10 and 11 at the Chicago Marriott O'Hare. Join us in Chicago or vritually.
About Christopher
Christopher-Charles Chaney, family caregiving expert, national speaker, award-winning author, and CEO of Family CareLIVING, knows firsthand the benefits and challenges of being a family caregiver.
Christopher spent years caring for his mother, Mama Peaches, who passed in 2016 after suffering from dementia. His love and struggles as a caregiver inspired him to journal his experiences on Facebook in 2015. The popularity of Mama Peaches Facebook postings created a social media frenzy and the subsequent release of his award-winning book, Mama Peaches and Me.
Through his caregiving book series, radio talk show appearances, speaking engagements, and growing Mama Peaches Facebook group, Christopher provides essential information to family caregivers. Family CareLIVING, a division of the Christopher-Charles Chaney, Inc, offers CEUs for healthcare professionals.
His company also offers caregiving plays and caregiving art exhibitions designed to inspire community dialogue around the growing public health crisis of family caregiving. His resume includes working with the federal government for over twenty years, as well as working with local, state and national non-profit organizations to increase the awareness of family caregiving.
Being widely sought after by organizations and media outlets, Christopher is quickly becoming a recognizable face for family caregiving.
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Breeda Miller joins us to discuss her presentation, "Finding Humor and Grace in the Caregiver Sandwich," at the Second Annual National Caregiving Conference.
Join us at the conference virtually or in person on November 10 and 11 in Chicago at the Chicago Marriott O'Hare, 8535 W. Higgins.
Breeda Miller has a passion for helping caregivers and others deal with the stress in their lives and to use humor as coping strategy. Breeda helps people find ways to care for themselves so that they can better care for others. Finding your own humor and grace can make all the difference. In addition to her work as a professional speaker, Breeda works for Michigan Medicine at the University of Michigan where she produces major events for the Medical School and Hospitals. She is a graduate of the University of Detroit and has worked in Detroit radio and television for many years. She has appeared on The Moth Story Hour on NPR. But her most important and rewarding role has been caring for her three children – all adopted, two with special needs and her mother – whom she cared for right up to the end of her life.
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Tobin Ward, a market research manager with Genworth, joins Denise to discuss the focus groups she'll hold at the Second Annual National Caregiving Conference. You can join us at the conference virtually or in person on November 10 and 11 in Chicago at the Chicago Marriott O’Hare, 8535 W. Higgins.
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If our money could talk, what would it tell us? Ellen Rogin, our wealthness expert, talks it out with us.
About Ellen
Ellen Rogin, CPA, CFP® , New York Times bestselling author and Abundance Activist® is a nationally-known expert on living a life of success and prosperity.
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a Certified Financial Planner professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy. She is the co-author of New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.”
Send in a voice message: https://anchor.fm/caring-conversations/message
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to share ways we can manage our caregiving stress.
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Priya Soni will join us to talk about her presentation "Making Empowering Care Choices with Long Term Care" at the Second Annual National Caregiving Conference.
Join us at the conference virtually or in person on November 10 and 11 in Chicago at the Chicago Marriott O'Hare, 8535 W. Higgins.
Priya is the Founder and CEO of The Caregiving Effect LLC, a platform and service launched to create a space for adults who have cared for their parent(s)/parental figures due to aging, illness and/or disability. She has developed a mission to build a movement of mentors, caregiver visionaries, who are utilizing their stories as a tool to help the many who will or are walking the path of caregiving. As a coach and certified caregiving consultant, she aids adults in turning the unexpected role of being a caregiver into a role of a lifetime—The Caregiving Effect- a term she coined.
Priya has earned a B.S. in Theatre and Psychology from Towson University and M.A. in Disability Studies from City University of New York's School of Professional Studies. She has worked in a variety of settings including working with women who have substance abuse; women who have been affected by domestic violence; and with children and adults with disabilities. One of her greatest passions is creating community. Reach out to Priya at www.priyasoni.net.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss handling FTD with kids and family. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Katherine Forrester Schneewind, CLU®, ChFC®, Wealth Management Advisor with Forrester & Associates in Eden Prairie, MN, joins us to discuss the financial impact of caregiving.
Many family caregivers today have to make the decision to leave the workplace temporarily or permanently to look after a family member or friend. According to Northwestern Mutual's C.A.R.E. 2017 study, 7 in 10 future caregivers expect to incur costs, but 60% percent aren't equipped to handle the financial aspects of caregiving. Before resigning, it's important to evaluate how stepping down to care for a loved one affects both short- and long-term financial goals.
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Lauren Milligan will join us to talk about her presentation "Be Bold in Your Career Advancement!," at the Second Annual National Caregiving Conference.
Join us at the conference virtually or in person on November 10 and 11 in Chicago at the Chicago Marriott O'Hare, 8535 W. Higgins.
Lauren has worked with thousands of professionals in all stages of career advancement for the past 15 years. She has developed tools and exercises that have enabled emerging leaders to take that next crucial career step, and has empowered established leaders to reach previously insurmountable goals. Simply put, when it comes to getting your next job, Lauren knows what you need to do to get there.
If you’re looking to land your next job, campaign for a promotion, or make a career transition, Lauren is your best secret weapon. Lauren’s clients come to her for resume development, LinkedIn profile creation, networking and interview skills coaching, and crafting a multi-tier job search campaign. She’s written so many resumes, she dreams in bullet points!
In addition to her coaching practice, Lauren teaches a multitude of workshops and classes at College of DuPage, Harper College, workNet, IDES and dozens of business and employment support groups throughout Chicagoland. She has contributed to hundreds of career-related features on WGN Morning News, ABC News, WLS and WGN radio and in the Wall Street Journal, CNN, Washington Post and dozens of other media outlets.
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Deb Kelsey-Davis, RN, MHSA and Colleen Kavanaugh, CCC, CDCS, CDP will discuss their National Caregiving Conference session, "Think About It. And Change Everything with Grit, Grace and Gratitude." During their session, they'll help us understand how cultivating Gratitude and uncovering Grace generates the Grit needed to face the challenging circumstances of family caregiving.
Join us for the Second Annual National Caregiving Conference in person or virtually on November 10 and 11 in Chicago.
About Deb and Colleen
Deb and Colleen measure their caregiving years in decades and agree that they were not prepared for the emotions, stress, and life-changing circumstances that went with the job. They discovered their resilience came from the similar characteristics of tenacity, tenderness, and acceptance. Deb and Colleen now combine their diverse sets of professional and personal caregiving experience to help others realize the tools to get through any situation intrinsically exist within each of us through their program, My Grit, Grace + Gratitude.
Deb is an author, national speaker, and caregiver to her parents. With caregiving as the most important role of her lifetime, her mission is to focus on what really matters. She launched Soul2Soul Solutions with Nourish™, a faith-based program for family caregivers. Then, co-founded Sagacity.Care™ to meet consumer demands for credible, personalized health content.
Colleen cared for her parents for a decade, and she now works to empower family caregivers across the country via one-on-one consulting, national speaking, podcasting, and blogging. Specializing in dementia care and Eckhart Tolle's teachings on presence, Colleen, brings a unique perspective to clients where practicality meets spirituality.
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When a family member receives a diagnosis, you may think that there’s nothing you can do. You can do much when you and your caree participate in a clinical trial.
We’ve partnered with antidote.me to offer you an easy way to search for clinical trials in your area. Antidote has built a smart, easy way to organize the world’s research information while transforming the way people and researchers connect. You gain access to the latest medical developments and world-class care. Researchers complete their studies even faster. And medical breakthroughs are accelerated for everyone.
Grace McElroy, head of partnerships and distribution at Antidote, will join us to share how the company makes it easier to find a clinical trial in your community. To search for a clinical trial, visit our clinical trials page.
Antidote is a digital health company committed to advancing medical research by transforming the way patients connect to it. Since joining Antidote, Grace and the partnerships team have built a network of 200 non-profit organizations, patient advocates, and health portals. Before Antidote, Grace led partnerships at TEDMED, the health and medicine edition of the world-famous TED conference.
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What can a life after caregiving look like?
Colleen Kavanaugh, who cared for her parents, joins us to talk her National Caregiving Conference panel discussion, Your After Life: Bolder Than Before.
About Colleen
After caring for her parents for a decade, Colleen tried to go back to her old life only to realize how deeply caregiving changed her. She now works alongside family caregivers across the country via one-on-one consulting, national speaking, podcasting, and blogging to empower them to love, prepare, and thrive.
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How do we manage our worries about money without those worries running away with our money? Ellen Rogin, our wealthness expert, will share ways we can circle the worry wagon.
About Ellen
Ellen Rogin, CPA, CFP® , New York Times bestselling author and Abundance Activist® is a nationally-known expert on living a life of success and prosperity.
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a Certified Financial Planner professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy. She is the co-author of New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.”
Send in a voice message: https://anchor.fm/caring-conversations/message
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to share information to help you prepare for a disaster when you care for a family member with dementia.
Send in a voice message: https://anchor.fm/caring-conversations/message
Carol Papini will join us to talk about her presentation at the Second Annual National Caregiving Conference.
Join us at the conference virtually or in person on November 10 and 11 in Chicago at the Chicago Marriott O'Hare, 8535 W. Higgins.
About Carol
Carol has been driving all over the country while caring for her husband, Bill, who suffered a massive left-brain stroke in 2011. She is an Intuitive Energy Healer and a Health and Wellness Mentor who assists family caregivers & caregivees release the feeling of being stuck and imprisoned within their mind, body and soul.
Send in a voice message: https://anchor.fm/caring-conversations/message
Andrew Koch will join us to talk about his three presentations at the Second Annual National Caregiving Conference.
Join us at the conference virtually or in person on November 10 and 11 in Chicago at the Chicago Marriott O'Hare, 8535 W. Higgins. Our early-bird registration rate ends August 31.
About Andrew
Andrew is a graduate student at Naropa University studying Mindfulness-Based Transpersonal Counseling in Boulder, Colorado. He specializes in supporting student caregivers. His mission is to help support the physical, functional, energetic, emotional, social, intellectual, spiritual, and transpersonal wellness of caregivers and their carees. Andrew has been a caregiving educator for four years. He has a special interest in supporting individuals with Alzheimer’s Disease and Progressive Motor Neuron Diseases.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss how to how to break things down into smaller tasks to get FTDers motivated and less apathetic. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Tina Ketchie Stearns and I will discuss It's About How You LIVE! Summit which features conversations about advance care planning, care giving, palliative care, hospice care and grief education
Send in a voice message: https://anchor.fm/caring-conversations/message
We’re going bold in anticipation of our Second Annual National Caregiving Conference! This year’s conference theme is our Bold Moments: Before, During, After. Elizabeth Miller, who cares for her mom, shares her bold moment with us. You can connect with Elizabeth at National Caregiving Conference by attending her sessions, Be Bold With Your Time and Be Loud & Proud about Your Caregiving Business.
About Elizabeth
Elizabeth started and continues to grow her business, Happy Healthy Caregiver, while working full-time as an IT Product Manager, raising two active teenagers with her husband, and caregiving for her mom. Her professional expertise in strategic planning, business process improvement, customer experience, and iterative software development has helped her create processes and systems for her caregiving business. Her business experiences through Happy Healthy Caregiver and the friendships with other caregiving entrepreneurs has inspired her to launch her membership community called ‘Happy Healthy Business’. This online community offers a well-organized business building training library and a forum for entrepreneurs and business professionals who desire a happy and healthy business. Elizabeth also offers 1-on-1 consulting services to help create a personalized marketing plan.
Send in a voice message: https://anchor.fm/caring-conversations/message
How do we manage our worries about money without those worries running away with our money? Ellen Rogin, our wealthness expert, will share ways we can circle the worry wagon.
About Ellen
Ellen Rogin, CPA, CFP® , New York Times bestselling author and Abundance Activist® is a nationally-known expert on living a life of success and prosperity.
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a CERTIFIED FINANCIAL PLANNERTM professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy. Co-author of New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.”
Send in a voice message: https://anchor.fm/caring-conversations/message
Heather Resnick, Caregiver Specialist with North Shore Senior Center, and Chelsea Hawkins, Countywide Caregiver Coordinator, AgeOptions. will share information about programs which can help you get a break.
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We begin your week with stories and solutions.
Today, Denise shares updates about contests to help you get to our Second Annual National Caregiving Conference and reflects on CareGiving.com's 21st birthday.
Send in a voice message: https://anchor.fm/caring-conversations/message
Rebekah Wilson will join Sharon Hall to discuss expectations and emotions. They will discuss how to keep your FTDer involved and how to handle emotions like guilt from people who judge your caregiving. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Rebekah
Rebekah Wilson, MSW, is a dementia care specialist, trainer and aging care coach with fourteen years of experience in elder care services including hospice, home health care, assisted living, and care management. In these arenas, she has used her specialties in teaching, community outreach, marketing, and developing innovative strategies for providing comfort care for seniors and their care partners.
She has presented at local, state, and national conferences as a trainer on Alzheimer’s disease, Frontotemporal Dementia, Behavior Management, Navigating Transitions and other caregiving topics.
Send in a voice message: https://anchor.fm/caring-conversations/message
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins Denise to share how we can minimize our risk for developing Alzheimer's disease.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Lisa Riggi, who heads our NCC17 steering committee, joins us to talk about our Conference Keynote Contest. Voting begins July 25. Our Second Annual National Caregiving Conference happens November 10 and 11 at the Chicago Marriott O'Hare in Chicago.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Lisa Riggi, who heads our NCC17 steering committee, joins us to share updates about this year's conference. Our Second Annual National Caregiving Conference happens November 10 and 11 at the Chicago Marriott O'Hare in Chicago.
Send in a voice message: https://anchor.fm/caring-conversations/message
Ellen Rogin, co-author of the New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality” joins us to talk about greed. How do we maintain a healthy relationship without getting greedy? How do you cope with greedy family member's interested only in their inheritance?
About Ellen:
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a CERTIFIED FINANCIAL PLANNERTM professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy.
Send in a voice message: https://anchor.fm/caring-conversations/message
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to discuss the recently released report, 2017 Alzheimer's Disease Facts and Figures.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh, Carolyn Grant and Karen Bromberg joined me to share their perspectives about Medicaid and the proposed Senate health care bill which could cause deep cuts to the program.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
About Karen
Karen Bromberg is the founder of HelpYouThru, LLC, (www.helpyouthru.com). Her inspiration in developing this on-line resource to support family caregivers and their loved ones came out of her experience with caring for her parents in the aftermath of Hurricane Sandy back in 2012. Karen has been a practicing allied health care professional for over 25 years, as well as a certified Yoga instructor. Recently, she became a certified caregiving consultant and looks forward to working with caregivers to help brainstorm solutions to their caregiver challenges.
Send in a voice message: https://anchor.fm/caring-conversations/message
Rebekah Wilson will join Sharon Hall to discuss the hypers--a caree's hyper sexuality, orality, OCD, or as Sharon calls them, the "icky parts" of caring for a family member with FTD. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Rebekah
Rebekah Wilson, MSW, is a dementia care specialist, trainer and aging care coach with fourteen years of experience in elder care services including hospice, home health care, assisted living, and care management. In these arenas, she has used her specialties in teaching, community outreach, marketing, and developing innovative strategies for providing comfort care for seniors and their care partners.
She serves as a dementia care coach mentoring care partners in developing individualized non-pharmacological interventions and innovative care solutions.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Today, we'll talk about managing the high alert of caregiving.
Colleen Kavanaugh will join me to share their perspectives on a caregiving situation. Today, we're discussing the idea of Option B, our default when Option A (the life we want) disappears.
About Colleen and Carolyn
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Rebekah Wilson will join Sharon Hall to share resources and discuss how to manage a FTD diagnosis. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Rebekah
Rebekah Wilson, MSW, is a dementia care specialist, trainer and aging care coach with fourteen years of experience in elder care services including hospice, home health care, assisted living, and care management. In these arenas, she has used her specialties in teaching, community outreach, marketing, and developing innovative strategies for providing comfort care for seniors and their care partners.
She has presented at local, state, and national conferences as a trainer on Alzheimer’s disease, Frontotemporal Dementia, Behavior Management, Navigating Transitions and other caregiving topics. She serves as a dementia care coach mentoring care partners in developing individualized non-pharmacological interventions and innovative care solutions.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh will join me to share their perspectives on a caregiving situation. Today, we're discussing the idea of Option B, our default when Option A (the life we want) disappears.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation. Today, we're discussing the idea of Option B, our default when Option A (the life we want) disappears.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
When there's not enough, how do you stop the panic?
Ellen Rogin, our wealthness expert, will share how we move from panic to plan.
Send in a voice message: https://anchor.fm/caring-conversations/message
Penny Rose Haddon joins Denise to share how she went from blogging about caring for her mom to publishing a book, An Insurance Policy for the Big One: My Mom, Her Mind and Me, about her experiences.
About An Insurance Policy for the Big One: My Mom, Her Mind and Me
"We went to parks, volunteered at a pet store, shopped, took walks," writes Penny Rose Haddon about the summer after her mom's diagnosis with dementia. "Once in a while, she would nonchalantly peer around the front seat of the car and say to me, 'And are your parents still alive?' She still carried a purse, wallet, and checkbook, wore her diamond and ruby rings, sported gold chains. The veneer was cracking but it was manageable."
In her book, Penny writes about what happened after that summer: Distrust, anger and resistance. Penny shares the story of caring for her mom using song lyrics and pop culture references to make sense of her mom's descent into dementia. Through Penny's writing, we see what day after day is like with dementia while witnessing the resilience of two women determined to make the best of it.
You can download Penny's Kindle book, An Insurance Policy for the Big One: My Mom, Her Mind and Me, for free beginning on May 15, 2017, and ending on May 19, 2017.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation. Today, we're discussing the idea of Option B, our default when Option A (the life we want) disappears.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
“Acute shortages of home health aides and nursing assistants are cropping up across the country, threatening care for people with serious disabilities and vulnerable older adults,” writes Judith Graham in her recent Washington Post article, The disabled and the elderly are facing a big problem: Not enough aides.
Let’s talk about how hard it has been for you to find and hire quality help during our live call-in talk show which airs on Sunday, April 30 at 8 p.m. ET (7 p.m. CT, 6 p.m. MT, 5 p.m. PT). Call during our live show at (646) 652-4944 to share your thoughts and experiences. I’m joined on Sunday by my co-host Lisa (@LisaRiggi), who cares for her mom, her daughter and her son, joined me as our show’s co-host.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss how to cope with your caree's annoying behaviors. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
How do you work through your caregiving situations at work? Geri Lynn Baumblatt, Executive Director of Patient Engagement at Emmi Solutions, will share her perspectives on how caregiving affects the workplace, drawing on her experiences as she cared for her dad and now cares for her mom.
Geri will also share her perspectives as a panelist at our Caregiving and the Workplace Summit on June 2 in Chicago. Register to join us in person or virtually.
About Geri
Geri Lynn Baumblatt, MA is the Executive Director of Patient Engagement at Emmi Solutions, which produces interactive programs and calls to empower, engage and educate patients and family caregivers. She regularly speaks at patient experience, health literacy, shared decision making, and patient advocate conferences and panels for organizations like AHRQ, The Institute for Healthcare Advancement, Stanford Medicine X, the Society for Medical Decision Making, the Cleveland Clinic, the Beryl Institute, Duke, the Brookings Institute, the ONC, and the Center for Plain Language. She is on the editorial board for the Journal of Patient Experience, a regular contributor to the Association for Patient Experience, hosts an annual Health Literacy blog series, and is an advisor for Roobrik and Helpsy Health.
Send in a voice message: https://anchor.fm/caring-conversations/message
When your priorities shift because of a parent's cancer diagnosis, how do you keep your career a priority? Darien Hallagan shares how he shifted priorities and disrupted both is career and his caregiving experience after his father's cancer diagnosis.
Darien also will share his perspectives during our Caregiving and the Workplace Summit on June 2 in Chicago. Be sure to join us in Chicago or virtually.
About Darien
Darien Hallagan, son of a business man and telemetry nurse professional, grandson of a lifelong engineer, musician and Romanian high ranking army general, graduated from University of Florida with a degree in Decision Information Sciences. From there he entered the Healthcare Information Technology space and performed a variety jobs including implementations, project management, sales and creation a sales processes within McKesson and 3M for 9 years. Understanding the importance of services, Darien moved to a Business Development Director role with Innovative Consulting Group and Health Data Specialists for 10+ years, two small healthcare informatics consulting firms where he attempted to move them from staff augmentation to clinical, financial and operational optimization services. Congruently, wanting to help his Chicago community be better tomorrow than it is today, Darien also chaired the Board of Directors of Oracle Theatre, Chicago’s first and only Public Access Theatre for 6+ years. During this time his never smoker father was diagnosed with stage IV, non-small cell lung cancer. Darien had to make the tough decision to quit his job twice in efforts to support his fathers’ worldwide search for cure. Now, Darien is leveraging his cancer and caregiving knowledge in pursuit of starting a cancer analytics company.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
How do we stay positive with our money when we feel like we don't have enough? Ellen Rogin, our wealthness expert, shares her thoughts.
About Ellen
Ellen Rogin, CPA, CFP® , New York Times bestselling author and Abundance Activist® is a nationally-known expert on living a life of success and prosperity.
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a Certified Financial Planner professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy.
Ellen is co-author of New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.”
Send in a voice message: https://anchor.fm/caring-conversations/message
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, will shares updates on public policy as it relates to Alzheimer's disease research.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh and Carolyn Grant will join me to share their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant, a Certified Caregiving Consultant, has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
We focus so much on giving that sometimes we don't see what we've received. Let's talk about those Random Acts of Kindness we've received.
We’d love to know your stories. Call us at (646) 652-4944 during our live Internet talk show on Sunday, March 26, at 8 p.m. ET (7 p.m. CT, 6 p.m. MT, 5 p.m. PT). Lisa (@LisaRiggi), who cares for her mom and her son, joins me as our show’s co-host.
And, be sure to join our 30-day RAOK campaign which begins April 1.
Send in a voice message: https://anchor.fm/caring-conversations/message
How do you make your career work when caregiving responsibilites creep into work? Diane Glittenberg will share her experiences working in retail as she cares for her mom.
Diane also will share her perspectives during our Caregiving and the Workplace Summit on June 2 in Chicago.
About Diane
Diane has more than 10 years of experience with caregiving. She took care of her father who had dementia and currently cares of her mother who has Lewy Body Dementia. After losing her position as a manager for a jewelry store, she decided to take a different direction for her career. She started working for Comfort Keepers in 2013. She is a Certified Dementia Practitioner and am now a Certified Caregiving Consultant. She studied vocal music at the University of Illinois and continues to sing in her church choir and at other events. She wants to use her experience as a musician and as a working family caregiver to help other family caregivers. She hopes to bring a little comfort to them and their carees through music by creating Personalized Music Playlists.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss how to cope with your caree's annoying behaviors. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
How do you keep your career on tract during an extended caregiving situation?
Linda Kunicki, community liaisonfor BrightStar Care® of Chicago and La Grange, shares on she kept her career moving forward as she cared for her mom from 1999 until 2015.
Linda also will share her perspectives during our Caregiving and the Workplace Summit on June 2 in Chicago.
About Linda
Linda is community liaisonfor BrightStar Care® of Chicago and La Grange. She has had numerous positions that have allowed her to service others from children to seniors. These positions have been with health care, senior residences, schools, and other business with progressively increased career responsibilities that have encompassed management, sales, marketing, human resources, training and development. She had done numerous public trainings on health like Fall Prevention, Safety, Dementia and Pet assisted activities and other general topics. On a personal level, Kunicki, was also a family caregiver through her mother’s aging process from 1999 to 2015.
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Today on Your Caregiving Journey helps you begin your day and your week with company and conversations.
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to their perspectives on a caregiving situation.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Holly, who cared for her husband, talks about the labels ("caregiver" and "widow")we receive and how we can change them to what works for us.
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Elizabeth Miller, who cares for her mom, joins us to share about her new talk show, All Things Caregiving.
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to solve a family caregiver's conundrum.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
We’re taking care of our family members, ensuring the receive the best care possible.
Do we need an agreement between us, our caree and other family members that spells out what that care looks like? Do we need a personal care agreement?
We’d love to know your thoughts. Call us at (646) 652-4944 during our live Internet talk show on Sunday, March 6, at 8 p.m. ET (7 p.m. CT, 6 p.m. MT, 5 p.m. PT). Lisa (@LisaRiggi), who cares for her mom and her son, joins me as our show’s co-host.
Send in a voice message: https://anchor.fm/caring-conversations/message
What's it like to juggle caregiving responsibilities and a career?
We begin a series which talks a closer look at how individuals care for a family member while keeping their career. In the debut podcast, Amy Goyer, AARP's Family and Caregiving expert who cares for her father, shares how she copes with the stresses of caregiving and traveling for her career.
We continue this conversation during our event, Caregiving and the Workplace Summit, which happens June 2 in Chicago.
About Amy
Amy Goyer, author of Juggling Life, Work and Caregiving, is a writer, speaker and consultant specializing in caregiving and family issues. She is a recognized media authority, including interviews for ABC, NBC, CBS, NPR, The New York Times, The Washington Post, People Magazine, The Doctors and numerous other media outlets. Amy serves as AARP's Family and Caregiving expert (www.aarp.org/amygoyer) and is a columnist on aarp.org, has a “Taking Care” YouTube web series with actionable tips for caregivers and she also vlogs (video blogs) about her personal caregiving experiences.
A passionate champion for all types of caregivers, Amy has been one her entire adult life. She was a long-distance caregiver for her grandparents and sister, Karen, and has been primary caregiver for her parents, Patricia, before she passed on in 2013, and Robert for many years. She is based in Arizona where she lives with her Dad, who is 93 and has Alzheimer’s disease, along with Mr. Jackson, his service dog. She commutes to Washington, DC regularly.
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Today on Your Caregiving Journey helps you begin your day and your week with comfort and conversations.
Lillie Fuller, who cares for her mom, will talk about the chats available on CareGiving.com
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to solve a family caregiver's conundrum.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Sharon Hall and her guests will share successful language strategies to use with persons with FTD. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
Joining Sharon for the discussion will be:
Emily Rogalski, PhD, is Associate Professor at Northwestern University Feinberg School of Medicine as well as Director of Neuroimagingat Cognitive Neurology & Alzheimer's Disease Center and Director, SuperAging & PPA Research Programs.
Becky Khayum M.S., CCC-SLP, President and Speech Pathologist. Becky is a co-founder of MemoryCare and also serves as President and Speech Pathologist. Becky has developed a passion for helping those with Alzheimer's, Primary progressive aphasia (PPA) and other memory disorders. Prior to starting MemoryCare, she held various leadership roles in nursing homes and assisted living facilities around the Chicago region. Becky holds a Master of Science degree in Speech-Language Pathology from the University of Arizona and a Bachelor of Science degree in Communication Disorders from Purdue University.
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Today on Your Caregiving Journey helps you begin your day and your week with comfort and conversations.
Sharon Hall, who cares for her husband and her mom, will share an update about our Second Annual National Caregiving Conference.
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to solve a family caregiver's conundrum.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Holly, who cared for her husband, checks in two years after the death of her husband.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with comfort and conversations.
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to solve a family caregiver's conundrum.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Ellen wlll share about her recent trip to Ghana and how giving can give us prosperity.
About Ellen
Ellen Rogin, CPA, CFP® , New York Times bestselling author and Abundance Activist® is a nationally-known expert on living a life of success and prosperity.
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a Certified Financial Planner professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy.
Ellen is co-author of New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.”
Send in a voice message: https://anchor.fm/caring-conversations/message
Parents are often the center of a family and a critical hub in keeping everyone together. Statistically, family relationships deteriorate after the parents have died - especially if a parent was ill and members had misgivings with one another regarding care. Learn how intention, creativity and honoring the values of your parents can create even stronger bonds after mom and dad are no longer around to guilt you all into seeing one another.
About Colleen:
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
Send in a voice message: https://anchor.fm/caring-conversations/message
Today on Your Caregiving Journey helps you begin your day and your week with comfort and conversations.
Tami Neumann, who cares for her son, will join Denise to talk about our special performance, "Caregiving: A Six-Act, 24 Minute Performance."
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to solve a family caregiver's conundrum.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
The women's march on January 21 garnered huge support and attention for a cause.
Could family caregivers do the same with their own march? Or, does the responsibility of caregiving make a march impossible?
What do you think?
Call in and share your answer to this question: Can we march, too?
About your host and co-host:
About Denise
Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She's the author of "The Caregiving Years, Six Stages to a Meaningful Journey" and "Take Comfort, Reflections of Hope for Caregivers."
About Lisa Riggi
Through her caregiving consulting business, The Serene Harbor, Lisa offers individuals a place of peace and safety as they navigate their caregiving journey. Lisa currently cares for her mom and her 17-year-old son who has Type 1 diabetes.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss how to cope with your caree's meltdowns. Sharon cares for her husband, diagnosed with FTD in the fall of 2015, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Denise Brown, founder of CareGiving.com, debuts a new weekly podcast which helps family caregivers start their week.
In our first podcast, Lisa Riggi, project manager of our Second Annual National Caregiving Conference, will update us on our conference's first contest and our conference theme.
Colleen Kavanaugh, Certified Caregiving Consultant and founder of The Longest Dance, and Carolyn Grant will join me to solve a family caregiver's conundrum.
About Colleen
Colleen Kavanaugh of The Longest Dance.com cared for both of her parents for a decade. She is now a Certified Caregiving Consultant who helps family caregivers streamline their lives and cultivate a sense of mission that supports them through the less than perfect days.
About Carolyn
Carolyn Grant has 10 years of experience caregiving for both of her parents while also raising a family. She teaches her clients to recognize their own unique strengths as a caregiver, how to listen actively and to proactively communicate with everyone from doctors to extended family members.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss how to travel with your caree. Sharon cares for her husband, diagnosed with FTD last fall, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Meet the founder and staff of Reassure Analytics, our 2016 National Caregiving Technology and Product Pitch Winner.
Oscar E. Rodriguez, co-founder and Chief Medical Officer, will share the story behind the company's app, Care|Mind, a simple, easy-to-use app for iOS that enables caregivers to monitor carees using Fitbit® data. Caregivers can monitor step, sleep, and heart rate activity; set up custom alerts; and track carees’ conditions and medications.
Dr. Rodriguez, who oversees the clinical development of Care|Mind, has an extensive background in clinical research with medical degrees from both the National University in Guadalajara, México and New York Medical College in the US and a MBA from UCLA Anderson School of Business. Oscar nearly lost his mother to a heart attack 15 years ago during her recovery from hip replacement surgery. Since then he has sought to leverage and create technologies, like Care|Mind, to not only optimize loved ones’ quality of life but also bring caregivers, like himself, peace of mind.
Joining Dr. Rodriguez will be:
· Hanson Chang, who oversees product strategy and development for Care|Mind, is an entrepreneur with over a decade of experience in the healthcare industry. While he resides hundreds of miles from his parents and grandparents, he maintains regular contact through the phone, FaceTime, and Care|Mind.
· Sarah McMains oversees Care|Mind's marketing strategy and marketing efforts. Sarah works as a Director of Strategy at a digital agency, Huge Inc. Sarah's parents and grandparents live far away (some in Australia!), but she uses technology like FaceTime, Care|Mind, text, and email to stay connected and updated on their health.
Send in a voice message: https://anchor.fm/caring-conversations/message
Denise and her co-host, Chris MacLellan, share their gratitudes. Please feel free to call us during our 30-minute show and share yours, too.
About Chris
Chris is the author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show. You can learn more about his work on his website, www.thebowtieguy.com.
About Denise
Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She's the author of "The Caregiving Years, Six Stages to a Meaningful Journey" and "Take Comfort, Reflections of Hope for Caregivers."
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss how to survive the holidays. Sharon cares for her husband, diagnosed with FTD last fall, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall to discuss how to manage your caree's obsessive behavior. Sharon cares for her husband, diagnosed with FTD last fall, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Learn how to spot your elderly parent's ill-intentioned romantic partner. Understand the warning signals, how to look deeper for clues and how to best protect their assets... and their heart.
About Colleen
Colleen, a Certified Caregiving Consultant, brings her decade of family caregiving experience and training to empower and uplift family caregivers step-by-step. While caring for her mother with cancer and father with Alzheimer’s and Parkinson’s diseases, working and raising a family, she could never imagine seeing the other side of life after caregiving. Her feeling of isolation and the lack of understanding from others who were not in her situation have called her to help current caregivers from feeling the same things. Colleen works with clients to create proactive strategies that encourage thriving within the demanding caregiving role.
Send in a voice message: https://anchor.fm/caring-conversations/message
Denise and her co-host, Chris MacLellan, talk about facing a caregiving fear. Please feel free to call us during our 30-minute show and share your stories and experiences about what scared you about caregiving. Be sure to tell us how you overcame that fear.
About Chris
Chris is the author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show. You can learn more about his work on his website, www.thebowtieguy.com.
About Denise
Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She's the author of "The Caregiving Years, Six Stages to a Meaningful Journey" and "Take Comfort, Reflections of Hope for Caregivers."
Send in a voice message: https://anchor.fm/caring-conversations/message
Charles J. Fuschillo, Jr., appointed president & chief executive officer of the Alzheimer's Foundation of America (AFA), joins us to share how we can get involved with local politics to make a difference for others who care for a family member.
About Charles
Charles J. Fuschillo, Jr., was appointed president & chief executive officer of the Alzheimer's Foundation of America (AFA) in 2014. Prior to joining AFA, Fuschillo served as a member of the New York State Senate for nearly 16 years.
Fuschillo has expanded AFA’s national presence, increasing critical assistance to individuals confronting dementia, caregivers and their families. Under his leadership, the organization has grown to be more than 2,400 member organizations strong. The Alzheimer's Foundation of America (AFA), a national not-for-profit foundation provides optimal care and services to individuals confronting dementia, and to their caregivers. AFA fills the gap that exist on a national level to assure quality of care and excellence in service to individuals with Alzheimer's disease and related illnesses, and to their caregivers and families. AFA’s national toll-free helpline provides assistance from licensed social workers—in English and Spanish.
During his tenure in the senate, Fuschillo authored more than 200 state laws and chaired the Senate Consumer Protection and Transportation Committees. He also served on the Senate Health committee. Prior to that, he was chief operating officer of a nonprofit family service agency that served Long Island and New York City.
Fuschillo has recently been recognized for his lifetime of community service and his work at AFA with awards including but not limited to: The Harry Chapin Humanitarian Award - Long Island Cares, Inc.’s; Pendl Badge of Courage Award, Lifetime Achievement Award from the New York State Grand Lodge Foundation.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will join Sharon Hall and I to discuss when to consider long-term care for your family member as well as how to pay for it and how to help your family transition to the faciilty. Sharon cares for her husband, diagnosed with FTD last fall, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Liz O'Donnell, founder of WorkingDaughter.com, joins Denise to discuss working our life's purpose--to help family caregivers.
About Liz
Liz O'Donnell is the founder of Working Daughter, a website for women balancing career and caregiving, something she tries to do everyday. Liz runs the East Coast operations of a PR firm and cares for her 90-year-old father.
She is also a working mother -- she has a high schooler and a middle schoolers at home- -- and is the author of the book, Mogul, Mom & Maid: The Balancing Act of the Modern Woman.
Send in a voice message: https://anchor.fm/caring-conversations/message
Caregiving can seem to swallow up your life. The intensity and demands of caregiving can leave you feeling there's little left for you.
Claire Day, SVP of the Alzheimer's Association, Delaware Valley Chapter, offers ideas and perspectives so we also focus on what we need and enjoy in life.
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Often well-intentioned parents attempt to shield their children from the uncomfortable face of illness. Understand how one mom incorporated her school age children in the care of her parent with Alzheimer's from diagnosis till death. Hear how, by seeing Alzheimer's first hand, Colleen Kavanaugh's children were less afraid of an almost incomprehensible disease and how they gained a compassionate maturity that has broadened their understanding of the world and all people around them. Learn simple activities children can do with their grandparent and how to keep communication open so both you and your child can express the changing thoughts and fears you both will experience along the way.
About Colleen
Colleen, a Certified Caregiving Consultant, brings her decade of family caregiving experience and training to empower and uplift family caregivers step-by-step. While caring for her mother with cancer and father with Alzheimer’s and Parkinson’s diseases, working and raising a family, she could never imagine seeing the other side of life after caregiving. Her feeling of isolation and the lack of understanding from others who were not in her situation have called her to help current caregivers from feeling the same things. Colleen works with clients to create proactive strategies that encourage thriving within the demanding caregiving role.
Send in a voice message: https://anchor.fm/caring-conversations/message
Denise and her co-host, Chris MacLellan, talk about managing a family member's care from a distance. Please feel free to call us during our 30-minute show and share your stories and experiences. Be sure to tell us why you stay.
About Chris
Chris is the author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show. You can learn more about his work on his website, www.thebowtieguy.com.
About Denise
Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She's the author of "The Caregiving Years, Six Stages to a Meaningful Journey" and "Take Comfort, Reflections of Hope for Caregivers."
Send in a voice message: https://anchor.fm/caring-conversations/message
We know we need to document end-of-life wishes. But, the thought of trying to capture all the details can feel overwhelming. Leslie Cottrell Simonds, a Certified Caregiving Consultant, tells us abouth new book, "I Want You to Know," which helps make documenting wishes easier.
About Leslie
Leslie Cottrell Simonds was born in NE Ohio, moving to Maine as a young adult and currently lives North of Boston, MA. Her interest in supporting caregivers and providing guidance to those seeking to document their wishes for end of life started when she became close to many of the clients she was the chef for at a retirement community years ago. Later when her own father journeyed through vascular dementia she knew she wanted to share many of the things she learned through caring for him with others in their caregiving experiences.
Send in a voice message: https://anchor.fm/caring-conversations/message
Can we be prosperous, regardless of our life's circumstances? Ellen Rogin, our wealthness expert, shares her perspective on how we find our prosperity.
About Ellen
Ellen Rogin, CPA, CFP® , New York Times bestselling author and Abundance Activist® is a nationally-known expert on living a life of success and prosperity.
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a Certified Financial Planner professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy.
Ellen is co-author of New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.”
Send in a voice message: https://anchor.fm/caring-conversations/message
Claire Day, our dementia care expert, will share policy updates on what's happening to help and support persons with dementia and the family members who care for them.
About Claire
Claire is SVP of the Alzheimer's Association Delaware Valley Chapter.
Send in a voice message: https://anchor.fm/caring-conversations/message
Colleen Kavanaugh, a Certified Caregiving Consultant, will share why new frustrations with a parent could signal the need for an evaluation with a neurologist.
About Colleen
Colleen brings her decade of family caregiving experience and training to empower and uplift family caregivers step-by-step. While caring for her mother with cancer and father with Alzheimer’s and Parkinson’s diseases, working and raising a family, she could never imagine seeing the other side of life after caregiving. Her feeling of isolation and the lack of understanding from others who were not in her situation have called her to help current caregivers from feeling the same things. Colleen works with clients to create proactive strategies that encourage thriving within the demanding caregiving role.
Send in a voice message: https://anchor.fm/caring-conversations/message
Denise and her co-host, Chris MacLellan, talk about how we cope with the daily caregiving grind. Please feel free to call us during our 30-minute show and share your stories and experiences. Be sure to tell us why you stay.
About Chris
Chris is the author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show. You can learn more about his work on his website, www.thebowtieguy.com.
About Denise
Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She's the author of "The Caregiving Years, Six Stages to a Meaningful Journey" and "Take Comfort, Reflections of Hope for Caregivers."
Send in a voice message: https://anchor.fm/caring-conversations/message
Liz O'Donnell, founder of WorkingDaughter.com, joins Denise to discuss how we define (and redefine) our definitions of success.
About Liz
Liz O'Donnell is the founder of Working Daughter, a website for women balancing career and caregiving, something she tries to do everyday. Liz runs the East Coast operations of a PR firm and cares for her 90-year-old father.
She is also a working mother -- she has a high schooler and a middle schoolers at home- -- and is the author of the book, Mogul, Mom & Maid: The Balancing Act of the Modern Woman.
Send in a voice message: https://anchor.fm/caring-conversations/message
Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, will joined Sharon Hall and I to discuss your questions about your caree's aggression and your safety. Sharon cares for her husband, diagnosed with FTD last fall, and moderates our weekly FTD chat on CareGiving.com. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
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Liz O'Donnell, founder of WorkingDaughter.com, joins Denise to discuss how to manage the time spent to help aging parents to it doesn't take away from time with the growing kids.
About Liz
Liz O'Donnell is the founder of Working Daughter, a website for women balancing career and caregiving, something she tries to do everyday. Liz runs the East Coast operations of a PR firm and cares for her 90-year-old father.
She is also a working mother -- she has a high schooler and a middle schoolers at home- -- and is the author of the book, Mogul, Mom & Maid: The Balancing Act of the Modern Woman.
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Denise and her co-host, Chris MacLellan, talk about when we just want to run from caregiving. Please feel free to call us during our 30-minute show and share your stories and experiences. Be sure to tell us why you stay.
About Chris
Chris is the author of “What’s the Deal with Caregiving?” and the host of “Healing Ties,” a weekly radio show. You can learn more about his work on his website, www.thebowtieguy.com.
About Denise
Denise, founder of CareGiving.com, coaches family caregivers before, during and after caregiving. She's the author of "The Caregiving Years, Six Stages to a Meaningful Journey" and "Take Comfort, Reflections of Hope for Caregivers."
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Holly Eburne, who cared for her husband, shares about her thoughts about this question: Is caregiving rewarding?
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Colleen Kavanaugh, a Certified Caregiving Consultant and owner of The Longest Dance.com, joins me to share how she kept a life for herself as she cared for her parents. Colleen began her caregiving role just two months after she began dating the man who would become the love of her life. She shares with us what it was like to care for her parents for a decade during the ending of their lives while she was unknowingly creating the true beginning of her life.
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AARP Meditations for Caregivers--Practical, Emotional and Spiritual Support for You and Your Family is comprised of 152 short, real-life family caregiver stories, drawn from the authors' psychotherapy practices and personal experiences. The stories are meant to comfort and inspire. Through their book, the authors hope to help family caregivers derive the potential positive benefits from caregiving, including personal and spiritual growth, an enhanced sense of purpose, and the gratification of ensuring their family's well-being.
About the Authors
Barry J. Jacobs, Psy.D., is a clinical psychologist, family therapist, and the Director of Behavioral Sciences for the Crozer-Keystone Family Medicine Residency Program in Springfield, Pennsylvania. He is the author of The Emotional Survival Guide for Caregivers—Looking After Yourself and Your Family While Helping an Aging Parent. Dr. Jacobs has given more than 400 presentations on family caregiving for family caregivers, community groups, and medical and mental health professionals. He is the national spokesperson on caregiving for the American Heart Association and an honorary board member of the Well Spouse Association. He has served on the expert panel for the Caregiver Crisis Great Challenge for TEDMED.com and as a board member of the Collaborative Family Healthcare Association.
Julia L. Mayer, Psy.D., is a clinical psychologist who has been counseling individuals and couples for almost 25 years. Dr. Mayer has a private practice is in Media, Pennsylvania, where she specializes in women’s issues, including caregiving and other relationship concerns.
Drs. Jacobs and Mayer have written previously together for WebMD and HealthCentral. They have been married for more than 25 years and have two adult children.
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Geri Hall, PhD, ARNP, FAAN, Banner Alzheimer's Institute, joins us to answer your questions about your family member's FTD diagnosis.
Dr. Hall will share suggestions on how to manage FTD's challenging behaviors, how to cope with the management of the day, and how to explain the disease to other family members and friends. You can call into the live 30-minute show with your questions or email them to ftdpodcastquestions@yahoo.com prior to the show.
This podcast recording also will be available on CareGiving.com's website after the show. CareGiving.com hosts a chat for those who care for a family member with FTD every Monday at 7 p.m. ET (6 p.m. CT, 5 p.m. MT, 4 p.m. PT).
About Dr. Hall
Geri Hall, an internationally-recognized advanced practice nurse who holds a nursing doctorate, is widely respected for her research in Alzheimer's disease and related dementias. She developed the Progressively Lowered Stress Threshold Model, a framework for planning care of dementia patients and measuring outcomes by studying the presence or absence of behavior symptoms such as agitation and depression. The model is widely by used by professionals in the United States, Australia and South Korea.
Send in a voice message: https://anchor.fm/caring-conversations/message
Can we be prosperous, regardless of our life's circumstances? Ellen Rogin, our wealthness expert, shares her perspective on how we find our prosperity.
About Ellen
Ellen Rogin, CPA, CFP® , New York Times bestselling author and Abundance Activist® is a nationally-known expert on living a life of success and prosperity.
Ellen shows people how to be great with money. Through over 20 years as a successful entrepreneur in the financial services industry and as a CERTIFIED FINANCIAL PLANNERTM professional, Ellen understands that many people have an uneasy and complicated relationship with their money. People undergo great anxiety as well as great joy in their financial lives.
Ellen is hired by corporations, women’s initiatives, organizations and associations to take the complex area of money and make it easy.
Ellen is co-author of New York Times bestseller, “Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality.”
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