FARA Podcast: Recent Episodes

Felicia DeRosa

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.

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Chairman of the FARA Board of Directors and Co-Founder of the FARA Energy Ball, Paul Avery and Auction Co-Chair, Amy Hull discuss the FARA Energy Ball gala event in Tampa. Hosted by, FARA Volunteer, Herman Fernandez.

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The University of South Florida, Director of the Ataxia Research Center- Dr. Theresa Zesiewicz and Alison Avery, a local Tampa young adult living with Friedreich's ataxia, offer insights on the condition from the clinical and patient perspective. Hosted by, FARA Volunteer, Herman Fernandez.

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FARA Volunteer, Herman Fernandez, discusses the rare neuromuscular disease- Friedreich's ataxia (FA) with the Co-Founder and President of the non-profit organization- the Friedreich's Ataxia Research Alliance (FARA), Ron Bartek. Learn more about FA and FARA's work to fund and facilitate research to treat and cure the disease.