Celiac Straight Talk: Recent Episodes
Beyond Celiac
Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.
Joining us on Celiac Straight Talk is Jake Eisenberg - announcer for the Kansas City Royals. Listen to hear how Jake navigates the challenges that come with living with celiac disease. Jake explores his diagnosis, tools he uses to manage balancing an autoimmune disease with daily life, and tips for traveling.
Listen anywhere you get your podcasts!
Learn more about celiac disease and the research Beyond Celiac is funding at BeyondCeliac.org đź’š
May is Celiac Disease Awareness month and joining us on Celiac Straight Talk is Fallon - the CEO and Founder of No Wine Left Behind. No Wine Left Behind is an events based company out of NYC that is hosting a Celiac Safe wine retreat in Santorini, Greece. Tune in to hear Fallon's journey so far with having Celiac disease and how she crafts community, trust, and safety for these events, retreats, and experiences.
Listen anywhere you find your podcasts!
You can find more information and tickets at www.knowwineleftbehind.com
Learn more about Celiac disease and the research Beyond Celiac is funding at BeyondCeliac.org đź’š
May is Celiac Disease Awareness month and joining us for an inspiring talk about supporting her younger brother with celiac disease is 12 year old Cassin. Hear how she arms herself with knowledge to help lessen the fears around living with celiac disease.
Listen anywhere you find your podcasts!
You can support Cassin's art and fundraising here: https://beyondceliac.funraise.org/fundraiser/cassin
Learn more about celiac disease and the research Beyond Celiac is funding at BeyondCeliac.org đź’š
March is Autoimmune Awareness Month, and we've compiled presentations from a collection of experts on autoimmunity to tie together how celiac disease research can help us unlock all kinds of autoimmune diseases.
Hear from Dr. Arnold Han, Dr. Iain Croall, and Dr. Sónia Gonçalves Pereira on their work studying autoimmune diseases, celiac disease, and the effect had on the body.
Listen anywhere you find your podcasts!
Learn more about celiac disease and the research Beyond Celiac is funding at BeyondCeliac.org đź’š
We spoke with Julie Kennedy, MPH, MEd, RDN, LDN about falling in love with food again after a celiac diagnosis or other medical diagnoses managed with a dietary restriction.
Julie shares her celiac diagnosis story, and how, upon learning how difficult switching to a 100% gluten-free diet can be, she went back to school to pursue dietetics to help others fall in love with food again.
Find Julie Kennedy at www.juliekennedynutrition.com/.
Beyond Celiac
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In our first Celiac Straight Talk episode of the year, Beyond Celiac Senior Director of Coalition and Patient Engagement Kate Avery chats with President of the International Society for the Study of Celiac Disease Dr. Bob Anderson about a satellite meeting ISSCD did in conjunction with the Tampere Celiac conference in 2025.
Kate and Dr. Anderson discuss progress being made in the field of celiac, and how research has helped us progress our understanding of celiac disease and autoimmunity in general.
Be sure to check us out on social media at @BeyondCeliac. Learn more and donate at BeyondCeliac.org today!
Telling someone you eat gluten-free can elicit a wide variety of responses, from sympathetic and accommodating to curious and confused, or even skeptical and derisive.
Some conversations are tough to navigate, especially during the holidays, when many folks are reconnecting with family members or spending time with old and new friends. In this event, we offer tips on handling all these conversations.
So brew your favorite warm drink and settle in for a Town Hall with Beyond Celiac!
Thanks to our partners at Takeda Pharmaceuticals for sponsoring this epiosde.
You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org. Follow us on Instagram and TikTok at @BeyondCeliac.
Birthday parties, holidays with the family, celebratory team dinners after extracurriculars, or a simple gathering with friends: all can be fraught with tension when you're gluten-free.
It's tough to relax and have fun when you're constantly worrying about getting sick or being the odd one out. As patients ourselves, Beyond Celiac staff gives you our top tips for not just managing but enjoying parties when you're gluten-free.
This episode is possible because of support from DiGiorno!
You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org. Follow us on Instagram and TikTok at @BeyondCeliac.
In this episode of Celiac Straight Talk, Beyond Celiac Chief Scientific Officer Dr. Debra Silberg fact-checks celiac disease myths and misconceptions. She answers our questions about who can get celiac disease (answer: just about anyone!), as well as some unique symptoms that present in celiac disease, and whether or not you can grow out of it.
Thank you to Dr. Silberg for taking the time to answer our questions!
Thank you so much to Takeda Pharmaceuticals for their continued support of our disease awareness campaign and research towards treatments for celiac disease.
Learn more about Beyond Celiac at beyondceliac.org!
Find us on social media at @BeyondCeliac on all platforms.
In this episode of Celiac Straight Talk, we are joined by Beyond Celiac Director of Scientific Affairs Amy Ratner, who kindly agreed to interview our guest, Dr. Ciaran Kelly of Beth Israel Deaconess Medical Center on his experience diagnosing celiac disease.
You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org.
Thank you so much to Takeda Pharmaceuticals for sponsoring this episode of Celiac Straight Talk and their commitment to supporting disease awareness and celiac disease patients.
Did you know that July is Disability Pride Month? One of our amazing Reach Beyond Celiac Ambassadors Ilana C. reached out to host a disability pride roundtable episode with myself and other Reach Beyond Celiac ambassadors Ella S. and Tara P. We had an amazing conversation about what it means to have celiac disease in a world designed for people who can eat gluten, and a bit of history and our thoughts on disability pride. Ilana also shares some stories of legal cases regarding celiac disease and the gluten-free diet. Listen to hear more!
You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org. If you want to get involved with the Reach Beyond Celiac Ambassador program, email Valerie Kraft at vkraft@beyondceliac.org. Thanks so much for listening!
Happy Pride! In this chatty episode of the podcast, Beyond Celiac Social Media Coordinator Lauren and gluten-free chef and content creator Matt Weinstein about identity, both his diagnosis and coming out stories, and eating gluten-free during food-centric Pride celebrations.
Enjoy the episode!
Find Matt on Instagram at @glass_of_weinstein!
Be sure to follow @BeyondCeliac.
Dr. Iain Croall, PhD, MRes, BSc and Jordan Dubow, MD discussed how eating gluten can affect neurological health in those with celiac disease and non-celiac gluten sensitivity and answered community questions about neurological health and the gut-brain connection.
This event is possible thanks to our sponsor, Crunchmaster!
On this episode of Celiac Straight Talk, Celiac Cruise founder Maureen Basye sat down to chat with Social Media Coordinator Lauren Wallach and Associate Director of Communications Bailey Arman about the mission of Celiac Cruise and what it's like to vacation in a 100% gluten-free environment.
We’re so grateful to Celiac Cruise for their support of the gluten-free community, and their passion for creating safe spaces for those with celiac disease and other gluten-related disorders to be able to travel without fear.
To learn more about Celiac Cruise, their eight cruises remaining in 2025 and the 13 scheduled for 2026, head to celiaccruise.com/ ! 🚢🧡
In our new episode of Celiac Straight Talk, we discussed the future of celiac research through Beyond Celiac Investments! We spoke with Eric White, Director of Business Development and Strategic Alliances at Beyond Celiac. We unpacked the concept of venture philanthropy, and how exactly BCI is making its mark on the future of celiac research.
Eric is a Chartered Alternative Investment Analyst with more than 18 years of experience in institutional investing, responsible for investment decisions totaling more than $2.5 billion. He began working with Beyond Celiac in 2020, designing Beyond Celiac Investments (BCI), a venture philanthropy investment program to accelerate the development of treatments and a cure for celiac disease by leveraging the speed and scale of venture capital and capital markets. In February 2024, Eric stewarded the successful launch of BCI with an initial funding of $2 million and is responsible for the program’s ongoing relational and operational management.
Learn more about Beyond Celiac Investments at beyondceliac.org/beyond-celiac-investments/.
If you’d like to learn more, support BCI directly, or get involved, please send an email to investments@beyondceliac.org.
Find all episodes of Celiac Straight Talk at beyondceliac.org/news-events/podcast-series/.
In this episode of Celiac Straight Talk, we chatted with Lauren of @eat.glutenfreewithme!
Lauren is a passionate health and wellness creator focused on gluten-free living and autoimmune health. Living with Celiac disease, IBS, and Crohn's, she has transformed her personal journey into a mission to inspire and empower others with autoimmune conditions to take control of their health and thrive. We discussed our love-hate relationship with the gluten-free diet, her journey to creating content about living with autoimmune conditions, and what it's like living somewhere where the gluten-free diet is a fad.
Follow Lauren's story and find her practical tips on Instagram (@eat.glutenfreewithme) and TikTok (@eatglutenfreewithme).
Find all episodes of Celiac Straight Talk at beyondceliac.org/news-events/podcast-series/.
Lauren chatted with two of our amazing Reach Beyond Celiac Ambassadors Rochelle and Paige about their experiences as parents of young children with celiac sending their kids back to school. This conversation was fun, informative, and enlightening, as well as supportive—if you’re looking for tips for talking with your child’s teachers, or just to listen to people who understand your experience, this is the episode for you!
Find this episode and all our episodes of Celiac Straight Talk at https://www.beyondceliac.org/news-events/podcast-series/. Thanks again to Paige and Rochelle for being on the podcast.
Our social media coordinator Lauren chats with two of our AMAZING Reach Beyond Celiac Ambassadors about their experiences with summer camp. Alyssa and Daniel share their insights about attending summer camp as a person with celiac in both camper and counselor roles. They discuss the pros and cons of bringing your own food, non-GI symptoms flaring up at camp, and how meaningful camp friendships can be.
To hear more episodes of Celiac Straight Talk, head to https://www.beyondceliac.org/news-events/podcast-series/.
Many with celiac disease often report feeling isolated, awkward, and disheartened as they navigate the world on a gluten-free diet. But the future is bright, and there are tools you can use to maneuver the social landscape and cope with the burden of a chronic illness.
In this Town Hall celebrating both Celiac Awareness Month and Mental Health Awareness Month, Dr. Anava Wren discusses her work on the social and psychological impacts of celiac disease, and shares her top tips for combatting that isolation.
Dr. Wren is a pediatric celiac psychologist and Clinical Associate Professor in the Division of Pediatric Gastroenterology at Stanford University Medical Center. She is also the Director of the GI Psychosocial Services & IBD/Celiac Psychological Health Programs. She has been a leader in Stanford Medicine Children’s Health Center for IBD and Celiac Disease since it was founded in 2020.
This Town Hall is possible thanks to our sponsor, Crunchmaster. Crunchmaster crackers are made from simple, wholesome ingredients, and are certified gluten-free. Thank you Crunchmaster!
To hear more episodes of Celiac Straight Talk, head to https://www.beyondceliac.org/news-events/podcast-series/.
Beyond Celiac spoke with Australian researcher Dr. Jason Tye-Din about a few of the controversies in celiac disease. In this Town Hall, moderated by Director of Scientific Affairs Amy Ratner and Director of Research and Patient Engagement Kate Avery, MPH, Dr. Tye-Din discusses the safety of eating oats, a potential blood test that doesn’t require the gluten challenge, and monitoring adherence to the gluten-free diet with GIP tests.
To hear more episodes of Celiac Straight Talk, head to https://www.beyondceliac.org/news-events/podcast-series/.
Liz (@yeet.that.wheat) has been living with Celiac Disease for 4 years and creates content focusing on health equity, advocacy, and living a fulfilling gluten free life. She uses her experience as a Black woman with Celiac to talk about being gluten free through an intersectional lens. Through social media, she aims to create a supportive community for folks who are navigating living gluten free through educational posts, recipes, product recommendations, restaurant reviews, travel, tips and tricks, and of course, memes.
In this casual conversation, Liz chats about her jump to social media upon her celiac disease diagnosis, and how she hopes her page can help others find community while experiencing a chronic condition. Liz also shares an exciting, nationwide project she is working on. You can follow Liz on Instagram, Tiktok, and Facebook, and soon to be Youtube!
Thanks so much to Takeda for sponsoring this episode of Celiac Straight Talk.
To hear more episodes of Celiac Straight Talk, head to https://www.beyondceliac.org/news-events/podcast-series/
In this minisode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast speaks with Casey Walters about the challenges of having a young child with celiac disease.
Alice’s personal journey as a celiac disease survivor and champion for research in this field, coupled with her prior experience of more than two decades in healthcare business development and marketing, taught her that patients need to be educated and empowered with solid information in order to make decisions about their desired health outcomes.
Casey is a PR professional with experience working in the consumer technology space handling media relations, message and platform development, event management and trade show execution, product launches, content creation and development of traditional and social media relations campaigns. Her experience spans a wide variety of consumer and technology brands.
To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/.
Amy Ratner joined Beyond Celiac in 2016 as the medical and science news analyst to provide coverage of celiac disease research news. She has extensive experience reporting on and writing about celiac disease. She was editor-in-chief, associate editor and contributing editor for 23 years at Gluten-Free Living magazine, where her work touched on all topics related to celiac disease, including lifestyle, diet, nutrition, and medical and research developments.
When Amy’s daughter was diagnosed with celiac disease as a toddler 31 years ago, she was set on a path that combined her commitment to improving life for those with celiac disease with her journalism training. Tune in today to hear Amy and Social Media Coordinator Lauren Wallach discuss how far celiac disease research and access to gluten-free food has come in the last two decades!
To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/.
In winter of 2023, Beyond Celiac welcomed Debra Silberg, MD, PhD, FACG as our new Chief Scientific Officer and Jordan Dubow, MD, as our new Chief Medical Officer. In this Town Hall, Dr. Silberg and Dr. Dubow unpack their backgrounds and what’s in store for Beyond Celiac research in 2024, as well as a Q&A segment about celiac disease.
Discussions include topics such as the neurological impact of celiac disease, explanations of grant funding, and clinical trials for treatments.
This event was possible thanks to our sponsor, Takeda, and the ILLUMINATE trial. Learn more at the Illuminate Study website.
To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/.
Arnold Han, MD PhD, of Columbia University, was awarded the 2022 Beyond Celiac and SSCD Early Career Investigator Grant to investigate the role of CD8 T-cells in celiac disease. Thus far, Dr. Han’s innovative research has found more precise ways that gluten sets off damage to the intestine in those who have celiac disease, which he believes could help in the development of innovative approaches to finding a treatment. In our discussion, Han reveals what he’s discovered so far through this research and where he hopes it leads in the future.
Special thanks to our friends at Crunchmaster Crackers for sponsoring this event!
To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/.
In this episode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast interviews Jackson Dunckel, CFO of AMG, an eco-friendly manufacturing company. Jackson shares his celiac story in a candid conversation, from his delayed diagnosis in 2002 to managing his health today. In particular, Jackson shares his perspective as a long-time diagnosed man managing this serious genetic autoimmune disease.
In this episode, Beyond Celiac staff recount our recent accomplishments and projects—when we aren't podcasting, you can rest assured that we are working hard to improve the lives of celiac disease patients everywhere!
This episode is a recording from our in-person Community Summit event, which happened September 30, 2023 in Greenwich, Connecticut.
Listen to Celiac Straight Talk wherever you find podcasts.
In this heartfelt episode of Celiac Straight Talk, join Beyond Celiac CEO Alice Bast as she sits down with special guest Dylan Dreyer, beloved co-host of the 3rd hour of TODAY. The conversation delves into a candid exploration of Dylan's journey when her six-year-old son, Calvin, was diagnosed with celiac disease. From the initial shock of the diagnosis to the practical steps and emotional nuances of transitioning Cal to a strict gluten-free diet, this episode offers a genuine and relatable discussion about the challenges and triumphs faced by one family.
Gain insights into the resilience, adaptation, and love that fuel the commitment to keeping Calvin safely gluten-free. Join us for an episode that sheds light on the realities of celiac disease and underscores the strength found in community and understanding.
This episode of Celiac Straight Talk is a dive deep into inspiring stories and advocacy for health and wellness. In this thought-provoking episode, Beyond Celiac CEO Alice Bast sits down with renowned TV personality Jenna Wolfe for a candid discussion on patient empowerment.
Don't forget to like, share, and subscribe to stay updated on all things celiac disease! Get all the episodes of Celiac Straight Talk wherever you get your podcasts.
This is a recording of the "Living Your Best Gluten-Free Life" panel from our 2023 Community Summity. It features four gluten-free influencers, Phil, Liz, Erin and Emily, discussing how they've tackled their health conditions and thrived on the gluten-free diet.
Phil is the creator behind @PhilHatesGluten, a popular TikTok and Instagram account. He uses humor to allieviate the burden of managing eosinophilic esophagitis.
Liz Purvis is a celiac disease advocate and content creator (@yeet.that.wheat on Instagram and TikTok) living with celiac disease. Her content focuses on health equity and her experience as a Black woman living with celiac.
Erin Smith is the creator of Gluten-Free Globetrotter, a travel website that provides information about eating gluten-free and traveling with celiac. She's been living with celiac disease since 1981 and eating gluten-free long before it was "trendy.”
Emily Shaw is best known for her viral DIY TikTok account @emilyrayna. She has been featured in prestigious publications including The New York Times, Architectural Digest, Business of Home, The Drew Barrymore Show, and more. Something her fans may not know is that she also happens to have celiac disease.
Color of Crohn’s & Chronic Illness (COCCI) was created to improve the quality of life for BIPOC who are affected by IBD, digestive disorders, and associated chronic illnesses through community, research, education, and advocacy. We partner with COCCI on projects like social posts and events like this town hall from July of 2023.
Juanita Belton, PA-C, MPH, is a physician assistant in gastroenterology at Boston Medical Center with a subspecialty in Inflammatory bowel disease and an instructor at Boston University Medical Center’s Dempsey Center for Digestive Disease. She is also the Director of Patient Empowerment at COCCI and a member of the Beyond Celiac DEI Advisory Board.Â
Ambassadors Hayden and Alyssa join podcast coordinator Leah Popovic as they discuss what it's like to experience an athletic life style with celiac disease.Â
To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/
We sat down with Arturo ChacĂłn Cruz to learn just how he manages to stay gluten-free while traveling all over the world to sing opera, as well as his advice for convincing others that, while the gluten-free diet can be annoying, your health is worth it.
To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/
Dr. Hilary Jericho became a part of the Stanford University team at the beginning of this year, working for the newly developed celiac disease program at the Lucile Packard Children’s Hospital. Learn about how Dr. Jericho's research in the psychosocial effects of celiac disease has made an impact on the Bay area.
To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/
Looking for gluten free restauraunts in Lehigh Valley, Pennsylvania? Look no further! Meet Jeff Val, the creator of Gluten Free Lehigh Valley - a platform where the gluten free community can connect with peers, doctors and more. This project is pioneering an effort to make celiac disease and gluten intolerance better understood not only in Lehigh Valley, but in communities across the country.Â
By sharing her DIY interior design creations on TikTok, Emily Shaw became a social media sensation practically overnight. Shaw, who renovates spaces and repurposes budget household items, has nearly six million followers on TikTok alone, and has dedicated her career to this niche craft. Something her fans may not know is that she happens to have celiac disease, an autoimmune disease.Â
As a true innovator, she’s learned to nimbly navigate her newfound fame while managing celiac disease. Get to know how Shaw persisted despite her symptoms and what the future holds for her growing digital platform.Â
Follow Emily on TikTok or Insta at ​​@emilyrayna
In March, Beyond Celiac teamed up with Dr. Mark Davis, the Director of the Stanford Institute for Immunity, for a town hall session on t-cell dynamics in autoimmunity. Join us in learning about the importance of human studies and how the development mitochondrial physiology can help those suffering from non-GI symptoms of celiac disease.
Looking for an authentic gluten-free Italian meal? Teona Khaindrava will happily provide at Senza Gluten, located in the heart of Greenwich Village, New York City. Khaindrava, who opened the business in 2014, trains her hard working staff to prepare gluten-free pasta, cocktails, desserts and more while adhering to traditional Italian recipes and techniques. Learn how Senza Gluten has heightened the dining experience for people with celiac disease, as well as their mission to spread awareness.
Kayla King has been living with celiac disease for over 17 years, “centering her life” around food and maintaining a safe, healthy diet. After receiving a business degree and becoming a nutrition coach, King recently launched MyMeal, an app helping people with restricted diets find restaurants which cater to their needs. Learn about how King is using online advocacy to change the way people with celiac disease, chronic illnesses and allergies can feel more secure about going out to eat.
Our webinar from January 19, 2023 discusses some of the biggest celiac disease news and research from the past year. Learn about what is to come with these discoveries and how patients come upon a proper diagnosis from Dr. Amelie Therrien, a gastroenterologist and celiac disease researcher at Beth Israel Deaconess Medical Center’s (BIDMC) Celiac Center.
Join Podcast Coordinator Leah Popovic as she speaks to well renowned actress and producer Sam Doumit about her experience living with a wheat allergy. Doumit, who starred alongside Rob Schnieder in the film “The Hot Chick,” provides insight to working in Hollywood with dietary restrictions, as well as how her attitude and self-advocacy has played a role in her health today.
In this episode, we chat with two renowned gastroenterologists, Dr, Benjamin Lebwohl and Dr. Ritu Verma, about the role genetic tests and biopsies play in diagnosing celiac disease. What can these tests tell us about a patient's health? Are they necessary to diagnose celiac disease? The conversation is followed by a community Q&A.Â
Dr. Lebwohl and Dr. Verma are members of The Society for the Study of Celiac Disease (SSCD). The SSCD is a professional organization of physicians, nurses, dietitians, and allied health professionals in the United States, Canada, and Mexico who specialize in the treatment of celiac disease and other gluten-related disorders.
In this episode, we chatted with Colleen and Libby, two sisters who were diagnosed with celiac disease at the same time, shortly after their old brother was diagnosed. Their story emphasizes the importance of getting relatives tested, regardless of symptoms, and sheds light on what it's like to grow up with celiac disease.Â
This episode is sponsored by imaware. Use our code to get a discount on at-home testing kits!
World-renowned celiac disease expert Dr. Stefano Guandalini, MD, sat down with us to answer your questions about celiac disease and the gluten-free diet. In this episode, the audience-submitted questions focused on conditions that are commonly seen alongside celiac disease.
Dr. Guandalini is also the medical advisor for the sponsor of this Town Hall, imaware™.
We facilitated a community Q&A with Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center, about potential non-dietary treatments for celiac disease. She answers your questions about how some of these potential treatments work, the role of the gluten challenge in clinical trials, and whether treatments may work for other autoimmune conditions, too.
This event was sponsored by the Solutions for Celiac study on latiglutenase.Â
Beyond Celiac ambassador Noah Lustbader is one of the youngest scientists working hands-on towards a cure for celiac disease. As a junior in college at Vanderbilt University, Noah is already pioneering a multi-centered project with Vanderbilt’s Clinic Director Dr. Dawn Adams, including centers such as Mayo Clinic and Harvard. In this episode, he talks about his experience as an undergraduate research assistant alongside Dr. Arnold Han at Columbia University's Irving Medical Center, studying t-cells and possible therapeutic strategies for celiac disease in a professional laboratory.
Healthcare systems across the globe often fall short when caring for celiac disease patients. Himanshi Pareek shares how misinformation from her doctors in India worsened her condition, leading to her own scientific discoveries which countered the medical advice she received.
Roby Sobieski is an actor, model and magician whose appearance on “The Bachelorette” has lended him lots of social media popularity. His aunt, Alice Bast, founder and CEO of Beyond Celiac, connects him to our organization, where Roby has advocated for greater celiac disease awareness, and even volunteered at our 2020 virtual event entitled “An Evening Beyond Celiac.” In this episode, Podcast Coordinator Leah Popovic learns more about Roby’s connections to celiac disease, as well as his experience with Bachelor Nation and what his future may hold.Â
You might recognize Sarah Joy Brown from her various on-screen acting appearances, such as General Hospital and Big Momma’s House. Get to know more about her life behind the scenes as an actress with celiac disease, as she speaks with Podcast Coordinator Leah Popovic on the importance of visibility and advocacy, especially in the acting industry.
You might recognize Sarah Joy Brown from her various on-screen acting appearances, such as General Hospital and Big Momma’s House. Get to know more about her life behind the scenes as an actress with celiac disease, as she speaks with Podcast Coordinator Leah Popovic on the importance of visibility and advocacy, especially in the acting industry.
Hear our Reach Beyond Celiac ambassadors share advice on how to safely enjoy gluten-free foods in foreign countries.
Hear our Reach Beyond Celiac ambassadors share advice on how to safely enjoy gluten-free foods in foreign countries.
Podcast creator, writer, social media figure, father with celiac disease – all of the above. Ben Hampton has made a name for himself in the celiac disease community, bringing awareness via “A Gluten Free Podcast” and his Instagram page, where he coined the name “A Gluten Free Family.” Listen as Ben talks about living gluten-free in Australia as a father of two with a newfound passion of celiac disease advocacy, especially for male identifying celiac disease patients.Â
In this episode, our ambassadors with Reach Beyond Celiac discuss how their symptoms have progressed or changed before, during and after their celiac disease diagnosis.Â
Despite their vastly different diagnosis journeys, interns Leah Popovic and Charlotte Cebula share common threads as college-aged members of the celiac disease community. In this episode, get to know two of our summer interns as they connect their work with Beyond Celiac to their own personal experiences with celiac disease.
Get to know how our Reach Beyond Celiac ambassadors have discovered helpful tips to live a gluten-free life.
Catalin Varela never allowed her celiac disease health crisis to hinder her ambitions. In this episode, Leah Popovic of Beyond Celiac speaks to Varela about her intense diagnosis journey which ignited a passion for nutrition, exploration and education. Now pioneering her own business based out of Florence, “The Celiac in Italy'' has lots to share with the community and beyond. Visit https://www.catalinvarela.com/ to view Catalin’s business.
Shanese Shields, also known as “DramaKueen,” across the internet, is well-known for her time on A&E’s “60 Days In,” as a voluntary inmate of an Alabama correctional facility. Leah Popovic of Beyond Celiac moderates this episode, where we learn more about her experiences as a woman with celiac disease and how her time on television has drawn attention to the unjust treatment of incarcerated individuals with autoimmune diseases and dietary restrictions. Visit youtube.com/c/DramaKueenVlog to watch some of Shanese’s content.
Kate Avery and Claire Baker of Beyond Celiac are joined by Doug Jacobstein, M.D. and Dan Leffler, M.D. for this town hall discussion, focusing on how patients are a pivotal aspect of developments in the celiac research community. Both panelists speak about their experiences with clinical trials and how new research can emerge with the help of patient participation.
In 2021, Beyond Celiac held a virtual mini conference entitled “Hidden in Plain Sight” to explore the numerous experiences faced by celiac patients, especially those who struggle with misdiagnosis or a missed diagnosis.Â
This episode (a recording from the mini-conference) centers on the invasive testing procedures endured by celiac patients, as well as the importance of accurate testing and scientific development. Along with Amy Ratner of Beyond Celiac, Hilary Jericho, MD and Isabel Hujoel, MD, share their professional opinions and ambitions.Â
In 2021, Beyond Celiac held a virtual mini conference entitled “Hidden in Plain Sight,” which explored the numerous experiences faced by celiac patients as they struggled to get diagnosed. This episode emphasizes the many neurological symptoms that often go overlooked as indicators of celiac disease. Panelists Gabrielle Zimmerman, Iain Croall (Ph.D.) and Nigel Hoggard (M.D.) expand upon their experiences and research in this focus area.
World-renowned pediatrician and celiac disease expert Dr. Stefano Guandalini sat down with us to answer your questions about celiac disease and the gluten-free diet. Even the most informed patients can learn something new from this episode!
In this episode, our male ambassadors discuss some of the unique challenges men face in getting diagnosed and living with celiac disease, as well as the stigma friends and family may have about the gluten-free diet.Â
Note: any use of the term "cross-contamination" should actually be "cross-contact."
“That advisory board concluded that race, ethnicity, age and gender can all cause delays in diagnosis, or, worse than that, a failure to diagnose at all.”
Amy Ratner of Beyond Celiac, Pooja Mehta, MD, of Children’s Hospital Colorado and patient representative Jocelyn Langevine discuss disparities in diagnosing celiac disease; how they happen, why they happen, and what we can do to get more people diagnosed.
Amy Ratner and Kate Avery, MPH, of the Beyond Celiac Science Team discuss the most exciting celiac disease research published in the past year and how clinical trials for celiac disease treatments are progressing.  Â
Note: The term "cross-contamination" used at timestamps 38:34 and 38:45 should be "cross-contact."
When it comes to getting a new diagnosis, friends can be your greatest ally or a crushing loss if they don’t understand your new needs. Our Reach Beyond Celiac Ambassadors discuss the ins and outs of how celiac disease can affect a friendship, old or new.Â
Note: at timestamps 17:14 and 18:33, the term “cross-contamination” should be “cross-contact.”
In this episode we sit down with Jennifer Sealey-Voyksner, co-founder and chief scientific officer at ImmunogenX, a biotech company developing latiglutenase, a potential treatment for celiac disease. Jennifer, who has celiac disease herself, discusses her journey to diagnosis, why a treatment beyond the diet is important, and how latiglutenase works.
Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey
Even without an autoimmune disease, parenting can be tough. But if you’re a parent of a child with a food restriction like the gluten-free diet, this episode is for you. It features our Reach Beyond Celiac Ambassadors explaining their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kid’s health, and how to get your little one the care and food they need, whether it’s at home, at school, or at a friend’s house.Â
Listen in to this thoughtful conversation between Amy Ratner of Beyond Celiac and Erica Dermer of Celiac and the Beast on some of the biggest changes in the celiac disease world since the 1990s, when Amy’s daughter was diagnosed. The pair also speculate about what the next decade or two might hold for our community.
Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey
In this episode we sit down with Lisa Fahey, MD and Betsy Turner, PhD from the Children's Hospital of Philadelphia (CHOP) to discuss pediatric care of celiac disease. The conversation covers topics like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care and so much more! Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/podcast
In this episode our Reach Beyond Celiac Ambassadors continue their conversation on how a celiac disease diagnosis can affect family relationships and give tips for eating together when some family members just don’t seem to understand your diagnosis.
Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/podcast
Our Reach Beyond Celiac Ambassadors discuss how a celiac disease diagnosis can affect family relationships and how to navigate eating safely when some family members just don’t seem to understand your diagnosis.
In this episode, Reach Beyond Celiac Ambassadors Bill, Lauren, Hayden and Clayton continue to discuss finding love when you have celiac disease. Â
This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began.
In the upcoming weeks, a small group of Reach Beyond Celiac Ambassadors will sit down and talk about living with celiac disease. In this episode, Bill, Lauren, Hayden and Clayton discuss finding love when you have celiac disease. Â
This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began.Â
In this edition, Beyond Celiac CEO Alice Bast sits down with Kari Wells, producer and former cast member on the Bravo show Married to Medicine. They dive into Kari’s celiac disease journey, discuss the benefits of travel, offer advice for the newly diagnosed, and reflect on what has improved in our community over the last 20 years. Â
Note: This episode and all episodes released in 2021 have been filmed over video chat in accordance with COVID-19 social distancing protocols.
In this episode of the Celiac Straight Talk podcast, Beyond Celiac CEO Alice Bast sits down with Miss Kansas USA Gracie Hunt as she recounts her transition from competitive athletics to the world of pageantry, and how her celiac disease journey has influenced her decisions along the way. This introspective conversation on unwanted, unexpected change and the stigma surrounding celiac disease has insights for anyone struggling to come to terms with a life that they could never have predicted.Â
Beyond Celiac CEO Alice Bast and Chief Scientist and Strategy Officer Dr. Salvatore Alesci sit down with News Reporter Diana Rocco to discuss the Beyond Celiac strategy for finding treatments toward a cure for celiac disease by 2030. Â To Beyond Celiac, a cure means those with celiac disease can live healthier lives and eat without fear. Our mission has evolved to one of advancing the science of celiac disease because we firmly believe that with a strategic approach to funding-focused research, an effective treatment or cure could be possible by 2030. With your support, Beyond Celiac will be the catalyst for the next wave of practical celiac disease research efforts.
Welcome to season three of the Beyond Celiac podcast, Celiac Straight Talk! We're excited to bring you more stories, research, and news about celiac disease.
Our first guest is Jessica Kapusta, an entrepreneur who's putting her experience with celiac disease to good use by developing delicious gluten-free sauces. COVID-19 put a hold on manufacturing, but you can get a sneak peek at the taste with her new cookbook, John + Jane's Sauces (excerpt below). What led her to start her own food business? What were her barriers in getting diagnosed with celiac disease? And what did preliminary taste tests of the sauces reveal? Click the play button and find out! John + Jane's Sauces: Pow Pow Sauce Ingredients: * 1 cup mayo * 1 tbsp hot sauce, chili oil, or red pepper flakes. Adjust quantity for heat preference * 2 tbsp lemon juice * 2 tsp garlic powder * 1 tbsp gluten-free soy sauce * 2 tsp maple syrup (can substitute honey, another sweetener, or leave out to make sugar-free)
Step 1 and done: whisk all the ingredients together! Where's Jessica? You can find Jessica on Instagram.
The first podcast of 2021! In this episode director of communications, Claire Baker spoke with Courtney and Mitchell Gaer about celiac disease in their family. Courtney speaks on her experiences as a mother caring for a child with celiac disease and the journey of how Mitchell was finally diagnosed. Mitchell speaks about what it's like being diagnosed and living with celiac disease as a young man. He is now in college and offers great advice on successfully living gluten-free as a college student. We also touched on non-celiac gluten sensitivity (aka gluten intolerance) which they believe Mitchell's younger brother has. We thank the Gaer family for sharing their story with us as it offers great insight and advice for those whose lives are affected by celiac disease and gluten intolerances.
We discussed Dr. Nadeau’s new book, The End of Food Allergy which is out now. Dr. Nadeau, who is on the Beyond Celiac Scientific Advisory Council answered viewer questions from the live stream and held a great conversation about different food allergies and diseases including...you guessed it! Celiac Disease. Download the Celiac Straight Talk Podcast on Itunes, Stitcher and Google Play Now!
The Gluten Free Destinations blog has become popular for those traveling on a strict gluten-free diet. Suzanne, the owner of the blog recently sat down with Beyond Celiac to share her experiences eating gluten-free around the world. She shares her own celiac disease story, tips and tricks for traveling on a gluten-free diet and more. You can find her Gluten Free Destinations blog at https://glutenfreedestinations.com/
Thanks to Suzanne for coming on! We enjoyed the conversation and hope you do as well. Enjoy.Â
Emma Leger was a part of Beyond Celiac's very first summer intern council (SIC) for college students. She was a big hit when she shared her story on Instagram as part of the SIC Instagram takeover, so we're thrilled that her and her mom came back to share their story on the podcast. We covered what its like being a parent of a child with celiac disease, what its like growing up with celiac disease, challenges faced while attending college on a strict gluten-free diet, Emma's experience working with Beyond Celiac, and lots more! Big thanks to Emma and her mom for coming on! We hope you enjoy.
In episode 23 of the Celiac Straight Talk podcast we welcomed Julie Kennedy, registered dietitian and owner of Julie Kennedy Nutrition. They discuss Julie's journey with celiac disease, her work as a registered dietitian and her connection to Beyond Celiac. Julie can be found on her website Juliekennedynutrition.com and on social media @Juliekennedynutrition. We really enjoyed this one and hope you do too! For all of your celiac related information please visit BeyondCeliac.org.
Beyond Celiac is taking our entire 2020 Step Beyond Celiac 5K series to the virtual streets with a multi-city tour for individuals and teams across the country to support celiac disease research efforts. Five event dates are planned between August and October! Join us for one or many with our 3 and 5 city tour options.
The Step Beyond Celiac 5K is a family-friendly event and fundraiser for Beyond Celiac. We encourage all participants to raise funds by running or walking 3.1 miles either in the event cities or right where you are in support of research efforts for treatments and a cure.
Lace-up your running shoes, train, raise money, and run (or walk) a 5K (3.1 miles) to improve the quality of life for children and adults affected by celiac disease.
All participants receive a Step Beyond Celiac 5K shirt if they register before the t-shirt deadline.
2020 5 City Tour 5k Schedule: * Boston – August 9 – 16 * Kansas City – September 13 – 20 * Philadelphia – September 26 – October 3 * Dallas – October 10 – 18 * Denver – October 18 – 25
We talked with Michael Savett of the popular Gluten Free Philly blog. Beyond Celiac Director of Communications Claire Baker talks to Michael Savett of Gluten Free Philly about gluten-free life, his son's journey growing up with celiac disease and getting gluten-free goodies at Philly stadiums.
Asia shares her personal story with celiac disease. Find out what its like being 18 years old living with celiac disease. Asia addresses some of the unseen struggles that many people face while living with celiac disease.
Part 2 On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists.
Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease.
Listen as the patient panel share their stories about what its like living with celiac disease.
Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease.
Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.
On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease.
Listen as the patient panel share their stories about what its like living with celiac disease.
Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease.
Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.
In this podcast, the Beyond Celiac book club (Claire, Amy, Maria and Bill) discussed In Memory of Bread by Paul Graham. A funny, poignant memoir of one man’s struggle to come to terms with his celiac disease diagnosis, forcing him to reexamine his relationship with food. This podcast was taken from the live zoom discussion held on the Beyond Celiac facebook page. The video can be found here.Â
This is a special Beyond Celiac Book Club (BCBC) edition. The discussion is on the book I Contain Multitudes: The Microbes Within Us and a Grander View of Life by Ed Yong. Video of our May 20th discussion can be found on our facebook page. Enjoy!
Claire and Arturo Chacon Cruz chat (and sing) about his experiences with celiac disease, life during the pandemic, celiac awareness month and more. Audio taken from their Facebook live video from May 19, 2020.
Valerie is on Beyond Celiacs patient and family advisory council. She is a Junior at Vanderbilt University and has celiac disease. In this weeks podcast Valerie talks about her journey getting diagnosed with celiac disease and the challenges she faced when looking at colleges.
Claire chats with Lindsey about her experiences with celiac disease. Both her and her young daughter have celiac disease. The conversation covers diagnosis, kids, family life and challenges faced. Beyondceliac.org
Beyond Celiac Book Club (BCBC) Edition A special Beyond Celiac book club discussion! The group read and reviewed brain on fire by Susannah cahalan. Audio taken from their live discussion on April 15th which can be found on the Beyond Celiac facebook page.Â
Kate and Amy did a facebook live to discuss two new surveys that are out now on the Go Beyond Celiac Database and app. They also talked about other subjects related to the Beyond Celiac science team.
Dr. Salvo Alesci returns to discuss treatments in the pipeline for the coronavirus as well as new coronavirus surveys on our Go Beyond Celiac database and app!
Salvatore Alesci, MD, PhD Beyond Celiac Chief Scientist and Strategy Officer gives his take on how the coronavirus is affecting those with celiac disease. Stay healthy. Stay informed. Stay Engaged. Audio taken from Dr. Alesci's facebook video which you can watch on our Beyond Celiac facebook page and our website. Send your feedback, comments or questions to podcast@beyondceliac.org.
Amy interviews Dr. Alan Ehrlich. Dr Ehrlich is a family physician and chair of the board of Beyond Celiac who has celiac disease himself. He is also on the faculty at the University of Massachusetts medical school in Worcester, Massachusetts.
Send your feedback, comments, or questions to podcast@beyondceliac.org.Â
March 11th, 2020 In this podcast our in-house experts sat down to address concerns regarding the coronavirus and people living with celiac disease. Are they more at risk? Later we took questions from followers related to the coronavirus and answered them live. The audio was taken from our March 9th Facebook Live which can be viewed on our website (Beyondceliac.org) or on our Beyond Celiac facebook page.
The coronavirus situation is rapidly changing and evolving. Stay tuned and up to date by checking our coronavirus page on our website.Â
Send your feedback, comments, or questions to podcast@beyondceliac.org.Â
Sign up to receive Beyond Celiac research news at: https://www.beyondceliac.org/research/sign-up-to-receive-research-news/
Nancy Falini, MA., RDN, LDN Nancy holds a Bachelor of Science Degree in Dietetics and a Master of Art Degree in Nutrition Education from California State University, Chico. Her internship experience took place at both a community hospital and a metropolitan childrens' hospital in California. Nancy Patin Falini, a registered dietitian, licensed dietitian nutritionist, national speaker, author/writer, and consultant is the founder/owner of Nutritional Graces, LLC. By incorporating nutrition and synergistic lifestyle modifications she has for decades educated, counseled, coached, conducted public speaking and consulting for organizations to promote holistic healing and health.
Visit Nancy's website www.nutrionalgraces.com
Email Nancy at nfalini@verizon.net
In this podcast we discuss Nancy's background with celiac disease and gluten sensitivities and answer some "is it gluten-free" questions from our followers.
Send your feedback, comments, or questions to podcast@beyondceliac.org.Â
Sign up to receive Beyond Celiac research news here.
Taken from our Voice & Visions series on Youtube. Listen as Dr. Silvester explains the Doggie Bag Study and why its important for the celiac disease research community. When you finish listening, head over to our site and read our updated article about the findings from the study. Thanks for listening! Sign up to receive research news Here
Send your feedback, comments and questions to podcast@beyondceliac.org.
Sign up to receive research news at Beyondceliac.org/research Send your feedback, comments or questions to podcast@beyondceliac.org
Visit Beyondceliac.org/podcast to hear other stories from the Beyond Celiac community
Most people who get diagnosed with celiac disease don't go back to their doctor for follow up care, shows a study done by Beyond Celiac and researchers from Columbia and Vanderbilt universities. Patients manage the diet and deal with whatever symptoms they suffer on their own. But what are the consequences? Is celiac disease silently doing damage that could lead to other autoimmune conditions? Are they being deprived of important vitamins and minerals? We examine these topics and look for ways to improve follow-up care. Sign up to receive research news at beyondceliac.org/research.
Send your feedback, comments, or questions to podcast@beyondceliac.org.
Visit beyondceliac.org/podcast to hear other stories from the Beyond Celiac community.
Produced by: Amy Ratner, Kim Pacini, Claire Baker, Christopher Snider
Candid community members talk about the one thing we never really discuss: cheating on the gluten-free diet. Habitual cheaters and one-timers share when and why they've strayed. Sign up to receive research news at beyondceliac.org/research.
Send your feedback, comments, or questions to podcast@beyondceliac.org.
Visit beyondceliac.org/podcast to hear other stories from the Beyond Celiac community.
Produced by: Amy Ratner, Claire Baker, Christopher Snider
There are well-established tests for identifying celiac disease. So why can it be so hard to get a diagnosis? Three Beyond Celiac community members take us through their stories, complete with misdiagnoses, unnecessary tests and procedures, and psychiatric evaluations. Sign up to receive research news at beyondceliac.org/research.
Send your feedback, comments, or questions to podcast@beyondceliac.org.
Visit beyondceliac.org/podcast to hear other stories from the Beyond Celiac community.
Produced by: Amy Ratner, Alicia Carango, Kristin Voorhees, Christopher Snider