The In My Words podcast series shares the stories of real patients, combined with clinical perspectives from health care professionals, to explain a condition, treatment pathway, or clinical trial… in their own words. It’s time we make health care a little less confusing, and empower patients and their care circle to make informed decisions and own their health.
Terri Byrne shares the struggles she has faced living in a region in Australia with limited access to medical treatments and support, her mental health, and what helps her cope. We are also joined by Nicole Parkinson from Lung Foundation Australia, who talked with us about common struggles for people living with lung cancer and what people can do to help them cope. This episode is part of a 4-part miniseries talking about lung cancer treatment; side effects; struggles and mental health; and relationships and support networks. We also talk about support resources that are available to people living with lung cancer. This episode was created using excerpts from our interviews with Terri Byrne and Lung Foundation Support Nurse Nicole Parkinson. This episode has been kindly supported by Lung Foundation Australia and sponsored by Bristol Myers Squibb.
Michel Itel shares his experience living with lung cancer and relationships and support networks. We are also joined by Nicole Parkinson from Lung Foundation Australia, who provides insights and tips on how people living with lung cancer can manage their relationships. This episode is part of a 4-part miniseries talking about lung cancer treatment; side effects; struggles and mental health; and relationships and support networks. We also talk about support resources that are available to people living with lung cancer. This episode was created using excerpts from our interviews with Michel Itel and Lung Foundation Support Nurse Nicole Parkinson. This episode has been kindly supported by Lung Foundation Australia and sponsored by Bristol Myers Squibb.
Valerie Davis shares her experience with lung cancer and treatment and we talk about immunotherapy and chemotherapy with A/Prof Clay, an expert on cancer and its treatment. This episode is part of a 4-part miniseries talking about lung cancer treatment; side effects; struggles and mental health; and relationships and support networks. We also talk about support resources that are available to people living with lung cancer. This episode was created using excerpts from our interviews with Valerie Davis and A/Prof Clay. This episode has been kindly supported by Lung Foundation Australia and sponsored by Bristol Myers Squibb.
©2021 Bristol-Myers Squibb. Bristol-Myers Squibb Australia Pty Ltd, ABN 33 004 333 322, 4 Nexus Court, Mulgrave, VIC 3170.
ONC-AU-2100089. Date of preparation: April 2021
Valerie Davis shares her experience with immunotherapy side effects and A/Prof Clay talks about what immunotherapy is and how it helps restore the immune system so the body can better fight lung cancer. This episode is part of a 4-part miniseries talking about lung cancer treatment; side effects; struggles and mental health; and relationships and support networks. We also talk about support resources that are available to people living with lung cancer. This episode was created using excerpts from our interviews with Valerie Davis and A/Prof Clay. This episode has been kindly supported by Lung Foundation Australia and sponsored by Bristol Myers Squibb.
©2021 Bristol-Myers Squibb. Bristol-Myers Squibb Australia Pty Ltd, ABN 33 004 333 322, 4 Nexus Court, Mulgrave, VIC 3170.
ONC-AU-2100090. Date of preparation: April 2021
Type 2 Diabetes: Health and Lifestyle
Trudy shares how type 2 diabetes has impacted health and lifestyle and how she made changes to her life after her diagnosis.
This episode is part of a 3-part series focusing on a different aspects of managing life with type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
MAT-NZ-2100010. Date of preparation March 2021. TAPS PP7426.
Type 2 Diabetes: Managing Your Diabetes, part 1
Trudy shares how she managed her type 2 diabetes with medication, focusing on insulin.
This episode is part of a 3-part series focusing on a different aspects of managing life with type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
MAT-NZ-2100010. Date of preparation March 2021. TAPS PP7426.
Type 2 Diabetes: Managing Your Diabetes, part 2
Trudy shares the challenges she faced controlling sugar levels.
This episode is part of a 3-part series focusing on a different aspects of managing life with type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
MAT-NZ-2100010. Date of preparation March 2021. TAPS PP7426.
This episode has been translated for a Spanish-speaking audience.
Support for this episode comes from Novo Nordisk.
Please click here for prescribing information.
Cathy shares what it is like to live with Glanzmann's thrombasthenia and how a treatment has helped her manage her condition.
Some topics discussed in this podcast may not be appropriate for children.
Multiple sclerosis, or MS, is a topic we've covered in the past. But, everyone's experience with the condition is unique. In our next two episodes, we hear from Astrid, an MS advocate who has been living with the condition for over six years. In this episode, we hear her diagnosis story, as she provides some helpful advice she's learned over the years. We also hear from Dr. John Parratt, a neurologist at Royal North Shore Hospital in Sydney, Australia, who provides a clinical perspective and advice from his years treating MS patients.
This episode is kindly supported by MS Australia and is sponsored by Roche Australia (Sydney).
Material number EC-AU-9369, prepared Apr2020.
Episode References:
Managing a chronic condition like multiple sclerosis can be complicated. In the second part of Astrid’s story, we hear about her experiences with disease symptoms and complications, treatment, supportive therapies, lifestyle changes, and support networks, all of which play a part in helping her and others with MS live well. We’ll again hear from Dr. John Parratt about what it’s like managing the condition, including explanations of treatment types and strategies for getting the support you need as a person living with MS.
This episode is kindly supported by MS Australia and is sponsored by Roche Australia (Sydney).
Material number EC-AU-9437, prepared Apr2020.
Episode References:
Support for this episode comes from Novo Nordisk.
Please click here for prescribing information.
Cathy shares what it is like to live with Glanzmann's thrombasthenia and how a treatment has helped her manage her condition.
Some topics discussed in this podcast may not be appropriate for children.
Luka goes on an adventure to learn how vernal keratoconjunctivitis affects the eyes and what he can do to manage it.
Support for this episode comes from Novo Nordisk.
Vaughn shares what it was like growing up with hemophilia and how medicine has helped him manage his condition.
You can also watch a video to learn more about the Ripley family.
Robbie takes a trip to the kidneys to learn more about how the kidneys work, what happens when they are damaged, and what treatments are available.
Daron shares the little things he does to help keep his blood sugars under control, while maintaining his university workload to avoid burnout. Nurse Joanna Naylor talks about the importance of informing your employers and co-workers about your condition, and of having a job you’re passionate about. Finally, Daron offers tips for diabetes management while travelling.
This episode is part of a 5-part series focusing on a different aspects of managing life with type 1 or type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
Disclaimer: These episodes are intended for a non-US audience. Units of measurement for blood glucose are referred to in mmol/L rather than the standard US mg/dL.
Daron and diabetes nurse, Joanna Naylor, discuss healthy relationships and the importance of educating family, friends, and flatmates on diabetes so they can provide extra support. They also talk about the transition period from parents managing your blood sugars to taking care of yourself.
This episode is part of a 5-part series focusing on a different aspects of managing life with type 1 or type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
Disclaimer: These episodes are intended for a non-US audience. Units of measurement for blood glucose are referred to in mmol/L rather than the standard US mg/dL.
Cody and Lexi learn about their father's lung cancer - how lung cancer affects the body, common symptoms, and how lung cancer is treated.
Daron shares how type 1 diabetes has impacted his exercise routines and how he keeps a positive mindset. Diabetes nurse, Joanna Naylor, explains how working with a diabetes practitioner can help improve mental health and overall blood sugar management. Daron and Joanna also discuss the potential dangers of drinking alcohol as a person living with T1D.
This episode is part of a 5-part series focusing on a different aspects of managing life with type 1 or type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
Disclaimer: These episodes are intended for a non-US audience. Units of measurement for blood glucose are referred to in mmol/L rather than the standard US mg/dL.
In his words, Karl shares his experience of being diagnosed with type 2 diabetes in his 30’s and how it has changed his life. Doctor Murphy debunks common myths and offers advice on successful T2D management.
This episode is part of a 5-part series focusing on a different aspects of managing life with type 1 or type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
Disclaimer: These episodes are intended for a non-US audience. Units of measurement for blood glucose are referred to in mmol/L rather than the standard US mg/dL.
Daron tells us the story of his diagnosis with type 1 diabetes at age 12 and how he’s learned to manage life after diagnosis. Diabetes nurse, Joanna Naylor, shares her clinical perspective and debunks some of the misconceptions and challenges surrounding living with the condition.
This episode is part of a 5-part series focusing on a different aspects of managing life with type 1 or type 2 diabetes and is kindly supported by Diabetes New Zealand and sponsored by Sanofi New Zealand.
Disclaimer: These episodes are intended for a non-US audience. Units of measurement for blood glucose are referred to in mmol/L rather than the standard U.S. mg/dL.
Jenny aprende cómo el asma afecta los pulmones, cómo manejar los ataques de asma, y qué médicas pueden ayudar a controlar el asma.
Samantha and her mom learn what to expect during a clinical trial, what permission is needed, and how participating in a clinical trial can help others.
Today we’re talking with Art Director Marcelo Ferreira about the work he does, the impact of bringing the stories of real kids and real families to life, and the evolution of creating comic books at Jumo Health.
Maggie learns about what happens before, during, and after an operation, and the surgical team who will be taking care of her.
T1D affects everyone differently, but often the 24/7 burden of diabetes management is not fully understood. Today we’re talking with two of our very own employees here at Jumo Health about their everyday reality of living with Type 1 diabetes.
Amy learns how ulcerative colitis affects your digestive system, what symptoms to expect, how to avoid triggers, and what treatment options are available to reduce flare-ups.
Jumo and the JED Foundation are teaming up to create more mental health resources for teens and young adults. We spoke with JED Foundation's executive director, John MacPhee, and psychiatrist, Dr. Victor Schwartz about what they are doing to expand the conversation, and about the resources available to help young people with mental health issues.
Tim learns how type 1 diabetes works in the body, what symptoms to expect and how to manage his blood glucose levels with insulin.
Through Dr. Dave, we learn the story of Alexandra, who shares her experiences living with cystic fibrosis and how her palliative care team made treatments easier for her and her family in the comfort of their own home.
Thomas and Bridget learn how metastatic breast cancer affects the body, and how chemotherapy, targeted biological therapy, hormone therapy, radiation therapy, surgery, palliative care, or clinical trials can help.
Learn how each member of your health care team takes care of you before, during, and after your hospital stay.
Corey learns about how the heart works, different types of congenital heart defects, and how heart defect symptoms are treated.
Medical procedures may sound scary. The Medikidz help Melissa conquer her fears by taking her on a journey through the human body to understand how PICC lines work and how to keep it clean and dry to avoid infection.
Jett learns how stem cells work and what happens before and after an autologous or allogeneic transplant.
Julia a high schooler with epilepsy is going off to college. She meets Brian, a college kid who has conquered this fear before. He shares his experiences of transitioning from a pediatrician to a new epilepsy team geared toward adults, and becoming more independent in epilepsy management.
Vincent learns more about how attention deficit hyperactivity disorder works in the brain and how ADHD is treated.
The Medikidz take Dean on a journey to the bone marrow to learn more about how blood cells work, symptoms and treatment of chronic myeloid leukemia (CML), possible side effects, and how to find more support.
Jenny learns more about how the ovaries work, how ovarian cancer affects the body, and how ovarian cancer is treated.
Charlie learns how leukemia is diagnosed, what it does to the body, and what to expect with leukemia treatment.
Kevin learns how blood transfusions work, when they are needed and how blood donors are chosen.
The Medikidz take Lucas on a journey through the bladder to learn more about how clean intermittent catheterization (CIC) works in boys, how to use a catheter properly, and how to avoid infections.
Kerianne, diagnosed with Crohn's disease as a teen, shares the ups and downs of her journey, incuding the side effects of medications, how her diet changed after surgery, what it was like living with a chronic illness in high school, and advice for other young adults living with Crohn's disease.
Learn more about Crohn's disease and another patient's story in our Understanding Crohn’s Disease comic book.
The Medikidz take Jackie on a journey through the bladder to learn more about how clean intermittent catheterization (CIC) works in girls, how to use a catheter properly, and how to avoid infections.
Chris takes a journey through the human body to learn more about his adrenal glands, hormone imbalance, and the symptoms and treatment of congenital adrenal hyperplasia (CAH).
Food allergies in kids are very common. Lilian takes a trip to the immune system to learn how the body fights germs, how food allergies are diagnosed, steps to take to avoid allergic reactions, how food allergies affect the body, and what to do in an emergency.
In part 3 of our mental health awareness month feature, we speak with Bring Change to Mind program manager, Leanne Loughran, about what they are doing to end the stigma and discrimination surrounding mental health. Gianna tells us how she got involved at her school.
The Medikidz take Ella on a trip to the lungs and pancreas to explain how the lungs and pancreas function, what cystic fibrosis does to the body, how genes work, and how cystic fibrosis is treated.
We're continuing the conversation with Gianna, who shares her experiences with depression, anxiety, and a suicide attempt, and Dr. Joshi, a child and adolescent psychiatrist at Stanford University Medical Center.
1 in 5 young adults has a diagnosable mental health condition; 50% of these begin by age 14. In this episode, we speak with Gianna, a junior in high school who has lived experience of depression, anxiety and a suicide attempt. She shared her story with us to help start a conversation and bring to light the realities so many of her peers face, but might be too afraid to talk about.
The Medikidz teach Cameron, June, and Marcus what happens in a clinical trial and how clinical trials help doctors and scientists find new treatments to help kids with different illnesses around the world.
Today, we talk to Dom, an advocate for people with disabilities who suffered a C 5/6 spinal cord injury, and Dr. Adrienne Epps, Senior Staff Specialist and Head of Rehab2Kids at Sydney Children’s Hospital Randwick, about love and relationships after a spinal cord injury. This type of injury and the changes that come as a result can take a toll on self-confidence. Listen in as Dom tells us about his experience.
For more information on sexuality following spinal cord injury, visit the Agency for Clinical Innovation website.
Today, we'll be focusing family and parents - an important topic for young people who have a spinal cord injury. In our last episode, Dom spoke of his experiences and struggles with maintaining independence on a personal level. Today, we’re going to concentrate on relationships with family members and the challenges that may arise when trying to maintain independence from the ones who love you most.
Led by Dom, a former member of the Royal Australian Air Force with a C5/6 spinal cord injury, today we’ll get into health and lifestyle, what Dom’s experience has been, and some helpful things to keep in mind. We’ll also be hearing from Dr. Adrienne Epps, Senior Staff Specialist and Head of Rehab2Kids at Sydney Children’s Hospital Randwick, who shares some suggestions and insights from a doctor’s perspective.
Everyone’s experience and prognosis after a spinal cord injury is different - no two injuries are the same! This can be extremely frustrating and confusing. But whether you have suffered a spinal cord injury, or have a friend or loved one who has, it may be helpful to hear the story and experiences of someone else.
Through our partnership with Northocott’s SpineCare Foundation, we met Dom Freestone, who tells the story of his C 5/6 spinal cord injury and life after, in his own words. Dom went from serving in the Royal Australian Air Force to being an advocate for himself and others living with disabilities - and he’s learned a lot along the way. There are 6 episodes, each focusing on a different aspect of life after a spinal cord injury diagnosis.
The sudden life changes that accompany a spinal cord injury can have a massive impact on your mental health. On this episode, Dom explains to us how he struggled and ultimately managed his depression, anger and fear. We also speak to Dr. Adrienne Epps, Senior Staff Specialist and Head of Rehab2Kids at Sydney Children’s Hospital Randwick, for additional strategies for coping with mental health challenges.
Dom, who suffered a C5/6 spinal cord injury when he was 23 years old, and Dr. Adrienne Epps, Senior Staff Specialist and Head of Rehab2Kids at Sydney Children’s Hospital Randwick, talk to us about self-care and independence. Though taking good care of yourself may often require the help and assistance of others, it’s important to take an active role in your care and do what you can to regain some of the independence that may have diminished since experiencing an injury.
Listen in as Dom tells us about a day in his life and the routine he follows with the help of his care team.
David needs help explaining his autism spectrum disorder (ASD) to his friends. Axon helps Nathan, Jeremy and Katie learn more about the signs of ASD, how people with autism process information, and how to help people with ASD live normal and happy lives.
Join Morgan on her journey to learn more about her mom's multiple sclerosis diagnosis, in this audiobook version of our award-winning comic book Understanding Multiple Sclerosis (MS).
The Medikidz take Steve on a journey through the human body to learn more about living with a rare bleeding disorder known as hemophilia, preventing bleeds, and how to explain it to his friends and family, in this audiobook version of our award-winning comic book Understanding Hemophilia.
Kyle takes a journey through the human body to learn more about living with urea cycle disorder (UCD), in this audiobook version of our award-winning comic book Understanding Urea Cycle Disorder (UCD).
Medical procedures can be scary. In this audiobook version of our award-winning comic book Understanding CT Scans, the Medikidz help Megan overcome her fear of getting a CT scan.
Tara learns what it means to be diagnosed with epilepsy and how to manage her seizures and other epilepsy symptoms and triggers in this audiobook version of our award-winning comic book Understanding Epilepsy.
Damon is an expert in managing his childhood cancer, osteosarcoma (bone cancer), but his sister Dara is scared and confused. The Medikidz help him explain what cancer does to the body, cancer treatment and how to support him in this audiobook version of our award-winning comic book Understanding Osteosarcoma.
Sasha learns about her brother's chronic illness and how to be a supportive sibling, in this audiobook version of our award-winning comic book Understanding Chronic Illness.
The Medikidz take Raj on a trip through the human body to better understand how Crohn's disease/colitis affects the body and how he can manage it, in this audiobook version of our award-winning comic book Understanding Crohn's Disease.
Zainab and Theo's science homework turns into a journey into the human body where they learn about the causes of infections and how to fight them, in this audiobook version of our award-winning comic book Understanding Infections.
Medical procedures can sound scary. The Medikidz help Freddy overcome his fears about having a blood test, in this audiobook version of our award-winning comic book Understanding Blood Tests.
The Medikidz teach Cameron how attention deficit hyperactivity disorder (ADHD) affects his behavior and how he can manage it in this audiobook version of our award-winning comic book Understanding ADHD.
Gabriel is living with obsessive compulsive disorder (OCD). He and the Medikidz take a trip through the human body to teach newly diagnosed Tia about OCD symptoms, triggers and treatment in this audiobook version of our award-winning comic book Understanding Obsessive Compulsive Disorder (OCD).
Zeke takes a trip through the human body to learn about the causes and symptoms of pneumonia, how the immune system works, how to treat severe pneumonia and lower your risk of getting it, in this audiobook version of our award-winning comic book Understanding Pneumonia.
It important to have the support of friends and family when you find out you or a family member has cancer. The Medikidz help Alex explain to his classmates how cancer affects the body, different types of cancer treatments and the possible side effects, in this audiobook version of our award-winning comic book Understanding Childhood Cancer.
Zoe runs out of her ballet class because she is embarrassed about her skin condition. The Medikidz take Zoe on a trip through the human body to explain psoriasis symptoms, triggers, treatment and how to talk about psoriasis with others in this audiobook version of our award-winning comic book Understanding Psoriasis.
Eleanor has an invisible illness. She doesn't know why she feels too sore to play soccer with the other kids. The Medikidz take her on a journey through the human body to help her understand the symptoms of juvenile idiopathic arthritis (JIA), and explain this chronic illness to her friends. Listen to this audiobook version of our award-winning comic book Understanding Juvenile Idiopathic Arthritis (JIA).
Tiahna takes a trip to the bone marrow. She learns how sickle cells are formed, how sickle cell disease affects the body, how to manage pain and other symptoms and how to explain her sickle cell anemia to her teammates when she has to miss a game or two, in this audiobook version of our award-winning comic book Understanding Sickle Cell Disease.
Jenny learns more about her asthma diagnosis, what can trigger an asthma attack and how to prevent it from happening, in this audiobook version of our award-winning comic book Understanding Asthma.
This episode of In My Words brings together college students for a guided discussion led by professional Moderator Michael Vigeant, to hear their stories of managing their type 1 diabetes on their own - with clinical commentary from Dr. Siham Accacha, Certified Diabetes Educator.
Listen to Part 1.
Our inaugural episode brings together college students for a guided discussion led by professional Moderator Michael Vigeant, to hear their stories of managing their type 1 diabetes on their own - with clinical commentary from Dr. Siham Accacha, Certified Diabetes Educator.
Listen to Part 2.
Teaser episode about the evolution from Medikidz and its signature comic book line distributed to 50 countries in 30 languages, to Jumo with its digital platform of podcasts, videos, apps, and enterprise solutions.