Aunty M Brain Tumours Talk Show: Recent Episodes
Claire Bullimore
Hi, I am Claire Bullimore, founder of Aunty M Brain Tumours and I am here to give a platform for brain tumour sufferers, survivors, family or friends to share their stories. Also interviewing a number of brain tumour charities, support groups.
Find out more about Aunty M Brain Tumours at https://auntymbraintumours.com/
Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients.
In this episode of Aunty M Brain Tumours Talk Show, Johnathan shares his brain tumour story. Johnathan experienced a sudden and severe onset of symptoms the day before Thanksgiving, leading to an unexpected diagnosis of glioblastoma multiforme (GBM).
Johnathan recalls the ordinary start with what he assumed were hereditary migraines. Still, he details how things took a severe turn when he could no longer comprehend text and experienced severe dizziness and vertigo, prompting an emergency room visit. This visit quickly escalated as medical tests revealed a mass on his brain, leading to urgent referrals and treatments that upended his life.
Despite the shocking and rapid progression of his condition, Johnathan talks about the ongoing treatment, including surgery and the use of an Optune device, and how these have impacted his daily life. He also touches on the emotional and psychological effects of his diagnosis, both on himself and his family.
Throughout the conversation, Johnathan shares insights into his coping mechanisms, including starting a blog to share his experiences and connect with others in similar situations. He emphasizes the importance of community support, positive thinking, and adapting to a "new normal."
Visit Johnathan's blog and connect with him here www.johnvsgbm.com
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Welcome to Day 29 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. Today, Pamela shares her poignant journey from diagnosis to recovery and beyond. Pamela introduces us to Brain Tumour Ireland, the sole charity in Ireland dedicated to supporting individuals and families affected by brain tumours. Unfunded by the government, this small charity plays a big role in the community, from raising awareness to providing support and information. Pamela shares how the charity has been a pillar of support, offering resources, connections, and hope during her journey.
Find out more:
Brain Tumour Ireland
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Welcome to Day 28 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. In today’s heartfelt episode, we are joined by Laura. Laura shares her intense and emotional journey with a brain tumour, from the first symptoms during pregnancy to her current battles with the disease. Her story is a tale of personal struggle, a beacon of hope, and the importance of awareness.
Find Laura:
TikTok
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Hayley Conroy shares her granddaughter Lily's compelling story in this episode of Aunty M Brain Tumour's Talk Show. Lily's early life hinted at no challenges until her family started noticing unsettling signs a few weeks post-birth. Despite being a happy and active baby, Lily struggled with feeding issues and an unexplainable high-pitched scream, leading to a misdiagnosis of lactose intolerance. This episode delves into the trials and tribulations faced by Lily and her family, from initial feeding difficulties to a shocking diagnosis of an Optic Pathway Glioma, a type of Brain Tumour coupled with Diencephalic syndrome.
Contact Hayley HERE
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In this episode of Aunty M Brain Tumour's Talk Show, Brenda shares her journey of being diagnosed with a brain tumour and undergoing surgery and radiation treatment. She talks about the strange symptoms leading up to the diagnosis, including memory lapses and severe headaches. Brenda's resilience shines as she discusses her recovery and a newfound appreciation for life. She also emphasizes the importance of seeking multiple medical opinions and cherishing the support of loved ones. Through her advocacy work with the National Brain Tumor Society, Brenda strives to raise awareness and provide hope for others facing similar challenges.
Find Brenda on her website: HERE
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In this podcast episode of Aunty M Brain Tumours Talk Show, we speak to Matthew. Matthew recalls an ordinary Thursday in October 2023, playing football and feeling fit, only to experience what he describes as being struck by lightning 60 minutes into the game. This moment marked the beginning of a completely heart-wrenching journey for him, leading to the diagnosis of a brain tumour.
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In this podcast episode of Aunty M Brain Tumours Talk Show, Mel Kelly shares her journey from the initial misdiagnoses of persistent headaches and vision loss to her brain tumour diagnosis on December 19, 2022. Despite the shock and challenges, including a crucial surgery just before Christmas and the struggle to regain her driving license, Mel's story is one of encouragement for awareness.
Post-recovery, Mel actively participates in fundraising and awareness campaigns, notably organizing a 12-mile walk and raising funds for The Brain Tumour Charities. She also supports "It's a No Brainer," advocating for a national brain tumour strategy. Mel's experience highlights the importance of support, awareness, and advocacy in battling brain tumours.
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In this podcast episode of Aunty M Brain Tumours Talk Show, Kimberley talks about her Astrocytoma diagnosis and the support she has found in brain tumour charities. Especially in The Brain Tumour Charity and Brain Tumour Support.
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In this podcast episode of Aunty M Brain Tumours Talk Show, Stefania shares her meningioma story from the first symptoms to the diagnosis, treatment, and ongoing challenges she faces. She highlights the crucial role of support systems like the charity Brain Tumor Support.
Join the urgent SOS Appeal.
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In this podcast episode of Aunty M Brain Tumours Talk Show, Yaron shares his extraordinary journey of facing a Glioblastoma Multiforme diagnosis at 29. Yaron's story is not just about survival; it's a testament to the power of medical intervention. Yaron recounts the subtle symptoms that initially appeared in 2003, including frequent headaches and a peculiar incident of temporary leg weakness. Despite these signs, Yaron was deeply engrossed in his work, notably contributing to the sequencing of the SARS genome. His life took a sharp turn when he experienced a grand mal seizure, leading to his diagnosis with a Glioblastoma Multiforme intertwined with oligodendroglioma elements.
Website:
Yaron's
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In this podcast episode of Aunty M Brain Tumours Talk Show, Paris Dancy shares his battle with a pituitary tumour. Starting in 2013, Paris began experiencing symptoms like weight gain and severe headaches, which he initially attributed to stress from his demanding job as an investigator. He was finally diagnosed with a pituitary tumour. The diagnosis led to surgeries, including gamma knife radiation. Post-surgery, he faced a new challenge with Cushing's syndrome, likely induced by the combination of the tumour and steroid treatments. Opting against hormone replacement therapy in 2018, Paris embraced a natural route to recovery, leveraging his personal experience to help others facing similar health challenges.
Find Paris online:
Website - GTP.COACH
TikTok
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In this podcast episode of Aunty M Brain Tumours Talk Show, Charlotte and her mother, Alison, share their deeply personal journey following the loss of John, Charlotte's father and Alison's husband, to a brain tumour. Their story is a tribute to John and an enlightening discussion on the importance of brain tumour awareness.
Find John's Crew On Facebook
Just Giving Page - Donate Here
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In this podcast, Susan Hitchmough discusses her journey of being diagnosed with an Acoustic Neuroma in 2021. She talks about her initial symptoms, diagnosis challenges during COVID-19, treatment, and lingering side effects.
Susan shares her recovery story and involvement in The Beyond Recovery Project, a non-profit community supporting brain tumour survivors. She encourages listeners to visit the project's website for support or involvement.
Inspiring and Empowering Brain Tumour SurvivorsThe Beyond Recovery Project
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In today's Aunty M Brain Tumours Talk Show episode, we speak to Brain and his wife, Emma. Brian was diagnosed with Oligodendroglioma in 2017; they talk about the process of surgery, radiotherapy, and chemotherapy and the ensuing challenges, such as memory issues, fatigue, and migraines. They emphasize the couple's engagement with Brain Tumour Research communities and charity initiatives, showcasing the power of resilience, support networks, and the impact of living with a brain tumour.
Find Emma's Fundraising Page: Fundraising Page
Find out more about Walk of Hope
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In this Aunty M Brain Tumour’s Talk Show episode, we have guest Rudy Fischmann. He discusses his brain tumour journey. He was diagnosed with a Grade 2 Diffuse Astrocytoma in 2018, which led to a Grade 3 Astrocytoma. Despite facing numerous challenges, including surgeries, radiotherapy, chemotherapy and insurance hurdles, Rudy maintains a positive outlook. He emphasizes the importance of physical activity, adapting to new circumstances, and not letting the diagnosis define one’s identity. Rudy also shares his project, a Cancer-Themed Rock Opera aimed at raising funds for Teen Cancer America and the Teenage Cancer Trust. He invites others to join him in this creative endeavour. Through his story and projects, Rudy inspires others to remain proactive and hopeful, regardless of the hurdles they face.
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In this inspiring episode of the Aunty M Brain Tumours Talk Show, Grace shares her incredible journey of overcoming a Pilocytic Astrocytoma, shedding light on the importance of Brain Tumour Awareness Month. From unusual symptoms to diagnosis, treatment, and life after recovery, Grace's story is a testament to resilience, self-advocacy's importance, and community support's power.Find Grace here:
Sponsor Grace - Twilight Walk
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Henna shares her brain tumour story in this impactful episode of the Aunty M Brain Tumours Talk Show. She bravely shares her journey with a brain tumour. As part of Brain Tumour Awareness Month, Henna's story underscores the importance of symptom awareness, the complexities of diagnosis, and the challenges of navigating the healthcare system, especially during the COVID-19 pandemic.
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Today, we have the incredible Natalie Welch sharing her brain tumour story. Natalie was diagnosed with an acoustic neuroma in 2009. She shares her diagnosis, treatment, and recovery journey.
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In this episode, we listen to Rebecca's amazing journey through health challenges like Lyme disease, chronic fatigue, brain tumours, and recovering from a stroke. Her story starts with an illness in 2013 that led to misdiagnosis and a critical seizure that revealed a brain tumour. Despite severe setbacks, including speech and motor skill difficulties and dealing with vertigo, Rebecca's tale is filled with determination and hope. She talks about the immense support she received, her advocacy for better healthcare, and her part in the book "Birthing the Butterfly: A Woman of Wisdom," showing the strength found in hope and community support.
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In this Aunty M Brain Tumours Talk Show episode, we speak to Simona Stankovska about her fight against Cavanoma—a brain lesion—misdiagnosed due to seemingly ordinary symptoms. Her journey from misdiagnosis to undergoing critical brain surgery highlights the healthcare challenges and personal upheaval a Cavanoma diagnosis brings, including paralysis and the arduous path to recovery.
Simona's experience, which led to the founding of 'The Cavanoma Society,' showcases her resilience and dedication to supporting others in similar situations.
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In this Aunty M Brain Tumours Talk Show episode, we speak to Molly; she shares her diagnosis, treatment and recovery. Molly was diagnosed with an astrocytoma; her story unfolds from a serendipitous trip to Thorpe Park, where the G-force from roller coasters inadvertently led to the discovery of her tumour to the challenging path of diagnosis, surgeries, and recovery. From a series of misdiagnoses, including celiac testing and dismissals of her symptoms, to the eventual lifesaving surgeries and treatments she underwent, Molly's tale is one of hope and the power of medical intervention at critical moments. Her experiences highlight the importance of awareness, early detection, and the support of loved ones in facing such daunting challenges.
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In this Aunty M Brain Tumours Talk Show episode, we speak to Ashleigh, about coping with her father's long battle with cancer, which ultimately led to a devastating diagnosis of brain cancer. Ashleigh shares the emotional rollercoaster of her father's initial diagnosis of thyroid cancer, the subsequent spread to his lungs, and the final discovery of brain tumours after he started exhibiting symptoms like severe headaches, memory issues, and mood swings. Despite the challenges, Ashleigh talks about the resilience and strength her father demonstrated, his desire to maintain his independence, and how these experiences influenced her path of grief and healing.
Links Mentions:
Ashleigh Hunter - Website
Buy A Copy Of 'A Different Day' - Paperback
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In this Aunty M Brain Tumours Talk Show episode, we speak to Lucy, who shares her brain tumour diagnosis, treatment, and recovery. Lucy recounts the moment of having a seizure at home, leading to the discovery of a mass in her brain, and walks us through the subsequent steps of her medical journey, including surgery, radiation, and chemotherapy. Despite the challenges, including fatigue, hair loss, and the emotional toll of facing a life-altering diagnosis, Lucy discusses the impacts of her treatment on her daily life, her experiences with medications, and the support she's found in online communities.
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In this episode of the Aunty M Brain Tumours Talk Show, we speak to, Stephanie, who shares the impact of brain tumours by sharing Stephanie's experience with her mother's diagnosis and treatment. The story begins with Stephanie's early realization of her mother's illness, leading to a diagnosis of a brain tumour. This episode explores the emotional and physical challenges faced by Stephanie's family, the changes in dynamics at home, and the long-term effects on Stephanie's mental health and personal development. It highlights the importance of support, understanding, and therapy in navigating the aftermath of a loved one's serious illness. Stephanie's journey through therapy, her struggles with anxiety, and her path to resilience emphasize the critical need for awareness, support, and research in the fight against brain tumours.
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In this episode, we hear the inspiring story of Kiera Mitchell, who was diagnosed with Medulloblastoma at 19. Kiera recounts her initial symptoms, the shock of her diagnosis, and the gruelling journey through treatment, including a 15-hour craniotomy and challenging chemotherapy. Despite facing physical and emotional hurdles, including partial paralysis and depression, Kiera's resilience shines through.
She shares her rehabilitation journey, the support from her mother and community, and how she found solace in makeup and fitness. Kiera's story is a testament to the power of perseverance, the importance of support, and the unyielding spirit of a young woman determined to reclaim her life.
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In this Aunty M Brain Tumours Talk Show episode, we speak to Jamie, an Astrocytoma warrior. This episode highlights the challenges faced by those living with Astrocytoma and sheds light on the advancements in medical treatments and the importance of community support.Key Takeaways:- The importance of awareness and research funding for brain tumours.- The value of a strong support system and community resources.- The critical role of second opinions and staying informed about treatment options.- The advancements in medical technology that offer hope to those diagnosed with brain tumours.Find Aunty M Brain Tumours online:
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In this episode of the Aunty M Brain Tumours Talk Show, we're diving deep into the heart of Brain Tumour Awareness Month. Our mission? To shine a spotlight on a critical issue that often flies under the radar, despite its significant impact. In today’s episode, we're speaking to Holly; she shares her symptoms, treatments and recovery. Holly was diagnosed with a central neurocytoma amid the COVID-19 pandemic. She wants people with the same tumour to not feel so alone.
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In this episode of Aunty M Brain Tumour's Talk Show, we welcome David, who will discuss his brain tumour symptoms, diagnosis, treatment, and recovery. David's story is one of determination and medical breakthroughs.
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In this episode on the Aunty M Brain Tumours Talk Show, we speak to Kate Beddow. She opens up about her life-changing journey with a Pituitary Tumour and Acromegaly. From the confusion of initial symptoms to the shock of diagnosis and the miraculous joy of motherhood against all odds, Kate's story is a positive story that will give others hope.
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Melinda's life took an unexpected turn when she was diagnosed with a meningioma in her brain's Posterior Fossa, a type of brain tumour. Initially misdiagnosed as migraines, she faced walking difficulties, violent headaches, and blurred vision. Rushed to the hospital, she underwent emergency surgery to address swelling caused by the tumour. Further surgery removed 80% of the tumour.
During her hospital stay, Melinda encountered challenges, including allergic reactions to medications. Nevertheless, her strong faith and the power of prayer provided comfort. After a month, the tumour miraculously reduced in size without further treatment. This experience strengthened her faith and changed her outlook on life, inspiring her to help others and embrace positivity.
Melinda now lives tumour-free, cherishing the lessons learned and valuing each moment. She advocates treating others with kindness, giving back, and forgiving readily. Her journey reminds us to appreciate life's gifts and face adversity with hope and positivity.
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In this episode of Aunty M Brain Tumour's Talk Show, we have guest Maxine. We talk about her doctors mistaking her initial symptoms for perimenopause to undergoing a full craniotomy to remove a brain tumour. Maxine's story highlights the challenges of diagnosis, the emotional and physical toll of treatment, and the importance of support from healthcare professionals, friends, and family. Through her experience, we explore the significance of raising awareness, the impact of support networks, and Maxine's contributions to 'Brain Tumour Research' fundraising. This episode is a call to action to spread awareness and support research, underscored by Maxine's powerful testimony and message of hope.
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In this episode of the Aunty M Brain Tumours Talk Show, Zach Round shares his brain tumour diagnosis. Discovered after a mountain biking accident, Zach talks about his surgeries, complications, and meningitis. Facial reconstruction surgeries and challenges unfold, accompanied by the unwavering support of his family. Zach's passion for mountain biking becomes both distraction and focus during recovery, with insights into coping strategies. The podcast encapsulates Zach's end goal of connecting with survivors, offering inspiration, and instilling hope. The episode concludes with Zach's powerful analogy of facing life's storms, leaving listeners with a message of hope and gratitude for supportive loved ones.
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In this episode of the Aunty M Brain Tumours Talk Show, we hear from Garrett Miller, who shares his moving story of being diagnosed with a brain tumour as a child. He recounts his early symptoms, like seizures that were initially dismissed as fainting spells, leading to the shocking discovery of a brain tumour after a grand mal seizure. Garrett describes the struggles and fears he faced, including surgeries that resulted in partial paralysis. He talks candidly about the physical and emotional struggles during his recovery, the return of seizures during his college years, and the impact on his work and social life. Despite these hardships, Garrett finds solace in nature and is currently studying forestry and wildlife management. The episode delves into his mental health journey, highlighting the importance of therapy in understanding and coping with the effects of his brain tumour. Garrett expresses gratitude to those who've supported him, including therapists and friends.
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In this episode of the Aunty M Brain Tumours Talk Show, we hear from Andy Tudor, who shares his personal battle with a brain tumour. Initially dismissing his symptoms as age-related, Andy's life took a dramatic turn when he was diagnosed with a meningioma. He recounts the challenging period leading to his diagnosis, the impact of waiting for surgery, and the relief steroids brought to his symptoms. Post-surgery, Andy discusses his recovery and also delves into his decision to retire due to fatigue and his subsequent dedication to volunteering. Andy's story is one of inspiration, highlighting the importance of support and community in navigating life with and after a brain tumour.
Links Mentioned:
Brainstrust peer support: HERE
Become a Volunteer for Brainstrust: HERE
Become a volunteer for The Brain Tumour Charity HERE
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In this episode of Aunty M Brain Tumour's Talk Show, in this deeply personal and inspiring episode, Marcus Elwell, father of three, shares his journey through a tumultuous period in 2019, marked by forgetfulness, stress, and the challenges of running a retail business amid the Brexit scenario. The episode delves into his struggles with health, the initial diagnosis of vertigo, and the eventual discovery of a brain tumour. He talks about the importance of habits, routine, and meditation in navigating his life's challenges, including the physical and mental recovery post-surgery. The episode is a profound exploration of resilience, personal growth, and the power of a positive mindset.
“I want not just to survive, I want to thrive” - Marcus Elwell
JustGiving Page: CLICK HERE
Rewiring Couching: CLICK HERE
Instagram: CLICK HERE
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In this episode of Aunty M Brain Tumour's Talk Show, we have two guests, Michelle and Karina, who both have optic nerve gliomas, a type of brain tumour. They share their experiences of being diagnosed and their treatment journeys. They emphasize the importance of finding support and not feeling alone in their journey. They also discuss their Instagram page, ONG Awareness, where they raise awareness about optic nerve gliomas and connect with others who share similar diagnoses. Overall, the show highlights the challenges and resilience of individuals facing brain tumours and the importance of support and faith in their journeys.Find Michelle and Karina on Instagram: @ongawareness
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In this episode of Aunty M Brain Tumour's Talk Show, Israr Jan-Parker shares her journey of being diagnosed with a Clevel Meningioma, a rare brain tumour. Initially, her diagnosis was unexpected as she had sought medical attention for chronic back pain. The tumour was affecting critical structures in her brain, causing various health issues. Israr's traumatic life events accelerated the tumour's growth, leading to severe symptoms.
Israr describes her 16-hour surgery to remove the tumour and the challenges she faced during recovery, including visual impairment, balance issues, and hearing problems. She emphasizes the importance of patience and determination in her ongoing journey to regain her independence and strength.
Israr also discusses her efforts to raise awareness and funds for Brain Tumor Research. Despite the hurdles she faces, Israr remains positive and encourages others to share their stories to help those going through similar experiences.
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The "Aunty M Brain Tumours Talk Show" is an informative and inspiring podcast featuring discussions about brain tumours and the experiences of those affected by them. In this episode, Sam shares her journey with brain tumours, beginning with her diagnosis in June 2013. She initially experienced symptoms like pulsatile unilateral tinnitus, balance problems, odd posture, and back and abdomen pain. Sam went through multiple medical appointments, leading to the discovery of two brain tumours—one in her cerebellum and another in the occipital lobe. The one in her cerebellum was surgically removed, but she continues active monitoring.
Sam discusses the psychological challenges of living with the uncertainty of her condition and the possibility of future surgeries due to her diagnosis of neurofibromatosis type 2. She highlights the importance of a support network, her new partner, friends, and counselling in coping with these challenges. Sam also talks about the impact of fatigue, speech difficulties, and clumsiness on her daily life.
The conversation touches on the significance of some people in naming their tumours, the need for knowledge and control, and the kindness of caregivers during hospital stays. Sam's story exemplifies resilience and the diverse ways individuals cope with life-changing diagnoses.
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In this Aunty M Brain Tumour’s Talk Show episode, we speak with Dr Christopher McConville, an expert in drug delivery for cancer treatment, who is dedicated to addressing the challenges in brain tumour and pancreatic cancer therapy.
These cancers have seen little improvement in survival rates due to drug delivery issues. McConville's team has developed "ChemoSeed," an implantable drug delivery device, initially using Irinotecan, designed to be placed directly into tumour tissue during surgery.
Their preclinical work is promising, but funding is needed for clinical trials to extend high-grade glioma patient survival without harmful side effects. Public awareness and philanthropic support are crucial for advancing this innovative approach and encouraging young researchers to join the field.Contact:Dr Christopher McConvilleEmail: chrismcconville@extrudedpharmaceuticals.com
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In this Aunty M Brain Tumours Talk Show episode, we speak to Hugh Adams from the charity Brain Tumour Research. He talks about their goal to reach 100,000 signatures by Wednesday. They already have well over 70,000 signatures but need one last push with your help.
Sign and share the petition HERE
Hugh talks about the power of Petitions and why the public can make history with this last push.
"We are calling on the Government to ring-fence £110 million of current and new funding to kick-start an increase in the national investment in brain tumour research to £35 million a year by 2028 Sign and share the petition" - Brain Tumour Research
Sign and share the petition HERE"Brain tumours kill more children and adults under the age of 40 than any other cancer yet, since records began in 2002, just 1% of the national spend on cancer research has been allocated to this devastating disease"- Brain Tumour ResearchSign and share the petition HERE
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In this Aunty M Brain Tumour's Talk Show episode, we have guest Arvin Koshal. He revealed his battle with Diabetes Insipidus and the discovery of 6 tumours on his right optic nerve. His tumour was found by chance after a car accident he was in. Following radiotherapy, he found himself in a new world of new friends, also affected by a brain tumour. Musically talented, inspired by his sister Avena, he began playing the ukulele and supports charitable causes with his music. Associated with the Silver Linings charity, he advocates for brain injury patients. Arvin stresses the value of perseverance and the significance of a support system, thanking his family.Find Arvin here: Website Instagram
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In this Aunty M Brain Tumour's Talk Show episode, we have guest Ellen Yates. Ellen reflects on her acoustic neuroma diagnosis, discussing initial symptoms, and misdiagnoses. She emphasizes the emotional toll, urging self-compassion for those with brain tumours. Ellen's fundraising efforts aim to combat isolation, support survivors, and honour her late friend's memory. Despite emotional challenges, she remains committed to making a positive impact. The interview highlights the hidden nature of brain tumours.
"I crocheted and donated to Brainstrust. I have crocheted the little 'female' BT awareness gnome with blonde coloured hair in memory of my best friend Dawnie who sadly lost her life to brain cancer" - Ellen
Here is Ellen's Fundraising page: Gnomes
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In this Aunty M Brain Tumour's Talk Show episode, we have guest Rudy Fischmann. He discusses his brain tumour journey. He was diagnosed with a Grade 2 Diffuse Astrocytoma in 2018, which led to a Grade 3 Astrocytoma. Despite facing numerous challenges, including surgeries, radiotherapy, chemotherapy and insurance hurdles, Rudy maintains a positive outlook. He emphasizes the importance of physical activity, adapting to new circumstances, and not letting the diagnosis define one's identity. Rudy also shares his project, a Cancer-Themed Rock Opera aimed at raising funds for Teen Cancer America and the Teenage Cancer Trust. He invites others to join him in this creative endeavour. Through his story and projects, Rudy inspiresothers to remain proactive and hopeful, regardless of the hurdles they face.
Find Rudy here:
That Cancer Life - Substack
That Cancer Life - YouTube
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We can all get overwhelmed with the day to day challenges. If you have been affected by a brain tumour you are more than likely finding relaxing impossible?
Nigel Lowson has shared his experience on the Aunty M Brain Tumours Blog Here:
Part 1
Part 2
Find out more about Nigel's courses here: https://zest-online.thinkific.com
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Aunty M Brain Tumours interviews Dr Helen Bulbeck, Founder and Director of Services and Policy from Brainstrust.
Who is Brainstrust: "brainstrust is here to help you live life with a brain tumour. We know that when you hear the words “you have a brain tumour”, you need support from people who not only understand the fear, confusion and isolation but who can empower and resource you to overcome it."
Helen shares her love for supporting people affected by a brain tumour.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Joss Fleming talks about her brain tumour experience and how she now loves raising funds for the The National Brain Appeal which is part of the The National Hospital for Neurology and Neurosurgery. Joss was a patient on the dedicated Brain Tumour Unit and had her surgery in the Internationale MRI operating theater. Both of which are innovations funded by The National Brain Appeal.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Tariza Dauntseau tells us about The National Brain Appeal. A charity dedicated to raising vital funds for The National Hospital for Neurology and Neurosurgery, and the UCL Queen Square Institute of Neurology. Since the charity began in 1984 they have raised over £45m for state-of-the-art equipment, major building programmes and life-saving research.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
We are joined by Ellie's Fund – Brain Tumour Trust was set up after the death of 14 year old Ellie Othick-Bowmaker. During the 3 years that she fought her 2 brain tumours, Ellie helped to raise over £25,000 for Brain Tumour Research (BTRS).
"We provide assistance to families who live in Yorkshire and across the Humber and who have a child going through treatment for a brain tumour. We also support families within the Borough of Scarborough (UK) who have a child with any form of cancer. We raise awareness about brain tumours and support established research projects".
Don't forget to check out the Aunty M Brain Tumours Website.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Will Jones the Chief Executive ofBrainstrust talks about what Brainstrust do and how they can help you.
"We’re here to help you live life
with a brain tumour" - Brainstrust
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You can also find out more about Dawn on the Aunty M Brain Tumours Blog - Click Here
Be inspired by Tyler Eillis. A young man who has been battling a brain tumour since he was 12. He talks about being diagnosed and how he really wants to support others children who are unwell. Tyler and his mother Janice set up Tyler’s Trust . A charity that give gift boxes to local children with life threatening illnesses, they also do boxes for siblings. In addition to this they supply local hospitals with emergency overnight parental bags in Chichester and Worthing.
Don't forget to check out the Aunty M Brain Tumours Website.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Sarah Collins shares her personal experience when she was diagnosed with a Meningioma. Sarah has been a professional singer for most of her life and had no warning that she had a Satsuma sized tumour sitting in her brain.
Here is her story..
Don't forget to check out the Aunty M Brain Tumours Website.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Shona lost her daughter Tasha in December 2015 to a Diffuse Intrinsic Pontine Glioma also known as DIPG . Tasha was an ambassador for The Brain Tumour Charity and supporting the #HeadSmart campaign. Shona Floyd is now a Regional Healthcare Engagement Manager for The Brain Tumour Charity.
Shona shares Tasha's story and about Tasha being an ambassador for The Brain Tumour Charity and supporting their #HeadSmart campaign.
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Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients.
I had the pleasure of interviewing Brain Tumour Research's Campaign Manager Hugh Adams. Hugh talks about where the money goes for Wear A Hat Day.
"I'm passionate about improving the outcomes for those diagnosed with a brain tumour and this will only be achieved through increased funding into research". - Hugh Adams
Find out more of the work here: Brain Tumour Research
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Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients.
Leander Stone was diagnosed with a Sphenoid Wing Meningioma. She had no symptoms prior to her diagnosis and it was by chase that it was picked up by a MRI. She was having the scan for something not related to a brain Tumour.
Leander talks about her Post Brain Surgery and being left with Left Side Paralysis.
Don't forget to check out the Aunty M Brain Tumours Website.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Sam Carson talks about when he was diagnosed with an Astrocytoma Cerebellar Tumour at the age of four. He talks about the effects that it has left him with including a rare neurological condition called ataxia which affects his balance and speech. Sam, does believe it was brought on by the brain tumour which he had removed when he was five.
Don't forget to check out the Aunty M Brain Tumours Website.
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(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Carol Vaughan talked about her experience with her brain tumour. On the 28th July 2008 Carol went to a courthouse for jury duty and was excused early. When she was going back to her car, she fell on the ramp. Because she fell, someone coming to her aid called the ambulance. In the ER after a CT scan, they found a brain tumour.
“I was drifting in & out of consciousness, then woke up 12 days later”
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
I had the pleasure of interviewing Professor Geoff Pilkington and Helen Fillmore, the Principal Researcher.
Professor Geoff Pilkington and his team of specialist researchers within the Cellular and Molecular Neuro-Oncology Group are working tirelessly to find new levels of understanding in one of the most complicated and challenging battle-grounds in medicine today: to achieve a full understanding of all types of brain tumour and the methods required to cure them.
The very well known charity 'Brain Tumour Research' play a central role in enabling Professor Pilkington and his team to advance the work at the University of Portsmouth.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
We talked to Headsmart. The only dedicated campaign which works on raising awareness for the signs of a brain tumour. Especially the symptoms of brain tumour in children and teenagers. This is done by equipping parents, the public and healthcare professionals with the information they need.
Headsmart is part of The Brain Tumour Charity. Their goal is to reduce average diagnosis times of brain tumours to four weeks or less in line with NHS targets. Identifying tumours early reduces the chance of a child developing long term disabilities and can ultimately save their life.
Sadly 10 children and teenagers are diagnosed with a brain tumour every week in the UK, that's more than one a day. This is why these symptoms cards about the signs of a brain tumour are life changing.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Dr Borka Ceranic who is the Hearing Specialist at St George's Hospital. She talks about how brain tumour's or a brain injury can effect hearing.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Danielle McGriskin was diagnosed with a brain tumour and hydrocephalus when she was just 13yrs old. Now at the age of 18 she talks to us at Croydon Radio about living with an illness and how she finds it helpful helping others. She has been raising funds for The Brain Tumour Charity for many years and is an ambassador for them.
She was also given The Diana Award for the Courageous Citizen Award in 2013.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Emma Young was diagnosed in June 2012 with a brain tumour, a meningioma and has had two brain surgeries and radiotherapy. She tells us about her diagnosis and where she is now with her treatment.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
I am joined by Bridget Kavanagh who works on the Eye Unit in Croydon University Hospital. She talked about how often she see's brain tumours and how important it is for people to have yearly eye checks.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Anthony Wright is an International Speaker, Trainer and Author.
Anthony is a brain tumour survivor. " I had nine operations, two radio-therapies, a week in a coma and a month in a wheelchair".
He has a unique understanding of how the brain functions and offers workshops on a Neuroplasticity – Training For Management.
He will also be talking about his book: You Can Self Heal: How to Use the Natural Healing Power of Your Mind & Body.
Find out more about Anthony at his website HERE
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Claire Snyman from Canada, talks about her personal experience when she was diagnosed with a rare benign brain tumour, a colloid cyst..
Claire went on to write the book ‘Two Steps Forward – Embracing life with a brain tumor’. She was inspired to start to write her book based off her journals. Two years later, and 70 000 words later, Two Steps Forward is now available in e-book and print copy!
"It was in 2010, after a vertigo attack and the onset of migraines, that I was diagnosed with a rare benign brain tumour, a colloid cyst. I was 34 at the time and the mother of a 4-year-old and I heard the words that no one ever wants to hear: “You have a brain tumor.” My first thoughts were of my husband and son. I felt numb. As part of my treatment, I became part of the group of ‘watch and wait’ brain tumor patients around the world who are monitored with yearly MRI scans"
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Julia Lavington talks to us about her brain tumour story and being a torch bearer at the 2012 Olympics. She will be sharing her story and what positives she found after going through the trauma.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Robert Shaw talking about his personal experience as being diagnosed with a brain tumour and also how to understand Government Benefits for people diagnosed with brain tumours, in particular the Personal Independence Payments (PIP).
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Jacky Fredrickson talks about her book 'JON'. This is a book about her son who she lost to brain cancer. Jon was 16 when he started to complain of headaches and sickness. An eyesight test revealed the shocking news that he had developed a brain tumour. Over the months and years that followed Jon and his devoted family endured a roller-coaster ride of treatment and therapy, diagnosis and disappointment, until finally no more could be done for Jon, and he died at the age of only 26 with his devoted parents at his bedside. Jon’s illness did not prevent this brave young man from setting up home on his own, travelling around the country independently and embarking on a successful career. His mother Jacky kept a diary of her years of trial, and she has now developed it into this moving and inspiring book.
You can get a copy of the book HERE
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Sam also known as Laptop Philharmonic, tells the story when he was diagnosed with a brain tumour and his recovery.
He talks about being a music artist and putting together the album CRANIOTOMY because he wanted to share the insights he had with the world after his diagnosis and recovery. You can download his album for FREE HERE
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Karl Martin talked about having brain cancer and how he deals with the fact he is living on borrowed time now. It is a very heart warming and honest interview and shows the power of love and determination.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Melinda D’abbenigno shared her experience when she was diagnosed with a brain tumour and how without her faith she couldn't have coped.
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Elizabeth Silvas also known as Lizzy, shares her experience when at the age of 11 was diagnosed with a brain Tumour and her ordeal with bullying at school.
From such a young age Lizzy found refuge though the very famous Sonic The Hedgehog games. She talked about having a passion for something saved her.
You can also follow Lizzy on her Twitter
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Julie Liddle, shares her experience when she was diagnosed with a brain tumour and how she became a Brain Tumour Support Worker.
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Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Tina Boden is a leading voice in the UK for Micro Business. As a Strategist, Connector, Interim Director, Speaker, Writer.
In this interview Tina talks about her work with Ellie’s Fund and Brain Tumour Research and Support across Yorkshire and how it is so important for charities to collaborate with each other for the greater good of the brain tumour community in the UK.
Find More About Tina and her work and how she can help you HERE
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Chris Lewis talks about his experience of living with stage 4 Mantle Cell Lymphoma for over 12 years.
Until July 2007 Chris was a self-employed Business Consultant. It was then that Chris was diagnosed with a rare blood cancer and given only six months to live! After aggressive chemotherapy and a stem-cell transplant Chris was surviving the terrible disease.
"I saw how poor the cancer support sector really was, being so disjointed and not really addressing any practical issues, that I decided to talk out about it to see if I was the only one who felt that way. I wasn’t, and very quickly friends of mine had started me a website dedicated to cancer patents to help spread the word.
This site is now the most popular cancer blog in the UK and I am frequently invited to speak around the world about my experiences. I can now use my influence to change things for everyone affected by cancer, and I have been able to start a unique charity SimPal that gives free phones and sim cards to anyone affected by cancer. The only charity of it’s kind in the world".
You can find out more about Chris's blog here: Chris’s Cancer Community
Don't forget to check out the Aunty M Brain Tumours Website.
(This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
Dawn Hamill has survived not only a brain tumour but also breast cancer. Dawn was diagnosed with a Benign Parasaggital Meningioma in November 2008 and later on in 2014 was diagnosed with Grade 2 Invasive Ductal Carcinoma Breast Cancer.
Listen here to her extraordinary story and how she has gone on to be a blogger.
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You can also find out more about Dawn on the Aunty M Brain Tumours Blog - Click Here
Linda Rickford Talks About When Her Son Was Diagnosed With A Ependymoma. After going through a nightmare of a time when her son was diagnosed with a brain tumour, she doesn’t want any other mother to struggle the way she did.
Linda recalls the whole experience and how now she has been supporting the Astro Brain Tumour Fund for many years.
Find out more about Aunty M Brain Tumours at auntymbraintumours.com/
Follow Aunty M Brain Tumours on:
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Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients.