Demand Diversity: Recent Episodes
COUCH Health
Are we guilty of hearing but not really listening to what patients have to say? The unacceptable lack of diversity among clinical research participants would suggest that we are.
As we begin our campaign to demand diversity in the clinical research space, we invite you to listen up and really tune in to the reality of why and where our industry is failing in respect of diversity and inclusion.
This podcast is jam-packed with genuine insights from the general public across a variety of cultural and religious backgrounds. Ready to listen what they have to say?
If you listened to our last series, you’ll know that in 2019 we conducted research to better understand the barriers for clinical trial participation in ethnic minority groups. This year, we decided to dive even further into discovering the barriers by speaking to people from the US, to hear about their opinions on clinical trials and the pharmaceutical industry more generally. At the end of our interviews, we asked them to share one piece of advice to improve clinical trial recruitment of their ethnic community. From our interviews with people from ethnic minority backgrounds, it’s clear that more diverse representation is needed within clinical trial advertising and the diversity of site staff who organise the trials as well. When they saw people from their own ethnicity or gender, participants felt like they would be more understanding of their needs. The advice from our interviews is clear; the industry needs to build better relationships with ethnic minority groups first and foremost. Engaging with community leaders came up time and time again as a route to build trust. Demand Diversity is a campaign for change and it’s time we were all proactive about improving diversity in clinical trials. We want to use our research to do our bit to raise awareness and create change, and we’d like to thank all the interviewees for their valuable insight. Thank you for listening to this episode, if you enjoyed it and want to find out more, or would like to download the full research report, visit demanddiversity.co
So what do people really want to know about clinical trials? What would make them take notice? What would persuade them to take part? Where are we going wrong and what can we do to make our approach right for everyone? We reveal interesting insights into how we can refine and improve clinical trial communications in our fifth episode.
Assuming what would motivate or prevent someone from taking part in a clinical trial is at best, ignorant, and at worst ineffective. So, in this episode, you’ll get to hear exactly what people would need to hear and know to consider participating, and what would cause them to dismiss the idea entirely.
Did you know that different cultures and religions have very specific barriers that could prevent people from participating in a clinical trial? Do you know what they are? From traditions and ingredients used in treatments, to conspiracy theories and fears of exploitation, hear all about the biggest barriers people face in their cultures.
With low awareness one of the biggest barriers to enrolling participants onto clinical trials, episode two investigates just how much people do or don’t know about clinical research. We look to understand where the information that people do have on clinical trials comes from, and if people are open to the idea of taking part.
What springs to mind when you think of clinical research? How do you feel about healthcare? Episode one of the Demand Diversity podcast digs deep into people’s perceptions of both. Why is this important? Well, unless we understand how people really think and feel, how can we even begin to change it? Listen and see if the general public’s perceptions are what you’d imagine them to be.