Interstitial Cystitis Association Podcasts: Recent Episodes

Interstitial Cystitis Association

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Presenters: Kristene E. Whitmore, MD, Founder and Director of the Pelvic and Sexual Health Institute, Philadelphia, PA and Rob Moldwin MD, Physician in Charge of Urologic Infectious/Inflammatory Diseases, Smith Institute for Urology, Director of the Interstitial Cystitis Center at North Shore-LIJ Health System, New York, NY

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ICA Interviews Dr. Barry Jarnagin at IPPS 2012 Dr. Barry Jarnagin

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ICA Interviews Dr Stanley Antolak at IPPS 2012 Dr. Stanley Antolak

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ICA Interviews Dr Thomas Chelimsky at IPPS 2012 http://archive.org/download/IcaInterviewsDrThomasChelimskyAtIpps2012/Chelimskycomplete.mp4

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Amy Stein, MPT, author of Heal Pelvic Pain, founder and practitioner of Beyond Basics Physical Therapy in New York City, gives the ICA an overview on the anatomy of the pelvis, explains how physical therapy can help ease IC symptoms and answers some frequently asked questions at the International Society for the Study of Women’s Sexual Health (ISSWSH) Summer 2012 Meeting.

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Barbara Shorter, EdD, RD, CDN, Associate Professor of Nutrition at Long Island University, gives the ICA an inside scoop on the shortened Shorter-Moldwin IC and Diet Questionnaire at the 2012 American Urological Association (AUA) Annual Meeting.

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Research is essential to find effective treatments for IC and other related conditions. It is a process to design a proposal, submit it, present it, get it approved, and then be able to find subjects willing to participate. Learn about the process and how you can volunteer to be part of a study.

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Aloe Vera benefits the body in four unique ways. It has the ability to reach the deepest body tissues; some seven layers deep unlike most lotions, liquid substances, and water will penetrate only two layers of skin. Aloe has six antiseptic agents: Lupeol, salicylic acid, urea nitrogen, cinnamic acid, phenol, and sulfur. It kills bacteria, viruses, and fungus. It stimulates birth of new, healthy tissue up to six to eight times the normal rate, proven by independent research. It also detoxifies and normalizes your metabolism.

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Download Dr. Melanie Barton’s Voice of American radio show exploring how IC affects so many areas and people in the patient’s life. Loved ones suffer not knowing how to help. Children of IC/pelvic pain patients grow up missing the normal activities that other families take for granted. Sports events, traveling, or shopping all require more energy and bathroom stops for the patient than the family can tolerate. The family learns to go without the person or to just all stay home. Intimacy between partners becomes strained or non-existent due to painful sex.

Tony Tyler new ICA Board member will tell us what it is like to have a dad with IC. Amy Stein, MPT, author of Heal Pelvic Pain will tell us how sexual pain can be lessened or alleviated through physical therapy.

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About 5% of IC patients have symptoms for more than 2 years and 5% of patients have end stage disease defined as very hard bladders with low capacity and terrible pain. Many have Hunner's ulcer. Kristene Whitmore, MD, from the Pelvic and Sexual Health Institute (PSHI), discusses how to treat severe IC. Dr. Whitmore was interviewed at the joint meeting of the International Continence Society and the International Urogynecological Association in Toronto by the Interstitial Cystitis Association (ICA). Dr. Whitmore is a member of the ICA Medical Advisory Board.

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In both men and women with pelvic flood dysfunction, sexual dysfunction is common. Learn more from international expert Kristene Whitmore, MD, who was interviewed at the joint meeting of the International Continence Society and the International Urogynecological Association in Toronto by the Interstitial Cystitis Association (ICA). Dr. Whitmore is a member of the ICA Medical Advisory Board.

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International expert Kristene Whitmore, MD, discusses what's changed in the last 10 years for interstitial cystitis. It's 2010 and we've got greater awareness, more collaboration across specialties, better recognition of related conditions, soon-to-be-released treatment guidelines, and promising research. Interview conducted from the joint meeting of the International Continence Society and the International Urogynecological Association in Toronto by the Interstitial Cystitis Association (ICA). Dr. Whitmore is a member of the ICA Medical Advisory Board.

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Ragi Doggweiler, MD, shares the overall message from her talk "What Can I do to Help Myself? Alternative Approaches to the Treatment of IC/BPS" presented at the ICA patient forum "Finding Better Relief: Working with an IC Healthcare Team" on June 5, 2010 in Nashville, TN. Dr. Doggweiler is a urologist who is trained in myofascial pain, trigger point injections, and hypnotherapy and is also board certified in holistic medicine. She is the Director of Neuro-Urology and Integrative Medicine and Associate Professor of Urology at the University of Tennessee in Knoxville.

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Jennifer Fariello, a nurse practitioner specializing in women's health, explains the importance of including an examination of the pelvic floor in a complete urologic work-up as part of the interstitial cystitis (IC) diagnosis process. Fariello is on staff at The Pelvic and Sexual Health Institute at Graduate Hospital in Philadelphia and adjunct faculty in the Department of Obstetrics and Gynecology at the University of Pennsylvania.

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Overview of physical therapy for bladder pain and general pelvic pain: Physical Therapist Stephanie Prendergrast discusses the internal and external techniques used in pelvic floor therapy during the joint meeting of the International Continence Society and the International Urogynecological Association in Toronto. Prendergrast is a leader in developing techniques for pelvic floor therapy for interstitial cystitis patients with high tone pelvic floor dysfunction.

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Anna Kelly, MD, a board certified anesthesiologist and acupuncturist, demonstrates how acupuncture can be used to treat bladder pain associated with interstitial cystitis (IC). Dr. Kelly practices at Metro Acupuncture, in Atlanta, GA. This excerpt is taken from the Interstitial Cystitis Association's (ICA) patient forum "A to Z on IC", presented August 23, 2009 in Atlanta, GA.

The ICA is the only non-profit health association solely dedicated to improving the quality of healthcare and lives of people living with IC. The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC. Together, we will achieve our mission of Conquering IC and Changing Lives!

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Anna Kelly, MD, a board certified anesthesiologist and acupuncturist, provides an overview of the treatment of pelvic pain, such as with interstitial cystitis (IC), through acupuncture. Dr. Kelly practices at Metro Acupuncture, in Atlanta, GA. This excerpt is taken from the Interstitial Cystitis Association's (ICA) patient forum "A to Z on IC", presented August 23, 2009 in Atlanta, Ga.

The ICA is the only non-profit health association solely dedicated to improving the quality of healthcare and lives of people living with IC. The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC. Together, we will achieve our mission of Conquering IC and Changing Lives!

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Jeffrey Proctor, MD presents an overview of interstitial cystitis (IC), including symptoms, treatments, at the Interstitial Cystitis Association's (ICA) patient forum titled "IC from A to Z", held in Atlanta, GA, August 23, 2009. Dr. Proctor is a urologist, specializing in IC and overactive bladder, with Georgia Urology, PA, in Cartersville, GA.

The ICA is the only non-profit health association solely dedicated to improving the quality of healthcare and lives of people living with IC. The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC. Together, we will achieve our mission of Conquering IC and Changing Lives!

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A member of the ICA Medical Advisory Board, Dr. Moldwin is the Director of the Smith Institute for Urology and on staff at Long Island Jewish Medical Center in New Hyde Park, NY.

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Judi Buckalew, RN, Director of Public Policy and Legislation at Powers, Pyles, Sutter, and Verville, is a registered nurse, public policy expert, and patient living with interstitial cystitis (IC). Ms. Buckalew shared her story about living and advocating with IC with the ICA in March 2010.

Her expertise is in the area of federal government relations and policy, and has served in senior level positions in the United States Senate; White House and Department of Health and Human Services.

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Susan Bilheimer is an author and patient living with IC. She spoke candidly about the challenges of preserving intimacy while living with this chronic pain condition at the Interstitial Cystitis Association's (ICA) patient forum "A to Z on IC" on August 23, 2009 in Atlanta, GA. Her own struggle with sexual and pelvic pain motivated her to write "Secret Suffering: How Women's Sexual and Pelvic Pain Affects Their Relationships" with the collaboration of Robert Echenberg, MD.

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Philip Hanno, MD, IC expert with the Division of Urology, University of Pennsylvania Health System, provides more details about the newly-announced (preliminary) American Urological Association (AUA) treatment guidelines for interstitial cystitis (IC). Dr. Hanno is chair of the AUA IC Clinical Guidelines Committee. The guidelines are scheduled to be officially released at the end of the year.

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Nurse Practitioner Amy Rejba Hoffmann, from the Pelvic and Sexual Health Institute (PSHI), discusses findings of the ICA Complementary and Alternative Medicine survey at the joint meeting of the International Continence Society and the International Urogynecological Association in Toronto. The ICA and PSHI are joint authors on this research. The survey proved to be the largest ever of IC patients presented in a scientific study. Results were published in the Summer 2009 issue of ICA Update.

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Linda Salin, information specialist and patient advocate with the Interstitial Cystitis Association (ICA), answers questions and provides advice for young interstitial cystitis (IC) patients. Salin in a IC patient whose symptoms are in-check today! She works with the ICA sharing the latest on IC treatments, self-help strategies, and hope with other patients.

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Philip Hanno, MD, IC expert with the Division of Urology at the University of Pennsylvania Health System, gives an overview of the definition and recommended diagnostic process for interstitial cystitis (IC) per the newly announced, first-ever American Urological Association IC treatment guidelines. Dr. Hanno is chair of the AUA IC Clinical Guidelines Committee. The guidelines are scheduled to be officially released at the end of this year.