Te Arai Research Group: Recent Episodes
Te Arai Research Group
Welcome to the Te Arai Research Group podcast: the latest in bi-cultural palliative care and end of life research. We are a group of researchers based in the School of Nursing at the University of Auckland, Auckland, New Zealand.
How do staff at children's blood and cancer centres in Aotearoa New Zealand handle the stress and pressure that's part of the job? Dr Gemma Aburn provides answers to this question in her discussion about her PhD research with podcast host Dr Jackie Robinson. Gemma focuses on aspects of staff resilience that formed a key component of her grounded theory approach.
To learn more about Gemma's research, have a look at these publications from her PhD thesis:
What is resilience? An Integrative Review of the empirical literature. To use systematic methods to examine how resilience is defined in empirical research.
“We are all a family” Staff Experiences of Working in Children’s Blood and Cancer Centers in New Zealand—A Constructivist Grounded Theory An exploration of staff experiences working in a children’s blood and cancer center in New Zealand, with a particular focus on how staff maintain resilience and carry on working in this difficult area.
Connecting theory with practice: Time to explore social reality and rethink resilience among health professionals To discuss and contrast different theoretical perspectives of resilience and explore the value these bring to understanding health professional well-being.
Reflecting on a journey of resilience in children’s blood and cancer nursing An exploration of Gemma’s experiences of being a children’s oncology nurse and paediatric palliative care nurse specialist in the context of existing empirical and theoretical literature, with a particular focus on how she developed resilience.To learn more about our research groups go to: https://tearairesearchgroup.wordpress.com/
Do people with a mental illness diagnosis get a 'fair shake' when it comes to accessing palliative care services? Helen Butler, Associate Head of School for Mental Health discusses her passion for the intersection of mental health and palliative care and offers insights from her research.
To learn more about our research groups go to: https://tearairesearchgroup.wordpress.com/
Dr Natalie Anderson, an experienced ED nurse talks to podcast host Dr Jackie Robinson about research from her PhD. The podcast focuses on ambulance personnel's experiences around resuscitation that were published in the journal, International Emergency Nursing.
Journal article:
Anderson, N. E., Slark, J., & Gott, M. (2020). When resuscitation doesn't work: A qualitative study examining ambulance personnel preparation and support for termination of resuscitation and patient death. International emergency nursing, 4910.1016/j.ienj.2019.100827
To learn more about our research group go to: https://tearairesearchgroup.wordpress.com/
Dr Tess Moeke-Maxwell (iwi) joins host Dr Jackie Robinson to discuss her Rapua Te Marama study that is exploring Māori whānau (extended family) experiences of death during the 2020 Covid-19 lockdown period. She begins by sharing her whanau's own story of the death of her mokopuna (grandchild) and how this motivated her to investigate what it was like for others who had someone in their 'bubble' die during this time.
To learn more about our research groups go to: https://tearairesearchgroup.wordpress.com/
Dr Deborah Raphael discusses her research into the experiences of people post-treatment of haematological cancer. She identifies their need for follow-up; they finish what can be very aggressive cancer treatment and then have no one in the health system to check in with.
Check out her paper on the topic:
Raphael, D., Frey, R., & Gott, M. (2019). The nature and timing of distress among post-treatment haematological cancer survivors. European journal of cancer care, 28 (1)10.1111/ecc.12951
To learn more about our research groups go to: https://tearairesearchgroup.wordpress.com/
As a result of COVID-19, community palliative care services have needed to adapt, rapidly and creatively find new ways of working revising and establishing new policies. Dr Rosemary Frey, Dr Aileen Collier from the University of Auckland, School of Nursing, Ms Jenny Thurston, Mercy Hospice Auckland and Scottish Researcher (Professor Bridget Johnston, University of Glasgow) are conducting a study adapted from a survey done by Costantini et al (2020)[1]. The purpose of the study is to compare the Covid-19 response by hospice in the Community Palliative Care Services in New Zealand and Scotland.
Dr Rosemary Frey discusses how the project findings to date.
[1] Costantini, M., Sleeman, K. E., Peruselli, C., & Higginson, I. J. (2020). Response and role of palliative care during the COVID-19 pandemic: a national telephone survey of hospices in Italy. Palliative medicine, 34(7), 889-895.
To learn more about our research group: https://tearairesearchgroup.wordpress.com/
Professor Merryn Gott, director of the Te Ārai Research Group, calls into question the privilege that underpins palliative care research. Researchers’ blind spots hide a host of inequities due to such societal factors as poverty, racism and gender. Addressing them in research is a crucial component of equitable palliative care. She champions the pockets of research being undertaken in palliative care that foreground equity but asserts more needs to be done.
To learn more about our research groups go to: https://tearairesearchgroup.wordpress.com/
Dr Melissa Carey talks to Jackie about her research with kaumātua in South Auckland. She shares their views on using digital technology during Covid restrictions.
The journal article about this topic is currently under review with Digital Health.
We don't often think about the ways in which even our oldest old – those 80 and over – are still providing demanding personal care for their partners. Yet they do, and Dr Tessa Morgan offers some insights into what that's like for them. She shares some of the results from her recently completed PhD from the University of Cambridge.
See:
Morgan T, Bharmal A, Duschinsky R, Barclay S (2020) Experiences of oldest-old caregivers whose partner is approaching end-of- life: A mixed-method systematic review and narrative synthesis. PLoS ONE 15(6): e0232401. https://doi.org/10.1371/journal.pone.0232401
To learn more about our research groups go to: https://tearairesearchgroup.wordpress.com/