Standby in the Shadows - Life with Myalgic Encephalomyelitis: Recent Episodes
Ceci
Ever been tired? Yeah me too! I have the chronic illness Myalgic Encephalomyelitis (ME) otherwise known as Chronic Fatigue Syndrome. In this podcast I will be sharing what my life is like with ME. How I deal with being in bed most of the day. How doing laundry seems impossible. And how I stay positive and smile everyday even when it feels like my life has been put on Standby at the age of 27.
Listen along as I shine a light on how life is with ME!
Part 3 of the Myalgic Encephalomyelitis Symptoms mini series focuses on Post Exertional Malaise - PEM.
Sleep Dysfunction is the topic for part 2 of the mini series about Myalgic Encephalomyelitis symptoms. Sleep Dysfunction can show up in many different ways, and can on itself be debilitating.
First episode in the mini series about Myalgic Encephalomyelitis many different symptoms. And it is about fatigue. A symptom that plays a big part when it comes to ME. ME that to many people is still referred to as Chronic Fatigue Syndrome.
I have been very tired and fatigued lately. It has been an increasing and overwhelming tiredness.Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows.Podcast ( https://www.instagram.com/standby.in.the.shadows.podcast?igsh=c2g2eHBsb3IzNjFo&utm_source=qr )
I’m about to start a new medication and I’m quite scared to do so. After having had several bad side effects from medications having to start a new one brings on a lot of fear and anxiety.
One question that I get a lot is “What about your future?” And honestly I don’t know what to say to people when they ask. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome/Long Covid all give debilitating symptoms that cause uncertainty about the future. So sorry for the terrible sound quality!
Today’s episode is a sensitive topic about how I sometimes experience jealousy of other illnesses and disabilities. How I sometimes wish I was sick with something else than ME.
I sort of survived moving, but a lot of bad habits were formed in the last few weeks and I now try to get back to my normal routine and good habits.
I’m in the middle of moving and there is so much going on. My brain is struggling to keep up
I have experienced a few small moments of victory that I wanted to share with you lovely people 🖤
A talk about food allergies and sensitivities. The increased likelihood of a sensitivity when having ME and the potential for MCAS.
It has been 6 months since the beginning of the podcast. In this episode I do a little update about where I’m at in my life.
I have unknowingly been doing too much lately and that has triggered a crash and worsening of my ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) symptoms. I’m forgetting to listen to my body!Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) I look forward to hear from you!
I have come to realize how much I depend and rely on others in my daily life - I’m no longer independent!Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
In this episode I go over the process of getting my Myalgic Encephalomyelitis/Chronic Fatigue Syndrome diagnose. It has been a long journey with many different doctors and tests, and then some more tests. Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
This episode is about brain function, memory issues and a lot of things I forgot about already. Myalgic Encephalomyelitis is a complex chronic illness that not only affects the body but also very much the brain.Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
Having Myalgic Encephalomyelitis my day is filled with all sorts of symptoms I have every day. But sometimes some new ones show up. Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
In this episode I talk about medical trauma and gaslighting. I go through some of the moments when I just wanted to run out the doctors office screaming because the doctor was not listening. Please be aware this episode may bring up topics of trauma that can be triggering for some listeners with chronic illness and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
Self love! Here is a little talk about how I work with self love and how I try to integrate it into my life with Myalgic Encephalomyelitis.Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ )
There is so much and absolutely nothing to be said about being in pain… And sadly pain is a part of having Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
Sleep! In episode number 10 I talk about the significance and difficulties related to sleep. Having Myalgic Encephalomyelitis/Chronic Fatigue Syndrome being tired and fatigued is a big deal and sleeping is too. Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
Being chronically ill can be many things, good and bad. In this episode I talk about what I have learned about myself from being sick with Myalgic Encephalomyelitis for a decade. Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
It is a new year and that often brings thoughts of the future and a “new start” with it. That is just not always the reality.Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
The Holiday Season is upon us. Just because most of the world is gathering and celebrating, my ME symptoms and challenges are still present in my life.Happy Holidays!Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
In this episode I talk about how Myalgic Encephalomyelitis can be an invisible illness. Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ ) Look forward to hear from you!
I go through some of the most difficult and impossible day to day things and activities I face.
The struggle and tricky nature of thinking I feel better, but my ME (myalgic Encephalomyelitis) symptoms are always present when I push myself too far. And only using the energy that I have can be extremely difficult.
Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ )
Look forward to hear from you!
Apologies for weird sound quality in small sections of this episode. I don’t know what happened.
In this episode I’m telling my story from when I first started having ME symptoms to today 10 years later. I’m sharing all the ups, downs and craziness of being chronically ill.
What is Myalgic Encephalomyelitis? That’s the focus of today’s episode. What are the symptoms? How is ME diagnosed? And just everything ME!
Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ )
Look forward to hear from you!
The first episode - A brief introduction into my life with Myalgic Encephalomyelitis and a talk about why I’m making this podcast.
Reach out over email: standbyintheshadows@gmail.com. Or find me on Instagram @Standby.In.The.Shadows ( https://www.instagram.com/standby.in.the.shadows/ )
Look forward to hear from you!