Living My Best Disabled Life: Recent Episodes
Olivia
A disability awareness podcast hosted by Olivia who is a young woman with cerebral palsy. The podcast discusses relevant disability related issues.
n this episode, I chat with Tyler Lima-Roope, a comedy content creator from California. Tyler, known for his humorous stories on TikTok and Instagram, shares his experiences living with Spinal Muscular Atrophy (SMA). Join us to hear about his journey, the challenges he faces, and how he uses a mix of humor and authenticity to connect with his audience.
In honor of Tourette's Awareness Month, I'm releasing one of the top five episodes.This episode features singer-songwriter Dylan Brady. His music is like no otherartist. It's somewhere between pop and country.Diagnosed with Tourette Syndrome at the age of 13, Dylan found opportunities within his differences. He began speaking in schools all over the US and even Canada, spreading not only awareness of Tourette Syndrome but people’s differences in general, saying, “Everybody’s got something. And we have to accept ourselves and accept others, regardless of what that “something,” is.” This opened up opportunities to be on Disney Channel, work with Zac Brown Band and his Camp Southern Ground, work alongside Rascal Flatts, and so much more.Website:dylancbrady.com
Instagram:instagram.com/dylancbrady
Spotify:open.spotify.com/artist/69Lf9TlJ7qID862aDGbZx1?si=FMIvNk86QI-h1iDFjkPGNAApple Music:music.apple.com/us/artist/dylan-brady/1066416183Facebook: facebook.com/dylanbradymusic
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In this episode, Kaylee Bays, a pioneering wheelchair dancer from "So You Think You Can Dance," shares her remarkable journey.
Kaylee discusses the early signs of EDS before her diagnosis at 21, the impact of using a wheelchair on her dance career, and her groundbreaking experience on the show. She talks about the influence of her performance on the perception of disabled dancers, offers advice to others facing similar challenges, and shares ways the dance community can be more inclusive.
Discover how being part of the Rollettes dance team has shaped her personal and professional growth and changed perceptions of wheelchair dancing. Kaylee also reveals upcoming projects, her mentoring approach, and her vision for the future of disability representation in dance. Don't miss this conversation with Kaylee Bays, a true trailblazer in the dance world.follow her @slayleebays
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In this episode, I spoke with Victoria O'Brien, who has cerebral palsy. Victoria is the co-founder of Wheelie You, an organization dedicated to fostering connections among disabled individuals and raising awareness about various disabilities. She holds a master's degree in public administration with a focus on nonprofits and a bachelor's degree in strategic communication and leadership. Victoria's work with Wheelie You demonstrates her commitment to creating a supportive community, advocating for disability inclusion, promoting accessibility, and educating about disabilities.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
In this episode, I spoke with Dr. Lindsey Urley, a clinicalpsychologist, about motherhood as a "wheelie mom." She shared herexperience creating the brand Wheel Good Motherhood, which aims to supportwheelie moms and provide them with a safe and supportive place to connect. You can follow her at @wheel.good.motherhood.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
In this episode, I had a conversation with Jackie Robinson, asoftware engineer from Dallas, TX. She has cerebral palsy spastic diplegia anduses an ambulatory wheelchair. Jackie is also a pole dancer who has beenexploring ways to adapt pole dancing to incorporate her wheelchair andincrease representation in a type of dance that lacks disabled people. --- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
Join Alli Cameron and I in this episode as we delve into Alli's journey with @seated. Perspectives. Alli, a disabled woman herself, will share her experiences and how they've fueled her mission to amplify the voices of disabled women. We'll explore Alli's strategies for creating engaging content on Instagram and the crucial role of representation for disabled women in media. Additionally, Alli will provide insights into her newsletter and upcoming Instagram advocacy course tailored specifically for disability advocates, whether they're just getting started or looking to refine their brand. Don't miss out on this enlightening conversation about disability advocacy and empowering disabled women in our community.
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In this episode, I sit down with Bella Adlah, a resilient individual with many passions and a drive to make a difference. Bella wears many hats as she pursues her aspirations as an aspiring nurse, dancer, and founder of her nonprofit organization.
We dive deep into Bella's journey, starting with the life-altering event that occurred when she was just 16 years old: a vaccine injury that left her paralyzed. Despite facing numerous neurological and autoimmune disorders, Bella's determination remains unyielding, propelling her on a path of resilience.
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In this episode, I had the privilege of speaking with Joci Scott, a multi-talented actress, singer, dancer, and content creator based in Los Angeles. At the age of 20, Joci's life took a dramatic turn when she became paralyzed due to a T12 spinal cord injury sustained in a plane crash. Despite the glaring absence of wheelchair users in her favorite movies and TV shows, Joci's determination to pursue her dream of acting never wavered. Her journey is one of resilience and unwavering commitment to advocating for equal and authentic representation of people with disabilities in the entertainment industry.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
In this episode, Teddy Cosmo, a disabled musician, offers valuable insights into his life with cerebral palsy. Teddy candidly discusses the challenges he faces, such as spasticity and hand tremors, and how these impact his journey as a musician. Throughout the conversation, Teddy delves into the obstacles disabled performers encounter in an industry often inaccessible. He highlights the vital role of inclusivity and representation in media, advocating for equal opportunities for all musicians. Teddy shares personal anecdotes of navigating inaccessible venues and underscores the significance of community connections within the disabled community.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
In this episode, the founders of Dateability discussed their app's unique approach to dating for people with disabilities. They emphasized the importance of accessibility and inclusivity, which sets Dateability apart from other dating platforms. The app offers a range of features that cater to the specific needs of people with disabilities, such as the ability to filter matches based on accessibility requirements. Through Dateability, people with disabilities and chronic illnesses have access to a safe and secure space to meet and connect with others who share similar experiences. Overall, Dateability is a promising app that has the potential to revolutionize online dating for people with disabilities and chronic illnesses.
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Within this episode, Alex Martinez, a wheelchair user withspina bifida recounts her journey in the performing arts, particularly heradaptations in ballet and hip hop. She elaborates on her choreographicpreferences, emphasizing her affinity for lyrics, and highlights her aspirations of mainstream inclusion for wheelchair dancers. Alex delves intothe challenges of performing on stage, underscoring the importance ofcommunication, spatial awareness, and stamina in musical theater. She alsohighlights the significance of portraying disabled individuals leadingfulfilling lives and disseminating awareness through online platforms. As aresult, Alex aims to empower disabled artists to live their best-disabled livesthrough dance and joy online. Tune in to hear about Alex's passion for danceand representation. --- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
In this episode, I am joined by Tracy Coval, a T7 incomplete paraplegic, who shares her remarkable journey of transforming chronic pain and disability into power through creative arts. Tracy discusses the healing power of creative expression, the impact of art therapy, and her insightful book, "An Untethered Truth, A Medical Journey'.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
In this episode, Bre, a social work student with osteogenesis imperfecta, shares how her disability has shaped her perspective on life and her career path. She talks about the positive impact of her service dog, from assisting with daily tasks to providing emotional support. Brie discusses navigating professional environments, dealing with misconceptions, and advocating for accessibility.She emphasizes the importance of empathy and inclusivity and shares her journey of advocacy work within the disability community.
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Tiffany Pervis, a resilient community organizer and political consultant, shares her journey in this podcast episode. While navigating life with cerebral palsy, blindness, and other health conditions, Tiffany has actively contributed to political campaigns at both municipal and state levels for the past 6 years. Drawing on her experience as a District Aide for the Florida House of Representatives, Tiffany holds two Bachelor's degrees in International Affairs and Sociology, along with an Associates degree. She reflects on her work and achievements.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
Joseph Kibler, an actor, writer, and content creator, joinsme on the show to discuss his creative journey, growing up with a disability.and HIV, his success on TikTok with humorous yet relatable content poking funat the challenges of being disabled, as well as his past and future projects.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
Courtney Gabrus has a rare form of muscular dystrophy andsurvived a stroke at 22; she is on a journey to entrepreneurship. Herall-inclusive coloring books break boundaries and bring joy to many. Courtney'sstory is a testament to resilience and inclusivity, proving that passion anddetermination know no bounds. In this episode, Courtney and I discuss herdisability advocacy journey and how it led her to create inclusive coloringbooks and start her live podcast.--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
Talented novelist Claire Forrest joins me to share her experience writing her young adult novel, Where You See Yourself, where draws from her experience as a wheelchair user with cerebral palsy. She also shares advice for fellow disabled writers, To learn more about Claire, visit her on Instagram and TikTok at @claire4est or check out her other work on claireforrest.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
Haliey Kinter is back to share life/health updates and how she she has stayed positive through her two most recent life changing surgeries Hailey Kinter, a vibrant 28-year-old yoga teacher who embraces life to the fullest, even while using a wheelchair. Despite being misdiagnosed, Hailey maintains a positive outlook and believes that getting sick, injured, and aging are natural parts of life. Her sincere dedication to making yoga accessible to everyone is evident in her classes and free content available on her website and Instagram. If you're interested in following Hailey's inspiring recovery journey, be sure to check out her YouTube channel as well.To take Yoga Classes with Hailey, go to www.yogaforallhumans.com For more free yoga content, check out her Instagram @DisabledYogiCheck out the BLOG, https://disabledyogi.blogspot.com/--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
In this episode, author Christa Carius shares her story ofresilience and survival. She is the author of two books. Christa Carius's life is a product of the trauma she experienced from age18. Young Christa just graduated high school and met a man during this time.She hoped she would be her soul mate. In spite of her clean moral compass and character, timeprogressed, and she eventually found herself a victim of sex trafficking.A motorcycle accident led to her breaking her spine, whichcompounded years of sexual assault and abuse by her boyfriend and other men. The doctors predicted Christa would live a miserable lifewith quadriplegia, but she seized the moment and strategically changed thethe course of her life. she’s now a special education teacher, a lovingwife, and a mom of four. In both books, she shares the wisdom she has gained from herlife experiences with those who have experienced catastrophic trauma act as guides for other lost souls.Turning Adversity into GlitterTurning Adversity into Glitter: Cairus, Christa: 9798648761278: Amazon.com: BooksBeautiful Survivor: Escaping the StatisticsBeautiful Survivor: Escaping the Statistics: Cairus, Christa: 9781652856016: Amazon.com: Books--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/message
During a recent conversation with content creator, and YouTuber Emily Bottnick, we explored the relationship between aging and Cerebral Palsy. Our conversation centered around the lack of resources for individuals with cerebral palsy past age 18 to 21 depending on the hospital. We talked about we talked about the evolution of the treatments we received. the treatments we received. As well as a lack of focus on adults with CP. You can follow Emily on Instagram and YouTube at Emily's Life on Wheels.
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In this episode, I talked to siblings Derek and Jenna, Co-creators of Baker Banter. They use their platform to normalize Derek's life with Down syndrome and document all the opportunities given to them while spreading awareness of Down syndrome and the disability community.
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In this episode, I talked to Morgan who is working as a speech, therapist assistant, as she works towards receiving her masters in speech and language pathology. In this episode, we talk about advocating for yourself, and covering your own path as a disabled person.
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In this episode, I talk to Sydni about how she lives her life to the fullest with the progressive neuromuscular disease. Sydni Dupre is a 23-year-old with a rare, progressive neuromuscular disorder called Friedreich's Ataxia (FA). She a full time wheelchair user but I never let my disability hold her back. She is content creator & influencer documenting her unique and fun-loving life with FA. She is also is the CEO of her own business, doing social media management, production, and modeling. Living her shortened life to the fullest!--- Send in a voice message: https://podcasters.spotify.com/pod/show/lmbdl/messageSupport this podcast: https://podcasters.spotify.com/pod/show/lmbdl/support
In this episode I talk to singer songwriter and TikTok influencer @thecorysinger on TikTok . Cory has become an advocate for autistic children, families, and adults. He uses his platform spread autism awareness in a lighthearted educational, and sometimes humorous way. His content consist of facts about the autism representation in film and television, as well as celebrities that you may not know we are autistic, as well as, but not limited to wind reactions of other artistic creators videos discussing relatable problems when it comes to being autistic . Cory came up with the phrase, "Let's Normalize Autism." He currently has over 432 thousand followers on TikTok.--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app--- Send in a voice message: https://anchor.fm/lmbdl/messageSupport this podcast: https://anchor.fm/lmbdl/support
In this episode, I talk to Maegan Blau of Blue Copper Design Blue Copper Design is a full service interior design studio specializing in barrier free, adaptive, accessible, ADA & Universal Design. We talk about everything from why she started the company what its goals are the levels of what blue copper design offers, and so much more.--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app--- Send in a voice message: https://anchor.fm/lmbdl/messageSupport this podcast: https://anchor.fm/lmbdl/support
Lauren Melissa Ellzey (she/her), @Autienelle, is an autistic activist, educator, and author. Through writing and presenting, she engages across lines of difference, highlighting the inequitable systems that oppress queer, BIPOC, and disabled folks. As an Instructional Support Specialist, she provides consultation and workshops on autistic K-12 inclusion. Her young adult novel, Boy at the Window, emphasizes the importance of belonging for queer, neurodivergent youth of color. In all, she hopes to co-create a society founded upon authentic inclusion."--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app--- Send in a voice message: https://anchor.fm/lmbdl/messageSupport this podcast: https://anchor.fm/lmbdl/support
In this episode, Kaylee Blake is back to talk about her journey to becoming a teacher including the challenges in misconceptions that she has faced. She is a recent University of New England graduate and studied elementary and special education.--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app--- Send in a voice message: https://anchor.fm/lmbdl/messageSupport this podcast: https://anchor.fm/lmbdl/support
Being in a wheelchair doesn't stop Hannah from being able to be a nurse; she may have to do things differently but it does not stop her from having her dream career. In this episode, I talked to Hannah, who happens to be in a wheelchair, about her career as a nurse.--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app--- Send in a voice message: https://anchor.fm/lmbdl/messageSupport this podcast: https://anchor.fm/lmbdl/support
The talented singer/songwriter Brigetta joins me to talk about being diagnosed with lupus in 2020 and how it has changed her mindset. we talk all about the physical, emotional and mental effects of having lupus and much more.--- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app--- Send in a voice message: https://anchor.fm/lmbdl/messageSupport this podcast: https://anchor.fm/lmbdl/support
In this episode I talk to Arielle.Arielle Rausin is a professional wheelchair racer from southwest Florida. She graduated from University of Illinois where she also started her company, Ingenium Manufacturing, that creates 3D printed wheelchair racing gloves for athletes around the world. In her spare time, she enjoys cooking, traveling, and adaptive rock climbing.
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In this episode I talk to Nikki Walsh who is a wheelchair using fitness trainer and nutritionist. Nikki Walsh is a NASM Certified Personal Trainer and nutrition coach. She was paralyzed in a car accident in 2018, and decided to continue her pursing her passion in health and fitness as a wheelchair user. She renewed her certification, and started training other wheelchair users to become stronger and achieve their fitness goals. She puts her clients through an adaptive fitness test to create a plan specific for them, their body, and their goals. She hopes to make fitness inclusive for all.
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in this episode I talk Keah Brown, who is a journalist, author, studying actress and screenwriter. She is the recipient of Ulta Beauty’s Muse 100 award, Which is a celebration of 100 inspirational voices around beauty, she is one of The Root’s 100 most influential African Americans of 2018. Keah is the creator of the viral hashtag, #DisabledAndCute. Her work has appeared in Town & Country Magazine, Teen Vogue, Elle, Harper’s Bazaar, Marie Claire UK, And The New York Times, among other publications. Her Debut essay collection, The Pretty One is out now. Her debut picture book, Sam’s Super Seats is out now via Kokila books.
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In this episode I talked to Alex about being diagnosed with Chiari malformation when she was in high school and how it has affected her throughout her life.
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This episode I talked to Savannah and Jacob about how they met And fell in love and how they have adapted to being in a interabled relationship
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Izzie and David are a disabled couple who are high school sweet hearts. Trough their love they thrive to encourage other disabled people to take the chance and date another disabled person. Izzie is also an activist for disability rights and works to provide sexual education to those with disabilities. Follow @izziebullock. She also works with Pure Romance: https://www.pureromance.com/isabellabullock.
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Diagnosed with Tourette Syndrome at the age of 13, he found opportunities within his difference. He began speaking in schools all over the US and even Canada, spreading not only awareness of Tourette Syndrome but people’s differences in general; saying, “Everybody’s got something. And we have to accept ourselves and accept others, regardless of what that “something,” is.” This opened up opportunities to be on Disney Channel, work with Zac Brown Band and his Camp Southern Ground, work side by side with Rascal Flatts, and so much more. Now 23, he is releasing a song every single month. The music sounds like nobody but Dylan Brady. Somewhere between pop and country and so much so that people fight about what to even call it… and that’s exactly how he wants it. Follow @dylancbrady
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In this episode, I talked to Chelsea Bear about what it's like to be a disability influencer. Chelsea Bear (@RealChelseaBear) has nearly 500,000 followers across all social media platforms and has had more than 30 Instagram Reels and TikToks reach over 1 million views. She is a content creator, disability advocate, consultant, and motivational speaker. She utilizes social media to share her first-hand experiences of living with Cerebral Palsy. Her content consists of educational, fun, and lighthearted posts that strive to create acceptance and awareness for those with disabilities and beyond. She is passionate about shifting how we collectively speak about disabilities and strives to destigmatize and normalize living with a disability.
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In this episode I talk to 22-year-old Madison Russell she is a T-5 in complete paraplegic from a spinal cord injury caused by syringomyelia glutinous she uses a wheelchair full-time and has limited leg movement. We talk about the evolution of her advocacy journey starting with her self advocacy in college as well as the current legislative advocacy that she has been a part of.
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In this episode, Rebekah Taussig is back! We talk about disabled parenting and the misconceptions, challenges, and modifications that come with being a disabled parent. As if adjusting to becoming a parent as a disabled person wasn't enough, Rebekah gave birth to her son in May of 2020, three months into the pandemic. You can follow more of her journey on her Instagram sitting_pretty.
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In this episode discuss the creation of her brand. Anna is the founder of The CP Life. She is a young adult living with cerebral palsy. She recently graduated from high school in May of 2020.
She is active member of the Boundless Babe Society, a women-owned group dedicated to empowering women with disabilities.
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Meet Hailey: Hailey is a Santa Cruz native and calls both Santa Cruz and Fresno home, spending time with family and friends. Hailey loves soaking up nature and going on adventures. Hailey teachers yoga for a virtual yoga studio, Yoga for All Humans (free app) and for The Rollettes Boundless Babe Society. Hailey has earned the following credentials: 200-hour and 300-hour Teacher Training; Accessible Yoga Teacher Training; Accessible Yoga Ambassador; Yoga Therapist C-IAYT (in training) No mud, no lotus” Similar to the lotus flower, which blooms in muck, Hailey’s (she/her) yoga journey began with tragedy. At 13 years old, her health rapidly deteriorated due to a rare disease, and Hailey has been fighting for her life ever since. Hailey credits her yoga practice and Buddhism for making her life livable. From all the mud, a beautiful lotus arose. As getting sick, injured, and aging is a natural part of life, Hailey strives to bring representation to yoga for all bodies. As Krishnamacharya said, “If you can breathe, you can do yoga.”
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This episode focus is on normalizing Relationships where one partner is disabled and the other one is not otherwise known as interabled relationships We talk about how they met and so much more.
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In this episode, I talked to Instagram and TikTok influencer Grace Nova. Grace has Escobar syndrome and uses her social media platforms to spread disability awareness and positivity. We talk about what he fired her to start using her platform to inspire others as well as what types of challenges she faces on a daily basis due to her disability.
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Kaylee Blake is is back to talk about using dating apps as a disabled person and how she found love on bumble .
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In this episode I talked to a fellow CP sister.Samantha Wills,She received her Bachelor’s of Social Work with a minor in Peace & Social Justice from Florida Gulf Coast University in Spring 2020. She is currently pursuing a master’s degree in the same subject area at Florida State University. Sam has cerebral palsy and epilepsy. She strive to be as unapologetically herself when it comes to her disability and capabilities. Sam hopes to advocate for people with disabilities throughout my career, regardless of what sector she ends up working in.
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In this episode of Living My Best Disabled Life, I talked to a disability activist Colleen Flanagan about her advocacy work and her experiences as a disabled person.
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In this episode, I has Holly Aldrich back On the podcast to talk about the importance of having mentors as disabled person how we me met and how our friendship has grown over the last 9 years .
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Kellie, a wheelchair user who has Muscular Dystrophy and is an avid concert goer and major music enthusiast joins me on this weeks podcast. We discussed some accessibility issues Kellie has faced as a wheelchair user at concert venues as well as well as the impact concerts have on life
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In this episode I had the pleasure of talking to Rebekah Taussig Rebekah Taussig is a Kansas City writer and teacher with her doctorate in Creative Nonfiction and Disability Studies. She’s spent most of her life immersed in the world of writing and reading – as a student, teacher, and author – because she believes the words we use and the stories we tell matter. She’s especially invested in the experience of marginalized identities and creating a more inclusive world together and for all of us. She’s held talks and workshops at the University of Michigan, Davidson College, and Yale University, and her writing appears in publications from TIME to Design*Sponge. Released by HarperOne in August 2020, her memoir in essays, Sitting Pretty: The View from My Ordinary Resilient Disabled Body provides an honest portrait of a body that looks and moves differently than most. She also runs the Instagram platform @sitting_pretty, where she crafts “mini-memoirs'' to contribute nuance to the collective narratives being told about disability. You can follow her work and sign up for her newsletter at www.rebekahtaussig.com.
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In this episode I talk to Desi Forte about her experiences as a disabled woman , her work Easter Seals of Massachusetts and the importance of teaching disability history. Desi Forte is the Youth Program Manager at Easterseals MA. She has been in this role since 2013, helping to grow youth programs centered around empowering youth with disabilities through leadership as well as mentoring. Desi is also an active member of the disability community. Through both her work and advocacy she is passionate about furthering disability rights and equality.
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In this episode I talk to Katie Grifin, Katie has Cerebral Palsy and has used a wheelchair her whole life. Katie works as a licensed Zumba instructor and teaches virtual wheelchair Zumba on Zoom. She became an instructor so that she could make Zumba accessible to all participants and it’s something she is very passionate about.
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In this episode, I talk to Ryan Martin, who is a wheelchair basketball player and the founder of the Ryan Martin Foundation. A foundation that helps youth and adult athletics with disabilities live independent lives. Their mission is to help youth and adult athletes with disabilities live independent, impassioned, productive, and full lives through sports training, mentoring, and education. In this episode, we talk about his experience growing up in a large family, playing wheelchair basketball in Europe, and how basketball has shaped him.
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In this episode I talk to Angela Scine, A recent Florida gulf coast graduate about the impact that her recent multiple Sclerosis diagnosis has had on her and how she’s adapted to her new normal
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Kaylee Blake is a young woman whose life is forever changed by an unexpected diagnosis in early 2020. In this episode I talk to Kaylee about her diagnosis challenges has faced and what she’s learned about herself during the recovery process.
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In honor of Ehlers-Danlos awareness month I talked to Minda Mae about all things confident, self-esteem and self-love and its importance when living your best disabled life. She is the first-wheelchair using burlesque performer in Minnesota and an advocate for accessibility in the burlesque community.
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In this episode I talk to Holly Aldrich Holly is a disabled woman. She works in disability services in higher education. She is also a self-described advocate. You can contact her at hmaldrich@gmail.com or follow her on Instagram @hollymaldrich.
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