Sudoku Moth: Recent Episodes
Sudoku Moth
For the time being, I'll be talking about tourette's syndrome and what it's like interacting with the rest of the world with it. How it affects other things that I experience. There will be other topics too, but this is what I'm focusing on for now.
I have so much more to give, and I'm getting myself back on track.--- Send in a voice message: https://podcasters.spotify.com/pod/show/sudokumoth/message
Will add later--- Send in a voice message: https://podcasters.spotify.com/pod/show/sudokumoth/message
It really means a lot to have you all here.--- Send in a voice message: https://podcasters.spotify.com/pod/show/sudokumoth/message
Will add full description later.--- Send in a voice message: https://podcasters.spotify.com/pod/show/sudokumoth/message
I speak about the ways that I try to make things easier on myself at home. I was struggling to move as the title suggests and also struggling getting the app to work. This episode was recorded on Wisdom.--- Send in a voice message: https://anchor.fm/sudokumoth/message
Does Social media cause more harm than good? I was sent this question, (most likely at random) and was hoping to hear a variety of people give a variety of answers. That's not how things turned out, but I still received a lovely guest. This episode was recorded on Wisdom Social Audio and lovely guest is, The Clarity Concierge.--- Send in a voice message: https://anchor.fm/sudokumoth/message
We don't all have the same beliefs, we didn't all the same upbringing. We don't all have the same opportunities. So how can we all be expected to be the same way? --- Send in a voice message: https://anchor.fm/sudokumoth/message
Sometimes accommodations are made, which is good. They just may happen to be poorly executed, which is bad. We won't always get them right on the first try, but that doesn't mean that we shouldn't bother trying. Accessibility benefits everyone.
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I'd never presume that I know more about the child in your care than you do, simply because we may share the same condition. This is a collection of things that I think would have benefitted me when I was growing up and what other people with tourette's syndrome have told me what was helpful for them, as children.
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Thank you for starting this journey with me. The only way is up.
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If an old friend of yours has now got tourette's syndrome or your making a new friend who's got it and you're not sure what to say or do, listen to this may help. However, always make sure that you are paying attention to what they say they need. You might need to add and subtract. Do what's best for you and your friend.
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Just been feeling really upset recently and needed to express it.
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The title may be triggering, but it describes a very real problem. If you want to understand, you can look it up after listening.
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This is a heavy episode and could possibly be uncomfortable to hear for various reasons. I talk about unhelpful things that have said to or about me because of my tourette's. It would be good to not repeat them to the people with tourette's in your own lives.
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Being reminded of how a bad situation could be worse, doesn't make the problems go away. You can be grateful for the things that are going well, while actively trying to improve what isn't. Your problems don't have to measure up to the severity of someone else's to be worth solving.
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To any of my listeners who are disabled, I recommend that you apply for a freedom pass, (or it's equivalent, depending on where you live) just be aware that it most likely be a mind numbing process. Don't be ashamed to apply for any service you need to improve your quality of life. It does not take away from your independence, it keeps you independent, if that what you want/need.
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https://petition.parliament.uk/petitions/575370
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If you are experiencing what you think is tourette's, but you are unsure, see a doctor as soon possible. Tourette's syndrome in itself is life changing. You have to be sure that what you're dealing with isn't life threatening. I forgot to mention this in the recording, tourette's syndrome is hereditary. This will be an important part of receiving a diagnosis and if you cannot find it in your family history, it may be ruled out as a possibility.
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Asking questions in a safe time and place is fine. Just remember that it is not your job to test someone's disability, in order to make sure that it is real. Without the correct qualifications, you have no business telling people that their disabilities aren't real if because YOU have no experience with it. In the same way that world hunger does't stop being real, just because you have always been able to make a sandwich whenever you wanted one - a person can still be disabled, even if you can't see it. Looking "normal" doesn't play a factor. Try to be tactful and polite. Don't expect information that you wouldn't be willing to share and don't blame somebody you've never met, for the way that YOU decide to treat them.
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Don't take someone's tics as gospel, when they contradict what someone with tourette's actively chooses to say/do.
Tics are not a sign of shyness, rudeness or wanting to dominate a conversation.
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Here's the follow up story I spoke of in the sexual harassment episode. It's really unpleasant to retell, in a way that the other incidents weren't. Maybe I'm just tired.
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This is an issue I have been facing for many years. I hope whoever hears this will know that it is not their fault and has never been their fault, if they've ever experienced this treatment. It's a form of abuse and should not be tolerated. Needing help to get out of these situations is nothing to be ashamed of.
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When people are both ignorant and not supportive, they assume the worst of those with invisible disabilities. It wouldn't be so bad, if they were willing to learn. Generally, they aren't. Somehow it's makes more sense to them, so make up silly theories, rather than ask. Even though asking is a possibility.
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Today, I wanted to start off with a small explanation of what my condition is like. Since this is the first episode, it made more sense to me to not go into a lot of depth just yet.
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