The Staff Disability & Long Term Health Conditions Forum: Recent Episodes
The Staff Disability & Long Term Health Conditions Forum
The Staff Disability & Long Term Health Conditions Forum presents a series of recordings intended to raise awareness, champion inclusion and promote emerging diverse communities from all walks of life. Listening, Sharing, Caring.
On this special episode we are having a roundtable discussion from our recent attendance of the NHS Disability Summit 2021 that took place just a few weeks ago
We are joined today by Kieranne Page, a Clinical Nurse Specialist in Sexual & Reproductive Health and also Sharon Hudswell, Assistant Service Manager for Medical Education - who are also the co-chairs of the Guys & St Thomas NHS Trust Staff Disability & Long Term Health Conditions Forum!
On this episode we play a few clips from some of the featured speakers from the Summit discussing many initiatives, desired policy changes, current research and also best practices and desires for the continued growth and support of the NHS with its endeavours to improve and identify many elements with NHS Staff working with disabilities and long term health conditions
This one is a feature length episode but we feel there is alot of useful information many will find very useful - as always, thanks for listening
TRANSCRIPTION FOR THIS EPISODE IS IN PROGRESS
If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email
DisabilityForumLeadership@gstt.nhs.uk
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PLEASE FIND THE FOLLOWING LINKS SHARED BY THE SUMMIT
https://www.nhsemployers.org/disabilitysummit
Meet Amar Latif - "The blind guy who wants to show you the world"
https://youtu.be/6ZsIRgNXwgk
- https://diversityandability.com/
- https://diversityandability.com/blog/how-to-foster-wellbeing-as-a-leader/
- https://www.powtoon.com/embed/ekTPWdQGo01/
- https://www.cqc.org.uk/guidance-providers/gps/gp-mythbuster-67-reasonable-adjustments-disabled-people
- https://www.cqc.org.uk/sites/default/files/CM022109_Item9_WDES_report.pdf
- https://www.bma.org.uk/media/2923/bma-disability-in-the-medical-profession.pdf
- https://www.accessable.co.uk/guy-s-and-st-thomas-nhs-foundation-trust
- https://hiddendisabilitiesstore.com/hidden-disabilities-sunflower-training
- https://www.nhsemployers.org/articles/finding-my-voice-drive-change
- https://www.nhsemployers.org/articles/supporting-disabled-staff-workplace
- https://www.rcslt.org/policy/communication-access-uk/
- https://communication-access.co.uk/
- https://www.texthelp.com/en-gb/
- https://www.equalityhumanrights.com/en/multipage-guide/employment-workplace-adjustments
- https://www.purplespace.org/
- https://www.rcn.org.uk/get-help/member-support-services/peer-support-services/neurodiversity-guidance
https://www.rcn.org.uk/get-help/member-support-services/peer-support-services
On this recording we are joined by Sharon Hudswell, Assistant Service Manager of Medical Education
This time we delve into a discussion regarding living with and understanding the Long Term affects of Coronavirus which is now more commonly designated separately as 'Long Covid'
Sharon speaks on her experiences contracting Covid-19, managing her symptoms, explainging intersections in regards to also having long term health condition and how she empowers herself to manage her conditions whilst also giving advice to others
It was a really insightful conversation to have with Sharon on to get a true understanding of just how impactful long covid can be on others.. let alone others with underlying long term health conditions, we humbly thank Sharon for sharing her story, thoughts and lived experiences in such a difficult period
Please do not hesitate to share your stories thoughts and ideas too - please check
the links below for more information
TRANSCRIPT LINK - COMING SOON
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If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email
DisabilityForumLeadership@gstt.nhs.uk
For Podcast enquires you can email - j.kofi@nhs.net
Please find below the links to articles / clips mentioned in this recording
Sky News Long Covid Video
https://www.youtube.com/watch?v=VDNCFCXg3Vg
Channel 5 Long Covid Video
https://www.youtube.com/watch?v=QB41J5aU9Ww
Long Covid NHS Page
https://www.nhs.uk/conditions/coronavirus-covid-19/long-term-effects-of-coronavirus-long-covid/
https://www.yourcovidrecovery.nhs.uk/what-is-covid-19/long-covid/
The Long Covid Organisation
https://www.longcovid.org/
Welcome back to another editorial episode of FEEDBACK!
Our members and communities would like us to have a focus on Dyslexia ahead of Dyslexia awareness month in October and we are more than happy to oblige with Tips, Talks and a helpful guide that can be used to find assessment facilities here in the UK for diagnosing individuals who may have Dyslexia
Please look forward to our upcoming interviews with staff with lived experiences - until then please check out the following links highlighted during this conversation
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Transcript link here - COMING SOON
What is Dyslexia
https://youtu.be/zafiGBrFkRM
Tamara Thomas NHS - A Colleagues Story With Dyslexia https://youtu.be/dEpJQKvVU4o
The British Dyslexia Association Assessment Guide
https://www.bdadyslexia.org.uk/services/assessments
Christian Boer of dislexyfont.com https://youtu.be/qVaeGOflF7w
https://www.dyslexiefont.com/en/typeface/
Dyslexia: The Superpower
https://youtu.be/AMrUxxmMz8g
...and tools mentioned in this podcast that can also help with Dyslexia
Dragon software has a very popular Dragon Dictation product, google has built in text to speech in the keyboard app GBOARD, MICROSOFT has added immersive reading in many of its applications as a reading feature, Grammarly.com, Speechify.com and the Reachdeck browser addon are exception tools that offer a free / preimum tiered approach for added support
On this recording we do a bit more of an editorial coverage episode - we are highlighting Voices in Autism / Aspergers Syndrome as this has been quite heavily requested in our forum meetings
We intend to follow up on this subject with guests / allies for the further support and education of Autism awareness but for now we have been forwarded some great content we want to share with our audience
This podcast only contained snippets of the longer conversations / talks - please find full links below
PODCAST TRANSCRIPT - https://archive.org/details/feedback-04
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- World Autism Awareness: A Message from Claire Murdoch | NHS
https://youtu.be/ijLLSM5nDSI
- Autism: Graeme's story | NHS
https://youtu.be/yKT3swmn_wc
- Autism and Aspergers: 5 intriguing differences (YOU need to know)
https://youtu.be/0bACSPzN1xY
- Women and Autism. Towards a Better Understanding | Sarai Pahla
https://youtu.be/_MA7o6FgPRU
- Why Everything You Know About Autism Is Wrong | Jac den Houting
https://youtu.be/A1AUdaH-EPM
OTHER RESOURCES MENTIONED
NHS PAGE - https://www.nhs.uk/conditions/autism/
National Autism Society - https://www.autism.org.uk/
https://www.awarenessdays.com/
http://www.national-awareness-days.com/
https://www.pat.nhs.uk/working-for-us/Equality/Resources/EDI%20-%20Interactive%20Calendar%202021.pdf
https://www.nhsemployers.org/events/calendar-national-campaigns
Email address for the podcast en quires: j.kofi@nhs.net
To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk
Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!
Today we are joined by a member of staff from Guys & St Thomas hospital trust who is dealing with having chronic and severe long term migraines
Our guest prefers to remain anonymous while they discuss how they cope with constant headaches and migraines as a long term health condition
We discusses the physical and mental effects this condition can cause as well as the challenges / outcomes this has presented in their current role
We lastly get specific with medicines involved to help control these conditions, new and promising prevention trials and even a charity that can help others in similar situations that may find such information helpful
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Please find below links / resources mentioned during this conversation
Podcast Transcription - https://archive.org/details/spotlight-3-migraines
The Headache Channel (YouTube)
https://www.youtube.com/channel/UCWtLYWoWW5Teahm0Cwu_VIQ
The Migraine Trust Website
https://www.migrainetrust.org/
AJOVY & EMGALITY DETAILED INFORMATION FOR PATIENTS
https://www.nationalmigrainecentre.org.uk/migraine-and-headaches/migraine-and-headache-factsheets/cgrp-and-anti-cgrp-injections-for-the-prevention-of-migraine/
Email address for the podcast en quires: j.kofi@nhs.net
To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk
Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!
On this recording Cherron joins us to speak about her ongoing initiative of helping organizations execute and utilize the power of Staff Networks. Cherron talks about her book “The Incredible Power of Staff Networks” which is a very thorough guide on how to form, sustain and maintain a Staff Network as well as her further related efforts on the national ‘Staff Networks Day’ and much much more!
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Please find below links / resources mentioned during this conversation
Podcast Transcription - https://archive.org/details/feedback-03-transcription
https://nationaldayforstaffnetworks.co.uk
https://www.thepowerofstaffnetworks.co.uk/
https://www.thepowerofstaffnetworks.co.uk/online-store
POSN Youtube Channel
https://www.youtube.com/channel/UCpmHAOm1QZMupQi4ld7qx8A/featured
She's The Boss Interview - Female Entrepreneur Stories: Cherron Inko-Tariah
https://youtu.be/IwS8WUAjB5M
The Incredible Power of Staff Networks Amazon Book Link
https://www.amazon.co.uk/Incredible-Power-Staff-Networks/dp/191012561X
Twitter: @POSnetworks
Email for the giveaway - j.kofi@nhs.net - remember this giveaway is first come first claim!
To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk
Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!
On this recording we have Vaughan Parsons - a research manager in the occupational health service for Guy’s and St Thomas NHS Trust. Today he discusses with us his work on the creation of a new Staff Network.
The NHS Stammering Network is an upcoming community we are very exited to support and see come int fruition. Vaughan talks about its development so far as well as his experiences, thoughts and research on Stammering
Please find below a copy of this podcast's transcript and also links to the highlighted points we want to signpost
Podcast Transcript - https://archive.org/details/feedback-02-transcripted
BBC Documentary - https://www.bbc.co.uk/iplayer/episode/m000t27y/i-cant-say-my-name-stammering-in-the-spotlight
BBC Documentary YouTube Link - https://youtu.be/HgskTBGqKq8
Follow Up Interview by Stamma - https://youtu.be/dcOo1gVgRVA
Stamma, the British Stammering Association - https://stamma.org
The NHS Stammering Network Website - https://nhsstammeringnetwork.uk
To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk
On this recording we have Ramze, who shares his unique experience as a partially sighted employee. We discuss how he navigates life in general, gives us tips with the tools and software he uses within his role, talks about his experience as an apprentice within the trust and how he keeps an overall positive attitude even under hardships and challenges
Transcript link here - https://archive.org/details/spotlight-02-ramze
Links also mentioned in this recording...
Metro Blind Sports - https://www.metroblindsport.org
For more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk
On this discussion Jenny shares her life experience with long term health conditions, overcoming various obstacles and her continuing positive strides within her overall career as well as the actual founding of our very own GSTT Staff Disability & Long Term Health Conditions Forum.
Transcript link here - https://archive.org/details/spotlight-01
For more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk
On this recording we have a focused discussion on Disability Disclosure / Disability Awareness Week 2020
Please find the links to the transcript and featured / signposted content below
Podcast Transcript - https://archive.org/details/feedback-01-transcription
Understanding Disability Disclosure / Awareness Video - https://youtu.be/NJ5nhpBzTao
An interesting brochure on Disability Disclosure / Awareness -
https://www.ucu.org.uk/media/5445/Disclosing-a-disability-UCU-guidance/pdf/Disclosing_a_disability.pdf
For more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk