dysphagia matters – a podcast about swallowing, swallowing disorders and the latest and greatest, or sometimes not so great, evidence!
Dysphagia impacts countless individuals, and whether you’re a clinician, a student, or a researcher, you’re part of the collective effort to understand and address this complex condition. But are we all speaking the same language when it comes to defining dysphagia? Surprisingly, the field still lacks a unified definition.
In this episode, we welcome three leading experts, Prof. Debra Suiter, Prof. Giselle Carnaby, and Dr. Martin Brodsky, who are working to establish a clear and consensus-based definition of dysphagia. They share the current progress of their research, including insights from a comprehensive scoping review and a Delphi survey.
Defining dysphagia isn’t just an academic exercise—it’s a critical step in improving communication across disciplines, enhancing diagnostic accuracy, and ultimately providing better care for patients. Join us as we discuss the challenges and opportunities in creating a definition that can guide research, clinical practice, and education.
Huge thanks to NFOSD for letting us share the song “Won’t go down”.
In this episode, we build on our previous one by exploring the practical, clinical side of pharyngeal electrical stimulation (PES) as a treatment for people with dysphagia. This time we spoke to Rachel Coates, an experienced dysphagia clinician from Ireland who incorporates PES into her daily practice.
Rachel shares her insights into how PES works, the benefits and challenges of using this treatment, and her advice for clinicians considering incorporating PES into their practice. If you are not familiar with PES, we recommend you listen to our previous episode with Shaheen Hamdy first.
Literature and resources from this episode
We are excited to share this episode about pharyngeal electrical stimulation with you. Our guest is Shaheen Hamdy, Professor of Neurogastroenterology at the University of Manchester in the UK. In addition to his academic role, he is the co-founder and chief scientific officer of Phagenesis, the company behind Phagenyx – a treatment for dysphagia using pharyngeal electrical stimulation. This approach is one of the most promising advancements in the field of dysphagia treatment today. Join us as Shaheen explains the science behind this innovative treatment and what makes it a game-changer in the field of dysphagia therapy.
Recommended studies for further reading
This is part two of our conversation with Prof. Joan Arvedson. In our last episode, we laid the foundation for understanding feeding and swallowing. In this episode, Joan will share her insights on the treatment approaches for infants with feeding and swallowing difficulties, and we explore the essential role that parents play in the therapeutic process.
We also talk about some fundamental principles that we as clinicians should consider—principles that apply not just to the pediatric population, but to adults as well—making this episode valuable for anyone in the field.
Literature and resources that we discuss:
Drinking is one of the very first activities that newborns engage in, not only shaping their daily routine but also fostering crucial communication and interaction between them and their caregivers. Developing skills such as sucking, swallowing, and coordinating these with breathing is vital, but what happens when a baby struggles with these essential tasks?
We were thrilled to speak with Prof. Joan Arvedson, a leading expert in pediatric feeding and swallowing disorders. In our conversation, she explains the intricacies of sensorimotor learning, neuroplasticity, and the developmental processes underlying sucking and swallowing in infants.
We also talk about some fundamental principles that we as clinicians should consider—principles that apply not just to the pediatric population, but to adults as well—making this episode valuable for anyone in the field.
Literature and resources that we discuss
Did you know that dysphagia can occur not only in people with head and neck cancer, but also in people with cancers outside the anatomical swallowing regions? This is an area that is often overlooked in clinical practice and is also an under-researched topic. To shed light on this important issue, we interviewed Prof. Ciarán Kenny from Trinity College Dublin. In his PhD research, Ciarán investigated the prevalence, clinical characteristics, and predictors of dysphagia in people with cancer outside the anatomical swallowing regions. Join us as we explore his findings and much more.
If you are interested in the recipe booklet you can contact Ciarán vial email. His email address can be found here.
Literature that we discuss:
It was about time we had a conversation about dysphagia in people with head and neck cancer (HNC). And this time our guest was none other than Prof Katherine A Hutcheson from the University of Texas, MD Anderson Cancer Center.
Kate answered all our questions about HNC-related dysphagia and its presentation, prehabilitation and instrumental assessment using the Dynamic Imaging Grade of Swallowing Toxicity (DIGEST), which she and her colleagues developed.
Literature that we discuss:
Welcome to a new episode, this time with Prof. Rainer Dziewas, a neurologist and expert in the field of swallowing and swallowing disorders. For this episode, we asked Rainer to explain how swallowing works on a neurophysiological level because we believe that for dysphagia clinicians like us, understanding the underlying neurophysiological mechanisms is essential for a solid assessment and an effective intervention. Get ready for a trip from the brain to the swallowing muscles and join us as we discuss the factors that can affect physiological swallowing. We recorded this episode in person at the annual meeting of the German Society for Dysphagia, so please excuse the background noise in this episode and enjoy listening.
Literature that we discuss:
Join us in this episode as we explore the world of pediatric feeding disorders in the Neonatal Intensive Care Unit (NICU) with Dr. Pamela Dodrill, a Pediatric Feeding Specialist. Together with her co-authors, Pamela developed a consensus definition and conceptual framework for pediatric feeding disorders and she was part of the FOIS-P team, the Functional Oral Intake Scale for pediatrics. We talk about these two projects and her work in the NICU and how it differs from other settings. Pamela also talks about the feeding and swallowing assessment pathway in the NICU and how the treatment is guided by a thorough assessment. We conclude the episode by asking Pamela about her vision in this field and what research we need in the future for this population.
Literature and resources that we discuss:
As clinicians working in dysphagia management, providing guidance on different consistencies to support our patients in their rehabilitation process and daily life is a fundamental aspect of our clinical responsibilities. However, effective communication about these consistencies is a recurring challenge for both patients and clinicians. In previous episodes, you have already heard us talk about IDDSI. We have now had the pleasure to talk to Peter Lam (chair person and chief-executive officer) from the International Dysphagia Diet Standardisation Initiative (IDDSI). Peter gives a comprehensive overview of IDDSI: What it is, why it is helpful for dysphagia clinicians and how to start implementing it in clinical practice.
You can find lots of resources on the IDDSI website: www.iddsi.org. You can find more information on the testing methods here. If you have any questions for the IDDSI team, you can email them at office@iddsi.org
In this episode we speak to Dr. Paula Leslie and explore the ethical considerations that shape patient care. Paula discusses the delicate balance between benefits and risks that must be maintained specifically in the management of dysphagia. She also provides insights into real-life ethical dilemmas and shares global perspectives that influence our clinical practice as dysphagia clinicians working with our patients. We hope you will join us on a journey through the moral compass of medical decision-making.
Literature that we discuss:
At this year’s conference of the European Society for Swallowing Disorders (ESSD), we had the great pleasure of speaking with Prof. Maggie-Lee Huckabee. Together we discussed her recently published article “The Evolution of Swallowing Rehabilitation and Emergence of Biofeedback Modalities” (Huckabee et al., 2023). Maggie-Lee explains how our understanding of swallowing and swallowing rehabilitation has changed over the years. She also provides great ideas of how we can best implement skill training and feedback into our clinical practice with people with dysphagia – even without fancy and expensive equipment. Enjoy listening!
The literature that Maggie-Lee mentions throughout this episode is available in the reference list of her article. Maggie-Lee has also given a great TEDx Talk in Christchurch in 2018 which you can watch here.
A big thank you to all our listeners. We wish you happy holidays and a great start to 2024.
Pneumonia is considered one of the most critical consequences of dysphagia, and in some patient populations it is a leading cause of death. Although pneumonia plays a major role in our clinical decision-making process as SLTs, we felt that we did not know enough about it. To change that, we invited Dr Harmeet Bedi, a pulmonologist at Stanford University School of Medicine, to join us for an episode. We asked him about potential differences between aspiration pneumonia and ‘general’ pneumonia, risk factors and what exactly happens when someone has pneumonia. He also shared his clinical experience of assessing and treating pneumonia in different patient populations. Tune in to hear a pulmonologist’s perspective on aspiration and pneumonia.
In this episode, Prof. Janina Wilmskoetter takes us on a journey into the depths of the brain to help us understand the potential impact of stroke on swallowing.
Why does a stroke cause dysphagia in some people and not in others? And why do some recover more quickly than others? Does the location or size of the lesion matter at all? We had lots of questions for Janina and we were delighted that she joined us to share both her research findings on stroke and her clinical expertise as an SLT.
Further helpful literature:
In this episode we speak to Prof. Michelle Troche and delve into the crucial topic of airway protection and its connection to swallowing and coughing. Together we explore two approaches: Expiratory Muscle Strength Training (EMST) as a strength based approach and the skill based approach called sensorimotor training for airway protection (smTAP). Michelle explains the … EP 23: EMST and smTAP for rehabilitating airway protection with Michelle Troche Read More »
One challenge in dysphagia rehabilitation is the complexity of swallowing itself. Swallowing involves a series of intricate muscle movements and coordination, and it can be challenging for individuals with dysphagia to gain optimal control. Principles of motor learning can greatly enhance dysphagia rehabilitation by providing a systematic framework for optimising the (re-) learning process and improving … EP 22: Enhancing dysphagia rehabilitation through motor learning with Kristan Leech Read More »
A clinical setting that we have not yet covered in this podcast is the intensive care unit (ICU). We were very lucky to have Sarah Wallace OBE as our guest, as she brings a lot of expertise from working clinically as an SLT in critical care as well as conducting research in this field.
In this episode, Sarah will explain why dysphagia on the ICU is multifactorial, why it is so important to restore airflow through the upper airway and how dysphagia clinicians take on a central role in weaning patients from the ventilator.
Helpful literature that we discuss or mention in this episode:
In dysphagia management we often think about how our patients can swallow food and liquids the safest and most efficient way and what consistencies are best suited for them. But what about nutritional and hydration needs in people with dysphagia? In this episode we speak to Prof. Rainer Wirth about different nutritional and hydration requirements for elderly people, people with presbyphagia and dysphagia and how we, as clincians, can support our patients in meeting their nutritional and hydration needs.
Helpful literature mentioned or discussed in this episode:
Dear English speaking listeners: This episode is in German.
Es wurde Zeit für eine neue Folge auf Deutsch! Während der diesjährigen Tagung der deutschen Gesellschaft für Dysphagie (DGD) in Köln haben wir mit Prof. Stefanie Duchac über die videofluoroskopische Untersuchung des Schluckens (VFSS) gesprochen.
Sie gibt einen Überblick über die technischen Fragen, erklärt die Relevanz der Frame Anzahl und Pulsrate und beleuchtet die Rolle der Videofluoroskopie im Dysphagiemanagement. Was kann man mit der VFSS sehen, wie kann das Gesehene interpretiert werden und über welche Möglichkeiten und Grenzen verfügt die VFSS im Vergleich zur FEES? Diese und mehr Fragen beantwortet Steffi in dieser Folge.
Übrigens: Steffi ist auch Host eines Dysphagie-Podcasts! Zusammen mit Alexander Fillbrandt spricht sie in “Iss nix!” über alles, was mit Schluckstörungen, Diagnostik, Therapie und Hintergründe zu tun hat – ganz nach ihrem Motto “stay hungry – stay tuned” (iss-nix.de).
Hilfreiche Links:
Ultrasound is an emerging tool for the assessment of swallowing and treatment of dysphagia. But how can SLTs actually make use of it? And what does it add to our toolbox? To learn more about this new approach, we invited Jodi Allen. She explains what we can do with an ultrasound assessment, where its boundaries are and how we can implement it in our clinical practice.
Helpful literature mentioned or discussed in this episode:
Do you use oral trials in dysphagia management? Do you know what the current evidence base is? In short: oral trials are recommended frequently as a rehabilitation approach in clinical practice, but the evidence base to support it is scarce. So, how exactly do we apply oral trials as a dysphagia intervention? Which patients are suitable? Is it a safe and effective approach? Tune in to this episode to learn how Dr. Jacqueline Benfield answers these questions. She also shares her recent research findings on the use of oral trials in dysphagia management.
Helpful literature mentioned or discussed in this episode:
Our guest in this episode is Dr. Órla Gilheaney. Not only is she a clinician, lecturer and researcher working in the field of invisible conditions such as fibromyalgia, but she is also a person living with fibromyalgia herself.
Fibromyalgia is a chronic disorder that can cause various symptoms such as widespread pain, fatigue, muscle stiffness, problems with mental processes (“fibro-fog”) and, among even more symptoms, dysphagia.
Órla is a pioneer in researching dysphagia in people with fibromyalgia, a field which is only starting to be studied. Here you can find further information on the FibroIreland.
We started this podcast one year ago and we could not be any happier with how it went so far. Thank you so much for listening and joining us! We are really excited about what’s going to come in the new year.
Happy holidays and all the best for 2023!
Julia & Jule
Bodhi is now 3 years old. When he was about 6 weeks, his parents first noticed something was different. They now know that Bodhi has severe dysphagia but still don’t know the underlying cause. Bodhi’s mum Kelly talks about the different assessments Bodhi went through, the diagnoses he was given, the lack of awareness of paediatric dysphagia and the impact on a family’s life when having a child with swallowing difficulties. She also gives advice on what clinicians can do to support parents in this challenging situation.
At the end of the episode, Kelly gives a short update on how Bodhi is doing approx. 4 months after the recording of our conversation. A lot has happened in the meantime, so keep on listening!
Go follow Kelly @swallow.eat.breathe on instagram and stay informed about their journey. If anyone has any advice for Bodhi and Kelly please reach out to us. We wish them all the best and hope that they will find the cause for Bodhi’s dysphagia soon!
If you are new to IDDSI levels you can find further information on www.iddsi.org.
How do we know what outcomes to measure and when to measure them when designing clinical trials? And how can we make studies more comparable, so that researchers measure the same outcomes with the same assessment at the same time points? One solution is the development and application of Core Outcome Sets (COS). Dr. Sarah … EP 14: New standards in dysphagia research: Core outcome sets with Sarah Gorst and Nicola Harman Read More »
Coughing and swallowing are two important functions, both providing airway protection and therefore being essential for survival. However, as students and clinicians we usually learn a lot more about swallowing than about coughing. And often, evaluating the cough function in the dysphagia assessment goes down with simply asking the patient to cough and subjectively assessing … EP 13: Cough reflex testing with Emma Wallace Read More »
Have you ever wondered what is going on in dysphagia experts’ minds when they are seeing a new patient for the first time? What details do they look out for? What are the rationales for upcoming steps in their clinical management? For this episode, we invited Dr Ulrike Frank and Dr James Curtis, two experienced … EP 12: A Parkinson’s case discussion with Ulrike Frank & James Curtis Read More »
Have you ever hit a paywall and could not access an article without being asked to pay for it? Wouldn’t it be great if all research would be transparent and openly available? In this episode we talk about open science in dysphagia research with James Borders. He takes a deep dive into the core practices … EP 11: Open science in dysphagia research with James Borders Read More »
In this episode we speak with Kristin, whose daughter Mackenzie had severe swallowing difficulties. Kristin talks openly about their journey from the first cough and choke until a diagnosis and treatment. She also shares the struggles of not getting information but how the internet could help her. She also gives some pretty good advice to … EP 10: A mother’s perspective on dysphagia with Kristin Read More »
Dear English speaking listeners: this is part 2 of our German episode. We will return later in August with English episodes. Im zweiten Teil unseres Gesprächs zu “Dysphagie bei Menschen mit ALS” mit Ulrich Birkmann geht es um die Therapie von Dysphagien und wie wir unseren Fokus bei der Behandlung von reaktiv auf proaktiv lenken … EP 9: Dysphagie bei ALS – Therapie mit Ulrich Birkmann Read More »
Dear English speaking listeners: this episode is in German. We will be back with English episodes in August. Anlässlich der diesjährigen Jahrestagung der Deutschen Gesellschaft für Dysphagie (DGD) in Potsdam haben wir eine Episode mit Ulrich Birkmann auf Deutsch aufgenommen. Wir widmen uns einem komplexen, aber sehr spannenden Thema: Dysphagie bei Amyotropher Lateralsklerose (ALS). Uli … EP 8: Dysphagie bei ALS – Pathophysiologie und Diagnostik mit Ulrich Birkmann Read More »
Part 2 of “How to PhD” is all about the process of finding a good mentor for your PhD project. Our guest Dr. Nadine Connor has mentored many PhD students herself. In this episode, she shares her experiences by explaining different styles of mentoring, what mentors and mentees can or should expect from each other … EP 7: How to PhD with Nadine Connor – Part 2 Read More »
This time, we have two great guests who share their very own experiences with doing a PhD: Dr Irene Battel has just recently finished her PhD at Trinity College Dublin, Ireland, and Beatrice Manduchi is right in the middle of her PhD at the University of Toronto, Canada. They talk about the highs and lows … EP 6: How to PhD with Irene Battel & Beatrice Manduchi – Part 1 Read More »
Dr. Margaret Walshe joined us for this episode to discuss the first step in the process of dysphagia assessment: screening. She shares her expertise on who should be screened when and by whom and gives recommendations on how to decide for the best suitable screening tool. She explains why it is important to look beyond … EP 5: Dysphagia assessment – Screening in adults with Margaret Walshe Read More »
In episode four we speak to Prof. Shaun O’Keeffe. He and his colleagues have published the article “Aspiration, risk and risk feeding: A critique of the Royal College of Physicians guidance on care of people with eating and drinking difficulties” (O’Keeffe et al., 2021), which was awarded “Annual Best Paper Award 2021” by the ACS … EP 4: Aspiration, risk and risk feeding with Shaun O’Keeffe Read More »
In this episode we speak to Dr. Cynthia Fox, CEO and co-founder of LSVT Global and LSVT LOUD faculty. The Lee Silverman Voice Treatment (LSVT or LSVT LOUD) is an approach that was originally developed to treat voice and speech disorders in people with Parkinson’s disease. Over the years, changes in swallowing have been observed … EP 3: LSVT LOUD and swallowing with Cynthia Fox Read More »
Inhaling, exhaling, swallowing, exhaling … and all over again. Breathing and swallowing are two natural parts of our human lives. But how does it actually work? How do our brains coordinate it? And what happens when a respiratory or neurological disease is present? In this episode Dr. Ulrike Frank shares her expertise on respiration, swallowing … EP 2: Coordination of respiration and swallowing with Ulrike Frank Read More »
Oromotor exercises and intraoral sensory stimulation are basic treatment approaches that are oftentimes used when treating patients with neurogenic dysphagia. But what does the evidence say about these interventions that are part of most clinician’s daily work? We start this podcast with the big question: “Do we know what we are doing?” when implementing intraoral … EP 1: Intraoral treatments with Ivy Cheng Read More »
In this introduction you can learn more about us, Julia and Jule, and what to expect from this podcast.