Take a Pain Check: Recent Episodes
Natasha
"Impacting our community faster than our inflammation" Take a Pain Check (TAPC) is hosted by Natasha Trehan, an 18 year old university student. This is a podcast that engages in conversations about relationships, school, advocacy and much more while living with chronic illness. The host brings her life experiences and talks to guests about their lived experiences. If you're looking for inspiration and support, Take a Pain Check is the community for you. Tune in every other Sunday at 12pm EST on Youtube, Spotify, Apple, Google Podcasts, and iHeartRadio.
https://instabio.cc/takeapaincheck
This week’s podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa’s introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences.Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registrationDon't forget to like, comment, and subscribe for more insightful episodes.Our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.linkedin.com/company/take-a-pain-check/X: https://x.com/takeapaincheckLikedin: https://www.linkedin.com/company/take-a-pain-check/Carissa's socialsInstagram: @_cawitha TikTok: @cawithaaaGrowing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend’s Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes.Our socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Tiktok: https://www.tiktok.com/@takeapainchec...Facebook: https://www.facebook.com/TakeaPainCheck/LinkedIn: https://www.linkedin.com/company/take...Amanda's socialsInstagram: @amandaechayGrowing Pains, Copyright, 2018, Alessia Cara
EIn this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren’s syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively.Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registrationEmily's socials: @healmewholeheartedly www.healmewholeheartedly.comOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.tiktok.com/@takeapaincheck?lang=enFacebook: https://www.facebook.com/TakeaPainCheck/LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca
In this week's episode of Take a Pain Check, Carin Lin joins as a guest to share her journey as a parent of a child with Kawasaki Disease (KD), focusing on her son Isaiah's experience. Carin recounts Isaiah's diagnosis story, shedding light on the symptoms that led them to seek medical attention and the challenges they faced during the diagnosis process. The discussion delves into what Kawasaki Disease is, its symptoms, and how it presents itself in children like Isaiah. Carin shares her advocacy journey, emphasizing the importance of pushing for a diagnosis and educating oneself about the disease after diagnosis. Isaiah's treatment journey, including medications and major surgeries like double bypass surgery, is explored. Carin discusses preparation, the recovery process, and her role in supporting Isaiah. The lifestyle adjustments Isaiah has made and the accommodations needed, especially in school and extracurricular activities, are discussed, highlighting the importance of family support. Carin talks about her involvement in founding Kawasaki Disease Canada is explored, along with the organization's mission and the changes observed in KD recognition over time. Don't forget to like, comment, and subscribe for more insightful episodes.Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/regis...Our socials:Website: https://www.takeapaincheck.com/Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec...Facebook: / takeapaincheck LinkedIn: / take-a-pain-check Carin's socialsFacebook: / kawasakidiseasecanada / isaiahskdjourney Twitter: @kawasakidiscan @IsaiahsJourney Instagram: @kawasakidiseasecanada @carinlin17 LinkedIn: Carin Lin, Kawasaki Disease CanadaYoutube: @kawasakidiseasecanada345 Growing Pains, Copyright, 2018, Alessia Cara
Welcome back to this week's episode of Take a Pain Check! Today, I'm thrilled to have Delane Linkiewich with us, sharing her journey with chronic pain and the incredible insights she's gained along the way. Delane opens up about her experiences, from the car accident that started it all to the psycho-social impacts she's navigated. We delve into the various physical therapies she's tried, her medication regimen, and how she managed treatment during the challenging times of the pandemic. Growing up with chronic pain wasn't easy, and Delane shares how she had to step back from activities at times. She also sheds light on misconceptions about chronic pain and her time in the clinic until she transitioned to adult care. As a passionate advocate, Delane discusses her involvement in research, including her master's work on peer support in pediatric chronic pain. Learn about her initiatives with the Chronic Pain Network, her role in the 'Putting the Pieces Together Conference,' and valuable tips she offers for those living with chronic pain. Don't forget to like, comment, and subscribe for more insightful episodes.Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/register/tZUlf-itrzwpHdHeWxl0qYTy7NYOptjjt8Qh#/registrationOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheckTiktok: https://twitter.com/takeapaincheckFacebook: https://www.facebook.com/TakeaPainCheck/LinkedIn: https://www.linkedin.com/company/take-a-pain-checkDelane's socials:Email: dlinkiew@uoguelph.caX: https://twitter.com/delanelinkieGrowing Pains, Copyright, 2018, Alessia Cara#chronicpain #peersupport #caraccident #pain #invisibledisability #phd
In this week's episode of Take a Pain Check, we welcome Ayesha as our special guest, sharing her incredible journey of diagnosis, advocacy, and touching moments of kindness. Ayesha recounts her initial symptoms that led her to seek medical help, navigating a complex medication regimen, and the ups and downs of her health journey. She reflects on her determination during her undergraduate years, the challenges of planning a wedding while managing her health, and a difficult experience in the emergency room. Ayesha also shares her memorable experience attending Taylor Swift's Eras tour, even in a wheelchair. During the episode, Ayesha updates us on her current health status, medication routine, and mental well-being, offering hope and valuable insights to listeners. She shares Taylor Swift's response to her Tumblr post, and how she met her in person. The conversation shifts to Ayesha's TikTok journey, where she discusses how she creates 'Get Ready with Me' videos, and she discusses her experience living with lupus, highlighting moments of inspiration and the positive impact on her community. Our socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/X: https://twitter.com/takeapaincheckTiktok: https://www.tiktok.com/@takeapainchec...Ayesha's socials:Tiktok: @ayeshaakhurram Instagram: @ayeshakhurram Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check podcast, we delve into the life of Alexander Levine, unpacking his journey with Ankylosing Spondylitis (AS) from diagnosis to shoulder surgery and beyond. Alex shares the story of his diagnosis, detailing life before AS and the challenges he faced in his career, particularly in the health and fitness industry. We explore the knowledge gap between fitness and AS, how his perspective on fitness shifted post-diagnosis, and the impact of physical therapy on his symptoms. Alex also opens up about his shoulder surgery, discussing the pain and recovery process. He sheds light on how friendships and relationships evolved, the support he received from loved ones, and the pivotal role of the chronic illness community. He also talks about managing a family and newborn with a diagnosis. As a fitness enthusiast and owner of a virtual personal training business, Alex shares insights into his unique training style tailored for those with AS, addressing the mental blocks and challenges that come with chronic illness. The episode wraps up with valuable advice from Alex on getting started in the fitness industry with a chronic condition and changing mindsets for youth already interested in fitness. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month:https://us02web.zoom.us/meeting/register/tZMrduGuqj0uHdDgcBicDuG0TBjtvcnGwGkI#/registrationJoin our campaign at a landmark near you for World Young Rheumatic Disease Day: https://www.takeapaincheck.com/light-it-blueOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/X: https://twitter.com/takeapaincheckTiktok: https://www.tiktok.com/@takeapaincheck?lang=enAlex's socials:Youtube: @AlexLevineFitness Instagram: @alexlevinefitnessTiktok: @alexlevinefitnessGrowing Pains, Copyright, 2018, Alessia Cara
In this episode, we're honored to have Jeanine V McGuire sharing her incredible journey with JRA (Juvenile Rheumatoid Arthritis). From her diagnosis story spanning two years to navigating high school with accommodations, shifting friendship dynamics, and excelling as a student-athlete, Jeanine's resilience shines through. She dives into the challenges of managing arthritis during college, both living independently and staying at home. We explore her dedication to fitness, adapting training routines, and maintaining a social life. Jeanine shares valuable insights on transitioning to adult healthcare, telling her partner she has arthritis, getting involved in the chronic disease community, and her impactful roles with the Arthritis Foundation, including the PA race planning committee and the Ease of Use Box campaign. Tune in for advice on managing chronic conditions while pursuing your passions, maintaining a positive mindset, and insights into Jeanine's worries for the future. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/regis...Our socials:Website: https://www.takeapaincheck.com/Instagram: / takeapaincheck_ Tiktok: / takeapainchec. .X: / takeapaincheck Jeanine's socials: @champion.of.yes and / jeanine.v.mcguire Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, we delve into the experiences of Jillian Wickert, who has been living with Juvenile Idiopathic Arthritis (JIA) for the majority of her life. From her diagnosis story to navigating through various treatments and medications, Jillian shares her journey with candor and resilience. We explore the challenges she faced in school and the impact of her condition on her social life. Jillian also opens up about the psychological barriers she encountered and how she overcame them, shedding light on the need for understanding and support. As she discusses her thesis project centered around the question 'How are you doing, really?' Jillian offers valuable insights into what constitutes a neutral experience for individuals living with JIA. We uncover the nuances of Jillian's journey, gain valuable advice for those facing similar circumstances, and explore the significance of community engagement in the realm of chronic illness. Additionally, we delve into the exploration of alternative treatment options alongside medications, the interactions with people over a lifespan, and the delicate balance of when to share or withhold information about one's arthritis. Through the lens of trial and error, we navigate the complexities of managing chronic illness and finding the right path to wellness.
Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/register/tZElcO2tqD8qG9LiI_INsTT7kpGKyhsnKTNZ#/registrationOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.tiktok.com/@takeapaincheck?lang=enX: https://twitter.com/takeapaincheckGrowing Pains, Copyright, 2018, Alessia Cara
In this week’s episode of Take a Pain Check, we delve into the journey of Rachel Gehue, who bravely shares her experiences living with JRA, Spherocytosis, anxiety, OCD, and depression. From the emotional impact of her diagnosis to the challenges faced in school, sports, and social life, Rachel unfolds a narrative of strength and perseverance. She discusses the medications that have played a crucial role in her journey, the supportive relationship with her rheumatologist, and the importance of a patient-centered approach. She discusses the highs and lows of her undergraduate experience, the impact on friendships, and her strategies for managing mental health. Lastly, we discussed Rachel’s advocacy work, from her active participation in the Walk for Arthritis to her role with Patient Partners in NL.Like and subscribe!Apply for our scholarship here: https://www.takeapaincheck.com/schola...Rachel's socials:@rachelgehue @rachelwithrheumatoid Our socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
On this week’s episode on Take a Pain Check, Kyle Brooks talks about his diagnosis journey and about navigating the challenges of JIA and psoriasis. From physio to a two-year wait for answers, Kyle shares his daily battles with symptoms and medications. We delve into the social aspect, addressing bullying, handling negative comments, and finding resilience. Kyle opens up about school life, securing accommodations, and fostering a positive relationship with his general practitioner. Not only that, this episode talks about contrasts in healthcare systems between England and Canada. Finally, we discuss Kyle’s involvement in awareness initiatives, from live streams to TikTok, and his passion for the arts which adds a unique perspective.Apply for our scholarship here: https://www.takeapaincheck.com/schola...Kyle's socials:Instagram: @kyle_b.idk TikTok: @teen.with.arthritis Youtube: @ChefJisooOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Isabel Dukes opens up about her personal journey dealing with JIA, Lupus, Antiphospholipid Antibody Syndrome, ADHD, and Dyslexia. She shares candid reflections on navigating the challenges of high school, dating in university, and the significant transition to adult life, including moving in with her partner. The episode delves into her medication journey and the evolving accommodations she has navigated since her youth. Isabel discusses the critical role of her support system during high school and the unique hurdles encountered in transitioning from pediatric to adult care. As an industrial designer, she discusses her commitment to accessibility. Not only that, she talks about her experience at arthritis camp, the @ArthritisSociety Walk, volunteering with Take a Pain Check and her active participation in the Make Rheum for Youth project by TAPC and @canadianarthritispatiental3234 . The episode concludes with practical advice on advocacy, emphasizing the importance of self-advocacy and community engagement for those navigating health challenges.Like and subscribe!Apply for our scholarship here: https://www.takeapaincheck.com/schola...Isabel's socials:Instagram: @isabel_dukes Linkedin: https://www.linkedin.com/in/isabel-du...Our socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this episode of Take a Pain Check, Alyssa discusses her journey in being involved in the treatment of osteoarthritis care. She discusses the knowledge gap in patient communication, the importance of a holistic approach, and practical advice on exercise for managing symptoms. Additionally, Alyssa also shares insights into physiotherapist appointments and highlights her initiative, “Keep the Adventure Alive,” aimed at helping those with osteoarthritis lead fulfilling lives. The episode explores the significance of exercise in managing symptoms and provides practical advice on safe muscle strengthening and relieving knee pain. Alyssa also shares insights into what patients can expect during physiotherapist appointments, the duration of sessions, and the personalized approach to care. The episode concludes by emphasizing the significance of Alyssa’s YouTube channel in spreading awareness and building a supportive community.
Like and subscribe!Apply for our scholarship here: https://www.takeapaincheck.com/scholarship
Alyssa's socials:Website: keeptheadventurealive.com
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Growing Pains, Copyright, 2018, Alessia Cara#osteoarthritis
Join us on this week’s episode of Take a Pain Check as Brookie Zarb shares her journey with Psoriatic Arthritis (PsA). From the initial symptoms to facing healthcare practitioners, Brookie discusses her diagnosis, medication experiences, and their impact on her life. She explores how PsA influenced her high school years, friendships, and extracurricular activities. She dives into the dynamics of her family, navigating the emotional rollercoaster of sibling diagnoses. Brookie discusses the Australian healthcare system, her creative coping mechanisms during flares, and her role as a Take a Pain Check ambassador. Hear her valuable advice for those dealing with rheumatic diseases in high school and those hesitant about getting involved with organizations.
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Resources: https://msk.org.au/
Brookie's socials:
Instagram: @brookie.zarbarooni
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Growing Pains, Copyright, 2018, Alessia Cara
In this podcast episode, we delve into Dr. Anna Costello’s pathway to becoming a rheumatologist. She shares her initial interest in oncology and the reasons as to why her decision took her to rheumatology and pediatric medicine. She discusses her educational background, from her undergraduate years at Brown University to her medical school experience and the unique opportunities that paved the way to her current position at the Children’s Hospital of Philadelphia. Dr. Costello opens up about her decision to pursue a fellowship and the challenges of transitioning from the working world back into education, providing valuable insights into her daily life and how she manages her physical and mental health. The episode also delves into her research interests, particularly in addressing diagnostic delays in patients with Juvenile Idiopathic Arthritis (JIA) and her approach to ensuring accurate diagnoses within limited timeframes.Don't forget to subscribe to Take a Pain Check for updates!Anna's Socials X: @annatomigaOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
In this week's episode of "Take a Pain Check," we sit down with Laurie Proulx, who takes us on a journey through her life and experiences dealing with arthritis. Laurie discusses her early years, when arthritis seemed to be taking control of her life, and how she found solace and inspiration in the realms of piano, dance, and voice lessons. Diagnosed with arthritis in 1991, she sheds light on the limited treatment options available at the time, including her experience with gold therapy and crossing the border for medical care. Laurie's story unfolds as she saw the introduction of biologics enter in the field of rheumatology, and she emphasizes the importance of education on medication. Through eight surgeries, she shares her coping strategies for dealing with chronic pain and the role that Methotrexate played in her treatment journey. Laurie also delves into the therapeutic power of music and her personal journey with pregnancy, highlighting the reproductive health resources she has created and collaborated on. Tune in to gain insight into Laurie's inspiring journey and her resilience in the face of chronic pain.
Don't forget to subscribe to Take a Pain Check for updates!Laurie's Socials X: @ProulxLaurieInstagram: @capa_arthritisOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara#juvenilearthritis #chronicillness #juvenilearthritis #research #patientsbelike #arthritis #chronicpain
In this week's episode of Take a Pain Check, we dive deep into Maddie Nero's inspiring journey with Juvenile Idiopathic Arthritis. From the early symptoms and struggles with medical professionals to triumphing over bullying in school, Maddie's story is a testament to resilience. Join us as we explore her college life, her passion for pageantry, and her empowering initiative, the Self Care Club for people with disabilities who want to learn more about self care. Don't forget to subscribe to Take a Pain Check for updates!Maddie's Socials: @self._care._club @missmiearth Our socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
Join us on this week's episode on Take a Pain Check as Dawn Richards, diagnosed with rheumatoid arthritis, shares her incredible journey from diagnosis to clinical remission. She opens up about changing rheumatologists, managing methotrexate side effects, and the transformative impact of exercise. She discusses her life both as a researcher and being patient partner in research. Finally, she discusses her involvement with the Canadian Arthritis Network, CIHR IMHA and the Canadian Arthritis Patient Alliance.
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https://arthritispatient.ca/tips-and-tricks-when-taking-methotrexate/ https://cihr-irsc.gc.ca/e/27297.html
Dawn's socials: Twitter - @TO_dpr
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Growing Pains, Copyright, 2018, Alessia Cara
In this episode, Natasha talks to Kohle Merry about his journey with osteoarthritis. From undergoing joint injections to a hip replacement at just 29, Kohle's resilience is evident. As an engineering grad with aspirations for physiotherapy school, his surgical timeline redirected him to a PhD candidate in rehab science. He discusses the hurdles younger adults encounter in a rehab as it is setup predominantly for seniors and delves into the emotional struggles of persistent pain. Drawing from his experiences as a patient, tech enthusiast, and researcher, Kohle talks about his drive and how he wants to be part of the intersection between healthcare, patient partner lens and technology. A marathoner at heart, Kohle shares how he modified his active regimen so that he could keep running. Dive into this story of perseverance, from marathons to medical battles, and learn about how to implement self-advocacy in health.
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Kohle's socials: https://ca.linkedin.com/in/kohle-merry-01018b120
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Growing Pains, Copyright, 2018, Alessia Cara
In this week's episode, we dive deep into the world of occupational therapy with Lindsay DeLong. Lindsay's journey spans from her foundational education to her innovative initiatives in the OT profession, particularly her unique focus on medical equipment. Having worked in a rehabilitation hospital, she specialized in inpatient brain injury rehabilitation, offering a wealth of insights into the day-to-day life and challenges of an OT. Beyond her clinical work, Lindsay founded EquipMeOT, a pioneering business dedicated to providing tailored medical equipment solutions. As we explore the products that enhance accessibility in various sections of a home, Lindsay also sheds light on the digital side of her mission. With a strong presence on platforms like YouTube, where she recently showcased an electric recliner video, and Instagram, she discusses the nuances of staying updated with trends, the hurdles of online engagement, and the power of social media in broadening her impact. She also delves into specific tools like Dycem, cylindrical forms, Y-shaped pencil grips, and more invaluable tips for adaptive living. For aspiring OTs, patients, caregivers or those curious about balancing work and personal life, Lindsay's experiences and advice promise a unique blend of inspiration and enlightenment.
YouTube Video Link: https://youtu.be/I8g24I2OQc8 Cane Company: https://www.neo-walk.com/
Lindsay's socials: @equipmeot (IG) youtube.com/@UCLdk42lFK6A-7Ub7cLQH00g
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Growing Pains, Copyright, 2018, Alessia Cara
Join us on this week's episode featuring Navya Juneja, a university student and a patient partner living with Juvenile Idiopathic Arthritis. In this week's discussion, Navya candidly shares her journey, from the early symptoms to her recent diagnosis and the challenges of finding the right medications.
Natasha and Navya delve into essential topics, such as university accommodations compared to high school, providing practical advice on how to request and access the necessary support. They also explore the transition of care from pediatric to adult rheumatology clinics, shedding light on the significance of continuity and tailored healthcare services for young adults like Navya. Beyond her medical journey, Navya passionately shares her love for dance and her involvement with Take a Pain Check and SickKids, revealing how individuals can thrive and find purpose even while managing a chronic illness.
Navya's Socials: Instagram: @navyaa_j LinkedIn: https://www.linkedin.com/in/navya-jun... Facebook: facebook.com/navyaajunejaa
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Growing Pains, Copyright, 2018, Alessia Cara
In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings.
Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles.
Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=enhttps://luttecollective.com/featured-artists/sharona-franklin
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Growing Pains, Copyright, 2018, Alessia Cara
Join us on this week's episode of Take a Pain Check where our host, Natasha, delves into the world of pediatric oral and maxillofacial surgery with our esteemed guest, Dr. Cory Resnick. A science enthusiast since childhood, Dr. Resnick shares his journey into dentistry and his love for academic surgery. He discusses the challenges of maintaining work-life balance while running a private practice in New York and enlightens us about the inspiring environment created by working with trainee surgeons. This episode explores an often overlooked aspect of rheumatology - TMJ arthritis. Dr. Resnick sheds light on its recent recognition, the difficulties in early detection, and its prevalence among JIA patients. He further delves into the complexities of treating TMJ arthritis, the concerns related to using steroids in growing jaw joints, and the possibilities of joint reconstruction. Learn about the subtle signs that can hint at TMJ issues in children and the need for increased awareness and education about this 'forgotten joint'. We wrap up with a hopeful note on the formation of the TMJaw Research Consortium - an international group that it working towards better understanding and treatment of TMJ arthritis. Tune in as we navigate the fascinating crossroads of rheumatology and oral and maxillofacial surgery, uncovering profound insights and innovative perspectives from the field.
Resources discussed: https://onlinelibrary.wiley.com/doi/f...
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Growing Pains, Copyright, 2018, Alessia Cara
On this week's episode of Take a Pain Check with your host Natasha, we delve into the world of Nikki Bhatti. Nikki bravely shares her personal journey living with rheumatoid arthritis - from the first instances of joint pain in her fingers and toes, to the evolution of her medication journey with her current medication called Actemra. Listen in as she discusses the social implications of managing arthritis, and dives deep into what it is like being a South Asian woman managing cultural expectations while grappling with her own health. Natasha and Nikki dive into the discussion on lifestyle changes. Nikki discusses her experience with gym visits and swimming, along with the adaptations she's had to make to her work schedule due to morning stiffness and flare-ups. Hear about her experiences with arthritic nodule surgery and how she navigates disability within the workplace. Lastly, Nikki highlights her significant contributions to arthritis research as a part of the APAB board at Arthritis Research Canada, including the creation of an educational video. Natasha and Nikki end off the episode by discussing how they met each other!
Resources mentioned in the episode: https://youtu.be/ll0avFOq210
Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck
Check out Nikki's socials: Instagram: strengthwithra
Welcome to this week’s episode of Take a Pain Check with Natasha where we dive deep into the world of pain management. In this enlightening conversation, Nathan Augeard, a physiotherapist from Quebec and the visionary behind Physio Connection comes onto the podcast. Join us as we explore various facets of pain management and gain valuable insights from Nathan’s expertise. Nathan compares the healthcare systems of Scotland and Canada, shedding light on wait times and other crucial differences. This episode delves into the pain and pacing strategy, uncovering the interplay between stress and its impact on pain. He discusses his groundbreaking research and talks about how physiotherapy students across Canadian universities are taught pain management. As Natasha and Nathan explore the various aspects of pain management, Nathan highlights the importance of interpersonal competencies such as empathy, respect, and advocating for patients. Nathan sheds light on how this Canadian network connects individuals living with pain to qualified physiotherapists, with a particular focus on enhancing access in remote regions. Tune in to this episode and let’s embark on a journey to unlock the benefits of physiotherapy and conquer the challenges of pain together.Resources mentioned: https://www.amazon.ca/Explain-Pain-Da...https://epublications.marquette.edu/p...https://www.tandfonline.com/doi/full/...https://www.physioconnection.ca/Check out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Nathan's socials Facebook: http://facebook.com/physioconnection.ca Twitter: http://twitter.com/ptconnection_ca Instagram: https://www.instagram.com/physio_conn...Growing Pains, Copyright, 2018, Alessia Cara
In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week’s episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy’s inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don’t miss this week’s episode of Take a Pain Check.Check out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Krissy's socials:Instagram: @chronicallyillkrissyGrowing Pains, Copyright, 2018, Alessia Cara
Join host Natasha on this week's heartwarming episode of Take a Pain Check, as she sits down with Isabella, a remarkable 13-year-old girl who shares her inspiring journey with Lupus, Juvenile Idiopathic Arthritis, and Sjogren’s. Isabella's story began during the pandemic, when she experienced excruciating pain in her elbows at the tender age of 9. Initially hesitant to see a doctor, she attributed the pain to her extracurricular activities. However, after her hands turned purple due to Raynaud's, she finally sought medical help.
In this episode, Natasha and Isabella discuss the challenges faced by vulnerable patients and their families during the diagnosis process. Isabella shares how she was dismissed in the clinical setting, but her resilience and determination led her to make the necessary lifestyle changes. She talks about how she embarked on a medication journey which had its ups and down. She also discusses her journey with using mobility aids from a young age. Despite the obstacles, Isabella's unwavering spirit shines through, as she adapted to homeschooling with her sister and found support from her family and close friends.
Isabella also shares how she used music and humor to cope with her pain, despite the challenges with her hands when she played piano. Her advocacy journey and involvement with the Arthritis Society, including attending their yearly camp and kids' programs, are also discussed. Isabella's story of hope and perseverance will inspire you to live life to the fullest, even in the face of adversity. So, don't miss this episode of Take a Pain Check, and join Isabella on her journey towards living her best life!
In this week's episode of Take a Pain Check, Natasha welcomes Cassidy Bradley, a medical student at Dalhousie University, who bravely shares her journey with Fibromyalgia and POTS. Cassidy's story starts with her symptoms emerging during her time as a national-level speed skater, eventually leading to hip surgery. She discusses her mental health struggles and the benefits of therapy in coping with chronic illness, as well as accepting her disability and navigating accommodations in medical school.Cassidy opens up about the challenges she has faced with hip surgery, physiotherapy, and managing fibromyalgia and POTS, including temperature sensitivity and allodynia. She shares the adjustments she has made, such as using a heated blanket and wearing braces. Additionally, she highlights her advocacy work as a patient partner in research, advocating for the patient voice and aligning research with patient needs and values, along with Natasha who shares her own patient partner experience.Cassidy also shares her positive experiences at Brigadoon Village, a camp for children with chronic illnesses, where she found support from counselors and fellow campers. Don't miss this insightful episode as Cassidy Bradley shares her inspiring journey on Take a Pain Check!Cassidy's socials: Twitter and Instagram: @Cassidybradley_Check out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara#fibromyalgia #medicalstudent #dalhousie #speedskater #rheumatology #pots
Get ready to be inspired by this podcast episode hosted by Natasha Trehan and featuring Kabir Budlender! Kabir is a 16-year-old high school student and JIA patient from Johannesburg, South Africa. He's not just any ordinary teenager though - he's a passionate advocate for educating others about what life is really like when you're living with chronic illness and invisible disability. He discusses his medication journey for POTS, JIA and IBD including his experience with Humira and Methotrexate. Not only that, Natasha and Kabir both discuss their passion for music and how it continues to be a form of escapism despite the hurdles of arthritis. Kabir sits on the Executive team of the Take a Pain Check Foundation and is also a member of Arthritis Kids South Africa.In this episode, Kabir dives deeper into the issue of rheumatic illness in South Africa and how challenging it can be to get a diagnosis if you don't have medical aid or insurance. He also touches upon the language barrier to easy access of information, the maintenance of medications in lower socioeconomic areas and the barriers for access to care - North America vs South Africa’s health care system. He discusses the social aspects of having a chronic illness and being in high school as well as accommodations. Lastly, Kabir shares how getting involved with organizations like TAPC can be a beneficial part of one's rheumatic disease journey. Relevant links:William's Story: https://www.instagram.com/reel/CmOwvc...WORD Day Video: https://www.instagram.com/reel/CjnEZe...Kabir's Blog: https://www.takeapaincheck.com/post/h...Kabir's socials: Instagram: @kbudlender_ and @thechronicallyill_teenCheck out our socials: Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
On this week’s episode on Take a Pain Check, Jacqueline and Alexa Child come on the podcast to talk about their own personal experience of living with a chronic illness and being a sister of someone who has a chronic illness, respectively. Jacqueline starts off by discussing her diagnosis journey with Ehlers-Danlos Syndrome and other chronic illnesses. She talks about bad joint and muscle pain, having a butterfly rash, experiencing sensitivity to the sun, and dealing with GI symptoms that led her to seek help from a medical professional. On the other hand, Alexa discusses how she was 3000 miles away for law school, and she started off not really understanding what Jacqueline was dealing with. But once she truly learned more about it, it changed her as a person and gave her a unique perspective. Growing up in Telluride, a ski resort, there were no hospitals nearby and no specialist nearby so Jacqueline discusses her access to care barriers. Alexa and Jacqueline discuss their lives’ living together and how they became more mature than others around them as they had different lived experiences. Jacqueline talks about the difficulties being honest with Alexa about her symptoms as it’s hard a challenge to ask for help. Moreover, Jacqueline talks about her heart surgery after being born with a congenital heart defect at age 25. They end off the episode by talking about Dateability, a dating app for the chronically ill and disabled. Dateability was made based on the lived experiences of Jacqueline’s dating life and constant rejections. They talk about how the app works, their future goals for the app and how they hope to connect this ever growing community.
Dateability: https://info.dateabilityapp.com/
Jacqueline and Alexa's socials: @dateabilityapp @jacquelineechild @alexabchild Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck
Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara
On this week’s episode, Chris Pudlak talks about his journey with Ankylosing Spondylitis. Diagnosed at age 36, Chris struggled to lift up his kids or even play with them because of his arthritis pain. Since day one, he started journaling in which he intertwined his engineering skills to track his symptoms. He discusses lifestyle changes he implemented and how he tracked his symptoms. Not only that, Natasha and Chris discuss workplace accommodations such as a height adjusting desks and a different type of handshake. Chris also gives tips on how to cycle and run with ergonomic equipment. He talks about the impact of physiotherapy on his arthritis. Lastly, Chris talks abut his book ” Achieving Wellness Through Arthritis” and his involvement in Arthritis Research Canada.
Check our Chris' Socials: Twitter and Facebook: @ChrisPudlak
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Growing Pains, Copyright, 2018, Alessia Cara
Alli Buchanan joins host, Natasha, on this week’s episode on Take a Pain Check to discuss her diagnosis with Psoriatic Arthritis (PsA). Alli’s starts by talking about her diagnosis journey and how it took her 10 years to get diagnosed. Physicians were aware of Alli’s family history with PsA but did not take that into account when her symptoms progressed. Because of Alli’s mom’s experience with PsA, Alli discusses how her mom was her biggest advocate as she spent a lot of time reliving her own journey. The conversation dives into the importance of talking about arthritis and its lack of representation in the science curriculum. Not only that, Alli talks about the medications she went on and how this led her to develop Toxic Shock Syndrome. She discusses that a medication that may work today, but it may not work tomorrow. She talks about her accommodations, such as having transportation and picking her university courses before other people. Additionally, Alli mentions how she balances her social life, academics and arthritis while going to college and how her friends have been able to support her. Finally, they end off the episode by talking about Alli’s arthritis Instagram page and a recent quiz she made to see how much her friends knew about her arthritis.
Quiz on Alli's friends: https://www.instagram.com/reel/CljWiTljOeV/?igshid=YmMyMTA2M2Y=
Check our Alli's Socials: Instagram: @alli.arthritis
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Growing Pains, Copyright, 2018, Alessia Cara
It started off in the hospital when Juanita told her friend she would be back to school in two days. Soon, those two days turned into months of isolation, treatments, etc. On this week’s episode, Juanita Garcia comes on to share her story with Thrombotic Thrombocytopenic Purpura (TTP) and Lupus at ages 13 and 20, respectively. Being born and brought up in Columbia, Juanita shared her health care journey while going through the Canadian vs Columbia’s system. She discusses the difference in wait times, getting blood results, and overall patient care. At the age of 13, Juanita was isolated for months from her family and peers due to her weak immune system. Her parents were also told that she wouldn’t make it when she could not get to the hospital quickly. Despite all of this, Juanita continued to be resilient. Once she found medications that worked, things got better. Natasha and Juanita discuss the different types of patients that exists, both of them being ones that actively want to learn more about their disease. Not only that, Juanita comes to a point in her life where she had to learn to accept her disease as her new reality. Juanita shares her change in mindset and how she had to turn her disease into her friend. Lastly, Juanita shares how her journey allowed her to really get involved in her passion — research and health. She ends off the podcast episode by talking about her patient partner work with the SPOR Evidence Alliance group and the COVID END team.
Take a Pain Check's Merchandise Design Fundraiser Event: https://www.eventbrite.com/e/take-a-p...
Check out Juanita's Socials: @juanitagarciarecio @_me_the_hero
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Growing Pains, Copyright, 2018, Alessia Cara
Dr. Molly Dushnicky brings her JIA and physician perspective to this week’s episode on Take a Pain Check. In this episode, Dr. Molly discusses the story of her JIA diagnosis at the age of two with approximately 45+ impacted joints. She faced barriers of access to care in her hometown Thunder Bay in Northern Ontario as there was no pediatric rheumatologist then and even now. She talks about how she had to be flown down to The Hospital of SickKids in Toronto and CHEO in Ottawa to be treated. Dr. Molly is a fighter who did not let the disease stop her from being active. She is passionate about soccer, curling and rock climbing and learned different strategies to overcome her disability. Dr. Molly discusses her advocacy through the challenges as well as accommodations at each stage of her life with her diseases from elementary to high school, and from university to medical school. She also provides insight to her residency and fellowship programs. Lastly, Dr. Molly shares her path to her career in pediatric rheumatology and how her passion drew her to what she loves to do today.
Take a Pain Check's Merchandise Design Fundraiser Event: https://www.eventbrite.com/e/take-a-p...
Check out Dr. Molly Dushnicky's socials: Twitter: @MDushnicky
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Growing Pains, Copyright, 2018, Alessia Cara
This week’s episode features Dr. Natasha Gakhal (Adult Rheumatologist) and Dr. Evelyn Rozenblyum (Pediatric Rheumatologist), who come on the podcast to discuss their collaborative transition clinic in Toronto, Canada. They begin the episode by discussing where their interest in rheumatology came from and what drew them to focus on adult medicine vs pediatric medicine. They discuss how they met each other and what really led them to make this clinic including year long discussions at the table, challenges along the way and more.
Will parents be allowed in the appointment? What happens when I turn 25? Why am I now getting input from 3 different health professionals? These are all questions answered in the episode!
Additionally, they discuss the benefits of going to a transition clinic, such as the environment, other people around your age, and the multidisciplinary care. They stress the importance that it is more than just physical health while emphasizing on mental, reproductive health and more. Not only that, they discuss the type of care patients can expect, the resources that the clinic provides for youth and young adults, and the common challenges that patients face. Finally, they end off the episode discussing where they see the future of the clinic going and feedback they plan on implementing.
Sign up for our December Joint Chat Rheum Session on Sunday, December 18th at 2pm EST/11am PST: https://us02web.zoom.us/meeting/register/tZUvcemuqj4tG9bv5GacH2ETnmLJ0Yjxcha4
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Growing Pains, Copyright, 2018, Alessia Cara
This week’s episode features Naomi Abrahams, a PhD student at the University of Ottawa, who lives with Juvenile Idiopathic Arthritis. The episode starts off by Naomi talking about how life felt like when being misdiagnosed for 3 years. She brings Natasha along her journey to when her symptoms started with joint swelling and pain in her hips that then moved to her elbows. Eventually, she wasn’t able to brush her teeth or eat food without pain. Her world changed and she had frequent visits to the dentist and had tons of MRIs. This led her to finally figure out her personal medication and treatment journey. Moreover, Naomi explains how she never experienced pediatric care but was experiencing symptoms when she was 15. On her 18th birthday, she was given her new diagnosis in which she felt as though she was “thrown into the adult world”. Additionally, Natasha and Naomi both discuss the pros and cons of having a rheumatoid factor negative vs positive one. They also discuss the similarities they had in terms of medications they had been on (DMARDS and biologics). Following that, they continue the conversation by talking about their own physiotherapy pathway, specifically what it’s like to do physiotherapy in a flare up and the financial aspects of getting billed through insurance. They discuss the MRI vs infusion fatigue, moving out to university with arthritis, and hair loss/growth with medications. Then, they get into the fun stuff like how Naomi told her boyfriend that she had arthritis and how he now supports her. Natasha and Naomi discuss how they met each other specifically through the Choice Research Lab, patient engagement in research and how important patient partners are. Last but not least, they end off the episode discussing their experience together at the CBC Ottawa Radio station, filming the CBC documentary and more!
CBC documentary and article: https://www.cbc.ca/news/canada/ottawa/juvenile-idiopathic-arthritis-podcast-creator-network-cbc-1.6614184CBC radio segment: https://www.cbc.ca/listen/live-radio/1-100-ottawa-morning/clip/15943512-juvenile-idiopathic-arthritis
Check out Naomi's socials: Instagram: @naomiabrahams
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Growing Pains, Copyright, 2018, Alessia Cara
In this week’s episode, Sarah Shaw becomes the host and discusses the hot topic: workplace and arthritis with guests — Michael Kuluva, Annette McKinnon and Natasha Trehan (host of TAPC). They discuss working with a rheumatic diseases at various stages of life and address the challenges in keeping employment. Unemployment and underemployment lie at the core of poverty and the financial security of people with rheumatic disease. Income has long been recognized as a social determinant of health with significant implications on the quality of life, health status, and access to health care benefits. Join the four individuals as they dive deep into their journeys, passions and hurdles.
This episode was created from the World Arthritis Day Twitter Space event held on Oct 12th, 2022.
In this week’s episode, Christina Hepner talks about her symptoms that started when she was 19 in her sophomore year. Christina relates that she tried to hide her pain in university just to live a normal college life and used humour to cope with it for 1 whole year. However, after she returned from her summer break, she no longer could hide her disease from her friends who spoke about how much fun they had in the summer. Christina started bawling her eyes out and told her friends that she spent her time in so much pain and disclosed her arthritis diagnosis. She was lucky to have a great support system which helped her mental health. Christina discusses how her arthritis made her feel like she wasn’t herself most of the time. She gained weight, had knee surgery and dealt with depression. She mentions how she worked through those hurdles with physiotherapy, changing her mindset and implementing lifestyle changes such as weightlifting and eliminating certain inflammatory foods that she researched. Finally, the episode ends with Christina talking about her job in a non-profit organization for the visually impaired as a digital marketer and her current disease status being in remission.
Check out Christina's socials: https://www.facebook.com/ChristinaHepnerMedia https://www.instagram.com/christina_hepner/ https://twitter.com/ChristinaHepner
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Growing Pains, Copyright, 2018, Alessia Cara
As a baby, she started off crawling then walking. After, she reverted back into crawling. On this week's episode, we invite Alexa Sutherland, an actress and writer from Los Angeles. She talks about her 4 chronic condition, including Ankylosing Spondylitis, Rheumatoid Arthritis, Fibromyalgia and Graves Disease. She starts off the episode by explaining the joints impacted for each condition and how she differentiates the pain for each of them. Alexa describes the struggles she endured at each point in her life with every added diagnosis, specifically the social and emotional aspects. In particular, she talks about the switch to home schooling due to the inability of her school faculty to accommodate. Ultimately, she decided to become her own boss and thrive in an environment that was meant for her. As the conversation continues, Alexa shares her experience with online college and discusses how online school helped her further explore her passions. She dives into her experiences with injection days and how the auto injector was her ultimate life saver to becoming more confident in giving herself her injections. Additionally, Natasha asks Alexa about dating while living with a chronic illness which led to them talking about insecurities relating to being “too difficult” to be with. Lastly, they discuss Alexa’s acting gigs, specifically Deadly Cheer Moms and navigating accommodations.
Check out Alexa's socials: https://twitter.com/glowlexa https://www.instagram.com/glowlexa
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Growing Pains, Copyright, 2018, Alessia Cara
On this week's episode on Take a Pain Check, Charlotte Ryder-Burbidge discuss her diagnosis of Rheumatoid Arthritis and Celiac Disease. She was diagnosed away from home during her studies. Luckily, she discusses how she had great housemates during that time that supported her. Natasha and Charlotte both discuss the differences in being with their parents when receiving a diagnosis vs not being with them. They both relate on the struggles of studying science while dealing with hand pain and inflammation. For Charlotte, that lead to her feeling the need to skip classes and not care about school for the longest time. On the other hand, she also developed other lifestyle changes such as going to the gym. As the conversation continues, they both discuss their experiences on triple therapy and the side effects they've experienced. Finally, the episode ends off with talking about Arthritis Research Canada's patient advisory board where Natasha and Charlotte first met.
Next Joint Chat Rheum Session on Sunday, October 23 at 2pm EST/11 am PST: https://us02web.zoom.us/meeting/register/tZArcOmtpzsqHNSY5FVgIF1TetCQ_MZYbJhK
Check out Charlotte's socials: Instagram @charryder
Arthritis Research Canada: https://www.arthritisresearch.ca/
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Growing Pains, Copyright, 2018, Alessia Cara
It started with blood clots in the lungs. If Tony waited a day or a couple of hours later, his story would’ve been very different. This week’s episode features Tony Sosa from Southern California who discusses his diagnosis with Lupus and Antiphospholipid Antibody Syndrome (APS). Due to his Lupus symptoms (the butterfly rash, joint pain and fatigue), Tony had to stop working in the fire fighting industry and his job in the kitchen. He quickly realized the importance of community support, as well as reading and learning about his diagnosis. Natasha discusses how she learned about her disease — through her parents — and how this process changed over the years. Natasha and Tony dive into their similarities in terms of the plant based lifestyle change they have both incorporated in their lives. Finally, Tony talks about the up sides of living with Lupus, specifically being able to give others hope about their disease through initiatives such as Take a Pain Check and the Lupus Foundation of Southern California.
Next Joint Chat Rheum Session on Sunday, September 18th at 7pm EDT/4pm PDT: https://us02web.zoom.us/meeting/regis...
Check out Tony's socials: Instagram: @a.sosa_ii
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Growing Pains, Copyright, 2018, Alessia Cara
On this week’s episode, Megan Tovar comes on the podcast to talk about her diagnosis of Rheumatoid Arthritis. She discusses how she was active in several ways, which led to a confusing path to diagnosis as the blame was assigned to other physical activities that she was involved in. Natasha and Megan discuss the difference between transition and rheumatology care in different geographical locations across North America. Moreover, the conversation progresses to talking about Megan’s impacted joints - her knees. She talks about her experience with draining fluid in her knees, as well as a knee scope. Additionally, Megan discusses the different lifestyle changes she has implemented throughout her journey, such as changing her mindset, eating habits, and focusing on fitness. Finally, Megan discusses her career as a fitness trainer and how she is constantly empowering people with arthritis to be active through her social media platforms and advocacy work.
Next Joint Chat Rheum Session on Sunday, September 18th at 7pm EDT/4pm PDT: https://us02web.zoom.us/meeting/regis...
Check out Megan's socials: Instagram: @itsmegzz_fitness
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Growing Pains, Copyright, 2018, Alessia Cara
“Managing my arthritis can be compared to being the mayor of a village” Sadiq told Natasha, on this week’s episode. Sadiq Jiwa, a 26 year old professional golf player from Vancouver, Canada currently on the road for the PGA tour. The conversation starts off with Sadiq’s diagnosis story at the age of six and what life was like being young with Juvenile Idiopathic Arthritis. Moreover, the comments from people in school as well as the emphasis of confusing growing pains with arthritis pains. As the discussions progresses, he talks about his journey moving from pediatric to adult care and the difference in care as well as his way of articulating his health. Being a professional golfer, Sadiq explains that he had to start learning pain management techniques from the beginning. Lastly, Natasha and Sadiq both discuss their work with the Arthritis Patient Advisory Board from Arthritis Research Canada and other smaller arthritis awareness groups to help spread awareness and share their stories about overcoming their adversities.
Sadiq's blog on TAPC: https://www.takeapaincheck.com/post/inflammation-and-intimacy
Arthritis Research Canada: https://www.arthritisresearch.ca/
Check out Sadiq's socials: Instagram: @jiwanator
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Growing Pains, Copyright, 2018, Alessia Cara
“Don’t say you're disabled” they said. These were comments Anna Samson received when they were using mobility aids to help them get through their daily tasks while living with a chronic illness. This week on Take a Pain Check, Anna Samson comes on the podcast to to talk about their life with Ankylosing Spondylitis and Fibromyalgia as a 23 year old. They start off the conversation by talking about their initial symptoms and explaining the 4 year wait to get a diagnosis. After receiving a diagnosis, Anna talks about their experience finding resources to help them understand their own conditions. Moreover, Natasha and Anna discuss the benefits of physiotherapy. The conversation progresses to talking about disability in different settings, specifically the blue and red seats on the TTC subway. Throughout Anna’s journey, they learned how to advocate for themselves in a health care setting and how they become more confident. Not only did they have to talk about their symptoms, but they had to “get better at talking to people.” Finally, Anna explains their involvement in Take a Pain Check as an ambassador, as well as their work in Health Union.
Next Joint Chat Rheum Session on Tuesday, August 16th at 7pm EDT: https://us02web.zoom.us/meeting/register/tZUsc-CvqDMtEtdQYezlNi8gJhkW5roy5_TK
Self-Advocacy Live: https://www.instagram.com/tv/Cb5sHwVIC8P/
Makeup Live: https://www.instagram.com/tv/CaQI5eBKKTG/
Health Union: https://www.instagram.com/healthunion/
Check out Anna's socials: Instagram @chronicallyillxo TikTok @chronicallyillxo Twitter: @chronicallyillx
Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck
Growing Pains, Copyright, 2018, Alessia Cara
During the pandemic, Haley and her boyfriend went to the grocery store and a few minutes later, she fell to the ground. On this week’s episode, Haley Crespo joins Natasha to discuss her journey with lupus and Evan’s syndrome. Haley starts off the episode by discussing how her boyfriend was her main support system through her diagnosis story. Consequently, Haley discusses her symptoms and how her lupus varies from others in the sense that it effects only her blood. Natasha and Haley bond over not only Selena Gomez being an amazing lupus role model, but how they both don’t have the typical rheumatic disease symptoms, like a fever or rash. Additionally, Haley discusses her experiences being on blood thinners and the difference between the location of her injection including how that made her feel. She talks about growing up quickly and being given responsibilities from her parents once she was diagnosed. Finally, the episodes ends with Haley talking about her collaboration with Lupus Canada where she created her jewellery shop to raise awareness for Lupus Awareness Month this past May — Haley Made.
Check out Haley's socials: Instagram @haleymadeshop + TikTok @haleymadeshop
Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck
Growing Pains, Copyright, 2018, Alessia Cara
Imagine being 30 and needing to plan your funeral while also planning your will. This is the exact experience Amanda Ishii had to go through a few years ago. On this week’s episode, Amanda discusses her journey living with Lupus, Crohn’s disease, Colon cancer and Multi Organ Dysfunction. Amanda explains her initial symptoms and jumps into the importance of social and mental support when it comes to dealing with a chronic illness. Moreover, Amanda brings up therapy, a resource that not only helped her by providing her someone to talk to but also is used by many people in all communities as a tool for support. As the episode progresses, Amanda discusses what life was like throughout college to present day with an ileostomy bag in social settings, while playing basketball and when travelling. Since a young age, basketball was a passion of hers. Even with a medical device, Amanda continues to pursue basketball professionally while knowing her limits; she is unstoppable. Finally, Natasha and Amanda end off the podcast episode by talking about a new initiative Amanda is starting up to supply 3rd world countries with medical and school supplies for free, The Mango House.
Check out Amanda's socials: Instagram: @haparae @themangohouse_cebu
Sign up for the July Joint Chat Rheum Session: https://us02web.zoom.us/meeting/register/tZ0ofuCspjsoGdduKrpgemnDZa1As6TvwYhL
Check out our socials: Website: https://www.takeapaincheck.ca/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheckTiktok: https://www.tiktok.com/@takeapaincheck
Devyn Nichols, a 14 year old content creator for Take a Pain Check, comes onto the podcast to discuss her diagnosis with undifferentiated Juvenile Idiopathic Arthritis. When talking about Devyn’s diagnosis journey, she brings up medical gaslighting to which led to her seeing many family doctors and rheumatologists. Natasha and Devyn discuss side effects they’ve experienced on Methotrexate and Prednisone, as well the insecurities that came alongside being teenage girls. Not only that, Devyn explains the struggle of having peers and school faculty not understanding that arthritis fluctuates, appointments can’t be on weekends and it's not “just joints that are sore sometimes but will go away”. From a young age, gymnastics was Devyn’s dream but soon after being diagnosed with arthritis she came to a realization that she had to let it go. With that in mind, Devyn mentions that letting go opened up a whole new world for her. Finally, they end the episode talking about Devyn becoming an arthritis advocate and discussing her involvement with Take a Pain Check, as well as her personal Instagram account @devs_jia_journey.
5 minute video explaining JIA: https://www.instagram.com/p/CTxoNO4g_DS/
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Devyn's socials: Instagram: devyn_nicholsss, devs_jia_journey Tik-Tok: devyn_nichols
Growing Pains, Copyright, 2018, Alessia Cara
On this week’s episode, Afshin Bhimani discusses her journey living with Rheumatoid Arthritis and Fibromyalgia. She starts off by explaining her lengthy diagnosis process and how she felt during this time. Once she started to go to doctors to figure out what was wrong, she was unable to find a physician who took her seriously. Moving from India to the States, Afshin discusses the cultural changes that occurred in her life. Natasha and Afshin both bond over Indian culture and holistic approaches they’ve tried. They discussed what they thought caused their diagnoses’ and both predict that changes in environments were a trigger for both of them. Due to Afshin's disability, she has a service dog - Sammy - who has been a great support in her life. Afshin talks about her struggles with US healthcare, as well as the ups and downs she faced with the comments of others when she brought her service dog. They end off the podcast by talking about “Desi and Diseased,” Afshin’s website and Instagram that she uses to raise awareness for South Asians living with chronic conditions.
Check out our socials:
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Instagram: https://www.instagram.com/takeapainch...
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Afshin's socials: Instagram: desi.spoonie TikTok: solo.spoonie
Growing Pains, Copyright, 2018, Alessia Cara
On this week’s episode, Aleina Margos joins Natasha to discuss her journey with Psoriatic Arthritis (PsA). Being diagnosed during the pandemic, Aleina starts off the episode by elaborating on her rheumatoid arthritis, including symptoms, topicals and pill medications that she was prescribed at first. Aleina and Natasha discuss the affects of their medication, like discolouration and how they abstain from scratching the skin. Aleina elaborates about her diagnosis period and how she received a lack of support from her friend. The conversation progresses onto the bonding of costochondritis, as well as the confusion and struggle a patient experiences when they start experiencing other pains that might not actually be arthritis. Finally, Aleina and Natasha shine light on the power of community via social media. Aleina expands on her own Instagram page, as well as her involvement in Patients Rising and being a TAPC ambassador.
DISCLAIMER: The views and opinions expressed by guests on this podcast do not represent or reflect the official policy or position of the Take a Pain Check Foundation and podcast. All information shared is from personal experiences and does not constitute medical advice. We do not take responsibility for any statements expressed during the Podcast and Take a Pain Check does not endorse any products or services. Any said products or services mentioned on this podcast may not be suitable for you or your condition. Please consult with your physician if you have medical questions as it may pertain to your condition.
We've now launched the Joint Chat Rheum Program and our first session is on Sunday, May 29th at 4pm EST. If you're interested in hanging out with us and making friends with other youth with arthritis, you can sign up here: https://forms.gle/UEPfJSuc5ZSpbwpz8
Aleina's Socials: Instagram - @arthriticaleina
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Growing Pains, Copyright, 2018, Alessia Cara
Take a Pain Check’s Mother’s Day special features Jenni Weaver, a mom of 3 kids, that comes on the podcast this week to discuss her diagnosis with rheumatoid arthritis and pustular psoriasis. The discussion starts off with the basics, specifically talking about Jenni’s original symptoms that led to a diagnosis after several years. Natasha and Jenni discuss the set backs in terms of communication in health care, focusing on the struggle of getting a copy of blood test results. The conversation continues with Jenni explaining how she went switched to different rheumatologists and was finally able to find the medication that didn’t cause several allergic reactions. Jenni and Natasha discuss the importance of having someone else advocate for them at appointments. The episode progresses to Jenni providing her tips and tricks on how to manage her disease and parenting with her kids. Finally, they end off the podcast episode talking about the power of social media and online advocacy. Jenni's Socials: @Gracefully_jen @My_Spoonie_Sisters
Check out our socials: Website: https://www.takeapaincheck.ca/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheckTiktok: https://www.tiktok.com/@takeapaincheck
Growing Pains, Copyright, 2018, Alessia Cara
Dr. Rae Yeung started off her education journey dreaming to be pilot or an astronaut. But she realized quickly, that she had a passion for medicine, children, and rheumatology. The conversation on this week’s podcast episode starts off with a timeline of Dr. Yeung’s journey on becoming a pediatric rheumatologist and a researcher. Dr. Yeung talks about her primary research interest - precision medicine and specifically how this will be able to treat patients on an individualized level based on genes. Furthermore, she clarifies the availability of genetic testing (clinical vs research) for patients. Natasha and Dr. Yeung provide their perspectives on COVID-19 specifically: in person versus virtual visits, the effects and shortages of medications used for both COVID-19 and arthritis, the effectiveness and fears of being on immunosuppressive drugs, and finally the similarities and difference with your immune system with COVID vs arthritis. The discussion progresses into talking about Kawasaki disease, and it’s symptoms that may in fact be COVID-19 related. Lastly, the episode ends off with Dr. Yeung expressing her knowledge of what the future of rheumatology looks like including two major research projects she founded - UCAN CAN-DU and UCAN CURE.
Dr. Rae Yeung's initiatives: https://twitter.com/ucancandu https://twitter.com/SickKidsNews https://twitter.com/CAPRI_Canada https://www.ucancandu.com/ Dr. Rae Yeung's Lab - https://lab.research.sickkids.ca/yeung/
Check out our socials: Website: https://www.takeapaincheck.ca/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheckTiktok: https://www.tiktok.com/@takeapaincheck
Growing Pains, Copyright, 2018, Alessia Cara
This week’s episode features Savannah Lohnes - a second year university student from Windsor living with Juvenile Arthritis. Savannah starts off by remembering the time when she woke up bed ridden; she couldn’t get out of bed. Previously, her dad was diagnosed with Rheumatoid Arthritis and to no surprise, Savannah was diagnosed with JA and then later Hemochromatosis. Natasha and Savannah both bond over being diagnosed with the same condition at 13, thinking it’s due to a sports injury, being high achievers in school and what that actually came to be. Savannah played competitive soccer all her life but had to stop when she was diagnosed. However, Savannah still incorporated her love for sports in a less rigorous way - recreationally. The conversation continues to go through the school timeline and the differences accommodations were like from elementary school to high school and finally now to university. Finally, they end off the episode talking about Savannah’s initiative, Clips 4 a Cause. Using her love for arts and crafts, she creates resin-based clips and donates a portion of the proceeds to charity.
Savannah's Socials: Instagram: @savannahlohnes @clips4acause
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Growing Pains, Copyright, 2018, Alessia Cara
In honour of Juvenile Arthritis Awareness Month, our second special guest of the month - Alejandra Van Dusen comes on Take a Pain Check to talk about her story with Juvenile Idiopathic Arthritis alongside Ulcerative Colitis. Diagnosed at 2 years old with JIA, Alejandra talks about childhood memories of being at the hospital and soon realizing that it’s okay to be different. Her symptoms went from her hands to elbows and at 12 years old jaw complications arose. Alejandra explains her experience for jaw surgery and what it felt like waking up and not being able to open her month. Alejandra and Natasha bond about having brothers, gym class exceptions, technology and more. Lastly, they dive deep into the Patient and Community Engagement Research (PaCER) program where Alejandra and Natasha conducted research alongside other young adults living with arthritis on patients with arthritis.
Alejandra's Socials: Instagram: @alej4ndra Twitter: AlejandraVanD
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Growing Pains, Copyright, 2018, Alessia Cara
juvenilearthritis #research #IBD #ulcerativecolitis #jawsurgery
In honour of Juvenile Arthritis Awareness Month, Morgan Harris comes on Take a Pain Check to talk about her story with Juvenile Idiopathic Arthritis. Diagnosed at 8 years old, Morgan discusses how she didn’t know what was happening to her body, let alone even trying to explain the concept to her friends. At 13, Morgan underwent a period of remission. Unfortunately, the arthritis came back. Morgan and Natasha discuss their experiences and preferences on pills vs injections, their support systems and some pain management strategies. The roles swap for a second where Morgan asks Natasha how she went from telling 1 person in high school about her arthritis to now running this whole podcast. Not only that, they discuss all things transition and Morgan’s experience at a transition clinic in Toronto. Lastly, they dive deep into the Patient and Community Engagement Research program where Morgan and Natasha conducted research alongside other young adult living with arthritis on patients with arthritis.
Registration for The Mind, Body, Bluetooth Event: https://www.eventbrite.ca/e/the-mind-body-bluetooth-event-tickets-263418440647?keep_tld=1
Morgan’s Socials - Instagram: https://www.instagram.com/morgan._harris/
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Growing Pains, Copyright, 2018, Alessia Cara
Carrie Zamudio joins our host Natasha this week on Take a Pain a Check to discuss her journey with rheumatoid arthritis. Her story starts off with a long period of time in which she was not being treated and then finally getting diagnosed during the pandemic. We discuss all things arthritis, including bone deformity, her medication journey prior to pregnancy and the fears of afterbirth with rheumatoid arthritis. Carrie now has a newborn daughter. But, flashback to October, she was 5 months pregnant when this conversation happened. Some major questions brought discussed the possibility of remission during pregnancy and if a baby is really healing you internally? Throughout Carrie’s life, she gave up the party life and fashion trends, such as heels and much more. The conversation ends off with the importance of mental health, well-being, lifestyle changes, and being in a good emotional state.
Carrie's Socials: Instagram: @arthritiscarrie
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Growing Pains, Copyright, 2018, Alessia Cara
This week on Take a Pain Check, we welcome Ravia Khangura who joins our host Natasha to talk about her journey living with Juvenile Idiopathic Arthritis. Ravia starts off by explaining how she initially spent weeks in the hospital to get her diagnosis. Growing up, Ravia studied and became a pharmacy technician. However, once we dive deeper into her life, she reveals that she switched her careers to pursue her passion for makeup. Ravia is now a MAC makeup artist, and she shares her workplace accommodations and answers the big question “how and when did you tell your boss you have arthritis?” The episode ends off, with a segment on her elimination process for food, lifestyle changes, the developed love for guided meditation and mindfulness.
Guided meditation resource mentioned by Ravia: https://m.youtube.com/watch?v=n4F55PPwC-U&feature=youtu.be
Do you want to help support Take a Pain Check? Our growth relies on you. Support us today on Patreon: https://www.patreon.com/takeapainchec...
Ravia's socials: Instagram @sunshineravz & @makeupbyravia TikTok @sunshineravz_
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Growing Pains, Copyright, 2018, Alessia Cara
“No one knows you better than you, so why let someone else talk for you?” quotes Kasey Bouslaugh, an arthritis advocate from Kansas City. This week Kasey joins our host Natasha on the podcast. We start off with the basics: her story of being undiagnosed for 7 years. Then she opens up about her mental health experiences throughout her arthritis journey. The conversation moves to middle school, when she got bullied, forcing her to put on a brave face. Kasey and Natasha discuss the difference between the Canadian and American health care system, specifically, doctor appointments, labs, and medication. Throughout all of this, Kasey still remains positive and involved in advocacy initiatives such as PR-COIN, PR-COIN PAT, and the Arthritis Foundation, in which she advocates for patients and shares awareness of JIA.
Do you want to help support Take a Pain Check? Our growth relies on you. Support us today on Patreon: https://www.patreon.com/takeapaincheck?fan_landing=true
Kasey's socials: Twitter: @BouslaughKasey Instagram: @kaseybouslaugh
PR-COIN socials: https://twitter.com/_prcoin
Check out our socials:
Website: https://www.takeapaincheck.ca/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheckTiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #kansascity #advocacy #disability #juvenilearthritis #rheumatology #unitedstates #rheumatic
On this week’s episode, Natasha and Katie converse about what it’s like to live with Scleroderma and Raynaud's. Her diagnosis story went from rheumatologists thinking she was making up her symptoms, to Katie now being under remission. Katie is also a registered nurse who is passionate women’s health. She believes that her story has helped her become a more understanding nurse to her patients. Additionally, the conversation covers Katie’s life as a high school student on a dance team, the psychological aspect of giving yourself a needle and discusses grip strength tips. Stay tuned for our exciting podcast game on our Instagram this week!
Katie's socials: Instagram: @kspilkz
Check out our socials: Website: https://www.takeapaincheck.ca/Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheckTiktok: https://www.tiktok.com/@takeapaincheck
“I felt a metallic blood taste coming from my mouth, then my nose, then my eyes. The girl beside me yelled.” This was one of the many situations Jodie Shea was going through in college. This week, Natasha talks to Jodie, a young woman living RA, about what it’s like to enter this world with a chronic illness. The conversation starts off with transitioning at 23 years old and leads into how the media portrays sickness as “acute and goes away”. This inspirational Clinical Research Coordinator at IQVIA gives tips on how to be honest with the people in your life, as well as tools to get back to a healthier version of yourself. The discussion progresses to using humour as a coping mechanism. And finally, don’t forget to kiss your wrists hello and goodbye because as Jodie quotes “they are doing you favours.”
Check Out Jodie's Socials: @Jodie_Shea and @Jodies_Joints
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Have you heard of Cassie and Friends? Do you know the face behind Cassie and Friends? Cassie? Well, Take a Pain Check explores Cassie and her life in today’s episode. We discuss more of the social aspects of living with a rheumatic disease. When is it the right time to tell your friends about your chronic illness? The conversations heads into what it’s like living with arthritis but also being diagnosed with celiac disease. We also talk about dance and the modifications she had to make during practice and on stage. Stay tuned for our game with Cassie on Instagram this week! SUBSCRIBE TO OUR PATREON & GET YOUR BENEFITS: https://www.patreon.com/takeapaincheck SHOUTOUT TO JOSEPH CAFAZZO OUR NEWEST PATREON! Twitter: https://twitter.com/JosephCafazzo Check Out Cassie's Socials: https://cassieandfriends.ca/ https://www.instagram.com/cassieporte/
This week, Take a Pain Check converses with Kayla Mozill, a university student at Dalhousie living with rheumatoid arthritis. We dive into true university life of exams, accommodations, note taking and study strategies while living with a chronic illness. Interestingly, Kayla never received pediatric care and her first rheumatologist appointment was one that she had to attend solo. To wrap it all up, we share and bond about our joint injection experiences.
Check out Kayla's social media channels: https://www.instagram.com/kayla.mozil...
Kristen joins Take a Pain Check this week for a conversation about the impact of therapy and behaviour. Kristen was lucky with her diagnosis, Rheumatoid Arthritis and Sjogren's, surprising right? The discussion leads into the topic of friends and family support and jumps right into answering the big question of "how do we as a patient make the right decision for our medications?". Well you might be able to figure that out, if you stay tuned until the end of the episode!
Check out Kristen's social media channels: @WarriorsMoveMountains & @ConnectBehavioralCoaching
This week on Take a Pain Check, Alexandra DiGiacomo, comes onto the podcast to talk about her international knee draining experience. We dive deep into Ali's passions when it comes to script writing, acting, and being a casting assistant for several popular movies. Not only that, Alexandra shares more about her fitness page, workout modifications and training to go into the junior Olympics!
Take a Pain Check's game show host, Brianne, also facilitates a game with the host and guest. Make sure to check it out tomorrow on IG TV so see who wins!
This week on Take a Pain Check, the host interviews Marissa Sangers. She is a parent to an 8 year old girl, Charlotte, who lives with Juvenile Arthritis. We discuss the interesting visit to a plastic surgeon, the parent perspective, and the adjustment of parenting skills. Not only that, we talk about going down the rabbit hole in internet searching.
American College of Rheumatology Conference Registration: https://www.rheumatology.org/Annual-Meeting/Registration
UPLiFT Conference Registration: https://conference.gappapain.org/
Acute Musculoskeletal Pain Management Webinar: https://www.eventscribe.net/2021/AMPM2021/
Instagram @rissasangers & @charlottes.superstars
Facebook JM Sangers Twitter @rissasangers
TikTok @rissasangers
Take a Pain Check stars Effie K from Chicago, the founder of the growing platform, Rising Above RA. We talk about the basics, diagnosis life and story but things starting getting more interesting as the episode progresses. Want to know why they thought the handicap pass was stolen? The police showed up? Stream the full episode now! Check out
Effie's Socials: https://instagram.com/risingabovera
https://twitter.com/risingabovera
https://www.youtube.com/raandmyself
Chaufa Nguyen comes onto Take a Pain Check to talk about living life with Lupus while being entrepreneur. We discuss trauma culturally, dealing with a diagnosis by yourself, and developing a positive mindset. We end off with an advice segment that ends up being very inspirational.
Chaufa's social media channels: @chaufanguyen
This week on Take a Pain Check, your host Natasha gets the chance to talk to pediatric rheumatologist Dr. Joost Swart from the Netherlands. They discuss Take a Pain Check's amazing sponsor for the summer, UCAN CAN-DU, the collaboration between Canada and the Netherlands as well as healthcare similarities and differences. The conversation also includes the inside details of what ideal health is, the future of technology and comfortable discussions with patients.
Check out UCAN CAN-DU: https://www.ucancandu.com/
This week we have Cheryl Crow come onto our podcast to discuss her diagnosis of rheumatoid arthritis, the platform she’s created called Arthritis Life, as well as medical gaslighting. In the middle of our conversation, we dive deep into methotrexate and pregnancy. Not only that, we talk about acceptance and commitment therapy, some life hacks that she loves to share with others as well as the importance of mental health.
We have linked some articles here for all of you to read if you are interested in learning more about methotrexate and pregnancy: https://academic.oup.com/rheumatology/article/55/9/1693/1744535
https://creakyjoints.org/treatment/methotrexate-myths/
http://arthritispatient.ca/wp-content/uploads/2021/05/Medication-use-during-pregnancy-and-breastfeeding_final.pdf
http://arthritispatient.ca/pregnancy-and-parenting-with-arthritis-a-resource-for-patients-by-patients
Suggested by the Medical Advisory Board of Take a Pain Check
We had the honor to talk to Dr. Monica Shah - one of the few South Asian rheumatologists on television - this week on Take a Pain Check. We start the discussion off by learning about her passion for rheumatology. We also dive into how it feels to be Ms. India Florida. Additionally, the part everyone has been waiting for, we talk about life as an actress on the reality TV show Bravo’s Family Karma.
Megan Green, the founder of takinpain2pretty, joins the weekly conversation with some very interesting experiences with her diagnosis. We talk about comfort care, the importance of our hair and nails as well as advocating for beauty.
Dr. Michelle Batthish, a pediatric rheumatologist at McMaster Children's Hospital, comes on our weekly podcast Take a Pain Check to engage in the very important topic of transition care. We discuss how teenagers at the stage of transition have so much going on in their lives and an app that was implemented in her hospital that has helped with transition. We end off by talking about the many initiatives Dr. Batthish is involved in and how important the patient voice is when it come to research.
Today, we have Spencer Hamilton talk about his story of being diagnosed in years, being a pro skateboarder and changing his lifestyle to one that suits his needs. Spencer talks about how he managed to remain a pro skateboarder even though his ankylosing spondylitis diagnosis took quite a while to diagnose.
To start off season 3, we have Julie Bastarache talk to us about her incredible work advocating on social media. As well as her journey to being diagnosed with RA while living in a separate province (state) from her own family, having to change career paths due to her diagnosis and having to learn how to advocate for herself. To end off we play a game of arthritis Would you Rather! Check out her social media: @the.oily.spoonie Website: https://www.takeapaincheck.ca/
To end off season 2, we have Dr. Arif Jetha talk to us about vulnerable people in the workplace. His research has shown several findings when it comes to youth and young adults being hesitant to pick the right job for them due to workplace accommodations. We also give our perspective on which jobs we love and are scared to enter!
We got the pleasure to interview Ingrid He this week on Take a Pain Check. We cover an abundance of interesting topics such as the struggle to obtain a diagnosis of Sjogren's Syndrome and this rheumatic disease once thought as a mental illness from several doctors. Throughout this episode, we learn about advocacy. Join us as we learn about the app Ingrid created to help herself and others suffering from Sjogren’s and other chronic illnesses!
Youtube: https://www.youtube.com/watch?v=VgWMKAPPOGU
Check out Ingrid's Social Media:
Instagram: https://www.instagram.com/sjogrenstra...
Facebook: https://www.facebook.com/SjogrensTracker
This week we have Jalesa Martin come on our podcast to talk about her diagnosis with lupus that led to other chronic illnesses. Not only that, she shares her medication journey, knee replacement and the fears she has for the future. Jalesa ends off with showing us her advocacy work at university, her podcast and the articles she writes to convey her battles.
Rahul Vivekanandan, a close friend of Natasha, comes on our weekly podcast Take a Pain Check. We talk about how their friendship started, the accommodations made in the friendship whether it’d be at hanging out at a friend’s house or at school, and finally how they both support each other regardless of the situation. We end off with a game and some valuable advice to takeaway! Be sure to watch part 1 of friendship edition week to hear about a different perspective of friendship.
Today, we have a fun and serious conversation with Brianne Chou about friendships and arthritis. We explore school, accommodating friends with a disease and learning about what they go through on a daily basis.
This week we have Vina Mohabir, one of our favs, come on to talk about her diagnosis of Trigeminal Neuralgia. We discuss expectations of parents on their kids with chronic illnesses, how trauma can be resolved with psychological measures, and how experiences in a field can turn into a full time enjoyable job.
Dr. Karine Toupin April - a scientist in Ottawa - and Laurie Proulx - her lead patient partner - talk about their stories in regards to Juvenile Idiopathic Arthritis and Asthma. They talk about their struggles in the rheumatology world and how their research project can change the lives of youth and adults diagnosed with arthritis. They also discuss the importance of options and complementary therapy.
Take a Pain Check stars Spencer O’Brien on this week’s episode. Being in the Olympics while managing a disease, additional injuries and surgeries that come with this career, and the differentiation between what is arthritis and what isn’t are all topics that are discussed. We end off with a cute game. Stay tuned till the end to hear it all!
Sarah Fischer, a teen with juvenile rheumatoid arthritis, joins us for a conversation about her swimming career with a disease, her JRA warrior platform and a genetic component. Not only that, we compare the Canadian and American resources when it comes to rheumatology in our experiences.
American Fashion Designer, Michael Kuluva comes on Take a Pain Check this week to talk about schooling, his fashion label, how it felt to have Kendall Jenner on the runway, professional skating for Disney on Ice and his rheumatoid arthritis journey.
Hey all! Thanks for supporting us through season 1. We are excited to be back with season 2. Today, it is just the co-hosts talking about their experiences with COVID-19, new life updates, different treatments they have had experiences with and going to specialists for check ups.
This week we have Laura Trenton come on our podcast to talk about her journey with Juvenile Idiopathic Arthritis (JIA), Art in Motion, Runanthropic and being a high school teacher. We feature a few questions from our followers as well!
Today, Eileen Davison gives us tons of insight on her rheumatoid arthritis journey, being a single mother, her blog, and elaborates on her lifestyle changes. You can find this week's game on our IG TV where we compare JIA and RA with some laughter and informative explanations!
Have you ever met twins with the same chronic disease? There's only a 4% chance of fraternal twins being diagnosed and this week we were lucky enough to get twins on! This week we have Makayla and Carly Fox come on our podcast to talk about Ankylosing spondylitis, Make a Wish Foundation, moving out and living their lives with JIA.
Jordan Colangelo comes on our weekly podcast to talk about what it is like to be in a relationship with someone that has a rheumatic disease. His JIA knowledge is also tested and he might actually be more knowledgeable than we thought!
This week's guest is speed skater Bethany Mckinley-Young. Having suffered from JIA since the age of 13, speed skating at the national level and the Canadian Games, she joins us to talk about being an athlete with a chronic disease.
This week we have Julie Beausoleil, a mental health advocate, on our podcast to talk about JIA as the only thing she ever knew, mental health, medications, and we end off with some laughter:)
Maggie also known as Arthritis Kid, comes on our fun weekly podcast to talk about music as a form of escapism, a viral TikTok, arthritis camp and being confident with juvenile arthritis.
David Porte, the chair of Cassie and Friends, comes on our weekly podcast to give us the parent perspective, the behind the scenes of his charity organization and information about support out there.
In our second episode, we have the president and founder of Rheumours, an organization and University of Alberta club that aims to dispel rumours about rheumatic diseases. We laugh and cry in this episode as we talk about the journey that got her here and her own fight with arthritis.
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Hi everyone! This is our new podcast Take a Pain Check. This is the beginning of our journey together as two young adults sharing our stories with Juvenile Idiopathic Arthritis (JIA). Medications, advocacy, support groups and much more!
This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app