Multiple Sclerosis Unplugged: Recent Episodes
Multiple Sclerosis Unplugged
StuMSradio and MSLOL have joined creative forces to form Multiple Sclerosis Unplugged. It is our goal to entertain and inform you of all things in the MS world.
Amy and Deanna are starting a new season of podcasting after taking a year to deal with the challenges of MS and Deanna's new diagnosis. They are discussing the details of Deanna's Transverse Myelitis Optica, her bad reactions to Gabapentin and how she keeps it going in spite of it all. Amy shares the great joy of Botox injections in to her neurogenic bladder – Ok getting the injections wasn't joyous, but the results are bliss. :)
Have a listen.
Back by popular demand.. (more like request actually) Amy and Deanna are talking about their life experiences with chronic illness once again. So tune in and subscribe and join us for conversation on Facebook in the Multiple Sclerosis Unplugged Facebook group. Share with us your thoughts, impressions and feedback. Whilte you're there chat it up with over 11,000 members of the MSU community.
MS CHICK (Amy Gurowitz) and MS DIAGNOSED (Deanna Kirkpatrick) are catching up after their Summer hiatis. So grab a good cup of coffee and listen (you just never know where this conversation goes!!)
Host Stuart Schlossman and Co-Host Producer Deanna Kirkpatrick get an MS Update for 2014 from Dr. Steingo, Neurologist/Researcher and Medical Director of MS Center in Sunrise, Florida. Updates include rare diseases that are cousins to MS too. ADEM, NMO, ON, TM, PPMS, etc.
Stuart Schlossman interviews David Lyons (TV Producer/Author) about his MS Journey and how Diet/Exercise/Body Building helped him Beat Down The MS MonSter.
MS CHICK (Amy Gurowitz) and MS DIAGNOSED (Deanna Kirkpatrick) have a special edition podcast when some MS nurses drop by to tell us how they can help you!
Deanna Kirkpatrick (MS DIAGNOSED) and Amy Gurowitz (MS CHICK) catch up and are ready for Spring. In this coffee chat episode, we discuss Deanna going back to work for the first time in 8 years and the challenges, fears, anxiety we all have in trying to go back. We also discuss medications that help, who you need on your health team, and what you can do with where you are at in your MS or TM journey.
Ryan Asdourian is a Microsoft Executive by day and Blitz's "Handler" for the Seattle Seahawks and was diagnosed with MS over 6 years ago. He is currently on the Board of Directors for the Greater NorthWest Chapter of The National MS Society and has raised close to 400,000 in the last four years with Team Blitz and their yearly pub crawl.
Stuart Schlossman and Deanna Kirkpatrick interview Dr. Yarger and he updates us on the latest research on Re-Myelination Research.
It's our February 2014 update! One of the things we will be discussing is how you can go back to work with your TM/MS.
Stuart Schlossman and Deanna Kirkpatrick interview two Stem Cell Advocates who were apart of Cell Tex in Houston when the FDA shut them down, leaving them to flee the country to get their Stem Cell Therapy elsewhere. Not only do they share their story, but will explain why the US Government wants to regulate our very own Stem Cells and how this will impact Stem Cell Therapy in the future. Jennifer Zieglier and Tracy Thompson are our guests.
Amy Gurowitz (MS CHICK) and Deanna Kirkpatrick (MS DIAGNOSED) catch up after the holidays, and ringing in 2014, You just never know what they are going to talk about, so grab a cup of coffee and listen in. :D
Singer Songwriter Trey Farmer debuts his NEW EP and discusses how MS became the inspiration behind his songs and how he has achieved part of his dream inspite of his MS Diagnosis.
Deanna (MS DIAGNOSED) and Amy (MS CHICK) are in the thick of Fall and Catching up with each other. Issues discussed, Cognition (having issues??), and I know there was something else but I just forgot!! LOL>you just never know where our coversations go. So grab a cup of coffee and enjoy the show!
Dr. Daniel Kantor discusses what he thought was very interesting and promising at this years 2013 ECTRIMS Meetings in Denmark Copenhagen. New medications, new research on myelin repair, brain atrophy, nerve damage.
Deanna Kirkpatrick and Amy Gurowitz wrap up their Summer, as school starts and Fall is coming quick! Chatting about anything and everything, so you just never know where our conversations go!
Stu Schlossman and Deanna Kirkpatrick have Dr. Scott Gold answer all your questions about BG-12 aka Tecfidera, Bone Marrow Transplants>Stem Cells, etc. Dr. Scott Gold grew up in Miami, Fl. and recieved his medical degree from The University of Miami, he is board certified in both Neurology and Psychiatry. He's been involved with medical research for over 15 years and is the Medical Director of The MS Center in Brevard, FL.
We are halfway through our Summer! Deanna and Amy catch up on Neuro appt's, traveling with disabilities, and what you need to know about service animals! :D
Deanna and Amy discuss relationships with MS, Amy's up coming B-day and Summer plans! :D
Deanna Kirkpatrick and Amy Gurowitz catch up after Deanna's UN-Diagnosis of MS since her lesions in her spinal cord have healed. So did she receive a blessing from God? Or did Dr.'s screw up after 7 years?? You just never know what were going to chat about next!
Stu Schlossman and Deanna Kirkpatrick interview Dr. Brian Steingo, Neurologist and featured Speaker of The MS Views And News Symposiums, he is a researcher and on the board for MS Views and News and on The National Multiple Sclerosis Society's Medical Advisory Board. :D
Deanna and Amy catch up on their medical visits, life and all the craziness of living a life with MS.
Deanna and Amy chat and catch up on their MS, Dr. Wahls, debut Trey Farmers Song "I Love The Way" which worked out perfectly for Amy to take a quick bathroom break.lol. Amy is approaching her 25th anniversary with MS, Deanna is approaching her 7th anniversary with the MonSter and how we deal. It is March, time for MS Awarness and get your Orange on!
:D
Stuart Schlossman and Deanna Kirkpatrick interview Dr. Terry Wahls and ask all your questions about her MS diet, her amazing recovery from having Secondary Progressive MS (from wheelchair to riding a bike again), how functional medicine plus nutrition can give all of us who have MS HOPE. However, I do want to add that she clearly states she still has MS, it is NOT a cure, and you need to consult your physician before making any decisions of a medical matter.
Deanna and Stu interview Dr. Rick Harris about dealing with the psychological impacts of MS Depression, grief, loss, how to deal with thoughts of suicide and how to cope and thrive inspite of your MS.
Amy and Deanna discuss Deanna's latest Neuro appt>and do you keep track of your lesions? Discussion includes Stem Cell Therapy, Disease Modifying Drugs, side effects of medications, cognition issues and MS Soft Serve update from Amy! :D
Singer/Songwriter Trey Farmer debuts his new single "I Love The Way.." a song about living with and through the pain and diagnosis of MS, "it's a beautiful, soulful, joyus and hopeful song" Trey Farmer's 5th Anniversary of being diagnosed at the age of 22 is today (Dec. 26th) and he takes us on his physical, emotional, spiritual journey of MS through his music. You don't want to miss this interview, we discuss, school, jobs, music and dating with a chronic illness.
Merry Christmas!! Happy (be-lated) Hanukkah!! Deanna and Amy are back with a little coffee MS Chick Chat about what is going on in their lives, advice for newbies newly diagnosed, MS Soft Serve (along with our chat about Robbie Benson and Deanna's Keith Urban story), medications, information, and things we've found out along the way with our journey with MS. Amy Gurowitz was diagnosed with MS 24 1/2 years ago, is a blogger, radio host and founder of MS SoftServe Deanna Kirkpatrick was diagnosed with Longitudinal Extensive Transverse Myelitis that left her paralyzed up to her ears in a matter of days, took months to re-learn to walk. After several severe Relapses found the bigger disease state to be RRMS, although the last two years have been more like SPMS. So many questions, we are on a quest to find answers and humor along the way. :)
The Snowflake series developed due to the number of times I have heard the term Snowflake used by various Neurologists in describing MS patients, you'll never find two cases alike, however, as I say, we are all stuck in the same snow drift together.
So I embarked on interviewing various inspiring people with MS. My first guest in this series is Cindi Johnson. A Women's Natural Wheelchair Bodybuilder. Before MS Cindi worked as a Trainer, Physical Therapist and a body builder and competed for many years. Now she shares her very powerful, moving, inspiring and heartbreaking story with MS and how she struggles inspite of the pain and the progression of her MS. And creating new roads for Men and Women who are wheelchair bound to compete in body building series that didn't exist before her! Her inspiring spirit and smile is only half the story, you don't want to miss this one!!!
Stu and Deanna interview Dr. Ben Thrower about our MS and our MS "cousins" rare demylenating diseases and how they could possibly hold the key to finding a cure for MS>Stem Cell therapy, ADEM, NMO, TM are discussed. Also how to get in touch with your inner pirate this Halloween and a little rum hurts no one. ;)
This is a GREAT show with our guest Dr. Daniel Kantor who answers all your questions from last months show (we were overwhelmed with questions!! whooo hooo). So in this podcast you will hear about the two NEW oral medications coming out, how a Dr. determines your when to change your diagnosis from RRMS>SPMS and PPMS. The difference between Neuro Myelitis Optica and Optic Neuritis and when you should fire your doctor! :o
Neurologist Dr. Kantor answers your burning questions about MS. Dr. Kantor is a Migraine and MS specialist in his field. Great and very intersting conversation with Dr. Kantor and Stu>definitely a must listen (I even learned a few things!!)
Stu and Deanna talk with Dr. Elizabeth Yarnell, who is a Naturpathic Doctor and MS patient herself and how she uses "Food As Medicine" to help with her journey with MS. She is also a published author of "Glorious One Pot Meals" and discusses her MS Food Project.
Stu and Amy (Amy's filling in while Deanna is on an MS assignment) chat with Stem Cell Patient Advocate Holly Huber as we get an update on her remarkable Stem Cell Journey that gave her a second chance at life.
Dr. Marco Vespignani will join Stu and Deanna to answer all your questions about Alternative Medicine from our last show!
Join Stu and Deanna as they speak with Dr. Marco Vespignani about holistic and naturpathic therapies that can help with MS. And Sandy Silvi will be join us to share with us her Stem Cell Transplant story and how it transformed her life with MS.
Join Deanna and Stu as we talk about people who promise or suggest that a certain diet, water, vitamin or bacteria can cure MS. We will be talking to a woman who says she has cured her MS, and we have Neurologist Dr. Kantor in the wings to field these interesting topics.
Stu and I will be chatting with Dr. Scott Neilsen Nuerologist from Virginia Mason Seattle. And talk about how they are finding that Grey Matter may actually be a better predicter of the course of your MS. What we are finding it that it's not how many lesions you have but how big, and where they are found. And Dr. H will be back to answer all your questions!!
It's here! The premier MSLOL (MS: A life of learning) podcast. Meet Kristie Salerno Kent. Performer, actor, singer, songwriter.. entertainer extraordinare and a woman living with MS. "The Show Must Go On" is not only the title of Kristie's award winning film at the 2007 National MS Society's festival, it's also her approach to life in spite of and because of how the challenges living with MS affect our every performance. She's an inspiring woman. So download and hit play. It's a sold out show you won't want to miss. Oh, and break a leg! ~Amy
Why do lesions appear but I don't have symptoms Why DON'T lesions appear and I have (many) symptoms White Matter/ Grey Matter lesions what's the difference purpose of Scans with/without contrast Get all your questions answered by our featured Neurologist
MS Chat Stu with Deanna and Stu! Call in and join the conversation, ask your questions and get advice about MS and Life!! :D
....priceless! Join us on November 14th (that's next Monday!) for MSLOL Radio's next show that will explore the afore mentioned topic. No, not your thanksgiving menu; the priceless part! It's all about medical marijuana and how it's an effective treatment for many of us living with MS. There will be some very special guests- including a chef that will tell us about how to cook this therapy in to some very tasty dishes! Join me and Deanna Kirkpatrick for what will be a very informative and entertaining evening. Be sure to bring some pre-holiday tastings just in case you get the munchies! ;) (And if your too busy in the kitchen to listen live, download the podcast for later!)
I just "failed" my second MS Disease Modifying Drug (aka DMD's) and I know I'm not the only one. I hope you will join us tonight at we interview Alison Hernandez Clinical Specialist in Genetic Studies from the University of Miami School of Medicine. And have all your MS questions answered by Neurologist Dr. Shafer.
Winning The Disability Challenge with Dr. John Tholen Psychologist/Author presents A Practical Guide To Successful Living If you ever felt a bit "lost" of what to do with your life since your disability this is your show!!