Rare Research Report features summaries of recent scientific publications from the Rare Diseases Clinical Research Network, which is funded by the National Institutes of Health. The network includes 20 active consortia—teams of researchers, patients, and clinicians—each focused on a group of rare disorders. Join us for new episodes each month.
Learn more about the RDCRN: https://www.rarediseasesnetwork.org
American Society of Nephrology
John McNamara
American Society of Nephrology
Radiological Society of North America (RSNA)
Dr. John Cush
American College of Cardiology
Matt Young
American Thoracic Society
The Radiological Society of North America
American Society of Nephrology
Journal of Inherited Metabolic Disease
American Academy of Orthopaedic Surgeons
American Academy of Neurology
None
RARECast
Albee Messing
RxUnedited
BC Emergency Health Services
Carl James May
AGA
None
AA2day.org
allergytalk
NephJC Team
BMJ Group
Multiple Sclerosis Discovery Forum
Diana Kavanagh
The One-Liner Team
Annie Watson
Cambridge BioMarketing
American Thoracic Society
Bruno Fernandes and Shawn Maloney
Magpie Concept
International Parkinson and Movement Disorder Society
AGA
UEG Journal
Neurosearch
n-Lorem Foundation
The Lancet Neurology
Oruen
ECR Podcast
Mark Ebell and Michael Wilkes
The Lancet Neurology
Chris O'Brien
StarMankind
American College of Gastroenterology
PeDRA
Carolyn Lam, MBBS, PhD
None
DKBmed
Anomaly & Me
Association for Diagnostics and Laboratory Medicine
UCAdvisee
American Partnership for Eosinophilic Disorders
Adam J. Brown, MD
ReachMD
None
the Wall Center at Stanford
Michael Putman
Andrew Perry
RCGP eLearning Podcast
Blooducation
Jay Vipul Shah
Oxford University Press
OffScrip Health
Rare Disease Report
American Association for Clinical Chemistry
Dr. Courtney Craig
ReachMD
OneNeurology
CheckRare
None
Mayo Clinic
Sanofi Genzyme
Vincent Racaniello
The EBMT Trainee Committee
Dr Annemarie Lee
Hashimoto's Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance
Molly
Sanford CoRDS
The Journal of Rheumatology
Dr. Brandon Steele & Dr. Tim Bertelsman
None
Johannes Holzmeister
Pediatric Infectious Diseases Society
Jeremy Moeller
Dr. Pat Camp
Daniel Miller, Gabe Esses, and Jack Kabariti
Dmitriy Kedrin
American Heart Association
Sanofi
Dmitriy Kedrin
Journal of Allergy and Clinical Immunology: In Practice (JACI)
University of Calgary Trainees
saveoursupplyams
Takeda