For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
“Season highlights and summer send off” with Eric and Christen
Hey guys, welcome back to the podcast. We’re doing something a little different today. It’s just Eric and I and we’re talking about the podcast season, the past 100 episodes, and life with a little bit of fun and a whole lot of heart and then we’re going to share some helpful tips in a sendoff to summer!
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
"Celebrating Our 100th Episode!" with Eric and Christen
Welcome to the Hope on the Hard Road Podcast. This is a milestone moment, it is our 100th episode!
It’s hard to believe that what started five years ago as a simple idea has grown into something so meaningful. When we first launched this podcast, Eric and I just wanted to create a space where families navigating special needs could feel seen, supported, and a little less alone. We knew firsthand how isolating the journey can be, and we wanted to bring real conversations, real stories, and real hope to others walking a similar road.
Over the past five years, we’ve had the honor of sharing this space with incredible guests—parents, caregivers, professionals, advocates, and individuals with lived experience. We’ve talked about everything from navigating IEPs and therapies, to future planning, marriage, mental health, and the everyday realities that don’t always get talked about. Some episodes have been educational and practical, others have been emotional and raw—but all of them have been rooted in connection and hope.
This podcast has become more than just a platform—it’s become a community. And for both of us, it has been one of the most fulfilling experiences of our lives. Hearing your stories, your feedback, and knowing that these conversations are making a difference has meant more than we can put into words.
If you’re new here, Hope on the Hard Road is all about walking alongside families —offering encouragement, resources, and a reminder that even on the hardest roads, there is always hope.
And if you’ve been with us from the beginning… thank you. Truly. This 100th episode is just as much yours as it is ours.
To celebrate 100 episodes and five amazing years, we’re taking a look back at 10 of our most impactful episodes. We hope you enjoy this walk down memory lane as much as we have. For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
“Creating a Neuro Affirming Environment” with Chris Wenger “Speech Dude”
Intro:
Today on the podcast we have an amazing guest who is revolutionizing how we support neurodivergent students.
Speech therapist Chris Wenger, also known as "Speech Dude!" is internationally acclaimed for his work with autistic students. He's transforming therapy practices and creating spaces to support families with his neurodiversity-affirming approach.
Through his assessment tools, viral social media content, clinical work, and new book; He's on a mission to ensure that belonging—not just fitting in—becomes the standard for how we support neurodivergent learners.
Let's listen in to today’s conversation.
TAP👇the link to Register for Moms Day Out conference retreat
https://hopeonthehardroad.regfox.com/moms-day-out-conference-may-2026
Bio:
Chris Wenger is a neurodivergent high school speech-language pathologist of over 20 years, international speaker, and creator of the Dynamic Assessment of Social Emotional Learning, a strengths-based assessment for autistic students. He is also the founder of NeuroAffirm, a first-of-its-kind worldwide interactive directory connecting providers and families. Globally known as Speech Dude, he has amassed nearly one million social media followers, sharing inspiring and educational content, always with a humorous twist.
Contacts:
www.speechdude.com
Tik Tok/Instagram - @speechdude
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Family Series:
“Creativity in Marriage & Parenting: Replay” with Angela and Mike O’Brien
Welcome back, you are going to love the replay of this episode! We have Angela O’Brien of the Especially Organized Podcast joined by her husband Mike. Ladies, Angela will also be one of our speakers at this year’s Moms Day Out! So grab your 1 day or full weekend tickets today!
This is going to be another fun and heartfelt episode in our marriage and family series that you won’t want to miss!
Angela and Mike have been married for 27 years and live in Texas and have 2 adult children, with a daughter diagnosed with Down Syndrome. Having just celebrated World Down Syndrome Day on Mar 21st, we talked about advocacy, marriage and parenting, and a so much more. Eric and I really enjoyed connecting with these 2 and found that we had a crazy amount of similarities in this stage of life.
Listen in to our conversation with Mike and Angela O’Brien.
TAP👇the link to Register for Moms Day Out conference retreat
https://hopeonthehardroad.regfox.com/moms-day-out-conference-may-2026
Bio:
Angela and Michael O’Brien met in the early 90’s while working as sales representatives for a paper company in St. Louis. As good friends and colleagues, they started dating when they both went off to graduate school. Married since 1997, they have a son living and working in Madison, WI and a 21-year-old daughter who has a diagnosis of Down Syndrome. Their journey as a family has been deeply enriched by the disability community. Angela has been an advocate since their daughter’s birth and is now a professional organizer and podcast host for moms of kids with special needs. Mike is co-founder of Roosevelt Capital Management, having met his business partner on the sidelines of a Special Olympics basketball game watching their girls. They live in Dallas, TX with their daughter and beloved dog, Coco.
Contacts:
Instagram @yourspacereclaimed
Facebook Your Space Reclaimed
Website Your Space Reclaimed Professional Organizing
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Family Series:
“The Significant Life of a Dad” with Marcus Jones
Welcome back to the Podcast. I am so excited to have Marcus Jones on the Podcast.
Marcus is Executive Director of HIS EYES, part of the family of foundations at In-N-Out Burger Corporation. Marcus works to provide hope, immediate support and sustainable solutions to those experiencing homelessness.
Marcus is a long-time advocate for adults with intellectual disabilities and father of four, including his oldest daughter with Down Syndrome. He has written multiple books, including “The Five-Minute Marriage Mentor,” and “Holding Hands with Grace,” which is all about his journey of fatherhood with a child with intellectual disabilities.
Let’s Listen in to my conversation with Marcus.
TAP👇the link to Register for Moms Day Out conference retreat
https://hopeonthehardroad.regfox.com/moms-day-out-conference-may-2026
Bio:
Marcus is a pastor, leader, creator and communicator with over 30 years of ministry experience. He is a long-time advocate for adults with intellectual disabilities and father of four, including her oldest daughter with Down Syndrome. He has written multiple books, including “The Five-Minute Marriage Mentor,” and “Holding Hands with Grace,” all about his journey of fatherhood with a child with intellectual disabilities. He founded “The Significant Life Foundation,” in 2024 to advance the cause of independent housing, employment and community for the intellectually disabled community. He serves on multiple non-profit boards and is the Executive Director of the HIS EYES Foundation to combat homelessness. Married over 25 years to his wife, Jen, Marcus enjoys traveling, Golfing and undiscovered cafes and cuisine.
facebook.com/jonestribe
https://jenandmarcusjones.com/marcus/
TAP👇the link to Register for Moms Day Out conference retreat
https://hopeonthehardroad.regfox.com/moms-day-out-conference-may-2026
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Family Series:
“The Significant Life of a Mom” with Jen Jones
Hey guys, thanks for joining us for the podcast today!
We are so excited to have author, speaker, podcast host, and entrepreneur, Jen Jones back with us today. Jen is the founder and CEO of Jen Jones Direct LLC, and the creative architect of the Significant Conference. She is also a certified health coach, having built a nationwide health and wellness business.
I first met Jen a few years ago when I saw her dancing with her family on Instagram. Fast forward to today’s episode and you are in for a treat. Jen is full of joy, and I just know you too will be inspired. Yet this is also a very real conversation today, between 2 moms in the same stage of life, raising 2 amazing young women in a world that isn’t always kind or inclusive, but a world that is worth helping change for the better. Ladies especially, you don’t want to miss this conversation, we talk about it all, yes menopause included!
Jen knows what it’s like to experience the unexpected and have to grow through life’s greatest challenges. And I’m so excited to share that Jen will be speaking at our Moms Day Out conference this May 1st -3rd . So hurry over to our website or socials and get your tickets today!
Let’s Iisten in to my conversation with Jen Jones.
Bio:
Jen Jones is the founder and CEO of Jen Jones Direct LLC, and creative architect of the Significant Conference. Through her books, courses, conferences, podcast and Significant Life groups, she equips and empowers women to create the life they love on the foundation of faith. Jen and her husband Marcus are living this great adventure with their four children in San Diego, California. Jen knows what it’s like to experience the unexpected and have to grow through life’s greatest challenges. She advocates for differently-abled kids and their parents because she is mom to a daughter with Down Syndrome. She helps families identify their core values and champions women to know and own their God-given worth to live a life of significance. She is a certified health coach, and has built a nationwide health and wellness business. She guides people on a path to help them take control of their health—mentally, physically and spiritually. She is in the personal transformation business. Jen has appeared as a speaker and coach in numerous conferences, retreats and podcasts, including ABC Family and the Live Out Loud Show. She is also the author of Thrive: Growing Through Life’s Greatest Challenges, Tribe: Building Your Family on What Matters Most, and The Five-Minute Marriage Mentor.
jen@jenjonesdirect.com
@jenjonesx4
facebook.com/jonestribe
https://jenandmarcusjones.com/marcus/
https://jenandmarcusjones.com/jen/
TAP👇the link to Register for Moms Day Out conference retreat
https://hopeonthehardroad.regfox.com/moms-day-out-conference-may-2026
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Marriage and Family Series:
“Marriage and Caregiving” with Dan & Kara Ryska
Hey guys, welcome back to the Hope on the Hard Road Podcast. We are in our Marriage and Family series and we’re excited to introduce you to our guests, Dan and Kara Ryska.
Dan and Kara have been married for 22 years. Kara is the host of The Special Needs Mom Podcast, and Dan is a local high school Assistant Principal with 15 years of experience in education. They have four children, ranging from ages 7 to 17, including one son with diverse disabilities, encompassing physical, visual, behavioral, and medical challenges.
On this episode Dan and Kara sat down with us to share their story both from the perspective of a married couple as well as caregivers, a reality we know many of our listeners and viewers can relate to. So let’s get started and listen into the conversation.
Bio
Dan Ryska is a high school assistant principal with over 15 years of experience in education and a father of four uniquely different kids. Outside of work, he steps up to coach youth sports and fights the good fight against the creeping inertia of his 40s.
Kara Ryska is the host of The Special Needs Mom Podcast. Driven by their personal experiences, Kara has become an advocate for families facing similar hurdles, offering support through her role as a life coach. Her commitment extends beyond the microphone as the creator of "Pathway to Peace," a transformative group coaching community that has touched and changed countless lives. Kara's resilience and wisdom make her a sought-after speaker, sharing her insights on navigating the complexities of parenting children with special needs.
Ladies please join us for Moms Day Out this May 1-3 where Kara will be one of our amazing speakers. We hope to see you there! Tap the link for more info and to register:
https://hopeonthehardroad.regfox.com/moms-day-out-conference-may-2026
Contacts
www.kararyska.com
IG: https://www.instagram.com/thespecialneedsmompodcast/
Podcast: https://podcasts.apple.com/us/podcast/the-special-needs-mom-podcast/id1523926612
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Family. Series:
“A Life of Significance as Caregivers” with Marcus & Jen Jones
Thanks for joining us today as we begin our Family Series with Marcus and Jen Jones.
We first met Marcus and Jen a few years ago when I saw an Instagram video of their family dancing and reached out knowing that we had mutual friends. Then last year we had the privilege of having them come and speak to our couples at Date Night. And now Ladies, I’m excited to share that Jen will be a speaker at our Moms Day Out conference this May 1-3.
Marcus and Jen have been married for 25 years and have 4 children. Their oldest daughter has a diagnosis of Down Syndrome. They are authors, speakers, and entrepreneurs having founded, led and successfully grown both non-profit and for-profit organizations, with their latest endeavor being the co founding of the Significant Life Foundation in 2024 to advocate for adults with intellectual disabilities.
Marcus is a pastor and leader with over 30 years of ministry experience and he is currently working as the Executive Director of the HIS EYES Foundation to combat homelessness.
Jen is the founder and CEO of Jen Jones Direct LLC, and creative architect of the Significant Conference. She is also a certified health coach, having built a nationwide health and wellness business.
Together Marcus and Jen know what it’s like to experience the unexpected and have to grow through life’s greatest challenges. This is an honest and beautiful conversation – one we know will resonate with you. So, Let’s Ilsten in to our conversation Marcus and Jen Jones.
Bios:
Marcus is a pastor, leader, creator and communicator with over 30 years of ministry experience. He is a long-time advocate for adults with intellectual disabilities and father of four, including her oldest daughter with Down Syndrome. He has written multiple books, including “The Five-Minute Marriage Mentor,” and “Holding Hands with Grace,” all about his journey of fatherhood with a child with intellectual disabilities. He founded “The Significant Life Foundation,” in 2024 to advance the cause of independent housing, employment and community for the intellectually disabled community. He serves on multiple non-profit boards and is the Executive Director of the HIS EYES Foundation to combat homelessness. Married over 25 years to his wife, Jen, Marcus enjoys traveling, Golfing and undiscovered cafes and cuisine.
Jen Jones is the founder and CEO of Jen Jones Direct LLC, and creative architect of the Significant Conference. Through her books, courses, conferences, podcast and Significant Life groups, she equips and empowers women to create the life they love on the foundation of faith. Jen and her husband Marcus are living this great adventure with their four children in San Diego, California. Jen knows what it’s like to experience the unexpected and have to grow through life’s greatest challenges. She advocates for differently-abled kids and their parents because she is mom to a daughter with Down Syndrome. She helps families identify their core values and champions women to know and own their God-given worth to live a life of significance. She is a certified health coach, and has built a nationwide health and wellness business. She guides people on a path to help them take control of their health—mentally, physically and spiritually. She is in the personal transformation business. Jen has appeared as a speaker and coach in numerous conferences, retreats and podcasts, including ABC Family and the Live Out Loud Show. She is also the author of Thrive: Growing Through Life’s Greatest Challenges, Tribe: Building Your Family on What Matters Most, and The Five-Minute Marriage Mentor.
https://significantlifefoundation.org/
jen@jenjonesdirect.com
@jenjonesx4
https://jenandmarcusjones.com/marcus/
https://jenandmarcusjones.com/jen/
facebook.com/jonestribe
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
"The Life of a Medical Caregiver" with Kara Ryska
Hey guys, Thanks for joining us today! We’re continuing on in our Medical Family Series with guest Kara Ryska, host of The Special Needs Mom Podcast. As a devoted mother of four, ranging from ages 7 to 17, Kara's life has been shaped by her role as a mother of a multiple brain tumor survivor and a child with diverse disabilities, encompassing physical, visual, behavioral, and medical challenges.
Driven by her personal experiences, Kara has become an advocate for families facing similar hurdles, offering support through her role as a life coach. Kara’s resilience is inspiring and you’re absolutely gonna want to listen in or watch today’s episode.
Bio
Meet Kara Ryska, a compassionate and resilient force empowering families through her impactful journey as the host of The Special Needs Mom Podcast. As a devoted mother of four, ranging from ages 7 to 17, Kara's life has been shaped by her roles as a mother of a multiple brain tumor survivor and a child with diverse disabilities, encompassing physical, visual, behavioral, and medical challenges.
Driven by her personal experiences, Kara has become an advocate for families facing similar hurdles, offering support through her role as a life coach. Her commitment extends beyond the microphone as the creator of "Pathway to Peace," a transformative group coaching community that has touched and changed countless lives. Kara's resilience and wisdom make her a sought-after speaker, sharing her insights on navigating the complexities of parenting children with special needs.
Kara brings together strength and empathy, fostering a sense of unity among families navigating similar paths. Her dedication to creating a space of understanding and hope resonates in every episode of her podcast and within the transformative impact of her coaching programs. Kara Ryska is not just a podcast host; she is a beacon of inspiration, guiding others towards a life filled with purpose and peace.
Contacts
www.kararyska.com
IG: https://www.instagram.com/thespecialneedsmompodcast/
Podcast: https://podcasts.apple.com/us/podcast/the-special-needs-mom-podcast/id1523926612
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Medical Family Series:
“A Family’s Courageous Journey” with Steve and Melissa Bundy
Intro:
Today we begin our medical family series and you are about to be inspired by one family’s story.
Steve and Melissa Bundy have been married for 33 years and have two adult sons. Their oldest son Caleb was born with a rare chromosome deletion and subsequent multiple medical diagnoses.
Steve is the Senior vice president of International ministries at Joni and Friends International Disability Center and has been on staff for past 18 years. And Melissa is a part time wound care home health nurse. This incredible couple sat down with us to share their story. A courageous story where heartache is met with hope.
Let’s listen into our conversation with Steve and Melissa.
Bio:
Steve and Melissa Bundy have been married for 33 years and have two incredible adults sons. Steve is the Senior vice president of International ministries at Joni and Friends International Disability Center and has been on staff for past 18 years. Melissa is a part time wound care home health nurse.
Their 26 year old son Caleb was born with a rare chromosome deletion 2q37.1 partial terminal deletion. This missing piece of the chromosome means he has severe cognition delay, severe autism (unable to speak), apraxia of speech and body, and also a rare form of muscular dystrophy called Bethlem/Ulrich. They were given this diagnosis of the chromosome deletion at ages 10 months, autism at 2 years and muscular dystrophy when he was 12. Caleb has had a very difficult journey in life yet has had a family who has surrounded him with the love, support and advocacy he needed to be as functional and loved for who he is as much as possible.
Caleb’s younger brother Jaron is 22 years old and has been such a huge supportive sibling even in the most challenging of times. Jaron graduated this past year from Belmont University in Nashville, TN with a degree in music production and now has his own business producing music and teaching students in guitar,piano and music production at jaronmicahmusic.com.
Joniandfriends.org
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
"Season Highlights & Happy Holidays" with Eric and Christen
Hey everybody Merry Christmas and Happy Holidays!
This season has had so many incredible episodes and there are so many more to come in the New Year!
Lets take a moment and listen in to some of the highlights. And don’t forget you can always get caught up on the episodes you’ve missed over the holidays. Find us where ever you listen to your podcasts or watch us on our YouTube Channel at Hope on the Hard Road
See you back here in the New Year!
Amanda Owen
www.piecesofme.org
www.puzzle-pieces.org
@piecesofmebyamanda
Joel & Debbie Pearlman
www.daniplan.com
https://www.facebook.com/MyDaniPlan/
https://www.instagram.com/mydaniplan/
Heather Avis
@heatheravis
@theluckyfewofficial
heatheravis.com
Kelly and Pamela Schlenz
www.idyllwildpines.org
autisticallyinclined.com
@adventureswithnaiyagrace
@Idyllwildpines
J Brad and Paulette Britton
@RealWordsWithSam
www.realwordswithsam.com
jbradbritton@gmail.com
Dawnmarie Gaivin
www.spellers.com
www.spellersfreedomfoundation.org.
dawnmarie@spellers.com
www.underestimated.tv
@spellers_freedomfoundation
@spellers__
https://www.facebook.com/groups/spellerscommunity
https://www.facebook.com/spellersfreedomfoundation https://www.facebook.com/spellersrev
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Spellers Series:
“The Spellers Method” with Dawnmarie Gaivin
Dawnmarie Gaivin, is the cofounder of Spellers MethodTM and the Executive Director of Spellers Freedom Foundation. A former trauma and transplant nurse who spent more than a decade working in prestigious teaching hospitals in Boston and San Francisco, when she became a mother in 2003, her life took an unexpected turn. By 2006, both of her children had been diagnosed with nonspeaking autism.
Driven by an unwavering commitment to help her boys find their voices, Dawnmarie transformed her career. She became an assistive technology specialist and a DIR/Floortime® provider, ultimately founding Spellers Center - San Diego in 2017 and co-founding the revolutionary Spellers Method.
Featured in the SPELLERS documentary, her impact has rippled far beyond her own family. Let’s listen in as Dawnmarie shares her story.
Bio:
Dawnmarie Gaivin, RN, AT-ACP, is a former trauma and transplant nurse who spent more than a decade working in prestigious teaching hospitals in Boston and San Francisco. When she became a mother in 2003, her life took an unexpected turn - by 2006, both of her children had been diagnosed with nonspeaking autism. Driven by an unwavering commitment to help her boys find their voices, Dawnmarie transformed her career. She became an assistive technology specialist and a DIR/Floortime® provider, ultimately founding Spellers Center - San Diego in 2017 and co-founding the revolutionary Spellers MethodTM. Her impact rippled far beyond her own family. In March 2021, speller Jamison Handley and his father JB chronicled their transformative journey with Dawnmarie in their book Underestimated, revealing how spelling opened entirely new pathways to communication. The movement continued to gain momentum. In 2023, the documentary SPELLERS was released, powerfully demonstrating how spelling and typing as AAC methodologies have liberated countless nonspeakers from lives of silence. This was followed in 2024 by Underestimated.tv, which illuminated more profound journeys of nonspeakers after they gained access to open communication. Today, as Executive Director of Spellers Freedom Foundation - a 501(c)(3) public charity - Dawnmarie has expanded her reach far beyond San Diego. The foundation empowers every speller to flourish through access to communication, community-building, and scholarships. She remains equally passionate about ensuring students with alternative communication needs receive age-appropriate curriculum throughout their lifespans, a commitment that has inspired her to pursue a master's degree in educational leadership. What drives her is a life mission that’s as clear as it is urgent: to dismantle the long-rooted paradigms that prevent nonspeakers from living their fullest, most inclusive lives possible - not just in one community, but everywhere. You can learn more about her work at www.spellers.com and www.spellersfreedomfoundation.org.
dawnmarie@spellers.com
www.spellersfreedomfoundation.org
https://www.spellersfreedomfoundation.org/how-to-help www.spellers.com www.underestimated.tv
Instagram: @spellers_freedomfoundation @spellers__
Facebook: https://www.facebook.com/groups/spellerscommunity/
https://www.facebook.com/spellersfreedomfoundation https://www.facebook.com/spellersrev
The Spellers Guidebook on Amazon: https://a.co/d/2m3pcXf Underestimated on Amazon: https://a.co/d/iWOZQZg
Spellers the Movie: https://www.spellersfreedomfoundation.org/spellers-the-movie
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Spellers Series:
“Finding Their Voice: A Family’s Journey with Spelling” with J Brad and Paulette Britton
Today we continue our Spellers Series and are joined by Paulette and J Brad Britton. Paulette and J Brad have a 24-year-old autistic son with apraxia, named Sam. For years, his intelligence and humor were missed. That changed when he began using spelled communication to share his thoughts.
Paulette has spent years connecting cutting-edge autism research with the families who need it. J Brad, a leadership mentor and business executive, brings a father’s honest reflection to the conversation. He talks openly about what it means to lead, learn, and show up when your child’s needs don’t follow the rulebook.
Together, Paulette and J Brad have become thoughtful voices on “presuming competence”, advocating with compassion, and holding on to hope on the hard road.
Their story is featured in the upcoming book Real Words with Sam, which includes Sam’s own writing—his ideas, his humor, his voice. Let’s Listen in as we hear Paulette and J Brad’s Story
Bio:
Paulette and J Brad Britton are the parents of Sam, a 24-year-old autistic man with apraxia. For years, his intelligence and humor were missed. That changed when he began using spelled communication to share his thoughts.
Paulette has spent years connecting cutting-edge autism research with the families who need it. J Brad, a leadership mentor and business executive, brings a father’s honest reflection to the conversation. He talks openly about what it means to lead, learn, and show up when your child’s needs don’t follow the rulebook.
Together, Paulette and J Brad have become thoughtful voices on presuming competence, advocating with compassion, and holding on to hope on the hard road.
Their story is featured in the upcoming book Real Words with Sam, which includes Sam’s own writing—his ideas, his humor, his voice. The book invites readers to see through a different lens and reconsider communication, connection, and belief.
Insta and Facebook: RealWordsWithSam
www.realwordswithsam.com
jbradbritton@gmail.com
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Spellers Series:
“Spelling Adventures and Advocacy” with Kelly and Pamela Schlenz
Hey guys, we’re excited you’re joining us for this episode! Today we begin our Spellers Series, highlighting this incredible form of communication. You won’t want to miss this informative and heartwarming series this month!
Kelly Schlenz is the Executive Director of Idyllwild Pines, a retreat and camp center nestled in the San Jacinto Mountains of Southern California. Along with his wife, Pamela, Kelly has dedicated his life to creating spaces where individuals and families can connect, grow, and find hope.
Inspired by their daughter, Naiya, who communicates through spelling, the Schlenz family has become passionate advocates for the spelling community. At Idyllwild Pines, Kelly and Pamela host specialized camps for spellers and their families, offering opportunities for connection, inclusion, and empowerment in a beautiful, supportive environment. Their leadership reflects their deep faith, family values, and commitment to building a world where every voice can be heard and celebrated.
Bio:
Kelly serves as the Executive Director at Idyllwild Pines Camp and Conference Center, where he brings leadership, vision, and a heart for community. He sees camp ministry as a powerful way to share the hope of Christ, build meaningful relationships, and create space for spiritual growth in the lives of others. Pamela is a devoted homeschool mom of three, passionate about nurturing both faith and education at home. Inspired by their own journey with their 15-year-old minimally speaking daughter, Kelly and Pamela partnered with Autistically Inclined to create Spellers Family Camps—transformative retreats designed to support and empower families of nonspeaking, minimally speaking, and unreliably speaking individuals by providing connection, community, and practical support with multimodal communication. Their mission is rooted in faith, compassion, inclusion and lived experience. When they're not hosting camps or homeschooling, you can find them enjoying mountain life with their three kids, two dogs and tending to their flock of 17 chickens.
www.idyllwildpines.org
autisticallyinclined.com
Instagram:
@adventureswithnaiyagrace
@Idyllwildpines
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Down Syndrome Awareness Month Series:
“Happiness is Down Syndrome” with Misty Snyder
Welcome back to the Down Syndrome Awareness Month Series! Today, we’re joined by a truly inspiring guest — Misty Coy Snyder. Misty is an actor, singer, writer, entrepreneur, and a powerful advocate for the Down syndrome community. After receiving a prenatal Down syndrome diagnosis for her second son, Misty created a global platform called Happiness is Down Syndrome, promoting inclusion, awareness, and the beauty of diversity.
She currently serves as the Creative Director for Global Outreach and Advancement at RODS Heroes, and in 2023, she launched her own podcast, Bold Voices, Soft Hearts, sharing moving stories of those who’ve found passion through pain.
Get ready for a heartfelt and hopeful conversation with Misty as we celebrate the voices that are changing the world — one story at a time.
Bio:
Misty Coy Snyder is an actor, singer, writer, entrepreneur, content creator and advocate for the Down syndrome community. She recently accepted the role of Creative Director for Global Outreach and Advancement for Down syndrome at RODS Heroes, which seeks to uncover the superpowers of individuals with Down syndrome. Upon receiving a prenatal Down syndrome diagnosis for her second son in 2020, she created a worldwide platform to promote inclusion and awareness called, Happiness is Down syndrome. She launched her own podcast in 2023 called, Bold Voices, Soft Hearts, which features stories of those who have discovered their passion through pain. She, along with her family hope to show the beauty of diversity on a global scale!
Contacts:
https://youtu.be/BYQuLinx_dA?si=9xW6pFLOQjtALp8g
https://www.instagram.com/happinessisdownsyndrome?igsh=YjJ2dnlxaGNtazFq&utm_source=qr
https://www.instagram.com/mistycoysnyder/profilecard/?igsh=NWg4OGJncDdkenoy
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Down Syndrome Awareness Month Series:
“The Lucky Few : Shifting Narratives” with Heather Avis
October is Down Syndrome Awareness Month, and on today’s episode we are excited to welcome guest Heather Avis — New York Times best-selling author, podcaster, and founder of The Lucky Few.
For over a decade, Heather has been shifting the narrative around Down syndrome, using storytelling, advocacy, and activism to build a world where everyone belongs. Through her work, she invites us to embrace our differences and shout the worth of every person.
Get ready for an inspiring conversation about identity, belonging, and what it means to create a space where all are seen and valued.
Bio:
Heather is the founder of The Lucky Few, a New York Times best-selling author, podcaster and a Down syndrome advocate, working to create a more inclusive world where everyone belongs. For more than a decade, she has led this effort by shouting worth, shifting narratives and reimagining what it looks like when we embrace our differences. The Lucky Few is an invitation to build a kinder, more inclusive world. We accomplish this through a combination of advocacy and activism, narrative-shifting and storytelling. The Lucky Few believes in inspiring and challenging our audiences, calling them to listen, read, share, contribute and support as we work to create a world where differences are embraced and everyone belongs.
@heatheravis
@theluckyfewofficial
heatheravis.com
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Future Planning Series:
“The Dani Plan”
Hey guys, we’re excited you joined us today! This is such a great episode! Our families know all too well the endless amounts of documentation required of us, just to get through the day let alone to plan for the future. Medication charts, daily schedules, appointment calendars there is so much to track. Our guests today get it. And what’s more they’ve created something to help!
Joel and Debbie, have three children including their 24 year old daughter Danielle, who is diagnosed with non verbal Autism. After first documenting Dani’s life in files stored on a computer, to be sure that if something happened to them, family or caregivers could step in and understand Dani’s everyday needs. Joel knew there had to be a better way. So In 2023, he and his new business partners launched the Dani Plan, and created a tool that would give caregivers an easy way to document, update, store, and share every detail of their loved one’s lives in a secure and safe environment.
Bio:
Joel Pearlman is a lifelong entrepreneur starting his first venture at 14, selling blow pops with his best friend out of his high school locker. While a student at Eastern Michigan University, he started his second business, a technology company with his high school business partner. For 32 years, he and his partner ran Image One, a successful business receiving multiple awards both locally and nationally including Forbes Magazine list of top 25 small businesses in America.
Joel and his wife, Debbie, have three children including 24-year-old Danielle. Dani is nonverbal and has autism. More importantly, she has the most amazingly sweet nature.
While working at Image One, Joel and Debbie documented Dani’s life in word documents stored on their computer. They wanted to make sure that if something happened to them, family or caregivers could step in and understand her everyday needs and the nuances of caring for her. They found the process unstructured and tedious, and Joel knew there had to be a better way. In 2022, Joel stepped into an Advisory Role at Image One, freeing his time to build a new business. A tool that would give caregivers an easy way to document, update, store and share every detail of their loved one’s lives in a secure and safe environment. In 2023, Joel and his new business partners launched the Dani Plan.
Website: daniplan.com
Facebook: https://www.facebook.com/MyDaniPlan/
Instagram: https://www.instagram.com/mydaniplan/
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Future Planning Series:
“Putting the Puzzle Pieces Together” with Amanda Owen
You’re not gonna want to miss this inspiring episode with author, speaker, and entrepreneur, Amanda Owen, founder and executive director of Puzzle Pieces in Owensboro, Kentucky. Amanda shares her journey from special education teacher and sibling to nonprofit leader, highlighting the challenges, triumphs, and personal motivations behind her mission. On this first episode of our Future Planning Series, We talk about the impact of community support, innovative programs, and how her organization transforms lives of individuals with intellectual disabilities. Don’t miss Amanda’s heartfelt stories and empowering message. Let’s get started!
Bio:
Amanda Owen is a dynamic storyteller, advocate, and changemaker. As an author, speaker, podcaster, and nonprofit founder, she has dedicated her life to championing individuals with disabilities. Inspired by her older brother Nick, one of the first in the world diagnosed with a rare chromosomal disability, Amanda's journey into advocacy began at home. This unique experience ignited her passion for inclusion and advocacy from a young age. Determined to make a difference, Amanda became a special education teacher but soon realized her vision for empowering families extended beyond the classroom. Over 12 years ago, she made the bold decision to leave teaching and launch Puzzle Pieces, a Kentucky-based nonprofit that provides life-changing services to individuals with disabilities. From residential living to vocational training, supported employment, and the region’s only targeted autism programming, Amanda’s organization now serves over 400 clients with the support of a dedicated team of 100+ staff members and a $6 million operating budget. Amanda’s work has set a new standard for disability services both statewide and nationally. She was appointed by the Kentucky Governor to the Employment First Council and was recognized as a 40 Under 40 influential leader in her community. As a sought-after speaker, she shares her unique sibling perspective and insights on advocacy with audiences across the country. Amanda's recently released memoir, "Rarely Different," offers a deeply personal look into her life as a special needs sibling, providing a perspective that resonates with many families navigating similar challenges. Her life’s mission is clear: to ensure people with disabilities are not just included, but celebrated within their communities. Amanda's infectious energy and relentless optimism inspire everyone around her to dream big, work hard, and embrace the lessons that come with failure. Above all, Amanda encourages people to show up authentically and never forget to find joy in the journey. Amanda loves connecting with families and caregivers, offering support, sharing experiences, and building a community of understanding. Connect with her on Instagram @pieceofmebyamanda or visit her website at piecesofme.org to follow along on her journey and learn more. www.piecesofme.org www.puzzle-pieces.org @piecesofmebyamanda
www.piecesofme.org
www.puzzle-pieces.org
@piecesofmebyamanda
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
Future Planning Series:
“Welcome to Season 5” with Eric and Christen
Welcome Back for Season 5 of the Hope on the Hard Road podcast. We’re glad you joined us It’s going to be an incredible season! Don’t forget to subscribe so we you never miss an episode!! We have some really amazing guests on this season who many of you likely already know and follow! We have Chris Wenger otherwise known as “Speech Dude” joining us a little later on this year and coming up we have Heather Avis of “the Lucky Few Podcast” as well as a few other powerhouse friends joining us to celebrate Down Syndrome Awareness Month!
This is a great time to share a little bit about Hope on the Hard Road. For those who are new to the podcast, Hope on the Hard Road, Inc is a nonprofit based out of San Diego CA which Christen and I founded in 2019 with the mission to connect, encourage, and bring hope to families journeying on the special needs road. We understand what families are dealing with every day as they walk this road, because we are a family just like you.
Whether that looks like medical complexity, developmental disabilities, or neurodiversity we are here for you. We have lots of resources and supports uniquely designed to wrap around the family, including this incredible podcast which features interviews with experts in the special needs community and heartfelt family stories. Beyond the podcast we also host local events every month for dads, moms, couples, siblings, and the entire family. And if you’re not local – no worries- we’ve got support groups on line as well that you can join. And head on over to our YouTube channel after this podcast to check out our FREE library of webinars with experts on so many of the hot topics our families need to know about such as Self Determination and Future planning.
Speaking of future planning. This is what we’re going to be talking about for the next couple of weeks on the podcast. We hope this Future Planning Series will be a powerful guide to helping you all as you take next steps. Don’t forget to subscribe and we’ll see you back here for the next episode!
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
“That’s a Wrap for Season 4!” with Eric and Christen Freund
Hey guys, That’s a wrap for season 4!
We had so many great episodes this season and we can’t wait for Season 5 starting in August! Guys, We can hardly believe we’re headed into year 5 of the podcast!
We have some incredible guests coming on this season, many of whom you likely already know and follow. So be sure to follow the podcast and our Youtube channel to catch all the new episodes in Season 5. You won’t want to miss any of this season coming up!
Speaking of this season coming up. If you or your business would like to sponsor an episode simply reach out to us at info@ hopeonthehardroad.org
And If you like this podcast send us a comment or rating, it really helps to push the podcast out there so that other families can find it and follow to hear heart felt family stories and expert insights from the special needs community.
Community is everything so with summer coming up don’t forget to stay involved. If you are here in the San Diego area be watching for our local events coming up like our Dads day Out and our Hope Community Events for families in June.
And whether you’re local, in another state, or abroad sign up for our monthly eblasts and follow us on social media to get the latest on resources and more.
We hope you all have an amazing summer! But first before we take a break we want to take some time to listen back to some highlights from Season 4!
Bio:
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Mental Health Series
“Mental Health in Teens and Young Adults with Disabilities” with Cheryl Jordan
Today is the final episode of our Mental Health Series. We are thrilled that board director and licensed therapist, Cheryl Jordan could join us today for this informative discussion. It’s Mental Health Awareness Month and we’re talking about “Mental Health in Teens and Young Adults with Disabilities”. You’re gonna want to listen in as we talk about this very important topic. So lets get started!
Bio:
Cheryl Jordan is both a director on our board and a licenced therapist. She is happily married to Rob and mom to two adult children who faced various mental health challenges during their developmental years. Through the process of parenting her children, she and Rob sought help through mental health counseling, medical treatment, and educational support for her children. After 30 years as a physical therapist, she transitioned to a career in Mental Health Counseling. Her current specialties include helping children, teens, young adults, and their parents through play/art interventions and solution focused and behavioral therapies. She believes that her experiences as a parent gives her compassion for those who are struggling with anxiety, depression, learning challenges, ADHD, Autism Spectrum Disorder, and trauma. She and Rob currently live in St George, UT where she is employed as a Mental Health Counselor for Mountain View Family Therapy
Contacts:
Cheryl@hopeonthehardroad.org
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Series: Mental Heath
“Mental Health for Families with Special Needs” with Elizabeth Strout
May is Mental Health Awareness Month. Studies show that individuals with disabilities, including children, experience higher rates of mental health distress and mental health disorders compared to those without disabilities. Today as we discuss this important topic we are excited to introduce you to Elizabeth Strout, licensed clinical social worker and clinic director of Ellie Mental Health San Diego. As a LCSW she values being a compassionate, inclusive, authentic leader, supporting persons of all ages and experiences with mental health needs for over 14 years. Let’s get started on our new series with today’s episode.
Bio:
Elizabeth (Liz) Strout is a Licensed Clinical Social Worker and Clinic Director of Ellie Mental Health San Diego. As a LCSW she values being a compassionate, inclusive, authentic leader, supporting persons of all ages and experiences in mental health need for over 14 years. Liz spent most of her career working in community mental health, providing care for the underserved populations. During this time, Liz oversaw county contracted programs serving 500-600 clients with 90+ full time employees. She has managed all levels of staff from direct care case managers, master’s level clinicians, team leads, clinical directors and program managers. Her focus is on collaborating with a network of organizations, community members and other Clinicians to improve access to care, break the stigma and provide quality mental health services to all of San Diego. She finds purpose in empowering each person with individual care on their recovery journey to reach their full potential. Day to day, Liz loves to spend time with her two Boston Terrier puppies, Luna and Winston.
Contacts:
https://www.facebook.com/people/Ellie-Mental-Health-Sorrento-Valley-Road-San-Diego-CA/61553120532942/
https://www.linkedin.com/company/ellie-mental-health-la-jolla-ca/posts/?feedView=all
https://www.instagram.com/elliementalhealth_sandiego/https://
www.tiktok.com/@elliementalhealthsd
https://www.tiktok.com/@elliementalhealthsd
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Ministry Series:
“International Disability Ministry” with Linda Martin
We are so excited to have Linda Martin, Founder & President of Miracle 139 International, back on with us, for today’s podcast episode!
Linda is a Board-Certified Music Therapist, specializing in Autism Spectrum Disorders, behavior management, and music therapy assessment. With over two decades of experience, Linda has dedicated her career to improving the lives of children with disabilties and empowering those who support them.
As the Founder and President of Miracle 139 International, Linda has spearheaded efforts to equip leaders worldwide with the tools and knowledge necessary to build inclusive environments for children with disabilities. Through her work, she has helped churches across the U.S. develop special needs ministries and provided special education training internationally, across 4 continents.
Linda is passionate about the power of collaboration and believes that disability inclusion is the key to creating compassionate communities and a lasting impact around the world.
Lets listen in to todays conversation with our friend, Linda Martin
Bio:
Founder & President of Miracle 139 International, Linda Martin is a Board-Certified Music Therapist, specializing in Autism Spectrum Disorders, behavior management, and music therapy assessment. With over two decades of experience working with preschool and school-aged children, Linda has dedicated her career to improving the lives of children with disabilties and empowering those who support them. As the Founder and President of Miracle 139 International, Linda has spearheaded efforts to equip leaders worldwide with the tools and knowledge necessary to build inclusive environments for children with disabilities. Through her work, she has helped churches across the U.S. develop special needs ministries and provided special education training internationally, reaching communities across 4 continents. Linda is passionate about the power of collaboration and believes that disability inclusion is the key to creating compassionate communities. A published author and sought-after international trainer, she enjoys bringing teams of special education specialists together to share insights and foster lasting change. Linda holds a Master’s Degree in Music Therapy and is committed to continuing her efforts to promote inclusion and create positive, lasting impact around the world.
Contacts:
www.miracle139.com
www.miracle139international.org
facebook.com/miracle139international
instagram.com/miracle139international
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Disability Ministry Series
'Autism and the Church' with Pastor Russ Ewell
Welcome back to the Podcast. Today we have Russ Ewell, lead pastor of Bay Area Christian Church and father of two children with special needs as our guest. As a father and an advocate in the special needs community he understands the need for creating inclusive environments for our children. As a Pastor, he and his wife have launched a free, step-by-step guide to help leaders begin or grow this ministry at their church. He knows that many Pastors are interested in serving the special needs community, but lack the resources to make this a reality and is meeting the need with this resource.
In addition, Russ has create E-Sports and E-Life which are inclusive community programs enabling kids with special needs to participate in sports and activities alongside their peers.
As we approaching Autism awareness month, Russ brings a fresh perspective of what is possible for individuals special needs and the greater community. Let’s listen in as we join Russ.
BIO
Russ Ewell is Executive Minister of the Bay Area Christian Church. A minister for more than 40 years, Russ’s teaching is rooted in providing hope for those turned off by tradition, and infused with vision for building the transformative church for which the 21st century public hungers.
Contacts:
BACC Website: bacc.cc
The Spiritual Resource Ministry will shortly release a manual to assist leaders in establishing ministries for individuals with special needs: http://bacc.cc/srm E-Sports.org https://e-sports.org/ E-life.org https://e-life.org/ Social Media: https://www.instagram.com/the.bacc/ https://www.facebook.com/the.bacc For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Family Series
'Motherhood & Special Needs' with Becky Wall
Welcome back. On this episode the focus is on moms. As moms we have our own unique stories to share. And as we approach World Down Syndrome Day, we are delighted to have Becky Wall on with us again to share her story as a mom of a son diagnosed with both Down Syndrome and Autism. Becky works for FamilyLife as a field staff leader serving families and moms connected to disability, and on this episode she and I really enjoyed getting to catch up mom to mom. Let’s get the conversation started.
Bio:
Becky is married to Garett and they have two children, Lily (14) and Isaac (12). Shortly after their son Isaac was born they received the news that Isaac had Down Syndrome. Just before the age of 10, Isaac was diagnosed with Autism as well. Becky serves part-time with FamilyLife - a ministry of Cru (Campus Crusade for Christ) and is a Field Staff Leader serving families and moms connected to disability. Her prayer is to create spaces for families touched by disability to hear the hope of the Gospel and find purpose in growing God’s kingdom with the life He has given them. A graduate of University of Louisville, Becky has been on staff with Cru (Campus Crusade for Christ) for 21 years. She served 20 years with the college campus ministry and this past year moved over to FamilyLife - a Cru ministry. A native of Troy, Michigan, Becky is married to Garett and they have two children, Lily and Isaac. They currently reside in Louisville, KY. Isaac.
Contacts:
Becky Wall
www.FamilyLife.com
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Family Series: “Creativity in Marriage & Parenting” with Angela and Mike O’Brien
You are going to love this episode! We have Angela O’Brien of the Especially Organized Podcast back on and she’s joined by her husband Mike.
This is going to be another fun and heartfelt episode in our marriage and family series that you won’t want to miss!
Angela and Mike have been married for 26 years and live in Texas and have 2 adult children, with a daughter who is diagnosed with Down Syndrome. As we approach World Down Syndrome Day on Mar 21st we talked about advocacy along with marriage and parenting, and a so much more. Eric and I really enjoyed connecting with these 2 and found that we had a crazy amount of similarities in this stage of life. Listen in to our conversation with Mike and Angela O’Brien.
Bio: (see bio)
Angela and Michael O’Brien met in the early 90’s while working as sales representatives for a paper company in St. Louis. As good friends and colleagues, they started dating when they both went off to graduate school. Married since 1997, they have a son living and working in Madison, WI and a 21-year-old daughter who has a diagnosis of Down Syndrome. Their journey as a family has been deeply enriched by the disability community. Angela has been an advocate since their daughter’s birth and is now a professional organizer and podcast host for moms of kids with special needs. Mike is co-founder of Roosevelt Capital Management, having met his business partner on the sidelines of a Special Olympics basketball game watching their girls. They live in Dallas, TX with their daughter and beloved dog, Coco.
Contacts: (see contacts)
Instagram (@yourspacereclaimed)
Facebook (Your Space Reclaimed)
Website Your Space Reclaimed Professional Organizing
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Family Series: 'Building a Healthy Marriage' with Garett and Becky Wall
We are continuing on in our family series with an episode on marriage and parenting with Garett and Becky Wall. These 2 are an amazing couple and team! Becky and Garett live in Louisville, Kentucky and have two children, Lily (14) and Isaac (12), who is diagnosed with Down Syndrome and Autism.
Garett serves as the Connections Minister with Shine Disabilities Ministry and Becky serves with FamilyLife. Together they are raising a busy family and creating spaces to support families touched by disability.
Lets listen as they share their story.
Bio:
Becky and Garett live in Louisville, KY and have two children, Lily (14) and Isaac (12). Shortly after their son Isaac was born, they received the news that Isaac had Down Syndrome. Just before the age of 10, Isaac was diagnosed with Autism as well. Becky serves part-time with FamilyLife - a ministry of Cru (Campus Crusade for Christ) and is a Field Staff Leader serving families and moms connected to disability. Garett serves as the Connections Minister with Shine Disabilities Ministry at Southeast Christian Church in Louisville, Kentucky, where he faithfully shepherds kids, teens and adults with disabilities as well as supporting their families. Together they are raising a busy family and creating spaces to support families touched by disability to hear the hope of the Gospel and find purpose.
Contacts:
Becky Wall
www.FamilyLife.com
Garett Wall
www.southeastchristianchurch.org/shine
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Family Series:
“Teammates in Marriage”
Intro:
With our Date Night coming up on Feb 15th, on this episode we’re sharing last year’s Date Night presentation. As caregiving couples it is often hard to find quality time to connect. That is what our Date Night is all about. We hope you’ll be inspired and encouraged by this message of hope on how even under the hardest of circumstances we can still thrive as “Teammates in Marriage”.
Bio:
Eric and Christen Freund are co-founders of Hope on the Hard Road Inc. College sweethearts, they have been married for 26 years and live in San Diego with their son and daughter. Their family’s journey with special needs began when their daughter was diagnosed with Autism a week before her fourth birthday. There vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Show Notes: Camille Block
Family Series: “Hope for Secondhand Suffering”
Intro:
We begin our Family Series with an episode dedicated to all of the amazing siblings out there. If you are a sibling of someone with special needs we want you to know that we see you and we celebrate you. Siblings often miss out on allot in life and yet siblings also often become some of the most empathetic and caring people we know.
On this episode our guest Camille Block: sibling, career coach, and author of “Hope for Secondhand Suffering™ – Tools for the Heart When You Can’t Fix Your Loved One’s Pain” speaks with us on what it is like to be a sibling. As conservator, advocate and “voice” for her beloved brother Kevin who lives with cerebral palsy quadriplegia, Camille felt called to write this new book to help give a voice to silent sufferers and connect people to their purpose.
Let’s listen in to our conversation
Bio:
Camille Block is an author and career coach and serves as conservator, advocate and “voice” for her beloved brother Kevin who lives with cerebral palsy quadriplegia. After earning a degree in Social Science from Pepperdine University, she set out on a lifelong pursuit of emotional and spiritual wholeness, driven by an empathetic heartache for her brother and a restlessness for answers that extend beyond shallow cliches. Her passion is to have her new book, Hope for Secondhand Suffering™ – Tools for the Heart When You Can’t Fix Your Loved One’s Pain - help give a voice to silent sufferers and connect people to their purpose. As empty nesters with three adult children, Camille and her husband live in Southern California, just across the hills from Malibu. She enjoys sipping frothy lattes in a real mug, engaging in deep talks with friends, walking on the beach in the sunshine, and playing a variety of games with her family when her kids visit. She and her husband are also exploring some new hobbies such as beekeeping and gardening. Her book is available wherever books are sold, worldwide.
Contacts:
Website: www.camilleblock.cc
Facebook: @camilleblock.author
Instagram: @camilleblock.author
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website. Email us: info@hopeonthehardroad.org Website: https://hopeonthehardroad.org/ Instagram: https://www.instagram.com/hopeonthehardroad/ Facebook: https://www.facebook.com/hopeonthehardroad/ Facebook Group: https://www.facebook.com/groups/2621447987943459 Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
🎉 2025 Happy New Year Preview! 🎉
Welcome to a brand-new year with Hope on the Hard Road! In this special episode, we reflect on the challenges and victories of the past year and share an exciting look at what’s ahead in 2025.
Get a sneak peek of upcoming episodes featuring topics like navigating family dynamics, self-care strategies for caregivers, and inspiring guest stories of resilience and hope. Plus, we’ll share ways you can get involved in our growing community this year!
🌟 Save the Date! 🌟
Don’t miss our Fifth Annual Date Night 2025 – an evening of connection and encouragement for couples, happening on February 15th. Sign up now at hopeonthehardroad.org!
Join us as we celebrate the road ahead, together. Here’s to a year of finding strength, joy, and connection in the midst of the challenges we face.
For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Email us: info@hopeonthehardroad.org
Website: https://hopeonthehardroad.org/
Instagram: https://www.instagram.com/hopeonthehardroad/
Facebook: https://www.facebook.com/hopeonthehardroad/
Facebook Group: https://www.facebook.com/groups/2621447987943459
Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
2024 Year End Review
As the year comes to a close, we’re taking a moment to reflect on some of the most powerful and inspiring moments from our fall season. In this special year-end review episode, we revisit stories of resilience, the power of community, and the joy of celebrating milestones — big and small.
Join us as we highlight these memorable clips and the incredible voices that remind us we’re never alone on this journey. Thank you for being part of our community, and here’s to more hope, encouragement, and connection in the New Year!
Don’t forget to follow us so you’re ready for the next season of inspiration.
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Series: Medical
“Advocacy and Fundraising for Medical Families” with Abby Zachritz
Today is our final episode in our medical family series, and it’s a good one. Abby Zachritz is an advocate, corporate consultant, speaker, and a mother of five including a son with disability. Known as 'Advocacy Abby,' she provides essential support and resources to families facing life-altering situations. As Co-Founder of the Connect Platform, Abby empowers families by connecting them with over 1,000 grants, equipment, therapy, and financial support options across the U.S., Canada, and internationally. Through Connect, she ensures that no family has to face challenges alone, making vital resources accessible.
You’re going want to grab a pen and paper for this insightful and informational episode. So let’s get started.
Bio
Advocacy Abby, also known as Abby Zachritz, is a mother of five, advocate, and guiding voice for families navigating disability and complex medical challenges. Known as 'Advocacy Abby,' she provides essential support and resources to families facing life-altering situations, sharing guidance, tools, and emotional support during their most critical moments. Her approach is both deeply personal and professional, rooted in her own experience as a mother and advocate for her child with a disability. As Co-Founder of Connect Platform, Abby empowers families by connecting them with over 1,000 grants, equipment, therapy, and financial support options across the U.S., Canada, and internationally. Through Connect, she ensures that no family has to face challenges alone, making vital resources accessible. In addition to her work with families, Abby consults corporations on how to better serve their clients with unique needs and perspectives. She’s also an inspirational speaker, sharing her message of hope and resilience with audiences, showing that strength and connection can make a profound difference in the lives of individuals and families.
https://www.advocacyabby.com
instagram.com/advocacy.abby
Connect Platform
Series: Medical
“Medical Caregiving and Community” with Andy and Laura Gibson
Intro:
We are talking today with Andy and Laura Gibson, co founders of Certain Hope Community, a nonprofit bringing hope and support to families located in Michigan, and we love that ofcourse. Andy and Laura have 4 children and their youngest daughter Briella was born with a rare chromosome disorder that came with a long list of diagnoses and challenges. Because of the day to day challenges they experienced as a family they noticed the need for community and founded Certain Hope Community. We loved our time sharing with this dynamic duo and we know you’ll love their story too. So lets get started and listen in to our conversation with Andy and Laura Gibson.
Bio:
Andy and Laura Gibson and their 4 kids can often be found outside seeking accessible adventures for the whole family and sharing time with friends over a delicious meal.
Their youngest daughter Briella was born with a rare chromosome disorder that has come with a long list of diagnosis and challenges. There is quite a list of things she can’t do but you will often find their family talking about what she CAN do and how she is filled with so much joy.
Through the day to day challenges they noticed the deep need for in-person community, It was because of this that Certain Hope Community was started. Our passion is to meet other families and share the hope and joy we have because of Jesus.
Contacts:
https://certainhopecommunity.org/
certainhopecommunity@gmail.com
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Series: Medical
“Finding Hope in the Midst of Medical Complexity” with Andrea Bourne Foster
Welcome to the podcast. This episode is full of heart and hope. Today we begin our Medical series with author, speaker, educator and advocate Andrea Bourne Foster. Andrea is the mom of 2 beautiful daughters diagnosed with tuberous sclerosis and epilepsy. She is no stranger to hospital stays and ongoing procedures and we are blessed to have this most amazing mom and advocate on with us today. Let’s listen in as she shares her families story.
Bio:
Andrea Foster is a speaker, writer, disability advocate/educator, wife and mom. Andrea has been married to Kirk since 1998 and they are parents to four young adults. Their youngest, Audrey and Annie are identical twins who were diagnosed with Tuberous Sclerosis Complex at age five months. This resulted in further diagnoses of epilepsy, autism, intellectual disability and other medical complexities. Andrea and Kirk experienced grief at the loss of dreams and face daily challenges as they fulfill the role of parent-caregivers for their twin daughters. They live in Brampton, Ontario, Canada where Kirk is a professional Firefighter and have been part of Bramalea Alliance Church since 2001. Andrea holds a Master of Science in Education (Disability Studies), Bachelor of Theology and Early Childhood Education Diploma. She shares her experiences through speaking and writing. Her articles are published in Testimony Magazine (PAOC), Alliance.ca magazine, ChristianWeek online magazine and in Women Together online magazine. She has also been a guest writer for Key Ministry and guest blogger for the Huffington Post. She has been interviewed on 100 Huntley St., The Drew Marshall Show and by other podcast hosts. Andrea guest lectures at Bible Colleges and Seminaries, and is working to make Disability Studies part of all such curriculums. Andrea longs to help families not only cope, but also thrive and truly know the joy of the Lord, in spite of disability, disappointment and ongoing seasons of trial. She believes all people belong in the Church but understands that not all leaders are well prepared for ministry with people affected by disability. Her passion is to equip everyone for better interaction so the Body of Christ will become a place of belonging for everybody. One of her favourite things is encouraging other families affected by disability to press into Jesus through Bible study, Church connection and Corporate Worship.
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Series: Future Planning
"Supplemental Security Income (SSI) & Employment" with Aleyada Toruno
We continue on in our Future Planning Series today with a topic that many of us have allot of questions about. Can an individual receive both Supplemental Security Income or SSI and be employed earning an income. This can be a complicated subject and we are incredibly blessed to have expert Aleyda Toruno on today to explain it all to us.
Aleyda has been advocating for the rights of people with disabilities for over 20 years. Prior to her current position at Cornell as Work Incentives Associate, she represented clients in mediations and hearings in Social Security work incentives, vocational rehabilitation, special education, California Regional Center services and Medi-Cal. Her passion to help clients through the employment continuum led her to the world of work incentives counseling.
Lets listen in as she shares.
Bio:
Aleyda has been advocating for the rights of people with disabilities for over 20 years. Prior to her current position at Cornell as Work Incentives Associate, she represented clients in mediations and hearings in Social Security work incentives, vocational rehabilitation, special education, California Regional Center services and Medi-Cal. Her passion to help clients through the employment continuum led her to the world of work incentives counseling.
For more information on Student Earned Income Exclusion see SEIE
Contact:
https://www.yti.cornell.edu/
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Series: Future Panning
"Future Planning" with Wendy Smith
Welcome back to the podcast. Today we begin our Future Planning Series with Wendy Smith of Home of Guiding Hands. Wendy is an incredible resource. She is not only a parent of a 31 year old son with a disability, but has also been working with and advocating for people with developmental disabilities for more than thirty-five years.
Wendy has worked in residential, respite, independent living and recreation programs in three states. She has been with Home of Guiding Hands since 1996 and began providing Life Planning workshops in 2006.
Bio:
Wendy Smith has been working with and advocating for people with developmental disabilities for more than thirty-five years. She has worked in residential, respite, independent living and recreation programs in three states. She has been with Home of Guiding Hands since 1996 and began providing Life Planning workshops in 2006. Wendy is also the parent of a 31 year old son who receives services from San Diego Regional Center.
Contacts:
www.lifeplanninghelp.org
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Series: Kicking off the School Year
“Transition IEPs” with Crystal Sanford
Hey guys, as we continue on in our School Year Kick Off Series, today’s episode is going to be a huge help to those of us facing IEP Transition Planning.
If your child has an IEP, the Individuals with Disabilities Education Act or IDEA requires that students have an Individual Transition Plan or ITP in their IEP by the time they turn 16 years old. The Transition Plan should be based on the student’s strengths, preferences, and needs and all IEP goals must be tied into the 3 areas of continuing education or training, employment, and independent living.
On today’s episode we are happy to have Crystal Sanford of Sanford Autism Advocacy Group back on to explain all of this and more to help parents understand and feel more confident with the Transition planning process. So let’s get started.
Crystal Sanford, M.Ed., M.A. CCC-SLP is an Educational Consultant, IEP Advocate and Speech Pathologist. She is also a podcast, author, and mother to an autistic tween. Crystal's passion is advocating alongside fellow neurodiverse families, helping them to persistently pursue what their children deserve at school. In her free time, she enjoys gardening and spending time with her husband and two children in San Diego, CA.
www.sdautismhelp.com
www.facebook.com/sdautismhelp;
www.instagram.com/sanford_autism_advocacy
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Series: Kicking off the School Year
“Everything No One Tells You About” with Kelly Coleman
Welcome to today’s episode. As a parent of a child with special needs there is so much to know and do! There are school IEPs to advocate at for educational needs, there are insurance companies to haggle with for medical needs, and there are government programs to apply for and renew annually for resource needs. It’s an endless stream of paperwork and there's often not one clear road map to tell you where to go to find all the resources needed.
That’s why we’re so excited to introduce you to Kelley Coleman. Kelley has written a book called “ Everything No One Tells You About Parenting a Disabled Child: Your guide to the eccential systems, services, and supports”. We know you’re gonna love this informative episode.
Contacts:
www.kelleycoleman.com
@hellokelleycoleman.com
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Series: Kicking off the School Year
“Kicking off the School Year Organized” with Angela O'Brien
Welcome to Season 4 of the Podcast! We hope you all enjoyed your summer. We know how crazy the summer can be with being off schedule. We hope you had a chance to enjoy time with family and friends.
You are going to love this episode. Angela Obrien from the Especially Organized Podcast is back to kick off the school year with us with a few tips for how to be more organized in a way that reclaims the calm for all of us parents. So lets get started with todays fun episode!
Bio:
Angela O’Brien is a wife, mother of two, professional organizer, certified Enneagram coach, and host of the podcast Especially Organized: Sensible Solutions for Special Needs Moms.
After graduate school, Angela spent time at several Fortune 500 companies in various sales, marketing, and brand management roles. When her daughter was born with Down Syndrome, she made the switch to stay-at-home mom to focus on her daughter’s extra needs.
In 2021, Angela started Your Space Reclaimed, a professional organizing business where she coaches busy women through their clutter so that they can reclaim the space, freedom, and energy to do the things they love to do.
In early 2023, Angela presented to a group of moms raising kids with Down Syndrome. She was so inspired by the conversation and the organizing needs of this community that she started a podcast to help special needs moms get organized and has shifted her business focus toward helping caregivers of kids with special needs get more organized in their daily life.
Angela lives in Dallas, TX with her husband of 26 years. She has volunteered in various roles at the Down Syndrome Guild of Dallas since 2005, including as a member of their Board of Directors. Currently, she loves to hold precious babies when she meets with new parents at the Down Syndrome Clinic at Children’s Medical Center Dallas and serves on the Board of Directors at her daughter’s beloved school, the Notre Dame School of Dallas.
Contacts:
Instagram @yourspacereclaimed
Facebook Your Space Reclaimed
Website Your Space Reclaimed Professional Organizing
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
"Season 3 Sign Off" with Eric and Christen Freund
Today we look back at season 3 of the Podcast and reflect on all the fantastic stories and insights from our guests. We look at some o fothe high lights of the year so you can go back and catch some these episodes if you missed them or just wanted to hear them again.
Eric and Christen Freund are co-founders of Hope on the Hard Road Inc., a nonprofit dedicated to connecting, encouraging, and bringing hope to families on the special needs journey through a variety of tangible resources and faith-based encouragement. College sweethearts, Eric and Christen have been married for 25 years and live in Southern California with their son Caleb and their daughter Abbey who is diagnosed with Autism.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
David Robbins: Dads Series
"Ministering to Dads Part 2" with David Robbins
Today we are continuing our conversation with David Robbins as we wrap up our Dads series. David is the dad of 4 children. His oldest son Ford has cystic fibrosis, so he understands the challenges of raising a kid with special needs.
David is married to his wife Meg and together they lead FamilyLife where David is the CEO and president. David shares a wealth of knowledge in ministering to dads and husbands on todays podcast.
David is married to his wife Meg and together they lead FamilyLife where David is the CEO and president. David has a wealth of knowledge in ministering to dads and husbands. Today is the first of a two part series with David.
Contacts
Familylife
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
David Robbins: Dads Series
"Ministering to Dads Part 1" with David Robbins
I’m so excited to have David Robbins on the podcast today. David joins us as we are continuing in our Dads Series. David is the dad of 4 children. His oldest son Ford has cystic fibrosis, so he understands the challenges of raising a kid with special needs.
David is married to his wife Meg and together they lead FamilyLife where David is the CEO and president. David has a wealth of knowledge in ministering to dads and husbands. Today is the first of a two part series with David.
Contacts
Familylife
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Steve Chatman: Dad Series
“Rising Above as a Dad Part 2” with Steve Chatman
We are so excited to have Steve Chatman back on to the podcast today. Steve is the Vice President at Rising Above Ministries, a nonprofit in Tennessee that is dedicated to lifting up the special needs community. As both a ministry leader and a dad with special needs children, Steve brings a wealth of insight and experience to share with us on the podcast today. This is part two of a two part series focused on dads. Let’s get started.
Steve is Vice President of Ministry Advancement & Pastoral Care at Rising Above Ministries. Steve is married to Lori Ann and they have 5 Children and 3 Grandkids. Steve has been ministering to families since 1993 and he loves to teach, counsel, encourage, entertain, and resource others. Before joining the staff at Rising Above, Steve and his wife Lori were active participants and volunteers for many years. As a dad with children with special needs (Steve and Lori have two daughters with Down Syndrome), he has a huge heart for the special needs community. As VP for Ministry advancement and Pastoral Care, Steve oversees our ministry to families as well as connecting with the local church and community organizations to help them better engage and serve the special needs community.
In his spare time he enjoys taking naps, watching movies with his family, eating donuts at the beach (or anywhere), playing fantasy football, and he hopes to one day play the banjo.
Contact
Rising Above Ministries
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Steve Chatman: Dad Series
“Rising Above as a Dad Part 1” with Steve Chatman
We are so excited to have Steve Chatman on to the podcast today. Steve is the Vice President at Rising Above Ministries, a nonprofit in Tennessee that is dedicated to lifting up the special needs community. As both a ministry leader and a dad with special needs children, Steve brings a wealth of insight and experience to share with us on the podcast today. This is the first part of a two part series focused on dads. Let’s get started.
Steve is Vice President of Ministry Advancement & Pastoral Care at Rising Above Ministries. Steve is married to Lori Ann and they have 5 Children and 3 Grandkids. Steve has been ministering to families since 1993 and he loves to teach, counsel, encourage, entertain, and resource others. Before joining the staff at Rising Above, Steve and his wife Lori were active participants and volunteers for many years. As a dad with children with special needs (Steve and Lori have two daughters with Down Syndrome), he has a huge heart for the special needs community. As VP for Ministry advancement and Pastoral Care, Steve oversees our ministry to families as well as connecting with the local church and community organizations to help them better engage and serve the special needs community.
In his spare time he enjoys taking naps, watching movies with his family, eating donuts at the beach (or anywhere), playing fantasy football, and he hopes to one day play the banjo.
Contact
Rising Above Ministries
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Garett Wall: Dad Series
“Shining as a Dad” with Garett Wall
I’m so excited to have Garett Wall back with us today on the podcast. Garett joins us as we are in our Dads Series today. Garett is the Dad of a son with Down Syndrome and Autism so he really understands the journey. He serves as the Connections Minister with Shine Disabilities Ministry at Southeast Christian Church in Louisville, Kentucky. He faithfully shepherds kids, teens and adults with disabilities as well as supporting their families.
Garett is a graduate of Murray State University in Murray, KY, Garett worked for nearly 20 years in athletic media relations at both Murray State and the University of Louisville before God redirected his career path into disability ministry in 2019. A native of Dover, Tennessee, Garett is married to Becky and they have two children, Lily and Isaac.
Connect with Garett Wall
Shine Ministry
502.253.8129
gwall@secc.org
Shine Ministry Facebook Page
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Intro Angela O’Brien
Mom Series: “Reclaiming Hope”
Welcome back to our mom series. We’re excited to introduce you to Angel Obrien of the “Especially Organized Podcast”. Angela lives in Texas and is professional organizer who, as a mom of a daughter diagnosed with Down Syndrome, loves working with parents of children with special needs to create a calm and peaceful environment for themselves and their families. ladies you’re going to love this episode. So let’s get started.
Angela O’Brien is a wife, mother of two, professional organizer, certified Enneagram coach, and host of the podcast Especially Organized: Sensible Solutions for Special Needs Moms.
After graduate school, Angela spent time at several Fortune 500 companies in various sales, marketing, and brand management roles. When her daughter was born with Down Syndrome, she made the switch to stay-at-home mom to focus on her daughter’s extra needs.
In 2021, Angela started Your Space Reclaimed, a professional organizing business where she coaches busy women through their clutter so that they can reclaim the space, freedom, and energy to do the things they love to do.
In early 2023, Angela presented to a group of moms raising kids with Down Syndrome. She was so inspired by the conversation and the organizing needs of this community that she started a podcast to help special needs moms get organized and has shifted her business focus toward helping caregivers of kids with special needs get more organized in their daily life.
Angela lives in Dallas, TX with her husband of 26 years. She has volunteered in various roles at the Down Syndrome Guild of Dallas since 2005, including as a member of their Board of Directors. Currently, she loves to hold precious babies when she meets with new parents at the Down Syndrome Clinic at Children’s Medical Center Dallas and serves on the Board of Directors at her daughter’s beloved school, the Notre Dame School of Dallas.
Instagram (@yourspacereclaimed)
Facebook (Your Space Reclaimed)
Website Your Space Reclaimed Professional Organizing
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Moms Series:
“Moms Retreat Panel” with our panel of speakers: Stacy Shradar, Andreina Carillo, Cheri Monis, Sandi Anderson , and Teri Stashak (pictured left to right)
We’re so excited you joined us today. We are beginning our series for moms. With our Moms Day Out Retreat coming up in May, we wanted to share with you a little bit of last year‘s event. So sit back with your favorite drink in hand or plug in your headset as you run or drive to your next stop. Wherever you are we’re glad you’re listening in and we hope you enjoy as our moms panel shares from their experiences and their hearts.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Family Series
"Stories from Siblings"with Joey and Stephanie Alarcon and Lynette Fuson
We’re excited that you are joining us today. We are continuing on in our family series with “Stories from Siblings”. Siblings each have their own journeys and their own stories to share. When special needs enters into the picture for a family each member of the family is effected. Siblings face a lifelong journey along side their brother or sister. One that often begins with their earliest memories and lasts long after their parents passing. The road they walk down can be filled with lots of hard choices and sacrifice but it can also be filled with lots of joy and beautiful blessings as well. Listen in as we share this 2020 recording from our sibling panel with Joey and Stephanie Alarcon and Lynette Fuson.
Sibling Panel:
Joey Alarcon is the youngest brother to Chris, who is diagnosed with Down Syndrome. He and and his wife Stephanie have been married for 10 years and have a young son and daughter and baby on the way. Both Stephanie and Joey are Special Education teachers with 4 combined credentials and a Masters degree in Education. Joey teaches Adapted PE in San Diego Unified School District and Stephanie is taking a break from teaching Special Education to focus on raising their little ones.
Lynette Fuson is married to Jaisen, a Navy Chaplain, and they are blessed with four sons and 2 beautiful daughter-in-laws. She is also the older sister to Missy, who is diagnosed with Down Syndrome.
Lynette has a degree in Elementary Education and a minor in Spanish from Wheaton College as well as a Certificate in Spiritual Direction. After teaching school for 10 years and serving alongside her husband in various churches, Lynette joined the Emmanuel Faith Community Church staff in 2013 where she is the Care & Counseling Director. She is passionate about helping people grow in their relationship with Jesus and live out of the fullness of who God made them to be.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Marriage Series
"Marriage in the Midst Part 2" with Eric and Christen Freund
Welcome back to part 2 of 2 episodes on Marriage in our Family Series. Today we are talking about investing in your marriage. These episodes come from a recording of our “Marriage in the Midst” presentation at last year’s Date Night. For more on this presentation, head over to our store at Hopeonthehardroad.org where you can purchase the entire event video for just $5 today! Let’s listen in as we join today’s podcast.
Eric and Christen Freund are co-founders of Hope on the Hard Road Inc., a nonprofit dedicated to connecting, encouraging, and bringing hope to families on the special needs journey through a variety of tangible resources and faith-based encouragement. College sweethearts, Eric and Christen have been married for 25 years and live in Southern California with their son Caleb and their daughter Abbey who is diagnosed with Autism.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Marriage Series
"Marriage in the Midst Part 1" with Eric and Christen Freund
Welcome to part 1 of 2 episodes on Marriage in our Family Series. Today we are talking about Taking Care of Yourself. These episodes come from a recording of our “Marriage in the Midst” presentation at last year’s Date Night. For more on this presentation, head over to our store at Hopeonthehardroad.org where you can purchase the entire event video for just $5 today! Let’s listen in as we join today’s podcast.
Eric and Christen Freund are co-founders of Hope on the Hard Road Inc., a nonprofit dedicated to connecting, encouraging, and bringing hope to families on the special needs journey through a variety of tangible resources and faith-based encouragement. College sweethearts, Eric and Christen have been married for 25 years and live in Southern California with their son Caleb and their daughter Abbey who is diagnosed with Autism.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Medical Series:
"Reframing the Journey with Medical Needs" with Colleen Swindoll Thompson
We are so excited to have Colleen Swindoll Thompson back on the podcast today to talk about her families Journey with Medical Needs.
Colleen is no stranger to trauma and trials. Her experiences with difficult circumstances of life has given her an unwavering passion to encourage and equip caregivers and their families with truths and tools that help them live well regardless of life’s ever-changing circumstances. She founded Reframing Ministries, a division of Insight for Living Ministries, that focuses on providing a community that “gets it,” as well as hand-picked and heart-developed resources that help give you strength for today and hope for tomorrow. Her husband is her hero, and combined they have five witty, creative young adult children. She treasures time with her family, reading on quiet afternoons, and, when her body lets her after back surgery, fulfilling her never-ending wish to win yard-of-the-month through gardening.
Contacts:
reframingministries.com
Facebook Community
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
”2024 Preview” with Eric and Christen Freund
Thanks for listening to today’s episode! Today we preview what is coming up on the podcast for the new year. We are excited for what this year has in store and know you will be blessed by all the stories and insights.
Eric and Christen Freund are co-founders of Hope on the Hard Road Inc., a nonprofit dedicated to connecting, encouraging, and bringing hope to families on the special needs journey through a variety of tangible resources and faith-based encouragement. College sweethearts, Eric and Christen have been married for 25 years and live in Southern California with their son Caleb and their daughter Abbey who is diagnosed with Autism.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Photo Credit: Kiley Shai @kileyshaiphotography
”Surviving the Holidays” with Eric and Christen Freund
Thanks for listening to today’s episode! Today we share some insights on how to survive the holiday season with your family. We want to wish you a Merry Christmas and a Happy New Year!
Eric and Christen Freund are co-founders of Hope on the Hard Road Inc., a nonprofit dedicated to connecting, encouraging, and bringing hope to families on the special needs journey through a variety of tangible resources and faith-based encouragement. College sweethearts, Eric and Christen have been married for 25 years and live in Southern California with their son Caleb and their daughter Abbey who is diagnosed with Autism.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Ministry Series:
"Shine Ministry" with Garett Wall
Today we are talking about Special needs ministry. We are so blessed to have Garett Wall on the podcast with us. Garett serves as the Connections Minister with Shine Disabilities Ministry at Southeast Christian Church in Louisville, Kentucky, where he faithfully shepherds kids, teens and adults with disabilities and their families. As the father of a kiddo with Down syndrome and autism, Garett is thankful for the ways the Lord is equipping him for disability ministry and for the lifelong journey of experiencing the goodness of God in all people.
A graduate of Murray State University in Murray, KY, Garett worked for nearly 20 years in athletic media relations at both Murray State and the University of Louisville before God redirected his career path into disability ministry in 2019. A native of Dover, Tennessee, Garett is married to Becky and they have two children, Lily and Isaac.
Connect with Garett Wall
Connections Minister
502.253.8129
gwall@secc.org
Shine Ministry Facebook Page
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Ministry Series:
”Bethesda Ministry” with Jill Miller
We are continuing our ministry Series and are excited to have Adaptive Curriculum Writer Jill Miller join us on the podcast. Jill has a passion to expand the horizons of individuals with disabilities. After her daughter Kim was born with multiple disabilities, Jill employed her training as an educator—including a BA in Elementary and Special Education and a Master’s equivalency as a Reading Specialist—to design teaching tools to effectively convey the gospel message to Kim and her friends. From her labor of love, an entire series of Bethesda interactive Bible studies were born and, most recently, a family devotional—Finding Jesus on Upside Down Days—was released.
Through the years, Jill has started two businesses aimed at employing individuals affected by disability. At a fundamental level, Jill believes that individuals with disabilities can thrive, learn God’s Word, and know his amazing love for them. Jill is a mother of six, wife of Paul Miller, grandmother of many, and lives with Kim and Paul (not to mention two dogs, two sweet donkeys, and a few goats) on a farm property in rural Pennsylvania.
Bethesda Ministry Website
Here is the link to Jill Miller's book "Finding Jesus on Upside Down Days":
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Website: hopeonthehardroad.org
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Ministry Series:
”Reframing Special Needs Ministry” with Colleen Swindoll Thompson
We are beginning our Ministry Series and we are excited to be talking today with Colleen Swindoll Thompson. Colleen is no stranger to trauma and trials. Her experiences parenting a child with multiple disabilities have given her an unwavering passion to encourage and equip caregivers and their families with truths and tools that help them live well regardless of life’s ever-changing circumstances. @colleenswindoll has founded Reframing Ministries, a division of Insight for Living Ministries, that focuses on providing a community that“ gets it,” as well as hand-picked and heart-developed resources that help give you strength for today and hope for tomorrow.
Thanks for joining us
Contacts:
reframingministries.com
Facebook Community
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Future Planning Series:
“Blissful Seeds” with Rita Saliba
We are Continuing on with our Future Planning series talking today about creative job opportunities. And we have an incredible interview today with Rita Saliba founder of the local nonprofit Blissful Seeds, Inc. Blissful seeds is a strength-based business tailored to launch the entrepreneurial journey of young neurodivergent adults, propelling continued growth and social opportunities as they age out of the school system.
Contacts:
blissfulseedsinc@gmail.com
www.blissfulseeds.org
Insta: blissful_seeds
Facebook Blissfull Seeds
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Future Planning Series:
“Creating Residential Opportunities” with Jess Ronne
Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of the Unseen Documentary. She is founder and executive director of The Lucas Project, a non-profit dedicated to providing recognition, resources and respite support for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound disabilities. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir “Sunlight Burning at Midnight” as well as her latest books “Blended with Grit and Grace” and “Lovin’ with Grit & Grace”.
Contacts:
www.jessplusthemess.com
www.thelucasproject.org
www.caregiverdoc.com
Founder and Executive Director of The Lucas Project, caregiver advocate, speaker, podcast host, featured in Unseen, & author of Sunlight Burning at Midnight, Blended with Grit and Grace & Lovin with Grit & Grace (release Feb 2023)
Buy Now Order Buy Now Watch Trailer Website: jessplusthemess.com
Website: https://www.thelucasproject.org/
Podcast: https://anchor.fm/jess-ronne
Facebook: https://www.facebook.com/Jessplusthemess
Instagram: https://www.instagram.com/jessplusthemess
Pinterest: pinterest.com/jessplusthemess/
Twitter: twitter.com/jessplusthemess
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Future Planning Series:
“SSI supports” with Wendy Dumlao
Hi guys, we’re in our future planning series and so glad to have attorney Wendy Dumlao back on the podcast. Today Wendy is talking about SSI. Wendy is an incredible advocate for families of children with special needs. You are going to love her caring, fun, and engaging way of presenting the insights that bring hope as we plan for the future of our children.
Wendy Dumlao has been an attorney for almost 14 years practicing disability law. She worked for 5 years as the Clients Rights Advocate in San Diego, before opening her own practice. She specializes in advocacy related to Regional Center services, Social Security, Medi-Cal, IHSS and Special Education. So she has a lot of great insights to share.
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Free Youtube Resource Library https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
IEP Series:
“IEP Supports” with Crystal Sanford
We’re starting our IEP series this fall with Crystal Sanford. Crystal is a local Educational Consultant, IEP Advocate, Speech Pathologist and business owner. She is also an author and podcaster, cancer survivor, and mother to an autistic tween. Crystal's passion is advocating alongside families, helping them to persistently pursue the supports that their children need at school. So we know you’ll want to hear what she has to share.
Crystal Sanford, M.Ed., M.A. CCC-SLP is an Educational Consultant, IEP Advocate and Speech Pathologist. She is also a podcast, author, and mother to an autistic tween. Crystal's passion is advocating alongside fellow neurodiverse families, helping them to persistently pursue what their children deserve at school. In her free time, she enjoys gardening and spending time with her husband and two children in San Diego, CA.
www.sdautismhelp.com
www.facebook.com/sdautismhelp;
www.instagram.com/sanford_autism_advocacy
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Season 3 Intro:
We are so excited to be back for another season of podcast episodes This season we have episodes filled with incredible insights from experts on topics such as future planning and heart felt stories from families like ours.
We’re so excited for this season. We know you’ll find encouragement, connection, and hope for the road ahead. So please take a second to follow us and you won’t miss an episode.
Eric and Christen Freund are co-founders of Hope on the Hard Road Inc., a nonprofit dedicated to connecting, encouraging, and bringing hope to families on the special needs journey through a variety of tangible resources and faith-based encouragement. College sweethearts, Eric and Christen have been married for 25 years and live in Southern California with their son Caleb and their daughter Abbey who is diagnosed with Autism.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Dad's Searies
Season 2 Wrap Up
Wow what a season of podcast episodes filled with incredible insights from experts and heart felt stories from families like all of ours. This season we had experts sharing on topics such as Special Needs Ministries for churches, Supports for families like The Regional Center, Medi Cal, IHSS, and future planning resources like limited conservatorship, SSI and Cal Able accounts, and the highly anticipated “self determination program ”.
Listen in to high lights of Season 2. Then go back and listen again to your favorite episodes. We look forward to seeing you back here in the fall for season 3.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Dad's Series:
“The Additional Needs Blogfather Part 2” with Mark Arnold
We continue our Dad series with author, speaker, advocate, ministry director and co founder Mark Arnold, also known as the Additional needs Blogfather. Mark brings a wealth of knowledge and experience working with churches all over the UK. He is also a dad of a son with Autism, so he understands the joys and challenges of a raising a child with special needs. Dads, after listening to this episode and Eric and Mark’s conversation you will definitely walk away feeling seen and heard.
Join in the conversation and connect with other Dads who get it at our upcoming Dad’s Meet Up this Thursday and be watching for our annual Dad’s Day Out event COMING in THIS SUMMER!
Connect with Mark at:
Episode Links and Resources:
Mark Arnold is the author of The Additional Needs Blogfather blog. You can follow his blog and reach out to him on his website at https://theadditionalneedsblogfather.com/
Mark Arnold (The Additional Needs Blogfather) is the Additional Needs Ministry Director for Urban Saints’ pioneering additional needs ministry, including training, consultancy, conference speaking and resourcing: http://www.urbansaints.org/additionalneeds
He is co-founder of the ‘Additional Needs Alliance’, a learning and support community of almost three thousand organizations, children’s & youth workers, parents and more who are passionate about inclusion and belonging in the UK and beyond: http://www.additionalneedsalliance.org.uk
Mark is founder of ‘The Dads Fire Circle’, a place for dads and dad figures for children, young people and young adults with additional needs to gather, share and support each other: http://www.thedadsfirecircle.com
He is a ‘Churches for All’ partner, a member of the ‘Council for Disabled Children’ the ‘European Disability Network’ and the ‘Living Fully Network’, serves on the executive for ‘Children Matter!’ and writes a monthly additional needs column for Premier Youth and Children’s Work (YCW) magazine as well as being a writer/contributor for Firefly Community, Key Ministry, The Mighty, Different Dream, DAD.info, and BRF Parenting For Faith.
Mark is the author of ‘How To Include Autistic Children And Young People In Church’ creating a place of belonging and spiritual development for all: https://grovebooks.co.uk/products/y-65-how-to-include-autistic-children-and-young-people-in-church-creating-a-place-of-belonging-and-spiritual-development-for-all
Mark is dad to James, a 19-year-old Autistic young man, who journeys with Epilepsy, Learning Difficulties and Anxiety.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Dad's Series:
“The Additional Needs Blogfather Part 1” with Mark Arnold
We begin our Dad series with author, speaker, advocate, ministry director and co founder Mark Arnold, also known as the Additional needs Blogfather. Mark brings a wealth of knowledge and experience working with churches all over the UK. He is also a dad of a son with Autism, so he understands the joys and challenges of a raising a child with special needs. Dads, after listening to this episode and Eric and Mark’s conversation you will definitely walk away feeling seen and heard.
Join in the conversation and connect with other Dads who get it at our upcoming Dad’s Meet Up this Thursday and be watching for our annual Dad’s Day Out event COMING in THIS SUMMER!
Connect with Mark at:
Episode Links and Resources:
Mark Arnold is the author of The Additional Needs Blogfather blog. You can follow his blog and reach out to him on his website at https://theadditionalneedsblogfather.com/
Mark Arnold (The Additional Needs Blogfather) is the Additional Needs Ministry Director for Urban Saints’ pioneering additional needs ministry, including training, consultancy, conference speaking and resourcing: http://www.urbansaints.org/additionalneeds
He is co-founder of the ‘Additional Needs Alliance’, a learning and support community of almost three thousand organizations, children’s & youth workers, parents and more who are passionate about inclusion and belonging in the UK and beyond: http://www.additionalneedsalliance.org.uk
Mark is founder of ‘The Dads Fire Circle’, a place for dads and dad figures for children, young people and young adults with additional needs to gather, share and support each other: http://www.thedadsfirecircle.com
He is a ‘Churches for All’ partner, a member of the ‘Council for Disabled Children’ the ‘European Disability Network’ and the ‘Living Fully Network’, serves on the executive for ‘Children Matter!’ and writes a monthly additional needs column for Premier Youth and Children’s Work (YCW) magazine as well as being a writer/contributor for Firefly Community, Key Ministry, The Mighty, Different Dream, DAD.info, and BRF Parenting For Faith.
Mark is the author of ‘How To Include Autistic Children And Young People In Church’ creating a place of belonging and spiritual development for all: https://grovebooks.co.uk/products/y-65-how-to-include-autistic-children-and-young-people-in-church-creating-a-place-of-belonging-and-spiritual-development-for-all
Mark is dad to James, a 19-year-old Autistic young man, who journeys with Epilepsy, Learning Difficulties and Anxiety.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Mom's Series:
"Gathering Dandelions" with Melissa Maimone
Melissa Maimone is a speaker and the author of “The Radiant Midnight:” and “Gathering Dandelions:”. She is also the mom of an adult daughter with special needs.
Melissa teaches women that an authentic life in Christ can be messy and magnificent at the exact same time. With her unique blend of theology, humor, and insight, Melissa provides down-to- earth lessons, practical applications, and life-changing perspectives to real women who are living real lives in the midst of real problems. And We are so excited to have her return to speak at this year’s Mom’s Day Out Retreat.
Whether you are a mom of a child with special needs, a friend or family member, or a professional working with special needs, You’re really going to enjoy this insightful episode. Lets get started.
Find more information about Melissa
melissamaimone.com
See Melissas books
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Mom's Series:
"Unexpected Blessings" with Sandra Peoples
Hey guys, we’re so excited your joining us today. It’s the start of our Mom series and Sandra Peoples is back and sharing with us mom to mom in this episode. Sandra is the author of Unexpected Blessings and the special needs ministry consultant for the Southern Baptist of Texas Convention. Lets listen in as she shares her story.
Sandra Peoples (PhD student at SWBTS) is a special-needs mom and sibling. She and her family live outside of Houston, TX where she serves her church as the Inclusion Coordinator for Special Needs Families. She is also the Special Needs Ministry Consultant for the Southern Baptist of Texas Convention
. She’s the author of
Unexpected Blessings: The Joys and Possibilities of Life in a Special-Needs Family. You can connect with her at
sandrapeoples.com. Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Medical Diagnosis Series
“Rising Above a Medical Diagnosis” with Becky Davidson
You are really going to enjoy listening to this episode. Becky Davidson is the Co-founder and President of Rising Above Ministries in Cookeville Tennesee. Becky is a mom of an adult son with special needs and is passionate about supporting and encouraging special-needs families, just like us. Along with her late husband Jeff Davidson, she co-authored “Common Man Extraordinary Call, Thriving as the Dad of a Child with Special Needs.” Their story is also featured in Tim Tebow’s new book, Mission Possible. Becky is a wealth of knowledge in the special needs community and an inspiration.
Becky Davidson
Rising Above Ministries
(931) 526-7473
risingaboveministries.org
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Medical Diagnosis Series
"Living with a Rare Medical Diagnosis" with Jolene Philo
We’re excited to share this next episode with you. We’re beginning our medical diagnosis series with awarding winning author and speaker Jolene Philo.
Jolene Philo grew up in a caregiving family and raised a son with medical special needs. As a teacher, she created an inclusive classroom for children with disabilities for 25 years. Her books for the special needs and disability community, including Does My Child Have PTSD? and Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities. She hosts the award-winning blog, www.DifferentDream.com. See Jane Run! and See Jane Sing!, the first two mysteries in her series featuring characters with disabilities, were published in June and September of 2022.
Special Needs website: www.DifferentDream.com
Fiction website: www.jolenephilo.com
Facebook special needs page: https://www.facebook.com/DifferentDream
Facebook fiction group: https://www.facebook.com/groups/2388180041395036
Instagram: @downthegravelrd
Twitter: @jolenephilo
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Family Series:
Parent Panel
Hey guys,
We are so excited to share this podcast episode with you! We are continuing on in our Family Series with a special parent panel interview from our recent Date Night event. Let me pause and say that if you missed this event be watching for more marriage resources coming soon.
Each of these couples are an amazing example of Marriage in the Midst of hard circumstances. Each has a child with a different diagnosis and each are in different stages of life, but all have been on a similar journey with special needs.
We hope you enjoy this episode.
Parent Panel:
Emmanuel and Andreina Carillo
Rob and Cheryl Jordan
Steve and Cheri Monis
Andy and Julia Feth
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Family Series:
”Marriage in the Midst” with Bill and Pam Farrel
Today we are continuing our Family Series with an exciting podcast episode. It’s the 2nd part of a 2 part episode featuring the hilarious and heartfelt Bill and Pam Farrel. The Farrels are international speakers, and authors of over 50 books including the best-selling “Men are like Waffles, Women are like Spaghetti”. They are relationship specialists seeking to help couples become “Love-Wise”- and we are so blessed to have them return to speak to us about Marriage in the Midst of hard circumstances. Lets get started.
Bill and Pam Farrel
Bill and Pam Farrel are international speakers, and authors of over 50 books including best-selling Men are like Waffles, Women are like Spaghetti. They are relationship specialists and seek to help people become “Love-Wise” Pam has experience as a Pastor’s wife and Women’s Ministry Director. Pam is a cheerleader, challenger and coach that believes that that "The one who gets wisdom loves life." (Proverbs 19:8) Her new creative Bible studies are Amazon bestsellers:
Discovering Hope in the Psalms ; Discovering Joy in Philippians and Discovering Jesus in the Old Testament.
When the Farrels are not traveling for speaking, you will find them on their live aboard boat or enjoying their 3 sons, 3 daughters in law and 5 grands
info@love-wise.comwww.Love-Wise.com
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Family Series:
”Marriage in the Midst” with Bill and Pam Farrel
Today we are kicking off our Family Series with an exciting podcast episode. It’s the 1st of a 2 part episode featuring the hilarious and heartfelt Bill and Pam Farrel. The Farrels are international speakers, and authors of over 50 books including the best-selling “Men are like Waffles, Women are like Spaghetti”. They are relationship specialists seeking to help couples become “Love-Wise”- and we are so blessed to have them on to speak to us about Marriage in the Midst of hard circumstances. Lets get started.
Bill and Pam Farrel
Bill and Pam Farrel are international speakers, and authors of over 50 books including best-selling Men are like Waffles, Women are like Spaghetti. They are relationship specialists and seek to help people become “Love-Wise” Pam has experience as a Pastor’s wife and Women’s Ministry Director. Pam is a cheerleader, challenger and coach that believes that that "The one who gets wisdom loves life." (Proverbs 19:8) Her new creative Bible studies are Amazon bestsellers:
Discovering Hope in the Psalms ; Discovering Joy in Philippians and Discovering Jesus in the Old Testament.
When the Farrels are not traveling for speaking, you will find them on their live aboard boat or enjoying their 3 sons, 3 daughters in law and 5 grands
info@love-wise.comwww.Love-Wise.com
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Welcome Back!
We’re so thankful that you’re listening to this podcast. As a family on the special needs journey we get it. This road can be incredibly hard and isolating at times. That’s why this podcast and our community was created. We want to create to a space where you can find connection and encouragement and HOPE. And we’re so happy you’ve joined us.
To start the New Year off we wanted to celebrate where we’ve been this podcast season by re playing some of the highlights from the fall. Then we will preview some of the podcasts coming up in the new year.
We’re so excited for this season and all it has to offer in the way of encouragement, connection, and hope for our families listening. So please take a second to follow us and you won’t miss an episode.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Website: https://hopeonthehardroad.orgInstagram:https://www.instagram.com/hopeonthehardroad/Facebook:https://www.facebook.com/hopeonthehardroad/
Facebook Group:https://www.facebook.com/groups/2621447987943459/?source_id=105530184205752Free Youtube Resource Library https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz
Special Needs Ministry Series:
"Special Needs Ministry in the Church" with Sandra Peoples
You’re not going to want to miss this episode. Continuing on with our series on Special Needs Ministry and the Church today we are talking with Sandra Peoples, author of “Unexpected Blessings” and Special Needs Ministry Consultant of the Southern Baptist of Texas Convention. As a pastor’s wife and both a sibling and a mom of someone with special needs, Sandra more than gets what it takes to start and maintain a thriving special needs ministry no matter the size of the church and more importantly just how much this follows after God’s own heart to minister to those with a disability.
Sandra Peoples (PhD student at SWBTS) is a special-needs mom and sibling. She and her family live outside of Houston, TX where she serves her church as the Inclusion Coordinator for Special Needs Families. She is also the Special Needs Ministry Consultant for the Southern Baptist of Texas Convention
. She’s the author of
Unexpected Blessings: The Joys and Possibilities of Life in a Special-Needs Family. You can connect with her at
sandrapeoples.com. Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Special Needs Ministry Series:
“The Additional Needs Blogfather” with Mark Arnold
You guys are going to love today’s episode from our Special Needs Ministry Series. Mark Arnold brings a wealth of knowledge and experience working with churches all over the UK. He has a passion to see churches worldwide embrace the special needs community and develop programs to meet their needs. Let’s get started.
Episode Links and Resources:
Mark Arnold is the author of The Additional Needs Blogfather blog. You can follow his blog and reach out to him on his website at https://theadditionalneedsblogfather.com/
Mark Arnold (The Additional Needs Blogfather) is the Additional Needs Ministry Director for Urban Saints’ pioneering additional needs ministry, including training, consultancy, conference speaking and resourcing: http://www.urbansaints.org/additionalneeds
He is co-founder of the ‘Additional Needs Alliance’, a learning and support community of almost three thousand organizations, children’s & youth workers, parents and more who are passionate about inclusion and belonging in the UK and beyond: http://www.additionalneedsalliance.org.uk
Mark is founder of ‘The Dads Fire Circle’, a place for dads and dad figures for children, young people and young adults with additional needs to gather, share and support each other: http://www.thedadsfirecircle.com
He is a ‘Churches for All’ partner, a member of the ‘Council for Disabled Children’ the ‘European Disability Network’ and the ‘Living Fully Network’, serves on the executive for ‘Children Matter!’ and writes a monthly additional needs column for Premier Youth and Children’s Work (YCW) magazine as well as being a writer/contributor for Firefly Community, Key Ministry, The Mighty, Different Dream, DAD.info, and BRF Parenting For Faith.
Mark is the author of ‘How To Include Autistic Children And Young People In Church’ creating a place of belonging and spiritual development for all: https://grovebooks.co.uk/products/y-65-how-to-include-autistic-children-and-young-people-in-church-creating-a-place-of-belonging-and-spiritual-development-for-all
Mark is dad to James, a 19-year-old Autistic young man, who journeys with Epilepsy, Learning Difficulties and Anxiety.
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Future Planning Series
"CalABLE” with Kasey Superstar
Kasey Superstar is back and we’re talking about CalABLE Accounts, a financial resource that families need to know about as they plan for their child’s needs. We are so glad that you’ve joined us and once again you’ll want to take notes for this informative episode.
Kasey has a passion to help support families like ours and it shows. As both parent and professional she often says that “She didn’t find the Special Needs Community – It found her! You won’t want to miss a minute of this informative episode. So grab your favorite cup of coffee and a notebook.
Kasey Superstar always states she didn’t find the Special Needs Community, IT FOUND HER! After going to school, with the hopes of becoming an Under Cover Agent she began to realize around 12 months old that her baby had some unique traits. Through the support of a Pre-School Professional (SHOUT OUT: her Best Friends Mom - Kara Casares) she was given the phone number to California Early Start! Fast forward one year to diagnosis day and her life stopped for a second while the fire within her got lit. Every single family suffering, struggling, in doubt, lost or feeling broken is fuel to keep that fire roaring! The progress in each life is her personal reward and helps renew HOPE FOR A BRIGHTER TOMORROW. Fast Forward again: Superstar Consulting Supports Families across different areas of the Special Needs Journey. The Self-Determination Program is the leading portion of what we do! Getting down to basics, SDP is the freedom of choice for services and allows participants within the Regional Center System to be given the ability to individualize the services that will give them better outcomes. Together we build futures with greater progress and develop functional skills in your loved ones lives.Thank you to each client that has allowed Kasey Superstar to have the best job in the whole world. Each of you are jewels in her crown.
If you or your loved one is in need of Support, please reach out!
Kasey SuperStar Independent Facilitator
Self-Determination Program CONSULTASUPERSTAR@GMAIL.COM Text: 760.586.5819
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Future Planning Series
"Self Determination” with Kasey Superstar
On today’s episode we’re talking about “Self Determination” a very popular subject right now in disability and special needs circles. You are going to love our guest and presenter Kasey Superstar. Kasey has a passion to help support families like ours and it shows. As both parent and professional she often says that “She didn’t find the Special Needs Community – It found her! You won’t want to miss a minute of this informative episode. So grab your favorite cup of coffee and a notebook.
Kasey Superstar always states she didn’t find the Special Needs Community, IT FOUND HER! After going to school, with the hopes of becoming an Under Cover Agent she began to realize around 12 months old that her baby had some unique traits. Through the support of a Pre-School Professional (SHOUT OUT: her Best Friends Mom - Kara Casares) she was given the phone number to California Early Start! Fast forward one year to diagnosis day and her life stopped for a second while the fire within her got lit. Every single family suffering, struggling, in doubt, lost or feeling broken is fuel to keep that fire roaring! The progress in each life is her personal reward and helps renew HOPE FOR A BRIGHTER TOMORROW. Fast Forward again: Superstar Consulting Supports Families across different areas of the Special Needs Journey. The Self-Determination Program is the leading portion of what we do! Getting down to basics, SDP is the freedom of choice for services and allows participants within the Regional Center System to be given the ability to individualize the services that will give them better outcomes. Together we build futures with greater progress and develop functional skills in your loved ones lives.Thank you to each client that has allowed Kasey Superstar to have the best job in the whole world. Each of you are jewels in her crown.
If you or your loved one is in need of Support, please reach out!
Kasey SuperStar Independent Facilitator
Self-Determination Program CONSULTASUPERSTAR@GMAIL.COM Text: 760.586.5819
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Future Planning Series
"Conservatorship" with Elizabeth McCoy
Thanks for joining us for the next episode in our Future Planning Series. Today we’re covering a tough topic, but one that we knew our listeners would want to hear about. Conservatorship is a complicated topic, so we are incredibly thankful to once again have attorney Elizabeth McCoy here to help us understand it better.
Elizabeth McCoy has been a licensed Attorney in California since 1997, practicing primarily in the area of special needs trusts, conservatorship, and estate planning for families who have a child with Autism or other special needs. Mrs. McCoy earned her Juris Doctor from Washington University School of Law. During law school, she was the Jan Adam Zuckerman scholarship recipient, and a staff member for the Washington University Journal of Urban and Contemporary Law. Since 1988, Mrs. McCoy has also been a licensed Landscape Architect. Prior to practicing law, she produced landscape architectural plans for Disney theme parks and 5-star Ritz Carlton and Marriott hotels throughout the world.
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Parent Support Series
"Special Needs Trusts" with Elizabeth McCoy
We’re beginning our Future Planning Series today with an episode about Special Needs Trusts. We are so grateful to have attorney Elizabeth McCoy with us to explain this valuable resource to our listeners.
Elizabeth McCoy has been a licensed Attorney in California since 1997, practicing primarily in the area of special needs trusts, conservatorship, and estate planning for families who have a child with Autism or other special needs. Mrs. McCoy earned her Juris Doctor from Washington University School of Law. During law school, she was the Jan Adam Zuckerman scholarship recipient, and a staff member for the Washington University Journal of Urban and Contemporary Law. Since 1988, Mrs. McCoy has also been a licensed Landscape Architect. Prior to practicing law, she produced landscape architectural plans for Disney theme parks and 5-star Ritz Carlton and Marriott hotels throughout the world.
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Special Needs Supports Series
"IHSS & Medi-Cal Supports” with Wendy Dumlao
You’re going to learn allot on today’s podcast. Attorney Wendy Dumlao, is back for another episode in our Special Needs Support Series. This time she is sharing great insights with us about Medi-Cal and In Home Supportive Services or IHSS.
Wendy Dumlao has been an attorney for almost 14 years practicing disability law. She worked for 5 years as the Clients Rights Advocate in San Diego, before opening her own practice. She specializes in advocacy related to Regional Center services, Social Security, Medi-Cal, IHSS and Special Education. So she has a lot of great insights to share.
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Special Needs Supports Series
"Regional Center Supports” with Wendy Dumlao
Today we’re talking with attorney Wendy, Dumlao. Wendy is an incredible advocate for families of children with special needs and those with disabilities. You are going to love her caring, fun, and engaging way of presenting the insights that she brings to this first episode in our Special Needs Support Series.
Wendy Dumlao has been an attorney for almost 14 years practicing disability law. She worked for 5 years as the Clients Rights Advocate in San Diego, before opening her own practice. She specializes in advocacy related to Regional Center services, Social Security, Medi-Cal, IHSS and Special Education. So she has a lot of great insights to share.
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Welcome Back!
We are so excited to be back for another season of podcast episodes filled with incredible insights from experts and heart felt stories from families like ours. This season we have experts sharing on topics such as Special Needs Ministries for churches, supports for families like The Regional Center, Medi Cal, IHSS, and future planning resources like limited conservatorship, SSI and Cal Able accounts, and the highly anticipated “self determination program”.
Here’s a few clips from our fall episodes coming up:
We’re so excited for this season and all it has to offer in the way of encouragement, connection, and hope for our families listening. So please take a second to follow us and you won’t miss an episode.
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We had such an amazing time on the podcast this year and we’re so grateful to all of our guests who came on and to all of you for joining us and listening in.
We thought a great way to end the season would be to share the highlights with you.
Thanks for listening today. We can’t wait for next season and all the new episodes to come. Don’t forget to follow and share the podcast and if you like this podcast please take a moment to leave us a rating or review this really helps to highlight the podcast so that others can find us as well.
Have a great summer and we’ll meet you back here next season
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Dad Series:
"Unexpected Journey" with Joe Ferrini
With Father’s Day coming up, on this episode we’re focusing on Dads. I was honored to sit down and talk with Dr Joe Ferrini , national speaker and co author of “Unexpected Journey” and “Love All -Ways”. Dr Joe Ferrini shares with us his experience, wisdom, and empathy as a dad of a 40 year old son with special needs.
Episode Links and Resources:
Dr. Joe Ferrini
www.joeferrini.com
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Mom Series:
"Unexpected Journey" with Cindy Ferrini
As we are approaching Mother’ Day and our Mom’s Day Out event next month we are highlighting moms this month. We’re excited to have Cindi Ferrini back for another interview about the journey that she has been on as a special needs mom. Cindi is a national speaker, blogger, regular radio contributor who has been heard on both Focus on the Family and Family Life, and the author of “Unexpected Journey: When Special Needs Change Our Course” and “Love All-Ways: Embracing Marriage Together on the Special Needs Journey”. She’s been married for more than 40 years and has allot of wonderful insights and wisdom to share with other moms who find themselves on the journey of parenting a child with special needs, while balancing other relationships, work, and self care in the midst.
Episode Links and Resources:
Cindi Ferrini
Instagram: @cindiferrini www.cindiferrini.com www.facebook.com/cindi.ferrini www.facebook.com/UnexpectedJourney/ www.facebook.com/MyMarriageMatters/
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Mom Series:
”Moms Panel” with Sandi Anderson, Cheri Monis and Terri Stashak
We begin our series for moms with a discussion with 3 amazing ladies who are all moms of adult children diagnosed with various special needs. Cheri Monis, Sandi Anderson, and Terri Stashak are each such incredible women with allot of insight and wisdom to share and I just know you’re going to admire these ladies as much as I do. So lets get started..
Sandi Anderson and her husband of 36 years, Jeff, have 2 adult sons on the autism spectrum. Sandi has advocated tirelessly for 33 years to help their sons reach their full potential and live the life God created especially for them. Sandi created “Arts In Motion,” an adult day program that teaches life, social, academic and business skills to her son, Joel. Together they have established a micro enterprise supporting Joel’s painting, animation and speaking schedule: Joel’s Vision Arts. As an international public speaker, she has served with Miracle139 International on two trips to Peru; with Joni & Friends International to Nanjing China, and with SEPAC to Beijing China. It is her greatest joy to share the hope of Jesus Christ to other families here in the USA and all over the world.
Cheri Monis lives locally and is the mom of two adults. Her daughter, Stephanie is 32 years old, and her son Mike is 29. Stephanie lives her life with both an Intellectual disability and is on the Autism Spectrum. She is currently splitting her time living at her condo with live-in support staff and at her parent’s home. Stephanie is taking her second American Sign Language class virtually, at Palomar College as a way of growing her skills during the current pandemic
Terri Stashak was blessed with twin daughters as an older mom, one typical and one with Down Syndrome. With her “Special” needs, Katie brought a joy into their family and changed their lives forever. Terri found her new passion and became involved in the Special Needs community and has been active in the North Coastal Consortium for Special Education as a Parent Representative on the Community Advisory Councill since 2009. She has also helped to coach and/or manage Special Olympics basketball, swimming and soccer, and Top Soccer over the years.
Medical Diagnosis Series:
"A Family's Journey with Batten Disease Part 1" with Danny and Bekah Bowman
Danny and Bekah have been married for 16 years and are parents of two incredible boys, Titus and Ely. Danny is the Head X- Country and Track and Field Coach for Northwest Nazarene University, where he invests in the student-athletes in a holistic way that prepares them to launch into the world. He enjoys painting and gardening in his free time.
Bekah is the Executive Director for a local CASA program, author of Can't Steal My Joy, and rare disease advocate. She loves to share the hope and goodness of Jesus in really dark, difficult places. She enjoys working out, reading and coffee dates with girlfriends in her free time.
Episode Links and Resources:
Bekah Bowman
www.bekahbowman.com
Facebook: @Team4TitusEly (Team 4 Titus & Ely) Instagram: @bekahsbowman
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Medical Diagnosis Series:
"A Family's Journey with Batten Disease Part 1" with Danny and Bekah Bowman
Danny and Bekah have been married for 16 years and are parents of two incredible boys, Titus and Ely. Danny is the Head X- Country and Track and Field Coach for Northwest Nazarene University, where he invests in the student-athletes in a holistic way that prepares them to launch into the world. He enjoys painting and gardening in his free time.
Bekah is the Executive Director for a local CASA program, author of Can't Steal My Joy, and rare disease advocate. She loves to share the hope and goodness of Jesus in really dark, difficult places. She enjoys working out, reading and coffee dates with girlfriends in her free time.
Episode Links and Resources:
Bekah Bowman
www.bekahbowman.com
Facebook: @Team4TitusEly (Team 4 Titus & Ely) Instagram: @bekahsbowman
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Medical Diagnosis Series:
”A Family’s Journey with Cancer” with Sherri Rempe
Sherri Rempe is a Mother of 3 boys, Owen, Taylor, and Logan. She has a Master’s degree in clinical social work and a Special Education Teaching credential. She currently teaches High school special education specializing in students with Autism and Emotional Disturbance. At age 7, her son, Taylor, was diagnosed with Leukemia. He went through 3 years of chemotherapy. It was a difficult time for her family. She relied on her relationship with God and the support of a group of friends at church to help her through this difficult time.
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Family Series:
“Special Needs Siblings” with Joey and Stephanie Alarcon
Continuing on with our Family Series in this episode we focus on Siblings. You won’t want to miss this heart felt and informative episode. Joey Alarcon is the youngest brother to Chris, who has Down Syndrome. He and and his wife Stephanie have been married for 8 years, have a two year old son, and a little girl on the way in August. Both Stephanie and Joey are Special Education teachers with 4 combined credentials and a Master’s degree in Education. Joey teaches Adapted PE in San Diego Unified and Stephanie is taking a break from teaching Special Education to focus on raising their little ones.
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Family Series:
“Marriage and Parenting Part 2” with Dr Joe and Cindi Ferrini
We’re beginning the new year with our Family series starting with an insightful and heartfelt conversation about Marriage and Parenting with Dr Joe and Cindi Ferrini. The Ferrinis are national speakers, bloggers, and regular radio contributors having been heard on both Focus on the Family and Family Life. They are the authors of “Unexpected Journey: When Special Needs Change Our Course” and “Love All-Ways: Embracing Marriage Together on the Special Needs Journey”. They have been married for more than 42 years and have allot of wonderful wisdom to share with other couples who find themselves on the journey of parenting a child with special needs, while maintaining the harmonious dance of a thriving marriage in the midst.
Episode Links and Resources:
Dr. Joe Ferrini
www.joeferrini.com
Cindi Ferrini
Instagram: @cindiferrini www.cindiferrini.com www.facebook.com/cindi.ferrini www.facebook.com/UnexpectedJourney/ www.facebook.com/MyMarriageMatters/
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Family Series:
“Marriage and Parenting Part 1” with Dr Joe and Cindi Ferrini
We’re beginning the new year with our Family series starting with an insightful and heartfelt conversation about Marriage and Parenting with Dr Joe and Cindi Ferrini. The Ferrinis are national speakers, bloggers, and regular radio contributors having been heard on both Focus on the Family and Family Life. They are the authors of “Unexpected Journey: When Special Needs Change Our Course” and “Love All-Ways: Embracing Marriage Together on the Special Needs Journey”. They have been married for more than 42 years and have allot of wonderful wisdom to share with other couples who find themselves on the journey of parenting a child with special needs, while maintaining the harmonious dance of a thriving marriage in the midst.
Episode Links and Resources:
Dr. Joe Ferrini
www.joeferrini.com
Cindi Ferrini
Instagram: @cindiferrini www.cindiferrini.com www.facebook.com/cindi.ferrini www.facebook.com/UnexpectedJourney/ www.facebook.com/MyMarriageMatters/
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
"2022 Preview" with Eric and Christen Freund
Eric and Christen Preview the upcoming Podcasts for the 2022 Year. Join us to listen to what is coming to the Hope on the Hard Road Podcast.
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"2021 Year-in-Review" with Eric and Christen Freund
This is going to be a fun episode. Eric and Christen celebrate Christmas by sharing a few holiday helps and recap this years 2021 podcast episodes. Whether your listening while working out, on the road, or sitting at the table with a cup of coffee or your favorite tea, we hope you take a moment to listen and enjoy.
Merry Christmas from our family to yours! Eric and Christen Freund
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Therapy Series:
Applied Behavior Analysis with Megan Sprague
Hey guys today we are sharing another great episode in our Therapy Series. Megan Sprague is the Clinical Director of ABA at Hope Comprehensive Center for Development and a Board Certified Behavior Analyst, who even at a young age was passionate about helping those around her with special needs. On this episode, Megan shares some valuable insights into behaviors and she gives some timely advice as we head into the holiday season, a time when our kids find themselves off schedule and often disregulated.
Episode Links and Resources:
hopeccd.com
Instagram https://www.instagram.com/hopeccd/
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
More about Megan:
As long as Megan Sprague can remember she has been focused on inclusion and teaching. This passion led her to get her Bachelor’s degree at the University of Arizona in Family Studies and Human Development with a minor in counseling in Special Education. She then went on to fall in love with autism and behavior analysis and attended the University of North Texas to obtain her Master’s degree in Behavior Analysis. Megan has been a BCBA since 2009 and is proud to have influenced growth in many children, families, and staff in the process. Megan’s passion has grown to include building a program that keeps the heart in all services, allows parents and staff to feel supported and part of each client’s progress. She is proud to influence the growth of others towards their goals of becoming BCBAs and further helping the clients we serve. Megan is extremely proud of the team and program being built that provides top quality behavior analytic services, trains clinical staff with client led priorities and out of the box thinking, and is expanding to serve so many in Southern California. When not geeking out over her standard celeration charts, Megan is spending time with her husband and two small children in Temecula, crocheting, and is rarely found without a cup of coffee to keep it all going. She looks forward to helping anyone navigate their services or learn more about ABA.
Therapy Series:
"Occupational Therapy" with Jan Dalby
Thanks for joining us for today’s podcast, another episode in our current Therapy series. We first met Jan Dalby at our daughter’s therapy clinic where Jan is both Occupational Therapist and co owner. She also founded a nonprofit called Fearfully and Wonderfully Made which hosts special needs sports camps, something we’ll be talking about. Jan has a vast amount of knowledge and experience both as a parent and working as a pediatric Occupational Therapist and TEACCH Certified Practitioner
Episode Links and Resources:
President, K.I.D.S. Therapy Associates, Inc
jdalby@kidstherapyassociates.com
Fearfully and Wonderfully Made
https://fwmus.org
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Therapy Series:
“Counseling for Special Needs Families” with Cheryl Jordan
Today’s episode from our Therapy Series is filled with lots of practical insights and valuable information for families considering counseling. Cheryl Jordan has been married to her husband Rob for 29 years and they have two boys in their late teens/early 20’s. She began her career as a physical therapist and after entering the world of counseling as a parent, she decided to make a career change to become a Clinical Mental Health Counselor. She has worked with children, adults and couples as a bereavement counseling and as a mental health counselor for a day treatment center for teens with behavior and executive functioning challenges.
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Ministry Series:
“Special Needs Ministry” with Janice Chan
You’re going to love today’s episode about Special Needs Ministry. Janice Chan is a Board Certified Behavior Analyst and former moderate/severe special education teacher. She is a part-time lecturer in the Department of Special Education at San Diego State University, teaching and supervising aspiring Special Education teachers. She also works with several research teams, focusing on disability inclusion and the development of autism interventions for use in schools. In the community, Janice serves as the Vice President of Banding Together, a San Diego-based music therapy nonprofit, and as the Disability Ministry Deacon at Reservoir Church in Escondido.
Episode Links and Resources
Buddy Break Coordinator
Special Needs Ministry Deacon
buddybreak@reservoir.church
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Ministry Series:
“Miracle 139 International” with Linda Martin
You guys are gonna love today’s episode from our Ministry Series. Linda Martin is a music therapist and the President and Core Team Lead for Miracle 139 International which serves 36 countries. She has an amazing heart for special needs ministry and an amazing story that we know you’ll want to hear.
Episode Links and Resources:
Linda Martin, MME, MT-BC Miracle 139 International
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Special Education Series:
“Rights and Recommendations in the IEP Process” with Wendy Dumlao
Wendy Dumlao has been an attorney for almost 14 years practicing disability law. She worked for 5 years as the Clients Rights Advocate in San Diego, before opening her own practice. She specializes in advocacy related to Regional Center services, Social Security, Medi-Cal, IHSS and special education. So she has a lot of great insights to share.
Episode Links and Resources:
Connect with Us:
If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.
Special Education Series:
“Equipping and Empowering Parent Advocacy” with Dr. Sandy Robinson
We’re starting this year off with a podcast series on Special Education. You’re really going to enjoy this informative and heartfelt interview with Dr Sandy Robinson, Master Trainer and International Training Coordinator of The Champions Club. Dr Sandy shares with us some great insights for parents looking to advocate for their child in the IEP process as well as her family’s personal journey with special needs and mental health.
Episode Links and Resources:
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More about Dr. Robinson:
Dr. Sandra Robinson, Ph.D. is the Master Trainer and the International Training Coordinator for the Champions Club Organization. For over 34 years she served as an educator, administrator, and school psychologist in the public school system. She has been the Director of Special Education in two different districts. She has taught teacher preparation courses at California State University, Riverside. Dr. Sandy has trained educators, administrators, and parents in the areas of positive behavior techniques (including crisis intervention), teaching and learning strategies, resilience training in the face of trauma and other mental health challenges, and Special Education law, policies, and procedures.
She brings her extensive experience in the field of special education to faith communities. Dr. Sandy is an inclusion specialist and wrote the first full-scale curriculum for Champion Club with Pastor Craig Johnson in 2014. She also co-authored the Champions Curriculum Home Edition in 2016. Incredibly Dr. Sandy, and a team of volunteers she trained, opened the first Champions Club on African soil.
She has been married to Rob Robinson, the love of her life, for over 30 years and they have two amazing daughters and one grandchild, Abigail Joppa, with one on the way.
In this first podcast episode, Eric and Christen Freund, co-founders of the special needs nonprofit Hope on the Hard Road, Inc., share an interview called “Our Story”. In it the couple talks about their early years of marriage and parenting, their family’s journey with special needs, and their nonprofit. It’s an inspiring story of how they found hope in the midst of the hard and what lead them to start a nonprofit for families with children with special needs.
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If you enjoy this podcast please share us with others and be sure to follow us so won’t miss an episode. We’d love to hear from you so please leave us a comment or rating and connect with us on social media or on our website.