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063. This is my last podcast for a season or two as I focus more on my mom's needs and care. Of course, I wanted my last episode to feature my mentor and friend Carolyn. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner. Check out her new podcast.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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062. Jared Stewart (Executive Director) and Sam Ferguson (Patient Care Representative) from Hospice Home Care in Little Rock, Arkansas explain what hospice and palliative care is and when you should reach out. For more information call 501-558-4141.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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061. On this segment, Carolyn and I talk about my mother entering last stage, when to call for hospice assistance and the importance of respite time for caregivers. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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060. Sandra Rogers is a registered nurse, retired from being gainfully employed. Her nursing career included time in long term care for veterans, home health, geriatric clinical care and hospice - both inpatient and in home. Sandra’s volunteer time has included tutoring reading to elementary students with AR Kids Read, Shepherd's Hope free clinic, facilitating a caregiver support group with Alzheimer's Arkansas. And recently became a member of the Presbyterian Auxiliary Board. She lost her mother to Alzheimer's dementia and has cared for many patients with some type of dementia.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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059. On this segment, Carolyn and I talk about my second year as my mother's caregiver. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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057. David Cook is the Public Policy Director at the Alzheimer's Association. In this role, he oversees the development and implementation of the Association’s state and federal policy objectives. He also coordinates efforts of the Alzheimer’s Impact Movement, the Association’s volunteer advocacy program. Creating opportunities for those who have been touched by dementia to share their experiences with their elected officials. His grandmother died of dementia and currently his father is living with the disease. Reach out to David at dmcook@alz.org.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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056. On this segment, Carolyn and I talk about how important it is to have a holiday plan. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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055. Steve Roberts took on the role of being his mother's primary caregiver giver diagnosed with Alzheimer's and had strong family support. But the toughest part of the journey was finding, relying and trusting an institution to help with her care, because some of his experiences were a "nightmare."
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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054. On this segment, Carolyn and I talk about how important it is to take care of your mental health and lowering expectations. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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053. Jackie Parker, Author of Where is Wilma?, writes... "after living with my mother-in-law who had Alzheimer's, I discovered that I needed to understand the emotions associated with her actions. Underneath her certain behaviors lied the various reasons our loved one may be acting out." Jackie's 48 page book is a concise tender reflection of her journey with Wilma. Each detailed experience is concluded with a thoughtful life lesson.
On episode #044 - I read from her book Where Is Wilma?
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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052. On this segment, Carolyn and I talk about trying to describe yourself as a caregiver. It's complicated. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
View Details
051. David Cook is the Public Policy Director at the Alzheimer's Association. In this role, he oversees the development and implementation of the Association’s state and federal policy objectives. He also coordinates efforts of the Alzheimer’s Impact Movement, the Association’s volunteer advocacy program. Creating opportunities for those who have been touched by dementia to share their experiences with their elected officials. His grandmother died of dementia and currently his father is living with the disease. Reach out to David at dmcook@alz.org.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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050. On this segment, Carolyn and I talk about a dangerous tree that I was angry about revealing something more about my caregiving anxiety. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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049. On this episode Carolyn Berry of Alzheimer's Arkansas sits down to talk with friend and former co-worker Gigi Gabriel. Gigi served as the Education and Outreach Manager at Alzheimer’s Arkansas for 2 years. Her caregiving journey began when her mother was diagnosed with Younger Onset Alzheimer’s at 55 years old. Gigi was a Pastry Chef, under 30 with small children at home and had to stop everything to be her mother''s caregiver. In March of 2023 her mother passed away after 13 years living with the disease. It has only been 3 months since her death, but Gigi wanted to sit down and talk about how she is processing the loss.
Listen to her first podcast March 1, 2022, episode #024.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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048. Checking in. I was not able to do a podcast in May due to the work that was still going on to rebuild and fix after March 31st tornado. I used May to focus on stuff that needed to be done around the house I'd put off for years. My hope is to be back to a normal podcast schedule this month, so I thought I would start by giving you and update, but go into more detail about the day of tornado and the days that followed.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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047. On this segment, Carolyn and I talk about how the tornado that damaged my home created new routines and opened up a whole new understanding of how the disease works in a crisis. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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045. On this segment, Carolyn was more interested in asking how I was doing. And I complied, because an advocate means being vulnerable if you want to comfort and encourage others. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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044. My attempt at presenting an audio book of sorts by reading my friends book for this podcast. It was harder than I thought, so thankfully the chapters were petite, haha. Her written thoughts are so tender and she has taught me so much, especially about having a sense of humor through it all.
Jackie Parker, Author of Where is Wilma?, writes... "after living with my mother-in-law who had Alzheimer's, I discovered that I needed to understand the emotions associated with her actions. Underneath her certain behaviors lied the various reasons our loved one may be acting out." Jackie's 48 page book is a concise tender reflection of her journey with Wilma. Each detailed experience is concluded with a thoughtful life lesson.
Jackie was born in South Bend, Indiana. She has been married for 39 yrs, has 9 children and 17 grandchildren while working as a physical therapy tech for over 20 yrs. Living her faith, she has shared her God-given gifts both as choir and vocalist...in retirement Jackie enjoys gardening and "swinging of porch."
You can reach out to Jackie at lotsoftimeoff@gmail.com
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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043. David Cook is the Public Policy Director at the Alzheimer's Association. In this role, he oversees the development and implementation of the Association’s state and federal policy objectives. He also coordinates efforts of the Alzheimer’s Impact Movement, the Association’s volunteer advocacy program. Creating opportunities for those who have been touched by dementia to share their experiences with their elected officials. His grandmother died of dementia and currently his father is living with the disease. Reach out to David at dmcook@alz.org.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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42. Carolyn gives us a picture of what is actually happening to the brain and how we can respond. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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41. Jeri Foster has been a bedside nurse for over 17 years and is the primary caregiver for her mother living with Alzheimer's. She's always been an outgoing outspoken person, so serving as a busy advocate to help others navigate this disease comes naturally. Her focus is the importance of consistency and keeping a favorite hobby alive.
Jeri's upcoming fundraiser is April 29th - Purple Reign.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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040. Routine is the gateway to a more peaceful comfortable loved one. Carolyn Berry currently serves as the Director of Education at Alzheimer’s Arkansas. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses, and is a Certified Dementia Practitioner.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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39. Author and friend Jackie Parker and I look back at my first year as mom's full time caregiver. Jackie, Author of Where is Wilma?, writes... "after living with my mother-in-law who had Alzheimer's, I discovered that I needed to understand the emotions associated with her actions. Underneath her certain behaviors lied the various reasons our loved one may be acting out." Jackie's 48 page book is a concise tender reflection of her journey with Wilma. Each detailed experience is concluded with a thoughtful life lesson.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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38. Planning ahead for holiday gatherings is crucial for loved ones living with dementia. My guest is Carolyn Berry. She currently serves as the Education Director at Alzheimer’s Arkansas. Carolyn’s knowledge, vision and passion has allowed the organization to expand the reach to underserved communities throughout the state of Arkansas and help create policies for new funding for respite care. She received her Certified Dementia Practitioner in 2018. Carolyn serves on the state’ s Alzheimer’s and Dementia Advisory Council creating laws and policies to help Arkansans that are affected with various forms of Dementia.
Alzheimer's Arkansas
Hours: Monday – Friday 8:30am – 4:30pm
Phone: 501-224-0021
For immediate caregiver assistance after hours, call our Caregiver Line at 800-689-6090.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Alzheimer's Arkansas
Theba's YouTube Channel
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037. A special Thanksgiving message from the mom and I. We are indeed thankful for much, but grateful beyond measure for our Lord and Savior, Jesus Christ. Like many, we have had a life with some trauma, disappointment and loss, and know that there could be more ahead before we go home to be with our Heavenly Father. Nonetheless, there have been a great deal more of God's faithful provisions that have to be recognized and professed.
tlolley@sbcglobal.net
Youtube
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Theba's YouTube Channel
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036. When both my parents were diagnosed with Alzheimer's - in the same year and living separately I might add - I needed all the help I could get. The first person I reached out to was my dear friend, Anne Jansen. I had listened to her journey as she walked with both of her aging parents through some tough transitions. Her father passed from Parkinson's and mother passed away from Alzheimer's. This Thanksgiving I wanted to honor her for always being a light to me. And our extra side dish during the podcast, mom interacts with us at the end and is her delightful self.
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Theba's YouTube Channel
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035. Taco Williams Price is a graduate of Philander Smith College and has a Masters of Public Health Policy and Management from the University of Arkansas for Medical Sciences - College of Public Health. She is a public health expert who works to advance health equity and improve healthcare outcomes amongst vulnerable populations and diverse communities.
She currently serves as the Director of Programs for the Alzheimer's Association in which she oversees healthy brain & healthy aging initiatives. She manages strategy for developing community partnerships, increasing community awareness and education in addition to health systems engagement throughout Arkansas.
Taco Williams Price, MPH
Director of Programs| Alzheimer's Association
|Cell: 501-744-1506 | twprice@alz.org | alz.org/arkansas
24/7 Helpline: 1.800.272.3900 - Alzheimer's Association
Theba's YouTube Channel
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034. Sandra Rogers is a registered nurse, retired from being gainfully employed. Her nursing career included time in long term care for veterans, home health, geriatric clinical care and hospice - both inpatient and in home. Sandra’s volunteer time has included tutoring reading to elementary students with AR Kids Read, Shepherd's Hope free clinic, facilitating a caregiver support group with Alzheimer's Arkansas. And recently became a member of the Presbyterian Auxiliary Board. She lost her mother to Alzheimer's dementia and has cared for many patients with some type of dementia.
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033. Alzheimer's Association - Arkansas Chapter's podcast takeover with Executive Director Kirsten Dickins and Senior Public Policy Manager David Cook. Also enjoy mom making a special appearance to announce she was cold, hahaha.
24/7 HELPLINE 800.272.3900
http://www.alz.org/arkansas/
(800) 272-3900
arkansasinfo@alz.org
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032. In 2000, Craig O'Neill became, and still is, an anchor for THV11 in Little Rock, Arkansas. Craig graduated from Little Rock's Central High School in 1968 and from Arkansas State University in Jonesboro in 1972. His career as a deejay began in 1969. A self-confessed sports nut, he became the host of ESPN2 Outdoors in 1995. In 1997, Craig became the stadium announcer for all home football games for the Arkansas Razorbacks.
He specializes, currently, in children's literacy with 'Craig's Reading Roadtrip.’ Craig holds the distinction of being the only disc jockey to ever host a dance at the White House.
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31. Janet Keller and her crew help move family members or friends who have physical issues or Alzheimers into new spaces and the special needs they may have at that time. Her company is called JanetOnTheSpot or JOTS.
After a 30-year career in advertising and public relations, Janet started her company 4 1/2 years ago. Her goal is to help people make smooth transitions in their lives through getting organized, decluttering, downsizing, and in many cases moving to new locations.
She began JOTS after seeing the challenges her Dad faced when he became ill and had to move to out of his home into an assisted living facility. She made arrangements so that the move was “done in a day” with no need for her Dad to be involved.
**Janet and her crew members now help people around the United Stares take care of their family members who have special needs, such as Alzheimer patients, so that their move to a new space is seamless. They literally handle everything from A to Z because their clients’ needs are so unique and individual.
Janet K Keller
501- 517-4200*JanetOnTheSpot.comFacebook*
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30. Carolyn Berry currently serves as the Executive Director at Alzheimer’s Arkansas. Her passion to work with “seasoned” adults arose from her childhood and the senior adults from her community. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses.
Carolyn is a Certified Dementia Practitioner. She serves on the Telecommunication Access Program advisory board. Her formal education includes a Master of Education in Adult Learning and a Bachelor of Social Work from the University of Arkansas at Little Rock. She understands the beauty and challenges of aging.
Carolyn Berry
Executive Director
(501) 224-0021
info@alzark.org
alzark.org
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029. Brandie Bland is a Board-Certified Patient Advocate, Certified Brain Injury Specialist, and Certified Alzheimer’s Caregiver. She has over a decade of experience in patient advocacy, medical billing and coding, health insurance navigation, durable medical equipment utilization and is an integral part of VP Medical Consulting since 2005.
vp-medical.com
Phone: 501-778-3378
Fax: 501-315-3378
Cell: 501-317-1276
Facebook
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028. Brandie Bland is a Board-Certified Patient Advocate, Certified Brain Injury Specialist, and Certified Alzheimer’s Caregiver. She has over a decade of experience in patient advocacy, medical billing and coding, health insurance navigation, durable medical equipment utilization and is an integral part of VP Medical Consulting since 2005.
vp-medical.com
Phone: 501-778-3378
Fax: 501-315-3378
Cell: 501-317-1276
Facebook
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027. Christina Muñoz is the co-owner and co-founder of Munoz Pugh, a strategic marketing and communications firm. Before starting her own company, she was the Associate Vice President of Communications, Public Relations, and Marketing for the University of Central Arkansas. Prior to joining UCA, Christina spent 9 years as evening newscast anchor for KATV Channel 7 in Little Rock Arkansas. Christina and her husband Dave have two daughters.
Her passion for quality storytelling has brought her back to the news world as she has recently launched the Natural State Update, a digital news platform offering relevant information that impacts Arkansans by former journalists who are still passionate about informing the public.
Christina’s mom, Lelia, who is originally from Chile, still lives in Christina’s hometown of Yankton, SD as do her two sisters. Although only 72-years-old, Lelia has severe Alzheimer’s and no longer knows who Christina is. While the Alzheimer’s journey has been incredibly difficult, it is her faith and hope in Christ that gets her through.
Theba's website
Theba's Youtube
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026. Mike Cude is a licensed, Registered Respiratory Therapist and healthcare professional for 23 years, and a General Manager in the home care sector for 18 years. He is a Certified Senior Advisor® and Certified Dementia Practitioner who specializes in senior living options and transitional care. He has been advising and working directly with seniors since 1999. A native of Arkansas, Mike has worked around the state throughout the duration of his professional career and is familiar with the offerings and amenities of the majority of the senior living communities, facilities, and agencies within the service area.
Mike spent 20 years in the home care industry; specifically, the DME/Home Medical Equipment industry, as a Registered Respiratory Therapist. During this time, he noticed families who had reached this transitional phase with a lot of questions and not a lot of answers. Such as:
- What types of care options are available?
- What can I afford?
- Am I eligible for financial assistance?
- Which communities provide the levels of care that I require?
- Where do I even start?
Mike Cude - +1 501-650-3013
Senior Living Solutions
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025. Jackie Parker, Author of Where is Wilma?, writes... "after living with my mother-in-law who had Alzheimer's, I discovered that I needed to understand the emotions associated with her actions. Underneath her certain behaviors lied the various reasons our loved one may be acting out." Jackie's 48 page book is a concise tender reflection of her journey with Wilma. Each detailed experience is concluded with a thoughtful life lesson.
Jackie is 62 yrs old, born in South Bend, Indiana. She has been married for 39 yrs, has 9 children and 17 grandchildren while working as a physical therapy tech for over 20 yrs. Living her faith, she has shared her God-given gifts both as choir and vocalist...in retirement Jackie enjoys gardening and "swinging of porch."
You can reach out to Jackie at lotsoftimeoff@gmail.com
Order "Where is Wilma?"
Youtube caregiver testimony
Website Don't You Remember?
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024. Gigi Gabriel is the Education and Outreach Manager at Alzheimer’s Arkansas. Her caregiving journey began around 10 years ago, when she became a caregiver to her mother with Younger Onset Alzheimer’s. She was a Pastry Chef, under 30 with small children at home. Like many caregivers, she made the decision to leave her career to care for her mother. The past few years, she has been very active with the Alzheimer’s Association, Arkansas Chapter. She has served as Mission Chair for the walk and is currently the AIM Ambassador. She was also chosen to speak about her caregiving experience at their yearly forum in Washington, DC. Through AIM, she was able to testify in front of the Arkansas House and Senate about her experience as a caregiver. The bill passed, and now we have bill HB1434- it creates an Alzheimer’s and dementia advisory council which provides the implementation of a state Alzheimer’s plan.Her passion to help caregivers brought her to Alzheimer’s Arkansas, where she continues to educate and advocate for caregivers.
Gigi Gabriel, CDP
Alzheimer’s Arkansas
Education and Outreach Manager
201 Markham Center Dr.
Little Rock, Ar 72205
P: 501-224-0021 ext.202
Alzark.org
Theba's website
Theba's Youtube channel
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023. Kayla Bogle has worked in rehabilitation and hospice care, and has managed nursing homes and a senior care agency. She has received several awards for sales and quality achievements in hospice and long-term care.
Kayla believes in advocating for and educating seniors and their families on a variety of topics and issues that impact them. Reflecting on the need for an independent home care provider interested in quality over quantity, she chased her dream of building her own company that would make a significant difference in the lives of seniors, providing much-needed senior services in her local Arkansas community.
Kayla holds a Bachelor of Science degree from Arkansas State University and is licensed by the state of Arkansas as a Long-Term Care Administrator. She is a Certified Senior Adviser® and Certified Dementia Practitioner®.
Kayla Bogle, Executive Director
First Choice Senior Care
13616 Kanis Road
Little Rock, AR 72211
www.firstchoiceseniorcare.com
501-916-9307 office
501-628-1910 cell
501-916-9308 fax
PAC Videos from Teepa Snow
To learn more and reach Theba Lolley
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022. David Cook is the Public Policy Manager at the Alzheimer's Association. In this role, he oversees the development and implementation of the Association’s state and federal policy objectives. He also coordinates efforts of the Alzheimer’s Impact Movement, the Association’s volunteer advocacy program. Creating opportunities for those who have been touched by dementia to share their experiences with their elected officials. His grandmother died of dementia and currently his father is living with the disease.
I worked in marketing for a TV news station in Little Rock, Arkansas for 25 years. Towards the end of my career, I became a co-host and storyteller for the TV lifestyle show called The Vine. I also produced a weekly segment called Discover Arkansas. I’m currently a regular guest on The Vine where I continue to share caregiver tips and issues.
24/7 Hotline 1 (800) 272-3900
https://www.alz.org
Arkansas Chapter Facebook - https://www.facebook.com/EndAlzAR
Don't You Remember? Podcast Facebook Page - https://www.facebook.com/ThebaTime
Don't You Remember? Website - www.dontyouremember.online
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021. Townsend is a singer/songwriter, licensed speech therapist, and mental health advocate. She is no stranger to dementia, as she spent 9 years working as a speech therapist in the nursing home/rehab setting, educating and counseling families, staff, and patients about the diagnosis and what steps to take next. Townsend began her project, called “you’re not alone”, to help use her platform to not only share music but spread the message of love and acceptance. Her long term goal is to help people feel less alone!
Like and follow:
http://www.townsendtmusic.com/
https://www.patreon.com/TownsendTMusic
https://m.facebook.com/TownsendTMusic/?ref=bookmarks
https://www.instagram.com/townsendtmusic/
https://m.youtube.com/channel/UCFyBoiYh1ePwhtD5BM4ZP8Q
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020. My friend and Transformation Life Coach, Deana Williams, checks in to see how I'm approaching this new year retired from the work force and settling in as my mom's full time caregiver.
Deana is a mom and a longtime resident of Little Rock, AR. She has been a physical Therapist for more that 28 years. Deana has survived being an orphan/ward of the court, incest, rape, molestation and domestic violence. She believes one’s goal has to be about thriving and not just surviving. As a certified Transformation life coach, author, speaker, advocate for survivors of sexual abuse, licensed minister and a weekly contributor on a TV show called “The Vine." She believes you cannot heal what you are unwilling to reveal and that your pain fuels your passion and your passion fuels your purpose!
Deana Williams
About~Face Life Coaching, LLC
501-503-8776
E-mail: lifecoachdeanawilliams@gmail.com
Deana's book Get M.O.V.E.D: Mapping Out Victory Each Day. https://www.amazon.com/Get-M-V-D-Mapping/dp/0997283343/ref=sr_1_1?dchild=1&keywords=Deana+Williams+GET+MOVED&qid=1631402896&s=books&sr=1-1
Instagram - getmoved
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019. Tommy Mason, Jr. is a native of Conway, Arkansas. He began his musical pursuits at a young age and later received his Bachelor of Music Degree in Vocal Performance from the University of Central Arkansas.
He is the music director for UCA Gospel Choir and the True Holiness Saints Center church in Conway, AR. He has shared the stage with award-winning gospel artists and worked with the Arkansas Symphony Orchestra. Tommy is a recurring musical contributor for “The Vine” on KTHV11 where he presents a variety of music in the segments, affectionately known as “Tommy Tuesday”. A gifted musician and anointed vocalist, Tommy considers it a great privilege and honor to share his musical God-given talents with the world.
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018. Jay Lloyd lives in Little Rock, Arkansas and has two children. Jay has worked in the pharmaceutical industry for almost 30 years. He is the oldest of three children.
Jay lost both parents 11 months apart from one another. His mother died first of a rare autoimmune disease and it was during her brief sickness that he discovered his father had been suffering from Alzheimer’s.
Jay grew up with my brother and I in the same neighbourhood and he is one of my brother's closest friends still today. When my parents were diagnosed with dementia he reached out immediately to offer me support and sound advice.
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017. A change of location for us this morning, but not without drama of course. In between the blowing of the nose, the sun blinding us and the giggles I share a new incident that effected us both deeply in the moment. And though she doesn't remember it I attempt to explain it without upsetting her to give you all a glimpse of how Alzheimer's can present itself if even for a brief time.
"The term "sundowning" refers to a state of confusion occurring in the late afternoon and spanning into the night. Sundowning can cause a variety of behaviors, such as confusion, anxiety, aggression or ignoring directions. Sundowning can also lead to pacing or wandering."
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016. Dementia is a terminal disease, and though difficult, understanding and talking about hospice care is important.
Marcia Barbee is a Volunteer Coordinator for Hospice Home Care in Little Rock, AR. Her background is in case-management, marketing and homecare. Her role is to recruit volunteers that will assist with providing respite care by sitting with patients while family caregivers take a break. Fun Fact about Marcia is she has 4 dogs and the youngest and largest is a Belgian Malinois.
Lauren Smith is the Director of Clinical Relations (DCR) for Hospice Home Care in Little Rock, AR. She grew up in small town outside of Greenville, MS. It was the Hospice caregivers and particularly one nurse named Walter who made a huge impact on her. She later went on to obtain a nursing degree.
https://www.hospicehomecare.com
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015. I'm not crying, you're... I realize this disease is terminal, but 'm not conscious of it most of the time. But then there are times my thoughts line up in a mystical way I'm overcome emotionally. Always aware of the difficulty and beauty of that moment I accept I'm not in denial. I won't allow myself to pitch my tent in despair, but understanding its reality I then pack up and move gently onto our joyful journey together
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014. Carolyn Berry currently serves as the Executive Director at Alzheimer’s Arkansas. Her passion to work with “seasoned” adults arose from her childhood and the senior adults from her community. Her experience has been shaped through working with aging adults in various capacities, including as a Community Educator at an intensive outpatient program for seniors. Carolyn also worked as an Intervention Specialist with adults living mental illnesses.
Carolyn is a Certified Dementia Practitioner. She serves on the Telecommunication Access Program advisory board. Her formal education includes a Master of Education in Adult Learning and a Bachelor of Social Work from the University of Arkansas at Little Rock. She understands the beauty and challenges of aging. Her bucket list includes seeing the Northern Lights, writing her memoirs, and taking a road trip across Route 66.
Facebook page - https://www.facebook.com/alzheimers.arkansas
Website - http://www.alzark.org/
For immediate caregiver assistance after hours, call our Caregiver Line at 800-689-6090.
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013. I'm all drama and she's the calm one. We talk about the time I called 911 cause I thought someone broke into the house or was breaking out really. Whether I'm scared or injured everyone will know about it while mom takes it all in stride.
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012. Host, Kirsten Dickins and her guest Ellon Cockrill touch on array of topics pivotal to a basic and empowering understanding of the disease and resources. Kirsten is the Executive Director of the Alzheimer’s Association’s Arkansas Chapter and has worked in non-profit and development in Central Arkansas for thirteen years.
She believes the work of the Alzheimer’s Association is critical to ensuring a healthy future for our fellow Arkansans. She knows the Association’s focus on providing critical care for all affected, accelerating research and promoting brain health is the path to realizing a world without Alzheimer’s disease.
Kirsten is a graduate of Louisiana State University where she received a Bachelor of Science in Merchandising and a Minor in Mass Communications. An outdoor enthusiast, she lives in Little Rock with her husband, John, and four children: Jack, Sawyer, Amelie and Liza.
Ellon Cockrill stepped into the role of Board Chair for the Alzheimer's Association's Central Arkansas Leadership Council two years ago and has been instrumental in helping the chapter build a broader volunteer base and increase awareness of the disease and Association. Her experience as a caregiver in her own personal life have given her a deep understanding of the burden Alzheimer's Disease and other forms of dementia place on families.
Website - http://www.alz.org/arkansas/
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011. Jackie Parker, Author of Where is Wilma?, writes... "after living with my mother-in-law who had Alzheimer's, I discovered that I needed to understand the emotions associated with her actions. Underneath her certain behaviors lied the various reasons our loved one may be acting out." Jackie's 48 page book is a concise tender reflection of her journey with Wilma. Each detailed experience is concluded with a thoughtful life lesson.
Jackie is 62 yrs old, born in South Bend, Indiana. She has been married for 39 yrs, has 9 children and 17 grandchildren while working as a physical therapy tech for over 20 yrs. Living her faith, she has shared her God-given gifts both as choir and vocalist...in retirement Jackie enjoys gardening and "swinging of porch."
You can reach out to Jackie at lotsoftimeoff@gmail.com
Order "Where is Wilma?" at https://www.amazon.com/Where-Wilma-Jackie-Parker/dp/B0991LHXPL/ref=sr_1_1?crid=1P04PRKT7SHF1&dchild=1&keywords=where+is+wilma&qid=1634335927&s=books&sr=1-1
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010. This morning it's all about the cats and yes of course our love, gratitude and need for our Heavenly Father. During these sessions I try and keep it light - talking just briefly about her Alzheimer's where she can engage about the disease if she wants to. But my Amin goal is to hear her heart. My biggest desire during these chats is to affirm her importance in my life and let her know I did and still do learn from her.
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009. This new podcast says, "Policy Talk with David Cook," but it's certainly not boring. The new Advisory Council he talks about is going to create needed traction, discussion and hope for those of us in the caregiver role. He also talks about why his position and mission is more meaningful to him today.
David is the Public Policy Manager at the Alzheimer's Association. In this role, he oversees the development and implementation of the Association’s state and federal policy objectives. He also coordinates efforts of the Alzheimer’s Impact Movement, the Association’s volunteer advocacy program. Creating opportunities for those who have been touched by dementia to share their experiences with their elected officials. His grandmother died of dementia and currently his father is living with the disease.
24/7 Hotline 1 (800) 272-3900
https://www.alz.org
Arkansas Chapter Facebook - https://www.facebook.com/EndAlzAR
Don't You Remember? Podcast Facebook Page - https://www.facebook.com/ThebaTime
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008. Another opportunity to sit on the back porch and chat with my mom about the moment, about life. Some memories and sentiment are constants, but the tone and focus can be different and that is always interesting. Her earthy father and Heavenly Father were sweetly on her heart this morning. It was obvious this morning she was alert to the moment and had some advice for us all.
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007. The truth is you can't dictate things with your loved one with dementia, so if you can actually sit down and have a relaxed fun recorded conversation - at any stage of the disease - then what a joyful moment. Mom's short term memory is non-existent, but she knows who she is, who I am and where she is, so I'm grateful for that reality, today. I've tried to sit down with mom before but could tell the situation would not be beneficial for either of us. But today she appeared settled and I was peaceful, so I decided to take my rolling podcast table outside in the backyard to record. This is her favourite place to be. With us both relaxed and weather beautiful I just let the moment unfold - making it a sweet time to document.
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#005. Betsy Broyles Arnold along with her father, legendary University of Arkansas football Coach and Athletic Director, Frank Broyles developed a powerful book for caregivers called Coach Broyles' Playbook for Alzheimer's Caregivers. In this podcast I talk to Betsy, not only about her mother's diagnosis of dementia, but the subsequent diagnosis of her father. In part 2 we talk more about the book and she and daughter Molly's commitment to continue the mission through The Broyles Foundation. To download the book and for additional family and caregiving support please visit The Broyles Foundation website. https://www.broylesfoundation.org
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006. I welcome back Betsy Broyles Arnold. She along with her father, legendary University of Arkansas football Coach and Athletic Director, Frank Broyles developed a powerful book for caregivers called Coach Broyles' Playbook for Alzheimer's Caregivers. In this podcast Betsy further highlights some tips and strategies from the book. In her previous podcast Betsy talked about her mother's diagnosis of dementia, and the subsequent diagnosis of her father. She and daughter Molly's are committed to continuing the mission through The Broyles Foundation. To download the book and get additional family and caregiving support please visit The Broyles Foundation website. https://www.broylesfoundation.org
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004. It was pleasure to sit with my sister in Christ, and Life Coach, to talk about how I navigate this journey of dementia, starting a podcast, and recognizing my own personal healing with my Heavenly Father's presence.
Deana is a mom and a longtime resident of Little Rock, AR. She has been a physical Therapist for more that 28 years. Deana has survived being an orphan/ward of the court, incest, rape, molestation and domestic violence. She believes one’s goal has to be about thriving and not just surviving. As a certified Transformation life coach, author, speaker, advocate for survivors of sexual abuse, licensed minister and a weekly contributor on a TV show called “The Vine." She believes you cannot heal what you are unwilling to reveal and that your pain fuels your passion and your passion fuels your purpose!
Deana Williams
About~Face Life Coaching, LLC
501-503-8776
E-mail: lifecoachdeanawilliams@gmail.com
Deana's book Get M.O.V.E.D: Mapping Out Victory Each Day. https://www.amazon.com/Get-M-V-D-Mapping/dp/0997283343/ref=sr_1_1?dchild=1&keywords=Deana+Williams+GET+MOVED&qid=1631402896&s=books&sr=1-1
Instagram - getmoved
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003. Receiving their Mother’s dementia diagnosis & already keenly aware of her desire to remain in her own home surrounded by her beloved cats, Linda & her brothers set out on a mission. Their journey was filled with endless phone calls, navigating complicated loop holes, investigating & educating themselves with the necessary tools to make this happen, until her death in 2019.
Linda’s message today, “don’t give up!”
In our conversation we talk about Medicaid's 5 year look-back. Explained here. https://www.payingforseniorcare.com/medicaid/look-back-period
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002. Claire Haun and I were introduced by a mutual friend because of our love for birds and photography. For several years we enjoyed weekend adventures birding and fellowshipping while traveling Arkansas. Both of us began to notice memory changes in our loved ones, thus shifting our focus to that of caregivers. Claire's husband subsequently passed away in 2020 six years after his Alzheimer’s diagnosis, she brings a unique perspective of both nurse & wife to share with us. Additionally, she list some valuable resources that helped her on her journey.
Resources:
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Validation Therapy The Feil Method by Naomi Feil. (Excellent for communication)
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Coach Broyles’ Playbook for Alzheimer’s Caregivers by the Broyles’ Family. (Helpful for establishing your attitude toward care giving)
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Creating Moments of Joy Along the Alzheimer’s Journey by Jolene Brackey (Great resource for ideas for daily quality of life)
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Mother’s Secret A Nutritionist View of Family & Alzheimer’s Disease by Marilyn Walls (Good nutritional resource)
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001. I was a caregiver for my father who had Dementia with Lewy bodies (DLB) and I’m currently a caregiver for my mother with Alzheimer’s. Divorced and living in two different states, they were both diagnosed in 2017, but showed cognitive memory issues years prior. In that same year I moved my Dad into an apartment closer to me, literally 5 blocks away. Within a year I needed to hire professional help to take care of him as I divided my time between two households and working a full-time job. Some of it is still a blur, but the arrival of my brother in 2019 was pivotal as we both focused on making sure both Mom and Dad were safe and comfortable. Dad died November of 2019. This year I went part-time at my job to give Mom more focused attention and in return, pay more attention to my physical and mental health as we walk this journey together. I asked my friend and co-worker, Ashley King, to sit with me to help tell just part of my story.