The Sound of Hope: Recent Episodes
Chronic Hope
Hear stories first-hand of those living in the chronic illness community & the challenges they have faced along their journeys.
This week Jami and Sean, editor of the podcast, give an update on the podcast and what's been happening behind the scenes at Chronic Hope. We explain why we there hasn't been new episode of the podcast and give a teaser at some of our upcoming projects
It's all about mind over matter as Jami chats with Summer Moore on the benefits of meditation, having a positive mindset and how she used those tools to overcome Chronic Fatigue Syndrome. She shares tips on how to change negative and unhealthy thought patterns that hold you back and move into a positive mindset that serves you! Summer also touches on the dangers of unhealthy and toxic relationships, identifying them and setting boundaries.
Jami chats to Todd who has been living with Chronic Fatigue Syndrome for a number of years, He shares about his journey from gut issues, to social isolation, to the stigma around men with chronic conditions, this is a must listen episode!
This week Jami is chatting with Christine Gils who is an exercise physiologist in the Sydney area. Christine will be sharing some advice and guidance gleaned from 16+ years of working with people living with chronic conditions.
This week on the podcast, Steve talks about his 12 year journey with eosinophilic asthma and how he thinks he may have had COVID-19 earlier this year.
Jami gets to chat with Saskia about life with Fibro and how living with a chronic illness affects her life and how she finds hope when times get tough.
This week Sean Reid joins Jami as he shares his life's journey living with Chronic Fatigue. He walks us through how he navigated the ups and downs of rest, recovery and living an active lifestyle. Sean talks about the value of human connection and relationships and how human interaction can spark hope. He also shares advice and wisdom for those living with chronic conditions
Dr Jo Thomas joins us to discuss the relationship between a General Practitioner and patient and all things in between - finding the perfect GP, building a strong working relationship and maintaining trust. Dr Thomas details the role that a GP holds in the journey of helping patients find the correct treatment. Jami and Dr Thomas also discuss what patients can do to advocate for themselves especially those who live with invisible chronic illnesses and feel that they are unheard and not properly understood by their GP.
Justine Flynn, co-founder of Thankyou, joins Jami as she talks about how she built a social enterprise while navigating burnout. She talks through the various chronic health obstacles that she faced along her journey in building her brand.
This week Jami speaks with Sean Dela Cruz, an intern at Chronic Hope as he shares his journey - from a brain tumor, to a brain surgery and a movement disorder. He talks about the challenges he faced being sick during his final year of high school. He speaks about the importance of support groups and gives advice to those who face similar challenges.
Katya joins us this week as she shares how she started her Instagram @positivelychronictravels - sharing resources to live and travel with chronic illness. She walks us through how she plans and organises her holidays: from choosing a location, managing crashes and dealing with food intolerances.
Jessica (@chronicallycss) joins Jami this week as they chat about life during lockdown and living with chronic illness. Jessica shares her journey with Central Sensitisation Syndrome and how life is in lockdown. She shares some of the coping mechanisms she's been using - particularly meditation and relaxation techniques - and other tips to stay positive during these times.
This week, we have David Watkins, a counselor in the Sydney area, to discuss the relationship between pain, mental health, emotions and navigating through negative core beliefs. He explains how pain and mental health can adversely affect the body. Dave also talks about the importance of self care and what we can do to get rid of negative core beliefs.
Jake Heilbrunn (@jakeheilbrunn) joins Jami as he shares his insightful journey with Lyme disease. He walks us through how he got diagnosed and how its impacted its entrepreneurial lifestyle. Jake talks about the stigma that surround men and chronic illness and speaks about his path to recovery.
This week Jami speaks with Dan Hunt, former rugby player for the Dragons, who founded the Mental Health Movement - an organisation that provides workplace training to organisations wanting to better support their staff and their mental health. He talks about how to start the conversation on mental health, the stigma around men’s mental health and the importance of building a strong support group.
This week Jami is joined by Erica (@ambitiously_a_crohnie) a Chronic Hope ambassador as they discuss working with a chronic illness. They go over the challenges faced by the chronic illness community in the workplace, when to tell your boss/employer about your condition and knowing your rights as an employee.
This week Yasmine (@yasmine.shakur) joins Jami on the podcast to discuss all things art, creativity and chronic illness. She shares how drawing helped her on her recovery journey. They talk about art as medium for conveying emotion and as a tool to raise awareness and understand for chronic illness. Yasmin also shares her insight on being creative and how to find your own creative outlet
Jes (@house_of_spoons)hops on the podcast as she shares her experience being a spoonie parent. She shares how she manages her spoons - spending time with the kids, dealing with flare ups, and the benefits of having a daily routine.
Jami becomes the guest of the podcast this week as she shares her story with Chronic Fatigue Syndrome. She touches upon the events that led to her diagnosis with CFS and her mindset when it came to her recovery. Jami shares the lifestyle changes she's made along the way and the importance of overcoming trauma through counselling. She also shares how a move to Sydney became the penultimate chapter in her road to recovery.
Matt (@chronicallymindfulmatt) joins the podcast to chat about mental health and masculinity. He speaks about his time in the navy and the hyper masculine environment found within. He discusses the stigma around men's mental health and the benefits of meditation and mindfulness.
Elya (@corra.health) returns to chat about a short tangent from last time - her mobility assistance service dog Kana! She talks about the process of getting a service dog for her needs and how having Kana by her side has greatly improved her life. She and Jami also touch on their own experiences with disability, acknowledging and accepting one's circumstance and condition.
This week Kia (@livewellwithkia) takes Jami for a deep dive into the science behind autoimmune diseases and the importance of good diet for gut health and chronic inflammation.
This week we have Niamh (@ibs_fighter) joining Jami to talk about life as a dancer/performer living with IBS and anxiety. She speaks about how anxiety and IBS affected her as a dancer and the mindset shift she implemented to continue on. Niamh also highlights the importance of having a strong and understanding group of friends/support network to open up about any health issues and be honest with your struggles.
For our first guest of 2021, Talia (@taliamiele) joins the podcast to chat about food. From tips on food prep to managing dietary restrictions, she shares her advice and insights on how she manages food challenges as a spoonie. She and Jami also take a deep dive into food mindset and how it plays into our lives
McKay (@chronically_sick_) joins the podcast this week to discuss all things EDS and POTS. She shares her experience with POTS and EDS and how advocating for herself with doctors lead to a proper diagnosis. She gives advice to those who may be in similar situations and shares tips on how to deal with the undiagnosed phase
Jason (@we_at_one) hops on the podcast to talk all about natural healing. He goes into how you can heal your inner self as well as the natural ways he used to heal from IBS. He shares some of the strategies and foods he took along his healing journey from IBS.
Rene (@motivmax) joins Jami this week to share his journey with ankylosing spondylitis (Bechterew's disease) and yet despite this went to train and complete a half marathon earlier in the year. He talks about how he changed his mindset and maintains his motivation in completing his goals
Steff (@totallyfunkless) joins the podcast this week to discuss writing and advocating for chronic and mental illness. She talks about how she started writing and how her work brings insight into the experiences of those living with chronic illness. Steff also discuss her time freelancing and writing articles for the spoonie community
This week Jami is joined by Elya to talk about what it's like being a spoonie entrepreneur. She shares what it's like building a business as a spoonie in hustle culture and managing flare ups in the context of running a business. She also shares her latest business Corra Health - a health app desinged for individuals who suffer from chronic illnesses which will allow them to track symptoms, identify triggers, and collect data that can be shared with their medical care professionals
Emily (@movementwithmigraine) joins Jami to talk about the power of movement and exercise. She shares her thoughts on how to strike a balance between exercise and rest. They discuss the importance of trusting our bodies and the impact fitness culture plays in our mindset towards exercise
This week Stephanie (@steffischaupp/@chronicallymyownhero) joins Jami on the podcast as they discuss living and moving in different countries as spoonies. Both from and having lived in 3 different countries they discuss cultural differences and share experiences living abroad. Stephanie also shares some of her experience with dealing with different doctors and healthcare systems. Finally they share some tips for spoonies looking to move and live overseas
Chris (@rocdoc38) shares with Jami his recovery from CFS (Chronic Fatigue Syndrome). Chris shares the top 4 principles to his recovery journey: mindset, nutrition, quality sleep and restorative movement. Join us as he takes a deep dive into how each of these principles shaped and guided his path to recovery.
This week Jami does her first solo podcast to talk about a variety of things: from how Chronic Hope was founded, her CFS journey and recovery, and where she's at in life right now and what future holds for her and Chronic Hope
This week Emma joins the pod to talk about her journey with CFS. She had CFS from a young age, recovered then got CFS again and is now back on the path to CFS. Emma and Jami share some of their thoughts and mindsets as they went through their journeys - some of the traumas, anxieties and worries they faced
This week Paul Hansma, a physicist from USCB, joins the podcast to talk in depth about some of the science behind chronic pain. He talks about the link between the brain and chronic pain. Paul also goes into some techniques to reduce sensitization from the pain: learning, activity, biofeedback, guided imagery and mediation.
A long awaited podcast with Taylor! (@plottwistparenting). This week Jami and Taylor discuss the ins and outs of homeschooling. They touch upon what homeschooling is like and education during the pandemic. Taylor also shares her tips for those parents homeschooling their kids as well as managing her day to day as a spoonie.
This week Sophie (@sophiewardy) joins the podcast to talk in depth on a range of topics. She talks about how she managed and addjusted her life plans and goals during her journey. She also illustrates the importance of building community and having support networks. She and Jami also discuss the chronic illness community on social media, specifically Instagram, and the positives and negatives this space can provide for spoonies
Tati (@simplybalancedwithtati), who we first featured on Spoonie Mag, joins Jami for a chat! She talks about how her journey lead her to become a wellness and health coach. They go in-depth on grief - the transition and acceptance of life pre and post diagnosis; learning and recognizing the change one has gone through in their journey.
Lorrie Gray has been living with multiple different chronic conditions for over 15 years. She is a wife, a mother, and a business owner and is an example to the chronic illness community of someone that knows how to overcome. 👊🏼💪🏼
This week Jami and Noah, Social Media Manager of Chronic Hope, go in-depth about some of the latest news, including the crowd surge, benefits of vitamins, seasonal depression and its relation to spoonies. They follow this up by discussing some new & exciting research and end the episode by talking about their Influencer of the week.
This week Jami and Noah, Social Media Manager of Chronic Hope, go in-depth about some of the latest news, including Facebooking changing its name to "Meta" , the update on G-20 Climate deal and its relation to spoonies. They follow this up by discussing some new & exciting research and end the episode by talking about their Influencer of the week.
This week Jami and Noah, Social Media Manager of Chronic Hope, go in-depth about some of the latest news, including going back to work in-person after Covid, Halloween preparations and Mindful Eating from a spoonies perspective. They follow this up by discussing an exciting research and end the episode by talking about the Influencer of the week.
This week Jami and Noah, Social Media Manager of Chronic Hope, go in-depth about some of the latest news, including the "Free Britney" Movement and Climate Change and its relation to spoonies. They follow this up by discussing some new & exciting research and end the episode by talking about their Influencer of the week.