UsAgainstAlzheimer's: Recent Episodes
UsAgainstAlzheimer's
UsAgainstAlzheimer's mission is to stop Alzheimer's by 2020. More than 400 leading Alzheimer's researchers agree that we can prevent and effectively treat Alzheimer's if critical investments and reforms are made.
This panel is a sequel to last year’s highly regarded session featuring insights from industry, academia, government and researchers on progress made in drug development, and highlighting updates on promising drugs and innovations in the pipeline. This year, the panel integrates commentary on the need for the modernization of Alzheimer’s drug approval standards, as well as emphasize robust participation in clinical trials, offering solutions to help increase enrollment and educate audiences about the impact and importance of clinical trials, and addresses issues relating to access to diagnostics and treatments.
Moderator: Debra Lappin, JD, Principal, Faegre Baker Daniels Consulting
Billy Dunn, MD, Director, Office of Drug Evaluation I — Division of Neurology Products, U.S. Food and Drug Administration (FDA)
Samantha Budd Haeberlein, PhD, Vice President and Head of Alzheimer’s Clinical Development, Biogen
Eliezer Masliah, MD, Director, Division of Neurosciences, National Institute on Aging
David Morgan, PhD, Chief Executive Officer/Executive Director and Director, Translational Research, USF Health Byrd Alzheimer’s Institute; Distinguished Professor of Molecular Pharmacology and Physiology, University of South Florida; Founding Member, ResearchersAgainstAlzheimer’
This session explores how caregiving for those with Alzheimer’s and dementia can be supported and improved through innovations in technology. Panelists provide insights on various technology-based tools and applications that can support both the individual living with Alzheimer’s and their care partner, including access to clinical research, transportation and care management.
Moderator: Meryl Comer, UsAgainstAlzheimer’s Board Member; Co-Founder, WomenAgainstAlzheimer’s; President and CEO, Geoffrey Beene Foundation Alzheimer’s Initiative
Kim Campbell, Founder, CareLiving.org; Wife of Glen Campbell
Joe Cuticelli, CEO, Seniors, North America, Sodexo
Karen Garner, Caregiver and Author of Missing Jim: Confessions of an Alzheimer's Wife
Sarah Hoit, CEO and Co-Founder, Connected Living, Inc.
Lakelyn Hogan, MBA, Gerontologist and Caregiver Advocate, Home Instead Senior Care
Nate O’Keefe, Co-Founder and CEO, Roobrik
Keynote Speaker: Bill Novelli, Professor and Founder, Global Social Enterprise Initiative, McDonough School of Business, Georgetown University; Former CEO, AARP; Founder, Campaign for Tobacco-Free Kids
This panel focuses on risk-reduction strategies and lifestyle interventions, as well as raising issues of brain health with providers and prevention steps that may improve brain health. We explore the idea that what is good for the heart is good for the brain. How can a focus on brain health translate to clinical trials and increased interest in medical research? What can we each do to reduce dementia risk?
Moderator: Susan Spencer, Editor in Chief, Woman’s Day
Laura Baker, PhD, Associate Director, NIA Wake Forest Alzheimer’s Disease Core Center
Sandra Bond Chapman, PhD, Founder and Chief Director, Center for BrainHealth™, The University of Texas at Dallas; Founding Member, WomenAgainstAlzheimer’s
Elli Kaplan, Co-Founder and CEO, Neurotrack
Melinda Power, ScD, Asst. Professor, Epidemiology and Biostatistics, George Washington University
David Satcher, MD, PhD, Founding Director and Senior Advisor, Satcher Health Leadership Institute, Morehouse School of Medicine; 16th Surgeon General of the United States; Former Director, CDC; Board Member, UsAgainstAlzheimer’s
Brian Van Buren, Retired Flight Attendant, Living with EOAD
This panel tackles the issues of enhancing brain health and diagnosing Alzheimer’s early and accurately, allowing patients and caregivers the opportunity to adjust their lifestyle, to manage related co-occurring conditions, to plan their care support networks and to afford physicians the means to track the progression of a person’s brain health over time. The presentation discusses strategies in prevention and early detection, emphasizing the need to train clinicians, utilize technology and data, and transform payment and reimbursement practices.
Moderator: Ronald C. Petersen, MD, PhD, Professor of Neurology, Cora Kanow Professor of Alzheimer’s Disease Research and Director, Mayo Alzheimer’s Disease Research Center, Mayo Clinic Clinic College of Medicine; Chair, Principal Investigator, Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network
Daisy Duarte, Caregiver; Clinical Trial Volunteer, Dominantly Inherited Alzheimer Network (DIAN) Study
Phyllis Ferrell, VP, Global Late-Stage Alzheimer’s Therapeutic and Diagnostic Team; Alzheimer’s Disease Global Platform Leader, Eli Lilly and Company
Gay Johnson, Chief Executive Officer, National Association of Nurse Practitioners in Women’s Health
Jane Kim, MD, MPH, VA National Center for Health Promotion and Disease Prevention, U.S. Department of Veterans Affairs
Brad O’Connor, CEO, Cogstate
This panel at the UsAgainstAlzheimer's 2017 Disparities Symposium highlights the innovative efforts of researchers and the private sector to leverage technology to educate diverse communities about diseases like Alzheimer’s, to support caregivers and to increase access to research. The panel also explores the role of data mapping and visualization in helping public health practitioners and policymakers better understand and address health disparities impacting communities of color.
Moderator: Sarah Hoit, CEO & Co-Founder, Connected Living, Inc.
Madeleine Shea, Ph.D., Deputy Director of Office of Minority Health, Centers for Medicare & Medicaid Services
Vis Naidoo, Chief Ed Tech, Cell-Ed
Jack Harrison-Quintana, Director, Grindr for Equality
Nihal Satyadev, CEO & Co-Founder, The Youth Movement Against Alzheimer's
This panel discusses the major economic and social impacts of Alzheimer’s disease at both the micro (family) and macro (society) levels, delivering a comprehensive and holistic view of the ballooning cost of caring for and treating Alzheimer’s. Panelists reflect on their stories and the personal impact of the disease, characterizing the disease’s financial effect on family members and caregivers representing multiple generations and diverse communities.
Moderator: Jill Lesser, Chief Strategy Officer, UsAgainstAlzheimer’s; President, WomenAgainstAlzheimer’s; Board Member, UsAgainstAlzheimer’s
Nicholas Eberstadt, PhD, Henry Wendt Chair in Political Economy, American Enterprise Institute (AEI)
Edna Kane-Williams, Senior Vice President, AARP
Bert Rea, Managing Director, Human Capital, Deloitte Consulting
William Vega, PhD, Executive Director, USC Edward R. Roybal Institute on Aging, USC Suzanne Dworak-Peck School of Social Work; Provost Professor, University of Southern California (USC); Board Member, UsAgainstAlzheimer’s
Opening remarks to the 2017 UsAgainstAlzheimer's Disparities Symposium: Diversifying the Race for a Cure and Care by by George Vradenburg, Co-Founder and Chairman, UsAgainstAlzheimer’s.
The Diversifying the Race for a Cure Symposium increased awareness, understanding and action related to Alzheimer’s disease among communities of color. This full-day program brought together disparities-focused health, policy and minority community stakeholders with caregivers, researchers and industry leaders to address the growing impact of Alzheimer’s on communities of color. Attendees contributed to the development of brain health promotion strategies, catalyzed research collaborations, and advanced patient and community-centered solutions to our nation’s Alzheimer’s crisis.
This panel at the UsAgainstAlzheimer's 2017 Disparities Symposium explored a first-of-its-kind certificate program that will train individuals in Camden, New Jersey, to support individuals with Alzheimer’s disease, providing navigation services to individuals, families and caregivers managing the disease.
Moderator: Mary Michael, VP, Congress Stakeholder Management and Patient Advocacy, Otsuka America Pharmaceutical, Inc.
Michellene Davis, Esq., Executive Vice President and Chief Corporate Affairs Officer, RWJ Barnabas Health
Kris Kolluri, Chief Executive Officer, Rowan University/Rutgers-Camden Board of Governors
Welcome and Introductions to the 2017 UsAgainstAlzheimer's Disparities Symposium: Diversifying the Race for a Cure and Care by Jason Resendez, Executive Director, LatinosAgainstAlzheimer’s Network and Coalition and Stephanie Monroe, Executive Director, AfricanAmericansAgainstAlzheimer’s Network
The Diversifying the Race for a Cure Symposium increased awareness, understanding and action related to Alzheimer’s disease among communities of color. This full-day program brought together disparities-focused health, policy and minority community stakeholders with caregivers, researchers and industry leaders to address the growing impact of Alzheimer’s on communities of color. Attendees contributed to the development of brain health promotion strategies, catalyzed research collaborations, and advanced patient and community-centered solutions to our nation’s Alzheimer’s crisis.
This panel at UsAgainstAlzheimer's 2017 Disparities Symposium explores how media and the creative arts can be effectively leveraged to break down barriers, reduce stigma, and bring Alzheimer’s out of the shadows in communities of color. The panel will highlight the power of embracing culture to connect with communities. Attendees will come away with a better understanding of how to leverage the media and the arts in their respective work to educate communities, support caregivers, and give voice to the voiceless about Alzheimer’s and the need for greater participation in research.
Moderator: Stephanie Monroe, Executive Director, AfricanAmericansAgainstAlzheimer’s Network
Marita Golden, Author and Journalist
Margarita Bermudez, Latino Outreach Manager, Alzheimer’s Greater Los Angeles
Yvonne Latty, Professor and Multimedia Journalist, Arthur L. Carter Journalism Institute, NYU
Loretta Veney, Author and Caregiver
Framing the day, this opening session of the 2017 UsAgainstAlzheimer's Summit enumerates policy priorities, as well as the core UsAgainstAlzheimer’s goals and theories of change to drive progress towards a cure. The introduction will reflect the inspirational quote from UsAgainstAlzheimer’s late Co-Founder and Vice-Chair, Trish Vradenburg: “A cure for Alzheimer’s: a fantasy, a wish, an impossible dream; the same words that were said to Galileo, Edison, Curie, Salk and whoever dreamed up the internet. Yesterday’s dream is today’s reality.”
FACILITATORS:
George Vradenburg, Co-Founder and Chairman, UsAgainstAlzheimer’s
John Dwyer, President, Global Alzheimer’s Platform Foundation; Board Member, UsAgainstAlzheimer’s Action
This panel at UsAgainstAlzheimer's 2017 Summit draws insights and key learnings from leaders from influential movements and successful social-change efforts, such as teen pregnancy prevention, HIV, and breast cancer. The session includes perspectives on how the Alzheimer’s movement may evolve or learn from other movements. Ultimately it will help answer the question: how can Alzheimer’s advocates and leaders motivate policy makers and other stakeholders to work together to effect transformational change?
Moderator: Mike McCurry, Former White House Press Secretary; Distinguished Professor and Director, Center for Public Theology, Wesley Theological Seminary
Nancy Brinker, Founder and Board Member, Susan G. Komen
Rita Carreon, Deputy Vice President, Institute for Hispanic Health, UnidosUS
Veronica Miller, PhD, HIV Forum and Executive Director, Forum for Collaborative Research, HIV Reform
Isabel V. Sawhill, PhD, Senior Fellow, Economic Studies, Center on Children and Families, Brookings Institution; Board President, National Campaign to Prevent Teen and Unplanned Pregnancy
This panel at the 2017 UsAgainstAlzheimer's Disparities Symposium: Diversifying the Race for a Cure & Care explored how patient and community-engaged research can advance our understanding of brain health disparities. Panelists highlighted strategies for engaging patients and caregivers in research, identifying community research priorities, and for developing community-anchored research partnerships to address brain health disparities impacting communities of color.
Moderator: Goldie Byrd, PhD, Founding Director, Center for Outreach in Alzheimer’s, Aging, and Community Health; Professor of Biology, North Carolina A&T State University
Joyce (Joy) E. Balls-Berry, PhD, Assistant Professor of Epidemiology; Program Manager, Office for Community Engagement in Research, Center for Clinical and Translational Science, Mayo Clinic
Daisy Duarte, Caregiver; Clinical Trial Volunteer in Dominantly Inherited Alzheimer Network (DIAN) Study
Julie Kennedy Lesch, MPA, Engagement Officer, Patient-Centered Outcomes Research Institute (PCORI)
Jaime Perales, PhD, Postdoctoral Fellow, University of Kansas Alzheimer’s Disease Center; Representative, Memory Strings Kansas City Alliance
This panel discussion at the 2017 UsAgainstAlzheimer's 2017 Disparities Symposium provides an overview of the latest efforts by researchers, government agencies and community organizations to promote brain health, research opportunities and healthy aging in communities of color. Presenters share actionable insights for mobilizing and educating diverse communities through tailored messaging and community outreach campaigns that resonate, change behavior and drive action. Attendees will gain lessons and messages to apply in their own work.
Moderator: Debra Jones, President, Tequity
Gwen Gates, Sr. Community Health Programs Representative, Alzheimer’s Disease Center, University of California, Davis
David Marquez PhD, Associate Professor, University of Illinois at Chicago; Lead Investigator, Latino Core Study, Rush Alzheimer’s Disease Core Center
Mark Odom, LCSW, Vice President, Programs and Education, Alzheimer's Orange County
This discussion at the UsAgainstAlzheimer's 2017 Disparities Symposium features the varied experiences of Alzheimer’s and dementia care partners and patients from different cultures, generations and geographies—with the aim of better understanding their needs around support, training and research.
Opening Remarks: Nii-Quartelai Quartey, EdD, Senior Advisor, Multicultural Leadership, AARP
MODERATOR/PANELISTS:
Moderator: Meryl Comer, President and CEO of Geoffrey Beene Foundation Alzheimer's Initiative; Board Member, UsAgainstAlzheimer’s
Lisette Carbajal, Family Caregiver; LatinosAgainstAlzheimer's Advocate; Featured, Crowd and the Cloud Series
Kamaria Moore-Hollis, Family Caregiver, featured by The Genius of Caring
Yvette Peña, Vice President, AARP, Multicultural Leadership, Hispanic/Latino Audience Strategy; Family Caregiver
Brian Van Buren, Patient Advocate; Dementia Action Alliance Advisory Council