Behind the Pink Ribbon: Recent Episodes
Bud Adams
Behind the Pink Ribbon is a weekly podcast dedicated to sharing the stories of breast cancer survivors to uncover the reality of what lies behind the pink ribbon. We bring on experts in oncology, genetics, plastic surgery, nutrition, and more to provide information on topics specific to breast cancer.
This podcast will bring you stories of inspiration and hope, and a reminder that you are not alone in this journey. It will provide you with information and resources to be your own best advocate as you navigate through your journey of breast cancer.
Tracy Milgram is my guest on this episode. She is the founder of BRCAStrong, a non-profit organization, supporting women facing breast and/or ovarian cancer regardless of a known genetic mutation. Tracy shared her journey of finding out that she had a genetic mutation at a young age, how that information impacted her life decisions, and why she created BRCAStrong.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are released monthly on the second Tuesday. Subscribe and listen on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this week's episode is Becky Horn. She is the Executive Director at Pretty in Pink Foundation. She joined me to share the history, vision, and mission of Pretty in Pink.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release on the 2nd Tuesday of each month. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Monica Castillo joined me on this week's episode to share her personal story Behind the Pink Ribbon. She was diagnosed with stage 2B, triple negative invasive ductal carcinoma in 2015 at the age of 38. Monica talked about her family history of cancer, finding the lump, and her course of treatments. She talked about participating in a clinical trial to pay homage to her loved ones that didn't survive cancer, celebrating 5 years, and setting boundaries with family and friends to support her the way she needed.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Kristen Grider joined me on this week's episode of Behind the Pink Ribbon to share her story. She was diagnosed with breast cancer in September 2017 at the age of 31 years old following a self-breast exam. Kristen talked about her diagnosis, coming to peace with having breast cancer before the official diagnosis, and her treatments. She shared the struggles she has faced with reconstruction and the decision to explant, which will literally be a weight off of her chest.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this week's episode is Cheryl Wohlgemuth from Alberta, Canada. In October 2012, she was diagnosed with invasive ductal carcinoma at the age of 50 after a rollercoaster ride to get a final diagnosis. Cheryl was told she had breast cancer, then told that she didn't, then told that she did. Cheryl also talks about her family history of breast cancer, her treatment, and the lonely journey through the healing process.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
This week, I am joined by Dr. Catalina Lawsin, Lori Marini, and Stephanie McLeod-Estevez to talk about our upcoming virtual retreat series, Thriving...in the face of breast cancer. Starting Saturday, February 6, 2021, this four-part experiential retreat will focus on a different theme each session, integrating The Body, Mind, Spirit and Self. This retreat will create a safe, empowering space to dispel myths, normalize the realities of survivorship and build on your unique strengths to put the pieces back together after breast cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Sharon Carlson, a 31 year breast cancer survivor, joined me on this episode to share her story behind the pink ribbon. Sharon was in her early 40s when she was diagnosed in 1989. She talked about find the lump, her diagnosis, the horribly tragic story of her primary doctor, her treatments, and the loneliness she experienced that led her to become an advocate for others.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this episode is Rachel Mehl. She was first diagnosed with invasive ductal carcinoma in February 2016, followed by a recurrence of not only ductal carcinoma but also a rare form of breast cancer, metaplastic breast cancer. Rachel was then diagnosed with metastatic breast cancer in her lung. We talked about her diagnoses, course of treatment, and the decision she made to create her own healing path.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Kirby Lewis joined me on this episode of Behind the Pink Ribbon. He was diagnosed at the age of 52 with stage 2 breast cancer. He shared how he found the cancer, his course of treatment, and how he feels breast cancer saved his life. In 2016, Kirby had a recurrence of breast cancer that had metastasized to his lung. Kirby views breast cancer as an adventure and won't stop living life because of the diagnosis.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Dr. Shannon Puhalla, medical oncologist and hematologist at the University of Pittsburgh Medical Center, joined us on the podcast to talk about the coronavirus and the influences on cancer treatments. She talked about the most critical population- those currently undergoing active treatment. She offers suggestions on how these individuals can stay healthy and safe. She also talked about those who may be experiencing symptoms and what to do if you have a lump or symptoms.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Jeanine Patten-Coble is my guest on this week's episode. She is an 11-year breast cancer survivor and founder of Little Pink Houses of Hope. In 2009, at the age of 39, Jeanine was diagnosed with stage 3, HER2 invasive ductal carcinoma. Jeanine shared her story behind the pink ribbon from diagnosis to treatment. She also talked about Little Pink Houses of Hope and how the organization supports breast cancer families.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Tanika Taylor, Founder of the Pink Heart Foundation based in Chicago, Illinois, joined me on the podcast this week. Tanika shared her grandmother's experience with breast cancer and talked about barriers to care and mistrust of the medical professionals within the African American community. She shared how the Pink Heart Foundation supports African American women impacted by breast cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Christine Corrigan is my guest on this episode. She shares her story as a two-time cancer survivor. Her initial diagnosis of cancer came as a teenager followed by a diagnosis of breast cancer thirty-five years later. Christine recently finished her book titled Again: Surviving Cancer Twice with Love and Lists.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Mimi White is my guest on this week's episode to share her story behind the pink ribbon. She was diagnosed at the age of 34 with stage 3 invasive ductal carcinoma. She talked about her course of treatments and how through her journey, she was inspired to create the Linkage Beauty Movement in hopes of helping other women to feel beautiful and worthy no matter what.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Harvey Singer and Vicki Singer Wolf joined me on the podcast to share their stories behind the pink ribbon. Vicki was first diagnosed with ductal carcinoma in-situ at the age of 35. Following her third diagnosis, Vicki tested and found positive for the BRCA2 mutation. In 2008, Harvey experienced a sharp pain in his breast and was subsequently diagnosed with breast cancer as well. As a male breast cancer survivor in a very pink world, Harvey struggled to find information and support. Together, they cofounded the HIS Breast Cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this episode is Kelly Thomas. She was 33 years old when diagnosed with stage 3, triple negative invasive ductal carcinoma in January 2018. Kelly shared her story behind the pink ribbon from finding her lump, diagnosis, and treatments. We also talked about being diagnosed with breast cancer at a young age and then being kicked out of AYA support groups after turning 40 years old.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
This week, I am resharing the episode with Elizabeth Cluff, founder of Impact One Breast Cancer Foundation. She talked about her personal journey through breast cancer in 2007, which provided the inspiration for the non-profit. As Elizabeth thought about her support system, she was haunted and heartbroken over the women going through breast cancer that didn't have a good support system. She wanted to send them a shipment of love and include vital items for their journey through breast cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Janet Lindell, a fellow Edinboro University alum, joined me on this week's episode to share her story behind the pink ribbon. She was diagnosed with stage 3C, infiltrating ductal carcinoma in November 2010 at the age of 35. Janet shared how she found the cancer, her course of treatment following her initial diagnosis, getting the news that the cancer had spread to her bones and now her liver, going through years of endless treatments, and living with metastatic breast cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
This week, I am resharing the episode with Nikki Speer from Redefined Courage in hopes of helping the organization reach their fundraising goals. Redefined Courage provides post-mastectomy shirts and other goodies to breast cancer patients at no cost. They are hosting their annual gala on September 19, 2020. Please check out the event and their virtual auction.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on today's episode is Hannah Dekker Keels. She was diagnosed with breast cancer at the age of 42 in August 2016. Following her initial treatment, she received another diagnosis a year later. After approximately two and a half years, Hannah was again diagnosed for a third time with yet another type of cancer. Hannah talks about her treatments, writing a book, getting married, and starting a foundation - Living Hope Cancer Foundation. The motto of the foundation is to get up and live.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Jennifer Kehm, co-founder of the Young Women's Breast Cancer Awareness Foundation (YWBCAF) and the Development Director at Cancer Caring Center in Pittsburgh, PA, joined me on the podcast today to share her story behind the pink ribbon. We talked about her diagnosis and treatments, as well as complications during reconstruction. We also talked about the need for awareness and education of breast cancer in young women (and men), lifelong monitoring, and social/emotional support.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this episode is Lori Marini. She is a coach and the podcast host of Conversations with Courageous Cancer Warriors. Lori was diagnosed with stage 2 invasive ductal carcinoma and DCIS in June 2017 at the age of 41. Lori was working in the field of oncology as a tumor expert and with those diagnosed with metastatic breast cancer when she was diagnosed herself. She talked about the unexpected emotional toll it took on her. She also talked about the importance of finding gratitude and how she became a coach to help others navigate through a cancer diagnosis.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Heather Keller joined me on this week's episode. She created an award-winning solo show, Chemo Barbie, about her breast cancer journey. She has traveled internationally to perform her show. Heather was diagnosed with stage 1, triple positive invasive ductal carcinoma at the end of 2015. She shares her journey from finding her lump, her diagnosis, treatments, and her recovery.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this episode is Tandy Pryor. She was diagnosed with stage 1 lobular breast cancer in July 2019 at the age of 57. She talked about her gut feeling that something was wrong, diagnostic testing, and her course of treatments. Tandy stressed the importance of listening to our guts and maintain power over our own bodies and lives.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this episode is Tara Cohen, the Director of Marketing at Lauren's Hope. She was diagnosed with a BRCA2 mutation through 23 and Me. After repeated diagnostic testing that left her in a constant state of fear and anxiety, she opted for a prophylactic bilateral mastectomy that resulted in complications. Tara also talked about the importance of medical ID bracelets specifically for those with breast cancer who have or may be at risk for developing lymphedema.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Emily Rich joined me on today's episode to share her story behind the pink ribbon. In March 2019, at the age of 32, she was diagnosed with stage 1 encapsulated papillary carcinoma, a very rare form of breast cancer. Emily and her fiance had just moved cross country and were planning their wedding when diagnosed. Emily very openly and candidly shares her experience with in-vitro fertilization and the work that still needs to be done to protect cancer patients seeking fertility preservation.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Dr. Catalina Lawsin, a Licensed Clinical Psychologist, joined me on the podcast again to talk about cancer and dating. Dating and relationships are complicated in general but seem to be more so for those personally impacted by cancer. We talked about the pressure that cancer patients/survivors feel to disclose their medical information with potential dating partners, almost like a disclaimer. Dr. Lawsin provides insight on how to approach dating and relationships through the cancer lens.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Jennifer MacKenzie, a 3-year breast cancer survivor, joined me on the podcast today to share her story behind the pink ribbon. Jennifer was diagnosed with stage 2 invasive ductal carcinoma at the age of 35. she talked about her diagnosis, treatments, and struggling with coming to terms that her life would not return to what it was before cancer. Jennifer also talked about the lack of support for parents who become the primary caregivers for young adult cancer patients/survivors.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Stephanie McLeod-Estevez joined me on the podcast. She is a breast cancer survivor and an art therapist. At the age of 40, Stephanie was diagnosed with stage 3, triple-negative breast cancer. She also has a BRCA2 mutation. Stephanie shared her story behind the pink ribbon. Following the loss of her mother to metastatic breast cancer, Stephanie became an art therapist, which was deeply healing for her as she learned how to support others through creativity.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this episode is Chris-Tia Donaldson, the Founder, and CEO of Thank God It's Natural, which manufactures natural skin and hair care products. She is also the founder of the TGIN Foundation supporting underinsured women going through breast cancer. Chris-Tia was diagnosed with breast cancer in 2015 at the age of 36. She had a recurrence of breast cancer two years later. She shares her journey behind the pink ribbon and the lessons she has learned throughout her that journey.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Kim Schunn is my guest on this episode. She was diagnosed in 2016 at the age of 45 with stage 3B inflammatory breast cancer. Kim talked about her course of treatments, as well as the complications from her treatments, and being diagnosed with stage 4. Kim shared her experience of finding her passion in fly fishing during a retreat with casting for recovery and how she uses it not only to support her own well-being but sharing it with others to help them through a trying time. Fly fishing is a way for Kim to remember to live in the moment.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Westray Corradine joined me on the podcast to share her story behind the pink ribbon. In 2011, at the age of 36, Westray was diagnosed with stage IV invasive ductal carcinoma after finding a lump on her back. Westray shared her course of treatments, as well as some of the complications and side effects that she experienced. She shared the current status of the cancer, as well as her treatments, and offered some advice for others who are battling stage IV breast cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Becky Braun, a hometown friend since kindergarten, joined me on the podcast to share her breast cancer story. She was 36 when she was diagnosed with DCIS. Her diagnosis of breast cancer came a short 2 months after her mom had passed away from breast cancer. Becky shared her family history of breast cancer, with no link to a gene mutation. She openly shared her course of treatments, as well as the complications that she experienced. She also talks about the importance of a good medical team.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Sharon Henifin is a 26-year breast cancer survivor. She was diagnosed in 1993 at the age of 40. She shares her own breast cancer experience and how helping other women inspired her to co-found Breast Friends to support survivors and to teach family and friends how to support their loved ones. More recently, Sharon and a friend, Melissa, co-founded Breast Advocates International, which supports women in underserved countries in the hopes of reducing the mortality rate from breast cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Dr. Catalina Lawsin, also known as The Intimacy Doc, joined me on the podcast to talk about sex! Through her research and work, she discovered that relationships are core to who we are and how we experience life. She realized that those facing something such as cancer struggled with relationships and intimacy but these issues are not addressed in the field of oncology. She talks about some of the complications experienced by cancer survivors and offers some strategies on how to address some of these concerns.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on this episode is Lisa Schlager, the Vice President of Community Affairs and Public Policy for Facing Our Risk of Cancer Empowered (FORCE). Lisa shares the history of FORCE, a non-profit organization founded in 1999 by Sue Friedman as an online support system for those diagnosed with hereditary cancers. Lisa shares some of the unique implications of hereditary gene mutation/cancer, the importance of testing, and how FORCE supports those with hereditary cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Ann Allen joined me on the podcast. Ann is a Registered Nurse, Advanced Grief Recovery Specialist, Reiki Master, and owner of Heal Your Grief - Heal Your Life. Ann talks about the meaning of grief and loss. She shares the misconceptions related to the stages of grief and unrealistic timelines to get over grief. Ann provides strategies for individuals to heal their grief in order to move forward and ways to support someone else who may be grieving.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on today's podcast is Teri Bode, a 20-year breast cancer survivor and a previous Arizona Cardinals Cheerleader. Teri was diagnosed with stage 1 ductal carcinoma in 2000 at the age of 31. Two years later, she was diagnosed with lobular carcinoma in the same breast. Nine years later, Teri was diagnosed with metastatic breast cancer. She shares her journey through each diagnosis, the impact of a stage IV diagnosis, and how she continues to hold onto hope, sunshine, and happiness.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Lymphedivas President, Josh Levin, was my guest on today's podcast. He talked about what lymphedema is and some potential risk factors for developing the disease. He shared his sister, Rachel's, experience with breast cancer and lymphedema, which led to the creation of Lymphedivas. Josh carries on his sister's legacy through the company, which focuses on education and providing choice and options for those experiencing lymphedema. They offer individualized and trendy compression garments.
Cary Goldberg joined me on the podcast. She was diagnosed with late-stage 3 invasive ductal carcinoma. Cary talked about knowing something was wrong for several years but thought it was a blocked milk duct. She talks about her diagnosis, treatments, and decision to remain flat. Cary talks about being self-conscious but after being introduced to Handful bras, she regained her confidence. Cary shares how she became involved with Handful and how the company supports breast cancer survivors.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Today's guest is Robyn Towt, a two-time cancer survivor and co-founder of the Breast Implant Safety Alliance (BISA). Robyn was diagnosed with Hodgkins Lymphoma in her 20's and then breast cancer 20 years later. She openly shares her experience with breast implants that led her into patient advocacy and becoming a co-founder of BISA. She talks about the mission of BISA and how the alliance is working to create change that ensures the safety of patients.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Dr. Leslie Cole, a board-certified physician in internal medicine, as well as addiction medicine, is my guest on today's podcast. She shares her story behind the pink ribbon. Dr. Cole openly shared her struggles with anxiety and developing an irrational fear that her husband would die of cancer. While she had tools that she previously used, those proved to be ineffective. Dr. Cole attended a class for Emotion Freedom Technique at her local Cancer Support Community, which completely shifted her emotions. She eventually became certified herself and now provides this technique to other survivors.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Melissa Robman was 39 when she was diagnosed with stage 2 invasive ductal carcinoma. She found her cancer after her new puppy repeated stepped on her breast and she felt a lump. Melissa talked about the marathon diagnostic testing she had all in the same day, as well as her course of treatment. She shares where she turned to for support. She feels there is a reason she has gone through cancer. Melissa shares that she feels that it is good to find some positivity in the journey and make lemonade from lemons.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, my paternal cousin, Kim Afanador, shared her story. In 2017, Kim tested positive for the BRCA2 mutation. Kim was not told that a genetic mutation was discovered in the family until approximately 10 years after I was personally tested. She opens up about her feelings of having a hereditary cancer gene from a biological father that had denied her throughout her life. Kim also shares why she made the decision to have a bilateral mastectomy and how it has impacted her own family.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Lori Godfrey from Portland, Oregon joined us on the podcast. Lori was diagnosed with stage 3B invasive ductal carcinoma in 2007. She noticed changes in her breast, which were ultimately dismissed. Three months later, she felt a lump on her ribs, which she felt was a sign from God. Lori then consulted with a friend and was referred to a breast surgeon/oncologist, who confirmed a diagnosis of cancer. Lori discussed her course of treatment. and talks about finding the sport of dragon boating.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Meri Gibson is our guest on this episode. She is the president of the IBCPC, the governing body for breast cancer paddlers around the globe. Meri shared her story of being a three-time cancer survivor- cervical, ovarian, and breast cancer. Meri talked about her treatments, distancing herself from the cancer community, and finding dragon boating in an expected way. She shares how she became involved in the organization of the sport in New Zealand and becoming a part of the IBCPC.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Masumi Goldman joined us on the podcast. She is a previvor who opted for a bilateral mastectomy with immediate reconstruction. Masumi shares her the dramatic story of finding out a genetic mutation was present on the paternal side of her family but years later finding out that she actually had a genetic mutation from the maternal side of her family. She talks about the decisions she had to make, the challenges she faced, and her book, Rise and Thrive.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Jen Rozenbaum from New York joined us on the podcast. Jen is a boudoir photographer, the podcast host of Shamelessly Feminine, and a breast cancer survivor. In July 2017, Jen was diagnosed at the age of 41 with stage 2 invasive lobular cancer. Jen shares her story behind the pink ribbon. She also talks about struggling through the reconstructive process, not just physically but emotionally and spiritually as well.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My guest on today's show is Petula Kincaid. She originally hails from Ireland but currently resides in Hong Kong. Petula shared her breast cancer journey and how she was too busy with work to make time for her routine mammograms. She also talked about her specific treatments and the side effects she has experienced. She shares where she is with reconstruction and offers advice for everyone to slow down, listen to our bodies, and get regular body checks. Listen in as Petula shares her story.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Christy Avila the founder of International Flat Day and current Vice President of Not Putting on A Shirt joined us on the podcast. She was diagnosed with breast cancer after going in for a check-up with her mid-wife, as she and her husband were exploring a second pregnancy. Christy talked about her treatments, the hard decision to not have a second child, realizing that she didn't know all the reconstruction options, explanting, and how she is now helping others through her own experience.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Stephani Tucker, the Executive Director at It's the Journey joined us on the podcast. Stephani talked about the founder of the organization, Randi Passoff, and her passion for raising money to stay local within the state of Georgia to support breast health and breast cancer programs. Stephani gave us the inside scoop on the 2-day walk that will take place on October 3 and 4, 2020.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Nia Hammel joined us on the podcast to share her breast cancer story. In 2016, at the age of 35, Nia was diagnosed with stage 2B invasive ductal carcinoma. She thought the lump she had was fibrocystic and due to her menstrual cycle, until the lump started to dimple. Nia wishes she had been more educated about breast cancer so that she could have advocated for herself. She talks about her family history of cancer, her treatments, and her struggles with experiencing so much loss.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Dr. Shannon Puhalla, medical oncologist and hematologist at the University of Pittsburgh Medical Center, joined us on the podcast to talk about the coronavirus (COVID-19) and the influences on cancer treatments. She talked about the most critical population—those currently undergoing active treatment. She offers suggestions on how these individuals can stay healthy and safe. She also talked about those who may be experiencing symptoms and what to do if you have a lump or symptoms.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Melissa Eppard joined us on the podcast to share her breast cancer story. She was diagnosed with triple-negative, stage 1, grade 3 invasive ductal carcinoma in 2014. She talks about the difficulties with losing her insurance right before finding her lump and having to wait to be seen for diagnostic testing. Melissa also shares her experience through chemotherapy and the complications she had from the reconstruction. She also talks about finding the flat community and making the decision to explant.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Sasha Milicevic shared her breast cancer journey. Sasha was 43 when she was diagnosed with stage 0. Sasha talked about having a lumpectomy followed by a mastectomy, which she had out not pure fear and ignorance. She talks about the complications following the mastectomy and the reconstructive process, and her regrets around reconstruction. Sasha felt unsupported in the breast cancer community; almost as if she had done something to cause the complications she experienced.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Lize Lozelle, Marketing Director for Casting for Recovery, joined us on the podcast this week. Casting for Recovery is a national nonprofit organization providing fly fishing retreats for women diagnosed with breast cancer. Women of all ages and stages of diagnosis are welcome to apply. She shares the history of the organization, how to apply, and insight on the retreats. She also talks about how individuals can volunteer their time or even donate money to support the organization and retreats.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Dr. Don McKenzie, a researcher at the University of British Columbia, joined us on the podcast to share his research project and the development of the breast cancer division in the sport of dragon boating. As a part of his research, he developed and coached the first-ever breast cancer dragon boat team- Abreast in a Boat. He shared details of his research, the outcome, as well at the lasting impact the study had on the breast cancer community in dragon boating.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Karen Rowley, a 22-year breast cancer survivor from Orange Co. California, joined us on the podcast to share her survivor story. She was diagnosed at the age of 45 with invasive ductal carcinoma. After finding her lump, Karen went through several lumpectomies before having a single mastectomy followed by 6 rounds of radiation, While she explored her options, she decided to remain flat and became a model for mastectomy fitters.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Lauri Leadley joined us in the podcast studio. Lauri is a 27-year breast cancer survivor. Her initial diagnosis was Burkett's lymphoma in the breast, which is a rare and aggressive form of cancer. She was 27, the mother of 2 young children, and 22 weeks pregnant at the time of her initial diagnosis. Lauri was then diagnosed with invasive ductal carcinoma 23 years later in 2015 at the age of 49. Lauri shares her journey through both diagnoses.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Tara Dunsmore, an 8-year breast cancer survivor from Raleigh, NC joined us on the podcast. She was diagnosed at the age of 39 with stage 1 invasive ductal carcinoma. Tara talks about the challenges she faced during her treatment including being denied the surgery she wanted, the passing of her father, and negative experience with areola tattooing. Through her experience, she founded Pink Ink Tattoo because she believes survivors deserve a better experience than what she had.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Andrea Stein Goldsworthy joined us on the podcast to share her journey with breast cancer. She was diagnosed in November 2005 at the age of 32 with stage 2B, invasive ductal carcinoma. Andrea has a long history of cancer in her family and always felt like she would one day face that battle as well. It came much sooner than she had ever expected. She talks about finding her lump, treatments, lacking a support system in her first husband, finding love in her current husband, and having a baby.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Arpi Hamilton, joined us on the podcast. Apri found a pea size lump in her breast in September 2016. Though she was experiencing symptoms, she ignored those symptoms until December 2016. She scheduled an appointment with her gynecologist and had to beg to get a mammogram ordered. Arpi shares her treatment, how her journey has helped not only herself but also her coworkers at Cancer Treatment Centers of America. She also talks about the struggles she still faces 3 years later.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Kim Carew, breast cancer survivor and the founder of Peace, Love, Tote, joined us on the podcast. Kim was diagnosed with Stage 2A triple-negative breast cancer at the age of 53. Kim had always had anxiety that she would get cancer one day after losing a friend to cancer. She shared her experience with treatments and how she was unprepared for her first chemo treatment. Through her experience, she founded Peace, Love, Tote for other women going through chemotherapy.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Dr. Francis, the mastermind behind the UPMC Hillman Cancer Center Wellness and Integrative Oncology Program in Pittsburgh, PA shared how her personal belief system and the loss of her mother to cancer inspired her to create the program. She talked about the different services that are provided, the intake process, how cancer patients/survivors come into the program, as well as cost and insurance coverage. Dr. Francis also shared her vision for the future of holistic programs.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Harvey Singer and Vicki Singer Wolf joined us on the show to share their stories behind the pink ribbon. Vicki was first diagnosed with ductal carcinoma in-situ at the age of 35. Following her third diagnosis, Vicki tested and found positive for the BRCA2 mutation. In 2008, Harvey experienced a sharp pain in his breast and was subsequently diagnosed with breast cancer as well. As a male breast cancer survivor in a very pink world, Harvey struggled to find information and support. Together, they co-founded HIS Breast Cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday and Thursday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Jennifer Keyser from Gilbert, AZ joined us in the podcast studio to share her story behind the pink ribbon. Jennifer talks about feeling a heaviness in her chest. She googled how to do a self-breast exam and found hard tissue in her breast. Her doctor told her not to worry and Jennifer didn't but as time passed, she began experiencing pain. She was diagnosed with triple-positive inflammatory breast cancer at the age of 31. She talks about her treatment, her daughter, and her support system.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Tina Martel, a 2-time breast cancer survivor, artist, and author from Alberta, Canada, joined us on the podcast today to share her story. She was initially diagnosed in 2011 and again in 2015. She shares the struggles that she faced within the healthcare system in Canada and how she had to become her own best advocate.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Sonya Negley, Executive Director of METAvivor, joined us on the podcast. She talked about the mission of METAvivor and the importance of supporting research for stage IV breast cancer. Sonya shared the different programs available through the organization, such as the peer to peer support group and Sea to Sea for MBC. She also talked about different fundraising events and how you can get involved.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Sharon Hart, a 10-year breast cancer survivor and author from Middletown, Delaware joined us on the podcast to share her journey. Sharon talked about her diagnosis, treatments, and reconstructive complications, as well as dealing with a doctor that lacked bedside manners. She also shared the tools that she used to help her cope with cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Gina McDonough, a 10-year breast cancer survivor and gym owner, joined us in the podcast studio to share her journey through breast cancer. Gina talked about her breast cancer treatments. She openly shared her struggle with falling to a deep depression following cancer, which led to self-medicating with alcohol for approximately 3 years. Gina talked about getting clean for her family and fulfilling her lifelong dream of opening her own fitness studio.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Judy Pearson, an 8-year survivor, writer, and founder of A 2nd Act, joined us in the podcast studio today. She shared her personal journey through breast cancer from finding her lump, having surgery, and going through chemotherapy. Judy talks about her friend Joanna, who was the inspiration behind A 2nd Act. Judy shares the mission of A 2nd Act and all the different ways that the organization is supporting women diagnosed with any kind of cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, a 15-year breast cancer survivor and singer/songwriter, Faith Walker, joined us on the podcast to share her story with breast cancer. In 2004, Faith, a mother of 2 young children, was diagnosed with breast cancer at the age of 26. Three years later, while pregnant with her third child, Faith was diagnosed with metastatic breast cancer. She uses her cancer journey and music to inspire others including one of her latest songs- Head in the Clouds.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Jill Stutin Gresham joined us on the podcast. She was diagnosed in 2004 with stage 2 breast cancer at the age of 36. Jill was closely monitored for breast cancer due to the significant family history. She found a lump in her breast but diagnostic testing showed she had cancer in the opposite breast. Jill shared her struggles with reconstruction, as well as Tamoxifen. Four years later, Jill was diagnosed with ovarian cancer. Most recently, she explanted due to breast cancer illness.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this special episode, Kelly from Gilda's Club and Vidi from Cancer Support Community joined us on the podcast to share the story of Gilda Radner, the vision of Dr. Harold Benjamin, the history behind Gilda's Club and The Wellness Center, as well as the merge between the two organization to create what is now Cancer Support Community. They discussed the supports and services provided free of charge to those impacted by cancer. They also shared ways to donate or volunteer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Leslie Jennings-Harper joined us on today's show. In March 2019, she was diagnosed with invasive ductal carcinoma at the age of 43. Leslie had a clean mammogram and breast exam conducted by her gynecologist less than 6 months prior to finding the lump in her breast. Leslie underwent chemotherapy, which shrunk the tumor and underwent a bilateral mastectomy. She is currently still in active treatment and will undergo reconstruction and a hysterectomy in March 2020.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Deb Germundson, a 13 years breast cancer survivor shared her story. Deb was diagnosed with invasive ductal carcinoma at the age of 41. She had an itch on her breast and at that exact site, she found a lump. She talked about her treatment, losing her husband, and struggling with self-image and dating.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Michelle Weaver, a 21-year breast cancer survivor, joined us on the podcast to share her story. She was 38 years old when diagnosed with stage 2 invasive ductal carcinoma. Michelle was triple-negative and carried the BRCA1 mutation. Through her own journey with breast cancer and genetic testing, as well as the experience of losing her sister to this disease, Michelle went back to school to become a Nurse Practitioner and now has her own practice, Ava Health.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, Elizabeth Cluff joined us to share the story of her non-profit organization, ImpactOne. She talked about her personal journey through breast cancer in 2007, which provided the inspiration for the non-profit. As Elizabeth thought about her support system, she was haunted and heartbroken over the women going through breast cancer that didn't have a good support system. She wanted to send them a shipment of love and include vital items for their journey through breast cancer.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
This week, Melissa Brumbelow, a 10-year breast cancer survivor joined us on the podcast. She shared that she was one of two patients at her OBGYN's office recommended for genetic testing due to significant family history. Melissa was positive for a genetic mutation. She thought she had some time to be closely monitored before a diagnosis of cancer would happen. But a month later, through an exam with breast oncologist, Melissa was told she didn't have time to wait- cancer was there already.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this week's episode, Dani Grass, a 2-time cancer survivor, shared her journey through cancer- not once but twice. She was diagnosed in 2005 at the age of 21 years with colon cancer. Just over 10 years later, she was diagnosed with breast cancer in 2016 at the age of 31. Dani shared her journey through both cancers, the struggles of dealing with cancer at a young age, and her husband who has stood by her side through both cancer diagnoses.
Monique Colwell, a 2 year breast cancer survivor, joined us on the podcast today. She talked about having a firmness in her breast that she thought was odd but was dismissed by her doctor because of her age, her body structure, and a lack of family history for breast cancer. Monique pushed to have diagnostic testing and was told that she had stage 0 cancer. After seeking out a second opinion, she learned that she had stage 3 breast cancer. Monique shares her journey and where she found support.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, I had the opportunity to talk with Julie Caputo. She was diagnosed in March 2019 with Stage 2B invasive lobular cancer at the age of 49. A pain in her left side led her to get a mammogram but was unrelated to her eventual diagnosis of cancer. Julie shares her very fresh journey through breast cancer, the treatments she has already had and those planned for the near future. She has found support in her family, family, and friends, and through her unrelenting positivity.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
On this episode, I had the opportunity to talk with Nikki Speer, founder of Redefined Courage, a nonprofit organization providing post-mastectomy shirts to breast cancer survivors at no cost. Nikki shared her family history of breast cancer including her mother's story of battling breast cancer three times, which was the inspiration behind the organization. Nikki hopes that each woman receiving a box knows that they are cared for, loved, thought about, and never alone.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
Shanna Geigle joined us on the podcast today. She shared her story of finding a lump while soaping her armpit. While she didn't necessarily think that it was breast cancer, she knew that it was a possibility. Shanna shares her experience of going through breast cancer, finding support through her husband, family, and friends, and creating new friendships during chemo. Shanna talks about how she uses her experience to help others in her career as a Nurse Practitioner.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My paternal cousin, Candace, joined us on this episode today. She shared her story of being diagnosed with stage 1 breast cancer following a routine mammogram, undergoing a bilateral mastectomy and hysterectomy within 6 months of each other, and then having to be explanted 11 months after her mastectomy due to a negative reaction.
For complete show notes, please visit www.behindthepinkribbon.com.
New episodes of Behind the Pink Ribbon are release every Tuesday at noon Mountain Standard Time. Subscribe and listen weekly on your favorite podcast player. Follow us on Facebook, Instagram, and Twitter.
My friend, Christine McCoy, joined us on the podcast today. She shared her story of finding her lump during a self-breast exam. Christine contacted her doctor and was dismissed because she was too young and didn't have any risk factors. She saw her PCP the next day and was told it was likely not cancer, but was sent for diagnostic testing. It was in fact cancer! She shared her course of treatment and the importance of having someone that can help with keeping track of information at appointments.
Kim Nolder, a Pittsburgh native residing in North Carolina, joined us on the podcast today. She shares her story of finding her breast cancer on her baseline mammogram. Kim's mother had been diagnosed with breast cancer and passed away when she was 60 years old. As a result, Kim has always been on top of her overall and breast health. She shares her course of treatment and talks about the importance of being healthy for her boys.
Nikki Nims, my friend, and fellow SCAR Project model joined us on the podcast today. She shares her story of being 33-weeks pregnant with a surrogate baby when she found her lump while showering. She talked about the diagnostic screenings, getting the diagnosis while at a routine visit with her OB, going into survival mode, and her course of treatment. Nikki discusses her regrets with not being more particular with the plastic surgeon and looking at all of the reconstructive options. She shares the struggles with friends, family, and strangers that make judgments and comments that are insulting. Nikki shared her experience as a model for the ScarProject and also talks about the bond that she has with the surrogate baby that she says saved her life.
Kimberly Bowles was 35 years old and had 2 young children- ages 3 and 10 months, when she was diagnosed with Stage 3A breast cancer at the end of 2016. Kimberly joined us on the podcast today to share her journey with breast cancer. Kimberly had the standard course of screenings and diagnostic testing, despite the fact that her OBGyn had told her that she had a clogged duct. Her cancer was found to be HER2+. She underwent chemotherapy, double mastectomy, and radiation, and is currently on Tamoxifen and Nerlynx. Kimberly shared her devastating experience with a plastic surgeon who denied her decision to go flat and how this pushed her into the world of advocacy to help protect other's from having their decisions violated. Thanks for sharing your story with us, Kim!
On this episode, Desire'e Hardge, VP of Development at Don't Be a Chump, Check for a Lump, joined us in the podcast studio. She shared founder, Holly Rose's story with breast cancer and why she was inspired to start the organization. Desire'e shared the three tiers within the organization to include prevention and education, mammogram and diagnostic screening vouchers, and the wig program available to Phoenix residents. She talked about the annual events hosted by the organization, as well as the different collaborations with local businesses through the month of October.
Lynn Wegryznek, a 22-year breast cancer survivor, joined us on today. She was diagnosed at the age of 44 years with Stage 1 breast cancer. She went in for a regular mammogram after a trip to Vegas was canceled and within a week and a half, she was diagnosed with cancer. Lynn underwent a lumpectomy, chemotherapy, radiation, and 5 years of Tamoxifen. She shared her experience and side effects from the treatments. The hardest and most valuable lesson she learned was how to let others help her.
Diana Napper from Pittsburgh, PA joined us today to talk about the foundation she founded in honor of her friend, A Glimmer of Hope: Symbol of the Cure. Diana shared that her friend was diagnosed with breast cancer at the age of 49 and passed away 11 months later. Her friend asked Diana to open up a hospice in her name but Diana does not have hospice in her vocabulary for young women with breast cancer. Instead, she created integrated oncology centers at the local hospitals called Home for Hopes, which is dedicated to her friend. A Glimmer of Hope has developed a pilot program for the integrated oncology centers. What she thought would be a group of 10 women under the age of 40 years old is currently a group of 48 women with the youngest being 19 years of age. The women receive services such as acupuncture, massage therapy, and nutritional counseling. Data has shown the positive benefits the women have experienced through participation in the pilot. A Glimmer of Hope has also updated medical equipment and has purchased new machines to assess young women with dense breasts that can show much more than traditional mammography. Diana shared that A Glimmer of Hope is now in the second year of supporting a research study to evaluate the effectiveness of circulating biopsy. The city of Pittsburgh as a whole has been supportive. Diana has made connections with many of the leading doctors in Pittsburgh, as well as many of the organizations such as the Pittsburgh Pirates, to support the mission of A Glimmer of Hope. We appreciate having you as a guest, Diana!
SHOW NOTES:
Diana Napper began A Glimmer of Hope: A Symbol of the Cure in 1997/1998. Initially, she had a partnership with a local Pittsburgh hospital but in 1999 had to take the organization back. A friend, who was a lawyer, helped Diana to secure her own 501c3 for the organization. The inspiration for the organization was a friend and mentor of Diana's. She had moved from Pittsburgh to the New York/New Jersey area. She met a woman who became her mentor. Diana moved back to the Pittsburgh area. Her friend called her and told Diana that she had breast cancer. Not knowing anything about breast cancer, Diana was certain that her friend would survivor but she passed away 11 months later at the age of 50 years old.
Diana and her friend made jewelry pieces that symbolized hope and the funds from the jewelry went to research programs. Diana saw her friend four weeks prior to her passing and her friend told Diana that she was going to do something really big. Her friend asked Diana to open a hospice center in her friend's name. However, hospice is not in Diana's vocabulary for young women with breast cancer but rather wanted to find a way to help young women with breast cancer live. Diana's friend needed support when she was diagnosed and Diana believes that the programs she has created is more of what her friend was asking for. Diana created Home for Hopes, integrated oncology centers, in honor of her friend. At these centers, young women under the age of 40 receive services that help them to live with cancer.
She began the first program within the Allegheny Health Network and started a pilot program. Services provided include acupuncture, massage therapy, nutritional counseling, and in some instances, childcare. Diana initially thought the pilot program would be about 10 women but currently, there are 48 young women involved in the program. The youngest woman is 19 years of age. A Glimmer of Hope has centers at all of the Pittsburgh hospitals and is about to open the third center with Allegheny Health Network.
Diana believes that breast cancer in young women is a whole different disease that attacks more aggressively. Young women need to be at places such as soccer games with their children or school. The anxiety and stress for young women are unbelievably high and the foundation now has data to show that the services provided through the Home for Hopes is beneficial. In addition, women are grateful for the support and services they receive.
As part of the program, the women receive nutritional counseling services. They learn about foods that are healthier. They are encouraged to walk for exercise. Diana points out that before diagnosis, individuals are told to eat well, sleep well, and to exercise. When we become sick, it should not be any different and in fact, should be amplified. What might be good for one person, may not be good for the next person. By putting young women into the pilot programs, they are being looked at as individuals. Diana believes that the number one component should be treating individuals and not the masses.
In addition, A Glimmer of Hope provides medical equipment to Pittsburgh-based medical facilities. The foundation brought the very first tomosynthesis machine into the United States and donated it to a local medical facility. A radiologist told her how important this imaging machine was for young women with dense breasts. The foundation has also purchased an ABUS machine, a future screening tool, for another local medical facility. While MRI is the best tool for diagnosing breast cancer, many insurance companies will not pay for it. At this time, A Glimmer of Hope has provided funding to the University of Pittsburgh Medical Center to update all of their equipment and had donated 3 machines to the Allegheny Health Network.
A Glimmer of Hope also supports research studies. The foundation is currently in its second year of funding research to explore the efficacy of circulating biopsy. Young women may experience a recurrence in their chest cavity and cannot have a biopsy. It can sometimes use the circulating biopsy to figure out what type of cancer it is. At this time, results have only been shared with the doctors but Diana hopes that this year, results can be released to the patients.
Pittsburgh has been a great location for the foundation because it is small enough to have good communication and relationships with the doctors but big enough to have some of the best medical services in the world. She feels that the foundation would not be as successful had she remained in New York/New Jersey.
When a woman is diagnosed in the system and under the age of 40 years old, doctors automatically recommend the patient to the program. Each woman is brought into the Home for Hopes and pilot program through a streamlined process. Diana is heavily involved with many of the women in the program because there are not many resources for young women. She has taken some of them to doctor's appointments when necessary. She feels that the organization does an adequate job but would really like to see this across the US.
Most of the funding available for breast cancer is geared toward women over the age of 40. Diana would like to see the same emphasis for breast cancer survivors under the age of 40. She believes that if a cure for breast cancer at the most aggressive state can be found, someone with breast cancer at an older age would be an easier fix. Breast cancer in young women is complicated.
The foundation is becoming more aggressive to get more people involved. The foundation is working toward getting young women to advocate for their own health care. They are becoming more vocal.
Diana has developed relationships with many organizations in Pittsburgh to include the Pittsburgh Pirates. The Pirates host an event called Pitch for Hope. Clint Hurdle, Manager of the Pittsburgh Pirates, does an on-field clinic. His mother was a young breast cancer survivor and lived a long life. Mr. Hurdle wants women to experience hope. This is an event for breast cancer survivors but is also a fundraiser with funding going to the Home of Hopes.
There are many ways to support the foundation. They are always searching for advocates and local volunteers. Individuals can sign up on the website at www.symbolofthecure.com or call 800-454-6746. Monetary donations are accepted via the website and jewelry is available for purchase as well. A Glimmer of Hope participates in well over 100 events each year, which can be found on the website or the foundations Facebook page.
Laura Rasmussen, a 17-year breast cancer survivor, was in the podcast studio today to talk about her experience with breast cancer. She was diagnosed with stage 2, type 2 breast cancer at the age of 41 years. Laura had a clean mammogram in January but in August that year, she recalls crossing her arms and finding what she described as a "frozen pea". Laura underwent a lumpectomy, chemotherapy, and radiation. Laura talked about the struggles she experienced during her treatments with exhaustion, sores on her head and in her mouth, and going into medical menopause. She openly shares how medical menopause impacted the intimacy with her husband and how she feels that it may have been part of the reason for their eventual divorce. Laura shares the impact that having a support system and support group had in her recovery.
Show Notes:
Laura was diagnosed with breast cancer at the age of 41. Laura had gone in for a routine mammogram in January 200, which indicated no concerns. She had just switched insurance companies after starting a new job. In August, Laura crossed her arms and felt what she describes as a "frozen pea" in her breast. She underwent diagnostic testing. The radiologist suggested that she did not have anything to worry about but 4 days later, she received a call from her doctor asking to see her the next day in his office. When Laura went for her appointment and the doctor told her she had breast cancer, Laura thought he had the wrong person. Her doctor had called her at home the night before and left a voice message. Her husband listened to the message but did not seem to understand it and deleted the message. She was in complete shock and even though she knew downtown Phoenix well, she got lost on her way home.
Laura called her employer to share her diagnosis and said that if they were not willing to support her, she would leave. Her employer was supportive and bought her a fruit basket every month while she was going through her treatments.
Laura's tumor was 2.2 centimeters. It was discovered that there was more cancer behind the frozen pea. At that time, BRCA testing was just coming into being and because she had no children, was adopted, and did not have any siblings that she knew of she did not undergo genetic testing. Laura's cancer was determined to be estrogen and progesterone positive. One doctor told her that estrogen saved her life while another doctor had told her that estrogen caused the cancer.
Laura underwent a lumpectomy, chemotherapy, and radiation. She lost her hair during chemotherapy and learned how men are able to go from the shower to the door in 15 minutes. She suffered from sores in her mouth and on her head. Laura also went into menopause during chemotherapy. Radiation was difficult. She felt like it kicked her butt. She believes that she would not have made it through the second half of radiation if not for her parents.
Laura worked throughout her treatments. She had surgery on a Friday and returned to work the following Tuesday. She shaved her head in preparation for chemotherapy but wore a hat or do-rag on her head. Her new employer told her that she was not permitted to wear a hat to work. Her employer learned of her cancer when she took her hat off and revealed her bald head. The residents at the retirement facility where she worked were unaware that she had cancer. At Halloween, she dressed up as a biker chic. The residents thought she was really into Halloween and shaved her head as part of her costume. Laura had bought a wig but only wore it a few times.
Laura talked about her support system, which included her parents, ex-husband, and a couple of girlfriends. She shared that she didn't really let anyone in as much as she should have; she really just plowed through.
When she completed chemo and before starting radiation, her husband thought things would return to normal. Laura feels that the demise of her marriage may have in part been related to the cancer. She shared that being in medical menopause because of the chemotherapy was difficult for her and her husband. Sex was not enjoyable. She described it as feeling like sandpaper. One of the therapists helped her to realize that what she experienced on the outside may have also been happening on the inside.
Attending a support group was helpful for Laura. She learned a lot through her experience with the support group. She shared that the seasoned survivors brought humor into a difficult situation. Laura found support through a retreat called Casting for Recovery, which is a fly fishing event for breast cancer survivors. Laura shared that she learned a lot about herself on that weekend retreat. She began to understand that she hid behind her work as a defense mechanism. She quit her job and started her own business.
Laura has started to date and has been up front with her cancer experience. She feels that no topics are off the table and that none of us come without any baggage. Cancer is a part of who she is and if someone is not equipped to handle it, that is fine.
Laura suggests that those who are newly diagnosed should get into support group. When diagnosed, people are shocked and unsure of the pros and cons of the different treatment options. Those in the support group will give the good, the bad, and the ugly. She feels that newly diagnosed individuals get much better candid information. In addition, support groups have information on other resources available for breast cancer survivors.
Get self into support group. Shell shocked and unsure of what the pros and cons are of each of the treatment options. People in the support group will give the good, bad, and ugly. Get much better candid information. Also have information on other things that are available for breast cancer survivors. Because of these support groups, she discovered Casting for Recovery and dragon boating.
Ann Alexander, a 2-year breast cancer survivor, stopped by the show to share her story through breast cancer. She was diagnosed at the age of 57 with invasive lobular carcinoma. Ann had a CT scan of her abdomen and pelvis for possible kidney stones and during the scan, the tech caught a glimpse of something abnormal at her chest wall that had not been picked up on a traditional mammogram 10 months earlier. Ann talks about her diagnosis, course of treatment, and recovery. She shares how yoga helped her during her recovery and beyond. Thanks to Ann!
Amber Edens, a 4-year breast cancer survivor, stopped by the show today to share her breast cancer story. Amber was diagnosed with stage 3 breast cancer at the age of 33 years. Amber underwent chemotherapy, a bilateral mastectomy with immediate reconstruction, and radiation. Following radiation, the doctors discovered Amber's cancer had metastasized to her bones and she underwent radiation to treat the breast cancer in her bones. She also underwent a hysterectomy and oophorectomy due to having estrogen/progesterone positive cancer. Amber talks about finding her lump, going through treatments, developing a new relationship in the middle of cancer treatments, and her feelings regarding her stage 4 diagnosis. Amber shared how her friends and family supported her and the most valuable lessons she had learned through cancer. Thanks for stopping by, Amber!
SHOW NOTES:
Amber was diagnosed in 2015 at the age of 33 years with Stage 3 breast cancer. Amber was dating someone at the time and that person commented that one of Amber's breasts felt very hard in comparison to the other. Amber was not actively conducting self-exams but did agree that something seemed different. Within the week, Amber had gone to see her doctor and had a mammogram, ultrasound, biopsy and by the end of the week, had been diagnosed with breast cancer. Amber's tumor was 10x7 cm and had impacted her lymph nodes. Amber was tested twice for genetic mutations but came out negative. She does have a grandmother that had some type of breast cancer, as well as lung cancer.
The relationship with the person that found it had fizzled out. Amber feels that the woman she was dating was not able to handle everything that Amber was going through. Amber describes her diagnosis as surreal. She felt like she was simply going through the motions. She was doing what her doctors told her to do related to the cancer and was going to work.
Amber did whatever her team of doctors told her to do. She underwent chemotherapy with 3 drugs, every other week for 6 months in order to try to shrink the tumor. The chemotherapy had "Swiss-cheesed" the tumor rather than shrink it. Following chemotherapy, Amber underwent a bilateral mastectomy with immediate reconstruction to include silicone implants. She also had radiation to her impacted breast and lymph nodes.
Shortly after her radiation, Amber had a scan and the doctors discovered that the cancer had metastasized to her bones. She had a small lesion in her bone and because it was breast cancer that had spread to that area, it was still considered breast cancer and not bone cancer. She went through radiation again for 5 weeks to address the breast cancer in her bone.
During her cancer treatments, Amber met someone online and they began dating. Amber was hesitant with dating as she was unsure of trying to balance focusing on a relationship as well as focusing on herself and her health at the same time. However, Amber shares that this person came into her life at the perfect time and was exactly what she needed at that moment in her life. This woman began researching and exploring different options for Amber. She helped Amber look at the different options for reconstruction and what would be best in the long term. When the cancer had metastasized, Amber's new partner had suggested that she see someone that specializes in cases that are more specific to Amber's own case.
Initially after surgery, Amber started on Anastrozole due to being estrogen/progesterone positive. Amber was also receiving a shot in her belly to put her into menopause, which she did not like. She opted for a hysterectomy due to being estrogen/progesterone positive and asked for everything to be removed. The surgery was complete through laparoscopically. Her recovery time was projected to be 4-5 weeks but Amber was up and running after just one week. Following that surgery was placed on Tamoxifen and then Anastrozole.
Previously, she was seen for follow-ups every 3 to 4 months but now has scans every 6 months. She will have to undergo scans every 6 months until she is 5 years out from the Stage 4 diagnosis. Her medical oncologist moved and now she has a new medical oncologist. She has met her new medical oncologist and likes her so far but the true test will come when she has her scans.
Amber shared that she had an amazing support system around her with her family, friends, and her new partner. Her family did everything and anything that she needed. Her friends organized a soccer tournament to raise funds for Amber. Her dating partner, who is now her wife, took care of her. They moved in with one another before Amber's surgery and she took care of Amber throughout her recovery. Her wife researched information, doctors, foods that Amber should be eating, etc. Amber and her wife attempted to go to a support group together but her wife was unable to emotionally handle it because everyone was telling sad stories. Amber found that dragon boating was a better space for her to get support.
Amber indicated that she is not a "woe is me" kind of person. Cancer lives with her but she is still living her life. She knows that the cancer is Stage 4 and is not curable but she is 2 years out. She does not like the word terminal and while she technically has terminal cancer, she does not look at it that way. She feels that having a healthy mindset is important.
Amber was working as a night-shift respiratory therapist at the time of her diagnosis and treatments. The people at work were very accommodating. Working the night-shift was very hard for her. She worked three 12-hour shifts and then had to go during the day to chemotherapy, to see her doctors, or to her radiation appointments. It was exhausting. She no longer works the night-shift, which has been a healthier change for her.
The most valuable lesson Amber learned through her cancer journey was who in her life she could really depend on friendship wise. She knew who could support her in different ways, and many times without even having to ask. It was nice to know which of her friends are her real friends, the ones that showed up then and continue to do so now.
Amber's biggest regret was not taking time at the beginning to take everything in; she was just doing what the doctors told her to do. She did not know her options and did not know that resources existed to help breast cancer survivors. She did not freeze her eggs because she did not know it was an option. She would recommend that anyone newly diagnosed with cancer take a step back to take it all in, explore the options, and do what is needed for you.
Donna Blau, 27 year and 2-time breast cancer survivor, stopped by the studio today to share her breast cancer story. She was initially diagnosed with DCIS in 1992 at the age of 40 years old. Donna underwent a single mastectomy with immediate reconstruction. At that time, no other therapies were recommended and she was not tested for a possible genetic mutation. Seventeen years later, Donna was diagnosed with mucinous carcinoma in the same breast. She underwent explant surgery and had an abdominal-flap surgery to reconstruct the left breast followed by 6 weeks of radiation. Following radiation, Donna underwent another reconstructive surgery that included nipple reconstruction without her consent. This surgery resulted in significant complications. Donna shares her traumatic experience of having dying tissue on her breast. Donna also talks about finding out that she had a genetic mutation, passing the mutation onto her oldest daughter, and how her daughter's decision has inspired Donna to have her right breast removed. Thanks Donna!
SHOW NOTES:
Donna was diagnosed with ductal carcinoma in situ at the age of 40 years old. At that time, she had two young children, ages 3 and 5 years. Donna had noticed that her breast was warm to the touch and more full than normal. She saw a nurse practitioner who recommended that she have a mammogram. Following the mammogram, her doctor requested that she be seen in the office for additional testing and noted secretions coming from her nipple. At that time, they determined that Donna had DCIS throughout her entire left breast.
Donna was referred to a breast surgeon who had suggested complete removal of the breast but also offered additional options such as chemotherapy. Her doctor had given Donna the choice in deciding how she wanted to treat the cancer and Donna opted for a single mastectomy. A bilateral mastectomy was not offered at that time. Donna underwent the mastectomy with immediate reconstruction with the placement of a tissue expander and saline implants to follow. She did not undergo radiation or chemotherapy at that time, as neither were recommended. At that time, there was no concern related to a possible genetic mutation and testing for genetic mutations was not approached at that time.
During her recovery from her mastectomy, Donna's children went to stay with family in Texas. She feels that it was better for them and for her. She recalls her youngest daughter being scared following her initial surgery. The anesthesiologists had scraped her vocal cords when putting the tube in her throat so when she came out of surgery, she sounded different and that scared her daughter. She remembers telling her children that her boobie was sick and that she was getting it fixed.
Donna and her family had moved from Santa Fe, NM to the east coast. She continued to be seen for follow-up exams of her natural breast and the reconstructed breast. She noticed that her implant was moving up her chest. During a visit with her gynecologist, 17 years after her initial diagnosis, a lump was discovered under the implant on the chest wall. Donna was referred to a team of doctors in New York City. The team was an all-female team with the exception of the plastic surgeon. Diagnostic testing revealed mucinous carcinoma in her left breast. It was non-invasive and slow-growing.
Donna was not concerned with having cancer again. She thought that after doing the single mastectomy, she would be fine and there would be no reason for concern of recurrence. Donna opted for reconstruction again but selected to use the fat from her tummy area. She described this reconstructive option as being worse than the breast cancer itself. Her abdomen was cut from hip bone to hip bone. She indicated that the end result of the reconstruction looked good but that she had a small divot that the plastic surgeon said could be fixed. Donna underwent 6 weeks of radiation therapy.
Following the radiation, Donna returned to see her plastic surgeon and he recommended a small implant and nipple reconstruction. Donna agreed to the implant but had declined the nipple reconstruction. Two months post-radiation, Donna underwent this surgery. Upon waking up in the hospital, she realized that the doctor had completed the nipple reconstruction without her consent and against her wishes. The doctor had used the tissue that was already there to recreate the nipple. When she undid the dressings at home, she found that the nipple was charred and black.
Donna returned for a follow-up with the plastic surgeon. She shared that he was talking to himself and indicating that he was unsure of how this could happen. He told Donna that she did not have to pay for anything. Things continued to get worse. Donna went to California for Christmas and noticed that the tissue was beginning to separate. She was sending pictures of her nipple to the plastic surgeon, who told her that she would have to wait until after the holidays to be seen. She was seen in his office on a Sunday after the new year. He told her that the nipple would get better but it continued to get worse. It is deteriorating. The plastic surgeon never told Donna was he was going to do to fix it.
Donna went for weekly visits to the plastic surgeon. In addition to the nipple deteriorating, Donna had developed an infection. During an office visit, the plastic surgeon indicated that he would need to remove the implant, which was completed in his office that day. Donna believes he may have used a local anesthetic. He made an incision in her breast and when he pulled out the implant, it made a loud popping sound. Donna was seen once a week for 7 months to remove the dying tissue.
Donna's breast surgeon recommended that she see a wound specialist, who also happened to specialize in breast reconstruction. The specialist recommended rebuilding the breast using her latissimus muscle, as well as muscle from her inner thighs or her glutes. Donna was done. She wanted no more.
Donna stopped seeing her previous plastic surgeon. He never indicated what happened. She asked for her medical records and found that the doctor never made mention of the dying tissue. He never took any pictures and only noted that things looked good. Donna spoke to a friend who was a medical malpractice lawyer and he recommended that she pursue a case against the plastic surgeon. Donna wanted to have this on the plastic surgeon's record so that he could not do this to anyone else. She was angry that he could forget that she had undergone radiation and that he was the author of many articles about not completing surgery on tissue that has been irratiated. She returned to NYC for the deposition, which was hard. She described the emotional struggle of having to go through this again and did not feel that she could handle testifying. She settled with the doctor but this is now on his permanent record. He was the only doctor that had the right to perform that kind of surgery in the hospital where she was being treated. She really thought everything would work out.
Donna wears a prosthesis, which has served her fine but it does get very hot. The wound specialist that she saw in NYC described her reconstructive site as a "gross disfigurement". She indicated that she basically has a hole in her chest. Not having reconstructive surgery again was her own personal choice.
After moving to Arizona, Donna had genetic testing completed and was found to be a carrier of the chek2 mutation, which is part of the BRCA2 gene. Both of her tested have also been tested for the mutation and her oldest daughter is a carrier. Both of her daughters have regular mammograms and MRIs. A lump was found on her oldest daughter's MRI, which ended up being benign, but scary nonetheless. Her oldest daughter is recommended to undergo a bilateral mastectomy with reconstruction by the time she turns 35 years old. She is currently 33 years old. Her daughter's decision to remove both breasts has inspired Donna to remove her right breast.
Donna has instilled in her daughters the importance of being proactive with their health. She has modeled a life of eating right, exercising, and being proactive in their health. She feels that everyone should be proactive in their health and indicated that we cannot wait for doctors because sometimes, it can be fatal. She also encourages others to seek another opinion if questions are not being answered.
In this episode, Melissa talks to Dr. Michael Gimbel, her plastic surgeon in Pittsburgh, PA. Dr. Gimbel addresses the different options available for reconstruction for women diagnosed with breast cancer, as well as the possible advantages and disadvantages. He addresses the current concern related to breast implants. Dr. Gimbel shares his preferred sequence of treatment when other therapies are needed for a patient. He discusses the different options available for nipple reconstruction when a woman is not a candidate for a nipple-sparing mastectomy. He shares how he helps to support women how are struggling emotionally in the process of their cancer diagnosis and decisions to be made. Dr. Gimbel provides tips for seeking out a qualified plastic surgeon.
SHOW NOTES:
Dr. Gimbel is an Assistant Professor at the University of Pittsburgh, Department of Plastic Surgery. He currently works at Magee Women's Hospital. He has a focus of general plastic surgery with a specific focus on breast surgery. Many of the women that show up at Dr. Gimbel's office arrive by necessity. A majority of his patients are active patients or survivors. Many patients are coming to learn about reconstruction options that can be completed at the time of surgery or at a later date.
Dr. Gimbel shares the different options for reconstruction to include implants, autologous surgery, and a hybrid of the two. At the consultation appointment, Dr. Gimbel assesses what a patient is a candidate for and what the best option may be. Some patients are a candidate for all three options while others may not be. One of the most important things in determining if someone is a good candidate and the best option for treatment is what the woman wants. Some women have already done research and have an idea of what they want and some are learning about the different options for the first time. If a patient is a candidate for all three options, Dr. Gimbel relies on what the woman wants as each person has different views on what is important.
The method of implant placement has branched into many different methods. The standard approach is a staged approach where a tissue expander is placed under the pectoral muscle and inflated over the course of several months. Then the expander is removed and replaced with an implant. The other methods for implants is acellular dermal matrix, where material is used on the inside to lessen the tightness of skin and to improve the shape. The third method is pre-pectoral, where material is placed over top of the pectoral muscle to create space for an implant.
The advantage is that all implants come in different shapes and sizes, and the patient can select the option she would like. The surgery to place the implant and recovery time is fairly quick. The disadvantages is that implants are man-made material and will not last forever. There is a risk of developing a leak. There is a 5-10% chance of developing some kind of issue within 10 years. The infection rate is approximately 10-15%. Some patients do not like the idea of having a foreign body inside their body. Other patients are worried about the previous scare in the 1990s with silicone-based implants.
The previous scare with implants in the 1990s was focused on silicone implants. It was suspected that silicone implants were causing many health-related issues such as lupus, autoimmune disease, or even cancer. Silicone implants were pulled from use for approximately 15 years and studied. There was no correlation found between the implants and health-related concerns. The FDA approved them for use again. The current concern is related to textured silicone implants and the correlation to ALCL, a type of lymphoma that can develop around specific areas of textured implants. It is rare and evident in approximately 1 in 10,000 to 1 in 30,000. The FDA has not yet pulled this type of implant but Dr. Gimbel and many other plastic surgeons have discontinued the use of textured silicone implants.
Autologous is the use of one's own tissue to recreate a breast or breasts. The most common place to obtained the donated tissue is the abdomen. The tissue has to be removed in a certain way with appropriate anatomy and with connect blood vessels. The tissue is taken as a block of tissue to recreate the breast and reconnect the blood vessels to bring the tissue back to life. The use of the abdominal tissue has been most successful with this method. Sometimes the tissue can be transferred from the abdomen without disconnecting the blood vessels. There can be significant trauma to the abdomen muscles during this surgery. A more typical method employs the use of microsurgery that causes little disturbance to the abdominal muscles. Sometimes people are not a good candidate to use their abdominal muscles for a number of reasons. In these cases, tissue can be borrowed from the inner thigh, outer thigh, and gluteal muscles; however, these are secondary options to the abdomen. With this type of surgery, the operation, hospital stay, and recovery time are longer. There is a scar on the abdomen and there is a 5% chance of developing a bulge in the abdomen. The advantage of this method is that it does not have the same disadvantages as implants. An infection can still occur but it typically does not harm the tissue. Your own tissue is more durable and seems to get better over time.
The hybrid option utilizes both an implant and the borrowing of tissue from another part of the body. For this option, the tissue typically comes from the latissimus muscle.
Many doctors have a different sequence of treatment. This requires tight communication with the breast oncology surgeon to find out what other treatments may be necessary. It is very common to have immediate reconstruction at the time of surgery; however, there are times when delayed reconstruction is more appropriate. For those who will require radiation as part of their treatment, delayed reconstruction may be a better option as radiation can impact the skin, displace the implant, and increases the rates of short- and long-term complications. Different surgeons do different things but Dr. Gimbel tries to avoid putting in implants for those that have already undergone radiation or when it is known that a patient will undergo radiation.
There are times when radiation is not expected at the time of surgery but after surgery, it is determined that radiation is needed. In this case, the expanders would be inflated as though an implant will be put it, the patient undergoes radiation, and then after several months post-radiation, the patient returns to discuss the next steps. Dr. Gimbel indicated that the appearance of the skin helps determine the appropriate method of reconstruction. If a patient's skins seems to have tolerated the radiation, the patient can move forward with the implant reconstruction. However, there has to be a clear understanding that there are still long-term risks such as capsulary contracture that can cause asymmetry, tightness, and discomfort. There can also be short-term risks to include the incision line not healing well or even opening up, as well as the risk for infection. If a patient presents shiny skin, tightness, and the implant is pushed in an upward position, these are signs that implant-based reconstruction should be reconsidered. The recommendation would be to use the abdomen muscles to recreate the breast or perform a hybrid procedure of using both implant and one's own tissue.
Nipple reconstruction is another part of the reconstructive process. Some women are candidates for nipple-sparing mastectomy, where the nipple is maintained and intact. However, it is typically numb. Many women, on the other hand, are not candidates for nipple-sparing mastectomy. There are several different options to recreate a nipple. One method is using one's own tissue to create a button and then tattooing of the areola. Regular tattooing is a flat tattoo of a nipple and areola. Three-dimension tattooing is a more sophisticated method that looks like a picture of a nipple to make it appear more realistic. Over the last 10 years, the availability of 3-D tattooing has increased.
When a woman comes into the office out of necessity due to a recent diagnosis, there is a tendency for her to be more emotional. Trying to understand the diagnosis, treatment, options, and prognosis can be overwhelming. Typically women are less emotional when undergoing a delayed reconstruction method. Dr. Gimbel shares that it is important to speak to women as though she is a family member. It is important to remind the woman that the first thing is to take care of the cancer. Dr. Gimbel attempt to gain an understanding of the state the woman is in and tailor the approach based on that.
Due to the vagueness of the word plastic surgeon, Dr. Gimbel recommends that a patient looks at the credentials of the surgeon. Sometimes patients think they are getting someone fully trained but that is not necessarily true. He suggests checking out the surgeon and being certain that the surgeon is a Board Certified Plastic Surgeon with the American Board of Plastic Surgeons, which is the official, validated training system for plastic surgeons. He recommends asking the surgeon what kind of practice he/she has, what kind of patients does he/she take care of in high quantity, does the surgeon perform a lot of breast reconstruction, and how often does the surgeon perform the different methods of reconstruction.
Jolie Sakata Panyon, an 8-year breast cancer survivor, stopped by the show to share her breast cancer journey. She was diagnosed at the age of 43 with stage 2A invasive ductal carcinoma. Diagnostic assessments prior to surgery indicated an earlier stage of cancer with no lymph node involvement but at surgery, the surgeon discovered the tumor had grown and spread to three lymph nodes. Jolie talks about her diagnosis, treatments, and side effects. She talks about the resiliency of her children and shares how having a supportive work environment helped in her recovery. Thanks for stopping by, Jolie!
SHOW NOTES:
Jolie was diagnosed in 2011 at the age of 43 with stage 2A invasive ductal carcinoma. The cancer had spread to three lymph nodes. Jolie was tested twice for the genetic mutation. The first time when she was first diagnosed and the second was after her mother had passed away from pancreatic cancer. Her results came back negative for a genetic mutation.
Based on diagnostic testing, Jolie was initially thought to have an earlier stage of breast cancer. However, in the three weeks between her diagnosis and surgery, the tumor had grown and had spread to three lymph nodes. This ultimately changed her course of treatment to include chemotherapy and radiation.
Given that the cancer was considered to be an early stage, Jolie's breast surgeon had recommended a lumpectomy to remove the tumor but Jolie opted for a double mastectomy. While not everyone was supportive of her decision, she feels that it was the best decision for her.
She underwent the double mastectomy with immediate placement of expanders for reconstruction. Following her surgery, she went through 8 rounds of chemotherapy. While the plan was for her to undergo radiation followed by reconstruction, Jolie's skin did not heal well and her skin was stretched so much that her scars opened up resulting in reconstructive surgery taking place sooner than anticipated. She had radiation following reconstruction.
Jolie shares her experience with chemotherapy and radiation. For her, chemotherapy was not terrible. She was able to work through chemotherapy and even ran a half marathon following her second round of treatment. Jolie shared that she got sick following her first round of treatment because she was not prepared. She had to be given an IV for fluids due to dehydration. She explained that while she attended a class for chemotherapy, she was just going through the motions because chemo was not expected to be a part of her treatment. She cut her hair following the first round of chemotherapy and had two coworkers that shaved their heads in an expression of support. She lost her hair following the second round. She recommends drinking lots of fluids, taking blankets, and taking things to occupy the time. During radiation, her skin had burned but she was able to manage this side effect with the use of aloe. She does have contracture and tightness of her skin where the radiation was concentrated and while she could opt for another surgery, this is something she can live with.
At the time of her diagnosis, Jolie had a son in kindergarten and a daughter in the 4th grade. She and her husband spoke to their children about cancer and got books from the American Cancer Society. Jolie explains that she only had one conversation with her children and they seemed to be fine after that. After losing her hair, her son did not want her to go to his school but quickly got over it.
In addition to her family, Jolie had a great support system with her work family. Her coworkers helped to alleviate some of the demands at work. They would take over some of her responsibilities so that she was not exposed to germs and illness. Jolie feels that having this support from her coworkers was instrumental in her recovery.
Jolie found dragon boating after chemotherapy at a My Hope Bag event. She has always participated in solo sports but enjoyed the group effort of dragon boating. While cancer is not the focus of the sport, she finds comfort in knowing that the ladies in the boat have gone through the same journey.
Through her experience with cancer, Jolie has learned that people deal with tragedy in different ways. She believed that if someone was not there for her during cancer, that the person must be a bad friend. She has changed her perspective and now understands that some people just don't know what to do or say when someone is diagnosed so they pull away. It is a reflection of the person's experience with cancer and does not necessarily make that person a bad friend.
Jennifer Craig, a 7-year breast cancer survivor, joined us on the podcast to share her breast cancer journey. She was diagnosed at the age of 33 years with ductal carcinoma in-situ with micro invasion. Jennifer went to her doctor looking to get some diet pills, which led to a series of tests. When prescribed a prolactin test, she began lactating green discharge from her nipples. She knew that something was not right. Despite being told that there was no need for a mammogram, Jennifer advocated that one be completed, which led to a biopsy and a diagnosis of breast cancer. Jennifer shares her story through her diagnosis and treatments, and how cancer has changed her. She shares that her kids were a major source of support for her.
SHOW NOTES:
Jennifer was diagnosed in August 2012 at the age of 33 with ductal carcinoma in-situ with micro-invasion. She described her cancer as early stage but very aggressive. There is no family history of cancer; however, her mother was diagnosed with cancer after Jennifer's diagnosis.
Jennifer had gone to the doctor to get some diet pills after her husband at the time pointed out that she had gained some weight. Her doctor recommended that she undergo some testing of her thyroid to rule out any potential concerns. The results indicated no concerns. Jennifer was then ordered a prolactin test that tricks the body into thinking it is pregnant. Jennifer had alarming levels, resulting in an emergency MRI. She was diagnosed with a pituitary tumor but there were no other concerns. Jennifer was experiencing lactation for her nipples that was green in color and knew that something was not right. In talking to the nurse, Jennifer asked to have a mammogram but was told that it was unnecessary because there was no family history of cancer and she was too young. However, Jennifer advocated having a mammogram. During the mammogram, doctors noted calcifications in her left breast but she was reassured that it was not breast cancer because there was no family history and she was too young. However, it did turn out to be cancer.
Jennifer underwent a lumpectomy with a bilateral breast reduction at the same time. She had an additional surgery shortly after to remove her lymph nodes. Jennifer went through 36 rounds of radiation therapy, which resulted in damage to her thyroid, fatigue, and severe burns. Still to this day, she does not feel she has fully regained back her energy and feels that she is a completely different person. Given that her cancer was estrogen and progesterone positive, she had surgery in January 2013 to remove her uterus, Fallopian tubes, and ovaries. She tried Tamoxifen for 5-6 months but suffered from brain fog and memory loss. Jennifer has had a total of 29 surgeries in 7 years with the most recent being in December 2018 for reconstruction.
Jennifer mentions that she did not have a support system around her. Her husband was not supportive and she got divorced. Her children, who were 7 and 10 years old at the time, were her major source of support. The experience brought her closer to her kids and they helped out where they could but she was still the primary provider for her family. She still had to get up, go to work, and function for her family.
She shares that having cancer completely changed her; it took her away. She does not do many of the things that she used to do. She has not dated or even tried to date since 2015. She talks about living in fear that cancer will return. Her whole life at this time revolves around her kids.
Jennifer advises others to not be afraid to ask for help. Cancer took away her independence for a period of time. She wishes that she had let her mother help her rather than doing everything on her own.
Lisa Hoppe, a 3 years breast cancer survivor and 8 year thyroid cancer survivor, stopped by the studio to share her story through breast cancer. At the age of 54 years, Lisa was diagnosed with Stage 0, Grade 3 noninvasive ductal carcinoma. She was experiencing bloody nipple discharge that she ignored for several weeks and thought it may have been chocolate ice cream stains. Lisa had gone in 6 months prior for her mammogram and the results indicated no concerns. Lisa shares how her experience with losing her sister to breast cancer helped her through her own journey, as well as her diagnosis, course of treatment, and recovery. She shares how her faith helped her push through this experience and offers several great tips for those who are newly diagnosed. Thanks for spending time with me, Lisa!
Ann Alexander, a 2-year breast cancer survivor, stopped by the show to share her story through breast cancer. She was diagnosed at the age of 57 with invasive lobular carcinoma. Ann had a CT scan of her abdomen and pelvis for possible kidney stones and during the scan, the tech caught a glimpse of something abnormal at her chest wall that had not been picked up on a traditional mammogram 10 months earlier. Ann talks about her diagnosis, course of treatment, and recovery. She shares how yoga helped her during her recovery and beyond. Thanks to Ann!