Welcome to Insight with Lise and Nichole Podcast. After coaching for more than 20 years, we've seen the link between peoples thoughts, actions and events. In this podcast, we explore individual journeys though obstacles, detours and change. You'll hear the stories within the story.
Todd Simms received his diagnosis and now has to wait for the next step. The global pandemic has changed things a little.
We will have to wait to hear the next part of the Simms' family story.
If you have a Pheochromocytoma or a Paraganglioma story you would like share, we would love to hear from you.
Diagnosis Discovery of a Rare Disease
For maybe the first time in the history of the Simms family, cancer has become a very good thing. They finally got a name for the mystery disease that they have been struggling with all this time. pheochromocytoma.
Pheochromocytoma
A pheochromocytoma (fee-o-kroe-moe-sy-TOE-muh) is a rare, tumor that develops in an adrenal gland. We have two adrenal glands —one located at the top of each kidney.Usually, a pheochromocytoma develops in only one adrenal glands. But tumors can develop in both.
The definition was taken from the website Mayoclinic.org
This week on Sitting in with the Simms’ the Simms family shares their story of diagnosis discovery.
The music in this epode is created by Grant Boyer Music.
Part of the story you will hear in the episode.
"There were lots of times when his energy levels would, would come and go, and he wouldn't have seen a pattern. I always would say to him, you're in the middle of it. So sometimes you Can't see you're just experiencing and reacting and responding and being and me a bit apart from it to look on it I could see patterns and some of the patterns were that he would cycle from like huge energy and tackling projects on weekends and then going in and knocking off 7-10 day stretches at work. And then and then that would cycle with times of I can't even put a shift in or I just have to sit here in the couch and recuperate from from nothing. I was starting to see that before the medical profession even got involved. So I'm starting to see some of those like cycles, okay, so to be to go from the family doctor level to an internist was a bit of a relief because I was I felt the validation of like, okay, a family doctor is also worried about my husband, this isn't just me being like something is up, something is up, something is up, the healthcare profession can kind of legitimize your concerns and that felt really good to go to the internist."
This is the first full episode of the mini series.
The Simms' family share what life was like before diagnosis.
The music in this episode is by Grant Boyer Music.
If you have a story to share, please contact us. We would love to hear from you.
In this new mini series, we explore what it's like to live with a rare disease.
The Simms' family will share what life was life before the diagnosis, the process as well as finally getting a diagnosis.
The music in this series is by Grant Boyer Music.
If you have a story to share, we would love to hear from you.