FASD Hope: Recent Episodes
fasdhope
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience. The mission of FASD Hope is to bring awareness, information and inspiration to those whose lives have been touched by a Fetal Alcohol Spectrum Disorder. Each week, Podcast Host- Natalie Vecchione- will speak with a variety of guests about different topics related to FASD and other Brain Based Diagnoses.
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 179 is discusses the upcoming 3 year anniversary of the FASD Hope podcast Series. Natalie and John Vecchione share what they've learned, their current struggles and the decision to take an unplanned break from FASD Hope.
"Be strong and take heart, all you who hope in the LORD." - Psalm 31:24
FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 178 welcomes back two-time guest, Lynn Alsup and celebrates the launch of her new book "Tinderbox: One Family's Story of Adoption, Neurodiversity, and Fierce Love".
From her book -
"Lynn Alsup is a social worker, spiritual director, and meditation teacher. Her three extraordinary, neurodivergent daughters led her to FASCETS, where she now trains parents and professionals in the Neurobehavioral Model - A paradigm that fosters the celebration and accommodation of neurodiversity. She lives with her family on the edge of the Chihuahuan Desert in Midland, Texas, building resilience and joy through writing, yoga, wide-open spaces, and snuggling her four-legged rescuer, Bryn the Bassador."
Listen to Lynn share the story behind her book, her family's transformation, and the story behind the book!
Episode Resources -
Lynn Alsup - https://www.lynnalsup.com/
You can purchase "Tinderbox: One Family's Story of Adoption, Neurodiversity, and Fierce Love" by Lynn Alsup wherever you purchase your books and at -
bookshop.org
https://bookshop.org/p/books/tinderbox-one-family-s-story-of-adoption-neurodiversity-and-fierce-love-lynn-alsup/19496217?ean=9781647425418
Amazon - https://www.amazon.com/Tinderbox-Familys-Adoption-Neurodiversity-Fierce/dp/1647425417
FASCETS - https://fascets.org/
FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 21 years of living experience.
Episode 177 highlights the work, advocacy, podcast and newly released book of Patti Kasper. Patricia Kasper, MA, MTh, Trainer & Neurobehavioral Coach is committed to improving children’s lives by providing practical tools to parents and professionals, who care for children with brain based differences. Patti has worked in the fields of mental health and child welfare for over 30 years and she has worked with hundreds of foster and adoptive families. She has led workshops in the areas of adoption, trauma and resiliency attachment and neurobehavior for several years. Patti’s other work, as a hospice chaplain, has fueled her fire for helping others to live life well, and end the cycle of intergenerational trauma. Patti recently completed her year, long training to become a Facilitator of the FASCETS neurobehavioral model. Listen to Patti share her journey, work, advocacy, podcast “Living With FASD” and her newly released book “Sip By Sip: Candid Conversations with People Diagnosed with Fetal Alcohol Spectrum Disorder (FASD)”. Episode Resources- Patti Kasper - https://patriciakasper.comcontact@patriciakasper.comThe "Living With FASD" podcast is available exclusively on Spotify podcasts. Also, video podcast episodes are available on You Tube as Patricia Kasper, Your FASD Coachhttps://www.youtube.com/@PatriciaKasperYourFASDCoach “Sip By Sip: Candid Conversations with People Diagnosed with Fetal Alcohol Spectrum Disorder (FASD)" by Patricia Kasper is available on Amazon.https://www.amazon.com/Sip-Conversations-Diagnosed-Spectrum-Disorder/dp/B0CGL4GSFX/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=&sr= FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://twitter.com/fasdhopeLinkedIn-https://www.linkedin.com/in/natalie-vecchione-17212160 HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 21 years of living experience. Episode 176 is a two part episode- Jennifer Wisdahl, COO of FASD United, shares an IMPORTANT FASD Legislative Update and important events during September FASD Awareness Month and future FASD United events. Part 2 of this episode is the last update for the Run FASD 2023 Virtual 5K with Rebecca Tillou of Run FASD. The Run FASD Virtual 5K (your way!) will be held from September 9-17, 2023. EPISODE RESOURCES - FASD United - https://www.fasdunited.org Instagram - https://www.instagram.com/fasdunited/ Facebook - https://www.facebook.com/fasdunited Run FASD - https://www.runfasd.org Instagram - https://www.instagram.com/runfasd/ Facebook - https://www.facebook.com/groups/489485015438968 FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://www.twitter.com/fasdhope HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 175 is a BONUS episode and welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "FASD and Neurocounseling”.
Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST).
This episode is a deep dive into neurocounseling and FASD. Some of the topics covered in this episode include: what is neurocounseling, psycho-physiology, psycho-education, the importance of understanding the neuro/bio/psychosocial connections, the potential benefits of neurocounseling with FASD and other brain based diagnoses, and a CALL TO ACTION for research about FASD & neurocounseling!
EPISODE RESOURCES - Dr. Jerrod Brown - jerrod01234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS)- https://aiafs.com/ Facebook - https://www.facebook.com/AIAFSAssoc Twitter - https://twitter.com/AIAFS2011 LinkedIn - https://www.linkedin.com/in/aiafs/
FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 174 welcomes back Dr. Jessica Rutherford (Spotlight on FASD podcast in the UK) of NOFASD UK and welcomes Ailsa Clarke of Valiant Minds Education.
Jessica Rutherford, Ph.D. is the Education Coordinator and Researcher with the National Organisation for FASD (UK) and she recently completed her Ph.D. She is an experienced Fetal Alcohol Spectrum Disorder (FASD) specialist focusing on areas surrounding educational engagement and support. Jessica is also the co-host (along with FASD Parent Advocate, Clare Devanney-Glynn) of the podcast Spotlight on FASD.
Ailsa Clarke is a parent to a young son with FASD. She was a high school teacher for seventeen years, until she realized that unless she left her job, her son’s transition to school was unlikely to be successful. In supporting his transition, she realized two things: firstly, that teachers have rarely been made aware of FASD in their training and secondly, that there is often a gulf of misunderstanding between parents and teachers which needs to be bridged by someone who understands the pressures of both roles. The result of this lived experience is Valiant Minds Education, which works collaboratively with caregivers, school staff and young people with FASD to ensure that they have practical supports and strategies to help them succeed in education.
In this enlightening episode, Jessica shares the following: Jessica's update on the completion of her Ph.D., her research and work as Education Coordinator with NOFASD UK, the development and impending launch of their CRITICAL FASD Educational Program, her connection with Ailsa and Valiant Minds and a CALL TO ACTION!
Ailsa Clarke, FASD Parent Advocate and Educator with Valiant Minds Education, also shares: her family's story, how her son is learning to advocate for himself, how her professional background as a teacher is a valuable asset in her dual role as parent / educator in supporting families of those with FASD and other brain-based diagnoses with Valiant Minds Education.
EPISODE RESOURCES -
Jessica Rutherford, Ph.D.
LinkedIn - https://www.linkedin.com/in/jessicarutherford1/
Email - j.i.rutherford@outlook.com
Jessica and Clare Devanney-Glynn's Podcast, Spotlight on FASD, is available anywhere you find your podcasts.
NOFASD UK-
https://nationalfasd.org.uk/
Facebook - https://www.facebook.com/NationalFASD
Instagram - https://www.instagram.com/nationalfasd/
VALIANT MINDS EDUCATION -
https://valiantmindseducation.com/
Facebook - https://www.facebook.com/profile.php?id=100094021083994
Instagram - https://www.instagram.com/valiantmindseducation/
LinkedIn - https://www.linkedin.com/in/valiantmindseducation/
Email - info@valiantmindseducation.com
Phone - +44 (0)7917731436
FASD HOPE -
Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 173 welcomes back Kathryn "Kat" Meinhardt (Episode 99 - "Kansas FASD Support Network") of Dream Acres: An FASD Community. Kathryn is a licensed social worker, foster/adoptive/bio mom, TBRI® Practitioner and FASD speaker/educator. She, along with her husband Cliff, parent 11 children 9 of whom experienced various levels of prenatal exposures. It was out of the realization that the teens would be needing supportive living and an initial plan of tiny houses on the farm for just their children that the idea of a community was birthed and Dream Acres came to life.
Dream Acres is a nonprofit organization and a proud FASD United Affiliate. Dream Acres is developing a brand new, supported living environment for individuals (ages 18-25) living with FASD. The small, family-style living will allow 2-3 residents to have private rooms and common areas in each cabin. Dream Acres will take great care to evaluate every applicant, so that everyone will be set up for success. On-site job training options will also fit the various interests of each resident. Potential career option and training includes food services, animal care, landscaping, agriculture, aquaponics and more!
NOTE - If you are interested in applying for yourself or a loved one to Dream Acres, please use the code "FASD Hope" to waive the application fee!
EPISODE RESOURCES:
Dream Acres -
http://dreamacresfasdcommunity.org Email - info@dreamacrescommunity.org
Facebook - https://www.facebook.com/DreamAcresFASDCommunity Instagram - https://www.instagram.com/dreamacresfasdcommunity/
Dream Acres is a proud sponsor of the Run FASD 2023 Virtual 5K!
The Dream Acres FASD Mom's Retreat will be held November 3-5, 2023 at DREAM Acres. https://dreamacresfasdcommunity.org/index.php/fasd-moms-retreat/
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY
with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty one years of living experience.
Episode 172 features Carl Young of FASD North Dakota and Family Services Network, Inc. Carl Young, a self-described introvert, calls North Dakota home, where he lives with his bride of 29 years, and is close to his five children and three grandchildren. Carl got his start in advocacy more than 15 years ago when he had to fight for care for his youngest son's mental health issues. Over time, he became active in various boards and committees at the local, state and national levels. In 2018, he and his wife founded the Family Services Network, Inc, which would become the home of FASD- North Dakota.
For the last 10 years, he has been a lobbyist and educator for his state legislature in all matters related to FASD and mental health. Recently, he was honored to be granted a fellowship at the University of Utah for work on neurodivergent issues, specifically related to FASD. Carl has been on disability since 2013, with a life changing auto-immune disorder called Systemic Lupus. He may need to take frequent breaks, but doesn't let the disease slow his efforts to help others.
Learn about the exciting growth, legislation and supports of FASD North Dakota, an FASD United Affiliate!
EPISODE RESOURCES - FASD North Dakota - www.fasdnd.com Facebook - https://www.facebook.com/FASDNorthDakota LinkedIn - https://www.linkedin.com/in/fasdad Twitter - https://twitter.com/NdCarl carl@ndctn.org 701-214-3921
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH"
“Hope for the FASD Journey is a faith-based, membership support community for parents and caregivers of individuals prenatally exposed to alcohol and other substances. Led by Natalie Vecchione of the FASD Hope Podcast and Sandra Flach of the Adoption & Foster Care Journey Podcast— 2 moms living the FASD experience. With more than 20 years of adoptive parenting each, Natalie & Sandra offer abundant knowledge and resources to provide hope to families on this journey.“
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience.
Episode 171 is an extraordinary bonus episode with award winning author / speaker / musician/ FASD Self Advocate legend, Liz Kulp. Liz has written 3 books, through her adolescence through adulthood, about her living with an FASD. She is a musician and performed at the Minnesota State Capitol. Liz is a wig artist and she began a program called “Liz’s Kitchen” to create videos for people with memory issues. FASD Hope is honored to give Liz a platform to share her journey. This conversation took place while Liz is in the hospital, awaiting a transplant. Episode Resources : Liz Kulp's Books- The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects https://a.co/d/2gzPRY3 Braided Cord: Tough Times In and Out https://a.co/d/jkx9TmY New Beginning: Better Than This https://a.co/d/4X3zAEN Jodee Kulp - Red Shoes Rock - https://redshoesrock.com/ Facebook - https://www.facebook.com/RedShoesRock Instagram - https://www.instagram.com/redshoesrock_fasdaware/ Jodee's Books- Our FAScinating Journey: Keys to Brain Potential Along the Path of Prenatal Brain Injury https://a.co/d/ef8kDrz The Whitest Wall (Bootleg Brothers) (Mom's Choice Awards Recipient) https://a.co/d/2sEOqp0 Broken Heart: Dealing with Feelings of Loss and Understanding Grief https://a.co/d/ezINYIM FASD HOPE RESOURCES -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience.
Episode 170 welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "Energy Drinks and FASD".
Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST).
This episode is a deep dive into energy drinks and FASD. Some of the topics covered in this episode include: the importance of understanding what effects that energy drinks have in all spheres of health, how energy drink consumption is detrimental to physical / emotional / cognitive functioning, how energy drinks can exponentially affect dysregulation (physical and emotional) with brain-based / whole body diagnoses (particularly FASD) and potential resources and strategies to implement protective factors towards a healthier eating lifestyle.
- NOTE - This episode is for informational purposes and resource sharing purposes only. It is NOT intended to take the place of a medical professional who is knowledgeable in nutrition and FASD.*
EPISODE RESOURCES -
Dr. Jerrod Brown - jerrod1234brown@live.com
American Institute for the Advancement of Forensic Studies (AIAFS)- https://aiafs.com/
Facebook - https://www.facebook.com/AIAFSAssoc
Twitter - https://twitter.com/AIAFS2011
LinkedIn - https://www.linkedin.com/in/aiafs/
FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn-
https://www.linkedin.com/in/natalie-vecchione-17212160
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 20 years of living experience. Episode 169 is a BONUS EPISODE with Jennifer Wisdahl , COO of FASD United . Jenn shares an IMPORTANT FASD Legislative Update about The FASD Respect Act and upcoming events with FASD United, which include: - The FASD Respect Act S.1800 / H.R. 3946 which has been introduced in both the US Senate and US House of Representatives - The Vancouver Conference in Seattle in Spring 2024 - The National FASD Impact Week / FASD at 50 - September 18-21, 2023 - The FASD and Education Survey - Run FASD 2023 Virtual 5K EPISODE RESOURCES -
FASD United - https://www.fasdunited.org The FASD Respect Act
https://nofaspolicycenter.org/the-fasd-respect-act/
The Vancouver Conference in Seattle
https://fasdunited.org/the-vancouver-conference-in-seattle/
National FASD Impact Week -
https://fasdunited.org/national-fasd-impact-week/
FASD & Education Survey -
https://www.surveymonkey.com/r/FASDEducation
Run FASD Virtual 5K https://www.runfasd.org FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn-
https://www.linkedin.com/in/natalie-vecchione-17212160
HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about FASD (Fetal Alcohol Spectrum Disorder), through the lens of parent advocates with over 20 years of living experience. Episode 168 highlights CAMP FASD with Nicholas Tassone (President and Co-Founder) and Emma Melendez-Scherer (Chief Administrative Officer). The purpose of CAMP FASD is to provide children with FASD a positive and safe environment in which to build skills that will assist them in everyday life. Accordingly, their contributions are recognized and appreciated, thereby creating a constructive experience and increased self-image. The vision of CAMP FASD is to be recognized as a leading resource for FASD by children and their families, demonstrated by the differences made in their lives. (Source - CAMP FASD) In this episode, Nick and Emma share: how CAMP FASD was formed, the growth of CAMP FASD, details about the CAMP FASD experience and how listeners can learn more about CAMP FASD for 2024. (Note -The Registration for this year's 2023 CAMP FASD is full.) Episode Resources : CAMP FASD - Instagram: https://www.instagram.com/fasdcamp (@fasdcamp) Facebook: https://www.facebook.com/fasdcamp @ CAMP- A FASD Community)
Website link: https://www.fasdcamp.org/ Email at admin@fasdcamp.org
Direct Link for Camp FASD Registration Form:
https://forms.gle/6jG7d1LkRzSnYrSA7 Donation Link for CAMP FASD: https://www.fasdcamp.org/contribute FASD Hope -
Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter- https://www.twitter.com/fasdhope HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience. In this two part episode, Jennifer Wisdahl, COO of FASD United first shares an IMPORTANT FASD Legislative Update and upcoming happenings of FASD United. Part 2 of this episode is a kick off for the Run FASD 2023 registration and information discussion with Rebecca Tillou of Run FASD. The Run FASD Virtual 5K (your way!) will be held from September 9-17, 2023 EPISODE RESOURCES - FASD United -https://www.fasdunited.orgInstagram - https://www.instagram.com/fasdunited/Facebook - https://www.facebook.com/fasdunited Run FASD -https://www.runfasd.orgInstagram - https://www.instagram.com/runfasd/Facebook - https://www.facebook.com/groups/489485015438968 FASD Hope -Instagram - https://www.instagram.com/fasdhope/Facebook - https://www.facebook.com/fasdhope1Twitter - https://www.twitter.com/fasdhope HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience.
Episode 166 welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "Excessive Sugar Consumption and FASD.
Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST).
This episode is a deep dive into excessive sugar consumption and FASD. Some of the topics covered in this episode include: how excessive sugar consumption is detrimental to physical / emotional / cognitive/ regulatory aspects of health, how Prenatal Alcohol Exposure can affect the ability to metabolize sugar, why excessive sugar consumption is craved by individuals with brain-based / whole body diagnoses (particularly FASD) and potential resources and strategies to implement a healthier eating lifestyle.
- NOTE - This episode is for informational purposes and resource sharing purposes only. It is NOT intended to take the place of a medical professional who is knowledgeable in nutrition and FASD.*
EPISODE RESOURCES -
Dr. Jerrod Brown - jerrod1234brown@live.com
American Institute for the Advancement of Forensic Studies (AIAFS) -
https://aiafs/com/
Facebook - https://www.faceboook.com/AIAFSTraining
Instagram - https://www.instagram.com/aiafsassoc/
Twitter - https://twitter.com/AIAFS2011
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 20 years of living experience.
Episode 165 welcomes back Laura Bedard (Ep. 149 / September 2022) of MASSFAS, an FASD United Affiliate. Laura recently published her second book titled "My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders". Laura is also a Family Navigator with FASD United.
In this hope-filled episode, Laura shares: her family's FASD journey, the inspiration behind her second book, how this book is a resource on different levels, FASD United's "Family Navigator" program (and how many people have been assisted through the Family Navigator program), advocating in the trenches of her family's FASD journey and words of encouragement and hope.
"FASD United Family Navigator is, confidential, and free. We help caregiver, parents, birth parents, professionals, and individuals with FASD. This also includes people who are pregnant or intending to become pregnant that may have questions about alcohol or substance use. We offer one-on-one peer support, referrals to resources and services, information about prenatal alcohol exposure."
EPISODE RESOURCES -
FASD United - https://fasdunited.org
Family Navigator Program through FASD United -
https://fasdunited.org/family-navigator/
The Family Navigator Phone Number that Laura shared in this episode is -
202-785-4584
Mondays - Fridays between 9 am and 10 pm Eastern Time
Laura's Books -
"My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders" by Jennifer Robinson, Ph.D, LMHC and Laura Bedard, MFA
https://www.amazon.com/FASD-Feelings-Childrens-Experience-Disorders/dp/1977260489/ref=sr_1_1?crid=2NIMHG3V6G0DP&keywords=my+fasd+feelings&qid=1683310079&sprefix=my+fasd+feelings%2Caps%2C89&sr=8-1
"My Adoption Feelings: A Guide to Children's Experience with Adoption" by Jennifer Robinson, LMHC and Laura Bedard, MFA
https://www.amazon.com/My-Adoption-Feelings-Childrens-Experience/dp/1478773057/ref=sr_1_1?crid=TR63PXTZVMNX&keywords=my+adoption+feelings&qid=1683310147&sprefix=my+adoptin+feelings%2Caps%2C100&sr=8-1
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience.
It's been over 6 months since Natalie Vecchione has released an episode, which was thought to be the last episode. After much prayer and contemplation, Natalie realized that FASD Hope was needed in the FASD Community, even if the frequency of episodes would be reduced.
In this episode, Natalie has a heart to heart conversation with Jennifer Wisdahl, COO of FASD United. Natalie shares her heart and her journey of the past 6 months and what pulled her back to FASD Hope. Jennifer shares a FASD Legislative Update, the MANY new programs and updates with FASD United and upcoming happenings of FASD United. Welcome back to FASD Hope!
"Hope is being able to see that there is light despite all of the darkness."
- Bishop Desmond Tutu
EPISODE RESOURCES -
FASD United -
https://www.fasdunited.org
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -
https://www.justicefororphansny.org/hope-community
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 163 is our FINAL episode of FASD Hope. For over two years, we have been blessed to be a voice for giving IMPORTANT guests a platform to share their journeys, experience, research, clinical work, legislative activity, philanthropy and inspiration for the FASD Community! Thank you for listening to our small but mighty family podcast about FASD. We're certainly not experts and we're still on this journey, too. It’s now time for us to focus even more on our family, navigate what lies ahead, and face uncertainty with faith and fortitude.
We're SO thankful to be ending this amazing journey by leaving over 160+ episodes of FASD Hope! Thank you for listening, take care and always have HOPE!
"The LORD will fight for you; you need only to be still." - Exodus 14:14
Sincerely,
Natalie and John Vecchione
FASD Hope
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
November is National Adoption Month and FASD Hope is honored to highlight Andrew Bridge in Episode 162.
Leaving foster care at eighteen, Andrew Bridge attended Wesleyan University, then graduated from Harvard Law School and he was awarded a Fulbright Fellowship. He began his legal career representing children in mental health facilities across Alabama. His work as an attorney and an advocate enforced children's constitutional rights to be free from staff abuse and to receive meaningful psychiatric care.
Andrew returned home to Los Angeles as the CEO of The Alliance for Children's Rights. He defended children at MacLaren Hall, where he was once confined. He won the right for Los Angeles' 60,000 foster children to speak publicly about their treatment. He investigated the excessive removal of African-American babies from their parents, which led to one of the first government initiatives to stop it. Andrew is the Co-Founder of National Adoption Day. He went on to lead one of California's largest recruiters of foster and adoptive parents.
Called to address the unjustified placement of foster children in mental institutions, Andrew has served as a Senior Advisor to the State of Illinois. His educational work resulted in the creation of New Village Girls Academy, California's first all-girls high school for parenting teens. Andrew serves on Arizona's Foster Care Review Board and he consults with child welfare systems and foundations.
Andrew is also the author of the New York Times AND Los Angeles Times BEST SELLER book, "Hope's Boy: A Memoir". The Washington Post named "Hope's Boy" one of it's Best Books of the Year, with a review that called it "filled with vivid scenes and empathetic description...compulsively readable".
In this THOUGHT-PROVOKING episode, Andrew shares: his personal journey and lived experience as a foster child in the Los Angeles Foster Care System, his journey in becoming an attorney and child rights advocate, insights and discussion points from "Hope's Boy", the punitive nature that was / still exists in child welfare systems, his thoughts on how to educate those in the child welfare system about FASD and other brain-based diagnoses, the beginnings of "National Adoption Day" in 2000 and how it's grown, his current work and initiatives and words of hope and encouragement.
EPISODE RESOURCES -
Andrew Bridge -
Hope’s Boy - https://hopesboy.com
LinkedIn - https://www.linkedin.com/in/andrew-bridge-667860210/
FASD Hope Resources -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy
BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 161 is the FINAL FASCETS Friday Episode in which Episode 81 Guest, Lynn Alsup of FASCETS and her daughter, Clare, share how their family was transformed by the FASCETS Neurobehavioral Model. Lynn was our first "FASCETS Friday" guest in Episode 81 - airdate September 14, 2021.
In this ENLIGHTENING episode, Lynn and Clare share the following: Lynn's work in FASCETS and the progress of her upcoming memoir, their family's FASD journey / life before Clare's FASD diagnosis, learning about the FASCETS Neurobehavioral Model and how it TRANSFORMED their family, how their family is doing now, Clare's accomplishments / important insight and words of hope and encouragement.
FASCETS RESOURCES -
FASCETS Website - https://fascets.org/
Facebook - https://www.facebook.com/FASCETS
Instagram - https://www.instagram.com/fascets_inc/
Twitter - https://twitter.com/FASCETS2
FASD Hope Resources -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy
BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 160 celebrates the AMAZING advocacy, work and fellowship of the Rural FASD Support Network (Ontario, CA). The Rural FASD Support Network was founded by a small group of volunteers with personal knowledge of & lived experience with FASD in rural Ontario (Canada). Today's conversation is with Rob More, Secretary of Rural FASD. Rob and his wife Shelley are proud parents of three amazing young adult children impacted by FASD. Rob, Shelley and four other dedicated volunteers are the co-founders of the Rural FASD Support Network of Eastern Ontario, which is currently the largest, nonprofit, lived disability experience in Canada following "Nothing For Us Without Us".
In this HOPE-FILLED EPISODE, Rob shares the following: the history of the Rural FASD Support Network, the exponential growth & key developments of Rural FASD, the diversity & representation of Rural FASD, the exciting legislative update of the National FASD Framework Legislation in Canada (and how Rural FASD and others advocated on Parliament Hill on October 20th), the blessings (and challenges) of living in a rural area as a family of those with FASD and words of hope and encouragement.
"As you have therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving." - Colossians 2: 6-7
EPISODE RESOURCES -
Rural FASD -
https://ruralfasd.ca/
email - ruralfasd@gmail.com
Instagram - https://www.instagram.com/ruralfasd/
Twitter - https://twitter.com/FasdRural
FASD Hope Resources -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
“HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH
TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy
BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Returning to FASD Hope is regular guest and friend in FASD advocacy, Dr. Jerrod Brown in Episode 159 - "All About FASD - FASD and Bullying Part 2". Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).
In this second episode about FASD and Bullying, Jerrod further explores the following topics: why it's critical to have a good knowledge of FASD / bullying, the links between bullying and self-destructive actions, cyberbullying, how bullying erodes mental health in individuals with FASD (and why they are already susceptible with mental health diagnoses), the further implications of bullying to already existing trauma and attachment issues, where to look for resources and words of encouragement and hope.
EPISODE 159 RESOURCES -
Dr. Jerrod Brown - jerrod01234brown@live.com
American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com
Facebook - https://www.facebook.com/AIAFSAssoc
Twitter - https://twitter.com/AIAFS2011
FASD Hope Resources -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 158 of FASD Hope explores a controversial topic: the School to Prison Pipeline (STPP). The STPP or SPP is the significantly increased tendency of students from disadvantaged backgrounds, students with brain-based diagnoses, developmental disabilities and BIPOC students to become involved in the juvenile justice system. In today's episode, discussing the STPP and it's implications for students with brain-based diagnoses (including FASD, Autism, ADHD, etc.) is Dr. Deanna Westedt.
Dr. Deanna Westedt received a doctorate in curriculum and instruction and spent 22 years in education. Currently, she homeschools and provides guidance for families, both homeschooled and traditionally schooled. She has a special passion for twice-exceptional students and providing learning that goes outside of a classroom box. Her insights into twice-exceptionality have been featured in publications and venues such as Psychology Today, Future First Education, and CABE. Dr. Westedt’s research was featured in AERA 2020. However, her best accomplishment is that of the growth her boys made during their time in homeschooling so far, where her ideas on how to accommodate their special combination of giftedness and learning disabilities paid off. She currently provides coaching and writing sessions, as well as specializes in early literacy that can be blended into any type of setting. Additionally, she provides parent sessions, diagnostics, and flexible differentiation training for homeschool/ educational organizations.
In this highly informative and thought-provoking episode, Dr. Westedt shares the following: her professional background, her family's journey, her passion for creating academic equity for all students, how she became aware of the STPP, how students with brain-based diagnoses (including FASD) become even more susceptible to getting involved in the STPP, addressing how the traditional cycle of discipline reinforces the STPP (especially for students with developmental disabilities & brain-based diagnoses), how a systemic shift is required to break this cycle, how to better support those students involved in the STPP / JJ systems and her words of hope for listeners.
"Trust in the LORD with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths." - Proverbs: 5-6
EPISODE RESOURCES -
Dr. Deanna Westedt - https://deannawestedt.com/
info@deannawestedt.com
Facebook - https://www.facebook.com/drwestedt
Instagram - https://www.instagram.com/dr.deannawestedt/
LinkedIn - https://www.linkedin.com/in/deanna-westedt-ed-d-64a2741b1/
FASD Hope Resources -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
HOPE FOR THE FASD JOURNEY ONLINE COMMUNITY - Co-Lead By Natalie Vecchione and Sandra Flach -
Hope for the FASD Journey is a faith-based, membership support community for parents and caregivers of individuals prenatally exposed to alcohol and other substances. Led by Natalie Vecchione of the FASD Hope Podcast and Sandra Flach of the Adoption & Foster Care Journey Podcast— 2 moms living the FASD experience. With more than 20 years of adoptive parenting each, Natalie & Sandra offer abundant knowledge and resources to provide hope to families on this journey. “
TO LEARN MORE ABOUT THE “HOPE FOR THE FASD JOURNEY COMMUNITY” OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
October is National Bullying Prevention Month. Episode 157 welcomes back Candice Dugger (Season 1, Episode 39, Feb. 25, 2021) to highlight her CRITICAL work in bullying awareness / prevention / education through "Bullied, Broken, Redeemed". Candice is a nationally-recognized anti-bullying expert, author, speaker and trainer. Candice and her team at Bullied, Broken, Redeemed specialize in equipping leaders, parents and youth on all aspects of Gen-Z Bullying. Candice also is the co-founder of "Reimagine Education Conference", which specializes in helping families transition to homeschool. Finally, Candice is the founder of Kids Business Academy, an organization that comes alongside parents to teach the essentials of entrepreneurship.
In this INFORMATIONAL and INSPIRATIONAL episode, Candice explores the following: Candice's family's journey with bullying / starting BBR, statistics, facts about bullying & kids / teens with neurodiversity, myths about bullying, how bullying is a cultural epidemic, key points about bullying, how BBR and her other initiatives support and help heal children / teens who have been through bullying and her words of hope and inspiration for listeners.
"Therefore comfort each other and edify one another, just as you also are doing." - 1 Thessalonians 5:11
EPISODE RESOURCES -
Candice Dugger - https://candicedugger.com/index.html
Instagram - https://www.instagram.com/cedugger/
Bullied, Broken and Redeemed Facebook - https://www.facebook.com/bulliedbrokenredeemed
LinkedIn - https://www.linkedin.com/in/candice-dugger-1a606952/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
FASD Hope Podcast is celebrating it's 2 year anniversary ( aka "Podversary")! FASD Hope launched on October 1, 2020. We are airing this milestone episode (a day early) on Friday, September 30th - International Podcasting Day. FASD Hope is thrilled to be active and embraced in both the FASD and Podcasting Communities! Episode 156 is also a first for FASD Hope, in that our "Most Frequent Guest", Jennifer Wisdahl of FASD United is this episode's GUEST HOST. Jennifer and Natalie have a heart to heart conversation with much warmth, hope and joy!
EPISODE RESOURCES -
FASD United -
https://www.fasdunited.org
Jennifer Wisdahl of FASD United -
wisdahl@fasdunited.org
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 155 welcomes back the AMAZING mother / daughter team of Maryelen and Paula McPhail of Oshays Brain Domain (formerly Oshays FASD). Maryelen is a FASD parent advocate and Paula is an FASD Self-Advocate. Together, they are the leadership behind Oshays Brain Domain - a Social Enterprise based in Ayr, Scotland with a mission of supporting families / children with FASD. Since their previous episode (#66 - airdate July 13, 2021), Maryelen and Paula have wonderful updates about: their global expansion, supports, programs and FASD advocacy initiatives through Oshays Brain Domain!
EPISODE RESOURCES -
Oshays Brain Domain / FASD - https://www.oshaysfasd.org/
Facebook - https://www.facebook.com/oshaysbraindomain
Instagram - https://www.instagram.com/oshays_fasd/
Twitter - https://twitter.com/OshaysFASD
LinkedIn - https://www.linkedin.com/in/maryelen-mcphail-fasd-969663165/
Email - info@oshays.org
Phone - +44 (0) 01292 261094 (Scotland)
The FASD Article that Paula wrote / shared -
https://metro.co.uk/2022/09/09/my-mums-pregnancy-drinking-caused-me-lasting-damage-17307228/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
September is FASD Awareness Month! FASD Hope is thrilled to welcome back previous guest (Episodes 89, 112) and FASCETS Facilitator, Suzanne Emery for FASCETS Friday! Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director.
Today's FASCETS Friday episode topic is "FASD in Spouses". Suzanne has experience working with couples where one of the spouses or partners has a Fetal Alcohol or Neurobehavioral Diagnosis. Given the prevalence of FASD and Other Brain Based Diagnoses, Suzanne shares how determining a suspected FASD or other Neurobehavioral Diagnosis is critical with couples who are encountering tension and unresolvable challenges in their relationships.
Suzanne also discusses the following topics: exploring FASD/NB as the root if there are difficulties in a marriage / relationship, how to know if a spouse were on the FASD spectrum, why seeking a diagnosis (or ruling out an FASD) would be critical in a marriage / relationship, what to do if you suspect your spouse has an FASD, support or training that can help and stories of hope.
NOTE - If you are interested in learning more about an online support group for spouses of those adults with FASD, email Suzanne at suzemery28@gmail.com
EPISODE RESOURCES-
FASCETS - https://fascets.org/
Facebook - https://www.facebook.com/FASCETS
Instagram - https://www.instagram.com/fascets_inc/
Twitter -https://twitter.com/FASCETS2
To learn more about the online workshop opportunities given by FASCETS, click on the below link for more information or to register.
https://fascets.org/workshops/
Note - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
It's September- FASD Awareness Month! Episode 153 of FASD Hope jumps into the ring of AWESOME FASD Advocacy with Jeremy Elliott and William G. of "Embrace Our Journey". Jeremy Elliott is a martial arts teacher, champion and owner of United Family Martial Arts in Niagara Falls, Ontario (Canada). He is also a Top 500 Pro Wrestler. Jeremy created the "Embrace Our Journey" FASD Advocacy campaign with his teen godson, William G, an FASD self-advocate. Together, Jeremy and Will are champion FASD advocates!
In this MOTIVATIONAL episode, Jeremy and William discuss: the beginnings of "Embrace Our Journey", the MANY FASD Advocacy events they have for September and October, how martial arts and wrestling has made such a powerful impact (and support) in William's life, the benefits of finding a martial arts school that can be a good fit for students with FASD (or other brain based diagnoses) and their words of hope for listeners.
EPISODE RESOURCES -
United Family Martial Arts (Canada) - https://www.ufmaniagara.com/
Jeremy Elliott - ufmaniagarafalls1@gmail.com
Facebook - https://www.facebook.com/UFMANiagara
https://www.facebook.com/JeremyNickVickersElliott
Instagram - https://www.instagram.com/jeremyelliottnf/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with more than twenty years of lived experience.
Episode 152 welcomes back two-time guest, Shannon Iacobacci of "Embracing the Brain". Shannon is a mom of multiple children with varying developmental disabilities, including Fetal Alcohol Spectrum Disorder (FASD). As an FASD specialist, Shannon helps families living with FASD. She also helps students with executive functioning struggles, attention, behaviors, memory, social & adaptive skills, and mental health needs.
Shannon's in-depth experience includes being a FASD Specialist, FASD Public Speaker/Trainer for multiple organizations, school districts, Child and Family Services, foster family agencies, & universities, a Certified facilitator - FASCETS Neurobehavioral Model, 18 + years IEP experience.
In this RESOURCEFUL and HELPFUL episode, Shannon explores the following topics: her business / services through "Embracing the Brain", IEP / 504 basics, the differences in IEP's for students with FASD vs. other brain based diagnoses, top accommodations that are seen on 504s/IEPs of students with FASD, tips for parents / caregivers when going into 504 / IEP meetings and her words of hope and encouragement (especially for the new school year).
"Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit."
- Romans 15:13
Shannon's previous episodes on FASD Hope were -
Episode 5 -"FASD and Teens"
Episode 26 - Climbing Down Holiday Mountain"
EPISODE RESOURCES -
Embracing the Brain website - www.EmbracingTheBrain.com
Email - Shannon@EmbracingTheBrain.com
Instagram - https://www.instagram.com/shannon.iacobacci/
LinkedIn - https://www.linkedin.com/in/shannon-iacobacci-92982016a/
Facebook - https://www.facebook.com/EmbracingTheBrain
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through he lens of parent advocates with over twenty years of lived experience.
Episode 151 is airing on September 9th - International FASD Awareness Day titled "FASD at 50" with Dr. Kenneth Lyons Jones and Andrea "Andy" Torzon, LMFT of the University of California San Diego School of Medicine's Institute for Fetal Alcohol Spectrum Disorders Discovery. This important episode highlights returning guest, Dr. Kenneth Lyons Jones, who is considered the leading expert in FASD and who was one of two doctors at the University of Washington, who first identified Fetal Alcohol Syndrome (FAS) in the United States in early 1973. Dr. Jones is joined by Andrea Torzon, LMFT, a family therapist who works with Dr. Jones at the UC San Diego's Institute for FASD Discovery.
As the 50 year anniversary of the first identification of FAS approaches, this special episode is titled "FASD at 50" and shares highlights from Dr. Jones' Keynote presentation "FASD at 50" from NOFASD Australia's "The FASD Forum '22 Virtual Conference". In addition to Dr. Jones' highlights from this important presentation, Andrea "Andy" Torzon shares her work and professional perspective of working with families at the UC San Diego Institute for FASD Discovery and through her nonprofit organization "Twinkle, Twinkle LIttle Farm". Together, Dr. Jones and Andy discuss the following topics: the stigma that continues to surround FASD 50 years after the identification of FAS, the "4 Critical Issues" in understanding and moving forward in the FASD community, the importance of reframing wording and discussions to reduce stigma associated with FASD, the importance of establishing FASD Centers of Excellence in each state and their words of hope and encouragement.
EPISODE RESOURCES - Dr. Kenneth Lyons Jones -https://www.rchsd.org/doctors/kenneth-lyons-jones-md/ https://betterbeginnings.org/who-we-are/leadership/ https://betterbeginnings.org/who-we-are/leadership/dr-kenneth-lyons-jones-md/ https://medschool.ucsd.edu/som/pediatrics/Divisions/dysmorphology/about/Pages/Dysmorphology_Teratology_Division_Members.aspx https://pediatrics.med.ubc.ca/2018/03/20/a-retrospective-look-at-43-years-of-fetal-alcohol-spectrum-disorder-fasd-how-did-we-get-here-from-where-we-started/
https://www.facebook.com/UCSDcbb/ https://twitter.com/ucsdcbb https://www.instagram.com/ucsdcbb/
Andrea "Andy" Torzon -
https://betterbeginnings.org/what-we-do/patient-care/fetal-alcohol-spectrum-disorder-clinic/programs/
Twinkle, Twinkle Little Farm Nonprofit -
LinkedIn - https://www.linkedin.com/in/andrea-andy-torzon-576b2283/
Facebook - https://www.facebook.com/twinkletwinklelittlefarm
Instagram - https://www.instagram.com/twinkletwinklelittlefarm/
YouTube - https://www.youtube.com/channel/UCNPSUMYBTDDObZvdXhZ_mdQ
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
FASD Hope is HONORED to be a part of TEAM RUN FASD 2022, which is Coach Rebecca Tillou, Jenn Wisdahl, Susan Elsworth and Natalie Vecchione. Episode 150 is “Let’s Go”, an update, important information & the official launch for this 2nd Annual Virtual 5K for FASD! The Run FASD Virtual 5K will be held September 9th - 25th, 2022. It's not too late to register, registration is open until September 14th, 2022. Listen to this final update of Run FASD 2022 Virtual 5K and learn how you can participate, promote and support this 2nd Annual Virtual 5K for FASD!
EPISODE RESOURCES - Run FASD Virtual 5K website - https://runfasd.org/ Instagram - https://www.instagram.com/runfasd/?hl=en Facebook - https://www.facebook.com/groups/runfasd FASD United - https://fasdunited.org/
FASD HOPE RESOURCES -FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
September is FASD Awareness Month! Episode 149 highlights Kristen Eriksen and Laura Bedard of MASS FAS, an FASD United Affiliate. Kristen and Laura are both moms of children with FASD and united in their advocacy in their leadership of MASS FAS. In this ENCOURAGING episode, Kristen and Laura share: how they became parent advocates (from their respective families' journeys), how MASS FAS has grown in the past year, what they have learned as FASD parent advocates, their advice for parents who want to take that leap into FASD parent advocacy, the many offerings of MASS FAS for Massachusetts (and beyond), their upcoming work for MASS FAS and their words of encouragement and hope.
EPISODE RESOURCES -
MASS FAS website - https://www.massfas.org/
Facebook - https://www.facebook.com/massfetalalcoholsyndrome
Instagram - https://www.instagram.com/massfas1/
Twitter - https://twitter.com/massfas1
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
It's September, which is FASD Awareness Month! Episode 149 welcomes back Dr. Jerrod Brown to continue our series within the series “All About FASD Special Edition- A Panel Discussion". This month, Jerrod will be answering a variety of questions / subtopics within FASD. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).
In this FASD RESOURCE AND INFORMATION PACKED episode, Jerrod answers questions from FASD podcasters around the world!
Our FASD Podcast Panelists include: Kurt Lewis, Pregnancy and Alcohol, The Surprising Reality Podcast Gilberto Spencer-Wired Differently - Rewire Your Brain Podcast Robbie Seale, FASD Family Life Podcast Sandra Flach - The Adoption and Foster Care Journey Podcast Natalie Vecchione- FASD Hope Podcast
Episode 148 Resources - Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com/ Facebook - https://www.facebook.com/AIAFStraining Instagram - https://www.instagram.com/aiafsassoc/ Twitter - https://twitter.com/AIAFS2011 LinkedIn - https://www.linkedin.com/in/aiafs/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAABntPzUB2qCg_fmbOMKXQbRSlzI9pSfdRG4
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 147 is the second of a two part episode special in preparing for "Back to School / Back to Homeschool" - FASD and Bullying - Part 1 with regular guest, Dr. Jerrod Brown. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).
In this episode, Jerrod discusses the following topics: the basics of bullying, risk factors that cause individuals with FASD (and other brain based diagnoses) to be more susceptible to bullying, the protective factors, what to know when helping individuals with FASD who are being bullied, symptoms and traumatic effects of bullying, where to look for resources and words of encouragement and hope. Note - the second Bullying episode with Dr. Jerrod Brown will be aired in October.
Episode 146 Resources -
Dr. Jerrod Brown - jeffod1234brown@live.come
American Institute for the Advancement of Forensic Studies (AIAFA) - https://aiafs.com/
612-250-5432
Facebook - https://www.facebook.com/AIAFSAssoc
Twitter- https://twitter.com/aiafs2011
LinkedIn - https://www.linkedin.com/in/aiafs/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 146 is the first of a two part episode special in preparing for "Back to School / Back to Homeschool" - FASD and Friendship Skills with regular guest, Dr. Jerrod Brown. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).
In this episode, Jerrod explores the following topics: the basics of friendship skills, what skills are required in making and maintaining friends, the risk factors that individuals with FASD (and other brain based diagnoses) have in not having healthy friendships, the protective factors for helping individuals with FASD make and maintain friendships, advice and words of encouragement and hope.
Episode 146 Resources -
Dr. Jerrod Brown - jeffod1234brown@live.come
American Institute for the Advancement of Forensic Studies (AIAFA) - https://aiafs.com/
612-250-5432
Facebook - https://www.facebook.com/AIAFSAssoc
Twitter- https://twitter.com/aiafs2011
LinkedIn - https://www.linkedin.com/in/aiafs/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Welcome to the official book launch of "It's OK to Be You - Living Well with FASD or Other Disabilities" by Kenny LaJoy! Episode 145 celebrates new author, Kenny LaJoy and his new book, which is a valuable resource for ANYONE in the FASD community, neurodiversity community...and many more!
Episode 145 is the "story behind the book". Kenny shares: his adoption journey, his FASD journey, his journey in becoming an independently published author, his faith, his hopes for his new book and how "It's OK to Be You" is an affirmation and resource for those with FASD, their families / loved ones or anyone wanting to learn more through the lens of a FASD self-advocate.
EPISODE RESOURCES -
"It's OK to Be You - Living Well with FASD or Other Disabilities" by Kenny LaJoy
Available now on Amazon
https://www.amazon.com/dp/B0B7QP8PFC/ref=cm_sw_em_r_mt_dp_3FZJ6DAVTV6JJF2YEFEH
Contact Kenny at itsoktobeyoubook@gmail.com
Blue Collar Homeschool - https://www.bluecollarhomeschool.com/
Buckaroos Slices and Scoops - https://www.buckaroosmontrose.com/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 144 is the celebration of an exciting announcement - "Hope for the FASD Journey Community" with Sandra Flach and Natalie Vecchione. Together, Sandra and Natalie have formed a faith-based, FASD parent and caregiver support group community. Through their combined decades of lived experience as moms (of now young adults) of those with FASD, their resources through their years podcasting experience and Sandra's nonprofit organization, Justice for Orphans.....Sandra and Natalie are creating the "Hope for the FASD Journey Community" to support families of those with FASD / Brain Based Diagnoses.
In Episode 144, Natalie and Sandra discuss: how their friendship has grown, Sandra provides an update about her FASCETS Facilitator Training, how God planted the seed in both Sandra and Natalie for creating the "Hope for the FASD Journey" Community and what is included in the "Hope on the FASD Journey" Community Membership.
The "Hope on the FASD Journey" Community will officially begin it's first support group meeting on Tuesday, September 20, 2022, however interested individuals / family members may sign up now for this membership community through the following link -
https://www.justicefororphansny.org/hope-community
EPISODE RESOURCES -
Hope for the FASD Journey Community: Membership & Information
https://www.justicefororphansny.org/hope-community
Justice for Orphans -
https://www.justicefororphansny.org/home
Sandra's Podcast - "The Adoption and Foster Care Journey" Podcast - available anywhere you find your podcasts.
https://www.justicefororphansny.org/podcast
FASD HOPE RESOURCES -
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
FASD Hope is THRILLED to be a part of Team Run FASD 2022 - comprised of Coach Rebecca Tillou, Jenn Wisdahl, Susan Elsworth and Natalie Vecchione. Episode 143 is an update that highlights getting set and important information for this 2nd Annual Virtual 5K for FASD! The Run FASD Virtual 5K will be held September 9th - 25th, 2022.
EPISODE RESOURCES -
Run FASD Virtual 5K website -
https://runfasd.org/
Instagram - https://www.instagram.com/runfasd/?hl=en
Facebook - https://www.facebook.com/groups/runfasd
FASD United - https://fasdunited.org/
FASD HOPE RESOURCES -FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 142 is titled "Amazing Advocacy" and highlights Yvonne Williams and her incredible advocacy contributions to the FASD Community. Yvonne started her FASD journey when she adopted her daughter in 2007. Over the years, she became not only a champion for her daughter, but also for the FASD Community. In 2014, she started the blog "Our Sacred Breath" to share her involvement with the Red Shoes Rock Campaign and the creation of 99 Days to FASDay information series, which has been running annually since 2017. In addition, she served on the Advisory Committee for the Ontario (Canada) Provincial FASD Website and she has moderated several online FASD Groups over the years. In 2018, Yvonne and her daughter started sharing their stories in caregiver groups, workshops, conferences and launched a Redbubble Shop to create and sell FASD swag and merchandise. Currently, she remains active in low-key advocacy activities and she works part-time for Jeff Noble, as his external specialist.
EPISODE RESOURCES -
Our Sacred Breath Blog -
https://oursacredbreath.com/
Facebook - https://www.facebook.com/allaboutfasd
Instagram - https://www.instagram.com/allaboutfasd/
Twitter - https://twitter.com/oursacredbreath
99 Days to FASDay
https://oursacredbreath.com/2017/09/09/99-days-to-fasday-master-post/
Red Shoes Rock -
https://redshoesrock.com/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 141 welcomes back Joel Sheagren and welcomes Jodee Kulp and Justen Overlander of the Embraced Film Project - Joel Sheagren (Season 1, Episode 22) is the Director and Co-Producer of the Embraced Film Project, Justen Overlander (Writer / Director / Producer of many films and series, including "The Chosen") and Jodee Kulp (Founder of Red Shoes Rock, Author, FASD Champion Advocate) are both Co-Producers.
"The documentary weaves together honest interviews, surprising data, and a scripted narrative inspired by true case studies. Beyond the film, our goal is to create supplemental educational materials to better educate families, teachers, law enforcement, and health providers about this under-the-radar epidemic.
The title, Embraced, is inspired by the way Director and Co-Producer Joel Sheagren embraces his son Sam’s FASD, and for the countless others who face serious lifelong challenges. Those with FASD have never had advocacy like we’re providing through this project." (Source - embracedmovement.org)
Listen to Joel, Jodee and Justen share how the Embraced FASD Film Movement has grown, fundraising efforts, goals for 2022 (and beyond) and their hopes in this amazing film and movement.
"Jesus said to him, 'You shall love the LORD your God with all your heart, with all your soul, and with all your mind.' This is the first and great commandment. And the second is like it: 'You shall love your neighbor as yourself.' On these two commandments hang all the Law and Prophets." - Matthew 22:37-40
EPISODE RESOURCES -
Embraced -
https://www.embracedmovement.org/
Facebook - https://www.facebook.com/EmbracedFASD/
Instagram - https://www.instagram.com/embracedfasd/?hl=en
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
In Episode 140, FASD Hope welcomes Christian Hancock, M.S., CCC-SLP , who is the Creator of Communication with Connection, Owner of Heart and Soul Speech and a Board Member of the North Texas FASD Network.
Christian is a certified speech-language pathologist, specializing in pediatric feeding disorders, language disorders, and caregiver/child relationships. She is the owner of Heart & Soul Speech, serving families at home in North Texas. Her practice focuses on routine-based language intervention, responsive feeding therapy, and sustainable support for families. Christian presents caregiver workshops and continuing education seminars and webinars for therapists on trauma-informed care, FASD, feeding disorders, and language learning. She is the creator of Communication with Connection, a philosophy and practice that empowers families with ways to develop language, find mealtime peace, and build relationships through simple everyday moments. She currently serves on the Board of Directors for LifePath Systems Foundation and North Texas FASD Network.
In this RESOURCE-FILLED episode, Christian discusses: how she became involved with the FASD population as a SLP, why Speech Therapy is SO vital in the care/support of infants/children/teens/young adults with FASD, her work in the FASD community, her work with North Texas FASD Network and her words of hope and encouragement.
EPISODE RESOURCES -
Heart & Soul Speech: www.heartandsoulspeech.com Facebook https://www.facebook.com/heartandsoulspeech Instagram https://www.instagram.com/heart_soul_speech/?hl=en LinkedIn https://www.linkedin.com/in/christian-hancock-58960a166/
North Texas FASD Network: https://northtexasfasd.org/ Facebook @NorthTexasFASDNetwork (private group, ask to join) Instagram https://www.instagram.com/northtexasfasd/?hl=en
FASD HOPE RESOURCES -
FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
FASD Hope is THRILLED to be a part of Team Run FASD 2022 and this episode highlights the growth, exciting updates and important information of this 2nd Annual Virtual 5K for FASD! This episode features: Run FASD Coach- Rebecca Tillou, Jenn Wisdahl and Susan Elsworth. Listen to Rebecca, Jenn and Susan share how Run FASD has grown, their hopes in this one-of-a-kind Virtual 5K and hope in what Run FASD 2022 will do for the FASD community... and beyond!
This year's Run FASD 2022 Registration Options:
Option 1 - $35 - Full Registration - Medal, T-Shirt and Race Tag
Option 2 - $20 - T-Shirt
Option 3 - $15 - Race Medal
(Race Tags can also be purchased for $5)
EPISODE RESOURCES -
RUN FASD -https://runfasd.org/
Facebook - https://www.facebook.com/groups/489485015438968
Instagram - https://www.instagram.com/runfasd/
FASD United - https://fasdunited.org/
FASD HOPE RESOURCES -
FASD Hope - https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Welcome to Season 3 of FASD Hope! FASD Hope is honored to welcome back FASD parent advocate, Lindsey Munns.
Lindsey Munns is a parent advocate for FASD. She attended the University of Utah, where she got her degree in Community Policy & Consumer Studies. She also studied education, is a TBRI practitioner, and is currently finishing up her FASCETS facilitator certification.
She is a mom of four, including two on the FASD spectrum, which is how Lindsey became a parent advocate. Along with her husband, she is passionate about spreading awareness about the dangers of alcohol during pregnancy. Lindsey is the founder of "FASD Furfighters", a service dog organization specifically for those with FASD. FASD Furfighters is also a team of dogs spreading FASD awareness.
In this INSPIRATIONAL episode, Lindsey gives the following updates: her family's journey, her FASD Advocacy work in Florida (and beyond), FASD legislative efforts in Florida, her FASCETS and TBRI training, FASD Furfighters, FASD Florida, the importance of becoming an FASD parent advocate while parenting "in the trenches" and her words of hope.
"Have I not commanded you? Be strong and of good courage; do not be afraid, nor be dismayed, for the LORD your God is with you wherever you go." - Joshua 1:9
Episode 138 Resources :
FASD Furfighters - https://fasdfurfighters.org/ Instagram - https://www.instagram.com/fasdfurfighters/
FASD Florida - https://www.instagram.com/fasd.florida/
FASD Awareness Fighters - https://www.justgiving.com/team/FASDAwarenessFighters
Lindsey's last episode on FASD Hope was Episode 19 - “Advocating Coast to Coast".
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 137 is the Season 2 Finale, titled "Hope is Gritty" (Title Source - Jillana Goble). FASD Hope Co-Founder / Executive Producer / Host Natalie Vecchione shares her heart and what she has learned about hope in her journey as a mom of a young adult with an FASD.
"I wait for the LORD, my whole being waits, and in His word I put my hope."
- Psalm 130:5
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold’s a master’s degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She’s passionate about getting the faith community -as well as the community at large- to link arms with the state’s overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon.
In these hope-filled & uplifting episodes, Jillana discusses the following:
Part 1 - her family’s journey, founding “Every Child Oregon”, her hopes for her upcoming book "A Love-Stretched Life", what she has learned about FASD & how it’s impacted her family.
Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement.
"He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God." - Micah 6:8
EPISODE RESOURCES -
Jillana Goble -
https://jillana-goble.com/
https://jillana-goble.com/books/
Instagram - https://www.instagram.com/jillanagoble/?hl=en
Every Child Oregon -
https://everychildpdx.org/about-us/our-story/
Facebook - https://www.facebook.com/everychildoregon
Instagram - https://www.instagram.com/everychildoregon/?hl=en
LinkedIn - https://www.linkedin.com/company/every-child-oregon/
Twitter - https://www.twitter.com/EveryChildOR
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold’s a master’s degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She’s passionate about getting the faith community -as well as the community at large- to link arms with the state’s overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon.
In these hope-filled & uplifting episodes, Jillana discusses the following:
Part 1 - her family’s journey, founding “Every Child Oregon”, her hopes for "A Love-Stretched Life", what she has learned about FASD & how it’s impacted her family.
Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement.
"He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God." - Micah 6:8
EPISODE RESOURCES -
Jillana Goble -
https://jillana-goble.com/
https://jillana-goble.com/books/
Instagram - https://www.instagram.com/jillanagoble/?hl=en
Every Child Oregon -
https://everychildpdx.org/about-us/our-story/
Facebook - https://www.facebook.com/everychildoregon
Instagram - https://www.instagram.com/everychildoregon/?hl=en
LinkedIn - https://www.linkedin.com/company/every-child-oregon/
Twitter - https://www.twitter.com/EveryChildOR
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
BONUS MENTAL HEALTH MONTH EPISODE!
May is Mental Health Awareness Month and Episode 134 shines a light on Jess Ronne! Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of Unseen, and caregiver advocate. She is founder and executive director of The Lucas Project—a non-profit dedicated to providing recognition and respite for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound special needs. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest book, Blended with Grit and Grace.
In this critically important episode, which airs in conjunction with the release of "Unseen: Caregiver Documentary", Jess shares the following: her parenting / family's journey, their family's challenges, becoming a ROCK STAR advocate for the Parent Caregiver Community, the importance of caregiver mental health, her many initiatives (including the new Unseen Caregiver Documentary", her faith in her journey, key facts about parent caregivers and her words of hope and encouragement.
EPISODE RESOURCES - Jess Ronne https://www.jessplusthemess.com/
Facebook - https://www.facebook.com/coffeewithcaregivers Facebook - https://www.facebook.com/caregiverdoc/ Instagram - https://www.instagram.com/jessplusthemess/ LinkedIn - https://www.linkedin.com/in/jessica-ronne-4b412670/ Twitter - https://www.twitter.com/jessplusthemess
The Unseen Caregiver Documentary, which features The Ronne family, is to view online from May 20-26th, 2022. For more information or to purchase a ticket - https://caregiverdoc.com/ FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and Episode 133 features The Reel Hope Project and Abby Marino, who is the Director of Operations and Outreach at this Minnesota nonprofit organization. "The Reel Hope Project focuses on creating recruitment profile videos for foster youth with no chance of reunification. We work with counties and adoption agencies to find foster kids their forever families. Each video we create highlighting a child’s story helps to solidify the reality that foster youth enter the child welfare system through no fault of their own." (Source - The Reel Project)
Abby Marino is the Director of Operations and Outreach at The Reel Hope Project, a Minnesota nonprofit organization creating recruitment profile videos for foster youth with no chance of reunification. With a heart for amplifying nonprofit narratives specific to vulnerable populations, Abby enjoys supporting the vision of foster care youth finding their forever families. She oversees operating procedures at The Reel Hope Project and appreciates the full circle of her role in coordinating shoot days with dedicated social workers and ultimately connecting prospective families to begin the adoption licensing process. Abby initiates big picture outreach and expansion opportunities, and works closely with each new state lead as the organization grows beyond the Midwest.
Episode 133 highlights the following: Abby's experience as a sibling of a young adult with FASD and her professional experience, the history and development of The Reel Hope Project, initiatives and upcoming events for The Reel Hope Project, how The Reel Hope Project has supported the foster care community and words of hope and encouragement.
"Test all things; hold fast what is good." - 1 Thessalonians 5:21
EPISODE RESOURCES -
The Reel Hope Project
https://www.thereelhopeproject.org/
info@thereelhopeproject.org
Facebook - https://www.facebook.com/thereelhopeproject/
Instagram - https://www.instagram.com/reel_hope/
LinkedIn - https://www.linkedin.com/company/thereelhopeproject/
Twitter - https://twitter.com/reelhopeproject
Phone - 612-888-0494
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 131 features Hannah Bender of Foster Hope NY, which is Foster Care Support Ministry based in Syracuse, NY. Foster Hope's Mission is to "ignite the hearts of their communities, businesses and churches to advocate for & meet the needs of children and families in foster care."
Foster Hope NY provides monthly support groups, community events, business impact partners and a foster closet. Hannah shares the resources provided by Foster Hope NY, how it's grown in the past year and upcoming events.
"Pure and defiled religion before God and the Father is this: to visit orphans and widows in their trouble, and to keep oneself unspotted from the world." - James 1:27
EPISODE RESOURCES -
Foster Hope NY
https://www.fosterhopeny.org
hannah@fosterhopeny.org
Instagram - https://www.instagram.com/fosterhopeny/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and the voices of those individuals who have been in Foster Care are so CRITICAL in our community. Episode 132 features Miranda B., an adult FASD self-advocate, who was also a youth in Foster Care in British Columbia, Canada. Miranda's journey and story is EXTREMELY important in the conversation of Foster Care Awareness and Support. Miranda is now an adult living in British Columbia and she is a photographer and runs an online support group for adults with FASD. Through her online support group, she hopes to provide support and encouragement for other adults with FASD. Her goal is to educate and provide awareness of FASD and speaking out about the injustices that face so many youths in Foster Care.
EPISODE RESOURCES -
Miranda B. -
mandy-gcorp@hotmail.com
Miranda on Facebook - https://www.facebook.com/MandyGraffmations
Miranda on Instagram -
https://www.instagram.com/mggraff22
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is National Foster Care Month, a time to acknowledge and support children, youth, families and professionals in the foster care system. FASD Hope is honored to have Ann Yurcek of Red Shoes Rock and Digging Deeper as the guest of Episode 130.
Ann Yurcek is a writer, mentor, speaker, and advocate for professional, caregivers and individuals in the exceptional needs communities. She is a strong advocate for children with special needs in the foster care and adoption system. Ann and her husband Jim are the loving parents of twelve children, seven of twelve children have special needs. Their daughter, Becca, taught them how to make a difference for Mac, child number twelve. Mac is a medical marvel and Furry: The Little Penguin That Could is written in the hope of supporting inclusion for children living with trauma, physical, emotional and intellectual challenges and features them both "Rocking Their Red Shoes".
Ann is the founder and prior administrator of Parenting FASD Kids and Parenting Children with FASD Digging Deeper Support Groups for caregivers and parents living with children who have brain and body challenges due to prenatal alcohol exposure. She shares and enlightens parents and caregivers with her incredible journey at her website - www.ParentingComplexChildren.com and she co-directs the International Red Shoes Rock Stop FASD campaign.
In 2006, Ann authored the Dove and Mom's Choice Gold Award Winning Memoir, "Tiny Titan: Journey of Hope". Her new children's books, "Furry: The Little Penguin That Could" and "Furry: The Little Penguin Who Cares". Ann believes if we embrace diversity in Kindergarten, we have the opportunity to lessen bullying and build understanding and acceptance for everyone and the concept of Emotional Support Partners for kids. Everyone matters!
In this heartfelt and inspirational conversation, Ann discusses: their family's journey, their family's FASD and Foster Care journeys, her decades-long legacy in the FASD community, the over 428+ comorbid medical conditions associated with FASD, her books, her strong faith and her words of encouragement and hope.
"Those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Isaiah 40:31
EPISODE RESOURCES -
Red Shoes Rock - https://redshoesrock.com/
Furry The Penguin- https://furrythepenguin.com/
Facebook - https://www.facebook.com/RedShoesRock
https://www.facebook.com/parentingcomplexchildren
Instagram - https://www.instagram.com/redshoesrock_fasdaware/?hl=en
Etsy Store -
https://www.etsy.com/shop/MacFurryRockRedShoes?ref=shop_sugg
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
FASD Hope is honored to welcome Kathryn "Kay" Kelly in Episode 129, titled "A Legacy in FASD and Law". Kathryn Kelly, called Kay by most who know her, came to the University of Washington after an extensive career in criminal justice. She worked for nine years as a probation officer for the state of California, and for twenty years as a federal probation officer. She was retrained as a mitigation specialist and served for three years as part of a team assembled by the Capital Habeas Unit of the Federal Public Defender in Los Angeles to represent inmates on Death Row seeking redress of their death penalty sentences.
In 2001, Kay joined the Fetal Alcohol and Drug Unit (FADU) at the University of Washington, working with Dr. Ann Streissguth. With a grant from the Robert Wood Johnson Foundation, she and Dr. Streissguth established the FASD Legal Issues Resource Center. In that role, Ms. Kelly has planned and/or participated in numerous trainings for judges, defense attorneys, prosecutors and other court professional throughout the United States, and in numerous foreign countries. Since 2013, she has organized a series of conferences about FASD and the law held in conjunction with the biennial UBC - Vancouver International Conference on FASD.
Ms. Kelly was instrumental in the organization of the first forensic FASD diagnostic team, FASDExperts, and in the passage of an American Bar Association Resolution on FASD in 2012.
Ms. Kelly is also a Research Coordinator for a National Institute of Alcohol Abuse and Alcoholism (NIAAA)-funded five year project: Fetal Alcohol Spectrum Disorders in Adults: Health and Neurobehavior. Ms. Kelly is a Board member of the FASD United Affiliate - Washington.
In this ENLIGHTENING episode, Kay discusses the following: her work and contributions in the FASD community, her amazing work with Dr. Ann Streissguth / FASD Legal Resource Center, her current projects and initiatives....and words of experience, encouragement and hope for parents and caregivers.
EPISODE RESOURCES -
Kathyrn "Kay" Kelly - faslaw@uw.edu
Tel- 206-616-5408
https://adai.uw.edu/staff_members/kay-kelly/
University of Washington - FADU
https://www.washington.edu/research/research-centers/fetal-alcohol-and-drug-unit/
FASD Resolution - ABA
https://www.americanbar.org/groups/public_interest/child_law/resources/attorneys/fasd-resolution/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 128 welcomes Emily Rusnak and highlights her amazing advocacy through MC FARES and The FASD Collaborative Project. Emily Rusnak, Ph.D., CCC-SLP is the founder and project coordinator for the FASD Collaborative Project, a cross-organization international initiative to increase high-quality training and support options for caregivers, self-advocates, and professionals in the FASD community. Dr. Rusnak is also the vice president for Michigan's FASD United affiliate and has served on the Executive Council for FASD United.
In this enlightening episode, Emily discusses the following topics: her professional background and her family's journey, MC FARES, The FASD Collaborative Project, upcoming events and words of encouragement and hope.
EPISODE RESOURCES -
MC FARES -
https://www.mcfares.org/
Twitter - https://twitter.com/MCFARESNOFASMI
The FASD Collaborative Project -
https://www.fasdcollaborative.com/
Facebook - https://www.facebook.com/FASDCollaborative
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 127 features Tom and Amanda Dyer, Creators / Directors / Producers, of the upcoming documentary "Unseen: How We're Failing Parent Caregivers and Why It Matters". Tom and Amanda share what inspired them to create this MUCH NEEDED documentary, what they learned in making the "Unseen Caregiver Documentary" and words of hope for parent caregivers.
"The Unseen Documentary film follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical health. It's a common story among parent caregivers: the isolation, uncertainty about the future, lack of options , and a never-ending daily to-do list means the role of caregiver overpowers nearly ever other facet of life. Video diaries from diverse caregivers featured in the film illustrate this universality, while interviews with mental health experts and policy / legal advocates provide a broader view on the societal impacts."
Objectives of the Unseen Documentary Film include:
-
Give an unfiltered glimpse into the lives of parent caregivers and their real challenges.
-
Shed light on how difficult it can be to get support and solutions.
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Establish strategic partnerships to enable real change.
The Global Online Premiere of the "Unseen Caregiver Documentary" will be held May 20-26, 2022. See the below for links / more information.
EPISODE RESOURCES -
Website: https://caregiverdoc.com/ Premiere Event: https://caregiverdoc.com/premiere/ Facebook: https://www.facebook.com/caregiverdoc/ Instagram: https://www.instagram.com/caregiverdoc/ FASD HOPE -
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 126 is with "4 Paws For Ability". 4 Paws for Ability enriches the lives of people with disabilities by placing life changing service dogs. 4 Paws for Ability is a nonprofit organization, founded in 1998 and has placed over 1600 service dogs with individuals (and their families) with disabilities. To meet this objective, 4 Paws for Ability breeds dogs for their service program with their health, temperament,, and potential skills in mind. In this episode, Kelly Camm (Development Director) and Laurie Hodne (Parent of a Child with FASD / Family with a Service Dog) discuss the following: the history of 4 Paws for Ability, Laurie's journey as a mom of a child with an FASD, some of the techniques / therapeutic benefits of service dogs, how Laurie's daughter (and family) dramatically benefitted and improved since the placement of their service dog and words of hope and encouragement for listeners.
EPISODE RESOURCES -
4 Paws for Ability
https://www.4pawsforability.org/
Facebook - https://www.facebook.com/4pawsforability/
Instagram - https://www.instagram.com/4pawsforability/
Twitter - https://twitter.com/4PawsForAbility
LinkedIn - https://www.linkedin.com/company/4-paws-for-ability-inc/
YouTube - https://www.youtube.com/channel/UC0M1yrIxG3BIyknZRCeRlNw
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 125 welcomes back the "Dynamic Duo" of Susan Shepard Carlson, Former First Lady of Minnesota and Chair of the FASD United Legislative and Policy Committee and Jenn Wisdahl, FASD Policy and Training Center Coordinator. Together, Susan and Jenn provide an important update of The FASD Respect Act HR4151 / S2238, the progress of the bill, the exciting FASD legislative momentum picking up in various states, ways to advocate for the bill and why NOW is the most important time to reach out to your two senators and representative about The FASD Respect Act and their words of hope and encouragement for the FASD community
IMPORTANT - You can text your 2 senators and 1 representative in the US to share your support and ask for their co-sponsorship / support of The FASD Respect Act HR4151 / S2238
TEXT TO CONNECT -
-
TEXT THE WORDS: SIGN PRVJQX to : 50409
-
Follow the instructions when you receive the reply.
For more information about TEXT TO CONNECT -
https:///nofaspolicycenter.org/text-your-support-for-the-fasd-respect-act/
EPISODE RESOURCES -
For More Information about The FASD Respect Act (or potential FASD legislation happening in your state in the US) -
https://nofaspolicycenter.org/the-fasd-respect-act/
Jenn Wisdahl -
wisdahl@fasdunited.org
202-601-2530
FASD United -
http://fasdunited.org/
Facebook - https://www.facebook.com/fasdunited
Instagram - https://www.instagram.com/fasdunited/
Twitter - https://twitter.com/FASDUnited
LinkedIn - https://www.linkedin.com/company/fasd-united/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 124 highlights “The FAS Project Netherlands” with Luke Schut (Project Coordinator) and Dami Munter (Foster Mother & Parent Advocate).
The FAS project is part of non-profit organization ‘Het Witte Bos’, which initiates transmedial projects on the cutting edge of journalism, art and society. The FAS-project started as a journalistic initiative, but eventually developed into a big, multimedia awareness campaign, showing the potentially dangerous consequences of alcohol consumption during pregnancy. By storytelling, the FAS Project raises attention to a relatively unknown problem in a personal way. The FAS-project started in 2013 and launched with the book FAS-kinderen (Children with FAS). The FAS-project will continue until at least 2025, under the name FAS2025. In the past years the project developed and gained a wider reach & more impact. FAS2025 tells the story of Isiah, Lorenzo, Marcella, Mila and Jasmijn, following their journey towards adulthood for ten years. Their stories are told by a collection of stories, portraits and mini-documentaries. To give children with FAS(D) a face, make FAS(D) less abstract and to tell what FAS(D) means to them and how it impacts their lives. The project also consists of expositions, books, a podcast, a college tour to inform future professionals about FAS, readings at professional organizations who (may) come in contact with FAS(D), and The Buddy Project. Almost all of the materials of The FAS Project are translated in English/have English subs. However, the podcast is in Dutch.
In Episode 124, Luke & Dami share: the history of The FAS Project, Dani’s journey as a foster mother learning about FASD, the many initiatives offered by The FAS Project, FASD in the Netherlands, an excerpt from the book “Children With FASD: An Insight Into Their Lives” by Allard de Witte and Joost Bos, and words of encouragement and hope.
EPISODE RESOURCES -
The FAS Project -
https://fasproject.nl/en/
The FAS Project - Book - "Children With FASD: An Insight Into Their Lives" by Allard de Witte and Joost Bos
https://fasproject.nl/en/book/
The FAS Project - Films -
https://fasproject.nl/en/films/
The FAS Project -
Het Witte Bos Schippersgracht 1-3 1011 TR Amsterdam The Netherlands
info@fasproject.nl 020-2212960
Facebook - https://www.facebook.com/thefasprojectinternational
Instagram - https://www.instagram.com/the_fasproject/
LinkedIn - https://www.linkedin.com/company/het-fas-project/
YouTube - https://www.youtube.com/channel/UC5UVp3YsIILE2yeGISu_z5Q
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of Parent Advocates with over nineteen years of lived experience.
Episode 123 is a BONUS EPISODE and welcomes back Louise Gray, CEO and Sophie Harrington, COO of NOFASD Australia to announce the first-ever FASD Forum '22 - Virtual FASD Conference. In this episode, Louise and Sophie discuss the presenters, resources, presentations and newest FASD Research offered in this highly accessible and resourceful 2 day conference. Conference attendees will also have the benefit of accessing all presentations for up to 90 days after the end of this event.
The FASD Forum '22 - FASD@50 will be held from May 13-14, 2022 AEST
To learn more or to register for this online conference, visit the NOFASD Australia website at -
https://www.nofasd.org.au/
NOFASD Australia -
Facebook - https://www.facebook.com/NOFASDAustralia
Instagram - https://www.instagram.com/nofasd.australia
Twitter - https://twitter.com/NOFASDAustralia
LinkedIn - https://www.linkedin.com/company/nofasdaustralia/
FASD Hope -
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with other nineteen years of lived experience.
FASD Hope welcomes back Episode 62 Guest, Dr. Vanessa Spiller of Jumpstart Psychology, Author of "Explained By Brain: The FASD Workbook for Parents, Carers and Educators" and Creator of the “Explained By Brain Online FASD Training and Community”. Dr. Vanessa Spiller is a Clinical Psychologist, based in Australia, with over 20 years of clinical experience. She works therapeutically, using a Feedback Informed Approach with adults and young people with families and young people on issues such as anxiety, adjustment to change, trauma, grief and loss. Dr. Spiller also works with families and young people with FASD. Dr. Spiller has also worked in several Australian universities and provides lectures and professional development activities in areas such as professional practice, child / adolescent work and adult psychology and ethics. Dr. Spiller offers the rare trifecta of FASD experience as an FASD Clinician, FASD Educator and FASD Parent Advocate.
In this hope-filled, resource-packed episode, Dr. Spiller discusses the following topics: the work she has been doing since her 2021 FASD Hope episode, her new online, FASD training "Explained By Brain", who can benefit from this online FASD training, the "3 Streams of Content" framework of this online training, benefits of this online training, how to learn more / sign up for this training and her words of hope and encouragement.
The 3 Streams of Content in the "Explained By Brain Online FASD Training are: FASD Information, Complex Behavioral Symptoms and Focus on Parents / Caregivers.
EPISODE RESOURCES -
Dr. Vanessa Spiller - www.jumpstartpsychology.com
Explained By Brain Online FASD Training - https://sites.google.com/view/explainedbybrain-startpage/home
The book - "Explained by Brain: The FASD Workbook for Parents, Carers and Educators" by Dr. Vanessa Spiller
https://www.amazon.com/Explained-Brain-Workbook-Educators-everything/dp/0995353212/ref=sr_1_1?crid=2NA9E3EKH6293&keywords=Explained+By+Brain+FASD&qid=1648501837&sprefix=explained+by+brain+fasd%2Caps%2C591&sr=8-1
Resources -
https://www.jumpstartpsychology.com/EBBdownloadspodcastsvideos2021.html
Video -
https://www.youtube.com/watch?v=tK_6Mdnpk5k
Instagram - https://www.instagram.com/jumpstartpsychology/
Facebook - https://www.facebook.com/FASD-Explained-By-Brain-resources-101506929127325
LinkedIn - https://www.linkedin.com/in/vanessa-spiller-343a5449/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 121 welcomes back Dr. Jerrod Brown to continue our series within the series “All About FASD- Professional Insights and Perspectives". This month's topic is Gratitude, Optimism and FASD. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).
In this episode, Jerrod addresses the following topics: exploring gratitude and optimism, barriers of gratitude and optimism in those with FASD (and other brain based diagnoses), benefits of gratitude and optimism (including being a protective factor), modeling gratitude and optimism for individuals with FASD and words of encouragement and hope.
Episode 121 Resources - Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com/ Facebook - https://www.facebook.com/AIAFStraining Instagram - https://www.instagram.com/aiafsassoc/ Twitter - https://twitter.com/AIAFS2011 LinkedIn - https://www.linkedin.com/in/aiafs/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAABntPzUB2qCg_fmbOMKXQbRSlzI9pSfdRG4
The link for March 25th Webinar, presented by Dr. Jerrod Brown - https://www.aiafs.com/registerls.asp?id=27 https://www.aiafs.com/trainpdfs/Confabulation,%20Suggestibility,%20Gullibility,%20and%20Compliance%20in%20Psycholegal%20Settings%203.22.22.pdf FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Racket - @fasdhope
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) , through the lens of parent advocates with over nineteen years of lived experience.
Episode 120 is a BONUS EPISODE of The Dadcast with John and Natalie Vecchione. In this episode, John and Natalie update and get REAL about the struggles (and the hope) in this stage of parenting a young adult with an FASD!
"Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand." - Isaiah 41:10
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
In this SPECIAL EPISODE, the Women of FASD Podcasting (missing Jessica Rutherford) reunite for another STRONGER TOGETHER discussion. Happy One Year Anniversary to Robbie Seale of FASD Family Life Podcast!
Robbie, in Alberta, Canada hosts this episode with Clare Devanney-Glynn of Spotlight on FASD (UK) & Natalie Vecchione (US). The Women of FASD Podcasting get REAL about their lives, families, grief and "plot twists" in being moms of kids / teens / young adults with FASD.
spaceandgrace
EPISODE RESOURCES -
Podcasts: Robbie Seale - FASD Family Life Podcast (based in Canada),
Clare Devanney-Glynn & Jessica Rutherford- Spotlight on FASD (UK)
Both podcasts are available anywhere you find your podcasts!
FASD Family Life -
Facebook - https://www.facebook.com/robbie.seale.1
Instagram - https://instagram.com/robbie.seale/
Twitter - https://twitter.com/robbieseale9?s=21
Spotlight on FASD -
Facebook - https://www.facebook.com/Spotlightonfasdpodcast/
Instagram- https://instagram.com/spotlightonfasd/
Twitter - https://twitter.com/spotlightonfasd?s=21
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 118 highlights the AMAZING ADVOCACY of Gilberto Spencer! Gilberto is a serial entrepreneur, Life & Brain Coach, FASD Self-Advocate & Mentor. Gilberto is a neurodivergent who wasn’t aware of it until 2020 when he was diagnosed with FASD, ADHD, chronic stress, anxiety and depression amongst other conditions at age 33. “After trying all the available and traditional routes, psychiatrists, psychologists and counsellors and in a desperate attempt to improve and don’t give up on himself he came across Life Coaching and after seeing the extraordinary and life-changing results he decided to become a Life & Brain Coach himself to help others struggling with those conditions.” (Source- Wired Differently)
In this HIGHLY MOTIVATIONAL episode, Gilberto shares his FASD journey, receiving his FASD diagnosis as an adult, his passion for FASD advocacy and helping others with FASD through his podcast / life coaching and his motivational words of encouragement and hope.
EPISODE RESOURCES -
Gilberto Spencer, Wired Differently Life and Brain Coaching - https://www.wired-differently.com/
Gilberto's Podcast - "Wired Differently: All About Brain Function & Dysfunction, Neurodiversity + FASD" is available anywhere you find your podcasts.
https://music.amazon.com/podcasts/be0c7a3e-2b34-4755-92b4-f8b13e92235d/wired-differently-all-about-brain-function-dysfunction-neurodiversity-fasd
Facebook - https://www.facebook.com/WiredxDifferently Instagram - https://www.instagram.com/wiredxdifferently_/ Twitter - https://twitter.com/WiredDifferentx and https://twitter.com/GilbertoSpencer LinkedIn - https://www.linkedin.com/in/gilbertospencer/ FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 117 highlights Aliy Brown and her amazing #fasdadvocacy work through FASD Hub Scotland. Aliy Brown is the FASD Project Manager of FASD Hub Scotland and FASD Service Lead of Adoption UK. Aliy is an adoptive parent to three young people, one of whom has an FASD diagnosis, and Aliy understands the realities of supporting and parenting individuals with a history of PAE and FASD. Aliy has a background in project management within the NHS and central government, is a Chartered Manager, and has previously worked in the third sector at home & overseas. Aliy graduated from Newcastle University as a mature student in 1999 with a B.A. Hons in Social Policy and has worked for Adoption UK Scotland since 2015. In her spare time, she likes being outdoors, spending time on adventures in her family’s motorhome, and enjoying creative crafts.
In this inspirational episode, Aliy shares: her family’s adoption & FASD stories, the comprehensive and wonderful resources offered by FASD Hub Scotland and her words of hope & inspiration.
EPISODE RESOURCES -
FASD Hub Scotland - https://www.adoptionuk.org/fasd-hub * FASD Hub Scotland helpline is open Tuesday-Friday, 10am to 2.30pm 0300 666 0006 outside these times people can leave an answer phone message or alternatively they can email the FASD Hub team at fasdhub.scotland@adoptionuk.org.uk * People can access a wide range of digital resources, events FASD Hub Scotland has hosted and previous Wednesday Webinars and Webinar events by visiting their YouTube channel - https://www.youtube.com/channel/UC_JeE1pfMVdVxu3hKNXuCEw?view_as=subscriber * Specific FASD free factsheets and education resources are available here - https://www.adoptionuk.org/factsheets-fasd * During April, FASD Hub Scotland will also be launching a number of new initiative with their brand new team of FASD Hub Volunteers, who are currently going through induction and getting themselves set up. People should keep a look out on social media for more updates of activities coming to their area.
Facebook - https://www.facebook.com/FASDHubScot
Instagram - https://www.instagram.com/fasdhubscotland/
Twitter - https://twitter.com/FasdhubScotland
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 116 highlights the work, contributions and legacy of Dr. Larry Burd of the University of North Dakota. Larry Burd received his PhD from the University of Manitoba Health Science Center in Winnipeg, Manitoba in Community Health Sciences. Dr. Burd currently is a professor in the Department of Pediatrics at the University of North Dakota School of Medicine and Director of the North Dakota Fetal Alcohol Syndrome Center and FAS Clinic. Dr. Burd has been with the Pediatric Therapy Program for 40 years where he has evaluated over 18,000 children with birth defects, developmental disorders and mental illness. Dr. Burd has conducted research in 41 countries around the world. He has ongoing longitudinal studies of linked cohorts of subjects with Tourette syndrome, autism, fetal alcohol syndrome and infant mortality risk that are in their 28th consecutive year of data collection. He published over 220 professional papers on topics dealing with development and behavior in children and adolescents. He has had clinics for children with developmental disabilities and mental health disorders on Tribal Nations for over 30 years.
In this enlightening and highly insightful episode, Dr. Burd discusses the following topics: Dr. Burd's legacy of work in the FASD field, his developing population-based studies in FASD, how use / misuse during pregnancy affects 3 Generations, important facts and statistics about FASD, his findings and words of encouragement.
Episode Resources -
UND FASD Center
https://med.und.edu/fetal-alcohol-syndrome-center/ http://www.online-clinic.com/
Dr. Larry Burd - larry.burd@und.edu FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
This is a Special Episode focusing on Ukraine, the act of war against Ukraine and how the adoption / FASD community has such strong ties with Ukraine.
Sandra Flach is a mom of 8 children, 5 through adoption and 2 who are diagnosed with a Fetal Alcohol Spectrum Disorder (FASD). 4 of her children are from Ukraine. She encourages and equips foster and adoptive moms through her weekly "Orphans No More" podcast. Sandra is the co-founder of Justice for Orphans and serves as the Area Director for Care Portal. Sandra and her husband Wayne have been married for 34 years. They reside in upstate New York, where they love to spend time with their 5 precious grandchildren.
In this INSPIRATIONAL episode, Sandra and Natalie discuss the acts of war committed against Ukraine, Sandra’s close ties with Ukraine as the mom of 4 (now young adults / teens) from Ukraine, how we can serve and pray for those in Ukraine and her words of faith and hope.
EPISODE RESOURCES -
Sandra Flach - https://www.sandraflach.com/
Sandra Flach's New Book "Orphans No More: A Journey Back to the Father" https://www.amazon.com/Orphans-No-More-Journey-Father-ebook/dp/B095QFN7X7/ref=sr_1_3?crid=E4UWS4TCFMZY&dchild=1&keywords=orphans+no+more&qid=1622412192&s=books&sprefix=orphans+no+more%2Caps%2C190&sr=1-3
Justice for Orphans - https://www.justicefororphansny.org/
The "Orphans No More" Podcast is available anywhere you find your podcasts.
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
FASD Hope welcomes Dr. Natalie Novick Brown, a psychologist with a nationwide forensic practice , who is based in the Seattle/Tacoma area of Washington State. Dr. Brown is the editor of "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context: A Manual for Mental Health Practice". Formally trained in Fetal Alcohol Spectrum Disorders and Forensic Investigation in Sexual Offense and Parenting Matters as well as Clinical Psychology, Dr. Brown is certified by the Association of State and Provincial Licensing Boards and licensed as a psychologist in Washington, Florida and Alaska.
In this enlightening and extremely insightful episode, Dr. Brown discusses the following: how she became involved in FASD clinical work, what led her to focus on forensic training & FASD, her book "Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context", important takeaways from this book and her words of encouragement and hope for those in the FASD community.
EPISODE RESOURCES -
"Evaluating Fetal Alcohol Spectrum Disorders in the Forensic Context: A Manual for Mental Health Practice" , Edited by Dr. Natalie Novick Brown (Springer, 2021).
https://link.springer.com/book/10.1007/978-3-030-73628-6
Dr. Brown mentioned Kay Kelly of University of Washington
https://adai.uw.edu/staff_members/kay-kelly/
You can reach Dr. Brown at drnataliebrown@gmail.com
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 113 welcomes back Dr. Christie Petrenko (Episode 32 Guest), who discusses the final stage of the resourceful, innovative and accessible "Families Moving Forward Connect App". Christie Petrenko, Ph.D, is a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training with Edward Riley and Sarah Mattson in San Diego, CA in 2009 and she is currently a faculty member at Mt. Hope Family Center at the University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. She has experience in training teams of providers, both regionally and internationally, in FASD Diagnoses. Dr. Petrenko also runs a multidisciplinary FASD clinic - providing diagnostic, intervention and family support services in Rochester, NY.
In this exciting episode, Dr. Petrenko discusses the "Families Moving Forward Connect App" and the following: the app's history, the need and goals for this app, how it's in the final testing portion of app development, how this app can be a HUGE resource for the FASD community, components of FASD Informed Care, barriers to diagnoses / care, CRITERIA to be in this final part of the Families Moving Forward app development and how the app gives her hope for the FASD Community.
Components of FASD Informed Care: Reframing, Accommodations, Brainstorming, Building Skills and HOPE!
Criteria to be in this last phase of (and to have access to) the Families Moving Forward App: Families of children, between the ages of 3-12 years old, who have an FASD or Prenatal Alcohol Exposure, Able to use the app on an iPhone or iPad Apple Device, Families must live in the United States
*If you are interested in participating in this INNOVATIVE and RESOURCEFUL app final stage, please visit the following website *
FAMILIES MOVING FORWARD CONNECT APP
https://www.urmc.rochester.edu/fasd-research.aspx
OTHER EPISODE RESOURCES
Mt. Hope Family Center at University of Rochester -
Facebook - https://www.facebook.com/mthopefamilycenter
Twitter - https://twitter.com/MtHopeFamilyCtr
The Families Moving Forward Program discussed by Dr. Petrenko -
https://familiesmovingforwardprogram.org/
CiFASD -
https://cifasd.org/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
FASD Hope welcomes back Suzanne Emery to FASD Hope! Suzanne previously guested in Episode 89 "FASCETS Friday". Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. (She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director.) Suzanne lived in Costa Rica for over 20 years, serving families and children at risk. She worked as a resident nurse at a children's home and then as a supervisor of health for a large, childcare organization for over 15 years. Suzanne is the founder and lead facilitator of "Created to Be Free: Hope for Families Affected by Alcohol", a project started in 2013. She leads workshops, provides consulting services and facilitates family support groups - all in the area of Fetal Alcohol Spectrum Disorders, using the FASCETS neurobehavioral model. She is a single mother of two, wonderful young men, the younger has an FASD. She lives in the Portland area.
In this FAITH-FILLED episode, Suzanne discusses the following topics: her personal and professional journey in the FASD / NB community, becoming a missionary and starting "Created to Be Free", how the church and faith-communities need to better understand and support those with FASD / NB diagnoses, comparing the NB model with Grace Based Parenting, how the church and faith-communities can better support and understand individuals with FASD / NB Diagnoses (and their families), her words of faith and hope....and what her sons have taught her.
"For judgement is without mercy to one who has shown no mercy. Mercy triumphs over judgement."
- James 2:13
EPISODE RESOURCES -
Suzanne Emery -
suzemery28@gmail.com
https://uwm.org/missionaries/27381/
Created to Be Free -
https://www.facebook.com/Created-to-be-Free-hope-for-children-affected-by-alcohol-318252581629117
The video that Suzanne mentioned in this episode -
https://youtu.be/t7n-4-0h4mc
FASD Hope -
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 111 showcases the AMAZING research and work of the DiG FASD Research Team from Indiana University School of Medicine. Today’s episode includes the following members: Tatiana Foroud, PhD, Leah Wetherill, PhD, Jeanine Schulz, MS CGC and Abigail Erickson, BS.
Learn about the history of this FASD research study, the accomplishments of the team, goals for 2022 (hint- they need families!), their innovative strategies for research and words of hope for the #FASD community.
EPISODE RESOURCES -
DiG FASD Research Study -
https://digfasd.org/
844-378-0002
fasd@iu.edu
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 110 features Nancy Lockwood of FASD Ottawa. Nancy Lockwood is an FASD consultant and educator with over 25 years of work and lived experience supporting individuals of all ages with FASD. Nancy's current work includes building capacity at provincial and national Canadian agencies to increase their ability to support people of all ages with FASD and their families. Previously, Nancy managed ABLE2's Fetal Alcohol Resource Program, a program she helped to design in collaboration with Kids Brain Health Network, the Children's Aid Society of Ottawa, and a leading children's hospital. Nancy has provided customized FASD education workshops to thousands of professionals and front-line workers in multiple sectors.
During this encouraging and resource-filled episode, Nancy discusses her decades of FASD work, the development of FASD Ottawa, current (and innovative) programs, upcoming events, her wisdom and her hopes for those in the FASD community.
EPISODE RESOURCES -
FASD Ottawa
Facebook - https://www.facebook.com/FetalAlcoholSpectrumDisorderOttawa
Twitter - https://twitter.com/fasdottawa
Nancy Lockwood - nlockwood44@gmail.com
Nancy mentioned the "FASD and Me: Strengthening My Community" book inspired by Hope Myers and Miranda Myers. That book can be obtained through Adopt4Life at www.adopt4life.com
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 109 highlights the AMAZING advocacy and work of the Adult Leadership Committee of the FASD Changemakers. Two members of the ALC, CJ Lutke and Kat Griffin are featured in this episode.
FASD Changemakers
The Adult Leadership Committee (ALC) of FASD Changemakers is a renowned group of citizen researchers and experts who each have diagnosed FASD. It is made up of CJ Lutke, Myles Himmelreich, Katrina Griffin, Justin Mitchell, Anique Lutke and Emily Hargrove, a group who have experienced all the events commonly associated with FASD but have learned how to overcome obstacles, maximize potential and re-define success. They use their combined lived experience to work together as consultants, advisors, trainers, presenters, mentors, group moderators, bloggers, and as various university research project team members. As well, they develop and lead their own survey research, which has received wide attention from researchers, institutions, agencies, organizations, and government and is currently being used to help focus research directions and questions.
CJ Lutke, who is 38, was diagnosed with full FAS as an infant and adopted by her foster family at age five, along with an older brother and sister who also have FASD. She is a well-known speaker on FASD, having presented at and participated in many conferences, seminars, training sessions and other events over 20 years. CJ actively provides advice and consultation and participates both as an advisor to and working member on research projects. She has just been appointed to a high-level Access to Justice Committee chaired by the Chief Justice of the Supreme Court of British Columbia. She is the author of an on-line blog that is hosted by NOFASD Australia and followed globally. As well, CJ has been a member of the Adult Leadership Committee (ALC) of FASD Changemakers for 15 years. She was the co-lead on their first ground-breaking Lay of the Land Survey on the health and physical issues of over 500 adults with FASD that has received wide international attention and was published in 2020. CJ is currently the lead author on their second Lay of the Land Survey on the Quality of Life of 468 Adults with FASD, preliminary results which were released in March of 2021 and has been widely presented including to the ICCFASD Executive Committee of NIAAA and will be presented again at their global open meeting in April of 2022. CJ believes that those with FASD must challenge perceptions about possibilities and outcomes and change the future. Her goal is to help others with FASD find their voice and to understand that we are greater when we work together.
Katrina (Kat) Griffin, who is 32, was diagnosed with full FAS in infancy and raised in foster care. She is a well-known speaker on FASD, having presented at many conferences, seminars and events over the past 10 years. She was also part of a team of teens and adults with FASD providing training on FASD for second year medical students at the University of British Columbia for over 10 years and will be joining that team again this summer. She also acts as an advisor to and working member on research projects and has just been appointed to an Access to Justice Committee chaired by the Chief Justice of the Supreme Court of British Columbia. Kat has been a member of the ALC of FASD Changemakers for 10 years and actively worked on their second Lay of the Land Survey on Quality of Life. She is employed as the FASD mentor for the Asante FASD Diagnostic Centre in British Columbia. Kat’s goal is to help others with FASD find their place and to participate meaningfully as members of society.
In this AWESOME episode, CJ and Kat share: their journeys with FASD, how the ALC of the FASD Changemakers formed, the extensive work of the ALC / FASD Changemakers, their EDUCATIONAL and ELOQUENT response to the infamous and ableist SNL Skit and their hopes for individuals with FASD. #craftthedraft
EPISODE RESOURCES-
fasdchangemakers@gmail.com
Instagram- https://www.Instagram.com/fasdchangemakers/
Twitter - https://www.twitter.com/FASDChangeMakrs/
CJ Lutke’s Blog -
https://www.nofasd.org.au/community/cj-lutke-blog/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over nineteen years of lived experience.
Dr. Douglas Waite is the featured guest of Episode 108. Douglas Waite, MD, FAAP is the Chief of Developmental Pediatrics of the BronxCare Health System and an Assistant Professor of Pediatrics at the Icahn School of Medicine, Mount Sinai Medical Center. He is also the Vice-Chair of the Board of Directors for FASD United.
Previously, he served as medical director of The Children’s Village, a community foster care agency and residential treatment center established in 1851, located in Harlem, the Bronx and Dobbs Ferry, New York. He has used time caring for children at The Keith Haring Clinic as an opportunity to teach medical students and pediatric residents the challenges of providing comprehensive medical care to children in foster care and the juvenile justice system.
Dr. Waite is Assistant Clinical Professor of Pediatrics at the Icahn School of Medicine Mount Sinai Hospital, was elected one of ten national FASD Champions by the American Academy of Pediatrics in 2016, sits on the National Mental Health Advisory Board of the Child Welfare League of America, and is a member of the Society of Developmental-Behavioral Pediatrics. Dr. Waite has special interests in fetal alcohol spectrum disorders, post-traumatic stress disorder and the effects of child abuse and neglect upon child development.
In this RESOURCEFUL and REASSURRING episode, Dr. Waite addresses the following topics: his clinical experience / what led him to become involved in working with the FASD / NB populations, highlights from his endnote presentation at the "Arkansas None for Nine" online 2021 conference, the importance in focusing on the Adaptive Functioning core of FASD / NB diagnoses, the need for clinical pathways for FASD Diagnoses, Critical Information for parents to get in place when parenting a child with an FASD (especially in urgent situations), why the FASD community is #strongertogether and many words of encouragement and hope for listeners.
EPISODE RESOURCES -
FASD United -
http://fasdunited.org/
Dr. Douglas Waite - Mt. Sinai
dwaite@bronxcare.org
https://www.mountsinai.org/profiles/douglas-waite
https://www.bronxcare.org/physicians/find-a-physician/detail/douglas-waite/
Program Note - FASD United now has a "Family Navigator", as Dr. Waite was discussing in this episode.
https://fasdunited.org/family-navigator/
Choline Research Study Links -
https://jneurodevdisorders.biomedcentral.com/articles/10.1186/s11689-020-09312-7
https://med.umn.edu/news-events/medical-school-professor-uses-choline-help-treat-children-fasd
Families Moving Forward (with Dr. Christie Petrenko) -
https://familiesmovingforwardprogram.org/
FASD HOPE RESOURCES -
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 107 highlights NOFASD Australia (National Organisation for Fetal Alcohol Spectrum Disorders Australia) and speaks with it's CEO - Louise Gray and COO - Sophie Harrington. NOFASD Australia has a strong commitment to FASD prevention at a primary, secondary and early intervention level. NOFASD Australia is working towards ensuring FASD is recognized as a disability in Australia, promoting social inclusion by advancing the rights and interests of people living with FASD, and providing the necessary supports to individuals and families at a grassroots level. This advocacy work is fundamentally important in preventing the social, health, economic and justice consequences of this condition for all Australians. In addition to delivering support to families living with FASD, NOFASD Australia also provides education and training workshops to parent and carer groups, government and non-government service providers and school communities throughout Australia.
In this RESOURCE-FILLED episode, Louise and Sophie discuss the following topics: their background and history with NOFASD Australia, how NOFASD Australia has developed and made significant strides over the past three years, resources offered by NOFASD Australia, the upcoming NOFASD Australia Virtual Conference Forum - FASD@50 - in May 2022, how to reach NOFASD Australia and hopes / goals for 2022.
EPISODE RESOURCES -
NOFASD Australia -
https://www.nofasd.org.au/
NOFASD AUSTRALIA HELPLINE (AUSTRALIA ONLY) -
1-800-860-613
NOFASD FASD Forum - FASD@50 - May 13-14, 2022
https://www.nofasd.org.au/contact-us/
Facebook - https://www.facebook.com/NOFASD.Australia
Instagram - https://www.instagram.com/nofasd.australia/
Twitter - https://twitter.com/NOFASDAustralia
LinkedIn - https://www.linkedin.com/company/nofasdaustralia/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Welcome to the Season 2 Premiere Episode! FASD Hope is honored to feature Dr. Kenneth Lyons Jones. Dr. Kenneth Jones is the Chief of the Division of Dysmorphology and Teratology at the Department of Pediatrics at UCSD, Medical Director of the MotherToBaby California Pregnancy Health Information Line and Co-Director of the Center for Better Beginnings. He is a pediatrician by training, specializing in the identification and treatment of birth defects. He is actively involved in research, teaching, clinical work, university and public service. Dr. Jones is considered the leading expert of Fetal Alcohol Syndrome (FAS), one of the diagnoses under the FASD umbrella. Dr. Jones was one of two doctors at the University of Washington, who first identified Fetal Alcohol Syndrome (FAS) in the United States in 1973.
Dr. Jones' research has focused on the evaluation and diagnosis of birth defects, identifying the mechanisms of normal and abnormal fetal development and the recognition of new environmental agents that cause birth defects. His work on the recognition of new human teratogens is primarily focused through MotherToBaby California, a counseling and research program funded in part by the state of California and monies received from the Organization of Teratology Information Specialists (OTIS) as a part of a cooperative agreement with the Health Resources and Services Administration (HRSA) of the US Department of Health and Human Services. Dr. Jones has authored over 400 publications in scientific journals as well as several books and he is the author of the textbook titled "Smith's Recognizable Patterns of Human Malformation."
This is an episode that the listener can glean SO MUCH INFORMATION! Among the many topics discussed in this information-filled episode include: Dr. Jones' career, stigma, his work, goals for 2022 and answering listeners' questions.
EPISODE RESOURCES -
Dr. Kenneth Lyons Jones -
https://www.rchsd.org/doctors/kenneth-lyons-jones-md/
https://betterbeginnings.org/who-we-are/leadership/
https://betterbeginnings.org/who-we-are/leadership/dr-kenneth-lyons-jones-md/
https://medschool.ucsd.edu/som/pediatrics/Divisions/dysmorphology/about/Pages/Dysmorphology_Teratology_Division_Members.aspx
https://pediatrics.med.ubc.ca/2018/03/20/a-retrospective-look-at-43-years-of-fetal-alcohol-spectrum-disorder-fasd-how-did-we-get-here-from-where-we-started/
https://www.facebook.com/UCSDcbb/
https://twitter.com/ucsdcbb
https://www.instagram.com/ucsdcbb/
FASD Hope Resources -
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Welcome to this BONUS EPISODE / Season 2 Sneak Preview of FASD Hope. Before the official Season 2 kickoff, John and Natalie Vecchione, co-founders of FASD Hope give a Dadcast Update. Topics include: changed plans, their family's new chapter, lessons learned and a Season 2 update.
The official Season 2 of FASD Hope kicks off during the week of January 20, 2022!
"But seek first the kingdom of God and His righteousness, and all these things shall be added to you. Therefore, do not worry about tomorrow, for tomorrow will worry about its own things. Sufficient for the day is its own trouble." - Matthew 6:33-34
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 104 is the Season 1 Finale for FASD Hope! This episode features Robbie Seale of FASD Family Life (Canada) and Jessica Rutherford of Spotlight on FASD (UK). Robbie, Jessica and Natalie share their reflections of 2021, a REAL conversation about FASD topics…and their goals / hopes for 2022.
Conversation Points include:
-
How do we get family members to learn and understand FASD?
-
Stories of Stigma
-
The Importance of Creating Your "FASD Tribe"
-
Hopes and Goals for 2022
-
Jessica's FASD Service Education Program through Nudge Education
EPISODE RESOURCES -
For more information about Jessica Rutherford's FASD Service Education Program -
Jessica.rutherford@nudgeeducation.co.uk https://www.nudgeeducation.co.uk/fasd-services
Spotlight on FASD: with Clare Devanney-Glynn and Jessica Rutherford You can find "Spotlight on FASD" where you find your podcasts and on YouTube. Facebook - https://www.facebook.com/Spotlightonfasdpodcast Instagram - https://www.instagram.com/spotlightonfasd/ Twitter - https://twitter.com/SpotlightonFASD LinkedIn -https://www.linkedin.com/in/jessicarutherford1/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAAAnXL4QBofKnGvdq1CoztDgRuEjoHSDbjuo
FASD Family Life with Robbie Seale: You can find "FASD Family Life" where you find your podcasts. Facebook - https://www.facebook.com/robbie.seale.1 Instagram - https://www.instagram.com/robbie.seale/ Twitter - https://twitter.com/FasdLife LinkedIn - https://www.linkedin.com/in/robbie-seale-92954b169/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAACggH3EBDQmnXpDQ_ULvxvKx1OWPGgnnt-I FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 103 is the SIXTH FASCETS FRIDAY episode, featuring Nancy Hall. This episode is titled "Five Things I've Learned as a FASCETS Facilitator". Nancy Hall has almost 30 years experience working in the nonprofit sector for the improvement of services for people with disabilities. Nancy's academic background includes psychology, child & youth care, as well as clinical behavioral sciences. Nancy has worked as a FASD Community developer, educator and consultant for the past 15 years. She co-authored a research paper on "Effective Service Provision for People Impacted by FASD" in 2009. Nancy has been a Program Director for FASCETS since 2015 and she has been providing trainings in the Neurobehavioral Model throughout Eastern Canada for the past eight years. Nancy lives in the Toronto, Canada region, acting as both a caregiver and professional.
In this sixth FASCETS Friday episode, Nancy shares five things that she has learned as a FASCETS Facilitator, real life examples of these concepts and words of hope.
You can contact Nancy through FASCETS -
https://fascets.org/
Instagram - https://www.instagram.com/fascets_inc/
Facebook - https://www.facebook.com/FASCETS
Twitter - https://twitter.com/FASCETS2
Neurobehavioral Conditions Including FASD Online Workshop
For Professionals, Caregivers, Parents
Prerequisite: None
6 FRIDAYS January 21 – February 25, 2022
9:30am-11:30am PT (US and Canada)
6 two-hour live online sessions
Workshop seating is limited. Register early.
https://fascets.org/workshops/
Note - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 102 welcomes back Dr. Jerrod Brown for the final installment of our four-part, 2021 series “All About FASD- Professional Insights and Perspectives". This month's topic is Adaptive Functioning and FASD. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).
In this episode, Jerrod provides an in-depth lesson about the following topics: what is adaptive functioning, factors that affect adaptive functioning, the relationship of adaptive functioning and FASD, protective factors of adaptive functioning and his words of encouragement and hope.
Episode 102 Resources - Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com/ Facebook - https://www.facebook.com/AIAFStraining Instagram - https://www.instagram.com/aiafsassoc/ Twitter - https://twitter.com/AIAFS2011 LinkedIn - https://www.linkedin.com/in/aiafs/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAABntPzUB2qCg_fmbOMKXQbRSlzI9pSfdRG4 FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 101 welcomes back the dynamic duo of Susan Shepard Carlson (Former First Lady of Minnesota and Chair of the FASD United Legislative and Policy Committee) and Jennifer Wisdahl (FASD United Policy and Training Center Coordinator). Together, Susan and Jenn provide: a final 2021 update of The FASD Respect Act / H.R.4151 / S.2238, the progress of the bill, ways to advocate for The FASD Respect Act and most importantly...how YOU can help in getting this CRITICAL NATIONAL FASD LEGISATION PASSED!
IMPORTANT - Families of those with FASD / FASD Self Advocates / those in the FASD Community in the following states are ESPECIALLY needed to help advocate to their senators / representatives:
OREGON, IDAHO, MONTANA, SOUTH DAKOTA, ARIZONA, NEW MEXICO, NEW JERSEY, LOUISIANA, ARKANSAS, MISSOURI, MISSISSIPPI, SOUTH CAROLINA, WEST VIRGINIA, TENNESSEE
For more information, please contact…
Jenn WIsdahl, Policy and Training Center Coordinator
wisdahl@fasdunited.org
202-601-2530
For more information about The FASD Respect Act -
https://nofaspolicycenter.org/the-fasd-respect-act/
Circle of Stars Online Event -
Friday December 3, 2021- 8-9 pm Eastern Time
https://nofaspolicycenter.org/event/circle-of-stars-celebration/#tribe-tickets
EPISODE RESOURCES -
FASD United (Formerly NOFAS)
http://fasdunited.org/
Facebook - https://www.facebook.com/fasdunited
Instagram - https://www.instagram.com/fasdunited/
Twitter - https://twitter.com/FASDUnited
LinkedIn - https://www.linkedin.com/company/fasd-united/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
FASD Hope is celebrating it's 100th Episode! Episode 100's guest is FASD Champion Advocate and FASD Specialist, Dan Dubovsky, MSW. Dan Dubovsky is a clinician working in behavioral health in a variety of systems including residential treatment, outpatient services, HIV/AIDS, medical social work and training in a variety of positions. Dan has 25 years experience in addressing FASD from a personal and professional point of view. Dan provides consultation in a number of areas to agencies, systems of care, communities, states and provinces to improve outcomes for individuals, families and the programs that provide services to them. Dan is the former FASD Specialist with the SAMHSA FASD Center for Excellence. Dan continues to work as an independent FASD Specialist.
In this INFORMATION and HOPE-FILLED episode, Dan shares the following: his journey as a parent of a son with an FASD, how he went from FASD parent advocate to FASD Specialist (and much more!), the complex relationship between FASD and Substance Use treatment, why we need to better identify those individuals with FASD in Substance Use Treatment Programs, advice for parents advocating for their children with FASD and his words of encouragement and hope for those in the FASD community.
EPISODE RESOURCES -
Dan Dubovsky, MSW will be leading a two-part webinar series on November 30, 2021 and December 2, 2021. This webinar series is sponsored by: Proof Alliance NC, The ARC of NC, NWAHEC and Wake Forest School of Medicine.
- "The Impact of Fetal Alcohol Spectrum Disorders (FASD) in Substance Use Treatment" - November 30, 2021 - 10 am - 12:15 pm Eastern Time
Sign up link - www.northwestahec.org/66332
- "Improving Outcomes in Substance Use Treatment by Modifying Approaches for Individuals with FASD" - December 2, 2021 - 10 am - 12:15 pm Eastern Time
Sign up link - www.northwestahec.org/66771
For more information- if you have questions about registering, if you need auxiliary aids or special services to participate, please contact Gail Pawlik at gpawlik@wakehealth.edu
Dan Dubovsky, MSW -
https://www.linkedin.com/in/dan-dubovsky-761aa415/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 99 features Kansas FASD Support Group,Inc. - a diverse group of parents, caregivers, educators and FASD advocates. Kansas FASD Support Network is now a 501 (c)3 nonprofit organization, has submitted its application & is a pending FASD United Affiliate. and has grown in size and in it's advocacy efforts. The Kansas FASD Support Network, Inc. serves by "Connecting Kansas families affected by FASD (Fetal Alcohol Spectrum Disorders). Providing information, support, and education to those living with the affects of prenatal exposure as well as advocating for change to better their lives as well."
In this inspirational and advocacy filled episode, the members of Kansas FASD Support Network, Inc. shared their journey in forming the group, the history of the Kansas FASD Support Network and it's exponential group in the past year, the programs and services offered to the community by the Kansas FASD Support Network , goals for 2022 and their words of hope.
Members who participated in this episode include: Kathy White, Kat Meinhardt, Jonathan Stahl, Kammi Bean, Stacy Crow and Holly Bane.
Episode Resources -
Kansas FASD Support Group -info@kansasfasdsupportnetwork.org
Facebook - https://www.facebook.com/KansasFASD
Instagram - https://www.instagram.com/kansasfasdsupportnetwork/
Twitter - https://www.twitter.com/KansasFASD/
FASD Hope Resources -
FASD Hope
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
November is Adoption Month. Episode 98 guest, Simon Benn, is the founder of "Thriving Adoptees". Simon resides in the United Kingdom and he is an adoptee, speaker and podcaster. Simon was adopted at 5 weeks old, he was told so early that he doesn't remember not knowing about it. His life was good and adoption wasn't an issue. When Simon was 40, he learned that a teddy bear that was giving to him was from his birth mother. A volcano of anger erupted in him and then a feeling of unloved. Adoption left him hot and business success had left him cold. This kickstarted a a learning process, and eventually, sharing what he had learned.
In this thought-provoking episode, Simon shares his message and insights about being an adult adoptee, what he has learned, how he founded the "Thriving Adoptees" podcast / website and his words of hope and encouragement for the foster / adoptive community.
Episode Resources -
Simon Benn at Thriving Adoptees - https://www.thrivingadoptees.com/ You can find "Thriving Adoptees Podcast anywhere you find your podcasts.
Facebook - https://www.facebook.com/thrivingadoptees LinkedIn - https://www.linkedin.com/in/simonjbenn/ Instagram - https://www.instagram.com/simonjbenn/ Twitter - https://twitter.com/_simonbenn FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 97 welcomes back Dr. Jerrod Brown in the third installment of our four part series “All About FASD- Professional Insights and Perspectives . This month's topic is FASD and Confabulation, Suggestibility and Gullibility. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).
In this INFORMATION-FILLED episode, Dr. Brown teaches about the following topics: what is confabulation, FASD and confabulation, how confabulation differs from lying, what is suggestibility, how confabulation and suggestibility feed into each other, gullibility, case examples involving all three topics, why we need to learn about these important topics and words of encouragement and hope.
Episode 97 Resources - Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) https://www.aiafs.com/
Facebook - https://www.facebook.com/AIAFStraining Twitter - https://twitter.com/AIAFS2011 FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 96 is the FIFTH FASCETS FRIDAY episode, featuring Lance Chart. This episode, titled "A Dad's Perspective- Working As A Team".
Lance Chart is the founder and owner of "Chart Aggregate Delivery Corporation" and he served in the army for four years. He and his wife, Stacey, have been married for over 29 years and he is the father of four children, 3 grandchildren and they live on a small farm in Albany, OR. His youngest daughter has an FASD. Lance and his wife Stacey participated in their first FASCETS Training in 2013 and became certified facilitators of the FASCETS model in 2016.
In this fifth FASCETS Friday episode, Lance discusses the following topics: their family's FASD journey, how they learned about FASCETS and how the FASCETS Neurobehavioral Model changed their lives, the importance of working as a team in parenting children with FASD / Brain-Based Diagnoses, real life examples of working together, how dads are SO important in the NB parenting journey and words of hope and encouragement. #tagteamparenting
You can contact Lance through FASCETS -
https://fascets.org/
Instagram - https://www.instagram.com/fascets_inc/
Facebook - https://www.facebook.com/FASCETS
Twitter - https://twitter.com/FASCETS2
Neurobehavioral Conditions Including FASD
For Professionals, Caregivers, Parents
Prerequisite: None
6 FRIDAYS January 21 – February 25, 2022
9:30am-11:30am PT (US and Canada)
6 two-hour live online sessions
Workshop seating is limited. Register early.
https://fascets.org/workshops/
Note - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
November is National Adoption Month and FASD Hope is honored to have Lucas Boyce as the guest of Episode 95 titled "Living Proof". Lucas Boyce is an adoptee, an author and an FASD self-advocate. Lucas is the author of "Living Proof: From Foster Care to the White House and the NBA". He travels throughout the country and abroad presenting on topics that include faith, leadership, team work, overcoming obstacles and making a positive impact on the lives of others. Lucas is the Assistant to the County Administrator for Orange County Florida Government. Prior to his current position, Lucas served as the Business of Business of Development and Legislative Affairs for the Orlando Magic. Prior to that, Lucas served at the White House under Former President George W. Bush. He served both at the White House and on a presidential campaign and in a three separate offices: Political Affairs, Public Liaison and the Office of the Vice President. Lucas has served on a number of non-profits boards and he currently serves on the advisory board of the National Coalition on Adoption Institute (NCAI). Lucas is the newest board member of FASD United.
During this INSPIRATIONAL and HOPE-FILLED conversation, Lucas shares the following: his foster care / adoption story, his FASD journey, his career highlights, his current work and advocacy work, the importance of his faith, what he hopes readers can take away from his book and his words of hope and encouragement.
"For You formed my inward parts; You covered me in my mother's womb. I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, And that my soul knows very well."
- Psalm 139:13-14
EPISODE RESOURCES-
"Living Proof: From Foster Care to the White House to the NBA" by Lucas Daniel Boyce (2011, Advantage Media Publications). You can purchase "Living Proof" where books are sold and on Amazon.
https://www.amazon.com/Living-Proof-Foster-White-House/dp/1599322579/ref=sr_1_1?dchild=1&keywords=living+proof+lucas+daniel+boyce&qid=1635566979&sr=8-1
You can reach out to Lucas at ldb@lucasdanielboyce.com
Facebook - https://www.facebook.com/ldboyce
Instagram - https://www.instagram.com/lucasdboyce/
LinkedIn - https://www.linkedin.com/in/lucas-boyce-mba-a49682a/
FASD United - http://fasdunited.org/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 94 is part 2 of a 4 part, monthly series within FASD Hope titled "All About FASD - Professional Insights and Perspectives with Dr. Jerrod Brown". This month's topic is FASD and Trauma. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Students (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST). Jerrod has completed four separate master's degree programs and holds graduate certificates in Autism Spectrum Disorder (ASD), Other Health Disabilities (OHD) and Traumatic Brain Injuries (TBI).
In this second "All About FASD" episode, Dr. Brown educates the listener about the following topics: different types of trauma, the importance of understanding trauma and those with FASD / brain based diagnoses, answering questions from FASD Hope listeners about Trauma, Resources and Tips for Caregivers and Words of Hope and Encouragement.
EPISODE RESOURCES-
Dr. Jerrod Brown - jerrod01234brown@live.com
American Institute for the Advancement of Forensic Studies (AIAFS) https://www.aiafs.com/
Facebook - https://www.facebook.com/AIAFStraining
Twitter - https://twitter.com/AIAFS2011
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over nineteen years of lived experience.
Episode 93 shines a light on David Deere, MSW, MTh. David Deere is the treasurer for his state's FASD United Affiliate Organization - Arkansas None for Nine. For fifteen years before his retirement, he worked on FASD Projects funded by the Centers of Disease Control and Prevention and Substance Abuse and Mental Health Services Administration. David currently serves as the co-director of the Specialty Diagnostic Resource Center, which is the first clinic and resource center in Arkansas devoted to children and adolescents suspected of having an FASD. He is a social worker, by training, and a retired member of the United Methodist clergy.
This episode highlights David's work with Arkansas None for Nine AND the "Advocating for Individuals and Families Living with Fetal Alcohol Spectrum Disorder (FASD)" - An Online Training, which will be held on November 12, 2021.
This all-day training will provide an overview of diagnosis, ramifications, interventions and prevention of fetal alcohol spectrum disorders (FASD). Provided virtually, participants will have the opportunity to learn from leading experts in the field of FASD and Justice.
Presenters include:
-
Dr. Ken Jones and Dr. Christina Chambers of University of California in San Diego- Dr. Kenneth Lyon Jones is considered the leading expert of Fetal Alcohol Syndrome (FAS) and he was one of two doctors who first identified FAS in the US in 1973.
-
Dr. Larry Burd of North Dakota Fetal Alcohol Syndrome Center
-
Dr. Steven Greenspan - FASD Clinician, Researcher and Author
-
Dr. Paul Connor - University of Washington
-
Dianne Smith Howard - National Disability Rights Network
-
Billy Edwards, Esquire - Deputy Public Defender, Los Angeles County Mental Health Unit
-
Dr. Douglas Waite - Pediatrician, FASD Clinician and Diagnostician - NY, NY
This event will be held via zoom from 9:00 am to 5:00 pm Central Time on Friday, November 12, 2021.
Tickets may be purchased through - https://nofasjusticecenter.org/ar-nov-2021/
"For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, I was sick and you looked after me, I was in prison and you came to visit me." - Matthew 25: 35-36
EPISODE RESOURCES -
Arkansas None for Nine - https://arkansasnonefornine.org/
Email - arkansasnonefornine@gmail.com
Facebook - https://www.facebook.com/arkansasnonefornine/
Twitter - https://twitter.com/arnonefornine
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) , through the lens of parent advocates with over nineteen years of lived experience.
Episode 92 is the FOURTH FASCETS Friday Episode, featuring Stacey Chart and this episode is titled "Getting Ready for the Holidays". Stacey joined FASCETS in 2020 as the Office Administrator and shortly after, became a Program Director. Although her educational background is in Early Childhood Education and she has many years of experience as a Medical Office Professional, she describes herself as "Just a Mom", as that is where she truly has gotten her life skills as a successful FASCETS Facilitator.
Her journey with FASCETS began several years prior to her employment with them, in 2013, when she and her husband attended their first FASCETS training with Diane Malbin. The training was life-changing for them and it became pretty clear that their adopted daughter, who was nearly 2 at the time, likely had FASD. Following their daughter's official diagnosis from the University of Washington, they became fierce advocates and set out to learn as much as possible. This led to Stacey and her husband becoming certified facilitators of the FASCETS Neurobehavioral model in 2016
Stacey began a website, https://www.charthope.org/ to educate people about FASD and to share hope and personal stories. She and her husband have facilitated workshops in the Willamette Valley of Oregon and all the way to New York. Stacey lives in Oregon with her husband and youngest daughter, now 10 (who has FASD) on a mini-farm with their chickens, ducks, goats, emus, a mini-horse, dogs and cats. In addition to their young daughter, they have 3 adult children and 3 grandchildren.
In this FOURTH FASCETS Friday Episode, Stacey addresses the following (especially when getting ready for the Holidays with children / teens / young adults with FASD and other brain-based diagnoses): her own family's journey with FASD, what led both her and her husband to become FASCETS Facilitators, the dysregulation behind the holiday season, things to consider NOT to do during the holidays, ways to prepare for the holidays and words of hope.
You can contact Stacey Chart through FASCETS -
https://fascets.org/
Instagram - https://www.instagram.com/fascets_inc/
Facebook - https://www.facebook.com/FASCETS
Twitter - https://twitter.com/FASCETS2
Online Workshop Opportunity -
Neurobehavioral Conditions Including FASD
For Professionals, Caregivers, Parents
Prerequisite: None
6 FRIDAYS January 21 – February 25, 2022
9:30am-11:30am PT (US and Canada)
6 two-hour live online sessions
Workshop seating is limited. Register early.
https://fascets.org/workshops/
NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 91 shines a spotlight on the Hope Rising Clinic in Bothell, Washington. Hope Rising Clinic is the only clinic in the Washington region that offers comprehensive services for prenatal exposure. Podcast Host, Natalie Vecchione, speaks with Alex Lundy, M.S., CCC-SLP (Clinic Manager) and Michelle Stiller Bradley, M.A., LMHCA (Chief Program Officer) about Hope RISING Clinic.
Michelle Stiller Bradley has worn many hats in her 30 year, social service career: therapist, case manager, forensic child interviewer, child abuse investigator, caseworker, advocate and director. Michelle has a Bachelor's Degree in Social Welfare, A Master's Degree in Counseling and she is pursuing a Doctorate in Healthcare Administration. Michelle currently serves as Chief Program Officer at Wonderland Child and Family Services, where she has worked for over a decade. While overseeing Wonderland's early intervention, Michelle developed a special interest in serving children with prenatal substance exposure. She has channeled this passion, and her personal experience raising a child with FASD, into the developmental of Wonderland's Hope RISING Clinic for Prenatal Substance Exposure, an innovative diagnostic and treatment center for children and families in the greater Seattle area. Michelle is also on the Board of Directors of NOFAS Washington. Her most important job (and hardest by far!) is parenting four children ages 12-23 years.
Alex Lundy has been leading a multidisciplinary team providing holistic services to children with prenatal substance exposure and their families. Alex began her career in the field of neurodiversity as a behavior technician for children with autism. She found joy in discovering how to enter a child's world and to teach communication, leading her to pursue a Master's Degree in Speech - Language Pathology at University of Oregon. She has worked in a variety of settings including: early intervention, outpatient clinics and schools. Alex began to notice children in the school system with emotional regulation, social skills and impulse control - who did not have a diagnosis, but all had something in common... a history of trauma and suspected prenatal substance exposure. A few years later, Alex moved to Seattle, WA and began working at Wonderland Child and Family Services. In 2019, Hope RISING Clinic for Prenatal Substance Exposure opened their doors and Alex jumped at the chance to lead the team and learn more about the invisible disability of FASD!
In this HOPE filled conversation, Michelle and Alex discuss the following: the history of Hope RISING Clinic and it's growth in the past year, programs / services / supports offered by Hope RISING, the importance of getting an FASD Diagnosis (if suspected), goals for Hope RISING and words of hope for families of those with FASD.
Hope
RISING
R - Resources
I - Interventions
S - Support to
I - Inspire
N - Nurture and
G - Grow
"God, grant me the serenity to accept the things I cannot change, the courage to change the things I can and the wisdom to know the difference." - The Serenity Prayer
EPISODE RESOURCES -
Hope Rising Clinic
https://hoperisingclinic.org/
Instagram - https://www.instagram.com/wonderlandchildfamily/
Facebook - https://www.facebook.com/WonderlandChildandFamilyServices
Twitter - https://twitter.com/wonder_families
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 90 features Heather Morris of "Nevada Families for FASD". Heather and Thomas Morris have 9 children, 4 of whom have special needs and 2 of whom have FASD. They started "Sugah Momma's Cookies" to teach job skills to their children with special needs, utilizing Heather's skills as a former pastry chef. After seeing the lack of services and recognition FASD had in Nevada, they began thinking about starting a nonprofit to benefit other families like theirs. It took several years of everything to work out, but today Nevada Families for FASD Awareness is operating and ready to serve their community.
In this hope-filled episode, Heather discusses the following: their family's unique journey, her journey as a parent to a parent advocate, the history of "Nevada Families for FASD", the goals / resources and supports provided by "Nevada Families for FASD" and her words of hope for families and those in the FASD community.
EPISODE RESOURCES -
Nevada Families for FASD -
https://nevadafasd.org/
nffasda@gmail.com
Instagram - https://www.instagram.com/nevada_fasd/
Facebook - https://www.facebook.com/NevadaFASD
Sugah Momma's Cookies -
Instagram - https://www.instagram.com/sugahmommascookies/
Facebook - https://www.facebook.com/sugahmommascookies
sugahmommascookies@gmail.com
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Twice a month, FASD Hope partners with FASCETS for "FASCETS Fridays". FASCETS Facilitators teach our listeners about a variety of topics related to FASD and other brain-based diagnoses.
Episode 89 is the THIRD FASCETS Friday episode featuring Suzanne Emery and this Episode is titled “Receiving a FASD Diagnosis Later in Life". Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director. Suzanne lived in Costa Rica for over 20 years serving families and children at risk. She worked as a resident nurse at a children's home and then as a supervisor of health for a large, child care organization for over 15 years. Suzanne is the founder and lead facilitator for "Created to Be Free: Hope for Families Affected by Alcohol", a project started in 2013. She leads workshops, provides consulting services and facilitates family support groups - all in the area of Fetal Alcohol Spectrum Disorders, using FASCETS neurobehavioral model. She is a single mother of two wonderful young men; the younger has an FASD. She lives in the Portland area.
This 3rd FASCETS Friday Episode is titled " Receiving a FASD Diagnosis Later in Life" and Suzanne discusses the following: her journeys in parenthood and becoming a FASCETS Facilitator, why receiving a FASD Diagnosis later in life (if one is suspected) an important foundation in the NB model of parenting / caregiving, practical reasons for seeking a diagnosis later in life and words of hope for listeners.
EPISODE RESOURCES -
FASCETS
You can contact Suzanne Emery through FASCETS
https://fascets.org/
or suzemery28@gmail.com
Instagram - https://www.instagram.com/fascets_inc/
Facebook - https://www.facebook.com/FASCETS
Twitter - https://twitter.com/FASCETS2
Neurobehavioral Conditions Including FASD
For Professionals, Caregivers, Parents
Prerequisite: None
6 TUESDAYS October 5 – November 9, 2021
12:00pm-2:00pm PT (US and Canada)
6 two-hour live online sessions
https://fascets.org/workshops/
NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting us as an organization).
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 88 welcomes back Kathy Kuhl of Learn Differently. In this episode, titled "Encouraging Your Child", Kathy discusses her book (of the same title) and how it can be a guide book for ANY parent, grandparent, teacher or anyone who wants to provide encouragement to children. Among Kathy's accomplishments include: publishing 3 books, being a homeschool consultant and the Founder of Learn Differently, presenting at workshops across the US / internationally, leading homeschool groups and serving on the boards of homeschool organizations. Kathy and her husband reside in Virginia and she enjoys reading, traveling, hiking and spending time with her children and grandchildren.
In this reassuring and resourceful episode, Kathy discusses the following topics: an update since her last FASD Hope episode, the motivation behind "Encouraging Your Child", encouragement and takeaways for parents.
"Have I not commanded you? Be strong and of good courage; do not be afraid, nor be dismayed, for the Lord your God is with you wherever you go." - Joshua 1:9
EPISODE RESOURCES -
Kathy Kuhl -
https://www.learndifferently.com/
The Gottman Institute -
https://www.gottman.com/
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
John and Natalie Vecchione, co-founders of FASD Hope, share their thoughts, struggles, goals and hopes in Episode 87, titled "It's Been A Year". FASD Hope celebrates it's one year anniversary on October 1, 2021.
"The Lord is my rock and my fortress and my deliverer; My God, my strength, in whom I will trust; My shield and the horn of my salvation, my stronghold." - Psalm 18:2
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 86 highlights the upcoming ProofCon 2021 Virtual Conference and features Shauna Feine of Proof Alliance. This year's ProofCon Conference is the 10th annual FASD Conference of Proof Alliance and will be held online from October 13-15, 2021.
Shauna Feine has been with Proof Alliance for six years as the Senior Training Coordinator. She also serves on the board of directors for the Minnesota Fathers and Families Network (MFFN). Shauna received her Bachelor's of Science Degree from Minnesota University - Manakato, with a focus on neurodevelopmental disabilities, chemical dependency and mental health and she has more than ten years of experience working with individuals with various types of disabilities.
In this INFORMATIVE episode, Shauna discusses: the details of ProofCon 2021, keynote speakers, how it’s virtual platform allows for increased accessibility from around the globe, participants are able to access presentations both in real time and through January 2022 and highlights of the upcoming conference.
EPISODE RESOURCES
ProofCon2021 Information -
https://www.proofalliance.org/conference/
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
FASD Hope is partnering with FASCETS for "FASCETS Fridays", which will air twice a month. FASCETS Facilitators will be teaching our listeners about a variety of topics related to FASD and other brain-based diagnoses.
Episode 85 is the SECOND FASCETS Friday episode and features Melissa Elligson. Melissa Elligson is a Certified Facilitator of the FASCETS Neurobehavioral Model and a FASCETS Program Director. She is also a community-based counselor in Roanoke, VA. Melissa holds a Master's Degree from Seton Hall University and she has spent the past twenty years as an advocate, community counselor and trainer. Her passion is working with children and families living with neurobehavioral conditions and providing training on an international level. Melissa became frustrated that traditional models were not working within the community and this brought her Diane Malbin and her journey with FASCETS. Melissa is currently providing training, consultation and family groups. She is also working on developing a community-based diagnostic clinic in Southwest Virginia.
This second FASCETS Friday Episode is titled "Brain First and Examining Our Values" and Melissa shares the following: her journey in becoming a FASCETS Facilitator, why thinking 'brain first" and examining our values are a foundation of the FASCETS Neurobehavioral Model, real-life examples of "brain first" and examining our values, how parents / caregivers / educators can start taking small steps in changing their values to make a better fit and words of hope for listeners.
EPISODE RESOURCES -
FASCETS
You can contact Melissa Elligson through FASCETS
https://fascets.org/
Instagram - https://www.instagram.com/fascets_inc/
Facebook - https://www.facebook.com/FASCETS
Twitter - https://twitter.com/FASCETS2
Upcoming FASCETS Workshops / Trainings -
NEUROBEHAVIORAL CONDITIONS INCLUDING FASD
For Professionals, Caregivers & Parents (Prerequisite - None)
6 TUESDAYS
October 5 – November 9, 2021
12:00pm-2:00pm PT (US and Canada)
6 two-hour live online sessions
https://fascets.org/workshops/
NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting us as an organization).
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 84 is an INSPIRATION-FILLED Episode with Melissa Jacobus. Melissa Jacobus has been advocating for her adopted children and the rights of all individuals with FASD since 1998. At the national level, she is a parent advocate and member of the Justice Task Force for the National Organization Fetal Alcohol Syndrome (NOFAS), serves on the Advisory Committee for FASD Communities and served as a member of the Speakers Bureau for the Centers for Disease Control's FASD Southeast Regional Training Center. In 2019, Ms. Jacobus was inducted into the NOFAS' Tom and Linda Daschle FASD Hall of Fame. Melissa is also active at the state in Georgia. Among her accomplishments, in 2012, she presented at the Georgia Department of Behavioral Health and Developmental Disabilities Suicide Prevention Program and the Supreme Court of Georgia's Committee on Justice for Children. In 2013, her work led Governor Deal to designate September 9th as FASD Awareness Day, which has continued under the current governor, Brian Kemp. Melissa co-led the 2018 Atlanta Training on FASD at the State Bar of Georgia. In May 2021, she published a book about FASD advocacy titled, The Accomplice. Melissa received a Bachelor of Science in Broadcasting from the University of Florida. She worked for the Tribune Broadcasting Company and she was awarded the company's highest honor for customer service before resigning in 1997, to devote herself fulltime to raising awareness and understanding FASD. She resides in Atlanta, GA.
In this HOPE-FILLED episode, Melissa explores the following topics: her family's journey, early advocacy efforts, when she shifted from local FASD parent advocate to regional / national advocate, her involvement in the FASD justice conferences, what led her to write her book The Accomplice, the importance of her faith, the living angels in her life and what she hopes readers can take away from her book.
"Teach me to do Your will, For You are my God; Your Spirit is good. Lead me in the land of uprightness." - Psalm 143:10
CLARIFICATION MESSAGE FROM EPISODE GUEST -
"Guest Melissa Jacobus inadvertently mentioned that she presented with Billy Edwards in Missouri and New Orleans, when in actuality, she presented with Billy Edwards in Mississippi and New Orleans."
EPISODE RESOURCES -
You can contact Melissa through the NOFAS website
https://nofas.org/
The Accomplice by Melissa Jacobus
https://www.amazon.com/Accomplice-Melissa-Jacobus/dp/1665300035/ref=sr_1_1?crid=14TED630GN1J9&dchild=1&keywords=the+accomplice+melissa+jacobus&qid=1632106013&sprefix=The+Accomplice+by+Meli%2Caps%2C178&sr=8-1
FASD HOPE RESOURCES -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
September is FASD Awareness Month! Episode 83 kicks off a 4 part, monthly series within FASD Hope titled "All About FASD - Professional Insights and Perspectives” with Dr. Jerrod Brown. This month's topic is FASD and the COVID19 Pandemic. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST). Jerrod has completed four separate master's degree programs and holds graduate certificates in Autism Spectrum Disorder (ASD), Other Health Disabilities (OHD) and Traumatic Brain Injuries (TBI).
In this first "All About FASD" episode, Dr. Brown educates the listener about the following topics: the history of his extensive work in the FASD field, implications of the stressors of the COVID19 Pandemic on individuals with FASD (and their families), specific points about FASD and the COVID19 Pandemic, Trauma with the COVID19 Pandemic, Resources and Tips for Caregivers and Words of Hope and Encouragement.
EPISODE RESOURCES -
Dr. Jerrod Brown - jerrod01234brown@live.com
American Institute for the Advancement of Forensic Studies (AIAFS) https://www.aiafs.com
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with other nineteen years of lived experience.
FASD Hope is partnering with FASCETS for "FASCETS Friday" episodes, which will air twice a month. FASCETS Facilitators will be teaching our listeners a variety of topics related to FASD and other brain-based diagnoses.
Episode 81 is the FIRST episode of our FASCETS Fridays series and the topic is "Adjusting Developmental Timelines and Shifting Expectations" with Lynn Alsup. Lynn Alsup holds a Master of Social Work degree and a certificate in Spiritual Direction. In the Spring of 2014, she read Diane Malbin's "Trying Differently Rather Than Harder" while researching FASD for a friend. Lynn recognized her family's story. She dove deep into further research and began sharing her learning professionally and implementing the model at home. It transformed both her career and her family. Committed to increasing understanding, support and resiliency for neurodiverse people and their families, she became a Certified Facilitator of the FASCETS Neurobehavioral Model in 2017. Lynn founded neuro.behavioral.connections to consult with families and offer trainings across disciplines including psychiatric residency students and faculty, school educators, counselors, autism clinic providers, foster care providers, therapists and the Learning Disability Association of America. Lynn tells her story in her forthcoming memoir, "Finding Home: A Tale of Adoption and Transformation". She serves as a Program Director for FASCETS from her home in West Texas with her husband and three extraordinary, neurodiverse daughters.
In this first FASCETS Friday Episode titled "Adjusting Developmental Timelines and Shifting Expectations", Lynn explores and teaches about the following topics: her family and her professional journey, what it means to adjust developmental timeline, the importance of shifting expectations when parenting / teaching / caregiving a child / teen with FASD or other brain based diagnosis, developmental "leaps" and real life examples of these topics.
"Now to Him who is able to do exceedingly abundantly above all that we ask or think, according to the power that works in us.” - Ephesians 3:20
Post-Episode GUEST CLARIFICATION MESSAGE from Lynn Alsup -
"When I listened to our conversation, I realized I misspoke near the end of our time as I said 'full independence' is the goal of both traditional parenting and the neurobehavioral paradigm. A great example of long held beliefs and values surfacing unconsciously along the life-long journey of shifting our paradigm to trying differently rather than harder! At FASCETS, we embrace the idea that humans are interdependent. The aim isn't 'full independence', but a healthy interdependence that allows strengths to flourish and challenges to be accommodated across the lifespan. That will, of course, look different for each individual. Thanks for the opportunity to correct myself!"
EPISODE RESOURCES -
Lynn Alsup - https://lynnalsup.com/
Instagram - https://www.instagram.com/lynnalsup/
Facebook - https://www.facebook.com/neuro.behavioral.connections
FASCETS - https://fascets.org/
NOTE - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting us as an organization.)
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 19 years of lived experience.
Episode 82 highlights Angela Paganelli, who is the founder of Foster Blessings, a foster care meals ministry, based out of the Evangelical Church in Clinton Corners, NY. They provide pizza for foster families as children come into care in their home, as well as 2 more nights of no-prep, no-cleanup meals. Foster Blessings also provides essentials such as diapers, wipes and other necessities all delivered to the foster family's door by the delivery team. The goal is to live out James 1:27 and be the hands and feet to the local fostering community.
In this heartfelt and INSPIRATIONAL episode, Angi and Natalie (podcast host) catch up and discuss the following topics: Angi's personal and family's journey, their MAPS class experiences, how Angi's faith has carried her through her incredible journey, how she was inspired to form Foster Blessings , what the Foster Blessings ministry provides for her community and her words of hope and encouragement.
"The Lord your God in your midst, The Mighty One, will save; He will rejoice over you with gladness, He will rejoice over you with gladness, He will quiet you with His love, He will rejoice over you with singing." - Zephaniah 3:17
EPISODE RESOURCES -
Email Angi Paganelli at fosterblessingsefc@gmail.com
Facebook - https://www.facebook.com/FosterBlessingsMealsMinistry/
Instagram - https://www.instagram.com/foster_blessingsefc/
Foster Blessings EFC - (845)-516-4218
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 19 years of lived experience.
FASD Hope celebrates Episode 80 with a wrap up the prep work for the Run FASD Virtual 5K, which is happening from September 9 - 15, 2021. Run FASD Virtual 5K is the first race of its kind to raise awareness and support for the FASD Community....and to shine a light on the strengths of those individuals living with FASD.
Your Run FASD Virtual 5K Team is Coach and Race Chair, Rebecca Tillou and Assistant Coaches - Jennifer Wisdahl and Natalie Vecchione. Together, the team shares their hopes and excitement for this wonderful race. As Team Run FASD Virtual 5K approaches, Coach Rebecca, Jenn and Natalie also share favorite pre-race foods, race playlists and their thankfulness of the friendship they have developed in working as Team Run FASD Virtual 5K.
Registration for this race is STILL available through September 15, 2021!
Episode Resources -
RUN FASD Virtual 5K
https://nofaspolicycenter.org/run-fasd/
Run FASD on Facebook - https://www.facebook.com/groups/runfasd
Run FASD on Instagram - https://www.instagram.com/runfasd/
Run FASD on Twitter - https://twitter.com/FasdRun
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
SEPTEMBER IS FASD AWARENESS MONTH!
Episode 79 is titled "Advocate Like A Pro" and highlights Alex Tripp. Alex Tripp has been working with individuals with brain based disabilities for the past four years as a support professional in Ontario, Canada. She has developed a special interest in FASD and strives to create more awareness, while driving for changed towards a more supportive and inclusive world for everyone.
In this motivational episode, Alex shares the following topics: her journey / what led her to become an advocate for the FASD Community, how her FASD Advocacy work has grown in the past year, why it is SO critical to share FASD Awareness with others, examples of her "Caregiver Tips" and her words of hope for those in the FASD / NB Communities.
EPISODE RESOURCES -
Connect with Alex through-
Instagram - https://www.instagram.com/alextfasd/
Facebook - https://www.facebook.com/alexTFASD
Twitter - https://twitter.com/alexTFASD
Alex is also a Collaborator at THE CSH Collab -
https://www.thecshcollab.com/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 78 is a Dadcast titled "Shifting Gears and The Pivot" with John Vecchione. In this episode, John and Natalie discuss the importance of shifting gears (changing plans, making accommodations, providing supports) when parenting a young adult with an FASD and share a couple of real-life examples. John shares how shifting gears in the FASD parenting journey is similar to shifting gears when driving. John also discusses "The Pivot" and how this strategy, that's utilized in the start-up and technology worlds, can apply to parenting and caring for children / teens / young adults with FASD and other Brain Based Diagnoses. Finally, John shares some words of encouragement and hope when it comes to changing plans.
"Teach me to do Your will, for You are my God; Let Your good Spirit lead me on level ground." - Psalm 143:10
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 77. "More Guided Growth", welcomes back Dr. Ira Chasnoff - an award winning author, researcher, President of NTI Upstream and a Professor of Clinical Pediatrics at the University of Illinois College of Medicine in Chicago. Dr. Chasnoff is one of the nation's leading researchers in the field of child development and the effects of maternal alcohol and drug use on newborn infants, children and adolescents. Dr. Chasnoff's research, practice and contributions to the FASD and Pediatric Communities span over 40 years. Dr. Chasnoff is the co-author (along with Ronald J. Powell, Ph.D.) of "Guided Growth: Educational and Behavioral Interventions for Children and Teens with Fetal Alcohol Spectrum Disorders and Early Trauma".
In this follow-up episode, Dr. Chasnoff explores the following topics: an update of Guided Growth , how Guided Growth has been such a well-received resource for families/ educators/ professionals, discussing the Guided Growth Book Club, understanding the connection of trauma / FASD, how Guided Growth can be a valuable resource for parents when working with teachers / administrators...and his words of encouragement and hope for families and caregivers of those children and teens with FASD.
EPISODE RESOURCES -
NTI Upstream
https://www.ntiupstream.com/
Guided Growth -
https://www.ntiupstream.com/guided-growth-about-the-book
Contact Information -
info@ntiupstream.com
Instagram - https://www.instagram.com/ntiupstream/
Facebook - https://www.facebook.com/NTIUpstream
Twitter - https://twitter.com/ntiupstream
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
We are THRILLED to promote and provide an update for the FIRST Annual Run FASD Virtual 5K for FASD! Rebecca Tillou is a FASD Self Advocate, Author, Mom, Wife.....and now Race Chair and Coach of the First "Run FASD Virtual 5K". Jennifer Wisdahl (mom of three with FASD, Policy and Training Coordinator of NOFAS) and Natalie Vecchione (mom of a young adult with an FASD, co-founder of FASD Hope, Podcast Host and Author). Together, they are Team Run FASD!. Rebecca, Jenn and Natalie share an update for Run FASD Virtual 5K.
The Run FASD Virtual 5K for FASD is taking place from September 9 through 15th, 2021. To sign up, to be a sponsor or for more information, see the below information:
https://nofaspolicycenter.org/run-fasd/
EPISODE RESOURCES -
https://nofaspolicycenter.org/run-fasd/
Jennifer Wisdahl (NOFAS) - wisdahl@nofas.org
Run FASD on Social Media-
Instagram - https://www.instagram.com/runfasd/
Facebook - https://www.facebook.com/groups/runfasd
Twitter - https://twitter.com/FasdRun
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 75 highlights Marshae Franklin. Marshae Franklin is a Licensed, Pediatric Occupational Therapist in Los Angeles, California. She completed her undergraduate degree in Psychology and Social Behavior at the University of California - Irvine and her Masters of Science in Occupational Therapy at Howard University. After two years of experience as a clinician, Marshae decided to further her education with a post-professional Doctorate of Occupational Therapy or OTD, and she is currently enrolled at the University of Southern California. Marshae is an advocate for underserved and marginalized populations. Her current research involvement includes addressing the occupational barriers of those exposed to prenatal alcohol exposure in utero, specifically Fetal Alcohol Spectrum Disorders (FASDs). Through her continuous efforts to disseminate research as an OTD Resident at USC, Marshae hopes to dismantle health disparities by bridging the existing gaps between research, lived experiences and policy on a national and global level.
In this ENLIGHTENING episode, Marshae educates listeners about the following topics: her professional journey and what led her to study FASD during her clinical / educational experiences, what is Occupational Therapy, what she learned the biggest policy barriers for the the FASD population, what she learned in the research literature of how OT supports FASD, her goals and her words of hope for the FASD community.
EPISODE RESOURCES
Marshae Franklin -
marshaetheot@gmail.com
Instagram - https://www.instagram.com/marshaetheot/
Twitter - https://twitter.com/MarshaetheOT
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 74 features Dr. Jeffrey Wozniak - Professor, Division Director of Behavioral Sciences and Pediatric Neuropsychologist at the University of Minnesota. His research is focused on Fetal Alcohol Spectrum Disorders (FASDs) and he directs the University of Minnesota's FASD Research Program which conducts neuroimaging, neurocognitive and intervention studies in FASD. He is a past-president of the Fetal Alcohol Spectrum Disorders Study Group (FASDRG). His current research is part of the Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD). Dr. Wozniak's recent efforts have included a randomized controlled trial of choline supplementation in children with FASD - the goal of which is to develop a treatment for the neurodevelopmental aspects of the disorder. Dr. Wozniak is involved in advocacy and his team work closely with the National Organization on Fetal Alcohol Syndrome (NOFAS) and the Minnesota Chapter - Proof Alliance - to inform the public about the dangers of prenatal alcohol exposure and to train professionals in diagnosing and assisting affected individuals.
In this HIGHLY INFORMATIVE episode, Dr. Wozniak explores the following topics: his professional history (and what led him to his research and work with the FASD population), the significant clinical developments in FASD research that parents and caregivers should know, the focus of his FASD research and advocacy work for the rest of 2021, what he has learned from parents of children with FASD and his words of encouragement and hope for individuals with FASD and their families.
EPISODE RESOURCES -
FASD Research at University of MN
http://fasd.umn.edu/
Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD)
https://cifasd.org/
Proof Alliance -
https://www.proofalliance.org/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 73 shines a light on Liz Grubb - wife, working mom of two (via International Adoption), adoption advocate, podcaster and co-host and co-creator of the "Two Adoptive Mamas" podcast and resource website. Many moves and a decade after beginning her career in higher education, Liz has taken a step back from residence life and engaged in full-time remote work to allow for more flexibility as a wife and adoptive mama. She and her husband made two international trips in the last five years to bring home two school-aged children; a daughter from Poland and a son from China. Jesus, family and an amazing network of support have helped Liz navigate countless therapy sessions, specialist appointments and a variety of procedures. Liz is committed to helping other adoptive mamas thrive personally and professionally amidst the growing needs of family and school-aged children, fully trusting in God's handiwork and plan to use this "hard" for His Glory!
In this INSPIRATIONAL FILLED episode, Liz discusses the following topics: her family's adoption journey, learning about FASD, being a parent advocate, her steadfast foundation in her faith, how her faith carries her through the "hard" of their family's journey, the "Two Adoptive Mamas" podcast / website and her words of hope for those parents and families of kids with FASD.
"Again, the kingdom of Heaven is like treasure hidden in a field, when a man found and hid, and for joy over it he goes and sells all that he has and buys that field." - Matthew 13:44
EPISODE RESOURCES -
Two Adoptive Mamas - https://twoadoptivemamas.com/
The Two Adoptive Mamas podcast is available wherever you find your podcasts.
Instagram - https://www.instagram.com/2adoptivemamas/
Facebook - https://www.facebook.com/2adoptivemamas/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
We are THRILLED to announce the FIRST Run FASD Virtual 5K for FASD! Rebecca Tillou is a FASD Self Advocate, Author, Mom, Wife.....and now Race Chair and Coach of the First "Run FASD Virtual 5K". Jennifer Wisdahl (mom of three with FASD, Policy and Training Coordinator of NOFAS) and Natalie Vecchione (mom of a young adult with an FASD, co-founder of FASD Hope, Podcast Host and Author) are the Run FASD Virtual 5K Organization & Support Team. Rebecca, Jenn and Natalie share the beginnings of Run FASD Virtual 5K and their hopes and vision for this upcoming Virtual 5K!
The Run FASD Virtual 5K for FASD is taking place from September 9 through 15th, 2021. To sign up, to be a sponsor or for more information, see the below information:
https://nofaspolicycenter.org/run-fasd/
EPISODE RESOURCES -
https://nofaspolicycenter.org/run-fasd/
Jennifer Wisdahl (NOFAS) - wisdahl@nofas.org
Run FASD on Social Media-
Instagram - https://www.instagram.com/runfasd/
Facebook - https://www.facebook.com/groups/runfasd
Twitter - https://twitter.com/FasdRun
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 71 shines a spotlight on Susan Elsworth, Founder and Executive Director of Indiana NOFAS, Inc. - a nonprofit corporation serving families and individuals with prenatal exposure to substances and alcohol. Susan is also the Director of Perinatal Substance Abuse and Family Advocacy for Mental Health America of Indiana. Susan is the NOFAS Affiliate Coordinator of the NOFAS network. Indiana NOFAS is a subsidiary of Mental Health America of Indiana, who seeks to provide support and services to individuals and their families, while advocating for positive system change a holistic across the lifespan.
During this HOPE FILLED episode, Susan explores the following topics: her family's journey in FASD, the transformation of her as a "Go-To Mom About FASD" to FASD Parent Advocate, the importance of safety plans, the importance of grieving, the innovative educational and training opportunities offered through Indiana NOFAS and her words of encouragement and hope for the FASD community.
stopthebounce
EPISODE RESOURCES -
Indiana NOFAS
https://indiananofas.org/
Facebook - https://www.facebook.com/IndianaNOFAS
Instagram - https://www.instagram.com/indiananofas/
Twitter - https://twitter.com/IndianaNOFAS
LinkedIn - https://www.linkedin.com/in/susan-elsworth-a9373440/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 70 highlights Tara Murphy of "The Parenting Frontier". Tara Murphy is the mother of two children diagnosed with developmental disabilities. She has successfully secured effective therapies for them from medical insurance and appropriate educations from her school district. This included multiple, due process hearings. Six years of experience in advocating for her own children has made Tara want to fight for other children as well. Tara believes that advocating for children with disabilities should begin as early as possible in order to maximize their outcomes. Based in New Jersey, Tara is knowledgeable about state practices and the IDEA (Individuals with Disabilities Education Act), which applies to children in every state. Tara is a SPAN Resource Parent, a Volunteer Advocacy Ambassador for Autism Speaks member of the Somerset County, NJ Advisory Council on Disability Issues and member of the Council of Parent Attorneys and Advocates (COPAA).
In this resourceful episode, Tara discusses the following topics: her family's journey and what led her to become a parent advocate, her current work through "The Parenting Frontier", services and supports offered through "The Parenting Frontier" and words of encouragement and hope for parents and caregivers of children / teens with developmental disabilities / neurodiversity.
Episode Resources -
The Parenting Frontier -
https://theparentingfrontier.com/
Tara Murphy - advocate@theparentingfrontier.com
Instagram - https://www.instagram.com/parentingfrontier/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 69 is this month's Dadcast and our guest is Brett Monk. Brett is the Director and Writer of Mount Hideaway Series. He and his wife built his family through foster adoption and he and his wife homeschool their daughter. Brett is a filmmaker and screenwriter with over thirty years of experience in writing, directing, editing and a variety of crew positions for film and video production. His work experience is mainly centered around media production and small business leadership. Over four years ago, he developed the Mount Hideaway Mysteries Series.
In this INSPIRATIONAL episode, Brett, Natalie and John explore the following topics: the adoption journey of Brett's family and how his daughter came home, why he and his wife chose to homeschool their daughter, what led to the formation of "Mount Hideaway Mysteries" , his words of encouragement for dads whose families were build through adoption and his words of hope for families who are on unique and hard journeys.
"God sets the solitary in families; He brings out those who are bound into prosperity; But the rebellious dwell in a dry land." - Psalm 68:6
EPISODE RESOURCES -
Mount Hideaway Mysteries - https://www.mounthideaway.com/
https://www.amazon.com/Mount-Hideaway-Mysteries-Exes-Nos/dp/B07L5W813X
Facebook - https://www.facebook.com/mounthideaway
Instagram - https://www.instagram.com/mounthideaway/
LinkedIn - https://www.linkedin.com/in/brettmonk/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 68 highlights Aubrey Page - an FASD Parent Advocate, FASD Educator, Disability Advocate and Parent Mentor. Aubrey and her husband, Nelson, founded "The Change Starts Here Collaborative". The CSH Collab helps families and professionals working with individuals with brain-based disabilities to feel confident and supported by providing a library of resources and a sense of community, so that they are empowered in supporting these individuals and advocating for their own needs.
Aubrey will be opening up applications for the first year of a mentoring program "Making Change for FASD". It will involve 6 weeks of content that will equip the program student to advocate for FASD in their own community. Together, the students and Aubrey will partner up to work on a project to raise awareness for FASD Awareness Day on September 9th.
In this "kick-start your advocacy up a notch" episode, Aubrey shares a few tips...
When Advocating for FASD:
-
Know Your Facts
-
Language Matters
-
Consider Dignity and Privacy
When Advocating for FASD on Social Media:
-
Be Timely
-
Be Relevant
-
Engage with Your Audience
EPISODE RESOURCES -
Aubrey Page - Founder of The CSH Collaborative
https://www.thecshcollab.com/
aubrey@thecshcollab.com
Instagram - https://www.instagram.com/thecshcollab/
Facebook - https://www.facebook.com/thecshcollab/
Twitter - https://www.twitter.com/aubreypagefasd/
Twitter - https://www.twitter.com/thecshcollab/
LinkedIn- https://www.linkedin.com/in/aubreyppage/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
BREAKING NEWS! Emmaus Holder of FASD Across America has just FINISHED his 4,300 bike trip from North Carolina to California! Episode 67 celebrates Emmaus Holder (Episode 55 guest), a student at the University of North Carolina - Chapel Hill, where he is a Morehead-Cain Scholar. He is an alumni and a mentor of the program known as H.Y.P.E. or Helping Yourself with Pride Through Education, which is a step team focused on academic achievement, community engagement, mentorship and competitive dance. Emmaus is the oldest of five, including two brothers with FASD.
FASD Hope was honored to interview Emmaus within an hour after he finished his 4.300 mile coast-to-coast trip. Emmaus shares his experiences from his trip, what he learned from interviewing individuals with FASD / their families and his words of hope for the FASD Community. We were honored to be joined by Mr. Joyner and his teammates of the H.Y.P.E. step team to surprise Emmaus in congratulating him on his AMAZING ACCOMPLISHMENT!
EPISODE RESOURCES -
https://www.thecshcollab.com/bike
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 66 shines a light on an AMAZING. nonprofit organization in Scotland, Oshay's FASD, which is run by Maryelen and Paula McPhail. Oshay's FASD is a social enterprise based in Ayr with a mission of supporting families of / and children living with FASD. Maryelen is the mom of children with FASD with over 21 years of lived experience. Paula is a young adult living with an FASD and an AMAZING self-advocate. Together, Maryelen and Paula have developed Oshay's FASD to educate, support and train families / individuals / professionals wanting to learn more about FASD. Oshay's FASD runs workshops for teachers, social workers and carers, where they can learn to identify the symptoms of FASD, learn coping strategies and learn how to support children living with FASD.
In this HEARTFELT and HOPE-FILLED episode, Maryelen and Paula discuss the following topics: their family's FASD journey, what motivated Maryelen and Paula to start Oshay's FASD, programs and services offered by Oshay's FASD, how people can support Oshay's FASD and words of hope for families and individuals with FASD.
EPISODE RESOURCES -
Oshay's FASD -
https://www.oshaysfasd.org/
info@oshaysfasd.org
Mobile - +44 (0) 7796 135659
Instagram - https://www.instagram.com/oshays_fasd/
Facebook - https://www.facebook.com/oshaysfasd/
Twitter - https://www.twitter.com/FasdOshay/
Clubhouse - @oshaysfasd
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1/
Twitter - https://www.twitter.com/fasdhope/
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 65 is an EXCITING, HOPE-FILLED FASD Legislation Update with Susan Shepard Carlson and Jenn Wisdahl! FASD Hope welcomes back Susan Shepard Carlson, Former First Lady of Minnesota and Chair of the NOFAS Legislative and Policy Committee and Jenn Wisdahl is an FASD Parent Advocate and NOFAS Policy and Training Center Coordinator. Together, Susan and Jenn provide an update on the National FASD Legislation, "The FASD Respect Act", H.R. 4151 and S.2238.
This BREAKING NEWS episode provides an update on the introduction of The FASD Respect Act - H.R. 4151 and S. 2238. This IMPORTANT and CRITICAL FASD legislation now needs the FASD Community (parents, caregivers, professional, relatives, loved ones and self-advocates) to rally and reach out to their senators and representatives to hear WHY this legislation is SO needed! The time for us to get in touch and communicate with our legislators is NOW! This time is especially critical, as it is during the Summer Recess times of the Senate and House of Representatives. Jenn shares how everyone can learn HOW to get in touch with their senators and representatives and what needs to be communicated - and guidance is provided through the NOFAS Policy Center website. This episode is a CALL TO ACTION for everyone to help get this legislation passed!
"Alone we can do so little, together we can do so much." - Helen Keller
EPISODE RESOURCES -
The NOFAS Policy and Training Center -
https://nofaspolicycenter.org/
Jenn Wisdahl, Policy and Training Center Coordinator
wisdahl@nofas.org
202-601-2530
90 Days, 90 Ways Support #FASDRespect
https://nofaspolicycenter.org/90-days-90-ways/
Facebook - FASD Respect Act Champions - https://www.facebook.com/groups/459616135300282
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Twitter - https://twitter.com/fasdhope
Facebook - https://www.facebook.com/fasdhope1/
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
Check out our new book - "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy. BUY NOW on Amazon
https://amzn.to/3w8nQgK
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.
June is Book Month on FASD Hope, to shine a light on a variety of authors in the FASD Community. Episodes 63 and 64 highlight Dr. Susan Rich. Dr. Susan Rich is a Child / Adolescent Psychiatrist and a champion in the field of FASD Clinical work and research. In addition to her psychiatric and clinical work in FASD, she also holds a Master's Degree in Public Health. Dr. Rich's life work is in the evaluation and treatment of Neurodevelopmental Disorder Associated with Prenatal Alcohol Exposure (ND-PAE), autism-related issues and individuals with histories of complex trauma, institutional, adoption, foster care and adjudication. Dr. Rich has been certified as an expert in a number of capital habeas cases and provides forensic evaluations and clinical reports for several death penalty pre-trial hearings and appeal trials. Dr. Rich is the author of "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row" (2016). In 2016, Dr. Rich also formed the nonprofit organization "7th Generation Foundation, Inc." and "Dream Catcher Farm" in Maryland.
In the second part of this two part episode, Dr. Rich discusses the following topics: what led her to form the nonprofit 7th Generation Foundation, Inc. and The Dream Catcher Farm, how Dream Catcher Farm focuses on social / recreational / vocational opportunities, the backstories of the animals on the Dream Catcher Farm (and how the children / teens connect with the animals, how people can learn more about Dr. Rich's nonprofit and her words of hope for parents, and loved ones of those with FASD.
EPISODE RESOURCES -
Dr. Susan Rich -
https://www.susandrich.com/index.html
"The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row"
https://www.amazon.com/Silent-Epidemic-Psychiatrists-Understanding-Neurodevelopmental/dp/1483448819/ref=sr_1_5?crid=2KWRK86785H8&dchild=1&keywords=the+silent+epidemic&qid=1624666339&s=books&sprefix=The+Silent+Epidemic+%2Caps%2C395&sr=1-5
7th Generation Foundation, Inc. and Dream Catcher Meadows -
http://www.7thgenerationfoundationinc.org/index.html
Dream Catcher Meadows on Facebook -
https://www.facebook.com/TheDreamCatcherFarm
FASD Hope -
https://www.fasdhope.com
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1/
Pinterest - https://www.pinterest.com/fasdhope1/
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book - "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy
BUY NOW on Amazon
https://amzn.to/3w8nQgK
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.
June is Book Month on FASD Hope, to shine a light on a variety of authors in the FASD Community. Episodes 63 and 64 highlight Dr. Susan Rich. Dr. Susan Rich is a Child / Adolescent Psychiatrist and a champion in the field of FASD Clinical work and research. In addition to her psychiatric and clinical work in FASD, she also holds a Master's Degree in Public Health. Dr. Rich's life work is in the evaluation and treatment of Neurodevelopmental Disorder Associated with Prenatal Alcohol Exposure (ND-PAE), autism-related issues and individuals with histories of complex trauma, institutional, adoption, foster care and adjudication. Dr. Rich has been certified as an expert in a number of capital habeas cases and provides forensic evaluations and clinical reports for several death penalty pre-trial hearings and appeal trials. Dr. Rich is the author of "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row" (2016).
In the first part of this two part episode, Dr. Rich discusses the following: her professional background and what led her to work in the FASD field, how society needs to normalize sobriety, her book "The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row" and what she wants readers to take away from her book.
EPISODE RESOURCES -
Dr. Susan Rich -
https://www.susandrich.com/index.html
"The Silent Epidemic: A Child Psychiatrist's Journey Beyond Death Row"
https://www.amazon.com/Silent-Epidemic-Psychiatrists-Understanding-Neurodevelopmental/dp/1483448819/ref=sr_1_5?crid=2KWRK86785H8&dchild=1&keywords=the+silent+epidemic&qid=1624666339&s=books&sprefix=The+Silent+Epidemic+%2Caps%2C395&sr=1-5
7th Generation Foundation, Inc. and Dream Catcher Meadows -
http://www.7thgenerationfoundationinc.org/index.html
Dream Catcher Meadows on Facebook -
https://www.facebook.com/TheDreamCatcherFarm
FASD Hope -
https://www.fasdhope.com
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1/
Pinterest - https://www.pinterest.com/fasdhope1/
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
Check out our new book - "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy. BUY NOW on Amazon
https://amzn.to/3w8nQgK
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.
June is Book Month on FASD Hope, to shine a light on a variety of authors in the FASD Community. Episode 62 features Dr. Vanessa Spiller, author the book "Explained by Brain: The FASD Workbook for Parents, Carers and Educators". Dr. Vanessa Spiller is a Clinical Psychologist with over 20 years of clinical experience. She works therapeutically using a Feedback Informed Approach with adults and young people with families and young people on issues such as anxiety, adjustment to change, trauma and grief and loss. She also works with families and young people impacted by FASD. Dr. Spiller utilizes evidence-based approaches combined with practice-based evidence to ensure that the work done together is meaningful, helpful and on-track! Dr. Spiller has also worked in several Australian universities and provides lectures and professional development activities in areas such as professional practice, child and adolescent work and adult psychology and ethics.
This enlightening and resource-packed episode includes the following topics: Dr. Spiller's professional and personal journey in the FASD Community, her FASD work (and how it's grown in the past years), her current FASD work / advocacy, discussing how Australia has grown in FASD awareness / research and education, her book "Explained by Brain" and her words of hope as both a clinician and a parent of a young adult with an FASD.
EPISODE RESOURCES-
Dr. Vanessa Spiller - www.jumpstartpsychology.com
"Explained by Brain: The FASD Workbook for Parents, Carers and Educators"
https://www.amazon.com/Explained-Brain-Workbook-Educators-everything/dp/0995353212/ref=sr_1_1?dchild=1&keywords=Explained+by+Brain+FASD&qid=1623696162&sr=8-1
FASD Hope -
https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
Check out our new book "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione & Cindy LaJoy. BUY NOW on Amazon
https://amzn.to/3w8nQgK
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 61 is a Dadcast Episode with John and Natalie Vecchione. Affectionately titled "Road Trips and Gratitude", John and Natalie discuss an upcoming road trip (thinking about accommodations) and not having expectations for this road trip. With Father's Day soon approaching, John and Natalie also discuss having gratitude. Natalie shares how she is thankful for John and everything he does for their family.
"Praise the Lord. Give Thanks to the Lord, for He is good; His love endures forever." - Psalm 106:1
FASD HOPE -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1/
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
Check out Natalie's new book - "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy on Amazon - BUY NOW on Amazon
https://amzn.to/3w8nQgK
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.
June is FASD Book Month at FASD Hope! FASD Hope celebrates it's 60th episode by featuring FASCETS and the Executive Director of FASCETS, Nathalie Brassard. FASCETS was developed as an extension of the GROUND BREAKING book about FASD, which was first published in 1997, "Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders" by Diane Malbin, MSW. The "Trying Differently Rather Than Harder" book is considered the sentinel and go-to book about FASD. It is often the book that podcast host, Natalie Vecchione, recommends to ANYONE wanting to learn about FASD.
In this enlightening episode, Nathalie and Natalie discuss the following topics: the history of FASCETS and the "Trying Differently Rather Than Harder" book, how FASCETS has grown in it's 24 years. the growth of FASCETS online training (especially since the COVID19 Pandemic), trainings updates and how FASCETS and FASD Hope will be partnering to bring "FASCETS Fridays" episodes in the near future.
EPISODE RESOURCES -
FASCETS
https://fascets.org/
Facebook - https://www.facebook.com/FASCETS
Instagram - https://www.instagram.com/fascets_inc/
"Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders" by Diane Malbin, MSW
https://www.amazon.com/gp/product/0972953205/ref=as_li_qf_asin_il_tl?ie=UTF8&tag=fasdhope-20&creative=9325&linkCode=as2&creativeASIN=0972953205&linkId=ffdc6ec315ada4981ab5ade0169c170f
FASD Hope -
FASD Hope - https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
READ OUR NEW BOOK ! - "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy. BUY NOW on Amazon
https://amzn.to/3w8nQgK
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.
Episode 59 is affectionately titled "We Wrote A Book!" Natalie Vecchione (podcast host) and Cindy LaJoy (mom of 5, founder of Blue Collar Homeschool and Buckaroos Slices and Scoops) co-authored a new book titled "Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities". Natalie and Cindy share their new adventure about their book and how it came to fruition. Natalie and Cindy are both homeschool moms. Years ago, they realized that their teens with FASD needed an alternative homeschool, high school path in order for their teens to have a meaningful future. Within their respective families, Natalie and Cindy each battled confusion, isolation and uncertainty. However, they turned their desperation into inspiration! Through entrepreneurship and old-fashioned apprenticeship, Natalie and Cindy prepared their teens with FASD to move forward with hope and a set of life / job skills. Natalie and Cindy have joined together to write the book that THEY wish they had to guide them during those frightening and lonely moments!
"Trust in the Lord with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths." - Proverbs 3:5-6
EPISODE RESOURCES -
"Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities" by Natalie Vecchione and Cindy LaJoy
https://www.amazon.com/Blazing-New-Homeschool-Trails-Developmental/dp/B096LYJCJW/ref=sr_1_1?crid=3CI7ZHYJ5I7O4&dchild=1&keywords=blazing+new+homeschool+trails+book&qid=1622948692&sprefix=blazing+new+homeschool+trails%2Caps%2C181&sr=8-1
Blazing New Homeschool Trails Website -
https://blazingnewhomeschooltrails.com/
Cindy LaJoy -
Blue Collar Homeschool - https://www.bluecollarhomeschool.com/
Buckaroos Slices and Scoops - https://www.buckaroosmontrose.com/
Facebook - Buckaroos Slices and Scoops - https://www.facebook.com/BuckaroosPizza
Instagram - https://www.instagram.com/buckaroosslicesandscoops/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), from the lens of parent advocates with over eighteen years of lived experience.
Episode 58 shines a light on returning guest, Sandra Flach, and her new book "Orphans No More: A Journey Back to the Father". Sandra Flach is a mom of 8 children, 5 through adoption and 2 who are diagnosed with a Fetal Alcohol Spectrum Disorder (FASD). She encourages and equips foster and adoptive moms through her weekly "Orphans No More" podcast. Sandra is the co-founder of Justice for Orphans and serves as the Area Director for Care Portal. Sandra and her husband Wayne have been married for 34 years. They reside in upstate New York, where they love to spend time with their 5 precious grandchildren.
In this SPIRIT-FILLED episode, Sandra and Natalie discuss the following: an update of what Sandra has been doing with JFO, her newly-released book "Orphans No More: A Journey Back to the Father", how she wrote and the inspiration for her book and her words of hope to families of children with FASD / families in hard places.
"Blessed be the God and Father of our Lord Jesus Christ, who has blessed us with every spiritual blessing in the Heavenly places in Christ, just as HE chose us in Him before the foundation of the worlds, that we should be holy and without blame before Him in love, having predestined us to adoption as sons by Jesus Christ Himself, according to the good pleasure of His will."
- Ephesians 1:3-5
EPISODE RESOURCES -
Sandra Flach - https://www.sandraflach.com/
Sandra Flach's New Book "Orphans No More: A Journey Back to the Father"
https://www.amazon.com/Orphans-No-More-Journey-Father-ebook/dp/B095QFN7X7/ref=sr_1_3?crid=E4UWS4TCFMZY&dchild=1&keywords=orphans+no+more&qid=1622412192&s=books&sprefix=orphans+no+more%2Caps%2C190&sr=1-3
Justice for Orphans - https://www.justicefororphansny.org/
The "Orphans No More" Podcast is available anywhere you find your podcasts.
Instagram - https://www.instagram.com/justicefororphans/
Facebook - https://www.facebook.com/JusticeForOrphans
FASD Hope
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 57 shines a light on the work of the Hawaii FASD Action Group. The Hawaii FASD Action Group was founded in 2014 by Dr. Ann Yabusaki, a psychologist and family therapist. During her 15+ years as a family therapist for Hawaii's Juvenile Drug Court, she encountered increasing numbers of youth and families affected by FASD who did not respond to evidence - based practices. In 2004, she attended a SAMHSA seminar, learned about FASD and she finally understood her clients. She consulted with other providers who shared similar observations and families with children affected by FASD, discovered the gaps in knowledge and FASD informed services in Hawaii and founded the all-volunteer Hawaii FASD Action Group. The Action Group focused on FASD education and awareness through presentations to agencies funded by Hawaii's Departments of Health, Education, Judiciary, Human Services and Public Safety. The Action Group sponsored statewide FASD Conferences in 2017 and 2019 and worked with legislators to craft several bills on FASD awareness and FASD informed services. Through these efforts, the State of Hawaii's Statutes now recognizes FASD. In 2020, the Hawaii FASD Action Group became a 501 (c) (3) nonprofit organization. Currently, the Hawaii FASD Action Group works towards building capacity and infrastructure to continue their mission of creating research, awareness and FASD informed services via their all-volunteer Board of Directors and Action Group.
Jeremy and Terra Daniel live on the North Shore of Oahu and they have been married for 22 years. They have 4 children and a service dog, Pineapple. Jeremy holds a degree in Sociology and Terra holds a degree in Organizational Communication. Their family entered the world of FASD after their second daughter was born in 2004 and diagnosed in 2005. Since then, they have been actively involved on the state level, in both Hawaii and Utah, in helping to raise awareness about FASD while searching for ways to help their daughter succeed in a world where little or no services exist. They formed the HOAPILI Group, which is a an organization that hosts monthly parties specifically for individuals with special needs. It is a place where everyone belongs.
Cleo Brown is the Principal Consultant and Community Advocate of Hawaii FASD Action Group. Before leaving her mark on America's most successful online bank, Cleo acquired deep experience in multi-national financial service groups in executive posts, at Custom House, Thomas Cook and Deak International. Cleo have been married for 54 years to Carl Brown, Retired HPD and they are the proud parents of four adult children and seven grandchildren.
In this FABULOUS episode, the Hawaii FASD Action discusses the following topics: how Hawaii FASD Action Group started, how Hawaii FASD Action Group has grown, the supports / services / trainings offered by Hawaii FASD Action Group, the Hoapili Program, plans / goals for 2021 and words of hope.
EPISODE RESOURCES -
https://hawaiifasd.org/
Facebook - https://www.facebook.com/hawaiifasd/
Instagram - https://www.instagram.com/hawaiifasd/
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Facebook - https://www.facebook.com/fasdhope1
Instagram - https://www.instagram.com/fasdhope
Pinterest - https://www.pinterest.com/fasdhope1
LinkedIn - https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 56 features Ashely DePaso, founder of DePaso Solutions. Ashley has a degree in Social Work and over 10 years in the services field- from child welfare to helping with mental health and developmental disabilities. DePaso Solutions provides solutions to some of the major issues that people encounter in their daily work, such as leadership development, effective communication, organizations, training, education and fostering diversity. Ashley understands that the biggest barriers for families in the foster care system are lack of communication and lack of knowledge. Due to her professional experience in working Child Welfare, Ashley also serves as a consultant and mentor in being a bridge for foster care families and families in the child welfare system. DePaso solutions can offer help in bridging the gap between family and agency. Ashley truly wants to be a part of the solution in helping systemic change and positive support for families involved in foster care / the child welfare system. One of the many reasons she founded DePaso Solutions was to offer services to a variety of organizations, businesses and especially families.
EPISODE RESOURCES -
Ashley DePaso, Founder of DePaso Solutions
www.DePasoSolutions.com
Instagram - https://www.instagram.com/depasosolutions/
Facebook - https://www.facebook.com/depasosolutions
LinkedIn - https://www.linkedin.com/in/depasosolutions/
FASD Hope -
https://www.fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1/
Pinterest- https://www.pinterest.com/fasdhope1/
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 55 is a two part episode featuring Emmaus Holder. Emmaus Holder is a student at University of North Carolina - Chapel Hill, where he is a Morehead-Cain Scholar. At UNC, he is a Sociology Major and a Music Minor. He is an alumni and a mentor of the program known as H.Y.P.E. or Helping Yourself with Pride Through Education, which is a step team focused on academic achievement, community engagement, mentorship and competitive dance. Emmaus is the oldest sibling of five, including two brothers with FASD. Emmaus is currently planning and embarking on a 4,000 mile cross-country bike trip titled "FASD Across America". Through this adventure, Emmaus will be interviewing family members and caregivers of individuals with FASD to give them the opportunity to share their stories and understand ways in which the FASD community can be better aided and supported.
Part 1 explores Emmaus journey and experiences as being the big brother of two younger brothers with FASD. He shares his family's journey, lessons learned and advice to parents and other siblings of those individuals with an FASD. In Part 2, Emmaus shares his hopes, goals and plans for his cross-country bike journey "FASD Across America".
EPISODE RESOURCES -
Emmaus Holder - (you can contact Emmaus through natalie@fasdhope.com)
Emmaus Holder - https://www.instagram.com/emmaus_holder/
FASD Hope -
https://www.fasdhope.com/
Natalie Vecchione (Podcast Host) - natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
FASD Hope is podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 54 shines a spotlight on Jessica Belle. Jessica is a podcast host, youth advocate, CASA, entrepreneur, Ministry School graduate and teacher in Kansas City, MO. Jessica began her career in youth advocacy almost ten years ago in Los Angeles. Her experience as a mentor has opened the door to allow her to speak up for the youth and communities who have been muted. Jessica has been able to speak, host events and connect with people from all walks of life and to encourage them via blogging, public speaking and her podcast..."Unmute Your Mic"!
In this SPIRIT-FILLED conversation, Jessica talks about the following topics: her professional background, what led her to advocacy, her current work, her "A-Ha!" moment when first learning about FASD, how children need more supports (and teachers need more awareness, training and supports) in FASD, the role of her faith in her advocacy, her podcast "Unmute Your Mic" and her words of hope and encouragement for families, caregivers and those in the FASD community.
"But seek first the kingdom of God and His righteousness, and all these things shall be added to you."' -Matthew 6:33
EPISODE RESOURCES-
Jessica Belle- Unmute Your Mic
https://www.unmuteyourmic.org/
Unmute Your Mic on YouTube - https://www.youtube.com/channel/UCQD97kiZH_L4Pn24xuFFXqQ
Instagram - https://www.instagram.com/unmute_your_mic/
Facebook - https://www.facebook.com/Everystorymatters25
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Aubrey and Nelson Page are a married couple who are active military personnel, entrepreneurs, advocates and foster / adoptive parents. Aubrey is an FASD educator, disability advocate and a parent mentor. Together, Aubrey and Nelson founded "The Change Starts Here Collaborative". The CSH Collab helps families and professionals working with individuals with brain-based disabilities to feel confident and supported by providing a library of resources and a sense of community so that they are empowered in supporting these individuals and advocating for their own needs.
Aubrey and Nelson share their Five Top Things they want you to know about Foster Care:
-
The primary goal of foster care is reunification and helping the biological family through accommodations and supports. The main goal is PARENTING and supporting, not adoption.
-
It is vital for foster care parents to participate in therapy, to address their own trauma issues.
-
Listen to the stories of former foster youth, their feedback is valuable.
-
Educate yourself about trauma and diversity.
-
Get respite!
EPISODE RESOURCES -
The Change Starts Here Collaborative - https://www.thecshcollab.com/
Instagram - https://www.instagram.com/thecshcollab/
Facebook - https://www.facebook.com/thecshcollab
LinkedIn - https://www.linkedin.com/in/aubreyppage/
Clubhouse - @aubreypagefasd
FASD Hope-
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 52 is an EXCITING FASD Legislation Update with Susan Shepard Carlson and Jenn Wisdahl! FASD Hope welcomes back Susan Shepard Carlson, Former First Lady of Minnesota and Chair of the NOFAS Legislative and Policy Committee. A first time guest to FASD Hope, Jenn Wisdahl is an FASD Parent Advocate and NOFAS Policy and Training Center Coordinator. Together, Susan and Jenn provide an update on the National FASD Legislation, "The FASD Respect Act".
In this legislation update, Susan and Jenn discuss the following topics: updates since last legislation update episode (February 2021), how the legislation has developed into "The FASD Respect Act" , how this proposed legislation will benefit the FASD community, highlights of the bill, how LISTENERS can help and advocate in getting this CRITICAL legislation passed and words of encouragement for those living with FASD and their caregivers / families.
EPISODE RESOURCES -
NOFAS - https://nofas.org/
Facebook - https://www.facebook.com/nofas
Instagram - https://www.instagram.com/nofas_usa/
Jenn Wisdahl - NOFAS Policy and Training Coordinator
wisdahl@nofas.org
Jenn Wisdahl- 202-601-2530
https://nofas.org/policy-and-training-center/
"The FASD Respect Act"
FASD Respect Act Champions Facebook Group - https://www.facebook.com/groups/459616135300282
FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Gene Carroccia, Psy.D. is a licensed clinical psychologist and a two-time author, who has extensive experience working with individuals with ADHD, neurodiversity and trauma. Dr. Carroccia has previous experience working with children and teens in the foster care system. He earned his Doctorate in Clinical Psychology from the Illinois School of Professional Psychology in Chicago, IL in 1998. In addition to his clinical experience and authoring two books. Dr. Carroccia works at a large nonprofit health care system as a vice president of behavioral health care services. He is also the founder of ADHDology.
In this episode, Dr. Carroccia shares a summary one of his most popular articles, which can be adapted for parents of children with ANY type of neurodiversity or developmental disability... "Five Steps in Finding the Right Specialist".
During this episode, Dr. Carroccia has an in-depth explanation of the 5 steps (as outlined in his article).
Those steps are:
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Determine the type of provider(s) you need
-
Find potential providers
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Call providers to explore if they may be the right one for you
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At the first session, review your goals and needs
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If you don't find a good match after starting services,
repeat Steps 2 and 3.
Dr. Carroccia provides helpful tips in beginning or re-starting the search for doctors, specialists, therapists, educational coaches and professionals. He also shares how the shift to telehealth services, as a result of COVID19, is a game changer in getting increased accessibility for parents and caregivers when getting an appropriate diagnoses, consultations or services. Finally, Dr. Carroccia gives words of encouragement and hope for weary parents and caregivers.
EPISODE RESOURCES:
Dr. Gene Carroccia - https://adhdology.com/
FASD Hope-
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
This is FASD Hope's 50th Episode! John and Natalie Vecchione share their amazing journey of FASD Hope since it began October 1st, 2020. Listen to John and Natalie reflect about FASD Hope, what they've learned and how FASD Hope is growing in new ways.
"Have I not commanded you? Be strong and of good courage; do not be afraid nor be dismayed, for the Lord your God is with you wherever you go." -Joshua 1:9
FASD Hope-
https://www.fasdhope.com/
info@fasdhope.com
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Pinterest - https://www.pinterest.com/fasdhope1/
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Kerry (Criss) Benson is the guest of Episode 49, titled "Mocktails and More". Kerry Benson, MS, RD is a registered dietitian and co-author of the book "Drinking for Two: Nutritious Mocktails for the Mom-To-Be". Prior to becoming a dietitian, Kerry worked in a research lab for more than six years studying the effects of alcohol exposure during pregnancy on the developing brain. This experience sparked her interest in the topic of drinking, particularly in the context of pregnancy.
In this OUT-OF-THE-BOX episode, Kerry discusses the following topics: how she learned about FASD as a researcher during her college years, the road to her becoming a Clinical Dietician, her passion in being an ally in FASD Advocacy, the story behind her BEST-SELLING book, the momentum of the Sober Movement / Sober Curious Movement and her words of hope and encouragement.
EPISODE RESOURCES -
Kerry Benson, MS, RD
The Sober Dietitians-
https://thesoberdietitians.com/
Instagram - https://www.instagram.com/thesoberdietitians/
Instagram - https://www.instagram.com/healthycrayvings/
Facebook - https://www.facebook.com/thesoberdietitians
Pinterest - https://www.pinterest.com/thesoberdietitians/
FASD Hope -
FASD Hope - https://www.fasdhope.com/
info@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Pinterest - https://www.pinterest.com/fasdhope1/
Facebook- https://www.facebook.com/fasdhope1
Clubhouse- @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 48 features Jennifer Donaldson, who is a returning guest to FASD Hope. Jennifer Donaldson hopes her life is a window for seeing the joy that comes from loving God and loving people and her business name is "Tailor Joy". Jennifer has worked as an educator teaching elementary school, substituting at all grade levels in regular / special education and private tutoring. Jennifer developed "Tailor Joy" to help parents, teachers and friends be ready for whatever the day may bring, through educational resources and online tutoring.
In this encouraging and "out of the box" episode, Jennifer and Natalie (podcast host) explore the following topics: Jennifer's business venture of Tailor Joy, what Jennifer has been doing since our last interview, a few of the main learning styles, how sensory strategies can help reinforce learning strategies and make learning fun for your child, sensory energizing vs. sensory calming strategies and words of hope for parents and caregivers.
"Show me Your ways, LORD. teach me Your paths. Guide me in Your truth and teach me, for You are God my Savior and my hope is in You all day long." - Psalm 25: 4-5
EPISODE RESOURCES -
Tailor Joy (tutoring, educational services and more)
https://www.tailorjoy.com/
Jennifer Donaldson, owner and educator at Tailor Joy
hello@tailorjoy.com
Instagram- https://www.instagram.com/tailorjoy/
Facebook - https://www.facebook.com/tailorjoytogether/
LinkedIn - https://www.linkedin.com/in/jenniferjdonaldson/
FASD Hope -
https://www.fasdhope.com/
Natalie Vecchione (podcast host) - info@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Clubhouse - @natalievecc
Pinterest - https://www.pinterest.com/fasdhope1
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates over eighteen years of lived experience.
Episode 47 showcases Robbie Seale- a mom, FASD parent advocate, FASD Educator and the Host of the NEW podcast "FASD Family Life". Robbie and her family live in Edmonton, Alberta (Canada). Robbie is thrilled to begin her new journey into podcasting! FASD Family Life is a podcast for families by families raising children and youth with Fetal Alcohol Spectrum Disorder. She is married to her husband Rob and she is the mom of five, four of whom are adopted and have an FASD. Robbie knows that "The struggle is real, but so is success!" Synergizing her twenty years of lived experience and the best FASD research, Robbie delivers dynamic FASD training and education to parents, caregivers and frontline staff. Robbie has presented at the 2017 Canadian National FASD Conference. She has been invited to participate in numerous panels including the 2019 Inclusion Alberta Conference. Robbie has designed and delivered training for Sunday School teachers to equip them to meet the neurodiverse needs in their classrooms. She has also initiated Peer Support groups for parents raising children with diverse, neurodevelopmental challenges in schools and churches.
In this EXCITING episode, Robbie and Natalie (podcast host) explore the following topics: Robbie's familial history and her family's FASD journey, how she became a parent advocate to FASD trainer, her FASD advocacy experiences, what inspired her to become a podcaster, her hopes for 2021 and words of hope for parents and caregivers in the FASD community.
"Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulation, that we may be able to comfort those who are in any trouble, with the comfort with which we ourselves are comforted by God." - 2 Corinthians 1:3-4
EPISODE RESOURCES -
Robbie's new podcast, "FASD Family Life", can be found wherever you find your podcasts!
Facebook - https://www.facebook.com/robbie.seale.1
LinkedIn- https://www.linkedin.com/in/robbie-seale-92954b169/
Clubhouse- @fasdfamilylife
Email - fasdfamilylife@gmail.com
FASD Hope -
https://www.fasdhope.com/
Natalie Vecchione (podcast host) - info@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 46 highlights the "Proof Alliance Virtual Benefit 2021" and this episode's guests are Sara Messelt and Adrienne Oesterle. Sara Messelt is the Executive Director of Proof Alliance (formerly MOFAS) and she has served as the Executive Director for Proof for 20 years. Adrienne Oesterle has been extensively involved with Proof Alliance since 2018 and she currently serves as the President of the Board of Directors and chairs the annual fundraising event. This year's Proof Alliance Benefit will be Virtual and held on Thursday, April 29, 2021 from 6:30-7:30 pm Central Time and the benefit will be held via YouTube livestream. During the one hour virtual event, attendees will hear from individuals and families whose lives have been affected by FASD.
In this episode, Sara and Adrienne discuss the following: Adrienne's work with Proof Alliance, updates on Proof Alliance virtual events and building a Virtual FASD community, details about the 2021 Proof Alliance Benefit, how this benefit will be different than previous years, how to sign up to participate in the 2021 Proof Alliance Virtual Benefit and words of hope for those in the FASD Community.
EPISODE RESOURCES -
Proof Alliance 2021 Benefit-
https://www.proofalliance.org/benefit/
Proof Alliance -
https://www.proofalliance.org
FASD Hope -
https://www.fasdhope.com/
info@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse- @natalievecc
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 45 of FASD Hope is titled "Adjusting the Legacy: The Dadcast". John Vecchione (FASD Hope Co-Founder) speaks with Dave Devine, a teacher and the dad of a daughter with an FASD. Dave discusses his family's journey and the challenges involved in shifting from traditional parenting to the brain based / neurobehavioral approach of parenting a child with an FASD (or other brain-based diagnosis). Dave and John also discuss this challenge when coming from familial backgrounds which have very strong, traditional foundations. Later in this episode, John and Natalie (podcast host) explore what is involved when shifting from traditional parenting to the neurobehavioral approach of parenting. Finally, John gives dads (and moms, too) some words of wisdom for making that shift in parenting in a way that focuses accommodations and thinking about "brain first", when it comes to FASD (and other brain-based diagnoses).
"Therefore, do not worry about tomorrow, for tomorrow will worry about its own things. Sufficient for the day is its own trouble." - Matthew 6:34
FASD Hope-
https://www.fasdhope.com/
info@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 44 features Peggy Ployhar, Founder and CEO of SPED Homeschool. Peggy is a leader in the special education homeschooling community and a frequent writer and speaker on specialized education homeschooling topics. After working as a special needs consultant for both the Minnesota Association of Christian Home Educators (MACHE) and the Texas Home School Coalition (THSC), Peggy founded SPED Homeschool in 2017, an organization that empowers families across the globe to homeschool children with specialized educational needs. Peggy also hosts the popular live broadcast and podcast, "Empowering Homeschool Conversations", a weekly talk show where her guests address relevant topics and issues related to homeschooling for unique learners.
In this REASSURING and HOPEFUL episode, Peggy and Natalie (podcast host) discuss the following topics: Peggy's background and her connection with the FASD community, what led her family to homeschool, when she went from homeschool mom to special needs homeschool leader, resources offered by SPED Homeschool and words of hope and encouragement.
"He must increase, but I must decrease." - John 3:30
EPISODE RESOURCES -
SPED Homeschool
http://spedhomeschool.com/
Peggy Ployhar, Founder and CEO
SPED Homeschool on YouTube-
https://www.youtube.com/channel/UC9ZXj7jqL2ooiwe46bm-G4A
Facebook - https://www.facebook.com/SPEDHomeschoolPage
Instagram - https://www.instagram.com/spedhomeschool/
FASD Hope -
https://www.fasdhope.com/
Natalie Vecchione (podcast host)
natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 43 highlights Sara Swan, a returning guest (and a favorite guest of Natalie Vecchione, FASD Hope podcast host). Sara Swan is the founder of Looking Forward Life Coaching, a nonprofit organization that provides person-centered, life coaching. Sara has been teaching for over twenty years and her specialty, throughout her extensive teaching career has been transitioning students (in special education) out of high school and into the community. She has also mentored several high school and college-age individuals as they headed into adulthood and still remains a part of their lives. Sara is the guardian of her uncle, who is a person with intellectual disabilities, and helps him make decisions to better the quality of his life. Sara created Looking Forward Life Coaching because she saw a need with her students that were falling between the cracks. Looking Forward Life Coaching changes the stumbling blocks of life into stepping stones towards success.
In this ENGAGING and ENCOURAGING episode, Sara and Natalie discuss the following topics: update since last interview, their experiences of being moms to young-adult sons, how parents can help teens with brain-based diagnoses learn their skills / gifts, reassurance for parents of teens / young adults with FASD / brain-based diagnoses, how parents can encourage those teens and young adults to make "baby steps" towards their futures, the benefits of having a Gap Year and her words of hope.
"And let us consider one another in order to stir up love and good works, not forsaking the assembling of ourselves together, as is the manner of some, but exhorting one another, and so much the more as you see the Day approaching." - Hebrews 10: 24-25
EPISODE RESOURCES -
Looking Forward Life Coaching
https://lookingforwardlc.org/
Sara Swan, Founder and Executive Director
info@lookingforwardlc.org
Facebook @lookingforwardlc
Instagram @lookingforwardlc
CAREER INVENTORY LINKS-
https://www.careeronestop.org/Toolkit/Careers/interest-assessment.aspx
https://uhcc.hawaii.edu/jobcenter/riasec_multiLang.php
FASD Hope-
https://www.fasdhope.com/
Natalie Vecchione (podcast host) - natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Episode 42 features Gwen Bartley, Founder and Executive Director of the Nonprofit Organization, "Amazing Grace Advocacy". Gwen is a mom to five children, three of which came through foster care / domestic adoption and have brain-based diagnoses as a result of exposure to alcohol and substances in utero. Gwen founded Amazing Grace Advocacy with a vow to help other families navigate the complex systems that serve our children. Two of her children have a dual diagnosis of mental health and intellectual disabilities and they were stuck in limbo between these two systems. In devoting a lot of time to fight for services, Gwen was able to achieve what was needed for her children's care and success. Gwen also has a now-adult child who is battling substance abuse disorder. Gwen shares her story, experiences and compassion to serve and help others in achieving peace and quality of life for other families raising children with FASD, Brain Based Diagnoses and Trauma. In this INSPIRATIONAL conversation, Gwen and Natalie (podcast host) discuss the following topics: Gwen's journey as a mom and how she built her family through birth, domestic adoption and foster care adoption; the journey and experiences of Gwen's family with FASD / prenatal substance exposure / trauma; how Gwen inspired Natalie when they met at the Exceptional Children's Assistance Center (ECAC) first ever Parent Leadership Conference in 2019; Amazing Grace Advocacy; how Gwen's faith has carried her through her journey as a mom; resources and events provided by Amazing Grace Advocacy and her words of hope for other parents on this journey. "But more than anything else, put God's work first and do what He wants. Then, the other things will be yours as well." - Matthew 6:33 EPISODE RESOURCES- Amazing Grace Advocacy https://amazingraceadvocacy.org/ "Every Life Has a Purpose, Navigating Families to Hope and Success" Gwen Bartley, Executive Director Facebook - @amazinggraceadvocacy Twitter - @amazgraceadvoca Instagram - @aga6:33 FASD Hope- https://www.fasdhope.com/ Natalie Vecchione (podcast host) - natalie@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1 Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Jen Parke is a Social Worker and Social Work Supervisor in Child Welfare. While working full time in the field of Social Work, as a single mom, Jen also pursued her Masters Degree in Social Work. Jen has a podcast, "Adventures of a New You", and she offers coaching and support for social workers to overcome feeling overwhelmed and to begin feeling bold and brave.
In this thoughtful conversation, Natalie (podcast host) and Jen explore the following topics: Jen's background in Social Work, her current work experiences in Social Work, how Natalie's being a guest on Jen's podcast changed Jen's perspective about FASD from Natalie, how social workers may view prenatal alcohol exposure versus drug exposure, Jen's podcast "Adventures of a New You" and Jen's words of hope (with a end of the episode surprise cameo!).
EPISODE RESOURCES -
www.adventuresofanewyou.com
Podcast - Adventures of a New You
https://www.buzzsprout.com/221186
Instagram - @adventuresofanewyou
Facebook - @adventuresofanewyou
Pinterest - @adventuresofanewyou
FASD Hope -
http://www.fasdhope.com
Natalie Vecchione (podcast host)
natalie@fasdhope.com
Instagram - @fasdhope
Facebook- @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
Linda Rosenbaum, author of "Not Exactly As Planned: A Memoir of Adoption, Secrets and Abiding Love" is the featured guest of Episode 40. Linda Rosenbaum was born in Detroit, Michigan and graduated from George Washington University in Washington, DC. She moved to Toronto, Canada and married her husband, Robin Christmas. Linda and her husband have been married for 36 years and they have 2 children, whom they adopted. Their son Michael, is 33 and lives with an FASD. Their adult daughter, Sarah, is 31. Linda and her family live in a small community on a tiny island that is a 10 minute ferry ride from downtown Toronto. Linda is a writer, editor and she has worked in both television and films. Above all, she is a wife, mother and an advocate for people living with FASD.
"Not Exactly As Planned" was the first book about FASD that Natalie (podcast host) read, almost 6 years ago, when she and her husband were starting to seek answers about getting their son evaluated for an FASD. Natalie credits Linda's book as the book that started their family's journey into learning about FASD. In this heart-to-heart conversation, Natalie and Linda discuss the following: Linda's journey in building her family through adoption, how she learned about her son's FASD diagnosis, advocating for her son, what led to her writing "Not Exactly As Planned", her words of wisdom for parents in the FASD community and her hopes for those individuals with FASD (and their families / loved ones). "Tell the story of the mountains you climbed, your words could become a page in someone else's survival guide." - Morgan Harper Nichols EPISODE RESOURCES - "Not Exactly As Planned: A Memoir of Adoption, Secrets and Abiding Love" by Linda Rosenbaum (Demeter Press: 2014). Sold at various booksellers, Amazon and https://demeterpress.org/books/not-exactly-as-planned/ You can also find Linda's book on the "Resources" page of fasdhope.com If you'd like to contact Linda, you can do so via email through info@fasdhope.com "Trying Differently Rather Than Harder" by Diane Malbin, MSW. (FASCETS: Portland, OR / 1999 /2002/ 2017) FASD Hope- http://www.fasdhope.com/ Natalie Vecchione (podcast host) - natalie@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1 Clubhouse- @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
Episode 39 is part 2 of "Special Needs Homeschooling" double episode, highlighting Candice Dugger. Candice Dugger is the founder of "Bullied, Broken, Redeemed" and a nationally recognized, anti-bullying expert, author, speaker and trainer. Candice and her team specialize in equipping leaders, parents and youth on all aspects of Gen Z Bullying. These life-changing programs use interactive activities and projects to motivate and empower effective anti-bullying warriors. Candice has been on NBC, CBN and Family Research Council, as well as on top of training Fortune100 Companies. Candice is also regularly featured as a keynote speaker at national and international conferences. On top of being an anti-bullying warrior, Candice is passionate about helping families transition from public school to homeschool. Her "Coming Home" Series of talks and workshops are a blessing for those trying to navigate the sometimes difficult transition. She is also the co-founder of the "Reimagine Education Conference", which specializes in helping families transition to homeschooling. This conference is an annual event and has grown to an international presence with over 80 speakers and 100 talks.
In this powerful episode, Candice explores the following topics: her family's journey into homeschooling, what led her from being a special needs mom to a special needs homeschool advocate, her passion about her anti-bullying mission / ministry, how her faith guides her in her mission and being a resource for others, the critical importance of mental health in our children / teens / young adults (especially in the homeschool community), her vision behind "Bullied, Broken Redeemed" and "Reimagine Education", using Clubhouse for advocacy and her words of HOPE for families of kids with special needs.
RESOURCES -
Bullied Broken Redeemed -
http://bulliedbrokenredeemed.com/
Reimagine Education Conference -
https://reimagineeducationconference.com/
Clubhouse - @cedugger
FASD Hope -
http://www.fasdhope.com/
natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse- @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
Episode 38 is the first of two "Special Needs Homeschooling" episodes and features Valerie Castle of "Our Homeschool Castle". Valerie has a family with five kids. They are a blended family, a special needs family and they have three kids under the age of five. This year, Valerie started a YouTube channel, website, Instagram and podcast with hope of helping families who were new to homeschooling. Valerie now focuses on helping families of kids with special needs navigate their homeschool journeys and she is also sharing her family's journey learning American Sign Language (ASL). On her podcast, Valerie interviews homeschool parents of kids with special needs. She believes that there is a lack of community and not enough support for special needs families (especially those who homeschool) and she wants to help others feel that they're not alone.
In this episode, Valerie discusses the following topics: her family's homeschool journey, when she made the transition to homeschool mom to special needs homeschool advocate / podcaster, the benefits of homeschooling, building on strengths, favorite homeschool activities, homeschooling three kids under the age of five and her words of hope for those families of kids with special needs who are homeschooling / considering homeschooling.
Resource links-
Our Homeschool Castle-
Website Blog-
http://www.ourhomeschoolcastle.com
Etsy-
https://www.etsy.com/shop/ourhomeschoolcastle
YouTube-
https://www.youtube.com/c/OurHomeschoolCastle
Instagram -
https://www.instagram.com/ourhomeschoolcastle/
Facebook -
https://www.facebook.com/ourhomeschoolcastle
Pinterest -
https://www.pinterest.com/ourhomeschoolcastle/boards/
Clubhouse-
@valeriecastle
FASD Hope -
http://www.fasdhope.com/
natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
Episode 37 is titled "Respite is Essential" with Andrea Faris Roberts, Founder and Executive Director, Chief Operations Officer and Head Innkeeper of the nonprofit organization, A Mother's Rest. An altruist in spirit with a servant's heart, Andrea is the bio mother of two teenage sons. Her eldest son, Reece, was born with Down Syndrome in 2002. Reece has been the inspiration behind the founding of two charitable organizations. With her career expertise in marketing, sales and customer support, Andrea founded the Reece's Rainbow Down Syndrome Adoption Foundation in 2006, which helped families adopt children with disabilities internationally. In 2010, she was named People Magazine's "Hero of the Year" and presented with the Congressional Angel in Adoption Award. In 2017, Andrea retired from Reece's Rainbow to begin A Mother's Rest. Andrea is an out of the box thinker, and always seeks to create innovative programs where services are lacking. Her personal experience as a bio parent and in the adoption community lend to her innate understanding of the needs and challenges of many of AMR's guests. The self care and well-being of parents and caregivers who have loved ones with disabilities and/or chronic illness should be a priority, not an after-thought. With a passion for history, heritage and bringing old things back to life, the theme at A Mother's Rest is "Restoring History, Health, Heart and Hope". In this honest and heartfelt episode, Natalie (podcast host) and Andrea bond over having young adult sons with special needs and explore the following topics: Andrea's journey from being a mom of a son with special needs to a POWERHOUSE advocate in the special needs community, her realization how respite is such a missed service for families of loved ones with special needs / chronic illnesses, the MANY resources offered by A Mother's Rest (AMR), how AMR has adapted to COVID19 and her words of hope for caregivers and parents of those with disabilities / chronic illnesses. RESOURCES- A Mother's Rest https://www.amothersrest.org/ innkeeper@amothersrest.org Instagram - @amothersrest FASD Hope - http://www.fasdhope.com/ Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1 Clubhouse- @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
Episode 36 is titled "FASD Legislation Update" and features Susan Shepard Carlson. In addition to being Minnesota's First Lady from 1991-1997, Susan Shepard Carlson is an attorney and a retired Hennepin County Juvenile District Court judicial officer. It was through her experience in juvenile court that led to Minnesota's efforts in combating the harmful effects of prenatal alcohol exposure. In 1997, Susan launched an initiative to promote Minnesota's effort on FASD education and prevention and co-chaired the Minnesota Governor's Taskforce on FAS resulting in almost $7 million annual funding for FASD prevention and intervention services.
Recognizing the need for the private sector to be involved in FASD in 1998, Susan formed the first affiliate of NOFAS (National Organization on Fetal Alcohol Syndrome) - Minnesota Organization on FAS (now Proof Alliance). For over 20 years, Susan has lead FASD policy, advocacy and training efforts on the national level as a member of the ICCFASD Justice Work Group, which led the effort in getting an ABA (American Bar Association) FASD resolution adopted in 2012. Other FASD achievements include: author of "tools for Success", an FASD training guide of juvenile justice professionals; facilitated "Train the Trainers" conferences on a FASD curriculum for juvenile justice professionals at 4 sites throughout the country; 2006-2007 directed Hennepin County pilot program to screen and assess adjudicated juveniles for FASD; national speaker on FASD, justice issues and its impact on society. Susan currently is on the Board of Directors of NOFAS and chair of the Legislative and Policy Committee leading the effort to pass the "Advancing FASD Research, Prevention and Services Act". Susan received her Bachelor of Arts Degree in Political Science from the University of Minnesota and a JD from Hamline University School of Law.
In this informative and HOPE filled episode, Susan discusses the following topics: her background and work in the FASD Community, the FASD Legislation that was ready to be presented last year (prior to COVID19), an update on the "Advancing FASD Research, Prevention and Services Act", how families can help the legislation gain momentum in moving forward and words of hope for families and those in the FASD community.
"...Remember to walk a mile in his moccasins and remember the lessons of humanity taught to you by your elders. We will be known forever by the tracks we leave in other people's lives, our kindnesses and generosity. Take the time to walk a mile in his moccasins." - Mary T. Lathrap, "Judge Softly", 1895
Resources -
NOFAS -
https://nofas.org/
FASD Advocacy Coalition Sign Up Form -
https://nofas.wufoo.com/forms/fasd-advocacy-coalition-sign-up-form/
FASD Hope -
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
This 35th episode of FASD Hope is titled "Time for Each Other: The Dadcast". John speaks with Jesse Walker, a dad of a daughter with an FASD. Jesse shares the familial challenges of having a child with and FASD and the challenge of trying to have time with his wife. Further on, John and Natalie explore this topic of taking time for each other and supporting each other on the journey of parenting a young adult with an FASD. Finally, John and Natalie talk about changing expectations in making time for each other and appreciating the "shorter moments of togetherness".
"Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres."
- 1 Corinthians 13: 4-7
FASD Hope -
http://www.fasdhope.com/
info@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience. Episode 34's guest is Kathy Kuhl, founder of Learn Differently and author of several publications, including this episode's topic "Staying Sane as You Homeschool". Kathy Kuhl is the founder of Learn Differently. Kathy coaches parents teaching children with learning challenges. She provides resources, support and guidance. After homeschooling her creative, distractible and dyslexic son... Kathy interviewed 64 parents who were homeschooling students with learning disabilities. Then, she wrote "Homeschooling Your Struggling Learner, a handbook equipping parents to teach with many learning challenges. In addition to her other books, Kathy also wrote "Encouraging Your Child". She gives workshops and private consultations. To request a free consultation, visit https://www.learndifferently.com/ In this encouraging episode, Kathy discusses the following topics: an update on her presenting / speaking engagements, what inspired Kathy to write "Staying Sane as You Homeschool", Kathy's advice for those homeschool parents who may be weary or discouraged in homeschooling, what can help us stay sane going in our homeschooling / schooling at home / virtual school and Kathy's words of hope for homeschool parents (especially those parents of children with FASD and other special needs). "Rejoice always, pray without ceasing, in everything give thanks; for this is the will of God in Christ Jesus for you." - 1 Thessalonians 5:16-18 RESOURCES- Kathy Kuhl, Founder of Learn Differently https://www.learndifferently.com/ FASD Hope- http://www.fasdhope.com/ Natalie Vecchione, Podcast Host natalie@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1 Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
Episode 33 is titled "Tenacity and Hope" and shines a light on Rebecca Tillou, who is an author, blogger, FASD self advocate, mom / wife and most importantly... she is an overcomer!
Rebecca Tillou was born in Ridgewood, NJ. She was adopted at the age of one month old and grew up in Ellicott City, Maryland. She has a Bachelor's Degree in Communicative Sciences and Disorders from SUNY Geneseo. Rebecca has been employed as a medical claims adjuster for the past 15 years. Rebecca was diagnosed with Fetal Alcohol Syndrome at the age of 34. She has become an FASD Self Advocate through presentations, trainings and podcasts. In 2016, she released her autobiography "Tenacity". Rebecca has been married for 16 years and she is the proud mom of two amazing boys, ages 13 and 8. Rebecca also has a beagle named Noah, who has since become her companion while she works remotely from home. After COVID19 struck, Rebecca began searching deeper into her faith and the past 3 months have provided incredible opportunities of growth for her. Rebecca is walking in faith and she is both nervous and excited about where her journey will lead her next.
In this SPIRIT FILLED episode, Rebecca and Natalie instantly bond and explore the following topics: Rebecca's journey as an adoptee and learning about her FASD, the accommodations she made in the past and now for her FASD, her strengths, what inspired her to write "Tenacity", her self-advocacy, the trauma that led to her restored faith and how her faith has grown stronger in the past few months and her hope for those in the FASD community.
"For we walk by Faith, not by sight." - 2 Corinthians 5:7
Episode Resources -
"Tenacity" by Rebecca Tillou (2016) https://www.amazon.com/Tenacity-Mrs-Rebecca-L-Tillou/dp/1537223003/ref=sr_1_1?dchild=1&keywords=Tenacity+Rebecca+Tillou&qid=1611976537&sr=8-1
"Adulting with FASD : Quirking It" Blog http://www.adultingwithfasd.com/?fbclid=IwAR2ISE05S0G8V8_VGjqqDfRGmUegsWpnsLQqUKajnhum0Rw93EQJEoIXNUo
You can reach out to Rebecca via FASD Hope at info@fasdhope.com
FASD Hope - http://www.fasdhope.com/
Natalie Vecchione (podcast host) - natalie@fasdhope.com
Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1 Clubhouse - @natalievecc
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
Episode 32 is titled "From Surviving to Thriving with FASD" and features Christie Petrenko, Ph.D, a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training with Edward Riley and Sarah Mattson in San Diego, CA in 2009 and she is currently a faculty member at Mt. Hope Family Center, University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. She has experience training teams of providers, both regionally and internationally, in FASD Diagnosis. Dr. Petrenko also runs a multidisciplinary FASD clinic providing diagnostic, intervention and family support services in Rochester, NY.
In this PARADIGM-SHIFTING and RESOURCE FILLED episode, Natalie (podcast host) speaks with Dr. Petrenko about the following topics: Dr. Petrenko's professional background and the work she is doing with Mt. Hope Center / University of Rochester, barriers in accessing care, factors that increase care for individuals with FASD, Dr. Petrenko's "Surviving to Thriving" model, Families Moving Forward Connect Intervention and Mobile app (for FASD families) and ways that families and communities can begin to shift the mindset of "Surviving to Thriving with FASD".
How Do We Shift From Surviving to Thriving? 1. Increased Awareness of FASD 2. Increased Access to Care 3. Reducing Stigma
Factors that can promote access to FASD services: - Having a stable and nurturing home - Having a caregiver with strong advocacy skills and FASD knowledge - Having evidence of disability (i.e. facial features, physical characteristics) - Regions of higher awareness - Younger children - Parents and caregivers getting respite and support / renewing their energy
Study by Dr. Petrenko Regarding Success of FASD Supports: 1. Supports need to be available across the lifespan. 2. The approach needs to be PROACTIVE and PREVENTATIVE. 3. Care needs to be individualized and customized. 4. Care needs to be comprehensive. 5. Care needs to be coordinated across systems and streamlined over time periods.
Resources for Providers to Increase FASD-Informed Care
CDC Collaborative for Alcohol-Free Pregnancy – FASD Training and Resources
https://nccd.cdc.gov/FASD/
SAMHSA TIP 58: Addressing Fetal Alcohol Spectrum Disorders
Free downloadable guide for how to adapt and deliver mental health treatment for people with FASD. https://store.samhsa.gov/product/TIP-58-Addressing-Fetal-Alcohol-Spectrum-Disorders-FASD-/SMA13-4803
American Academy of Pediatrics – FASD Toolkit
https://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/fetal-alcohol-spectrum-disorders-toolkit/Pages/default.aspx
Petrenko, C. L. M., Parr, J, Kautz, C, Tapparello, C., Olson, H. C. (2020). Families Moving Forward Connect mobile health intervention for fetal alcohol spectrum disorders: Development and qualitative evaluation of design and functionalities. JMIR: uHealth mHealth, 8, e14721. https://mhealth.jmir.org/2020/4/e14721/
www.fmfconnect.com
Flannigan, K., Harding, H. D., & Reid, D. (2018). Strengths among individuals with FASD. CanFASD. https://www.researchgate.net/publication/332439796_Strengths_Among_Individuals_with_FASD
Roozen, S., Stutterheim, S. E., Bos, A. E., Kok, G., & Curfs, L. M. G. (2020). Understanding the social stigma of fetal alcohol spectrum disorders: From theory to interventions. Foundations of Science. https://link.springer.com/article/10.1007/s10699-020-09676-y
Ryan, D. M., Bonnett, D. M., Gass, C. B. (2006). Sobering thoughts: Town hall meetings on fetal alcohol spectrum disorders. American Journal of Public Health, 96, 2098-2101. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1698155/
Episode Resources-
MT. Hope Family Center at University of Rochester -
http://www.psych.rochester.edu/MHFC/ http://www.psych.rochester.edu/MHFC/about/faculty/christie-petrenko/
FASD Clinic: https://www.urmc.rochester.edu/childrens-hospital/developmental-disabilities/services.aspx
FASD Hope - http://www.fasdhope.com/
Natalie Vecchione, Podcast Host natalie@fasdhope.com
Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
In this 31st episode, Natalie Vecchione (podcast host) speaks with Chris Troutt, LMFT, CEO and Co-Founder of The Papillion Center. Chris co-founded The Papillion Center in 2010. She is a Christian family therapist who brings a unique background to her clients. Chris and her husband, Burt, are parents to twelve children and they have twenty-two grandchildren and one great-grandchild. Chris is a biological mother, an adoptive mother, a stepmother and a foster mother. She brings both education and a personal perspective into the therapy session. Chris strongly believes in the systems theory and in the power of GOD working in a person's life. It is her desire to help others during their journeys. Chris specializes in working with families for pre/post-adoption counseling for adoption adjustments, trauma, attachment-related issues and helping families cope with FASD/FAE and other family-related adjustments. Her work with FASD is especially meaningful to her as a parent of a child with an FASD. Chris has a Master's Degree in Marriage and Family Therapy from Trevecca Nazarene University in Nashville, TN. She is a Trust Based Relational Intervention (TBRI) practitioner through the Texas Christian University Institute of Child Development. In this FAITH FILLED episode, Natalie and Chris explore the following topics: Chris' journey as a parent of a daughter with an FASD, Chris' family journey, Chris' professional journey, what led her to co-found The Papillion Center, how her FAITH is her foundation in her personal and professional journeys, advice for parents and caregivers of those children / youth that have an FASD and words of HOPE for listeners on this journey of FASD. "Brethren, I do not count myself to have apprehended; but one thing I do, forgetting those things which are behind and reaching forward to those things which are ahead, I press toward the goal for the prize of the upward call of God in Jesus Christ." - Phillipians 3:13-14 RESOURCES - Chris Troutt, CEO and Co-Founder of The Papillion Center https://papillioncenter.org/ chris@papillioncenter.org
Instagram- @thepapillioncenter @papillioncenterpaducah https://www.facebook.com/The-Papillion-Center-117820334903552/ https://www.facebook.com/The-Papillion-Center-Paducah-Kentucky-106786661068299/
FASD Hope - http://www.fasdhope.com/ natalie@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
In this 30th episode, Natalie Vecchione (Podcast Host) speaks with Eileen Devine, a therapist based in Portland, Oregon and founder of Brain First Parenting and the membership community, "The Resilience Room". Eileen has over 15 years of clinical experience, with a special emphasis on working with families impacted by Fetal Alcohol Spectrum Disorder (FASD) and other brain-based, neurobehavioral conditions that have challenging and confusing behavioral symptoms. Eileen is a FASCETS facilitator and a Neurobehavioral Support Coach for Parents and Caregivers. With the use of teleconferencing technology, she consults with parents on a national and international basis and provides them with the support they need to implement the neurobehavioral model into their everyday parenting and interactions with their children. Eileen is an instructor for the Post-Master's Certificate in Adoption and Foster Family Therapy through Portland State University's Child Welfare Partnership, where she teaches other providers about FASD and how to use the neurobehavioral model in their work with families impacted by this disability. In addition to this professional experience, Eileen has the lived experience of parenting a child with a diagnosis of an FASD, so she understands the day-to-day struggles her clients are working through. Eileen's goal is to support parents and caregivers of children with these frequently misunderstood brain-based conditions on their unique parenting journey so that they, their children and their family can THRIVE. During this enlightening episode, Natalie and Eileen discuss the following topics: Eileen's personal / professional background (and how FASD ties into both), when Eileen decided to become an FASD Educator / FASCETS Trainer, important factors in supporting individuals with FASD (and their families), the supports and services provided by "The Resilience Room" and hopeful words to parents and caregivers of children / teens / young adults with FASD (and other brain-based diagnoses).
Free Resources to share with parents/listeners from Eileen Devine, LCSW: Your Lens Matters Handout: https://bit.ly/yourlensmattershandout Brain-First Parenting Webinar (on the neurobehavioral model): https://bit.ly/brainfirstwebinar Weekly Self-Care Template for Parents: https://bit.ly/selfcaretemplateforparents 14-Day Neurobehavioral Reflection Journal for Parents: http://bit.ly/freeparentingjournal
RESOURCES - Eileen Devine - www.eileendevine.com hello@eileendevine.com Instagram - https://instagram.com/eileen_devine_lcsw?igshid=ktsy2z1i95tw Facebook - https://www.facebook.com/Eileen-Devine-Neurobehavioral-Therapist-Coach-for-Parents-1194376400661052/ FASD Hope- http://www.fasdhope.com/ natalie@fasdhope.com Instagram - @fasdhope Facebook- @fasdhope1 Pinterest - @ fasdhope1
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 18 years of lived experience.
This 29th episode is titled "Love Me Enough: A Conversation with Helen Orcutt and Em Twomey".
Helen Orcutt is the founder of "Love Me Enough- Faces of Fetal Alcohol", in which she operates with Em Twomey. "Love Me Enough- Faces of Fetal Alcohol" is an FASD blog, resources, shop and support for individuals living with an FASD and their families / loved ones. Both Helen and Em each live with an FASD and they are both adult, self-advocates in the FASD Community. Helen lives in Oregon with her husband and their young son. Em lives in Maryland with her husband and their two sons.
In this HOPE-FILLED Episode, Natalie Vecchione (podcast host) discusses the following topics with Helen and Em: their stories, when they each learned they had an FASD, the accommodations they made (and continue to make) for themselves, their strengths and the "Love Me Enough- Faces of Fetal Alcohol" website / blog / shop.
"And not only that, but we also glory in tribulations, knowing that tribulation produces perseverance, and perseverance, character; and character hope. " - Romans 5:3-5
Helpful Accommodations listed by Helen:
-
IEP / 504 / Extra time for tests and assignments, quiet place to take tests
-
Chalkboards / whiteboards / sticky notes - WRITING THINGS DOWN and visual reminders
-
Digital clocks
-
Slowing down when speaking
-
Giving yourself GRACE!
Helpful Accommodations listed by Em:
-
IEP / 504 / extended test time, etc.
-
Stopping, slowing down
-
Making lists
-
Post it notes and visual reminders
-
Breaking down tasks into smaller steps
-
Taking time to cool down and breathe
RESOURCES -
"Love Me Enough - Faces of Fetal Alcohol"
https://www.lovemeenough.com/
- NOTE - Purchases made in the Love Me Enough Shop will have 75% of earnings donated to various, FASD nonprofit organizations.*
Instagram - @love_meenough
Facebook - https://www.facebook.com/lovemefasd/
FASD Hope -
http://www.fasdhope.com/
natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
This 28th episode is titled "Guided Growth: A Conversation with Dr. Ira Chasnoff". Natalie Vecchione (podcast host) speaks with Dr. Ira Chasnoff.
Ira Chasnoff, M.D., is an award-winning author, researcher and president of NTI Upstream and a Professor of Clinical Pediatrics at the University of Illinois College of Medicine in Chicago. Dr. Chasnoff is one of the nation's leading researchers in the field of child development and the effects of maternal alcohol and drug use on newborn infants, children and adolescents. Dr. Chasnoff's research, practice and contributions to the FASD / Pediatric Community span over 40 years. Dr. Chasnoff is the co-author of the "Guided Growth: Educational and Behavioral Interventions for Children and Teens with Fetal Alcohol Spectrum Disorders and Early Trauma".
In this information-packed, first episode of 2021, Dr. Chasnoff educates listeners about many FASD-related topics, including the following: Dr. Chasnoff's experiences, FASD research / statistics, specific points on how ADHD and FASD differ, resources offered and recommended by Dr. Chasnoff, specific examples of how alcohol affects the brain, what parents of children with FASD need to ask for during an evaluation and Dr. Chasnoff's new book "Guided Growth: Educational and Behavioral Interventions for Children and Teens with Fetal Alcohol Spectrum Disorders and Early Trauma" (co-authored by Ronald J. Powell, PhD).
RESOURCES - Dr. Ira Chasnoff
https://www.ntiupstream.com/
info@ntiupstream.com
"Guided Growth: Educational and Behavioral Interventions for Children and Teens with Fetal Alcohol Spectrum Disorders and Early Trauma" by Ira J. Chasnoff, MD and Ronald J. Powell, PhD
For parents and caregivers, as per Dr. Chasnoff-
When seeking an FASD evaluation, make sure the clinician evaluates your child / teen across the Three Domains of Functioning:
-
Neurocognitive
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Self-Regulation
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Adaptive Functioning
Look for the "FASD and the Online World" book by Dr. Chasnoff on NTI Upstream
- You can email Dr. Chasnoff at NTI Upstream for a copy of the "American Bar Association's Resolution on FASD as a Mitigating Factor in Adjudicating and Sentencing" *
Facebook - @ntiupstream
Instagram - @ntiupstream
FASD Hope-
http://www.fasdhope.com/
natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
This Double Episode (#27) is titled "Double Dose of Homeschool Hope" and Natalie Vecchione (podcast host) speaks with Deven Vasko and Beth Corcoran, homeschool moms who both are a resource and support in their respective communities, as well as in the homeschool community. Deven Vasko is a graduate of the University of South Alabama. She is a missionary, with her roots in the deep South. Deven has been married for 20 years to Nicolai Vasko, a good-looking, Belarusian born in the former Soviet Union. Deven has homeschooled for 17 years, educating their five, wild Belarusian-American children ranging from a 19 year old homeschool graduate to a 5 year old kindergartener. Deven's passion is bringing hope and inspiring professionalism in mothers. She sees every mother as the essential element to the success of her home. Deven runs "Professional Home Educator" Facebook Group and Website, as well as "Homeschool House Calls" website and homeschool consulting services. "He has shown you, O man, what is good; And what does the LORD require of you. But to do justly, to love mercy and to walk humbly with your God." - Micah 6:8 Beth Corcoran has been married to her husband, Curtis, for 16 years. Together, they have adopted 8 children, who now range in age from 6 years old to adult. Their family, including their 3 Chesapeake Bay Retrievers, resides in central Oklahoma. Having 12 years of experience homeschooling her kids, who have a variety of special needs (including as Down Syndrome, Dyslexia, Suspected FASD, Reactive Attachment Disorder and more), Beth found that she was getting daily questions about homeschooling children with special needs. Thus, the Flamingo Feathers Podcast and Community was born to provide support and encouragement to the special needs homeschooling community. The Flamingo Feathers Podcast just wrapped up it's first season and can be found on all major podcast platforms, as well as the Flamingo Feathers website. "And let us not grow weary while doing good, for in due season we shall reap if we do not lose heart." - Galatians 6:9 In this resource-filled episode, both Deven and Beth share the following: their respective parenting journeys, their respective homeschool journeys, reasons for homeschooling, resources for homeschoolers (especially those new to homeschooling) and advice to homeschoolers (especially of kids who learn differently or have special needs such as FASD / Brain Based Diagnoses). RESOURCES - Deven Vasko - https://homeschoolhousecalls.com/ http://www.professionalhomeeducator.com/ Facebook - @professionalhomeeducator Beth Corcoran - http://flamingo-feathers.com/ Podcast - Flamingo Feathers Facebook - @flamingofeathers Instagram - @flamingofeathers_beth FASD Hope - http://www.fasdhope.com/ natalie@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On Episode 26, Natalie Vecchione (podcast host) speaks with Shannon Iacobacci. Shannon Iacobacci is an FASD Educator, Certified FASCETS Facilitator, Disability Advocate and Family Coach. Shannon is certified in Youth Mental Health First Aid. Shannon is a board member of both FASCETS and the FASD Network of Southern California. Shannon is also a foster / adoptive mom with four children diagnosed with FASDs. She knows first-hand what daily life is like parenting children on the FASD spectrum. She sought training from leaders within the FASD community to help her and her family understand their unique needs. After an intensive, year-long training, Shannon became a Certified Facilitator of the FASCETS Neurobehavioral Model and she has trained thousands of caregivers, foster / adoptive parents, mental health professionals, students, educators and organizations on FASD. She is currently advocating and beginning the process of setting up FASD trainings for birth families looking to reunify with their children. She believes the more we empower families with the education and tools they need, the less frustration and anxiety they will feel, making family reunification and foster / adoptive placements more successful. Shannon continues to advocate for children and teens with disabilities within the educational system. During this thoughtful and highly educational episode, Shannon discusses the following topics: why the period after Hanukkah / Christmas / New Year's Day can be a letdown for anyone, particularly for those with an FASD (or other brain based diagnosis), how the holiday season is like a funnel of emotion and dysregulation, the analogy and comparison of emotionally "throwing oneself off the holiday mountain of activity" versus "climbing down the holiday mountain of activity / emotions", strategies that parents and caregivers can help their loved ones "climb down holiday mountain". RESOURCES - Shannon Iacobacci of Diversely Designed http://diverselydesigned.com shannon@diverselydesigned.com Instagram - @diverselydesigned Facebook - @diverselydesigned FASD Hope- http://www.fasdhope.com/ natalie@fasdhope.com info@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience. On this Christmas Episode (#25) of FASD Hope, (Podcast Host) Natalie Vecchione asks her dear friend and mentor, Cindy LaJoy, to co-host this inspirational and hope-filled episode. Cindy LaJoy is the mom to five young adults....three of whom are walking through life with an FASD and all adopted from orphanages in Kazakhstan and Kyrgyzstan. Cindy homeschooled all five of her kids for the past eleven years. Passionate about those who need other avenues to achieve success in adulthood, Cindy created "Blue Collar Homeschool" which is a 9,000+ member Facebook group and website where homeschool families can find encouragement for learners who are not headed down the traditional college path. Looking towards the future and ways in which her three with FASD would likely struggle in the workforce, Cindy led her kids through an exciting, year-long adventure in creating "Buckaroos Slices and Scoops", a pizza and ice cream restaurant in Montrose, Colorado. Buckaroos is now a successful, small business which her kids developed, built out and run by themselves (with occasional help from Mom and Dad). Buckaroos not only provides employment for her three kids with an FASD, but intentionally hires a staff those who may need more support. In this Christmas Episode titled "Gifts for Your Journey", Cindy shares her journey as a mom of (now young adults) of 3 kids with an FASD and the amazing journey they have been on through homeschooling and creating the thriving, small business "Buckaroos Slices and Scoops. Cindy and Natalie have an honest discussion about their respective parenting journeys and the new paths they have learned to embrace in parenting kids (now young adults) with an FASD. In this episode, Cindy and Natalie also share "gifts of encouragement".... things they wish they knew 10 years ago on their parenting journeys. They hope these "gifts of encouragement" can benefit and support those listeners who may be in particularly challenging places on the road of FASD and other brain based diagnoses. Finally, Cindy and Natalie share words of hope for those parents and families who are struggling in their parenting journeys this Christmas. Cindy's and Natalie's "Gifts" include: - Stop comparing your child with other children, stop comparing your family with other families, Embrace your family's strengths and gifts. - Give yourself Grace. Offer yourself compassion and forgiveness. - Find support, fellowship and hope from other parents who are on the same journey as you. Find "your tribe" and know you're not alone. - Find respite. "Love the Lord your God with all your heart and all your soul and with all your mind and with all your strength. The second is this: "Love your neighbor as yourself." There is no commandment greater than these." - Mark 12:30-31 RESOURCES- Cindy LaJoy Blue Collar Homeschool https://www.bluecollarhomeschool.com/ Facebook - @bluecollarhomeschool https://www.buckaroosmontrose.com/ FASD Hope - http://www.fasdhope.com/ info@fasdhope.com natalie@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience. On this 24th episode of FASD Hope, (Podcast Host) Natalie Vecchione speaks with Michelle Catania, a Marriage and Family Therapist who is licensed in the State of Connecticut. Michelle and her husband live in Connecticut and they have two biological sons and a son through domestic adoption, who has an FASD. Michelle was a preschool teacher for over 15 years. She has a Masters Degree in Marriage and Family Therapy from Southern Connecticut State University and a Bachelors in Psychology with a certification in Elementary Education. from Franklin Pierce University. Michelle has expertise in brain based disorders, including ADHD, Autism and Fetal Alcohol Spectrum Disorder (FASD). Michelle loves her job because she can share her passion for Christ and her love for families. In this FAITH-FILLED and ENCOURAGING discussion, Michelle and Natalie explore the following topics: the journey of Michelle's family, how she learned about the Neurobehavioral Approach / Brain Based approach, how her Faith brought her through the journey of being a mom of a son with an FASD, Grace Based parenting, how NB / Brain Based Parenting AND Grace Based Parenting are similar and how we can incorporate BOTH parenting styles in our parenting journeys. "And not only in that, but we also glory in the tribulations, knowing that tribulation produces perseverance, and perseverance character and character hope. Now hope does not disappoint because the love of God has been poured out into our hearts by the Holy Spirit, who has been given to us." - Romans 5:3-5 RESOURCES- Michelle Catania, LMFT http://www.michellecatanialmft.com/ FASD Hope - http://www.fasdhope.com/ info@fasdhope.com natalie@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this 23rd episode of FASD Hope, Natalie Vecchione (podcast host) makes a new friend in guest Sara Swan, who is the founder of Looking Forward Life Coaching. Looking Forward Life Coaching is a non-profit organization that provides person centered life coaching (and the only life coaching organization for individuals with an FASD). Sara has been teaching for over 20 years and her specialty throughout her extensive, teaching career has been transitioning students in special education out of high school and into the community. She has also mentored several high school and college-age individuals as they headed into adulthood and she still remains a part of their lives. Sara is the guardian of her uncle, who is a person with intellectual disabilities, and she helps him make decisions to better the quality of his life. Sara created Looking Forward Life Coaching because she saw a need for her students, who were falling between the cracks. She wanted to help guide individuals as they navigate life. Looking Forward Life Coaching changes the stumbling blocks of life into stepping stones towards success.
In this engaging and very lively conversation, Sara and Natalie explore the following topics: Sara's personal and professional background, what led her to open Looking Forward Life Coaching, how she learned about FASD, person-centered approach to life coaching (and caregiving), her hopes for the FASD Community and her goals for 2021.
"Greater love has no one than this: to lay down one's life for one's friends." - John 15:13
RESOURCES -
Looking Forward Life Coaching -
https://lookingforwardlc.org/
info@lookingforwardlc.org
Facebook - @lookingforwardlc
Instagram - @lookingforwardlc
FASD Hope -
http://www.fasdhope.com/
info@fasdhope.com
Podcast Host - Natalie Vecchione
natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this 22nd episode of FASD Hope, Natalie Vecchione (podcast host) speaks with Joel Sheagren, Director and Co-Producer of the documentary film project "Embraced, Truth About Fetal Alcohol Spectrum Disorders. Joel is a veteran director, producer and director of photography who has served in the advertising industry for nearly 30 years. In 2015, Joel started directing and producing films. His first film was "CRACKED ICE", which ran on the Hulu Network. Cracked Ice was based on the history of racing cars on frozen lakes in Minnesota. He is also the co-founder of a non-profit called Hope and Rescue Foundation - a nonprofit addressing human trafficking and the issues driving this insidious practice... FASD and Mental Health are driving issues.
Joel is married. He and his wife, Kim, have two children. Their son Sam, now 18, was diagnosed with an FASD 3 1/2 years ago. Joel's current project is the documentary "Embraced: Truth About Fetal Alcohol Spectrum Disorders", to sound the alarm concerning the dangers of drinking during pregnancy.
During their inspirational and hope-filled conversation, Joel and Natalie discuss the following topics: Joel's personal background (and his family's journey in FASD) and his professional experience, the development of the Embraced film project, the format and vision for this film, the film's intended audience and the status of the Embraced film project.
"Now to Him who is able to do exceedingly abundantly above all that we ask or think, according to the power that works in us, to Him be glory in the church by Christ Jesus to all generations, forever and ever. Amen." - Ephesians 3:20-21
RESOURCES -
Embraced: Truth About Fetal Alcohol Spectrum Disorder
https://www.embracedmovement.org/
Embraced Film Project's GoFundMe Link-
https://www.gofundme.com/f/embraced-movement
FASD Hope -
http://www.fasdhope.com/
info@fasdhope.com
natalie@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this 21st episode of FASD Hope, Natalie Vecchione (podcast host) speaks with Jessica Rutherford and Clare Devanney-Glynn, creators and hosts of "Spotlight on FASD", the United Kingdom's first podcast dedicated to FASD. With facts and figures, real life stories and absolutely no shame or blame...Spotlight on FASD aims to shine a light on FASD and bring conversations out of the shadows. Jessica Rutherford is a final year PhD student and her research focuses on the development of educational interventions for children and young people with FASD, using creative arts practices. She discovered and became fascinated by FASD in the early months of her PhD and her interest has only grown since then. In addition to her academic experience, Jessica also worked at an FASD Camp in the United States. She is now NUDGE Education's FASD Intervention Expert.
Clare Devanney-Glynn is the mother of three teens with FASD. Clare has spent the last four years navigating the world of FASD and the previous decade navigating motherhood not knowing that she was even in the world of FASD. Clare sits on the very first NICE Quality Standards panel in the UK and she has a passion for all things FASD, Developmental Trauma and Adoption. She discovered very quickly that she needed to become her children's FASD expert and has since continued her mission in parent advocacy.
During this lively and engaging discussion, Jessica and Clare share the following with Natalie: their lived / professional experiences in the FASD Community in the UK, when they respectively became FASD advocates, the development and mission of the Spotlight on FASD podcast (and hopes for the future), their call to action for more FASD Podcasts around the globe, what they both enjoy about podcasting and words of hope for those individuals (and their families / loved ones) who may be in the dark places of their journeys in FASD.
RESOURCES -
"Spotlight on FASD" podcast is available on all major platforms.
Instagram - @spotlightonFASD
Facebook - https://www.facebook.com/Spotlight-on-FASD-111715024044221/
YouTube- https://www.youtube.com/channel/UCjmngLn026S6gP004aUAp3g?app=desktop
Spotlight on FASD email -
spotlightonfasd@gmail.com
FASD Hope -
http://www.fasdhope.com/
info@fashope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this 20th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Josh Bechtel, an author and President of Lighthouse Publications, LLC and founder of FMV Publishing Services. Josh has written several books, including his memoir "Finding My Voice: A Journey into Faith". Josh was born in November of 1977 in Pendleton, Oregon. He was placed in foster care at the age of one and a half. After a series of foster placements, he was eventually adopted by a conservative, Mennonite family in Estacada, Oregon. He later learned that he had a Fetal Alcohol Spectrum Disorder and his family (and fellow members of their Mennonite Community) received a consultation from Diane Malbin, author of "Trying Differently Rather Than Harder" and founder of FASCETS. Josh credits speaking with Diane Malbin and reading her book as extremely helpful in learning about how his brain functioned and learning to make accommodations for himself. In this twenties and early thirties, Josh worked at a children's home in Virginia and a men's rehabilitation center in Indiana. During that time, Josh reconnected with his biological parents and family. He lives in Akron, OH and he divides his time between odd jobs and expending his creative energies in a small business he founded in 2015, called "Finding My Voice Publishing and Services", inspired by the title of his memoir "Finding My Voice: A Journey into Faith".
During this open and insightful conversation, Josh and Natalie discuss the following topics: Josh's story and adoption journey, how he learned about his FASD diagnosis (from Diane Malbin), the many accommodations he developed throughout his lifetime, how his writing saved him (and became a tremendous strength for him), his additional strengths and his advice to teens and young adults living with an FASD (and their parents / caregivers / loved ones). Josh's story is one of determination, accommodation and hope.
"Jesus answered and said to him, 'What I am doing you do not understand now. but you will know after this.' " - John 13:7
RESOURCES-
Josh Bechtel, President, Lighthouse Publications, LLC
FMV Publishing and Services
www.findingmyvoice.us
jaypeebee77@gmail.com
"Trying Differently Rather Than Harder" by Diane Malbin, MSW (1999/2002/2017)
FASCETS - https://fascets.org/
FASD Hope -
http://www.fasdhope.com/
info@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disroder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this 19th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Lindsey Munns and Debbie Raymond about their respective, parent advocating experiences. Lindsey is a parent advocate in Florida and Debbie is a parent advocate in the state of Washington.
This episode is filled with advice, encouragement and hope for those parents and caregivers who are considering becoming advocates in the FASD Community (or in the Developmental Disabilities / Brain Based Diagnoses Communities).
"If you can't fly, then run. If you can't run, then walk. If you can't walk, then crawl. But, whatever you do, you have to keep moving forward." - Martin Luther King, Jr.
RESOURCES -
Lindsey Munns -
Instagram @fasd.florida @fasdfurfighters
Debbie Raymond -
Instagram @fasd_strong
FASD Hope -
http://www.fasdhope.com/
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this 18th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Wendy Brown. Wendy Brown is certified trainer of the FASCETS Neurobehavioral Model. Wendy enjoys helping caregivers and community partners learn to think differently when working with those challenged by FASD or other neurobehavioral diagnoses. Wendy previously worked for Eastern Washington University through the Family Resource and Training Center as a mentor to foster families in Southwestern Idaho. Wendy and her husband have parented over 80 children through foster care and adoption, most of whom have been neurodevelopmentally challenged. Now settled in a small, East Coast town, Wendy and her family continue to enjoy home educating, their RV travels and working in their garden.
Natalie not only considers Wendy to be a dear friend, but also a mentor and guide in the journey of parenting a child with an FASD.
In this heartfelt conversation, Natalie and Wendy discuss the following topics:
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The journey of Wendy's family growth through birth, foster care and foster care adoption.
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Her family's journey in learning about FASD
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What is FASCETS and when she became a FASCETS trainer
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How the Holiday Season can be dysregulating for children with an FASD or other brain-based diagnoses
- The impact of COVID19 on family's of children with FASD / Brain Based Diagnoses, especially during the Holiday Season
- What is the PEACE Acronym and how parents / caregivers can use it during the Holiday Season
- Her hopes for those families who struggle with parenting children with FASD or other brain based diagnoses.
PEACE P - PLAN E - EVALUATE A - ACCOMMODATE C - CLEAN E - EAT
"The LORD bless you and keep you; The LORD make His face shine upon you, And be gracious to you; The LORD life up His countenance upon you, And give you peace." - Numbers 6: 24-26
RESOURCES - FASCETS - https://fascets.org/ Wendy Brown - FASDWOW@gmail.com
FASD Hope - http://www.fasdhope.com/ Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.
On this 17th episode of FASD Hope, Natalie Vecchione (Podcast Host) is privileged to have an EXCLUSIVE interview with Justin Shepherd (Director) and Kristina Uban (Executive Producer) of "The FASD Project".
Justin and Kristina fell in love in Colorado, where they were married. They lived along the West Coast from Vancouver, Canada down to Los Angeles, CA. In California, they started their family and pursued their careers... Justin as a Performing Artist and Kristina as a Developmental Neuroscientist focused on FASD. Working with the nonprofit "FASD Communities" (which provides 4 young women, with an FASD, a forever home to live independently from family), Justin and Kristina were asked to amplify their FASD Movement through a film about FASD. When the COVID19 Pandemic struck, they learned about the 41% increase in maternal drinking in 2020 and the future spike in FASD incidence and severity among babies to be born in 2021-2022 - that would result from this side effect of the pandemic in the US. Justin immediately decided that the FASD film had to be made and disseminated now to help prevent this from happening. Justin and his brother formed a crew of two and hit the road from November 3rd - November 15th to interview individuals with an FASD, their caregivers and professionals around the US. Supported by a powerful team of pro bono producers, the road trip was a massive success and The FASD Project pilot film is now in post-production.
In this hope-filled conversation, Natalie speaks with Justin and Kristina about the following topics:
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How they both became involved in the FASD community
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The development of FASD Project
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Why it was SO important to film "The FASD Project" during a Global Pandemic (and traveling cross- country in an RV during a Global Pandemic)
-
Reflections on filming a variety of members in the FASD community
-
The post-production status of "The FASD Project"
-
Words of hope for those in the FASD community
RESOURCES -
www.thefasdproject.com
www.thefasdproject.org/donate
info@thefasdproject.com
Instagram - @thefasdproject
Facebook - @theFASDproject
Twitter - @theFASDproject
FASD Hope -
http://www.fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.
On this 16th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Josh and Alicia Dougherty of "The Dougherty Dozen". Josh and Alicia live in the suburb of Pittsford, NY with their 10 children, 5 chickens and 1 dog. Josh and Alicia are passionate about adoption from foster care. 6 of their 10 children are adopted (and have an FASD) and 9 of their 10 children have special needs. In August 2020, The Dougherty Dozen made headlines when their family was featured in an exclusive People Magazine Article about their story and their family's journey with Fetal Alcohol Spectrum Disorders.
In this Thanksgiving Week Episode, Natalie talks with Josh and Alicia about the following topics:
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Josh and Alicia's journey into parenthood (and growing their family 6 times through adoption from foster care)
-
When they first learned about FASD
-
The story behind the People Magazine article
-
Their most challenging times and the times when their kids are the most regulated
-
Managing the variety of sensory needs of their large family
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The balance of the involvement of their kids' birthparents in their lives
-
What they're most thankful for this Thanksgiving (and every day)
-
Their advice for families who are just starting to learn about FASD
"And the King will answer and say to them, 'Assuredly, I say to you, inasmuch as you did it to ne of the least of these, My brethren, you did it to Me.' " - Matthew 25:40
RESOURCES -
https://linktr.ee/doughertydozen
Instagram - @doughertydozen
Facebook - @doughertydozen
FASD Hope -
http://www.fasdhope.com/
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On the 15th episode of FASD Hope, Natalie and John Vecchione discuss what they've learned from past holidays and how the Neurobehavioral / Brain Based Approach to parenting has changed their expectations of the holiday season. Natalie and John share also their thoughts about past holidays and how they've accommodated to enjoy more of the holiday season. In this honest (and lighthearted) episode, John discusses how they have learned, from past holidays, to make changes that make a better fit for their family. Finally, John and Natalie provide updates about the FASD Hope website and upcoming "Dadcast" episodes.
"The informality of family life is a blessed condition that allows us all to become our best while looking our worst." - Marge Kennedy
Resources -
http://www.fasdhope.com/
info@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On the 14th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Mike and Kristin Berry, founders of Honestly Adoption and authors of the new book, "Securely Attached: How Understanding Childhood Trauma Will Transform Your Parenting". Mike and Kristin are authors, bloggers, podcasters, speakers, parent coaches, former foster parents. They have had the joy of adopting 8 children. They are passionate advocates in the foster / adoption communities, sharing a message of hope and transformation. They have been married for 21 years and they have 8 children, all of whom are adopted. They live on a farm in Indiana. Mike and Kristin truly are trailblazers, fierce advocates and the GO-TO resource for adoption / foster care / trauma!
In this highly informative and insightful episode, Mike and Kristin discuss a number of topics, including the following: their parenting / adoption journey, their experiences with FASD with their children, when they started becoming advocates in the foster care / adoption / trauma communities, how "Honestly Adoption" became the online resource for adoptive and foster parents, their newest book "Securely Attached", trauma and their hopes for the FASD / Foster / Adoption Communities.
"...but there is HOPE! The storm is temporary, the sun is permanent. The sun is ALWAYS shining just beyond the clouds." - Mike and Kristin Berry
Resources -
The Honestly Adoption Company
https://honestlyadoption.com/
"Securely Attached: How Understanding Childhood Trauma Will Transform Your Parenting" by Mike and Kristin Berry. Moody Publishers; Chicago (2020).
FASD Hope -
http://www.fasdhope.com/
info@fasdhope.com
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On the 13th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Audreuna Butler and her mom, Crystal Butler. Audreuna is 10 years old and an author who wants to bring awareness to people about foster care and for families becoming foster families. From the time she was 5-9 years old, Audreuna wrote a book (with her mom and dad's assistance) to honor her three foster sisters. Audreuna's book, "The Krystal Kingdom", is Biblical-based, fictitional story and takes her readers on an imaginative journey with four princesses and their struggles to get back to their families. Her book is through the lens of a child and her story is imaginative, symbolic and shares her love for her foster sisters. Audreuna's mission is to bring awareness about being a foster family and sharing her faith to as many people as possible. A portion of the proceeds from the sales of "The Krystal Kingdom" will go the Bair Foundation, a Christian, Child and Family Ministries and Foster Care Organization. During our conversation, Audreuna, Crystal and Natalie discuss the following topics: how Audreuna's vision of writing a book became a reality, how her family supported her in writing this book to honor her foster sisters, her favorite parts of the book and what she hopes people will learn from her book. "I can do all things through Christ Jesus Who strengthens me." - Phillipians 4:13 RESOURCES - "The Krystal Kingdom" by Audreuna Butler (2019) How to buy Audreuna's book- ebay.com - "The Krystal Kingdom" momentspod.com drajrbutler.com ajrbulter@gmail.com FASD Hope- http://www.fasdhope.com/ info@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope!
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this 12th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Kathryn Shea. Kathryn Shea is a licensed clinical social worker (LCSW) with over 40 years of experience working with children with serious emotional, behavioral disorders and fetal alcohol and drug effects. Kathryn served as the President and CEO of The Florida Center for Early Childhood in Sarasota, FL for 12 years. Kathryn has received numerous awards for her work in infant mental health, FASD and child advocacy. Kathryn Shea is a Board Member of NOFAS (National Organization on Fetal Alcohol Syndrome). Kathryn and her husband are also proud parents of an adult son with an FASD. Kathryn's professional legacy is prolific and incredibly impressive. What's equally amazing is Kathryn's lived experience as a mom of a son with an FASD. Additionally, Kathryn is friendly, kind and engaging. In their lively conversation, Kathryn and Natalie bond over being moms to sons with FASD, as well as sharing their respective experiences. As Kathryn wraps up her remarkable career as President and CEO of The Florida Center (in Sarasota, FL), she is beginning a new professional chapter as a Board Member for the National Organization on Fetal Alcohol Syndrome (NOFAS). Additional topics covered in this episode include the following: Kathryn's professional work experience, her experiences with The Florida Center, key advice for parents / caregivers who may suspect their child may have an FASD, key points when seeking a diagnosis for children with a suspected FASD and her hopes for the FASD community. "Live justly, love tenderly and walk humbly with our God," - Micah 6:8 Resources- Kathryn Shea KSheaconsulting@outlook.com The Florida Center for Early Childhood https://www.thefloridacenter.org/ FASD Hope- http://www.fasdhope.com/ info@fasdhope.com Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On the 11th episode of FASD Hope, Natalie Vecchione (Podcast Host) speaks with Sandra Flach, Co-Founder and Executive Director of Justice for Orphans. Justice for Orphans is a nonprofit ministry on a mission to rally the Church to serve children and families in crisis. For 7 years, Sandra has hosted the weekly "Orphans No More" podcast, where she seeks to inspire, educate and encourage foster and adoptive parents through guest interviews and inspirational content. She also serves as the Area Director for CarePortal throughout the state of New York. Sandra lives in upstate New York with her husband of 33 years. They are the proud parents of 8 children - 5 of whom through adoption. A little over 5 years ago (shortly after the adoption of Natalie's daughter), Sandra interviewed Natalie for the "Orphans No More" podcast. Shortly after, Natalie met Sandra at an adoption conference. and they instantly bonded over their adoption journeys and how God brought them together in their respective journeys as moms advocating in the adoption community. A few years later, Natalie was a guest on "Orphans No More" again to discuss FASD and her family's journey. Natalie is blessed to call Sandra a friend and mentor in advocacy. During this heartfelt conversation, Sandra and Natalie discuss the following topics - Sandra's journey into parenthood; adoption and FASD, the development of Justice For Orphans; Sandra's extensive advocacy for children, teens and young adults in foster care; the devastating impact of COVID19 on those in the foster care system and the urgent need for FASD awareness and training in churches, foster care trainings and the community. "LORD, You know the hopes of the helpless. SUrely you will hear their cries and comfort them. You will bring justice to the orphans and the oppressed, so mere people can no longer terrify them." - Psalm 10: 17-18 Resources- Sandra Flach - Justice for Orphans https://www.justicefororphansny.org/ sandraflachjfo@gmail.com Facebook - https://www.facebook.com/JusticeForOrphans/ Resources that Sandra Mentioned- Book- "The Connected Child" by Karen Purvis, Ph.D., et. al. (2007) Ryan and Kayla North of "One Big Happy Home" and "The Empowered Parent Podcast" https://www.onebighappyhome.com/ FASD Hope http://www.fasdhope.com/ Instagram - @fasdhope Facebook - @fasdhope1 Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On the tenth episode of FASD Hope, Natalie Vecchione (Podcast Host) talks to Kathy Kuhl - Author, Speaker and Coach for parents who homeschool students with learning challenges. In addition to coaching parents who are teaching children / teens with learning challenges, Kathy also provides resources, support and guidance in the homeschool & special needs homeschool community. After homeschooling her creative, distractible son (with dyslexia), Kathy interviewed sixty-four parents who were homeschooling students with learning disabilities. Then, she wrote "Homeschooling Your Struggling Learner", a handbook equipping parents to teach children with many learning challenges. Kathy also wrote "Staying Sane As You Homeschool" and "Encouraging Your Child". Kathy gives workshops and private consultations.
Six and a half years ago, Natalie read Kathy's book, "Homeschooling Your Struggling Learner", when she began homeschooling her son. Natalie considered it to be a highly valuable resource throughout her son's homeschooling journey and she considers Kathy to be one of her "homeschool heroes". During their conversation, Natalie and Kathy discuss the following topics: Kathy's lived experience as a homeschool mom (and how that led to her career as an author / homeschool consultant), how she became an advocate for those homeschool students who learn differently, tips and resources for homeschool parents and caregivers of children / teens with learning disabilities and reasons why homeschooling is such a great fit for families of children and teens with learning disabilities and brain based diagnoses.
"See how the farmer waits for the precious fruits of the earth, being patient about it, until it receives the early and late rains. You also be patient. Establish your hearts, for the coming of the Lord is at hand..." - James 5: 7-8
Resources-
Kathy Kuhl - Author, Speaker and Coach
https://www.learndifferently.com/
kathy@learndifferently.com
Resources mentioned by Kathy in the episode-
http://spedhomeschool.com/
https://hslda.org/
Book- "The Mislabeled Child" by Drs. Brock and Fernette Eide
FASD Hope-
http://www.fasdhope.com/
Instagram - @fasdhope
Facebook - @fasdhope1
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On the ninth episode of FASD Hope, (Podcast Host) Natalie Vecchione speaks with Jennifer Donaldson of Tailor Joy Tutoring. Jennifer Donaldson has worked as an educator teaching elementary school, subbing at all grade levels in both typically developing / special education classes and private tutoring. Jennifer "retired" from the elementary classroom when her aging parents needed more care and she became a tutor. She is the owner and tutor of Tailor Joy Tutoring, which offers a hybrid approach to tutoring.
Jennifer discusses her experience in tutoring students with brain-based diagnoses (including FASD) and with students who learn differently. During this episode, Natalie and Jennifer explore the following topics: focusing on strengths versus focusing on deficits, simple strategies that parents can use to discover the gifts / abilities in their child, ways in which parents can "meet the child where he/she is at developmentally", the importance of creative thinking and strategies to incorporate creative thinking at home. On a comical note, you'll hear Jennifer completely stump Natalie during a "real life example" of using a creative thinking strategy to reinforce educational concepts!
"The Lord is good to all, And His tender mercies are over all His works. All Your works shall praise You, O Lord, and Your saints shall bless You." -Psalm 145:9-10
Resources -
Jennifer Donaldson, Owner / Tutor of Tailor Joy Tutoring
http://education.tailorjoy.com
tailorjoytutoring@gmail.com
FASD Hope -
http://www.fasdhope.com/
Facebook - @fasdhope1
Instagram - @fasdhope
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.
On the eighth episode of FASD Hope, Podcast Host- Natalie Vecchione talks with La Shanda Sugg, LPC of Labors of Love Counseling and Consulting. La Shanda is a Certified Trauma-Responsive and Developmental / Relational Therapist, Consultant and Founder / CEO of Labors of Love Consulting, LLC in Cincinnati, Ohio. With a trauma specialty and focus on multigenerational families, La Shanda helps people improve quality of life and their relationships. In addition to providing therapy for families, couples and individuals, La Shanda also conducts trauma-specific trainings and consulting for companies, community / government agencies, schools and faith-based organizations. With her knowledge and experience, La Shanda is a sought-after therapist and trainer. La Shanda is also one of ten authors in the book collaboration titled "The Heart of a Therapist".
La Shanda shares her experience and her journey in becoming a trauma therapist (with such an extensive skill set in the field of trauma and relational therapy). Natalie and La Shanda dive into a thoughtful and emotional conversation with the following topics: La Shanda's journey in becoming a therapist / specializing in trauma and relational therapy, her work with clients who have experienced trauma, when La Shanda learned about FASD, the importance for parents / caregivers / professionals to understand the difference between prenatal trauma (such as FASD) and trauma from life events (and the excellent analogy she uses to describe this difference) and the steps that parents and caregivers can take in healing / breaking the cycle of trauma.
"Scars may tell the story of where you have been, but they do not have to determine where you are going." - La Shanda Sugg, LPC
Resources-
La Shanda Sugg, LPC
Owner, Therapist and Consultant of Labors of Love Counseling and Consulting, LLC
https://www.thelaborsoflove.com/
Facebook - @healingforthehealers
Instagram - @laborsoflove513
YouTube - www.yourtube.com/channel/UCOL3382DzXb1tGIvFaUK4w
Podcast - "The Labors of Love"
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.
On the seventh episode of FASD Hope, Podcast Host- Natalie Vecchione speaks with Michele Pitts-Brown, Consultant, Disability Advocate and Author of "Embracing Your Child's Unique Abilities". Michele has a Bachelor's Degree in Nursing and two Master's Degrees in Social Work and Law. Michele is married and she is also the mom of two grown children... her son has autism. Michele's professional and lived experience makes her a dynamic and highly skilled advocate for children and families affected by developmental disabilities.
Michele shares how her lived and professional experience taught her a tremendous amount about advocating, especially for those in the developmental disability community. Michele and Natalie explore the following topics: Michele's own journey as a parent of an adult son with autism, what inspired her to write "Embracing Your Child's Unique Abilities", why it is important to understand feelings of grief when parenting a child with a developmental disability, shifting the parenting mindset to focusing on your child's strengths / abilities and how her faith carried her through her parenting journey.
" 'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.' " - Jeremiah 29:11
Resources-
Michele Pitts-Brown, Consultant and Advocate, LLC
https://www.michelepittsbrown.com/
"Embracing Your Child's Unique Abilities" by Michele Pitts-Brown
Instagram- @pittsbrown
Facebook- @MPBConsultant
FASD Hope-
http://www.fasdhope.com/
Instagram- @fasdhope
Facebook- @fasdhope1
Pinterest- @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
This sixth episode of FASD Hope is titled "The FASD Dadcast", which will be a regular series within the FASD Hope Podcast Series. Each "FASD Dadcast" will feature conversations with different dads in the FASD community. On this first Dadcast, Podcast Host Natalie Vecchione speaks with her husband, John Vecchione and with Spencer Munns. Spencer and his wife, Lindsey Munns, have 4 children (2 of them with a diagnosed FASD) and advocate through FASD Florida.
John and Spencer have a candid conversation about life as a dad of children with FASD, how they've made accommodations in their respective families, adjusted their expectations and the importance of connection with other dads in the FASD community.
"As a father shows compassion to his children, so the Lord shows compassion to those who fear Him." - Psalm 103:13
Resources-
FASD Florida is on Instagram as @FASD.Florida
FASD Hope-
Facebook - @fasdhope1
Instagram - @fasdhope
Pinterest - @fasdhope1
http://www.fasdhope.com/
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On the fifth episode of FASD Hope, Podcast Host- Natalie Vecchione speaks with Shannon Iacobacci of Diversely Designed. Shannon has both lived and professional experience in the FASD community. She is a foster / adoptive mom with four children diagnosed with FASD. Shannon is a Certified Facilitator of the FASCETS Neurobehavioral Model and she has trained thousands of caregivers, foster/adoptive parents, mental health professionals, students, educators and organizations about FASD. She is also certified in Youth Mental Health First Aid. Shannon advocates for children and teens with disabilities in the educational system.
Shannon reveals how her lived experience as a parent and her professional experience ignited her passion for advocacy in the FASD community (as well as other Brain Based Diagnoses). Shannon and Natalie also discuss the following topics: awareness of FASD in teens, challenges that parents and caregivers experience raising teens with FASD, why the Neurobehavioral / Brain Based Approach in parenting teens with FASD is so helpful, tips and techniques that she introduces when working with families and how we can better support teens with FASD (and their families, too).
"Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit." - Romans 15:13
Resources-
Shannon Iacobacci of Diversely Designed-
www.diverselydesigned.com
shannon@diverselydesigned.com
FASCETS-
https://fascets.org/
FASD Hope-
http://www.fasdhope.com/
Facebook - @fasdhope1
Instagram - @fasdhope
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over eighteen years of lived experience.
On this fourth episode of FASD Hope, Podcast Host, Natalie Vecchione, interviews Dr. Glenda Clare, Founder of the Fragile Families Network and "It Takes More Than Love" project. Dr. Clare is an advocate for grandfamilies, those families that are created when grandparents or other family members raise a child of a relative, who is unable or unwilling to parent.
Dr. Clare shares how both her professional and lived experience led her to advocating for grandfamilies. In this enlightening episode, Dr. Clare and Natalie discuss the following topics: defining grandfamilies, why grandfamily awareness is such an important issue, challenges that grandfamilies face in raising their grandchildren, how substance abuse often plays a role in a child or teen going to live with grandparents / relatives, the impact of FASD on grandfamilies and how we can bring FASD awareness and better support grandfamilies.
"...For I was hungry and you gave Me something to eat, I was thirsty and you gave Me something to drink, I was a stranger and you invited Me in, I needed clothes and you clothed Me, I was sick and you looked after Me, I was in prison and you came to visit Me," - Matthew 25:35-36
Resources-
Dr. Glenda Clare, Fragile Families Network and "It Takes More Than Love"
drclare@fragilefamiliesnetwork.com
Facebook Group - "It Takes More Than Love"
FASD Hope -
http://www.fasdhope.com/
Facebook - @fasdhope1
Instagram - @fasdhope
Pinterest - @fasdhope1
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.
In this third episode, Podcast Host, Natalie Vecchione has a conversation with Sara Messelt, Executive . Director of Proof Alliance (formerly known as MOFAS). Natalie and Sara discuss the following: the history of Proof Alliance's "ProofCon" annual conference, "ProofCon 2020" (the first virtual conference held by Proof Alliance, speakers and topics of this year's ProofCon 2020, the benefits of this virtual conference and facts about registering for ProofCon 2020. ProofCon 2020 will be held online this year on Thursday, October 22nd and Friday October 23rd, 2020.
Resources-
Proof Alliance
https://www.proofalliance.org
ProofCon2020
https://proofcon2020.virtualconference.com
Podcast Website-
www.fasdhope.com
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.
In this second episode, Podcast Host, Natalie Vecchione has a conversation with Aubrey Page. Aubrey is an FASD educator, disability advocate and a parent mentor. Natalie and Aubrey discuss facts important facts about FASD, first steps in learning about brain based strategies and becoming an FASD advocate.
Resources-
Aubrey Page, FASD Educator
www.aubreypage.org
Instagram- @aubreypagefasd
Facebook- @AubreyPageFASD
Welcome to the First Episode of the FASD Hope! FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD) through the lens of parent advocates with over eighteen years of lived experience.
In this first episode, FASD Hope Co-Founders, John and Natalie have a candid conversation about: some of the things they have learned in their 18+ years as parents of a young adult son with an FASD, why they began FASD Hope and how they hope to bring awareness, information and inspiration to those whose lives have been touched by an FASD.
Resources-
Facebook @fasdhope1
Instagram @fasdhope
Pinterest @fasdhope1
email us at fasdhope1@gmail.com