The Way We Roll: Recent Episodes
Simon Minty and Phil Friend
Let’s start with some numbers -
- 2.8 million people are economically inactive due to health conditions. An increase of 800,000 since 2019.
- 53% of disabled people are in work. People with learning disabilities: just 4.8%
- 300,000 people with a health condition leave work every year
- The total cost of health-related worklessness: £212 billion a year — roughly 7% of GDP
- Mental health inactivity among 16–34-year-olds rose by 76% between 2019 and 2024
How do you close the employment gap between disabled and non-disabled people? The latest person to step up is Sir Charlie Mayfield. Appointed by the UK government, he led the Keep Britain Working review examining how to support and enable employers to recruit and retain more people with health conditions and disabled people.
Sir Charlie is our guest this month. He highlights three key issues stopping more disabled people get in to work: widespread fear among both employees and employers about discussing health and disability, a lack of proper support systems for navigating reasonable adjustments, and the exclusion faced by disabled people in the workplace. His solutions? There are many, and he’s focused on data, implementation and outcomes. He tells us about international examples, particularly from Denmark and the Netherlands, where better support systems and incentives have led to better employment outcomes for disabled people.
Our conversation showed Sir Charlie’s commitment to this. As he says, whilst the problem is significant, it is also fixable through coordinated action across government, employers, and providers.
Links
Keep Britain Working Final Report (31.3.2026)
Keep Britain Working review – updates
Charlie Mayfield Wiki
Charlie Mayfield Government role and info
The Disability Policy Centre response to Keep Britain Working review
This month, we have two guests. First up is Georgina Coleman, founder of Purpl Discounts, a discount platform created by disabled people for disabled people. Frustrated that disabled consumers were often overlooked despite facing higher living costs, Georgina set out to negotiate exclusive savings on everyday essentials, entertainment and more. She shares the story behind launching the business, the challenges of building it from scratch, and how her own experiences of MS and ADHD have shaped its direction.
Georgina’s passion for disability and financial inequality drives her ambition to use the success of Purpl to fund practical support for disabled people who cannot afford the help they need. From proving eligibility and charging a membership fee to balancing social purpose with commercial reality, this is a thought-provoking discussion about entrepreneurship, community and finding new ways to make life a little fairer.
Later in the show, we speak with David Dew-Veal, founder of ORA (Open Road Access), about his mission to make travel and independence easier for disabled people. Drawing on family experiences, David explains how his wheelchair-accessible vehicle rental service offers flexible transport options, whether for a day, a month or longer.
We explore the challenges faced by people who acquire disabilities later in life, and the role that technology and innovation could play in transforming mobility in the years ahead. It’s an insightful discussion about practical solutions, social impact and what it will take to (hopefully) create a world where everyone can move more freely and independently.
Links
Purpl Discount
Georgina Colman LinkedIn
ORA Open Road Access
David Dew Veal LinkedIn
Has there really been an explosion of people who are neurodivergent? In our latest podcast, Dr Nancy Doyle, founder of Genius Within and organisational psychologist, answers our questions.
Nancy is a social entrepreneur and leading authority on neurodiversity and disability inclusion in the workplace. She created Genius Within – pioneering scalable, evidence-based solutions that empower neurodivergent individuals and transform organisational cultures. Nancy shares her personal experiences about her ADHD diagnosis and how she manages it.
We explore the possible over-medicalisation and whether being neurodivergent is seen as a ‘cool’ trait. And is being neurodivergent the same as having a disability? As workplaces scramble to adapt, how can employers and the neurodivergent employees make it work?
Interestingly, we begin to see similarities between the more mature disability rights movement and the newer neurodivergent campaigning; striking the right balance between "entitlement" and “agency", where neurodivergent people develop their own strategies and accommodations rather than relying solely on external support. If 15-20% of the population is neurodivergent, how do we see things in the future for this significant minority?
Links
Genius Within
Doctor Nancy Doyle LinkedIn
Nancy Doyle Instagram
Business Disability Forum Neurodiversity Network
Business Disability Form ‘ What is Neurodiversity?’
It was hard to miss the furore of the offensive language moment at the BAFTAs this year. A couple of months on, we take a cool, reflective look at what went wrong and how we can do better next time. We wonder whether this moment has progressed the inclusion of people with Tourette’s?
It seems the Covid impact on working from home is truly ending as remote work declines and more employees are expected to be in their workplaces. Does this have a disproportionate and negative impact on disabled employees? That said, we need to ensure we don’t argue for a world where disabled people only work from home.
Ten years ago, in April 2016, we recorded our first podcast. Back then, the Brexit referendum had just begun, there was a review of disability benefits and a doctors’ strike. Plus ça change! We remember the first pod and highlight a couple of favourite moments since.
To wrap up, Phil has good news after MSPs rejected a law to introduce assisted suicide in Scotland, and Simon recommends the Disability And… podcast with Jack Thorne and Eli Beaton, who talk about disability and television.
Links
BBC I Swear director says Baftas 'let down' Tourette's campaigner
The Guardian letters re BAFTA
BAFTA Statement Feb 2026
BAFTA Tourette's row has 'reversed' film's message
Tourettes Hero
Remote Jobs Are Disappearing — And Disabled Workers Are Paying The Price
Scottish parliament votes against legalising assisted dying
Disability and… Access to TV podcast
First show April 2016
In this episode of The Way We Roll, we are joined by broadcaster and journalist Mark Mardell to unpack a shocking travel experience that raises bigger questions about disability, power, and dignity.
Airports and airlines often frame decisions around safety — but where is the line between care and control? Mark’s experience highlights how quickly concern can morph into blanket policies based on assumptions rather than evidence, leaving disabled passengers powerless and stranded.
Mark shares his story of being refused boarding on a flight from Istanbul to London simply because he has Parkinson’s—and no doctor’s letter to “prove” he was fit to fly. It’s a deeply personal account of confusion, humiliation, and bureaucratic indifference in one of the world’s busiest airports. Mark describes the humiliation, isolation, and loss of autonomy, from being publicly questioned to wandering an airport alone without support or information.
Mark’s response to this experience — fuelled by anger and a strong network- has helped force a policy change. The episode explores how collective voices, media attention, and persistence can turn a personal injustice into wider change.
Links
Mark Mardell Wikipedia
BBC article 27th October 2025
Rights on Flights
The Mouth and Foot Painting Artists (MFPA) has been around since 1957 and has a remarkable impact.
Tom Yendell from the MFPA is our guest and explains the organisation's purpose: supporting artists who paint without using their hands. There are 33 British artists and nearly 800 worldwide, and they are born with a uniqueness or disability or acquire them later in life. MFPA provides a supportive environment for artists to express themselves creatively, often helping them regain a sense of purpose after experiencing life-altering events. It supports artists with disabilities by providing grants, art materials, and local tutors to help them become professional artists.
Digital art represents both a threat and a challenge for the MFPA. The organisation needs to bring along the supporters who prefer the non-digital work and explore digital options to attract a younger demographic. 2026 is a big year for the AMFPA with its 70th Anniversary Conference and four-day exhibition in London in April.
Links
Mouth and Foot Painting Artists
Wikipedia on international AMFPA
VDMFK and the London conference
Open Road Access WAV vehicle hire
In this episode of The Way We Roll, we’re joined by Dr Georges Petitjean, founder of WARM (Workplace Addiction Recovery Movement).
Georges set up WARM after years of seeing the same pattern play out: Employees struggling with substance use were too nervous to tell their employers because of the potential consequences, including discrimination or career damage, rather than support being offered.
Although in recent years there’s been a rise in openness about work-related mental health conversations, addiction has largely been left out. That silence matters, with around 8–10% of employees affected by substance use disorders. Only a small fraction ever receives treatment; most are at work and coping alone.
Our conversation explores why some organisations still insist “this isn’t happening here” – a familiar reaction to anyone who remembers when disability was hushed up. We talk about how stigma, language, and fear delay support, often until things reach a crisis point.
Georges explains why WARM focuses on psychological safety rather than diagnosis or discipline. The aim is simple but powerful: make it safer to talk, easier to seek help, and more normal to access support early. That benefits individuals, teams, and organisations alike.
We also dig into the overlaps – addiction, mental health, chronic pain, prescribed medication, disability, and work culture. Addiction itself isn’t recognised as a disability under the Equality Act, but the associated mental health conditions often are.
Georges outlines plans for a pilot with employers who want to lead rather than look away. This means small changes, better language, clearer signposting and a willingness to know what’s really going on.
It’s a thoughtful, honest conversation about something we don’t talk about enough – and why it needs to be discussed more.
Links
www.warmatwork.org
Our first podcast of 2026 has our usual mix of debate, provocation, humour, and, we like to think, important insight.
We discuss how disability is reported in the media, and whether we, as disabled readers, have our own bias in seeing it one way.
Do medical prognoses collide with our lived experience? If there is no disability voice is there balance?
For a second topic, we highlight how one minute you can get a lot of support as a disabled person, and then suddenly it drops off. When we have little choice of service providers, we often have to put up with poor service. Why are these outsourced service providers getting it so wrong?
Our topics were prompted by the BBC report about singer Jessy Nelson having twin baby daughters who both have SMA. Then there’s the Guardian article written by wheelchair user Paul Sagar, about his trials in getting a wheelchair after an accident.
To finish up, we do our own Spotify Wrapped with our show numbers and a look ahead to 2026’s guests.
Links
Little Mix Jessy Nelson’s children
Other children talk of their diagnosis
Paul Sagar getting frustrated
Beyond Mobility
I’m Not Your Inspiration - Stella Young TedTalk
How to report on disability responsibly in journalism
Disability News Service
We look back on some highlights from The Way We Roll shows from 2025. We start with disability inclusion, featuring Celia Chatres-Aris, then move on to Making Inclusive Television with Henry Smith, and Adaptive Fashion with Victoria Jenkins. We check in with our most-listened-to show, Phil’s difficult trip to Spain, called Malaga Mayhem. We give honourable mentions to Euan’s Guide head, Kiki McDonald, and Jennie Williams, who are talking about sex and disability.
Finally, we revisit our February show on the twenty-year strategy for the Life Chances of Disabled People, which ended this year. There’s a bumper Listener’s Corner with your messages.
Links
Celia Chartres Aris show
Inclusively Made with Henry Smith show
Adaptive Fashion with Victoria Jenkins show
Malaga Mayhem show
20 Years Later, the Life Chances of disabled people show
People join an industry, and many adapt to its culture. Occasionally, someone challenges the culture, disrupts it and brings about a new way of thinking. Our guest, Victoria Jenkins, has done just that, and done it in the harsh, fickle world of fashion.
Victoria spent 16 years in the fashion industry, acquiring extensive knowledge of garment construction. Among others, she has worked with Victoria Beckham, Sweaty Betty, and Jack Wills. After disability affected her, she realised there was a need for adaptive fashion and a potential gap in the market.
We ask Victoria how she started her brand, Unhidden Clothing and what were the significant barriers. We challenge her on the business case, which for so long was seen as a barrier for so long. She tells us about her favourite solo runway shows and what’s next.
Smart, articulate, driven as well as fallible as we all are, Victoria makes a compelling guest..
Links
Unhidden website
Victoria’s LinkedIn
Victoria’s website
The Lilac Review
The Little Book of Ableism
Smile by Mallavora
This month we’re talking about sex and disability — a topic that’s often ignored or treated as taboo. Our guest is Jennie Williams, CEO of Enhance the UK, who’s been a leading voice in breaking down the barriers around intimacy and disability.
Jennie talks about what drew her to this work and shares insights from Undressing Disability and The Love Lounge — a space where disabled people can talk openly about sex, relationships and everything that comes with them. From communication and consent to pain, fatigue and body image, we explore what it really means to ask for what you need without embarrassment.
We also look at the bigger picture — how stigma, poor sex education and medical assumptions still get in the way, and what can be done to make things more inclusive.
As always, Simon and Phil share some of their own experiences — the funny, awkward and very real parts of love and sex when disability is involved. It’s an honest, practical and sometimes surprising conversation about pleasure, connection and the right to be seen as a sexual being. There’s even a discussion about sex on a bus.
Links:
Enhance the UK
Jennie Williams CEO LinkedIn
Instagram Love Lounge
Undressing Disability
Sexuality and Disability website
Books
The Sexual Politics of Disability: Untold Desires Tom Shakespeare 1996
Ultimate Guide To Sex And Disability: For All of Us Who Live With Disabilities, Chronic Pain and Illness 2020
Sex and Disability 2012
In case it’s a new term to you, let us start with a definition of Benevolent Bias in relation to disability. The Wiley Dictionary says “usually manifests as pity or charity, paternalistic protection, and condescending or exaggerated praise for common activities.” A new term perhaps, but not a new behaviour. We discuss.
Coldplay came to Wembley in August and we went to see them. We discuss the show and comment on accessibility, attending gigs as a wheelchair user and scooter user.
Phil gives us a health update after surgeons have been poking around, and just how unsettling this can be when you’re older.
Finally, we respond to the emails we have received from you recently and give you a preview of next month’s show.
Links
Wiley Research Dictionary
Vitruvi - The Problem With Benevolent Ableism
Coldplay and Access
Wembley Stadium and disability access
Depending on where you read it, there could be 13 million or 16 million disabled people in the UK. Some statistics suggest 1 in 4 of us, while others indicate 1 in 5. Conservative Party leader Kemi Badenoch recently suggested the term ‘disabled’ is in danger of losing all meaning. Is she on to something? What is the point of a definition, and what measure do we use?
Some who are disabled under the Equality Act 2010 definition are having a terrible time working for the Department for Work and Pensions (DWP). The DWP has lost more disability discrimination tribunal cases than any other UK employer. They have paid out nearly £1 million in awards. The pot calling the kettle black… The DWP administers the "Disability Confident" scheme to help employers recruit and retain disabled people.
Finally, Government ministers are saying they want to "get Britain working," including disabled people, whilst simultaneously cutting Access to Work (AtW). AtW is the scheme that pays for the more expensive adjustments that enable disabled people to obtain employment and stay in it.
Show Links:
Kemmi Badenoch has no useful meaning of disability now
DWP tribunal losses
Access to Work cuts
Employers ‘have rational fear of hiring disabled workers’
Jess Thom aka Tourette's Hero
Access to Work Collective Dr Shani Dhanda
Channel 4 Access to Work report
Gary Stevenson YouTube
As a disabled person, when you first start talking to a non-disabled person about the barriers to your participation, you can be met with the response, ‘I thought that’s all sorted now. ’ If you suggest they take a look at 20 shops locally, chances are they’ll find many are not physically accessible. And that’s just a high street.
Euan’s Guide carry out a survey asking disabled people in the UK about their experiences. Their latest research shows there’s a long way to go, as many of us know. For example:
- 70% said the lack of disabled access has directly affected plans or aspirations
- 78% are not confident when visiting new places in terms of accessibility
- Only 7% felt positive about the new government making things better.
Our guest this month, Kiki McDonald, co-founder of Euan’s Guide with her late brother Euan, says, “disabled people are still having to fight for disabled access information and access to everyday places, be it a train or a restaurant. Accessibility should be a right, not a privilege.”
With Kiki, we talk about the survey results in detail. We also reflect with Kiki about the impact and joy of Euan McDonald.
Links
EuansGuide.com
Survey Results
BBC Reporting on Euan’s death
Isn’t it great when you speak with someone and they are on your wavelength, but are also so wise that they make you think a little harder?
Our guest this month is one of these people. Celia Chartes-Aris is all about policy, research and law. Her impressive impact led to her being crowned No. 1 on the Disability Power 100 list in 2025. However, her real power lies behind the scenes, being well-connected and acting as an advisor to UK and international governments and organisations, where she advocates for the improvement of Disability equity.
Celia is still relatively young and has a lower life expectancy due to a complex health condition. Whilst she doesn’t appear in a hurry, she is working at a furious pace. We get to explore what drives her, including when she discovered what ableism was and how it became a fundamental driver for her. We delve into the difficult topics, asking whether the stigma attached to disability will ever be removed and why intersectionality is so far behind in disability advocacy. Celia also tells us how she became a campaigner to restore the Minister for Disability in the UK Government after the post was axed.
Links
Power 100 Celia
BBC Celia becoming Power 100 no.1
LinkedIn Celia
Access2Funding
Disabled by Society
Celia Linktr.ee
The second part of this month’s show is all about Phil’s recent trip to Malaga.
After meticulous planning, Phil and Sue, his wife, set off for some winter sunshine. On landing, a broken powered wheelchair meant limitation, frustration, moments of kindness and a lot of stress and cost.
How did Phil and Sue manage?
So, will they ever fly again? Let's just say the train to Spain is suddenly looking very attractive.
Links:
Ilunion Hotel
Global Disability Summit 2025, Berlin
This month, we’re splitting the show into two parts. First up, Simon recently attended the 3rd Global Disability Summit in Berlin. Simon found himself out of the loop, having not attended an event like this for a decade. As is often the case with huge multi-national conferences, they are overwhelming at times, brilliant for meeting people, and have fantastic speakers, but not so good ones. They highlight what needs to be done to progress disability inclusion and where different countries and regions are currently. Simon gives us the highs and lows, whilst Phil wonders what might be done to improve things.
We shall send you part two in two weeks, which features Phil’s trip to Malaga.
https://www.globaldisabilitysummit.org/
https://www.disabilitydebrief.org/debrief/gds2025/?ref=disability-debrief-newsletter
Somewhere near the Blue Mountains, just outside Sydney, Australia, something special is happening in production. Our guest, Henry Smith, shares insights about it and the organisation he has co-founded, Inclusively Made.
Henry and his partner, Genevieve Clay-Smith, have been creating human-centred films for many years. Henry explains how Genevieve initially stumbled upon working with talented disabled individuals, first by accident. Realising that this experience was enjoyable and not frequent enough, they decided to pursue it intentionally. They recognised the need to share the experiences and knowledge they have gained with others through Inclusively Made. It encompasses the entire production process and involves everyone. It is no longer about telling people why they should be involved; rather, it focuses on how to do so.
Inclusively Made aims to make inclusive production business as usual in the global production and entertainment industries. In just 12 months, they have had a huge impact. Henry shares his thoughts on the progress made so far and his plans for the future.
Links
Inclusively Made website
Taste Creative
A bit more about Henry and Genevieve
Inclusively Made Instagram
Henry LinkedIn
Genevieve LinkedIn
It is often said that politicians only think short-term. However, twenty years ago, the Labour government released a report titled “Improving the Life Chances of Disabled People.” This cross-government strategy outlined a programme to enhance the opportunities and life chances for disabled individuals by 2025. The aim was that this year, disabled people in Britain would have full opportunities and choices to improve their quality of life and be respected and included as equal members of society.
We ask whether it succeeded in its aim and wonder why there isn’t a piece of research (that we know of) showing what has changed.
Barclays recently made headlines with its mystery shopping contract with Ipsos. The bank informed Ipsos that they’d rather some mystery shoppers be blind or deaf; however if that wasn't possible, individuals could simulate the conditions of being blind or deaf. We discuss the pros and mainly the cons of ‘cropping up’.
Finally, we preview some of the guests who will be coming to the show in 2025.
Links
Summary of Improving the Life Chances of Disabled People on Navigator
Transport for All Roadmap to achieving Disability equality by 2025
Guardian reports on Barclays using non-disabled people pretending to be disabled
Article (from 1998 and still relevant) on the pros and cons of disability simulation exercises by Kevin Donnellon on Medium
On Friday, 29th November, Members of Parliament voted in favour of a bill to legalise assisted dying in England and Wales. Phil, who is part of Not Dead Yet, an organisation that opposed the bill, gives us an update. He was also at the demonstration outside Westminster Palace.
On our last podcast, our guest Peter Torres Fremlin said that sometimes, as disabled advocates, we need to mature and accept people’s motives, which might not be the same as ours, but a win is a win. We debate some moments of possible recent hypocrisy, i.e. funding for Not Dead Yet and the Shaw Trust Power 100 awards.
We talk about our favourite podcast of this year, plus our most listened-to show and what our best moment of disability inclusion was. All wrapped up in a bow, this is our present to you this Christmas. Thank you for listening and your support.
Links
BBC Who will scrutinise the Assisted Dying bill?
BBC Parliament votes live updates on the day
Not Dead Yet UK
Chelsea Roff
Disability Power 100 list
The Way We Roll podcasts we mention
International Perspectives with Susan Scott-Parker and Peter Torres Fremlin
Former CEO and Chair of Scope, Richard Hawkins and Alice Maynard
Disability and Shame
Talking with Motability Operations CEO Andrew Miller
This month, to coincide with the International Day of Persons with a Disability 2024, we will explore the international progress of disability inclusion with our two guests.
Susan Scott Parker is a renowned global expert and an authoritative voice on disability and its effects on global business.
Peter Torres Fremlin is the editor of Disability Debrief, a newsletter that reports on disability news from around the world and the people who are making change happen.
We asked Susan and Peter about the persistent challenges. Are the large NGO’s and the conferences effective? Conversely, are the Organisations of Disabled People equipped to campaign, advocate and deliver? How can disability discrimination be recognised as a human rights issue and not optional? There’s money sloshing around; is it spent wisely? There are success stories to enjoy, a few less celebratory examples, and an acknowledgement that the search is on for new disability leaders.
We also discover our guests' love of poetry, a biography of Stalin being on a beach (maybe) and being on safari (definitely).
Despite this being a substantial show, we realise there’s so much we didn’t cover: disabled people’s positioning in societies, poverty, access to education and healthcare and whether we go broad enough in terms of regions, to name a few. Nevertheless, there’s plenty in the show to think about.
Peter Links
Website Desability
Peter’s X handle
Peter LinkedIn page
Disability Debrief
Fall With Me poem
Susan links
Business Disability International
Susan LinkedIn page
Scott Parker Goes Live podcast
Links
International Disability Alliance crisis
International Labour Organisation Global Business Disability Network
We were very sorry to hear of the recent passing of Euan MacDonald MBE. Among Euan’s many achievements was the creation of Euan’s Guide, the award-winning disabled access charity. Perhaps best known for the disabled access review website EuansGuide.com, they also make accessible toilets safer and carry out a huge Access Survey. We remember Euan and talk about his impact.
We’re delighted to welcome back Abbi Brown, although for not the best of reasons. We spoke in July this year about Abbi becoming trapped in her East London flat after the lift in her block was broken, and the property management company were less than useless in helping. Abbi talks us through what she endured, what she had to do and she updates us on the current situation.
Phil wants some winter sun and talks about ageing, disability and difficulty finding the right place to stay. He also talks about being a proud grandfather, after one of his many amazing grandchildren’s recent success in kart racing. Move over, Lewis Hamilton; Albie Friend needs a seat.
Links
About Euan’s Guide (they are on X, Facebook, Instagram and LinkedIn too)
Euan MacDonald Wikipedia
BBC on Euan
BBC Abbi Brown story
Abbi Brown on X
When Abbi Brown was our guest
Albie Friend Instagram
Since its launch in 2019, the Valuable 500 has signed up more than five hundred senior executives from worldwide companies and organisations to put disability on the board agenda. So far, so pretty good. But as the Valuable 500 matures, it is now asking more of its members and wants them to report back on progress. It is holding a meeting in Tokyo in December 2025.
At the centre of this is our guest, Stephan Leblois, Chief Community and Programmes Officer for Valuable 500. Stephane leads programme development and community building, playing a pivotal role in rallying for progress and fostering accountability among the members.
We asked Stephane how he got involved in disability inclusion and about his relationship with disability. He tells us about fantastic examples of inclusive practice, from a multinational pharmaceutical company to a prestigious hotel in Scotland. These trailblazers share their knowledge and become known as the ‘Iconics’.
But what do you do about the companies that sign up but don’t make any meaningful change – is that purple washing? How do you harmonise more than 500 organisations' disability inclusion efforts when they are in different places geographically and in terms of resources? Luckily, Stephane has the answers.
Links
https://www.thevaluable500.com
https://www.thevaluable500.com/about
https://disabilitypower100.com/project/stephane-leblois/
https://www.linkedin.com/in/stephaneleblois/
Our guests this month are Alice Maynard and Richard Hawkes, formerly of Scope, a leading disability charity in the UK. In 2010, Alice became Chair, and shortly after, Richard joined as Chief Executive Officer.
During their time leading Scope, it went through a significant transformation and a turbulent time. Significant changes included closing services used by disabled people, which attracted praise and condemnation. Getting the organisation on a stronger footing by restoring its reserves and the modernisation of processes and policies were significant but less visible. We talk to Alice and Richard about how they formed a formidable and effective partnership to achieve their aims whilst facing many challengers.
We ask them both about how (and why) they joined Scope and what they achieved and are proud of. We explore being strategic and bold and going against those who love you. There are some revealing tales of their time working together.
We also explore today’s challenges, what can organisations do better and what their leadership philosophies are.
Links
Alice Maynard LinkedIn
Future Inclusion
Richard Hawkes LinkedIn
British Asian Trust
Richard on X
Scope
Scope History
Civil Society Media on the closures 2015
Phil speaks of his disheartening recent experiences at A&E at his local NHS hospital. We grapple with the oh-so-simple task of trying to make the NHS better, as it feels like it’s broken, and how that can break us.
A previous guest and friend of the pod, Abbi Brown, was recently trapped in her flat for days. The lift in her block was broken, and although there was another lift, it was beyond a locked door, and her property managers refused her access. Abbi is a wheelchair user and has now regained her independence. We talk about the nonsensical rules, why people avoid making decisions and the feeling of powerlessness and fury when we’re trapped.
Finally, a brief look at the DWPs Disability Confidence. Reports show it’s not making a difference.
Links
BBC Abbi Brown story
Abbi Brown on X
When Abbi Brown was our guest
The NHS is Broken Wes Streeting MP
NHS Accident and Emergency
Nye at the National Theatre
Disability Confidence DWP
Disability Debrief - Disability Confidence not changing anything
If we’re lucky in life, we might find a role that makes sense to us and makes a difference to others. Our guest this month has achieved that and more. A huge music fan, especially of live music, and a disabled person who’d experienced barriers accessing gigs, Suzanne Bull MBE founded Attitude it Everything in 2000. It a charitable organisation which connects disabled people with music and live events industries, to improve access together. Suzanne tells us how it started, who helped and some of the many fantastic achievements to date.
Then, as the pandemic took hold in the UK, Suzanne was diagnosed with breast cancer. She tells us of the triple whammy of having such a diagnosis, of being a disabled woman with access needs, and it being the start of a global pandemic. Suzanne has found another passion, which she regularly blogs about. She kindly spent some time with us talking about the topic.
Links
Attitude Is Everything
Attitude is Everything story
Creative United
Someone's Survival Guide
Blog The Musings of Spu
Banco de Gaia
Whirl-y-gig
Twitter X
RIDC research Accessible Events
We’ve had a show like this before, where we ask what the UK government are doing when it comes to disability and why now. We’re not sure they know what they are doing.
PM Rishi Sunak has ‘started a conversation’ on reviewing Personal Independence Payment, the main disability benefit in the UK. He decided to start this just before the local elections and also knowing it cannot be finished before the next general election. The Guardian calls it a ‘full-on assault on disabled people’ and The Telegraph, ‘a benefits crackdown’. It appears to be aimed at people with mental health and neurological conditions, who now make up 49% of all PIP claim assessments, compared to 26% of those with muscular-skeletal conditions.
The United Nations doesn’t cut the UK government much slack either, reporting that ‘it has made' no significant progress in more than seven years since it was found guilty of grave and systematic violations of the UN disability convention.’
Join us as we delve into the issues and talk about the perception and impact now and in the future.
(At the time of recording, the Prime Minister hadn’t announced the general election, which is happening on 4th July 2024)
Links
BBC Ros Atkins video on PIP review
BBC Proposed changes to PIP
The Telegraph PIP Review
The Guardian PIP Review
Disability News Service ‘Seven years on and no progress on disability rights by UK government, says UN’
Disability Rights UK UN Rapporteurs Question UK Government Over Benefits Deaths and Austerity
Human Rights Watch UN Body Calls on UK to End Detention of People with Disabilities
Admitting shame is a tough thing to do. Perhaps as complex as the shameful experience itself? Clearly, it is not unique to disabled people. Is there something more with us? An additional new perceived weakness, or from internalised ableism, it is hard to ignore but easier to deny. Stigma and societal attitudes can mean we have it thrust upon us if a person, on finding out we are disabled, says, ‘What a shame.’
Two people inspired the topic of shame in our latest show. Natalie Illsey, a disabled creative in the US, emailed us to ask how we feel about people saying, ‘What a shame’. Damon Rose, a BBC journalist, said to Simon that we should discuss how we feel about shame.
We hope you enjoy our thoughts, which were influenced by Natalie and Damon. We’d love to get your feedback on this most difficult topic, so email us at mintyandfriend@gmail.com or find us on social media, The Way We Roll.
Links
Counselling for Disabled People SpokzPeople
Natalie Illsey LinkedIn
Damon Rose
Bristol City Council recently reversed their planned cost-cutting strategy, which would have impacted independent living for disabled people. The UK government recently reversed the proposed closure of ticket offices at railway stations, which would have had an impact on disabled people. Sophie Morgan, the Rights on Flights campaigner, appears to be close to getting legal rights for disabled people on flights. Is campaigning stronger than ever? We talk through the possible renaissance and ask, is it all it seems?
At the end of February this year, the UK Government’s Health Select Committee published findings on Assisted Dying / Suicide. Phil picks through its findings and gives an update on the Not Dead Yet campaign.
We finish with good news from Europe, with Mar Galcerán making history as Spain’s first parliamentarian with Down’s syndrome. Another barrier knocked down.
Links:
Bristol City care plans
Transport for All - Ticket offices
Rights on Flights
Health Select Committee report on Assisted Dying / Suicide
Mar Galcerán in Spanish parliament
How would you feel if your local authority suggested you move from your home of 30 years to a residential care home because they need to save money? It's something Bristol City Council were proposing for disabled people as they try to reduce their deficit. Although this proposal has been shelved, it might not be the last time we see it. We explore the reasoning, impact and resistance.
Becoming disabled can bring a complete change of outlook, and you might reflect on who you once were. The author, Hanif Kureishi (My Beautiful Launderette, The Buddha of Suburbia), lost the use of his arms and legs in late 2022. He makes headlines with his newfound frustrations and doesn't hold back, but is he, a year later, finally adjusting? We discuss how people adapt, how long it takes and how non-disabled people might ignore disability until it impacts them.
Phil and Simon are passionate about these subjects. You will hear us disagree agreeably, with added swearing and raised voices.
Links:
Hanif Kureishi: I've become a reluctant dictator
Hanif Kureishi on the 'hell' of life after his accident
The Kureishi Chronicles - Hanif's blog
Francis Ryan in the Guardian
Think of this: a plan to 'warehouse' disabled people. What kind of nation is Britain becoming? "
‘Know your audience and communicate to as many people as you can, including disabled people’, says Sarah Brown Fraser on effective, accessible communication. That Sarah can whittle information down to valuable nuggets might be a consequence of her role as Head of Communications and Policy at the Activity Alliance.
As our guest, Sarah is timely, with accessible and inclusive communications being a hot topic. How do we communicate effectively with a diverse audience via various methods: print, website, social media, video, web links, in-person and even emojis? Is there such a thing as a fully accessible comms? Sarah helps us with what we need to think about initially and how to adjust as we go along.
From Liverpool with aspirations to be a TV Presenter, Sarah has found her niche in communication. Before starting work, Sarah moved from Merseyside to London to study for a BA in Media Studies at the University of East London. It was the mid-90s, but she was the first student with a disability to do her course. She is also an Everton supporter.
Links
Activity Alliance
Sarah Brown Fraser LinkedIn
Business Disability Forum Inclusive Communications toolkit
Activity Alliance Effective Engagement Factsheets
UK Government Accessible Formats
Our guest is Andrew Miller, the Chief Executive Officer of Motability Operations (MO). Many of you will know of this unique organisation. Indeed, some of you will be customers.
The Motability Scheme leases cars, powered wheelchairs and scooters to more than 700,000 disabled people in the UK. It is the largest car fleet in the UK. Andrew heads up the scheme's delivery, ensuring customers have a range of affordable options to stay mobile and ensuring the company stays on the right financial road.
It’s not an easy job with many challenges. The switch to electric vehicles is well underway, and it disproportionately impacts disabled people in terms of access, charging accessibility and price. As MO buys and sells 200,000 cars a year, small price fluctuations can significantly impact the financial model. Still, they must also maintain a consistent offering to their customers. Stakeholders aren’t just scheme customers; there’s the oversight from the Motability Foundation, successive governments, and the press, which often take an interest.
In an open conversation, we explore with Andrew the biggest challenges in the recent past and what the future looks like. Although he may be highly experienced in finance and business, he’s new to disability, and we check in with him to see how he is getting on.
Links:
Andrew Miller background
Motability Scheme website
How the scheme works
Motability Operations corporate website
Motability Foundation
Simon was at the airport recently. He was on his mobility scooter, and his mum was using an airport wheelchair. Looking at the long line in the disabled passport queue, his walkie-talkie sister and cousin decided to move to the non-disabled line. We explore what happened and how it made Simon feel.
The Business Disability Forum has produced a second adjustments in the workplace piece of research. Both managers and individuals who are Deaf, disabled or neurodivergent responded. Phil picks through the key findings.
History is littered with new businesses created to serve disabled consumers that weren’t viable. It feels different now. Simon asks, with the growth in service providers, including bespoke clothes makers, the hotel and leisure industry and accessible car and van hire, has the Purple Pound finally landed, and how do you cater to the diversity of disabled people?
Oh, and Bake Off want to hear from you.
Links
Business Disability Forum has produced another piece of research on adjustments in the workplace
Blue Badge Awards Leisure Industry
Proximo accessible vehicle hire
Able2Wear clothing
WAVs. Motability and Callum
UnHidden clothing
Apply for Bake Off UK
Pic Credit
A wheelchair user in the airport https://spintheglobe.net
They say you shouldn’t kick a person when they’re down. It feels right now the UK Government are down. And unfortunately for them, Phil and Simon have found more reasons why they deserve maybe not a kick but a strong toe poke.
Launched in late September 2023, Ask Don’t Assume is the government’s disability awareness-raising campaign. It asks everyone to avoid making assumptions about disabled people as well as asking non-disabled people to become allies. Many disabled-led organisations and influential people dismissed it. We explore why it feels outdated and inappropriate and ask why, if it was created with disabled people, it doesn’t have more validity.
Another government initiative is the Disability Confident employer scheme. Quoting from the Disability New Service, Phil suggests the results show it’s not working. Simon flips the statistics around and shows it can be argued that it is doing very well. We know statistics can be manipulated, so leaving that aside, is the campaign any good?
Phil gives an update on his recent cancer treatment, and Simon tells of his recent talk at the Royal Television Society on 20 years of disability representation on television.
Ask Don’t Assume
Disability Confident article
Simon’s talk with Steph Lacey at the Royal Television Society
Forbes Online posted an article which showed the 7 things disabled people have to think about, which non-disabled types don’t have to. Simon thinks it’s informative and helpful, like an access rider. Phil bemoans why we still need to tell people the basics.
There are big concerning issues relating to disability right now.
Why isn’t the UK Government meeting with the UN about its obligations under the Convention on the Rights of People with Disabilities?
How do you justify the possible closures of ticket offices at train stations, which will impact disabled travellers more than most?
As is our way, it’s personal, too. We make an appointment with Phil’s radiotherapy treatment and head to the athletics stadium where Simon competed at the World Dwarf Games in Cologne.
LINKS
Forbes 7 Things Disabled People Have To Think About Every Day
Andrew Pulrang @AndrewPulrang
Unlimited What is an Access Rider
World Dwarf Games website
World Dwarf Games instagram
World Dwarf Games Facebook
Dwarf Sports Association UK
Prostate Cancer NHS info
United Nations Convention on the Rights of Persons with Disabilities
Disability Rights UK Government refuses to attend
Ministers skip UN meeting on disability rights
BBC Tanni-Grey Thompson says big problems for disabled passengers with ticket office closures
Photo of Simon competing copyright Anna Spindelndreier
In an exceptional show, our guest is the remarkable human that is Sophie Morgan. Sophie often finds liberation on a motorbike. She pops up frequently on TV, presenting Crufts or the Paralympics as a guest on Loose Women or breakfast TV. This past year she’s been promoting her autobiography Driving Forwards: A Journey of Resilience and Empowerment After Life-Changing Injury. She’s a powerful campaigner for disability and, specifically, better rights on flights for wheelchair users.
As can happen when you throw three thoughtful and pragmatic disabled people together, Sophie allowed us to have a far-reaching conversation. What drives her, what does she do when the going gets tough and who supports her? She explains that writing her autobiography allowed her to pause and reflect on her identity and how her passions have formed and re-formed over the year. It turns out that having a ‘chip on your shoulder’ can be a helpful motivator. As we approach the 20th anniversary of her becoming a disabled person, she talks through her immediate and future plans. We know this will include being an artist, something she’s returning to as painting allows her to find a calming place.
Links
Wiki Sophie Morgan
Sophie on Twitter
Driving Forwards: A Journey of Resilience and Empowerment After Life-Changing Injury
Can-Am trikes
Sophie’s page on Can-Am
Rights on Flights
Howdens accessible kitchen
Can you fail upwards? Aarian Mehrabani from FlawBored Theatre says that is what they have done. With his theatre company co-founders Samuel Brewer and Chloe Palmer, they have created a play that pushes the boundaries of disability arts and arts more broadly.
How has the audience reacted? Do those with a disability react differently to those who aren’t disabled (the answer is sometimes yes)? After creating a show with disability themes, is there a subtle pressure for the next piece of work to move away from the topic? Is that natural, an enhancement or devaluing the subject? And might the term ‘able-anxiety’ be a throw-away joke turning into an accepted word and concept? Sam and Aarian join us to discuss this and more.
FlawBored is performing ‘It’s a Mother F**king Pleasure’ in Edinburgh this August (link below). Our show has a few spoilers but also might add to your enjoyment. Listeners discretion!
Links
FlawBored Theatre Company
Tickets to Edinburgh Fringe performances of It’s a Mother F**king Pleasure.
A bumper show this month. There’s an underlying theme around the erosion or optionality of including disabled people.
What do you do when you’re hotel room isn’t ready…especially when you return to the hotel after a night out at midnight and find out? Move to another room? Not so simple if you’re a wheelchair user. Kat Watkins had this happen to her, and we explore what coulda shoulda happened.
Did you know there are new consumer duties which may assist differently disabled people (beyond Phil’s favourite group being learning disabled people who fill in forms).
Simon and Phil have noticed the word ‘vulnerable’ is creeping back into the language to describe disabled people. Used without context or explanation, as in, ‘financially vulnerable’ or ‘vulnerable to exclusion’, the use of the word feels patronising and retrograde. Is it linked to Covid when lots of people were vulnerable? Is it broader, a moral driver of ‘being kind’? The issue is the word is disempowering, and inclusion isn’t optional nor a favour. There are legal duties underpinning this, as well as a moral imperative.
More happily, we enjoy the success Lenny Rush is experiencing. A British actor with dwarfism, only 14 years old, he is absolutely storming it. We ask, was Peter Dinklage in Game of Thrones a watershed moment?
Links
Disabled woman forced to sleep in hotel dining area ‘after the booked room was unavailable’
Disability and Vulnerability paper
New Consumer Duty.
Speech introducing a new duty
Best Bits of Am I Being Unreasonable with Daisy Cooper and Lenny Rush
Lenny Rush BAFTA acceptance speech
Disability talk and debate: what might be the consequences of how we talked about being disabled, reducing benefit fraud, the impact of the digital divide and street harassment, all discussed by Phil and Simon?
What are your thoughts on benefit fraud? How should it be tackled? Are the Tories being absurd or frightening?
Simon recently saw a play, ‘It’s a Mother f**king Pleasure’ at the Soho Theatre by FlawBored Theatre. The main thrust was irreverent fun ridiculing short-term ‘ableist’ attitudes and disability in society, including introducing ‘able anxiety’ as a term, But it went deeper: If some disabled people say how great life is, does that potentially encourage people to become disabled?
How would you get on if you didn’t have a smartphone, email, or Google? Many worry about wifi dropping or the impact of social media, and we talk about those who don’t even go online.
We explore the digital divide, explaining how some people are left behind as the world moves online. This can impact your wealth, health and mental well-being.
Most people would agree that harassment of anyone on the street is a bad thing and should be stopped such harassment, particularly experienced by women, also impacts disabled people too. We might agree it should be against the law, but how do you police someone ‘staring intently’?
Listeners Corner returns about jogging pants and your ‘favourite’ grandchildren.
LINKS
Minister of Disabled people swanning around in a flack jacket, helping to "hunt" down benefit cheats!
FlawBored Theatre Company
The Challenges of tech for disabled people in rural communities. digital divide
Disability street harassment a crime
Three disability classics in this months show. It’s Phil and Simon debating and exploring.
Firstly an independent American short film highlights how to ask for help as a disabled person and how best other people can offer it. Called ‘Act of God’, the film explores different strategies and responses in a witty and thoughtful way. It gets us talking and Simon gets moody whilst Phil stays calm and polite.
Language is next: Prof. Amanda Kirby, who is neurodivergent herself wonders how language changes and it’s impact. Her example, ‘awe’ is both good and bad when it becomes the words awkward, awful and awesome, which are three words often attached to neurodiversity.
Lastly, a survey of 3000 disabled people found 75% had never heard of the social model. This somehow doesn’t surprise us. Does it matter? That said, we wonder if something is lost by not knowing about it. Sophie Morgan gets mentioned about five times by Phil for some reason.
Links
Act of God article and film
Prof. Amanda Kirby’s blog Neurodiversity is awesome
Evenbreak survey showing 75% of disabled peeps haven’t heard of the social model.
Article by Liam O’Dell about the survey
Sophie Morgan on Instagram
Peter Torres Fremlin joins us this month. He’s a prolific writer and journalist, specifically the Disability Debrief which is a newsletter reporting on disability news from around the world and the people that are making change happen.
He has lived and worked in many countries, including Bangladesh and Egypt and worked for several large international organisations such as the International Labour Organisation and Humanity and Inclusion (formerly Handicappe International).
In a personal and professional conversation, Peter asks if we’ve focused too narrowly on the barrier removal, the societal-based definition of disability. He challenges this approach, suggesting it’s not ‘messy’ enough to encapsulate the diversity of human beings, being those with disabilities and long-term health conditions. He goes further, illustrating what independence means to different people, explaining that once he realised how helpful people were in the countries he lived in, he knew he would be ok.
Thoughtful, serious, erudite and quotable, Peter shares his (re)thinking and experiences so far. We hope you enjoy the show and check out the Disability Debrief which he writes.
Links
The Disability Debrief
Peter's own website Desability
Peter LinkedIn page
Peter’s Twitter handle
WHO report on inequalities in health for disabled people
disability and health, respond to the crises exposed by the covid pandemic
a landmark study on health inequity from the World Health Organization,
The Missing Billion
Dr Ruth Owen OBE started in the tech industry, then became CEO of Whizz-Kidz, a national children’s disability charity. Two years ago, Ruth accepted a demanding and, some consider, contentious role, becoming CEO of one of the big disability charities in the UK, Leonard Cheshire. Ruth is our guest this month.
As we spoke with Ruth, we moved away from her career and considerable achievements to find out more about the person behind the titles. What drives Ruth, what influence did her parents, her education, and the institutions she grew up in have on who she is today? As a disabled child, what are her memories, the challenges, and dreams?
Is there a connection to why she dresses immaculately and has a need to smell jet fuel?
In a fascinating conversation, we discover how much who she was then, determines who she is now. We explore how Ruth can achieve her ambitions to ensure Leonard Cheshire remains relevant and purposeful for those disabled people they engage with and those they don’t.
Links
Ruth’s Twitter handle @Ruth_owenOBE
Ruth Owen biography
Leonard Cheshire Annual accounts 2020/21
Whizz-Kidz
Welcome to the first show of 2023, where Phil and Simon are ready to serve up the year's hot topics! In this episode, we'll discuss everything from the highs and lows of 2022 to the exciting things on the horizon for 2023.
First up, we'll be talking about the joys of hitting the gym as a visibly disabled person. It's not always easy, but the gains are worth it (pun intended). We'll also discuss the excitement of welcoming a new grandchild into the world and pondering the meaning of "equal love."
We'll also be delving into the struggles of dealing with a decline in physical abilities. You know, like when picking up a cup of tea becomes a weightlifting competition and pulling up your trousers becomes a marathon. But we're all in this together and will discuss ways to confront these challenges.
And last but not least, Simon will be chatting about the thrill of being involved in a BAFTA-winning TV show (and six other awards!) in 2022.
We approach serious topics with thoughtfulness and humour, promoting positivity while acknowledging the need to confront reality and find the best way to navigate it.
Creating change in the world of disability takes many skills. One perhaps less recognised is finding the right word for the right moment. Our guest this month is adept at this and would give Gyles Brandreth a run for his money.
Kate Nash is the founder and chief executive of Purple Space, a professional development membership hub for disability employee resource groups.
Her recently published first book, Positively Purple, discusses the importance of this work. It also "shares" (another Kate word) some of her personal disability history; Kate readily admits it isn’t something she finds easy. Through her work and her book she encourages other people with disabilities to find their voice, tell their story and ultimately achieve what they want to and who they wish to be.
Whether she is being a networkologist (working with Employee Resource Groups aka staff networks) or utilising the obstinacity (obstinate and tenacity) that many of us have and often unfortunately need, Kate is a formidable presence in the world of disability advocacy.
Links
Kogan Page Positively Purple Kate Nash book
Amazon Positively Purple various formats
Purple Space
Kate Nash LinkedIn
Purple Light Up Twitter
Phil and Simon are ripping it up, pushing the conversation, and exploring the boundaries of where we are today when it comes to disability. There’s fun, seriousness, thoughtfulness, respectful disagreement, celebration and controversy
We ask why does the ‘life stops after becoming disabled’ idea remain so strong? Phil explores his concerns about Ellie Simmonds going on BBC’s Strictly Come Dancing, and Simon vehemently disagrees. We highlight the worrying crisis for disabled people in being able to recruit PAs and support workers. If that wasn’t enough, Phil has an idea for some merch.
Right at the end, we have a packed inbox of brilliant and interesting comments from you.
Links
Going blind and travel
Guardian article on the Canadian family travelling the world
Travel Eyes for blind travellers
Strictly Come Dancing
Strictly Come Dancing
John Whaite brilliant Instagram video about difference on Strictly
Ellie Simmonds Instagram
Nikita Kuzmin Linktr.ee (Ellie’s dance partner)
Crisis in care workers
Guardian article Staffing crisis in care homes
Personal tweet Baroness Jane Campbell on recruiting a PA
Video of House of Lords Care Crisis Q&A 7 Sept 2022
Professor David Turner is a social and cultural historian with expertise in disability, medicine, gender and the body. He is our guest this month.
David’s current research explores the history of disabled people’s political activism in Britain since the eighteenth century. In an accessible and illuminating conversation, he tells us of the earliest known recorded documentation of disability rights and political activism. This includes the book 'Biography of the Blind’, first published in 1821, written by the remarkable James Wilson.
We learn why what was said to the British Government by disabled people way back in 1832, still resonates today. With David’s expertise and insight, we learn how 200 years of disability history can inform us today and into the future.
Links
Home page including publications list
James Wilson’s Biography of the Blind, pub. 1821 on Google Books.
On Twitter @DrDavidMT
Disability History pod and video with Prof Turner
Disability History: Thinking Differently About the Past resource page
Blog about how Prof Turner helped put disability in the teaching curriculum with one teacher
Historic England History of Disability Year 1050 to present
Tom Shakespeare Collection: Disabled Lives
Our guest is Gordon McCullough, the Chief Executive Officer of the Research Institute for Disabled Consumers (RIDC). If you’ve not come across the RIDC, they are a well-established research organisation with a panel of more than 3500 disabled people. As Gordon has said, "No business would actively exclude a fifth of its potential customer base, yet many do by not being accessible to disabled people, and this is where the RIDC comes in".
Gordon explains how they carry out their qualitative and quantitative research through the fantastic panel they have created. Carrying out valuable research for organisations is part of their role; they also carry out research they have identified from the panel.
We talk with Gordon about the biggest issues for disabled people during Covid and why electric vehicles might leave disabled people behind. He also talks about being a non-disabled person in a user-led organisation - what did he have to learn, and what does it mean to the people RIDC work with?
Phil is the Chair of RIDC, so he leaves some of the questions to Simon this time. We suspect by the end of the show, you’ll want to join the panel and add your voice to bring about change, you can by clicking the link below.
Links
RIDC website
Join the panel Online or telephone 020 7427 2460 or email research@ridc.org.uk
Selected research projects
Twitter RIDC
Some people fear disability and comedy. Not so our guest this month. Steven Verdile created the satirical website The Squeaky Wheel to create and publish funny stories with disability as a theme.
Steven explains how the site came about, what inspired the name and how the growing team of writers wrote the material. An expanding and loyal readership means the site is thriving. It’s even been the answer to a US newspaper crossword clue.
Making it sustainable is a wish of Steven’s. Making sure they push the boundaries of comedy but don’t step over the line of appropriateness is a frequent consideration. Making it professional and paying people is in the plan.
Take a dive into some of the funniest headlines and then listen to the pod and find out what The Squeaky Wheel is all about.
Website https://the-squeaky-wheel.com
Instagram https://www.instagram.com/thesqkywheel/
Twitter @TheSqkyWheel
Facebook https://www.facebook.com/TheSqkyWheel
Steven https://www.stevenverdile.com
Private Eye https://www.private-eye.co.uk
The Onion https://www.theonion.com
BBC Access All https://www.bbc.co.uk/programmes/p02r6yqw
If disability and television are your thing, you will have noticed some significant improvements of late. On-screen, we know #RepresentationMatters but behind the camera is equally important.
Our guests this month are two of the people who are instrumental in changing the landscape of disability and television. Nichola Garde is the Project Manager of Elevate. This is the BBC’s mid-career-boosting scheme for behind screen talent who have a disability. Allan MacKillop is Disability Team Leader covering both creative and workforce strategy at the BBC. A massive brief with high expectations.
We asked Allan and Nichola why so much change now? What do they think are the best methods for the improvement of disability and television? We talk pan-industry as Channel 4, ITV, Netflix, and others push this forward. Indeed, Netflix has a genre of disability-related programmes now. We ask Allan and Nichola’s advice on getting in and getting ahead in the industry. Finally, we offer them a magic wand to see what else is on their wish list. Naturally, we ask how they got to where they are and what adjustments they need to be the best they can be.
Links
Twitter @NicholaGarde @AllanMacKill
BBC Elevate
BBC Extend
ITV Disability
Channel 4 Disability
Netflix and BBC
Netflix Disability shows
It’s a fantastic show this month - insight, depth, nostalgia, vulnerability, power and the future.
The BBC recently broadcast a docudrama telling the story of the disability rights campaigners of the early 1990s in the UK. Using the love story between two key protagonists, Then Barbara Met Allan is a landmark piece of television. Not only because of the story it told but the number of creative disabled people who made it. It allows Phil and Simon to take a joyful and triumphant walk and wheel down memory lane to talk about their memories of this time and the impact it had on the country as well as so many individuals.
Slips trips and falls are a common occurrence for some with a disability. Unfortunately, Phil recently took a tumble. When you’re campaigning for social justice, you’re seemingly invincible but in reality, we can all experience moments when things don’t go as planned. What can you do, what can you change and does the fall or the shame hurt the most?
We talk about what is happening to disabled people in Ukraine. We have a remarkable update from Sarah, one of our immunocompromised guests from the previous show and a lovely Listener's Corner on the impact it made. Geoff tells us all about Yellow Jackets and there’s a shout out for your help on a future show.
Links
Then Barbara Met Alan
Wikipedia
BBC iPlayer
Disabled people’s Direct Action Network
Disability Rights, a history as a wallchart
BBC article When disabled people took to the streets to change the law
Barbara Lisicki aka Wanda Barbara
Johnny Crescendo aka Alan Holdsworth
Disabled people in Ukraine
Sophie Morgan book
Yellow Jackets
Coronavirus restrictions are easing here in the UK and around the world. We are said to be on the road to freedom; masks are dropping, hand sanitiser solidifying, and we're willing to take a chance again.
For many, this is excellent news, but not for all. For those who are immunocompromised (500,000 people UK) or clinically extremely vulnerable (3.7m people UK), the road to freedom has many potholes. They have a greater risk of catching Covid, and they are more likely to go to a hospital, more likely to be admitted to ICU, and face an increased risk of dying. Life for this minority is still restricted. As the majority move on, is there a risk of people being left behind?
We reached out to some affected listeners and spoke with them about the impact and their current lives. Sarah Baxter, who works for a UK bank and Gareth Berliner, is an actor and comedian. Both are immunocompromised. They tell us about asking a fellow train passenger to put on their mask, of donating work clothes to charity in March 20202, realising future office visits will be few. There's even a fortuitous career change as the new workplace adheres to strict Covid protocols. As well as Sarah and Gareth, we hear from Christina Clegg in the UK and Denise Rei and Jen Risser in the USA. All five of our guests talk of the early days of the pandemic, when for a few months, we were unified when we all faced a significant health risk.
The stats might not lead the news bulletin, but Covid-19 is still here. What can society and individuals do to avoid a twin-track society? How do we consider the needs of the few whilst allowing the many to continue?
Links
Join Zoe Covid info, trackers and stats
Guardian Jan 2022 first article "More people will die fears."
Guardian Jan 2022 second article "Disabled people Plan B restrictions."
Colin Angus on Twitter Sheffield University | Health inequalities | COVID-19 | Data visualisation
Selected info
- Those with underlying health conditions are not also at death's door.
- One-third of the UK adult population have hypertension (high blood pressure)
- Just under a third are obese.
- Once you get past your mid-50s, chances are you have a long-term health condition. By the time you reach your 70s, you have to be extremely lucky not to.
ICNARC Statistics and research Intensive Care National Audit and Research Centre. Levels of dependency prior to admission to acute care (Dec 2021) report shows 89.5% lived without assistance, 10.4% had some assistance, 0.4% had total assistance.
Sarah Baxter on Twitter
Gareth Berliner on Twitter
We had a chat with regular guest Joanna Wootten and cultural critic Geoff Spink to ask them their disability or Deaf stand out moment from 2021 and what they’re excited about in 2022. We added our highlights in there too.
The stand out moments for us is very broad and includes Strictly Come Dancing, Abnormally Funny People comedy at the Royal Festival Hall, the next Lewis Hamilton racing in Bahrain, a William Boyd book, ’ Any Human Heart’ and the film Cyrano with Peter Dinklage. In addition, the UK Government’s Disability Strategy and the second reading of the British Sign Language Bill in the House of Commons make the list.
Let us know what are your favourite moments. Enjoy the show.
Links
Abnormally Funny People
Abnormally Funny People sing ‘Stand By Me’ Lockdown version 2021
Any Human Heart print
Any Human Heart audio
British Sign Language Bill
Cyrano film IMDB
Cyrano film website
National Disability Strategy
Rotax MAX Challenge Grand Finals 2021 Kart Racing in Bahrain Albert Friend 45:33 in
Strictly Come Dancing Rose and Giovanni YouTube
Succession season 4 Digitial Spy
Bristol recently advertised for a Commissioner for their Disability Equality Commission. You need skills and experience and be expected to be a spokesperson. Time commitment is up to seven working weeks a year. Salary, zero. How much do we value equalities work? What value do we give to different contributions? When should we get paid, and when is it voluntary? How do we value those who help achieve it?
There has been all-party support for some new play parks for disabled adults in Bristol again, coincidentally. So good news? Well, it might be, but why has this cropped up? A mum of a disabled adult said they were 'met with verbal abuse and complaints when using play areas in Bristol's parks. They want to create a safe, fun, accessible and life-changing disabled adult play park". Phil and Simon grapple with the conflict of why can't disabled adults play where everyone else does; why are those who are the abusers not being moved or educated? Is this a pragmatic and beneficial solution?
Geoff rocks up with his cultural pics: a book called Moving by Jenny Eclair and TV show Baron Noir, on Prime.
A bumper Listeners Corner with your brilliant emails and messages. We finish with a heartfelt Christmas message. See you next year and thank you for listening.
Links
Bristol Disability Equality Commission
Playing Parks in Bristol
Moving by Jenny Eclair book
Moving by Jenny Eclair audiobook
Baron Noir IMDB
Two topics feature in this months podcast. Gardners might use the term perennials to describe them. Others might say weeds that never quite go away. Two topics we discuss and we disagree on, but we have an enjoyable and explorative discussion getting there.
Assisted suicide, aka assisted dying, is back in the spotlight as Baroness Meacher’s Assisted Dying Bill passed through the House of Lords at the end of October. Whilst this won’t directly change the UK legislation (currently, assisted suicide is illegal), it shows the debate is very much alive. Phil is opposed to changing the law, and Simon asks him why.
Do positive action schemes, disability training, and targets work? In his MacTaggart lecture, scriptwriter Jack Thorne suggested that to get more disabled people on TV. It’s time for quotas. Mind you, it feels like a golden period for disability appearing on television. After years of encouragement, are TV execs commissioning and casting more? Have the schemes finally paid off? Or has the murder of George Floyd and that which followed rippled across the pond and changed everything? Simon thinks yes, Phil asks him why.
Geoff tells us his latest cultural recommendations, including the return of Succession and what he thinks of John le Carre’s final book, Silverview. There’s a great Listeners Corner to finish.
Links
Assisted Suicide
Baroness Meacher bill on Assisted Dying
Not Dead Yet UK
Baroness Jane Campbell article
Colin Low, Tom Shakespeare and Christie Arnsten article
Disability and TV
Jack Thorne MacTaggart Lecture Aug 2021
Royal Television Society panel discussion on disability and television
Cultural corner
Succession
Silverview - John le Carre
Here’s where to start reading John le Carre blog
In the UK one of the first pieces of disability rights legislation was the 1970 Chronically Sick and Disabled Persons Act. Over the next three decades, disability rights campaigners made a distinction between illness and impairment, for understandable reasons but perhaps with hindsight, this has had unintended consequences. Language is returning to including both, so disabled people and people with long term health conditions is a common phrase. So if you created a Venn diagram of disability and of illness, how big would the intersection be?
To explore this we invited three people who have fine minds and long term health conditions. We speak with UK based Catherine Hale, Founder and Director: Chronic Illness Inclusion, to US-based Katie Elizabeth who is editor and author and a director of Stigma Fighters and David Ager, a Location Analytics Specialist who comes with his personal take.
We had a fantastic, personal and insightful conversation. We highlight why some people with non-visible conditions feel like imposters, or they are not always believed. Why identifying as disabled when you’re long term ill is positive. Where traditional models of disability like the social and medical models help and hinder. There’s some compare and contrasts with US and UK viewpoints and we finish by asking our guests, what would help most in the future?
LINKS
Twitter accounts for guests and their connected organisations
Catherine Hale
Katie Elizabeth
David Ager
Links to further reading
Chronic Illness and Inclusion Project (CIIP) –
Mobilising a Collective Voice for Social Change
What are energy impairments?
Images from Rea, thank you, Rea. https://www.reastrawhill.com University of Leeds
Here's a link to Rea's blog https://www.reastrawhill.com/post/chronic-illness-and-disability-am-i-disabled
Delivering training on disability means you get some excellent questions on the subject. A colleague of ours was recently asked, ‘Is impotence a disability under the Equality Act?’ We try and work it out by exploring the impact and then ask, what sort of discrimination might arise to see a case?
After last month’s hugely popular show about the word Ableism we move to another relatively new term - microaggressions. Defined as ‘an indirect, subtle or unintentional form of discrimination, we ponder when to let it slide and when do you tackle it? We wonder what might be the impact on someone after a 1000 of these?
WeThe15 campaign launched recently. Their website states, ‘WeThe15 is sport’s biggest ever human rights movement to end discrimination…of the world’s 1.2 billion persons with disabilities who represent 15% of the global population.’ Phil has some doubts, what is different, what change will come about or is it another campaign that lights up the sky before fading? Or as Simon suggests, is this is what’s needed, constant wheel-reinvention to keep the agenda moving forward?
Geoff tells us about two of his current favourites - The White Lotus and Have You Heard George’s Podcast? We round off with a bumper Listeners Corner. Maybe we mention you? Take a listen via the link below.
Links
Erectile dysfunction (impotence) defined
Micro-agressions Wiki
There are many blogs that explore this subject well. Have a search and read. Here’s one from the BBC on language.
WeThe15
The White Lotus on Sky
The White Lotus IMDB
Have You Heard George’s Podcast? George the Poet
Have you noticed a change in how disability is discussed? For example, words like ‘ableism’ and ‘internalised ableism’ are perhaps not mainstream but more commonplace, especially on social media.
We were thrilled when Professor Fiona Kumari Campbell, Professor of Disability and Ableism Studies, University of Dundee, agreed to come on the show. In an authoritative and entertaining interview, Fiona explains the most dominant use of ‘ableism’ isn’t as intended. Fiona’s concerned it is being used as a sledgehammer, without explanation, and its hostile use creates them and us. Fiona reminds us social theories are explanatory narratives, making sense about the world and a watershed moment for some, but they are theories, the social model isn’t a fact. Fiona suggests being disabled can be a constant state of ambivalence with the negative reminders we frequently receive having a cumulative impact. Fiona encourages us to have dialogue, to listen and above all else, to read more.
It’s a treat to listen, think and absorb Fiona’s thinking, her concerns about what is happening, what’s been lost along with what we can do and what we need to think about in the future.
And some reading and watching recommendations for you, Geoff returns with his Cultural Corner. This month it’s Mare of Easttown and The Shipping News.
Biography
Professor Fiona Kumari Campbell, is Professor of Disability and Ableism Studies in the School of Education & Social Work, University of Dundee, Fiona is an interdisciplinary scholar-activist and not a traditional academic, being biracial, disabled, LGBT and from a religious minority background. Fiona has written extensively on issues related to disability – a philosophy & sociology of ableism, disability in Sri Lanka, law, biotechnology and is recognised as a world leader in scholarship around studies in ableism.
Further information and links
Papers and publications on Academia Educ
Contours of Ableism - Professor Fiona Kumari Campbell, Palgrave Macmillan, 2009
Internalised Ableism: The Tyranny Within from Contours of Ableism (also Internalised Oppression)
United Nations Human Rights video - What is Ableism?
People and topics Fiona makes reference to
Sayonara CP / Goodbye CP
Japanese film featuring people with Cerebral Palsy 1972
Theory as a Liberatory Practice “I saw in theory…a location for healing”
bell hooks, Glorian Jean Watkins
Articulating a sociology of desire exceeding the normative shadows
by James Overboe
"I refuse to be an accountant of atrocity." Randall Kennedy
General
BBC article on micro-agressions and ableist language
NCCJ Handy primer with disability essentials
Thank you to <
A full show, we have several current topics and two brilliant guests. Author Victoria Scott has written a book that is, influenced by her relationship with her sister (who is disabled) and the family dynamics when deciding if medical intervention is the right path. Geoff Adams-Spink tells us about Netflix smash, Lupin plus a new Radio 4 show, The Confessional where celebrities admit to behaviour they are not always proud of.
And of course, you have Phil and Simon rattling through topics that have got them thinking. Simon cites disabled lawyer, Gregory Mansfield, whose insightful tweets show disability and ability happily co-exist and blasts those who get stuck at the ‘dis’ part. Phil wonders if Ambassadors actually have power and influence. We also discuss the seemingly more easy question of compulsory vaccinations for people working in care or support roles.
Links to everything are below. We hope you enjoy the show.
Gregory Mansfield on Twitter
FT Vaccine compulsory for some jobs Paywall
BBC New disability Ambassador
Netflix Lupin trailer on YouTube
BBC Radio 4 The Confessional
Victoria Scott on Twitter
Patience by Victoria Scott Bookstore
Patience by Victoria Scott Goodreads
In her recent Guardian article, Dr Frances Ryan raised concerns that ‘Remote working has been life-changing for disabled people, don’t take it away now‘ As we come out of lockdown, we know that some companies are expecting employees to be back in the office 9 to 5, seven days a week. Ryan also flags up concerns regarding cultural events. Is there a new risk that organisers might say disabled people can watch it online rather than making the event or venue accessible?
When two of Simon’s neighbours react differently to an on the street altercation he has, what should they do? What’s the difference between supporting versus defending? Can you tell when a disabled person is struggling but ok, compared to floundering and not ok?
Cultural Corner has us singing and getting the lyrics wrong after Geoff tells us about BBC’s Soul Music. We’re laughing when we hear of Jenny Eclair’s latest radio show, Little Lifetimes.
Links
Remote Working by Dr Frances Ryan
Cultural Corner
Little Lifetimes by Jenny Eclair On Audible and On BBC Sounds
BBC Soul Music
Song Exploder
Africa by Toto
One person, many facets: disability, ethnicity, mental health, being a woman and youth.
On this month's show, we are delighted to welcome Doaa Shayea. In her 22 years, she has packed in an extraordinary amount.
Doaa talks frankly about her mental health challenges and what she's learned about herself and the world she lives in. Energetic, resilient and determined, she faces the future with optimism and confidence. She also believes as disabled people we mature much more quickly that others as we become aware of others around us ands their reactions.
Born in Yemen with spina bifida. She and her family settled in the UK when she was aged 6. Attending a special school in the UK, Doaa quickly learned how to survive
At the age of 11, she was spotted as a potential wheelchair track star (Simon is so jealous) and still trains twice a day, every day. Doaa set up her beauty business in 2019 and has added disability advocate to her working portfolio.
As a young woman of colour with a disability, as you will hear, she has faced all sorts of difficulties. She missed out on the qualifying time for the Rio Paralympics by half a second.
It’s a compelling story, from someone who appears to have so much on her shoulders whilst maintaining her self-belief. Her motto: "In order to be the best you've got to fail hundreds of times and be strong enough to keep getting up."
BBC article on Dooa
Dooa Shayea Socials
YouTube
If you use the word ‘disabled’ with something you’re promoting, do people switch off? If you create a product to assist a disabled person but ignore this, are you authentic? Are products created for disabled people only used by disabled people…except the telephone, electric can openers, electric windows, pre-cut fruit, voice dictation, automatic doors…but other than these…?
Does the word ‘disability’ point to a history, to culture, to shared experience?
Is using the word ‘disabled’ appropriate when talking about someone who has a long term or chronic health condition? Where do ‘Energy Limiting Impairments’ fit? Does the social model struggle to get going when an individual struggles to get going?
All these questions provide a rich source for Phil and Simon to discuss and debate. The questions come from new research into energy limiting impairments and Nike promoting their new Go Fly Ease trainer. We have a contribution from Lawrence Carter-Long, Director of Communications at DREDF (In California) and #SayTheWord evangelist. We wrap with your letters and emails.
We don’t profess to have all the answers, and we know there are gaps. Let us know your thoughts mintyandfriend@gmail.com
Links
Slate Article - Nike’s avoidance of the word Disabled
NPR Article - Disabled - Say The Word
Twitter feed - Peeled Orange Phenomenon
Nike Fly Ease Shoes
Research reports recently published about, Energy Limiting impairments
People we mention
Catherine Hale Twitter
Chronic Illness Inclusion Twitter
Katie Elizabeth Twitter
Marie Pye Twitter
Kay Allen OBE Twitter
Lawrence Carter Long Twitter
Ross Hovey YouTube
Ross Hovey Instagram
Russell Silver Syndrome Podcast
Dope Black Disabled
Finally, Deaf people have to endure jury duty… ahem, can fulfil their civic duty like everyone else. After many years of campaigning Deaf people who use sign language, will be able to serve on juries. Common law rules ban the presence of a “stranger” in the jury deliberation room, but this will now be changed, allowing a BSL interpreter in.
Wow, last month’s show was popular! We heard from so many of you so we bumped Listeners Corner to the middle of the show so you might get to hear it for a change.
We start the show with travel. In the UK, a disabled woman who was left stranded on trains and station platforms more than 30 times by a rail company, has been awarded compensation of £17,000. Meanwhile in the USA, Uber has been ordered to pay $1.1m (£795,000) to a blind woman who was refused rides on 14 occasions. We discuss both the tiresome lack of inclusion of disabled people on transport as well as the disparity between compensation awards in the UK and the USA.
Can Artificial intelligence think, and feel, and one day replace humans? What is the journey a bag of drugs takes from source to user? Both questions are asked in our Cultural Corner with Geoff.
Links
Uber payout, class action, blind people.
Train payment for bad service
Deaf Jurors allowed
Electric Vehicles Charging Points Disability Survey
Cultural corner
Klara & The Sun by Kazuo Ishiguro
Hardcover
Audio
ZeroZeroZero
Trailer
IMDB Listing
Amazon Prime / Sky Atlantic / Now TV
Paperback book
Audio book
This month we explore outer space or more specifically the opportunity that some disabled people might get to become an astronaut. Clearly, the European Space Agency see disability as a positive in their quest for new talent. However, when it comes to vaccines and ‘do not resuscitate’ notices and learning disabled people, there’s evidence that they are not a priority or perhaps worse.
Would you date a physically disabled person? It seems The Disability Unit want to know why. But we can’t work out why they need to know. As Phil and Simon are both physically impaired people, we explore our thoughts when it came to dating.
However, we start with Simon’s exciting shopping spree in Walthamstow and how a Pound Shop, Aldi and Asda can be heaven. Geoff Adam-Spinks gives us two cultural recommendations - a book and TV series. Wrapping up Listeners Corners has Mik Scarlett drop in with his thoughts on the ‘affirmative model' of disability.
Links
Astronaut with a disability
Frances and Jo Whiley
Guardian changed headline
UK disability questionnaire
Disability Unit
Dating a Disabled person is great
How to Date When you have a disability
BBC Ouch speak with Lucy Webster,who tried to sign up with the dating agency
Buzz Aldrin on depression
Mik Scarlett
Cultural corner recommends No One Is Talking About This – Patricia Lockwood.
Audio
TV show Rake
Guardian review of Rake 2016 (spoilers)
A considered show this month with Phil and Simon. We review the deeply unsettling BBC documentary ‘Targeted - the truth about disability hate crime’. You can watch it on iPlayer. On YouTube, we've posted a video of us discussing the documentary. (links to both below)
Simon recently attended some equality training called Beyond Bias, delivered by Guilaine Kinouani from Race Reflections. Two elements struck him as relevant to disability equality, so we try and see if they apply. First was the concept of intergenerational trauma, and the second, a quote from Audre Lorde (pictured below) ‘There’s no such thing as a single-issue struggle because we don’t live single-issue lives".
Listeners Corner is a bumper one this month, and we finish with Cultural Corner, a new addition to the Show, where we recommend a couple of items you might be interested in. It could be another podcast, a book, a tv show, film, blog or article. Geoff Adams-Spink provides the suggestions.
Links
Targeted - the truth about disability hate crime BBC iPlayer
The Way We Roll YouTube channel
Beyond Bias training from Race Reflections
Intergenerational trauma
Audre Lorde No such thing as a single-issue struggle because we don't live single-issue lives
Guilane Kinouani on Twitter
Adam Buxton podcast with Stewart Lee
Fall - The Mystery of Robert Maxwell by John Preston Hardback link
Fall - The Mystery of Robert Maxwell by John Preston Audible audiobook link
Our thanks to Geoff Adams-Spink - Twitter @GAdams_Spink
You can find us in Apple Podcasts or Spotify
If you have any comments, feedback or suggestions, please email us at mintyandfriend@gmail.com
We hope you enjoy it.
Two jabs Phil has had both vaccinations to protect him from Covid-19. How has it changed him? Is he wild and free at last or staying in with the windows closed?
Never one to miss a debate about one of the models of disability, Simon asks Phil what does he think of the ‘affirmative model’. Is this the answer to the charity/tragedy model of disability? If it’s valid, how can it become useful? Stick with this one as it gets a little silly at the end. You can also watch us discuss this, with extra material edited from the podcast, via our YouTube channel, link below.
Phil is parroting on about those pesky parakeets again but feels vindicated now BBC Radio 4 have started talking about them too. There’s also another look at what life might be like post-pandemic and what will we relish returning to our lives.
Links
Affirmative Model - Disability Arts Colin Hambrook interviews Colin Cameron 2009
Disability and Society - Towards an Affirmation Model of Disability -John Swain & Sally French 2010
YouTube video of Phil and Simon discussing the Affirmative model of disability.
Simon’s ‘should have gone viral dwarf Giraffe’ tweet
Minister Liz Truss hinting at the ‘only disability is a bad attitude’ trope.
BBC ‘Broadcasting House’ show on parakeets 17.1.2021
With skill, talent, and application Nikki Fox has become a regular face on British television. She might be presenting a piece on the nightly news bulletins as BBC News’ Disability Correspondent. Or she’s reporting on a consumer issue on BBC's Watchdog and increasingly, she randomly appears on The One Show. Last year she was named as the most powerful disabled person in the UK. How did she do this?
Unsurprisingly she’s had to work very hard to get to the place she’s is now. Be it early starts at 2 AM for Cambridge Radio, wandering down Oxford St interviewing the public for a fashion show, and learning how not to be overly self-deprecating.
Nikki says she’s always had a relaxed attitude to being disabled, it’s just the way it is. However, she doesn’t have a full diagnosis, a name for her type of condition and she is interested in the impact this can have on people.
We managed to spend an hour with Nikki talking about her childhood, her sister, University, and the early days of her career. Nikki is a fantastic guest. Open, honest, a natural talker not surprisingly, and good company. We hope you enjoy listening to her as much as we did.
Links
Nikki Fox BBC Disability Correspondent
Nikki Fox Wikipedia page
The Disability Discrimination Act and Me - BBC Ouch podcast
Welcome to our final show of 2020. Never missing a controversy, we start the show asking if Covid 19 and the move to home working, gave disabled employees an unfair advantage if employers prioritise and pay for their adjustments and not those of non-disabled colleagues.
Ex-BBC TV maker, Emma West wrote an article asking “Where are we now in terms of representation of disability in popular culture?” We discuss her article and the topic, wondering if this year it has got better. We explore whether quoting the 13+m disabled people in the UK is a useful tool here?
We round off by considering three positives from this year: something we enjoyed, something we don’t miss, something we’ve done and how we have felt. Yep, we do feelings on The Way We Roll.
Links
Getting adjustments at home isn’t that easy
Representation of disability in popular culture in 2020 – where are we now?
Emma West
The Disability Paradox BBC4 Television
Moodflow app
My Fitness Pal for calorie counting
Did you know… we have a YouTube channel? There’s clips edited from the podcast but worthy of keeping. Plus funny moments with guests. And a review of Netflix Crip Camp. Do take a look.
The Way We Roll YouTube Channel
Have Zoom calls meant we’ve finally stopped using the landline phone?
Crip Camp review with Phil & Simon
One last thing, Simon and the comedians from Abnormally Funny People will be performing on Sunday 17th January 2021 Zoom so Covid safe and to everywhere you are. It's an amazing line up and will be a fun, celebratory show. Tickets £10 & £5. Click to Southbank Centre to find out more.
TV presenter, Alex Brooker started his career as a sports journalist at the Liverpool Echo. In 2012 he became part of a brand new comedy show, The Last Leg on Channel 4, now in its 20th series.
He recently made a documentary for the BBC entitled ‘Disability & Me’ which we reviewed, Alex heard that show and now he’s our guest.
We cover disability and identity, what the phrase ‘disability doesn’t define me’ might actually mean. About his family; his mum’s influence, his father’s suggestion that he use his brain not brawn, and being the eldest of many brothers. Alex tells us he pushes himself to exceed those low expectations some people have about disability. He talks about comedy and disability, that he might do more stand up and how some jokes are a risk.
Alex believes the disability aspect of his life is a work in progress. He went from not really talking about it to being named the No.1 most powerful disabled person in the UK in 2019.
He discusses society’s attitude towards disability and the difficulty of being a representative face, whilst also being an individual. He talks naturally, openly and our conversation is peppered with humour and insightful reflection.
Links:
Alex Brooker Twitter
The Last Leg
Disability & Me documentary
The Way We Roll show when we reviewed Alex’s documentary ‘Disability & Me’
Wikipedia Alex Brooker
A tech journalist, by day, a musician by night Steve O'Hear is a quietly confident disabled person, all the time. Earlier this year, Steve released an album entitled, ‘Between Floors’. After a few listens, Simon and Phil decided that they needed to have a chat with the man in the hat.
Steve has a large presence in the niche field of tech finance journalism. He's been working from home (effectively shielding) way before it became commonplace. It means he's adept at networking and good at developing leads from afar, but he does wonder if he's missed opportunities by not actually being in the room.
What is striking is Steve's approach to disability, how he presents, and thinks, about himself. He cites a conundrum - those who get entirely involved in disability rights, well, that's a loss of their skills and talents in other areas, right? However, if you don't get involved, you don't step up, are you really making a difference? Is what you’re doing instead, truly worthwhile? Steve, Simon and Phil explore the pros and cons of being a ‘normal' and a ‘professional’ disabled person.
Steve explains music is his best friend. He was in a band at University and played the clubs. Years later, he got the band back together and they’ve made the album they didn't have the time, money or equipment to make whilst at University. Steve talks us through the process, his influences and the stories behind the songs from the reformed band, now called Otis Max Load and the Thirteen People.
Twitter Tech Crunch
Twitter Personal
Steve’s Website
Spotify In Between Floors
Apple Music In Between Floors
YouTube Trailer
It’s the 1 to 1 show where Phil and Simon chat over the latest topics.
If you’d like to hear two liberally minded, disabled men get themselves in an academic mess, this is the show for you.
Simon mentions an academic article from the New Discourses website, that asks if radical disability studies support ‘transableism’. This is when someone who is not disabled feels that they are. They may seek surgery to get the impairment they feel they (should) have. This raises complex questions on the ethics of medicine, of identity and disability identity, of trans subjects more broadly. It gets tricky asking if impairment or disability is desirable and where does it fit if disability is a social construct?
If you’re still listening, Phil steers us to safer activist ground by asking is the telethon making a comeback? It follows the return of the Muscular Dystrophy Association Telethon in the US, that used to be Jerry Lewis’ project and now Kevin Hart is the lead.
Finally, we ask why some people can help us and we don’t mind, even welcome it? They help us with things that we can probably do perfectly well. Where’s our pride and independence? Do some have an aura? Is it based on our relationship with them that means it’s welcome and not intrusive?
A thank you to Susan Scott-Parker for sending us articles that helped with the topics of this show.
Links:-
New Discourses Disability Studies
Need to register but free Telethon returns
You can find us in Apple Podcasts or Spotify The Show is also available from BuzzSprout
If you have any comments, feedback or suggestions, please email us at mintyandfriend@gmail.com
We hope you enjoy it.
No messing, this month our show dives headfirst into seeing whether Simon’s stresses have lifted. As a result, we drift into how Phil is and why he hasn’t been out for a while. As if that weren’t enough, Simon expresses his very biased concerns about a drug under trial called Vosoritide. Why? In essence, it will make some people with dwarfism taller. Incidentally, in case you didn't know October was Dwarfism awareness month.
Phil raises questions about the new pop up cycle lanes and pedestrian-only areas. In many respects, this is a positive but have differently disabled people’s needs been taken into consideration? What might be the impact, indeed, does anyone carry out the legal duty of Impact Assessments? Simon decides Whitstable high street could be remodelled, he is, after all, an out of towner who visited for a couple of days
Language - Is BAME (Black, Asian and minority Ethnic people) done? What’s the new phrasing? Is it best practice to use the phrase ‘Best Practice’? When was it last updated? Do the criteria need updating every few years so it becomes aspirational and not a reflection of what already happens today?
There are your emails in Listeners Corner. You can be in this section next time, just email us at mintyandfriend@gmail.com
Links: -
Guardian article on Vosoritide
Little People UK and Royal College of Midwives
Wikipedia on Best Practice
UK Music Industry ‘Drop BAME’
Civil Service blog ‘Don’t call me BAME’
Varsity Opinion ‘BAME is outdated and doesn’t represent experiences’
You can find us in Apple Podcasts or Spotify The Show is also available from BuzzSprout
If you have any comments, feedback or suggestions, please email us at mintyandfriend@gmail.com
We hope you enjoy it.
Being thrust into the limelight aged thirteen could mess with your head a little. Then staying at the top of your game for more than ten years, that’s a lot of pressure. Being seen as a figurehead for the Paralympic movement, a role model for youth, for young women, for people with dwarfism and with disabilities, the weight is immense. Somehow Ellie Simmonds remains the most likeable and unaffected person you would be lucky to meet.
There have been bumps along the way, periods when she took some time out from swimming. However, the desire to compete and succeed remains strong. In a personal, thoughtful and fun conversation Phil and Simon talk about Ellie’s career, her thoughts on mental health, about having dwarfism. the support she has and her involvement with the Dwarf Sports Association. We also discuss the Tokyo Paralympics in 2021 and what life after she stops competitively swimming might look like.
Simon gets a little overwhelmed and frankly sometimes silly, Boccia and his medals get a mention!. Luckily Phil is on hand to steer us back to calmer waters.
Links
British Swimming profile of Ellie
Paralympics London 2012 Ellie winning Gold Women’s 400m freestyle S6
Dwarf Sports Association UK
Ellie’s cookery books
This month the one to one show has depth, sadness, reflection and frivolity.
The World Health Organisation has eradicated polio in Africa. Phil got polio as a toddler. Simon asks him how does he feel about there being no more polio people? Phil talks about the impact, good and bad that it has had on the direction his life has taken.
Phil has had trouble in his own backyard: parakeets, rabbits and herons are playing havoc with his Hertfordshire estate and fish pond. Simon in his 4th floor London flat without outside space does his best to empathise with Phil’s struggles.
Simon posits a theory - if you’re feeling overwhelmed, stressed or anxious, hang on, it will pass and it will get better. The enormous debilitating issue right now needs time and it will be gone. Does that work?
We start the show with a tribute to our dear friend and colleague Dr James Partridge OBE who died recently. We also have your emails and messages.
BBC Africa free of polio
Guardian James Partridge obituary
Dining with a Difference
Face Equality International
The Way We Roll show with guest, James Partridge
Geoff Adams-Spink is a Thalidomide survivor, one of the children born in the late 1950s early 60s, with physical and sensory differences after their mother unwittingly took a drug during pregnancy that caused the impairments.
Speaking to your mum about why this happened can’t be easy, but Geoff did have that conversation. His parents had great expectations of him, his mother had a mantra to support him but make sure he developed resilience. Learning how to be independent was a fiercely protected element for much of his professional life and then one day he realised he could be even more effective with appropriate help.
It’s his work and life that makes him particularly interesting. After university and a Journalism course, he went to the BBC as a producer and correspondent and stayed for more than twenty years. Different roles took Geoff Adams-Spink to different countries exposing him to different cultures and sadly, in Rwanda, atrocities.
Geoff has a love of languages, particularly the romantic languages and recently studied Latin. He shares his passion for technology, both the regular kind and the assistive kit that makes his life easier.
He is the current Chair of the Board of Trustees for The Thalidomide Society, a Trustee with the Research Institue for Disabled Consumers and he helped us with our weekly news round-up during our COVID 19 Lockdown shows this Spring.
Links:
Geoff’’s website
Geoff on Twitter
Thalidomide history
Thalidomide society
Just Mowing app store
Just Mowing play store
You can find us in Apple Podcasts or Spotify The Show is also available from BuzzSprout
If you have any comments, feedback or suggestions, please email us at mintyandfriend@gmail.com
We hope you enjoy it.
It’s the format you tell us you love. When Phil and Simon shoot the breeze and take potshots at one another with the occasional wisecrack. This month, disability ninjas, changing places, Zoom fatigue and social care: crisis and funding.
Changing Places toilets are the larger loos in public places for those who might need more assistance, a hoist or changing station. After a consultation, the regulations have changed and we shall see more and see them more quickly.
Phil has been reading how much Zoom (our word for all online / video) calls can exhaust us. Six months ago we stopped after three meetings with different clients in one day and we had to pause as we travelled between sites. Now, six meetings a day, short breaks. We discuss the pros and cons of virtual working, and there are benefits. Phil reminds us we should book appointments with ourselves to help.
Simon’s posits a theory - are some people disability ninjas? You are chatting with them and then, from nowhere, they make your disability the focus! Is it limited to religious evangelists and OT’s? Does it vary on your condition?
The UK has a social care system that by general agreement isn’t working. So what’s the solution? Phil reminds us when it was within the NHS and the failings, both in practical terms and how we viewed disability as a result.
Links
BBC Changing places loos
Changing Places Org website
The outcome of Govt consultation on Changing Places toilets
BBC Zoom fatigue
Forbes Zoom fatigue
Article from 2017, explaining Social Care and the National Health Service
NHS social care and support guide
Neil Crowther blog - Neil writes extensively on NHS and Social Care
Ninja images from Karstenakawheels
From Jazz Trumpet to Inclusive Design - John Corcoran shares his journey on The Way We Roll.
John Corcoran is a man of many parts whos life and experiences have included being in a pop band, playing jazz trumpet and working as a jazz club impresario. (He once booked Ronnie Scott and Maya Angelou).
He has over thirty years of experience and expertise in design, technology, brand, communication, marketing and business management. He has a passion for people and an obsession for simplifying complexity.
During our conversation, John explains how he went about redesigning and repositioning the Phil & Simon Show. (Morecombe and Wise and Cannon and Ball get a mention).
He is passionate about social inclusion and discusses the importance of designing for everyone. The needs of older and disabled people are often overlooked by many; John examines why this is a mistake given the needs and commercial opportunities offered by these groups of consumers.
John is a real enthusiast, an expert in his field, warm, funny and entertaining, take a listen.
You can read more about him and his work at basil.org.uk
“…swimming pools were shut. Cinemas, too, and bars and bowling alleys. Church services were suspended. Cities doused their streets with DDT insecticide…they had to be seen to be doing something. Nothing seemed to work. As the summer wore on, the numbers of polio cases grew”
Did you think we were talking about Covid-19? Phil talks of the ‘last man who used the Iron Lung’, an early medical method to keep people who got polio alive. The Guardian ran an article on Paul Alexander and his life.
Cancel Culture, is it real? Is it necessary? Do you think twice before you send a Tweet? Do you know the latest terminology for different identity groups? After well known people wrote an open letter in Harpers Magazine, Phil and Simon try and make their own sense of it. Concentrate as Simon has so many thoughts, they sometimes get muddled.
What’s most important for disabled people to develop as a group? Is it pride or is it community? We reflect on a story about Stacey Park Milbern, a US disability rights activist who recently died. She said we need the support of community before we can take pride.
Finally, Phil and Simon review the recent television documentary with Alex Brooker from The Last Leg. He explores how he feels about his impairment. Phil and Simon discuss the programme, Alex's relationship with his condition and specifically what do people mean when they say they don't want their disability to define them?
Links
Alex Brooker: Disability and Me BBC
BBC iPlayer - expires early August 2020
Harpers Magazine Open Letter on Justice and Open Debate
Stacey Park New York Times Paywall
Stacey Park Legacy obituary Free
Joseph Stramondo on Twitter
The Last Iron Lung - The Guardian, Free but can donate
Now in his mid-30s, Martyn Sibley suggests he prefers slippers and hot chocolate to hot air ballooning. However, he admits there are still a few adventures he would like to undertake. Martyn says he’s ‘a regular guy who happens to have a disability called 'Spinal Muscular Atrophy’ (SMA).
He is driven by his mission. When he wakes up, he knows he’s going to be working on one of his several projects and businesses. His degree in economics, his Masters in Marketing and his love of entrepreneurship combined with his wish to help create a more inclusive world drives him.
We speak with Martyn about growing up and his travel exploits. Soon we move on to his projects such as Disability Horizons and the new Purple Goat agency. This is a vehicle to help organisations market to consumers as well as enable disabled people to earn a living.
Martyn takes Phil and Simon deep into the world of social media and marketing and we just about keep up. We also ask Martyn what’s next for him and what are his hopes for wider society.
http://martynsibley.com
http://purplegoatagency.com
https://disabilityhorizons.com
Baroness Tanni Grey-Thompson is a national figure, a person who has moved from a highly successful athletics career to being a prominent political figure in Westminster, as if this was always the plan. How did she manage that?
Born in Cardiff, she picked up the ‘Tanni’ name from her sister’s mispronunciation. She also picked up a strong work ethic from her parents, especially her dad. This meant she would be out training on Christmas Day or now, asks her team of helpers to brief her as thoroughly as is humanly possible so she can win her arguments.
Professionally how do we see her now, and how does she see herself? Is it about her genre-defining career on the track, or wearing the robes of the establishment, or is she now the ‘woman who Tweets’ about rail journeys?
We got to spend time with Tanni over a Zoom call to ask her this and lots of other questions including, does she still speak to Alan Shearer after that moment? Who has helped her the most? What exactly is ‘Snog Marry or Kill’? The biggest issue she’s dealing with related to disability right now? Do Paralympians get short thrift compared to Olympians? Are disabled women included in new current women’s political movements? What’s the significance of her necklace when she’s in the House of Lords?
Links:-
Twitter: @Tanni_GT
Website: www.tanni.co.uk
Phil & Simon pressed pause on life and pressed record on Zoom audio to record a special podcast. We have stopped the weekly podcasts and felt we needed a wrap up show inviting back some of our favourite guests. Baroness Jane Campbell, Joanna Wootten and Geoff Adams-Spinks kindly accepted and answer our three questions. What's been hardest during Covid 19 so far?What have you learnt?What will you keep doing when things return to normal-ish? Without spoiling things, there were some predictable replies like pacing our life better, keep on using the calming hacks and enjoying banana bread. There were a few surprises too. Transcript (https://www.dropbox.com/s/onx2bxdua0f3d3f/Transcript%20P&S%20Show%20June%202020%20What%20have%20we%20learnt%20during%20Covid%2019?%20.pdf?dl=0)It’s Literally Just Mowing (https://apps.apple.com/gb/app/its-literally-just-mowing/id1458309993)Where’s the Interpreter Campaign (http://cfd.org.uk/where-is-the-interpreter-campaign/)Banana Bread recipe (https://www.bbc.co.uk/food/recipes/bananabread_85720)You might be interested, after recording this podcast, Phil & Simon asked themselves the same question and filmed it. It’s on our YouTube Channel. Subtitles / CC are automated but corrected, do update if you see errors.Simon & Phil reflect (https://www.youtube.com/watch?v=pMPebr-Ssh4&t=26s) about the time so far, under Covid 19
You’re out with a friend or colleague and because they look different from many, they are receiving some stares which you notice. What should you do? If you’re out with James Partridge, ask him, as it’s highly likely that he’s noticed way before you and he’s already ‘dealing with it’. James is a distinguished person. In his life, his family, his career and a few other ways too. In 1990 his first book, 'Changing Faces: the Challenge of Facial Disfigurement' was published by Penguin. It talked about his experiences after he sustained 40% burns to his face, upper body, arms, and hands in a car accident at the age of 18 in 1970. Soon after the book he founded the charity Changing Faces in 1992 and more recently has gone worldwide setting up the organisation Face Equality International.In the early 2000s James, along with Phil and Simon and Stephen Lloyd, worked together on Dining with a Difference. These were successful and impactful choreographed dinners for the boardrooms of UK organisations. We take a look at some of them. James has written a second book which he describes and more personal this time. Face It: Facial Disfigurement and My Fight For Face Equality, Pebble Press is released out now. James' website (https://jamespartridge.wordpress.com)James on Twitter @JRJPartridge
Why would anyone voluntarily say they have a disability, impairment or long term health condition? Might a reason be when there’s a global pandemic and you feel you’re susceptible? Or bluntly, if you need your supermarket shopping delivered?Trainer, consultant and former lawyer Joanna Wootten asks if more older people are coming out of the ‘disability closet’ acknowledging they have a condition. When the Basic needs in Maslow’s Hierarchy of Needs (https://www.simplypsychology.org/maslow.html) like food, warmth, a roof become important, this changes things. If you’re a medical professional who has until now had an underlying (but irrelevant) condition, what’s it like to now tell your colleagues? Looking to the future, what happens when the pandemic passes though? Will the same people slip back in to the closet and close the door? Might they have to if things turn dark and society views them as a burden or restriction? More brightly, might we now all find community with others and reject stereotyping? Could older people and disabled people unite and get society to change? Can the stigma of using a walking stick, a hearing aid, a mobility scooter or alarm pendant finally be overcome?In this one-off special, Joanna speaks with Phil and Simon about these issues. Phil and Simon then continue to mull over the question, recognising the societal and self-imposed barriers they had to overcome to try and reach a better acceptance of themselves. This second part is also a YouTube video on our channel. Transcript (https://www.dropbox.com/s/zf1fprcnxq7wnqa/Transcript%20Phil%20%26%20Simon%20Show%20Special-%20What%E2%80%99s%20in%20it%20for%20me%3F.pdf?dl=0)LinksVideo of Phil and Simon (https://www.youtube.com/watch?v=iQD4xYl3W30&t=105s) discuss acknowledging their impairment, and saying they are disabled. Joanna Wootten https://www.joannawootten.co.uk @JoannaSolutions
Jess Thom is a performer, a campaigner and, a thinker. She constantly strives to remove barriers for everyone, specifically in her work and performance but introducing ‘relaxed performances’ where people can come to a show, make a noise, eat something, wriggle about and just be themselves. Her lockdown, a well run ‘spaceship’ catering to her needs and getting the right support and giving other help too. She boldly ventures to new worlds where barriers are removed for all. And her innate creative expressions via her Tourette’s are just a lovely part of our conversation. Carrie-Ann Lightley is a wheelchair using access consultant with AccessAble and a travel blogger. She’s been cocooned near the Lake District, although is a little concerned walkers will flood her local area soon. Writing blogs about getting around the UK has been difficult but she’s found her ways of getting through lockdown, including listening to podcasts, which she didn’t know about until Phil introduced her to our show. She’s listened to all of them and seems none the worse for it.Geoff brings us eclectic news stories - are supermarkets leaving disabled shoppers behind despite the claims? Why isn’t anyone listening to the United Nations? Have you wondered why the UK government daily briefing aren’t sign language interpreted? You’re not alone. Need a quick hit of happiness? We have a list of 25 ways to lift your mood. Supermarket tips (https://www.moneysavingexpert.com/team-blog/2020/04/how-to-access-groceries-and-online-shopping-if-you-re-vulnerable/)BSL legal challenge (https://www.disabilitynewsservice.com/coronavirus-bsl-users-launch-mass-legal-action-over-government-discrimination/)UN story on Covid19 and disabled people (http://bit.ly/35BRBug)25 ways to be happy (https://www.happier.com/blog/25-ways-to-feel-happier-in-the-next-5-minutes/)Carrie-Anns’ blog (https://www.carrieannlightley.com/) AccessAble (https://www.AccessAble.co.uk/) websiteCarrie-Ann’s Favourite podcasts- Fearne Cotton’s Happy Place- Life Downloaded - Sam Renke and Dan Edge- BBC Ouch TourettesHero (https://www.touretteshero.com/) website ‘No I’ documentary (https://www.bbc.co.uk/iplayer/episode/b0bcmh7z/performance-live-touretteshero-me-my-mouth-and-i) and performance on BBC iPlayer Twitter @touretteshero
The comedy path for stand ups who have a disability has gotten easier in the last few years. That’s what Rosie Jones thinks. We think you also need a bundle of talent, skill and confidence and that’s what she has. She tells us about life back with her family, what she’s eating and what exercise she’s doing as well as her writing in her conference centre aka conservatory.
Some say becoming a comedian is a calling, something you can’t resist. Being a gardener is clearly John Wallace’s calling. He oozes excitement and knowledge, well he is a Horticultural Lecturer and a Landscape Gardener. He answers our listeners questions, gives some ideas of what plants to look for now. He has some ideas for how you can enjoy green fingers if you don’t have a garden or are on a limited budget.
Since we started the news around Covid 19 and disability has been such a mixed bag. Geoff this week tells us of a form disabled people can fill in to give a hospital notice about their wishes. It’s both great and terrifying. There’s news from the US about an accessible format legal case which the UK government need to listen to, if their new track and trace app isn’t accessible to all.
Track & Trace
Landmark agreement on accessible online materials from US educational establishments
GMCDP Covid form
Rosie Jones Twitter @josierones
Rosie's website
John Wallace - get in contact with us if you want to contact John.
Netflix has a new documentary called 'Crip Camp' about the birth of the disability rights movement in the USA. Our guest, Judy Heumann, is one of the main protagonists. Judy has spent her adult life developing human rights legislation and policies benefiting children and adults with disabilities. She’s worked at the World Bank (https://en.wikipedia.org/wiki/World_Bank) and the State Department (https://en.wikipedia.org/wiki/State_Department) , and extended the international reach of the independent living (https://en.wikipedia.org/wiki/Independent_living) movement. She’s a leader in the world we inhabit and a voice worth listening to. Geoff Adams-Spink gives us the latest news; more stories of worrying medical approaches to those with disabilities. There’s also yoga for all and some disabled people helping produce the much needed PPE. Phil and Simon do a rare thing and get a chance to chat about our reflections on the new Obama produced Netflix documentary, Crip Camp. There’s a ten minute YouTube video of us talking (link below) and you’ll get a glimpse in to how we make the show.LinksCrip Camp reflections (https://www.youtube.com/watch?v=nEFg7Oa_qQ0) with Phil & Simon on YouTubeCovid lockdown opening up world (https://www.theguardian.com/world/2020/apr/20/covid-lockdown-opening-up-world-for-people-with-disabilities) for people with disabilitiesUnprecedented’ number of DNR (https://www.hsj.co.uk/coronavirus/unprecedented-number-of-dnr-orders-for-learning-disabilities-patients/7027480.article) orders for learning disabilities patientsDisabled workers (https://www.mirror.co.uk/news/politics/disabled-factory-workers-switch-production-21921438) producing PPEOnline ‘adaptive yoga’ (https://metro.co.uk/2020/04/27/online-adaptive-yoga-classes-making-sure-people-disabilities-arent-forgotten-lockdown-12616677/) classesJudy Heumann Book - Penguin (https://www.penguinrandomhouse.com/books/621090/being-heumann-by-judith-heumann/)Book - Amazon (https://www.amazon.co.uk/Being-Heumann-Unrepentant-Disability-Activist/dp/0807019291)Judy’s YouTube channel The Heumann Perspective (https://www.youtube.com/channel/UCB7pemkbDQYezB6PeDFXTvg)Time Women (https://time.com/5793652/judith-heumann-100-women-of-the-year/) of the Year Twitter @judithheumann
On virtually every Covid 19 show we’ve done, disabled people have expressed concern about how they might be treated if they went to hospital with symptoms. We speak to Dr Frances Dockery, Consultant geriatrician (physician specialising in medicine for older people) about what her work is like. She is a guest in a personal capacity, and is compelling. Equally listenable is Jamie plus Lion. By day he is BBC Senior Research Engineer, he also hosts BBC 1800 Seconds podcast and he talks about being autistic. Jamie’s routine has inevitably been disrupted and if change can be difficult, and you have limited energy, have do you navigate your way through? Laurence Clark, stand up comedian, writer and exhausted dad explains that after years of resisting the term ‘vulnerable’ and having regular shopping deliveries from Sainsbury’s, the deliveries have now stopped and he can’t convince anyone that he is vulnerable. Every week Geoff Adams-Spink gives us a news update. This week, are Care Homes being ignored at the expense of the NHS is the focus as well as two requests for information for you to participate in. Social Care ADASS letter (https://t.co/zbi78o2Kz9)Women & Equalities Select (https://www.parliament.uk/business/committees/committees-a-z/commons-select/women-and-equalities-committee/news-parliament-2017/coronavirus-covid-19-inquiry-aunched-19-21-/) committee asking for evidence of impact on people with protected characteristics from lockdown..Instructions to the NHS (https://www.england.nhs.uk/coronavirus/publication/advance-care-planning-guidance-and-template/) about advance care planning7 Predictions (https://marker.medium.com/7-predictions-for-a-post-coronavirus-world-aaac052c8514) for Post-Virus World 1800 Seconds (https://www.bbc.co.uk/programmes/p06sdq0x) podcast Laurence Clark (http://www.laurenceclark.co.uk)
How are you really doing? A top tip on checking on someone’s wellbeing is to ask twice. So you get beyond the automated answer ‘fine thanks’ and it shows you are actually interested. Anxiety, relief, confusion, loneliness, all perfectly normal in these different times.In our new show, award-winning comedian Lost Voice Guy makes us laugh with his topical tales. And he only wanted chocolate buttons!Well-known comedian and mental health Ambassador, Juliette Burton talks of how she is getting on and provides some ideas for finding strength. Even News specialist Geoff Adams-Spink gets in on the ‘calm' theme with some apps and games that are helping him after his news round up.Transcript (https://www.dropbox.com/s/me3ewrr3ytnb48k/Transcrript%20Phil%20%26%20Simon%20Show%20No%2044.pdf?dl=0)Let us know what you think philandsimonshow@gmail.com Any ideas from you? Take care of yourself, and each other.RIDC research (https://www.ridc.org.uk/news/covid-19-impact-disabled-and-older-people-uk)Apple Shields (https://twitter.com/tim_cook/status/1246916489589837824?s=21)Just Mowing (https://apps.apple.com/gb/app/its-literally-just-mowing/id1458309993)Bus (https://apps.apple.com/gb/app/bus-simulator-ultimate/id1461749632)Calm (https://apps.apple.com/gb/app/calm-meditation-and-sleep/id571800810)Juliette Burton (https://www.julietteburton.co.uk/)Mind (http://mind.org.uk/)ReThink Mental Illness (http://rethink.org.uk/)Lost Voice Guy (https://lostvoiceguy.com/)
How do you decide who gets the respirator when there’s not enough for everyone? The concern of some disabled people that they won’t get the same level of treatment based on their unconnected impairment, made the news again this week. Geoff also highlights an article from the FT which asks if the social contract between government and citizen will change post Corona. Simon recalls JJ Rousseau from his philosophy degree and Phil asks are we all ready to be taxed more?Laura Irwin from Euan’s Guide talks us through their exciting new online Forum where disabled people can share ideas, tips and just have a natter. Could it be the hangout place to finally replace the heady days of the BBC Ouch chatroom?If you follow him on social media, you’ll know stand up comedian Don Biswas is a gag merchant of quality. He drops in to give us a few latest jokes. Thank you for all your comments, we pick out a few. And Simon explains to Phil why he’s not worn socks for two weeks whilst Phil is still worrying about not getting his haircut. Transcript coming. Letter to the NHS (https://www.disabilityrightsuk.org/news/2020/april/covid-19-and-rights-disabled-people) , via Disability Rights UKReply letter (https://www.disabilityrightsuk.org/news/2020/april/response-open-letter-covid-19-and-rights-disabled-people) from the NHSWashington Post Who should live? (https://www.washingtonpost.com/outlook/2020/04/01/ration-ventilators-beds-coronavirus/)FT article (https://www.ft.com/content/7eff769a-74dd-11ea-95fe-fcd274e920ca) on the social contract (audio feature too)MHRA and (https://yellowcard.mhra.gov.uk/) fake Covid 19 medicineNew Euan’s Guide chat forum (https://euansguide.org.uk)Don Biswas website (http://www.donbiswascomedy.com)
Another new style Phil & Simon Show, shorter and with expert guests. News round up from Geoff Adams-Spink including alarming news from the US in respect of medical care. He also asks what are our big asks in a post-virus world. Two weeks in self-isolation isn’t long for me says Baroness Jane Campbell. What’s hard is letting a host of different support workers in to her home, many whom don’t have protective equipment and she’s highly susceptible to respiratory difficulties. She also tells us why we should watch Crip Camp on Netflix. Stand up comedian Tanyalee Davis is subdued compared to normal. A person who thrives from performance and an audience, her self-isolation is messing with her head. Simon tries to feed her set up lines to her jokes, which mostly fail. Transcription (https://www.dropbox.com/s/t8vx37itafiyrd6/P%26S%20Show%20No.%2042%20April%202020%20Transcription.pdf?dl=0)LinksDREDF (Berkeley USA) Covid 19 resources for disabled people relating to health care and rights. (https://dredf.org/covid-19-advocacy-and-resources/#rights)Denial of care - USA (Daily Beast) (https://www.thedailybeast.com/people-with-intellectual-disabilities-may-be-denied-lifesaving-care-by-some-states-amid-coronavirus-pandemic?via=newsletter&source=CSPMedition)Mercedes and respirators (https://www.bbc.co.uk/news/health-52087002)Inclusion London Social care monitoring form (https://surveymonkey.co.uk/r/KS7RKVD)Netflix - Crip Camp (https://www.netflix.com/gb/title/81001496) - requires subscription Facebook group re PA and support workers (https://www.facebook.com/groups/ChataboutPAs/)Tanyalee Davis dancing (https://www.youtube.com/user/LilComedian) through Covid 19 YouTube
For the next few weeks, our show will be weekly, shorter and have guests. At last, we hear you cry! We decided we wanted to hear the voice of disabled people during the Covid-19 crisis, hear news and policy as it affects us, and some humour to spread some light.
Former BBC journalist Geoff Adams-Spink gives us the latest news, about the new legislation and where disabled people fit. He talks about the concerns for those who use PAs/carers. There are some top tips about maintaining good mental health too.
Broadcaster, disability campaigner and all-round glam person, Sam Renke tells us about her first two weeks in self-isolation. She talks about keeping busy, being creative, eating and maintaining some sort of routine.
Top stand up and occasional Abnormally Funny person, Steve Day, finishes the show with his topical humour and funny observations. Let us know what you think. Any ideas you’d like to hear?
Contact us on Facebook, Twitter and LinkedIn. Or email philandsimon@gmail.com (mailto:philandsimon@gmail.com)If you’d like a transcript for access, drop us a line.
Links from Geoff’s news pieceCommunity Care https://www.communitycare.co.uk/2020/03/22/coronavirus-bill-allow-ministers-suspend-key-care-act-duties-event-pandemic-emergency/
Guardian article by Frances Ryan https://www.theguardian.com/commentisfree/2020/mar/11/coronavirus-ill-disabled-people?CMP=Share_iOSApp_Other
Guests Twitter @GAdams_Spink @samrenke @TheRealSteveDay
A new show with the usual push and pull as Simon and Phil grapple with the world of disability. Phil noticed a London hospital was getting grief for charging blue badge holders (disabled people) for visitor parking. Phil asks, well why not? Resilience is a buzz word, particularly in the field of mental health, so called ‘snowflakes’ and Millennials. Simon was recently asked by an HR recruiter, is it ok to put the word ‘resilience’ in a job ad? Prime Minister Boris Johnson has written to all government departments to ask them to re-look at how they can remove disabling barriers and help unleash the talent of disabled people currently excluded. A refreshing proclamation of leadership or an all too familiar refrain? Where does stammering and stuttering sit within the world of disability? Is it covered by the legislation, a natural fit within the social model? A new book called ‘Stammering: Pride and Prejudice’ allows Phil and Simon to look at the topic.A hearty Listeners Corner (messages from you) rounds off another bumper show. If you'd like a Transcript, drop us a line. Let us know what you think of the show via Twitter, Facebook or email philandsimonshow@gmail.com (mailto:philandsimonshow@gmail.com) Links to topics discussedBlue Badge Parking at hospital (http://bit.ly/39tALOH)Prime Minister Boris Johnson and Disability across government (https://www.thesun.co.uk/news/10893772/boris-johnson-letter-cabinet-ministers-barriers-disabled/)Stammering: Pride and Prejudice (https://www.amazon.co.uk/Stammering-Pride-Prejudice-2019-Difference/dp/190782636X/ref=sr_1_1?crid=2GNXFHPF7V3Q0&keywords=stammering+pride+and+prejudice&qid=1582552482&sprefix=stammering+pride,aps,134&sr=8-1)
This podcast includes debates about the UK honours system, can you make jokes about disability and when does health and safety get in the way.
We kick off our first podcast for 2020 with a brief discussion of our New Years resolutions. We might review them in 2021. We also mention planned trips this year and the gadgets we found most useful in 2019. We have also tried to second guess what might be on our shopping list for this year.
A listener alerted us to the difficulties she had with an IMAX cinema showing 4DX films a format which provides a range of sensory experiences to the viewer. The cinema has put in place a set of rules that seem to exclude a lot of disabled customers. Health & Safety concerns are essential but is this taking risk management to the extreme.
We explore the pros and cons.The Queen’s New Years Honours list has been released, and several disabled people have received awards. Two issues get the Phil and Simon treatment. First, there is the style of reporting about the disabled award winners. Then there’s the appropriateness of the honours system itself. Controversial? Of course not.
Another story which caught our attention concerned a Premier League football referee. He lost his job after a private email joking about a disabled person was made public. Is making jokes about disability or disabled people ever acceptable? As ever we finish with a review of listener comments, please do keep them coming.
Show topic links:Breville Hot Water Dispenser http://bit.ly/2sJbZdH
Dave Toole http://bit.ly/30CZLzW
Football Referee https://bbc.in/2Rbj7sO
If you have any comments, feedback or suggestions, please email us at mintyandfriend@gmail.com (A transcript is available on request).You can visit our Show Facebook page follow us on Twitter
Just in time for Christmas, but Phil and Simon are not yet full of festive cheer. There’s campaigning to be done! Following the general election in the United Kingdom, Phil and Simon set out what would be in their disability manifesto. Simon gets all "Andrew Neil", and Phil becomes a Trade Union Rep! Is Berlin Tegel the most accessible airport if you have mobility difficulties, Simon explains why that might be. Tesco has joined the sunflower lanyard programme, to help non-visibly disabled people but is this the right approach? How is it being positioned?Talking of positioning, perception and reality, International Day of Disabled People was marked on the 3rd of December, and Phil and Simon wonder if it has a more significant impact in parts of the world other than in the UK. Is there an element of tick box? Does everyone make a big deal for a day then go back to as we were?Using a set of wheels when you’re navigating the pavement, is there some kind of etiquette? Why do people keep moving away from their line of travel and aim directly at Simon forcing him to move? Is he a magnet? Are they over overcompensating? Who will chicken out first?We update listeners on TUI and their wheelchair height restrictions plus listeners suggestions for song titles linked to disability. This includes the perennial Choices and Rights and a new song, The Social Model. After our conversation on the last show about Career and Personal Development Courses, a listener asks why aren’t there more of these courses?That is it for 2020. Thank you for listening, thank you for taking part and thank you for contacting us. Have a super Christmas and a wonderful New Year. Sainsburys sunflower lanyard (https://www.about.sainsburys.co.uk/news/latest-news/2019/07-10-2019-sainsburys-and-argos-announce-national-rollout-of-hidden-disability-lanyard-scheme)Tilly Moses (https://www.bbc.co.uk/news/uk-england-suffolk-49911276)The Social Model song (https://www.youtube.com/watch?v=4kJe7FNSy_0&list=PLzkk4hYjDKsOl6WZSU2yTCPbGGf2rYmkx&index=3&t=0s)Choices and Rights song (https://www.youtube.com/watch?v=yU8344cQy5g)Jane Campbell on Desert Island Discs (https://www.bbc.co.uk/programmes/b01lh96q)
In this Show Phil shares his concerns about TUI Holidays who have changed the rules on the size of the wheelchairs they will carry, this could have major implications for powered wheelchair users. Linked to the travel theme Simon describes a hotel in the US whose definition of accessibility leaves something to be desired. Simon poses the question; is our generation just too tolerant when it comes to confronting disabling barriers and are younger disabled people becoming angrier? Martin Luther King, turning the other cheek, versus Malcolm X taking direct action We have both been running personal development programmes (PDP) for disabled people for different clients for many years. In this show, we share our thoughts about the importance, relevance and impact of these programmes. We end by asking our listeners to suggest songs that would make a great playlist for the PDP courses. Queen “We are the champions” is a Phil suggestion with Simon offering Ian Drury’s “Spasticus Autisticus”. What would you choose? Send us your suggestions to the philandsimonshow@gmail.com Here's a link to the specialist holiday company Phil mentioned in our discussion Enable Holidays (http://bit.ly/2OaWZgz) Transcription is available on request. Click here for the Itunes link https://apple.co/2SO6GSV or here http://bit.ly/2ONehjc for the Audioboom version If you have any comments, feedback or suggestions, please email us at philandsimonshow@gmail.com (mailto:philandsimonshow@gmail.com) . We hope you enjoy it.You can visit the Phil and Simon Show Facebook page http://bit.ly/1t8tS0dor follow us on Twitter @PhilSimonShow (https://twitter.com/PhilSimonShow)
This month, we were lucky enough to have Diane Lightfoot. Chief Executive of the Business Disability Forum on the show. Phil and Simon have been associates, consultants, allies and critical friends of the Forum for 20 years and we mention the organisation often in our shows. It’s unique, representing business and disability voices in one place.Three years ago Diane Lightfoot became the chief executive and we discuss what she sees as the successes and progress made in her time, as well as what still needs to be done.Prior to joining the Forum, Diane was Director of Policy and Communications for United Response, a leading national disability charity and she focused on the organisation’s employment services which focused particularly on this with learning difficulties. Phil and Simon ask Diane why is the group of disabled people so often ignored and how do we get the employment and participation rates up.There’s an error in the show. See if you can spot it and let us know, to win..our praise. Business Disability Forum https://businessdisabilityforum.org.ukUnited Response https://www.unitedresponse.org.uk
Our summer holidays are over and we review our respective trips. Gran Canaria, Brussels, Berlin, Twinwood Festival 2019 and a trip around the UK all get a mention.A rarely seen public refusal, Dominos Pizza is asking the US Supreme Court to allow them to ignore the needs of sight-impaired people regarding the accessibility of their website, all because they say they don't have any guidelines.Another refusal comes from the Royal and Ancient Golf Club who banned an Open Champion, John Daly from using a golf buggy because it would 'break with tradition'.One person who managed to get the rules changed in his favour is Billy Monger. After becoming disabled from a racing car crash, he is back in Formula 3 racing having had the regulations excluding disabled drivers racing revised to include him and others.We wrap up with some comments from our listeners and a sort of book review “The Longevity Economy by Joseph F. Coughlin" which suggest we need to view ageing and disability differently.Links:Twinwood Festival 2019 (http://bit.ly/30iofO2)Domino Pizza Supreme Court story http://bit.ly/2UZmvak Note - there is a strong swear word in the headline.John Daly Golf Cart story http://bit.ly/2NmZWvoBilly Monger http://bit.ly/2V534x8The Longevity Economy by Joseph Coughlin https://amzn.to/2V2C5SUClick here for the Itunes link https://apple.co/2AvKoe8 or here http://bit.ly/331gEEyfor the Audioboom version If you have any comments, feedback or suggestions, please email us at philandsimonshow@gmail.com (mailto:philandsimonshow@gmail.com) . We hope you enjoy it.You can visit the Phil and Simon Show Facebook page http://bit.ly/1t8tS0dor follow us on Twitter @PhilSimonShow (https://twitter.com/PhilSimonShow)
Caroline Casey is an engaging and emotive speaker. She’s done a TED Talk, spoken at Davos and her current project is to get 500 global companies to sign a pledge to discuss disability in the boardroom. We start by exploring her remarkable childhood, where her parents didn't tell her that she had sight loss. She explains how the Johnny Cash song, ‘A Boy Named Sue’ influenced this thinking. Having a great memory and the ability to listen, meant Caroline not only got by but got on. Then as a young adult, as she was about to have a driving lesson, she realised something was amiss. A later attempt to learn to drive stopped abruptly when she not only couldn’t she read the number plate, she couldn’t identify the car. After the realisation, rather than explore this identity, she decided to hide it herself and spent a further 11 years pretending nothing was different, a period she calls ‘the fraudulent years’. When applying for a job and asked to complete a monitoring form she’d hesitate and eventually lightly graze the tick box, in pencil, showing her confusion. Finally, at 28 years old, she says she ‘came out of the disability closet’ and embraced her full self although acknowledges, she’s still working on accepting it - asking for help is one of the toughest things for her to do and she sees this inability as a weakness.Her latest campaign is Valuable 500 and she gives us an update with an impending deadline. If 56% of board meeting agendas have never mentioned disability, 7% of board-level employees have an impairment and 80% of those hide the fact, there’s some work to do.There are a few mild swear words, just to let you know. Transcription is available on request. Links https://www.thevaluable500.comDiversish video (https://youtu.be/HZyylZpRHN0)A Boy Named Sue (https://www.youtube.com/watch?v=ZR5XGTpophI) Twitter @500Valuable
Welcome to the Phil & Simon Show No 33.In an article published in the US, it is suggested that full employment has reduced the unemployment rate for disabled people. Taking a somewhat cynical view is this because the last in the queue are finally at the front? If so what’s wrong with that? https://n.pr/30ym0G5No P&S podcast would be complete without some discussion about accessible toilets and this one is no exception. Who says it unacceptable for non-disabled people to use them? We come to a view.Simon recently gave Phil a copy of Daniel Klein's book “Every Time I Find the Meaning of Life, They Change it” (OneWorld Publications 2015) at a point where Phil was feeling pretty low. We discuss the books messages and their impact.Following last months podcast featuring the inimitable Tom Shakespeare, we revisit the discussion around the Social Model of Disability to explore the impact on us.Finally, we dig deep into our listener's postbag and pull out comments about transcriptions, workplace adjustments research, where and when people listen and should we do more news.Keep the comments coming we love hearing from you.Transcript available by clicking here (https://www.dropbox.com/s/u4yps05va018go6/Phil%20%26%20Simon%20Show%20No%2033%20Transcript.rtf?dl=0&fbclid=IwAR2Ogb8N_jz3fZLdHGdMWryAdtMRcancLNymupyceePkALvm6YSpPJYufZc)A full transcript of this podcast is available on request. Please email philandsimonshow@gmail.com
Tom Shakespeare is our guest this month. An English sociologist and broadcaster he is known to many who are involved in disability rights as well the broader public because of his appearances on Radio 4 and numerous television documentaries. Tom has achondroplasia, a form of dwarfism and uses a wheelchair. He has worked at the World Health Organisation and is currently Professor of Disability Research at the London School of Hygiene and Tropical Medicine. Tom has never been afraid to share his views on a whole range of subjects. As you might expect he was very frank about some of the more difficult moments in his life; when he challenged the thinking of many disabled activists, about the social model, his take on bioethics and more recently assisted suicide. Our discussion also explored self-confidence as distinct from self-esteem and how ‘adversity inoculation’, that is experiencing surmountable challenges in life, can help with resilience rather than overprotecting people from taking risks.Tom talks about his influences; his father and Jenny Morris’ book Pride Against Prejudice. He questions whether we can get stuck, rejecting diversity of thought and resist smart allegiances which will ultimately weaken disabled people’s progress in society. For example, we need medical classification so how do we work with medical professionals, adapt them and own them? Or why don’t we work with the organisations we don’t like to change them?Transcript available here (https://www.dropbox.com/s/l81rw0y72yzy3qc/Phil%20%26%20Simon%20Show%20No%2032%20Tom%20Shakespeare?dl=0&fbclid=IwAR0blfPXkfNE4Z1R2naXnLRlvmhgoIJPC1rssYCCjXe2JqTVB8mJQz9yXQM) - click Download once you arrive. Finally just to let you know in advance there is a little swearing in this recording. Plus there's a ten second gap at the end before we sign off, so you can recover your breath from the interesting conversation. If you need a full transcript of this show please email us at philandsimonshow@gmail.com
We've not had research about reasonable adjustments in work for a while but the Business Disability Forum (https://businessdisabilityforum.org.uk) have completed a new survey. Phil and Simon investigate the findings are assess what might be behind the numbers.The Phil & Simon Show has produced a transcript (https://www.dropbox.com/s/ute0kz6si8vda6v/Phil%20%26%20Simon%20Show%20No%2031.pdf?dl=0 ) for every show and released it at the same time as the pod. However, we weren't sure if anyone was reading it. Our guest Joanna Wootten (https://twitter.com/JoannaSolutions) gives us her thoughts on podcasts, radio, transcripts and being a Deaf person.We recently spoke of the sad passing of Sir Bert Massie. His autobiography, A Life Without Limits (http://www.mereobooks.com/books/genre/self-help-motivational/fighting-fairer-world) , has just been published and Simon and Phil review it.Plus there might be a mention of Simon's (https://twitter.com/simonminty/status/1125478187184553986) recent sporting activities.LinksTranscription (https://www.dropbox.com/s/ute0kz6si8vda6v/Phil%20%26%20Simon%20Show%20No%2031.pdf?dl=0 )Survey findings (https://businessdisabilityforum.org.uk/adjustments)Sir Bert Massie's book publishers (http://www.mereobooks.com/books/genre/self-help-motivational/fighting-fairer-world)Sir Bert's book Amazon Kindle (https://www.amazon.co.uk/Life-Without-Limits-Disability-Activist-ebook/dp/B07QB3XKNB/ref=tmm_kin_swatch_0?_encoding=UTF8&qid=1558519372&sr=8-1-fkmrnull)Dwarf Sports Association UK (https://www.dsauk.org)
We kick off this show with a discussion about the future of work and the increasing use of artificial intelligence in recruitment. Liz Sayce and Jane Hatton discussed some of the possible repercussions for disabled people at a joint presentation they gave to the Royal Society of Arts. http://bit.ly/2VHxiWqSimon reflects on the highs and lows of a recent trip to the US. Being stared at was a positive experience for once. A couple of disabled New Yorkers suggested the social model is to limited and claimed that disability is its own culture and the arts scene in Britain needs to recognise it as such. Sadly two more campaigners died recently. We take a moment to remember the contributions made by Mike Oliver a grandee of the disability movement and Jane Nokes less well known but who made a significant difference.A full transcript of this podcast is available here A or on our Audioboom page, Twitter feed and Facebook page. Click here for the Itunes link https://apple.co/2AvKoe8or here http://bit.ly/2WcMElTfor the Audioboom version If you have any comments, feedback or suggestions, please email us at philandsimonshow@gmail.com. We hope you enjoy it. You can download the transcript by clicking this anywhere on this sentence. You can visit the Phil and Simon Show Facebook page http://bit.ly/1t8tS0d or follow us on Twitter @PhilSimonShow
How often do you hear, ‘what do the young people want?’ Perhaps not often enough. Certainly not as often as ‘how things have changed since my day!’ Phil and Simon wanted to hear from the next generation so we invited the multi-talented Abbi Brown on to our show. She works for the ad agency behind the now infamous Malteser adverts on Channel 4. With Abbi we explore whether you can make more of a difference from the inside or out, who her (disabled) role models were when she was growing up and does she think there’s a disability movement these days. Indeed, what is activism these days, what are the next generation ‘fighting for’ if anything and does social media help or hinder? We also talk about using the bus and not thinking twice about it. Abbi has personal experience of disability with OI (brittle bones) deafness and mental health problems. Click this for transcript of the showYou can follow Abbi on -Twitter @AbbiSignsInstagram abbisigns YouTube Ithinkmynameismoose
In this edition of our podcast, we talk to the renowned influencer and campaigner Liz Sayce about her exceptional career and her passion for equality and human rights.Liz shares her personal experience of managing a mental health condition and the insight that this has provided in her role as a campaigner.Liz reflects on the seven years she spent working for the mental health charity MIND and the knowledge she gained from her trip to the US where she examined the impact of the Americans with Disabilities Act. (ADA)We reflect on her time as Director of Policy and Communications at the Disability Rights Commission (DRC) and subsequently her role as the CEO of RADAR and Disability Rights UK.In addition to her "day jobs," she is a prolific writer and her books, papers and articles have examined mental health issues and more recently focused on the thorny problems relating to employment and career development challenges for disabled people. She is currently based at the London School of Economics (LSE) and discusses her recently published report "Switching Focus" which describes a four-point plan designed to improve disabled people's employment and pay.Find the time to take a listen you will not be disappointed.A full transcript of our conversation is available here.We’d love to hear from you, email us philandsimonshow@gmail.com or send a message via Facebook or Twitter. If you’d like to review us on iTunes or Audioboom that would be amazing.
Simon turned up to Phil’s studio (house) and said ‘I have nothing to say this month.’ Phil replied ‘I’ve not got much either’. Fifty minutes later, an enjoyable, personal, broad themed show was recorded!We ask if the Guaranteed Interview Scheme is still needed? Is it fit for purpose? After some great Christmas TV with various disabled actors popping up we wonder if the same is happening in theatre?David Isaac, Chair of the Equality and Human Rights Commission recently was quoted in the Sunday Times asking ‘Where’s the #metoo movement on disability?’ Simon wonders out loud if he’s a listener to our show, as we asked the same question in show 25 “All That Jazz Hands”.Phil talks of someone he greatly admired when he was in a former role. It made him wonder about who are the people that have an impact in our lives and we explore what it is about them that draws us to them.We’d love to hear from you, email us philandsimonshow@gmail.com or send a message via Facebook or Twitter. If you’d like to review us on iTunes or Audioboom that would be amazing.Link to transcript
Our guest this month is Susan Scott-Parker OBE. Susan has over 30 years of experience working with business on disability as Founder of the Business Disability Forum (BDF) and now as an international consultant advising organisations, NGOs and governments on disability issues.As CEO of the BDF, she signalled to colleagues, customers, and government that disability is a business and a societal priority. Susan pioneered the world’s first leadership programme for people with disabilities, in partnership with the Coverdale Organisation.Among other things, Phil and Simon ask Susan what lay behind her decision to settle in the UK and what her proudest moments have been. They then focus on what concerns Susan in terms of disability equality and fairness today and what is on the horizon.Phil and Simon are long-standing Associates of the Business Disability Forum and as result have a unique view of working with the organisation and with Susan over the many years she was at the helm.A full transcript of this podcast is available, click on this link to Dropbox
We kick off the show with a discussion around the emerging use of Jazz Hands at live performances. Jazz Hands what does that mean? Is it just a gimmick or is it more serious than that?Another favourite of ours is the use of language. The latest manifestation is the expression "Diffability". Is this just another attempt to sanitise or remove the stigma from the word "Disability". What do you think?Simon reflects on his recent conversation with someone who wondered why there isn't more anger and outrage regarding the treatment of disabled people in society.This leads to a further discussion about why it still appears to be so difficult to share personal information about disability in the workplace. Surely we’ve moved on? Phil's recent experience of illness prompts a discussion about the difficulties disabled people can encounter when trying to access NHS treatment. Caring staff are to often let down by the physical environment. Whatever happened to inclusive design? Finally, we wrap up with a roundup of comments from our listeners.We hope you enjoy this potpourri and it is always good to get your comments.You can download a full transcript here http://bit.ly/2OmBeHy The transcript is also available on our Audioboom page, Twitter feed and Facebook page. Click here for the Itunes link https://apple.co/2AvKoe8 or here http://bit.ly/2sfwuLG for the Audioboom versionIf you have any comments, feedback or suggestions, please email us at philandsimonshow@gmail.com. If you know someone who might enjoy our podcasts share the links and spread the word.You can visit the Phil and Simon Show Facebook page http://bit.ly/1t8tS0d or follow us on Twitter @PhilSimonShow
We’re two years old! Thank you for being our listener. Phil and Simon talk about disability on television, more specifically the pleasant surprise when someone on television happens to have a disability but it’s incidental to why they’re on. We contrast this with inspirational shows and wonder if such shows help.Finally, there are enforceable web accessibility standards…but hang on, haven’t they been around for years? We explain more.There’s new money from the Government to fund innovative programs to help retain disabled people in employment. We discuss if peer support would help ‘turn the tap off’ of lost talent, i.e. those who leave their job because of disability or health but could have stayed with the right adjustments.In the news round up, Belgium has reported on the authorised assisted deaths of two children aged nine and eleven, who had asked to die. There’s an update on the extension of the blue badge disabled parking scheme and Simon tells of his recent parking difficulties.LinksBBC Four The ProsecutorsBBC Two Horizon Spina Bifida and MeNew Web StandardsNew money to keep disabled people in workBelgium reports on authorised euthanasiaTRANSCRIPT
We kick off with some thoughts about Noel Conway and his attempts to change the law on assisted suicide.Labelling, mental Illness so what is a disability and what isn't. Simon continues the search for an accurate and meaningful definition.After the reaction to our previous podcast, we focus on our embarrassing or vulnerable bits and pieces arising from our disability. Phil's describes his aversion to swimming pools and being seen undressed. Simon shares his thoughts regarding people's reaction to his size and the embarrassment or anger this can invoke.We finish with a roundup of listeners feedback. Thank you and keep it coming. Clear for the transcript Here are links relating to the Noel Conway discussion.Tony Bland http://bit.ly/2MDzR6YNoel Conway https://bbc.in/2KaMUQkGosport hospital deaths https://bbc.in/2JByP9pNot Dead Yet UK http://bit.ly/2vcVBOV
More informal, more personal, Phil and Simon discuss a potential divisive split in impairments, more trouble with trains, Lost Voice Guy winning a talent show and do you need a personality type if you become disabled?Two people with a disability were the finalists in Britain’s Got Talent. Lost Voice Guy won it. Is this a watershed moment for disability and comedy or a stepping stone?A friend of Simon’s, who was looking at needing a wheelchair, told him she didn’t have the ‘personality’ to become a wheelchair user. Phil and Simon discuss this, and talk about how our personalities have been shaped, and stayed the same, through having a disability.Disabled Motoring UK (DMUK) have responded to the governments consultation on changes to the blue badge disabled parking scheme. This consultation concerns including people with non-visible disabilities on the scheme. DMUK’s response to the consultation suggests this isn’t a good idea and we discuss the implications and if needs of differently disabled people are being ranked. Finally, more trouble on the trains as a a rail operator (at the time of recording) was bringing new train stock in to use which wasn’t accessible, what does that say? Is this a slippery ramp?Link to the transcript if you'd rather read than listen.
On this months show, Phil and Simon grapple with some morally complex news topics. How do you decide who should get legal aid? Does this lead to more injustice? Then the heartbreaking case of the little boy Alfie and how medics, the law and parents all have a say in a disabled person's life when the individual can't speak for themselves?The business case for accessibility is updated with new research from Euan's Guide and are we seeing a lot more disabled people on television, particularly Britains Got Talent.Legal aid link for more information http://bit.ly/2EKdQyNEuan’s Guide research link http://bit.ly/2IgBq9dTranscript for Show 21 Justice and Rights
It’s just Phil and Simon this month and we return to our format of debate, news and humour about issues relating to disability and beyond.Are we looking at the great divide? Does the traditional concept of disability exclude many people - those seen as not disabled enough and those whose needs are greater, they weren’t included? Is identifying individual impairment groups, developing new words for this, helpful? Will it lead to better inclusion, greater tolerance or just split us in to factions?In the news, there’s discussion of the passing of Professor Stephen Hawking, a legal update on wheelchair spaces on buses plus news about potential changes to the Americans With Disabilities Act asking, is it going backwards? Did you understand what the Motability Operations story in the press was about? Phil and Simon delve deep.For those listeners who like it when we disagree, you’ll enjoy our debate on whether the Phil & Simon Show should be on YouTube. We’d love to hear your thoughts.Transcript - https://www.dropbox.com/s/zaxje7nxh33qr2i/Transcript%20Phil%20%26%20Simon%20Show%20No%2020%20March%202018.pdf?dl=0
Hello, everyone and welcome to our 19th show.If you're involved in disability, you will have likely heard of Baroness Jane Campbell. A hugely talented and admired person, she's a disability rights campaigner, writer and for the last ten years an independent peer in the House of Lords. As our guest in this intimate, sometimes funny conversation, she discusses her childhood, going to special school and the barriers she faced as a University student. She talks of the light bulb moment when she understood disability and its impact on her and the world. With her unique insight being in the Lords, she shares her thoughts on Brexit and its potential impact on disabled peoples rights. She reveals how she's become a fine negotiator, what she does in her spare time, and when she retires, her plans for world travel…once she has made planes more accessible.We think it is a special show and we hope you enjoy listening to it as much as we enjoyed recording it.A transcript of this podcast is available via this link. https://www.dropbox.com/s/pfif3kubr4z89au/Transcription%20P%26S%20Show%2019%20Jane%20Campbell.rtf?dl=0
Phil and Simon were lucky enough to have Neil Crowther as a guest on this show. Neil is an independent expert on equality, human rights and social change with a particular interest in working to secure the rights of disabled people.Phil & Simon talk to him about his work, both past and present, including his time at the Equality & Human Rights Commission (EHRC) and the Disability Rights Commission (DRC). Neil questions if the disability equality and inclusion agenda was really better ten years ago? We explore how disability equality is seen as a human rights issue, not simply through anti-discrimination legislation and ask why the United Nations Convention on the Rights of Persons with a Disability isn’t more dominant in the UK?Neil chips in to the ongoing discussion about those who would be defined as disabled but don’t identify as so and asks, is it necessary, helpful, let alone possible?Neil writes a blog which has highlighted the risks of framing a need for change in an alarming or ineffective way, and if worded poorly, does it do more harm? Should the narrative be about reminding people of shared citizenship?Finally, there’s a discussion of the perhaps surprising findings of how disabled people in the UK vote, be it in a general election or the recent EU referendum. Also how social class can be over looked in the equality agenda. Neil is a fan, most of the time, of Twitter and tells us about his recent shout out for positive stories around disability in the UK over the past 20 years.Links to topics discussed. Neil’s blog page.Authors of our Lives blog pageInclusion ProjectThe specific blog mentioned in the showSome of the people mentioned who have influenced Neil. Baroness Jane CampbellProfessor Gerard QuinnCatherine HaleClick on these words for Transcript availableSee also our Facebook page and Twitter feeds
Hello, everyone, this show is our 17th and the last of 2017.Simon reviews his recent trip to America spent hanging out with some Googler's. He also had a ride in the Tesla!Recent changes to Access to Work are discussed. We debate Philip Hammond's recent assertion that Britain's falling productivity is in part due to the fact that more disabled people are in employment.The terms "suffering" and "inspirational" once again get an airing.On a sad note, we remember Sir Bert Massie whose death was recently announced.We close the programme with some listener feedback and Simon's trials and tribulation concerning getting some window blinds fitted.Finally, we hope you have a very happy time over the Christmas holiday and that 2018 brings peace and contentment to you and yours.
Phil and Simon discuss, debate with and be irreverent about the recent ruling on the law concerning Assisted Suicide, intersectionality, identity and the overlap of disability and other characteristics such as being gay. They ask if 'awareness' days or campaigns have any impact and describe the hoops you have to go through to book a ticket for the theatre when you use a wheelchair. We also discuss a recent event at Lloyds Banking Group which Phil and Simon co-hosted, from separate cities. We are available for parties, weddings and funerals. Tom Shakespeare websitehttps://farmerofthoughts.co.uk
As the Thin Lizzy song says " The Boys are back in Town" and they most definitely are! This month's Phil & Simon Show is all about travel and sport.Simon reflects on his trips to the World Dwarf Games in Guelph in Canada plus his visits to New York City and the Edinburgh Fringe. Phil remembers Lorraine Gradwell, a disability campaigner who recently died. He also shares his experiences of cruising to the Baltic States, his visit to St Petersburg and to Tallin in Estonia.There's the usual mix of discussion about where disability fits in to all of this plus a warm dose of humour. A show designed to welcome the Autumn! Enjoy
A new voice! Phil and Simon welcome PhD researcher and Business Disability Forum consultant Angela Matthews on to the show. Angela asks Phil and Simon what role they think emotion plays in activism in terms of policy making, particularly disability rights. It throws up all manner of thoughts from them both like: How accessible is activism? Can you be ideologically pure and be effective? Can activism alienate people as much as welcome? Is disability campaigning now about access to Glastonbury rather than segregated living? What about disability pride? What do leading commentators such as Jane Campbell. Neil Crowther and Tom Shakespeare say? Is there a flag pole all disabled people, visible and non-visible, old and young can all rally around or are we just too broad a church? We hope you enjoy it. Do let us know what you think. philandsimonshow@gmail.com
In this packed programme we sadly reflect on the death of a much-loved disability campaigner Sophie Partridge. Simon remembers her with affection and a funny anecdote!It seems a recent BBC programme focussing on the policing in London draws praise from Phil for the way it dealt with the attempted rape of a woman who has Downs Syndrome.The Power 100 list is up for discussion as is a play by Stephen Unwin which focuses on the Nazi atrocities committed on disabled people before the Second World War. Simon raises concerns about the theatre’s accessibility given the play’s subject matter.Airbnb gets a bit of a drubbing from a disability perspective and our post-election analysis will have you on the edge of your seat!To round it all off Simon offers up his Twitter jokes. Sit back and enjoy
Episode 12 of the Phil & Simon Show is ready to serve! Piping hot and sizzling with juicy issues. Our discussions include a trip round the Nürburgring Ring on an electric scooter, Motability's 40th birthday celebrations at Windsor Castle, Simon's jury service, the forthcoming election and how disabled people could affect the result, how should we talk about Disability and Human Rights and finally Simon's search for a new car! Varied or what? Take a listen you won't be disappointed.Here are the links to the independent living charter https://spectrumcil.wordpress.com/12-basic-needs/ and Neil Crowther's article on How to talk about Disability and Human rights https://makingrightsmakesense.wordpress.com/A full transcript of this podcast is available on our Facebook page.
Show no 11 is a belter! We grapple with complex subjects which will get you thinking or even shouting at your podcast player. Phil is concerned about the increase of #non-disabled people talking on behalf of #disabled people and should people share if they have an #impairment in these circumstances? That should be enough but no, we then dive head first in to the #employment of people with severe #learning disabilities and #neuro-diverse impairments. Politics, the minimum wage, idealism versus pragmatism all feature as well as some desk thumping. Simon's recent trip to #Thailand gets a mention as do a great band, Holy Moly & The Crackers who featured on the BBC Ouch show. You can listen to their new single via the YouTube link below.https://www.youtube.com/watch?v=tTPDSb3EV0cWe'd love to know what you think - contact us via Facebook, Twitter or email philandsimonshow@gmail.com
This month's podcast has a distinct media feel to it. First, we take a look at wheelchair user Frank Gardner's film about his trip to Papua New Guinea in search of Birds of Paradise. We then discuss Notes on Blindness a powerful film about Professor John Hull's journey into and through blindness and then we focus on Andrew Marr's film My Brain and Me which looks at strokes and the search for a "cure".If that's not enough the recent Supreme Court ruling on buses and wheelchair spaces, and Andrew Neill's autobiography also get a mention. Finally, just to clarify something we discussed, Clause 4 was the socialist element of the Labour party constitution, i.e. nationalisation and workers own the means of production. We hope you enjoy the listen.A transcript is available on our Facebook page.Frank Gardner and Benedict Allen visit Papua New Guinea searching for the birds of paradise http://bit.ly/2kxlBD4 Touching the Rock book link http://amzn.to/2kxuI6NAndrew Marr My Brain and Me http://bbc.in/2kxrGzuDoug Paulley Supreme court ruling http://bit.ly/2kxFXw9Andrew Neill Full Disclosure http://amzn.to/2kxJWsy
Phil and Simon meet again to be chat about all things #disability and beyond. This month it’s planes, trains and websites… we ask why is access still hit and miss? Has campaigning lost it’s way? Are the issues of disability too broad? Did Meryl Streep help? Who is accountable for mistakes? What would galvanise people? If that wasn’t enough, we chat about our favourite item or gadget, disability related all with the usual blend of serious, silly, challenging and awkward.#disability #train #plane #website #activism #campaigning #protest #march #access #merylstreep #gadget
It's one for the disability aficionados as Phil & Simon wrestle with the immovable #employmentgap of disabled compared to non-disabled people. We discuss the new report 'Ahead of the Arc' seeking to address this. (Here's the link to the report http://bit.ly/2i9Vbm5)Leaving no stone unturned, Phil & Simon debate the limits of the #socialmodel, what is the difference between impairment and illness and where does physical or mental limitation stop and exclusion start. It gets feisty and funny.There's the most random introduction we've ever done with a chat about Syria and commercial DAB radio. To finish up, we review our personal highlights of 2016...there are some.This show is deliberately Brexit and Trump free.A transcript is available on our Facebook page..
Phil & Simon, good friends, differing politics keep it light discussing the current surprising voting trends, Trump, Brexit, genetic screening and if people are using a disability to cover up a character trait. And they dissect Leonard Cohen's lyrics to see if Everybody does actually Know. Geoff Adams-Spink tells you how to contact us. #Trump #Brexit #Disability #LeonardCohen #Genetics
Protests and protesters, Are #Anxiety and #depression becoming fashionable?,Airlines and #lithium batteries, Are TUE's just reasonable adjustments?
The Daily Mail and a bald female cyclist, Simon's new hip and support worker experiences, Asda's accessible toilet sign, Eligibility for the Olympics, Schmaltzy Olympic coverage, Simon being a rowing cox
Accessible motorhomes, Halving the unemployment gap between disabled and not disabled people, Brexit and Chilcott, hip replacement
In which we explore the accessibility of the Derby, #Brexit would disabled people be better off in or out. Dementia and Alzheimers and user research, Uber Taxis and finally leprachauns
Phil & Simon discuss if it is better to live in the USA or the UK if you are a disabled person. Is it just about attitude? Do you tip if someone is providing a service related to your disability? Why do some disabled people not use equipment that would improve their life? And if disability kit can ever be cool? And if so, who to and where do you find it?
Phil and Simon unpick disability and being inspirational. Air travel is also on their agenda! #inspirational #airtravel