VITFriends VITILIGO Support Group: Recent Episodes
VITFRIENDS
Alexis and Mary are VitFriends volunteers who sit down with lead medical student, Kristin Tissera to discuss their own experiences with vitiligo.
An Interview with Vitiligo Researcher, Dr. Todd Pearson who sits down with our lead medical student, Kristin Tissera to discuss current and future projects in vitiligo research.VIGOR Study: https://vigor.umassmed.edu/vigor/s/?language=en_US
Who is Tiffany??? (Wife, Mother, Model, etc...)When were you diagnosed?Support systemTreatmentEtc....
Who is StephanieHow long with VitiligoTREATMENTYour support systemWhere are you on your vitiligo journey todayYour BOOKEtc.....
CALL - INTell us how your June 2024 has beenDid you attend WVD and your experienceHow are you continuing to spread awarenessHow is you OPZELURA Treatment experience.
Pediatric Dermatologist, Dr. Anna Cristina Garza-Mayers sits down with our medical student leader, Kristin, to discuss treating vitiligo in children, and what's on the horizon in treatments and in research.
Dr. Sheth sits down with Kristin Tissera, our lead medical student to discuss her interest in vitiligo, her work with VITFriends, and what's on the horizon for vitiligo treatment.
Wishing you and your family a Happy Easter, as we REMEMBER the reason and the sacrific of the cross
Join Connecticut VITFriends Leader Millicent Meadows interview her brother Todd Meadows about his Vitiligo Journey.
Greetings. Happy New Year! I'm back to share a brief podcast update, provide a recap of 2023 and discuss the latest vitiligo study hosted by RTI-Health Solutions and L&E Research. Tune in for this brief update and please get involved in this study!
Let's get wild! Neon Wild!
Meet Matt Weckel, the CEO of Neon Wild. What is Neon Wild? Neon Wild is an interactive storybook app that allows your child to engage in a personalized exciting adventure. Tune in to learn more about the app and Matt's goal for inclusivity for all children, including children living with vitiligo. Don't miss this fun episode.
Visit neonwild.com today!
What is self-identity? The recognition of one's potential and qualities as an individual, especially in relation to social context.
How does vitiligo change the way you view yourself?
My guests share stories about their journey while living with vitiligo.
Tune in to hear this important conversation about vitiligo and self-identity.
I had the privilege of hosting Todd Edwards from Incyte. We discussed the Incyte Ingenuity Awards for Vitiligo. If you have a great idea you would like to fund, consider applying for the ingenuity awards. Todd provides details about how to apply, who can apply, and important deadlines.
Nia Rose, licensed therapist, returns to my show to discuss our core beliefs. What are your core beliefs? Are they fact or fiction? How are we impacted by what we have been taught in our youth or lessons learned throughout adulthood?
Turn in to hear why this is such an important topic of discussion.
Tune in to hear Shazaad's inspiring journey with vitiligo. Everyone has a story to tell. This is his time!
Some storytellers are open about the challenges that exist on their vitiligo journey, and other storytellers talk about how they have accepted and embraced the vitiligo road ahead. All stories need to be heard. We can educate the world about vitiligo through our stories and provide support to our brothers and sisters who may need assistance on their journey. We are stronger together!
Listen to the family share their experience from the World Vitiligo Day Conference 2023 in Atlanta, GA. Stay tuned for part two.
What is summer love? How do you keep that special summertime relationship from fading away? What is the best season to fall in love? What's love got to do with it?
Join the Relationship Panel's open discussion about finding love during the summer months, how to maintain a loving relationship, and other discussions about the big L-O-V-E.
In this episode, Gabriel joins my show to talk about his vitiligo journey, acting, and other hot topics in the vitiligo community. Tune in to hear our perspectives about the upcoming movie God is a Bullet featuring Jamie Foxx.
In this episode. I traveled over the airwaves to speak with Pricilla. Tune in to hear a great conversation with a vitiligo community member that lives in a different part of the world, South Africa.
My special guest for this show is Omar from Canada. Instead of spoiling our discussion, tune in Sunday at 2 PM EST to hear about his journey with vitiligo. If you can't tune in at 2 PM. no worries! Click the podcast link any time after 2 PM EST to hear our discussion.
My special guest is Bianca Anderson from Atlanta, GA. Bianca attended the CSD Hill Day event in Washington, DC. Tune in to hear her experience on the Hill and learn more about her journey with a common skin condition that has impacted her life in many ways.
Millicent and I share our experiences with the Coalition of Skin Diseases Hill Day event.
I had the honor of featuring Stacy Kinney on this episode. We opened up about our journey with vitiligo and how it has impacted our lives. Stacy brings an open and honest approach to living with vitiligo and the challenges that come along with it. Tune in to hear his inspirational story.
Flavors make everything better!This episode is more than just about ice cream. We discuss what it's like to create a business during the height of the pandemic, the importance of community, following your dreams, faith, and the future of Flavors Ice Cream. Thisconversation is great for the listener who dreams of starting his or her own business.If you're in the Triangle area of North Carolina stop by Flavors Ice Cream. Tell Elisa that Mark sent you!
In this episode, I'm joined by Nia Rose and James Smith. We discuss the need for spaces where men feel heard, loved, and safe. What is a safe space? What is the impact of not having accessible safe space for men? How can we change the stigma behind men seeking help when needed?
My next guest is Gilda A Carter. Gilda joins me on the podcast to share her journey with vitiligo. Tune in to find out what brings her joy and hear how she's navigating life while living with vitiligo.
Comedian Ty Raney is back! We discussed the comedy circuit, before and after the height of the covid pandemic. We discussed other subjects, too. My personal goal is to normalize vitiligo one conversation at a time!
Bev Quinn from North Carolina shares her unique journey with vitiligo. Every story and every journey is unique to the person who is living it. Bev shares what she thinks is the trigger for her rapid spread of vitiligo. Tune in at 2 pm to learn more about Bev's story.
This is my 1st At Night episode in a long time. At Night was created as an opportunity for me to share my thoughts and opinions on various topics. This is not scripted or rehearsed. No panels, no guests, just me and my microphone for 14 minutes.
The Relationship Panel is back for 2023. Our conversation about love is in full effect!The Relationship Panel is designed to provide connection, understanding, and support for people who dream about love. We understand that relationships are challenging. We want to give hope to the hopeless and confirm that love does exist. We are open and honest about our journeys into the realm of dating, relationships, and marriage. Our goal is to create opportunities for adults to have discussions about the positive side of relationships.
Maurice, a licensed therapist from Charlotte, NC, is back for another Brother 2 Brother discussion about our youth. We discuss the challenges our youth face, the impact of social media, and the dangers of having easy access to information on our youth. Maurice shares some easy tools and games for parents to use to connect to their children beyond the normal "How was your day?" conversation. Those tools can be useful in marriages and dating relationships, too.
Meet Melissa, The Spotted Beauty from North Carolina. Melissa's story is about change, loving yourself, and accepting who you are. Self-love and acceptance are so important in a world that tries to set standards of beauty for us to live by. Her story is empowering and inspirational. Tune in Sunday, January 29th at 2 PM Eastern Time.
Welcome to 2023. My 1st guest for the year is Alicia Roufs from Minnesota. Alicia has documented her experience using Opzelura for her Vitiligo. Tune in to hear what she has to say about the effectiveness of the cream and how she was able to get it approved by her insurance company.
- Vitiligo at age 12- Bullies- Courage to LOVE our self- Married 20+ years- VITFriends work - Enjoy reading to children- Christmas Party 2022
Never let someone hold you to the mistakes of your past or the pitfalls in your present. You are in control of your future. You have the power to change! Tune in to hear Nia's story about her struggles in life and how she overcame those struggles to become the person she is today. Her story is about making the choice to change, having hope and faith, seeking support, and self-love.
This is our final relationship discussion for 2022. Our focus is the importance of positive communication in all types of relationships. Tune in at 2:00 PM Eastern time to find out what we have to say.
This special episode of Brother2 Brother features licensed therapist Maurice Harvey. We discuss men and grief. Stay tuned at the end of the discussion on ways to get information about mental health support and other services.
Now that Thanksgiving has past, it's officially the start of the holiday season! I have some podcast updates for December 2022 and a few for the start of 2023.
The next episode of Living Life and Love features mental health counselor, A. Maurice Harvey from Charlotte, NC. We had a great conversation about the importance of mental health therapy for men, the reasons we don't seek therapy, and some tools to help us manage some of our mental health challenges. We also discussed ways to help us get through the upcoming holiday season. You may hear some interesting dating tips, too.
In this episode of Perspectives, I chatted with April Holowka from Charlotte, NC. We discuss managing our various health challenges and ways we can take care of our physical, emotional, and mental well-being.
What is the "elephant in the room"? The elephant in the room is discussing intimacy, talking about our spots in private personal settings, and other aspects of intimate encounters, such as trust and consent. This is a mature topic that we rarely discuss in our Vitiligo support communities.
This conversation is intended for mature audiences only!
LIVE conversation for the nursing home of Anne Marie in Dwnver, CO
She has had VIT since the age of 21
Welcome to episode 4 of Perspectives. This episode focuses on love and relationships. My relationship panel consists of Millicent Meadows, Darius Dempsey, Hope Carter, James Smith, and Tanya Smith. We discussed red and green flags, ideal mates, climbing out of communication pitfalls, creating a perfect union like Voltron (I just snapped back to the 1980s), and so much more.
It's always wonderful to hear other adult perspectives on love and relationships. We had a great conversation!
Listen to the podcast, think about the content, then let me know your thoughts by emailing me at llandlpodcast@gmail.com.
This is episode 3 of Perspectives. My guest is a professor from The Triangle School of Theology, Dr. Henry Wells from Apex, NC. We discuss diseases and skin conditions from a religious point of view. Tune in to hear what knowledge Dr. Wells shares regarding viruses, diseases, the importance of medicine, and medical professionals. We get a few laughs in, too!
Episode 2 of Perspectives features members of Purple Patch Teens, a VITFriends group created for teens living with Vitiligo.
We have some awesome teens in our community! Tune in to listen to the future leaders of the Vitiligo community and future scientists of the world. The children are our future!
Welcome to my new limited series called Perspectives. This series will focus on the Vitiligo journey through the lenses of spouses, siblings, friends, colleagues, and our teens. Ep: 1 features Dominic Roufs, husband of Vitfriends Minnesota leader, Alicia Roufs.
This episode features Reagan Young from Beaumont, TX. We can never discount the experiences and wisdom of our young adults. Please tune in to hear another inspirational conversation from someone living their best life as they navigate their Vitiligo journey.
Yes! Two episodes of Brother 2 Brother in one week. This episode features Timothy Farrar aka Bishop from Cary, NC. We discuss knowing and understanding our purpose in life. Since this is the Brother 2 Brother segment of LL and L, we discuss being men and being transparent with ourselves and others.
This episode features Donelle Farrar from WSN Live. Have you ever envisioned your podcast, sports commentary, church service, or live play on your own streaming service? Donnelle is here to discuss what WSN Live is and how it could benefit schools, churches, and non-profit organizations.
Am I my brother's keeper? Yes, I am! This episode features my line brothers from the Iota Chapter of Phi Beta Sigma on the campus of Shaw University. We discuss our experience as young Black men in college in the 1990s, the impact of attending a historic HBCU, and where we are in life 30 years later. You don't want to miss this fun, informative, transparent, and emotional discussion.
This episode features The Faces of Vitiligo Documentary creator, Denise Powell. We discuss understanding and learning about Vitiligo, her documentary, and future projects from DP Global Media, INC.
This episode features Whitney Maxey, Durham for All. We discuss activism and advocacy in our communities, the importance of organizations working together for a common cause, and the importance of voting during primaries and elections. This discussion is more than just about Vitiligo, it's about all of us coming together as a community.
This episode features Dawn Alexander and her husband, Clarence Alexander. We discuss WVD, faith, and Dawn's journey with Vitiligo, as well as, hearing about her journey through the eyes of her husband, Clarence.
This episode is focused on the impact of Vitiligo on our mental, physical, and emotional health. My panel of 5 Vitiligo community members engaged in an open and honest discussion about Vitiligo, other health challenges, and positive ways we cope to get through the tough moments while living with this disease/condition.
The NC Vitiligo Support Community had an opportunity to host a question-and-answer session with Dr. Victor Huang. Tune in to hear detailed answers to our questions regarding types of Vitiligo, treatments, natural remedies, and other topics.
This episode's guests are TJ Johnson and Roy Leung. We discuss our journeys as men living with Vitiligo, treatments, relationships, and World Vitiligo Day 2022 in Bloomington, Minnesota.
This episode is an informational about the Incyte Ingenuity Awards that was revealed during World Vitiligo Day 2022.
I had the opportunity to attend the SOCS Dermatology Summit in Washington, D.C. I want to share my thoughts and opinions based on my experience listening to and interacting with the medical industry leaders and other organizations.
Who is Natassia: wife, mother, college, career, hobby
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How long have you had VIT
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Any Family History
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Treatment you've tried
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What helped you COPE and your support system
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When did you start writing?
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Is your Book - The Adventure of Cookie YOUR life story?
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Who is Natassia: wife, mother, college, career, hobby
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How long have you had VIT
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Any Family History
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Treatment you've tried
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What helped you COPE and your support system
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When did you start writing?
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Is your Book - The Adventure of Cookie YOUR life story?
This is a special Father's Day message for all the fathers, grandfathers, stepfathers, mentors, and teachers.
On June 6th, 2020, I was asked to share my Vitiligo journey on the radio. This was the 1st time I've spoken about my Vitiligo and the challenges that come with living with the condition. After that episode, I felt a weight lift off my shoulders. Today, June 6th, 2022 I've been podcasting for 2 years, but it seems like forever. I look forward to the many interviews and changes year 3 may bring. Tune in for a short, yet informative show about the types of Vitiligo.
Welcome to another episode of Living Life and Love: Brother 2 Brother. Tune in to hear the thoughts and experiences of two educators.
June 1st is the start of Vitiligo Education and Awareness Month. Here's a short message from Mark Braxton, Lead Podcasts Host for Vitfriends Podcasts.
June 25th is World Vitiligo Day and is approaching at light speed. On this podcast, I'm joined by comedians, Scott and Kevin, who will perform during World Vitiligo Day 2022 in Bloomington, MN. We discussed living with Vitiligo and comedy. We managed to get in a few laughs during the podcast.
Do you know what the brothers go through in their Vitiligo journey? Tune in to the next episode of Living Life and Love: Brother to Brother with Jeff McNeill. Hear Jeff's journey while living his life with Vitiligo. We kept it real and really open about Vitiligo.
Have you participated in a Vitiligo Clinical Trial? I haven't. Why? I never meet the criteria. Listen to my thoughts and experiences with clinical trials, focus groups, and phone surveys.
Tune in for a short Mother's Day tribute to all the mothers in the world. Enjoy your special day!
This episode is about the men and our Vitiligo Journeys. I wanted to provide the men an opportunity to discuss what it's like to be a man and live with this condition called Vitiligo. Tune in to hear what we have to say. This is part one of an ongoing discussion.
This episode features Mark T. Wilson, Co-founder of RichKid Money Bear clothing line. Learn how an idea and a passion turned into a small business that was featured in NY Fashion Week.
In this episode, I take a journey back to the 70s, 80s, 90s, and early 2000s to take a look at children's cartoons to explore diversity and representation, or the lack of. I'm not on this journey alone. I'm joined by TJ Johnson and Sharon King. We had a great time traveling down memory lane and peeling back the layers to some of our favorite cartoons. How well did each era cover diversity and representation? Tune in at 7 PM EST to find out! Maybe we see some Vitiligo representation in children's programming. In the meantime, check out the Black Sands web toon on YouTube for some Vitiligo representation.
I'm back! This episode features Aaron woody from Atlanta, GA. Aaron discusses his experience living with Vitiligo and how he overcame his challenges. We discuss the 2022 Vitiligo Summit and its impact on our lives. Tune in at 2 pm to hear this great conversation with Aaron Woody from Atlanta, GA.
Living Life and Love at Night is back with my personal thoughts about the 2022 Vitiligo Summit in ATL.
This episode features author, actor, professor, and motivational speaker, Dr. James Williams. Tune in to find out what Dr. Williams has to say about discovering your potential and what's love got to do with it.
-Who is Kimberly
- How long have you had Vitiligo?
Any family history of Vitilig?
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Experience, Diagnosis and Treatment
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The JOURNEY....etc....
Welcome to the 1st episode of Faith for the Journey with Diane Wilkes Tribitt. Faith for the journey speaks about everyday life and how faith, trust in God, and religion play such an important role in your next steps. Tune in to this new transformational series hosted by Diane Wilkes Tribitt.
This episode's guest is Dr. Victor Huang. We discuss past and current vitiligo treatments, and the future of treatments for the vitiligo community. We also discuss clinical trials, representation in publications within our community, and the VITAL project. Tune in to hear this informative conversation with Dr. Victor Huang.
This episode features Indy rap artist, Twotone Johnson. We discuss his journey with vitiligo, his music career. the inspiration behind the song BeYOUtiful, and his upcoming projects. Tune in to hear this special conversation with Twotone!
In this episode, I have a great conversation with Southern Soul singer, A.G. Thomas from Raleigh, NC. We discuss music, his connection to the music industry, and learn how music has changed his life. This is a must-hear conversation for ANYONE with aspirations to become a singer, an interest in the performing arts, or who simply loves music.
Welcome to round 2 of our relationship discussion. This time we focused on how do you get the date, being creative in relationships, and keeping the marriage alive. We dig a little deeper to provide great ways to keep things fresh in our relationships. We explore fun and easy dating ideas, non-sexual intimate activities, and easy ways to turn that spark into a flame that burns for a lifetime. This episode also features some original poetry spoken over music. Listen with your earbuds or headset on so you can feel the full audio experience.
Tune in Sunday, February 13th at 2 pm for the Living Life and Love Bowl, watch the Puppy Bowl, then prepare for the Super Bowl...Halt-time Show!
Love will strike you at a moment's notice. Tune in to hear how this couple's paths were destined to cross. T.J. and Michelle have a love story to tell and they're going to tell it! Sit back and relax as we talk about life, vitiligo, and love.
This special episode will feature the three ladies who will be guest speakers at the Vitiligo Summit in Atlanta, GA, March 11th-13th. Tune in to hear from the ladies and find out what's on their minds.
This episode features Rodney Poole from talkitoutnc.org.
Do you know a child that's considering underage drinking? Do you know an adult who may need some support to curb alcohol and drug addiction? You may ask what does this has to do with vitiligo? If you're a person living on this planet, then you may know someone who has gone through addiction or maybe someone experiencing drug and alcohol addiction right now. Tune in to this informative conversation with Rodney Poole.
In this episode, I provide some updates to my upcoming podcasts and other events in the vitiligo community. I also share my thoughts and opinions about leaders vs managers.
This episode will provide information and updates about the Vitiligo Summit March 11th-13th in Atlanta, GA.
Who is Daniellle
When was your vitiligo first diagnosed
Family History and treatment of VIT
Life with Vitiligo
When did writing begin for you?
How many book and tell us about "I've got Spots"
Many members of the vitiligo community are talented and possess various skills. Monika discusses her experience in the film industry, modeling, and her passion to write a book documenting her journey with vitiligo. We ran out of time during the 1st podcast. Part 2 of her story will encourage our listeners to chase after their dreams and never let anything, including vitiligo, stop them from achieving their goals.
This episode will feature updates to the vitiligo community events happening nationally and across the seas.
Tune in for a special convention update and a message for the listening audience as we prepare for what the year 2022 may bring.
Interested in clinical trials? Afraid to take the steps to join a trial? Do you need someone to advocate on your behalf? There are organizations that will serve as ambassadors before and during a clinical trial.
Tune in to hear from Allison Kalloo from Clinical Ambassador. Find out more about Clinical Ambassador and Allison's personal connection to clinical trials. Learn why clinical trials are important to the medical field, research, and your personal health.
This episode is not about vitiligo. This episode is about a condition we hear about, but some of us may not know much about it. It's called Hemophilia. Listen to Erica Kendrick's journey as a parent supporting her young child who lives with hemophilia. This is a very emotional and informative discussion, although we managed to get in a few laughs. Please tune in!
Tune in to listen to this great conversation with new vitiligo family member Grover Neal. Find out his greatest inspiration and hear his thoughts about living with vitiligo.
What do the Carolina Panthers and the North Carolina Vitiligo Support Community have in common? Watch their game against the Atlanta Falcons this Sunday at 1 pm EST and you'll see. The Panthers will be showing their support for the vitiligo community. Keep your eyes on # 31, Juston Burris. His cleats will show support for the vitiligo community.
Andrea Thomas is a model with Vitiligo breaking down walls and unrealistic standards in the beauty industry. You may recognize Andrea from Summersalt's Beach Body campaign. Andrea shares with us her experience of growing up with Vitiligo and becoming the person she is today.
This is another special episode of Living Life and Love at Night. This show is all about relationships. I decided to bring other voices to the conversation. My panel consists of 3 men and 3 women from various relationship statuses. I have someone married, never married, divorced and single, and divorced and dating again. Tune in to hear part 1 of a 2 part discussion on relationships. Part 2 will air in February 2022.
My guest in this episode is Monika Kopcilova from the Czech Republic. Monika is also a member of the vitiligo community. She shares her journey as someone living with the condition. She tells her experience about learning to cope with vitiligo and how to live a better life. Tune in this Sunday at 2 pm EST.
This episode includes a special Thanksgiving message and an update for my upcoming podcast with Monika from the Czech Republic.
Meet Duke University Medical Student, Camille Robinson. Camille shares her story as a medical student supporting the vitiligo community. Camille brings a different perspective to vitiligo, treatments, and the medical field. Learn why she decided to pursue the medical field. Tune in at 2 pm EST to hear another great conversation.
Tune in to this special edition of Living Life and Love at Night. My special guest is Tania Magras from Hull Bay Productions. She is the producer of the More Than Our Skin documentary and has been featured on our podcast before. Tania gives us some insight into her upcoming film featuring members of the vitiligo community and the impact it has had on her life. We dive into other topics important to the vitiligo community, as well. Listen to the end of the show, so you can find out how you can support this very important documentary.
In this episode, I provide updates to my upcoming podcast and give information about upcoming Vitfriends programs.
I also share my thoughts about numbers and how we support others in our community.
How long have you had Vitiligo and Treatment tried
Family history and experience with Vitiligo
Your support system in those early years
Emotionally handling vitiligo - worse experience
Connecting with MN group
your support system today
This episode is about cutting ties to what's keeping you from growing. The topic can be applied to relationships, organizations, and friendships, however, this topic is about being tethered to a job or career.
You are what you speak! Tune in to hear my thoughts about speaking negativity into your life, being careful what you say about others, including yourself, and being mindful of what you post on social media.
This episode features military veteran, Tanya Fortune, from Fayetteville, NC. Tune in to listen to Tanya's inspirational story about serving in the US Armed Forces and her journey living with vitiligo.
This is the final segment of my Healthier You campaign for October. Please listen in to hear about the health benefits of Zumba and alternative forms of fitness. Tune in for this exciting episode.
Tune in for my November updates, my thoughts about Halloween, and other vitiligo related topics.
Am I my brother's keeper? Tune in to find out my thoughts about taking care of one another.
This episode will feature licensed therapist, Stephanie Ritcherson from Austin, TX. As we continue to learn how to live through a pandemic and experience other stressors in life, we need to continue to focus on our mental health. We discuss how mental health issues impact our lives and what can we do to help us navigate through the mental health challenges we experience on a daily basis.
Tune in to hear this very important topic. Please note, I will continue to bring on various health experts and revisit topics that have a crucial impact on all of us, such as, mental health, nutrition, and fitness.
Are you looking for healthy food alternatives to add to your diet? Have you tried vegan food before? If not, hear from a husband and wife team that decided to become Vegans. Let's learn why they chose veganism as a way of eating healthier and discover how it has changed their lives. I didn't forget about the love. Find out how they met and what happened shortly after.
Tune in for another great episode of Living Life and Love this Sunday at 2 pm EST.
Who is Crystal Alexis? (Married/single/work/Career/Education)
How long have you had Vitiligo?
Family history and TREATMENT?
Your SUPPORT system?
Your work with Vitiligo and yourModeling
Your lastest TRAVEL
Tune in to my October podcasts updates. I'll have 3 podcasts for the month of October, which I've dubbed A Healthier You Month. This episode will give some insight to my topics and guest.
This is a special discussion with fellow educator and vitiligo community member Diane Wilkes Tribitt. Tune in to hear our thoughts and feelings about stress in the era of Covid-19.
This episode is a charge to the vitiligo community to reach out and help others during the upcoming Thanksgiving and holiday season.
Living Life and Love at Night Episode 9:Questions
This episode is simply about questions we may have about vitiligo and living with vitiligo.
In this episode, I cross the border(virtually) to Canada to speak with Pauline Burdett about her vitiligo journey. This is a great conversation to learn more about our international community and understand the differences in healthcare for vitiligo.
Boots on the ground and surfing the airwaves!
Tune in to this inspirational conversation with Pastor Sharon Dean from Wake Chapel Church in Raleigh, NC. We discuss faith, hope, trust and purpose.
Welcome to episode 8: The Community. In this episode, I share my personal thoughts about what I see happening in the larger vitiligo community, not one particular organization or group. These are my personal thoughts and feelings and do not represent the thoughts or ideas of the Vitfriends leadership or board. The feelings expressed are to bring awareness to some of the challenges within the vitiligo community with the hope that we unite as one as we continue to spread vitiligo awareness and education.
Episode 6 is available now. This episode is all about forgiveness. Tune in to hear my thoughts about the subject of forgiving others...and yourself!
Here's the next episode of Living Life and Love. Tonight's topic is LOVE. Tune and hear my thoughts and opinion on the subject.
Meet Dr. Natalie Montague from Raleigh, NC. Dr. Montague or Dr. Natalie is a psychologist. former high school educator, author, and owner of Art of Life Consultations. Tune in for this informative conversation about PTSD, trauma, and ways we can cope and navigate the challenges of life.
This episode features the only surviving member of the Philly singing group, The Intruders. In this short podcast, you will learn about my surprise guest, hear how he became involved in the music industry. He also shares wisdom about life, family, and support. Don't miss out on this special podcast.
This episode of Living Life and Love will feature members from Delta Sigma Theta, Zeta Phi Beta, Sigma Gamma Rho, and Phi Beta Sigma from the oldest HBCU in the south, Shaw University, located in the historic district of downtown Raleigh, NC. In this episode, we discuss my vitiligo experience, the importance of educating others, unity between organizations, a little HBCU history, and networking. Tune in to find out what the Greek letter organizations know about vitiligo and what we can do as organizations to help spread awareness and education.
WHO is Audrey Stockum?
HOW are you familiar with Vitiligo?
HOW did you get into Writing and WHY Vitamins
Where are you NOW as far a treatment?
Vitiligo THEN and NOW - what does the future look like in your opinion for our condition?
What's NEXT for Audrey Stockum? Any more BOOKS?
Episode 4: Vitiligo Men
We have many groups with many members, however, one group is missing. Where are the men? What are we doing to connect with men to keep men involved? In this episode, I share my thoughts about the men in our community.
This is episode 3 of LL and L at Night. My topic is vitiligo education. Tune in for a brief conversation about the importance of educating people about vitiligo.
In this episode, I talk about mental health. I share my thoughts, opinions about mental health, and share my own struggles.
What do you do when the thunderstorm rolls in, can't sleep, up late at night, and the mind starts to wander? You create a new podcast called Living Life and Love at Night. No questions. No guest. Only the host and the mic.
This podcast is designed to give the host a moment to share thoughts and opinions on various topics related to vitiligo and life. Further topics to be determined in the near future.
This episode will feature MyHealthTeams, co-founder and CEO, Eric Peacock. We'll learn about Eric's journey with vitiligo, his work within the vitiligo community, and the creation of MyVitiligoTeam.
I'm offering some guidance on how to navigate the deep rooted insecurities and low self-esteem around your Vitiligo when dating or maintaining a long-term relationship or marriage. I hope to shed some wisdom on my experience and help you on your journey in finding love or companionship. All I want is for you to feel confident that you too can have a strong foundation in your love life even if you have Vitiligo. I want you to feel good about moving forward in finding your happiness.
This is a follow-up conversation with comedian, Ty Raney from New Jersey. Ty helped us kick off our 1st ever story-telling event. Tune in to find out what Ty has been up to since October 2020. You can follow Ty Raney on youtube.com and visit his website tyraney.com.
Vitfriends Co-host, Tiffany Grant, has been an advocate for the Vitiligo community for the past several years. In 2015 she got a tattoo showing the world her vitiligo and launching her It's Called Vitiligo campaign. Join Tiffany as she discusses coping skills for living with the Auto-Immune Disease Vitiligo.
Who is Christopher (married/children/job/hobby)
How long with VIT
Treastment tried & results
Your Support system
and more.....
Who is Diane (wife/mother/teacher/Etc)
How long with VIT / Family History of VIT
Treatments tried / Make-up tried
Support System / Meeting others with Vitiligo
Experience Attending Detroit 2017
and more.....
Jackie McDonald is from California
Jackie has had Vitiligo for 27 years
Jackie is the creator of Vanquish cosmetic to cover vitiligo spots
Jackie's product is over 15% for the month if June - Vitiligo Awareness Month
Tune in to this exciting episode featuring members of the Purple Patch Teens program and their parents. Hear the journey of two of our teens, Bella and Priyanka, living with vitiligo. Listen to their inspirational stories of acceptance and triumph. We'll also hear how vitiligo impacts the lives of the parents of Bella and Priyanka.
This is another great conversation from the vitiligo community. Who is Greg Parmer? Tune in to find out. Remember, June is Vitiligo Awareness Month. Empower one another. Educate someone about vitiligo. Advocate for a condition that affects 1% of the global population.
This is a pre-recorded conversation from the Partice Smith podcast and radio show featuring Mark Braxton and Katrina Christian. This was a great way to help spread itiligo awareness across the state of NC and beyond.
Who is Narieca (Family/Hobby/Career)
How long have you had Vitiligo?
Family History / Treatment / Make-up
Your support System
....and more....
Tune in to this exciting conversation with Andre NJ. Who is Andre? What is his vitiligo journey? Do you want to know how vitiligo affects men? Why should men seek support? Listen to our show to find your answers and so much more.
Who is Dawn (family, work, children, education, etc)
How long with VIT -Family History of VIt
Treatments tried - Make-up tried
Your support system during those early years
Importance of Support Groups
Black Expo and Round Table experience
and more....
Who is Tiffany (family, work, children, education, etc)
How long with VIT -Family History of VIt
Treatments tried - Make-up tried
Your support system during those early years
Importance of Support Groups
Experience Attending Vitiligo Conference
and more....
This is a special conversation between 5 men of leadership in the vitiligo community. Ben, Andre, Perry, Terrell, and Mark discuss ways to bring the larger vitiligo community together, ways to support our men, and how we can bring more men to the forefront of the vitiligo community.
Tune in to this inspiring conversation from the men of the vitiligo community.
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Who is Kurtis
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How long with Vitiligo - any treatments
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Coping with VIT as a Teenager
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Your Support System
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TX Support Group
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Conference 2019 TX
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Basketball and your future
Presidents GREETING - Happy World Vitiligo Day!
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more than our skin
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NEW addition
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Next podcast
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NEWS!!!!
...and more....
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Who is Victoria
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How long have you had Vitiligo
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Family History of Vitiligo
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Treatments and Make-Up
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Strongest support
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Support Group in your State
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Art CLASS with VITFriends
This pre-recorded episode features Sharon King from Litty Ligo. We talked about life with vitiligo and the importance of proper representation in movies, tv, and the toy industry. We had a blast talking about our skin condition, sharing funny stories, and simply sharing our passion for all things geeky, vitiligo, and in between.
Meet Akenna a former Flight Attendant for the island nation of Trinidad in the Caribbean.
A beautiful wife and mother and a Christian young woman, Akenna shares here journey of STRUGGLE and TRIUMPH living with Vitiligo.
Here desire is to see VITFriends in T & T, which means Trinidad and Tobago and we support her!
WHO is Charon?
How Long have you had Vitiligo
Was Vitiligo something familiar to you - Any Family history
Treatment and progression of your VIT
Coping and Support system
Experience attending our 2016 Inaugural D.C. Vitiligo Conference
Houston Support Group - Houston Conference 2019
This episode will feature Kimberly Dell Robinson. This will be another great conversation about vitiligo and her journey with the condition. Make sure you tune in!
Mom - when did you first notice your sons Vitiligo and what did you do?
SON - How was those early elementary years - ANY bullying, shame, etc
Mom - Words to parent about being vigilant yet supportive
Son - How were those TEEN years with your Vitiligo, girls, socializing, etc
Mom - Support Group and Conference experience and neessitry
Son - What have you gain/learned over the years.... How is college freshman year adjusting
Mom - Tell us about support your family, yet time to be crowned Ms Elegance USA
San - Derek your future hopes and dreams and what would you say to someone newly diagnosed
Mom - Words of encouragement to a parent with a child with VIT and what they can do
This is a special pre-recorded conversation with Aparecida Oliveira from Brazil, translated by Taciana Saab. This conversation took place via a video format and converted to audio-only for our podcast audience. This is my first podcast with a vitiligo member from another country, We had a great conversation. Expect more in the future!
This episode will feature Alisha Archibald from Athens, GA. Alisha will share when her journey with vitiligo started and the impact on her life. We'll also learn about the wonderful things she's doing to spread vitiligo awareness in the state of Georgia.
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Who is Mira Walker? Life, Career, family, etc.
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How LONG have you had VIT
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Treatment tries - Makeup?
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History of Vitiligo
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Your support sytem/Your support Group
- June 2018 Awareness photos
- Words of encouragement to someone newly diaganosed
WHO is Pamela Bradley? Life, Spouse, Family, Career, etc...
How long have you had Vitiligo?
Treatment tried....Makeup use...Percentage of body with Vitiligo
Any Family history or familiarity with Vitiligo before your diagnosis?
Your support system...or...Support Group
WVD - Vitiligo Conference EXPERIENCE
Where are you in your VIT journey
Future for Pamela
Words of Encouragement to some one listen and maybe struggling with VIT
This episode will feature DJ Shel Rock from Charlotte, NC. We'll hear his journey as a disc jockey spinning the sounds while living with vitiligo. Tune in for his awesome journey!
Who is Angie McAdoo? (Family, work, Fun, etc...)
How long have you had Vitiligo and ANY treatment tried?
Any family history, experience or knowledge of Vitiligo before your diagnosis?
Vitiligo Advocacy and Church efforts
Support Group and your experience?
Have you attended any Vitiligo Conferences?
Words of Encouragement for others with Vitiligo.
This episode will feature Lawrence Wingate from Charlotte, NC. Lawrence is the co-host of the NETWORK show on Facebook and chairman of Wingate Studios. Tune in to hear his inspirational journey with vitiligo.
Who is Lori Mitchell? (Life, work, family)
How are you familiar with Vitiligo?
When did writing begin?
Tell us about your writing and reading at schools
Your connection and support of VITFriends
You attended the FDA Vitiligo meeting, how was that for you?
The future of Vitiligo in your opinion
Words of Encouragement for a PARENT with a child with Vitiligo
Who is Phyllis? (Family, work, etc...)
How long have you had Vitiligo and ANY treatment tried?
Any family history, experience or knowledge of Vitiligo before your diagnosis?
WRITING - what was your motivation?
Support Group and your experience?
WVD Conference 2017?
Words of Encouragement for others with Vitiligo...
This episode will feature Ben Brown, founder of the Vitiligo and Albinism Network. Tune in to hear his journey with Vitiligo and what inspired him to merge two organizations into one inclusive network. His story is one of hope, healing, and triumph.
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Who is Lidya (married, single, college, career)
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How long have you had VIT - Any family History - and - Any treatments
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Coping with VIT in the early years
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Support system - 100% of depigmentation
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Film Director, Producer, Speaker, Entrepreneur
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Attending Vitiligo Conference - Your experience
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Words of encourage to a person struggling with their vitiligo
*Alma's VITILIGO Journey
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When were you first diagnosed with Vitiligo
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How did you handle the diagnosis
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Any family history ...and... Any Treatment tried
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How much of your body is depigmented
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Our tist meeting in 2007
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Houston support group
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Where are you now on this journey
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What can you say to a newly diagnosed VIT person
A moment to love is a moment to live. Join us for a special poetry reading sponsored by the Vitfriends community. February 14th is the perfect opportunity to share words about relationships and love. Love is in need!
The host of Living Life and Love, Mark Braxton, and fellow NC Vitiligo Support Community member, Kimyetta Mac will share poetry and discuss the magical L word, Love.
Join us for A Poetic Lover's Day Out!
Who is Jeff (Married, Family, Career, Vocals)
How LONG with VIT?
Treatment TRIED and 100% of body depigmented
Friends since 2015 and plans for our Inagural VITILIGO gathering in DC in 2016
Your Support system and support group
What's next for Jeff Swan
Words on Encouragement
Who is Nakeyia?
How long have you had Vitiligo?
Family history of Vitiligo? Any treatments? SUPPORT system.
When did you begin writing? How many books have you authored?
What's NEXT for Naheyia?
Words of encouragement....AWARENESS
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Who is Shareka (Wife, mother, RN, etc)
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How long with Vitiligo? Any Family History of VIT?
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Coping in the early years of VIT and Treatments
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Our conversation in 2016
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Where are you now in the journey?
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Word of encouragement to someone newly diagnosed
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We have a group in Hampton hoping to see one in your area
This episode will feature vitiligo community member Joshua Hampton. We'll hear his journey with vitiligo and how he overcame the many challenges that the condition presents.
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Who is David Thorn
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How long with Vitiligo
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Family history of Vitiligo and Treatment
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Your Life and Your Winery
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Our meeting in Detroit 2017
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Ohio VSTRONG Support Group
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What's next for David
This podcast will feature Myrella Cruz, a vitiligo community member and researcher from Ponce, Puerto Rico. Tune in to hear her journey with vitiligo and her influence in the research science field.
.How long with VIT .Used make-up
.Family history of VIT
.Work/Career - NIH
Newspaper article April 2020 - BLOOD plasma
.What do you do in your leisure/FUN time
.Stage of your vit now
.Any support group
.2021 holds for you
Anthony's JOURNEY: Anthony is originally from PA and has lived abroad over 20years. Anthony speaks several languages and is a talented musician and dancer.
This episode will feature a discussion with Katie O'Connell. Katie is a medical student working with the VA Vitiligo Awareness Movement.
This episode will feature a discussion with VitFriends member Jeremy Ward. We'll talk about his journey with vitiligo and his thoughts on living life and dating with vitiligo.
This episode will feature Kristin Tissera, Vitfriends medical student from Tufts University. We'll learn about her work with the Vitfirends organization, her connection to the vitiligo community, and her future as a medical professional.
This episode will feature Wake County Public Schools Librarian, Christine Zaccardi. We'll discuss the importance of representation and diversity in the school setting, explore ways schools can partner with non-profit organizations; such as Vitfriends, and learn what resources are available to assist with vitiligo awareness campaigns.
This podcast will feature the Director of Curriculum and Instruction in NW Tennessee, Renette Scott. We'll talk about the importance of inclusion based curriculum, vitiligo advocacy, and explore ways to get vitiligo awareness out to the community through our youth.
2020, the year when the unexpected happened! Are you frustrated? Stressed? Depressed? Uncertain about everything? How are you coping with a year in turmoil?
This podcast will feature life coach and therapist, April-Autumn Sparks from Raleigh, NC. We'll discuss how major and minor events of 2020 have impacted our lives. We'll explore some positive coping strategies to help us navigate the uncertainty of a year gone wild. She'll also talk about the myths surrounding therapeutic and counseling services in various communities.
Tune in!
Vitiligo can present many challenges for those of us who live with the condition. How has vitiligo changed the way you date? This episode will feature Rochelle from the VA Vitiligo Awareness Movement. We're going to have an exciting discussion about discovering and maintaining love while living with Vitiligo. Please tune in at 2 pm!
In this episode, I'm speaking with Joshua Leonard, founder of Leonard Studios. We'll discuss the importance of inclusion in TV, cartoons, and movies. We'll learn about his fresh new project, Team Supreme. Tune in to this fun and exciting episode that'll definitely have you looking at your favorite superheroes in a whole new light. Remember the name of one unique team of heroes, Team Supreme!
This episode will feature the founder of the NC Vitiligo Support Group, Cawan LE. We'll discuss her personal and inspirational journey with Vitiligo. We'll also talk about her purpose and process of creating the NC Vitiligo Support Group.
This episode will feature Kim Stotts, a teacher at Fox Rd Elementary School in Raleigh, NC. We'll discuss teaching our youth with unique disorders, such as Vitiligo and reflect on other challenges our students face. We'll also discuss ways teachers can prepare themselves to gain a better understanding how to teach students with Vitiligo. Fox Rd Elementary has a unique history with Vitiligo. Two current students have Vitiligo, a parent has Vitiligo, a staff member has Vitiligo, and a former custodian. Please tune in for this special episode of Living Life and Love.
How long have you had vitiligo - and - Any family history?
Support in your early year - and - your thought of support today?
Your WVD/Conference experiemce?
you role and work and purpose of GVF?
What do you know of:H.R.3520 - 95th Congress (1977-1978): National Vitiligo Control Act ...
The FUTURE of Vitiligo?
TIME: 12:30pm (est) and 10:30pm (mst)
How long with Vitiligo
Your families journey with Vitiligo.
Cheri was our August 4, 2014 - VIT STAR
Vitiligo support community in Denver
(Peer support specialist)
Question and answer discussion with one of the founders and owners of B10 Cosmetics. This is a Black-owned business that launched in July 2020. We'll discuss why she started her company, ways that she can support our vitiligo members that wear make-up and discuss the importance of having products that cater to our unique skin.
This episode will feature NC Support Community Leader, Katrina Christian. We'll learn about her challenges with vitiligo and how love helped her to accept her vitiligo.
This episode will feature an open discussion with Terrel Midget, one of North Carolin's biggest Vitiligo advocate and one of the leaders for the NC Vitiligo Support Community.
Who is Yan and When diagnosed with VIT
Role of your org VRF
Origin of WVD June 25
Connecting with VITFriends
Visiting VITFriends 2015 and State House Rally
WVD 2016 D.C.
Vitiligo ocerseas
Future of Vitiligo
Meet Gerline from Saint Martin, an island in the Caribbean under Netherland leadership
How long with VIT and how wide spread is VIT in St. Martin (others with VIT)
Life and dating, etc with Vitiligo
How did you connect with VITFriends
Your conference experience
Words of encourage to someone NEW to VIT
Special GUEST - Elijah of Detroit, Michigan
Age & Experience with Vitiligo
Experience with Bullying
What is Pen Pal Patch - your Pen Pal
Your Vitiligo Conference experience
April shares her JOURNEY with VIT
Who is April - age, school, etc...
How long with VIT any TREATMENT?
Experience with Bullying
2016 on the u.S. Capitol Steps D.C.
Why is it important to attend the Vitiligo Conference
April shares her JOURNEY with VIT
Who is April - age, school, etc...
How long with VIT any TREATMENT?
Experience with Bullying
2016 on the u.S. Capitol Steps D.C.
Why is it important to attend the Vitiligo Conference
Special GUEST - Aliya share how she is coping
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With VITILIGO during COVID-19
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With SCHOOL online
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With the crisis in the Nation
Sharing personal stories about Vitiligo and relationships. Sponsored by Vitfriends. Hosted by the NC Vitiligo Support Group.
We just celebrated Vitiligo AWARENESS Month, JOIN US as we share Updates from our 2018 Vitiligo Conference June 22-24 @ the University of MA Medical School
Alex. a great inspiration to many has been off social media for a while and we all missed him deeply, but He's BACK!
Back to school TALK with our VIT Children. Special Guest: April STAR and several others...
Alicia will share her personal story of Vitiligo and her role leading our Minnesota group. Share wlll share what folks can do to get involved.
Special Guest Includes:
Natasha McCarthy of Vitiligo BOND
Pat Rossy of NY, VITFriends, Vice President
Valarie Molyneaux, VITFriends President and HOST, Boston, MA
A beautiful sermon that you will enjoy. This sermon spoke to me and I hope it will speak to you!
Share your favorite poem with this family. Call into our show pn Tuesday evening at 6:30pm and share a poem that has touched you, that speaks to your vitiligo, that means the world to you. We would love to hear it. Thank you!
Caitlin is a beautiful young lady from Long Island, NY who will share about her vitiligo journey. Caitlin will also share about her experience attending the VITFriends 2013 conference and the WALK for Vitiligo in Boston, MA
VITFriend, CT - Leader Millicent Meadows shares what is happening with VITFriend, CT and some future plans and her desire for a youth vitiligo group.
Hearing what VITFriends conference 2011 meant and how it has change an individuals view of thecondition.
How long have you had VIT Describe how you felt when you were first diagnosed Any Family History Treatments you have used Your Coping techniques What is your depigmented percentage Your Support System How has VITILIGO changed you What would you say to someone who was just diagnosed and are depressed
How long have you had Vitiligo? How prevelant is VIT in your circle of friends? What would you say to a young person who was just diagnosed with VIT? How do you cope? Talk about your support system.
Shirley is a wonderful woman and a person who has had vitiligo for many year. Hear Shirley's story and also hear her relationship with Vitfriends.
Sharing news about our Hartford, CT meeting an interview done by - Miss Valarie, President
Call in with New Year GREETINGS for a love one, a friend, the world of Vitiligo. Our Host is our Vice President - Miss Pat from Harlem, NYC
Tell your vitiligo story. Tell us about some of the treatments you have used. What are you doing now with medical students? Your role with this organization. What are your hope and dream for the future for Vitfriends and also for your own vitiligo. Because of your job you are always in the public, how is that for you as your vitiligo continues to progress?
How long has he had vitiligo? How has it been to minister with the condition? What percentage of his body has vitiligo? What has the support been like from spouse, family, friends, church? Would you ever consider re-pigmentation?
Sharing how she lives and deals with Vitiligo. Also, what is her new project and how can it help individuals with Vitiligo? How long has she had Vitiligo?
How long have you had Vitiligo? How do you handle your VIT? What would you like to change right now? Does other family members have VIT? What treatments have you tried if any? Would you ever repigment?
How long have you had Vitiligo? How was your teenage years with VIT? Does other family members have VIT? What medical treatment have you tried? Would you ever repigment? How does your family deal with your VIT? What and how would you encourage someone who was recently diagnosed with Vitiligo? We would love to have our conference 2012 in Hartford, is there a vitiligo community there?
A conversation with a FRIEND about how she handles her Vitiligo? How long has she had Vitiligo? What can she share with others who are battling and struggling emotionally with Vitiligo?