2 Parkies in a Pod: Recent Episodes
Dave Clark & Kuhan
If you want to know more about Parkinson's, or how to cope with chronic illness, then this is the Podcast for you. Between them Clarky and Kuhan have been living with Parkinson’s for more than 20 years. They chat openly and honestly about the challenges and even the benefits of living with the condition.
In this episode, we’re joined by specialist Parkinson’s nurse Becky Heslop, who recently starred in a film highlighting the vital role nurses play in supporting people living with Parkinson’s.
Becky talks us through what a Parkinson’s nurse actually does, from being a key part of your care package, to offering advice, reassurance, and hands-on treatments. We hear about some of the more practical – and sometimes challenging – aspects of her work, including giving Botox injections and helping people manage the Produodopa pump.
Please consider donating to the Nurse appeal at:
https://www.parkinsons.org.uk/donate/donate-great-care
We’ve hit a huge milestone – 50 episodes, and 2 Parkies in a Pod is celebrating in style!
In this special edition, we take you back through some of our most memorable moments:
✨ The inspiring Matt Eagles, who’s been living with Parkinson’s for more than 50 years, shares how he stays positive.
✨ Professor Tom Foltynie answers your questions at Queen Square and explains how to prepare for your consultation.
✨ From Episode 20, Canadian broadcaster Harry Forestell tells us what it was like to meet Michael J Fox.
✨ Dementia expert Rimona Weil on why she fell in love with neuroscience.
✨ The Top 10 symptoms
✨ Plus - The moments when things didn’t go quite to plan – including that fit of the giggles!
This week on 2 Parkies in a Pod, we’re joined by television producer and editor Rob Burley. Rob has worked with some of the biggest names in political journalism – from Jeremy Paxman to Andrew Marr, Laura Kuenssberg to Emily Maitlis.
Diagnosed with Parkinson’s in 2021, Rob talks openly about his journey and the challenges of balancing a demanding career with the condition. We also discuss his fascinating book, Why Is This Lying Bastard Lying to Me?, which explores the history of political interviewing and shines a light on how the toughest questions shape public life.
Send us your voice notes at hello@2parkiesinapod.com
Rob's Blog:
https://unherd.com/2025/07/you-cant-hide-parkinsons-forever/
Rob's Book:
https://open.spotify.com/show/7KLaSpzKqS5x9fKKgLFMQj?si=ef8c8e47cf804fa7&nd=1&dlsi=80ebdbbb704d4d14
https://www.amazon.co.uk/Why-This-Lying-Bastard-Searching/dp/0008542481
Balls to Parkinson's Bike Ride:
https://ballstoparkinsons.co.uk/
Parkinson's UK Brain Bank:
https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank
Parkinson's UK Walk for Parkinson's 7th Sept :
https://events.parkinsons.org.uk/event/walk-parkinsons-battersea-park/home
Walk to Cure Parkinson's 28th Sept:
https://cureparkinsons.org.uk/get-involved/walk-to-cure/
Par-Con 2025 Parkinson's UK Community Convention 24/25 Oct:
https://www.parkinsons.org.uk/get-involved/par-con
Please rate, review & subscribe if you enjoy the show.
Dave and Kuhan take you behind the scenes of the Parkinson’s UK Brain Bank at Imperial College London. They witness an incredible brain dissection led by a world-class neuropathologist — an unforgettable experience.
Have you ever wondered how you can make a real difference to Parkinson’s research? Find out how you can donate your brain to science and help unlock the mysteries of this condition.
https://www.parkinsons.org.uk/research/parkinsons-uk-brain-bank
http://imperial.ac.uk/brain-bank
brainbank@imperial.ac.uk
Find out if Kuhan’s DBS surgery has improved his tennis as the boys play their first post-surgery match….
Par-Con 2025 the Parkinson’s UK community convention, is our free, 2-day event for the Parkinson's community. Join us in-person or online for talks, activities and to connect with others.
https://www.parkinsons.org.uk/get-involved/par-con
AMAZING THINGS
Adam Roberts the author of The Amateur Gourmet has gone public about his Parkinson’s …
Every Silver Lining Has a Cloud - by Adam Roberts
https://amateurgourmet.substack.com/p/every-silver-lining-has-a-cloud
Jimmy Choi American Ninja
https://www.facebook.com/share/v/1ALSbWFLiW/?mibextid=wwXIfr
And we take a moment to pay tribute to fellow Parkie and rock legend Ozzy Osbourne, whose honesty and grit continue to inspire.
hello@2parkiesinapod.com
In this powerful episode, Kuhan takes us on an intimate journey through his life-changing deep brain stimulation (DBS) operation. From the moment he arrived at the hospital, through the intense experience of surgery, to the emotional moment the device was switched on. He opens up about the challenges, the breakthroughs, and how life has transformed since the procedure. It’s an honest, moving story of resilience, hope, and the impact of modern medicine.
Watch Kuhan's moment of DBS switch on
DBS Quiet Miracle Article
Parkinson's UK DBS information
Stay Cool USB Fan
This episode is a big one for us. Kuhan is preparing to undergo Deep Brain Stimulation, or DBS — a life-changing surgery that could help manage his Parkinson’s symptoms. Joining us is a very special guest: a member of the surgical team who’ll be operating on his brain.
Harith Akram is a Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery at Queen Square, London.
He tells us how he escaped from Saddam Hussein's regime in Iraq, started medical school at 16 and invented the equipment that’s going to drill a hole in Kuhan‘s head!!
He also tells us what to expect when you’re having deep brain stimulation.
It’s personal, it’s powerful… it’s 2 Parkies In A Pod
Links:
Parkinson'a UK DBS information
Stay Cool USB Fan
Kuhan Hope Message
We can be Weirdos Podcast with Harith
Balance in Parkinson’s is a complicated thing but the good news is, help is on hand. We talk to expert neuro physiotherapist Laura Douglas, co-founder of Neuro Heroes and an expert in gait and balance. An informative chat, packed full of great advice to make your Parkie life a little easier.
hello@neuroheroes.co.uk
www.neuroheroes.co.uk
Neuro Heroes live classes over Zoom are for people based in the UK. People outside of the UK can follow along to these pre-recorded videos made with Parkinson's UK:
Low intensity workout with Neuro Heroes
Moderate intensity workout with Neuro Heroes
High intensity workout with Neuro Heroes
2 Parkies in a Pod Spotify playlist:
https://spotify.link/J7GX0gC40Tb
Walk with Me by The Wells:
https://thewellsparkinsons.bandcamp.com/track/walk-with-me
An Interesting Detail by Kimberly Campanello:
https://guardianbookshop.com/an-interesting-detail-9781526680594/
Mime Over Mind by Barbara Salsberg Mathews:
https://mimeovermind.com/videos/
The boys are back after a short break. Kuhan shares his sleep secrets, Dave takes a tumble, Ryan Reynolds speaks out about his dad‘s Parkinson’s and Steph has a positive take on sleeping in separate bedrooms, plus the pain of a PIP review.
AbbVie sleep video
https://youtu.be/1S6GauUXVec?
PD nurses attend St James palace event
https://www.bbc.com/news/articles/c2lzzjgvvw1o
Cure Parkinson’s ‘Question of Time’
https://youtu.be/bSyVviLug7c
Parkinson’s UK PIP Information
https://www.parkinsons.org.uk/information-and-support/personal-independence-payment-and-adult-disability-payment
Parkinson’s UK PIP Campaign
https://www.parkinsons.org.uk/news/what-latest-disability-support-reforms-mean-people-parkinsons
Pavilion Dance South West
https://www.pdsw.org.uk/
Lee Silverman Voice Treatment
https://www.parkinsons.org.uk/information-and-support/speech-and-language-therapy
Tom Finch Fundraising
https://www.justgiving.com/page/tom-hulme-1734256927282?utm_medium=FR&utm_source=CL&utm_campaign=015
Sports Parkinson's
https://www.sportparkinsons.com/
Ryan Reynolds Hallucinations video
https://www.moretoparkinsons.com/
Parkinson’s UK Helpline 0808 800 0303
hello@2parkiesinapod.com
Sleep problems can be a major issue when you have Parkinson’s. This week we talk to Jane Alty a professor of neurology at The University of Tasmania, Australia. She’s an expert in Parkinson’s sleep disorders. Her goal is to transform the brain health of adults globally - through research to detect the critical earliest stages of degenerative brain disorders.
She also reveals whether she thinks AI will solve the Parkinson’s conundrum.
Also this week.. The boys are full of the joys of spring, Kuhan nearly gets run over, Dave does a rap
And Hamming it up…. How a piece of Donald Trump ended up in a sandwich!
Sleep & Parkinson's
In this episode we head to Scotland and the Centre for Regenerative Medicine, University of Edinburgh. We chat with Professor Tilo Kunath one of the world’s leading experts in stem cell research. The hope is that one day, implanted cells can reverse Parkinson’s. Just how close are we to that elusive cure? What’s happened to the people who’ve been given stem cells? How freezing cockroaches in his mum’s fridge kicked off his scientific career…
Getting Involved in Research
https://www.parkinsons.org.uk/research/get-involved-research
Deep Brain Stimulation
https://www.parkinsons.org.uk/information-and-support/deep-brain-stimulation
Dave’s new shoes
https://www.nike.com/gb/easyon
Amazing Things
Ozzie Osbourne / Black Sabbath mega gig
Ukulele playing Peter
Aloha to Island living Lisa on Insta
In this episode, Dave and Kuhan explore the differences between men and women when it comes to Parkinson’s.
We hear from Clare Bale (associate director of research at Parkinson’s UK), Dr Clare Lehman (a General Practitioner who was diagnosed aged 37) and Jo Tosh (a retired nurse and star of the award winning DBS and Me series).
Together we discuss the unique challenges that women face with Parkinson's including getting diagnosed, the impact of hormonal changes and medication-related dyskinesia.
We also have a special announcement about our new partnership with Parkinson's UK.
People do amazing things:
The Parkinson’s raver
https://www.bbc.co.uk/news/articles/cp3j988jkwno
Judo for Parkinson's
https://www.bbc.co.uk/news/articles/czepkeexw4xo
Walk for Parkinson's 2025 is now open for sign ups!
https://events.parkinsons.org.uk/event/walk-parkinsons/home
A letter to my newly diagnosed Parkinson’s self
https://www.parkinsons.org.uk/information-and-support/your-magazine/stories/letter-my-newly-diagnosed-parkinsons-self
www.2parkiesinapod.com
We’ve reached a milestone on the podcast, our 40th episode, so we thought we’d celebrate with you the listeners. We dip into the mail bag and share some of your Parkinson’s stories.
Plus Dave walks into a tree, Kuhan reveals who inspired him to stay out until one in the morning dancing and drinking tequila and hear about a real life STAR of the community - a young woman who travelled half way around the world to share her experiences of the condition.
Brisk walking tunes 120 Beats Per minute
Propranolol for Parkinson's
Dave Clark Independent article
AMAZING THINGS
Springsteen raises $ for Parkinson’s
Why 2 parkies in a pod loves Leah Forster
The press upping pig farmer with Parkinson’s
The pitch perfect Parkie (Parkinson's UK)
We take a trip to Parkinson’s UK’s new office, learn about their recent brand refresh and talk to the boss Caroline Rassell. She gives us the low down on all things Parkinson’s UK, shares her plans for the year ahead and reveals how Parkinson’s has got more personal for her recently.
Parkinson UK helpline on 0808 800 0303
https://www.parkinsons.org.uk/
https://www.parkinsons.org.uk/get-involved
https://techguide.parkinsons.org.uk/
People With Do Amazing Things
Michael J Fox award
https://www.bbc.co.uk/news/videos/c2dx6gd0k66o
Kayaking scientist Guillaume Brachet …
https://parkinsonseurope.org/2024/12/13/person-with-parkinsons-is-developing-new-drug-
The Parky Blinders - Boxercise classes
https://www.bbc.co.uk/news/articles/cn9gy4vqvrvo
In this festive episode we talk to illustrator, mime artist and educator Barbara Salsberg Mathews @SalsbergMathews She’s the perfect person to put you in a great mood for 2025. Barbara has created and illustrated an amazing book about What Parkinson’s Feels Like' with contributions from the Parkinson’s community around the globe.
What Parkinson's Feels Like (free ebook)
What Parkinson's Feels Like (Amazon)
Parkinson's Europe
Parkinson's Canada
PD Avengers
Mime Over Mind
Paradoxical Kinesia
If art were a drug
Walk to reduce anxiety
Doing Amazing things ..
The story of one man and his dog
Michael J. Fox CNN Heroes Legacy Award
Larry Gifford honored with King Charles III Coronation Medal — PD Avengers
Meet the amazing Joy Milne who has the nose to diagnose Parkinson’s.
She first noticed the smell of Parkinson's on her husband Les. Years later a chance encounter made her realise that she could smell Parkinson’s on other people too.
Find out how her superpowers have changed the face of diagnosis, how scientists are using this amazing discovery and what Parkinson’s smells like.
Plus joy tells us the famous t shirt story about how the nose really did diagnose…
The Woman who can smell Parkinson’s BBC Documentary
Audrey’s 2025 Calendar: Dawn Diaries from Orford Quay
Ellie PD Mama Youtube
John Stapleton Good Morning Britain
www,2parkiesinapod.com
In this special live video episode Dave and Kuhan chat to one of the world’s leading Parkinson’s experts, Bas Bloem, about living well with the condition.
We talk about everything from exercise to cannabis, dystonia to diet and how some people get “chemical creative” when using Parkinson’s medication. Plus the audience tell us what activities make them feel like they don’t have Parkinson’s.
This podcast was recorded live in front of a large audience at Parkinson UK’s Parcon conference at the Royal Armouries Museum in Leeds.
We hope you enjoy!
For the second year running Dave and Kuhan join a Walk for Parkinson's at London's Battersea Park, hosted by Parkinson's UK.
Along the way they hear from Geoff, Ruth, Matt and his lovely family about diagnosis, the importance of exercise and tips for living well with Parkinson's. They also bump into volunteer steward Tara who tells them about her promising work in gene therapy.
Dave has his annual neurologist appointment, tells us about his new Parkinson's pants (!) and rummaging around TK Maxx.
Kuhan shares his secret for managing dystonia pain, explains his chemical rollercoaster and comes up with a new jingle for the podcast!
Show links
www.2parkiesinapod.com
hello@2parkiesinapod.com
@DaveClarkTV
@morethanatremor (Kuhan)
Walk for Parkinson’s (UK)
Cure Parkinson’s October Walking Challenge
BBC Miracle Cure Documentary
Chefs Pants
Beech band
Spotlight
Bradford Neuro Rehab
Sign up for Parcon 2024
The boys are back after a summer break. Find out what happened when Kuhan went “Med free” for the first time in 11 years as he contemplates major brain surgery.
Dave talks about the challenges of a long haul flight to Vietnam, getting caught in a typhoon and whether you should celebrate your birthday!
This week the 2 Parkie’s are joined by Nicola Wydenbach, a classically trained and experienced vocal coach. In 2014, she started working with people living with Parkinson's using singing as tool to help address some of the symptoms. Clinical studies have shown that regular singing can improve vocal volume/quality and breathing issues.
Singing Links
http://www.nicolawydenbach.com
http://www.medising.co.uk
Online Sessions (Friday 12.30 twice a month)
Singing app
Kings College London session (Tuesday 11.30 twice a month)
Trinity Laban session (Friday 10.30 twice a month)
People With Parkinson’s Do Amazing Things
Poets with Parkinson’s
Parkinson's comic book
Charlie’s at the Cairns Cup (golf)
Gary’s challenges
Peckham to Penzance for Parkinson’s
Register for Parcon 2024
Organised by Parkinson's UK, Par-Con is the free 2-day in-person and online event for the Parkinson's community to hear from expert speakers, connect with others and learn more about living well with Parkinson's
https://www.parkinsons.org.uk/research/par-con-2024
This week we speak to retired PE teacher, Christine Stanley. Christine has always loved being active and despite being diagnosed with cancer and then Parkinson's she hasn't lost her passion for life. She's recently become a Nordic walking instructor and credits it with giving her a sense of hope. Christine shares her tips on positivity and battling against the odds.
Hosts
@DaveClarkTV
@morethanatremor (Kuhan)
Guests
@Stanner96187706 (Christine)
Links
Man uses sculpting as therapy for Parkinson’s
Jagdeep's Annapurna Trek fundraising
British Nordic Walking
Parkinson's Rugby article
DBS couple
Decathlon Nordic walking poles
This week the boys enter the world of dance! Not the opulent, spray tanned, sequin clad Strictly, but the life changing benefits of the dance for Parkie’s.
We chat to Helen Gould who’s just been awarded an MBE for "charitable services to people with Parkinson’s"!
Helen is the co-founder of LPM Dance, which has developed the transformational Neuro-Moves programme to help people with Parkinson’s.
We also chat about how lessons from Bruce Springsteen can improve your Parkinson’s.
Kuhan says goodbye to his Parkinson’s nurse and we talk about the mental impact of getting a blue badge..
Show Links
https://lpmdance.com/
Neuro-Moves Rossendale- Mondays 2pm-3.15pm
Neuro-Moves Preston- Wednesday 2pm-3.15pm
Neuro-Moves online- Thursday 12.15-13.15pm
Booking link: https://lpmdance.com/classes
Contact Helen at lpmdanceforhealth@gmail.com for more information
Colin Wells - Walking for Parkinson’s
Alex Echo - One Wave At A Time
Ellie Finch - @PdMama
Eirwen - Sparky Samba
Are you struggling to get yourself heard because your voice is quiet, mumbled or you just cant get the words out?
Are your meds getting stuck in your throat?
Do you dribble or have a dry mouth?
We may be able to help!
This week the boys catch up with Tim Grover, consultant speech therapist in the movement disorders department at University College London.
He tells us why people with Parkinson’s suffer speech problems, offer some tips on swallowing and explains the right time to seek specialist help.
More information can be found on the Parkinson's UK website:
Speech & Communication problems in Parkinson's
Eating, Swallowing & Saliva control in Parkinson's
We also reflect on the impact of our last episode about life expectancy with Parkinson’s.
And doing AMAZING things this week .. A Parkie swimming the channel, the Premier League referee going public about his diagnosis, and a Parkie taking part in the 2024 Olympics.
We hope you enjoy it…
This week we talk about the “The Elephant in the room“ - mortality rates amongst people with Parkinson’s. Our special guest is Professor Bas Bloem, one of the world’s leading Parkinson’s experts. Bas has written a paper on the subject of life expectancy with the condition.
In recognition of his outstanding work in the field of Parkinson’s, the professor has recently been knighted in his native Netherlands. He’s one of the most engaging and eloquent speakers in the Parkie world.
https://www.parkinsonnet.com/about-parkinsonnet/our-team/
Please don’t be scared to listen to this episode, we also talk about how to stay strong for long with the condition using exercise, diet and a positive mindset.
Also in 'People with Parkinson's Do Amazing Things' we feature Sean Stillman's BBC radio documentary 'Parkinson's and Me' where he reflects on his condition and his life since his diagnosis.
And Dave reflects on his day out at the Cure Parkinson's Cup
https://www.instagram.com/babbelbloem/
@basbloem (Bas Bloem)
@morethanatremor (Kuhan)
@DaveClarkTV
Joining Dave & Kuhan for a game of Fact or Fiction are Claire & Simon from Parkinson’s UK who help dispel some of the common myths about Parkinson’s.
Show links
Go to 2parkiesinapod.com or reach out to us on social media
email us at hello@2parkiesinapod.com
Parkinson’s UK Helpline 0808 800 0303
Parkinson’s UK Research Network
Parkinson’s UK Become a Member
Parkinson’s UK Information Resources Catalogue
Parkinson’s UK World Parkinson’s Day
Economist Article
Association of British Neurologists Workforce Survey
Parkinson’s Diagnosis stats
Dept of Work & Pensions Benefits Data Portal
NHS Workforce Statistics
Free Gym Membership:
https://www.everyoneactive.com/promotion/parkinsons/
purehelp@puregym.com
Where to send your Parky smells: https://www.medicaldetectiondogs.org.uk/neurological-diseases/
In this episode Kuhan gets his tremor wired for sound, taking part in a ground breaking research study at University College London. The team created 5 unique songs from the tremors of 5 unique people with Parkinson’s. The album ‘Tremors vs Tremors’ is available to listen to on Spotify, Apple Music & Amazon… there’s even a limited edition vinyl record. All royalities are being donated to Parkinson’s UK. We’re joined by the man behind the project Dr Christian Lambert and two of the other study participants, Clare and Stephanie.
Tremors vs Tremors
https://tremorsvstremors.com/
Listen on Spotify https://open.spotify.com/album/5Q514xQ7lfQPT2s6GpT5jm?si=z-OMxr9IRYaSzWoIVrdQHA
Listen on Apple https://music.apple.com/us/album/tremors-vs-tremors-ep/1733686264
Listen on Amazon https://music.amazon.de/albums/B0CWS4RWBV?marketplaceId=A1PA6795UKMFR9&musicTerritory=DE&ref=dm_sh_RoHkhmu4xjztd3igINdcA2XcY
UCL movement disorder https://www.ucl.ac.uk/ion/research/research-centres/movement-disorders-centre/research
Parkinsons UK Research https://www.parkinsons.org.uk/research/get-involved-research
Del Amitri Parkinson’s documentary https://www.bbc.co.uk/programmes/m001x49y
Kuhan’ Blog they made a song from my tremor https://medium.com/@kuhan4/they-made-a-song-from-my-tremor-fefe7011d863
In this episode, we explore grooming and self-care.
There’s an old saying..
No matter how you feel
Get up
Dress up
Show up
Never give up
Shafaq @Dr_SF_Hussain a dentist with Parkinson’s shares her tips on mouth and tooth care
Anne Marie Booth @annieconmonkey talks ditching killer heels, Dr Martyn’s, hair and nail care.
Joe Gregory @JoeGregory100 tells us about slip on brogues and picking up a fashion bargain.
Plus doing amazing this week…
Richard Dunning, The shakey photographer @Richardpud1977
The cardigan wearing guitar playing Andrew Wright from Nottingham… @apwright
@Peacefultaino 56 year old Puerto Rican man with Parkinson’s pulling off some killer dance moves..
Stylish reading glasses at reasonable prices …
https://www.izipizi.com/ww_en
Comfortable, stylish gym, leisure clothing (pricey, but lovely)
https://vuoriclothing.co.uk
Parkinson's UK Mouth and Dental issues
This week the boys talk to Parkinson’s activist and fellow Podcaster Larry Gifford. His podcast ‘When Iife gives you Parkinson’s’ is an open and honest insight into the condition - no subject is out of bounds. Larry is also the founder of PD Avengers, a global alliance of people effected by the condition. In a wide ranging discussion we also talk about our D-Day (diagnosis) experiences, Larry's DBS journey and the impact Parkinson's has on relationships.
People with Parkinson’s doing amazing things this week includes @Markxhogben - a man living off grid in the Canadian wilderness.
In this episode the boys discuss how tech can make life a little easier for people with Parkinson’s.
From voice assistants, to messaging tips and how Siri can help you listen to your favourite podcast.
We also discuss Parkinson’s ON, a new app which aims to track symptoms, help with medication timing and generally improve your Parky life..
Plus more people with Parkinson’s doing amazing things. The man who’s rediscovered his love for playing Led Zep in the spare bedroom and a woman who’s fixed her 10 year old dishwasher…
Thanks to
Charlie Appleyard @CA_Annapurna
Helga MacFarlane @HMellMac
Kate
The Parkinson Magazine (Kuhan's article)
GMB Interview with Dave Clark
Download the Parkinson's ON app for free on your iPhone or Android
If you're enjoying the podcast please rate, review and subscribe
In this episode we speak to Professor Rimona Weil from University College London. Rimona is one of the world’s leading experts in Parkinson’s dementia.
It’s not as depressing as you might think!
She talks about ground breaking research which has discovered a link between vision and dementia, tells us who’s most at risk and whether it’s possible to prevent it! Plus how using pictures of cats and dogs can help to understand how cognition is affected in Parkinson’s.
We also talk about people’s reluctance to talk about Parkinson’s dementia…
If you want to get involved with the professor’s latest research project, which will involve at least 5 visits to London, brain scans and blood tests, you can email her: r.weil@ucl.ac.uk
https://www.parkinsons.org.uk/information-and-support/thinking-and-memory-changes
https://www.parkinsons.org.uk/research/research-blog/ask-expert/its-time-talk-about-parkinsons-dementia
Parkinsons .. Top 10 worst symptoms
In this episode @DaveClarkTV and @morethanatremor (Kuhan) discuss the most troublesome Parkinson’s symptoms. Parkinson's Europe surveyed nearly a thousand Parkie’s with fascinating results.
So what’s the number one worst symptom ? Shaking? Speech problems? Low mood?
Have a listen and find out what tops the chart….
A huge THANKYOU to @kimrobsonuk for the chart. voice over and contributors Michèle and Katy..
In this special bonus edition Kuhan and Dave join 300 people Walking For Parkinson’s at London's Battersea Park.
Parkinson’s UK host a series of fundraising walks around the UK.
Everyone walking has their own Parkie story to tell, the boys find out about a few of them…
Walk for Parkinson's
https://www.facebook.com/2parkiesinapod
https://www.instagram.com/2parkiesinpod
In this episode Dave and Kuhan talk to NHS doctor, artist and Parkinson’s campaigner Dr Jonny Acheson. Jonny was diagnosed with Parkinson's in 2016 when he was just 41.
Hear about how Bollywood dancing led to his diagnosis and what its like to work in an emergency dept with the condition.
Jonny also talks about the Jekyll & Hyde feeling when his medication is wearing off, and his campaign to let people keep their own medication during a stay in hospital.
@jonny_acheson
@ParkinsonsEN (Parkinson's Excellence Network)
https://jonnyachesonart.com/
@DavidAPlummer
https://shakinghandsfilm.com/film
@PhilJerky
@FreddieRoach
Canadian broadcaster Harry Forestell tells Dave and Kuhan his incredible Parkinson’s story. How he interviewed Michael J. Fox, his reaction to being outed by his daughter and how he was wide-awake whilst having brain surgery.
From secrecy to advocacy, acts of kindness and singing to extend his TV career, it's a fascinating insight into the career of a much loved and respected journalist.
Links:
@DaveClarkTV
@morethanatremor (Kuhan)
@HarryForestell
Harry's Interview with MJF
The Essay
In this episode Dave & Kuhan answer questions from listeners. They cover a host of topics from how to stay upbeat with Parkinson’s to constipation and podcasts. It’s an open and honest discussion with a few giggles along the way.
@2parkiesinapod
@daveclarkTV
@morethanatremor
This weeks People with Parkinson's do Amazing Things:
Paul Sinha
Samuel Smith
Jon Goodwin
The boys talk to Parkinson’s Yoga expert Dawn Williams. There’s growing evidence that Yoga can help with a range of Parkinson's symptoms by improving slowness, stiffness, balance, flexibility and core strength
Many people with Parkinson's also report improvements in their mood and sleep, plus benefit from the social interaction of group classes with other Parkies. Dawn explains the power of yoga and finishes with a relaxation exercise….
@DaveClarkTV
@More Than a Tremor (Kuhan)
Guests:
@Annie
https://dawnwilliamsyoga.co.uk/
People with Parkinson's do Amazing things:
Neil Russell
Roddy Forsyth
Ian O'Brien
We talk to model and presenter Linda E about her experiences with her dad, Stanley. Switching from daughter to carer.. The precious moments they spent together and the difficulties of having a parent with Parkinson’s.
We also meet film director Grant Taylor and his father Bob. Grant has released a film based on his dads battle with the condition. 'Ecstasy’ – is a short film about the experiences of a man living with Parkinson’s and his son, the film features their quest to get an ecstasy pill.. so that the father can dance with his wife at her birthday party.
Hosts:
Dave Clark @daveclarkTV
Kuhan @morethanatremor
Guests:
Linda E
Grant Taylor
And doing amazing things this week ..
Joe Wicks @thebodycoach
Milly Khan @Milly_Physio
Gary Shaughnessy @gshaug7741
Anne-Marie Booth @annieconmonkey
Gary's Sky interview
Workout for Parkinson's
Ecstasy - Parkinson's short film
Parkinson's Ecstasy article
BBC Horizon documentary
Warning - the use of Ecstasy to treat Parkinson's is not recommend
This week we talk to the wonderful Claire Bale, Head of Research, Communication and Engagement at Parkinson’s UK, to discuss their recently launched 'Research Needs You' campaign. In a wide ranging chat, we discuss:
What is research?
How can I get involved ?
Are we close to a cure?
Why are people reluctant to get involved in research?
What's sexy in research right now?
Balancing Hope
Plus - Find out how Kuhan’s shakes could be turned into a hit record!
Presenters:
Dave @DaveClarkTV
Kuhan @morethanatremor
Massive thanks to guest:
Claire Bale @ladybale
Doing amazing things this week …
John O’Groats to lands end cyclists
Neil Russell 65-year-old person with Parkinson’s. Running 1000 miles from London to #wpc2023 in Barcelona…
instagram: @neil.o.Russell
Charlotte Edwards Catwalk To A Cure
Parkinson's UK 'Research Needs You'
Massage gun (we have no affiliation with Therabody, please consult your healthcare professional where required)
North of Scotland Parkinson’s Research Interest Group podcast
2 Parkies in a Pod ‘Research needs you’ episode
This week the boys meet David Little, a former fireman, who had a dream to run the London Marathon. David has had Parkinson’s for nearly 20 years, but he’s determined “Mr P” won’t defeat him.
David surrounded himself with a team of experts to try and get him across the finish line.
Could he fulfil his dream, or would the 26.2 mile course defeat him?
Show Links
Dave @DaveClarkTV
Kuhan @morethanatremor
David Little (marathon man) @helshubby
Maria Lewis www.reachyourpeakonline.com
Katherine Baker @KBakerPhysio
Karen Weir @RunwithKaren
David's Fundraising
Exercise Videos
This week we’re joined by the inspirational and entertaining Matt Eagles who was diagnosed with Parkinson’s in 1975 at the age of 7!
Matt talks about his incredible life going through major milestones with Parkinson’s, from passing his driving test, starting work and getting married.
If you’re struggling to get your head around a Parkinson’s diagnosis, Matt’s wisdom and optimistic energy will help you.
Links
@DaveClarkTV Dave Clark
@morethanatremor Kuhan
@MattEagles Matt Eagles
@SalsburgMatthews Barbara Salsburg Matthews
@JohnRoc92928019 John Roche
@Gaynorzone Gaynor Edwards
Matt's wing walk video
2 Parkies in a Pod are joined by physiotherapist & Parkinsons specialist, Julie Jones. Topics range from exercise prescriptions, balance & self care. Plus hear Dave’s new song …with the Beatles!
Hosts:
Dave Clark
Kuhan
Guests
Julie Jones
Helga Macfarlane
Matt Eagles
Gavin Mogan
Nathan Smith
Links
Julie's Podcast
North of Scotland Parkinson's Research Interest Group
Parkinson's UK Exercise Hub
Nathan's Three Peaks Challenge
The thought of travelling with Parkinson’s fills many people with dread and fear. This week, Dave, Kuhan and three guests, share their tips and hacks for stress free travel. They talk about driving, managing medication on the go, how to get through airports hassle free and going to the toilet on long flights. Plus more 'people with Parkinson’s do amazing things', including the TV presenter who turned off his DBS live on air, a dancing Parkie inspiring others and one man who used a particular type of exercise to turn the tables on the disease.
Presenters:
Kuhan @morethanatremor
Dave @DaveClarkTV
Guests:
Charlie @CA_Annapurna
Annie @annieconmonkey
People With Parkinson's Do Amazing Things:
@HarryForestell https://www.cbc.ca/news/canada/new-brunswick/first-person-harry-forestell-parkinsons-dbs-1.6752210
Barbara the Dancing Queen @SalsbergMathews
Scott Hanley https://www.bbc.co.uk/news/uk-northern-ireland-64401274
Useful Links:
QEF (driving) https://www.qef.org.uk/service/mobility/
Freedom Pass https://www.londoncouncils.gov.uk/services/freedom-pass/disabled-persons-freedom-pass
Motability https://www.motability.co.uk/
Sunflower Lanyard https://hiddendisabilitiesstore.com/
Bamboo socks https://www.sockshop.co.uk/featured/bamboo
There’s so much more to Parkinson’s than just the motor symptoms. From coping with the initial diagnosis to the ongoing challenges with mood and motivation. This week Dave and Kuhan discuss their own mental health challenges with a leading psychologist.
Dr Jennifer Foley is a Senior clinical neuropsychologist at The National Hospital for Neurology and Neurosurgery. She guides us through how to live a positive life with Parkinson’s and how talking therapies can help navigate feelings of anxiety, depression, fatigue and apathy.
Plus there’s the latest on the lads on going tennis battle, and more people with Parkinson’s doing amazing things.
Kuhan @morethanatremor
Dave @DaveClarkTV
Dr Jennifer Foley
Parkinson's UK Mental Health
British Association for Counselling and Psychotherapy
People With Parkinson's Do Amazing Things:
Rory Cellan-Jones @Rusksin147
Larry Gifford @Giffordtweet
When Life Gives You Parkinson's @parkinsonspod
@PDAvengers
Phil Stutz - TheToolsBook
Netflix- Stutz
How do you tell people you have Parkinson’s? When's the right time to tell friends, family and work? In this episode Dave and Kuhan talk about their decisions to “come out” and the reactions they received…
They’re joined by Ellie who struggled to even say the word Parkinson’s, Joe tells us about how tough if it was to tell his son..David Sangster talks about coping with work and family life after being diagnosed age, 29 and Martin discusses why he went public about his diagnosis straight away.
We round of the year with a special tribute to all those that have taken part in our 10 episodes in 2022. More to come in 2023!
CONTRIBUTERS
@DaveClarkTV
@MoreThanaTremor (Kuhan)
@MartingTurner
@elliejfinch PDMama Blog
@JoeGregory100
BOOKS
Michael J Fox, Lucky Man
Henry Fraser -Little big things - The Inspirational Memoir of the Year
Victor Frankel - Man's Search For Meaning: The classic tribute to hope from the Holocaust
Dave’s coming out article
Kuhan's parkinson's grieving blog
WEBSITE
www.2parkiesinapod.com
In this special episode, the boys take the podcast on the road and visit the world renowned National Hospital for Neurology & Neurosurgery in London. They pose your questions to one of the leading lights in the Parkinson’s world, Professor Tom Foltynie.
In a revealing hour long chat, they go behind the scenes and discuss the challenges of breaking the news of diagnosis, share tips on how to prepare for appointments, and discuss the ‘white coat’ syndrome. We also hear about emerging treatments and look to the future of Parkinson’s health care.
'People with Parkinson’s Do Amazing Things’ honours Michael J Fox for receiving an honorary Oscar, a festive Parkinson’s Panto and a poet who's put together a heartwarming book of Christmas poems
Plus Dave introduces Kuhan to the pee key !
Show Links
@DaveClarkTV
@morethanatremor (Kuhan)
@TomFoltynie (The professor)
Asking the questions
@cwells25br (Colin Wells)
@justmemelanie_k (Melanie Kroon)
@djclairemj (Claire James)
@Garen_1927 (Garen Williams)
People with Parkinson's do Amazing Things
@RobSummerfield1 Poet - A Parkinson‘s Christmas
Northern Lights Parkinson's Panto
Other
Pee Key access to 9000 disabled toilets
We all want a cure for Parkinson’s, but only 4% of people with the condition take part in research today..
In this episode we look at some of the barriers and benefits of taking part in research. We dispel some of the myths, share our own experiences of taking part in research, offer tips on how to get involved, and hear from some of the people on the front line of Parkinson’s research.
We also ask ..How close are we to finding that elusive cure?
And in our ‘People with Parkinson’s do Amazing Things’ segment, we meet the man driving the length of Africa in a very unreliable VW van and hear about a remarkable feat by a team of Parkinson’s swimmers.
Show links
@morethanatremor (Kuhan)
@DaveClarkTV
@HelenMatthewsQ
www.2parkiesinapod.com
Hidden disability lanyard
Get involved in Research
Cure Parkinson’s
PD Frontline
Accelerating clinical trials
Parkinsons UK Research
Parkinson's Hope List
People with Parkinson’s do Amazing Things
Guy Deacon - Freetown to Capetown podcast
Swim for Parkinson’s
The cost of Parkinson’s to the global economy is estimated to be in the 100s of billions of US$ every year.
In this episode Kuhan and Dave discuss the financial implications of a Parkinson’s diagnosis, from giving up work, the health care costs, and shaking off the stigma of claiming state benefits. John MacPhee tells us how, with the right planning, he was able to retire in his 40s, and Laurel Miller talks about the mental health anguish she went through claiming personal independence payments (PIP).
Plus - Doing a spring clean of your personal finances, hear about the astronaut with Parkinson’s who defied to odds to go on a space mission, and how ping-pong enabled one man to get his guitar skills back.
Show links
@morethanatremor (Kuhan)
@DaveClarkTV
@J0HN_MacPhee (John)
@NenadBach I love ping pong
https://dawnwilliamsyoga.co.uk/
PIP claim line (UK) - 0800 917 2222
Parkinson’s UK PIP
University College of London Cost of Parkinson’s study
Parkinsons UK Cost of Living with Parkinson’s
Fox foundation - Study Finds Parkinson’s $52 Billion Economic Burden
Parkinson’s Better Sleep
People with Parkinson's often find it hard to sleep. In this episode Kuhan and Dave discuss their own sleep problems from restless nights, to dreams about being chased by acid throwing robots! With some top tips on how to improve the number of hours you spend in the land of nod.
This week the boys are joined by Emma Stubbs and Joe Gregory, who reveal their own sleep struggles and Emma Lawton is sleepless in Seattle with a neuro sleep specialist Nate Watson.
A new episode segment ‘People with Parkinson’s Do Amazing Things’ highlights amazing achievements from the Parkinson’s community, including one from DJ legend David ‘the kid’ Jensen
Plus - find out how one of the boys ended up buying a massive bed from comedy legend Kenny Everett..
Show links
@DaveClarkTV
@morethanatremor (Kuhan)
@JoeGregory100
@dopaminetheft (WhoStoleMyDopamine - Emma Stubbs)
@ems_lawton (Emma Lawton)
@SleepDocWaston (Nate Watson, Prof of Neurology Uni of Washington School of Medicine)
@davidkidjensen
Parkinsons UK Sleep Tips
How the right exercise and diet can improve your Parkinson’s wellbeing
Regular physical activity is the only thing that’s been proven to slow the progression of Parkinson’s. In this episode Kuhan and Dave get advice from a Parkinson’s physiotherapist, a specialist yoga teacher, a dietician who has Parkinson’s, and a man whose life has been transformed by walking football…. Enjoy
Useful Bits
@DaveClarkTV
@morethanatremor (Kuhan)
Joanna Eastough Parkinson’s Physio @JCPDPhysio
Paul Nicholls @BoyParki
Dawn Williams Parkinson's Yoga Teacher
Richelle Flanagan Dietitian @RichelleFlan
Parkinson's UK Exercise Framework
The great Spanish artist Salvador Dalí produced some of his finest work after being diagnosed with Parkinson’s, how? This week we look at the link between Parkinson's and Creativity. Is it the medication, the condition itself or perhaps it’s the new perspective a Parkinson's diagnosis gives us.. We hear from wildlife photographer and filmmaker David Plummer, who reveals how this phenomena has benefited his work and from Martin who tells us how Parkinson’s has helped him discover poetry. Following his recent Glastonbury experience, Barrie also gives us his top tips for attending music festivals. The boys also tell us how Parkinson's has heightened their passion for music and photography
Useful Bits
@DaveClarkTV
@morethanatremor (Kuhan)
@DavidPlummerimages
@AlexEcho1
@ShakeyBloke (Barrie)
@TheShakenWord (Martin)
www.parkinsons.art
www.epda.eu.com/get-involved/parkinson-s-creativity
www.parkinsons.org.uk/information-and-support/your-magazine/stories/creativity-and-me
www.lisahinds.com
This week the boys are talking about Parkinson’s medication. Do you know your agonist from your elbow ? Were you handed a packet of pills and told to get on with it?
We try to debunk the myths and sort out your dilemmas about the pills and potions that keep you going on a daily basis.
There’s an all star cast of people with Parkinson’s , talking about their dedication to medication.
@DaveClarkTV
@morethanatremor (Kuhan)
@HMellorMac (Helga)
@Dr_SF_Hussain (Shafaq)
@GfBoyle1 (Gary)
@MattEagles
For more information on medication you can visit the Parkinson's UK website:
https://www.parkinsons.org.uk/information-and-support/parkinsons-drugs
💊 💊 💊
In this episode Kuhan and Dave take part in the ‘Parkinson’s Unlucky Dip’ of symptoms and demonstrate how, from more than 40 different symptoms, some are more obvious than others. From loss of smell and anxiety, to fatigue and even losing the ability to whistle! This week they’re joined on the show by fellow Parkie’s Annie, Mark and Simon
show links
@morethanatremor (Kuhan)
@DaveClarkTV
@scg1010 (Simon)
@annieconmonkey
Annie’s blog https://link.medium.com/oGzsvC9i2ob
If you want to know more about Parkinson's, or how to cope with chronic illness, then this is the Podcast for you. Between them Clarky and Kuhan have been living with Parkinson’s for more than 20 years. They chat openly and honestly about the challenges and even the benefits of living with the condition. In this first episode, they're joined by others living with Parkinson’s. A doctor, a nurse, and a businessman and founder of Sport’s Parkinson’s, who all give their top tips on living a good life after diagnosis.
SHOW LINKS
parkinsons.org.uk
cureparkinsons.org.uk
@Sportparkinsons (Charlie)
@morethanatremor (Kuhan)
@DaveClarkTV
@Jonny_Acheson
@AddisonClare