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Your entire school’s curriculum in the cloud, with training built in!

In this episode, Dr. Suzanne Adinolfi discusses innovative approaches in early childhood education, emphasizing the role of AI in supporting teachers and fostering inclusive, stress-free learning environments. Discover how digital curricula and AI tools like LB are transforming classrooms and empowering educators.

Mark and Dr. Suzanne Adinolfi delve into the transformative role of AI in early childhood education. As the Director of Research and Content Development at Learning Beyond Paper, Dr. Adinolfi brings a wealth of experience to the discussion, exploring how innovative tools can alleviate pressures on teachers and enhance learning environments for children.

key topics

• AI in early childhood education
• Digital curriculum development
• Teacher support and professional development
• Inclusive and adaptive learning strategies
• Parent-school communication and engagement
• Classroom management and behavior support
• Special education and inclusive practices
• Future trends in educational technology

Sound Bites

• "AI keeps track of lesson objectives and standards"
• "When teachers are confident, children learn more"
• "AI can help teachers think outside the box"

Websites Learning Beyond Paper and Learning Beyond the Bell.

Special Ed Risng: specialedrising.com

Rqy's Respite Care Go Fund Me: https://www.gofundme.com/f/join-rays-respite-care-mission

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In this heartfelt interview, Christine Devane shares her journey as an author dedicated to teaching children empathy, kindness, and responsibility through her engaging books about pets and social issues. She discusses her creative process, the impact of her work on children and families, and her inspiring efforts to support rescue animals like Tippy.

keywords: children's books, empathy, pet rescue, social-emotional learning, animal welfare, author interview, children's education, kindness, responsibility, pet adoption

key topics

• The importance of teaching empathy and kindness to children
• How pet rescue stories can educate and inspire
• The process of writing children's books about social issues
• The impact of storytelling on children's social-emotional development
• Supporting rescue animals through literature and community engagement

guest nameChristine Devane

key frameworks

• Empathy Education in Children's Literature
• Pet Rescue and Adoption Awareness
• Social-Emotional Learning through Stories

titles

• How Children's Books Can Foster Empathy and Responsibility
• The Journey of a Children's Author Supporting Pet Rescue

Sound Bites

• "I'm good. How are you?"
• "Tippy is waiting for surgery."
• "Maybe one day you will too."

Chapters

00:00Introduction and Christine’s Background

02:12Meet Tippy: The Rescue Dog with a Story

05:00Tippy’s Surgery and New Beginnings

07:02Inspiration Behind the Pet-Themed Books

10:05Teaching Empathy and Responsibility to Kids

15:01Using Stuffed Animals to Educate Children

19:48Addressing Children’s Fear of Animals

24:58Connecting Through Stories and Personal Experiences

30:05The Challenges and Rewards of Writing for Children

35:05The Role of Schools and Parents in Social-Emotional Learning

39:57Supporting Rescue Animals and Community Involvement

45:01Future Projects and Final Thoughts

Resources* Christine Devane's Website * Amazon - Christine Devane's Books * Barnes & Noble - Christine Devane's Books

Guest links* Website * Instagram

specialedrising.com

Ray's Respite Care: https://www.gofundme.com/f/join-rays-respite-care-mission

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In this inaugural edition of Special Ed Rising News, host Mark Ingrassia covers six important stories shaping the future of special education, disability rights, and public policy. From proposed changes to federal oversight of special education to concerns about civil rights enforcement, preschool discipline, voting access, and immigration policy, this episode breaks down the headlines that matter most to families, educators, and advocates.In This Episode🏛️ Federal Special Education Oversight

The Department of Education is moving forward with plans to transfer many special education responsibilities to the Department of Health and Human Services while shifting much of its disability civil rights enforcement to the Department of Justice. Learn what has changed—and what protections under IDEA remain in place.

🧸 Preschool Pushout

A troubling new report finds that preschool children with disabilities are suspended, expelled, or informally pushed out of early childhood programs at dramatically higher rates than their peers, raising concerns about access to early intervention and inclusive education.

⚖️ The Future of Olmstead

The Department of Justice has issued a legal opinion challenging decades of federal interpretation of the landmark Olmstead v. L.C. decision. Disability advocates warn the move could weaken enforcement of the right to receive services in community-based settings. The Arc responds with what families need to know about their rights moving forward.

📋 Civil Rights Enforcement Declines

A new Senate HELP Committee report reveals that the Department of Education's Office for Civil Rights reached a 12-year low in resolution agreements, raising questions about accountability and protections for students with disabilities.

🗳️ Accessible Voting

The latest update on the SAVE America Act, including why disability advocates remain concerned about its potential impact on accessible voting and why the legislation remains stalled in the Senate.

🌎 Immigration Policy and Disability Services

A new federal immigration rule is raising concerns that eligible immigrant families may avoid Medicaid and other disability services out of fear it could affect immigration status, potentially creating a chilling effect on access to essential supports.

Resources & Sources* Disability Scoop * The Arc of the United States * Education Law Center of Pennsylvania * U.S. Senate HELP Committee

Connect with Special Ed Rising🌐 Website: SpecialEdRising.com

If you found this episode helpful, please subscribe, leave a review, and share it with parents, educators, advocates, and anyone committed to creating a more inclusive future for children with disabilities.

Because informed families become empowered advocates.

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In this episode, Jessica Ann Ellis shares her journey from teacher to children's author, emphasizing the importance of emotional intelligence, self-care, and modeling healthy emotional responses for children. Discover how her books aim to foster emotional awareness and support parents and educators in nurturing resilient, emotionally strong kids.

keywordschildren's books, emotional intelligence, parenting, self-care, mental health, childhood development, storytelling, emotional expression

key topics

• The importance of emotional intelligence in childhood
• How parents and teachers can model healthy emotional responses
• The role of storytelling in emotional development
• Jessica Ann Ellis's journey from teacher to children's author
• The impact of support systems and self-care for parents and caregivers

guest nameJessica Ann Ellis

titles

• The Power of Emotional Expression in Children's Books
• From Teacher to Author: Jessica Ann Ellis's Journey

Sound Bites

• "You can do anything you put your mind to"
• "Feeling your feelings is a superpower"
• "Support from others helps children feel brave"

Chapters

00:00Introduction and Jessica's creative process

02:03The role of emotional modeling in parenting

05:06The importance of emotional expression and healthy coping strategies

09:09Jessica's journey from teaching to writing children's books

14:59Creating books that foster emotional awareness and resilience

19:57The impact of support systems and self-care for parents

24:59How stories help children understand and express feelings

29:58The creative process behind 'Got Your Back Always'

34:55Reactions from children and adults to the books

40:02The importance of community and trusted support

45:07Final thoughts and upcoming projects

Resources* Jessica Ann Ellis - Facebook * Got Your Back Always (Book) * In Your Heart Always (Upcoming Book) * https://ellis-books.com/ (Website)

Guest links* Facebook

Host links

• specialedrising.com
• https://www.gofundme.com/f/join-rays-respite-care-mission

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In this episode, Jeremy Tiegerman shares insights into his lifelong dedication to special education, focusing on language development, behavioral support, and innovative programs for neurodivergent students. Discover how his family’s legacy and his own experiences shape a comprehensive approach to supporting children with learning differences.

keywordsspecial education, language development, behavioral support, neurodivergent students, education programs, parent advocacy, teaching strategies

key topics

• Family legacy in education
• Importance of language development
• Behavioral support and interventions
• Program structure and classroom ratios
• Parent involvement and advocacy
• Teacher training and professional development
• Transition planning for students
• Impact of COVID-19 on behavior and communication

guest nameDr. Jeremy Tiegerman

titles

• Inside Look at Specialized Education with Jeremy Tiegerman
• Transforming Lives: Jeremy Tiegerman on Language and Behavior Support

Sound Bites

• "Investors in lives, not just students"
• "Behavior is a form of communication"
• "Graduating with a diploma or certificate of completion"

Chapters

00:00Introduction and guest introduction

2416:36:30Jeremy's lifelong involvement in education

8999:56:58Family legacy and founding of the school

16138:50:42Focus on language as foundational to learning

20333:17:34Individualized education plans and program structure

25194:24:25Role of speech-language pathologists and classroom support

345555:31:21Teacher collaboration and classroom management

411944:24:53Classroom ratios and program size

449999:58:25School locations and program diversity

520555:32:02Transition programs and adult services

619444:25:42Parent involvement and advocacy

738611:06:06Open door policy and community engagement

843611:06:33Communication and behavior management

911388:53:20Closing remarks and future collaboration opportunities

Resources* Tiegerman School for Language and Communication Development * OPWDD - Office for People with Developmental Disabilities * https://www.youtube.com/watch?v=G4FBluZ3rO8

Guest links* https://www.linkedin.com/in/jeremy-tiegerman-01473b17/ * https://tiegerman.org/

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In this episode, Jeff Hittner shares his journey into fatherhood, the challenges modern dads face, and how redefining masculinity and emotional intelligence can lead to more fulfilling relationships with their children.

keywords: fatherhood, emotional intelligence, masculinity, dad's role, parenting challenges, legacy, vulnerability, co-parenting, modern fatherhood

key topics

• Redefining masculinity and fatherhood
• The importance of emotional intelligence in dads
• Challenges faced by modern fathers
• The role of vulnerability in parenting
• Co-parenting and communication strategies
• Legacy and the impact of fatherhood
• Overcoming societal stereotypes about dads
• The importance of self-awareness and growth for dads

takeaways

• Dads need to redefine what masculinity means in today's world.
• Emotional intelligence is crucial for effective parenting.
• Many fathers struggle with societal expectations and role models.
• Vulnerability and openness can strengthen father-child relationships.
• Co-parenting requires communication and shared values.
• Legacy is about the values and emotional connections we leave behind.
• Dads should invest in their own emotional growth to be better fathers.

guest nameJeff Hittner

titles

• Redefining Fatherhood: Embracing Vulnerability and Emotional Intelligence
• The Modern Dad's Guide to Building Legacy and Connection

Sound Bites

• "Fatherhood is about redefining traditional roles."
• "Emotional intelligence is the key to better parenting."
• "Legacy is what you leave in your children's hearts."

Chapters

00:00Navigating the World of Fatherhood

00:37Redefining Fatherhood: A Personal Journey

04:41The Emotional Landscape of Modern Dads

10:19Integrating Work and Fatherhood

14:10Legacy and Intentional Parenting

16:32Recognizing Struggles: Triggers and Self-Awareness

18:42The Burden of Traditional Masculinity

20:37Navigating Co-Parenting Challenges

23:00Understanding Parenting Styles and Backgrounds

24:56Flexibility in Parenting Approaches

26:32Building Confidence in Parenting

29:39Evolving Definitions of Fatherhood

33:29Creating Safe Spaces for Dads

34:55The Legacy of Fatherhood

Resources* Ambitious Dad Podcast * Jeff Hittner - LinkedIn * Building a StoryBrand by Donald Miller * The Power of Vulnerability by Brené Brown

Guest links* LinkedIn * Website

Host website: https://specialedrising.com/

Ray's Respite Care: https://www.gofundme.com/f/join-rays-respite-care-mission

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In this episode, I"m speaking with Dr. Marnie Ginsberg, founder of Reading Simplified. After discovering that many of her own students were years behind in reading, Dr. Ginsberg set out to find a better way. Today, through Reading Simplified, she helps teachers use the Science of Reading to dramatically accelerate literacy growth while making reading instruction simpler and more effective. We explore the myths of reading instruction, the science of how children learn to read, and practical strategies for teachers and parents to support literacy development.

education, science of reading, phonics, literacy, teaching strategies, reading wars, dyslexia, parent tips, teacher training

key topics

• The history and myths of reading instruction
• The science of how children learn to read
• The importance of phonics and decoding
• Strategies for teaching reading effectively
• The impact of social media on reading habits
• Supporting neurodiverse and hearing-impaired students
• The role of knowledge and background in comprehension
• Challenges faced by teachers and solutions

guest nameMarnie Ginsberg

titles

• The Science of Reading: Myths and Strategies
• How to Teach Reading Based on Brain Science

Sound Bites

• "You can't learn to read by recognizing whole words."
• "Struggling with decoding affects comprehension and confidence."
• "Teaching reading is an art as much as a science."

Chapters

00:00Introduction and Background

02:56Marnie Ginsberg's Journey in Education

08:15The Targeted Reading Intervention

12:24The Reading Wars: Whole Language vs. Phonics

16:34Teaching Phonics Effectively

21:29The Importance of Knowledge Base in Reading

22:40Teacher Reception and Legislative Challenges

25:18Navigating Educational Compliance and Student Outcomes

28:04Addressing Diverse Learning Needs

31:11The Impact of Social Media on Reading

34:22Myths and Misconceptions in Reading Education

37:12The Art of Teaching Reading

42:19Final Thoughts for Parents and Educators

Resources* Reading Simplified * Sold a Story Podcast * Language at the Speed of Sight by Dr. Mark Seidenberg * Targeted Reading Instruction Program

Guest linksWebsite

Host link: https://specialedrising.com/

Go Fund Me (Ray's Respite Care): https://www.gofundme.com/f/join-rays-respite-care-mission

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In this episode, Sarah Ingladoo shares her inspiring journey of caring for her sister with complex medical needs, her efforts to establish a respite care home, and the challenges faced in securing funding and support. Discover how her unique perspective as a nurse and sibling drives her mission to improve respite services for families like hers.

keywordsRespite Care, Medical Complex Needs, Family Caregiver, Nonprofit, Healthcare Advocacy, Texas, Funding Challenges, Caregiver Support, Medical Supplies, Community Impact

key topics

• The importance of specialized respite care for medically complex individuals
• Challenges in funding and building a respite care facility
• The role of community support and donations
• Sarah's personal journey as a caregiver and nurse
• The systemic issues in healthcare funding and policy

guest nameSarah Ingladoo

key frameworks

• Caregiver Support Model
• Healthcare Funding System

action items

• Visit the Raise Respite Care website to learn more and donate
• Share the episode to raise awareness about respite care needs
• Advocate for policy changes to improve healthcare funding

titles

• Building a Respite Care Home for Medically Complex Individuals
• Sarah Ingladoo's Mission to Transform Respite Services

Sound Bites

• "Trust and peace of mind are essential for respite."
• "A great respite balances safety with human connection."
• "The system is skewed against medically complex individuals."

Chapters

00:00Introduction and Personal Updates

02:44The Journey of Caregiving

05:25Building a Respite Care Facility

08:26Community Support and Outreach

11:09Challenges in Fundraising

13:54Understanding Respite Care

16:43Future Goals and Aspirations

19:47Personal Reflections and Self-Care

29:34Self-Care for Caregivers

31:11Understanding Respite Care

33:03Defining a Great Respite Experience

36:20The Growing Demand for Respite Care

36:51Barriers to Accessing Respite Care

45:22The Need for Systemic Change

49:42Advocacy and Future Aspirations

Resources* Raise Respite Care Website * Sarah Ingladoo on Instagram * GoFundMe for Respite Home: https://www.gofundme.com/f/join-rays-respite-care-mission

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summaryIn this episode, James J Logan shares his remarkable journey through cancer, the mental and physical challenges he faced, and how his passion for Ironman triathlons fueled his fight for life. Discover how mindset, faith, and community support can turn adversity into a source of strength and purpose.

keywordscancer survival, Ironman triathlon, mental resilience, health journey, motivation, faith, overcoming adversity, life lessons, community support

key topics

• James's cancer diagnosis and treatment journey
• The role of mental resilience and faith in overcoming adversity
• How training for Ironman helped in his recovery and mental health
• The importance of community, charity, and giving back
• Lessons learned about life, death, and living intentionally

guest nameJames J Logan

titles

• From Near Death to Kona: James J Logan’s Inspiring Journey
• The Power of Mindset: Overcoming Cancer and Completing an Ironman

Sound Bites

• "Cancer reinvigorated my youthful desire"
• "Cancer doesn't have me, I have cancer"
• "Happiness is in the pursuit"

Chapters

00:00Introduction and James's initial health status

01:57Realization of aging and staying active

02:54Cancer diagnosis and the shock of it

04:13The mental and physical impact of chemo

08:08Maintaining fitness during cancer treatment

14:28The mindset shift: viewing obstacles as opportunities

20:51Writing the book and giving back to the community

26:04Living with an ostomy and challenges of training

39:11Humility, faith, and the importance of relationships

48:31Happiness in the pursuit and living intentionally

54:15Future plans, Kona, and ongoing purpose

Resources* Ironman Foundation * Georgia Cancer Center * Book: Just Keep Tri-ing

Guest linksInstagram: stage42025* https://ironmanfoundation.donordrive.com/participants/4148 * Facebook: https://www.facebook.com/jim.logan.462536 * Book: https://www.amazon.com/s?k=just+keep+tri-ing&crid=MV8SS7X7XXEB&sprefix=%2Caps%2C316&ref=nb_sb_ss_recent_2_0_recent

specialedrising.com

Ray's Respite Care: https://www.gofundme.com/f/join-rays-respite-care-mission

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When parenting feels stuck—when the same conflicts, behaviors, and frustrations keep repeating—it can feel like nothing is working. But what if that moment isn’t failure… but an inflection point?

In this episode, we break down the powerful mindset shift that can transform not only your child’s behavior, but your entire relationship dynamic. This conversation is especially important for parents of neurodivergent children, where behavior is often misunderstood and traditional approaches fall short.

Instead of focusing on control and correction, we explore what happens when you shift toward understanding, connection, and patience—and why that’s where real, lasting growth begins.

What You’ll Learn in This Episode:

• Why repeated conflict is often a signal—not a dead end
• The role parents play in escalating or de-escalating situations
• How expectations can prevent you from truly seeing your child
• Why behavior should be viewed as communication, not defiance
• The impact of overwhelm, regulation delays, and need for control
• How pressure and constant correction can actually slow growth
• Practical ways to respond without escalating (and why it works)
• How to handle attention-seeking or reaction-driven behaviors
• Why small wins matter more than big outcomes
• The added layer of parenting neurodivergent children—and how to adjust your lens

Key Takeaways:

• Your child is not here to meet your expectations—you are here to support their growth
• Resistance is often a sign of overwhelm, not defiance
• Connection is more effective than control
• Growth is slow, inconsistent, and built through small moments
• When you change your response, you change the entire dynamic

Practical Strategies Shared:

• Catch and reinforce small moments of success
• Lower your tone and regulate your response during conflict
• Give space for mistakes without added pressure or judgment
• Redirect inappropriate language into safe expression (even humor)
• Use simple, supportive language like “We’ll get it tomorrow”
• Focus on consistency and trust instead of immediate compliance

Neurodivergent Insight:

For neurodivergent children, behavior often reflects differences in processing, regulation, and sensory experience. What looks like defiance may actually be overwhelm, anxiety, or difficulty with flexibility and control. Shifting from “Why are they doing this?” to “What might this feel like for them?” is a critical step in building connection and supporting meaningful growth.

Final Thought:

Your child isn’t giving you a hard time—they’re having a hard time. When you meet that with patience, curiosity, and connection instead of pressure, you create the conditions for real, sustainable change.

Listen Now:

specialedrising.com

Go Fund Me (Ray's Respite Care): https://www.gofundme.com/f/join-rays-respite-care-mission

Subscribe & Share:

If this episode resonated with you, share it with another parent who needs to hear it—and remember, no parent goes through this alone.

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In this episode, we explore the critical issues facing disability support systems, including recent policy changes under the Trump administration, the impact of privatization and austerity on services for autistic and disabled individuals, and the broader implications of ableism and eugenics in current political discourse. Guest journalist, and parent, David Perry shares his personal journey, insights into systemic failures, and calls for advocacy and awareness.

keywordsdisability support, autism, SSI, Medicaid, policy, ableism, eugenics, advocacy, systemic reform

key topics

• Impact of policy changes on disability support
• Systemic ableism and eugenics in politics
• Personal experiences with disability systems
• Advocacy and community support for families

guest nameDavid M. Perry

titles

• The Future of Disability Support: Policy, Politics, and Personal Stories
• How Current Policies Threaten Disabled and Autistic Adults

Sound Bites

• "Private equity isn't doing this out of kindness"
• "Eugenics is alive in modern policy and ideology"
• "We must advocate and fight for systemic change"

Chapters

00:00Introduction and Technical Difficulties

01:55The Impact of Private Equity on Autism Treatment

04:29David's Background and Personal Journey

09:44Navigating the Education System for Special Needs

12:23The Trump Administration's SSI Changes

16:35The Confusion of Disability Benefits and Systemic Challenges

23:30Navigating Complex Systems: The Burden on Parents

30:31The Erosion of Disability Rights: A Historical Perspective

43:57Understanding the Political Landscape: Ableism and Eugenics

Resources* Disability Rights Education & Defense Fund (DREDF) * Americans with Disabilities Act (ADA) * End the Word Campaign * Medicaid and CHIP Payment and Access Commission (MACPAC) * Project 2025

Guest links* Website: https://www.davidmperry.com * Email: lollardfish@gmail.com * Signal via Davidmperry.48. * Linkedin: https://www.linkedin.com/in/david-m-perry-b38aa363/

Connect with Mark via: https://specialedrising.com/

GoFundMe: https://www.gofundme.com/f/join-rays-respite-care-mission

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📝 Show NotesIn this episode, Mark explores a powerful but often overlooked strategy in parenting and education: humor. Drawing from personal experience in the classroom, he shares how humor helped him connect with a highly anxious, routine-driven student—and why that moment still stands out today.

But this isn’t about being funny for the sake of it.

This episode reframes humor as something much deeper: a co-regulation tool that helps children feel safe, lower stress, and regain access to the skills we expect from them.

🔹 What You’ll Learn Why many “defiant” behaviors are actually signs of nervous system overload * How stress shifts kids from thinking mode into survival mode (fight, flight, freeze, shutdown) * Why logic, consequences, and demands often fail during dysregulation * The key mindset shift: * 👉 From “How do I stop this behavior?” * 👉 To “What does this child need to feel safe enough to do better?”*

🔹 Humor as a Regulation ToolMark breaks down why humor works—not as behavior control, but as a way to:

• Lower threat
• Create emotional safety
• Support co-regulation
• Strengthen connection

And most importantly:

Humor helps kids get back to a state where they can succeed.

🔹 Neurodivergent InsightsThis episode dives into how humor works differently across children:

• Autism → Humor works best when it’s predictable, structured, and familiar
• ADHD → Humor increases engagement, motivation, and emotional buy-in
• PDA → Reduces perceived threat of demands
• Trauma / Emotional Disabilities → Helps lower a heightened baseline of stress

🔹 What Works (and What Doesn’t)Effective humor:

• Recurring jokes and routines
• Character voices
• Playful exaggeration
• Inside jokes
• Visual or object-based humor

Less effective (or harmful):

• Sarcasm
• Teasing
• “Just kidding” humor
• Humor during meltdown

🔹 Timing MattersOne of the biggest takeaways:

• Humor works early (during resistance or rising stress)
• Humor often fails during full meltdown

In those moments, the goal shifts from:

❌ behavior management

to

✅ safety and regulation

🔹 The Parenting Skill That Changes EverythingMark introduces a simple but powerful lens:

👉 “Is this a can’t… or a won’t?”

• Can’t → Regulate first
• Won’t → Teach and hold expectations

If a child is losing control, help them regain it.

If they have control, help them use it.

🔹 Practical Ways to Start* Turn routines into playful “bits” (“Emergency sock protocol!”) * Use character voices (robot, announcer) * Offer playful choices (“walk or hop?”) * Use exaggeration to break tension * Create inside jokes * Match and guide your child’s energy * Use humor during transitions (“Mission mode: 2 minutes!”)

🔹 Addressing the PushbackDoes this lower expectations?

No—it actually raises them.

Because you’re not just asking kids to behave…

you’re helping them build the ability to do it.

🔹 Final TakeawayWhen you shift from controlling behavior to understanding what’s underneath it, everything changes.

You move from:

• power struggles
• to
• connection and guidance

And over time, you’ll see:

• less escalation
• more cooperation
• and a child who feels safer, more understood, and more capable

Because when kids feel safe and supported… they don’t just behave better—they do better.

📚 Resources Mentioned Playful Parenting – Lawrence J. Cohen * The Explosive Child* – Ross W. Greene * Research on humor and autism – Mirella Manfredi

https://specialedrising.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

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This episode features an employment lawyer discussing disability rights, workplace discrimination, reasonable accommodations, and legal protections for parents and individuals with disabilities. Gain insights into navigating legal challenges and advocating for rights in the workplace.

keywords: disability rights, workplace discrimination, reasonable accommodations, FMLA, ADA, employment law, disability advocacy, legal protections, parent rights, disability discrimination cases

key topics

• Disability discrimination in the workplace
• Legal protections under ADA and FMLA
• Reasonable accommodations and employer obligations
• Parent involvement in adult disability cases
• Retaliation and harassment protections

takeaways

• Disability rights laws like ADA and FMLA provide strong protections but are often not fully enforced.
• Employers are legally required to provide reasonable accommodations unless it causes undue hardship.
• Parents of adult children with disabilities have rights to advocate and seek workplace protections.
• Retaliation is the most common complaint in disability discrimination cases.
• Using AI and proper documentation can strengthen legal cases.

guest nameDerek Smith

titles

• Understanding Disability Rights in the Workplace: Legal Insights
• How to Fight Discrimination and Secure Accommodations at Work

Sound Bites

• "Disability discrimination is still rampant."
• "Harassment can include hostile work environments."
• "You have rights, and you should act on them."

Chapters

00:00Supporting Parents in Their Journey

00:00Navigating Family and Medical Leave Act

19:02The Role of AI in Legal Research

21:17Challenges for Caregivers in the Workplace

25:23Advocacy for Parents of Disabled Adults

29:03Difficult Cases in Disability Discrimination

33:21Affordability of Legal Services

Resources* Americans with Disabilities Act (ADA) * Family and Medical Leave Act (FMLA) * EEOC - Equal Employment Opportunity Commission

• Guest links
• Derek Smith Website: https://discriminationandsexualharassmentlawyers.com/new-york-city/
• Linkedin: https://www.linkedin.com/in/derek-smith-b1192a111/
• Email: derek@dereksmithlaw.com

https://specialedrising.com/

Ray's Respite Care Donation: https://www.gofundme.com/f/join-rays-respite-care-mission

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In this engaging interview, Lisa Richer shares her inspiring journey as a neurodiversity consultant, emphasizing the importance of collaboration, self-acceptance, and proactive communication in supporting children with neurodivergent needs. Discover practical strategies for parents and educators to build effective partnerships and advocate for their children's success.

keywordsneurodiversity, parent advocacy, education system, collaboration, self-acceptance, IEP, school communication, neurodivergent children, special education, emotional intelligence

key topics

• Building effective parent-school relationships
• The importance of self-acceptance and neurodiversity
• Strategies for advocating within the education system
• The role of emotional intelligence and empathy in collaboration
• Navigating challenges and building resilience in supporting neurodiverse children

guest nameLisa Richer

titles

• Building Bridges: How Parents and Educators Can Collaborate for Neurodivergent Kids
• The Power of Self-Acceptance in Supporting Neurodiverse Children

Sound Bites

• "My journey started with my first son."
• "Don't get angry, get curious."
• "Diagnoses inform, they don't define."

Chapters

00:00Introduction and Technical Setup

00:00The Journey Begins: Lisa's Background

00:00Understanding Neurodiversity and Parenting

01:07Navigating the Education System

04:06Building Relationships with Educators

06:48The Importance of Early Intervention

09:41Empowering Parents Through Knowledge

12:24The Role of Advocacy in Education

15:02Collaboration with Schools

18:03Trusting Your Instincts as a Parent

20:57Trusting Your Parental Instincts

22:49Navigating School Systems and Communication

25:25Building Relationships with Educators

29:18Empowering Parents to Advocate

32:23The Balance of Professional Relationships

38:19Acceptance and Understanding of Neurodiversity

44:17Challenges in the Education System

50:25The Importance of Parental Participation in Meetings

Guest links* Instagram - Journey to Bloom * Website: https://journey2bloom.com/ * Instagram: Lisa Richer * Email: lisa@journey2bloom.com * Linkedin: https://www.linkedin.com/in/lisaricher/

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

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In this episode of Special Ed Rising: PURGE 47 Edition, Mark Ingrassia breaks down proposed federal changes to Supplemental Security Income (SSI) that could significantly impact disabled adults—especially those living with their families.

These aren’t minor adjustments. The administration is considering rule changes that could reduce or eliminate benefits for up to 400,000 individuals, shifting the financial burden directly onto families already navigating complex systems.

Drawing on nearly four decades in special education and real-world family experiences, Mark unpacks what’s changing, what it means, and why it matters.

🔍 What You’ll Learn How proposed SSI changes target disabled adults living at home * Why family-provided housing may now be treated as income * How SNAP (food assistance) changes could make accessing SSI more difficult * The concept of “administrative burden”*—and how complexity limits access to benefits * What the system looked like before—and how these changes shift us backward * The real-life consequences for families, including financial instability and difficult choices * Why these policies could threaten independent living and increase reliance on institutional care

⚠️ Key TakeawayThis isn’t just about policy—it’s about predictability, stability, and whether families can plan for the future. As systems become more complex, access shrinks—even when eligibility doesn’t change.

Or as Mark puts it:

“A benefit you can’t access is not a benefit.”

🧠 Referenced InsightMark references reporting from ProPublica and an article by David M. Perry highlighting how even experts struggle to understand what these changes mean for their own families—underscoring the growing uncertainty.

🗣️ Call to Action* Stay informed—even when it’s overwhelming * Connect with advocacy groups and other families * Ask long-term questions about your child’s future * Share this episode with someone who needs clarity

Because the more we understand and speak up, the stronger our advocacy becomes.

🎧 Final ThoughtFamilies are not trying to take advantage of the system—they are trying to build stable, meaningful lives for their children.

And this isn’t just policy. This is your child’s future.

specialedrising.com

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This interview explores the challenges and strategies in special education, emphasizing the importance of understanding individual needs, emotional regulation, and advocacy for teachers and parents. Bev Johns shares her extensive experience working with children with behavioral and emotional challenges, offering practical insights for educators and caregivers.

keywordsspecial education, emotional regulation, advocacy, behavior management, teaching strategies, parent support, teacher burnout, trauma-informed education

key topics

• Behavior as Communication
• Emotional Regulation Techniques
• Advocacy for Teachers and Parents

guest nameBev Johns

titles

• The Power of Individualized Education: Strategies for Success
• Emotional Regulation and Behavior Management in Schools

Sound Bites

• "Behavior is a form of communication."
• "Recognize and reinforce good behavior."
• "Children need to learn self-regulation early."

Chapters

00:00Introduction and Background of Mark

00:43Bev Johns and the Learning Disabilities Association

03:26Challenges in Education and Advocacy for Parents

06:04Bev's Journey in Education and Early Experiences

08:47The Importance of Listening and Support in Education

11:38Teacher Demoralization and Systemic Issues

14:36Behavior as Communication and Emotional Regulation

17:17The Role of Arts in Education and Expression

20:00Conclusion and Final Thoughts

28:47Meeting Children's Needs

32:09Understanding Behavioral Challenges

36:41Effective Behavior Management Strategies

40:23Mindfulness and Self-Regulation

43:50Dealing with Meltdowns

46:25Transitioning and Preparing for Change

50:43Building Consistency in Education

53:56Empowering Children to Communicate Needs

Resources* Learning Disabilities Association of Illinois * Mindfulness in Schools Project * De-escalation Strategies for Teachers (Book)

Guest links Website: https://bevjohns.org/* * LinkedIn: Beverly Johns * Facebook: Beverly Johns

https://specialedrising.com/

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🧠 Episode OverviewThis week’s episode takes a deeper look at what advocacy really means when families are navigating both disability and systemic bias. While a scheduled guest appearance was postponed, the conversation opened the door to something that demands attention now—how race, language, and systemic inequities shape special education experiences for families.

Through real-world examples and research-backed insights, this episode breaks down how bias shows up in evaluation, diagnosis, and support—and why advocacy for many families becomes a constant fight for both services and basic understanding.

🔑 Key Topics Covered What advocacy actually* looks like inside IEP meetings * How bias influences evaluation, diagnosis, and placement decisions * Disparities affecting Black students in special education * Barriers faced by Latino families with limited English proficiency * The gap between awareness and meaningful systemic change * Why parents are often forced into reactive advocacy * What Black families are doing right—and what systems are missing * Action steps for building equitable, culturally responsive systems

💬 Key Takeaways Advocacy is not just paperwork—it’s standing your ground in systems that may already be misreading your child. * Bias in interpretation—not just policy—drives inequitable outcomes. * Awareness alone is not enough; systems must be redesigned with families, not for them. * Parents are often expected to operate at a high level without being given the training or support to do so. * True equity requires shifting responsibility from families to systems.*

📊 Research & Sources Drexel University Autism InstituteKey insight: Structural racism impacts evaluation, diagnosis, and support for Black children * MDPIGibson, L., Keyes, S., & Cartledge, G. (2026) * Black Students in Special Education: A Historical and Current Account Toward Change* * Findings: * Disproportionate identification in subjective disability categories * Higher likelihood of restrictive placements * Unequal access to quality instruction and resources * Continued disparities despite Individuals with Disabilities Education Act * SPARK for Autism ResearchFinding: ~28% of Black parents report race impacted their child’s diagnostic experience * Organization for Autism ResearchInsight: Strength-based, identity-affirming approaches improve outcomes for Black autistic youth * Additional supporting literature referenced in discussion: * Black parental involvement in special education is critical but under-supported * Systemic barriers limit parent advocacy effectiveness * Disparities in access to experienced teachers, rigorous curriculum, and inclusive settings

🎯 Call to ActionIf this episode resonated with you:

• Share it with another parent or educator
• Start a conversation in your school or community
• Ask: Are we partnering with families—or expecting them to figure it out alone?

🌱 Resources & Links Follow: @specialedrising * Website: specialedrising.com * Email: specialedrising@gmail.com*

💙 Support Ray’s Respite Care

A space designed to provide relief and joy for families navigating special needs.

(Link available in episode description)

🎧 Closing MessageTake one small step this week.

You’re doing better than you think.

And remember—no parent gets left behind.

Specialedrising.com

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primary goalInspiration and resilience building

summary Ty Gipson shares his extraordinary journey through health challenges, including multiple organ transplants and living with type 1 diabetes. His story highlights the power of mindset, small positive steps, and the 'no options' philosophy to overcome adversity and inspire others.

keywords resilience, mindset, health challenges, organ transplants, diabetes, positivity, motivation, no options philosophy

key topics

• Resilience through health challenges
• The 'no options' philosophy in adversity
• The importance of mindset and small steps
• The role of gratitude and humor in overcoming difficulties

takeaways

• Small daily growth can lead to profound life changes
• Sharing your story can inspire and help others
• The mind is a muscle that can be trained for positivity
• Celebrating small wins encourages continued progress

guest nameTy Gipson

key frameworksNo Options Philosophy

action items

• Identify one small positive step to take today
• Practice daily visualization of your goals
• Celebrate small wins to build momentum
• Share your story to inspire others

titles

• From Diabetes to Donor: Ty Gipson’s Journey of Resilience
• The No Options Mindset: Turning Adversity into Opportunity

Sound Bites

• "Life is short and precious"
• "Grow a little each day"
• "It's worth the climb"

Chapters

00:00Introduction and Technical Difficulties

00:00The Importance of Sharing Stories

00:45Ty's Journey and Adversity

01:04Transforming Adversity into Positivity

02:43Mindset Shifts Through Challenges

04:25Addressing Different Abilities and Growth

06:59Tools for Self-Discovery and Mindful Parenting

08:43Three-Step Process for Overcoming Adversity

11:48The Power of Positive Thinking

14:14Finding Humor in Difficult Times

15:25Ty's Health Journey and Organ Transplants

20:52Facing the Unknown: A Life-Changing Decision

23:30The Journey of Recovery: From Darkness to Light

24:44Gratitude and New Beginnings: The Impact of Organ Donation

26:12Resilience Through Adversity: The No Options Mindset

31:45Finding Balance: The Importance of Rest and Self-Care

37:05Teaching Resilience: Celebrating Small Wins

39:44Sharing Your Story: The Power of Connection

Resources* tygipson.com * No Options with Ty Gipson * Texas Children's Hospital * Shakti Gawain's Visualization Book

Guest links* Website: https://tygipson.com/ * Podcast: No Options w/ Ty Gipson: https://podcasts.apple.com/us/podcast/no-options-with-ty-gipson/id1827303025

Host link: specialedrising.com

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In this powerful and personal episode, Mark speaks directly to dads—through the lens of his own relationship with his father—to explore how the way we show up for our children shapes their identity, their confidence, and ultimately their life path.

Reflecting on the complexities of growing up with a father whose moods and expectations left a lasting impact, Mark shares an honest message: your child is not a finished product. They are learning, developing, and looking to you as their model.

This episode challenges dads to rethink how they interpret behavior and respond in the moment. What if your child isn’t being defiant—but struggling? What if the issue isn’t the behavior itself, but the story you’re telling about it?

Mark breaks down how shifting from reaction to intentional response can transform your relationship with your child—and prevent the kind of lasting emotional scars many carry into adulthood.

You’ll also hear practical strategies for making this shift, even if it doesn’t come naturally:

1. How to reframe your child’s behavior as communication
2. The power of the pause in high-stress moments
3. Why separating behavior from identity matters
4. How curiosity can replace correction
5. The importance of pre-deciding your responses
6. Why doing your own internal work is essential

For fathers of children with special needs, this message becomes even more critical. Behavior is often communication, and your ability to stay regulated can help your child find their way back from overwhelm.

Mark also addresses a topic that often goes unspoken—the imbalance in parenting load. In many households, especially those raising children with additional needs, one parent (often the mother) carries the majority of the mental and emotional weight. This episode challenges dads to step out of the role of “helper” and into true co-ownership—sharing responsibility, learning their child deeply, and being present not just physically, but emotionally.

Because this isn’t just about parenting—it’s about partnership, leadership, and legacy.

Key Takeaways:

1. Your child is a learner, not a learned person
2. Behavior is often communication, not defiance
3. Your reaction is shaped by your own experiences and triggers
4. A pause can change everything
5. Connection fuels cooperation
6. You don’t have to do this alone—but you do have to take ownership
7. Supporting your partner is part of supporting your child

At the heart of it all is one message:

Your child may not remember every mistake they made—but they will remember how you responded to them when it mattered most.

Connect with Mark:

1. Website: specialedrising.com
2. Podcast: Special Ed Rising: No Parent Left Behind!
3. Email: specialedrising@gmail.com
4. Social: @specialedrising

If this episode resonated with you, share it with another dad who needs to hear it.

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Raja Marhaba shares her inspiring journey as a mother of two twice-exceptional children, navigating the complex special education system, advocating for her kids, and founding The Jonathan Foundation to support families with learning disabilities. Her story highlights the challenges, legal battles, and the importance of parental advocacy in securing appropriate education and services.

Keywordsspecial education, advocacy, learning disabilities, IEP, legal battles, parental empowerment, twice exceptional, education reform, mental health, Raja Marhaba

Key Topics

1. Navigating the special education system
2. Legal battles for children's rights
3. The importance of parental advocacy

Guest Name Raja Marhaba

Website https://www.thejonathanfoundation.org

titles

1. The Fight for Education Rights: Raja Marhaba's Journey
2. How One Mother Changed the System for Twice-Exceptional Kids

Sound Bites

1. "What message are you sending to a 10-year-old?"
2. "He tore a two-inch hardcover book apart"
3. "Knowledge is power in advocacy"

Chapters

00:00Navigating the Special Education System

18:15The Impact of Advocacy on Families

25:41Empowering Parents and Children in Education

27:19Understanding Standardized Testing and Its Implications

29:39Building Trust Between Parents and Schools

31:32Empowering Parents in IEP Meetings

33:00Navigating the Challenges of Special Education

35:34The Impact of Legislation on Special Education

37:59Mental Health and Its Role in Education

41:38The Need for Comprehensive Support in Schools

45:42The Jonathan Foundation: Advocacy and Support for Families

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🧠 Episode OverviewThis brief but powerful episode takes a direct look at recent public comments about learning disabilities—and why they matter far beyond politics. Mark speaks from decades of experience in special education to challenge harmful narratives and reframe what dyslexia really means for individuals, families, and society.

At its core, this episode is about one thing:

the message we send to kids when we misunderstand how they learn.

🎯 Key Takeaways1. Dyslexia is not a measure of intelligence 2. It impacts language processing—not cognitive ability, leadership, or potential. 3. What looks like struggle is often strategy in progress 4. Many individuals with dyslexia rely on tools like audiobooks, verbal processing, and summaries—and go on to thrive. 5. Words from leaders carry real consequences 6. Public statements about disability don’t stay in politics—they shape how children see themselves. 7. The real issue is not disability—it’s ignorance 8. Misunderstanding learning differences leads to stigma, lowered expectations, and lost opportunities. 9. Kids internalize what the world tells them 10. When they hear limits, they believe limits. When they’re supported, they rise.

🧩 What Dyslexia Actually Impacts1. Decoding (sounding out words) 2. Reading fluency 3. Spelling and written expression 4. Processing speed with language

👉 And at the same time, many individuals demonstrate:

1. Strong verbal reasoning
2. Creativity and innovation
3. Big-picture thinking
4. Leadership and interpersonal strengths

🔥 Core MessageThis episode challenges the idea that learning differences define capability—and calls on parents, educators, and advocates to push back against narratives that diminish individuals with disabilities.

Your brain works differently.

Your challenges are real.

And your potential is not up for debate.

🧭 Notable Context Discussed1. Public comments made by Donald Trump regarding Gavin Newsom and dyslexia (March 2026) 2. Newsom’s lived experience with dyslexia and his adaptive strategies 3. Responses from Newsom and Jennifer Siebel Newsom 4. The broader impact of stigmatizing language on individuals with learning disabilities

📚 References & Resources1. Young Man in a Hurry: A Memoir of Discovery 2. Ben and Emma’s Big Hit 3. International Dyslexia Association – Research and resources on dyslexia 4. Yale Center for Dyslexia & Creativity – Science and strengths-based perspective on dyslexia

🎧 Final ThoughtIgnorance may be loud…

but it doesn’t have to be what leads.

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What happens when an educator refuses to treat students like data points?

In Part 2 of this powerful conversation, Mark speaks with educator, researcher, and author Dr. Joey Weisler about trauma, resilience, and what it really means to show up for students.

Joey shares his deeply personal journey—from witnessing the aftermath of the Parkland school tragedy to navigating a difficult first year of teaching that ultimately led to his dismissal. What initially felt like failure became the turning point that shaped his mission: to build classrooms centered on connection, presence, and emotional engagement.

Today, Joey teaches literature and composition at the college level while developing his HEART Framework, a model focused on creating learning environments where students feel seen, heard, and empowered.

This episode explores how trauma, compassion, and purposeful teaching can reshape education—and why learning should never be the result of compliance.

In This EpisodeMark and Joey discuss:

1. Joey’s experience teaching near the Parkland tragedy and how it shaped his understanding of student trauma
2. Why many schools struggle to address emotional realities in the classroom
3. The moment Joey was unexpectedly dismissed from his first teaching job—and why it became the best and worst day of his career
4. How storytelling and literature can help students process emotions and life decisions
5. Why Joey arranges his classrooms in a circle to create presence and community
6. The concept of “cognitive presence” vs. cognitive overload
7. Why showing up and caring may be the most important thing a teacher can do
8. How educators can balance academic expectations with emotional development
9. Joey’s upcoming book on the HEART Framework

Key Takeaways1. Students remember how teachers make them feel more than what they teach. 2. Trauma affects learning—even when it’s not visible. 3. Presence and care often matter more than instructional techniques. 4. Classrooms that allow students to explore meaning and identity create deeper engagement. 5. Education systems focused solely on data risk losing the humanity of learning.

Memorable Quotes“Learning should not be a result of compliance.”

“When you teach to the heart instead of just the brain, everything changes.”

“Students don’t remember every lesson—but they remember the teachers who cared.”

“Instead of cognitive overload, we need cognitive presence.”

About Dr. Joey WeislerDr. Joey Weisler is an educator, researcher, and writer focused on trauma-informed teaching and emotionally engaged learning environments. He teaches literature and composition at the college level and hosts the podcast Classroom Narratives: Healing & Education.

He is currently developing the HEART Framework, a model designed to help educators create classrooms centered on connection, presence, and meaningful learning.

Resources & LinksListen to Part 1 here: https://podcasts.apple.com/us/podcast/rising-through-the-unknown-advocacy-trust-and/id1775740636?i=1000748265220

Listen to my interview on Joey's podcast, Classroom Narratives: https://podcasts.apple.com/us/podcast/rising-through-the-unknown-advocacy-trust-and/id1775740636?i=1000748265220

🌐 Website

josephweisler.com

🎬 The Throne in the Classroom (Short Film & Trailer)

🎧 Joey’s Podcast

Classroom Narratives: Healing & Education

📘 Resources Available on Joey’s Website

1. 10 Steps to Trauma-Informed Teaching
3. Emotionally Equipped Educator Conflict Styles Quiz
5. HEART Framework (forthcoming book)

Connect with Mark🎙️ Podcast: SER: No Parent Left Behind!

Website: specialedrising.com

If you enjoyed this episode, please subscribe, share it with a fellow educator or parent, and leave a review to help more people discover the show.

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In Part 1 of this powerful two-part conversation, Mark sits down with Dr. Joey Weisler to explore the deeply personal experiences that shaped his path as an educator.

Before Joey ever had his own classroom, he found himself at the center of a community tragedy. While substitute teaching at a middle school next to Marjory Stoneman Douglas High School during the Parkland school shooting, he and his students were forced into lockdown as the devastating events unfolded nearby.

Joey shares what that moment was like inside the classroom, the emotional weight educators carry during crisis, and how witnessing trauma within a school community changed the way he understood teaching, safety, and the emotional lives of students.

The conversation also explores the difficult reality many teachers face when students reveal deep struggles—and how systems sometimes fail to respond with the urgency and compassion those moments require.

This episode is an honest and moving discussion about trauma, responsibility, and the human side of teaching.

It’s also the beginning of a larger story—one that continues in Part 2, where Joey shares how these experiences ultimately reshaped his career and inspired a new vision for education.

In This Episode1. Joey’s connection to the Parkland tragedy and what it was like teaching during that moment 2. How trauma can shape a teacher’s mindset before their career even begins 3. The emotional responsibility teachers feel when students confide in them 4. The gap that sometimes exists between student needs and school systems 5. Why being present for students can matter more than any lesson plan 6. The early experiences that would eventually influence Joey’s philosophy of teaching

🎙️ Listen to Part 1 now, and don’t miss Part 2 of this powerful conversation.

Chapters

00:00Introduction and Connection

01:40Perseverance in Education

05:01The Impact of Trauma on Teaching

11:56Navigating the Aftermath of Tragedy

16:28Experiencing the Shooting

21:38The Aftermath and Support Systems

28:32Navigating Trauma in Education

31:26The Impact of Personal Experience on Teaching

1. Joey Weisler's Website
2. The Throne in the Classroom (Book & Trailer)
3. Classroom Narratives Podcast
4. 10 Steps to Trauma-Informed Teaching (Guide)
5. Emotionally Equipped Educator (Book)
6. Heart Framework (Upcoming Book)

Dr Weisler links1. Website

Listen to my interview on Joey's podcast, Classroom Narratives: https://podcasts.apple.com/us/podcast/rising-through-the-unknown-advocacy-trust-and/id1775740636?i=1000748265220

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This episode features Frances Shefter, a seasoned special education attorney, discussing the intricacies of special ed law, advocacy, and how parents can effectively navigate the system to secure the best outcomes for their children. Topics include legal rights, the evaluation process, predetermination, and when to seek legal help.

keywordsspecial education law, IEP, advocacy, legal rights, education attorney, parent rights, IEP process, independent educational evaluation, legal compliance, special ed advocacy

key topics

1. Legal rights of parents in special education
2. The evaluation and IEP process
3. Predetermination and legal compliance
4. When to seek legal help in special education
5. How to effectively advocate for your child's needs

titles

1. Unlocking Your Child's Rights: A Guide to Special Ed Law
2. Navigating IEPs and Legal Rights with Frances Shefter

Sound Bites

1. "Trust your gut and ask questions."
2. "Know what the issues are and be prepared."
3. "Legal help can often save time and money."

Chapters

00:00Introduction to Special Education Law

00:01Frances Shefter's Journey into Special Education Law

05:04Understanding the Role of Parents and Schools

09:28Navigating IEP Meetings and Legal Representation

15:02Collaboration Between Attorneys and Parents

17:23The Role of Educators in Child Advocacy

19:34State Variations in Educational Compliance

21:23Challenges in Meeting Educational Needs

25:25Navigating the IEP Process and Parental Rights

31:10Requesting Evaluations and the Role of Attorneys

Resources1. Frances Shefter Law 2. specialedrising.com 3. https://www.gofundme.com/f/join-rays-respite-care-mission

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In this episode, Mark Ingrassia—special educator, advocate, and parent coach—dives into one of the most overlooked but powerful tools available to families: simple, consistent routines.

Schedules. Morning charts. Time blocks.

They may sound basic—even boring—but research and decades of classroom and family experience show they are foundational to lowering stress, reducing conflict, and building independence.

This episode explores how routines don’t just organize your day—they regulate your household.

🔎 What You’ll Learn in This Episode✅ Why schedules are not about control—but about safetyPredictability lowers anxiety. When children (and parents) know what comes next, their nervous systems relax. Consistent routines reduce uncertainty, which research shows is a key driver of stress responses in both children and adults.

✅ How routines lower stress for parentsParents raising children with anxiety, ADHD, autism, or executive functioning challenges make hundreds of micro-decisions daily. That leads to decision fatigue.

When routines are consistent:

1. You stop negotiating every step.
2. You reduce arguments.
3. You prevent last-minute chaos.
4. You move from reacting to coaching.

Less decision fatigue = lower stress.

✅ How routines lower stress for childrenChildren don’t yet have fully developed executive functioning skills. When the day feels unpredictable, their brains stay on alert.

Consistent routines:

1. Reduce transition stress
2. Create clear beginnings and endings to tasks
3. Help perfectionistic children know when “enough” is enough
4. Build a sense of competence and control
5. Turn external structure into internal regulation over time

Predictability allows the brain to prepare instead of panic.

✅ The Power of “Predictable Bookends”Morning = launch pad

Evening = landing strip

When the beginning and end of the day are steady, the middle becomes manageable.

✅ Why transitions are the real challengeMost meltdowns don’t happen during tasks—they happen between them.

Clear time blocks like:

1. 4:00 Snack
2. 4:15 Homework (20 minutes)
3. 4:35 Break

…help the brain prepare for what’s next. Preparation lowers resistance. Lower resistance lowers stress.

🧠 The Research Behind ItThis episode draws from research in behavioral science, developmental psychology, and executive functioning:

1. Habit formation research (BJ Fogg, Tiny Habits) shows that small, repeatable behaviors build long-term change more effectively than large overhauls.
2. Studies on bedtime routines show consistent nightly structure improves sleep quality, emotional regulation, and behavior.
3. Research on family routines and resilience links predictable daily rhythms to lower parental stress and fewer child behavior problems.
4. Executive functioning research shows children benefit from visual schedules and timed task blocks, especially those with ADHD.
5. Psychological research on uncertainty and stress demonstrates that unpredictability increases cortisol, while structure reduces anxiety.

(See full references below.)

🛠 Practical TakeawaysIf you’re wondering where to begin:

1. Start small. Pick one part of the day.
2. Use simple time blocks instead of vague instructions.
3. Anchor the new routine to an existing habit.
4. Stay consistent for several weeks before adjusting.

It doesn’t have to be perfect.

It just has to be repeatable.

💬 Key MessageYou don’t have to be a perfect parent.

But being predictable can change your home.

You’re not just organizing a schedule.

You’re building safety.

You’re building confidence.

You’re building a calmer nervous system—for your child and for yourself.

And that changes everything.

📚 References & Research MentionedFogg, B. J. (2019). Tiny Habits: The Small Changes That Change Everything. Houghton Mifflin Harcourt.

Mindell, J. A., et al. (2015). “Bedtime routines for young children: A dose-dependent association with sleep outcomes.” Sleep.

Spagnola, M., & Fiese, B. H. (2007). “Family routines and rituals: A context for development in the lives of young children.” Infants & Young Children.

Evans, G. W., & Wachs, T. D. (2010). Chaos and Its Influence on Children’s Development. American Psychological Association.

Barkley, R. A. (2012). Executive Functions: What They Are, How They Work, and Why They Evolved.

American Academy of Pediatrics (AAP) policy statements on routines, sleep, and family structure.

🎧 Listen to more episodes at: specialedrising.com

Special Ed Rising: No Parent Left Behind

Hosted by Mark Ingrassia

Because no parent should walk this road alone.

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🎙️ Special Ed Rising: No Parent Left BehindIn this episode, Mark sits down with Julie M. Green, author of Motherness, a memoir exploring generational autism, parenthood, and radical acceptance. A 2024 finalist for the CBC Nonfiction Prize, Julie’s writing has appeared in The Washington Post, The Globe and Mail, HuffPost, Parents, Chatelaine, CBC, and Today’s Parent, among others.

Julie shares her journey as the mother of an autistic son and her own later-in-life autism diagnosis. She reflects on navigating the early 2010s autism landscape, when resources were limited and the pressure on parents to “correct” their children was intense. Together, Mark and Julie explore how the rhetoric around autism has shifted from awareness to acceptance — and why that shift is critical.

They discuss the challenges families face within educational systems that often prioritize conformity over inclusion. Julie emphasizes that behavioral struggles are often signs of unmet needs, not defiance, and that meaningful support should focus on improving quality of life rather than enforcing normalization.

The conversation also explores masking and its impact on mental health, the complexity of identity within the autistic community, and the importance of representation — including a discussion about the release of the Autistic Barbie and what true inclusion requires beyond symbolic gestures.

At its core, this episode is about self-understanding, self-compassion, and rethinking what support should look like for autistic individuals and their families. As Julie shares, she wrote the book she wished she’d had — offering an insider perspective that helps others feel seen and understood.

About Julie M. GreenJulie is the author of Motherness, a memoir of generational autism, parenthood, and radical acceptance. In 2024, she was a finalist for the CBC Nonfiction Prize. Her work has been widely published across major media outlets, and she writes The Autistic Mom on Substack.

Connect with Julie:

1. Website:https://juliemgreen.ca
2. Book:https://juliemgreen.ca/books-1
3. Substack:https://theautisticmom.substack.com/

Key Takeaways1. The rhetoric around autism is shifting from fixing to accepting. 2. Parents have historically carried immense pressure to conform their children to societal norms. 3. Quality of life — not compliance — should guide autism support. 4. Educational systems often prioritize conformity over inclusion. 5. Behavioral challenges are frequently signs of unmet needs. 6. A mindset shift is necessary to interpret autistic behaviors as communication. 7. Radical acceptance embraces the full complexity of neurodiversity. 8. Masking can have serious mental health impacts. 9. Representation matters, but it must be meaningful and nuanced. 10. Personal narratives foster empathy and help others feel understood.

Sound Bites1. “The onus was very much on parents.” 2. “It’s about improving quality of life.” 3. “I wrote the book I wish I’d had.”

Suggested Titles1. Redefining Autism: From Fixing to Accepting 2. Navigating Autism: A Journey of Radical Acceptance 3. The Parent’s Journey: Rethinking Autism Support

Chapters00:00 – Introduction and Background

06:15 – Acceptance vs. Fixing

10:06 – Inclusion, Support, and Educational Systems

27:57 – Masking and Mental Health

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🎙️ Special Ed Rising: No Parent Left BehindEpisode: Stronger Starts at Home: When Parents Grow, Kids Grow🎧 Episode SummaryParents are constantly asked to measure how their children are doing—academically, behaviorally, socially. But how often are they invited to pause and reflect on themselves?

In this episode, host and educator Mark Ingrassia shifts the focus inward. Drawing from years of experience working alongside families, Mark explores how parental self-awareness directly impacts children’s regulation, behavior, and resilience.

Because children don’t experience life in isolation—they experience it through the adults who care for them.

Through tone.

Through stress.

Through energy.

Through calm.

This episode offers practical tools to help parents recognize their strengths, identify growth areas without shame, and build simple mindful habits that reduce burnout and increase connection at home.

🧠 What You’ll Learn in This Episode1. Why parental self-awareness shapes child behavior 2. How stress responses influence family dynamics 3. The difference between reacting and responding 4. How mindful practices improve emotional regulation 5. Why strengths-based parenting creates more confidence 6. How systems—not guilt—create real change 7. A simple weekly reflection habit to prevent burnout 8. 5 calm-down tools parents can start using immediately

🌿 The 5 Calm-Down Tools Shared in This Episode1. The 3-Breath Reset – Pause and take three slow breaths before responding. 2. Grounding (5-4-3-2-1 Method) – Use your senses to return to the present moment. 3. The Pause Phrase – Repeat: “Pause. Breathe. Respond.” 4. The 2-Minute Reset – Build short breaks into transitions. 5. Body Release – Relax jaw, shoulders, hands, and tension points.

Small habits. Big impact.

💡 Key Takeaways1. Children mirror adult regulation. 2. “Behavior” often starts with adult stress levels. 3. Strengths matter more than perfection. 4. Growth happens through systems—not self-criticism. 5. Self-care is not selfish—it’s strategic. 6. When parents grow, children grow.

✍️ Reflection Questions for Parents1. When do I feel most calm and connected with my child? 2. What do I naturally do well as a parent? 3. What situations trigger stress for me? 4. What is one small regulation tool I can practice this week? 5. What worked well this week? What needs adjusting?

🛠 Try This This Week✔ Write down 3 parenting strengths

✔ Identify 1 growth area

✔ Choose 1 calm-down tool

✔ Schedule a 10-minute weekly reset

Progress over perfection.

💙 Closing ReminderYou don’t need to be perfect.

You need support.

You need awareness.

You need space to grow at your own pace.

You matter in this journey.

When you grow, your child grows.

That’s what No Parent Left Behind is all about.

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📚 Research References Used in This Episode

Parental Influence on Child Development & Parent-Child Transactional Processes

Describes how children’s development is shaped by dynamic exchanges with parents.

Source: A review on parent-child transactional processes in child development outcomes.

Quoted idea: “parents affect children and children affect parents.”

Link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7781063/

Parenting with Self-Awareness

Explains how being aware of inner states influences parenting behavior and relationships.

Quoted idea: “In our interactions with our children, each of us has the choice to respond in ways that either strengthen or weaken our relationships with them.”

Source: Alabama Cooperative Extension System resource on self-awareness in parenting.

Link: https://www.aces.edu/blog/topics/home-family/parenting-with-self-awareness-he-0952/

Positive Aspects of Parenting Children with Intellectual Disabilities

Reports on increased personal strength, confidence, and meaning-focused coping among parents.

Quoted idea: “an increased sense of personal strength and confidence” described by parents.

Source: PMC article on parental experiences and positive impacts.

Link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5703033/

Parental Reflective Functioning, Self-Efficacy, Psychological Flexibility & Coping

Examines how parental reflective functioning links to self-efficacy and proactive coping strategies.

Quoted idea: “parental self-efficacy mediated the association between reflective functioning and proactive coping strategies.”

Source: ResearchGate article on parents of children with autism.

Link: https://www.researchgate.net/publication/389248236_Psychological_Flexibility_Parental_Reflective_Functioning_Parental_Efficacy_and_Coping_in_Parents_of_Children_With_Autism

Parental Reflective Functioning and Sensitive Parenting

Shows higher parental reflective capacity is associated with better parenting and regulation outcomes in children.

Source: Article on reflective functioning in parenting from Mindfulness journal.

Link: https://link.springer.com/article/10.1007/s12671-024-02379-6

Parental Self-Efficacy and Children’s Outcomes

Discusses the relationship between parental belief in their capabilities and positive child/family outcomes.

Source: Frontiers in Psychology article on parental self-efficacy.

Link: https://www.frontiersin.org/articles/10.3389/fpsyg.2022.928629/full

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keywordsparenting, child development, neuroscience, self-awareness, communication, stress management, parent engagement, education, emotional regulation, family dynamics

summary In this conversation, Lisa A Riegel discusses the challenges parents face in supporting their children, the importance of understanding the biology of stress and perception, and effective communication strategies. She emphasizes the need for self-awareness in both parents and children, the significance of creating a supportive home environment, and the value of allowing children to explore and learn from their experiences. The discussion also touches on the importance of finding joy and self-control in parenting, and the necessity of gratitude in fostering positive relationships.

takeaways

1. Parents often feel unprepared and overwhelmed in their roles.
2. Understanding the biology of stress can help parents manage their reactions.
3. Effective communication involves recognizing and naming emotions.
4. Self-awareness is crucial for both parents and children.
5. Creating a supportive home environment fosters children's growth.
6. Allowing children to explore helps them develop resilience.
7. Mindfulness practices can enhance emotional regulation.
8. Gratitude can improve family dynamics and relationships.
9. Parents should model self-care and emotional awareness.
10. Building a strong parent-child connection is essential for development.

titles

1. Navigating Parenting Challenges
2. The Neuroscience of Parenting

Sound Bites

1. "Parents are left behind."
2. "Name my face now."
3. "Gratitude can never go wrong."

Chapters

00:00Introduction and Background of Lisa A Riegel

01:08Understanding Parental Engagement and Neuroscience

02:58The Impact of Stress on Learning and Behavior

04:42Navigating Teenage Emotions and Communication

08:45Self-Awareness and Emotional Regulation

14:16Practical Strategies for Parents and Children

16:10The Role of Self-Awareness in Parenting

20:38Building Family Connections Through Communication

21:41The Importance of Family Dinners

22:55Cultivating Positive Mindsets in Children

23:43Navigating Parenting Challenges

25:21The Pressure of Modern Childhood

26:06Finding Personal Fulfillment

27:39Understanding Happiness and Self-Awareness

29:07Developing Self-Care Routines

31:15Managing Anxiety and Control

32:34Influence of Peers and Social Media

35:11Choosing Happiness and Life Changes

37:04Final Thoughts for Parents and Educators

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In this episode of Special Ed Rising: PURGE 47 Edition, host Mark Ingrassia steps away from disability policy to confront a reality that affects every American: the rapid erosion of democratic norms and the rise of authoritarian governance in the United States—most visibly playing out right now in Minnesota.

Mark examines the aggressive federal immigration enforcement surge led by DHS, ICE, and Border Patrol, including mass arrests, militarized operations in residential neighborhoods, and multiple fatal encounters involving U.S. citizens. He addresses the killings of Renée Nicole Good and Alex Pretti, the mounting allegations of illegal and inhumane ICE practices, and the constitutional crisis triggered by unchecked executive power.

This episode also draws historically grounded parallels to past authoritarian regimes—not as sensationalism, but as a warning. Through legal analysis, scholarly research, and firsthand accounts, Mark explores how democratic erosion happens: through normalization, propaganda, the weakening of oversight, and the weaponization of fear against marginalized communities.

This is not a partisan episode. It is a civic one.

If you believe in due process, equal protection, and the rule of law, this conversation is not optional.

🧭 What We Cover in This Episode1. Why Mark is stepping beyond disability policy for this urgent episode 2. The federal immigration enforcement surge in Minnesota 3. Militarized ICE operations and mass detentions 4. The killings of Renée Nicole Good and Alex Pretti 5. Allegations of warrantless stops, racial profiling, and suppression of civilian recording 6. Federal court intervention and constitutional challenges 7. The concept of the “prerogative state” and authoritarian drift 8. How language and propaganda are used to dehumanize targeted groups 9. Historical warning signs of democratic erosion 10. Why silence and normalization are the real danger

🧠 Key Themes1. Federal overreach and lack of accountability 2. Due process and Fourth Amendment erosion 3. State vs. federal power conflicts 4. Militarization of civilian law enforcement 5. The human cost of unchecked authority 6. Historical parallels to authoritarian systems 7. Civic responsibility in moments of democratic crisis

📌 Sources Referenced1. CBS News — Minneapolis becomes ground zero in immigration crackdown 2. PBS NewsHour — Federal court hearings on Minnesota enforcement surge 3. Business Insider — Labor unions call for ICE to leave Minnesota 4. ACLU — Statements on ICE and CBP deployment 5. The Guardian — Constitutional challenges to ICE operations 6. Center for American Progress — How democracies erode 7. Berkeley News — Historians on modern fascism parallels 8. Wikipedia — Dual State (Model) 9. Minneapolis.gov — Legal filings on Operation Metro Surge 10. Wikipedia — Killing of Alex Pretti 11. Wikipedia — 2026 Anti-ICE Protests in the United States

(Full source list available on specialedrising.com)

📣 Call to ActionIf you’re listening to this and thinking, “Someone should do something,” that someone is you.

Share this episode. Call your representatives. Demand accountability. Show up in your community.

Silence is complicity—and democracy doesn’t defend itself.

🔗 Links🌐 Website: https://specialedrising.com

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The release of the first autistic Barbie sparked hope, joy, and meaningful conversation. Representation matters—especially for children who rarely see themselves reflected in the world around them. For some families, this doll is a moment of validation.

But representation is not the same as support.

In this episode, we look beyond the celebration to ask harder questions:

Can a single doll represent the full autism spectrum? Who gets included—and who gets left out—when disability is made marketable? And does visibility sometimes make the world more comfortable without changing the systems families depend on?

We explore the autistic Barbie’s design, the mixed reactions from autistic adults and parents, and the growing gap between symbolic inclusion and real-world support. From IEP battles and underfunded schools to weakened enforcement of IDEA, parents are often left holding two truths at once: pride in being seen and exhaustion from fighting systems that still don’t work.

This episode isn’t about rejecting representation—it’s about demanding more.

Because symbols can open the door, but policy, funding, and accountability decide whether our kids get through it.

🧠 Resources & Research from the Episode1. Creating Inclusive Schools for Autistic Students (Scoping Review) – Frontiers in Education 2. https://www.frontiersin.org/journals/education/articles/10.3389/feduc.2025.1630710/full?utm_source=chatgpt.com 3. Teachers’ Perceptions & Strategies for Inclusion – Springer 4. https://link.springer.com/article/10.1007/s10803-021-05266-4?utm_source=chatgpt.com 5. School-Based Interventions for Social Inclusion – Springer 6. https://link.springer.com/article/10.1007/s40489-024-00429-2?utm_source=chatgpt.com 7. Improving Student Attitudes Toward Autistic Peers – PubMed 8. https://pubmed.ncbi.nlm.nih.gov/37615921/?utm_source=chatgpt.com 9. Strategies Supporting Inclusive Education for Autistic Students – PubMed 10. https://pubmed.ncbi.nlm.nih.gov/36382073/?utm_source=chatgpt.com 11. Mattel Launches First Autistic Barbie – The Guardian 12. https://www.theguardian.com/society/2026/jan/12/mattel-launches-its-first-autistic-barbie?utm_source=chatgpt.com 13. Mattel Teams with Autistic Self Advocacy Network – AP News 14. https://apnews.com/article/9c33f493a04c4f52bb8d08026b6f5f53?utm_source=chatgpt.com 15. Teacher Knowledge & Self-Efficacy Toward Inclusion – PubMed 16. https://pubmed.ncbi.nlm.nih.gov/38155371/?utm_source=chatgpt.com 17. Challenges in Mainstream Schools for Inclusion – PubMed 18. https://pubmed.ncbi.nlm.nih.gov/38481460/?utm_source=chatgpt.com

Parents, educators, and advocates: This episode is for anyone who wants to see representation and real support for autistic kids. Let’s celebrate the wins without losing sight of the work still ahead.

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In this episode of Special Ed Rising: No Parent Left Behind, we dive into what parents need to know about special education heading into 2026. From federal proposals like the Empowering Families in Special Education Act to state-level updates in New Jersey and Connecticut, staying informed has never been more important.

We also explore an unexpected lesson from Marcel the Shell with Shoes On—a tiny, one-eyed shell whose story teaches us about uniqueness, dignity, interdependence, and the importance of seeing potential over difference.

Whether you’re navigating IEP meetings, advocating for accommodations, or just trying to make sense of a system that wasn’t built for your child, this episode is a reminder that access, advocacy, and informed action are the keys to inclusion.

Key Takeaways:

1. IDEA rights remain intact, but implementation depends on proactive, informed parents.
2. Transparency is increasing in some states, but families must still monitor progress and ask questions.
3. Difference is not deficit—uniqueness opens doors, Marcel-style.
4. Advocacy isn’t optional; it’s essential.

Resources Mentioned:

1. Individuals with Disabilities Education Act (IDEA) – U.S. Department of Education
2. Empowering Families in Special Education Act (proposed) – U.S. Congress
3. New Jersey Department of Education – IEP transparency
4. Connecticut State Department of Education – Parent guides
5. Wrightslaw – Special education law & advocacy
6. COPAA – Family-centered advocacy
7. Marcel the Shell with Shoes On (2021), dir. Dean Fleischer Camp

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If you’re a parent navigating special education, the system is changing fast—and whether those changes help or hurt your child depends largely on how informed and prepared you are. In this episode, we break down the most important trends heading into 2026, based on research, national reporting, and what families are experiencing on the ground.

What You’ll Learn in This Episode:

1. Rising Demand & Identification: How IDEA eligibility continues to grow, and what that means for assessments and services.
2. Inclusion & Instruction: Why true inclusion goes beyond placement and how social integration and belonging impact outcomes.
3. Technology & Personalized Learning: How AI, adaptive tech, and assistive technology are transforming learning—and what parents need to watch for in IEPs.
4. Early Intervention & Life Skills: Evidence showing early supports improve long-term outcomes, plus the growing focus on independence, job readiness, and daily living skills.
5. Policy, Funding & System Challenges: How ending ESSER funds, Medicaid changes, and the One Big Beautiful Bill impact school services, staffing, and delivery.
6. Well-Being & Teaching Strategies: Trauma-informed instruction, social-emotional learning (SEL), and Universal Design for Learning (UDL) as key strategies for student success.

Why This Matters:

Parents need to advocate early, clearly, and consistently, stay informed about policy changes, and ensure their child’s services are delivered as written in the IEP. Advocacy doesn’t mean knowing everything—it means showing up, asking questions, documenting, and never letting decisions about your child happen without you.

Resources & Links Mentioned in the Episode:

1. Special Ed Rising: specialedrising.com — tips, tools, and parent coaching
2. YouTube Channel: Special Ed Rising YouTube
3. Ray’s Respite Care GoFundMe: [link in show notes] — help bring relief and joy to families
4. Safer Starter iPhone: iparent101.com — advocate for safer technology for kids
5. 52 Love Letters to You by Jyoti Jo Manuel: lovefromjyoti.com — daily reflections for self-compassion

Takeaway:

Your voice matters. Your presence matters. And your child’s future is worth the discomfort of pushing back. Systems don’t protect children—people do.

References for 2026 Trends Episode1. K–12 Dive – Reporting on rising special education enrollment and IDEA eligibility trends. 2. Read more 3. The Guardian – UK parental requests for special education assessments and system challenges. 4. Read more 5. The Edvocate – Insights on inclusive classrooms and benefits for students academically and socially. 6. Read more 7. National Library of Medicine / PubMed – Research on meaningful inclusion, early intervention, and long-term outcomes. 8. Inclusion & belonging: PMC article 9. Early intervention & outcomes: PubMed study 10. Springer Nature – Systematic reviews on AI and adaptive technologies in special education for personalized learning. 11. Read more 12. GovTech.com – Guidance on ethical, equitable implementation of AI in schools. 13. Read more 14. Education Week – Parent perspectives on AI enhancing inclusivity in education. 15. Read more 16. Project Understanding – Evidence supporting early childhood programs improving long-term academic and social outcomes. 17. Read more 18. Illuminated Minds – Trends emphasizing life skills, independence, and job readiness in special education. 19. Read more 20. Oregon Public Broadcasting (OPB) – Analysis of the One Big Beautiful Bill (2025) and its impacts on Medicaid and school funding. 21. Read more 22. Skillman Foundation – Insights into how federal funding changes affect state budgets and education services. 23. Read more 24. Edmentum – Trends in trauma-informed teaching, social-emotional learning (SEL), and instructional strategies. 25. Read more 26. Teachers Institute – Universal Design for Learning (UDL) research and classroom applications. 27. Read more

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Show Notes:

As 2025 comes to a close, this episode of Special Ed Rising; No Parent Left Behind takes a hard look at the policies that continue to marginalize disabled children, adults, and their families. From reduced Medicaid funding and overwhelming waitlists for home- and community-based services, to inaccessible housing and restricted employment opportunities, we explore how these choices play out in real lives across the country.

We dig into how exclusion is not just a policy issue—it’s a reflection of our values. What happens when disabled people are seen as “costs” or “burdens,” when immigrant families fear accessing services, or when Black and Brown disabled students face disproportionate discipline?

This episode challenges listeners to ask: where does our fear and prejudice end, and where does our humanity begin? Learn practical ways to take action, advocate for inclusive policies, and support disability-led initiatives.

Special Ed Rising is your guide to turning frustration into advocacy, isolation into community, and silence into action. No parent should navigate this system alone, and no story should be dismissed.

Takeaways: Special Ed Rising – Rising Against ExclusionExclusion is real and measurable.

Policy choices—like cuts to Medicaid, long HCBS waitlists, inaccessible housing, and restricted employment—directly affect whether disabled people can live independently and with dignity.

Discrimination intersects with other identities.

Race, language, class, and immigration status intensify the impact of disability exclusion. Black and Brown students, immigrant families, and low-income households often face compounded barriers.

Inclusion is a value, not a luxury.

When disabled people are framed as “burdens” or “exceptions,” society tolerates inequity. Advocates must challenge these narratives to center dignity, equity, and humanity.

Action starts locally.

Attend IEP meetings, school board sessions, and legislative hearings. Advocate for accessible housing, inclusive education, and equitable employment opportunities. Share your lived experiences—statistics alone aren’t enough.

Change begins with community and persistence.

Exclusion isn’t inevitable. By showing up, speaking out, and supporting disability-led organizations, families, educators, and advocates can transform frustration into collective power.

You are not alone.

Special Ed Rising exists to amplify parent and caregiver voices, break down complex policies, and foster a supportive community where no parent is left behind.

Call to Action:

Show up at IEP meetings, school boards, and legislative hearings. Share your story. Support disability-led organizations. And when inclusion is dismissed as “too expensive,” speak up—because change begins with people who refuse to accept less for their children, their families, and their futures.

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Resources & References for This Episode Medicaid & Disability Services: Learn more about how Medicaid supports people with disabilities and recent policy changes. Kaiser Family Foundation * Accessible Housing: Data on how few housing units are truly accessible for adults with disabilities and the barriers families face. Urban Institute, Northeast Arc * Education & Discipline Disparities: Research on how Black and Brown students with disabilities are disproportionately disciplined or denied supports. Skiba et al., 2011, U.S. Department of Education, Office for Civil Rights * Employment & Work Programs: Information about employment programs for disabled adults and barriers to competitive employment. Social Security Administration – Ticket to Work, Kaye, 2010 * Early Intervention for Immigrant Families: Challenges immigrant families face accessing services for their disabled children. National Center for Family Professional Partnerships * General Disability Advocacy & Resources: Practical guides for inclusion, accessibility, and advocacy. Disability Rights Education & Defense Fund * Special Education Policy & Practice*: How schools and states manage services, inclusion, and supports for students with disabilities. National Center for Special Education in Charter Schools

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In this episode of Special Ed Rising, I talk honestly about what families truly need in order to rise.

Before policies, programs, or solutions, we have to acknowledge the lived experience of families navigating special education every day. Families aren’t just managing paperwork—they’re carrying fear, exhaustion, and the pressure to get it right in a system that often asks too much without offering enough support.

I explore the emotional toll on families, the concept of parent role strain, why burnout is not failure, and how broken follow-through erodes trust. Drawing on research and real-world experience, this episode highlights what actually helps families thrive: clear communication, consistent implementation, meaningful partnership, and access to training, coaching, and community.

In this episode:

• Why parental stress and burnout are predictable—not personal failures
• How jargon and broken follow-through block collaboration
• Why parent voice and partnership improve outcomes
• Practical ways schools and systems can support families

Special Ed Rising supports individuals with disabilities across education, access, and health.

⭐ If you enjoy the show, please rate, review, subscribe, and share.

Resources & Advocacy

• Parent coaching & tools: specialedrising.com
• Support Ray’s Respite Care https://www.gofundme.com/f/join-rays-respite-care-mission
• Join the call for a Safer Starter iPhone: iparent101.com
• Featured book: 52 Love Letters to You by Jyoti Jo Manuel — lovefromjyoti.com

When families are informed, respected, and supported, students thrive. When families rise, systems must follow.

REFERENCES (APA)Cheng, A. W. Y., & Lai, C. Y. Y. (2023). Parental stress in families of children with special educational needs: A systematic review. Frontiers in Psychiatry, 14, Article 1223456. https://doi.org/10.3389/fpsyt.2023.1223456

Mooren, M. A. (2025). How parents experience language during IEP meetings: Perceptions of language and collaboration (Doctoral dissertation, Marquette University).

Pennington, S. E., Tang, J. H., Divoll, K., & Correll, P. (2024). A scoping review of parent interactions with teachers and school environments. Education Sciences, 14(3), 294. https://doi.org/10.3390/educsci14030294

The Impact of parental involvement on the educational development of students with autism spectrum disorder. (2025). Children, 12(1), Article 1062. https://doi.org/10.3390/children12011062

The effect of family–educator relationships on special educator well-being. (2025). Education Sciences, 15(9), 1120. https://doi.org/10.3390/educsci15091120

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summary

In this enlightening conversation, Mark and Jyoti explore the profound themes of self-love, mindfulness, and the healing power of nature. Jyoti, known as the 'Love Whisperer', shares her journey of embracing imperfection and the importance of pausing to reconnect with oneself. They discuss the significance of listening to our bodies, the impact of love letters, and the transformative power of forgiveness. Throughout the dialogue, they emphasize the necessity of self-care and the role of nature as a healer, encouraging listeners to cultivate a deeper connection with themselves and the world around them.

takeaways

• Self-love is essential for personal growth.
• Nature has a healing power that we often overlook.
• Forgiveness is a choice that leads to love.
• Listening to our bodies can guide us to better health.
• The pause in our busy lives is crucial for mindfulness.
• Embracing imperfection allows for true self-acceptance.
• Practicing self-care is not selfish; it enhances our ability to care for others.
• Love letters can serve as powerful reminders of self-compassion.
• We are all messy human beings, and that's okay.
• Connecting with nature can ground us and bring peace.

titles

• The Love Whisperer's Journey to Self-Discovery
• Embracing Imperfection: A Path to Self-Love

Sound Bites

• "The pause is powerful."
• "Self-care is not selfish."
• "Forgiveness brings love."

Chapters

00:00

Reconnecting with Nature and Self

04:30

The Journey of the Love Whisperer

12:51

Embracing Imperfection and Self-Love

16:26

The Power of Pause and Presence

23:21

Listening to the Body and Energy

30:21

The Importance of Self-Care

34:33

Nature as a Healer

39:53

The Impact of Love Letters

44:41

Forgiveness and Self-Compassion

47:24

Grounding Practices for Everyday Life

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*Change: Parent checklists can be found in the transcipts not here in notes.

Transition out of high school isn’t just a formality — it’s one of the biggest turning points in your child’s life. Whether your child is only a few years away from graduation or still early in middle school, this episode will be a game-changer for your planning.

In this episode, I dig into what transition planning actually is, why it matters, when it should start, and how to make sure your child doesn’t fall into the dreaded service gap that so many families experience after graduation. We’ll also look at late-start scenarios — because yes, even if your child is a senior, you still have options.

Transition planning is a coordinated, legally required process that helps students with disabilities move from school into adult life — college, employment, vocational training, independent or supported living, and community participation. It starts as early as 14 in many states and must reflect the student’s strengths, needs, interests, and goals. Student voice is essential, and schools should support them in identifying what they want for their future. Strong transition planning includes academic alignment, continued related services, community experiences, employment preparation, independent living skills, and early connections to adult-service agencies like OPWDD or VR. Families should watch for red flags such as late planning, no action behind goals, or missing adult-service involvement — these gaps can cause major delays later.

Parents can take meaningful steps whether their child is 14 or already a senior. For younger students, review IEP transition goals, explore community opportunities, and connect early with state agencies. For seniors starting late, request an urgent IEP meeting, add measurable goals, complete transition assessments, apply immediately to adult services, and consider delaying graduation if needed — accepting a diploma ends IEP rights. Transition isn’t extra — it is the future — and with informed planning and strong school partnerships, young adults can move confidently into the next chapter.

these are the authoritative documents and organizations that the content is based on:

Key Federal Laws & Guidance Individuals with Disabilities Education Act (IDEA 2004) * Section 614(d)(1)(A)(i)(VIII): Transition services requirements * Section 602(34): Definition of transition services * U.S. Department of Education – Office of Special Education Programs (OSEP) * Transition Guide to Postsecondary Education and Employment for Students and Youth With Disabilities* (2017) * Rehabilitation Act of 1973 (as amended by WIOA) * Requirements for Pre-Employment Transition Services (Pre-ETS) * State Vocational Rehabilitation (VR) coordination with schools

National Organizations / Best-Practice Sources* National Technical Assistance Center on Transition (NTACT & NTACT:C) * Evidence-based practices in transition planning * Transition assessment guidelines * Center for Parent Information and Resources (CPIR) * Parent-friendly resources on transition and IEP requirements * National Parent Center on Transition and Employment (PACER Center) * Guidance on student involvement, family roles, and planning steps * Council for Exceptional Children (CEC) * CEC Standards for Transition Specialists * Best practices in secondary transition * state vocational rehabilitation agencies * VR eligibility, Pre-ETS, and transition timelines

Research-Based References Test, D. W., et al. (2009). Evidence-Based Secondary Transition Practices for Improving Postschool Outcomes for Students with Disabilities. * Kohler, P. (1996/2003). Taxonomy for Transition Programming. * Landmark, L. J., et al. (2010). Transition planning for students with disabilities: Best practices.*

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summary

In this engaging conversation, Lynn Greenberg discusses her journey, along with her son Jonathan, as co-authors of children's books that focus on neurodiversity, particularly ADHD. She shares insights about her son Jonathan's experiences, the importance of advocacy, and the challenges faced by parents and educators in supporting neurodiverse children. The discussion highlights the need for understanding, inclusion, and the celebration of differences in children, as well as the role of literature in fostering these values.

titles

• Navigating Neurodiversity: A Conversation with Lynn Greenberg
• Empowering Children Through Literature

Sound Bites

• "It's his superpower."
• "Why be an ostrich?"
• "Parents are the heroes."

keywords

ADHD, neurodiversity, children's books, education, advocacy, parenting, self-advocacy, inclusion, accessibility, creative cab company

takeaways

• John is pursuing his MFA and hopes to teach.
• The new book addresses ADHD and its challenges.
• Neurodiversity should be celebrated as a strength.
• Understanding differences in children is crucial.
• Teachers need more training to support diverse learners.
• Parents play a vital role in advocating for their children.
• Children should learn to self-advocate as they grow.
• Language used in education can impact perceptions of neurodiversity.
• Inclusion in literature helps all children feel seen.
• Community support is essential for families with neurodiverse children.

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Chapters

00:00

Technical Difficulties and Personal Updates

02:54

Celebrating Achievements in Children's Literature

05:26

Understanding Neurodiversity: ADHD and Dyslexia

08:10

Capturing Strengths and Challenges in Storytelling

10:50

The Importance of Acceptance and Understanding

13:29

Navigating Education: The Role of Parents and Teachers

16:16

Advocating for Change in Education

19:17

Empowering Children to Self-Advocate

21:53

Empowering Children Through Decision-Making

22:58

Navigating the Challenges of Modern Parenting

24:25

Understanding ADHD in Girls

26:39

The Language of Special Needs

28:33

Accessibility in Children's Literature

31:53

Fostering Conversations Around Learning Differences

34:45

Finding Community and Support

37:26

The Role of Parents as Heroes

38:26

Resources for Parents and Educators

40:57

Creative Expression Through Art

42:06

Exploring New Themes in Children's Books

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keywords

technology, parenting, child development, mental health, iOS Grow, neurodiversity, anxiety, impulsivity, behavior modification, digital stimulation

summary

In this conversation, Mark and Dr. Adam Pletter discuss the significant impact of technology on parenting and child development. They explore the challenges parents face in managing their children's technology use, the importance of scaffolding in introducing technology, and the responsibility of tech companies to create safer environments for children. Adam shares insights on the neuroscience behind impulsivity and anxiety in youth, offering strategies for parents to help their children navigate the digital world. The discussion culminates in Adam's grassroots movement called iOS Grow—a health-first iPhone experience designed with families in mind. Think of your child’s first phone like a learner’s permit: features are unlocked over time, not all switched on by default. The idea is to start with safety, not restriction—plus age-based check-ins and even a ‘co-parent mode’ to help two-household families stay consistent and reduce conflict.

iOS Grow: A Health-First iPhone Experience for FamiliesWhat if your child’s first iPhone supported their mental health and development?

iOS Grow is a guided iPhone experience that helps kids grow into technology—not just grow up on it. Grounded in developmental science, it evolves as children mature and as families build trust.

• Developmental Defaults: App access, notifications, and time settings calibrated to a child’s age and stage.
• Digital Milestones: Built-in check-ins at key ages (8, 11, 13) prompt families to review and adjust settings together.
• Healthy Rhythms: Screen time synced with sleep, school, and Apple Health data.
• Co-Parent Mode: Shared limit-setting and visibility across two households—reducing conflict and promoting consistency.
• Flexible Access: Offered as either a dedicated Starter iPhone or a downloadable Grow Mode for hand-me-downs.

Why it matters:

Today, 88 % of U.S. teens own or have access to a smartphone (Pew Research Center, 2023), and most own iPhones. Families are forced to work backward—full access first, restrictions later. iOS Grow flips that script: parents unlock autonomy as kids demonstrate readiness.is resonates with you, please add your voice. It takes 60 seconds to give Apple direct feedback through his campaign at iParent101.com/applefeedback. Now, let’s get started.”

takeaways

• Technology is a significant parenting challenge today.
• Scaffolding technology use is essential for child development.
• Tech companies have a responsibility to create safer environments for children.
• Anxiety is a natural part of human survival and development.
• Children's brains are still developing, impacting their decision-making.
• Parents need to understand the reference points of their children regarding technology.
• Impulse control can be taught and practiced.
• Balance in technology use is a constant adjustment.
• The iOS Grow initiative aims to help parents manage technology use.
• Collaboration between parents and tech companies is crucial for child safety.

titles

• Navigating Parenting in the Digital Age
• The Role of Technology in Child Development

Sound Bites

• "Pressure's on to just be you."
• "Every teenager grew up with YouTube."
• "I'm eager to work with Apple."

Chapters

00:00

Introduction and Setting the Scene

02:51

Understanding Technology's Impact on Parenting

05:29

The Convergence of Personal Experience and Professional Insight

08:04

Scaffolding Technology Use for Children

10:39

The Speed of Technology and Its Implications

13:17

Neuroscience of Child Development and Technology

16:06

Addressing Parental Concerns About Technology Use

18:47

Building Capacity Instead of Restricting Access

21:43

The Future of Human Development in a Digital Age

30:36

Understanding Anxiety and Emotional Responses

33:36

Strategies for Coping and Resetting

35:53

Empathy in Therapy and Understanding Neurodiversity

39:49

The Need for a New Approach to Technology

44:59

iOS Grow: A New Paradigm for Child Technology Use

50:10

The Future of Technology and Mental Health

https://iparent101.com/

https://iparent101.com/smarter-first-iphone-lets-give-apple-our-feedback/

• @iparent101 Youtube-1 minute truths with Dr. Pletter

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

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Federal funding for SNAP (Supplemental Nutrition Assistance Program) is at risk due to the ongoing government shutdown, putting millions of families—especially those raising children with special needs—at serious risk. In this episode, Mark Ingrassia breaks down what happens when SNAP benefits are delayed, the real-world consequences for children’s nutrition, learning, and therapy, and what parents can do right now to protect their families.

I’ll cover:

• Who will be most impacted by SNAP disruptions and why children with special needs are particularly vulnerable.
• How school meal programs may be affected if SNAP benefits stop.
• Immediate, practical steps families can take to ensure their children have access to food.
• Advocacy tips to protect families and hold policymakers accountable.

This is more than a funding issue—it’s about the stability, health, and focus of children who rely on these programs. Learn how to prepare, plan, and stay informed during this crisis.

Resources & Links Mentioned in This Episode:

• Visit specialedrising.com for parent coaching, tools, and resources.
• Support Ray’s Respite Care for individuals with severe medical disabilities: GoFundMe link in the show notes.
• Check your local school district for updates on meal programs.
• Find local food banks and community support programs to help families during SNAP delays.

Takeaway Message:

SNAP isn’t welfare—it’s a lifeline for working families who still struggle to afford groceries. When federal funding is delayed, children’s health, learning, and therapy routines are directly impacted. This episode gives you practical steps to safeguard your child’s nutrition, maintain stability, and advocate for families in need.

Action Steps:

1. Check your EBT balance and plan for remaining funds.
2. Prioritize essential food purchases and special diet needs.
3. Stay up-to-date on recertification and eligibility requirements.
4. Connect with local food banks and disability service organizations.
5. Coordinate with your school’s nutrition services for backup plans.
6. Share this information with other parents, caregivers, and IEP teams.

Stay Informed & Connected:

No parent should have to wonder if their child will eat tonight. Subscribe to Special Ed Rising: No Parent Left Behind to stay updated on policies and strategies that affect families of exceptional learners.

https://specialedrising.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

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Presented by: Music Workshop — Free music curriculum and new PD series on Music for Well-Being, free through December 2025 at musicworkshop.org

Episode SummaryIn this powerful and deeply personal episode, host Mark Ingrassia goes off-script to confront an uncomfortable reality — the misuse of his own family name in the halls of power. When Paul Ingrassia, a Trump nominee for the Office of Special Counsel, was exposed for sharing racist and extremist remarks, Mark knew he couldn’t stay silent.

This episode examines the intersection of ethics, public service, and disability advocacy, revealing what happens when integrity takes a backseat to ideology. Mark draws a sharp contrast between two Ingrassias: one who abused trust, and another fighting to restore it — using his platform to promote inclusion, decency, and accountability in the systems meant to protect the most vulnerable.

Through this lens, Mark redefines what the Ingrassia name stands for — compassion, service, and justice — and calls on all of us to keep watching, questioning, and demanding better from our leaders.

Key Topics* 🚨 The failed nomination of Paul Ingrassia to the Office of Special Counsel * 💬 His documented extremist remarks and their implications for federal ethics * 🧩 Why integrity in government oversight matters for the disability community * ⚖️ The contrast between ideology and accountability in public service * 🔦 Reclaiming the Ingrassia legacy through advocacy, inclusion, and truth * 🧠 Historic and modern-day Ingrassias whose work elevated science, art, and justice * 🌍 Why vigilance — “sunlight” — still works when we refuse to look away

Featured Legacy Highlights Giovanni Filippo Ingrassia (1510–1580): Father of Sicilian medicine; discovered the stapes bone. * Ciccio Ingrassia (1922–2003): Beloved Italian actor and comedian. * Anthony Ingrassia (1944–1995): American playwright and director. * Julien Ingrassia (b. 1979): Champion rally co-driver. * Angelo Ingrassia (1923–2013):* New York Supreme Court Justice.

Each name reflects creativity, intellect, and service — the true spirit of the Ingrassia legacy.

Quote of the Episode

“You can’t have justice when the gatekeeper doesn’t believe in equality.” — Mark Ingrassia

Resources & Links 🌐 Website: specialedrising.com — Explore resources, parent coaching, and advocacy tools. * 🎥 YouTube Channel: Special Ed Rising — Watch interviews, episodes, and insights. * 💗 Support Ray’s Respite Care: [GoFundMe Link in Show Notes] — Help build vital support for families caring for loved ones with disabilities. * 🎶 Sponsor: Music Workshop* — Learn more at musicworkshop.org.

Closing MessageThis episode is more than a response to controversy — it’s a reclamation. The Ingrassia name doesn’t belong to hate; it belongs to hope. Through awareness, empathy, and unwavering accountability, we can all redefine what integrity looks like in action.

Let’s start prioritizing integrity and accountability — on our way to another win!



specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

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keywords

finances, unhappiness, avoidance, contentment, relationships, financial health, mental health, parenting, emotional well-being, happiness

summary

In this conversation, Lori Atwood speaks to the Exceptional Needs parents as well as all parents. She discusses the profound impact of emotional well-being on financial health. She emphasizes that unhappiness, whether stemming from personal relationships or life circumstances, can lead to poor financial decisions and increased spending as a coping mechanism. The discussion highlights the importance of addressing emotional issues to improve both personal happiness and financial stability.

takeaways

• Avoidance is very, very bad.
• The worst thing for your finances is unhappiness.
• Throwing money at problems is a temporary fix.
• Life's challenges can lead to financial strain.
• Contentment is key to better financial decisions.
• Addressing personal issues can improve finances.
• Unhappiness in relationships affects financial health.
• Seeking help is crucial for emotional and financial well-being.
• Financial decisions are often influenced by emotional states.
• Happiness leads to better parenting and financial management.

titles

• The Hidden Costs of Unhappiness
• Financial Health and Emotional Well-Being

Sound Bites

• "Avoidance is very, very bad."
• "Life is just such a up cluster."
• "There's no promise of tomorrow."

Chapters

00:00

Introduction and Early Riser Discussion

00:52

The Ripple Effect of Family Dynamics

01:05

Navigating Divorce and Financial Planning

specialedrisng.com

https://fearlessfinance.com/

$50 off promo code: INGRASSIA

https://www.gofundme.com/f/join-rays-respite-care-mission

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keywords

children's literature, overcoming shyness, teaching, inclusivity, parenting, socialization, kindness, acceptance, education, writing process

summary

In this conversation, Christine Devane shares her journey from a shy child to a teacher and author, emphasizing the importance of kindness, acceptance, and inclusivity in education. She discusses her book 'Elephant Beach', which addresses the experiences of shy children and encourages them to step outside their comfort zones. The conversation also highlights the significance of socialization in homeschooling, the spontaneity of parenting, and Christine's future projects that tackle themes of grief and emotional connection. The discussion underscores the vital role of teachers and parents in nurturing children's individuality and emotional well-being.

takeaways

• Christine's journey from shyness to teaching shaped her understanding of children's needs.
• Inclusivity in classrooms is crucial for fostering a supportive environment.
• 'Elephant Beach' conveys messages of courage and acceptance for shy children.
• Homeschooling can provide socialization opportunities if approached thoughtfully.
• Spontaneity in parenting leads to memorable experiences for children.
• Classroom visits allow for engaging activities that enhance learning.
• Future projects include addressing grief and emotional connections in children's literature.
• Libraries are valuable resources for encouraging children's reading habits.
• Every child has a unique personality that should be respected and nurtured.
• Teaching kindness and acceptance is essential in today's world.

titles

• Embracing Shyness: A Teacher's Journey
• The Power of Kindness in Children's Literature

Sound Bites

• "It's okay to be shy."
• "Every day is different with kids."
• "Teaching kindness is essential."

https://www.christine-devane.com/

https://specialedrising.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

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In this conversation, Maria Davis-Pierre, a licensed therapist and advocate for autism in the Black community, shares her personal journey navigating the intersections of race and autism. She discusses the challenges faced by Black families in obtaining timely diagnoses and the impact of implicit bias in healthcare. Maria emphasizes the importance of community support, advocacy, and self-care for parents. She also highlights the systemic issues in education and the need for inclusive policies that consider the voices of those affected. The conversation underscores the urgency of addressing these disparities to ensure better outcomes for neurodivergent individuals and their families.

takeaways

• Maria's daughter was diagnosed with autism at a young age, highlighting the importance of early intervention.
• Many Black children are diagnosed later than their peers, impacting their access to services.
• Implicit bias in healthcare leads to Black parents being taken less seriously when advocating for their children.
• Community support is crucial for Black families navigating autism.
• Parents need to advocate for their children and trust their instincts.
• The transition from school to adulthood is challenging for autistic individuals.
• Self-care is essential for parents dealing with the stress of advocacy.
• Education systems often fail to accommodate the needs of neurodivergent students.
• There is a need for more representation and awareness in the Black community regarding autism.
• Policies affecting autism services must include the voices of those impacted.

titles

• Navigating Autism and Race: A Personal Journey
• The Impact of Delayed Diagnosis on Black Families

Sound Bites

• "Your biases are at play here."
• "It's difficult for me as a parent."
• "You can't let anyone gaslight you."

Chapters

00:00

Navigating Autism and Race

06:16

The Impact of Delayed Diagnosis

11:51

Implicit Bias in Healthcare

16:34

Community Support and Advocacy

19:47

The Future of Autism Services

23:19

Self-Care and Resilience

23:52

Building a Supportive Network

32:46

Challenges in Education

42:48

Transitioning to Adulthood

47:44

Empowering Parents to Advocate

48:36

The Need for Inclusive Policy Making

https://specialedrising.com/

https://www.autisminblack.org/

https://www.gofundme.com/f/join-rays-respite-care-mission

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In this conversation, Mark and Kim Zajac discuss the challenges and triumphs in the field of education, particularly focusing on speech-language pathology, inclusion, and the integration of technology in learning. They explore the importance of collaboration among educators, the role of AI in enhancing learning experiences, and the necessity of parental involvement in supporting students. The discussion also touches on the significance of emotional regulation and executive functioning in students' learning processes, emphasizing the need for a supportive and understanding educational environment.

takeaways

• The importance of having backup plans for technology in education.
• Communication is essential for effective learning and teaching.
• Inclusion and equity are critical in today's educational landscape.
• Universal Design for Learning allows for diverse learning methods.
• AI can serve as a valuable tool for educators and students.
• Parental involvement is crucial for student success.
• Collaboration among educators enhances learning outcomes.
• Executive functioning skills are vital for student success.
• Emotional regulation plays a significant role in learning.
• Teachers need to create safe spaces for students to learn and grow.

titles

• Navigating the Challenges of Education
• The Role of Speech-Language Pathology in Schools

Sound Bites

• "Collaboration is so important."
• "We are all learners."
• "Communication is behavior."

Chapters

00:00

Introduction and Technical Challenges

03:54

The Journey to a Rewarding Career

10:14

Inclusion and Equity in Education

16:38

Universal Design for Learning

23:38

The Role of AI in Speech Pathology

29:22

Innovative Communication Tools for Nonverbal Children

32:36

The Story Behind Glint: A Game Changer

33:50

AI in Education: Enhancing Lesson Planning

36:42

Modeling Resourcefulness: AI as a Support Partner

38:16

Funding Challenges in Education

43:03

The Importance of Collaboration in Education

46:31

Creating Safe Spaces for Teachers

50:05

Executive Functioning and Emotional Regulation

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In this conversation, Sarah Wheeler and Mark discuss the intricate relationship between deaf culture, interpreting, and emotional intelligence. They explore the importance of building trust and understanding in communication, the challenges faced by interpreters, and the evolving dynamics of deaf culture in the context of technology and education. The discussion emphasizes the need for emotional intelligence in both interpreting and parenting, highlighting the impact of relationships and communication on identity and community.

takeaways

• Building relationships is crucial for effective communication.
• Emotional intelligence plays a significant role in interpreting.
• Trust is essential for teaching and learning.
• Interpreters must navigate their own emotions while working.
• Cultural dynamics influence communication styles.
• Technology impacts the deaf community in various ways.
• Self-care is vital for interpreters to avoid burnout.
• Understanding triggers can enhance emotional intelligence.
• The deaf community is evolving with more representation.
• Education systems need to incorporate emotional intelligence training.

titles

• Bridging Worlds: The Role of Interpreters in Deaf Culture
• Emotional Intelligence: The Heart of Effective Communication

Sound Bites

• "Everyone leaves a mark."
• "You live it twice when you journal."
• "The language is central to the culture."

Chapters

00:00

Introduction and Connection

02:52

Understanding the Role of Interpreters

05:42

The Importance of Emotional Intelligence in Interpreting

08:21

Cultural Insights and Personal Experiences

11:17

Navigating the Deaf Community and Family Dynamics

14:02

The Evolution of Deaf Education and Sign Language

16:46

The Art of Interpretation and Performance

19:32

Emotional Intelligence in Practice

22:13

Reflective Practices for Interpreters

24:59

Managing Triggers and Emotional Responses

27:57

Burnout and Emotional Labor in Interpreting

32:29

The Importance of Self-Care for Interpreters

37:11

Navigating Emotional Intelligence in Interpretation

42:06

The Role of Teamwork in Interpretation

44:56

Cultural Norms in the Deaf Community

51:25

The Impact of Technology on Deaf Culture

specialedrising.com

https://www.buildingbridges.global/

https://www.linkedin.com/in/sarah-wheeler-interpreteredu/

https://www.gofundme.com/f/join-rays-respite-care-mission

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In this conversation, Rachel Greenberg of Life Unlimited: Unleash Your Potential, LLC. shares her journey of working with individuals with disabilities, focusing on social skills and dating coaching. She discusses the importance of building trust with her clients, the challenges they face in social interactions, and the strategies she employs to help them succeed. Rachel emphasizes the significance of confidence, communication, and understanding in relationships, as well as addressing bullying and its impact. She also touches on the employment challenges faced by individuals with disabilities and how she combines social skills training with employment support. The conversation concludes with Rachel's insights on marketing her services and her passion for helping others thrive.

takeaways

• Rachel has been working with people with disabilities since she was 12.
• She transitioned from teaching to coaching social skills and dating.
• Building trust with clients is essential for effective coaching.
• Rachel uses role-playing and games to teach social skills.
• Confidence is key when meeting new people.
• She encourages clients to try new experiences and adventures.
• Addressing bullying is a significant part of her work.
• Employment challenges for individuals with disabilities are prevalent.
• Rachel combines social skills training with employment support.
• Her passion for helping others is evident in her work.

titles

• Empowering Lives: Coaching for Social Skills and Dating
• Navigating Relationships: Insights from a Social Skills Coach

Sound Bites

• "I want to see my clients succeed."
• "I do not let go of it."
• "It's about knowing ourselves."

Chapters

00:00

Introduction and Background

02:45

Transition to Coaching and Social Skills

05:31

Focus on Social Skills and Dating for Neurodiverse Individuals

08:25

Building Trust and Relating to Clients

11:17

Strategies for Social Interaction

14:04

Encouraging New Experiences and Adventures

16:40

Building Confidence and Self-Worth

19:38

The Importance of Communication in Relationships

22:15

Addressing Bullying and Its Impact

24:58

Employment Challenges for Individuals with Disabilities

27:36

Combining Social Skills with Employment Support

30:18

Success Stories and Client Progress

33:04

Marketing and Growing the Business

35:49

Final Thoughts and Contact Information

specialedrising.com

Rachel Greenberg: 301-641-6293.

rachelgreenberg728@gmail.com

https://www.lifeunlimitedllc.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

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In this conversation, Giuliana Conti and Mark discuss the complexities of classroom management, the role of music in education, and the challenges teachers face in today's educational climate. They explore how emotional and social factors impact student learning and behavior, emphasizing the need for innovative teaching strategies that prioritize student well-being and engagement. The discussion highlights the importance of building relationships with students and creating a supportive classroom environment that fosters learning and growth.

takeaways

• Classroom management is a multifaceted challenge that requires understanding individual student needs.
• Music can be a powerful tool for engagement and emotional regulation in the classroom.
• Teachers often face unrealistic expectations that do not align with the realities of their classrooms.
• Building relationships with students is crucial for effective classroom management.
• Punitive measures are often ineffective and can exacerbate behavioral issues.
• Teachers need support and resources to address the diverse needs of their students.
• Creating a supportive and inclusive classroom environment is essential for student success.
• Teachers should be encouraged to innovate and adapt their teaching methods to meet student needs.
• Access to basic needs, such as food and emotional support, is critical for student learning.
• Teacher well-being is directly linked to student outcomes and classroom dynamics.

titles

• Navigating Classroom Management Challenges
• The Power of Music in Education

Sound Bites

• ""Punitive consequences do not work.""
• ""We need to rebuild the system.""
• ""Trust is everything.""

Chapters

00:00

Introduction and Personal Reflections

01:51

Classroom Management and Its Importance

05:09

Giuliana's Background and Expertise

08:55

Classroom Management Strategies

13:25

The Impact of Divisive Concepts Law

18:38

The Role of Music in Education

26:50

Teacher Well-being and Resilience

29:39

Engaging Students Through Music

34:23

Creative Assessment Strategies

37:10

Understanding Classroom Management

37:32

The Role of Differentiation in Teaching

41:26

Creating a Supportive Learning Environment

45:36

Challenges in Modern Classroom Management

47:30

Expectations vs. Reality in Education

51:55

The Impact of Trauma on Learning

54:36

Building Trust and Community in Classrooms

01:02:46

Innovative Teaching Approaches for Engagement

specialedrising.com

https://musicworkshopedu.org/

https://www.gofundme.com/f/join-rays-respite-care-mission

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keywords

gun violence, advocacy, Moms Demand Action, gun control, mental health, community engagement, legislation, Second Amendment, education, safety

takeaways

• Gun violence is a pressing issue that affects communities nationwide.
• Advocacy efforts are crucial in addressing gun violence and promoting responsible gun ownership.
• Community engagement and education are key to changing perceptions about gun laws.
• Mental health is a significant factor in gun violence, but access to firearms is a critical issue.
• The Second Amendment is often misinterpreted in the context of gun rights and ownership.
• Comparative analysis of gun laws in other countries can provide insights for reform.
• Building relationships within communities is essential for effective advocacy.
• Moms Demand Action operates as a grassroots organization with volunteer support.
• There are various ways for individuals to get involved in advocacy efforts.
• Trauma-informed approaches are necessary for addressing the impact of gun violence on youth.

summary

This conversation delves into the pressing issue of gun violence in America, exploring the role of advocacy, community engagement, and legislation in addressing this crisis. Janet Goldstein, a leader in Moms Demand Action, shares her personal journey and the organization's mission to promote responsible gun ownership and common-sense legislation. The discussion highlights the importance of mental health, the misinterpretation of the Second Amendment, and the need for trauma-informed approaches in schools. Listeners are encouraged to get involved in advocacy efforts and understand the impact of gun violence on communities, particularly among youth.

titles

• Confronting Gun Violence: A Call to Action
• Understanding the Role of Advocacy in Gun Control

Sound Bites

• "Gun violence is a pressing issue."
• "The Second Amendment is often misinterpreted."
• "Education is vital in promoting gun safety."

NOTE: CCM means Concealed Carry Mandate; https://www.congress.gov/bill/119th-congress/house-bill/38

Chapters

00:00

Introduction and Event Reflection

01:28

Janet's Journey with Moms Demand Action

04:19

Understanding Gun Ownership and Safety

06:46

The Assault Weapons Ban and Its Impact

08:58

Motivations Behind Gun Legislation Advocacy

11:42

The Role of Community in Gun Violence Prevention

14:15

Misinterpretation of the Second Amendment

16:51

America's Fascination with Guns

19:44

Engaging Communities Affected by Gun Violence

25:03

Supporting Communities Through Basic Needs

26:37

Listening to the Voices of the Affected

31:08

The Role of Moms Demand Action

33:57

Initiatives for Gun Safety Education

37:55

Addressing Trauma in Schools

43:51

How to Get Involved with Moms Demand Action

https://specialedrising.com/

Ray's Respite Care GoFundMe link: https://www.gofundme.com/f/join-rays-respite-care-mission

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“Progress isn’t always a straight line, and sometimes it doesn’t look anything like what the school charts say. But that doesn’t mean it’s not real. If you’ve ever been told your child is ‘behind,’ or felt crushed sitting in an IEP meeting while graphs told a story that didn’t match your kid—this episode is for you.”

In this episode of Special Ed Rising, we explore why small victories matter, how to recognize progress that standardized tests miss, and tools to track your child’s real growth. From tying shoes to making a first friend, these everyday wins are building independence, confidence, and lifelong skills.

What You’ll Learn in This Episode:

• Why milestones and test scores don’t tell the full story of your child’s growth.
• Research-backed ways to capture progress that traditional assessments miss (Curriculum-Based Measurement, Goal Attainment Scaling, and more).
• How to celebrate small wins that often fly under the radar, like social courage, problem-solving, and self-expression.
• Strategies for shifting your mindset—and your child’s—from “behind” to “growing on their own timeline.”
• Practical tools you can start today: one-line journals, photo notes, creating individualized ladders, and sharing victories with your community.
• An introduction to alternative assessments and how they empower children to show what they really know and can do.

Resources & Links:

• Explore tips, tools, and parent coaching: specialedrising.com
• Watch interviews and extra content: Special Ed Rising YouTube Channel
• Support Ray’s Respite Care: [GoFundMe Link in Show Notes]

Reflection Prompt:

Before you go, take a moment to jot down one small victory your child achieved this week. Celebrate it, claim it, and remember—every step counts.

Join the Movement:

Special Ed Rising is a space for inclusion, supporting individuals with disabilities across education, access, and health. If this episode resonated, please rate, review, subscribe, and share—it helps more families find this support and join the mission.

Quote to Remember:

“Progress isn’t always a straight line, and sometimes it doesn’t look anything like what the school charts say. But that doesn’t mean it’s not real.”

💻 Resources & Support: specialedrising.com

🎥 Watch more: Special Ed Rising YouTube

❤️ Support families: Ray’s Respite Care GoFundMe: https://www.gofundme.com/f/join-rays-respite-care-mission

Ray's Respite Care: https://www.raysrespitecare.org/

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During the COVID-19 pandemic, many states allowed parents of children with significant disabilities to be paid caregivers under Medicaid—offering dignity, recognition, and financial support for the work they were already doing. But now, as emergency waivers expire, those programs are vanishing. Quietly. Quickly. And families are once again being left behind.

In this PURGE 47 Edition, host Mark Ingrassia examines how states are handling (or mishandling) the rollback of parent caregiver pay, the devastating effects on families, and why this is about more than just money—it’s about equity, justice, and respect.

📌 What You’ll Learn in This Episode:

• Which states are continuing caregiver pay and which are not
• The policy arguments on both sides—including federal pushback
• How families are scrambling to fill care gaps
• Real-world stories from Idaho, Indiana, New York, and beyond
• What options remain for families after caregiver pay is cut
• How you can advocate for change at the state and federal levels

📝 Resources & References:

• “Medicaid cutbacks will affect unpaid family caregivers” – Wisconsin Examiner, Erik Gunn
• Disability Scoop and Idaho Statesman reporting on Idaho caregiver program cuts
• Board for People with Developmental Disabilities (BPDD) caregiver survey (Wisconsin)
• New York CDPAP and Medicaid Waiver info – NY Post, Times Union, NYS DOH
• Complex Care Act advocacy updates
• Legislative tracking via SpecialEdRising.com

🧾 Full bibliography available

New York State Department of Health. (n.d.). Care at Home waiver program for developmentally disabled children. Retrieved from https://www.health.ny.gov/publications/0548/care_at_home_dev_disabled.htm

New York State Department of Health. (2014, July 7). 1115 Waiver special terms and conditions. Retrieved from https://www.health.ny.gov/health_care/medicaid/redesign/2016/2014-07-07_waiver_authority_stcs.htm

Campbell, C. (2024, May 7). Parents push N.Y. to support care of medically fragile children. Times Union. Retrieved from https://www.timesunion.com/news/article/parents-push-n-y-support-care-medically-fragile-19986153.php

Colón, J. (2024, July 4). Commentary: PPL is failing caregivers and the people they care for. Times Union. Retrieved from https://www.timesunion.com/opinion/article/commentary-ppl-failing-caregivers-people-care-20323023.php

Times Union Editorial Board. (2024, May 23). Another problem with New York’s CDPAP overhaul. Times Union. Retrieved from https://www.timesunion.com/opinion/article/another-problem-new-york-s-cdpap-overhaul-20053619.php

New York Post Editorial Board. (2024, October 8). Opinion: Hochul bows to nursing unions in $12B senior care power play. New York Post. Retrieved from https://nypost.com/2024/10/08/opinion/hochul-bows-to-nursing-unions-12b-senior-care-power-play/

Campanile, C. (2024, December 1). Home care agency exec accuses Hochul team of bid-rigging. New York Post. Retrieved from https://nypost.com/2024/12/01/us-news/home-care-agency-exec-accuses-gov-hochul-team-of-rigging-bid-process-for-9m-program/

Campanile, C. (2024, December 2). Rep. Ritchie Torres calls for bid-rigging probe of Hochul’s $9B home care contract. New York Post. Retrieved from https://nypost.com/2024/12/02/us-news/ritchie-torres-calls-for-bid-rigging-probe-of-hochuls-9b-home-care-contract/

Wikipedia contributors. (n.d.). New York State Office for People With Developmental Disabilities. Wikipedia. Retrieved from https://en.wikipedia.org/wiki/New_York_State_Office_for_People_With_Developmental_Disabilities

Reddit users. (2023–2024). Various discussions on CDPAP and home care in New York. Retrieved from:

• https://www.reddit.com/r/Albany/comments/1i1p6f5/
• https://www.reddit.com/r/CaregiverSupport/comments/17rnlqu/
• https://www.reddit.com/r/tax/comments/1jcacef/
• https://www.reddit.com/r/healthcare/comments/1037it1/

Centers for Medicare & Medicaid Services. (n.d.). Appendix K: Emergency preparedness and response and COVID-19. U.S. Department of Health and Human Services. Retrieved from https://www.medicaid.gov

Disability Scoop. (n.d.). National disability news for self-advocates, professionals & families. Retrieved from https://www.disabilityscoop.com

Family Voices. (n.d.). Family-led organization supporting children and youth with special health care needs. Retrieved from https://familyvoices.org

Fixler, K. (2024, June). Idaho ends program that paid parents to care for children with disabilities. Idaho Statesman. Retrieved from https://www.idahostatesman.com

Idaho Department of Health and Welfare. (2024). Budget and Medicaid program data on family caregiver reimbursement. Boise, ID.

KFF Health News. (n.d.). Independent source for health policy news and analysis. Retrieved from https://kffhealthnews.org

National Core Indicators. (2023). Staff Stability Survey Report – 2022. Retrieved from https://www.nationalcoreindicators.org

Paraprofessional Healthcare Institute (PHI). (2022). Direct care workforce data center: Turnover, wages, and policy reports. Retrieved from https://www.phinational.org

The Arc of the United States. (n.d.). Public policy agenda: Supporting paid family caregivers and community living. Retrieved from https://thearc.org

🫶 Support the Mission

Help Sarah Ingledue open Ray’s Respite Care—a dream for medically fragile youth.

💗 GoFundMe Link: https://www.gofundme.com/f/join-rays-respite-care-mission

📣 Call to Action: let your legislators know you want to be compensated for caring for you child

➡️ Subscribe, rate & review this podcast so others can find it

➡️ Share this episode with fellow parents, educators, advocates, and policymakers

➡️ Visit specialedrising.com to learn about parent coaching, advocacy resources, and more

📍 Hashtags for Social Sharing:

SpecialEdRising #PayFamilyCaregivers #DisabilityJustice #MedicaidMatters #CaregiverRights #Purge47 #SupportNotSilence #NoParentLeftBehind #InclusionNotExclusion

🎧 Closing Message: “If you’re a parent caught in the middle of these policy shifts—please know you’re not alone. This is just the beginning of the fight, and together, we’ll keep rising.”

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In this compelling and heartfelt episode, Mark explores the deep-rooted issue of ableism and how the labels we place on individuals—particularly those with disabilities—often do more harm than good. With personal stories, powerful analogies, and critical insights, he challenges the idea that difference equals deficiency.

You’ll hear about:

• The cultural conditioning that teaches us to value conformity over authenticity
• How inclusive education is a justice-driven response to outdated, medicalized views of disability
• The hidden cost of labels in schools and society
• Real-world examples of how systemic ableism sidelines incredible people
• Why our shared humanity is strengthened—not threatened—by neurodiversity and physical difference

From childhood classrooms to adult workplaces, Mark reveals how rethinking ability, identity, and inclusion can create richer, more equitable communities.

💡 Key Takeaways: Difference is typical. Every human being is different—that’s the one thing we all have in common. * Labels have utility—but also weight. They can open doors to services, but they can also box people in. * Ableism is real, and often invisible. It thrives on unspoken assumptions and systemic design flaws. * Inclusive education shifts the burden. It moves from “fixing the child” to “adapting the system.” * Personhood over diagnosis. We must stop seeing people as their labels and start seeing them beyond* them.

🧠 Referenced Ideas & Quotes: “Labels are for jars.” — Dr. Danielle Farrel * “I’m not your inspiration, thank you very much.” — Stella Young * “Different is not broken.” — Mark Ingrassia * From the National Library of Medicine: The need to shift from disability-as-deficit to disability-as-difference * From ScienceDirect: Inclusive education as a response to the medical model of disability * From Access Living*: The definition and impact of ableism in society

🙌 Ways to Support the Show:🌐 Visit: specialedrising.com

🛠️ Explore coaching, tools, and family resources

📺 Watch Interviews: Special Ed Rising YouTube Channel

💛 Contribute to Change:

Help bring Ray’s Respite Care to life—a vital new service for families of exceptional children.

🎁 Support the GoFundMe (Insert Link)

📣 Stay Connected: Rate & Review: It helps others find the podcast * Subscribe: Never miss an episode * Share: Spread the word to friends, families, and allies * Follow on Social: (Insert relevant platforms or handles)*

🔚 Closing Thought:When we stop dividing the world into “normal” and “different,” we can finally see people as they are—valuable, worthy, whole. Because difference is not a deficit. It’s a reflection of what makes us human.

Peace, and Keep Rising.

— Mark Ingrassia

specialedrising.com

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In this conversation, Frank Lobb shares his extensive background in law and healthcare, discussing his personal experiences with the healthcare system and the challenges he faced. He emphasizes the importance of understanding insurance contracts and patient rights, advocating for individuals to take control of their healthcare decisions. Frank also addresses the systemic issues within the healthcare industry, including the impact of insurance companies on patient care and the recent cuts to Medicaid. His insights aim to empower patients to navigate the complexities of the healthcare system effectively.

takeaways

• Frank Lobb has a diverse background, including being a Navy pilot and a consultant on the Clean Air Act.
• Personal experiences with healthcare shaped Frank's understanding of the system's flaws.
• Insurance companies often have the power to deny necessary care, impacting patients' health.
• State laws govern healthcare, and patients have rights that can be asserted.
• Patients can challenge medical bills and demand proof of accuracy from providers.
• Doctors often feel powerless within the current healthcare system due to insurance constraints.
• Frank's book, 'The Big Lie of My Healthcare Bill,' aims to educate patients on their rights.
• Empowering patients involves understanding contracts and advocating for necessary care.
• The recent cuts to Medicaid threaten access to healthcare for vulnerable populations.
• Frank encourages individuals to take an active role in their healthcare decisions.

titles

• Navigating the Healthcare Maze with Frank Lobb
• Understanding Your Rights in the Healthcare System

Sound Bites

• "I have a right in a free market to go get it."
• "The healthcare system is broken."
• "You need to understand the system we have."

Chapters

00:00

Navigating Complexity in Modern Life

01:48

Frank Lobb's Background and Career

03:42

The Impact of Insurance on Healthcare

06:21

Understanding Healthcare Contracts

09:01

The Role of Doctors in the Insurance System

11:34

The Ethics of Healthcare

14:20

The Limitations of the Current Healthcare System

17:01

The Importance of Patient Advocacy

19:26

The Big Lie of Healthcare Insurance

21:51

Strategies for Navigating Healthcare Costs

24:54

Understanding Medical Billing Accuracy

27:38

Navigating Insurance and Legal Rights

30:31

Practical Steps for Patients

34:08

Challenging Medical Bills Effectively

38:04

Empowering Patients in Healthcare Decisions

42:58

The Future of Healthcare Coverage

47:38

Taking Control of Your Healthcare Journey

Reach Frank at https://thebiglieinmyhealthcarebill.com/

specialedrising.com

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🔊 Episode Summary:

On July 4th, 2025, Donald Trump signed what he calls the “One Big Beautiful Bill” (OBBBA) into law. While it’s being touted as a historic win, the truth beneath the headlines reveals a devastating reality—especially for disabled individuals, caregivers, and working-class families. This episode breaks down what’s actually in the bill, who gets hurt, and who profits.

From over $900 billion in Medicaid cuts to $285 billion in food assistance reductions, we expose how the bill’s “reforms” are designed to strip away the very programs that help people live independently, with dignity. We cover expanded work requirements, punishing paperwork traps, the illusion of “no tax on tips,” and the permanent tax cuts for the ultra-wealthy—all while disabled people are pushed toward poverty, hunger, and institutionalization.

🔍 Key Topics Covered:

• 💔 Medicaid Cuts: Over $900B in cuts that will devastate access to healthcare, HCBS, and force many into institutions.
• 📄 Punishing Paperwork: Monthly documentation traps for people with cognitive or mental health disabilities.
• 💼 Work Requirements: Disabled people not officially classified as “permanently disabled” now forced to meet impossible standards.
• 🍽️ SNAP Cuts: $285B slashed from food assistance, with new work rules threatening the food security of disabled individuals and caregivers.
• 👨‍👩‍👧‍👦 Caregivers Penalized: Parents of disabled children and family caregivers risk losing benefits if they can't meet work requirements.
• 🏥 Rural Hospital Closures: Medicaid cuts mean less coverage, more uncompensated care, and a death spiral for rural healthcare access.
• 🏡 Housing Crisis Deepens: Medicaid waivers help fund accessible housing—cutting them pushes people toward homelessness or institutions.
• to remove taxation on tips.
• 💸 Who Wins?: Permanent tax cuts for the top 1%, corporations, and billionaire heirs.
• 📉 Who Loses?: Disabled people, rural communities, low-income families, and working-class Americans.
• 🧠 Mental Health Impact: Disrupted access to medication, therapy, and community care leads to higher costs, crisis, and suffering.
• 🌍 Environmental Justice & Accessibility Grants: Eliminated in OBBBA—programs supporting inclusive employment and green jobs are gone.

🗣️ Expert Voices Featured:

• Zoe Gross (ASAN): “These cuts could kill people.”
• Michelle Robbins-Garcia (Access Living): “If Medicaid or home healthcare services are cut, [disabled people] won’t be able to go to work.”
• Kelly PeLong (Disability Network Mid-Michigan): “A responsible budget shouldn’t come at the expense of people with disabilities.”
• Nancy Gardiner (CT Insider): “Almost 279,000 CT residents could lose health insurance. This isn’t reform—it’s a betrayal.”

📢 Call to Action:

This is not just another policy shift—it’s a moral line in the sand.

✅ Call your representatives.

✅ Share this episode.

✅ Sign petitions from groups like The Arc, ADAPT, NDRN, and DREDF.

✅ Speak out—online and in your community.

🧠 Because silence is complicity. And we rise together—or not at all.

🔗 Resources & Links:

• The Arc – Take Action
• ADAPT
• NDRN
• Disability Rights Education & Defense Fund
• Center on Budget and Policy Priorities – Tax Policy
• Connecticut Insider Article – Nancy Gardiner

📌 Hashtags to Share:

OneBigBetrayal

SaveMedicaid

DisabilityRightsAreHumanRights

CuttingCareKills

TaxBreaksVsLifelines

🎧 Listen, Share, Act

This isn’t about politics—it’s about survival. Let’s make sure the truth gets louder than the spin.

Sources:

Axios

NYTimes

Office of the State Comptroller NYState

Center on Budget and Policy Priorities (CBPP)

Kaiser Family Foundation

Social Security Works

Committee for a Responsible Federal Budget

National Disability Rights Network

Dept. of Energy

Justice40 Initiative

EP Environmental Justice Programs

Consortium for Citizens with Disabilities

The Arc

ADAPT

Website:

specialedrising.com

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*My apologies to any early listeners of this episode for the editing mishap regarding music playing over the first several minutes of the interview. It's fixed!

In this conversation, Mark and Lauren Henry Brehm delve into the complexities of mental illness, particularly how it affects families across generations. Lauren shares her personal experiences with her grandmother's OCD and the impact it had on her family dynamics. They discuss the importance of breaking the stigma surrounding mental illness, the need for open conversations, and the role of therapy in healing. The discussion also touches on the legacy of mental illness and the compassion needed to understand those who suffer from it.

takeaways

• Lauren's background as a special ed teacher informs her perspective on mental illness.
• Generational trauma can perpetuate untreated mental illness.
• The importance of recognizing mental illness as a family issue.
• Coping mechanisms often include humor and shared experiences.
• Self-identification of mental health issues can lead to seeking help.
• Compassion for those with mental illness is crucial for understanding.
• Open conversations about mental health should be normalized.
• The impact of childhood experiences shapes adult mental health.
• Therapy can provide tools for managing mental illness.
• Storytelling can help others relate and find hope.

titles

• Breaking the Silence on Mental Illness
• Generational Echoes of Mental Health

Sound Bites

• "She ruled with an iron hand."
• "Nobody ever treated anything in 1946."
• "The power of storytelling is so important."

Chapters

00:00

Introduction and Personal Connections

01:03

Background and Career Journey

03:40

Generational Impact of Mental Illness

06:30

Family Dynamics and Delusions

08:51

The Role of Treatment and Acceptance

11:27

Personal Experiences with OCD

13:55

Rituals and Compulsions in Family

16:24

Coping Mechanisms and Humor

19:07

Understanding Autism and Identity

21:44

Mother's Rebellion Against Cleanliness

24:13

Exploring Grandmother's Past

25:21

Conclusions and Reflections

26:14

The Symbolism of Gloves

29:28

Exploring Family History and Incest

32:16

Understanding Generational Trauma

35:06

Breaking the Stigma of Mental Illness

37:37

The Role of Family in Mental Health

42:07

The Impact of Mental Illness on Identity

43:41

Finding Peace in Senility

47:58

The Importance of Authentic Storytelling

Lauren Henry Brehm's website: https://laurenhenrybrehm.com/

specialedrising.com

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In this conversation, Albert discusses his unique journey from aspiring psychologist to talent agent, emphasizing the importance of mental health in the acting industry. He explores the challenges actors face, including self-sabotage and the need for diversity in casting. Albert shares strategies for actors to manage their mindset, the role of AI in the industry, and the significance of parental support for young actors. The discussion highlights the emotional toll of acting and the necessity for authenticity in storytelling.

takeaways

• Albert's journey from psychology to talent agent highlights the intersection of mental health and the arts.
• Self-sabotage is a common issue among actors, often stemming from fear of rejection.
• Diversity in casting is essential for authentic storytelling and representation.
• The importance of having diverse voices behind the camera to tell accurate stories.
• Actors should view auditions as opportunities to perform rather than tests of worth.
• Mindset strategies, such as reframing auditions, can help actors manage self-doubt.
• AI can assist in the creative process but should not replace the actor's voice.
• Parents should support their children's aspirations in acting while maintaining realistic expectations.
• The emotional toll of acting can be significant, requiring strategies for mental health management.
• Creating a supportive environment for neurodiverse actors is crucial for their success.

titles

• Navigating the Acting Industry: Insights from a Talent Agent
• The Psychology Behind Acting: Understanding Self-Sabotage

Sound Bites

• "It's really a head game."
• "AI can be a great assistant."
• "Don't take the nos personally."

Chapters

00:00

Introduction and Background

00:28

The Journey to Becoming an Agent

04:20

Understanding Self-Sabotage in Actors

07:09

Research on Self-Defeating Behavior

08:25

The Importance of Diversity in Acting

11:46

Facilitating Inclusion and Visibility

15:44

Scouting and Representing Diverse Talent

19:39

Mindset and Overcoming Self-Doubt in Actors

25:08

Harnessing the 30%: The Actor's Mindset

28:05

Visualization and Affirmations: Tools for Success

31:01

The Dark Side of Method Acting

35:48

AI in the Creative Process: A New Frontier

39:20

Supporting Young Actors: The Role of Parents

43:01

Diversity and Inclusion in the Acting Industry

45:45

Reframing the Artist's Identity

47:35

Final Thoughts: Embracing Self-Worth

https://bramanteartists.com/

https://www.facebook.com/albertcbramante/

https://www.linkedin.com/in/albertbramante/

specialedrising.com

gofundme: https://www.gofundme.com/f/join-rays-respite-care-mission

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🎙️ Special Ed Rising: Purge 47 Edition

While families are focused on graduations, IEP meetings, and summer prep, a dangerous regulatory rollback is quietly unfolding. The Department of Energy (DOE), under the Trump administration, has issued a direct final rule—a shortcut usually reserved for noncontroversial housekeeping—to eliminate accessibility standards for buildings that receive federal funds. This move guts long-standing disability rights protections without public debate or transparency.

In this episode, host Mark Ingrassia breaks down the real-world implications of this rule change—from the elimination of the Uniform Federal Accessibility Standards (UFAS) to the erosion of communication access, employment protections, and enforcement tools. The stakes are clear: less access, fewer rights, and more exclusion. This is not red tape—this is civil rights. And they’re trying to gut them quietly.

💥 Highlights:

• What a “direct final rule” is and why it’s being used deceptively
• The specific disability protections being eliminated—UFAS, transition plans, communication access, employment protections, and public notices
• Real-world consequences for students, veterans, workers, and families
• What this means for Section 504 protections across other federal agencies
• Actions you can still take to push back—even after the public comment deadline has passed

📛 What’s Being Rescinded:

1. UFAS (10 C.F.R. § 1040.73) – No clear accessibility standard = patchwork compliance and inaccessibility
2. Transition Plans (10 C.F.R. § 1040.72) – No roadmap for making older buildings usable
3. Communication Access (10 C.F.R. § 1040.5 & § 1040.6) – LEP and disabled users lose guaranteed access to info
4. Employment Protections (§§ 1040.1, 1040.12, 1040.14) – Easier to discriminate without accountability
5. Posting of Rights (10 C.F.R. § 1040.102) – No visible notice = no awareness = no complaints

🚨 What’s at Stake:

• Physical Access: Fewer ramps, narrower doors, inaccessible restrooms, labs, or entrances
• Communication Gaps: Safety alerts and essential info may be unreadable or unavailable
• Employment Discrimination: Bias in hiring, retention, and promotion could go unchecked
• Legal Ambiguity: With no standards to follow, lawsuits may replace prevention

🛠️ What You Can Still Do (Post-June 16):

✅ 1. Contact Your Members of Congress

📢 Sample script: “I oppose the DOE’s rescission of accessibility standards. This is an attack on civil rights and public input. Please investigate and stop this rule.”

✅ 2. Partner With Advocates

Collaborate with:

• National Disability Rights Network (NDRN)
• Access Living
• Energy Justice Network
• Green New Deal Network

✅ 3. Keep It Public

Use and follow these hashtags:

AccessNotOptional | #DisabilityRightsNow | #StopTheRollback | #HoldDOEAccountable

✅ 4. Write to the Media

Letters to the editor and op-eds help keep pressure on lawmakers and DOE

✅ 5. FOIA Requests

Request internal DOE communications—transparency is our ally

✅ 6. Track Legal Action

Stay connected to groups pursuing lawsuits or administrative complaints

✅ 7. Petition and Organize

Start petitions, host virtual town halls, or join webinars on disability advocacy

🗂️ Docket Numbers to Track:

• DOE-HQ-2025-0015 (UFAS elimination)
• DOE-HQ-2025-0024 (Other nondiscrimination rollbacks)

Visit https://www.regulations.gov and search these docket numbers to view filings.

📝 Bonus: Sample Comment Letter Available

I’ve included a downloadable sample public comment letter in the show notes, written in plain language. Feel free to adapt.

Go to: https://specialedrising.com/resources/

🧷 Mentioned Article:

Effort To Roll Back Federal Disability Rights Protections Alarms Advocates – by Michelle Diament, Disability Scoop

💬 Mark’s Final Word:

“This is not just about building codes—it’s about who belongs. About whether we see civil rights as essential or optional. It’s our duty to rise. Because silence is exactly what they’re banking on.”

🔗 Follow and Connect:

• Website: https://specialedrising.com/
• Instagram/TikTok: @SpecialEdRising
• Linkedin: https://www.linkedin.com/in/mark-ingrassia-m-s-04680a77/

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🎧 Show Notes – Special Ed Rising; Purge 47 Edition

Host: Mark Ingrassia

Welcome to Special Ed Rising: Purge 47 Edition, where we take off the gloves and shine a light on the policies, politics, and people shaping the future of disability rights.

In today’s episode, Mark exposes the high-stakes crisis quietly unfolding in Congress — the passage of the “One Big Beautiful Bill Act” in the U.S. House of Representatives, a dangerous piece of legislation that could gut Medicaid and leave millions of people with disabilities without the services they depend on.

Here’s what you’ll learn in this episode:

🔍 A breakdown of the bill and what it really means for the disability community

💰 The truth behind Medicaid funding and the devastating $698 billion in proposed cuts

⚠️ Why work requirements and frequent eligibility checks are harmful and discriminatory

💔 Who gets hurt most — and why this isn’t just a political issue, but a human one

📢 What you can do right now to stop this bill in its tracks

Mark makes it clear: this is not just about dollars. It’s about lives, dignity, and survival. But the bill isn't law yet — and there's still time to act.

Take Action:

📞 Call your senators

📲 Share your story

📣 Use your voice and your platforms

🎙 Have a story or want to be featured?

Reach out to Mark Ingrassia on Instagram, Facebook @special ed rising or email: specialedrising@gmail.com — let's amplify the voices that matter most.

Because when policies threaten our community, silence is complicity.

Together, we Resist the Purge.

💥 Subscribe. Share. Take action. Because this isn’t just politics — it’s personal.

Purge47

SpecialEdRising

SaveMedicaid

DisabilityRights

NoParentLeftBehind

ProtectMedicaid

MedicaidMatters

DisabilityJustice

CareNotCuts

SayNoToThePurge

NothingAboutUsWithoutUs

StopTheBeautifulBill

HealthcareIsAHumanRight

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Title: One Feed. Two Voices. The Next Chapter of Special Ed Rising

In this special announcement episode, Mark Ingrassia shares exciting news: SER: No Parent Left Behind! and Purge 47 are officially joining forces under one powerful banner—Special Ed Rising.

Here's what to expect moving forward:

✅ Weekly episodes of Special Ed Rising: No Parent Left Behind – offering real-world support, heartfelt stories, and strategies for families of exceptional individuals.

🔥 Monthly special editions of Special Ed Rising: Purge 47 Edition – where we confront injustice, dissect policy, and amplify the voices too often left out of the conversation.

Why the shift? Because family life and disability justice aren't separate—they’re part of the same fight. And this new format lets us meet both with the urgency and care they deserve.

Tune in. Subscribe. Share. Let’s rise—together.

Links Mentioned:

• Subscribe to Special Ed Rising (Apple | Spotify | Google | RSS)
• Follow me on Instagram & Facebook: [@SpecialEdRising]
• Got feedback or a story to share? Email: [your email]



SpecialEdRising

NoParentLeftBehind

Purge47Edition

DisabilityJustice

InclusiveParenting

NeurodivergentVoices

AdvocacyInAction

ParentingWithPurpose

DisabilityRightsAreHumanRights

UnifiedVoices

ExceptionalFamilies

SpecialNeedsParenting

PolicyAndParenting

NothingAboutUsWithoutUs

RiseTogether

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In this heartfelt and honest episode of SER: No Parent Left Behind, I reflects on his early days as a special education teacher—and how my “green” beginnings hold powerful lessons for parents raising children with exceptional needs. Drawing from personal experience and decades of coaching, I introduce the core principles of mindful parenting: presence, compassion, and intentionality.

You’ll hear stories, real-world strategies, and simple practices to help you meet daily challenges with more peace and less panic. Whether you're navigating meltdowns, struggling with routines, or simply trying to hold it together, this episode will remind you that your presence is powerful—even when things feel far from perfect.

🧠 In This Episode, You’ll Learn:

• Why it’s okay to feel unprepared—and how self-compassion is key.
• What mindful parenting really means (hint: it’s not about always being calm).
• How to respond—not react—in tough moments using a simple 5-second pause.
• The power of routines, visual tools, and emotional regulation.
• Real-life examples of mindful parenting that foster connection and trust.
• How the M.I.N.D.F.U.L. Protocol can support a calmer, more connected home.

🌿 The M.I.N.D.F.U.L. Protocol:

A practical framework Mark uses in his parent coaching sessions:

• M – Mindfulness: Stay present in tough moments with grounding techniques.
• I – Intentionality: Parent with clarity, consistency, and purpose.
• N – Nurturing: Lead with empathy and build resilient relationships.
• D – Development: Use strength-based strategies to support growth.
• F – Flexibility: Adapt to your child’s unique needs with grace.
• U – Understanding: See through your child’s lens and meet them where they are.
• L – Learning: Keep growing with support, coaching, and community.

🧩 One Small Practice for This Week

Choose one to try:

• Pause for five seconds before reacting.
• Reflect at the end of the day: “I showed up today. That matters.”
• Sit beside your child during a meltdown—without trying to fix.
• Join a mindful parenting group or support community.

💬 Quote from the Episode:

“Mindful parenting isn’t about getting it right—it’s about showing up with presence and compassion. Even one breath can change the moment.”

🤝 Work With Me

If you’re ready to bring more calm and connection into your home, I offers personalized coaching using the M.I.N.D.F.U.L. Protocol.

You’ll get:

• Customized behavior and routine strategies
• Support for school and life transitions
• Tools to navigate meltdowns and difficult moments
• Advocacy guidance and confidence-building coaching

📩 Interested? Reach out to begin building a home where your child can thrive—and so can you.

📣 Spread the Word

If this episode encouraged or empowered you, please share it with another parent who could use support. Subscribe, leave a review, and help us reach more families navigating the journey of raising exceptional children.

🎧 Until next time—stay compassionate, stay connected, and keep rising. Because no parent should ever feel left behind.

specialedrising.com

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In this engaging conversation, Kijuan Amey shares his journey from a challenging upbringing in Durham, North Carolina, to becoming a highly motivated individual with a diverse range of interests and experiences. He discusses his passion for fitness, sports, and music, as well as his time in the military, particularly in the Air Force as a KC-135 Stratotanker operator. Kijuan emphasizes the importance of perseverance, personal growth, and the lessons learned throughout his life, including the challenges faced in both fitness and military training. In this conversation, Kijuan Amey shares his life-altering experience of a motorcycle accident that left him blind and how he transformed his adversity into a motivational journey. He discusses the importance of respecting life, the challenges of recovery, and the philosophy of focusing on abilities rather than disabilities. Kijuan emphasizes the significance of support systems, personal growth, and the will to overcome life's challenges, inspiring others to find their strength and purpose.

takeaways

• Kijuan emphasizes the importance of energy and motivation in daily life.
• He shares insights on how pushing through challenges can lead to growth.
• Kijuan's upbringing shaped his resilience and determination.
• Music has been a lifelong passion for Kijuan, starting at a young age.
• He was a competitive bowler, showcasing his drive for excellence.
• Sports provided structure and discipline in Kijuan's life.
• His decision to join the Air Force was influenced by family and personal goals.
• Kijuan's experience in the military taught him valuable life lessons.
• He highlights the significance of finding one's passion and pursuing it.
• Kijuan's journey reflects the power of perseverance and adaptability. Respect for the motorcycle grew after the accident.
• The accident marked a new life journey for Kijuan.
• Recovery is an ongoing process, still being navigated.
• Kijuan emphasizes the importance of mindset in overcoming adversity.
• He believes in focusing on abilities rather than disabilities.
• Support from family and friends was crucial during recovery.
• Kijuan's faith played a significant role in his healing process.
• He encourages others to find their own path to recovery.
• Kijuan's story is a testament to resilience and strength.
• He aims to inspire others through his motivational speaking.

titles

• From Struggles to Strength: Kijuan Amey's Journey
• The Power of Perseverance with Kijuan Amey

Sound Bites

• "That's how most people get hurt."
• "I wanted to create my own footprint."
• "I respected it even more."

Chapters

00:00

Introduction and Technical Difficulties

00:52

Physical Fitness and Personal Challenges

03:36

Early Life and Family Dynamics

05:56

Musical Passion and Creative Outlets

08:37

Sports Journey and Competitive Spirit

09:36

Basketball Experiences and Personal Strengths

10:06

Football and Track Background

10:56

Rivalries and School Spirit

11:10

The Impact of Football on Personal Development

12:07

Transitioning to the Air Force: A Personal Journey

14:54

Navigating Military Recruitment and Choices

21:11

Experiences in Active Duty and Transitioning to Reserves

23:52

Understanding the Role of a KC-135 Stratotanker Pilot

24:28

The Flying Gas Station

25:37

Beyond Refueling: The Multifaceted Role of Airmen

26:21

A Passion for Engines: From Dirt Bikes to Motorcycles

28:34

The Journey to Motorcycle Endorsement

31:55

The Day That Changed Everything: The Accident

41:04

Recovery and Resilience: A New Life Journey

46:56

Embracing Life After Adversity

49:10

The Power of Support Systems

52:23

Transforming Pain into Purpose

54:01

The Will to Overcome

58:32

Connecting with Others Through Storytelling

01:00:28

Advocating for Ability Over Disability

01:02:29

The Importance of Mentorship

https://ameymotivation.com/

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In this conversation, Sarah Ingledue shares her profound journey as a nurse and caregiver for her sister, Rachel, who has Cornelia de Lange syndrome. Sarah discusses her early passion for nursing, her unique relationship with Rachel, and the challenges and joys of caring for someone with special needs. The conversation delves into the importance of love and support in their lives, the daily responsibilities Sarah manages, and her aspirations to create a respite care service for families in similar situations. Throughout, Sarah emphasizes the significance of happiness, quality of life, and the need for better support systems for families with special needs individuals.

takeaways

• Sarah's nursing background has equipped her to care for Rachel effectively.
• The bond between Sarah and Rachel is deep and rooted in love.
• Caring for a special needs sibling can be both challenging and rewarding.
• Respite care is crucial for families with special needs individuals.
• Sarah's husband is supportive and is pursuing nursing to help care for Rachel.
• Daily life with Rachel involves extensive care and attention.
• Sarah's daughters are learning valuable lessons about kindness and acceptance through their relationship with Rachel.
• Healthcare funding and support for special needs individuals is a significant challenge.
• Sarah is passionate about creating a respite care service for families in need.
• The importance of advocating for proper care and understanding in healthcare settings.

titles

• A Sister's Love: Caring for Rachel
• Navigating Life with Cornelia de Lange Syndrome

Sound Bites

• "Love is medicine."
• "Rachel grows on you."
• "It's just fair."

Chapters

00:00

Childhood Experiences with Rachel

07:18

Understanding Cornelia de Lange Syndrome

09:07

The Importance of Love and Support

09:32

Finding a Partner Who Understands

11:38

Family Dynamics and Support

13:08

Daily Life and Responsibilities with Rachel

15:58

Raising Daughters with a Special Needs Sister

17:21

Communication and Education for Rachel

20:16

Navigating Healthcare and Funding Challenges

25:24

Advocacy in Healthcare: A Caregiver's Role

27:20

The Birth of Raise RespaCare: A Vision for Change

29:37

Building a Community: The Need for Respite Care

32:03

Connecting with Support: Legislative and Community Efforts

34:10

Healing Through Care: The Role of Veterans

38:51

Quality of Life: Ensuring Happiness for Ray

42:07

Creating Memorable Experiences: Travel and Adventures

43:51

Raising Awareness: Fundraising and Community Engagement

https://www.raysrespitecare.org/

https://www.instagram.com/rays.respite.care/

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🎙️ Show NotesOn May 16, 2025, a groundbreaking documentary titled "Deaf President Now!" will be released, chronicling the historic 1988 student-led protest at Gallaudet University—the world’s only liberal arts university for Deaf and hard-of-hearing students. But this episode is more than a retelling. It’s a personal reflection on what that moment meant then, how it shaped Deaf education, and the cultural revolution that followed.

In this episode, I share my own journey from a curious outsider to someone deeply embedded in the Deaf community. I revisit the DPN movement not just as a pivotal civil rights event, but as the spark that lit a fire of change in Deaf education, culture, and self-representation. We explore:

• Why the appointment of a Deaf president finally mattered
• The rise of bilingual-bicultural (Bi-Bi) education and what it really means
• How the cultural renaissance post-DPN transformed Deaf schools and inspired students
• The impact of cochlear implants on Deaf identity and language access
• The continuing relevance of DPN in today’s shifting educational and cultural landscapes

Whether you’re familiar with Deaf culture or discovering this history for the first time, this is a powerful reminder that inclusion isn’t just about access—it’s about representation, respect, and identity.

💬 As Nyle DiMarco said, “Deaf history is American history.” Let’s make sure it's remembered, celebrated, and passed on.

📌 Key Moments:* [00:02:00] The Gallaudet Protest: Why It Happened * * [00:07:30] My First Encounter with Deaf Culture * * [00:14:45] Deaf Schools and the Bi-Bi Shift * * [00:22:10] The Cultural Renaissance of the 1990s * * [00:28:00] Cochlear Implants and Language Deprivation * * [00:34:00] Why DPN Still Matters Today *

🔗 Resources & References: Deaf President Now!* Documentary – Releasing May 16, 2025 * Disability Scoop article on the film: [Link if available] https://www.disabilityscoop.com/2025/05/09/appletv-documentary-spotlights-pivotal-disability-protest/31447/ * National Association of the Deaf (NAD) – www.nad.org * “A Journey Into the Deaf World” by Harlan Lane, Robert Hoffmeister, and Ben Bahan * https://gallaudet.edu/museum/history/the-deaf-president-now-dpn-protest/the-impact-of-the-deaf-president-now-protest/#:~:text=The%20Americans%20with%20Disabilities%20Act%20(ADA)%20protects%20deaf%20people%20and,and%20the%20speed%20of%20introduction.

📢 Let’s Continue the Conversation:Have you experienced Deaf education before or after DPN? Are you a teacher, student, or parent navigating Bi-Bi vs. oral approaches today? Share your story with us on social or email!

🔖 Hashtags:#DeafPresidentNow

#DPN1988

#DeafHistory

#DeafEducation

#BiBiEducation

#SignLanguageMatters

#ASL

#DeafCulture

#CochlearImplants

#DisabilityRights

#NyleDiMarco

#Gallaudet

#RepresentationMatters

#DeafIdentity

#InclusionWithIntention

#LanguageAccess

#DeafAndProud

#DeafVoices

#CelebrateDeafCulture

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In this heartfelt and urgent episode, I reflect on a long-standing goal I've held since the launch of this podcast: to speak with a gun violence prevention advocate about the devastating impact of mass shootings, particularly in schools. As a classroom teacher, this issue is deeply personal. The statistics are staggering—but behind them are real people, real families, and far too many children lost.

That goal led me to Moms Demand Action, a grassroots movement founded by Shannon Watts in the wake of the Sandy Hook tragedy. What began as a Facebook group created by one mother has evolved into a nationwide force advocating for stronger gun laws and safer communities.

In 2024, I attended my first meeting. But it wasn’t until I got on an "action bus" to Albany, New York—a place where I earned my undergraduate education—that I truly felt the power of community activism. I joined fellow advocates to meet with lawmakers and push for three essential bills that address:

• The ban of semi-automatic handguns that can be converted into machine guns using illegal Glock switches,
• The codification and expansion of New York’s Office of Gun Violence Prevention,
• A simplified and strengthened firearm storage law.

These aren't radical ideas—they're common-sense measures to save lives.

This episode isn't just about one person's journey into advocacy—it's about what happens when we move from storytelling to action. I found inspiration, purpose, and a network of passionate people who believe we can and must do better.

If you’ve ever asked yourself, “What can I do?”—this episode is your invitation to find out.

🔗 Resources Mentioned: Moms Demand Action: https://momsdemandaction.org * Everytown for Gun Safety: https://everytown.org * Shannon Watts on Twitter: @shannonrwatts * “In the Battle Against Gun Violence, Shannon Watts Fights Like a Mother” – Glamour* Article

📢 Call to Action:Attend a local Moms Demand Action meeting. Speak up. Vote smart. And when the “action bus” rolls into your town—get on.

https://momsdemandaction.org/

🎧 Subscribe, share, and stay tuned for my upcoming interview with a gun prevention advocate.

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In this conversation, Kristie Raymond discusses her revolutionary approach to modeling and casting, focusing on inclusivity and representation for individuals with disabilities. She emphasizes the importance of building a talent pool of adaptive talent to ensure authentic representation in media. Kristie shares her journey in founding Humankind Casting, her experiences in the industry, and the impact of inclusive casting on individuals and society. The conversation highlights the need for education, awareness, and collaboration to create opportunities for underrepresented communities in the modeling world.

takeaways

• Creating a talent pool of adaptive talent is essential for inclusive casting.
• Representation matters in advertising and media.
• Building confidence in individuals with disabilities can change their lives.
• The modeling industry needs to evolve to include diverse talent.
• Education and awareness are crucial for industry professionals.
• Inclusive casting can lead to authentic representation in media.
• The journey of Humankind Casting is about empowering individuals.
• Collaboration with organizations can enhance opportunities for talent.
• The impact of advertising on the disability community is significant.
• Creating a supportive environment fosters growth and confidence.

titles

• Revolutionizing Representation in Modeling
• Building a Talent Pool for Inclusive Casting

Sound Bites

• "It's about the human connection."
• "Representation matters, right?"
• "It's okay to go for inclusive casting."

Chapters

00:00

Technical Difficulties and Introduction

02:50

The Importance of Inclusive Casting

05:56

Authenticity in Representation

09:12

Building Confidence Through Modeling

11:57

The Journey of Kristie Raymond

15:54

Founding Humankind Casting

19:04

Challenges in the Industry

21:55

Creating a Talent Pool

25:09

The Future of Inclusive Casting

31:15

Scaling Opportunities in Secondary Markets

34:40

Building a Diverse Talent Pool

37:18

The Importance of Representation

39:12

Authenticity in Advertising

42:04

Impact of DEI Policies

44:42

The Casting Process Explained

46:18

Expanding Clinics and Opportunities

51:14

Educating the Industry

55:12

Empowering Creatives

58:14

Navigating the Hiring Process

https://www.youarehumankind.com/

https://www.linkedin.com/in/kristieraymond/

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In this conversation, Erica shares her journey as a late diagnosed autistic ADHD female and the insights gained from parenting her neurodivergent child. She discusses the emotional challenges faced due to societal norms and the importance of self-acceptance. The dialogue emphasizes the value of different perspectives, the significance of asking for help, and the need to challenge societal expectations regarding disability and worth. In this conversation, Erica and Mark explore the themes of compassion, acceptance, and the interconnectedness of social justice issues, particularly focusing on autism and animal rights. Erica shares her personal journey, the importance of communication in relationships, and how her experiences shape her advocacy work. They discuss the need for understanding and validating diverse experiences, the significance of amplifying marginalized voices, and the privilege of being able to express oneself freely. The conversation emphasizes the importance of collective liberation and the responsibility to advocate for all living beings.

takeaways

• Erica's journey began as a late diagnosed autistic ADHD female.
• Understanding her child's perspective helped Erica appreciate her own neurodivergence.
• Receiving a professional diagnosis was validating for Erica.
• Emotional wounds stemmed from societal narratives about autism.
• Erica felt alienated despite being socially active.
• The concept of 'normal' is problematic and often harmful.
• Society often overlooks the value of neurodivergent individuals.
• Asking for help is a sign of strength, not weakness.
• Elders in society are often marginalized and undervalued.
• Parenting a neurodivergent child can lead to profound self-discovery. Compassion allows individuals to navigate their experiences authentically.
• Communication and trust are essential in relationships, especially in understanding diverse perspectives.
• Erica's journey highlights the importance of finding supportive environments for personal growth.
• Advocacy for animals and social justice is interconnected and essential for collective liberation.
• Understanding autism requires recognizing the unique experiences of each individual.
• The narrative around autism and disability needs to shift towards acceptance and validation.
• Amplifying marginalized voices is crucial in the fight for social justice.
• Privilege plays a significant role in how individuals navigate their identities and experiences.
• Education should come from lived experiences to foster understanding and empathy.
• Collective care is necessary for the well-being of all living beings.

Sound Bites

• "I began to see myself through that same lens."
• "I felt like I was constantly comparing myself."
• "Our worth really comes down to productivity."
• "It's not a sign of weakness to ask for help."
• "We have to give people more credit."
• "You just need to be willing to say, I believe you."
• "It's about collective care and collective liberation."
• "We can expand that to include everybody."
• "Animals are always the bottom of the rung."
• "This message needs to get out there."
• "We need to educate from lived experiences."
• "Showing up as ourselves is a privilege."
• "It's important to recognize our privilege."

Chapters00:00

Introduction and Background

02:56

Understanding Neurodivergence

06:10

Personal Experiences with Autism and ADHD

08:56

The Impact of Diagnosis

12:01

Navigating Social Norms and Expectations

15:03

The Value of Different Perspectives

17:56

Disability and Worth in Society

20:49

Asking for Help and Support

24:05

The Role of Elders in Society

27:04

Parenting a Neurodivergent Child

30:00

Shared Experiences and Understanding

34:27

Understanding Compassion and Acceptance

39:10

The Importance of Communication and Trust

44:30

Erica's Journey and Career

49:19

Advocacy for Animals and Social Justice

56:15

Intersection of Autism and Animal Rights

01:02:17

Amplifying Voices and Collective Liberation

Instagram: erica_settino

https://www.karunaforanimals.com/

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🎙️ Special Ed Rising: No Parent Left BehindEpisode Summary:In this episode, we address the dangerous and deeply offensive comments made by Robert F. Kennedy Jr. during his April 16, 2025 press conference, where he claimed autism is “preventable” and described individuals on the spectrum as incapable of working, dating, writing poetry, or living independent lives.

We confront these statements with facts, lived experience, and community response.

From debunking outdated vaccine myths to amplifying the voices of autistic adults and their families, we’re here to set the record straight.

RFK Jr.’s rhetoric isn’t just wrong—it’s harmful. And our community deserves better.

🔍 Key Segments:Segment 1: Breaking Down the Claims

• What RFK Jr. said and why it’s dangerous
• The truth about thimerosal and autism
• Scientific consensus from CDC, WHO, AAP, IOM, and JAMA Psychiatry

Segment 2: The Community Claps Back

• Responses from Holly Robinson Peete, Dr. Peter Hotez, and our own community
• Real-life stories of autistic individuals thriving in work, love, and creativity

Segment 3: What Families Really Need

• Support, not stigma
• Why RFK’s message misses the mark entirely

Segment 4: Moving Forward

• How to respond to misinformation
• Ways we can build inclusive, empowering spaces for all neurodivergent people

📌 Takeaways: Autism is not caused by vaccines or thimerosal. * Genetics play a major role in autism. * Autistic people can and do* live meaningful, connected, and creative lives. * The real barrier is not autism—it’s misinformation and underfunded systems. * Words matter, and so does leadership rooted in truth and compassion.

📚 Sources Mentioned:* CDC on Thimerosal & Autism * Institute of Medicine 2004 Report * JAMA Psychiatry 2019 Heritability Study * WHO Vaccine Safety * Holly Robinson Peete’s Response * Dr. Peter Hotez’s Commentary

🧷 Share the Message:Autism is not a tragedy. Stigma is.

We don't need cures. We need compassion.



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summary

In this conversation, Gaile Valcho discusses the evolution of the Holly Springs Autism Acceptance Day, highlighting the importance of community engagement, police involvement, and the establishment of a nonprofit organization to support families with autistic children. She shares insights on training first responders, the significance of family dynamics, and the challenges of parenting a teenager with autism. The conversation emphasizes the need for awareness, support systems, and self-care strategies for parents. In this conversation, Gaile Valcho discusses the importance of guardianship for her son Brady, who has autism, and the steps they are taking to ensure his independence and well-being as he approaches adulthood. She emphasizes the need for families to understand the legal and medical implications of guardianship. Gaile also shares her role at the Hand Center for Autism, where she supports families and builds community partnerships to provide resources for children with autism. The conversation touches on the challenges of living with chronic illness while parenting, the significance of the spoon theory in understanding energy levels, and the need for better education and awareness in schools regarding autism. Gaile highlights the importance of community engagement and acceptance for individuals with autism and their families.

takeaways

• The Holly Springs Autism Acceptance Day has grown significantly over the years.
• Police involvement is crucial for building community trust and understanding.
• Training first responders on autism can prevent misunderstandings in crisis situations.
• Establishing a nonprofit allows for more structured support and fundraising efforts.
• Family dynamics play a vital role in managing the challenges of autism.
• Self-care is essential for parents to maintain their well-being.
• Involving children in decision-making fosters independence and confidence.
• ABA therapy can be beneficial for older children with autism.
• Community events can enhance awareness and support for families.
• Creative solutions are necessary for finding time for self-care. Guardianship is crucial for individuals with disabilities as they transition to adulthood.
• Families should actively pursue guardianship to ensure their loved ones' rights and needs are met.
• Community resources and partnerships are essential for supporting families with autistic children.
• Events like Autism Acceptance Day foster community engagement and awareness.
• Living with chronic illness can complicate parenting responsibilities.
• The spoon theory helps in understanding energy management for those with chronic conditions.
• Education systems often lack the necessary awareness about autism, leading to punitive measures.
• Invisible disabilities are often misunderstood by the public, leading to stigma.
• Building relationships with community organizations can enhance support for families.
• Open conversations about disabilities can lead to greater understanding and acceptance.

Sound Bites

• "You look great and I'm joking the switch"
• "They really embraced the idea"
• "It's one thing to have police involvement"
• "We became a nonprofit during COVID"
• "We need some help"
• "You need an outlet, a healthy one"
• "We find it really beneficial again for us"
• "That's the promised land."
• "It's an amazingly fun day."
• "I got diagnosed with lupus over COVID."
• "I use the spoon theory."
• "There's invisible handicaps, sir."
• "We're in a very judgy world."

Chapters

00:00

Introduction to Autism Acceptance Day

03:01

Police Involvement and Community Engagement

05:59

Training First Responders for Autism Awareness

09:09

Establishing a Nonprofit and Fundraising Efforts

11:52

Family Dynamics and Support Systems

14:59

Parenting Strategies and Self-Care

18:02

Brady's Growth and Independence

20:54

Navigating Teenage Challenges and ABA Therapy

32:45

Navigating Guardianship and Independence

36:24

Supporting Families in Autism Services

41:52

Community Engagement and Resources

42:58

Promoting Autism Acceptance

49:08

Living with Chronic Illness and Parenting

54:07

Understanding Through the Spoon Theory

57:49

Challenges in Education and Awareness

01:00:25

Invisible Disabilities and Public Perception

https://bva.foundation/

https://www.handscenter.com/

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Show Notes

In this conversation, Mark interviews David Tillman, a dedicated father of a son with Fragile X syndrome. David shares his journey as a parent, the challenges and joys of raising Miles, and the importance of community support. They discuss the impact of Fragile X syndrome on Miles' life, the significance of music and arts in education, and the need for advocacy in the disability community. David emphasizes the value of patience, understanding, and connection in navigating the complexities of raising a child with special needs.

takeaways

• David Tillman emphasizes the importance of dad representation in discussions about parenting children with special needs.
• Fragile X syndrome presents unique challenges, but also opportunities for connection and joy.
• Community support is crucial for families navigating disabilities.
• Music and arts can play a significant role in the development of children with special needs.
• Patience and understanding are key in helping children with disabilities thrive in social situations.
• The Fragile X community provides invaluable resources and connections for families.
• Social media can help families connect with others facing similar challenges.
• Advocacy is essential for ensuring that the needs of children with disabilities are met.
• Preparing for the future involves teaching independence and life skills from an early age.
• Every family’s journey is unique, and it’s important to celebrate the small victories.

Sound Bites

• "I love talking about Miles."
• "We can do this, Miles."
• "It's a beautiful vision."

Chapters

00:00

Introduction to David Tillman and His Journey

02:18

Understanding Fragile X Syndrome and Its Impact

08:19

Navigating Family Dynamics and Support Systems

11:00

The Importance of Community and Connection

13:20

Music as a Bonding Tool

17:48

The Need for Arts Programs in Disability Advocacy

21:43

Advocacy and Raising Awareness

25:07

Finding Balance and Celebrating Moments

27:20

Navigating Crisis Moments

31:24

Understanding Diagnosis and Support

41:04

Building Community Connections

46:24

Advocacy and Future Planning

Instagram: @xtraordinarymiles

https://www.linkedin.com/in/david-tillman-phd/

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Podcast Show Notes: Impact of Policy Changes on Special Needs Families

Episode Overview:

Welcome to today’s episode where we explore the impact of policy changes on families of individuals with disabilities. With potential cuts to Medicaid and the Department of Education, many families worry about losing access to essential services. In this episode, I break down what these changes could mean and share actionable steps you can take to protect your child's future. Please note that this information is for educational purposes and not legal advice.

Key Topics Covered:

• Understanding how Medicaid and Medicare cuts could affect individuals with disabilities
• Potential impacts of reduced federal oversight on special education
• Special Needs Trusts (SNTs) and how they safeguard government benefit eligibility
• ABLE Accounts for flexible, tax-advantaged savings
• Choosing the right trustee for your child’s Special Needs Trust

Special Needs Trusts (SNTs):

• First-Party SNTs: Funded with the beneficiary’s assets, often from settlements or inheritances. Includes a Medicaid payback provision.
• Third-Party SNTs: Created by family members or friends, with no Medicaid payback requirement.
• Benefits: Maintain eligibility for Medicaid and Supplemental Security Income (SSI) while providing supplemental support.
• Resources:
• CHOP: Special Needs Trusts Overview
• NYS Bar Association: Improved Trust Administration
• McAndrews Law Firm: Establishing a Trust
• International Bipolar Foundation: Management Models

ABLE Accounts:

• Annual contribution limit of $18,000, with additional contributions for working individuals.
• Tax-free growth for qualified expenses like education, housing, and assistive technology.
• SSI protection for accounts under $100,000.
• Complements SNTs for managing day-to-day expenses.
• Learn more at the ABLE National Resource Center.

Choosing the Right Trustee:

• Family Member Trustee: Offers personal insight and familiarity but may lack financial and legal expertise.
• Professional Trustee: Provides expertise in financial management but may have higher fees.
• Co-Trustees: Combines the strengths of a family member and a professional.
• Pooled Trusts: Managed by nonprofit organizations for cost-effective management.
• Evaluate factors like financial knowledge, understanding of benefit rules, and long-term commitment.

Next Steps:

1. Consult a Special Needs Attorney: Find one through NAELA or the Special Needs Alliance.
2. Open an ABLE Account: Compare programs using the ABLE National Resource Center.
3. Develop a Letter of Intent: Document your child’s care preferences and essential information.
4. Consider Life Insurance: Fund a third-party SNT to provide ongoing support.
5. Review Your Plan: Regularly revisit your financial plan to accommodate changes in circumstances and laws.

Resources and Support:

• The Arc of the United States
• National Disability Institute
• Family Voices
• Autism Speaks Financial Toolkit
• Parent to Parent USA
• Easterseals
• Council of Parent Attorneys and Advocates (COPAA)

If you found this episode helpful, share it with other parents and caregivers! Stay informed and empowered as we navigate these uncertain times together.

Contact:

For more resources, visit the resource page on my website. Have questions or topic suggestions? Reach out via my contact form or follow me on social media. Thanks for tuning in!

specialedrising.com

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This episode also appears on the Purge 47 podcast which is in its infancy with few followers. I feel this information is important and so I'm adding it to this podcast. Check out Purge 47 for continuing episodes related to disability politics.

Podcast Show Notes: Understanding Medicaid & The Fight to Protect It

Introduction

• Welcome to the show! Today, I'm diving into Medicaid—what it is, how it works, and why proposed budget cuts could have devastating consequences for millions of Americans with disabilities.
• If you or a loved one rely on Medicaid, this episode is for you. Stay tuned to learn how you can take action to protect this essential program.

Segment 1: What is Medicaid?

• Medicaid is a government-funded health insurance program that provides free or low-cost healthcare to low-income individuals, families, seniors, and people with disabilities.
• It is distinct from Medicare, which serves seniors (65+) and certain disabled individuals regardless of income.
• Medicaid covers hospital visits, doctor appointments, prescription drugs, and long-term care, including Home and Community-Based Services (HCBS) that help individuals with disabilities live independently.
• Funded jointly by federal and state governments, meaning eligibility and benefits vary by state.

Key Differences Between Medicaid & Medicare:

FeatureMedicareMedicaidWho It CoversSeniors (65+) & some with disabilitiesLow-income individuals, children, pregnant women, elderly, and disabled peopleFundingFederal programJoint federal & state programIncome Limits?NoYes, based on financial needCoverageHospital care, doctor visits, some prescriptionsHospital care, doctor visits, prescriptions, long-term care, and sometimes dental & visionCost to PatientsMay have premiums & co-paysUsually low or no cost, some states have small co-paysLong-Term Care?LimitedYes, covers nursing homes & in-home care

Who Can Have Both?

• Some individuals qualify for both Medicaid and Medicare, known as “dual eligibility.” Medicaid can help cover Medicare premiums and out-of-pocket costs.

Segment 2: Medicaid Under Threat – Proposed Budget Cuts

• The U.S. House of Representatives recently passed a budget framework that proposes cutting over $800 billion from Medicaid over the next decade.
• Advocates warn that these cuts could:
• Limit access to essential health services for over 10 million people with disabilities.
• Reduce funding for HCBS, forcing more people into institutional care.
• Deepen the workforce crisis in disability services—69% of providers have already had to decline new clients due to staffing shortages.
• Put nursing home care at risk, affecting millions of seniors.
• Leave states struggling to fill the funding gap, leading to more people losing coverage.

What’s at Stake?

• More than 700,000 people are already on waiting lists for Medicaid waivers that provide home and community-based services.
• Cuts could force families to become full-time caregivers, quit jobs, or lose access to critical health services.
• ACLU and disability rights advocates stress that Medicaid is a lifeline—not just another budget line item.

Segment 3: Why This Matters

• Medicaid is more than just a government program—it’s a promise to protect our most vulnerable citizens.
• If these cuts go through, real people will lose access to care, families will face overwhelming burdens, and communities will suffer.
• Experts warn that Medicaid funding reductions could lead to:
• Over 15.9 million people losing their Medicaid or CHIP coverage by 2026.
• Reduced support for children, pregnant women, seniors, and people with disabilities.
• Longer waiting lists and fewer available services for those who rely on HCBS.

Segment 4: What Can We Do?

• Good news: The Senate still has to approve these cuts. There’s time to act!

• Here’s how you can help:

• Call your senators – Demand they protect Medicaid. Every call makes a difference.

• Join advocacy groups – Organizations like ACLU, ANCOR, and Caring Across Generations are fighting to protect Medicaid.
• Share your story – If Medicaid has helped you or a loved one, spread the word on social media, contact your representatives, and educate your community.
• Attend town halls and protests – Show lawmakers that their constituents care about this issue.

Closing Message:

• “Protect Medicaid, Protect Lives!” Cutting $800 billion from Medicaid means millions will lose critical healthcare, home support, and nursing care.
• This isn’t just about a budget—it’s about real people losing essential services.
• Stay informed, stay engaged, and keep fighting for what’s right.
• If you found this discussion valuable, please share this episode with your friends, family, and community.

Final Call to Action:

• Stand up. Speak out. Stop the cuts.
• Follow me for more updates and action steps.

Thank you for listening!

purgepod47@gmail.com

house.gov

specialedrising.com

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Episode Summary:

Today, I'm flipping the script on ADHD. Instead of focusing solely on the challenges, I'm highlighting the strengths—the creativity, innovation, and unique ways of thinking that make kids with ADHD exceptional. Whether you’re a parent, educator, or someone with ADHD yourself, this episode will offer a fresh perspective on how to harness ADHD as a superpower.

I'll explore the science behind ADHD and creativity, the impact of movement on cognitive performance, and how hyperfocus can be an incredible asset. Plus, we’ll discuss real-world examples of successful innovators, entrepreneurs, and leaders who have thrived because of their neurodiverse minds—not in spite of them.

What You’ll Learn in This Episode:

✅ How ADHD fuels creativity and problem-solving

✅ Why movement can enhance focus and performance

✅ The power of hyperfocus and how to channel it effectively

✅ Career paths that align with ADHD strengths

✅ Inspiring stories of ADHD innovators, from historical figures to modern-day leaders

Key Takeaways:

🔹 ADHD and divergent thinking: A natural connection to innovation

🔹 Hyperactivity isn’t always a distraction—it can be a tool for success

🔹 Many industries thrive on the unique strengths of ADHD minds

🔹 Embracing neurodiversity is the key to unlocking extraordinary potential

Featured Research & Insights:

📖 Dr. Holly White’s research on ADHD and divergent thinking

📖 UC Davis MIND Institute study on movement and cognitive performance

📖 Dr. Ned Hallowell’s insights on hyperfocus as a "turbocharged concentration mode"

📖 Thought-provoking perspectives from Bill Gates and other neurodiverse innovators

Links

https://www.sciencedaily.com/releases/2015/06/150611082116.htm?utm_source=chatgpt.com#google_vignette

https://www.thetimes.com/comment/columnists/article/neurodiversity-is-a-power-we-must-tap-into-2t56jj8pr?utm_source=chatgpt.com®ion=global

Let’s Connect!

📩 Have thoughts on this episode? Share your experiences with ADHD as a strength! Reach out at specialedrising@gmail.com

🎙️ Subscribe to the podcast for more insights and inspiration for families of exceptional individuals.

If you found this episode valuable, share it with someone who needs a fresh perspective on ADHD! Let’s change the narrative together.

https://specialedrising.com/

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Podcast Show Notes

Episode Sub Title: Siblings as Caregivers, Protectors, and Advocates

Episode Summary:

In this episode, I take a deep dive into the unique experiences of siblings of individuals with disabilities. Through my personal journey—growing up with a paraplegic uncle and later witnessing my mother’s struggles with OCD and anxiety—I explore how these experiences shape identity, relationships, and emotional well-being.

Siblings of individuals with special needs often take on multifaceted roles: caregiver, protector, and advocate. These responsibilities can be both rewarding and challenging, influencing their development, career choices, and emotional resilience. We discuss the psychological impact, share real-world examples, and highlight strategies for supporting siblings on their journey.

Key Topics Covered:

• Personal Reflections: My experiences with my uncle’s physical disability and my mother’s mental health challenges.
• Understanding the Sibling Experience: How children instinctively adapt to their sibling’s needs and how this shapes their identity over time.
• The Three Core Roles:
• The Caregiver: Balancing responsibility with personal growth.
• The Protector: Defending and ensuring the safety of a sibling.
• The Advocate: Speaking up for their sibling’s rights and fostering inclusion.
• Emotional Complexity: Exploring feelings of guilt, pride, anxiety, and responsibility.
• The Psychological Impact of Challenging Behaviors: Research on the potential trauma experienced by siblings.
• Trauma Theory & Family Dynamics: How family experiences shape long-term emotional health.
• Supporting Siblings with Mindful Practices: Open communication, validation, leadership opportunities, and self-care strategies.
• Empowerment & Identity: Helping siblings find their voice, build leadership skills, and shape their identity beyond their role as a sibling.

Key Takeaways for Parents & Siblings:

• Create a safe space for siblings to express their emotions without guilt.
• Acknowledge and validate their unique experiences and contributions.
• Provide resources and peer support networks to help them navigate challenges.
• Encourage leadership and advocacy skills to empower their growth.
• Reinforce their individuality beyond their sibling relationship.

Final Thought:

“To all the siblings listening—your role in your family is important, but it doesn’t define you. You are a leader, an advocate, and a person with your own dreams and identity. And to the parents—empowering all your children ensures they don’t just survive these challenges, but thrive.”

Resources Mentioned:

• The Sibling Survival Guide by Don Meyer
• Sibshops: siblingsupport.org

Join the Conversation:

📩 Email me at specialedrising@gmail.com

📱 Follow us on Instagram, Facebook, Tik Tok and LinkedIn

🎙️ Subscribe and leave a review on wherever you listen

Tune in and let’s explore what it means to be a sibling in a world of exceptional needs.

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"Helping People Understand the World Through Games." -Josh Boykin

In this conversation, Mark and Josh Boykin explore the intersection of gaming and accessibility, discussing how games can serve as tools for storytelling, empathy, and connection, particularly for children with special needs. They delve into the evolution of gaming narratives, the importance of inclusivity, and the role of parents in guiding their children's gaming experiences. The discussion also touches on the social aspects of multiplayer gaming and the future of the gaming industry in terms of accessibility and understanding.

takeaways

• Gaming can be a powerful tool for storytelling and connection.
• Empathy and understanding are crucial in today's society.
• Parents can use gaming to connect with their children.
• The Xbox adaptive controller enhances accessibility in gaming.
• Tabletop role-playing games foster creativity and social skills.
• Violence in video games does not directly correlate with real-life violence.
• Inclusivity in gaming is essential for a diverse audience.
• Multiplayer games provide opportunities for social interaction.
• Games can help children with special needs feel included.
• The future of gaming should focus on understanding and connection.

titles

• Gaming and Accessibility: A New Frontier
• Empathy Through Gaming: Connecting Generations

Sound Bites

• "Gaming is a tool for storytelling."
• "We need more inclusivity in gaming."
• "Multiplayer games offer social connections."

Chapters

00:00

Introduction and Personal Updates

00:01

Exploring the Role of Gaming in Education

01:31

Connecting Games to Real-World Issues

06:21

The Importance of Empathy and Understanding

10:19

Gaming as a Tool for Parent-Child Connection

14:05

Navigating the Gaming Landscape

20:15

Games for Neurodivergent and Physically Disabled Kids

25:44

The Power of Tabletop Role-Playing Games

28:05

Communal Storytelling and Character Development

30:05

Exploring Marginalized Experiences Through Gaming

33:01

The Importance of Accessibility in Gaming

36:07

Innovations in Gaming Accessibility

38:59

The Social Component of Multiplayer Gaming

41:41

Building Trust Through Shared Interests

49:21

The Future of Gaming: Understanding and Connection

You can find Josh on BlueSky at https://wallstormer.bsky.social, and for more information about Intelligame at https://linktr.ee/intelligame. You can also contact him for speaking/consulting opportunities at josh@intelligame.us.

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In this conversation, Dr. Ruth shares her extensive background in education, particularly focusing on autism and special needs. She discusses her journey from teaching in diverse environments to establishing Blue Sky, a charity aimed at providing early intervention services for children with autism. The conversation highlights the challenges faced in the UK regarding autism services, the cultural differences in perception and support, and the importance of empowering parents in the therapeutic process. In this conversation, Dr. Ruth discusses the challenges and innovations in autism therapy, particularly focusing on the Play-to-Talk approach. She highlights the importance of legal frameworks for disability services, the role of parents in therapy, and the need for accessible services across socioeconomic backgrounds. Dr. Ruth shares transformative success stories of children who have benefited from their therapy, emphasizing the potential of every child and the importance of not giving up hope.

takeaways

• Dr. Ruth has a diverse background in education and autism.
• Blue Sky started with limited resources but grew rapidly.
• The therapy model focuses on parent involvement and empowerment.
• UK autism services face significant challenges and inconsistencies.
• Cultural perceptions of autism differ greatly between the UK and the US.
• Early intervention can lead to significant progress in children.
• Parents often lack a clear path post-diagnosis in the UK.
• Funding for autism services is limited and competitive.
• The importance of community support for parents is emphasized.
• Dr. Ruth advocates for more accessible early intervention services. Legal frameworks for disability services are often inadequate.
• Play-to-Talk is an innovative approach to autism therapy.
• Parental involvement significantly enhances therapy outcomes.
• Training parents is crucial for effective home practice.
• Accessibility to therapy is a major concern for families.
• Children's progress can be transformative with the right support.
• Understanding sensory processing is key in therapy.
• Cultural differences impact therapy approaches and parent involvement.
• Economic factors can limit access to necessary services.
• Every child has the potential to thrive with the right support.

titles

• Navigating Autism: Insights from Dr. Ruth
• Empowering Parents in Autism Therapy
• The Journey of Blue Sky: A Model for Change
• Cultural Perspectives on Autism Support
• Challenges in UK Autism Services
• Early Intervention: A Path to Progress

Sound Bites

• "It's a really strange road, I know."
• "It's tricky in the UK."
• "I want to have a path."
• "We need to have a path."
• "We don't have a lot of money."
• "It's sad to hear."
• "We play and help children to talk."
• "We want to empower parents."
• "It's a cultural thing."
• "We try and bridge that gap."
• "Don't give up hope."

Chapters

00:00

Introduction and Background of Dr. Ruth

04:54

The Journey to Establishing Blue Sky

11:52

Therapy and Educational Services Overview

17:58

Challenges in the UK Autism Services

23:51

Cultural Differences in Autism Perception

29:52

Empowering Parents in Autism Therapy

31:05

Understanding Legal Frameworks for Disability Services

35:05

Innovative Approaches: Play-to-Talk Therapy

39:47

The Role of Parents in Therapy

48:07

Training Parents for Effective Home Practice

56:11

Accessibility and Economic Considerations in Therapy

57:00

Transformative Success Stories from Therapy

https://www.blueskyautism.com/

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summary

In this conversation, Alex Wosleger shares her journey as a parent of two children with a rare genetic disorder, discussing the challenges, triumphs, and the importance of community support. She reflects on the diagnosis journey, the impact of diet and therapy, and the dynamics of parenting in the face of adversity. Alex emphasizes the beauty of her children's progress and the lessons they teach her, while also touching on the hope brought by advancements in gene therapy.

takeaways

• Parenting children with special needs is a unique journey.
• The diagnosis process can be long and challenging.
• Genetic disorders can significantly impact development.
• Nutrition plays a crucial role in managing health.
• Therapies should be enjoyable and engaging for children.
• Every child develops at their own pace, regardless of challenges.
• Community support is vital for families with special needs.
• Finding joy in small milestones is essential.
• Gene therapy offers hope for children with rare disorders.
• Parenting requires constant adaptation and learning.

titles

• Navigating Parenthood with Special Needs
• The Journey of a Special Needs Parent

Sound Bites

• "It's been a huge journey for us."
• "We're just gonna live."
• "It's been a lot to process."

Chapters

00:00

Technical Troubles and Initial Greetings

00:28

Introduction to Alex Wosleger and Her Family

02:49

The Journey of Parenthood and Genetic Challenges

08:46

Connor's Diagnosis and Genetic Insights

12:46

Diet, Nutrition, and Managing Health

15:11

Establishing Routines for Well-Being

18:37

Navigating Seizures and Medical Challenges

21:17

Milestones and Communication Progress

23:51

The Journey of Walking and Independence

27:23

Parenting Dynamics and Relationship Growth

29:37

Coping with Emotional Challenges as a Couple

34:33

Finding Gratitude Amidst Challenges

37:54

Embracing New Beginnings with Quinn

39:44

Navigating Emotions and Mourning

42:26

The Journey of Gene Therapy

46:05

Finding Joy in Daily Life

49:36

Innovative Therapies and Their Impact

53:24

Community and Connection in Parenting

56:48

Advice and Reflections on Parenting

YOUTUBE: https://www.youtube.com/@OutsideTheMilestones

https://www.rarediseaseday.org/friends/the-wwox-foundation/

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In this conversation, Carinne Mossa shares her personal journey into the world of special education and parenting a child with complex needs. She discusses the challenges faced by parents, the importance of self-care, and the need for community support. Carinne emphasizes the significance of understanding behavior as communication and the role of advocacy in navigating the education system. She also highlights the necessity of pacing oneself and finding meaning in adversity, while advocating for better training and support for parents and teachers alike.

takeaways

• Carinne transitioned from being a teacher to a parent coach after her child's diagnosis.
• Understanding behavior as communication is crucial in special education.
• Self-care is essential for parents to effectively support their children.
• Building a supportive community can alleviate feelings of isolation for parents.
• Advocacy is key in navigating the special education system.
• Parents should prioritize their mental and physical health.
• Education for parents about their rights and the system is vital.
• Teachers need to be valued and compensated fairly for their work.
• Finding meaning in adversity can help parents cope with challenges.
• Pacing oneself is important to avoid burnout in parenting.

titles

• Navigating the Journey of Special Needs Parenting
• Empowering Parents in Special Education

Sound Bites

• "All behavior is communication."
• "It's a work in progress."
• "You can't pour from an empty cup."

Chapters

00:00

Introduction and Personal Background

01:36

Journey into Special Education

05:30

Navigating the Emotional Landscape

10:47

The Importance of Support Systems

14:37

Coaching and Self-Care Strategies

18:33

Advocacy and Bridging Gaps in Education

21:00

Navigating the Education System as Advocates

25:27

The Role of COPA in Advocacy

30:36

Empowering Parents Through Coaching

33:23

Systemic Changes Needed in Education

38:52

Self-Care for Parents of Children with Complex Needs

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Episode Summary:

In this episode, I tackle the critical issues facing special education today and the potential ramifications of the Trump administration's proposed Project 2025, which includes plans to dismantle the U.S. Department of Education. This episode is essential listening for parents, educators, and advocates who want to stay informed about the policies shaping the future of education for students with disabilities.

Key Topics Discussed:

1. The Current Challenges in Special Education:

2. Workforce Issues:

3. Teacher recruitment is at an all-time low, with only 5% of ACT test-takers in 2014 expressing interest in education.
4. Retention challenges due to low pay, high stress, and lack of mentorship.
5. Funding and Resource Gaps:
6. Federal funding for special education remains significantly below the promised 40% target, leaving states and districts struggling to fill the gap.
7. Administrative Burdens:

8. Complex paperwork and compliance reporting take time away from student engagement and contribute to burnout among teachers and administrators.

9. Potential Impact of Eliminating the Department of Education:

10. Loss of federal oversight and accountability for the Individuals with Disabilities Education Act (IDEA).

11. Significant funding disparities and increased state-level inconsistencies in special education services.
12. Greater burden on parents to advocate for their children’s rights and navigate a fragmented system.

13. Reduced training and support for educators, exacerbating existing teacher shortages.

14. How These Changes Could Affect Families and Students:

15. Increased inequities in access to quality education, especially for low-income and rural areas.

16. Potential erosion of civil rights protections for students with disabilities.

17. Disruption of established frameworks like IEPs, creating confusion and service delays.

18. Steps Parents Can Take to Advocate and Protect Their Children’s Rights:

19. Stay informed about state and local policy changes.

20. Work with advocacy groups to lobby for strong state-level protections.
21. Leverage resources from organizations like The Arc, Autism Speaks, and Wrightslaw.

22. Push for adequate state funding and standardized support systems.

23. Solutions for a Better Future in Special Education:

24. Increased funding to meet federal commitments and reduce inequities.

25. Mentoring and training programs to attract and retain qualified teachers.
26. Technological innovations to streamline IEP management and improve compliance.

Key Quotes from the Episode:

• “Without a large governing body, there will be no regulation on who gets what.” – Amanda Levin Mazin
• “The Department of Education and the experts within it play a crucial role in enforcing civil rights for students with disabilities across the country.” – Jessica Levin

Resources Mentioned:

• The Arc
• Wrightslaw
• Autism Speaks
• U.S. Department of Education’s Personnel Preparation Initiative

Call to Action:

As policies continue to evolve, staying informed and actively advocating for your child's rights is more important than ever. Share this episode with other parents, educators, and advocates, and join in the fight to ensure that every child receives the education and support they deserve.

Connect with Me:

• Subscribe to the podcast on your favorite platform.
• Follow me on social media for updates and advocacy tips.
• Check out my parent training offers and more at specialedrising.com

Together, we can make a difference.

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In this conversation, Lori Cooney discusses Universal Design for Learning (UDL), a framework aimed at creating flexible learning environments that accommodate all students. She shares her personal journey in education, the importance of inclusive teaching practices, and how technology can enhance learning experiences. The discussion also covers the realistic implementation of UDL in classrooms, the impact of physical space on learning, and the positive effects of UDL on student engagement and behavior. Cooney emphasizes the need for ongoing training for teachers and the potential of future technologies to support diverse learners. In this conversation, Mark and Lori Cooney delve into the integration of AI in education, the principles of Universal Design for Learning (UDL), and the importance of parent advocacy in creating inclusive classrooms. They discuss the challenges teachers face, the potential of AI to ease workloads, and the necessity of training and resources for educators. Lori emphasizes the role of parents in supporting UDL and the need for innovative teaching methods to engage all students effectively.

takeaways

• Universal Design for Learning (UDL) is a framework for inclusive education.
• Lori Cooney's journey highlights the importance of understanding diverse learning needs.
• Technology plays a crucial role in implementing UDL effectively.
• Teachers can provide multiple means of engagement and assessment for students.
• Physical classroom design impacts student learning and inclusivity.
• Peer mentoring can enhance engagement and learning outcomes.
• UDL can help reduce behavioral issues in the classroom.
• There is evidence supporting the effectiveness of UDL in improving student outcomes.
• Future technologies, including AI, are being developed to support UDL.
• Ongoing professional development is essential for teachers to implement UDL. Many educators are unaware of the age restrictions for AI tools like ChatGPT.
• UDL encourages creative and authentic student outputs, reducing plagiarism.
• Parents often lack knowledge about UDL but can influence its adoption in schools.
• Training sessions can help educators understand the needs of students with disabilities.
• Effective communication between parents and teachers is crucial for student success.
• AI can assist teachers in creating assessments and rubrics efficiently.
• Inclusive education should be a standard practice in all classrooms.
• Teachers can start implementing UDL principles by making small changes.
• AI tools can help bridge language gaps for multilingual learners.
• Engaging students in creative projects can lead to better learning outcomes.

titles

• Unlocking Learning: The Power of UDL
• Creating Inclusive Classrooms with UDL
• Lori Cooney on Universal Design for Learning
• Transforming Education through UDL
• The Future of Learning: UDL and Technology

Sound Bites

• "Give them an alternate method."
• "Teachers are really schooled in this."
• "It makes it much more enticing for them."
• "UDL is part of inclusive design."
• "Their behavior is so much better."
• "There's just so many that I can name."
• "AI can provide automated feedback methods."
• "Parents play a huge role in advocacy."
• "Don't be afraid to try new tools."
• "Students can create better work than AI."
• "Engagement is key to student success."

Chapters

00:00

Introduction to Universal Design for Learning

03:59

Lori Cooney's Journey in Education

07:56

Understanding UDL: A Framework for All Learners

11:59

Realistic Implementation of UDL in Classrooms

15:58

Physical Space and UDL: Creating Inclusive Environments

20:06

Engagement and Behavior: The Impact of UDL

23:48

Measuring Success: UDL vs. Traditional Learning

28:02

Future Tools and Technologies for UDL

29:19

Exploring AI in Education

32:18

Understanding Universal Design for Learning (UDL)

34:35

Training and Resources for Educators

40:03

Advocating for UDL in Schools

44:43

The Role of Parents in UDL Implementation

47:03

Teacher Workload and AI Solutions

51:50

Encouraging Innovation in Teaching

https://www.linkedin.com/in/lori-cooney/

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In this conversation, Joan Accolla shares her journey from interior design to discovering the healing power of humor. She discusses how her background in design led her to explore holistic health and the integration of laughter as a therapeutic tool. The conversation delves into the science behind laughter, its effects on the brain, and how intentional laughter can transform one's mindset and emotional well-being. Joan emphasizes the importance of humor in various aspects of life, including leadership and personal health, and introduces the concept of laughter yoga as a practice for enhancing well-being.

Joan discusses the concept of intentional laughter and its healing properties, stemming from the movement of Laugh Yoga initiated by Madan Kataria. She explains how laughter can be provoked intentionally and how it triggers positive hormones in the brain. Joan also shares her work with Healing Headbands, a project that combines humor and art to support children with cancer and disabilities. The discussion highlights the importance of laughter in various communities, including those with special needs, and emphasizes the transformative power of humor in healing and emotional well-being. Joan discusses the mission and growth of Healing Headbands, emphasizing the importance of laughter and humor in healing. She shares insights on how laughter yoga serves as a universal language that transcends cultural barriers and highlights the role of humor in alleviating stress and promoting wellness. Joan also outlines her plans for expanding outreach, engaging with communities, and the future adventures of Healing Headbands as they aim to bring joy to children in hospitals.

takeaways

• Joanie's journey began with a desire to help others.
• Humor can be a powerful healing tool.
• Laughter activates the entire brain.
• Intentional laughter can shift negative thought patterns.
• Holistic health integrates mind, body, and spirit.
• Laughter yoga promotes well-being through intentional laughter.
• CEOs with a sense of humor are more respected.
• The Humor Academy teaches the science of laughter.
• Laughter can derail negative thinking.
• Humor is essential for emotional health.
• Intentional laughter can provoke genuine reactions.
• Laughter yoga was founded to explore laughter as a healer.
• The brain responds similarly to real and fake laughter.
• Laughter releases dopamine, oxytocin, serotonin, and endorphins.
• Healing Headbands combines art and humor for children with cancer.
• Workshops help children express themselves through laughter and art.
• Laughter provides a sense of normalcy for families with disabilities.
• The impact of laughter is immediate and profound.
• Humor can shift perspectives and reduce stress.
• Cortisol, the stress hormone, can be countered with laughter. Laughter yoga is still in its infancy and needs more awareness.
• Stress is a leading cause of illness, and laughter can be a remedy.
• Humor is a universal language that connects people across cultures.
• Watching others laugh can still provide healing benefits.
• Prominent figures use humor as a healing modality.
• Healing Headbands is expanding its outreach to more communities.
• Art therapy plays a significant role in healing processes.
• The organization is working on building a marketing team to spread awareness.
• Future plans include taking Healing Headbands on the road to various hospitals.
• Community engagement is crucial for the success of Healing Headbands.

https://www.healingheadbands.com/

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Jenifer Breaux is a Luxury Travel Agent and mother of two special needs children. Six years ago she opened a franchise of Dream Vacations called JB Travel Pros. Included in her work is her focus on helping families of special needs children make wonderful memories through travel. She is the author of Travel IS Possible - How to Travel with Children with Special Needs

In this conversation, Mark and Jenifer Breaux discuss the challenges and triumphs of parenting children with special needs, particularly in the context of education and travel. Jenifer shares her experiences as a military parent and how it shaped her approach to travel, emphasizing the importance of advocacy, routine, and creating memorable experiences for families. They explore practical tips for traveling with children who have sensory needs, the significance of social stories, and the value of establishing a vacation routine to reduce anxiety and enhance enjoyment for both parents and children.

takeaways

• Advocacy is crucial for parents navigating school systems.
• Good teachers can make a significant difference in a child's education.
• Celebrating small victories is important for children with special needs.
• Traveling can provide valuable experiences for families.
• Establishing a routine helps children feel secure while traveling.
• Social stories can prepare children for new experiences.
• Creating a comfortable travel environment is essential for sensory needs.
• Parents should not hesitate to seek help and resources.
• Traveling with special needs children requires planning and flexibility.
• Every family deserves to create lasting memories through travel.

Chapters00:00

Introduction and Daily Life of a Busy Parent

01:23

Navigating School Systems and Advocacy

04:19

The Importance of Good Teachers

06:57

Travel as a Means of Creating Memories

09:41

Understanding Sensory Needs in Children

12:33

The Journey into Travel and Military Influence

17:57

Transitioning from Military to Travel Advocacy

20:42

Overcoming Challenges in Special Needs Travel

23:26

Practical Travel Tips for Families

24:13

Embracing Family Travel

30:08

Creating Comfort for Kids

35:44

Planning Memorable Experiences

39:23

Navigating Air Travel with Kids

45:01

Establishing Routines on Vacation

50:56

Resources for Traveling Families

https://www.iamjeniferbreaux.com/

Instagram:

iamjeniferbreaux

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This episode is influenced by my recent conversations with guests on my show; particularly my chat with Taylor Winnett. We spoke about bridging the gap of communication between non-disabled people as they interact with disabled people. How does the conversation begin for someone who is unfamiliar with or has never met a disabled person and therefore may stumble when engaging for lack of appropriate, acceptable and respectful language? How can we get better at inclusive language to move the needle towards greater equality and recognition in all areas of life for all people no matter our differences?

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summary

In this conversation, Chris Higgins shares his journey as a filmmaker and writer, emphasizing the importance of accessibility in technology and storytelling. He discusses his film 'Access,' which profiles Corey Joseph, a user of assistive technology, and highlights the need for empathy and understanding in creating inclusive designs. The conversation explores the challenges of navigating conversations about disability and the role of generosity in sharing personal stories. In this conversation, Chris Higgins discusses the importance of accessibility in filmmaking, emphasizing the need for inclusive design that accommodates diverse audiences. He shares insights on the role of text and audio description in media, the challenges faced in implementing these features, and the evolving technology that supports accessibility. The conversation highlights the moral imperative of creating inclusive content and the potential impact of films like 'Access' in reducing stigma around disabilities.

takeaways

• Accessibility is crucial in technology and storytelling.
• Empathy is key to understanding the experiences of others.
• Filmmaking can be a powerful tool for advocacy.
• Corey's story illustrates the importance of lived experiences.
• Generosity from subjects can enhance storytelling.
• Inclusive design should consider various user needs.
• Awkwardness in conversations about disability is natural.
• Text can be a fundamental aspect of documentaries.
• Universal design benefits everyone, not just those with disabilities.
• Creating accessible content requires thoughtful planning. Accessibility is essential for filmmakers to consider.
• Text can serve as a universal medium for content.
• Audio description enhances the viewing experience for all.
• Filmmakers have a responsibility to provide access to their work.
• Technology plays a crucial role in supporting accessibility.
• Inclusive design can help reduce stigma around disabilities.
• Empathy is key in understanding diverse needs.
• The evolution of technology will improve accessibility features.
• Creating inclusive content is the right thing to do.
• Awareness and education are vital for promoting accessibility.

titles

• Exploring Accessibility in Filmmaking
• The Journey of a Filmmaker
• Empathy and Storytelling in Documentaries
• Corey Joseph: A Story of Accessibility
• Navigating Conversations About Disability
• The Role of Generosity in Filmmaking

Sound Bites

• "I had plans, but life happens."
• "This is just how reality is for him."
• "Corey was really generous."
• "What if there's no display?"
• "The documentary is text."
• "I want to provide the text."
• "Can I enjoy this if?"
• "Everything I make can be reduced to text."
• "This is how I'm learning English."
• "It changed me as a filmmaker."
• "There's an art to audio description."
• "Access is a product of its time."

Chapters

00:00

Introduction and Background

03:13

The Journey of Filmmaking and Writing

05:47

The Importance of Accessibility in Technology

09:14

Shifting Perspectives: From Experts to Users

11:57

Corey's Story: A Personal Connection

14:58

Building Empathy Through Storytelling

18:01

The Role of Generosity in Filmmaking

20:59

Navigating Awkward Conversations

24:14

Inclusive Design and Its Challenges

26:56

Universal Design and Accessibility Features

29:58

Exploring Accessibility in Filmmaking

31:56

The Role of Text in Media

33:33

Understanding Audio Description

36:56

Challenges of Implementing Accessibility Features

39:45

Future of Inclusive Design in Film

42:43

The Evolution of Accessibility Technology

54:54

Addressing Stigma Through Inclusive Design

Chris Higgins Website:

https://chrishiggins.com/w/

https://accessmovie.org/

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In this conversation, Taylor Winnett shares her reflections on competing in the Paralympics, and the emotional journey of balancing high expectations with the realities of performance. She discusses her future plans, including moving to Texas, aspirations for world championships, and the possibility of motherhood. Taylor also expresses her desire to coach and the importance of maintaining a positive mindset in sports and life. In this conversation, Taylor Winnett shares her experiences as a Paralympic swimmer, discussing the vibrant atmosphere of the Paralympic Village, the accessibility challenges she faced in Paris, and the social acceptance of athletes with disabilities. She emphasizes the importance of media representation and sponsorship in promoting disability sports and advocates for greater awareness and understanding of the disabled community. Taylor also reflects on the evolving perceptions of disability and the potential for future generations to embrace adaptive sports.

Takeaways

• The Paralympics provided a humbling experience despite performance disappointments.
• It's important to balance high expectations with reality in sports.
• Life after the Paralympics involves new challenges and opportunities.
• Future plans include moving, competing, and possibly starting a family.
• Coaching can be a fulfilling path for athletes post-competition.
• Maintaining a positive mindset is crucial in sports and life.
• Friendships formed through sports can last a lifetime.
• The Paralympic village was a unique and accessible environment.
• Personal growth often comes from navigating challenges. The Paralympic Village offers a unique and supportive environment for athletes.
• Accessibility in cities like Paris has improved, but challenges remain.
• Social acceptance of disabilities is crucial for athletes' experiences.
• Media representation can significantly impact public perception of disability sports.
• Sponsorship and support from companies are vital for Paralympic athletes.
• Personal stories of athletes can inspire others with disabilities.
• Awareness and advocacy work are essential for changing societal views.
• The classification system in sports can be complex but also offers unique opportunities.
• Curiosity about disabilities should be approached with respect and understanding.
• The journey of athletes with disabilities can inspire future generations.

Sound Bites

• "I gained time in every event."
• "I wanted to show that to the world."
• "I'm worth more than an athlete."
• "I want to be a stay-at-home mom."
• "I plan to be in LA."
• "It was like a disabled utopia."
• "I have so many pins."
• "I cried when my roommate medaled."
• "The Metro was not accessible."
• "I had a great time in the city."

Chapters00:00

Snowstorm Adventures in Colorado

06:16

Reflections on the Paralympics Experience

10:43

Balancing Expectations and Reality

19:28

The Journey Ahead: Future Plans and Aspirations

25:11

Coaching Dreams and Life Beyond Swimming

30:17

Exploring the Paralympic Village Experience

32:58

Accessibility in Paris: A Personal Perspective

40:06

Social Acceptance and Recognition of Paralympians

46:51

The Impact of Media and Sponsorship on Disability Sports

54:03

Navigating Curiosity and Respect in Disability Conversations

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keywords

music education, special education, parental involvement, inclusivity, advocacy, misconceptions, music therapy, child development, songwriting, creativity, parent-teacher relationships, music education, child development, emotional regulation, musical exploration, parenting tips, music in schools, child psychology, music therapy, family bonding

summary

In this conversation, Giuliana Conti and Mark discuss the vital role of music education, particularly for children with special needs. They explore misconceptions surrounding talent in music, the importance of parental involvement, and the need for advocacy within school systems to ensure that all children have access to music education. Giuliana shares her experiences working with parents and students, emphasizing the necessity of inclusivity and the potential for every child to engage with music, regardless of their background or abilities. The conversation also highlights practical tips for parents to encourage musical exploration at home and the importance of communication between parents and educators. In this conversation, Mark and Giuliana Conti discuss the vital role of music in child development and the importance of fostering positive relationships between parents and teachers. They explore how music can aid in emotional regulation, socialization, and personal identity formation. Giuliana emphasizes the need for parents to engage with their children musically at home, providing opportunities for exploration and creativity. The discussion also highlights the significance of understanding children's musical preferences and the impact of music on their emotional well-being.

takeaways

• Music education fosters confidence and brain plasticity.
• Parents often live vicariously through their children's musical experiences.
• There is a misconception that talent is innate and not developed.
• Every child is capable of engaging with music given the opportunity.
• Music can be integrated into the home environment easily.
• Advocacy is crucial for ensuring children receive music education.
• Inclusivity in music programs benefits all students, not just those with special needs.
• Parents should inquire about their child's IEP and its implications for music education.
• Music teachers often lack awareness of students' special needs.
• Exploration and exposure to music should start early in a child's life. Parents should approach teachers with the benefit of the doubt.
• Building relationships with educators is crucial for child success.
• Music exposure in early childhood fosters social and emotional development.
• Children's musical preferences can reflect their emotional states.
• Music can serve as a tool for emotional regulation in children.
• Creating a musically rich environment at home enhances bonding.
• Parents should provide opportunities for musical exploration.
• Understanding developmental stages helps in parenting decisions.
• Encouraging children to express their musical tastes is important.
• Music technology can facilitate musical discovery and engagement.

titles

• Empowering Children Through Music
• Creating a Musical Home Environment Creating a Musical Household
• The Role of Music in Socialization

Sound Bites

• "It's a wonderful tapestry of imperfection."
• "Music is a necessity for wellbeing."
• "Don't believe everything you're told about your child."
• "Develop relationships with the teachers at your school."
• "Music is such a strong bonding agent."
• "Music can be one of those tools that they use."

Chapters

00:00

Introduction and Background

02:57

Exploring the Power of Music in Education

06:00

The Role of Parents in Music Education

09:00

Misconceptions About Special Education and Music

11:53

Advocacy for Music Education in Special Needs

14:52

The Importance of Inclusivity in Music Programs

18:01

Practical Tips for Parents to Encourage Music

21:04

Navigating School Systems and Music Education

23:51

Conclusion and Final Thoughts

33:32

Navigating Parent-Teacher Relationships

36:01

The Importance of Music in Early Development

40:31

Understanding Musical Preferences and Socialization

43:12

Music as a Tool for Emotional Regulation

51:52

Engaging Children Musically at Home

01:03:35

Fostering Musical Exploration and Identity

https://musicworkshopedu.org/

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In this episode I’m talking about a critical issue: inequality in employment for people with disabilities. Despite advancements in diversity and inclusion, millions of disabled individuals around the world still face enormous challenges when it comes to finding and maintaining employment. In today’s episode, I want to dive into why this problem persists, what’s being done about it, and how we can all contribute to creating more inclusive workplaces.

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keywords

AI, special education, learning differences, assistive technology, skill development, equity in education, communication tools, educational technology, AI, special needs, education, Goblin Tools, executive functioning, note-taking apps, communication, technology, learning support, transition to adulthood

summary

This conversation explores the intersection of AI and special education, focusing on how AI can support students with learning differences. Joan Green discusses the potential benefits and challenges of integrating AI into educational settings, emphasizing the importance of thoughtful implementation and the need for educators to adapt to new technologies. The conversation also highlights various tools available for skill development and the necessity of collaboration among educators to effectively utilize these resources. In this conversation, Mark and Joan Green discuss the integration of AI tools in education, particularly for students with special needs. They explore various applications such as Goblin Tools for task management, note-taking apps for auditory processing, and AI's role in facilitating communication. Joan emphasizes the importance of teaching students how to effectively use these technologies to enhance their learning experience and prepare for adult life. The discussion also touches on the challenges educators face and the potential of AI to alleviate some of these burdens, ultimately aiming to create a more inclusive and supportive educational environment.

takeaways

• AI has the potential to help students with learning differences significantly.
• There are concerns about skill development due to reliance on AI tools.
• Educators need to be thoughtful about the tools they use in classrooms.
• AI can assist in reading and writing through various applications.
• Collaboration among educators is essential for effective AI integration.
• Nonverbal students can benefit from augmentative and alternative communication devices.
• Equity in access to AI tools remains a challenge in education.
• Many AI tools are free and can be integrated into existing systems.
• Professional development is crucial for teachers to learn about AI tools.
• AI can bridge gaps in education if used thoughtfully. Goblin Tools is a free resource for breaking down tasks.
• AI can significantly aid executive functioning skills.
• Note-taking apps like Otter.ai are beneficial for students.
• AI can help students transition to adult life.
• Communication aids powered by AI can assist those with speech difficulties.
• Educators need to adapt their assessment methods with AI.
• AI tools can help create personalized learning materials.
• It's essential to teach students how to use AI responsibly.
• AI can help reduce the workload for special educators.
• Joan offers resources and support for educators and parents.

titles

• The Future of AI in Education
• Navigating AI in the Classroom Transforming Communication with AI
• The Role of AI in Modern Education

Sound Bites

• "AI has the potential to enormously help students."
• "There's a lot of fear that there's gonna be a loss of skill development."
• "This is something that's available to everybody."
• "This for executive functioning is phenomenally great."
• "AI can help you with reading, writing, and communication."

Chapters

00:00

Introduction to AI in Special Education

05:02

The Role of AI in Supporting Learning Differences

11:01

Tools and Applications for Skill Development

17:56

Collaboration and Professional Development in Schools

25:10

Addressing Nonverbal Communication Needs

27:52

Equity and Access to AI in Education

29:35

Introduction to Goblin Tools

30:32

Breaking Down Tasks for Special Needs

33:15

Executive Functioning and Daily Living Skills

36:06

AI in Education: Monitoring and Support

37:40

Note-Taking Apps for Students

39:30

Transitioning to Adult Life with AI

40:53

AI as a Communication Aid

45:59

AI in Special Education: Tools and Resources

54:16

The Future of AI in Education

innovativespeech.com

joan@innovativespeech.com

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keywords

disability, advocacy, accessibility, inclusion, mental health, representation, family dynamics, self-advocacy, education, awareness

summary

In this conversation, Kimberly shares her personal journey living with a disability, emphasizing the importance of advocacy, accessibility, and the need for awareness and education. She discusses her family dynamics, the role of siblings, and the challenges faced in relationships and employment. Kimberly highlights the significance of communication and connection in fostering inclusion and understanding, while also addressing the mental health aspects of living with a disability. The conversation concludes with a call to action for society to treat individuals with disabilities as equals and to create environments that support their needs.

takeaways

• Living with a disability affects every aspect of life.
• Advocacy is crucial for individuals with disabilities.
• Different does not mean bad; it just means hard.
• Parents should raise the child they have, not the one they expected.
• Accessibility goes beyond physical ramps; it includes practical considerations.
• Awareness and education lead to acceptance and inclusion.
• Children are often more accepting and curious about disabilities.
• Representation in media is vital for validation and inclusion.
• Creating inclusive environments benefits everyone, not just those with disabilities.
• Connection and communication are key to overcoming fears and misconceptions.

Sound Bites

• "Raise the child you have, not the child you thought you'd have."
• "Different means hard, but different doesn't mean bad."
• "You have to advocate for them because the world is going to be brutal."

Chapters

00:00

Introduction and Technical Glitches

02:59

Living with a Disability: Personal Journey

06:00

Siblings and Family Dynamics

08:52

The Importance of Advocacy

11:56

Accessibility: Beyond Ramps

14:52

The Role of Awareness and Education

18:02

Confronting Stares and Curiosity

20:55

Representation in Media

24:09

Future Aspirations and Advocacy Work

27:04

Mental Health and Self-Perception

29:57

Navigating Relationships and Friendships

33:01

The Power of Communication

35:57

Creating Inclusive Environments

39:09

Employment Opportunities and Challenges

42:01

The Fear of the Unknown

44:54

The Importance of Connection

47:57

Final Thoughts on Inclusion and Humanity

Email: kpy1@icloud.com

Instagram: @kim_530

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This episode is a huge milestone – it’s my 100th. Join me as I reflect on this adventure and talk about what's to come!

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In this episode I’ll be diving into a key component of inclusive education that’s transforming classrooms: Universal Design for Learning, or UDL, and how flexible learning spaces are making education more accessible for all students. Whether you're a teacher, administrator, or parent, you'll find valuable insights into how these strategies can foster a more inclusive and engaging learning environment for every child.

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summary

Clarissa discusses her experience as a parent of a child with ARID1B-related disorder and the challenges they face. She emphasizes the importance of routine and structure for children with special needs and the need for parents to take care of themselves. Clarissa also talks about the Foundation for ARID1B Research (FAR) and their efforts to raise money for research into potential treatments. She highlights the diversity of experiences within the special needs community and the importance of supporting and connecting with other parents. Clarissa shares her son's communication challenges and the various methods they have tried, including Proloquo2Go and picture exchange communication systems. In this conversation, Clarissa discusses her experiences as a parent of a child with ARID1B-related disorder and autism. She shares her journey of seeking a diagnosis, finding support, and navigating the challenges of raising a child with special needs. Clarissa emphasizes the importance of patience, acceptance, and finding balance as a parent. She also highlights the need for more awareness and resources for children with neurodevelopmental disorders. The conversation touches on topics such as communication methods, behavioral issues, and the differences in support systems between the UK and the US.

keywords

ARID1B-related disorder, special needs, routine, self-care, Foundation for ARID1B Research, communication challenges, Proloquo2Go, picture exchange communication system, ARID1B-related disorder, autism, diagnosis, support, challenges, patience, acceptance, balance, awareness, resources, communication methods, behavioral issues, UK, US

takeaways

• Routine and structure are essential for children with special needs.
• Parents of children with special needs should prioritize self-care.
• Connecting with other parents in the special needs community can provide valuable support and resources.
• Communication challenges can be addressed through various methods, such as assistive communication devices and picture exchange systems. Seeking a diagnosis opens the way for therapies and support for children with special needs.
• Patience and acceptance are key in raising a child with neurodevelopmental disorders.
• Finding balance between work life and home life is important for parents.
• Communication methods like picture pecs and visual aids can help improve understanding and reduce frustration.
• Behavioral issues can be managed through repetition, clear explanation, and redirection.
• There is a need for more awareness and resources for children with neurodevelopmental disorders.
• The support systems for special needs children differ between the UK and the US.

summary

Clarissa discusses her experience as a parent of a child with ARID1B-related disorder and the challenges they face. She emphasizes the importance of routine and structure for children with special needs and the need for parents to take care of themselves. Clarissa also talks about the Foundation for ARID1B Research (FAR) and their efforts to raise money for research into potential treatments. She highlights the diversity of experiences within the special needs community and the importance of supporting and connecting with other parents. Clarissa shares her son's communication challenges and the various methods they have tried, including Proloquo2Go and picture exchange communication systems. In this conversation, Clarissa discusses her experiences as a parent of a child with ARID1B-related disorder and autism. She shares her journey of seeking a diagnosis, finding support, and navigating the challenges of raising a child with special needs. Clarissa emphasizes the importance of patience, acceptance, and finding balance as a parent. She also highlights the need for more awareness and resources for children with neurodevelopmental disorders. The conversation touches on topics such as communication methods, behavioral issues, and the differences in support systems between the UK and the US.

keywords

ARID1B-related disorder, special needs, routine, self-care, Foundation for ARID1B Research, communication challenges, Proloquo2Go, picture exchange communication system, ARID1B-related disorder, autism, diagnosis, support, challenges, patience, acceptance, balance, awareness, resources, communication methods, behavioral issues, UK, US

takeaways

• Routine and structure are essential for children with special needs.
• Parents of children with special needs should prioritize self-care.
• Connecting with other parents in the special needs community can provide valuable support and resources.
• Communication challenges can be addressed through various methods, such as assistive communication devices and picture exchange systems. Seeking a diagnosis opens the way for therapies and support for children with special needs.
• Patience and acceptance are key in raising a child with neurodevelopmental disorders.
• Finding balance between work life and home life is important for parents.
• Communication methods like picture pecs and visual aids can help improve understanding and reduce frustration.
• Behavioral issues can be managed through repetition, clear explanation, and redirection.
• There is a need for more awareness and resources for children with neurodevelopmental disorders.
• The support systems for special needs children differ between the UK and the US.

https://www.arid1b.org/

Instagram: clarissawardcnn

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This episode is part 2 of my two part interview with Lauren Enders Gonzales, MA, CCC-SLP. This time we will be diving deeper into AAC; how to use it, what options are available, apps and more.

Lauren is a licensed and certified speech-language pathologist (SLP) with 27 years of experience. Working as an SLP and Assistive Technology Consultant in K-12 school programs, she has developed expertise in Assistive Technology and Augmentative and Alternative Communication (AAC) with a focus on creating rich, meaningful, and engaging learning experiences. Lauren also teaches graduate students about Assistive Technology and AAC in her role as adjunct professor at Delaware Valley University in Doylestown, PA.

Contact Laura at: lauren@engagingaac.com, https://www.linkedin.com/in/lauren-s-enders-gonzales-ma-ccc-slp-3a74429/, lasenders@yahoo.com

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In this episode I’m speaking with Dr. Giuliana Conti. Giuliana is Director of Music Workshop's Education & Equity.

Music Workshop is a nonprofit organization that creates high-quality, culturally responsive music programming for teachers to use in their classrooms and professional development to further their own learning.

Dr. Conti reveals her personal childhood challenges that brought her to the significance of healing and guiding growth through music listening and emersion. She explains Music Workshop's mission and how it's curriculum assists both student and teacher and how parents can benefit as well.

https://musicworkshopedu.org/

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*TRIGGER WARNING: This episode can be raw and descriptive at times. For anyone who might be upset by conversations about the specifics of breast surgery and reconstruction I just want you to be aware. Kayla expresses herself in a very frank, positive and humorous way so hopefully you will be able to receive her story as a celebration of the human spirit under very difficult conditions and feel empowered.

In this episode I’ll be speaking to Kayla Connick. Kayla is a Music Therapist who I had the pleasure of interviewing for my 11th episode. In recent years, Kayla discovered that she carried the BRCA 1 gene mutation that can lead to breast, ovarian and other cancers. Today Kayla generously, and bravely, shares her experience from discovery to pre and post prophylactic, or risk reducing surgery to save her life. And while her battle continues, she agreed to this interview in hopes that her story might help others.

kconnick@makingwavesmusictherapy.com

https://www.makingwavesmusictherapy.com

Instagram: kaychronn, makingwavesmt

Facebook: Kayla Connick

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In this episode I’ll be taking a look at the impressive level of disability awareness and the efforts of the Paris Olympic Committee to improve accessibility at this year’s games.

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In this episode I’ll be speaking about the rise of inclusion, the importance of its role in educating all children and my reflections on working in a private, state-supported school intended to meet the needs of the students with various disabilities.

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In this episode I’ll be speaking with Para-Olympian Swimmer, Taylor Winnett.

Taylor was America’s most decorated athlete at the 2023 Parapan American Games after medaling in 6 individual and 1 relay events in Paralympic Swimming, the Parapan American Games Record Holder in the Women’s S10 100m Butterfly, the American Record holder in the Women’s S10 50m Backstroke, and a National Team Member for U.S. Paralympics Swimming. She began swimming at age 4 and after acquiring a spinal injury and diagnosis of Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome she began paraswimming in 2019 as a S10/SM10/SB9. She is a Paris Paralympian and competes in 100m Butterfly, 100m Backstroke, and 400m Freestyle. She is the middle child with two sisters and wife to Jeric Winnett.

I am passionate about sharing life as a Christian woman and professional athlete as well as advocating for disability rights, mental health awareness, ethical adoption, and sobriety from alcohol. I am open to appearing for engagements on a donation basis.

Instagram: taylor_winnett

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In this episode I’ll be speaking about AAC (Alternative and Augmentative Communication) with Lauren Enders Gonzales, MA, CCC-SLP. Lauren is a licensed and certified speech-language pathologist (SLP) with 27 years of experience. Working as an SLP and Assistive Technology Consultant in K-12 school programs, she has developed expertise in Assistive Technology and Augmentative and Alternative Communication (AAC) with a focus on creating rich, meaningful, and engaging learning experiences. Lauren also teaches graduate students about Assistive Technology and AAC in her role as adjunct professor at Delaware Valley University in Doylestown, PA.

Known for her user-friendly online and print resources, eye-catching visual supports, and interactive presentation style, Lauren is a sought-after speaker at local, national, and international conferences and events. Lauren enjoys collaborating with other professionals, AAC companies, and app developers to create more accessible and customizable AAC systems and evidence-based clinical and educational practices.

Sign up to receive resources from Laura: https://www.theleap.co/creator/engagingaacslp/

Contact Laura at: lauren@engagingaac.com

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In this episode I’ll be speaking about sensory friendly shopping, how to find establishments near you and what you can do to influence businesses to become sensory friendly.

https://specialedrising.com/

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In this episode I’ll be speaking with Andrew Arboe. Andrew is a self-advocate with a professional work background consisting of public school, private school, nonprofits, and online programs. Andrew is also certified through the International Board of Credentialing and Continuing Education Standards’ Autism Certification since August 14th, 2023. His current workplaces include FOCUS Center for Autism, Anderson Center for Autism, and the Children Hospital of Philadelphia. In addition, Andrew is a public speaker known for presenting throughout New England about autism and his personal experiences. Andrew graduated from Manchester Community College with an associate degree as a Disability Specialist and is attending Charter Oak State College to obtain his bachelor’s degree in psychology by December 2024.

https://andrewarboe.weebly.com/

https://www.linkedin.com/in/andrew-arboe/

Instagram: andrewarboespeaker5

https://www.facebook.com/profile.php?id=100009110943288

Life Animated: https://www.youtube.com/watch?time_continue=2910&v=PlyfKk8_HxA

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In this episode I’ll be speaking about recent developments in assistive technology. What is out there now and promising tech for the future.

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In this episode I’m speaking about the recent Supreme Court decision to overturn the bump stock ban. I will reflect on my time as a teacher dealing with lockdowns and the auspice of being a victim of a mass school shooting and my feelings on what this decision by the court means for us as a nation.

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In this episode I’ll be speaking with Elysia Everett, Founder and CEO of Friendly Like Me, Inc. She and co-founder, Dave Jensen, created Friendly Like Me to improve accessibility in public places and to make accessibility information easier to find—so more people can take part. FLM connects individuals with “friendly” places that can accommodate the unique needs of people living with non-average bodies in a built-for-average world. Friendly Like Me is the first-of-its-kind mobile app and web platform helping users find accessible options for traveling, dining, entertainment, self-care/wellness, and healthcare providers that meet their unique access needs.

Elysia is a technologist and activist with over 25 years of leadership in business and information technology. She has experience in all areas of IT and Leadership with special interests in teams, coalitions, strategic execution, communications, and cultural transformation. Importantly, Elysia has lived with obesity for most of her life—thereby experiencing a full spectrum of weight bias and stigma, difficulty gaining access to proper healthcare, and discrimination. She is currently focused on building Friendly Like Me into a company that successfully and substantially improves the experience of “joining in” for people living at higher weights and people with disabilities.

https://www.friendlylikeme.com/

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In this episode I’ll be speaking with Elizabeth Webster. Elizabeth is a fine artist, licensed professional counselor and registered art therapist living in Michigan. She earned a bachelor's in fine art at Alma College and earned a dual Masters of Arts in Clinical Counseling with a specialization in Art Therapy from Wayne State University. She currently provides therapy, clinical supervision, consultation, advocacy work, outreach presentations and art therapy workshops in the metro Detroit area and virtually. She is currently most passionate about supporting those with "neurodivergent" diagnoses, something she identifies having. Elizabeth has always had interest in all things creative and helping others in different capacities, so after a lifetime being called a highly sensitive person, she has decided to focus on using this quality and creativity as her niche to help others that may experience life in this way.

Elizabeth's contact info:

Elizabeth Webster, MA, LPC, ATR, BFA - LinkedIn

ms.liz_lpc_atr - instagram

elizabeth.webster.lpc@gmail.com - email

wildflowercreativecare.org - coming soon

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In this episode I’ll be speaking with Fred Hobbs, Director of Public Relations for Imagine, Colorado for over 18 years. Imagine! was established in 1963 and provides services designed to incorporate people with developmental, cognitive, and physical challenges into the fabric of their communities. Services include educational and therapeutic services, job training and placement, recreation and leisure activities, opportunities for community living, behavioral health services, technology solutions, and support for families.

After our discussion we will turn our attention specifically to the music program and feature performances from their band, Imagine!Nation, followed by an interview with some of the members of the band. This is a delightful and inspiring expose of an organization that shines its light on disabled individuals with so much to offer and treats them with the same respect and appreciation that we all deserve no matter who we are.

Listen to the bands performances at: https://www.youtube.com/watch?v=hBgvkUBB-LU

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The BrainWorx Method has helped thousands of adults and children overcome the challenges of ADHD, autism, sensory disorder and much more, naturally, for over 20 years; reducing anxiety, and fostering focus, learning and joy.

In this episode I’ll be speaking with Alma Galvan, founder of Brainworx, helping children, and even adults, overcome the effects of ADD, ADHD, and other conditions that can be caused by an underdeveloped brain using physical movements and sensory experiences. In 1996, both of Alma's children were diagnosed with severe autism, ADHD, Sensory Disorder, and more. It took her 7 years to discover some powerful new techniques that were scientifically proven to promote brain development. They literally changed her life! When she started using these techniques, her children's challenges improved more in just a few months than in all the 7 years combined! In fact, the changes were so dramatic that other parents noticed and started asking her to work with their children. That's how BrainWorx was born. For the past 20 years she has worked with thousands of families to help their children overcome anxiety, overwhelm, distractibility, foggy thinking, procrastination and much more.

Find Alma's free workshop at: =https://brainworxinc.com

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In this episode I’ll define parent training and how it can be beneficial to you, as well as offer 5 tips from parent training to help you navigate the world of exceptional needs.

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In this episode I explore fitness and nutrition in disabled children and adults and the high incidence of obesity. What can be done to turn the tide on this epidemic?

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In this episode I’m speaking with Christine Astaritais the owner and founder of Breakthrough Intensive PT, an organization focused on helping kids and adults with disabilities, as well as their families, to improve the quality of their lives. Christine is also the founder of The Run To Breakthrough Inc., a 501(c)3 dedicated to inclusive racing, community events, and providing necessary resources to those in need. As an endurance athlete, she uses her mission at Breakthrough to fuel purpose behind her ultra runs and raise awareness that limits are only where we place them. Christine is the author of Breaking Through Special Needs and children’s book, Chance the Therapy Dog: Goes To Work promoting inclusion and resources for those in need.

https://www.breakthroughptli.com

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In this episode I speak with Dr. Flo Rosof. Dr. Rosof has a PhD in Counseling Psychology specializing in philosophical psychology and identifies as a Spiritual Educator. She completed her doctorate delving into authentic relating and how it connects to relationship fulfillment and ran the first Parents Anonymous Group on Long Island, NY. The Life Development Center uses a philosophical approach to psychological illness.

http://www.lifedevelopmentcenter.com

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April Rehrig is the founder of Rise Educational Advocacy and Consulting, LLC. Rise provides parent advocacy and IEP coaching, 504 Guides, and Do It Yourself IEP Kits. Follow April on Instagram at riseedadvocacy for weekly IEP tips and stories from the heart.

https://www.riseeducationaladvocacy.com/about?gad_source=1&gclid=Cj0KCQjwqdqvBhCPARIsANrmZhNUuP9l2HjF65tj6ZZ8_ObecwiMTnZT5nlVGixw3_56kFBRO-dZKnkaAvPWEALw_wcB

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In this episode I’m speaking about managing physical outbursts or meltdowns in your neurodivergent child.

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In this episode I’m speaking about the difference between a 504 plan and an IEP. And, the steps in the process of requesting an evaluation.

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In this episode I’m speaking with Dr. Pamela Ellis. The Education DoctorⓇ:— Pamela Ellis, MBA, PhD, partners with busy parents to help their teen find a college that feels like home without overpaying. Dr. Pamela speaks with me about how she serves teens with disabilities and their parents to find the right college for them.

She founded Compass College Advisory in 2010 and has served over 1,000 families. 95% of their students have been admitted to their top-choice colleges and the average scholarship is $75,000. Dr. Pamela is a highly sought-after speaker and author of the best-selling book What to Know Before They Go: College Edition. Dr. Pamela graduated from Stanford University and the Tuck School of Business at Dartmouth College, and she earned a doctorate from the Stanford University School of Education.

You can reach Dr. Pamela via her website: https://compasscollegeadvisory.com

And on LinkedIn: Pamela Ellis, MBA, PhD

*There is a degree of poor audio in this episode. The entire interview is able to be heard and enjoyed but there is some background static at times. I am working to fix this. I thank you for your patience.

MI

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Jyoti Jo Manuel is recognised by many as one of the world's leading authorities

on therapeutic yoga for children.

In 2002 Jyoti founded Special Yoga, a global organization established to provide and develop sustainable and accessible yoga programmes for children with special and additional needs.

As founder, lead and spiritual head of Special Yoga she has trained senior practitioners to support the effective and impactful delivery of Special Yoga into local councils, academies and individual special schools and specialist provisions to provide training in therapeutic yoga for children with special needs.

She is a published author with The Spiritual Teachings of Yoga, and She is a contributor to the report on INTEGRATIVE PEDIATRICS at

the Hospital Sant Joan de Déu (Barcelona,Spain). She also contributed a chapter in the yoga research book by Dr ShirleyTelles. https:// www.igi-global.com/book/handbook-resear

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In this episode I’ll be speaking with Tom Stevens, CEO and Co-founder of Tombot, Inc.

Tom and his team of passionate and talented professionals are dedicated to creating robotic emotional support animals for seniors with dementia and others with serious mental health adversities. Their goal is to provide a realistic and affordable pet for those who cannot safely or practically care for live animals, improving the quality of life and well-being of users and their caregivers.

Tom is passionate about leveraging technology and science to solve meaningful problems and make a positive difference in the world.

Enjoy this wonderful interview with Tom!

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In this episode I’ll be presenting some resource links and information to support you in parenting your child with exceptional needs.

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In this episode I’ll be presenting some evidence based strategies for you to use in your home to help turn your child’s negative behaviors into positive ones.

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Periodically I plan to present my impressions, observations and insights into movies that address disabilities, with takes on anything from exploring their themes, sharing my perspective on how a disability is being presented, lessons I’ve taken, commentary on the times they were made, investigating their potential value in helping you on your journey and more.

I feel that cinema has the potential to be a great mirror for the past and present. It is here that subjects can be explored and exposed and where we can examine, agree, disagree and challenge our perceptions. It is in film where the opportunity is presented for shedding light into areas that are less known, taboo, misunderstood or ignored. It is here where we can explore the vast world of disabilities and use this platform to shape or reshape our thinking on how we view others with disabilities and how those with disabilities experience life and show us their superpowers.

Leading off this series of discussions I will be presenting a film entitled, Dominick and Eugene.

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In this episode I’m proud to bring you my interview with two authors, the mother and son team behind the children’s book, Robby the Dyslexic Taxi and the Airport Adventure, Lynn and Jonathan Greenberg.

Lynn Greenberg is the happiest wife, mom, and grandma. A very retired attorney who loves to cook, exercise, and read, she has seen how positivity with feelings and differences can allow children to grow into happy, productive adults.

Born with dyslexia, Jonathan Greenberg could not read and write like many other children his age. So, instead of giving in to frustration, Jonathan used his struggle as a catalyst for creativity, expressing his ideas through art. Having overcome his learning difficulty, Jonathan has fallen in love with reading. Robby the Dyslexic Taxi And The Airport Adventure exemplify Jonathan’s passion for writing and illustration.

Together with Lynn, they are already thinking of other stories featuring neurodiverse characters that complement this book.

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In this episode I’m delighted to be speaking with Jani Tillery about racial inequities in Special Education.

Jani holds a B.A. in Spanish from North Carolina Central University, and a J.D. from Western Michigan University-Cooley Law School. She is a member of the District of Columbia Bar and Maryland Bar.

Ms. Tillery has spent the majority of her legal career practicing in special education law. Prior to joining the law firm of Michael J. Eig and Associates, she worked as a Supervising Attorney for D.C.’s Children’s Law Center representing low-income families in the areas of special education, housing and healthcare. Ms. Tillery has also trained and mentored pro bono attorneys in special education cases. She has previously served as the President of Special Needs Excellence for Underserved Students Advisory Board (SEEUS) and the co-chairperson for the Special Education Attorneys Roundtable (SEAR) in Washington, D.C.

Jani was a presenter at the WEG Diamonds in the Rough Conference this past Oct. where she examined systemic inequalities in special education and discussed strategies to address these disparities, ensuring that all students with special needs have equal access to quality education and support. and if you're interested you can still access the presentations at www.wegadvocacy.com/diamonds-pricing.

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In this episode I’m excited to be speaking with Wendy Taylor, Executive Director of Learning Essentials, a company dedicated to providing tutoring, academic coaching, educational therapy and support services to help students, families and educators in the greater DC-metro area—and beyond!

Wendy Taylor, M.Ed, ET/P, is a highly qualified and dedicated professional in Special Education. She holds certifications as an Educational Therapist, Orton-Gillingham practitioner, Educational Diagnostician, and IEP Coach, showcasing her commitment to improving the learning experiences of students with diverse needs. Wendy is also the host of the Special Ed Strategist® Podcast, where she empowers parents and professionals to navigate the complex world of special education. With extensive experience working with students of various ages and abilities, Wendy has served as a faculty member at Saint Petersburg College, supervised pre-service teachers, and worked as a teacher within the Montgomery County Public School system. Her academic background includes a Bachelor of Science in Social Science and Secondary Education from Frostburg State University and a Master of Education in Special Education from George Mason University. She is a trusted advocate and a valuable resource for anyone seeking excellence in special education. And trust me, she knows her stuff!

Wendy was a presenter at the WEG Diamonds in the Rough Conference this past Oct. and if you're interested you can still access the presentations at www.wegadvocacy.com/diamonds-pricing. I’ll add the link to my resource page.

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In this episode I’ll be speaking about the token economy reward system. I’ll examine and share the ins and outs of it and offer some examples that you can follow to help you succeed in extinguishing a negative behavior and developing a positive replacement.

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In this episode I’ll be speaking about perseverations. What are they? Why do they occur? And how you can manage them through acceptance and some helpful strategies.

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In this episode I’m speaking about lessons I learned during my time caring for and experiencing my mother’s journey through dementia and Alzheimers.

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In this episode I’ll be speaking with two presenters for the upcoming Weinfeld Education Group’s Diamonds in the Rough virtual conference and speaker series, Joan Green and Keynote speaker Adam Pletter, .

Diamonds in the Rough isbeing held this year on Oct 20th and 21st, is WEG’s annual conference in the Metro Washington D.C. and Baltimore area for families of students with special learning needs in pre-K–12 and the educators and professionals who work with them.

This event assembles national and regional experts to present valuable research, information, and strategies to help children with a variety of learning challenges to reach their potential.

The 2023 theme is Illuminating a Brighter Future for All Students.

For more information and to register for this important event, go to, https://www.wegdiamonds.com/

Joan Green has provided forward-thinking speech therapy services for the past 30+ years. She received her undergraduate and graduate education at Northwestern University in Evanston, IL. After spending time working for others in hospitals, rehabilitation centers, and home care, she formed InnovativeSpeech Therapy in the Washington, DC, area in 1992. She has an eye out for affordable, cutting-edge technologies to help others thrive in life and offer families and colleagues uniquely effective online tech

advising and coaching services to streamline the selection and implementation of devices, apps, features, and strategies to promote learning and well-being.

Dr. Adam Pletter is an internationally recognized Child/Adolescent Psychologist and Digital ParentingExpert.

He received his doctoral degree from George Washington University in 2001 and specializes in the treatment of children, adolescents, and young adults in his Bethesda, Maryland, office.

As a licensed clinical psychologist working with families at the outset of the early 2000s digital culture shift, Dr. Pletter developed a parenting approach, combining behavior modification theory with parental control systems to better support mental health and child development.

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In this episode I’d like to briefly speak to parents about never giving up on your child. Don’t be quick to believe that the limitations and behaviors you witness at a young age are permanent or are resistant to the potential for improvement on a functional, more independent and more manageable level enabling them to become a productive (to varying degrees) member of your family and society.

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Diana Pastora Carson has been an elementary educator for over 30 years, a college educator, consultant and coach on diversity as it relates to disability, and is the author of several articles and books including Beyond Awareness: Bringing Disability into Diversity Work in K-12 Schools & Communities, and the children’s book, Ed Roberts: Champion of Disability Rights. She served two terms on the Board of Directors of Disability Rights California and currently serves as a board member of Disability Voices United. Diana credits her passion for this work to her brother, Joaquin, who endured years of segregated schooling and subsequent institutionalization. And she takes the most pride in knowing that after many years of fighting for his release, Joaquin now lives a life of self-determination, inclusion and quality, in the community, as her next-door neighbor. You can check out her website at:

https://www.dianapastoracarson.com.

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"Address your child's unique dyslexic challenges confidently. Secure a complimentary 90-minute strategy session with us, where we'll adapt our proven webinar techniques to their distinct learning needs. It's time to fully understand, adapt, and together conquer dyslexia. Enhance their potential and build a brighter future. Schedule your focused individual consultation today: https://calendly.com/russellll198/individual-consultation."

Russell Van Brocklen, the visionary behind Dyslexia Classes, embarked on his pioneering research journey with the backing of the New York State Senate. Initiated in 2001, this groundbreaking project was conceived following in-depth deliberations with both the New York State Education Department and The Research Foundation of The State University of New York. The study culminated in a distinguished presentation at the International Dyslexia Association's New York City Branch in 2006.

Through Van Brocklen's innovative techniques, the project achieved a significant milestone: it substantially elevated the writing aptitude of ambitious and intellectually gifted dyslexic high school students. Their skills, previously at a middle school level, soared to match the writing prowess of an average graduate student, as validated by the Graduate Record Exam’s Analytical Writing Assessment. Testament to the program's success, its graduates smoothly transitioned to college and achieved their degrees without the need for any special accommodations.

Van Brocklen consistently shared his insights at the "Everyone Reading Conference", presenting annually from 2014 to 2023. Additionally, he has been a prominent speaker at events hosted by the LDA of New Jersey, with five appearances to his credit. Between 2020 and 2022, he undertook the significant role of a reading program reviewer at the International Dyslexia Association Annual Conference.

Further solidifying his reputation as an industry leader, Van Brocklen trained over 80 educational diagnosticians at The New Jersey Association of Learning Consultants Fall Symposium 2022, addressing the theme, "Reading and Writing: The Casualties of the Pandemic".

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This episode addresses the phenomenon of using robotic animals as “comfort or companion pets” for dementia patients as well as individuals on the neurodiverse spectrum.

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This episode is a midsummer report sparked by my experiences back working in homes with reminders of some tips/strategies and news for you to help you help your children and families.

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This episode addresses that often forgotten segment of the exceptional needs community, the siblings of disabled individuals.  I address the challenges and present some options to help you help your child manage the ups and downs of being the brother or sister of a sibling with a disability . 

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Today’s episode addresses an uncomfortable reality that has been going on for a long time and one that I was only recently made aware of.  It is the practice of school’s weaponizing child protective services and other forms of retaliation against parents for advocating for their special education child.  This was a stunning revelation for me and so disturbing that I feel it is important to put wind behind it as families are being greatly affected and even torn apart.

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Today’s episode is about the significance of routines and PRESENTS 5 STEPS TO CREATING AN EFFECTIVE ROUTINE FOR YOUR NEURODIVERSE CHILD and how to handle change.   Routines and schedules can be keys to your child feeling comfortable in their day by knowing what to expect and what is expected of them.  Following a consistent routine can be a game changer in home and at school. And helping your child to develop coping skills can enable them to manage unexpected change.

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In this episode I have the distinct pleasure of interviewing Olivier Bernier, Director of a new documentary entitled; FORGET ME NOT.  In the  film as 3-year-old Emilio prepares to start school, his family finds itself embroiled in a challenge all too common for children with disabilities – to secure the right to an inclusive education.

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This episode is a little different as I am opening the conversation on matters that are having an impact on our children and the nation as a whole; this episode is an examination of our moral compass in America.  How are the choices being made by our leaders and the citizenry impacting our children? Do we have the rights that we thought we had and are we foolish in our thinking that democracy can’t be lost?

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In today’s episode I have the pleasure of speaking with Gretchen Levine, Transition Specialist with the Weinfeld Education Group (You can find my interview with Rich Weinfeld, Director of the Weinfeld Group in episode 40).  Ms. Levine assists students to plan and obtain services for transition from high school to post secondary life, both as a transition teacher with Katherine Thomas School and through her work with Eric A. Levine and Associates.

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Today’s episode is about the benefits of an interactive mural in a sensory space.  This is a short podcast but one I feel might be a game changer when considered as a motivating tool for managing anxiety, stress, meltdowns while encouraging growth in communication. 

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Illuminos is an academic coaching and tutoring company Evan co-founded with his cousin Wendy in 2016 after a decade of success growing the sister company he founded in Texas in 2006 called Staying Ahead of the Game LLC.  The focus of his award-winning and research-driven program is helping kids build the executive functioning skills they need to be successful in the classroom and beyond. The core components include helping students with organization, time management, and influencing the perceptions of others.

As a national speaker, Evan particularly enjoys presenting to parents, counselors, and educators all over the country about the power of executive functioning skills and the most useful ways to assist students of all ages in getting the most out of school and achieving their goals.

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In this episode I have the distinct honor of interviewing the two impressive women behind Raising Orchid Kids.  Jen Dryer, MA is a parent coach and education consultant who supports families and teachers of neurodivergent children. Jen has more than 20 years of experience working with children, families and teachers, in her work in both NYC and DC as a public school teacher, staff developer, and parent coach. She has two neurodivergent children and Gabriele Nicolet, MA, CCC-SLP (Certificate of Clinical Competence in Speech Language Pathology) is a speech therapist and parent coach with more than 20 years of experience working with families of young children. She founded and currently runs SpeechKids, a private, holistic speech therapy and parent mentoring practice.  Together they provide Parent Coaching and Consultation for Parents of Highly Sensitive Children.  We’ll learn about their work, the classes and webinars they offer and their special approach to working with parents just like you.

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Today’s episode is about the IEP.  Part personal perspective and experience and part sharing resources to help you navigate the process.

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Today I’m going to present a tip for dealing with how to manage self criticism and self judgment that can snowball into periods in which you may feel hopeless, lost or ineffective.  The idea of which is based on living in reality vs what we imagine or convince ourselves to be true.

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Today I’m talking about the how children learn the skills of turn taking and sharing.  These can be two very challenging areas for toddlers and preschoolers to grasp and accept.  I’ll discuss some strategies that can help you over the hump in shaping a stellar social skills super star!

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Today I’d like to speak to the language challenge inherent to parenting; negative vs positive word choices and there impact on your child and then explore the ability of parents of disabled kids to say “no,”  not only to their children but to demands or asks that overextend and tax them in life in and apart from their family.  Can a parent be comfortable saying no when their gut tells them it is the right, preferred or healthier choice?

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Today I’d like to speak to an experience I had recently that has proven to me the value of music as a healer and as a life force for people suffering brain disorders that can impact communication, behavior and social engagement.

Music Therapist Kayla Connick believes, "Music has always been and will always be with us; always waiting and inviting us to engage with it, to heal us, to help us make sense of and find meaning in this life." Check out my interview with this talented woman in episode 11 from 2022.

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In this episode, I’ll be speaking about ways to approach dealing with real or perceived developmental delays in your toddlers and early learners.  This is a stressful time for parents and I feel it’s good to take a step back, remind ourselves to breathe and take on the “what ifs. “  Not easy.

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Today I’m speaking with Molly Prep, author of, “Cancer Angst, “ which follows Molly’s coming of age after a childhood shaped by sickness and  spans the period from her second-grade diagnosis to her senior year of high school.  Molly Prep is a reader, writer, fitness instructor, and life enthusiast. Her Instagram is @mollyprepwrites.

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Today I’m speaking about discrimination both historic and present day.  Is there a realistic alternative to prejudice and unjust treatment of groups of people based on ethnicity, religion or a personal belief system, sex or disability?  When we are considering differences that do not seek to harm others, is it possible to allow everyone to simply be who they are?

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I’ll be speaking with Rich Weinfeld, director of the Weinfeld Education Group, LLC, a group of over 15 special educational consultants, located in Maryland, Washington DC, and Virginia, and now providing virtual services throughout the United States. Rich founded WEG in 2006 after completing a 30 year career in Montgomery County (MD) Public Schools.

For more on Rich go to specialedrising.com's resource page.

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Today I’ll be speaking about dealing with trauma as a caregiver, sharing some stories from my teaching days and touching upon trauma informed care.  Parents, guardians, teachers and other healthcare professionals have to deal with children who have experienced traumatic events in their lives.  How can you best approach guiding them through the fallout?

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Today I’ll be speaking about social stories.  What are they? How do we use them? And, can they be effective?

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Today I’ll be ringing in the new year with a show dedicated to 3 new year's resolutions that I think will help to make the coming year more fulfilling and productive for your child and your family.

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Today is a short episode where I want to speak from the heart about selflessness and its lessons for us as individuals, as partners, as parents and as caregivers.  It’s a message I want to leave you with as we approach the new year.  

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Today I’ll be speaking about smoothies as a healthy option to add into your child/teen’s day when you’re having trouble getting them to eat nutritious food.  And then I’m going to make a smoothie for you so you can see how fun and easy it is to turn the struggles of eating healthy into a party for the palette!

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Today I’ll be speaking with Meredith Gramlich. Meredith is a Senior Faculty Specialist at the Center for Transition and Career Innovation at University of Maryland, College Park. With over 25 years of experience improving post-school outcomes and community engagement for individuals with disabilities, she currently serves as the Coordinator for the University of Maryland’s flagship inclusive higher education program for students with intellectual disabilities, TerpsEXCEED, which stands for: Experiencing College for Education and Employment Discovery

Ms. Gramlich has extensive experience promoting business-education partnerships, work-based learning opportunities, customized employment solutions, and model transition services. She has over 25 years of experience with systems change demonstration projects focused on improving post-school outcomes and community engagement for individuals with disabilities through use of evidence-based practices, with an emphasis on competitive integrated employment, career pathways, work-based learning, financial empowerment, and performance management. She has provided lead technical assistance and training for model demonstration projects including Way2Work Maryland, Maryland PROMISE, Maryland Customized Employment Partnership, the Maryland Transition Initiative, and Bridges... from School to Work. She taught in Montgomery County Maryland Public Schools’ Alternative Programs, where she established the Career Program. Ms. Gramlich began her career promoting creative strategies for independence with her sister.

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Today I’ll be talking about behavior contracts;  a brief explanation of what they are, what goes into making one and some evidence to support their effectiveness.

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Today is my Thanksgiving episode so I’ll be speaking to things I’m thankful for and things I hope we can all recognize and appreciate when it comes to our children, students and siblings at this reflective time of year.  And as an added surprise I take us inside my kitchen where you’ll hear me instruct you on a simple oatmeal cookie recipe I think you and your kids will enjoy making together and serving for the holiday.

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Sheila is a certified health and wellness coach for overwhelmed parents who feel confused about their child's needs and frustrated by their child's behavior. She offers personalized 1:1 sessions to help parents evaluate the current circumstances in their home life and determine how they'd like them to be improved. She then works with them to create the solutions that use the strengths and intuition they already have to build a better understanding of themselves and their child to create a roadmap for a more peaceful experience in parenting.

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Today I’ll be speaking on the subject of neurotypical and non-disabled children volunteering to help neurodiverse children and the benefits to both people involved in their journey together.

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Today I’ll be speaking on the subject of neurotypical and non-disabled children volunteering to help neurodiverse children and the benefits to both people involved in their journey together.

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Today I’ll be speaking with Nakayla Von Raeder of The Slumber Academy. Nakayla is a Certified Pediatric Sleep Consultant & Neurodivergent Sleep Specialist and the founder of The Slumber Academy which specializes in drawing out root issues that may be interfering with your child's sleep and well-being. 

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*Fair Warning: This episode addresses something that happened in Mississippi earlier this month that left me heartbroken.  The account of the incident can be upsetting but If I can talk about it and use it as a motivator to inform every parent or guardian of a young child of their rights and the laws for vetting as well as some realities of the state of child care hiring post pandemic it might be of value.  This is an episode for all parents. 

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*Fair Warning: This episode addresses something that happened in Mississippi earlier this month that left me heartbroken.  The account of the incident can be upsetting but If I can talk about it and use it as a motivator to inform every parent or guardian of a young child of their rights and the laws for vetting as well as some realities of the state of child care hiring post pandemic it might be of value.  This is an episode for all parents. 

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Today I want to speak to the dads.  I’ll be exploring what I see in terms of a father’s involvement in an exceptional needs child’s life;  offering some research findings, some personal observations and some encouragement.   Is it a myth that mothers are the one’s bearing the heavier responsibility of raising their disabled child? And if it is, then why is this the perception?

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Today I want to speak to the dads.  I’ll be exploring what I see in terms of a father’s involvement in an exceptional needs child’s life;  offering some research findings, some personal observations and some encouragement.   Is it a myth that mothers are the one’s bearing the heavier responsibility of raising their disabled child? And if it is, then why is this the perception?

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Today’s podcast is an interview with an exceptional woman who saw a niche not being addressed for children with disabilities and is conquering it one city and one community at a time. Suzie Clinchy is the Founder and Executive Director of Fast Feet NYC. Suzie launched Fast Feet NYC in 2018, taking a leap of faith to follow her passion for working with adaptive athletes, equality in athletics, physical wellness, and inclusion in sports.

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Today’s podcast is an interview with an exceptional woman who saw a niche not being addressed for children with disabilities and is conquering it one city and one community at a time. Suzie Clinchy is the Founder and Executive Director of Fast Feet NYC. Suzie launched Fast Feet NYC in 2018, taking a leap of faith to follow her passion for working with adaptive athletes, equality in athletics, physical wellness, and inclusion in sports.

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Today’s podcast is a brief one and builds off of last week’s “strong” theme.   I’ll be focusing on the idea of appreciating and maximizing our natural physical and mental capabilities when we meet with challenges that take extra effort.  And this goes for everyone, non-disabled and disabled. 

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Today I’ll be exploring the term, “strong.”  What makes us strong mentally, physically and otherwise.  How does strong transfer itself across your experiences in relation to personal growth and the growth of your relationship to the needs of your child? 

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Today I’ll be speaking about teachers and social media. What can they safely post without jeopardizing their career and what are the lines that they need to be careful not to cross?

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Today I am honored and excited to visit with my dear friend and former mentor from my years in the classroom, Dr. Barry McNamara, Professor of Special Education.   Barry McNamara is an expert in special education, learning disabilities, behavior management, and bullying. I am eager for you to experience his knowledge in the specific area of dealing with behavior issues in the home and at school.

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Today I’ll be speaking about preparing yourself for the new school year.  Setting the tone and the level of your involvement early can make a huge difference in the success of your child . 

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Today I’ll be speaking about Alternative and Augmentative Communication; the types, their advantages to disabled people who are non-verbal and the importance of incorporating them into daily life consistently. 

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Today I’ll be responding to the controversy manufactured at the expense of the visually impaired when Vice President Kamala Harris spoke on the anniversary of the ADA. 

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This episode is dedicated to presenting to you what I can offer in the way of parent coaching. Allow me to help you navigate through the maze of exceptional needs and figuratively stand alongside you as you face and overcome the challenges you face with your children in your homes. 

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In this episode I’ll be speaking about Active Ignoring.  This can be an effective device used when your child is acting out, tantruming and/or refusing to listen to you at times when they are not a danger to themselves or to anyone in the home.  As you’ll hear, this is a strategy that can take some time and patience, but can save you a lot of battle fatigue.

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In this episode I want to talk about bedtime challenges for children with autism spectrum disorder and what you can do to address them.

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In this episode I’ll be speaking with Ashley Richmond, she is a Director for the non-profit, HUG, which stands for Help Us Gather, located in Clearwater, Fla, a city in the Tampa Bay area.  HUG was founded by Robin Lally whose brother, Rick is autistic. I discovered this wonderful organization as I was researching for my podcast on extracurricular activities for people with disabilities. HUG’s mission is to advocate for inclusion and connect people with disabilities to vibrant social lives. I’m really excited to have this opportunity to share HUG’s story with you and so grateful to Ashley for her time.

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In this episode I want to speak about the occurrence of hoarding among people with Autism. However the topic and the solutions may apply to anyone attempting to cope with this compulsion. This is a challenge I've come across recently with some clients that has me adapting and applying strategies to help the families I work with. Hoarding is not uncommon among this population and I want to share some things that you can do to manage it. 

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This edition of Special Ed Rising is an episode that I felt an immediate need to put out.  It addresses a growing vocal chorus against the term “special needs,” a euphemism that I have used in my blogs, on my podcast and in my work for over 30 years. There is a clarion call to have this term changed.  My intention is to give voice to those asking for this change as I share studies and opinions to support their claims.  

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Today's episode is centered on the idea that involving your special needs children in activities after school and beyond school, that you might not imagine to be realistic options for them because of perceived limitations, is exactly the thing that can broaden their experience and uncover the potential waiting for an opportunity.  There IS more than meets the eye!  Using my personal experience and observations as producer of school plays and director of a drama club, I will present the advantages I observed in the extracurricular involvement for children with differing abilities.

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Today’s episode features the first interview of what I hope will be many to come.  It is an engaging conversation about music therapy that I believe will open many eyes to its impact on people with differing abilities across the spectrum.

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In this episode I want to take a look at the benefits of incorporating exercise and sensory integration activities into the routines of your special needs child.  I have seen first hand the positive impact they have on my students when making them part of their daily programs.  We will address how to do this in your home, plus the many ways your child can gain in terms of behavior, communication, attention and more and suggest some equipment to help make this happen.

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In this episode, I endeavor to reflect on my experience and some lessons learned during the time that I cared for my elderly parents and the challenges that families face in deciding the right options for care outside of the home.  And then a little on the system that embraces your family member and the costs and realities that accompany this open armed greeting. 

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This episode is going to be an exploration of thought and reflection.  And it will address how people with disabilities are considered to be different despite one very basic fact that we all share.

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Managing your family and taking care of your special needs child can be overwhelming.  In this episode I will discuss, what I feel, are four essential practices that I have witnessed succeed for many of my clients which translates into a more positive and functional home life for the entire family. 

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Today’s episode is a special one for me because I’ll be sharing my appreciation for and experience with working in the world of Deaf education and alongside a community grounded in their Deaf culture.  I’ll give some history on the evolution of deafness in education since the 1988 Deaf Power Now revolution at Gallaudet University in Washington DC; offer some cultural perspective and share my personal eyewitness account.

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In this episode, I’ll be talking about daily transition strategies for the times your child displays behaviors when asked to move from one activity to another.  These strategies can be applied in all settings; in the home, at school and out in the community.  When you have a plan put into practice consistently, new doors will open for you and your child to smoother days and nights.

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In this episode I’ll talk about Universal Behavior Management Tools that you can use in your home (and at school for those of you who are teachers), to create a smoother functioning environment for your child and your family. 

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This episode will conclude my two-part series introducing Mindfulness and Mindful Parenting to parents of children with Special Needs. The show will touch upon the science supporting Mindful Parenting, dip our toes into our feelings and suggest ways to incorporate mindful practice into our lives. Mindfulness is a useful practice for caregivers and teachers as well. Tune in for this and some uplifting extras!

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This episode is Part(I) of a two-part series introducing Mindfulness and Mindful Parenting to parents of children with Special Needs. It is a useful practice for caregivers and teachers as well. Tune in for this and some uplifting extras!

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Today I give a brief background on my time dedicated to the field of Special Education, along with a little something for you to use in your day.

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No parent left behind! This episode introduces Special Ed Rising as a place for parents and caregivers of Special Needs children and adults, to find respite and an information source to help you manage your day to day lives. Taking the parent equally into consideration is the motivation of this mission.