Accidental Care Partners: Recent Episodes
Wanda Brady Purcell
Whether you are caring for a child, sibling, parent or friend, caregiving is hard. This podcast is here to help you learn what you need to know, including tips, for helping you cope along the journey.
There comes a time when you have to have a difficult conversation with your loved one about a change in their life. There are three that are the most common: driving, living arrangements and end of life. This is the first of a three episode series beginning with driving.
Welcome!
http://www.fitnesstodrivescreening.com/
https://www.aarp.org/auto/driver-safety/info-2019/rules-of-rod-quiz.html
https://www.everydayhealth.com/senior-health/driving-safety.aspx
ACP Indicators of Unsafe DrivingDownload
A look at a day in the life of a caregiver part 2. Common issues you face on a daily basis as you care for your loved one. How about a caregiver time out? Your care receiver’s behavior may change with the sunset. Does their fidgeting behavior start or intensify? Finally, it’s time for bed and the end of another day.
- c 2021 Wanda Purcell
Neurobics can be found at:
http://www.healthtransformer.co/
Tull, M. (03/13/2021). Use your 5 senses to manage stress levels.
http://www.verywellmind.com/
Source: Anna Baird Galloway, OTD, OTR/L, MT-BC is an assistant professor of Occupational Therapy at the University of Florida and is also a board certified Music Therapist who provided consultation on this podcast.
A look at a day in the life of a caregiver. Common issues you face on a daily basis as you care for your loved one. Start the day with waking then bathing, dressing and ending part one with meals.
A variety to towel warmers can be found at:
http://www.amazon.com/
Bed, Bath and Beyond
A variety of post surgery tear away pants can be found at:
https://www.amazon.com/
Neurobics can be found at:
http://www.healthtransformer.co/
Tull, M. (03/13/2021). Use your 5 senses to manage stress levels.
http://www.verywellmind.com/
Source: Anna Baird Galloway, OTD, OTR/L, MT-BC is an assistant professor of Occupational Therapy at the University of Florida and is also a board certified Music Therapist who provided consultation on this podcast.
What is the difference? When does one transition to the other? Can someone have both at the same time? There are resources that can help the caregiver and receiver make the transition.
National Institute on Aging, (2016), End of Life : Helping with comfort and care. Office of Communications and Public Liaison, Bethesda, MD 20892-2292
Dealing with specific needs and issues for someone providing caregiving to a person experiencing dementia.
Out of print but may be purchased used through Amazon or other used book sellers. Murphey, C. (1988). Day to Day: Spiritual help when someone you love has Alzheimer’s. The Westminster Press, Philadelphia, PA
Information on virtual dementia tours and other resources may be found at Second Wind Dreams.
http://secondwind.org
General information on dementias may be found at:
http://Patientsrising.org
Positive Approach to Care
What’s a COOP plan? COOP is short for “Continuation Of Operations Plan”. A plan for being able to continue “operating” in event of an emergency, be it a plant, a business or in this case, your own home. It is a plan for being prepared in case of an emergency, especially natural disasters.
Show Notes:
https://www.fema.gov/pdf/about/org/ncp/coop_brochure.pdf
Shepard, P. (2017). What to know about tornado season in the south. Southern Living magazine.
https://www.southernliving.com/travel/when-is-tornado-season
Meteorologist James Spann’s Facebook page is:
https://www.facebook.com/search/top?q=james%20spann
History of the Tornado Siren
https://www.alabamapublichealth.gov/get10/
https://www.alabamapublichealth.gov/get10/pets.html
ACP Family COOP Emergency Preparedness Tip SheetDownload
Ways all care givers can provide support and care regardless of the specific disease. There are many links to resources for helping with specific illnesses in the show notes.
Show Notes:
Article by Eileen Davidson
How You Can Support Someone with a Chronic Illness (and Some Real Advice on How Not To)
Article by Melissa Manning
Coping With Chronic Illness: A Caregiver’s Guide To Helping Others
https://www.mbcareno.com/single-post/2019/11/08/How-to-be-a-Supportive-Partner-to-Someone-with-Chronic-Illness
American Diabetes Association
https://www.diabetes.org/
https://www.diabetesjournals.org
https://www.arthritis.org/diseases/rheumatoid-arthritis
https://www.copdfoundation.org/
https://www.nationalmssociety.org/What-is-MS
https://www.parkinson.org/understanding-parkinsons/what-is-parkinsons
https://www.cancer.org/
https://www.heart.org/en/health-topics/consumer-healthcare/what-is-cardiovascular-disease
American Autoimmune Related Diseases Association
Autoimmune Disease List
Alzheimer’s Association
https://www.alz.org/
https://www.dementiasociety.org/
https://www.cdc.gov/chronicdisease/resources/
https://www.alabamapublichealth.gov/get10/essentials.html
Keeping your care receiver, and you, safe inside the home, around the home and away from the home.
Show Notes:
Windham, K.T., (2011). She: The old woman who took over my life. NewSouth Books, Montgomery, Alabama
http://www.newsouthbooks.com/
https://www.copdfoundation.org/
https://www.amazon.com/Cord-Protector-CritterCord
https://www.webmd.com/lung/lung-home-oxygen-therapy
https://www.findanoccupationaltherapist.com/
The person at the center of care should be the most important voice at the table.
Show Notes:
The American Geriatrics Society Expert Panel on Person-Centered Care (12/02/2015). Person‐Centered Care: A Definition and Essential Elements. https://doi.org/10.1111/jgs.13866 Citations: 164
Building the Essential Care Giving Tool Kit. Tips and tools for helping you manage the nitty gritty of your loved one’s care.
Show Notes:
Example of a simple monthly appointment calendar template from calendarkart.com
Monthly Planner Template PrintableDownload
ACP List of Care Partners Tip SheetDownload ACP List of Physicians Tip SheetDownload ACP Medication and Pharmacy Tip SheetDownload ACP Observations or Q&A for Doctor Tip SheetDownload ACP Sign or Symptoms of Common Issues in Chronically Ill Tip SheetDownload ACP Helpful Resources Tip SheetDownload https://fivewishes.org/Home
Downloading Your State’s Advance Directive
ACP Daily Activities Log Tip SheetDownload Here are examples of a fidget wristband and spinner. My dad actually started with the fidget spinner just as he began the cognitive decline. He eventually could no longer make it spin and this frustrated him. The wristband was helpful in preventing repetitive picking at his skin.
(Right click on images and select open in a new tab to enlarge pictures.)
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
This is a “fidget blanket” which may be used to help care receivers with stress, anxiety, or agitation. Watch your care receiver closely to ensure none of the adornments are pulled off or put into mouth.
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
These are close-up shots of the panels of my dad’s fidget blanket to show in greater detail the adornments and textures. My dad loved the mesh maze with the stone inside that he could push around. He also played with the strip of button tabs and zipped and unzipped all zippers. The stuffed animals were delightful until he decided they would be lunch! We put these away for a time, and then stored them in their pockets on the blanket, until the next use, at which time he was not interested in the stuffed animals at all!.
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
Source: Anna Baird Galloway, OTD, OTR/L, MT-BC is an assistant professor of Occupational Therapy at the University of Florida and is also a board certified Music Therapist who provided consultation on this podcast as it relates to the use of music with the chronically ill.
Getting down to the nitty gritty of day-to-day caregiving.
Show Notes:
Ep 004h – 24 Hour Daily Activity LogDownload
An introduction to important documents you will need. There will be a future episode dedicated to these in more detail.
Show Notes:
https://fivewishes.org/Home
Downloading Your State’s Advance Directive
Ideas for curbing fidgeting behaviors.
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
- c 2021 Wanda Purcell
911 is not just for emergencies.
Keeping your care receiver’s meds organized.
Show Notes:
ACP Medication and Pharmacy Tip SheetDownload
Warning signs that might signal trouble is coming!
Show Notes:
ACP Sign or Symptoms of Common Issues in Chronically Ill Tip SheetDownload
Preparing for your next doctor’s visit. A place to keep your questions as you think of them.
Show Notes:
ACP Observations or Q&A for Doctor Tip SheetDownload
Show Notes:
ACP List of Physicians Tip SheetDownload ACP Medication and Pharmacy Tip SheetDownload
Laying the foundation, starting with your binder and calendar.
Show Notes:
Example of a simple monthly appointment calendar template from calendarkart.com
Monthly Planner Template PrintableDownload
Ideas and strategies to help you reduce stress as a care partner.
Summer Stream – C 2020 Byron Purcell Show Notes:
11 Scientific benefits of being outdoors
https://www.mentalfloss.com/article/70548/11-scientific-benefits-being-outdoors
How going outside improves our mood and health, even in winter
http://www.thesca.org/connect/blog/how-going-outside-improves-our-mood-and-health-even-winter/
Sowa, N. (2018). Mental health benefits of getting outside
Mental Health Benefits of Getting Outside
ACP-Feeling-WheelDownload ACP-List-of-Core-EmotionsDownload
The shock and grief that happens at the time of diagnosis. Learn the stages of grief, those you’ve experienced and those yet to come. There is also the pain that comes with the loss of dreams.
Tree in Silhouette – c 2020 Byron Purcell Show Notes:
ACP-The-7-Stages-of-Grief-Tip-SheetDownload ACP-Feeling-WheelDownload ACP-List-of-Core-EmotionsDownload ACP-Cooking-Tip-SheetDownload ACP-Cleaning-Tip-SheetDownload ACP-Home-Maintenance-Tip-SheetDownload ACP-Groundskeeping-Tip-SheetDownload ACP-7-Step-Laundry-Tip-SheetDownload ACP-Laundry-Symbols-USDownload ACP-Removing-Urine-Stains-and-Odors-Tip-SheetDownload ACP-Monthly-Home-CalendarDownload The Best Waterproof Mattress Protectors
More of the Best Waterproof Mattress Protectors
Find out about the reason for the name of this podcast.
What is the hardest part of being a family care giver?
Get to know your host. This is my story and why this podcast was created.
Cade’s Cove Butterfly – c 2020 Byron Purcell Show notes:
Windham, K.T., (2011). She: The old woman who took over my life. NewSouth Books, Montgomery, Alabama
http://www.newsouthbooks.com/
A Humor Website
http://www.laughteronlineuniversity.com/quotes-about-laughter
Podcast episode below: