Thriving Over Surviving Multiple Sclerosis: Recent Episodes
Edie Sohigian
Multiple sclerosis (MS) is an incurable autoimmune disease. Thriving over surviving shares experiences of those living with MS who lean into their core values to live their best lives. Our host, Edie, was diagnosed with RRMS in 2015. In each episode, she chats it up with MS thrivers to learn and grow from each other's experiences. Chronic illnesses such as MS can impact our lives in ways that may become overwhelming. It is nice to know that others out there focus on thriving despite their diagnosis. New episodes are published each week. Thank you for joining our thriving community!
But let's be real, MS presents difficulties. Having hope that things will get better, that there is love and kindness in the world, and that hope is in each of us makes a difference for the good. We can not hope blindly. We have to choose a course of action and stick to it. Despite the delays and setbacks along the journey hope carries us along while ersisting with an adventurous course of action. I call it a gritty hope.
These are the words of Justine Calcagno who was diagnosed with MS in 2016. She is an ultrarunning non-profit researcher with a Ph.D. in psychology. She is passionate about trail running, outdoor pursuits, yoga, cycling, and supporting and empowering others, particularly women and feminine-identified people.
Her approach to living with MS is a combination of embodiment and evidence. She hopes that she can inspire others to identify their challenges to overcome and become more joyful and confident through the process of achieving their goals. She also an advocate through the MS Society. Since having MS, Justine has experimented on herself as an "N of 1". She is committed to a plant-based (vegan) and alcohol-free diet.
Let's chat it up with Justine!
Instagram: RunwithMS
runwithms@gmail.com
Instagram: thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
What is your greatest fear? Before MS, mine was probably superficial. Fear is an unpleasant emotion caused by the belief that something or someone is dangerous and likely to cause pain (physical, emotional, etc.). Fear can be intense and sometimes overpower us if we don't have the tools to work through the emotions it brings. Mary Virgi does not let fear hold her back! She leans into her core values of family and faith to climb out of negative spaces. At the time we recorded this, Mary was 14 weeks pregnant. And releasing this episode she is now about to have her baby. She is surely thriving! Let's chat it up with Mary!
Instagram: @dontmswithmindfulmary
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Did you know that approximately 50% of people diagnosed with multiple sclerosis are also diagnosed with depression? This is 3X more likely than in the general population. Managing mental health can be complicated especially when you also have an unpredictable autoimmune disease. Alyssa Gonzalez bravely shares her journey with MS and mental health. She was diagnosed with pediatric Multiple Sclerosis and just that process alone was overwhelming. There is so much to chat about with this gorgeous and positive Instagram Influencer. Let's chat it up with Aly Katelyn!
Instagram: @aly_katelyn
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple Sclerosis. Let's chat it up with Kellie!
Instagram: @_livinglikek
https://www.joinuplift.co/ UpLift accepts most insurances and copays start at $25. Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com
Has your multiple sclerosis diagnosis influenced the course of your life? Has it shifted your passions in a certain direction? Many people say that everything happens for a reason. Would being diagnosed with a chronic illness happen for a reason? Justin Loizos believes his MS diagnosis has further grown his passions. Let's chat it up with Justin.
www.justcompassion.ca justmsshow.buzzsprout.com Instagram: @justinmloizos, @justcompassioncannabis, @justmultiplesclerosis https://thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast
Have you ever had a massage? Not one from a friend or lover, I'm talking from a professional masseuse? For many, massage becomes a regular part of their health routine. Massage can help with anxiety, depression, digestive disorders, fibromyalgia, headaches, insomnia, nerve issues, muscle stiffness, inflammation, and more!
Angela Landeros shares how massage therapy became her passion. As someone diagnosed with MS and a massage therapist, she knows firsthand how therapeutic it can be. This equestrian and author shares her experience with multiple sclerosis and beyond. Let's chat it up with Angela!
IG: @Angela_Landeros_Heals
YouTube: @Angela_Landeros_Heals
https://angelalanderosheals.wordpress.com
IG: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Remaining curious is essential, especially when seeking answers to improve our health. Asking questions is necessary, but challenging when we don't know what questions to ask. Empowering ourselves with the knowledge and strength required to tackle our daily struggles with chronic illness. Fitness Coach Marnie Bothmer, who thrives with MS, knows that curiosity is necessary to open her mind to other ways of viewing the world. Let's chat it up with Marnie!
marniebothmer@gmail.com
Instagram: @mbstrength4life
www.marniebothmer.com
https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
When have you felt the most fear in your life? Did you know there are seven deadly fears?
- Fear of being alone
- Fear of connecting (lack of)
- Fear of abandonment
- Fear of self-assertion
- Fear of lack of recognition
- Fear of failure and success
- Fear of being fully alive
Rachel Larsen shares how she moved beyond fear and anger to embrace vulnerability and live her best life. She removed herself from isolation and now fully enjoys her life with or without MS. Let's chat it up with Rachel.
www.wontstopsmyelin.com
Facebook and Instagram: @wontstopsmyelin
email: wontstopsmyelin@gmail.com
Instagram: @thrivingoversurvivingpodcast
http://thrivingoversurvivingpodcast.com
Would you consider yourself emotionally well? Do we even know what that feels like or should feel like? Jane Gould has found what emotional wellness is for her. She shares with us her 20-year journey with MS, what she has learned about herself, and how she finds peace in her every day life. Let's chat it up with Jane!
Twitter: @ABCsofMS
Substack: https://abcms.substack.com
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Many of us searched for answers for a long time before finding out we have multiple sclerosis. Once you had the knowledge, what did you do with it? Knowing is just the first step. Alex Sokoloff uses his core value of self-discipline to stick to his routines after learning many lessons throughout his MS experience. Let's chat it up with Alex!
www.facebook.com/alexsokoloff.me/
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
What is one change in your life you would like to make? Just one change that would improve the quality of your life. One change that would make you proud of yourself. Maybe this episode with Gillian Crooks will inspire you to do just that. Or maybe you have already made a change and you can relate. Once wheelchair-bound, this marathon runner has a lot to share about having high expectations and focusing on things within our control. Let's chat it up with Gillian!
Instagram: @gillian.eattobeatms
www.mygroovewellness.com
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Being kind to yourself even if you don't have MS is a struggle for many people. I am super hard on myself. But it is so important to treat yourself with kindness when diagnosed with a chronic illness. We can not blame ourselves! Joanna Bolouri is a bestselling rom-com author. Her cat Twitch reluctantly allows her and her daughter to live with him in Glasgow, Scotland. She advocates for kindness. Let's chat it up with Joanna.
Twitter: @scribbles78
Facebook page: jbolouri
Instagram: @joannabolouri
Instagram: @thrivingoversurvivingpodcast
http://thrivingoversurvivingpodcast.com
Episode 100! And who better to talk to than Dr. Terry Wahls! A board certified internal medicine physician who conducts clinical trials testing the efficacy of diet lifestyle to treat multiple sclerosis. She is the author of The Wahls Protocol: A Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles.
Sign up for Dr. Wahls newsletter and get the one page summary of the diet that is used in her clinics and clinical trials to restore cellular health. Great for the refrigerator.
www.terrywahls.com/diet
https://www.facebook.com/TerryWahls
https://www.instagram.com/drterrywahls/
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
There are many opportunities to have children when you have multiple sclersosis. For many, natural childbirth is definitely an option. For those who it is not, adoption is another viable option. Melissa joins us for an update on her MS journey. She is still raising awareness and donations through Bike MS, but she also has some personal news to share with us as well. Let's chat it up with Melissa.
Instagram: thrivingoversurvivingpodcast
http://thrivingoversurvivingpodcast.com
Is the outcome of our multiple sclerosis diagnosis all about luck? It is difficult to think that we have no control over whether or not our disease progresses. Dominic "Dom" Shadbolt believes just that though. Whatever he believes about the progression of his own MS, he lives his life by a particular rule; Treat others the way you want to be treated, period. Can't we all just be good people and be kind to one another? At least how we treat others is within our control. Let's also treat ourselves well too, please.
Check out Dom's website and YouTube page. He has some very helpful resources there that might get you thinking.
YouTube: www.themsguide.com
Twitter: @theMSguide
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Julie Stamm first joined us in Episode 17, almost two years ago. I thank Julie for her vulnerability as she shared her updates in Episode 98. Julie advocates for all of us to talk about our difficulties. Don't hold back. Julie also shares a new project she co-developed. 52 Essential Inclusion Skills - A to Z Guide to Kindness, Compassion, Respect for Diversity and Disabilities is available on Amazon by Clicking the link below. This collaboration with Harvard Educator and Health Advocate Dr. Jenny Woo, offers strategies to teach both kids and adults empathy. Let's chat it up with Julie!
http://iamstamm.com/
52 Essential Inclusion Skills
https://thrivingoversurvivingpodcast.com
Alexis Martinez first appeared on TOSP in Episode 71. She shared what it was like for her to manage her own MS and care for her mother who has early onset Alzheimers. This time we discussed her new job and how taking on something new has impacted her daily life and self-worth. Now that I've gotten to meet Alexis in person, it no longer felt like an interview. It was more like catching up with my friend.
Instagram: @itsallinmyhead
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Ah, the optimist's perspective is one many strive to achieve. When dealing with challenges brought on by MS, it is a lot more work to stay optimistic. But the work is well worth it! Matt Knaggs possesses all the qualities of an optimist. He is self-motivated, always around the most motivated people, he believes in possibilities, he is full of joy and finds ways to express gratitude in all things. Yup, we can all learn a thing or two from Matt.
Instagram: @runningwithms_official
FB group: Running with MS
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Sleep, nutrition, exercise, mindset, stress management... oh my! We cover all the things in this episode, but most importantly we discuss vitality and gratitude. Vitality is a word we use sparingly in everyday conversation because it sometimes seems unattainable. Laura Leigh may have the secret to gaining this perspective. Let's chat it up!
Instagram: @wellnesswithLL
FB: Wellness with LL
www.wellnesswithLL.com
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com/
The love from a child is special and the bond between mother and daughter is one of a kind. Roni shares how her daughter Grey makes it easy for her to lean into her core value of family with ease. Let's chat it up!
https://www.youtube.com/baestationtv
Instagram: @ronigraham
https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
What is the biggest risk you have ever taken? Was it one that led you on a grand adventure to far-off places you never dared to go before? For many, that is a bit extreme. For some, life would be boring without an unexpected twist or turn. For Melissa Cook, the author of The Call of the Last Frontier, blogger, and YouTube star there is never a dull moment. It is not an option for MS to put her down, even after over 20 years of living with the disease.
www.MelissaCook.us
blog: Alaska Bush Life
youtube channel: Wyoming Jeepers
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Getting a diagnosis is one thing. Owning a diagnosis is another. With Relapsing Remitting Multiple Sclerosis, for some, it is easy to ignore it. But when it creeps back in and reminds us that MS is still there, that's when we begin to pay attention. Megan from The MS Stage chats with Edie about owning her diagnosis and taking action to improve her own life and the lives of others. Let's chat it up!
www.themsstage.com
Instagram: @themsstage
Email Megan: info@themsstage.com
https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
How have you grown since your diagnosis of multiple sclerosis? We all have, whether we like it or not. Maybe in the knowledge of the disease, maybe spiritually, or could it be that you have grown your knowledge and understanding of what a healthy lifestyle means to you? Growth as a core value can be somewhat daunting. I know from experience. It is like I can never get enough knowledge and experience. Chatting with Amy, she has grown in her life with MS to understand her journey is to SOLVE the problems she can and DISSOLVE the problems she can't.
email: amy@amybehimercoaching.com
website: www.amybehimercoaching.com
free resource: https://amybehimercoaching.click/guide-1
Instagram: @thrivingoversurvivingpodcast.com
https://thrivingoversurvivingpodcast.com
For some, finding love seems like an endless search. Now let's add some MS to the mix. No matter what age you are diagnosed, the question raised is, How do I tell this person about my diagnosis? Elana chats it up about her experience on the dating scene with MS, and how she empowers herself through online social platforms. Have you checked out the MS Girl Gang? If you like to laugh, it might be a resource for you.
Instagram: @msgirlgang
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Have you ever joined a Facebook Group with other people diagnosed with MS? MS Friends United has over 300 very active members. Twice a week they get together on Zoom to chat about whatever is on their mind, MS or otherwise. There are people from all over but each has multiple sclerosis in common. How do they make this happen every week? Teamwork. Join me as I chat it up with Lily and Darren.
Info@msfriendsunited.org
www.msfriendsunited.org
Facebook: MS Friends United
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Have you ever kept a journal or a diary? Turning pain into something incredible is not something Robbie set out to do when he began putting pen to paper. Journaling helped him process how multiple sclerosis was impacting his life. Today, he has turned those thoughts into a collection of poetry that explores all the emotions. Check out Thoughts of a Warrior; Beneath the Tracksuit by Robert Gillett.
Instagram: @beneath_the_tracksuit
Facebook & Twitter: Beneath the Tracksuit
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Matthew Embry and his father, Dr. Ashton Embry, created MS Hope for people who have been newly diagnosed or currently living with MS. Their goal is to provide the science-based strategies that have enabled Matthew and many others with multiple sclerosis to live a drug-free, healthy life. Lee joins Edie to chat it up about how following the Best Bet Diet has enhanced his life since his MS diagnosis.
https://mshope.com/
Instagram: @lee_whittys
Instagram: @thrivingoversurvivingpodcast
Website: https://thrivingoversurvivingpodcast.com
Authenticity is so darn rare. What does it look like, sound like, and feel like when you find it? When I discovered Samantha Salvaggio I realized this was the real deal. She trusts her gut and embraces whatever she is feeling in the moment. Recognizing that nothing is perfect and that it's ok to have less than ideal moments throughout this journey is one thing. Embracing it is another and that is Sam 100%. Let's chat it up!
Website: www.samanthasalvaggio.com
TikTok: @slsalvaggio
Instagram: @slsalvaggio
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Clinical Trial: Efficacy of Diet on Quality of Life in Multiple Sclerosis (EDQ:MS)
ClinicalTrials.gov Identifier: NCT05007483
Type of MS: relapsing-remitting multiple sclerosis (RRMS)
Treatment mode of action: dietary intervention
Number of Participants: 156
Medication: Participants may continue disease-modifying treatments if they are on them
Institution: University of Iowa
Address: 200 Hawkins Drive, Iowa City, Iowa 52242
Contact Name: Mary Ehlinger
Phone: 319-384-5002
Email: MSDietStudy@healthcare.uiowa.edu
Funding: Gift from the Carter Chapman Shreve Family Foundation to the Therapeutic Lifestyle Fund at the University of Iowa
Brief Description
This is a research study comparing the effects of three diets — a Modified Paleolithic Diet (elimination of gluten, dairy, and eggs), a Time Restricted Olive Oil-based Ketogenic diet, and usual diet with information about the USDA Dietary Guidelines for Americans — to determine whether these diets improve quality of life and reduce fatigue, a disabling symptom that can significantly interfere with the ability to function in daily life. Participants in the usual diet group will be encouraged but not required to follow the Dietary Guidelines for Americans diet. The study will also measure the impact of the study diets on walking function, hand function, vision, serum neurofilament (blood biomarker), and brain imaging (presence of enhancing lesions and changes in brain volume).
The study will be held at the University of Iowa Hospitals & Clinics over two years. It will consist of three visits to Iowa City, Iowa. The first visit occurs at month 0. The second visit is at month 3, and third and final visit is at month 24. The first visit may last 4-6 hours. The second visit will last about 2-3 hour. The third visit may last approximately 4-6 hours.
Participants will be randomly assigned to follow one of the three study diets. Participants will continue to take their current medications, including any disease-modifying treatments for multiple sclerosis. Participants may take recommended supplements, eat more non-starchy vegetables, complete daily food logs (3 questions) on a free smartphone application, complete online surveys every three months, watch videos to learn about the study diet to which they are assigned, meet with the study dietitian to learn about the study diet to which they are assigned, and attend optional online support meetings. If a participant is assigned to the ketogenic diet, they will be asked to take a blood ketone measurement using a drop of blood daily for the first month, then twice per week. They will have a device that pricks the finger to conduct the blood ketone measurement.
Participants will have a fasting blood draw at each of the study visits and may bring a snack after the blood draw. They will complete assessments of walking, hand, and vision function at each visit. They will have a NON-CONTRAST MRI of the brain at the first and last visits.
Key requirements to participate in the study include the following: 1) be willing to share medical records with the study team, 2) do not have clinically significant heart disease, liver disease, kidney disease or type 1 diabetes, 3) do not have a serious psychiatric disease that would make adopting a study diet more difficult (for example schizophrenia or disabling depression), 4) are not taking insulin, coumadin, or weight loss medications, 5) have a smart phone or tablet to download a free app, and 6) have access to high-speed internet and a computer, tablet or smart phone to complete surveys and participate in video conferences via the Zoom platform.
A screening survey for eligibility to participate in this study is available here: https://redcap.icts.uiowa.edu/redcap/surveys/?s=JX73EYRJNPF9MHRR
Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis. In 2018 she was awarded the Institute for Functional Medicine’s Linus Pauling Award for her contributions in research, clinical care and patient advocacy. She is the author of The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles, and the cookbook, The Wahls Protocol Cooking for Life. Learn more about her MS clinical trials https://wahls.lab.uiowa.edu/. Pick up a one-page handout for the Wahls™ Diet at https://terrywahls.com/diet/
Wahls Research Lab - to learn about current clinical research studies that Dr. Wahls is conducting
https://wahls.lab.uiowa.edu/
Social Media Links
https://www.facebook.com/TerryWahls/
https://www.instagram.com/drterrywahls/
https://twitter.com/terrywahls
https://youtube.com/c/terrywahlsmd
Don't put yourself in a box. We all have unlimited potential. Yes, even if you have MS. In this episode, Edie and Linda discuss what it means to be healthy. It really depends on how YOU definite it for yourself. That means you have to know yourself pretty well to determine what healthy looks and feels like. How well do you know yourself? Let's find out.
Instagram: @lindamrhyne or @lindarhyneconsulting
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Healthcare discrimination, underrepresentation of minority populations in decision-making, bias in the medical profession, and mistrust of the healthcare system are all topics that came up in my chat with Roxy. The Multiple Sclerosis Fashionista's insight and first-hand knowledge of these topics brought new issues to light for me. If you are in the UK, please check out the ADAMS study.
Instagram: @multiplesclerosisfashionista
https://app.mantal.co.uk/adams
https://podcasts.apple.com/gb/podcast/sick-and-sickening/id1531518575
Instagram: @thrivingoversurvivingpodcast
http://thrivingoversurvivingpodcast.com
Has your doctor ever discussed sexual dysfunction with you? Have you ever had any issues with libido in the past? There is actually a high rate of dissatisfaction in the sex department among people with MS. This happens for a variety of reasons. In this episode, Edie explores these topics and much more with Brittany Quiroz, AKA "A Hot MS". Let's chat it up!
Instagram, Facebook, Tik Tok: @ahotms
www.ahotms.com
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Yes, it can be scary to show your vulnerable side. Some consider it a weakness. But vulnerability can be a powerful asset when you own it, share your story, and know your limits. Along with vulnerability comes trust. if we don't have trusting relationships, especially those of us who deal with autoimmune diseases like MS, we can feel unsupported and alone. In this episode, LaRoyia shares how her core value of vulnerability provides her with the ability to face her chronic illness head-on. She also shares what it means to her to be "strong-ish". Let's chat it up!
Instagram: @queensmitherman
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
After Emily was diagnosed with multiple sclerosis, she realized her life's purpose. She loves to move-it, move-it! And she loves to get other people moving and shaking it too. She does it because she loves it, and she wants to help others who deal with chronic illnesses.
Check out her YouTube Channel!
https://www.youtube.com/results?search_query=keep+moving+with+emily
Instagram: @keepmovingwithemily
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Have you adjusted your diet at all after your diagnosis? There are a lot of different recommendations out there. Well, I was surprised with Dr. Krick recommended Keto for MS because of all the dairy I associate with that. Boy did he set me straight. He even had some research on hand to back up his thoughts. Chatting it up for the second time with Dr. Taylor Krick.
https://www.washwellnesscenter.com/
https://www.youtube.com/c/WashingtonWellnessCenter
Instagram: @autoimmunedoc
https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Setting goals and achieving them is easier said than done. When you reach them, do you celebrate? You gotta celebrate your success! Please don't miss out on celebrating the wins, even the smallest ones. Randy Patrick, creator of Must Stop MS and #ChatMS shares how his involvement with the MS community helps him achieve his goals.
Twitter: @MustStopMS
TikTok: @muststopms
Instagram: @must_stop_ms
https://www.meatfight.com/
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Melissa was the very first guest on TOSP. One year later on the season 3 premiere, we welcome her back. This time she brought her twin sister Brandy to discuss how they use gratitude to lift themselves up. Their lives are not all peaches and roses, Melissa has MS and Brandy has had some serious turmoil the last couple of years. But with the love and support of their family, gratitude helps them to focus on all the great things in their lives. Let's chat it up with Melissa and Brandy.
Instagram: @melissa_gordan95
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Before we move into Season 3, I wanted to do a little rewind. When I think back on all the thrivers I've had the privilege to chat with, I feel honored they allowed us to share their journey with them. Thank you to all who listen and feel connected to this community.
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
This week while I am on vacation, I am sharing some bonus content I recorded with Dr. Taylor Krick. He is an expert in autoimmune disease and had some interesting tid bits to share about leaky gut. Let's chat it up with the Autoimmune Doc!
https://www.washwellnesscenter.com/
Instagram: @autoimmuneDoc
https://podcasts.apple.com/us/podcast/the-autoimmune-doc-podcast-w-dr-taylor-krick/id1562522498
https://www.youtube.com/channel/UCSAKgeiblE8CFUVrmd58dWw
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
We all see Damian Washington on TV commercials and MS Views & News. Maybe you have perused his YouTube Channel or Website. Wherever you have absorbed his fantastic energy, it was bound to be entertaining and full of great information about multiple sclerosis. Do you try to be present in the current moment and in your given circumstance? Damian and Edie chat it up about how he makes it all work for him.
Instagram: @damianwashington
website: https://www.damianwashington.com/
YouTube: https://www.youtube.com/c/NoStressMS
Instagram: @thrivingoversurvivingpodcast
website: https://thrivingoversurvivingpodcast.com
I don't know anyone with multiple sclerosis that signed up for it. Nobody stands in line with great expectations hoping that someone will say, "Yes, you have MS". But if you have this disease, you might as well make the most of it. So how do you do that? Stand up and share your story. As I chatted it up with David Beneby Jr, I realized there is something about him that emotes a positive outlook on life. There is no magic wand, but maintaining a mindset focused on the possibilities in life is a great place to start.
Facebook: David Beneby Jr.
Amazon find David's book, Stand Up, here
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurivingpodcast.com
Have you ever been lonely? I'm talking about that deep loneliness leading down the road to depression. How did you get out of it? Anna shares with us the journey of healing she has been on since MS took away her ability to walk. Join me as I chat it up with Anna. Instagram: @immakeepstandin Blog: https://linktr.ee/AnnaGiannakouros
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Dave Walsh is a strongman, a dad, a husband, and is hilarious. He is competing for the world's strongest disabled man in Canada June 2022. But he is not just all muscles. This is a man who also helps others understand what it is like from his perspective in a wheelchair. Let's chat it up and cheer for Dave AKA SittingbullUK!
Instagram & Facebook: @Sitting_bull_uk
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
If you have ever struggled with your weight or self-esteem, you know how we can be our own worst enemy. Why do we let that negative voice creep into our heads and control us? Jae shares with us that although it is a daily struggle, she stomps all over that voice to make sure she is making decisions to live the life she wants to live. Let's chat it up with Jae.
Instagram: @rollingwithms
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurivivngpodcast.com
Terry is back and this time, her twin sister Tamara is joining us as well. These two women, who call themselves Twins Coast 2 Coast, give so much of themselves to help others with multiple sclerosis. Their journey is unique because they both have MS, but even more, because they are thriving despite having the disease for over 25 years. Fundraising to support research is a passion of theirs. Listen as we chat it up about the importance of family, Epstein Barr, and so much more.
Instagram: @twinscoast2coast
Instagram: @thrivingoversurivivingpodcast
https://thrivingoversurvivingpodcast.com
Alexis had quite the time getting her multiple sclerosis diagnosis. In fact, she was living overseas when she finally got some answers. She was able to get back home to California, and help take care of her mother who was diagnosed with Alzheimer's Disease. Watching her mother's struggle has helped her gain perspective in her own life. Let's chat it up with Alexis. Oh yeah... listen closely and you can hear Alexis's kids playing in the background. We are all about family here at TOSP! Instagram: @ms_itsallinmyhead
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
How do you cope with your MS? Do you fight against it, or embrace the challenges set before you? Steve believes MS is an unwanted friend, and he has adapted his life to ensure he is thriving. Fifteen years ago Steve proclaimed that aerobic exercise just was not for him. Now he is determined to get that 5K medal. Join me as I chat it up with Steve. Steve's Fundraising Couch to 5K Challenge
LinkedIn: linkedin.com/in/wellmindcoach/
Facebook: @TheMSTiger @Thesugarstealerband
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Jodi has seen some hard times. Between her husband's bipolar disorder to her own multiple sclerosis diagnosis, she has been through all the things. Her book, Letters To An Unbelieving Woman is available on Amazon and chronicles her journey of broken friendships, sickness, love & family, and more. Join us as we chat about how medical cannabis and Jesus have impacted her life. Instagram: @jodi.marie.nix Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Montreal Canadian, Marie shares her struggle beginning with her prolonged diagnosis of MS. Now she uses a motorized wheelchair to get her where she needs to go. Marie uses this as ammunition to focus on healing her body through weightlifting. She is gearing up for a big competition in 2025. Help me cheer on this fashionista. Let's chat it up! Instagram: @mariepontini
See her weight loss transformation on her
YouTube Channel
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
How do you cope with MS? Samantha Bromfield lets it all out, in her own words, no holds barred. Her blog highlights her journey with multiple sclerosis. But there's another side to this thriver. As an avid reader, Samantha knows how to take time for herself to feed her soul.
Instagram: @chronically.sam
Blog: https://chronicallysam.co.uk
Instagram: @thrivingoversurviving
https://thrivingoversurvivingpodcast.com
Substance abuse and mental health issues plague the chronic illness community. Mykee Dilks-Byrne was diagnosed with MS after she gained her sobriety over alcohol. She told me it is a daily struggle to maintain, but focusing on compassion and gratitude does help. Listen as she shares her story of addiction, mental illness, recovery, and MS diagnosis. If you struggle with substance abuse, please call the National Drug and Alchohol Treatment Hotline at 1-800-662-HELP (4357).
BTW, recorded this while I was ill so you will hear it in my voice and I think I had a bit of brain fog. Thank you for your grace.
Facebook: MJsProgressnotPerfection
Instagram: @mjsprogressnotperfection
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Perseverance is doing something despite difficulty or delay in achieving success. For me, the words, grit, determination, and tenacity come to mind. Jessica Turner believes that as warriors, we can not give up. She is not afraid to follow her gut! A wife, a mother, and an MS thriver who found purpose in her diagnosis by helping others take back control of their health and wellbeing. Let's chat it up with Jessica.
Instagram: @beingahealthyunicorn
https://beingaunicorn.com
Instagram: @thrivingoversurvivingpodcast.com
https://thrivingoversurvivingpodcast.com
Noelle is a mother of three, a wife, and a licensed social worker whose goal is to help others struggling with chronic illness. Although she has Secondary Progressive Multiple Sclerosis (SPMS), Noelle maintains her independence by taking full advantage of the use of mobility aids. In this episode, she allows herself to be vulnerable as she shares the details of her disability, the love she shares with her family, and how empathy has helped her on her journey.
Instagram: @ms.livingbalanced
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Latoya shares with us how she got out of the "yuck" she was in due to her multiple sclerosis diagnosis. When you listen to this episode, you will hear that I was in some yuck myself. I was eight days into my Covid-19 diagnosis when we recorded this. My voice isn't quite back to normal yet. We managed though.
https://www.itsneighbormade.com/
Instagram: @msscentscandleco
Twitter: @mstrue2toya
https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Twitter: @ms_thriving
If you have multiple sclerosis, then you have probably had an MRI. Even though I'm not afraid the walls are closing in on me, I am not excited to get in the tube each year. Lorin shares her experience of getting her brain scanned and what she has to do to get through it. Let's chat it up with this funny lady, teacher, and thriver. Instagram: @studentsaywhat Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast
What is an advocate? Jenna Green helps us understand how we all can be involved in supporting our Thriving MS Community!
Shownotes are available on the website. https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Instagram: @thejennagreen
Mathew Embry shares his thoughts regarding the future of multiple sclerosis research and the search for a cure. Mathew is the man behind the documentary Living Proof. Cofounder of MS Hope, his goal is to help our community by sharing the science-based strategies that have enabled him to live a drug-free, healthy life for more than 25 years since his diagnosis. Mathew says #nocheatdays!
https://mshope.com/
https://www.mathewembry.com/
Instagram: @embry.mathew
https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Dan & Jennifer Digmann say that he's walking and she's rolling, and they are moving forward together. And together they do. With the core values of faith and teamwork, these two MS'rs are thriving as they write their blog, record their podcast, and speak to legislators about how people with chronic diseases navigate our healthcare system. blog: https://acoupletakesonms.com
twitter: @jendandig
Instagram: @digmannd
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast
This Ten Minute Tid Bit (TMTB) episode explores the concept of support groups. For full show notes and supporting information, please visit the website https://thrivingoversurvivingpodcast.com
Little did Rachel and I know when we began our conversation that we would end up chatting so long. In Part II, Rachel shares how her cores values of perseverance and making a difference make all this MS stuff not only manageable but fulfilling. Instagram: @tri_to_recover_from_ms https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Everyone's MS diagnosis story is different. For Rachel, the symptoms came on quickly and her diagnosis just as fast. But Rachel soon realized that the typical treatment of steroids was not going to work for her. In Part I, Rachel and I discuss her journey with HSCT and what led up to the discision to take this course of action. Instagram: @tri_to_recover_from_ms
Instagram: @thrivingoversurvivingpodcast
https://thrivingoversurvivingpodcast.com
Less than 15% of the people diagnosed with Multiple Sclerosis are said to be in the Primary Progressive Phase. Folake Taylor shares the difficult journey of misdiagnosis and how she leans into her core values to ensure she is living her best life. From scooters to walking, we learn from Dr. Taylor that it's a lot of hard work, but it can happen. Instagram: @folaketaylormd
Website: https://folaketaylormd.com
Instagram: @thrivingoversurivivngpodcast
Website: https://thrivingoversurvivingpodcast.com
Allison is a wife & mother of two, lawyer, and abstract artist. Living with MS since 2008, she doesn't try to be perfect but she tries to do her best.
Website: https://helloallisonart.com/
Instagram: @helloallisonart
Website: https://thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Bonus Episode! Lorin graciously allowed me to take her through the core values process as a model for all of you. What are your core values? Core values are a defined system of beliefs that helps people tell the difference between right from wrong in YOUR life Montrose & Sweeney (2010). What are the best decisions for you? What influences how you live your best life? If using this resource, know that you will need to pause the recording periodically to process information and write things down so have paper and pencil handy. If you are looking, there are more resources on the TOSP website.
Instagram: @thrivingoversurivivingpodcast
https://thrivingoversurivivingpodcast.com
This is a little preview of what I plan for season two of the show. Bare with me as I am recovering from that thing that everyone is getting.
Instagram: @thrivingoversurvivingpodcast
Website: https://thrivingoversurvivingpodcast.com
In some cases, MS can try to steal your identity. Karen Dwyer shares how she leaned into her core values to "heal" her MS and live her best life. She now helps others to do the same. Karen's TEDx talk, What's Your Shoe Size Got to do With Chronic Illness? released last month already has thousands of views. Karen is thriving! Instagram: @iamkarendwyer
Facebook: https://www.facebook.com/iamkarendwyer
Website: https://www.karendwyer.com/
Instagram: @thrivingoversurivingpodcast
Website: httpss://thrivingoversurvivingpodcast.com
David Lyons, the creator of the Optimal Body Training Program with his wife Kendra, shares how leaning into his core values of faith and family helped him overcome depression and live out his passion.
website: https://obpfitness.com/lp-fb/
Optimal Body Fitness Facebook Group: https://www.facebook.com/groups/674667742732961
website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
In this solo episode, I reminisce about the past 49 podcasts. We also preview a lot of what is coming up in Season Two of the show. Please join me as we take a walk down memory lane.
Thank you for listening!
Instagram: @thrivingoversurivingpodcast
Twitter: @ms_thriving
Website: www.thrivingoversurvivingpodcast.com
Morgan Music is a teacher, a support group leader, & so much more. She allows herself to be vulnerable with us and share some difficult things she dealt with as a result of her multiple sclerosis. She has raised over ten thousand dollars for the MS Society. Join me as I chat is up with Morgan Music.
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Do you have abnormal things going on in your body that you can't explain? The doctor has run all the tests, but coming up empty on a diagnosis... You might have a parasite! Elizabeth Yarnell shares with us some key takeaways from her experience with parasite infections.
www.elizabethyarnell.com
@elizabethyarnell_naturopath
www.thrivingoversurivivingpodcast.com
Instagram: @thrivingoversurivivingpodcast
All Ability Recruiting works exclusively with people with disabilities to get hired at the company that will ensure your needs are met. Having had an autoimmune disease herself, Anessa shares her journey with Addison's Disease.
Instagram: @allabilityrecruiting
www.allabilityrecrutiting.com
Instagram: @thrivingoversurvivingpodcast
www.thrivingoversurvivingpodcast.com
Round two with Elizabeth Yarnell, and this time we are talking food and beverages. Elizabeth reveals her cocktail secret we want to hear. She also shares the origin story of her cookbook Glorious One-Pot Meals. Head over to her website www.elizabethyarnell.com to find out more.
Instagram: @thrivingoversurvivingpodcast
www.thrivingoversurvivingpodcast.com
This chat with Katie is one more testimony of how MS warriors are living their best lives. From diagnosis to traveling, and pain killers to acupuncture, and living the single life to family and future we get a glimpse into this thriver's mindset motivation. A runner, writer, public speaker, and voice-over artist who never set out to be all these things before diagnosis. But Katie has found happiness by learning what her body needs and responding to it. She is also the author of ‘Mumpreneur On Fire’ and ‘MS Is My Superpower’.
website: https://katiesilverthorne.co.uk/
Instagram: @ms_is_my_superpower
website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Elizabeth is a traditional naturopath with a mission to empower people suffering from multiple sclerosis or other autoimmune issues to reclaim their health naturally. Since being diagnosed with MS in 1999, she has worked with hundreds of MS and other autoimmune sufferers in her US clinic using unique, personalized natural therapies to empower them to reclaim their health. She’s a TEDx speaker, award-winning author whose cookbook has sold more than 60,000 copies, a patented inventor, and have been featured on CBS, NBC, ABC, and PBS as well as in Good Housekeeping, Health, Martha Stewart Living Radio, and many other outlets. https://elizabethyarnell.com/ www.thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast
This is just a little teaser of our upcoming trilogy with Elizabeth Yarnell. She has been at this nutrition game for a long time now and being a fellow MS warrior she can really relate.
https://elizabethyarnell.com/
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast.com
In this episode, Edie and Dawnia tackle tough issues like whose football team is better, the Patriots or the Steelers? MS warrior Dania also shares some pretty amazing things she does with teens and young adults who are newly diagnosed. The MS Youngsters are blessed to have her on their side.
Instagram: @dawniamarie
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Toxins are all around us. Dr. Diane Mueller returns to wrap up her series with a deep conversation around detoxification.
Here is the special code for the hack your mind course for free: https://mwh.thrivecart.com/hack-your-mind/?coupon=THRIVINGOVERSURVIVING
In this course (normally $297) you will learn
-
how to improve concentration and brain function
-
how to improve happiness regardless of circumstances
-
how to use your mind to improve physical health
This $297 course we are giving to Thriving Over Surviving listeners for free
Instagram: @medicinewithheart
website: www.medicinewithheart.com
website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast.com
Terry Horde is one-half of the sister act that makes up Twins Coast to Coast. Terry and her sister Tamera have been blogging and vlogging the past few years to help educate and support others in the MS community. It is their mission to empower others to speak up, ask questions, and be involved. Terry is also very involved with the Georgia Multiple Sclerosis Society.
Instagram: @twinscoast2coast
Blog: https://twinscoast2coast.com/
YouTube: https://www.youtube.com/channel/UCRzNU19OG9QczZm6gEr7PCw
website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast.com
Dr. Diane Mueller, functional medicine expert, shares 3 ways in which we can age a little more gracefully.
Here is the special code for the hack your mind course for free:
https://mwh.thrivecart.com/hack-your-mind/?coupon=THRIVINGOVERSURVIVING
In this course (normally $297) you will learn
-
how to improve concentration and brain function
-
how to improve happiness regardless of circumstances
-
how to use your mind to improve physical health
This $297 course we are giving to thriving over surviving listeners for free
Instagram: @medicinewithheart
website: www.medicinewithheart.com
Instagram: @thrivingoversurvivingpodcast
website: www.thrivingoversurvivingpodcast.com
Clare Reilly shares her adventures running an off-the-grid outdoor education center, a wife, a mom, and a podcaster. Clare is the host of the MS Understood Podcast. This eco-aware Aussie has never let her multiple sclerosis diagnosis stop her from living out her dreams. Join me as I chat it up with Clare.
Instagram: @clare.reilly
website: https://clarereilly.com
Instagram: @thrivingoversurvivingpodcast
website: www.thrivingoversurvivingpodcast.com
Edie and Dr. Diane Mueller discuss how Lyme and mold impact us spoonies in a disastrous way. Thank you to Dr. Mueller for the freebie below!
Here is the special code for the hack your mind course for free: https://mwh.thrivecart.com/hack-your-mind/?coupon=THRIVINGOVERSURVIVING
In this course (normally $297) you will learn
-
how to improve concentration and brain function
-
how to improve happiness regardless of circumstances
-
how to use your mind to improve physical health
This $297 course we are giving to thriving over surviving listeners for free
https://medicinewithheart.com Instagram: @medicinewithheart www.thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast
With any autoimmune disease, it is not easy navigating all of the many appointments, changes in your body, and uncertainty. Sophie used her Multiple Sclerosis community to gain strength, knowledge, and courage to move forward in a positive direction and advocate for herself.
Instagram: @mssophdrum
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Karen Marshall joins us for her final installment. Don't you just love her?! She gets very personal with us by sharing how her psychologist has positively impacted her outlook on life as someone with MS. In the opening, Edie says that MS can be a bit of a bummer, if we let it. Karen shares with us how she tackled this.
https://connectthedotstowellness.com/blogandresources
Instagram: @connect_the_dots_to_wellness
www.thrivingoversurviving.com
Instagram: @thrivingoversurvivingpodcast
At 21 years old, Mara Fowler was told she had Multiple Sclerosis. It has been quite a journey for her with lots of ups and downs. 22 years later, she is embracing her diagnosis. Now, as a professional yoga instructor, she specializes in restorative yoga as she feels joy by helping others with MS. Shhh.... she is actually Edie's yoga instructor.
contact Mara: msyogamovements@gmail.com
Instagram: @msyogamovements
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Karen Marshall returns to share her thoughts concerning toxins. You might be surprised about some of the everyday products she mentions. It can actually be overwhelming.
I like what Karen says though, you know, about starting small and go from there. The last thing we want is for us spoonies to be overwhelmed.
www.connectthedotstowellness.com
Instagram: @connect_the_dots_to_wellness
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Leann Stickel, a fellow MS'r, shares her perspective of tackling this disease. She is an eternal optimist and seeks to live her best life. Leanne is also the founder of the kid's triathlon, Tri 2 Beat MS. As a result of her fundraising, she now sits on the board of The Central Illinois MS Council. Leann is also a life coach who helps women dealing with chronic illness to feel happy & hopeful.
www.LeannStickel.com
FB Group: Not defined By Chronic Illness
http://www.tri2beatms.com/
Instagram: @iamleannstickel
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Kelsey Harris is a Psychotherapist. She shares her insight on how those of us with chronic pain can manage symptoms and make the most of our lives.
Podcast: Chronically Living and How to Make the Most of It
Instagram: @chronically.living_
Website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Candice Lewis, the host of MS Conversations with Candi, shares with us her journey and how she became an advocate for insurance reform after her own struggles getting started with a DMT. Join me, as I chat it up with Candice.
Website: www.msconversationswithcandi.com
Instagram: @ms_conversations
Website: www.thrivingoversurviving.com
Instagram: @thrivingoversurvivingpodcast
Karen Marshall chats it up with Edie again. This time, she puts her nutritionist hat on to share with us her 8 essential foods for optimum health. As an expert in the paleo lifestyle, Karen's list is unique. Listen for some great tips on the best way to prepare these foods for health and taste.
Website: www.connectthedotstowellness.com
Instagram: @connect_the_dots_to_wellness
Website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Corey Mitchell, diagnosed with MS, is the founder of The Corey Mitchell Multiple Sclerosis Foundation. His mission is to support other people with MS when they arrive home following diagnosis.
The motto of the foundation is...For a dog fears nothing, that's why we take a bite out of MS. Corey lives by this as he will not give up and is working hard every day to get back on his own two feet again.
Instagram: @the_cmmsfoundation
Website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Sofia provides dance lessons for people with disabilities including those of us with MS. Remember Julie Stamn from Episode 17? She was the one who introduced me to The Dancer Movement where Sofia designs all the classes. I love finding new outlets to get support from. Best is that the classes are in person and through online video services. Let's chat it up with Sofia.
www.thedancermovement.com
@sofiablasco97
www.thrivingoversurvivingpodcast.com
@thrivingoversurvivingpodcast
Alexandria was a science teacher and a realtor. Typical MS overachiever. One day she completely lost her ability to walk, speak, and see. How does she go from this to being on point shoes? So glad I was able to talk with this thriver! Join me as I chat it up with Alex.
Instagram: @alexandriagem007
www.thrivingoversurvivingpodcast.com
@thrivingoversurvivingpodcast
Dr. Banik's last visit with us in this trilogy on eye health. In this episode, she reveals her five pillars to ensure we are taking proper care of our eyes. No optic neuritis here! Thank goodness. Hopefully, by following these tips, I will never get it.
Dr. Roni Banik
Instagram: @dr.ronibanik
www.thrivingoversurvivingpodcast
Instagram: @thrivingoversurvivingpodcast
On this episode, I chat it up with Lizzie who lives in Yosemite National Park. She takes full advantage of her surroundings. She is even training for an Iron Man.
Lissette Galarza
@msironman
www.thrivingoversurvivingpodcast.com
@thrivingoversurvivingpodcast
Dr, Roni Banik joins the thriving group for part two in her series on the eye. This time she is sharing with us about how nutrition impacts how our eyes function. Join me as I chat it up with Dr. Banik.
Dr. Banik
www.rudranibanikmd.com
Instagram: @dr.ranibanik
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Canadian Ardra Shephard has shared her unfiltered life in her blog www.trippingonair.com for six years. This self-proclaimed Rollator Supermodel is breaking stereotypes and voicing her truth about the realities of her autoimmune disease. Join me as I chat it up with Ardra.
#babeswithmobilityaids
Instagram: @ms_trippingonair
Sign up for my weekly newsletter www.thrivingoversurviving.com
Instagram: @thrivingoversurviving.com
Dr. Rani Banik is an integrative neuro-ophthalmologist. She focuses on both western and holistic medicine. She joins me for the first of three episodes focusing on brain and eye health. In this episode, Dr. Banik shares her insights about Optic Neuritis; causes, triggers, and how to prevent future occurrences.
More about Dr. Banik: Her practice promotes an integrative approach to vision and brain health that incorporates nutrition botanicals supplements and lifestyle modification, along with traditional western medical therapies.
Instagram: @dr.ranibanik
Facebook Groups: Eye on Migrain & EnVision Health
Sign up for my weekly newsletter beginning in October www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
When Karen Marshall was diagnosed with multiple sclerosis, although it was difficult to accept, she was not surprised as several people in her family also suffer from MS including her mother. Karen realized her lifestyle needed an adjustment. As she began to make some changes Karen wanted to learn more about how diet and lifestyle contributed to her overall wellbeing and she went back to school to study nutrition. Karen lives a Paleo lifestyle and she would love to help you on your journey too.
You can find Karen at: www.connectthedotstowellness.com
Karen's Instagram: @connectthedotstowellness
Sign up for the Thriving! weekly newsletter on the website
www.thrivingoversurviving.com
Instagram: @thrivingoversurvivingpodcast
Dr. Samantha Benson joins me for the final episode of our three-part series. The physical therapist and soon-to-be author is in specializes in patients with MS. She also knows the importance of tracking your own health.
-
know your muscle groups
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fatigability
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glutes, squats, and burpees, oh my!
Dr. Benson's Instagram: @rahabforyourbrain
Dr. Benson's website: www.brainhabpt.com
Instagram: @thrivingoversurvivingpodcast
Website: www.thrivingoversurvivingpodcast.com
Alex was diagnosed with Multiple Sclerosis when he was 16 years old. He didn't have a lot of certainty in his life, but he knew he was facing a life-long battle. In college, when he met Jessie, Alex thought he had no shot with the most beautiful woman he had ever seen. A wedding and two kids later, Alex is doing things he was told he was never going to be able to do. Join me as I chat it up with Alex.
Website: www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Dr. Samantha Benson joins me for the second time in a three-part series. This physical therapist and soon-to-be author is a sucker for Harry Potter. But more importantly, she is in tune with the needs of our community as she specializes in patients with Multiple Sclerosis.
Join us as she shares strategies to get us in the right state of mind.
Dr. Benson's Instagram: @rehabforyourbrain
Dr. Benson's Website: www.brainhabpt.com
Instagram: @thrivingoversurvivingpodcast
Website: www.thrivingoversurvivingpodcast.com
Julie Stamm, like most of us, has encountered many ups and downs on her journey with Multiple Sclerosis. She was told that children were not an option, so don't tell that to her son. Julie's book, Some Days, is a story that depicts her relationship with her son and the adventures they enjoy together even on her most challenging days. And that's not all! This warrior is actually participating in a clinical trial for stem cell therapy. Join me as I chat it up with Julie.
Julie's Instagram: @Iamstam
TOS Instagram: @thrivingoversurvivingpodcast
TOS Website: www.thrivingoversurvivingpodcast.com
Visit the website for more info about the show, check out the merch store, and more!
Dr. Samantha Benson joins me for the first of a three-part series. This physical therapist and soon-to-be author is from the city of Philadelphia. She is in tune with the needs of the MS community as she specializes in patients with Multiple Sclerosis.
Join us as she outlines some specific strategies to support newly diagnosed MS Warriors.
Dr. Benson's Instagram: @rehabforyourbrain
Dr. Benson's Website: www.brainhabpt.com
Instagram: @thrivingoversurvivingpodcast
Website: www.thrivingoversurvivingpodcast.com
Kerri lost her brother, FDNY Firefighter Michael Kiefer, on 9/11/2001. But her story does not end there. Although this was a significant loss to her family, the FDNY, and so many more, Kerri finds strength in her brother's memory and uses this to battle her multiple sclerosis. Contact Kerri on Instagram: @fd132ny
Contribute to the Michael Kiefer fund: paypal.me/fdnyffmichaelkiefer
Contact Edie:
website: www.thrivingoversurvivingpodcast.com
email: edie.sohigian@thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivngpodcast
Dr. Gretchen Part 3: When you have Multiple Sclerosis, balance takes on so many more meanings. Dr. Gretchen Hawley explores how making a few small adjustments may make a big difference with balance & alignment.
Instagram: @doctor.gretchen
www.doctorgretchenhawley.com
Instagram: @thrivingoversurvivingpodcast
www.thrivingoversurvivingpodcast.com
Ashley Ratcliff, the author of Jesus Year, shares her journey as a newly diagnosed MS patient. This compelling story chronicles the ups and downs of Ashley's first year as an autoimmune warrior & how she leaned on God to get her through.
Instagram: @ashleyadores
Instagram: @thrivingoversurvivingpodcast.com
www.thrivingoversurvivingpodcast.com
For people with Multiple Sclerosis getting tired is no joke. It is not the regular type of tiredness that most people feel. I am talking complete exhaustion without cause. MS warriors call this fatigue. In this companion episode, Dr. Gretchen Hawley shares with us some information and tips on how to battle fatigue.
Instagram: @doctor.gretchen
www.doctorgretchenhawley.com
Instagram: @thrivingoversurvivngpodcast
www.thrivingoversurvivingpodcast.com
Angie Gensler has battled through so much in her life, but her warrior tendencies always shine through. This Multiple Sclerosis thriver shares her story of how she has overcome obstacles to be the healthy and inspirational person she is today.
Instagram: @angie_msstrength
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Do you ever get super dizzy? Does it last for days on end? In this episode Multiple Sclerosis Physical Therapist Dr. Gretchen Hawley shares with us some tips to overcome bouts of vertigo.
Instagram: @doctor.gretchen
www.doctorgretchenhawley.com
Instagram: @thrivingoversurvivingpodcast
www.thrivingoversurvivingpodcast.com
Clarissa Hidalgo has worn many hats. As an MS warrior, student, yoga instructor, and wife she shines. But her favorite role is being a mother. In this episode, we chat it up with the Main Mama of Multiple Sclerosis.
Instagram: @multiplesclerosismamas
www.thrivingoversurvivingpodcast.com
Instagram: @thrivingoversurvivingpodcast
Eve shares her journey with Multiple Sclerosis for the first time here on our show. And what a journey it has been! This sweet soul explains the lifestyle choices she has made to live her best life. If you want some seriously helpful tips on how to manage your MS without medication, this is the show you must listen to.
Cassidy & Julie Companion: In this companion episode, we examine STEM Cell therapy from Julie's first-hand account of the process. I had no idea there was so much to it, and these MS warriors say they would do it all again if they needed to.
Cassidy & Julie share their stories with multiple sclerosis. They both also had stem cell transplants, HSCT. These two women took charge of their health and rose like true MS warriors to change their futures.
Welcome to the Thriving Over Surviving Podcast. I am the host, Edie Sohigian. In this episode, I shared my story with Multiple Sclerosis and how I got to where I am today, which is still a work in progress. Those of us on this road with autoimmune diseases all experience different physical symptoms, but we are all trying to live our best lives. Please visit the website at www.thrivingoversurvivingpodcast.com for more information about the show, my guests, and more.
Instagram: @thrivingoversurvivingpodcast
Welcome to the Thriving Over Surviving Podcast. In this episode, I am with a fellow educator, my longtime friend, Melissa Gordon. During this episode, Melissa and I talked about her story when she was diagnosed with multiple sclerosis and discuss what inspired her to start doing marathon training. Listen to her as she talks about how she's navigating her new normal Multiple Sclerosis life. I hope you enjoy and get inspired by her journey.
The Thriving Over Surviving Podcast brings autoimmune warriors together to build community and grow with one another. Diseases such as Multiple Sclerosis (MS) can impact our lives in ways that may become overwhelming. We are here to support and encourage one another along our journeys. By listening to each other’s stories, our goal is to inspire fellow warriors to thrive in spite of a specific diagnosis.