My Complex Parenting Podcast: Recent Episodes
mycomplexparentingpodcast
Parenting a medically complex child rarely comes with a handbook. This podcast explores the world of parenting issues and the science surrounding raising our incredible kids.
Rachel has the opportunity to chat with author and advocate Sue Robins about her newest book, Ducks in a Row. Join them as they chat about what it means to tell your story as a parent and the many ways in which that can happen. They provide advice about how to tell yours not only well, but safely as you share your experiences with others.
Join Rachel as she talks to Jo from Mummy vs AAC about how being a speech language pathologist overlapped in her life raising her incredible daughter. Rachel and Jo talk about the various challenges and victories that come with trying to navigate this area of the communication world!
Join Rachel as she talks about the efficiencies parents create in their lives to streamline complex tasks. Seriously people! Write your brilliant ideas down! You're all so smart!
Join Rachel as she talks to two moms who were inspired to create a community of support and resources that they knew from their own experiences would benefit families greatly! This episode is about seeing the gifts in each other and how we can sometimes use that to help inspire new ideas.
Rachel talks to Stephanie St. Pierre, the founder of Chromosome 22 Central. Stephanie created an organization to aid in the development of science surrounding her daughter's rare chromosome diagnosis. Join our conversation about what it means to pioneer in the science surrounding your child's diagnosis!
We all want to do right by our kids. When emotions are high, it can be a challenge to sort through scientific information with objectivity. Join Rachel and her guest Lydia Greene as they talk about their struggles with parenting in a world of information, disinformation and imperfect health care relationships.
Join Rachel when she speaks with Sam Noyek as they talk about her work offering non-speaking youth to share their own stories about well-being. They cover a lot of areas in this chat including why beards are so awesome!
Join Rachel as she talks with her spouse Nick about what it means to own your space in the world. In a world that sometimes feels unwelcoming or uninformed, they share a retrospective of what it meant to participate in the community, unapologetic about who they were as a family.
Rachel gets to talk to a research team about the complex subject of behaviour in childhood disability.
Part one in a series about what we know about caregiver stress and who is missing at the table when it comes to sharing these stories!
In part 2, I talk to my friend Brenda Agnew about how the f words have become a part of her parenting experience. It's an honest conversation about what it means to see research put into practice which isn't always easy to translate. We talk about what the F words have meant in feeling less critical about our own efforts as parents and what it means to consider the F words in a global pandemic!
Everybody likes an opportunity to feel a little validated in their parenting skills! Parents of kids with health conditions often feel like there's little by way of a manual to judge what they're doing. In this episode we talk about what the World Health Organization talks about when it comes to health and functioning with a health condition. You may be surprised at how much of this you're already doing!
A new year provides a chance to possibly adopt new habits. This episode attempts to provide a few brief thoughts on the benefits of speaking during appointments, and in a context that you may have never considered! Rachel discusses a recent article she read about the changes many health care services made during the pandemic and asks the question, "what have we learned in this time and is it worth going back to 'normal'?"
Coming out of the strangest year ever, I decided to start a podcast! If you are a parent and have an interest in how families navigate complex paediatric medicine, this may be the series for you! I thought I'd start with a little introduction and help you to understand a bit as to what brought me to this little social experiment! Please do consider liking and following me on Facebook at My Complex Parenting Podcast and help build our listening community!