Live To Roll Quadcast & Women's Disability Show: Recent Episodes
Shawn Fluke
We do a weekly live stream on the Live To Roll YouTube channel which is now also available as a podcast! We discuss different topics pertaining to the disability/health care community and have new guests join us every week to share their stories and discuss the topics of the week. Producer/host Shawn Fluke.. Co-host's Tom Conway and Bobby Rohan. Tom, Bobby and I are all Quadriplegics from spinal cord injuries. Tom was injured at 4 years old and spent his whole life in a wheelchair and Bobby had his injury when he was 17. I was injured at 21 while snowboarding.. Women's Disability Show - Hosted by: Brianna Wheeler Women's Show is on LIVE YouTube on the 1st & 3rd Thursday's of the month and discusses topics pertaining to women with disabilities. You can hear more about our stories on the Live To Roll YouTube channel or on Instagram @livetoroll
The ladies of Wheel Girl Talk discuss how they continue to work on loving themselves while living with a disability.
Special Guests Rocky and Sarah (@therockyandsarah) talk with Shawn and Bobby about the importance of good communication and support in maintaining a healthy relationship with your partner. They share about how they make it work between them and managing disability while living the van life on the road.
The guys talk with Dominick Taitano about what it's been like over then years as a near full time ventilator user and how he is able to stay active and enjoy experiences in life.
Ken Nelson talks with the guys about his experience navigating public transit while being a power chair user. Check out this episode for suggestions on where to catch a stop for sightseeing if you're in Los Angeles, tips for safely utilizing the public transit systems and a real take on what the experience is like for someone with a disability to move around the city.
The newest show on the Live to Roll network - Rolling with the Golden Oldies - features the experiences of 4 women with a collective 150+ years living with a disability. In the first episode, the ladies discuss falling in love and sometimes out of it and how being disabled offers some unique challenges to relationships.
On this episode of the Live To Roll Show the guys talk with Robert Soto (Rolling Over the Hill host) about their major milestones and memories in life and what they're looking forward to in their futures.
In this episode of Rollin' Over The Hill, the guys talk to friend Anthony Orefice about his journey post Spinal Cord Injury at 19 years old to his battle with addiction and becoming a Dad and mentor to others with spinal cord injuries.
The guys and special guest - Rebeca Valenzuela discuss bladder care and management. Maintaining a healthy urinary tract requires more than just knowledge...it takes advocation for your own health. Listen now for tips and suggestions then join the discussion by commenting on the Live to Roll Youtube.
The ladies share life updates and talk about the difficulty they face with managing the cold weather in another new year.
The guys discuss how the movement to protect Civil Rights have taken time to reach the disabled community. From housing to healthcare and beyond...what is the solution for a more inclusive world? How do we get there? The clear part is that we do so together.
In this addition to our Trail Blazers series, game-changing sports legend,Candace Cable talks with the guys about her medals, marathon wins and ceiling-shattering accomplishments as an athlete. She discusses the importance of her advocacy and activism in pushing for a more inclusive and equal world.
Shawn starts off the show with a big life announcement. Tom, Bobby and Shawn discuss regulating body temperature and the ways in which they stay warm in cold weather.
Shawn shares new Announcements for Live To Roll in 2024.
+New shows coming to the Network:
Gaming with Hellwheelz (Suhrab) on Mondays.
A Women's show coming on February 1, 2024 to the First Thursdays of the month.
+Upcoming virtual and in person events.
Shawn and Bobby host a discussion on fertility and parenthood after disability. Luis goes into some detail of his own journey towards having two sons after becoming a paraplegic in the early 1980's to encourage Suhrab who is actively going through a fertility journey.
Special guests: Live to Roll crew-
Luis from the Rolling over the Hill live show. Suhrab from the upcoming Monday Gaming live show.
Live To Roll - Temperature Regulation after a Spinal Cord Injury
Guest - Paul Gustafson @prg567
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Bobby - @robertrohan
Tom - @cript0n1te
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Live To Roll - Diversity and Inclusion in dance with Infinite Flow Dance Troupe
You can read about what Infinite Flow Dance stands for here: https://www.infiniteflowdance.org/about
And what Infinite Flow does: https://www.infiniteflowdance.org/what-we-do
Scoops of Inclusion, which has been the primary project during the pandemic, and illustrates the direction of where Infinite Flow Dance is headed as an organization. Check it out and watch an amazing video at: www.scoopsofinclusion.org
Website: www.InfiniteFlowDance.org
Facebook: https://www.facebook.com/InfiniteFlowDance/
Instagram: @InfiniteFlowDance Marisa - @marisahamamoto Mia - @miaschaikewitz Twitter: @InfiniteFlowOrg
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YouTube:
https://www.youtube.com/channel/UCfBa5LrfU_Ki6JbY4EmCsTw
Shawn - @livetoroll
Bobby - @robertrohan
Tom - @cript0n1te
Twitter @livetoroll
Facebook @livetoroll.org Check out the website for more information and to get your own Live To Roll gear! - https://www.livetoroll.org/the-shop/
Live To Roll - Women's Disability Show SCI / Suicide Awareness Month
Trigger warning: topics in this video may be harmful or traumatizing to some viewers. This talk will include a discussion around disability and mental health surrounding depression and suicide. Viewer description is advised.
National Suicide Prevention Lifeline 800 273 8255 California Mental Health Resources https://focus.senate.ca.gov/mentalhealth/suicide Illinois department of Public Health https://www.dph.illinois.gov/topics-services/prevention-wellness/suicide-prevention Suicide Prevention Resource Center https://www.sprc.org/contact-us
HOSTED BY: Brianna Wheeler- @brianna.rolls.on
Jessica Brito, MSW LCSW works to improve the mental health and wellbeing of individuals facing life changing events in her private practice and in the community. She is currently taking clients virtually follow @takecontroltherapy
Nicole & Ashley YouTube channel https://www.youtube.com/channel/UCJWr-lSI9wVfe4_RAvyUyjQ Instagram @ashleynikkistory / @nicolecollette3 / @ashleyllorens16
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Bladder care / catheter options
What do you use for your bladder management?
Have you tried any other options and why did you change it?
What's bladder augmentation surgery? Mitrofanoff? Suprapubic? Others?
Do you get a lot of infections? How do you manage UTI's? What do you do to prevent them?
Are there different types of intermittent catheters? What are some options?
What size is your catheter? Why would you need a different size catheter?
Pros and cons of an indwelling catheter?
Pros and cons of intermittent cathing?
Best advice for maintaining a healthy urinary tract..
*This is an early show and the sound isn't the best but its great content***
Live To Roll - Hiring a caregiver
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where to look (online, friends, agencies)
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financial assistance
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private vs covered Finding a good fit How to treat your caregiver Independence Balancing independence
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doing as much as you can - not over working yourself - don't let caregivers/family do everything if you're capable Family help
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Too much help can be not good - never neglect but giving time to figure it out can be helpful - outside caregivers can lighten the load on family
Thanks for watching & Please Subscribe!
Follow us on social media!
Instagram @livetoroll
Shawn - @shawnfluke
Tom - @cript0n1te
Russ - @russ_on_wheelz
Twitter @livetoroll
Facebook @livetoroll.org
Check out my website for more information and to get your own Live To Roll gear! - www.Livetoroll.org
Live To Roll - Bowel care options and Bowel program
Contributing factors - Timing, diet, fluids, medication, seating position, stress, comfort, illness, activity level(mobility), external massage (rubbing belly), weather and Valsalva (bearing down) This technique is not recommended for patients with cardiac problems.
Manual Removal Physical removal of the stool from the rectum. This can be combined with a bearing down technique called a Valsalva maneuver (avoid this technique if you have a heart condition).
Suppositories - pros and cons Dulcolax (stimulates the nerve endings in the rectum, causing a contraction of the bowel) Glycerine (draws water into the stool to stimulate evacuation). - magic bullets Digital Stimulation Circular motion with the index finger in the rectum, which causes the anal sphincter to relax Ememeeze and other enema type options Softens, lubricates, and draws water into the stool to stimulate evacuation. - pros and cons
Assistive / Adaptive Devices Devices such as a suppository inserter, finger extension or digital stimulator may be required to assist you in establishing a successful bowel program.
Colostomy (ostomy) - What it is and how it works - maintenance - pros and cons - quad tips and tools (releasing the excess gas)