Autoimmune Community Voices: Recent Episodes
Autoimmune Community Institute
Autoimmune Community Voices podcast features conversations with the diverse autoimmune community.
This is a podcast of the Autoimmune Community Institute - acicommunity.org
Jessica Castellanos is a Communications and PR Manager and host of PHA Radio podcast at Public Health Advocates.
Jessica joins us today to tell her story about living with lupus, her diagnosis experience, the experiences of BIPOC patients and unrecognized symptoms, and her tips and advice for those who are new to the lupus or autoimmune experience. Hablamos tambien en español acerca la experiencia de tener enfermedades autoimunes y cuales son unos consejos para vivir con el lupus.
In this episode, meet Daniel O'Leary, our blog and marketing team volunteer. Daniel shares his autoimmune story, the importance of COVID safety, and how he advocates for his health and others though sharing important autoimmune stories from our community through our blog. Daniel is a college student preparing for medical school where he wants to become a pediatric gastroenterologist to help others who are going through what he experienced as a child.
Learn more about our blog, which Daniel coordinates: acicommunity.org/blog
In this episode from this year's Autoimmune Health Equity Summit, we speak to our board member, Emmitt Henderson III and Dion Langley, who together are the Lupus Dream Team. The Dream Team shares information on awarneess of males with lupus, and the importance of staying mentally strong for quality of life. Male Lupus Warriors can be found online at @lupusdreamteam on Instagram! Learn more about the Autoimmune Community Institute: acicommunity.org
What is it like to have a dianosis that is not yet diagnosable? In this episode, we speak to Leea Sarvela, a pre-med student at the Massachusetts College of Pharmacy and Health Sciences, who shares her autoimmune diagnosis experience, which clinicians have not been able to specifically diagnose. Leea shares her experiences over the years and how she has been able to advocate for herself with the support of her friends and family. Learn more about the Autoimmune Community Institute: acicommunity.org
We share a recording of our conversation with Monika Aldarondo of PSC Mami podcast and community from our 2022 Autoimmune Health Equity Summit earlier this year. Monika discusses her rare autoimmune diagnosis of Primary Sclerosing Cholangitis in addition to Ulcertive Colitis, and provides information for our English and Spanish speaking community. PSC Mami podcast is available at pscmami.com Learn more about the Autoimmune Community Institute: acicommunity.org
We were blessed to record this episode with Dr. Noel Rose in 2019 before his passing in 2020, which happened just a week before we started the Autoimmune Community Institute. Dr. Rose is consdered the father of autoimmunology, the first to verify autoimmmune diseases as a legitimate condition rather than a precursor to other diseases. In this episode, Dr. Rose shared with us the research that took place with rabbits at the time, his interests in autoimmune disease research, and how much he enjoyed speaking to people and supporting autoimmune disease research. We hope you enjoy this special episode. Learn more about the Autoimmune Community Institute: acicommunity.org
In our first episode, our host Leea Sarvela interviews Dr. April Moreno, founder of the Autoimmune Community Institute, to introduce the organization to our listeners. Dr. April shares her autoimmune story, the beginning of the organization and why it started, and about the variety of activities we have been working on since we started in 2020. Learn more and visit our website: acicommunity.org