Minds of an Epileptic Podcast: Recent Episodes
dave
this is a Podcast about about everything to do with epilepsy. from my story to yours and much much more, that you should know need to know and understand
in this episode i talk about Dental issuse that right, due to some meds we take give use Dental issuse to the point that we can loose out teeth. not everyone has Dental issuse bot some do and its not right. but its what be go through there is alot to epilepsy you need to know.
this episode is not so much of a episode, bsck to normal tomorrow. anyway anything you want to know or want help with no matter who you are comment below or ask me to inbox you i am here to help you guys how ever i can do that is related with epilepsy. you are not alone
in this episode we talk a bout headaches in the side effects of medication. how long they last leading to more meds and why it is so common. its not a long episode its just straight to the point. i did do another ep to do with headaches which was to do with seizures more than side effects
in the last episode we talked about how med can desturb are sleep by keeping us awake. in this episode i talk about sleep the other way. lots of meds keep us sleepy all the time. and most times we sleep all day due to the meds we take some are the other way as i stated but meds make us tired.
in this episode i talk about sleep, sleep is common side effect in taking epilepsy medications. & it leads to more meds. some people do end up having no troubble, but most have that problem it is the main side effect, i did state i will be honest so im going to go through side effects 1 by 1.
in this episode i talk about Constipation, Constipation is common side effect in taking epilepsy medications. & it leads to more meds. some people do end up the other way too, but it is the main side effect, i did state i will be honest so im going to go through side effects 1 by 1.
in this episode i want to talk to you about Jerking, Jerking is very steriotyped with epilepsy and it is time it stopped. not all fits/seizures you will Jerk only a small amout will. there are many seizures where you don't jerk at all. and its time to wake up people.
in this episode i give a Med Update, part 3 as you know i am changing 1 of my meds over, phenytoin to xcopri/cenobamate i have finished changing 1 of my meds over so i tell you whats new there and if any side efect changes have happened as i have increased the dose.
in this episode i talk a bout flishing lights, i correct the ignorance of flishing lights sets off everyone with epilepsy. as most of you will know a large amount of people wrongly think flishing lights sets us all off into having a seizure. i may repete myself as its all unscripted.
in this episode i talk about things to do with epilepsy that happen out of the blue. some sensation happen out of the blue. sometimes it leads to nothing. but you shouldn't fear us, because of epilepsy get more involed and ask us things. i might repete myself without thinking now and then.
in this episode we talk about New Onset Refractory Status Epilepticus also known as N.O.R.S.E. we talk about what it is how its linked to another form and more. i also give you a few of my own imputs and explanations with in this one too,
in this episode we discuss F.I.R.E.S Epilepsy. also known as Febrile Infection-Related Epilepsy Syndrome we talk about that epilepsy it is. what stage you get this epilepsy, meds for Doose Syndrome, how Febrile Infection-Related Epilepsy Syndrome can effect you and more
in this episode i thought i'd do a episode on Tiredness and how it make us feel. Tiredness is a big facter with epilepsy and it sucks more than you know. its not something we choose, and most of us hate Tiredness being awake when you guys are not and asleep when you are away,
in this episode we discuss Doose Syndrome Epilepsy. we talk about that epilepsy it is. what stage you get this epilepsy, meds for Doose Syndrome, how Dravet syndrome can effect you. also what is the next syndrome i want to cover, and if you have anything you want to ask how to contact me.
in this episode we discuss Dravet syndrome Epilepsy. we talk about that epilepsy it is. what stage you get this epilepsy, what eds are good to help Dravet syndrome, nd what part of the body Dravet syndrome can effect.
in this episode i thought id tell you whats going on, maybe you missed a few episode or you just jumped i half way through, and your thinking what is this. there are lots of aspects that need to be covered, and i don't want to do a little i want to do it all.
in this episode we discuss West Syndrome Epilepsy. we talk about that epilepsy it is. what stage you get this epilepsy and more. i do my best in keeping it real and unscripted. i notice i sounded a bit up and down in this episode. but its best way to keep it real.
in this episode we discuss Ohtahara Syndrome Epilepsy. we talk about that epilepsy it is. what stage you get this epilepsy and what some of the signs are. i do my best in keeping it real and unscripted. i notice i sounded a bit up and down in this episode. but its best eay to keep it real
in this episode i give you info on what will be Up & Comming in the next part of season 2 i didn't want to start a season 3 because i want to start it as promised. with stories and other peoples stories/journeys. so until then its time then we Explore different epileptic syndromes
in this episode i talk about the medication Primidone, i let you know what its about. dosage for adults, side effects and much more, i even let you know what else it is used for as its not just used for epilepsy.
in this episode i give a little advice to people who help use non medically you Don't need to Feel Useless. the fact your there is enough. i kept it short after the long episode yesterday. i just want to say thank you for being you.
in this episode i talk about Epilepsy & Work, how for some its easy but others it can be hard. i also point out other things like how some people who do work think there better and judge some people like us. not everyone but it happends. i must also apologise i sounded like i wondered of talking about something else i could be wrong you tell me.
in this episode i just wanted to start Speaking From The Heart. i talk about my don't likes, hates and things i find just ignorant, plus more. i did kind of go off on one, so sorry if it goes on too long.
in this episode i give a Med Update, part 2 as you know i am changing 1 of my meds over, phenytoin to xcopri/cenobamate so i tell you whats new there and if any side efect changes have happened as i have increased the dose.
in this episose i talk about Seizure First Aid. things what you can do and things not to do. i recap it, talk about other ideas and promised ideas i put back but will be back on track.
in this episode i talk about Driving in epilepsy, and point out how unfair society it towards it, and the higher ups should slash the no driving time, until we can again.
in this episode i tell you My Goal's where i want to go with this, why im doing it. whats is next how my timing is off when i start this and much more.
in this episode i chose not to do a rant just yet instead i talk about EEGs. from how it feels, different ones/lengths, what it stands for, and more, from the mind of a person who has had many over 36 years.
in this episode we talk about Vigabatrin, i discuss the ins and outs of Vigabatrin, like what it is what are the side effects how much of a dose is needed what it goes upto, i kept it short and sweet as i want to keep it all real from a real epileptic, the next episode i will have a rant.
in this episode i give a Med Update, as you know i am changing 1 of my meds over, phenytoin to xcopri/cenobamate so i tell you whats new there and if any side efect changes have happened.
in this episode we talk about Tiagabine, i discuss the ins and outs of Tiagabine, like what it is what are the side effects how much of a dose is needed what it goes upto, i kept it short and sweet as i had some bad new today.
in this episode i talk about Emotions, are our emotions let out differently or is it just me and emotions are differenly let out person to person.
in this episode we talk about Clonazepam, i discuss the ins and outs of Clonazepam, like what it is what are the side effects how much of a dose is needed what it goes upto and talk about beta blockers and how they help people with epilepsy
in this episode we talk about Rufinamide, i discuss the ins and outs of Rufinamide, like what it is what are the side effects how much of a dose is needed what it goes upto and more
in this episode i talk about the pharmacy and how they get it wrong sometimes too. but they don't like being. have you every been given the wrong meds or dose. i sure have many times.
in this episode i talk about MD's, and wonder if Do MD's Listen i talk about how it makes me feel seeing a MD and wonder if Do MD's Listen as we wan't them to or just taking in parts. i might repete myself and wonder off in conversation but its all real and unscridted.
in this episode i talk about the med Stiripentol, i don't know much about this drug. as i don't think i have had this one and if i did i can't remember it. i go into it as much as i can do
in this episode i talk about med names and how there is more than one name pre drug. i didn't say every drug but enough for the idea. i mension what my next episode is and a very small update on me.
in this episode will get some Thinking Moaning and Ranting i go on about some things that we think about in epilepsy, moan about it, and have a random rant abot something i hate not epileptic related not sure if it my epileptic mind or me
in this episode i talk about Insomnia in epilepsy, i tell you what you need to know why it happends and more i also mention some of the worries for us with the struggle of Insomnia, i might repete myself but im only being me and im keeping it real and unscripted.
in this episode i talk about Med change part 2 and how we have to do it. i thought id do thistopic as it is something we do a few times unless you are 1 of the lucky few out there. i was going to have a rant but thought it might be best giving you the full details of med change .
hello and welcome, in this episode i talk about Med change and how we have to do it. i thought id do thistopic as it is something we do a few times unless you are 1 of the lucky few out there. i also have a little rant on what my next episode will be.
in this episode i talk about me going to start Cenobamate, i also tell you about the Cenobamate medication it's self. from what it looks like to the side effects and how it comes in the packs as you build up on it. just incase i talked about this i added other stuff in too.
this episode is about Lansoprazole, if your thinking hey wait a second what has Lansoprazole got to do with epilepsy thats no epilepsy medication. then come listen and seen. i also rant about doctors not listening to us. also my thoughts on why i think we have localised focal seizures, i might get generalized mixed up if so sorry.
in this in this episode we talk about fenfluramine i tell you what i went through, and talk about the drug its self. we go into a few different things that might intrest you. i also give a update on my epelepsy situation.
on this episode i talk about myself a little and the struggles of remembering meds. i tell you how i got my epilepsy and how the name changed the older i got. i moan about how i am now and more stuff.
in this episose i talk about Aura's & Health Care. Aura's manistathate in many ways they are all different in each person. some auras can be the actual seizure its self mainly a partial seizure. i also talk about our Health Care as we have two types
in this episode i will descuss the med Everolimus, Everolimus is also used as a cancer medications too. i talk about that. i mension how this drug is for people with my epilepsy but failed due to my body not liking it. i also state how you can have meds but your bodies don't take to them.
in this episode i talk about Ethosuximide i had to study this one a bit as its one of the very few i have never taken. the order how i do these sort of episodes might come off odd as its new to me. i do my best going throgh the ins and outs. still unwell so i apologies if it sounds wrong.
in this episode, i just have a bit of a ramble/rant about different things. i just start rambling on why meds don't always work for all of us, and they do for others. stigma, suicides, health care, the gm and more. i also ask if you can help me share your story and give you a update. order not as listed.
in this episode i talk about the med Eslicarbazepine, i tell you the dosage the amounts and more. i even talk about my small exspireance with it in 2019. i also have a ramble and go on with myself a little.
in this episode i talk about the new things i want to do, i also let the cat out the bag and tell you what seaon 3 will be. i also talk about other stuff im going to do even tell you about what happends in the next episode aswall.
in this episode i talk about Memory, Memory loss is a big factor in epilepsy and we get stigmatized for it a lot and it make us feel alone. i also give a health update. not much change but i will do this for you guys.
in this episode i give you a update on my status, how im doing and whats wrong now. i also share a suprise with you, and let you know what im doing. i mension another suprise coming to as of episode 50 but don't tell you what it is.
in this episode i talk a litle about Piracetam i tell you about it and some of the diffenent things it is used for. i also go into other things about this drug how it comes and describe it. i will mension i had to edit a big gap becuase i did have a absence seizure half way through. i will do something special for the 40th episode which will be the next episode.
in this episode i have a bit of a epilepsy rant while i talk about epilepsy its self. i bring up how it can be annoying, and how it likes to have a mind of its own with sods law. also a little more about how i am doing
in this episode i talked about Triggers and some different ones that cause a fit, i had a bit of a rant with it too, as it needed to be said from the other side of things because im sick of the stigmatism . i all so give you a small update on my health
in this episode i was going to do another episode on a med but chaged my mind to something that needs to be talked about so i talked about headaches and i had a bit of a rant with it i might have mensoned some other stuff people might not like but it needed to be said from the other side of things. i all so give you a update on my health
in this episode we talk about Oxcarbazepine i got in to the ins and out of it. i kept it short and sweet as i still don't feel well and i have had a few fits i hope you enjoy this episode the sooner im better i will do a few longer ones
in this episode we talk about Clobazam i tell you what i went through, and talk about the drug its self. we go into a few different things that might intrest you. i also give a update on my epelepsy situation.
in this episode i talk a litle bit about Pregabalin i tell you about it and some of the diffenent things it is used for. i also go into other things aboot this drug. i can't say i know alot about it as i was 10 when i took this medication but i will do my best
in this episode we talk about brivaracetam, brivaracetam is the sister drug to keppra. i discuss the ins and outs of brivaracetam, and more
In this episode we talk VNS i shed some light on what it is for, what you do and some of how it works. i did my best to learn what i can about this while i feel unwell. remember im not a doctor so this is just from a epileptivs mind.
in this episode a just wanted to have a bit of a moan, as im not doing to great. and i going into things on how they suck when plans have to be changed. and much more
in this episode i talk about some of the sensations and feelings in seizure activty im having at the moment. from what its described as to how what some of it feels like i talk about how im feeling to. just thought i would have a small break away from meds.
in this episode we take about Acetazolamide, i tell you dosages, side effects, and more. i can't remember much of the drug so i tried a different way. i also tell you more of things to come and goals i want to aim for.
in this episode i talk about Cannabis and epilepsy. i talk about the drug its self the Cannabis oils and the Cannabis seaziure med called epidiolex. i can honestly say i haven't had epidiolex but i have had Cannabis and Cannabis oils.
in this episode i talk a litle bit about Topamax tell you about it and some of the different things it is used for. i also go into other things about this drug. in the next episode we will discuss cannabis
in this episode i talk a litle bit about Lamotriginei tell you about it and some of the diffenent things it is used for. i also go into other things about this drug. and talk about some new things that are coming as after this week or next there will be a new topic/season depends how long it takes. but listen to find out
in this episode i talk a litle bit about Gabapentin i tell you about it and some of the diffenent things it is used for. i also go into other things abot this drug. i can't say i know alot about it as i was a toddler when i was on it. now they don't give it you if your over 12. or for a different complaint.
in this episode i talk about the drug carbamazepine i share my exspireance with this medication, the types of carbamazepine dosage and much more.
in this episode we talk a little about the medication Zonisamide i tell you the side effects the issuses i had with the drug, and go into detale a little bit. just because i had trouble doesn't mean you will.
in this episode i change things up a bit and talk/rant about on epilepsy shaming how it is not nice, not fair, and it isn't right. treat us how you want to be treated.
today way are going to talk about Epilim, i will talk about the med the dose, how i was effected by it and much more.
in this episode i have a small descusion about emergency seizure medication, i can't say much as i do not know much of it, iv just been given it. so this episode will be short. in the next episode we will talk about epilim.
in this special episode i share with you my story my struggles and how ive been stigmatized all my life with epilepsy this is the short version part two. didn't want to bore you to much i hope you enjoyed it. i will go more indepth as time goes on.
in this special episode i share with you my story my struggles and how ive been stigmatized all my life with epilepsy this is the srort version it will be in two parts though. because even the short version isn't short. i hope you enjoy and come back to part 2.
in this episode i briefly discuss the the drug perampanel in my own words. from what dose there is the tablet its self and trouble i had with this . the side effects and more. i will be doing a youtube video on this at some stage too.
in this episode i briefly discuss the drug called lacosamide my own words. from what dose i take to what dose sizes are the tablet its self. side effects and more. i will be doing a youtube video on this at some stage too.
in this episode i descuss the drug called phenytoin my own words.
from what dose i take to what dose sizes are the tablet its self. side effects and more. i will be doing a youtube video on this at some stage too.
welcome back people. im this episode i descuss the drug called keppra in my own words.
from what dose i take to what dose sizes are the tablet its self. side effects and more. i will be doing a youtube video on this at some stage too.
in this episode im going to be talking to you about the introduction to medications and go into detail with the medications.
i want to cover everything to do with epilepsy. and medications are the biggest part of our lives
i will cover the good, the bad and the ugly side of them too.
even stuff you don't know
im hoping it will help others with there struggles as well as me telling you mine.
in this special episde i descuss my medication how many of us are on more than one kindof medication, the amount i take, my recent appointmeant and more. this is from from an epileptics mind and how it feels to us and to have them.
hi welcome to the last part/episode of season one. in this episode, i will be talking a little about epilepsy its self, how it makes us actually feel when we are, left out, judged, ignored, not listened to and much more. this is just an opinion from an epileptics mind and how it feels to us and to have them.
in this episode we descuss a small amount. about how you can have a seizure and not be epileptic. known as N.E.A.D or Non-Epileptic Attack Disorder i don't tend to suffer with theses ones myself. but the ones that do have said they aren't that nice. this is just an opinion from an epileptics mind and how it feels to have them.
in this episode we will be talking about photosensitive seizures, thats right the main one we get steriotyped with and it is annoying. my take on it and why it is one of the worst ones out their if not thee worst kind of seizure to have. i don't tend to suffer with theres ones much myself. but the ones i have had aren't that nice. this is just an opinion from an epileptics mind and how it feels to have them.
in this episode. episode 1 part 5 we will be descussing nocturnal seizures some of the things that happen and how they are one of the worst ones out their. even why we hate going to sleep to why we worry about these ones the most this is just an opinion from an epileptics mind and how it feels to have them.
in this episode we are going to descuss grand mal seizures, yes grand mal seizures one of the ones most of the general steriotype us with. my take on it and why it is one of the worst ones out their if not thee worst kind of seizure to have. this is just an opinion from an epileptics mind and how it feels to have them.
in this episode, episode 1 part 4 i will be talking about absence seizures and how we feel when the genaral public just turn a blind eye to these type of seizures and make us feel bad for these ones. this is just an opinion from an epileptics mind and how it feels to have them.
in this episope i will be talking about seizures and different seizures, i will be going into the one people don't know much about and some of the feelings we get when they happen. i will be breaking the episode's into parts. this one is going to be episode 1 part 3, and in part 3 we will descuss about focul seizures and why they can be annoying. and the small differeces there is between complex partial seizures all though complex partial seizures are a form of focul seizures. this is just an opinion from an epileptics mind and how it feels to have them.
in this episope i will be talking about seizures and different seizures, i will be going into the one people don't know much about and some of the feelings we get when they happen. i will be breaking the episode's into parts. this one is going to be episode 1 part 2, and in part 2 we will descuss about complex partial seizures and why they can be annoying at times this is just an opinion from an epileptics mind and how it feels to have them.
in this episope i will be talking about seizures and different seizures, i will be going into the one people don't know much about and some of the feelings we get when they happen. i will be breaking the episode's into parts. this one is going to be episode 1 part 1, and in part 1 we will descuss about drop attacks and why they are one of the worst kind this is just an opinion from an epileptics mind and how it feels to have them.
in this episode im going to be talking to you about what my podcast will contain and the things i am hoping to do. i want to cover everything to do with epilepsy.
the good, the bad and the ugly.
even stuff you don't know
im hoping it will help others with there struggles as well as mine.