The Parkinson’s Liferaft Podcast: Recent Episodes
Parkinson’s Life Raft
The aim is to connect people who are interested in Parkinson’s via interviews from various different angles.
Andrew Cheal tells us how Table Tennis has been beneficial to his Parkinson's health. Muz, his coach, tells us how it's so cheap and easy to play.
Two brave people describe their experience of having had the DBS (Deep Brain Stimulation) operation. It's all positive .... if you are right for this operation ... go do it!
Nick Ephgrave has worked as a Local Adviser for Parkinson's UK for over 15 years.
What he doesn't know about the help you can get is not worth knowing!
Have a listen to his advice and knowledge. Asnd he's funny.
The Parkinson's UK Brain Bank is the world's only brain bank solely dedicated to Parkinson's research.
The Brain Bank, based at Imperial College London, collects precious tissue from people with and without Parkinson's who have decided to leave their brains to Parkinson's research.
The donation of brain tissue has already led to major advances in our understanding of Parkinson's, and resulted in new treatments being developed and tested.
People with and without Parkinson's can sign up and pledge to donate their brain for research. Donation is not an easy decision and we are extremely grateful to the donors and their families who have chosen to do this.
This is a recording of a talk which Prof David Dexter gave to the Kensington and Chelsea Parkinson's Support Group all about the Brain Bank. He kindly allowed us to share it with you all.
Nigel Craig and an anonymous lady both share their experiences as Carers to their loved ones who have Parkinson's.
These are open and honest feelings.
And a new suggestion for replacing the word "Carer"!!
Justin Fields was 26 when he got diagnosed with Parkinson's .... 12 years later, he has had DBS and climbed Kilimanjaro.
This is a great listen! You can also SEE it on YouTube https://www.youtube.com/watch?v=3sgOBXhaCPk
Blake Bookstaff lives in Tennessee, USA. He's written a book about his experience of being diagnosed with Young Onset Parkinson's. He is very positive and it is good to have someone from across the pond!
Rory Cellan-Jones, of Movers and Shakers fame, chatted with me about his experiences with Parkinson's, his piano lessons and his rescue dog!
He's a very upbeat and lovely man ... I think you'll enjoy this:)
STAY WITH ME .... ha ha .....
Dr Olena Edwards is a Couples Therapist working in London.
She has a lot of experience of working with couples where one of them has a life changing condition ….. eg: Parkinson’s.
Dr Olena talks to me about how to open up a conversation with your partner about the emotional side of your relationship. She has some great tips including how we can come to terms with the limitations that do eventually occur in a physical relationship.
The Revd Tony Miles speaks about his experience with his father who had Parkinson's. Tony is a lovely and most generous hearted person .... his father did a good job! Tony also discusses how faith in God has not been for everyone in his family.
Jonathan Grundy has had Parkinson's for some years now and yet still manages to ride his bicycle all over London and volunteer for Research Trials. He speaks French and Spanish and is a lighting expert ..... and here he is now to light up our podcast.
Will Cook, energetic CEO of Cure Parkinson's, tells us how he and his team are innovative and disruptive to give justified hope to curing Parkinson's.
Matt Eagles was diagnosed with Parkinson's at the age of 7. Thanks to a brain implant, he is living a happy and productive life.
Philippa Fawcett has Parkinson's .... and she also has an interesting tale to tell .... she's funny and delightful ... you'll love this episode.
Mental strength is so important ..... Gary is Chair of the Board of Trustees of Parkinson's UK. He has Parkinson's and yet he still runs marathons, cycles, swims, chairs two other big organisations and is involved in many other things.... he's a marvel and a perfect example of a 'can do' attitude .... he lives and loves life!
Beckie Port is a multi-award winning science communication and engagement specialist.
In this episode, Beckie makes the science of Parkinson's Disease clear and easy to understand.
Dr Ellen Poliakoff, Senior Lecturer in Psychology and Cognitive Neuroscience at Manchester University explains her project BEAM ..... how Body and Eye and Movement connect and help people with Parkinson's to train themselves to move when they are stuck.
Dr Elina Tripoliti, Clinical Specialist Speech and Language Therapist explains all about speech and movement disorders