Down There Aware: Recent Episodes
Down There Aware
This week, Mary and Alex discuss Pinktober, Breast Cancer, and charitable giving.
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Reposting this incredible interview with Yohanna Hoehler in honor of Gynecologic Cancer Awareness Month!
Yohanna Hoehler (39), is a Vulvar Cancer Survivor and Advocate. She is the founder of the Vulvar Cancer Awareness Forum, a non-profit organization. VCAF focuses on raising awareness and educating on all things Vulvar Cancer and provide support to those who have been diagnosed. Yohanna also actively advocates and lobbies for new Vulvar Cancer research and treatment advancements as most of what we know about this cancer is based on outdated information.
IG Handle: @vulvarcancerawareness
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In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Mary's perspective following Alex's cancer diagnosis.
During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories. Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist.
The Foundation for Women’s Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more.
GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage and #Move4Her
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On this week's episode, Alex speaks with Dr. Tania Small. Dr. Small is the Global Head of Oncology Medical Affairs and Chair of R&D Diversity, Equity, and Inclusion Council at GSK. They discuss disparities in diagnosis, treatment, clinical trials, and survival rates of uterine and endometrial cancer among Black, Asian, and Hispanic women. Dr. Small shares her thoughts on ways physicians and pharmaceutical companies, as well as patients, can make changes to bring about meaningful change.
GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage #WorldGoDay #Move4Her #GynecologicOncology #RacialBias #BlackWomen #advocacy #anchor #podcast #research #spotify #nonprofits
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Summary Keywords
Gynecologic Cancer Awareness Month, GCAM, Move The Message, World GO Day, Move4Her Gynecologic Oncology, Racial Bias, Black Women, advocacy, anchor, podcast, research, Spotify, nonprofits
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In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Alex's cancer story.
During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories.Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist.The Foundation for Women’s Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more.#GynecologicCancerAwarenessMonth#GCAM #MoveTheMessage and #Move4Her
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This week, Mary and Alex watched the 1944 film “Gaslight” to learn about the origin of the commonly-used term of psychology of the same name. They discuss ways in which they have been gaslit by medical professionals, as well as how to recognize medical gaslight and ways to advocate for your health when a doctor tries to downplay your symptoms.
Podcast #Spotify #Anchor #research #advocacy #cancer #gaslighting #IIH #CSF #ocularmigraine #lumbarpuncture #shoulderdystocia
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Episode Links
What is gaslighting? Examples and how to respond
Shoulder Dystocia: Signs, Causes, Prevention & Complications
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:23]
- Pickleball [1:57]
- Gaslighting [3:05]
- American 1944 movie [3:40]
- Mary’s personal gaslighting story [5:28]
- Shoulder dystocia [6:47]
- High risk pregnancy [8:35]
- Elective C-section [9:40]
- Advocate for yourself [11:34]
- Alex’s personal gaslighting story [12:05]
- Idiopathic Intracranial Hypertension (IIH) [12:20]
- Ocular Migraine [13:15]
- Lumbar puncture [13:40]
- Thank you, Merry-Jennifer! [15:20]
- Cerebral Spinal Fluid [15:48]
- Vulvar Cancer Network [19:04]
- ER doc’s perspective needed [20:03]
- Opioid crisis [22:50]
- High pain threshold [23:03]
- Mary’s colonoscopy follow-up [23:43]
- Only apology[25:25]
- Ingrid Bergman & Angela Lansbury [28:33]
- Medical gaslighting [30:22]
- Thanks for listening! [31:20]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, cancer, gaslighting, IIH, CSF, ocular migraine, lumbar puncture, shoulder dystocia
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This week Mary and Alex discuss the lack of attention to detail that can have devastating results, especially in the medical community. They share personal experiences and cite articles that discuss the consequences that can result from a lack of attention to detail.
Podcast #Spotify #Anchor #research #advocacy #cancer #attentiontodetail #colonoscopy #eliquis #polyps #slowdown #trustyourgut
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Episode Links
Down There Aware
Attention to Detail (or the lack thereof) – Hug the Mountain
Bristol-Myers Squibb recalls pills with wrong dose - nj.com
High Cost of Small Mistakes: Most Expensive Typos of All Time
The Relationship of Parental Attitudes and Expectations to Children's Mathematics Achievement Behaviour - Delene Visser, 1987
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- It is HOT! [1:32]
- Back to school time [1:50]
- College town [2:38]
- Why today’s topic? [3:06]
- Attention to detail [3:30]
- Mary’s colonoscopy [3:50]
- Bloodthinnners [5:38]
- Trust your gut [6:14]
- That’s Sadie’s tail thumping! [6:35]
- Come prepared [7:17]
- Polyps [7:48]
- No one apologized [10:05]
- Write down names [11:59]
- Correct spelling of names [13:30]
- Pharmaceutical mistakes [15:45]
- Oops! Battery died! [16:37]
- Checks and balances? [16:41]
- Life and death [17:10]
- Mary’s theory [17:17]
- 90’s warm and fuzzy[17:30]
- Alex’s dishwashing lesson [21:10]
- My job as your mother [22:14]
- Children will rise to your expectations [23:16]
- Everything goes faster [23:27]
- Alex’s staple removal story [25:41]
- Thank heaven for Ginny! [28:35]
- A challenge to slow down [31:00]
- Thanks for listening! [31:36]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, cancer, attention to detail, colonoscopy, polyps, eliquis, slow down, trust your gut
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss period poverty, what it is and what we can do about it. They describe the kickstart project of the Down There Aware nonprofit and explain how listeners can partner with us to truly make a difference in the lives of young girls who are living the nightmare of period poverty.
Podcast #Spotify #Anchor #research #advocacy #cancer #nonprofits #donations #DownThereAware #education #periodpoverty #femininehygieneproducts #periodshaming #Kelly&Ellie #ReadySetGoboxes
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Episode Links
Down There Aware
Periods an open and honest conversation with an 11 year old and her mom
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:31]
- Thanks for voting! [1:42]
- Spotlight on DTA nonprofit [2:00]
- Hard to know how to get the word out [3:38]
- Word of mouth - the best form of advertisement [4:32]
- First project: Ready, Set, Go (RSG) boxes [4:52]
- Kelly & Ellie, Season 2, Episode 12 [5:13]
- Period Poverty [6:02]
- Local girl’s initiative [8:17]
- Educational information for RSG boxes [8:45]
- Period shaming [11:54]
- Educate men about girl’s periods [12:28]
- Donations for nonprofit - Thank you! [13:16]
- Speak into existence - 500 RSG boxes by Christmas! [13:44]
- Assemble RSG prototypes [14:21]
- Why Ready, Set, Go? [15:30]
- How to donate [16:35]
- Goal by Christmas [17:40]
- Thanks for listening! [17:44]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, cancer, nonprofits,donations, Down There Aware, education,, period poverty, feminine hygiene products, period shaming, Kelly & Ellie, Ready Set Go boxes
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss nonprofits, what are they and how do they work? They, specifically, discuss their nonprofit, Down There Aware, its purpose, its mission, and how it grew out of the podcast of the same name.
Podcast #Spotify #Anchor #research #advocacy #cancer #nonprofits #donations #DownThereAware #ProctorandGamble #periodpoverty #femininehygieneproducts
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Email Us: downthereaware@gmail.com
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Episode Links
www.downthereaware.com
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:22]
- July was a busy month! [3:48]
- Four Seasons of DTA [4:48]
- Sadie’s entrance [5:04]
- Alex’s four-year mark [5:45]
- Favorite Chef contest [7:20]
- James Beard Foundation [7:47]
- Down There Aware nonprofit [8:22]
- Tallahassee Democrat interview [9:40]
- Arts Admin Masters degree [11:20]
- Funding [13:10]
- Sadie’s exit [14:01]
- Ready, Set, Go! boxes [18:00]
- Kelly and Ellie inspiration [19:42]
- Volunteers [21:25]
- Video glitch - UGH! [22:54]
- Nonprofit documentation on website [23:27]
- Please consider donating to DTA [24:35]
- Info on feminine hygiene packaging [24:55]
- Video is back! [25:43]
- Proctor and Gamble plea [26:01]
- Toilet paper packaging in the UK [26:27]
- Thank you for listening! [28:04]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, cancer, nonprofits,donations, Down There Aware, Proctor and Gamble, period poverty, feminine hygiene products
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex speak with Barasch & McGarry Partner, Sara Director as well as 9/11 Survivor diagnosed with uterine cancer, Karen Smith-Hagman to discuss the World Trade Center Health Program recently naming Uterine and Endometrial cancer to the list of conditions covered by the Victims Compensation Fund.
Podcast #Spotify #Anchor #research #advocacy #cancer #911 #compensation #BaraschandMcGarry #uterinecancer #endometrialcancer #MemorialSloanKettering #WorldTradeCenter
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Episode Links
https://www.911victims.com
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:21]
- Guest introductions [1:29]
- Uterine cancer [2:22]
- 9/11 Bill: Victim Compensation [2:42]
- World Trade Center Health Program [4:10]
- Compensation [4:20]
- Educated and informed doctors [4:32]
- “Never forget” [5:40]
- Men vs Women [6:15]
- 69 qualifying conditions [8:06]
- Karen’s story [8:50]
- Uterine/Endometrial cancer diagnosis [10:35]
- Memorial Sloan Kettering [10:45]
- 5 years NED [13:15]
- Initial symptoms [16:10]
- Transvaginal ultrasound [18:40]
- Total hysterectomy [20:51]
- Chemotherapy [23:01]
- Adding uterine cancer [27:16]
- Accommodations for employees with cancer [29:27]
- 1 in 3 people get cancer [30:31]
- Who is eligible for compensation? [33:35]
- Providers who KNOW what to look for [37:23]
- Autoimmune and heart conditions [38:57]
- Incredible work [39:34}
- Who to contact [40:10]
- Thank you! [42:58]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, cancer, 911, compensation, Barasch and McGarry, uterine cancer, endometrial cancer, Memorial Sloan Kettering, World Trade Center
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex speak with Cliff Reed, Founding CEO, and Dennis Watson, VP Business Development, of Travera, a company specializing in new technology enhancing the landscape of late stage cancer treatment.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #cancer #Travera #genomics #DNA #MIT #FDA #CLIA #LDT #cancerresearch #technology #cancertechnology #innovation #groundbreaking #latestagecancer #stage4cancer #uterinecancer #ovariancancer #leukemia
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Episode Links
TRAVERA
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- Guest introductions [1:44]
- M.I.T. technology [3:42]
- Genomics and DNA sequencing [3:58]
- Limited patients [4:05]
- New measurement tool [4:48]
- MIT/Dana Farber Cancer Institute partnership [5:32]
- Infectious disease comparison [5:48]
- Multiple Myeloma [6:38]
- “Cheat code” [7:30]
- Commercial launch [9:09]
- Test offered for free [10:15]
- Working with physicians [10:55]
- Trial and error process for patient [13:20]
- Advocacy groups [15:25]
- Patient profile [16:01]
- Cancer mutation [17:57]
- Access to live cancer cells [18:38]
- Quick turn-around for results[21:30]
- No additional burden on patient [23:35]
- Early stage testing and limited data [24:28]
- Predictive accuracy over 80% [25:12]
- Late stage cancer patients [26:25]
- Response from oncology community [28:00]
- Difference in this x vivo test [29:25}
- No financial risk [30:00]
- Great value to research and future patients [31:57]
- MIT intent [34:57]
- Great creative minds in scientific research [36:15]
- Future of Travera’s efforts [36:55]
- The bigger plan [39:01]
- FDA approval/CLIA certification [40:05]
- Laboratory Developed Test (LDT) [40:21]
- Potential to greatly benefit newly diagnosed patients[41:49]
- Microchip specs [43:45]
- Physics vs biochemistry[46:20]
- Simple comparison to a diving board [47:05]
- Speed and logic [49:47]
- If someone is listening today and is interested [51:30]
- dwatson@travera.com [52:23]
- PHI and HIPAA [53:35]
-
Hearing from those who know best [55:03]
-
Thanks for listening! [56:19]
Stay Connected
Podcast, Spotify, Anchor, research, advocacy, cancer, Travera, genomics, DNA, MIT, FDA, CLIA, LDT, cancer research, technology, cancer technology, innovation, groundbreaking, late-stage cancer, stage 4 cancer, uterine cancer, ovarian cancer, leukemia
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss Sympathy Fatigue. Is it really a “thing” and what can be done if we are suffering from it?
Podcast #Spotify #Anchor #research #advocacy #sympathyfatigue #Hank Green #HodgkinsLymphoma #LynchSyndrome #leukemia #compassion #cancer #communication #fertility
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Episode Links
Are you experiencing compassion fatigue?
Hank Green
Lynch syndrome - Symptoms and causes - Mayo Clinic
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- Is Sympathy Fatigue a thing? [2:28]
- Cancer muggle [3:05]
- Compassion Fatigue [4:45]
- “I’m sorry.” [5:23]
- “Es tut mir leid.” [6:49]
- Cancer jokes [8:35]
- Communication from patient [9:20]
- Be intune to the patient [9:28]
- Difficult subjects [12:23]
- Leukemia [14:45]
- Fertility was the cost of treatment [17:30]
- Lynch Syndrome [18:05]
- Hank Green [18:18]
- Parent’s response to sympathy [20:17]
- “No” is a complete sentence. [21:05]
- Thanks for listening! [22:06]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, sympathy, fatigue, Hank Green, Hodgkin’s Lymphoma, Lynch Syndrome, leukemia, compassion, cancer, communication, fertility
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss how transitioning from a fixed mindset to a growth mindset might affect our daily lives, especially regarding unexpected medical diagnoses.
Podcast #Spotify #Anchor #research #advocacy #ALS #GrowthMindset #FixedMindset #funding #MariaMenounos #BrookeEby
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Episode Links
https://mariamenounos.com/
https://iamals.org/stories/brooke-eby/
https://www.youtube.com/watch?v=VxfJtE9W11E
https://www.mindsetworks.com/science/
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- What’s happening? [1:40]
- Maria Menounos [4:20]
- Oops! Pancreatic, NOT breast cancer [4:36]
- Happening FOR me, not TO me [4:43]
- Growth Mindset [5:20]
- Fixed Mindset [6:23]
- Health perspective [7:58]
- Parosmia/Dysgeusia [8:15]
- Alex’s cancer journey led to podcast [9:58]
- Alex advocates for her friend [11:30]
- Important to take someone to doctor appointments [12:18]
- Life lessons [12:56]
- Brooke Eby [14:23]
- Parent’s response [17:17]
- Research funding [18:16]
- Grieving loss [19:15]
- Importance of continually choosing Growth Mindset [19:47]
- Thanks for listening! [21:34]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, ALS, Growth Mindset, Fixed Mindset, Choices, funding, Maria Menounos, Brooke Eby
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss three articles covering a ground-breaking vaccine trial, heart transplant anti-rejection drug risks, and colon cancer diagnoses in young adults. There is some shocking news in each of these articles and this mother/daughter duo feels it’s very important to share what they’ve learned.
Podcast #Spotify #Anchor #research #advocacy #vaccinetrial #cancerprevention #hearttransplant #immunosuppressantdrugs #antirejectiondrugs #coloncancer #youngadults #earlysymptoms #als #procterandgamble #mands
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Episode Links
Victoria's Secret From The B00BLESS BABE'S POV @Theebooblessbabe 💪😍 ... | TikTok
Amy Silverstein speaks up for change in drugs tied to organ transplants
https://twitter.com/CBSSunday/status/1655207103915589633
Is There a Lynch Syndrome Vaccine on the Way?
Colon cancer is on the rise in younger adults: What you should look for
I am Brooke Eby
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:24]
- Mary fumbling the beginning [1:35]
- Bits of info in cyberspace [2:17]
- Ground-breaking vaccine trial [3:13]
- Lynch Syndrome [3:25]
- First vaccine for non-viral disease [5:28]
- Not a cure, but a prevention [5:50]
- Kudos, MD Anderson [11:10]
- Amy Silverstein [11:18]
- Immunosuppressant drug risks [11:10]
- Cloak of silence [12:54]
- Life expectancy for heart transplant patients [15:34]
- Under-funded research [16:15]
- Brooke ALS [20:50]
- Younger adults with colon cancer diagnoses [21:59]
- Qualifications for colonoscopy [22:33]
- Sadie Mae’s sneaky entrance [25:52]
- Color-rectal cancer early symptoms [27:33]
- Be your own advocate! [31:00]
- Age is not the only factor. [32:56]
- M & S packaging labels [33:13]
- Procter & Gamble [33:36]
- Thanks for listening! [35:14]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, vaccine trial, cancer prevention, heart transplant, immunosuppressant drugs, anti-rejection drugs, colon cancer, young adults, early symptoms, Procter & Gamble, M & S, ALS
Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex respond to Hank Green’s recent video in which he shares his cancer diagnosis. Hank was very open and honest as he begins this journey. Mary and Alex discuss their reactions to Hank’s perspective, expectations from the audience of content creators, and the many life lessons to be learned when faced with a serious diagnosis.
Podcast #Spotify #Anchor #research #advocacy #Hodgkinslymphoma #bloodcancer #chemo #contentcreator #lifelonglearner #cancersucks #control
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Episode Links
Looking for Alaska: Green, John: 8601400593011: Amazon.com: Books
So, I've got cancer
It's Not about Me: Lucado, Max: 9789575879532: Amazon.com: Books
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:24]
- Hank Green [2:33]
- John Green [2:45]
- Fault in Our Stars [3:06]
- Content creators [3:56]
- “It’s probably nothing” [4:10]
- American Healthcare System [6:37]
- Sadie Mae joins us [10:00]
- Hodgkin’s Lymphoma [10:45]
- Smiling when discussing serious issues [11:01]
- Emotional processing in private [12:17]
- Difference between blood cancers and solid mass tumor cancers [13:04]
- Risk factors for Hodgkin’s Lymphoma [16:05]
- Knowledge is power [18:35]
- Audio issues [20:15]
- Practicalities and logistics [20:50]
- “This is your job now.” [23:30]
- Expectations of content creators [24:22]
- It’s Not About Me [25:05]
- Sadie’s afraid of the rain [25:16]
- Specific requests [26:50]
- “Let’s fight this thing together” - NOT. [28:40]
- Good science, good healthcare, good outlook/attitude, chance [28:55]
- Nerdy science guy [29:30]
- Control is a spectrum [30:10]
- I can be both. [30:55]
- Grieving the person who’s never had cancer [31:02]
- Friendships:Joyful in the moment, wise in the long term [31:38]
- What you give comes back to you, multiplied.[32:40]
- “I’m fine, but I’m not fine.” [33:27]
- The “Big C” [33:53]
- Tuberculosis? [34:37]
- Effects of cancer on an entire community [35:53]
- No apology necessary [37:17]
- Cancer sucks! [38:07]
- We wish you well, Hank! [40:12]
- Thanks for listening! [40:14]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy,Hodgkin’s lymphoma, blood cancer, chemo, content creator, life-long learner, cancer sucks, control
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This week Mary and Alex have an informal chat about the medical community and ever-changing guidelines for testing and care. They share research, articles, and personal experiences about how far we’ve come.
Podcast #Spotify #Anchor #research #advocacy #pectusexcavatum #cervicalcancer #guidelines #insurance #colonoscopy #risk #tuberculosis #infertility #menstruation
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Episode Links
Looking for Alaska: Green, John: 8601400593011: Amazon.com: Books
Pectus excavatum: Not just a cosmetic concern
What Is Cervical Cancer? - NCI
Da Vinci Robot | Robotic Assisted Systems | Intuitive
Fact Sheets | General | Tuberculosis: General Information | TB | CDC
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- New look in the studio! [1:35]
- Sadie in the spotlight! [1:55]
- Katie Couric [2:52]
- Dense breast tissue [3:52]
- Medical recommendations and insurance [4:20]
- Guidelines lagging behind research [5:20]
- Colonoscopy recommendations [6:45]
- The risk factor [8:10]
- What can colonoscopy diagnose? [9:32]
- The ever-changing hysterectomy [10:12]
- DaVinci machine [12:25]
- FL DOT [14:55]
- Decisions to benefit whom? [16:06]
- Pectus Excavatum repair [19:35]
- Global society [21:50]
- John Green [22:05]
- Tuberculosis [22:30]
- Eradicating cervical cancer [23:05]
- Check out our TikTok [23:38]
- Maternal mortality rate [24:10]
- Challenge for audience! [25:11]
- Like, Subscribe, Rate, and Share! [25:20]
- Previous podcast episodes [25:56]
- Alex’s story [26:15]
- Infertility [26:28]
- Preteens and menstruation prep [27:05]
- Thanks for listening! [27:49}
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy,pectus excavatum, cervical cancer, guidelines, insurance, colonoscopy, risk, tuberculosis, infertility, menstruation
--- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex discuss the reasons for and the process through which we might go about seeking a 2nd opinion. 1. To gather information, 2. Not comfortable with diagnosis, 3. Unsuccessful treatment
Podcast #Spotify #Anchor #research #advocacy #pectusexcavatum #IdiopathicIntracranialHypertension #discectomy #2nd opinion
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
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Episode Links
The Gift of Fear: And Other Survival Signals That Protect Us from Violence
Pectus excavatum: Not just a cosmetic concern
Idiopathic Intracranial Hypertension: Symptoms, Causes & Treatment
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:24]
- Happy Birthday, Mary & George! [1:48]
- Second opinions [2:20]
- Negative stigma? [2:58]
- Gathering more information [3:31]
- Will’s 2nd opinion for pectus excavatum [4:31]
- Alex’s 2nd opinion for IIH [7:13]
- The Gift of Fear [12:04]
- Treatment is unsuccessful [16:35]
- Didn’t seek 2nd opinion [17:10]
- Back injury [18:28]
- No need to rush into decisions [23:31]
- Sadie may enters [26:07]
- Thanks for listening! [26:15]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, pectus excavatum, Idiopathic Intracranial Hypertension, discectomy, 2nd opinion
--- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex reflect on an article written by a woman who left her fiancé when he was diagnosed with a brain tumor because, in her words, “I knew the future we had planned out was over.”
Podcast #Spotify #Anchor #research #advocacy #caregiver #empathy #commitment #braincancer
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
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Episode Links
I Dumped My Man Because He Has Cancer. Now I'm Running in His Honor
Woman Reveals Broke Fiancé Recovering Brain Surgery
Danielle Epstein: Londoner left partner Jelle Fresen because his cancer was ‘damaging my mental health’ | PerthNow
"How to remain single forever": Danielle Epstein slammed over London marathon fundraiser after abandoning cancer-stricken boyfriend
Leaving my boyfriend after his cancer diagnosis was the best thing for both of us
Woman who left fiancé because he had cancer ended their relationship while he was in hospital
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- Unexpected break [2:05]
- Alex’s disclaimer [2:50]
- Danielle and Jelle’s story [3:55]
- It’s not about you! [6:30]
- In sickness and in health [6:40]
- Me, myself, and I [7:00]
- Caregivers [8:04]
- Seeking validation [9:05]
- Maslow’s Hierarchy of Needs [10:10]
- Ann-Forest’s story [11:30]
- Change in life’s trajectory [12:55]
- Mental Health Awareness [15:35]
- Negative response [17:33]
- You can do both! [19:02]
- Benefits of caregiving [20:35]
- Divorce rate [23:28]
- Oops! Lost the video, but still have sound! [24:23]
- Video is back! [24:46]
- LOVE [26:06]
- Michael J. Fox [27:45]
- We just don’t get it. [29:52]
- Thanks for listening! [32:49]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, brain cancer, caregiver, empathy, commitment
--- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary and Alex chat about the term “health anxiety.” Is it real? Is it a positive or negative concept? Is there any value in it?
Podcast #Spotify #Anchor #research #advocacy #healthanxiety #trepidation #anticipation #fear #hypochondria #worry #munchausensyndrome #familyphysician #TodayShow #UFHealth
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- Time to chat [1:46]
- The TODAY Show [1:53]
- Peloton instructor dx with breast cancer [2:03]
- Health Anxiety [3:19]
- “Scanxiety” [3:39]
- Hypochondria [6:45]
- Negative connotation [7:40]
- Worry [8:35]
- What Ifs [10:05]
- Hug the Mountain [12:30]
- Shout out to Victoria [14:50]
- Alex’s teaching emergency [15:20]
- Sadie Mae [16:57]
- Healthy attitude and preparation [17:18]
- Munchausen Syndrome [18:20]
- Shands experience [18:48]
- Develop honest relationships with doctors [20:40]
- Trusted Internet sites [22:50]
- Yikes! We lost our video! [24:11]
- Importance of regular check-ups [25:25]
- Vital role of family physicians [26:04]
- Thanks for listening! [27:16]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, health anxiety, trepidation, anticipation, fear, hypochondria, worry, munchausen syndrome, family physician, Today Show, UF Health
--- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Mary discusses (and Alex reacts) to the medical and legal ramifications that can come from a delay in diagnosing endometriosis.
Podcast #Spotify #Anchor #research #advocacy #travel #endometriosis #delayeddiagnosis #patient advocacy
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:23]
- Happy Easter! [1:40]
- What is the cost of a delayed diagnosis? [2:27]
- The overlap between endometriosis and other conditions. [3:32]
- Where a diagnosis starts [4:37]
- Pitfalls of specialist referrals [10:05]
- Primary care physician superstars [12:32]
- Diagnosis stats [15:37]
- Why are there delays? [16:51]
- Dismissal of symptoms [17:20]
- Taking the easy route [20:22]
- Let’s be real, some doctors are lazy [21:09]
- Will doesn’t have a clue [21:27]
- The legal perspective of a delayed diagnosis [22:55]
- Whoops lost the camera feed! [23:02]
- Sadie joins us (and is bored with all of the liturgical talk [23:34]
- Patient vs. Doctor responsibility in a delayed diagnosis [24:23]
- Maggie’s diagnosis [25:46]
- Sometimes delayed diagnosis is unavoidable [26:33]
- Signs of a delayed diagnosis [27:00]
- Lack of coordination between specialist [30:15]
- It’s a team effort [32:10]
- Thanks for listening! [34:47]
Summary Keywords
Podcast, Spotify, Anchor, research, travel, ovarian cancer, insurance, delayed diagnosis, endometriosis, miscommunication, specialists, team effort, patient advocacy
--- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
This week Alex and Mary share three different women’s cancer stories that are simply unbelievable, yet sadly, they are true.
Podcast #Spotify #Anchor #research #advocacy #travel #ovariancancer# insurance #pectusexcavatum #pseudotumorcerebri #advocate #zugspitze #covid #coloncancer #weightbias
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
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Episode Links
Jacksonville 20-year-old gets a second chance at life after having a 104-pound ovarian tumor removed
Doctors repeatedly told a woman stress was causing her symptoms. Then they pulled out a volleyball-size tumor.
24-Year-Old Who 'Ignored' Stomach Pain, Bloating Had Ovarian Cancer
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:23]
- Peach PJs [1:40]
- Back from Germany! [2:27]
- Covid. UGH. [2:30]
- A glorious trip to Germany! [3:40]
- Personal anecdotes [4:15]
- Mary’s fall up the escalator [4:40]
- Alex’s “pressure” moment [13:30]
- Zugspitze [14:16]
- “Run, Mary, run!!!” [15:32]
- Pay for bathrooms in Europe [18:00]
- A bounty of alarming news articles [18:27]
- Hannah’s story, stressed? No, ovarian cancer. [21:26]
- Overweight [22:30]
- Pseudotumor cerebri [23:38]
- Pectus Excavatum [27:55]
- Health Insurance [30:55]
- 104 pound ovarian tumor [32:17]
- Stage 3 colon cancer @ 24 years of age [36:29]
- Sadie Mae joins us! [40:20]
- Advocate for yourself! [43:45]
- Thanks for listening! [47:05]
Summary Keywords
Podcast, Spotify, Anchor, research, travel, ovarian cancer, insurance, pectus excavatum, pseudotumor cerebri, advocate, zugspitze, covid, colon cancer, weight bias
--- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
Alex and Mary discuss cancer statistics in South America, Latin America, and the Caribbean, how they compare to other regions, and the questions that arise from the “why” behind the data.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #travel #SouthAmerica #LatinAmerica #Caribbean #statistics #data #dothetestanyway #cervicalcancer #ovariancancer #vulvalcancer #endometrialcancer #screening #geographical #socioeconomic #HDI #grants #ProctorandGamble #gallbladdercancer #CancerAtlas #breastcancer
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
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Episode Links
Cancer patterns and trends in Central and South America - ScienceDirect
South America
Latin America & the Caribbean | The Cancer Atlas
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:24]
- Same day, same clothes [1:43]
- Trip to Germany [1:50]
- South America, Latin America, Caribbean [2:20]
- Low risk of death from cancer in females [4:00]
- Cancer Atlas [5:50]
- 2018 cervical most common cancer death in Guyana [6:42]
- Gallbladder cancer in Bolivia and Chile [7:10]
- Cancer registry [8:39]
- Cancer 3rd/4th leading cause of death in Mexico [9:26]
- Breast cancer leading cause of death in Mexican women [9:57]
- Cancer leading cause of death in Mexican children [10:13]
- Mary gets distracted with “Popular” [10:50]
- Universal Healthcare [11:25]
- Half of top 10 highest cancer rates are in island nations [13:12]
- Stomach cancer [14:30]
- HDI component [15:01]
- Maybe we should look at Canada and the USA [18:05]
- Sadie Mae joins us [18:33]
- An official 501c3 Nonprofit [19:30]
- Donate button on website [19:45]
- Grant funding [20:00]
- Proctor and Gamble labeling [20:25]
- Thanks for listening! [21:05]
Summary Keywords
Podcast, Spotify, Anchor, research, travel, South America, Latin America, Caribbean, statistics, data, do the test anyway, cervical cancer, ovarian cancer, vulval cancer, endometrial cancer, screening, geographical, socioeconomic, HDI, grants, Proctor and Gamble, gallbladder cancer, Cancer Atlas, breast cancer
--- Send in a voice message: https://podcasters.spotify.com/pod/show/downthereaware/message
Alex and Mary discuss cancer statistics in Europe, how they compare to other regions, and the questions that arise from the “why” behind the data.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #travel #Europe #statistics #data #dothetestanyway #cervicalcancer #ovariancancer #vulvalcancer #endometrialcancer #screening #geographical #socioeconomic
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:24]
- Europe [1:43]
- ESGO Congress annual meeting [2:03]
- Sponsors for annual meeting [3:00]
- Cervical cancer deaths in Europe [5:25]
- Young women with cervical cancer [6:30]
- Eastern Europe [7:38]
- Highest ovarian cancer incidence in the world [7:48]
- Vulval cancer [9:24]
- Genetic component? [10:35]
- HPV and smoking as factors [10:54]
- Soaking in the German culture [11:35]
- Vaginal cancer [13:11]
- Lack of early screening [13:40]
- Maslow’s Hierarchy of Needs [14:13]
- Uterine cancer [14:32]
- Aging population and obesity as factors [15:01]
- More likely to get uterine cancer having never given birth [15:13]
- Fallopian tube cancer [15:48]
- Breast cancer [17:50]
- Northern and Western Europe [18:20]
- Geographical component [19:10]
- Possible US series? [19:50]
- Thanks for listening! [22:41]
Summary Keywords
Podcast, Spotify, Anchor, research, travel, Europe, statistics, data, do the test anyway, cervical cancer, ovarian cancer, vulval cancer, endometrial cancer, screening, geographical, socioeconomic
--- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss cancer statistics in Africa, how they compare to other regions, and the questions that arise from the “why” behind the data.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #travel #Africa #cervicalcancer #MaslowsHierarchyofNeeds #Rwanda #statistics #data #ASR #ASIR #GDP #HDI #Globalstatistics #Cancerburden #Trends
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Email Us: downthereaware@gmail.com
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Episode Links
Sub-Saharan Africa | The Cancer Atlas
How Rwanda could become one of the first countries to wipe out cervical cancer | Global development | The Guardian
Mapping Cancer in Africa: A Comprehensive and Comparable Characterization of 34 Cancer Types Using Estimates From GLOBOCAN 2020
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:24]
- Another Millennial/Boomer moment [1:35]
- Africa [3:42]
- Leading cause of death in Rwanda [5:20]
- Africa has the highest cervical cancer rate [5:50]
- Reached 98%+ target HPV vaccine population [6:07]
- Mortality rates [7:48]
- Breast cancer vs cervical cancer in North Africa [10:10]
- Breast cancer vs cervical cancer in Subsaharan Africa [10:55]
- Great need for cervical cancer vaccine/screening [11:55]
- Maslow’s Hierarchy of Needs [14:10]
- Trends predicted to rise [17:40]
- Lack of resources [18:30]
- Much work to be done! [20:10]
- Thanks for listening! [21:49]
Summary Keywords
Podcast, Spotify, Anchor, research, Africa, cervical cancer, Maslow’s Hierarchy of Needs, Rwanda
--- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss cancer statistics in Australia, how they compare to other regions, and the questions that arise from the “why” behind the data.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #travel #Australia #statistics #data #dothetestanyway #cervicalcancer #ovariancancer #vulvalcancer #endometrialcancer #screening #geographical #socioeconomic
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
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Episode Links
https://www.aihw.gov.au/getmedia/03a38ab8-3ac4-48d4-b69c-8239a97c60a5/13972.pdf.aspx?inline=true
https://www.acrf.com.au/support-cancer-research/cancer-statistics-australia/?gclid=CjwKCAiAjPyfBhBMEiwAB2CCIvorWMi5Xp4umFp9RvHOlyu9Cs64u9V59sNwpIxDMGZ0JnjlQamxUxoCrucQAvD_BwE
https://www.aihw.gov.au/reports-data/health-conditions-disability-deaths/cancer/overview
https://ace.amegroups.com/article/view/4614/5363
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:26]
- Trip to Germany [1:45]
- Global series [3:47]
- Millennial vs Boomer [4:35]
- Australia [7:00]
- GYN cancer: 4 deaths in 12 diagnoses [8:35]
- Uterine cancer [9:12]
- Ovarian cancer [10:00]
- Death rates [10:35]
- Pre-cancer screenings [11:50]
- Mary’s personal experience [12:36]
- Survival rates [15:18]
- We don’t know what we don’t know. [17:25]
- Age variable [18:25]
- Change needed in med schools [19:15]
- Dr. Merry Jennifer Markham [19:30]
- Perspective of older women [21:10]
- Geographical variable [21:57]
- Socioeconomic variable [24:12]
- Number of females vs number of diagnoses [24:42]
- Primary cancer diagnosis [26:25]
- Average age at diagnosis [27:05]
- Younger people getting cancer [30:35]
- Be your own advocate! [31:15]
- Order the test, anyway [31:58]
- Awesome doctor [33:12]
- Thanks for listening! [34:46]
Summary Keywords
Podcast, Spotify, Anchor, research, travel, Australia, statistics, data, do the test anyway, cervical cancer, ovarian cancer, vulval cancer, endometrial cancer, screening, geographical, socioeconomic
--- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss cancer statistics in Asia, how they compare to other regions, and the questions that arise from the “why” behind the data.
Podcast #Spotify #Anchor #research #advocacy #travel #Asia #statistics #data #ASR #ASIR #GDP #HDI #Globalstatistics #Cancerburden #Aflatoxin #HepatitisB #Trends
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
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Episode Links
ASR (age-standardised rate). The ASR is a weighted mean of the age-specific rates where the weights are taken from the population distribution of a standard population
Latin America & the Caribbean | The Cancer Atlas
Overview of Geographical Diversity | The Cancer Atlas
Reproductive & Hormonal Factors | The Cancer Atlas
Endometrial cancer statistics | World Cancer Research Fund International
Southern, Eastern, & South-Eastern Asia | The Cancer Atlas
Cancer Incidence and Mortality in Asian Countries: A Trend Analysis - PMC
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:26]
- Trip to Germany [2:20]
- Shout out to Herr Michael Simmons [2:54]
- Global series [5:16]
- ASR/ASIR WHOOPS![8:08]
- GDP [10:38]
- HDI [10:48]
- ASMR [11:50]
- Sadie Mae joins us [12:15]
- Global statistics [14:04]
- The cancer atlas [14:20]
- Endometrial cancer global stats [15:20]
- Definitive tests [22:22]
- Preventative screenings [23:49]
- Geographic variable [24:20]
- Global cancer burden in 2040 [26:32]
- Cervical cancer incidence rate [28:30]
- Cancer in Asia [31:45]
- China has highest liver cancer rate [32:10]
- Aflatoxin exposure [32:35]
- Hepatitis B [32:45]
- Life expectancy variable [36:30]
- Over-diagnosis [38:12]
- Rising trends in younger population [40:00]
- Same day, same clothes [42:05]
- Thanks for listening! [43:14]
Summary Keywords
Podcast, Spotify, Anchor, research, travel, Germany, statistics, data, ASR, ASIR, GDP, HDI, Global statistics, Cancer burden, Aflatoxin, Hepatitis B, Trends
--- Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex and Mary discuss what it’s like to travel with a chronic illness. They share tips for their preparation and planning for their upcoming trip to Germany.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #travel #Germany #medications #preparations #chronicillness #compressionsocks #Lasix #mobility #blood sugar #hcm #diabetes
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:24]
- Chronic illness travel prep [4:50]
- Checking in with the cardiologist [5:20]
- Compression socks [6:05]
- Lasix and frequent bathroom breaks [6:55]
- Restroom accessibility in Europe [8:00]
- Refrigerated medications [8:48]
- Upgraded to lie-flat accommodations [10:30]
- Mobility on airplane [11:45]
- Snacks to control blood sugar [12:22]
- Medications in carry-on luggage [12:55]
- Organization [14:10]
- Sadie Mae and Uncle Will [15:12]
- In USA docs limited in out of state RXs [15:45]
- Alex’s travel packets [16:55]
- Shout out to Steve and Victoria [17:21]
- Dress for destination weather [17:55]
- Menstruating on a long trip [19:05]
- Flight Attendant requests, if needed [19:55]
- Atlanta airport [21:10]
- Think ahead [22:28]
- “Give yourself grace.” [22:42]
- Pace out the itinerary [23:40]
- 5-week series [23:54]
- Sadie Mae joins us [25:03]
- Thanks for listening! [25:39]
Summary Keywords
Podcast, Spotify, Anchor, research, travel, Germany, medications, preparations, chronic illness, compression socks, Lasix, mobility, blood sugar, HCM, diabetes
--- Send in a voice message: https://anchor.fm/downthereaware/message
Because February is American Heart Health Month, in Episode 3 Alex and Mary discuss the latest research regarding how Covid affects the heart.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #covid #hearthealth #myocarditis #pericarditis #vaccines #bloodvessels #vascularvirus #respiratoryvirus #longcovid #bloodclots #stress #bloodpressure #parosmia #dysgeusia #olfactorynerve
Episode Highlights
- Intro [0:13]
- Welcome Back! [1:25]
- February is American Heart Health Month [3:37]
- Heart issues have increased since 2020 [4:37]
- Ages 25-44 [4:50]
- Cedar-Sinai study [6:22]
- Increase in heart-related deaths across every age group [6:29]
- Higher viral load exposure [7:13]
- Immune response in stronger immune systems [7:17]
- Vaccines [8:50]
- Virus more dangerous than vaccine [9:14]
- Weigh the risks [10:00]
- Myocarditis [11:10]
- Increase in blood clot formation [13:30]
- Inflammation in blood vessels [13:45]
- Increase in stress and blood pressure [13:50]
- Respiratory virus vs vascular virus[14:05]
- Oximeter [15:20]
- Continually changing research [17:00]
- Long-Covid [17:40]
- UF Health [18:13]
- Dysgeusia and Parosmia [19:11]
- Olfactory nerve[20:45]
- Shout out to Ann Weismueller! [23:30]
- Please “Like,” “Subscribe,” and “Follow” DTA [25:27]
- Thanks for listening! [25:50]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, heart health, myocarditis, pericarditis, vaccines, blood vessels, vascular virus, respiratory virus, long covid, blood clots, stress, blood pressure, parosmia, dysgeusia, olfactory nerve
--- Send in a voice message: https://anchor.fm/downthereaware/message
Episode 2 follows up on advocacy and action as Alex and Mary discuss their campaign to provide messaging on feminine hygiene products, warning young women about signs and symptoms of gynecologic cancers.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #gyncancer #action #UKefforts #checkmeupuk #procterandgamble #marksandspencer #u4cancer #bowlcancer #youngwomen #earlydiagnosis
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
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--- Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary kick off Season Four with reflections on their “hiatus” (AKA surgery recovery) and they give a sneak peek into what’s ahead for the new season. They’re transitioning from information and education to advocacy and action!
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Podcast #Spotify #Anchor #research #advocacy #gyncancer #action #UKefforts
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Highlights
- Welcome back! [1:25]
- Alex’s back surgery [2:15]
- Discectomy [3:14]
- Mary’s heart surgery [4:38]
- “Go-to” person for surgery [5:00]
- Shout out to Victoria and Janey! [5:23]
- ICD implantation [7:02]
- Alex, the hairdresser [7:28]
- Shout out to Suzie Flowers! [9:10]
- Watch us on YouTube! [9:28]
- Shout out to Hoda Kotb! [10:21]
- The podcast is evolving [12:40]
- Alex’s latest check-up [14:27]
- Young women CAN get GYN cancer [15:00]
- What’s next? [16:00]
- @checkmeupuk [16:10]
- Episode Two focus [17:10]
- Nonprofit status [17:58]
- Routine exam [19:00]
- Hiccup with blood work [19:32]
- Listen to your mama! [20:00]
- “My cancer wasn’t bad enough.” [21:33]
- Waiting for the other shoe to drop [22:50]
- Oops! Video cut out, but audio is good! [24:03]
- Please follow, subscribe, and like us! [27:05]
- Weekly episodes on Thursdays! [27:46]
- Two-week trip to Germany! [28:23]
- Thanks for listening! [28:43]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women
--- Send in a voice message: https://anchor.fm/downthereaware/message
Alex updates us on her upcoming surgery and she and Mary discuss the long journey that has brought her to, yet, another surgery.
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Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
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Episode Research Links
Episode Highlights
- Welcome back! [0:57]
- A life update [1:06]
- Debilitation back issues [1:18]
- Disc herniation [1:44]
- Surgery scheduled [2:28]
- Recovery from surgery - BLT [4:17]
- FMLA [5:25]
- September is GYN Cancer Awareness Month [5:50]
- Check social media for updates [6:40]
- Micro-discectomy [7:52]
- Thanks for all the prayers and positive vibes! [9:39]
- Surgery isn’t always convenient. [10:20]
- Avoid permanent damage [10:37]
- Never say never! [12:15]
- Please like, subscribe, and review! [13:05]
- Thanks for listening! [13:34]
Summary Keywords
Podcast, Spotify, Anchor, GYN cancers, GYN cancer awareness month, back surgery, recovery, FMLA, disc herniation, micro-discectomy
Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss what it means to be “aware,” why it is so important to be aware, and how they are compelled to host a podcast about awareness.
podcast #womenshealth #GYNcancers #awareness #beinformed #awarenesschallenge
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Highlights
- Welcome back! [0:57]
- Awareness [1:10]
- September is GYN Cancer Awareness Month [1:21]
- Wear PURPLE Day [1:30]
- Definitions of AWARENESS [2:12]
- Importance of being well informed [3:45]
- Uterine/Endometrial Cancer [4:20]
- Age doesn’t determine which cancer your get [4:40]
- Inaccurate date [6:10]
- Awareness is our mission [8:10]
- Ice Bucket Challenge success [8:40]
- Challenge for our listeners! [9:07]
- August 22nd deadline [9:40]
- A prize for the winning submission [10:45]
- Thanks for listening! [13:45]
Summary Keywords
Podcast, Spotify, Anchor, GYN cancers, GYN cancer awareness month, awareness, be informed, awareness challenge
Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary discuss how social media affects our medical decisions, positively and negatively. They also share some of their favorite social media sites that have proven to be trustworthy, educational, and informative.
podcast #womenshealth #social media #tiktok #facebook #instagram #pinterest #todayshow
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Research Links
An Inside Look at Fake Online Reviews for Doctors and Dentists
Tallahassee Memorial HealthCare - TMH - Home | Facebook
@Merry_Jennifer
@lennoxhillspine
@it_started_with_a_cyst
@belowthewaist_gyncancers
@thewombtangclan
@4hcmwarriors
@justpeachywombcancer
@gynecancerinitiative
@drdlanger
@amydeepharmd
@todayshow
Episode Highlights
- Welcome back! [0:57]
- Heatwave! [1:03]
- I saw it on The Today Show! [1:46]
- Fake online medical reviews [1:57]
- The point of the podcast [3:15]
- How to spot a fake review [3:51]
- How does social media affect medical decisions [4:20]
- Global connections [4:54]
- From cable news to social media breaking news [5:50]
- Does the good outweigh the bad? [6:53]
- Online support groups [8:40]
- Think critically when online [9:35]
- Functioning without the Internet [10:46]
- Connecting with Morgan Gaynor [13:30]
- Positive influences [13:56]
- Dr. Mary Jennifer Markham [14:18]
- Doctors on Tik Tok [15:28]
- Time with doctors is limited [17:30]
- Tallahassee Memorial Hospital on Facebook [18:06]
- TV hospitals are NOT reality [19:12]
- GoFundMe and Memorials [21:26]
- Connecting with former students [22:30]
- Caring Bridge [23:20]
- Alex’s 3rd year cancer diagnosis anniversary [24:12]
- We have control [24:40]
- Thanks for listening! [28:04]
Summary Keywords
Podcast, Spotify, Anchor, social media, tik tok, Instagram, Facebook, Pinterest
Send in a voice message: https://anchor.fm/downthereaware/message
Morgan Gaynor shares her unbelievable story, recounting how her desire to freeze her eggs at the age of 30 led to a cancer diagnosis. This Stage 4 cancer would, in all likelihood, not have been discovered otherwise. Morgan turned her experience into a positive by becoming actively involved in cancer awareness and fundraising campaigns. Morgan was honored as the American Cancer Society’s Tides of Change 2021 Survivor of the Year, in recognition of her advocacy for cancer awareness.
Episode Highlights
- Welcome back! [0:55]
- Welcome Morgan Gaynor! [0:59]
- Morgan’s story [1:20]
- Freezing eggs [1:50]
- Ultrasound findings [2:34]
- Endometriosis/PCOS [3:10]
- Memorial Sloan Kettering [3:35]
- Unrecognized symptoms [4:14]
- Age is a factor [7:00]
- Low-grade serous carcinoma [7:20]
- Limitations of PAP smear [8:20]
- 9-hour surgery [8:55]
- Advocacy [11:38]
- Ovarian Cancer Research Alliance [12:45]
- STAAR [13:10]
- Survival rate [18:10]
- Post-surgical treatment [18:40]
- Cancer anxiety [22:30]
- Surgical menopause [23:35]
- Support system [25:10]
- Breaking the news [27:25]
- What’s next for Morgan? [30:58]
- Talking to your doctor [33:20]
- Find your network [37:25]
- Dilation & Curettage [40:45]
- Doctor’s apology [42:30]
- Thank you, Morgan! [44:50]
- Thanks for listening! [46:45]
Episode Research Links
https://morganbeatscancer.com/
https://www.staaroc.org/
https://www.mskcc.org/
https://ocrahope.org/
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
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Send in a voice message: https://anchor.fm/downthereaware/message
This week, Mary and Alex look back on important medical headlines we may have overlooked in the midst of the Covid-19 pandemic.
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Alex and Mary draw from their own experiences to discuss how and why a medical diagnosis or health issue can affect our mental health. They also touch on various coping strategies that may be helpful.
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Episode Highlights
- Welcome back! [0:56]
- June is bustin’ out all over! [1:00]
- Mental health [1:36]
- We’re tired. [1:58]
- Vicious cycle [2:45]
- Physical incapabilities [3:10]
- Routine promotes security [3:54]
- Expectations [4:38]
- Not knowing is the worst [6:35]
- End in mind [7:35]
- Sense of control [9:02]
- Uncertainty of Covid [9:40]
- Long Covid [11:18]
- Parosmia/Dysgeusia [12:10]
- Adjust mentality [13:30]
- Cultural and eating [14:22]
- Definitive diagnosis [15:14]
- IV contrast made in China (shortage) [18:05]
- Give yourself a break, don’t compare. [19:30]
- Be your own advocate [22:24]
- Keeping up with others [23:24]
- Ask for help [25:20]
- Equating fat with lazy [25:44]
- Toxic positivity [26:59]
- Understanding our feelings [27:50]
- Coping with feelings [28:45]
- Therapy [28:58]
- Treating the WHOLE patient [29:50]
- Everyone struggles [30:54]
- Self-care [30:30]
- Thanks for listening! [33:54]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, mental health, diagnosis, therapy, parosmia, dysgeusia, long covid
Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex and Mary reflect on various challenges, diagnoses, and life-altering events that have helped them learn to admit, accept, and adapt.
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This week we revisit Trisha's journey of infertility and pregnancy loss... except it has a much different ending. Trisha and her husband just welcomed a beautiful baby girl into the world! We are so incredibly happy for Trisha and wanted to share so that other women may be able to find hope in her story.
Listen on our website, www.downthereaware.com, or wherever you get your podcasts.
mothersday #podcast #motherdaughter #infertility #pregnancyloss #birth #baby #women #womenshealth #miscarriage #birthstory
Send in a voice message: https://anchor.fm/downthereaware/message
Taking a bit of a detour, Mary and Alex discuss women throughout history. What they were "allowed" to do and say and just how far we've come in our ability to advocate for ourselves, our bodies, and our healthcare. We still have a long way to go, but it's important to acknowledge all who came before us and made it possible.
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
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Podcast #Spotify #Anchor #womenshealth #history #womeninhistory #feminist #feminism
Send in a voice message: https://anchor.fm/downthereaware/message
This week, Mary and Alex discuss Alex's latest health crisis that derailed a trip to Texas and their plans for the March 28th episode.
Listen on our website, www.downthereaware.com, or wherever you get your podcasts.
podcast #spotify #womenshealth #women #herniateddisc #ER #ERvisit #opioidcrisis #healthcare #insurance #texas
Send in a voice message: https://anchor.fm/downthereaware/message
Assembling Your Tribe: The Importance of Having a Strong Support System
This week, Mary & Alex discuss the importance of having a strong support system when you are faced with a cancer diagnosis.
Episode Highlights
· Why a support system is important [1:07]
· Your journey is not yours alone [6:22]
· Feeling like an impostor [12:39]
· You have to tell your story in your own way and on your own time [16:17]
· We all need a support system [20:23]
Stay Connected
Email Us
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Send in a voice message: https://anchor.fm/downthereaware/message
This week Mary and Alex sit down with Dr. Randall Bradley, a dear friend who lost his wife of 36 years, Brenda, to stage four pancreatic cancer. Randall is transparent about the highs and lows of dealing with a shocking diagnosis and the deliberate decisions he and Brenda made together in order to allow her to “die as she lived.” Randall shares intimate details of their conversations, the choices they made in the midst of heartbreak, and the community that walked alongside them.
Episode Highlights
- Welcome back! [0:56]
- Dr. Randall Bradley intro [1:08]
- April 2019 [2:40]
- Constipation [3:30]
- Delays in diagnosis [4:10]
- Devastating diagnosis [4:48]
- Dim Prognosis [6:30]
- “We decided we needed more time.” [7:00]
- Open and honest sharing [8:40]
- “Determined to be positive.” [9:15]
- “Die as she had lived” [11:20]
- “Not live in a vacuum” [11:30]
- One last trip to Kenya [12:55]
- A Few More Minutes: A Poetry Collection, by Brenda Livingston Bradley [14:40]
- Bradley Family Recipes: Bread for the Journey [15:19]
- Brenda Bradley Memorial Scholarship Fund at McLennan Community College [16:24]
- A premonition, of sorts [17:18]
- How am I going to die? [18:40]
- Getting finances in order [20:43]
- Funeral planning [21:45]
- Obituary [22:25]
- Notes to the children [23:13]
- Precious,2 helpful notes scattered about [24:00]
- Cleaning out personal items [24:20]
- Journal entries [25:17]
- Continue to live as you have lived [27:15]
- Continue to be who I fell in love with [29:00]
- I need time alone [29:40]
- Live life intentionally every day [31:10]
- Discuss death with family, proactively and periodically [35:00]
- CaringBridge [36:25]
- Transparency in sharing your journey[37:56]
- Living and dying in community [40:37]
- Take the opportunity to help others understand[41:45]
- Should we always do what the deceased person wanted? [42:32]
- It’s ok to laugh with people who are dying [45:10]
- No guilt in being ready to someone to die [46:04]
- Hospice [47:00]
- Responsibility and privilege to share [49:25]
- Thanks for listening! [50:23]
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, humor, pancreatic cancer, transparency, honesty, funeral planning, chemotherapy, CaringBridge, terminal diagnosis, death and dying
Send in a voice message: https://anchor.fm/downthereaware/message
This week is very special! Mary and Alex sit down with Marion Saville, Sue Collins, and Kirsty Browne from the Conquering Cancer Campaign to learn what they are doing in conjunction with the World Health Organization to ELIMINATE cervical cancer. YES you read that right, ELIMINATE a cancer! Visit www.downthereaware.com/conqueringcancer to learn more about the campaign, watch the trailer, or purchase a ticket to view the documentary. (All ticket sales go directly to the Conquering Cancer Campaign.)
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This week Alex sits down with Rylan and Veronica, two fellow young women with endometrial cancer. The ladies have an open and honest conversation about love during a cancer diagnosis, as well as the need for a strong support system - from your significant other and more.
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, humor, deflection, coping skills, World Cancer Day, Patch Adams, Robin Williams, Chris Evert, ovarian cancer, therapeutic humor, inappropriate humor
Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary return on the 4th Monday and their new schedule. This week they discuss humor, as deflection and a coping mechanism when dealing with trials and tribulations. Alex shares some personal experiences with humor in times of tragedy. Part of their research involved viewing the 1998 film Patch Adams, with Robin Williams, as well as several peer-reviewed articles and various related websites.
Podcast #Spotify #Anchor #research #humor #darkhumor #cancer #thankscancer
Episode Research Links
Use of humor as a coping mechanism, psychological adjustment, and social interaction
The Use of Humor in Patients With Recurrent Ovarian Cancer
Laughing in the Face of Fear (of Disease Detection): Using Humor to Promote Cancer Self-Examination Behavior
Laughing at cancer: Humour, empowerment, solidarity and coping online
Hall House Productions (@thankscancer) • Instagram photos and videos
Tumor Humor - My Perfect Prescription for Coping with Cancer
How One Woman Used Humor to Help Her Cope with Her Cancer - OHC
The impact of humor on patients with cancer
Finding a Reason to Laugh | Cancer.Net
Cancer is no laughing matter — or is it?
Using Humor as a Coping Tool | NAMI: National Alliance on Mental Illness
Getting serious about funny: Psychologists see humor as a character strength
Humor As Weapon, Shield and Psychological Salve
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, humor, deflection, coping skills, World Cancer Day, Patch Adams, Robin Williams, Chris Evert, ovarian cancer, therapeutic humor, inappropriate humor
Send in a voice message: https://anchor.fm/downthereaware/message
Alex and Mary are back with a new episode for 2022. They’re discussing the pros and cons of New Year’s resolutions, commercialism, succeeding and failing at keeping resolutions, and wondering if it really matters. They also give an update on their time away, including Alex’s surgery/recovery and they announce a new schedule for the podcast and reveal a new musical introduction, as they begin Season 3.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:31]
- Happy New Year! [0:36]
- Thanksgiving update [1:15]
- Christmas update [1:33]
- Surgery update [2:08]
- New podcast schedule [6:57]
- Mary’s lichen planus diagnosis [6:24]
- Please subscribe [7:42]
- New Year’s Resolutions [8:45]
- Success percentage rates [9:27]
- Gym memberships [11:07]
- Money spent on resolutions [11:48]
- Do you need a “new you?” [14:20]
- Health-related resolutions [15:20]
- Dry January [15:40]
- The “why” of each resolutions [16:25]
- Generational statistics [17:06]
- Regional statistics [18:16]
- Chris Terrell [19:30]
- Be careful what you wish for! [20:45]
- Commercialism [20:38]
- Test the practicality of resolutions[24:11]
- Coffee Trends [25:10]
- New Year, New You? [26:25]
- Thanks for listening! [28:36]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, resolutions, commercialism, dry January, gym memberships
Send in a voice message: https://anchor.fm/downthereaware/message
In this week’s episode, Alex and Mary discuss their experiences with various medical diagnoses and the process of weighing the pros and cons in deciding on treatment options. They share how important it has been for them to do their own research in order to make an informed decision.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:39]
- A multi-generational perspective [1:05]
- Subscribe, rate, and review [1:45]
- Weighing pros and cons of new diagnosis [2:16]
- Multiple treatment options [3:05]
- Alex’s endometrial cancer diagnosis [3:57]
- Mary’s lichen planus diagnosis [6:24]
- Idiopathic conditions/diseases [8:55]
- Vaccines, medications, and injury [10:28]
- In the News [13:17]
- Alex’s hernia repair [18:48]
- Bowel strangulation [20:06]
- Shunt tubing [22:10]
- Papilledema [26:54]
- We are taking a break! [29:10]
- Season 3, January 2022 [30:15]
- TikTok [30:43]
- Thanks for listening! [31:05]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Mayo Clinic Developing Blood Test That Can Spot More Than 50 Types of Cancer
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, awareness, incisional hernia, lichen planus, treatment options, pros and cons
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #awareness #endometrialcancer #incisionalhernia #lichenplanus #prosandcons
Send in a voice message: https://anchor.fm/downthereaware/message
In this week’s episode, Alex and Mary discuss their research methods. They offer their best tips on finding credible resources and sifting through what pops up on Google. . . separating the wheat from the chaff, if you will.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Thanks for your support! [0:50]
- Subscribe, rate, and review [1:18]
- Research [1:40]
- Google [2:23]
- Using the Internet [3:35]
- Discernment [4:12]
- Alex is a space nerd [5:00]
- Government websites [5:20]
- Dig a little deeper [6:38]
- Peer-reviewed documents [7:34]
- Google Scholar [8:45]
- Check publication dates on articles [10:14]
- Be open to multiple publications [11:28]
- Reputable websites [14:06]
- Recommends from physicians [15:35]
- Prep for doctor appointments [17:53]
- Approaching your physician [18:27]
- Updated medication list [21:03]
- Thanks for listening! [26:38]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Mayo Clinic - Mayo Clinic
Cleveland Clinic
National Institutes of Health (NIH) | Turning Discovery Into Health
Google Scholar
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, awareness, research, reputable sites, mayo clinic, cleveland clinic, national institute of health
Send in a voice message: https://anchor.fm/downthereaware/message
This week’s episode is a sit down discussion between Alex and Mary, looking back on the things in their lives that have shaped them into who they are today. Childhood experiences, neighborhoods, and the way we grow up has a profound effect on who we grow into and that oftentimes determines how we deal with our health and various medical issues.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- What shapes us? [1:12]
- Bruce Springsteen & Barack Obama [1:30]
- Absentee fathers [2:08]
- Pig farm [2:55]
- Life-long learner [3:35]
- Growing up in the ‘burbs [5:11]
- Helping in the kitchen [6:54]
- Dinner table conversations [8:12]
- Healthy curiosity [9:45]
- Learning from mistakes [11:11]
- Respect for others [13:00]
- Learning by doing [14:20]
- Age-appropriate questions/answers [16:48]
- Ellie Rae’s period episode [18:16]
- Overhearing adult conversations [19:11]
- Mind/Body connection [20:43]
- Subscribe, Rate, and Review [21:28]
- Everyday Health article [21:45]
- Thanks for listening! [22:25]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Best Breast and Gynecological Cancer Podcasts
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, awareness
Send in a voice message: https://anchor.fm/downthereaware/message
This week, Alex and Mary discuss exactly what it means to know your body, how we can be more aware of unusual signs and symptoms, and when it is important to investigate further.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Rate, Subscribe, and Review DTA [1:10]
- How to know your body [2:15]
- Always evolving [2:57]
- Alex’s 1st experience [3:20]
- Make a note of unusual symptoms [4:00]
- Speaking to your doctor [4:30]
- Pain is relative [5:15]
- Add situational details [6:35]
- True Crime shows [8:30]
- Textbook patients? [9:18]
- Dehydration [10:18]
- How much should we be drinking daily? [11:59]
- LaCroix [12:49]
- Apps for tracking health/activities [14:32]
- Period pain [16:28]
- Journaling vs Apps [17:38]
- Timing tasks [18:54]
- Physical signs of a medical issue [19:54]
- Trust your gut [21:05]
- Is there a pattern? [25:33]
- Listen to your body [24:45]
- What are your limitations? ]26:00]
- Changing providers [26:55]
- Thanks for listening! [28:13]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Water: How much should you drink every day?
The 9 Best Health Apps of 2021
Erin Condren Wellness Bundle
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, trust your gut, journaling, health apps, aware, intune, patterns
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #trustyourgut #journaling #healthapps #beaware #stayintune #patterns
Send in a voice message: https://anchor.fm/downthereaware/message
In this week’s episode, Alex and Mary discuss knowing your limitations and speaking up instead of over-exerting yourself.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Rate and Review DTA [0:57]
- Mary’s 2nd Wednesday Coffee [1:25]
- Alex’s crazy week [2:00]
- Pulling an all-nighter [3:05]
- Edema [3:53]
- “A man’s got to know his limitations.” [4:00]
- Advocate for yourself [4:45]
- Accept your limitations [5:40]
- The toll of exhaustion [6:55]
- Kindness of strangers [8:02]
- Melt-down [8:15]
- Consequences [9:10]
- Progression of heart failure [9:36]
- Perception/Stigma of weight [10:28]
- Caring about what others think [11:38]
- Acceptance [14:13]
- Ableist society [16:10]
- Realizing limitations and speaking up [18:13]
- Always learning [19:47]
- Do what’s best for YOU! [20:21]
- Listen to your body [24:45]
- What are your limitations? ]26:00]
- Thanks for listening! [27:19]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, limitations, edema, obesity
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #limitations #obesity #edema
Send in a voice message: https://anchor.fm/downthereaware/message
In this week’s episode, Alex and Mary discuss genetic testing, specifically related to breast cancer. They touch on the advancements that have been made in genetic testing and the different perspectives on the need for and/or the benefits of genetic testing.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- October is Breast Cancer Awareness Month [1:35]
- Genetic testing [2:02]
- Hesitancy [2:25]
- HCM mutated gene [3:20]
- Susan Berger interview [4:42]
- Insurance constraints [5:00]
- PALB2 mutated gene [7:25]
- Predisposition to cancer, 11 genes [10:03]
- CHEK2 mutated gene [10:45]
- Prophylactic surgery [11:18]
- Lynch Syndrome [12:17]
- Genetic testing mix-up [13:24]
- Prostate cancer [14:43]
- Science/Medicine are constantly evolving [15:09]
- Who should get genetic testing? [15:59]
- From IHSS to HCM [16:42]
- Fear of information [18:40]
- Proactive/Informed decisions [18:58]
- Second cancers after breast cancer [20:02]
- In the News! [20:22]
- Henrietta Lacks [20:40]
- HELA cells ]21:09]
- Medical consent [21:55]
- See your doctor for genetic testing [24:57]
- Ratings and reviews [26:35]
- Thanks for listening! [27:35]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Woman learns fibroids caused blood clots in lungs, heart
PALB2 gene mutation and breast cancer risk: What to know
Genetic Testing: BRCA1, BRCA2, and PALB2 Mutations
Second Cancers After Breast Cancer
Common Cancer Myths and Misconceptions
More than BRCA: The other life-threatening breast cancer gene mutation to be aware of
The Legacy of Henrietta Lacks
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, genetic testing, BRCA1, BRCA2, PALB2, CHEK2, prophylactic surgery, HELA cells, Henrietta Lacks, Second cancers, Lynch Syndrome, prostate cancer, Susan Berger
Send in a voice message: https://anchor.fm/downthereaware/message
The Blame Game
This week, Alex and Mary discuss the harmful effects of patient blaming, when a medical professional, friends, family, or self-help authors infer, suggest, or outright say something akin to, “If you had a better attitude, you could beat cancer” or “Maybe if you had lost weight, you wouldn’t have gotten diabetes” or “You should have gone to the doctor sooner, before you got cancer.” Their discussion was inspired by Kate Bowler’s journey through colon cancer, after having been diagnosed at the age of 35. Why does patient blaming exist and what can we do about it?
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Please subscribe, rate, review, and follow us! [1:10]
- Patient Blaming [2:28]
- Kate Bowler [2:54]
- The Today Show [3:10]
- Self-help books that blame [4:30]
- Toxic positivity [7:30]
- It’s ok not to be ok [8:18]
- A doctor’s genuine apology [9:05]
- TX Heart Institute Journal [10:55]
- Peabody’s Corner [11:10]
- Francis Weld Peabody [11:15]
- Patient Care [11:25]
- Cardiac Consult [13:23]
- Digoxin [14:03]
- Placebo effect [16:02]
- Emphasis is on disease rather than patient [18:09]
- Obesity [18:58]
- Lung cancer bias [19:55]
- Shame and blame [20:22]
- Character defect [21:55]
- Non-compliant [22:16]
- Physician bias ]22:50]
- Where do you draw the line? [23:26]
- Disparity in funding [24:08]
- Relationship between behavior and disease [25:02]
- Medical malpractice and patient blame [26:08]
- Grey’s Anatomy [28:20]
- Importance of healthy lifestyle [29:10]
- Patients should get best care [30:35]
- Valuable lessons to be learned [31:45]
- Update on Kate Bowler [32:45]
- Thanks for listening! [33:15]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
When All Else Fails, Blaming the Patient Often Comes Next (Published 2008)
Blaming the Patient: A Common Defense Tactic
Today Show - Kate Bowler
Perspective | What happens when the doctor blames you for your own cancer?
Flying Blind: Why Do We Keep Blaming The Victims Of Medical Errors?
"Everything happens for a reason" -- and other lies I've loved | Kate Bowler - TED Talk
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3233310/pdf/20111200s00004p620.pdf
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3233310/pdf/20111200s00004p620.pdf
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In today’s episode, Alex and Mary offer five tips to help us remain Down There Aware. Becoming Down There Aware is one thing, but continuing to maintain a consistent and effective awareness is most important for optimal health.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Gynecologic Cancer Awareness Month [0:50]
- Wear PURPLE Day #GCAM2021 [1:08]
- Five Tips [1:55]
- Tip #1: Annual GYN Appointments [2:58]
- Making health a priority [5:08]
- Prepare for your appointments [5:30]
- Generational perspective [7:33]
- Tip #2: Be aware of your body [8:26]
- @VulvarCancerAwareness [9:25]
- Seek out a specialist [10:25]
- Lichen Planus/Lichen Sclerosus [11:11]
- Medication and treatment regimen [11:58]
- Tip #3: Importance of self-examination [13:28]
- Using a camera [13:55]
- Tip #4: Maintaining proper hygiene [16:40]
- Do NOT douche! [18:00]
- Tip #5: Encouraging others to be DTA [20:15]
- Yes, it can happen to YOU [22:04]
- Drawing for Wear Purple Day! [24:46]
- Thanks for listening! [25:54]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
https://www.womenshealth.gov/a-z-topics/douching
Accounts to Follow On Instagram:
@vulvalcancerukawareness
@vulvarcancerawareness
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, symptoms, gynecologic cancer awareness, feminine hygiene, douching, self-exams, awareness, vulvar cancer
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #douching #selfexams #awareness #vulvarcancer #GCAM2021
Send in a voice message: https://anchor.fm/downthereaware/message
Disparities in Cancer Funding
This week, Alex and Mary discuss the disparities in cancer funding, advocacy, education, and awareness. They look at the disproportionate number of nonprofits to the number of cancer diagnoses for various types of cancer, possible reasons for the disparity, and realistic solutions.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
Welcome back! [0:40]
Wear PURPLE Day #GCAM2021 [0:42]
Ratings and Reviews [1:30]
A purpose to inform young women [3:24]
Comparing cancer funding [4:12]
Disparities [5:40]
Breast cancer [6:30]
Northwestern University article [7:40]
Nonprofits [8:30]
Disproportionate advocacy [11:35]
Five GYN cancers [12:24]
Incredible PINK campaigns [12:50]
Embarrassing and stigmatized cancers [16:13]
Taboo! [17:00]
Normalizing GYN discussions [20:10]
Proper names for anatomy [24:15]
Reproductive organs [27:01]
Repair cultural damage regarding GYN matters [28:24]
Special PURPLE Giveaway! [30:25]
Thanks for listening! [31:12]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Many of the deadliest cancers receive the least amount of research funding
Comparison of Cancer Burden and Nonprofit Organization Funding Reveals Disparities in Funding Across Cancer Types
Cancer Research: Where the Funding Goes - Cancer Center
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, covid, symptoms, gynecologic cancer awareness, hospitals, nonprofits, funding
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #nonprofits #funding #GCAM2021
Send in a voice message: https://anchor.fm/downthereaware/message
This week, Alex and Mary readdress the need to be “Down There Aware.” They discuss the fear that sometimes accompanies inquiries about one’s health, and the hesitancy in seeking out medical advice.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Gynecologic Cancer Awareness Month #GCAM2021 [1:00]
- Why the podcast began [2:06]
- A purpose to inform young women [4:05]
- Cancer phobia[5:03]
- Knowledge is power [6:19]
- What is a “normal” period? *correction, see article below[7:00]
- Second opinions [7:58]
- You are your own best advocate [10:50]
- Afraid of what others may think [11:27]
- Talking to your doctor [13:39]
- Use Alex’s story! 15:56]
- Trend toward more younger women diagnosed [19:15]
- We are not doctors! [19:57]
- Serious research [20:10]
- Lasting effects of cancer [22:20]
- Huge disparity in funding for GYN cancers [22:50]
- In the News! Covid-10 vaccine [23:55]
- Six reasons why Americans don’t get vaccinated [24:29]
- Trust science [26:03]
- Alex’s surgery postponed [26:10]
- Unvaccinated are overwhelming hospitals [27:40]
- Non-emergent necessary surgery vs emergency surgery [28:27]
- Importance of annual exams/testing [31:30]
- Please share us on social media [33:29]
- Wear Purple Day [33:42]
- Thanks for listening! [34:25]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
https://www.vox.com/2021/6/2/22463223/covid-19-vaccine-hesitancy-reasons-why
https://www.nytimes.com/interactive/2021/us/leon-florida-covid-cases.html
https://www.tmh.org/coronavirus/dashboard
https://www.nhs.uk/conditions/heavy-periods/
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, covid, symptoms, vaccination, gynecologic cancer awareness, hospitals
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #covid #vaccination #GCAM2021
Send in a voice message: https://anchor.fm/downthereaware/message
Coming Back from COVID
Alex and Mary return this week after several weeks of hiatus, recovering from Covid-19. They discuss how they were infected, the ongoing recovery process, and their gratitude. This episode is a bit crazy at times, getting back in the saddle was rough! Buckle up!
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
Welcome back! [0:40]
Bobby Bowden, DADGUMMIT [0:53]
September [1:43]
Gynecologic Cancer Awareness Month #GCAM2021 [2:55]
Wear Purple Day, September 20 [3:10]
The rest of the story [3:39]
We got Covid! [3:54]
Break-through cases [4:25]
5/15 infected [5:43]
Delta variant [6:00]
Rapid and PCR tests [9:02]
Pulse Oximeter [10:53]
Loss of taste/smell [12:00]
Alex, the super-taster [12:19]
Quarantine [13:15]
Covid, diabetes, or HCM? [17:57]
A-fib [19:30]
Kardia Mobile [20:37]
Extreme fatigue [23:05]
Brain fog [23:55]
Monoclonal antibody infusion [24:22]
We missed our listeners! [26:03]
Gratitude [26:47]
Responsibility to others [27:23]
False negative test results [27:28]
Back in the groove [29:09]
Covid’s impact on other procedures[30:10]
Thanks for listening! [31:38]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
https://www.cdc.gov/coronavirus/2019-ncov/index.html
https://my.clevelandclinic.org/health/diagnostics/21462-covid-19-and-pcr-testing
https://www.fda.gov/news-events/press-announcements/coronavirus-covid-19-update-fda-authorizes-additional-monoclonal-antibody-treatment-covid-19
https://www.mayoclinic.org/diseases-conditions/atrial-fibrillation/symptoms-causes/syc-20350624
https://www.cdc.gov/coronavirus/2019-ncov/variants/delta-variant.html?s_cid=11512:delta%20variant:sem.ga:p:RG:GM:gen:PTN:FY21
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #mother #daughter #covid #falsenegative #monoclonalantibodyinfusion #vaccination #PCR #breakthrough #pulseox #deltavariant #quarantine #GCAM2021
Send in a voice message: https://anchor.fm/downthereaware/message
As she approaches her 2-year cancer diagnosis anniversary, Alex reflects on her journey and revisits the first episode of Season 1, sharing her story with new listeners, and recounting those days with those who have supported the podcast from week #1.
Send in a voice message: https://anchor.fm/downthereaware/message
Another Weird Diagnosis! Seriously?
In this week’s episode, Mary shares her experience with a new and unexpected diagnosis. She and Alex discuss Mary’s new condition, the treatment, and the prognosis in order to inform listeners and encourage others to pay attention to symptoms, no matter how minor they may seem, and the importance of consultation with a doctor.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Life sometimes throws curve balls [1:20]
- GYN checkup [2:00]
- Type 2 diabetes meds [2:16]
- Lichen Sclerosus [3:32]
- Lichen Planus [4:44]
- Dermatologist [5:18]
- Definitive diagnosis [6:45]
- Vast difference in doctors [7:35]
- Vulvar cancer [8:15]
- Lichen Sclerosus vs Lichen Planus [8:48]
- Autoimmune disease [8:58]
- Post-menopausal women [9:28]
- Loss of estrogen [9:48]
- Libby Edwards [10:34]
- Gynecologic Dermatology [11:10]
- Oral Lichen Planus [11:50]
- Cancer [12:30]
- Resources [13:10]
- Frequent GYN visits [14:10]
- Treatable, not curable [15:40]
- Experience makes you more aware [17:11]
- Oral meds and injections [18:55]
- NO good research??? [19:37]
- Long term treatment plan [21:04]
- Biopsy [21:30]
- Alex’s 2-year cancer-versary[22:55]
- Esophagus [24:15]
- Importance of regular checkups [25:16]
- Trust your gut! [27:50]
- Thanks for listening! [29:59]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Libby Edwards, MD
https://www.midcharlottedermatologyresearch.com/
Lichen Planus
https://nebula.wsimg.com/d4af87b5964678287be3335fb3be6bc2?AccessKeyId=B78439C8610A1092E451&disposition=0&alloworigin=1
Lichen Planus
https://www.mayoclinic.org/diseases-conditions/lichen-planus/symptoms-causes/syc-20351378
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, lichen planus, lichen sclerosus, steroid ointment, dermatology, gynecology, vulva, estrogen, post-menopausal, autoimmune, cancer, biopsy
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #wombstories #mother #daughter #cancer #autoimmune #biopsy #lichenplanus #lichensclerosus #dermatology #estrogen #postmenopausal
Send in a voice message: https://anchor.fm/downthereaware/message
Ouch! Let’s Talk Pain, Part 2.
In this week’s episode, Alex and Mary continue their discussion of pain, something we can all relate to. They share their own personal worst pain and most strange pain, as well as discuss the origins of various pain scales. The opioid crisis is touched on, as are some alternative therapies for pain.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Welcome back! [0:40]
- Last week’s episode [1:20]
- Pain: Part Two [1:45]
- The pain scale [2:10]
- Research and subjects of research [2:55]
- Ask Me About My Uterus [3:09]
- Experimentation on pregnant women [3:20]
- Individuals feel pain differently [4:45]
- Quantifying pain? [6:00]
- Face pain scale [6:50]
- Describing pain to medical personnel [8:38]
- Doc on call [9:45]
- Pain meds [11:35]
- Lower back pain [12:15]
- Insurance - UGH. [13:25]
- Opioid crisis [14:50]
- Tracking RX abusers [16:02]
- Ruptured brain aneurysms [19:00]
- Opioid stats [20:10]
- Alternative pain management therapies [21:30]
- Sadie Mae [21:55]
- Menopause mantra [22:40]
- Cannabinoids [23:50]
- Pain affects everyone [26:20]
- Pain = Problem [27:05]
- Thanks for listening! [28:22]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Pain: What it is and how to treat it - https://www.medicalnewstoday.com/articles/145750#diagnosis
Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain https://www.amazon.com/dp/1568589417/ref=cm_sw_r_cp_api_glt_fabc_X3FNKHER9K6JQD0MSVCA
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, technology, pain, insurance, opioids, cannabinoid, addiction, pain scale, research, experimentation
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #wombstories #mother #daughter #cancer #cannabinoid #brainaneurysm #addiction #painscale #research #experimentation
Send in a voice message: https://anchor.fm/downthereaware/message
In this week’s episode, Alex and Mary discuss pain, something we can all relate to. They share their own personal worst pain and most strange pain, as well as discuss the origins of various pain scales. The opioid crisis is touched on, as are some alternative therapies for pain. This week is Part One on pain. Part Two will follow next week.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
Episode Highlights
- Good Morning?? [0:38]
- Chit-chat [0:57]
- Two-part mini series [2:00]
- Everyone experiences pain [2:20]
- Virginia Woolf quote [2:40]
- Descriptions of pain [3:00]
- Communication with doctors [3:50]
- Individuals feel pain differently [4:20]
- Childbirth pain [5:00]
- Alex’s worst pain [6:20]
- Brain surgery [7:00]
- I’ve got you under my skin! [7:55]
- Gas pain after abdominal surgery [9:10]
- Mary’s worst pain [10:30]
- When pain is temporary [11:00]
- “Valvey” veins [13:30]
- Papa Joe [16:15]
- Acute pain [18:22]
- Referred pain [20:10]
- Chronic pain [23:23]
- Back pain [23:45]
- Degenerative disc disease [23:50]
- Sciatica [25:45]
- Chiropractor [26:55]
- Migraine treatment [26:34]
- Triptan, vasoconstrictor [27:17]
- Insurance [28:05]
- Opioids [28:38]
- Alex’s strangest pain [29:17]
- Mary’s strangest pain [32:03]
- Injured joint capsule [32:45]
- Vionic shoes [33:50]
- Thanks for listening! [36:04]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Links Mentioned in the Episode
Pain: What it is and how to treat it
Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, technology, Virginia Woolf, pain, idiopathic intracranial hypertension, cerebral spinal fluid, peritoneal cavity, visceral pain, referred pain, somatic pain, fight or flight, rotator cuff, frozen shoulder, physical therapy, papilledema chronic pain, arthritis, migraines, degenerative disc disease, sciatica, chiropractor, vasoconstrictor, triptan, insurance, opioids, joint capsule, Vionic shoes
Podcast #Spotify #Anchor #research #advocacy #advancedimaging #diagnosis #women #womenshealth #gynecology #health #wombstories #mother #daughter #cancer #VirginiaWoolf #pain #brainsurgery #shunt #IIH #frozenshoulder #idiopathicintracranialhypertension #cerebralspinalfluid #CSF #peritonealcavity #visceralpain #referredpain #somaticpain #fightorflight #rotatorcuff #physicaltherapy #papilledema #chronicpain #arthritis #migraines #degenerativediscdisease #sciatica #chiropractor #vasoconstrictor #triptan #insurance #opioids #jointcapsule #vionic
Send in a voice message: https://anchor.fm/downthereaware/message
In this week’s episode, Alex and Mary reflect on their various experiences with cancer, having come to the mutual conclusion that they hate it. They hate what it does to hopes and dreams, they hate what it does to families, and they hate how it affects everything and everyone in a person’s life who is living with cancer. They pretty much hate everything about cancer. They are united in their hate of cancer.
Listen on our website, www.downthereaware.com/podcast, or wherever you get your podcasts.
- Welcome back! [0:39]
- June: Cancer Survivor Awareness Month [0:55]
- Everybody hates cancer (HCM) [1:50]
- Hate is a strong word [2:10]
- Shuttle Columbia [3:25]
- Every cancer experience is unique [6:22]
- Everyone knows someone with cancer [8:00]
- Cancer’s invasion of humanity [9:05]
- Dr. Ray [9:18]
- If you live long enough, you will get cancer [10:13]
- Leukemia [12:13]
- Early experience of death of a loved one [14:06]
- Hospice counseling [14:28]
- Cancer free, living with cancer, death as a result [17:50]
- The first in your friend group to get cancer [18:27]
- C-word = Fear [19:11]
- HP: “Fear of the name only increases fear of the thing itself.” [19:43]
- Prostate cancer [21:40]
- You will always be “someone who had cancer” [22:25]
- Lindsay [22:35]
- Affect on family and friends [24:05]
- Medically-assisted suicide [24:25]
- Hate manifested into positivity [25:25]
- Advancements in technology [26:15]
- Funding for cancer [27:00]
- Under-researched, runder-funded cancers [27:10]
- GYN cancers [27:25]
- “Missing something we never had” [28:15]
- Peach Sister Community [29:00]
- Conspiracy theories [29:13]
- Do you hate cancer? [29:40]
- Shout out to loyal listeners! [30:33]
- Thanks for listening! [32:12]
Stay Connected
Email Us: downthereaware@gmail.com
Instagram:@downthereaware
Facebook: Down There Aware
Twitter: @downthereaware
Pinterest: Down There Aware
TikTok: Down There Aware
Listen to Lindsay sing"Light of a Clear Blue Morning"
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, technology, leukemia, hospice, shuttle Columbia, prostate cancer, gynecologic cancers, uterine cancer, surgery, treatment
Send in a voice message: https://anchor.fm/downthereaware/message
In this week’s episode, Mary shares her experience participating in a patient forum, hosted by the Hypertrophic Cardiomyopathy Association (HCMA) and the American College of Cardiology (ACC), while Alex speaks to how we can transfer the knowledge, information, and lessons learned from such experiences to real life and living every day with diseases and complex medical conditions.
Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex and Mary continue the Motherhood series for the month of May, as they sit down with Jessica about her journey through IVF. Jessica details what led her to seek out a fertility specialist, the ups and downs of treatment, and her results from IVF.
Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex and Mary continue the Motherhood series for the month of May, as they speak with a single mom who adopted a toddler. She shared some little-known information about the many advantages of adopting through the Foster Care System.
Send in a voice message: https://anchor.fm/downthereaware/message
This week Alex and Mary continue the Motherhood series for the month of May, as they discuss the option to make the choice to be childfree. After watching the documentary, “To Kid Or Not To Kid”, written, produced and filmed by Maxine Trump, they explore the biases against men and women who have made a conscious choice to live a life, free of children. The research they share explores the pronatalism mindset that has been prevalent in the United States, in particular, for centuries and it helps dispel some common myths about those who make such a choice.
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This week Alex and Mary continue the Motherhood series for the month of May as they sit down with Alana Weinberg, a cancer survivor who became a mother with the help of a surrogate/gestational carrier. Alana is a wealth of information, having gone through the experience of seeking out and matching with a gestational carrier, and she shares her story with enthusiasm and candor. There were some serious bumps along the road, surrogacy in the midst of Co-Vid and a heart defect detected in the womb, but Alana’s story has a beautiful ending that she refers to as her “miracle.”
Send in a voice message: https://anchor.fm/downthereaware/message
As they begin their Motherhood Series for the month of May, Alex and Mary discuss what they are most familiar with, traditional birth. Mary shares her pregnancy and birth experiences with her two children, William (Will) and Alexandra (Alex) in the 1980s. Although considered traditional births, there were many twists and turns that might call that into question.
Send in a voice message: https://anchor.fm/downthereaware/message
Mary is on her way to a dental appointment in Orlando, so Alex is flying solo this week. She is discussing her latest ultrasound experience and where she is on her cancer journey. She shares her personal reflection on approaching two years since her cancer diagnosis and when, typically, cancer patients are told they can breathe a sigh of relief regarding being cancer free.
Send in a voice message: https://anchor.fm/downthereaware/message
After being on “Spring Break” for the past two weeks, Alex and Mary sit down to discuss life’s unexpected detours that led them to a break. They will explain their time in the ER, a subsequent hospitalization, and a trip to Chicago. What a whirlwind!
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This week Erin Arra shares her story as she recently received a cancer diagnosis while isolated at home, sick with CoVid-19. Erin describes her journey through HPV positive results that led her through countless tests and procedures, over the course of several years, only to be diagnosed with cervical cancer while quarantining at home, due to a positive CoVid-19 test.
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This week we sat down with Ellie Rae, an 11-year-old who just started her period, and her mom, Kelly, who gave a lot of thought to preparing her daughter for this stage in her development. Ellie Rae shares her reaction to her mom’s prep talks and how she felt when she started her period at school. Kelly, who is a teacher, shares invaluable information for moms who may be wondering how to get this conversation started.
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Mary is back this week, and the mother-daughter duo discuss setting boundaries within a caregiver/patient relationship, particularly as it pertains to the parent/adult child relationship. Alex & Mary give unique perspectives through their own experiences in their respective roles.
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This week Alex is flying solo, as Mary is sick (NOT Covid, mostly just an annoying cough). Alex reflects on what led to adopting her dog, Sadie Mae, five years ago. She also shares Sadie’s tragic story, which begs the question, “Who rescued whom?”
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This week Alex and Mary reflect on some comments they received on one of their TikTok videos. They discuss the difference between knowledge and fear in regards to research, awareness, and growing through experiential information. Why do we fear learning more about our bodies, our health? Why is sharing our experiences, in order to help others be advocates for themselves, viewed as “fear-mongering” by some?
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This week Alex and Mary sit down to talk about stress, how to spot it, how to treat it, and the role it plays in our lives. Stress can serve as a motivator, but more times than not it has a negative impact on our lives. Learn how to recognize the stress in your life and various ways to manage it.
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This week Alex and Mary discuss feminine hygiene and the conflict between Science and big corporations. The medical community, in particular those who deal with the female anatomy, recommend basic good hygiene in taking care of our bodies. However, big corporations have launched numerous marketing campaigns, targeting teens and preteens, planting the seed in their growing minds that their bodies should smell like flowers or fruit and, thereby, making them believe the very natural act of menstruation to be dirty or nasty. All this to make a dollar. Doctors tell us using such products is not necessary and may even prove to be harmful to our bodies.
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This week Alex and Mary sit down to reflect on their own menstruation stories, share some facts from an interesting article, and discuss some of the feelings and reactions to starting a period, having a period, and no longer dealing with periods at all.
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This week Alex and Mary sit down to discuss some of their best laid plans, how those plans have been interrupted, and how they responded to those interruptions. They have discovered that, oftentimes in hindsight, it’s easy to laugh at how they have responded to change, but when reacting in the moment, a sudden and unexpected detour can cause a lot of heartache, often unnecessarily. They have learned developing a mindset that accepts change, prioritizes actions, and understands how to move forward can help guide their reactions to change, presenting as more of a ripple, rather than a tidal wave.
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This week Alex and Mary sit down to discuss some of their experiences that could have (and should have) been handled better by the medical community. Their intent is not to disparage those who work in the medical field, but rather to share these experiences and how they were resolved, hoping to be of some help to our listeners.
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This week Alex and Mary sit down to discuss disparities in health care. They share data from various resources that highlight the progress we’ve made to narrow the gaps in health outcomes but also sheds light on the fact that the goal must be to eliminate health care disparities, completely.
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This week Alex and Mary sit down to discuss cervical cancer, in recognition of January as Cervical Cancer Awareness Month. They share some current research and encouraging statistics regarding cervical cancer and HPV.
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This week Alex and Mary sit down to reflect a bit on their first season and to look ahead at Season Two and some new and exciting things to look forward to as their podcast continues to grow and develop.
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In the last episode of their first season, Mary and Alex discuss some factors to consider when choosing where to make year-end donations. We will see you back for season two on Monday, January 4, 2021!
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This week Alex and Mary sat down together to discuss what they have learned since starting the podcast in February of 2019. The past 10 months have truly been a learning experience for both Alex and Mary and they talk about what that has meant to them in the midst of a global pandemic.
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This week Alex and Mary sat down together to discuss why they began the podcast, almost a year ago. They talk about what went into making the decision and how they have managed to keep it going during a global pandemic.
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This week Mary and Alex sat down with Courtney, one of their sorority sisters, who lives in Atlanta, GA. Courtney shares some valuable information about Turner Syndrome, a chromosomal abnormality, and how that diagnosis, when she was an infant, has affected her life and her path to motherhood.
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This week Mary and Alex sat down with Nicole, an FSU graduate and fellow sorority sister. Nicole discusses her experience with abnormally heavy periods, severe cramping, and suffering with the pain of huge fibroid cysts. These conditions resulted in her needing to undergo a hysterectomy at the age of 35, having never had the opportunity to birth a baby.
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This week Mary and Alex sat down with Mandy, who lives in Nashville, TN. Mandy shares her experience with multiple miscarriages, being dismissed by some in the medical community, and the tangible ways she honors the babies she never held in her arms, but will forever carry in her heart.
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This week Mary and Alex sat down with Nishaa, a performer, teacher and music advocate based in Orlando, FL. Her journey with infertility began in 2014, when she was unable to conceive again after a miscarriage. She went on to go through 3 rounds of IVF, however was unsuccessful in carrying a baby to term. She is currently 36 weeks pregnant after a truly miraculous conception. This podcast will be her first time talking about her infertility struggles.
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This week Mary and Alex sat down with Sarah, a stay at home mom who homeschools her five children, one girl and four boys, ages one to ten. Sarah shares the difficulties she and her husband experienced while trying to conceive early on in their marriage, the subsequent gift of several children, and the heartbreak of loss in the midst of those blessings.
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This week Mary and Alex sat down with Jennifer. Jennifer is the Director of Graduate Programs at FSU’s College of Business and a self-proclaimed “hippie”. Jennifer and her husband, Paul, journeyed through pregnancy loss together and now have two adult children.
Jennifer shares what she learned about the physical damage of a miscarriage and subsequent D & C years after she endured both. Her perspective about the effects of having a hysterectomy in regard to “womanhood” and all that entails is thought provoking and inspiring.
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This week Mary and Alex sat down with Trisha. Trisha is a clinical social worker, musician, nature-lover, and arts enthusiast out of North Carolina. She has a specialty in working with people experiencing eating disorders and body image distress, practicing from a Health At Every Size approach.
Through many years of unexplained symptoms, pain, and three pregnancy losses, Trisha has battled to find effective and holistic treatment options for diagnoses of fibromyalgia, IBS, endometriosis, PCOS, and Hashimoto’s Thyroiditis. She is continuing to travel along her fertility journey after experiencing two ectopic pregnancies and one “missed” miscarriage.
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This week Mary and Alex sat down with Dana Starr Ball. Dana is 34, a wife, and a mother to two wild boys. She is a Licensed Massage Therapist in the Charleston, SC area and has been practicing since 2008. She teaches Kinesiology, Myology and Clinical Massage techniques in a Massage Therapy training program and continuing education courses for LMTs as well. Dana was diagnosed with cervical cancer at the age of 29.
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This week Mary and Alex sat down with Lauren Felter, best known for her surprisingly candid commentary on all the things your parents told you not to talk about. After spending her 20s treating happiness like a checklist, she has redesigned her career to help others reject the “shoulds” of life. This summer, she launched the first course in her Get Your Sh*t Together course suite, which is designed to help young people know their worth, grow, and create their own definition of success. Lauren's story about her diagnosis echoes so many we have heard. From being mislead, unheard, and dismissed, Lauren experienced it all.
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This week Mary and Alex sat down with small cell cervical cancer survivor and advocate, Shannon Villalba. Shannon's cancer went undiagnosed for some time, and when it was finally diagnosed it was grade 4. With the help of chemo, radiation, and a wide array of holistic treatment, Shannon was able to fight her cancer and is nearing the ever important 5 year no evidence of disease marker.
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This week Mary and Alex sat down with two-time gynecologic cancer survivor and advocate, Mariette Peeters. Several years after battling endometrial cancer, Mariette was diagnosed with endometrioid ovarian cancer. Due to her previous diagnosis, she had been more closely surveilled by her physicians and was able to catch her ovarian cancer in stage one - something that is practically unheard of. In this episode, Mariette shares her experience with both endometrial and ovarian cancer, as well as how treating her whole body and mind has helped her heal and fight both of her cancers.
Mariette is a survivor of endometrial and ovarian cancers and for the past 15 years has nurtured and advocated for friends and family during their cancer journeys. She is also in remission from a lifelong struggle with depression.
Her more than 25 years experience with various holistic healing, therapeutic, and nutrition modalities are foundational in her approach to integrative cancer treatment. At various points in her life, Mariette has worked as a vegetarian chef, Reiki master, psychological astrologer, herbalist, shamanic healer, as well as an HIV/AIDS project manager and grant writer. She also has more than 20 years of daily meditation practice as well as regular yoga, Pilates, and MELT practices.
She is driven to use these experiences to help other cancer patients regain a sense of empowerment over their life and health. Helping them to navigate through different treatment options and practitioners so that they can find the right fit for them to build their support team, heal their life, and not just their cancer.
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To kick off Gynecologic Cancer Awareness Month, Mary and Alex sat down with vulvar cancer survivor and advocate, Yohanna Hoehler. After waiting seven years for a diagnosis, Yohanna wanted to help advocate for the rare condition and founded the Vulvar Cancer Awareness Forum, a non-profit organization. VCAF focuses on raising awareness and educating on all things Vulvar Cancer and provide support to those who have been diagnosed. Yohanna also actively advocates and lobbies for new Vulvar Cancer research and treatment advancements as most of what we know about this cancer is based on outdated information. #cancer #cancerawareness #gcam #awareness #vulvarcancer #uterinecancer #cervicalcancer #ovariancancer #vaginalcancer #fundraiser #philanthropy #gynecologiccancer #women #womenshealth #health #knowyourbody
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This week Mary and Alex reflect on the last 14 months and how cancer has changed them. Turns out, there have been both some expected and unexpected changes in how we've lived and learned since July 2019.
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Mary and Alex took advantage of some rainy weather and watched Netflix documentaries and movies focused on cancer. In this episode, the mother-daughter duo reflects on these unique stories of different people and their experiences living with, and dying from cancer.
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Have you ever felt like you were being consumed by the uncertainty of life? It could be a cancer diagnosis, dealing with a global pandemic, or any other thing that causes you anxiety in your life. Well we have! This week, Mary and Alex discuss the uncertainties of a cancer diagnosis and what we can do to fight the anxiety that comes along with it.
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To lighten up the podcast this week, we are discussing all things television - TV MEDICINE that is! From ever-available nurses to colorful bed sheets, Mary and Alex compare their personal hospital experiences with those from their favorite medical dramas.
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In this week's episode, Mary and Alex discuss ways that parents could teach their children, even from a young age, to be aware of their bodies and to advocate for their personal health and well-being.
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Continuing the conversation about pelvic floor health, Mary and Alex sit down with Dr. Amanda Olson. Dr. Olson earned her Bachelor of Science degree from Pacific University in 2005, and a Doctorate Degree in Physical Therapy from Regis University in 2008, graduating as a member of the Jesuit National Honor Society. She holds a Certification of Achievement in pelvic floor physical therapy (CAPP-PF) through the APTA, and the Pelvic Floor Practitioner Certification (PRPC) through the Herman and Wallace Pelvic Institute. She is also a certified Stott Pilates instructor and RRCA certified running coach, which she finds useful in curating treatment approaches.
She is the president and chief clinical officer of Intimate Rose where she develops pelvic health products and education, and authored the book Restoring the Pelvic Floor For Women. She is passionate about empowering women and men with pelvic health issues including pelvic pain, incontinence, and pre and post-partum issues.
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Being diagnosed with cancer changes everything. This week marks one year since Alex's endometrial cancer diagnosis. Mary and Alex sit down to discuss Alex's one-year follow up appointment with her oncologist, as well as what they've learned in the year following such a devastating diagnosis.
Alex Massey was diagnosed with stage 1 grade 1 endometrial cancer at the age of 32, after experiencing heavy bleeding and clots following a change in medication. Along with her mom, Mary, Alex created Down There Aware to share their experience dealing with a gynecologic cancer diagnosis, treatment, and the unforeseen consequences that come from the lack of awareness of women's health.
cancer #gynecology #gyncancer #women #womenshealth #podcast #podcaster #motherdaughter #infertility #downthereaware #gynhealth
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This week Alex & Mary listen to the first episode of Down There Aware and react to how they were feeling after receiving the diagnosis.. "My Cancer Story" is Alex's account of her cancer diagnosis from July 2019.
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On this week's episode, Alex and Mary explore advice they may offer if they were to meet their ten year old selves - good or bad.
Trigger warning - this episode briefly discusses sexual abuse.
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Let's talk about feelings! Although this is generally not where Alex feels most comfortable, this week Mary and Alex dig deep to discuss how they felt when Alex was diagnosed with endometrial cancer in July of 2019.
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Mary and Alex consider points in Alex's life where, knowing what they know now, they would have recognized indications of symptoms and signs of her future endometrial cancer diagnosis at the age of 32. The mother-daughter duo also discuss the need for open conversations with adolescents to afford them information they need to be Down There Aware.
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In this episode we discuss with physical therapist Dr. Laura Meihofer, a pelvic wellness expert, how cancer treatments, surgeries, and aging can affect a healthy pelvic floor. Dr. Meihofer is a yoga teaching, mindfulness practicing physical therapist who strives to demystify the pelvic floor, promote healthy movement, and create a safe space for taboo topics.
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This week, Mary & Alex discuss the importance of having a strong support system when you are faced with a cancer diagnosis.
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This week on the podcast, Mary and Alex discuss the importance of grieving and not comparing our losses to the losses of others.
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Alex and Mary discuss the challenges of Mother's Day post-uterine cancer and answer some of your questions.
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After having a revelation this week regarding her post-surgery body, Alex and Mary discuss scars and how it is important to look past them and give you and your body grace.
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Mary and Alex discuss various medical conditions that disproportionately affect women, as well as unique symptoms and risk factors that women have for many common diseases.
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This week, Mary & Alex discuss "COVID-19: What People with Cancer Need to Know" a recent presentation organized by UFHealth, North Central Florida Cancer Cancer Control Collaborative, and FORCE (Facing Our Risk of Cancer Empowered). During the presentation, Dr. Merry Jennifer Markham, Interim Chief, Division of Hematology & Oncology, Associate Professor, Department of Medicine at the University of Florida, and recent guest on Down There Aware, discussed what those with cancer need to know during this uncertain time, and how to stay in control of their cancer journey.
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Alex and Mary discuss some new exciting findings in the world of cancer research, that may be being overlooked by everything COVID-19.
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Alex and Mary continue the conversation from last week. What are we doing in quarantine and what can we do to make the most of this forced downtime. The pair also explores the impact on non-coronavirus related medical appointments during this unique time.
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Today Alex and Mary sit down for a chat and take a moment to reflect on current events and what COVID-19 means for them, and others at high risk.
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This week, Mary and Alex interview Dr. Merry Jennifer Markham. Dr. Markham is the Interim Chief of the Division of Hematology & Oncology and an associate professor in the Department of Medicine. She is a clinical investigator and educator with a focus on gynecologic malignancies. She serves as the Associate Director for Medical Affairs for the UF Health Cancer Center and the Research Lead for the Gynecologic Cancers Disease Site Group at UF Health Cancer Center. She is a member of the American Society of Clinical Oncology (ASCO), the Society of Gynecologic Oncologists (SGO), and the American College of Physicians (ACP), and numerous clinical trial cooperative groups.
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Through the telling of her sister, Maggie’s, cancer diagnosis story, Mary shares how we should be careful not to allow our past experiences to color our decisions about our healthcare, but we should always look at new symptoms with fresh eyes.
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In this week's episode, Mary & Alex discuss some of the most cringeworthy things people have said to them (and others) about cancer and caregiving. Also, they share some tips about what those recovering from surgery, and those caring for them, would rather hear from friends and family looking to show support.
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Alex and Mary sit down with their sorority sister, Rachel, to hear her story of a precancerous condition of the cervix, her fight to be heard, and her personal experience with the drug Lupron.
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Alex and Mary discuss the possible signs and symptoms that went unnoticed leading up to Alex's cancer diagnosis in July 2019.
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Mary, Alex's mama, recalls the days and weeks following Alex's cancer diagnosis.
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Alex shares her cancer story and driving force for creating "Down There Aware".
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Down There Aware is a new podcast aimed at bringing awareness to gynecologic cancers and women's healthcare issues. Beginning Monday, February 3, 2020, Alex and Mary Massey bring you weekly episodes shedding light on the realities of being a woman in our healthcare system today.
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