Tales from the Heart: Recent Episodes
Hypertrophic Cardiomyopathy Association / Lisa Salberg
Tales from the heart is a unique collection of educational, inspirational, and enlightening discussions with the stakeholders in the field of cardiology that come straight from the heart. The guests are patients, physicians, healthcare professionals, industry leaders, state and federal regulators and legislators, journalists, and more. Each story delves into the world of the Hypertrophic Cardiomyopathy Associations network and uncovers the true face of HCM from every angle. Patients will inspire you, medical professionals will educate you, and we may even motivate you to learn more and get involved. In season two Tales welcomes new regular co-host including, Dr. Martin Maron, Dr. Harry Lever, Dr Steve Ommen, Dr. Alex de Feria and more!
Lisa Salberg and Dr. Martin Maron explore new directions in HCM care, including emerging therapies targeting cardiac fibrosis and what researchers are learning about scarring in the heart. They also look ahead to new clinical trial data and answer patient questions about imaging, arrhythmias and the future of HCM treatment.
This conversation was recorded July 24, 2026
Lisa Salberg sits down with whistleblower Dinesh Thaker to examine the hidden risks within the generic drug supply chain and why stronger oversight is urgently needed. Together, they discuss drug quality, patient safety, and how advocacy can help drive meaningful change in the healthcare system.
This conversation was recorded June 17, 2026.
Lisa Salberg and Dr. Steve Ommen discuss practical ways to stay healthy with HCM during the busy summer months. They also break down promising new drug research, explain what emerging biomarkers mean for patients, and share why planning ahead can help people with HCM enjoy life with greater confidence.
This conversation was recorded June 19, 2026.
Lisa Salberg sits down with Dr. Nicholas Smedira of the Cleveland Clinic to explore how HCM surgery has evolved over the past three decades. They discuss myectomy, myosin inhibitors, surgical innovation, patient selection, and why experience and high-volume centers continue to matter in achieving the best outcomes for patients.
This conversation was recorded June 8, 2026.
Lisa Salberg welcomes Dr. Ahmed "Sami" Abuzaid to discuss the growth of specialized HCM care in Alaska. They explore building a regional HCM program, expanding access to clinical trials, improving health equity, and what patients need to know about navigating care in remote communities.
This conversation was recorded June 5, 2026.
Lisa Salberg welcomes Dr. Christopher Kramer to discuss groundbreaking findings from the international HCMR Registry. They explore how cardiac MRI, scar burden, heart muscle mass, and biomarkers may improve risk prediction and help shape the future of personalized HCM care.
This conversation was recorded on May 29, 2026
Lisa Salberg and Dr. Alex de Feria explore the latest developments in HCM care, from promising non-obstructive HCM therapies to the challenges of recognizing symptoms, managing medications, and assessing sudden cardiac death risk. They also discuss clinical trials, fibrosis research, and why the future of HCM treatment has never looked brighter.
This conversation was recorded May 28, 2026.
Host Lisa Salberg talks with Dr. Ronald H. Wharton about building a nationally recognized HCM Center of Excellence at Northwell Health on Long Island. They discuss patient education, new myosin inhibitor therapies, clinical trials, and why specialized HCM care can change lives for patients and families.
This conversation was recorded 5/21/26
Lisa Salberg welcomes Steven Kelley and Matt Grant to discuss HCMA’s new discussion group for men 40-ish and under living with HCM. The conversation explores friendship, mental health, dating, devices, and building a supportive space where younger men can openly share their experiences and connect with others facing similar challenges.
This conversation was recorded May 15, 2026.
Lisa Salberg and Dr. Michael Ayers explore the rapidly evolving world of HCM treatment, from myosin inhibitors and clinical trials to AFib management and patient-centered care. The episode also dives into advocacy, drug safety concerns, and why personalized treatment strategies matter more than ever for people living with hypertrophic cardiomyopathy.
This conversation was recorded May 15, 2026.
Lisa Salberg and Dr. Marty Maron break down the rapidly changing landscape of HCM treatment, including the growing role of myosin inhibitors and what new clinical trial data could mean for patients. The conversation also explores beta blockers, shared care models, Centers of Excellence, and why personalized treatment matters more than ever.
This conversation was recorded May 8, 2026.
Lisa Salberg welcomes Ram Khandelwal and Pallari Kamat for a global conversation about expanding HCM awareness and patient advocacy across India. The episode explores the challenges of diagnosis, healthcare access, and education while highlighting efforts to build stronger support systems for patients and families worldwide.
This conversation was recorded May 7, 2026.
Lisa Salberg and Dr. Marty Maron break down major new clinical trial results that could change treatment for patients with non obstructive HCM. They explain what the Acacia HCM trial found, why experts call it a transformative moment, and what the next steps could mean for patients around the world.
This conversation was recorded May 5, 2026.
Lisa Salberg and Dr. Matt Martinez break down how medical management for HCM is rapidly evolving, from traditional beta blockers to game-changing myosin inhibitors. They also preview what’s next, including emerging drugs, clinical trials, and new approaches that could reshape care in the near future.
This conversation was recorded May 1, 2026
Lisa Salberg and Dr. Ethan Rowin break down new data on atrial fibrillation risk in patients taking myosin inhibitors for HCM. They explain what the latest research shows, how risk compares to traditional care, and what patients should watch for as treatment options continue to evolve.
This conversation was recorded April 28, 2026.
Lisa Salberg is joined by Lynda Neuhausen and Vi Tang to launch a new discussion group focused on the genetics of hypertrophic cardiomyopathy. They explore the science behind genetic testing, the emotional impact on families, and how open conversation can help patients navigate uncertainty and risk together.
This conversation was recorded April 24, 2026.
Lisa Salberg and Dr. Steve Ommen reflect on the legacy of a cardiology pioneer who helped shape modern HCM care, while discussing the latest in genetics, diagnosis, and treatment. They break down how far the field has come and what patients should understand as care continues to evolve.
This conversation was recorded April 24, 2026
Lisa Salberg and Dr. Harry Lever take a hard look at generic drug quality and why consistency matters for people living with HCM. They break down real-world risks, what patients should watch for at the pharmacy, and how policy changes could improve safety nationwide.
This conversation was recorded April 17, 2026.
Lisa Salberg and Dr. Ahmed Masri break down the SONATA HCM clinical trial and a new approach that targets metabolism, not just pressure, in the heart. They explain who may qualify, what to expect, and why patient participation is critical to advancing better treatments for both obstructive and non-obstructive HCM.
This conversation was recorded April 14, 2026
Lisa Salberg and Dr. Marty Maron break down the latest HCM developments from ACC, including emerging myosin inhibitors, AI in imaging, and new approaches to fibrosis and genetic therapies. They also explain what these advances mean for patients now and how to prepare for a rapidly evolving treatment landscape.
This conversation was record April 10, 2026
Lisa Salberg and Dr. Alex de Feria walk through how patients can stay proactive with hypertrophic cardiomyopathy—from annual testing and symptom tracking to understanding when to act. They break down real-world decision making, hidden symptoms, and how evolving care strategies can help patients stay ahead of their condition.
This conversation was recorded March 26, 2026.
Lisa Salberg and Dr. Marty Maron break down new research reshaping how HCM is treated, from long-standing beta blockers to emerging targeted therapies. They also walk through arrhythmia risks, monitoring, and prevention—giving patients a clearer roadmap for managing symptoms and long-term outcomes in a rapidly changing care landscape.
Conversation recorded March 13, 2026
Lisa Salberg sits down with Senator Anthony Bucco to discuss why Heart Month and knowing your family heart health history can save lives. They explore New Jersey’s leadership in cardiac screening laws, the importance of early detection for HCM, and ongoing efforts to improve insurance access and patient protections.
This conversation was recorded Feb. 20, 2026.
Lisa Salberg and Dr. Marty Maron reflect on Heart Month, HCM Awareness Day, and the rapid evolution of treatment options. They discuss new therapies, clinical trials, patient empowerment, and why clarity and lifelong care remain essential in the journey with hypertrophic cardiomyopathy.
This conversation was recorded Feb. 20, 2026.
Lisa Salberg and Dr. Marty Maron reflect on Heart Month, HCM Awareness Day, and the rapid evolution of treatment options. They discuss new therapies, clinical trials, patient empowerment, and why clarity and lifelong care remain essential in the journey with hypertrophic cardiomyopathy.
This conversation was recorded Feb. 13, 2026
Host Lisa Salberg talks with author Dr. Matt Martinez about living with hypertrophic cardiomyopathy while balancing family, career, and advocacy. The conversation explores personal perspective, patient empowerment, and how sharing lived experience can help others better understand and navigate an HCM diagnosis.
This conversation was recorded Feb. 6, 2026.
Host Lisa Salberg talks with author and educator Dr. Mary Massey about the loss of her son to sudden cardiac arrest and the book she wrote to honor his life and help other families understand hypertrophic cardiomyopathy. Their conversation explores grief, genetic risk, ongoing screening, and how sharing one story can help protect others.
This conversation was recorded Feb. 2, 2026.
Host Lisa Salberg is joined by Minnesota State Senator Carla Nelson to discuss her personal journey with hypertrophic cardiomyopathy and how that experience shaped her advocacy for cardiac screening and education. They explore the role of legislation, family heart health history, and public awareness in helping identify HCM earlier and protecting future generations.
This conversation was recorded Feb. 2, 2026
Host Lisa Salberg is joined by Dr. Milind Desai of Cleveland Clinic to discuss new research challenging how hypertrophic cardiomyopathy patients define “asymptomatic.” They break down what long-term data and stress testing reveal about hidden symptoms, why follow-up matters even when you feel well, and how new therapies are reshaping care during a rapidly evolving era in HCM treatment.
This conversation was recorded Jan. 30, 2026.
In this expert conversation, Tales From the Heart Host Lisa Salberg is joined by Dr. Alex de Feria to help patients think clearly about managing hypertrophic cardiomyopathy year by year. They break down testing, symptoms that hide in plain sight, new therapies, and how patients can advocate for consistent, proactive care. Practical, timely guidance as Heart Month approaches.
This conversation was recorded Jan. 22, 2026
In this special edition of Tales From the Heart, guest Debra Rafson takes the host seat and turns the tables on Lisa Salberg. The conversation pulls back the curtain on Lisa’s personal journey, the moments that shaped her advocacy, and how lived experience continues to drive the mission and direction of the HCMA.
This conversation was recorded Jan. 16, 2026.
In Part 2 of Deconstructing Health Care, host Lisa Salberg is joined by physician, health policy expert, and HCM patient Dr. Jan Berger to trace how U.S. health care evolved after World War II. Together, they break down the laws, economic choices, and unintended consequences that shaped employer-based insurance, Medicare, HMOs, and modern coverage gaps—and why understanding that history matters now.
This conversation was recorded Jan. 16, 2026.
In this Share Your Story special of Tales From the Heart, host Lisa Salberg talks with Ella Morrissey and her mom, Feda, about a childhood HCM diagnosis that evolved into shocks, heart failure, and a lifesaving transplant. They share what it felt like to live through it as a teen and as a parent, and how Ella turned the journey into a book meant to help other families feel less alone.
This conversation was recorded Jan. 15, 2026
Host Lisa Salberg sits down with HCMA Ambassador Maier Bianchi for a candid “Share Your Story” conversation about his diagnosis, open heart surgery, and the mindset shift that pushed him into advocacy. He explains how he built Hearts of Commerce to spark screening and awareness in the e-commerce world, and why talking about family heart history can save lives.
This conversation was recorded Jan. 9, 2026.
Host Lisa Salberg opens 2026 with Dr. Marty Maron for a practical, patient-first roadmap for the year ahead. They cover what to schedule annually, how screening works for kids and adults, and what new and emerging therapies and trials could mean for obstructive and non-obstructive HCM.
This conversation was recorded Jan. 9, 2026
In this special Tales From the Heart series opener, host Lisa Salberg takes a hard, human-centered look at America’s health care system. Drawing on lived experience and decades of advocacy, she unpacks how health care became so complex, why access still fails too many people, and what it will take to rebuild a system focused on wellness, not just money.
Host Lisa Salberg sits down with Mayo Clinic cardiologist Dr. Steve Ommen to reflect on a pivotal year in hypertrophic cardiomyopathy care. They discuss emerging therapies, clinical trial lessons, genetics, AI in medicine, and practical guidance for patients and families as the HCM landscape continues to evolve.
This conversation was recorded Dec. 19, 2025.
Host Lisa Salberg is joined by Dr. Matt Martinez to explore why this is a turning point in hypertrophic cardiomyopathy care. They discuss emerging therapies, the power of collaboration across the HCM community, and practical guidance on exercise, hydration, diagnosis, and navigating symptoms as research and technology rapidly reshape what’s possible for patients.
This conversation was recorded Dec. 5, 2025.
Host Lisa Salberg talks with Dr. Alex de Feria about the holidays and living with HCM.
Conversation recorded 11/20/25
Host Lisa Salberg talks with Mayo Clinic’s Dr. Steve Ommen about how new therapies, technologies, and guidelines are transforming care for people with hypertrophic cardiomyopathy. They explore what these changes mean for patients, the importance of specialized care, and how collaboration continues to drive progress in the HCM community.
Conversation recorded 10/24/25.
Host Lisa Salberg talks with Dr. Marty Maron of Lahey Hospital about major new findings in hypertrophic cardiomyopathy care. They unpack results from the MAPLE and ODYSSEY trials, explore how these breakthroughs are reshaping treatment options, and discuss what’s next for patients living with HCM.
This conversation was recorded Oct. 10, 2025.
Host Lisa Salberg sits down with Cleveland Clinic’s Dr. Harry Lever to reflect on his decades of experience treating hypertrophic cardiomyopathy. They discuss how care has evolved, what patients need to know about specialized treatment, and how collaboration continues to shape better outcomes for the HCM community.
This conversation was recorded Oct. 3, 2025.
Host Lisa Salberg joins Dr. Matt Martinez to unpack the latest clinical trial results, evolving therapies, and new approaches to treating hypertrophic cardiomyopathy. From drug studies to surgical innovation, they explore what’s changing in care and why patient voices remain essential in shaping the future.
Host Lisa Salberg and Dr. Marty Maron break down new HCM trial results from Europe, what they mean for patients, and where treatment is headed next.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Alex de Feria about Centers of Excellence for HCM.
This conversation was recorded July 24, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Michael Ayers about Centers of Excellence for HCM.
This conversation was recorded July 18, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Marty Maron discuss twenty years of the Centers of Excellence for HCM.
This conversation was recorded July 11, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Jeff Bennett with the Cleveland Clinic discusses HCM in people who are young.
This conversation was recorded June 27, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Steve Ommen about HCM and exercise during warm months.
This conversation was recorded June 27, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Harry Lever about the safety of generic drugs and changes that are coming.
This conversation was recorded June 20, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Samuel Sears about an upcoming HCM project.
This conversation was recorded June 13, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Marty Maron about HCM + staying safe during summer months.
This conversation was recorded June 13, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Alex de Faria about HCM: May is Medical Management Month.
This conversation was recorded May 23, 2025.
Join us for this special edition of Tales From the Heart. Host Lisa Salberg sits down and chat with Matt Grant for a special Share Your Story.
This episode was recorded May 9, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Marty Maron about HCM: May is Medical Management Month.
This conversation was recorded May 9, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Michael Ayres about HCM: May is Medical Management Month.
This conversation was recorded May 2, 2025.
On this episode of Tales From the Heart, host Lisa Salberg chats with Dr. Kenneth Taylor and officially welcomes Piedmont Heart as a Center of Excellence (COE).
This conversation was recorded Apr. 18, 2025.
In this episode of Tales From the Heart host Lisa Salberg speaks with Dr. Steve Ommen about HCM: Family Screenings, Genetics + Gene Therapy.
This conversation was recorded Apr. 18, 2025.
Join us for this remarkable Share Your Story edition of Tales From the Heart as host Lisa Salberg chats with Lynda Neuhausen. Lynda shares her journey through heart transplant and discusses why she enjoys being an HCMA discussion group leader for our organization.
This conversation was recorded April 4, 2025.
On this edition of Tales From the Hearts, host Lisa Salberg chats with Dr. Alex de Feria--who is not only a doctor but is an HCM patient.
This conversation was recorded March 27, 2025.
Host Lisa Salberg chats with Dr. David Owens and welcomes UW Medicine Heart Institute aboard as a Center of Excellence (COE).
This conversation was recorded March 21, 2025.
In this special edition episode of Tales From the Heart, host Lisa Salberg introduces us to HCM patient Brian Blakely.
This conversation was recorded March 21, 2025.
Tales from the Heart podcast host Lisa Salberg chats with Dr. Harry Lever about generic prescriptions and Medical Management March.
This conversation was recorded on March 21, 2025
In this special Share Your Story episode of Tales From the Heart host Lisa Salberg sits down to listen to the life story of our friend and HCM patient Kevin O'Connor.
This conversation was recorded Mar. 14, 2025.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg is joined Vi Tang.
This conversation was recorded March 7, 2025.
Join Tales From the Heart host Lisa Salberg for an easy to understand discussion about Hypertrophic Cardiomyopathy with Dr. Matt Martinez.
This conversation was recorded March 7, 2025.
Tales From the Heart host Lisa Salberg chats with Jose Madrazo and Rick Carrick as we welcome back Johns Hopkins University as an HCMA Center of Excellence (COE).
This conversation was recorded Feb. 28, 2025.
Tales From the Heart host Lisa Salberg introduces us to Algenis Romero. Algenis shares his story of when he learned he Hypertrophic Cardiomyopathy and how he decided to become an advocate for HCMA.
This conversation was recorded Feb. 28, 2025.
Tales From the Heart host Lisa Salberg sits down to discuss HCM with Dr. Lubna Choudhury from Northwestern Medicine's Bluhm Cardiovascular Institute.
This conversation was recorded Feb. 27, 2025.
Talks from the Heart host Lisa Salberg welcomes Melissa Burroughs MD from Wellstar to our HCMA family. Please join us as Lisa chats to provide more information about Dr. Burroughs and Wellstar.
This conversation was recorded Feb. 21, 2025.
Join Tales from the Heart host Lisa Salberg for this Special Valentine's Day Edition with her best friend Julie Russo. They reminisce and prove the Power of Friendship in HCM.
This conversation was recorded Feb. 14, 2025.
Join Tales from the Heart podcast host Lisa Salberg as she podcasts live with some of our HCMA Ambassador team members: Lekeshia Henderson, Lauren Donoghue-Cinelli, and Joey Ulery Graham. They discuss why Heart Month is important and encourage interaction from their viewers to share the same!
This conversation was recorded Feb. 8, 2025.
Welcome to Tales from the Heart! This week host Lisa Salberg chats with Dr. Mariko Harper. Dr. Harper is with Virginia Mason Medical Center in Seattle, WA. The HCMA has officially certified Virginia Mason as a Center of Excellence (COE).
The conversation was recorded Jan. 31, 2025
Welcome to Tales from the Heart's patient journey segment: Host Lisa Salberg is joined by HCM and heart transplant warrior Alison Conklin. Listen to Allison's touching story in today's Patient Edition.
This conversation was recorded Jan. 17, 2025.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Wojciech Mazur who is a Hypertrophic Cardiomyopathy physician and patient. Listen to his interesting perspective and thoughts about the disease as we move into 2025.
The conversation was recorded Jan. 17, 2025
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg is joined by mother and son Kitty and Eric Broermann. Listen to their words and take today's HCM journey with the Broermann's.
This conversation was recorded Jan. 3, 2025.
Talks from the Heart host Lisa Salberg reviews our great accomplishments in 2024 and gives us a preview of what lies ahead in 2025.
This conversation was recorded: Dec. 20, 2024
On this episode of "Tales From the Heart" host Lisa Salberg is joined by Prof. Perry Elliott for a discussion about the future of Hypertrophic Cardiomyopathy.
This conversation was recorded Dec. 13, 2024.
On this episode of "Tales From the Heart" host Lisa Salberg is joined by Dr. Marty Maron for a discussion about HCM's journey: developments, challenges, and successes in 2024.
This conversation was recorded Dec. 13, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg is joined by Gwen Mayes. Gwen is an HCM patient, HCMA discussion group leader, and HCMA Ambassador. Gwen's story is both inspirational and motivational.
This conversation was recorded Nov. 22, 2024.
On this episode of "Tales From the Heart" host Lisa Salberg is joined by Dr. Marty Maron for a discussion about the Summit, open enrollment, and how to approach the holiday and meals.
This conversation was recorded Nov. 8, 2024.
On this episode of "Tales From the Heart" host Lisa Salberg is joined by Dr. Harry Lever and David Light to shed light on some generic drugs.
This conversation was recorded Nov. 8, 2024.
This is a Special Edition episode of the HCMA podcast "Tales From the Heart." Host Lisa Salberg introduces us to the staff clients chat with during Intake + Navigation Calls.
This conversation was recorded Nov. 8, 2024.
Tales From the Heart Host Lisa Salberg recaps everything that happened at the International HCM summit in Boston.
This podcast was recorded Nov. 1, 2024
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg introduces us to Susan Shapiro. She is an HCM patient and HCMA Ambassador.
This conversation was recorded Nov. 1, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Whit Tingley, chief medical officer, Tenaya Therapeutics.
The conversation was recorded Oct. 18, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Marty Maron to discuss Sudden Cardiac Awareness Month.
The conversation was recorded Oct. 11, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Michael Ayers to discuss Sudden Cardiac Awareness Month.
The conversation was recorded Oct. 4, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Harry Lever to discusses HCM, Septal Reduction September, and generic drugs.
This conversation was recorded Sept. 20, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Marty Maron discusses HCM and Septal Reduction September.
This conversation was recorded Sept. 13, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Matt Martinez to discusses HCM and the role of AI.
This conversation was recorded Sept. 6, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Steve Ommen to discusses the newly diagnosed and those with new symptoms. The discussion also touches on managing HMC at school and work.
This conversation was recorded Aug. 30, 2024.
Tales From the Heart Host Lisa Salberg talks with Debbie Hamilton as she prepares for a second heart transplant.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with HCM group discussion leaders Karen Newsroom and Sydelle Zinn to discusses HCM and ICDs.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Marty Maron to discusses HCM and Centers of Excellence.
This conversation was recorded July 12, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Steve Omen discusses exercise and managing HCM.
This conversation was recorded June 28, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg introduces us to Bill Rossi. He is an HCM patient, HCMA Ambassador, and is a member of the HCMA Board of Directors.
This conversation was recorded June 28, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Harry Lever discusses exercise and managing HCM.
This conversation was recorded June 21, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg introduces us to Debra Rafson. She is an HCM patient and one of our online group discussion leaders.
This conversation was recorded June 7, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Matt Martinez discusses exercise and managing HCM.
This conversation was recorded June 7, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg introduces us to Samuel Morris from Indiana and how he connects with HCM.
This conversation was recorded May 31, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg chats with heart transplants: Lisa Vecchione, Dawn Levitt + Karen Klimczak.
This conversation was recorded May 24, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Michael Ayers to discuss Medical Management May and clinical trials.
This conversation was recorded May 24, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Marcos Hazday from Advent Health Orlando to discuss Medical Management May.
This conversation was recorded May 17, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg introduces us to HCMA Ambassador Dino Marino.
This conversation was recorded May 17, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story. Host Lisa Salberg introduces us to author Jan Berger and how she connects with HCM.
This conversation was recorded May 10, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg discusses updated guidelines for AHA/ACC/HCM. Plus, a very special callout to the horse community.
This conversation was recorded May 10, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to Collin Solder and his family's medical journey.
This conversation was recorded Apr. 26, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Steve Ommen to discuss family genetics.
This conversation was recorded Apr. 26, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to Lekeshia Henderson. She lost her brother to HCM which led her to the discovery that she too has Hypertrophic Cardiomyopathy.
This conversation was recorded Apr. 26, 2024.
Tales from the Heart host Lisa Salberg and guests Dr. Lubna Choudhury catch up to discuss family screening + HCM.
This conversation was recorded April 19, 2024.
Tales from the Heart host Lisa Salberg is joined by Matt Martinez, MD, Director of Sports Cardiology and Hypertrophic Cardiomyopathy Center at Morristown Medical Center and Angeline Owens, MD, the medical director of The Center for Inherited Cardiovascular Disease at Penn Medicine.
This conversation was recorded April 19, 2024.
Welcome to Tales from the Heart! This week host Lisa Salberg sits down with Dr. Marty Maron to discuss genetic therapy.
This conversation was recorded Apr. 12, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us sisters Abby Cannon + Meri Everhart...both are living with HCM and discussing heart transplants.
This conversation was recorded Mar. 29, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to Barritt Haynes.
This conversation was recorded Mar. 29, 2024.
Tales from the Heart host Lisa Salberg and guests Dr. Alex de Feria catch up to discuss heart arrhythmias + HCM.
This conversation was recorded March 28, 2024.
Tales from the Heart host Lisa Salberg and guests Dr. Marty Maron catch up to discuss heart arrhythmias + HCM.
This conversation was recorded March 22, 2024.
Tales from the Heart host Lisa Salberg and guests Dr. Harry Lever catch up to discuss heart arrhythmias + HCM.
This conversation was recorded March 15, 2024.
Tales from the Heart host Lisa Salberg and guests Dr. Matt Martinez catch up to discuss heart arrhythmias + HCM.
This conversation was recorded March 1, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to Heidi Harty-Eugster, a mother of two whose HCM journey is simply remarkable. Listen as Heidi pulls back the curtain to share her personal story from The Land of the Long White Cloud: New Zealand.
This conversation was recorded Feb. 23, 2024.
Tales from the Heart host Lisa Salberg and guests Dr. Steve Ommen catch up for Heart Month and discuss progress being made in the fight against HCM.
This conversation was recorded Feb. 23, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to HCMA Ambassador Breanna "Bre" Restorick. Listen as she pulls back the curtain and shares his personal journey with HCM.
This conversation was recorded Feb. 16, 2024.
Tales from the Heart host Lisa Salberg and guests Dr. Victoria Parish + Heidi Salisbury catch up for Heart Month and discuss progress being made in the fight against HCM.
This conversation was recorded Feb. 16, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to HCMA Ambassador Debbie Hamilton. Listen as she pulls back the curtain and shares his personal journey with HCM.
This conversation was recorded Feb. 9, 2024.
Tales from the Heart host Lisa Salberg and guest Dr. Marty Maron catch for Heart Month and discuss new television commercials for HCM.
This conversation was recorded Feb. 9, 2024.
Tales from the Heart host Lisa Salberg and guests Anna Rodonski, PA-C + Jamie Belden, RN from the Hypertrophic Cardiomyopathy program at Ascension St. Thomas Heart in Nashville, TN.
This conversation was recorded Feb. 2, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to HCMA Ambassador Reinhard "Fritz" Kirchhof. Fritz has been living with HCM for nearly 30 years. Listen as he pulls back the curtain and shares his personal journey with HCM.
This conversation was recorded Jan. 26, 2024.
Tales from the Heart host Lisa Salberg and guest Dr. Admad Masri of Oregon Health & Science University (OHSU) discuss what you should be planning this year for your HCM care.
This conversation was recorded Jan. 12, 2024.
Welcome to Tales from the Heart's patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to HCMA Project Manager Ross Hadley. Ross not only is on the HCMA staff but he is one of the many faces of Hypertrophic Cardiomyopathy. Listen as he pulls back the curtain and shares his personal journey with HCM.
This conversation was recorded Jan. 12, 2024.
Welcome to Tales from the Heart and its new patient journey segment: Share Your Story.
Host Lisa Salberg introduces us to HCMA Ambassador Maier Bianchi. Maier is one of the many faces of Hypertrophic Cardiomyopathy. Listen as he pulls back the curtain and shares his personal journey with HCM.
This conversation was recorded Jan. 5, 2024.
Tales from the Heart host Lisa Salberg and guest Dr. Matt Martinez discuss what is coming in 2024 for diagnosing + treating Hypertrophic Cardiomyopathy.
This conversation was recorded Jan. 5, 2024.
Join Tales from the Heart podcast host Lisa Salberg and guest Dr. Steve Ommen as they discuss the successes of 2023 and what lies ahead in 2024 for the Hypertrophic Cardiomyopathy Association.
This conversation was recorded Dec. 22, 2023.
Join Tales from the Heart podcast host Lisa Salberg and guest Dr. Harry Lever as they discuss the successes of 2023 and what lies ahead in 2024 for the Hypertrophic Cardiomyopathy Association.
This conversation was recorded Dec. 15, 2023.
Join Tales from the Heart podcast host Lisa Salberg and guest Joey Graham as they discuss the successes of 2023 and what lies ahead in 2024 for the Hypertrophic Cardiomyopathy Association.
This conversation was recorded Dec. 8, 2023.
Join Tales from the Heart host, Lisa Salberg, and guest Dr. Marty Maron, as they discuss "Sudden Cardiac Arrests" + Implantable Medical Devices.
This conversation was recorded Oct 13, 2023.
Join Tales from the Heart host, Lisa Salberg, and guest Dr. Alex de Feria, as they discuss "Septal Reduction September" + promising new treatments for the community.
This conversation was recorded Sept 21, 2023.
Join Tales from the Heart host, Lisa Salberg, and guest Dr. Marty Maron, as they discuss "Septal Reduction September."
This conversation was recorded Sept 8, 2023.
Join Tales from the Heart host, Lisa Salberg, and guests Joey Graham and Ross Hadley, as they discuss the HCMA theme of the month of August, "Newly Diagnosed or Change in Symptoms - Adjusting the Sails."
This conversation was recorded Aug 11, 2023.
Join Tales from the Heart host, Lisa Salberg, and her guests, Rosemary Conlon and Scott Barrocas. Rosemary and Scott are members of the HCMA Legislative Committee and speak with Lisa about upcoming legislative initiatives.
This conversation was recorded Aug 4, 2023.
Join Tales from the Heart podcast host Lisa Salberg as co-host Joey Graham interviews her about the history of the Hypertrophic Cardiomyopathy Association.
This conversation was recorded July 7, 2023.
Join Tales from the Heart host Lisa Salberg and guest Dr. Harry Lever as they discuss our HCMA topic for the month of September: Septal Reduction - evaluating your options... is the new term gradient management.
This conversation was recorded September 9, 2022.
Join Tales from the Heart host Lisa Salberg and guest Farax Ali, CEO, Tenaya Therapeutics as they discuss HCM advances, the timeline for discovery + hopes for application in our HCM community.
This conversation was recorded September 27, 2022.
Join Tales from the Heart host Lisa Salberg and guest Dr. Steve Ommen as they discuss emotional wellness, seeking help + recognizing Sudden Cardiac Awareness Month.
This conversation was recorded October 28, 2022.
Join Tales from the Heart host Lisa Salberg and her guest Dr. Harry Lever as they discuss the HCMA topic for November, (and take Q&A from their Facebook Live audience): "Weight Management - Preparing for the holidays, meals, family, and holiday stressors."
This conversation was recorded November 18, 2022.
Join Tales from the Heart podcast host Lisa Salberg and her guest Dr. Marty Maron as they discuss the HCMA topic for the month of June: "Exercise - Balancing work/family/HCM while keeping fit (mentally and physically)."
This conversation was recorded June 2, 2023.
Join host Lisa Salberg as she discusses the HCMA themes for December, "Gratitude - Loss & Support." A special bonus - updates from her trip to the San Fransisco area - amazing things are in the works!
This conversation was recorded December 9, 2022.
Join Tales from the Heart podcast host Lisa Salberg and her guest Rosemary Gibson. Rosemary is author of "China Rx: Exposing the Risks of America's Dependence on China for Medicine." We discuss poor drug quality and generic drugs.
This conversation was recorded December 14, 2022.
Tales from the Heart podcast host Lisa Salberg is joined by Dr. Marty Maron and Dr. Steve Ommen to discuss HCM highlights from 2022 and look forward to 2023.
This conversation was recorded December 16, 2022.
Lisa Salberg, Founder and CEO of the Hypertrophic Cardiomyopathy Association, discusses her personal battles with receiving quality life-sustaining drugs through the insane pathways currently legally operating in the USA. Learn about what is happening in drug distribution in the USA and what needs to change.
This episode was recorded January 6, 2023.
Join Tales from the Heart podcast host Lisa Salberg and her guest Dr. Marty Maron as they discuss the HCMA topic for the month of January, "HCM yearly update - Setting your HCM plan for the year."
This conversation was recorded January 16, 2023
Join Tales from the Heart host, Lisa Salberg and her guest Dr. Alex de Feria as they discuss the HCMA theme for the month of January: HCM Yearly Update & Setting Your HCM Plan for the Year.
This conversation was recorded Jan 16, 2023.
Join Tales from the Heart host Lisa Salberg and her guest Dr. Harry Lever as they discuss the HCMA topic for the month of January "HCM Yearly Update / Setting your HCM Plan for the Year".
This conversation was recorded January 27, 2023.
Join host Lisa Salberg (6 years post-transplant) and her guest Joey Ulery Graham for this Special Edition of "Tales from The Heart" podcast kicking off February Heart Month. Joey was diagnosed in 2022 with HCM, and we will follow him on his newly diagnosed patient HCM journey throughout the year.
This conversation was recorded February 3, 2023.
Join Tales from the Heart podcast host Lisa Salberg and her guest Dr. Steve Ommen as they discuss the HCMA topic for the month of February: "HCM AWARENESS - Sharing Stories of Life with HCM".
This conversation was recorded February 24, 2023
Join Tales from the Heart podcast host Lisa Salberg and guest Dr. Marty Maron as the discuss the HCMA of March, "Arrythmias - Life with Devices."
This conversation was recorded March 10, 2023.
Join Tales from the Heart podcast host Lisa Salberg and her guest Dr. Marty Maron as they discuss the HCMA topic for the month of May: Medical Management, Managing Symptoms + Medication Side Effects.
This conversation was recorded May 12, 2023
Join Tales from the Heart host, Lisa Salberg and her guest, Greg Ruf, from the DCM Foundation. Let's talk about the Genetic CardioMYopathy Awareness Consortium.
https://www.geneticcardiomyopathy.org/
This conversation was recorded on March 17, 2023.
Join "Tales from the Heart" host Lisa Salberg and her guest Dr. Harry Lever as they discuss the April HCMA theme, "Genetics/Family History - Communicating (genetics/FH) with family." We will also cover medical management May!
This conversation was recorded April 28, 2023.
Join Tales from the Heart host, Lisa Salberg and her guests, Dr. Ahmad Masri and Dr. Melissa Burroughs for a discussion surrounding cardiac amyloidosis in the HCM community.
This conversation was recorded April 27, 2023.
Join Tales from the Heart host Lisa Salberg, and her guest, Dr. Alex de Feria as they discuss the HCMA theme for the month of March: "Arrhythmias + Life with Devices." The discussion also touches on the April theme: "Genetics + Family."
This conversation was recorded March 23, 2023.
Tales from the Heart host Lisa Salberg and her guest Maria Reuter, AG-ACNP, MSN, discuss weight loss + HCM.
This conversation was recorded March 24, 2023.
Tales from the Heart podcast Cohost Lisa Salberg and her guest Dr. Marty Maron dive into the subject of genetics. Plus, Lisa + Marty give a special shoutout to Dr. Bill Roberts.
This conversation was recorded Apr. 14, 2023.
Tales from the Heart Podcast Host Lisa Salberg interviews Steve R. Ommen, M.D. with Mayo Clinic in Rochester, Minnesota.
Lisa and Dr. Ommen offer excellent tips for those of us who are newly diagnosed individuals and what we should do if we experience a change in our symptoms. The conversation also helps unpack how we can "adjust the sails" (or change things in our lives) when living with HCM--not in fear of it and not running from it.
The conversation was recorded Aug. 26, 2022
Tales from the Heart Podcast Host Lisa Salberg sits down for an initimate conversation with Hypertrophic Cardiomyopathy patient Joey Graham--who lives in Indiana. It's been one year since he was diagnosed with HOCM. Hear directly from Joey in this no holds barred conversation with Lisa.
The conversation took place March 31, 2023
It is Joey's second appearance on the podcast.
In this episode of Tales from the Heart, Lisa Salberg and her guest Dr. Marty Maron discuss the HCMA Topics for the month of August "Newly diagnosed/ or change in symptoms/status - Adjusting the sails".
In this episode, host Lisa Salsberg discusses the ever-changing path of life with HCM and building resilience in the face of chronic illness.
In this episode of Tales from the Heart, Lisa Salberg and her guest, Dr. Harry Lever, discuss the topic of "COE Care". What is the difference between the care offered by a COE and the care you receive at your community cardiologist? Find out this and more.
In this epiosde of Tales from the Heart, Lisa Salberg and her guest Dr. Marty Maron discuss "Vacationing with HCM": how to plan, pack and set expectations to reduce stress while traveling.
In this episode of Tales from the Heart, Lisa Salberg, and her guest, Dr. Steve Ommen discuss Exercise and Balancing work/family/HCM while keeping fit (mentally and physically).
In this episode of Tales from the Heart, Lisa Salsberg and guest Edward Jackson, HCM warrior discuss his choice to be part of a clinical trial and some of the aspects of his clinical trial experience. They also discuss exercise and balancing work/family/HCM, while keeping fit (mentally and physically).
In this episode of Tales from the Heart, Lisa Salberg and genetic counselor Colleen Caleshu discuss the history of genetic testing. They talk about the current utility of genetic testing in HCM spectrum disorders today and what tomorrow might bring. They also have a dialog about the passage of the Genetic Information Nondiscrimination Act (GINA) and what it does for patients.
In this episode of Tales from the Heart, Lisa Salberg, Dr. Marty Maron and Dr. Prem Shekar discuss exercise and balancing work/family/HCM while keeping fit (mentally and physically). This episode was broadcasted live from the new Lahey Hospital & Medical Center Hypertrophic Cardiomyopathy (HCM) medical and surgical center.
In this episode of "Tales from the Heart", Lisa Salberg and her guest Dr. Harry Lever discuss medical management, managing symptoms and medication side effects.
In this episode of Tales From the Heart, Lisa Salsberg has a discussion with representatives: Dr. Steve Heitner and Dr. Dan Jacoby from Cytokinetics about REDWOOD HCM OLE.
In this special edition episode of Tales from the Heart, host Lisa Salsberg and Dr. Milind Desai of Clevaland discuss the arrival of the new drug Camzyos. Camzyos is the first and only FDA-approved cardiac myosin inhibitor that specifically targets the source of obstructive HCM
In this episode of "Tales from the Heart" host, Lisa Salberg, and her guest, Dr. Steve Ommen discuss Genetics/Family History in HCM and Communicating (genetics/FH) with family. The conversation includes a background on genetic mutations known to cause HCM (sarcomere, autosomal dominant, etc.). They also answer the questions: What do genetic tests for HCM mean? Who should be tested? What do genetic tests for HCM NOT mean? What does the genetic test involve?
In this episode of Tales from the Heart, Lisa Salsberg and Dr. Turer discuss the role of patient advocacy for uncommon disorders
In this episode of Tales from the Heart, host Lisa Salsberg and Dr. Harry Lever of Cleveland Clinic will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.
In this special edition episode of Tales From the Heart, Lisa Salsberg and Dr. Matthew Martinez discuss student athlete screening as it relates to COVID and the COVID Vaccine. New Jersey Statue C.18A:40-41.6 clearly communicates the role of student-athlete preparticipation physical examinations. The Hypertrophic Cardiomyopathy Association, HCMA, and other organizations in NJ worked to pass updates to this legislation to ensure all student-athletes are protected from all forms of cardiac complications up to an including sudden cardiac arrest (hypertrophic cardiomyopathy (HCM) it the most common cause of SCA in the young athletes). The assessment of cardiac arrest risk is a complex area covered in the required state-based training module for all practitioners performing both sports physicals and ‘well-child” exams. It is important to ensure that school boards, school medical oversight providers, coaches, students, and parents are being informed by evidence-based scientifically proven theories and approaches to surveillance.
Dr. Alex De Feria joins host Lisa Salsberg for this episode of Tales from the Heart to discuss timely HCM topics. Being diagnosed with HCM, Dr. Feria brings a unique point of view on HCM from both a doctor's and patients perspective.
The HCMA theme for the month of March is: "Arrythmias / Life with Devices". In this episode of Tales from the heart, host Lisa Salsberg and Dr. Maron will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.
In this episode of Tales from the Heart, host Lisa Salsberg reflects on HCM Heart Month this past February and why it was important.
In this episode of Tales from the Heart, host Lisa Salsberg wraps up Heart Month with a discussion about why HCM Awareness is so important with Dr. Steve Ommen of Mayo Clinic. Dr Steve Ommen leads the HCM program and talk about HCM history and a vision of the future in HCM.
ACC Survey Link: Survey link: https://www.surveys.acc.org/se/0B87B7442D11B879 Imbria Trial: https://www.surveymonkey.com/r/hcmawareness Celltrion: https://www.surveymonkey.com/r/hcmacelltrion Please share this story to bring awareness to Heart Month! To learn more about hypertrophic cardiomyopathy (HCM), go to https://www.4hcm.org.#4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM
In this episode of Tales from the Heart, host Lisa Salsberg talks to Heart Billur Dowse, HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee about the role of the committee and the HCM Act.
In this episode of Tales from the Heart, Lisa and Dr. Maron discuss delay to diagnosis, the right time to go to a COE, the importance of expert care, family screening, how to find HCM families, and more.
4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM
In this episode of Tales from the Heart WomanHeart CEO Celina Gorre, joins HCMA CEO Lisa Salberg for a discussion about Heart Month and health equity for the HCM community.
In this episode of Tales From the Heart, Lisa Salberg, CEO of the HCMA and Dr. Harry Lever of the Cleveland Clinic gives tips on how to plan your HCM year.
In this episode of Tales from the Heart, Lisa talks to Mike Papale: HCM warrior, cardiac arrest survivor, author, and advocate. Mike talks about his book "A Big Heart: A Memoir" which tells the story of his diagnosis with HCM and how it's shaped his life.
In this episode of Tales from the Heart, Lisa Salberg and Dr. Martin Maron discuss what is coming to the HCM community in 2022, how to plan as a patient for the new year, and the exciting new programs we are starting.
As the HCMA grows we know how important it is for patients to receive information in a language they are comfortable speaking. Additionally, we know that every country has a unique healthcare system. This is why we have launched HCMA International to help bridge gaps in knowledge, understanding, and access to care for patients around the world. In this bonus episode of Tales From the Heart, we talk to our Sweden chapter.
This episode of Tales from the Heart focuses on health equity and the HCM experience within the Black/African American community. It was originally recorded on Facebook live on December 9, 2021
In this episode of Tales from the heart Lisa Salberg, HCMA Founder and CEO, and Gwen Mayes MMSc, JD HCM patient discuss real-life with HCM and the connection between our hearts and our emotional wellbeing.
In this episode of Tales from the Heart, Lisa and Dr. Harry Lever continue the conversation on emotional wellness in HCM. They discuss history, services, and give some perspective.
In this episode of Tales from the Heart, Lisa Salsberg speaks to the new members of the HCMA Recognized Center of Excellence family
In this episode of Tales from the Heart, Lisa Salsberg and Dr. Martin Maron discuss emotional wellness in HCM. They give useful tips on how to find help and get treated.
In this episode of Tales from the Heart, Lisa Salsberg and Dr. Fady Malik, Executive Vice President of R&D from Cytokinetics discuss findings from the Redwood HCM trial.
In this episode of Tales from the Heart, Dr. Harry Lever of the Cleveland Clinic and Lisa Salberg discuss how to decide whether it's time for septal reduction therapy. Other topics such as myectomy and alcohol septal ablation are addressed as well. Q&A at the end of the episode.
In this episode of Tales From the Heart, Lisa Salsberg and Martin Maron discuss the past, present and future of clinical trials in HCM.
In this episode of Tales from the Heart, Lisa Salberg and Dr. Harry Lever of the Cleveland Clinic discuss tips and tricks for those newly diagnosed with HCM or who are experiencing new symptoms. They also talk about the risk of Covid-19 when having HCM and the benefits of getting the vaccine
In this episode of Tales from the Heart, Lisa Salberg and Co-Host Dr. Martin Maron of Tufts Medical Center discuss tips and tricks for those recently diagnosed with HCM or who are having significant changes in symptoms. They also dive into the difficult topic of how to "adjust the sails" and learn to live WITH HCM, not in fear of it.
In this episode of Tales from the Heart, Lisa and Dr. Harry Lever discuss the risk the new Covid-19 Delta variant poses for people with HCM.
In this episode of Tales From the Heart, Lisa Salsberg and Dr. Martin Maron of Tufts Medical Center discuss vacationing and summer recreation with HCM - What is fun, safe and how to balance your HCM.
In this episode of Tales from the Heart, Lisa Salsberg and Dr. Martin Maron welcome a new member to Tufts Medical Center and the HCM Center and Research Institute.
In this episode of Tales from the Heart, Lisa Salsaberg and Dr. Harry Lever discuss provable obstruction and why it is important to know about your obstruction when planning exercise.
In this episode of Tales from the Heart (originally recorded on June 10, 2021), Lisa Salsberg and Dr. Martin talk about exercise and HCM. They answer the questions: How much is the right amount of activity and exercise in HCM? Are sports ok? How do you make a wise choice?
In this episode of Tales from the Heart, Lisa Salberg and Dr. Martin Maron discuss Medical Management May. Which medications are used in HCM and WHY? What is coming in the future?
In this episode of Tales from the heart Dr. Nick Smedira introduces a new member of the Cleveland Clinic HCM surgical team,: Dr. Doug Johnston.Cleveland Clinic has a long history with HCM and myectomy. Currently they are preforming an estimated 220 myectomies per year.
In this episode of Tales from the Heart, host Lisa Salberg, CEO and Founder of the HCMA and Co-Host Dr. Harry Lever discuss obstruction in HCM. Q&A at the 30 minute mark.
In this episode of Tales from the Heart, Lisa Salber, CEO and Co-host Dr. Martin Maron discuss atrial fibrillation in HCM. We take a look into some of the unique issues HCM patients and their care team encounter while attempting to manage this common pathway in the HCM journey. Approximately 30% of the HCM population will experience a-fib at some point in their life with HCM. Q&A at the end of the episode. 4hcm.org
In this episode of Tales from the Heart, Lisa and Co-Host Dr. Martin Maron, Tufts Medical Center/Morristown Medical Center HCM Director talk with HCM Warrior Seth P. This episode focuses on adults with HCM and competitive athletic participation. Disclaimer: This podcast does not discuss children, college athletics, or professional participation in competitive athletics. Join us to hear how Seth managed his HCM and his life’s passion.
In this episode of Tales from the Heart, Lisa and Co-host Dr. Harry Lever, Cleveland Clinic. take a deeper look into medications used in HCM. Dr. Lever’s sides he used for this segment can be viewed on the HCM YouTube channel
In this episode of Tales from the Heart, Lisa Salberg and Co-Host Marty Maron are joined by Karen, an HCM Warrior. This is an inspirational story of how HCMA Center of Excellence care, HCM research, and the HCMA support helped create the infrastructure for a fantastic journey!
In this episode of Tales From the Heart, Lisa talks to Dr. Harry Lever and special guest HCM Warrior Kathy Wilson. Kathy tells a story of misdiagnosis, anxiety, open heart surgery (myectomy), and recovery.
In this episode of Tales From the Heart, recorded January 8, 2021, Lisa talks to Dr. Martin Maron, director of the HCM Center, Tufts Medical Center, Associate Professor at Tufts University School of Medicine about family screening in families with HCM. Dr. Martin Maron also gives his thoughts on the Covid-19 vaccine and what HCM patients should do if they test positive for Covid-19.
In this episode, Euan Ashley, MD, PhD Professor of Medicine & Genetics Stanford and HCM Program Co-Director discusses his new book, The Genome Odyssey - Medical Mysteries, and the incredible question to solve them. We are also joined by Leilani Graham, who is featured in the book. The ties to HCM are made clear in the podcast! Q&A live at the conclusion of the interview.
Available for preorder https://us.macmillan.com/books/9781250234995
In this episode of Tales from the Heart, author RA Anderson discusses her ties to the HCM community and her new book, Once Upon the Rhine - Cody the Cockatrice Series Book One. In which we meet Brody a young boy with a diagnosis of HCM.
The book is currently available through the HCMA: https://www.4hcm.org/store_product.asp?prodid=45
In part two of this special episode of Tales From the Heart, Lisa continues to talk about the new HCM guidelines released on 11/20/2020 with Dr. Harry Lever and Dr. Martin Maron. Q and A included.
In part one of this special episode of Tales From the Heart, Lisa talks with Dr. Harry Lever about the New HCM guidelines released on 11/20/2020.
In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imaging, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. Lisa and Dr. Maron talk about the how HCM treatment has improved over the years and how it will evolve in the future.
In this episode, Lisa speaks with Robert Blum, President and CEO of Cytokinetics about future therapies for HCM and how industry and advocacy can work together to improve the lives of those with HCM. The current status of Cytokinetics clinical trials in HCM is discussed. Q&A included.
In this episode, Lisa talks with Dr. Harry Lever of Cleveland Clinic for a discussion about invasive therapy for obstruction. We take a deep dive in to "when" to think about getting moving to myectomy or alcohol septal ablation. Dr. Lever also talks about the various treatments for obstruction. Q&A included.
In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imaging, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. In this episode Dr. Maron talks about cardiac imaging in HCM, the history of HCM treatment and diagnosis, the purpose and usefulness of an echocardiogram, contrast echocardiogram, normal values for wall thickness, obstruction, heart murmur, cardiac MRI, and more.
In this episode, Lisa talks with Dr. Harry Lever of Cleveland Clinic about safety concerns with some generic drugs. He advises listeners to stay informed about where medication by checking the label and asking your pharmacist. There are documented cases of quality and purity problems coming from some overseas manufacturing plants.
In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imagining, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. In this episode Dr. Maron talks with Lisa about why HCM is so poorly misunderstood. Lisa also reads questions from the live Facebook chat for Dr. Maron to answer. This episode was record on 09/11/2020 and Lisa and Dr. Maron take a few minutes to pay tribute to the lives that were lost in the tragic terrorist attacks on the World Trade Center on 09/11/2001.
In this episode we welcome Julie, HCMA’s new Volunteer Coordinator. Julie and Lisa talk about the programs they have planned for HCMA in the future. They have been friends since early childhood and reflect on the day Lisa was first diagnosed with Hypertrophic Cardiomyopathy. Julie also talks about her son David who is on the Autism spectrum and her experience raising and taking care of him. You will see why Julie is such a great fit for the HCMA community and how she is truly part of the bighearted family!
Host Lisa Salberg discusses exercise, obstruction and hypertrophy with Dr. Martin Maron from Tufts Medical Center.
In this episode of Tales from the Heart, host Lisa Salberg discusses genetic testing with Invitae representative Dr. Tom Callis -PhD.
In this episode of Tales from the Heart, host Lisa Salberg discusses the safety of the use of some generic drugs with Cleveland Clinic's own Dr. Harry Lever.
As COVID-19 spreads through the USA, Lisa Salberg speaks with Dr. Eric Adler: Cardiologist and Professor of Medicine and Medical Director of the Heart Transplant Program at the University of California, San Diego. Dr. Adler specializes in HCM and heart transplants to help HCM patients understand how to stay safe during complicated times. Below are timestamps and tags to where content can be found.
Visit 4hcm.org for more information on HCM.
bestantibiotic
05:45
transplantcommunity
06:04
HCMandCOVID19
06:59
obstruction
07:12
hypertension
09:26
Ace2receptor
10:10
qtintervals
11:44
hydroxychloroquinetrial
13:51
plaquenilcardiomyopathy
15:38
telehealth
20:47
drreccommendations
25:13
COVIDandtransplantpatients
27:48
currentguidelines
34:05
ibuprofinvsacetaminopen
39:30
donations
42:25
In this episode we discuss risk of sudden cardiac arrest vs. the symptoms of hypertrophic cardiomyopathy(HCM). A common misconception is that absence of symptoms means absence of risk of cardiac arrest. HCM patient Cole Mitchell discusses what it was like for him to receive an implantable defibrillator in his teens. His story clearly illustrates how real the risk factors can be. To read more about HCM risk factors read the 2011 ACCF/AHA Guidelines - section 6.3