InformED: Recent Episodes
ISMPP
ISMPP talks about key trends and issues facing medical communication and publication professionals in an ever-evolving field. Join our new podcast where you can hear experts share their thought-provoking insights and lessons.
Continuing our look at increasing patient participation in the scientific publication process, this episode of InformED will look at the process from a medical communications perspective. Our guests discuss questions to think through during the planning stages including: the different roles that patients can take, how to best communicate with patients and patient advocates, and education they may need to fully engage in the process. Guest host Kelly Soldavin, Senior Editor at Taylor & Francis Group is joined by Jacqui Oliver, Patient Partnership Director, Scientific at Envision Pharma Group and Sarah Griffiths Communications Director, Patient Engagement at Oxford PharmaGenesis to for this second episode in a series of patient engagement in scientific publishing podcasts.
This episode of InformED is exploring the specific steps to take in order to increase the participation of patients in the scientific publication process from the pharma perspective. Our guests discuss topics ranging from forming a collaborative board, patient authorship, and making publications more accessible to non-specialist audiences. Each of our guests bring years of experience and helpful advice no matter where you are in the process of building a patient participation program. Guest host Jonathan Patience, Head of Publication Development at Taylor & Francis, is joined by Catherine Skobe, Senior Director, Publications Innovative Solutions Lead at Pfizer and Avishek Pal, Global Medical Director, Gene & Cell Therapy, Novartis Oncology.
As a follow up to the ISMPP U Digital Features – Are they really worth it? held live on June 7, 2023, join three of the faculty from the webinar as they come back together with a lively discussion of the comments and questions submitted by the audience during the live event. Listen now, even if you haven't watched the webinar, this discussion can also be a good preview! If you are interested in the original ISMPP U, please go to the ISMPP website or find the link in the description or written transcript of this podcast. The archived webinar is free to members. Our guest host today is Caroline Halford, who has 15 years with the Adis journal portfolio and has presented and published several studies on the impact of PLS and digital features. Our guests are Adeline Rosenberg, Senior Medical Writer, Patient Engagement at Oxford PharmaGenesis and co-author of the Open Pharma PLS recommendations; and Joanne Walker, co-founder of Becaris Publishing, the publisher of the open access publication Journal of Comparative Effectiveness Research and digital hub The Evidence Base.
Guest host Mary Gaskarth is joined by Emily Messina to discuss her interest and research in the accessibility of conference presentations. Emily and her team recently won the ISMPP 2023 Annual Meeting Publication Star poster award for their poster entitled Are conference presentations accessible? Insights from an online survey to improve equity. Emily discusses the results of her research, as well as making practical suggestions based on the survey results to help presenters and organizers make their posters, oral presentations, and even conference space itself more accessible to all attendees. She has put the suggestions together into a checklist available on the InformED page at ismpp.org.
Mary Gaskarth is Head of Medical Services at CMC Affinity, part of IPG Health Medical Communications. Emily Messina is also at CMC Affinity and is a Medical Writer with a strong interest in making information available and accessible to all.
Please join our guest host, Dawn Lobban, Head of Envision the Patient team at Envision Pharma Group, and guest Sharon Terry, President and CEO of Genetic Alliance, a not-for-profit organization that works to provide programs, products and tools for ordinary people to take charge of their health, as they continue a discussion started at the 2023 ISMPP Annual Meeting. Sharon’s keynote address on the first day of programming set the tone for the meeting theme of Patients First. Sharon describes her background and how she became involved in rare diseases, patient advocacy, and patient authorship. Learn about the importance, barriers, and solutions to involving more patients in medical communication and publishing.
This continuation of our Social Media series will delve into how to establish a Medical Affairs social media presence, the latest developments in social media platforms that can help improve medical communications, and practical solutions to potential challenges.
Jennifer Ghith, Global Scientific Publications and Innovations Director at Pfizer. Her areas of focus include artificial intelligence, advancing digital dissemination through social media and closed platforms, and programs aimed at achieving true patient-centricity.
Social media has its own set of opportunities, challenges, and solutions - and even more so when used in medical communications. This episode will examine development of a social media plan, who should create content, understanding compliance, researching your audience, defining your purpose, and more. This episode will also explore where the field is heading next and what may be possible in the future of social media as a communication avenue.
Jennifer Ghith, Global Scientific Publications and Innovations Director at Pfizer. Her areas of focus include artificial intelligence, advancing digital dissemination through social media and closed platforms, and programs aimed at achieving true patient-centricity.
Data privacy is not always a fun topic, but our podcast guest is another fantastic speaker from the Annual Meeting and is enthusiastic and knowledgeable! In this episode, we discuss the implications of international and domestic privacy laws and how they specifically impact medical publications professionals. Of particular importance to our industry is patient privacy in clinical trials and the challenges in protecting their identities.
Jordan Fischer leads the Octillo Legal & Tech Global Data Privacy Team and focuses her practice on international data privacy and cybersecurity and cross-border data management, with an emphasis in European Union data privacy regulations and GDPR. She’s a Lecturer in Cybersecurity at the University of California, Berkeley and a Professor of Law at the Drexel University Thomas R. Kline School of Law. She is also the Director of the Kline School of Law’s Center for Law and Transformational Technology. Jordan is an active speaker, presenter and published expert in data privacy, technology compliance and cybersecurity
The COVID pandemic both accelerated adoption of decentralized clinical trials and highlighted the importance of decentralization in making clinical trials more patient-centric. These trials allow for the continuation of research in challenging periods, as we have seen recently with the global pandemic and in times of war. They don’t, however need to be viewed as only a fall back methodology as there are numerous benefits that make decentralized trials a methodological option and not just an alternative. They have the potential to improve patient engagement in research and certainly help with equity, diversity and inclusion.
Join us for a conversation about decentralized trials with Craig Lipset. Craig is the Co-founder and Co-chair of the Decentralized Trials & Research Alliance which is the industry's largest non-profit collaboration exclusively focused on the global adoption of decentralized research; he is also a board Vice Chair for MedStar Health Research Institute and Vice President of the Foundation for Sarcoidosis Research. Generously sponsored by MedThink SciCom.
Health literacy, health equity, and health disparities are connected, both in practice and in research. Join us for the first episode of InformED’s equity, diversity and inclusion series, and learn from health literacy and communication experts Laurie Myers, Director, Global Health Literacy & Oncology Health Equity at Merck and Stacy Robison, Founder & Owner of CommunicateHealth. Not only will they speak to the vital role of health literacy but also for the need of a higher level of intentionality in the work of health communicators. A list of resources will be shared. InformED is generously sponsored by MedThink SciCom.
Join us for a continuation of our conversation with David Barrett, CEO of the American Society of Gene & Cell Therapy, on successfully navigating the changing medical conference landscape. David will speak to designing medical conferences that deliver value and opportunity for all those involved. He will touch on scientific posters, metrics, patient inclusion in medical conferences, and the need to translate complex information into more digestible formats, even for HCPs. Be better prepared for the medical conferences of the future!
InformED is generously sponsored by MedThink SciCom.
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Host Robert J. Matheis is currently the President and CEO of the International Society for Medical Publication Professionals. Previous to this, he was Executive Director and Head of Global Scientific Communications with Celgene Corporation after serving as Senior Director of Evidence Based Medical Communications with Sanofi. Dr. Matheis has a long tenure within scientific and medical communications and has been an integral part of ISMPP for more than a decade.
Guest David Barrett, JD, MS, is the CEO of the American Society of Gene & Cell Therapy, the largest society of gene and cell therapy scientists, researchers, and other professionals. ASGCT hosts an annual scientific conference, more than ten additional workshops and symposia each year, and publishes four academic journals within its Molecular Therapy family of journals, among other programs. In this role, David is responsible for the oversight and execution of all facets of ASGCT’s operations, including organizational management and program execution. Since 2016, he has led the Society’s efforts to expand its annual conference, build a legislative and regulatory advocacy function, establish a series of career development awards, and facilitate a robust patient education and advocacy program. In 2020, ASGCT virtual events are projected to attract more than 10,000 individual attendees and its patient education efforts to reach roughly 100,000 viewers.
Medical societies have had to innovate rapidly in light of cancelled conferences during the pandemic. Innovation was accelerated, and the virtual conference emerged. Join us for an insightful conversation with David Barrett, the CEO of the American Society of Gene & Cell Therapy, which is the largest society of gene and cell therapy scientists, researchers, and other professionals. In Part 1 of the discussion, David will speak to successfully navigating the changing medical conference landscape and what the future might hold. What are attendees really looking for? What formats have been most successful for engagement?
InformED is generously sponsored by MedThink SciCom. Follow ISMPP on Twitter, LinkedIn and YouTube
Host Robert J. Matheis is currently the President and CEO of the International Society for Medical Publication Professionals. Previous to this, he was Executive Director and Head of Global Scientific Communications with Celgene Corporation after serving as Senior Director of Evidence Based Medical Communications with Sanofi. Dr. Matheis has a long tenure within scientific and medical communications and has been an integral part of ISMPP for more than a decade.
Guest David Barrett, JD, MS, is the CEO of the American Society of Gene & Cell Therapy, the largest society of gene and cell therapy scientists, researchers, and other professionals. ASGCT hosts an annual scientific conference, more than ten additional workshops and symposia each year, and publishes four academic journals within its Molecular Therapy family of journals, among other programs. In this role, David is responsible for the oversight and execution of all facets of ASGCT’s operations, including organizational management and program execution. Since 2016, he has led the Society’s efforts to expand its annual conference, build a legislative and regulatory advocacy function, establish a series of career development awards, and facilitate a robust patient education and advocacy program. In 2020, ASGCT virtual events are projected to attract more than 10,000 individual attendees and its patient education efforts to reach roughly 100,000 viewers.
In a continuation of our previous discussion, let’s talk innovation and digital transformation in medical communications. There is a new sense of urgency to communicate research more rapidly and in innovative ways. But how is this best achieved? Find out in this edition of ISMPP’s InformED. Jennifer Ghith, Global Scientific Publications and Innovations Director at Pfizer will speak to how to keep pace with scientific information and communicate in ways that will meet the new expectations of stakeholders. Don’t miss this conversation moderated by guest host Leslie Rotz, Director of Digital Strategy and Operations at MedThink, SciCom.
InformED is generously sponsored by MedThink SciCom.
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Innovative thinking is more important now than ever. What is driving that necessity whether it be within your own organization or more broadly within our industry? What new expectations do stakeholders have? Find out in this edition of InformED where guest host Leslie Rotz, Director of Digital Strategy and Operations at MedThink SciCom talks with Jennifer Ghith, Global Scientific Publications and Innovations Director at Pfizer.
InformED is generously sponsored by MedThink SciCom.
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Publication enhancements are all the talk these days. Expanding the reach. Moving beyond publication. There are so many options to enhance the availability of data and improve understanding. Are they ALL worth the investment? Which really work and which are just shiny new toys? Find out in this edition of InformED. Generously sponsored by MedThink SciCom.
Conceptually, providing free open access to scientific and medical research makes intuitive sense. Why would research be maintained behind a paywall when we know that it will further science and benefit patients? On the other hand, it has been challenged that industry sponsored research should not be open access. Also, journals struggle with their operational models in an open access world. Join us for InformED where we tackle the issue of open access during a spirited discussion with Kristen Ratan.
Kristen is the founder of Strategies for Open Science and has a 20-year history working to accelerate advances in science and research communication. She co-founded the Collaborative Knowledge Foundation (Coko), was the Publisher at the Public Library of Science (PLOS), and also held leadership positions at HighWire Press, Atypon, and BIOSIS. Kristen is on the board of the American Institute of Physics Publishing, the Code for Science and Society, and ASAPbio. Generously sponsored by MedThink SciCom.
It is well established that plain language summaries are becoming a standard in translating medical evidence for broader use and understanding. How are they best prepared? Where can they be stored? How do we avoid them being deemed promotional? Hear about this and more on this edition of InformED where we discuss best practices for plain language summaries with Jason Gardner. Jason is the Head of Scientific Services at CMC Connect, McCann Health Medical Communications and sits on the McCann Health Global Scientific Council, which aims to make a meaningful difference in areas of need in medical science. Jason is also a member of The MAP Working Group. Generously sponsored by MedThink SciCom.
What are impact metrics for publications? How do we TRULY measure the reach of a publication? Impact factor, circulation, Altmetrics are some examples of accepted measures of publication impact. At the end of the day, it is important to know if a medical publication supports enhanced healthcare decision making for patients. Join us for InformED where we chat with Alice Choi about traditional metrics and new ways to estimate the real-world impact of publications. Alice is the Chief Operating Officer at McCann Health Medical Communications; she is a past Chair of the Board of Trustees for ISMPP and has contributed to several committees over the years. She was listed as Top 25 Women Leaders in UK Healthcare in 2019 by Pharmaceutical Market Europe, among many other accomplishments. Generously sponsored by MedThink SciCom.
Join us soon for the first episode of InformED. ISMPP talks about key trends and issues facing medical communication and publication professionals in an ever-evolving field. Join our new podcast where you can hear experts share their thought-provoking insights and lessons. This show is sponsored by MedThink SciCom.