The Lighthouse Podcast: Recent Episodes
Lighthouse Family Retreat
Lighthouse Family Retreat exists to strengthen families that are living through childhood cancer. The Lighthouse Podcast is a resource designed for families living through childhood cancer and for those who want to better understand the journey of childhood cancer. In this podcast you will learn from parents, siblings, counselors, coaches, and experts in a variety of fields with the purpose of encouraging and equipping you to better navigate the challenging waters of childhood cancer. Join us as we laugh together, cry together, and learn together!
Welcome back to the Lighthouse Podcast! Today, we have the privilege of sharing the heartfelt journey of Nakiso and her family's battle with a challenging diagnosis. In October 2022, Nakiso began experiencing unusual fatigue, nausea, and a persistent stomachache. Despite multiple visits to her pediatrician and urgent care, it wasn't until a blood test at the emergency room on November 6th, 2022, that they finally received a diagnosis.
This life-altering news led to Nakiso switching to virtual schooling, a difficult transition as she missed her friends and struggled to keep up with her studies, even with the school's support. We delve into the severe side effects of her chemotherapy, including a terrifying episode of septic shock and painful pancreatitis. Despite these hardships, Nakiso's incredible resilience inspires us all. In addition, Tawana, Nakiso's older sibling, was incredible at caring for everything else at home and the younger siblings, while Spiwe and Dryden took care of Nakiso.
Join us as we explore the highs and lows of this journey, offering insights, support, and hope to families facing similar challenges.
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Join us as we delve into the inspiring story behind the founding of the Rally Foundation for Childhood Cancer Research. Our hosts sit down in person with Dean Crowe, the driving force behind Rally Foundation, to uncover the grassroots initiatives, community involvement, and cost-efficient strategies that have fueled the organization's mission to combat childhood cancer.
From empowering volunteers, families, and friends to become advocates in the fight against pediatric cancer to the heartwarming stories of Rally Kids, we explore the profound impact of community-driven efforts in driving research and support for young cancer patients. Additionally, we discuss Rally Foundation's collaborations with researchers, scientists, and medical institutions, shedding light on significant breakthroughs and the pivotal role families and patients play in shaping research priorities.
Moreover, we explore the vital role of Rally Kid Research Funds in empowering families and friends to contribute meaningfully, offering support and hope to those battling childhood cancer. Looking toward the future, we discuss the primary goals and milestones that the Rally Foundation aspires to achieve in the coming years to advance childhood cancer research and support young patients and their families.
Connect with the Rally Foundation: Website | Facebook | Instagram
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Welcome back to the Lighthouse Podcast! Last September, we had the privilege of attending a poignant gathering in Washington, D.C., called "CureFest." Amidst the inspiring atmosphere, we had the honor of encountering remarkable individuals and organizations. Today, we're thrilled to share a heartfelt conversation with Leia Hunt, one of the extraordinary souls we met at CureFest.
Leia's journey began at the tender age of 2 1/2 when she was diagnosed with Retinoblastoma. She had a total of 26 surgeries and relapsed during her two-year cancer journey. Inspired by her own family's journey, Leia founded Leia's Kids to offer support and hope to families facing similar challenges. She discusses the creation of journals and the heartwarming children’s book "Princess Marygold," which aimed to bring light to young cancer warriors' lives.
As we explore the long-term effects of chemotherapy, Leia sheds light on what parents can expect and how they can best support their children through any challenges that may arise. She also shares the evolution of her faith throughout their journey and offers words of encouragement to those affected by childhood cancer.
You will walk away from this episode being so encouraged by Leia's voice for childhood cancer and find inspiration in her message of finding beauty and normalcy in every circumstance.
In the opener, Chris mentioned our Amazon wishlist. If you would like to check it out, you can do that by following this link: https://a.co/boWB9K8
Connect with Leia's Kids: Website | Facebook
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Welcome back to the Lighthouse Podcast! This is our March edition, but don't forget that we have 133 other episodes you can also listen to. Today, Chris and Christy have the privilege of talking with Pamela Jones. Pamela's daughter, Sarah, was diagnosed with T-Cell Acute Lymphoblastic Leukemia at the age of 12.
Before that diagnosis, back when Sarah was an infant, they had a miracle happen that you will want to hear! That miracle set the stage for a powerful faith journey through her life. Pamela and her family realized that God is the same yesterday, today, and tomorrow. They would continue to claim his promises through the journey ahead.
Going through cancer treatments as you turn from pre-teen to teen was incredibly difficult for Sarah. But she continued to hold on to her faith that could move mountains. The Bible tells us not to fear 365 times, and Sarah, as well as her family held on to that through the valley lows.
Pamela joined a Facebook group for families going through this journey. And it provided friendship, community, and encouragement. She continues to share about the tough times and the blessings along the road. In closing, she encourages families going through this to accept help no matter how hard it is to say "yes."
In the opener, Christy mentioned that we have space for first-time families walking through childhood cancer on our weeklong summer retreats. And that we also have space on an upcoming weekend retreat in Jasper, GA. You can learn about those by going to https://www.lighthousefamilyretreat.org/retreat.
We are so thrilled to be starting season 8 of the Lighthouse Podcast! First and Foremost, we wanted to make you aware that our posting schedule is changing slightly. For this season, new episodes will drop on the first Tuesday of each month. We encourage you to go back and listen to the helpful episodes from Season 1 to 7.
Now, let us introduce you to our guests for the first episode of this season - high school sweethearts - Zach and Karli Lansdell. The Lansdell’s currently reside in Rome, GA, and have one outdoor-loving, huge heart, and all-boy named Levi. Their journey with childhood cancer began when Levi was diagnosed with Acute Myeloid Leukemia on August 10, 2022.
The journey was long and intense, as they spent over 200 days in the hospital. They did amazing things to make the hospital feel like home and keep Levi comfortable and happy.
They have now moved into the post-treatment plan, and that brings its own challenges. Through their journey, they learned to advocate with gut feelings, ask for help, and be honest with your mental health. Both Zach and Karli leave us with some encouraging advice that can be taken to heart right away.
In the opener, Chris and Christy mentioned that our retreat applications are open for both families walking through childhood cancer and volunteers. You can learn more by visiting our website at www.lighthousefamilyretreat.org
Today, we're joined by Dan and Kate Hutson. Dan & Kate are the parents to 4 beautiful children, Audrey, Elijah, Jack & Greta. In August of 2021, their lives took an unexpected turn when their son, Elijah, began displaying unexplained bruising all over his body within a remarkably short span. On their 8th wedding anniversary, August 3, 2021, Elijah received the diagnosis of ALL, marked by Philadelphia chromosomes—a moment that reshaped their family's trajectory.
In this candid conversation, they emphasize the crucial role of advocating for your family's needs within the hospital setting, highlighting parents' unique understanding of their child's needs. Their story underlines the incredible blessing of support from their family, friends, church community, and the invaluable aid provided by their child life specialist. For parents embarking on a similar journey, they share valuable advice and wisdom born from their own experiences.
They proudly refer to themselves as "Team Hutson," fully aware that the Lord continues to walk alongside them in this journey. Their most heartfelt prayer is to share their testimony and draw others closer to Jesus. All glory to God.
Tune in to this heartfelt conversation of faith, resilience, and insights on navigating the storm as a family.
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Welcome back to The Lighthouse Family Podcast as we welcome the incredible Mary Ann Massolio. As a mother of two, Jay and Kathleen, Mary Ann wears multiple hats—serving as the Executive Director of the 1Voice Foundation and dedicating herself to Pediatric Hematology/Oncology Social Work in Tampa Bay for almost three decades.
Mary Ann's journey took a profound turn when her son, Jay, was diagnosed with 4th stage non-Hodgkin's lymphoma at the tender age of 9. In the midst of his brave battle, Jay tragically passed away just six months into treatment. This heartbreaking experience not only reshaped Mary Ann's professional trajectory but also sparked a deep resolve within her. In honor of Jay's memory, Mary Ann established the first school in the United States exclusively for children battling cancer.
Her vast firsthand understanding—from navigating her own child's treatment to supporting families through bereavement—grants her a wealth of wisdom about the intricate dynamics of family experiences during these trying times. Tune in as Mary Ann shares her remarkable story and the impactful work she continues to carry out in memory of her son.
To learn more about 1Voice Foundation, click HERE
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Welcome back to The Lighthouse Family Podcast! Today, we're privileged to welcome Chalene Skinner as our guest. Her journey is truly extraordinary, centered around her daughter, Easton. Easton's path began at birth, born with Down Syndrome, and took a significant turn at the age of 3 with a diagnosis of ALL (Acute Lymphoblastic Leukemia), charting an unexpected journey for their family.
Life took a challenging turn when Easton was 5, and Chalene and her husband went through a divorce. For Chalene, this period was an immensely trying time, navigating her daughter's cancer journey while facing the emotional strains of separation.
In her pursuit of healing and self-expression, Chalene turned to writing. Her book, "6 Rounds to Resilience," offers profound insights from her experiences. This book provides invaluable insights to those facing challenging times. Its simplicity and practicality make it a valuable resource for anyone navigating life's challenges. Join us as we delve into Chalene's inspiring story and explore the invaluable wisdom she shares in "6 Rounds to Resilience."
To purchase 6 Rounds to Resilience click HERE
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Welcome to the Lighthouse Family Podcast. In this episode, we're honored to have Jamie Perkins as our guest. Jamie and her husband, Tommy, are loving parents to two amazing children, Griffin (14) and Julia (12).
Their lives took an unforeseen turn when their son, Griffin, was diagnosed with Optic Nerve Glioma just before third grade. Fast forward to 2021, when the tumor's size doubled, requiring immediate treatment. Jamie delves into the deeply personal experience of caring for Griffin, navigating the challenging adjustments, and reshaping their reality post-treatment, all while witnessing the remarkable strengthening of faith and family bonds.
In our conversation, Jamie bravely discusses Griffin's journey from five stable years without any changes in his tumor to the sudden doubling in size. She candidly reflects on the challenge of overcoming the fear of the tumor potentially changing again, highlighting the difficulty in navigating this new reality without succumbing to constant fear.
She further delves into the post-treatment phase, highlighting the unforeseen challenges of readjusting to home life and the importance of not rushing through the process. Amidst the challenges, Jamie reflects on the growth in her faith, offering words of wisdom and advice to families stepping into life after treatment.
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Welcome to another touching episode of the Lighthouse Podcast. Today, we are honored to have Brindley Drake as our guest. Brindley and her husband, Dillon, share a beautiful family with two amazing boys, Dalton and Cooper. Last fall, just before school started, their lives took an unexpected turn when Cooper began experiencing severe leg pain. A visit to the emergency room unveiled a heartbreaking diagnosis of cancer, altering the course of their lives forever. Throughout their journey, a profound faith in God has been the guiding force, providing hope and strength.
In this episode, we delve into the Drake family's story, exploring the powerful impact of faith in navigating life's challenges. Brindley shares touching moments, including Dalton's heartfelt reaction to Cooper's leukemia diagnosis and the invaluable support they received from a child life therapist and therapy dog, Sabel. The family's relocation to Lubbock, TX, becomes a focal point, prompting reflections on divine guidance.
Brindley graciously imparts advice to other families facing similar challenges, emphasizing the importance of accepting help when offered.
Join us for a heartfelt conversation that showcases the resilience and faith of the Drake family. We hope you find inspiration and encouragement in today's episode of the Lighthouse Podcast.
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Welcome back to the Lighthouse Podcast. In this episode, we have the privilege of talking with Dr. Susan Conradsen, a dedicated mother of two children, Annalise and Daken. Beyond her role as a mother, Dr. Conradsen is a licensed clinical psychologist and currently serves as an Associate Professor of Psychology, Director of the Signature Experience Program, and the Director of the Women's and Gender Studies Program at Berry College in Rome, GA.
Dr. Conradsen's journey in the field of pediatric oncology began during her graduate school years when she specialized in pediatric consults within hospitals. This experience provided her with profound insights into the psychological aspects, family dynamics, and essential resources required for families embarking on the challenging path of childhood cancer.
In this episode, Dr. Conradsen shares invaluable insights with parents, particularly in the context of supporting siblings. Her wealth of expertise and real-world experience equips families with the tools and knowledge they need to navigate the complexities of the journey. Dr. Conradsen emphasizes the importance of maintaining open communication and fostering a sense of inclusion for siblings. We hope the wisdom and guidance shared in this episode will be as beneficial to you as it was to us.
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In this episode of The Lighthouse Family Podcast, we have the privilege of hearing from Dustin and Tatiana Rose. Together, they have a beautiful son, Max (4yrs old). Max was 3 1/2 years old when their world was forever changed.
Max's initial medical concern, suspected scoliosis, led to an MRI revealing a Ganglioneuroblastoma mass near his spine, a diagnosis they never saw coming. Their path forward was uncertain, as they sought opinions from multiple oncologists, each offering different treatment options for this rare tumor's challenging location.
Their story takes a turn as they find a surgeon in New York who holds the confidence to remove the tumor without the need for chemotherapy, leading them on a journey made possible by the incredible organization Flight of Hope. The 10-hour surgery, while successful, marked the beginning of a new set of challenges. Max's development of scoliosis and the necessity for a full upper-body cast add to the complexities they face as he copes with limited mobility and non-verbal communication.
Throughout their story, a common theme emerges - the journey through and beyond childhood cancer is a rollercoaster of emotions, and understanding one another's feelings is paramount. The aftermath of being "cancer-free" can prove just as challenging as treatment, emphasizing the significance of the unwavering support of family and friends.
Join us as we dive deep into this extraordinary story, and witness the incredible strength and resilience of Dustin, Tatiana, and Max on The Lighthouse Family Podcast.
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Welcome back to the Lighthouse Family Podcast. Today, we have the privilege of speaking with Martika Peterson, a devoted mother alongside her husband Damien, raising two beautiful children, Kaidence and Damien.
In this episode, Martika shares a heart-wrenching journey that began with her daughter's severe headaches in October 2021. Their world took a devastating turn in September when Kaidence's grandmother was diagnosed with COVID-19 and tragically passed away in October.
Initially, Martika believed Kaidence's headaches were stress-related due to the loss of her best friend, her beloved grandmother. It wasn't until Thanksgiving Day 2021 that she decided to seek medical help, concerned for her daughter's health. The emergency room visit revealed a mass on Kaidence's right temporal bone.
Their journey then led them to Birmingham, where a series of tests and a biopsy unveiled a diagnosis on January 11, 2022: Langerhans Cell Histiocytosis. Since then, Kaidence has been receiving dedicated treatment and care.
Martika takes us through the challenging days, the emotional rollercoaster, and the gratitude she feels as they near the end of this challenging journey, with everything going according to their dedicated oncologist's plan. Join us for an inspiring and heartfelt conversation as Martika shares her family's resilience and unwavering love in the face of childhood cancer.
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In this profoundly moving episode, we have the privilege of talking with Kelli Youngblood. Kelli and her husband Matt have two beautiful children, Emerie (10) and Lane (7).
Their story began with an unexpected twist when Lane was playing soccer with his dad and suddenly experienced excruciating stomach pains. A trip to the hospital and a shocking diagnosis from the oncology team changed their lives forever: Lane had cancer. After a nephrectomy to remove his kidney and 24 weeks of intensive treatment, Lane was declared cancer-free in October 2021. The relief was palpable, but their journey was far from over. In February 2022, routine scans brought devastating news—Lane's cancer had returned and had now spread to his lungs.
Kelli courageously shares her personal struggle with accepting help from others throughout their journey. She recounts two powerful conversations that shifted her perspective, allowing her to see the blessings God had bestowed upon her family when they needed them the most.
Faith is a central theme in Kelli's story. She opens up about her profound faith in the Lord, & entrusting everything to Him. Their son, Lane, displayed incredible faith at such a young age. With an unwavering spirit, he would begin every prayer, even in the hospital receiving treatment, with the heartfelt words, "Thank you, God, for giving us all of this JOY." This joy became a constant presence throughout their challenging journey.
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Welcome back to The Lighthouse Family Podcast. In today's episode we have the honor of speaking with Brent & Jade Campbell. Together they have three children, Haddie, Ruby & Judson. Brent serves as the pastor of Faith Baptist Church in Lahoma, OK, while Jade is a dedicated stay-at-home mom. In the early months of 2022, their world was dramatically altered when they received the heart-wrenching news from medical professionals that their beloved daughter, Haddie, had been diagnosed with leukemia.
They begin by recounting the duration it took for Haddie to persistently voice her discomfort before the shocking discovery of her leukemia & how they processed the news individually and as a family.
In this candid conversation, Brent and Jade also shed light on the realities of the "maintenance" phase and how they've come to realize that life doesn't merely return to the way it was before the diagnosis. Their journey has led them to embrace a new "normal," recognizing that their lives have been forever changed.
Throughout this challenging experience, Haddie has emerged as an incredible inspiration to everyone fortunate enough to know her. She expresses gratitude to all those who have cared for her and played a part in helping her overcome cancer, and she continues to lean on her unwavering faith in the Lord.
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Welcome back to The Lighthouse Family Podcast. In today's episode, we have the honor of speaking with Camille Connor. Camille and her husband, Bob, have a son, Stafford, and identical twin daughters, Caroline and Connor. Their lives took an unexpected turn in 2013 when Caroline received a diagnosis that would change their family forever—Juvenile Pilocytic Astrocytoma.
Camille begins by expressing her gratitude for having identical twins, as it enabled them to observe that Caroline wasn't growing at the same pace as her sister. After a series of tests, including a revealing MRI, they received the life-altering news of her tumor.
Despite the formidable medical challenges Caroline has faced, she has displayed an incredible level of resilience and maintained a remarkable level of health, considering the numerous medications she has had to endure over the past nine years. Although the tumor has impacted her vision, Caroline's adaptability and strength are nothing short of awe-inspiring.
In this episode, Camille shares her perspective on the concept of "normal" and emphasizes that there isn't a universal standard. She highlights the uniqueness of every individual's story. Past experiences have taught her not to grow too complacent, as life can change in an instant. She encourages us all to savor the present, recognizing the blessings that God has bestowed upon us.
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Welcome back to the Lighthouse Family Podcast, where today's episode is truly special. We have the pleasure of hosting one of our esteemed board members, Courtney DeFeo. Courtney and her husband, Ron, are the parents of two beautiful teenage daughters, Ella and Larson. She has a natural gift for communication and is passionate about writing, speaking, and providing parents with valuable tools to navigate the journey of parenthood.
The conversation begins by exploring Courtney's insights and challenges in this phase of motherhood, naturally transitioning into the topic of mom guilt. Courtney guides listeners, especially those grappling with this common struggle, helping them discern the distinction between guilt as convictions from the Spirit and condemnation from the enemy. Relatable examples of convictions and condemnations are shared, making the discussion all the more relatable.
Furthermore, the conversation extends to parents navigating childhood cancer, addressing the difficulty many face in seeking and accepting assistance when needed. Guidance is provided for those who struggle with asking for help, emphasizing the importance of support during challenging times.
Join us in this insightful and uplifting episode as we navigate the complexities of mom guilt, discover the grace within, and empower parents with valuable tools to overcome challenges along their journey.
Connect with Courtney:
Courtney DeFeo
Pardon the Mess Podcast
Books & Gifts
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Welcome back to the Lighthouse Podcast! In this episode, Chris and Christy embark on an incredible journey alongside Teka Dodd, a mother with an extraordinary story to share. Teka and her husband, Nathaniel, are the loving parents of four beautiful children: Chloe (13), Aryanna (11), Serenity (3), and Amelia (1).
Their story takes an unexpected turn in 2016 when Teka receives a rare and life-altering diagnosis—a brain tumor. But the twists don't end there. The following year, in 2017, their lives take another startling twist when Chloe, their eldest daughter, is diagnosed with the same rare brain tumor. Their case is nothing short of unique, marking the first genetic report of its kind in the United States.
From December 2016 to June 2022, Chloe had not one but four brain surgeries. She candidly shares about the difficulties of these surgeries and the incredible resilience Chloe demonstrates in recovering after each one. Yet, amidst their medical battles, the Dodds are dealt another challenging card. Teka experiences a deeply traumatic birth experience just days before Chloe's scheduled brain surgery. Through the lens of their shared medical trauma, Teka emphasizes the profound importance of prioritizing quality time together as a family.
As our podcast draws to a close, Teka leaves us with the practical wisdom she's gained from a compassionate nurse and the invaluable life lessons she and Chloe have learned along the way. Join us in this extraordinary mother-daughter journey that exemplifies strength, resilience, and the unbreakable bonds of love. Prepare to be inspired and uplifted by their remarkable story.
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Welcome to another inspiring episode of the Lighthouse Podcast. We are in week two of Childhood Cancer Awareness Month, sharing heartfelt stories of families navigating the challenging journey of childhood cancer.
This week, we have the privilege of sitting down with Mia Bell, a remarkable single mother to three incredible children: Maurice (20), Cory (17), and Chloe (11). In 2017, their world was abruptly turned upside down when Chloe was diagnosed with stage IV neuroblastoma at four years old. After completing the initial treatment, Chloe faced relapse after 21 months.
Mia's story is one of unwavering resilience and determination. She sheds light on the significance of maintaining a sense of normalcy for Chloe throughout their journey, incorporating art therapy, yoga, gymnastics, and creating memories with her brothers.
As a single parent, Mia shares her experiences guiding her boys to self-sufficiency at a young age while she was by Chloe's side during treatment. Even from the hospital, she maintained consistent communication and made it a priority to verbalize her love for them daily.
Tune in to this emotional episode as we illuminate the path of resilience and love that defines the Bell family's journey and find inspiration in their story of strength and purpose.
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Welcome to the Lighthouse Podcast. Today, Chris and Christy are joined in studio by Mark and Robin Myers, the loving parents of four beautiful girls: Meredith (27), Kendall (25), Jenna (23), & their precious Kylie, who went to be with Jesus at the tender age of 12.
Kylie was diagnosed with Ewing’s Sarcoma, an aggressive bone cancer. Her cancer journey was marked by a unique ability to find joy even in the face of adversity. When Kylie first learned about her cancer, her first response was, "God must have a great big plan for me." Kylie fought back against cancer with unwavering faith and positivity, sharing her journey through pictures and videos, touching the lives of fellow fighters and her SmileyForKylie followers.
Kylie's deep faith in God was a cornerstone of her life. She became a believer at a young age, and her faith journey was intimately connected with her battle against cancer. Throughout her treatment, Kylie continued encouraging others, both fellow pediatric cancer warriors and those reaching out to her through social media. Her primary goal was simple yet profound: "To make God smile."
When faced with the reality that her body was succumbing to cancer, she expressed a "strange peace" about dying. Kylie's final requests to her family were that they care for her beloved kitten and continue the fight to cure childhood cancer.
Join us as we delve into the inspirational story of Kylie Myers, a young girl who lived each moment with love, godly joy, and unwavering faith, leaving an indelible mark on all privileged to know her.
For more information about Smiley for Kylie, click HERE
To view the short film Kylie & Liza, click HERE.
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Join us on this heartfelt episode as we have the privilege of speaking with a remarkable sister duo, Cami Bergman and Jackie Huettner. Cami, a mother of five beautiful children – Keaton (17), Kira (15), Keely (6), Kyzer (3), and Kolt (7 months) – shares an inspiring story about her daughter Keely, who bravely faced a Leukemia diagnosis at the tender age of 4. Through the challenges and triumphs of Keely's journey, Cami and Jackie's bond has grown even stronger, despite living six hours apart. Tune in as they share their touching experiences and the unbreakable connection that has blossomed through the power of family and love.
For more information about the Gold Party, click HERE
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In this poignant episode, we have the privilege of sitting down with Syhteehia Slaughter, a remarkable mother of three boys - Gary (21), Qua (18), and Tyson (9). Their lives took an unforeseen turn when Qua, at the age of 18, was diagnosed with stage 4 Renal Medullary Carcinoma on September 3, 2022, with doctors giving him less than a year to live. The shockwaves of this diagnosis resonated through their family, upending their world in an instant.
As a single parent and the sole provider for her family, Syhteehia opens up about how she navigates uncharted territories. Her fierce dedication to keeping Qua's spirits high, despite the heaviness of his illness, speaks to her unwavering strength. Through the ups and downs, Syhteehia's faith journey has deepened, teaching her the value of living in the present moment and cherishing every interaction with her children. The perspective shift from a life dominated by work to one rooted in presence and connection has been profound.
Join us as we delve into the inspiring story of Qua, a young warrior, and his family's steadfast commitment to resilience, hope, and the enduring power of love in the face of adversity.
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In this deeply moving podcast episode, we sit down with Lexie Mulvihill, a remarkable individual who shares her heartfelt journey as a sibling to her brother Jake, who battled cancer with unwavering spirit. Lexie paints a vivid picture of the precious bond she shared with her brother, describing how their relationship was a source of joy, strength, and endless inspiration. Through candid anecdotes, she walks us through her experiences as a supportive presence in her brother's life, offering insights into caregiving's challenges and triumphs while managing her commitments as a high school student and competitive swimmer.
With a touch of vulnerability, Lexie shares how Jake's passing left her feeling heartbroken yet motivated to carry forward his legacy of positivity. She delves into the ways she keeps his memory alive, the role of mental health in her ongoing journey, and the invaluable advice she extends to others experiencing grief and loss. Join us as we delve into a heartfelt conversation that explores sibling-hood, caregiving, resilience, and the enduring power of love.
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Welcome to Season 7 of The Lighthouse Podcast! In this episode, we have the privilege of sitting down with Karen Stubbs, founder of Birds on a Wire—a ministry dedicated to supporting and empowering mothers through every stage of motherhood. With 35 years of marriage to her husband Greg, they've raised four children and have been blessed with five grandchildren.
Today, Karen sheds light on the fascinating world of temperaments and how understanding them can revolutionize parenting. It all started when Karen struggled to comprehend her son Taylor's behavior at around age 3. Thankfully, a friend recommended "Personality Plus for Parents" by Florence Littauer, which opened Karen's eyes to temperaments and how God wired us all differently.
Karen provides practical examples of how parents can support their children through different temperaments, including those on treatment, while fostering sibling harmony. In crises, Karen emphasizes the significance of recognizing each temperament's core needs. This knowledge enables parents to meet specific needs daily, enhancing their child's emotional well-being.
Lastly, Karen delves into the importance of understanding your spouse's temperament, especially during emotional moments. By appreciating and respecting each other's unique emotional responses, couples can provide the space and support aligned with their God-given wiring.
To find out more about Birds on a Wire, visit https://birdsonawiremoms.com/
Check out our recent blog for more information and helpful tools.
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Join Chris and Christy on this heartfelt episode of the Lighthouse Podcast as they have a poignant conversation with Chris and Amanda Decicco. They have three children, Zach (11), Ava (7) and their son Jayden who was promoted to Heaven in April of 2015.
From the moment Jayden was diagnosed with terminal brain cancer, Chris and Amanda faced the unimaginable challenge of coping with their son’s limited time. They discuss the initial shock of receiving the prognosis & how they began to process the overwhelming emotions that came with it.
Amanda opens up about her spiritual journey, finding solace and guidance in her faith. Surrendering to God's will, she learned to let go of control and trust the process. Her Christian journey inspired her to become a listening voice for families in similar situations. She wrote "The Hero Within," a book that shares their inspiring journey and offers hope to others facing adversity.
In their conversation, Chris and Amanda emphasize the importance of surrendering to God, letting go of control, and trusting in His plan. They discuss how they keep Jayden's presence alive within their family, talking about him and celebrating his birthday as a cherished part of their lives. They actively participate in charity events and give back to families enduring similar journeys.
Discover the power of faith, resilience, and giving back as they offer invaluable insights and support to families navigating similar paths.
To order Amanda's book, The Hero Within, visit Amazon.
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Welcome back to the Lighthouse Podcast! In this episode, Chris and & Christy had the honor of speaking with Christy Owens. She is married to her husband, Ira, and they have three children, Grace, Noah & Jonas.
Christy's son Jonas was diagnosed with Pre-B-Cell Leukemia at 16 months old. She opens up about the initial struggles of his diagnosis, treatment, and the uncertainties that plagued her family throughout their three-year journey. Christy shares a pivotal moment when she learned to focus on the present rather than fearfully anticipating the future. She found strength and trust in God's goodness, learning to focus on the present rather than anxiously worrying about the future.
As Christy immersed herself in a supportive Facebook group titled Christian Parents of Kids with Cancer, she found solace, encouragement, and a platform to express her emotions through writing and sharing bible verses. Eventually, the Facebook page was given to Christy, and this space has become a sacred place for mothers to find strength, support, and spiritual nourishment. Discover the power of coming together and serving one another through the love of Christ amidst life's most difficult trials.
During the conversation, Christy mentioned a group study on the book The Hiding Place. The group study will be held via Zoom starting on June 12th on Wednesdays at 6pm - 7pm (Pacific Time)/9pm - 10pm (Eastern Time). To join the Facebook group mentioned, visit https://www.facebook.com/groups/christianparentsofkidswithcancer
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On this episode of the Lighthouse Podcast, Chris and Christy speak with Brent and Susan Woodard, parents to their daughter, Grace (10), and Zachary, who was promoted to Heaven from a rare neuromuscular disease in May 2019. Despite his illness, Zachary's mind remained strong even as his muscles stopped developing, requiring him to use a ventilator and undergo multiple hospitalizations.
During one of his hospital stays, a family friend decorated Zachary's room with Christmas lights, which not only brightened up the space but also brought joy to Zachary and caught the attention of the hospital staff. This simple act of kindness inspired Zachary to want to do the same for other children in the hospital. Shortly after, Zachary met Jesus. Brent & Susan found their new purpose in life was to fulfill Zachary’s dream, and Lightz of Hope was born.
Lightz of Hope aims to bring hope and happiness to children affected by long-term illness or disability by giving them LIGHTZ, a symbol of hope. Brent and Susan continue to honor Zachary's legacy through this mission, spreading joy and making a difference in the lives of children and their families.
To find out more about LightZ of Hope, head over to their website at https://www.lightzofhope.org/.
In the opener, Chris and Christy mentioned our Amazon wishlist for summer retreats. If you would like to purchase anything, you can find out more by following this link. They also mentioned the Enneagram podcast episodes. You can find them by scrolling back to episodes 10, 11, and 12. Questions? Reach out to us at podcast@lighthousefamilyretreat.org.
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Welcome back to the Lighthouse Podcast! In this episode, Chris and Christy had the privilege of speaking with Sara Olsher. Sara is a single mother to a 12-year-old daughter, the CEO of Mighty + Bright, Author, and Executive Director of the Resilience Campaign.
At the age of 34, Sara was diagnosed with breast cancer and found herself frustrated with the lack of resources explaining cancer to children. Sara began to have foundational conversations with her daughter, explaining her diagnosis and treatments. During her treatment, Sara began designing resources specific to cancer — including a children's book explaining the science of cancer and a visual calendar for kids to take the chaos out of treatment.
Sara ends our discussion by sharing two helpful tips for parents: 1. Be open and honest with your children about what is happening. 2. Spend 10-15 minutes individually each day with your kids to connect and make them feel seen.
For information on the resources mentioned, head to the Mighty & Bright website at https://mightyandbright.com/cancer.
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Welcome back to the Lighthouse Podcast! In this episode, we explore the effects of trauma and grief on the body and brain and how individuals can cope with these difficult experiences. Our guest, Heather Cobb, brings over 20 years of experience helping children and adults of all ages and walks of life through grief and trauma.
Heather begins by discussing the definition of trauma using examples we can all understand. She explains trauma's effects on the body and brain and how it can lead to long-term negative consequences if not properly addressed. She then dives into the impact of unresolved grief, highlighting its physical and emotional toll on individuals.
Moving on to coping mechanisms, Heather cautions against certain methods that don't work, such as using substances or engaging in risky behaviors. She then offers helpful tips and strategies individuals can use to cope, including mindfulness, being outside, sleep habits, and other self-care activities.
Heather acknowledges that not everyone has access to professional counseling and provides practical advice for those who may not have the financial or logistical means to seek therapy. She encourages you to move towards community and find a safe person. In closing, through her insights and expertise, listeners will understand better how trauma and grief affect the mind and body and practical strategies for managing.
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For the first time ever, The Lighthouse Podcast goes on the road to record an episode while on a week-long seaside retreat. Our guest today is Jordan and Mindi Linscombe from Colorado. Jordan and Mindi have four kids - Bear (13 years old), Brody (10 years old), Blake (8 years old), and Brooklyn (5 years old). The Linscombe family loves serving with Lighthouse on retreats, and we love having them!
In 2015, they started noticing things weren't right with Brody. One side of his neck was much larger than the other side. After going through a few rounds of antibiotics from the pediatrician, they decided to go to Children's Hospital Colorado. Ultimately, it was there that he was diagnosed with Anaplastic Large Cell Lymphoma. In hindsight, they found out that If they didn't take him to the hospital when they did, he would have died in two weeks. Jordan and Mindi share that the importance of listening to your gut is vital.
Along the journey, Jordan and Mindi experienced anxiety, panic attacks, and loss of control. But they also experienced good counseling, community, and hope. Jordan shares a phrase that has helped them, and they share it with many other families they are blessed to walk with. Here's the phrase - "Fear tells us "what if," but faith tells us "even if."'
In closing, Mindi shared the importance of finding a church community so you don't walk alone and in isolation. She also gives permission to ask for help when needed, as people really want to help you! Jordan shares advice about making sure to touch and smell something real daily. This helps you stay grounded in the journey amidst our digital world.
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Join us for an insightful and uplifting conversation on the complexities of life and the power of hope. Our special guest, Joel Thomas, lead pastor at Buckhead Church, joined Chris and Christy today on the Lighthouse Podcast. Joel and his wife, Jenn, live in Georgia with their four children - Talan (16), Gentry (14), Kason (9), and Nixon (7).
Whether you are a believer or not, today's topic is one we all wrestle with. This episode will explore the issue of why bad things happen to good people. Our conversation begins with a discussion on the definition of "bad things" and whether or not we are good judges of what is truly bad. We then define what being a "good person" means and how our perceptions can shift gratitude.
Joel shares his experiences and examples of finding purpose in difficult situations. We end our discussion on a positive note by exploring the concept of genuine hope and how it can provide comfort and inspiration in times of adversity. Be encouraged, as true hope is available to you!
If this episode leaves you with questions about faith, please email us at podcast@lighthousefamilyretreat.org or call us at 404-590-5338. We would love an opportunity to talk with you!
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Today, Lance & Susan Smith joined Chris and Christy on the Lighthouse Podcast. Lance and Susan have two children - Aiden, who is eleven years old, and Annabelle, who is nine years old.
Annabelle's journey began at three years old with excessive thirst and hunger, leading to a diagnosis of Diabetes Insipidus. However, a spot on her hip led to a further diagnosis of Langerhans Cell Histiocytosis. After a year of treatment, including chemotherapy, Annabelle finished her treatment in February 2020. Amidst the cancer journey, her family experienced a rollercoaster of events, including hip dysplasia, gall bladder surgery, and adenoid removal.
Lance reflects on how Aiden handled everything, while Susan shares how Annabelle coped with everything. Amidst the tough times, their faith was shaken, and they were mad at God. Their faith became like a rollercoaster, but they experienced how God pursued them directly. Susan dreamed about eagles and received a note from a stranger, while Lance had his own stories of God pursuing him personally. As they continue to navigate their journey, they hold on to their faith and trust that God will see them through.
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Today on the Lighthouse Podcast, Chris & Christy talked with Brad & Jessy Wilson. Brad & Jessy have two children - Emi (8) and Ellison (2). Currently, they live in Tennessee and love it there!
In this episode, they share the story of Ellison's battle with a life-threatening illness. When Ellison was just eight months old, Jessy noticed some concerning symptoms and took him to the ER and pediatrician, but he was told everything looked fine. However, Jessy didn't give up and reached out to St. Jude for help. Ellison had surgery, and they discovered he would have died if they hadn't taken action.
During the surgery, Jessy had a defining moment in her faith and fully surrendered to God. Brad, her husband, also realized that their children are not their own; instead, they are God's, and they are stewarding them for Him.
Along the journey, Jessy struggled with her mental health, Emi struggled with all the changes to their family, and Brad & Jessy were dealing with marriage hardships. While there were struggles, there were also so many blessings as well. Ellison made a lifelong battle buddy during his treatment at St. Jude. As a family, they attended a Lighthouse Retreat, which made a world of difference in their family. Last but not least, Ellison has made it two years with no evidence of disease.
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Chris and Christy talked with Chris and Stefanie McKinney today on The Lighthouse Podcast. The McKinney family lives here in Georgia. Chris & Stefanie have two daughters - Maddie (9) & Emily Kate (2).
In this episode, you will learn how important it is to advocate for your child as well as the benefits of this. The turning point for their family was an ultrasound order from ENT. That ultrasound led to a biopsy and eventually the diagnosis of Stage 4 Metastatic Neuroblastoma. During the journey, they found hope in song lyrics and their community. Last but not least, they talk through the lessons and perspectives they learned along the Childhood Cancer road.
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Today, Dustin and Chelsea Cooley joined Chris and Christy on The Lighthouse Podcast. The Cooley family lives in Arkansas with their two daughters - Emma Brooke (6 years old) & Elizabeth Grace (14 months old). Emma was diagnosed at three years old with B-cell Acute Lymphoblastic Leukemia.
After the diagnosis, they headed to St. Jude to determine the next steps. During this chapter, they faced many challenges as a family including a miscarriage and a death in the family. They also experienced an abundance of blessings. Both Dustin and Chelsea had their faith grow significantly in different ways. You will be encouraged as they share the challenges, blessings, and faith journey.
They also share about their Lighthouse Family Retreat experience. While apprehensive and nervous, they were surprised by what a life-changing week it was for them. Being away from the chaos of cancer and treatment for a week was incredibly helpful for everyone in the family.
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Welcome back to the Lighthouse Podcast. Today we have the pleasure of talking with Meredith Bozeman. Meredith has been married to Matthew for 22 years this June. Together they have three adopted children - Tiffany (13), Correy (10), and Michael (8). Their son Corey was diagnosed with Undifferentiated Round Cell Spinal Tumors in 2020 and is still in treatment today.
Today's episode will give you some background information on their family. Correy's cancer diagnosis made treatment more difficult because it was so rare. Correy has been through three rounds of 6-weeks of radiation, a total of 90 radiation treatments. Meredith walks us through the after-effects of treatment for Correy, their marriage, and the family. Last but not least, you will find encouragement from the Bozeman Family journey through gratitude, blessings, and a particular Bible verse.
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Welcome back to the Lighthouse Podcast! Chris and Christy have the privilege of talking with Joshua Elder today. It's so great to have Josh on the podcast representing his profession as a Clinical Pharmacy Specialist. It's the first time Chris and Christy have talked with someone in this profession.
He lives in Kentucky with his wife and two daughters, who are six and four years old. In his free time, he volunteers as a counselor at a pediatric oncology camp and loves to travel.
In the episode today, you will hear about the role of an Oncology Pharmacist and why it's essential. You will also learn practical information about supportive care medications like Zofran, Bactrim, and more. Last but not least, you will listen to some specific side effects to look out for. In conclusion, Josh shares how his role is in a lot of larger hospitals. If you are unsure you have access to a Clinical Pharmacy Specialist, ask your medical team about it.
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Chris & Christy happily hosted Annie Ellise today on the Lighthouse Podcast. Last year, Annie moved to Birmingham to become a pediatric oncology nurse with Children's Healthcare of Alabama. You will find her outdoors doing walks or runs in her free time. She also leads a discipleship group of four college girls that go to Samford.
Today you will hear how she got into oncology. You will also learn about what she calls "the gift of presence." Annie firmly believes she can make a big impact on her 12-hour shift. In addition, she talks to Chris and Christy about what it's like being a medical lead.
In the opener, Christy mentioned our Amazon wishlist with many options for every price range for supplies needed for our restorative retreats. Check it out by clicking this link.
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Chris and Christy gladly hosted Christina White on The Lighthouse Podcast today. Christina and her family live in Kentucky. Christina and her husband, Jason, have two children - Isaiah (age 7) & Moriah (age 10).
Their Childhood Cancer journey began after weeks of Isaiah having an unexplained fever and foot pain that led to a limp. Isaiah was taken to the hospital and diagnosed with Philadelphia-positive B-cell Acute Lymphoblastic Leukemia (ALL) on March 1, 2021. He was hospitalized for 25 days to implant a port and initiate chemotherapy.
As a pharmacist, Christina was able to navigate insurance issues, side effects, and proper dosing with ease. She even had to teach Isaiah to swallow pills with candy and games. If you are having problems with medication, reach out to your oncology hall pharmacist. They are a great resource to help with any issues!
During this episode, you will hear about the challenges of isolation and the blessing of the people and organizations they have met. In closing, Christina shares her source of encouragement during the journey as well as some practical tips to help you in your journey.
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Happy Valentine's Day to our listeners! We are back with the second episode of The Lighthouse Podcast. Today Chris and Christy are spending time with Sarah Bottino. Sarah graduated with a Bachelor of Science in Nursing from Kennesaw State University. For the past nine years, Sarah has loved being a registered nurse at the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta at Egleston.
In the episode today, Sarah shares about her calling into pediatric oncology. She is passionate about educating families on how to care for their children during treatment. The biggest thing she has learned through her job is that - kids are resilient. The episode discusses disciplining your children during treatment and how important it is. Sarah says: "You have permission to parent your children with the long run in mind."
During the episode, you will hear some helpful resources to take advantage of. Sarah also walks us through some practical tips for parents to use while caring for their children. Lastly, she shares her favorite and challenging parts of her job.
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We are happy to be back for season six of The Lighthouse Podcast. It was an honor and a privilege to host Grant & Jenn Rivera. Together they have two girls - Lauren (9 years old) and Reese (7 years old). At ten months old, Reese began the Childhood Cancer journey once a stage 4 tumor was diagnosed at the base of her spine.
They had many decisions along the way, but the first one was where was the best place to start Reese's treatment. After much prayer and discussion, they decide to go with Children's Healthcare of Atlanta. Her treatment was set as surgery and chemotherapy. From a parent's perspective, they share how difficult and overwhelming that time was.
Grant & Jenn also discuss how they both processed and handled the journey differently. Early in the process, they committed to starting with empathy for one another and that this wouldn't tear their marriage apart. They also desired to keep Lauren's life as normal as possible. Jenn shares how their village rallied around them and helped with their needs. When someone asks how they can help, you should say YES! Their village helped with mowing their lawn, making dinners, carpooling Lauren, and much more!
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For our last episode of season five, Chris and Christy hosted Cory and Lix Mixdorf. The Mixdorf family has five children - Miles (age 14), Madelyn (age 12), Mason (age 11, Meyer (age 6), and Monty (age 5). Their cancer journey began when Myer was diagnosed with Medulloblastoma at four.
From the beginning of the journey, they decided they didn't want this diagnosis to negatively impact their family and marriage. They chose to prioritize time together as a family and a married couple, no matter the circumstance. During the journey, they experienced an incredible community and many blessings.
In closing, Cory and Liz shared some personal advice about walking the kids through trauma, not hiding their emotions, and accepting help when offered. Last but not least, they encourage families not to waste the story God is writing in your life.
As we end season five, we have to take a moment to say "thank you." Thank you for listening each week. Thank you for sharing the podcast with friends and family. We will return for season six on February 7, 2023. In the meantime, please share your feedback on the Lighthouse Podcast with us: https://www.surveymonkey.com/r/ZF6LWV9
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Chris and Christy hosted Jeffrey & Rachel McLaughlin today on the Lighthouse Podcast. The Mclaughlin's have two children - Brylei (age 12) and Owen (age 8). Owen was diagnosed at 13 months with a brain tumor and is currently under treatment at the Children's Hospital in Aurora, Colorado. Owen has experienced clinical trials, chemo, and much more since 2015.
On the episode today, Jeffrey and Rachel share the long road of treatment for Owen. When one person is diagnosed with cancer in a family, it affects everyone. Rachel shares how she went from denial to surviving to thriving. She's thankful for Jeffrey as he encouraged her not to lose faith in God. In conclusion, they both talk about the feelings they experienced and the community that has continued to surround them.
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Chris & Christy had an opportunity to talk with John & Tricia Simmons today on the Lighthouse Podcast. Together they have three children - Kade (age 8), Cooper (age 5), and Judah (age 4). Judah started with symptoms of lethargy, bloated belly, and easily bruised in late summer of 2019. He was also running high fevers. Thankfully the pediatrician agreed to run labs and the results came back not right. In August 2019, Judah was referred to the Children's Hospital with the diagnosis of B-Cell Acute Lymphoblastic Leukemia (ALL) at 15 months old.
After Judah was diagnosed and treatment began, they were transferred due to John's job as a worship leader. It was a fearful time in preparation for moving plus leaving their community in Georgia. However, once they moved to Louisiana, God worked to make things much smoother than they anticipated. They are both so thankful for their faith to see them through!
John shares that he never questioned God, got angry, or asked: "why." Instead, the questions that came to mind were: "what does God want to do with this?" and "what story can we share?" He continues to say that our faith is what we live every day. And the truth is - we live in a broken world. God didn't plan for your child to have cancer. But God will help you through and use your story to encourage others in the process.
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Manny & Natalie Salinas joined Chris & Christy on the Lighthouse podcast today. Together they have five children - Jonah (9), Abel (7), Ezra (5), Esther (3), and Felix (1). Jonah was diagnosed with Mature B-cell Lymphoma in 2020.
Through their journey, they met some incredible people and an impact was made on their hearts from how they were prayed for and cared for. They also discovered how to focus on thriving instead of surviving through difficult seasons as a family. God came alongside them when they prayed fervently for strength.
In the opener, Chris and Christy talked about our fundraising efforts on Giving Tuesday. We are working to expand our Travel Angels program, which helps cover some of the costs associated with traveling. If you feel led to give, you can do so here: https://lighthousefamilyretreat.salsalabs.org/2022GivingTuesday/index.html
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Charlie and Kati Bayne joyfully joined Chris and Christy on the Lighthouse Podcast today. Together they have four kids - Maci (8), Anna (6), Chase (4), and Hallie (5 months). During the year 2020, they moved to a new home, found out they were pregnant, had a miscarriage, Chase's health didn't seem normal, and Covid entered the picture. Then, Charlie was officially diagnosed with Pre-B Acute Lymphoblastic Leukemia when he was 2 1/2 years old. Charlie and Kati shared about the challenging times they experienced, providential relationships that were a gift, and blessings from God. Through everything, they were able to see the fingerprints of God and lean on their faith as well as God-given relationships.
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Chris & Christy had the opportunity to talk with the Hair family on the Lighthouse Podcast today. Bryan & Jayme have two kids - Bella, who is 7 years old, and Josiah, who is 10 years old. Bella was diagnosed with Juvenile Polycyclic Astrocytoma and had surgery. After surgery, she developed Posterior Fossa Syndrome. On the episode today, they share about Bella's diagnosis, treatment, surgery, and recovery. They also experienced many miracles and challenges along the way. Bryan & Jayme also take some time to share about Bella's journey to God and what happened at a Lighthouse Retreat. In closing, they share a lesson they learned along the way and why it's so important for everyone.
Chris & Christy mentioned in the opener about giving us feedback on the podcast. We would love to hear from you! Share your feedback: https://www.surveymonkey.com/r/ZF6LWV9
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Justin & Chasity joyfully joined Chris and Christy on the Lighthouse Podcast today. The Ladd's have two kids - Asher, age 5, and Ezra, age 2. Asher was diagnosed with Acute Myeloid Leukemia in 2018 and then relapsed in 2020 with a lemon-size tumor on his brain. On this episode, Justin & Chasity walk us through diagnosis, treatment, relapse, and bell ringing. Justin shares how God covered him with a blanket of peace. Chasity talks about how she struggled with unanswered questions after the relapse. In the end, they both felt that God always provided what they needed even when they didn't know what that was. There were struggles and blessings along the journey, but they always felt God with them and they are grateful for their faith.
In the opener, Chris mentioned the podcast episode about enneagrams. You can listen to that one - right here. Christy announced the Advent Devotional: A Family Countdown to Christmas. If you are a family living through Childhood Cancer, we want to get you an advent devotional. November 6th is the last day to request a copy for your family (and you can request one here). And if you want to purchase one or give one, you can order one here.
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Chris and Christy talked with Jamie Teoli on the Lighthouse Podcast today. Jamie is married to Tommy and together they have three kids - Leo (6), Luca (3), and Liviana (10 months). Luca was diagnosed with a Wilms Tumor in his kidney in 2020. He has endured surgery to remove his kidney and chemotherapy.
Jamie reflects on those days during diagnosis and treatment. She speaks about how the pregnancy with Liviana was a blessing in the midst of the storm. Luca walked through his cancer journey will a smile on his face everyday. Jamie talks about how her faith in God helped her tremendously through the journey as well. She also endured some troubles with family support and had to set up boundaries. Thankfully, she did have friends and even strangers rally around them. In conclusion, Jamie shared about the "cancer comparison" and how that affected her. She also talked about what she learned from this process the last few years.
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Chad & Meredith Tucker joined Chris & Christy on the Lighthouse Podcast today. They celebrated their 10th wedding anniversary this year. They live in North Carolina and together have three kids all with double names - Carson Perry (8), Pearl Monroe (6), and Franklin Reeves (2). Their daughter, Pearl Monroe, was diagnosed with Acute Lymphocytic Leukemia in November 2019. Those early days were hard as Meredith was pregnant with Franklin Reeves plus the world was entering a global pandemic. Chad and Meredith share how their community surrounded them during the storm with fundraisers, meals, texts, and phone calls. It was tough to say "yes" to letting others help but in the end, they were so thankful for the aid and encourage others to accept help when it is offered. Pearl Monroe, whom they lovingly call "Roe Roe," rang the bell on her birthday this year and it was a glorious moment of celebration!
The Tucker family started a non-profit called Roe Roe's Heroes. Roe Roe's Heroes raises awareness for childhood cancer, promotes blood drives, helps raise money for cancer research, provides financial assistance to families, and tells the incredible stories of other families going through similar experiences. To support this non-profit, check out their online store.
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Chris & Christy hosted Nate and Shae Hansen on the Lighthouse Podcast today. Nate and Shae have six kids between the ages of 5 to 17 years old. That's right - they are a family of eight and they live in Salt Lake City, Utah. Their son, McKay, was first diagnosed in February 2014 with stage four high-risk neuroblastoma. While his body was full of cancer cells, he hit remission and had clean scans until February 2021. It had been 7 years since his first diagnosis to the weekend when he relapsed. Right now, they are almost two years into treatment for his second battle with cancer.
Nate and Shae walk us through the perspective shift they have experienced between the two cancer battles. With this round of McKay's battle, the family dynamics were much different than in the first round. Nate talks about how he encouraged the family to "fight with faith." Shae shares what she learned from the first battle and what she brought into the second battle. Additionally, they have learned not to take for granted seasons of good health.
The Hansen family chooses to live life to the fullest each day instead of living toward the finish line of treatment. Nate and Shae have worked hard to be intentional with the family by making time with them a priority (even if it's time in the car). In closing, they shared how even though it was challenging to be served and taken care of, they are so blessed by it. Last but not least, they encourage other families walking through a cancer journey to accept help when it's offered no matter how hard it is to accept.
In the opener, Chris and Christy announced that our Advent Calendar is coming out soon! If you are a family living through childhood cancer, we would love to gift you a copy. Simply fill out this request form with all your information and we will mail you an advent calendar in November.
Today on The Lighthouse Podcast, Chris & Christy talk with Mental Health Counselor and avid Lighthouse fan/volunteer, Erika Coy. Erika first found out about Lighthouse at a McDonald's truck stop in Kentucky at 1:00 a.m. from a friend while they were doing college homework. Over the past few years, she has been on 4 retreats in Colorado, Florida, Georgia, and North Carolina. Erika's educational background includes Bachelor's in Psychology from Indiana University and a Master's in Clinical Rehabilitation and Mental Health Counseling from West Virginia University.
In the episode today, Erika shares her heart about the importance of mental health. She offers advice to families living through childhood cancer to help them be aware of their emotions. She even gives us all permission to feel both big and small emotions. Her favorite part of her career is helping people to find strength in themselves and empowering them to live up to their fullest potential. As a bonus, she reminds us all that being present and listening is very much needed in our current fast-paced culture. Last but not least, she walks us through how she has decided to give God her YES and see what He does with it.
In the opener, Chris & Christy mentioned our one day retreats. If you'd like to learn more about them, visit our website at https://www.lighthousefamilyretreat.org/regional-rf.
We are in the last week of sharing bereavement stories and bringing awareness to the impact of Childhood Cancer. Today on the Lighthouse Podcast, Chris & Christy are talking with Courtney Mount. Courtney has been married to David for 32 years and together they have 9 kids and 6 grandkids! Their youngest daughter battled cancer for a year and was fully healed when she entered Heaven in 2020.
On the episode today, Courtney walks us through the days and weeks of testing, waiting, symptoms, and diagnosis. She also explains the hard journey of treatment and hospice care. When you hear "your child has cancer" your brain goes foggy and nothing really sinks in. However, through it all, Courtney knew that the Lord was with them. The Lord gave them the peace that transcends all understanding. He also placed people in their path to provide encouragement and community. In closing, Courtney shared about a new children's book that she has written to help families walk their children through a terminal illness. You can learn more about the book on her Facebook community - "Millie Finds her Miracle."
In the opener, Chris & Christy mentioned our one-day retreats in Dallas/Fort Worth, Texas, and Richmond, Virginia. If you would like more information on the regional retreats, follow this link.
We are in the third week of Childhood Cancer Awareness Month. Today Chris & Christy are spending time with Amber Vess on the Lighthouse Podcast. Amber's daughter, Megan, was diagnosed with Acute Lymphocytic Leukemia and Glioblastoma on August 12, 2016, and fought a good fight. She was fully healed as she entered Heaven on May 16, 2020. Amber and her husband, Randall, have six children from age one to twenty-four.
On today's episode, Amber walks us through Megan's journey as well as how the family is doing currently. She also shares her heart for fostering children and why it's important to her. To shine a light on Childhood Cancer Awareness, Amber talks about her favorite memories of Megan. In closing, she tells us how she learned to "plan for forever, yet live for today."
Connect with the Vess family and their foundation that was created in Megan's honor - Live Like Megan Foundation.
On the second week of Childhood Cancer Awareness Month, we had Emily Settle join Chris & Christy in person on the Lighthouse Podcast. Emily has been married to Jonathan for 14 years this month. Together they have 5th-grade twins, Abby & Hannah, 3rd grader, Hope, and Lucy who was promoted to Heaven at age 4. Emily and Jonathan joined us last year to discuss Lucy's full journey. We encourage you to listen to that conversation.
On this epsiode, Emily shares how she still has "what-ifs" but holds on to her faith in God. She also shares the rollercoaster ride of hope and devatation while they weren't given facts along Lucy's battle. Emily discovered many blessings along the way as she remembered some of her favorite memories of Lucy. She had a perspective shift through the experience and realized it's best to surrender all. In closing, she reminds us all that all things are temporary and there is much more to this life.
In the intro, Chris mentioned Gold Party and the online auction. You can learn more about that here: https://LFRGold22.givesmart.com.
It's an honor to host Michael Lage on the Lighthouse Podcast today for our first Childhood Cancer Awareness Month podcast as he shares about his experience losing his brother to cancer. A little bit about Michael - he has been married to Monica for 10 years and lives in Atlanta. Together, they have 3 kids with another one on the way soon. Michael shares how he was impacted by childhood cancer when his youngest brother, Tim, was diagnosed with Osteosarcoma. He walked with Tim through many challenges - chemo, amputations, physical therapy, learning to use a wheelchair and more. Yet In the midst of those challenges, Michael and his family leaned on God and prayed consistently. His parents created a safe space to land, they engaged him and his siblings in the hard conversations, and invited them into the process of Tim's cancer journey. Now that Tim is gone, Michael reflects on those times and is grateful for how the journey impacted him in infinite ways as a man, father and husband.
Learn more about our Childhood Cancer Awareness Month Campaign at lighthousefamilyretreat.org/childhood-cancer-awareness-month
Lisa Allison happily joined Chris & Christy on The Lighthouse Podcast to share the lessons she's learned along her journey. Lisa has been married for over 25 years to James and together they have three kids, two off at college and a senior in high school. Kaeli, 18 years old, is an Acute Lymphoblastic Leukemia survivor. She was diagnosed when she was two years old. Kaeli is doing great now as she is still processing everything she went through. One day when Kaeli was in the hospital, Lisa was walking out the door and picked up a devotional titled Irreplaceable Hope. That devotional changed Lisa's perspective for the better and still impacts her today. In today's episode, you will hear struggles, triumphs, faith growth, and encouragement.
In the opener, Chris & Christy mentioned the Sunrise Retreat and that we are still looking for Family Partners. You can learn more at https://www.lighthousefamilyretreat.org/fp-sunrise.
We are back with part two of Tim & Bridget Hilbert's story. If you haven't listened to part one, we encourage you to go back and check it out. On today's special episode, you will hear from Tim on the three guidelines they followed as a family once Lulu was diagnosed. They weren't perfect every day by any means. But these guidelines helped their marriage and family stay strong. Bridget shares about how she choose to trust God with her circumstances. She made the decision to accept that she had no control, but God did. During that time and even moving forward, she prayed consistently. Bridget continues to share that prayer time and acceptance of no control is what finally gave her rest and ultimately peace. In closing, they talk about how sacred they hold their journey and how talking about it has been healing for them.
Our Gold Party is being held on September 17, 2022. We will have a live auction, dancing, and much more! To learn more about that, follow this link: https://www.lighthousefamilyretreat.org/beyondretreats
If you'd like to find out more about volunteering at our Colorado coming up in late September 2022, you can head to this link: https://www.lighthousefamilyretreat.org/coloradovolunteer. If you are looking to apply to be a Retreat Family, you can do that right here: https://www.lighthousefamilyretreat.org/colorado-rf.
Tim & Bridget Hilbert joined The Lighthouse Podcast on the second episode of season five to share their experience when their daughter Louisa was diagnosed with Acute Myeloid Leukemia (AML). The Hilbert's story had so much great content that we broke it into two parts. On today's episode, part one, you will get to hear the story of 4-year-old Louisa, whom they lovingly call "Lulu." They had many challenges along the way in the survival mode of their journey. Yet among the challenges, blessings were there as well. They remember how friends, family, and even the Mayor of Alaska jumped in to help however they could. In closing, Tim & Bridget also share how Lulu's big sister, Alma, helped her baby sister during treatment.
At the end of the episode, Chris mentions the upcoming Lighthouse Gold Party. For more information or to buy tickets, follow this link: https://www.lighthousefamilyretreat.org/beyondretreats
Leslie Shafer, an Outpatient Registered Dietician at Children's Healthcare Of Atlanta, joins Chris and Christy on The Lighthouse Podcast. She has been joyfully working at CHOA since 2009 primarily helping children and teens with eating disorders, and recently made the move to the AFLAC Blood and Cancer Center. In this first podcast episode of season five, Leslie helps clear up some common misconceptions when using a dietician for childhood cancer patients. She also shares some practical tips for patients gaining or losing weight. Leslie loves educating families and children on how to be healthy during and after treatment. In closing, she shared some helpful tips and encouraged those families that might not have access to a Dietician.
Phenicia Koicuba joined The Lighthouse Podcast for the season 4 finale to share her experience when her daughter Livvie was diagnosed with ALL. She starts by going back to 2014 when she was pregnant with her youngest daughter and found out Livvie had Down syndrome. She shares the struggles of the early years of managing a child with special needs in addition to two other young children and a full-time job, and how everything took a toll on her marriage, which ended just before Livvie got sick. She shares the story of how Livvie was diagnosed at three years old, and what those early days of treatment looked like. She shares honestly about the struggles of single parenting while managing a child with cancer and special needs, and she speaks emotionally of the challenges in giving herself grace. She remembers with gratitude the way that local churches have provided support for her family while she's been unable to work, and she closes by offering advice to families just now entering their own childhood cancer journey.
Kristen and Nate joined Chris and Christy for a very special episode to share about their son Ethan, who passed away in 2020. They share the story of Ethan's diagnosis with a grade 3 anaplastic ependymoma (brain tumor) when he was 10 years old. They describe his treatment, which included surgery and radiation. They share how they were open with Ethan throughout his diagnosis and two reoccurrences, as he was mature beyond his years. Nate shares about his struggle with isolation and depression when the family was separated during Ethan's treatment, and they both reflect on the friendships and support that God brought their way at just the right time. They express how deep Ethan's faith was, and how much it encouraged and inspired them in their own faith journeys—including his desire that others come to know the Lord through his cancer. The Haleys close with advice for others who may be on a similar path. To see Ethan's testimony recorded just before he passed away, click here: https://youtu.be/hCjAqFPufqE
Tyler Wells, professional baseball pitcher with the Baltimore Orioles, joined Chris and Christy to share his personal story that led him to becoming an advocate for the childhood cancer community. He reflects on how baseball really helped him as a child after losing his mom to cancer at four years old, and shares his journey to becoming a major league player. He recalls the observation that baseball is so much bigger than just being a baseball player and shares his passion for using his platform to help others. He encourages the importance of using your pain to help others and how it can help in the healing process. He closes by sharing some of the things he's been able to do in his role as an advocate.
In the second of this two-part series, Lighthouse staffer Jackie Jones rejoins the podcast to talk about two of our newest Retreat Family experiences: the one-day and weekend retreats. Jackie shares about the difference in the one-day retreat compared to the weeklong seaside retreats when it comes to relationships—how families attend these events in their community, along with other families and volunteers who also live nearby, allowing for friendships to form that can be carried on past the day of the event. She goes on to explain what the one-day event typically looks like, including many similarities to a weeklong treat, such as Common Ground (small group time for the parents), and Family Partners (volunteers who partner with the Retreat Families and play with the kids while the parents are at Common Ground). They also discuss the weekend retreats, an experience Lighthouse piloted in Colorado in 2021. Lighthouse will offer one in Colorado and in North Carolina this year, and applications are open now! These retreats, like the weeklong ones, are provided for free for the Retreat Families and have many of the same activities as well. The weekend retreats are particularly good for families who are unable to attend a weeklong retreat, whether because of treatment or parents' work. Read more about these two experiences and register today at: https://www.lighthousefamilyretreat.org/regional-rf
In this special replay for Mother's Day, licensed professional counselor Rachel Menzoian joins The Lighthouse Podcast to talk about self-care as a single parent when your child is going through childhood cancer. Rachel defines self-care and discusses the challenges to prioritize self-care as a single parent—especially a single parent who has a child with cancer. Rachel shares practical, easy steps single parents can start taking today that will help them re-energize and re-prioritize so they can not only have more energy but also be able to engage more with their children. She also reminds everyone that self-care is not just proactive; it's also in the moment, reacting to moments of stress with positive practices. She also suggests involving your kids as needed from time to time, as it models to them what self-care is.
In this week's episode, Chris and Christy sit down with Lighthouse staff member Jackie Jones, who is the Retreat Family Coordinator. In addition to talking about her obsession with Dolly Parton, the three talk in-depth about what it's like to attend a retreat as a Retreat Family—from how families learn about Lighthouse, through the application process, and then the retreat experience. Jackie shares what she loves about her role at Lighthouse, and Christy gives a behind-the-scenes look at what happens in the Common Ground room—the small group environment where Retreat Family parents gather each morning to share with each other. Jackie explains how a Lighthouse retreat is so much more than a vacation, and she shares what is required to apply to retreat, as well as the top three questions (and answers!) that she hears from families preparing to come on retreat.
Pediatric Registered Dietitian Ashley Stepro joins The Lighthouse Podcast to explain some of the misconceptions of nutrition when it comes to childhood cancer, and how dietitians can partner with families to help their child thrive while on treatment. She shares some of the reasons she might get referrals to work with patients—or requests directly from the parents—as well as some of the biggest barriers that keep people from seeking out help from a dietitian. Ashley stresses the partnership aspect of the relationship between dietitian and the patient/family, shares one thing she wishes families would ask her, and dispels the notion that dietitians are the "food police," instead emphasizing "moderation in all things." As a registered dietitian with in-patient cancer patients, Ashely also plays a role in helping with the initiation of feeding tubes, and she describes some of what that might look like for a patient. She also shares where families can find resources and search for dietitians if they aren't readily available in their hospital. Ashley admits that she loves eating but hates cooking, and she shares how she approaches her own meals.
Karen Stubbs is the founder of Birds on a Wire, a ministry whose mission is to equip and encourage moms of all stages in motherhood. She joins Chris and Christy to share some advice on parenting and self-care. She reflects on the early years of her own parenting journey as a young wife of a fighter pilot who was traveling for work most of the time—and how that led to her starting the BOAW ministry. They talk about what self-care really looks like, and why it is so important for moms, even (or especially) when your child has cancer. Karen talks about the role that guilt plays in parenting and how to test if it's truly something you should feel guilty about. She shares some self-care advice from a mom with a child with an ongoing terminal disease. Karen also talks about how God provided for her during a time when she really needed help as a mother. She shares some general parenting advice, including keeping your marriage at the center of your family life, and offers some advice for single moms. They close the conversation with a challenge for moms for this week.
Tiffany and Richard Everett join Chris and Christy for a conversation about their son Israel's diagnosis of mixed phenotype acute leukemia, which is a really rare form of leukemia. They talk about the challenges of Israel having a rare form of childhood cancer along with autism. They share how Israel knew something was wrong and pushed them to get to the ER, and how quickly his diagnosis came once they got to the hospital. They relate the unique challenges that come with managing Israel's behaviors due to his autism, along with the medicine side effects, but also how his personality and positive attitude kept them going. They share specific examples of how they saw God at work throughout the experience, and they explain how Israel's allergic reaction to one of the medicines led to them getting to be a part of a research study that will help others in the future. They close by sharing some of the wise advice a doctor gave them about parenting a child with cancer.
In this special bonus episode of The Lighthouse Podcast, Richard and Tiffany Everett share what it was like to attend a Lighthouse retreat for the first time. They speak with humor and vulnerability as they reflect on the progression each of them experienced as the week went on—from their initial hesitancy to even going on the trip... to being "all in" in just a short time... to not wanting to leave when the week ended. They explain how important it was, especially for the dads on their retreat, to open up and confide with others on a similar journey, and how much their kids absolutely loved the week. They offer some insight into what some of the different events during the week look like, as well as how it felt to experience them. They share how refreshed they felt as they returned home—and also inspired to love and serve like they had been loved and served during their retreat. They close by sharing the one takeaway they each have from their week at Lighthouse.
Adam and Trish Dalton join The Lighthouse Podcast to share their daughter Autumn's story of being diagnosed with a rare form of pediatric leukemia, starting with her symptoms and quick diagnosis. They share the challenge that came with receiving the news of the genetic makeup of her cancer and how that made the treatment even harder. They explain the option they had to enroll her in a clinical trial, and how they almost turned the opportunity down until God sent a friend of a friend their way who told them just what they needed to know. They talk about the isolation that came with a cancer diagnosis during Covid, and how it especially robbed Autumn of the chance to get out and about during the maintenance phase of her treatment as they had been looking forward to. They share the great news that Autumn wrapped up her treatment in the fall, but also open up about the challenges of the post-treatment phase. They close by talking about how their faith has sustained them through it all.
Chris and Christy welcomed Jason and Kaeley Gubler to the podcast to share about their daughter Zoie's story. They explain the symptoms that led to her diagnosis of lymphoma, and the early days of adjusting to their "new normal" with two young kids at home and one in the hospital. They reminisce on the unique challenges the mass in Zoie's chest caused with getting a port placed, and how her older sister (six at the time) responded to Zoie's sickness. They share how their community and their faith sustained them, and how they were able to see God at work in it all. They also relate some incredible faith-building moments they experienced, as well as the anxiety that surprised them at the end of treatment. They close by offering some encouragement to other families facing a childhood cancer diagnosis.
Mica Loewy, a Social Worker in the pediatric oncology department at Children's Healthcare of Atlanta, sat down with Chris and Christy to share about the work she does to help patients and their families through such a challenging time. Mica explains the role a Social Worker plays on the medical team for the patient and family—providing support and referring to resources particular to a family's needs.This includes helping parents with FMLA and financial aid forms, and making sure families are aware of the financial assistance, secondary insurance, etc. available to them, as well as programs and retreats offered by organizations like Lighthouse and Camp Sunshine. She also explains how having an established relationship with families can help with hard decisions, including end-of-life situations. Mica shares some of the misconceptions people have about Social Workers, and the difference between Child Life Specialists and Social Workers. She closes by encouraging families currently on the journey of childhood cancer to reach out to their Social Worker—especially if a long time has passed since connecting—and find out what resources might be a good fit at this particular point in their journey.
Matt and Yolanda Gamel, parents of five children, sat down with Chris and Christy to share the story of their daughter Dani's journey through childhood cancer. They talk about Dani's diagnosis of ALL at the age of 13, and how Yolanda had to push for the lab work that would bring about the diagnosis. They explain how each of their children had a different reaction to Dani's diagnosis, and how the hardest part for Dani, a young teenager, was losing her hair. They also share the challenges on their jobs and their marriage, but how they ultimately came together to work as a team and lean on each other. They close the conversation by sharing advice they have for others on the journey of childhood cancer.
Jonah, now age 6, was diagnosed with B-cell ALL at only two years old. His parents Liza and Josh Forbes sat down with Christy and Chris to share Jonah's story, beginning with his initial symptoms and diagnosis. They discuss how it felt to hear first that he had the "good" kind of cancer, only to find out he had a genetic mutation that changed his diagnosis to high risk. Liza shares the shock of finding out she was pregnant during Jonah's treatment, and that her pregnancy was also high risk. Josh also explains the challenges they faced during that time—managing life with a child on treatment, a newborn, and job struggles he had when his employer at the time wasn't supportive of their situation. They also discuss how hard childhood cancer can be on a marriage and on the siblings in the family, and how their faith and sense of humor got them through. They close by sharing advice for families on a similar journey.
Hallie Barnard—at 13 years old, the youngest guest on The Lighthouse Podcast so far—and her mom join Chris and Christy to share Hallie's health journey, starting with an incredibly rare bone marrow disease called Diamond-Blackfan anemia. After being diagnosed with this disease at just 15 months old, she waited for nine years to find a match for her bone marrow. She had a successful transplant, but her journey was just beginning, as she was diagnosed at 10 years old with osteosarcoma, or bone cancer. Hallie shares her response to the cancer diagnosis, and her process for making a decision on whether to have a full amputation or not. She also explains where her joy comes from, and what motivates her to learn to walk again. Hallie also shares some recent good news she's received, reveals what she wants to be when she grows up, and talks about the non-profit she has founded, called Hallie's Heroes.
Chris and Christy welcome back James Ludemann, Patient Teaching Coordinator and Fertility Preservation Nurse at CHOA, to the podcast, this time to share about the issue of fertility preservation when it comes to pediatric cancer. James starts out by defining fertility and infertility, just as he would in his conversations with patients and their families to make sure everyone is on the same page. He explains why it is important to consider fertility when dealing with childhood cancer since most (but not all) childhood cancer patients will receive at least one treatment that puts them at some risk for fertility issues. James explains how most of the options to preserve fertility before cancer treatment are currently only available to older kids and teenagers who have begun puberty, but how his team will still meet with the families of younger patients who have concerns. He walks Chris and Christy through the steps his team takes to approach families of older kids and teens about the issue of fertility preservation, and relates the importance of asking the young person's permission to have these sometimes awkward—but very important—conversations. James gives a high-level overview of the options available to preserve fertility before treatment has begun, as well as those that are still available even after treatment has concluded. Lastly, they close the conversation by talking about the importance of parents advocating for their child in this area, especially since not all hospitals have a team dedicated to fertility for pediatric cancer patients.
Young adult Brendan Zurica joins The Lighthouse Podcast to share his journey battling diffuse large B-cell non-Hodgkin lymphoma. He shares about his first diagnosis and treatment right before his senior year of high school, and then facing relapse twice several years later. He includes details of his treatment and the timeline of it all, as well as the toll it all took on his mental health. Brendan is very open about how important talking to a psychologist proved to be, and how he wishes he had begun therapy earlier in his journey. He also shares about the unique challenges of being a teenager and then young adult in a children's hospital, and what it was like to transition to making his own decisions for his health between his first and second diagnoses. Brendan also explains the untold pressures of survivorship—the pressure to accomplish greatness after having been given a second—or third or fourth—chance at life, and how therapy has helped him process all that and move forward in healthy, balanced ways.
On the final episode of season 3 of The Lighthouse Podcast, Chris and Christy's spouses, Jan and Eric, join the show to talk about marriage and parenting. They talk about something they planned to do in 2021—and actually got to do! They share things they did right and wrong in parenting, such as spending time one-on-one with each kid. They share what they did—or wish they did—to sustain and fuel their marriages during the years with young kids. They also talk about how they plan for a new year, what they have planned for 2022, and what they hope they're doing in three years and beyond—including planning for and embracing the "open nest" season as a couple (hint: make friends now!).
The Lighthouse Podcast will take a break in January before season 4 comes in February 2022! Catch up now, and we'll see you back in February!
On this week's episode of The Lighthouse Podcast, Annie and Randall Patterson share the story of their son Eli's journey from the very beginning—including their struggles with fertility and their surprise to find out Annie was expecting. They share the details of his diagnosis, as well as the surprise when his out-patient treatment plan turned into in-patient for much of his treatment. They talk about their adoption of a "pediatric cancer lifestyle" and how it changed their family dynamics, including attending church and preschool. They reflect on the three-and-a-half years of isolation, and the drop-off of support as the months and even years went by. Annie and Randall share the reality that they're always going to be a "pediatric cancer family," and the ways that all of them were changed by what they experienced. They close by sharing how their faith and eternal perspective has been shaped by their journey, and how they're beginning to dream again.
Leslie and Eric Bartel joined The Lighthouse Podcast to talk about their daughter AG's battle against osteosarcoma, from which she is now in remission. They share her diagnosis story, which came about due to a perceived sports injury, and turned out to be a rare bone cancer in her left humerus. The Bartels detail the many decisions they had to make with this type of diagnosis, and how they tried to involve AG in as many of those decisions as they could—even when it came to choosing between limb salvage surgery or an amputation. Leslie shares how she researched and found a new treatment option for AG and ultimately got AG's medical team on board with the treatment. The Bartels also share some great wisdom in the conversation—from how to make decisions as a family to how to keep your marriage healthy during such a trying season. They wrap up the conversation by sharing how AG is doing today and what activities their middle school athlete is doing post-treatment.
Dr. Naadira Upshaw, Assistant Professor of Pediatrics at Emory University School of Medicine and Pediatric Psychologist at Children's Healthcare of Atlanta in the Aflac Cancer and Blood Disorders Center, joins Chris and Christy again on the podcast. In this important conversation, she shares about the role that psychology plays in survivorship. She talks about the challenges that survivors face, such as adjusting to the new normal, missing the day-to-day predictability of treatment, and the anxiety of new symptoms. Dr. Upshaw also shares about the struggles for survivors when it comes to relating to their peers, as well as the new challenges that school may present, especially when treatment has caused cognitive differences for a child or teen. She also encourages parents whose child had cancer at a very young age to share with their growing child about their cancer journey. They close the discussion by talking about why it's important for the parents of survivors to seek mental healthcare as well.
On this episode of The Lighthouse Podcast, Chris and Christy are joined in-person by Emily and Jonathan Settle, parents to four-year-old Lucy, who passed away in 2020 after an aggressive spinal cord tumor metastasized throughout her central nervous system. The Settles share how Lucy was diagnosed within a week of showing major symptoms and quickly became unable to walk or even move her limbs. They go on to describe her journey through a major surgery, the tumor's return, failed attempts at rehab, undergoing proton radiation, and more. Emily and Jonathan explain how the early days of COVID were actually a blessing in their family, allowing for the pause of rehab and sheltering in place as a family of six during what would be some of Lucy's final days. They share how they viewed parenting and their marriage during those challenging days, and the great advice they received from others who had walked the journey before. They close the conversation by sharing how their family has processed the journey and how they are celebrating Lucy's life.
Chris and Christy sat down to talk with Chase Kelly, mom to Theo and Anna, who shares the story of Theo's battle against an optic nerve glioma brain tumor. Diagnosed at age six, Theo's tumor was inoperable and required high doses of chemo that made him incredibly sick. Chase reminisces about the uncertainty in those early days—how unprepared they were for the treatment, and how guarded Theo's health care team was in offering a prognosis. Chase shares her creative idea for getting Theo to willingly go to chemo even though it made him so sick, and about the amazing support they had from Theo's school. She explains things she wishes she had known back when Theo was first diagnosed, and the importance of finding community.
This week on The Lighthouse Podcast, Chris and Christy are joined by Dr. Naadira Upshaw, Assistant Professor of Pediatrics at Emory University School of Medicine and Pediatric Psychologist at Children's Healthcare of Atlanta in the Aflac Cancer and Blood Disorders Center. Dr. Upshaw works with a team whose role is helping kids cope with the day-to-day stress of pediatric cancer. Dr. Upshaw is brought in when someone on the child's support team notices that a child is having a hard time dealing with a diagnosis, a stressful procedure, or any part of the cancer journey. She shares the unique struggles that the youngest children might have as they're going through major developmental milestones during treatment, as well as the challenges that older teenagers have in transitioning to adult health care—and how her team can help these groups better navigate these phases. Dr. Upshaw also shares several of her quick strategies for improving sleep and dealing with anxiety, and the importance of establishing boundaries while kids are on treatment. They close the conversation by talking about breaking down the stigma around mental health care, and Dr. Upshaw expresses what an honor it is to be invited into someone's journey during such a challenging time.
Dr. Jordan Marchak provides clinical mental health care to patients and families, but she also conducts behavioral science research to guide best clinical practices to help patients. On this podcast, she shares with Chris and Christy how the care that survivors are receiving today is all based on research—evidence-based guidelines exist because researchers partner with childhood cancer survivors and their families. Dr. Marchak's research specifically focuses on mental health, healthy lifestyle behaviors, and healthcare transitions (moving survivors from pediatric to adult care). She is currently co-leading a mental health working group that is compiling all the available evidence on mental health incomes for survivors of childhood cancer and making informed recommendations for survivors and their survivor care providers. Dr. Marchak shares some of the results of their research, and about a new program they are developing specific to the cancer survivorship experience, addressing ways to overcome barriers to healthy habits for survivors. She also describes the process of transitioning out of pediatric care to adult care, both from the change in doctors and the change in responsibility from parent to child, and shares the primary goals for the transition, specifically the continuation of care.
Melissa Schink, a Senior Research Nurse for Developmental Therapies, joins The Lighthouse Podcast this week. Melissa is based out of Egleston at CHOA, and her campus is mostly focused on developmental therapies for solid tumors, as well as some leukemia and lymphoma patients. She shares her own personal journey to this role, which has her following patients from the very beginning of the clinical trial process, all the way through the study. She explains how her job is a combination of lots of research, measurements, and note-taking, but also patient care. She shares how important it is for her team to be clear with families about what phase 1 trials are and what they aren't, so that they know that saying 'no" to a clinical trial does not mean they're giving up, or saying no to a proven cure. She also explains how the research works on a trial—with shared databases all over the world, and different levels of oversight to track things such as the drug's effectiveness, any adverse effects, and risk vs benefit analysis. Melissa closes by sharing her heart for her patients, wanting to encourage any future patients that her team cares about the child in front of them the most, not the drug companies.
Chris and Christy invite Scott and Tess Rider to the podcast this week to share their family's story of battling childhood cancer in their daughter Sofia for nearly eight years. They talk about the early stages of her diagnosis and treatment and the problems they had with communication from the medical staff with their daughter's particular type of brain cancer. They share their decision to not only be their daughter's biggest advocate but also to do their own research for her treatment when they weren't confident in what they were offered at their local children's hospital. Sofia ended up relapsing two times, two years apart each time; however, after receiving a terminal diagnosis, her most recent treatment has kept her cancer-free for three-and-a-half years. Scott and Tess stress the importance of determining your family's own priorities early on to use as guiding principles as you make decisions about treatment. They also share from their hearts about how their faith has been a stabilizing force in their lives and has given them a community unlike any other.
Licensed professional counselor Rachel Menzoian is back on the podcast, this time talking about self-care as a single parent when your child is going through childhood cancer. Rachel defines self-care and discusses the challenges to prioritize self-care as a single parent—especially a single parent who has a child with cancer. Rachel shares practical, easy steps single parents can start taking today that will help them re-energize and re-prioritize so they can not only have more energy but also be able to engage more with their children. She also reminds everyone that self-care is not just proactive; it's also in the moment, reacting to moments of stress with positive practices. She also suggests involving your kids as needed from time to time, as it models to them what self-care is.
Sarah Carlin joins Chris and Christy this week on the podcast to talk about developmental therapeutics, and the role she plays in her job as Clinical Nurse Coordinator in Solid Tumor and MIBG Therapy at CHOA. Sarah describes the path she took in her career to land where she is now, in a dual-role on both the solid tumor team as intake coordinator, and her role in coordinating MIBG therapy for patients. She describes the most common solid tumors, how most kids get diagnosed with these types of cancer, and the process for intake for these young cancer patients to the Aflac Cancer Center at CHOA. She also explains what MIBG is, how it works in the treatment plan for neuroblastoma patients, and what the process leading up to, during, and after the treatment looks like. There are only 18 pediatric hospitals in the U.S. with MIBG facilities, so she describes the decision-making process for parents for this complicated type of treatment, which is especially challenging for younger children. Lastly, Sarah shares her heart of gratitude toward the parents who entrust their kids to the MIBG team.
Rachel Menzoian is a licensed professional counselor whose practice focuses on divorce recovery, co-parenting, and difficult marriages. She joins Chris and Christy this week on the podcast to talk about co-parenting. Rachel shares from her own personal experience as a co-parent, as well as her training and expertise as a professional counselor. She covers some of the biggest struggles in co-parenting, especially communication, and shares some tips for creating consistency and stability for your kids. Rachel also speaks to parents of children with cancer who find themselves in a co-parenting situation, sharing important advice on how to take care of yourself while also making decisions that are best for your child. In closing, Rachel shares wisdom on what to do if you feel your ex-spouse isn't carrying their fair share of the co-parenting load.
Chris and Christy sit down with Kate Glasscox this week on the podcast to talk about an area of research and treatment that is lesser known in the world of pediatric cancer. Kate is a clinical nurse coordinator of developmental therapeutics in the department of oncology at CHOA. She starts out by sharing her career path that moved her from environmental law to nursing. She explains her role as the communication liaison between the physicians in her department and the physicians and families of patients all over the U.S. who do not have any standard therapies remaining and are looking for a clinical trial. Kate explains the different phases of trials, and the process for finding and entering a clinical trial. She shares how the interview process works in determining if a child would be a good fit for a trial, but also if the trial would be a good fit for the family. Lastly, she shares the one thing that she wishes all families going through this process knew.
This is a special week on the podcast, as Chris sat down with Christy's firstborn, Max, to talk about what it was like growing up with a sibling who has childhood cancer. Max shares candidly about his experience as the big brother of Carter, who was diagnosed with ALL at six years old. Max was eight years old, and he shares how his age and development played a role in how he interpreted what was happening with his younger brother. He explains how there was a lot of fear and frustration that he never shared because he knew what was on his parents' plate, and he encourages other siblings in a similar situation to find someone to talk to. Max shares the importance of finding his own identity apart from childhood cancer, and how the experience of growing up as a "cancer family" impacted his relationships with his parents and his brothers. He also reminisces on his family's first Lighthouse retreat as a Retreat Family, and the gift it has been to return year after year to serve as well.
Peyton Gully joins Chris and Christy on the podcast this week to share her personal journey with childhood cancer. Now a junior in college, Peyton was diagnosed as a sophomore in high school at the age of 15 with mixed phenotype acute leukemia. As an active cross-country runner and lacrosse player, Peyton describes noticing her performance slowing down leading up to her diagnosis. When a month-long headache sent her to the ER, she found herself on a multi-year journey of chemotherapy, CAR T-cell therapy, and two bone marrow transplants before finally being declared cancer-free three years ago. Peyton describes what it was like to miss a year and a half of high school, and how the support of her friends and family made a difference in her journey. She ends by sharing how the experience deepened her faith, and why she is ultimately thankful for what she endured.
Chris and Christy kick off September, Childhood Cancer Awareness Month, with this important conversation. Christy shares from her experience as the mother of a childhood cancer survivor, explaining why September is so important. Then she and Chris explain the many experiences and types of support that Lighthouse Family Retreat provides. They explain what a week at one of Lighthouse's seaside retreats looks like, including the balance of both programmed events (such as the special time just for parents called Common Ground, Dad's Poker Night, Mom's Luncheon, and the UnBirthday Party) and free time as a family. Chris and Christy go on to share about other retreat experiences Lighthouse offers, such as the one-day regional retreats and weekend retreats, which allow families to not only experience a taste of Lighthouse, but also to connect with other families living in their area. Then they close the conversation by highlighting the resources that Lighthouse provides beyond retreats.
In this second episode of a two-part conversation with Joe and Alana Phillips, Chris and Christy talk with the couple about all of the updates in their daughter Tillery's cancer journey. They share what has been different this time around, after having been off treatment for three and a half years, including the shock of hearing the news that the mass had grown, and the frustration of having to find a new oncologist as theirs had left the hospital. They explain the path that led them to St. Jude for Tillery's current treatment, which is a drug trial, and the challenges that come from being a part of a trial. They share the good—that the tumor has shrunk; the bad—that she struggles with physical, behavioral, and educational side effects from the treatment; and the hard—not knowing the right choice to make for Tillery's treatment. Joe and Alana keep it positive, but real, explaining how others' response to Tillery's relapse has differed from the first time around, but how thankful they are for their support team.
Joe and Alana Phillips were generous to talk with us on two separate occasions, as their daughter's cancer journey took a big twist soon after recording the first podcast. In this initial conversation, Chris and Christy talk with the parents of Luke and Tillery about Tillery's initial diagnosis at 15 months old with a brain tumor. They describe the early months of her life when they noticed her missing milestones, and the fight to get her symptoms recognized by the medical community. As Tillery and Alana ended up spending several months in a hospital six hours from their home, Joe and Alana share what they learned about their marriage and each other through the challenges of childhood cancer and an extended physical separation. Both share how their faith in God and their church and cancer communities helped carry them through, and what led them to start a 5K to fund childhood cancer research, as well as a men's group for dads of childhood cancer patients.
Last week on the podcast, Chris and Christy spoke with Kayla Funk, a childhood cancer survivor, and on this episode, they chat with Kayla's siblings. Morgan and Andrew, who were teenagers when their sister was diagnosed, describe the early days of Kayla's cancer journey and what it was like to be on the other side of a sibling's diagnosis. Andrew shares the difficult emotions he experienced, especially with Kayla's relapse, and how his friends helped him process and get through it. Morgan also reflects on the strong support system her family had, and talks about the ups and downs of coping with the emotions. And both siblings share about the positive ways they all grew up and came together during such a hard season. They also offer up advice for both teenagers and parents in a similar situation.
Kayla Funk was 18 years old and ready to launch into her young adult life when she started developing strange health symptoms while serving on a mission trip in Kenya. She was soon diagnosed with neuroblastoma, which is typically diagnosed in children under five. On this podcast, she shares with Chris and Christy about the struggle of being ready to be an adult while being thrust back into a world where she was treated like a child and having to fight for her own voice in the children's healthcare system. Kayla also shares openly about the challenges of navigating her independence from her parents throughout her diagnosis and treatment as a young adult, and about her fight to regain the ability to walk and recover her motor skills. She closes the conversation by sharing about what her life is like now, including working at the non-profit she and her family started to fund research to end childhood cancer.
In our inaugural episode of season 3, Aria Randolph, a friend of Lighthouse and homeschool educator, shares her journey to making the choice to homeschool, even as someone who enjoyed her own public school experience. She explains the two main "whys" her family has chosen this path, and the importance for each family to figure out their own "whys" when it comes to their education choices. Chris, Christy and Aria discuss the impact of cancer on a child's educational life, and why that might influence a parent's decision to make different schooling decisions for each individual child in their family. Aria helpfully breaks down the process for getting started in homeschooling and also debunks some homeschooling myths.
Chris and Christy pick back up on the subject of life after treatment this week. Christy shares the journey she and her son Carter have been on since he was diagnosed with ALL at age six, and specifically, the things she wishes people knew about the post-treatment phase. She explains the daily toll that treatment takes on the family, and the adjustment it takes to having it all come to a stop. She shares about the loneliness families can feel when their support system suddenly goes away, and how even ending treatment is a complex emotional rollercoaster. Christy also shares some practical advice—including reconnecting with your child's pediatrician before treatment ends or finding a new pediatrician if necessary, and seeking out counseling to help you process all that your family has endured. She encourages parents to give themselves grace—not every day will feel like a celebration when your child is off treatment, and that is okay.
This week on The Lighthouse Podcast, Chris and Christy are covering a topic that's often overlooked when it comes to childhood cancer: the off-treatment journey. They speak with Dr. Karen Effinger, who is the medical director of survivorship at the Aflac Cancer and Blood Disorders Center at CHOA. The survivor clinic sees oncology and bone marrow transplant patients who have completed their treatment. Dr .Effinger explains how survivor care marks a shift in focus from ridding the body of cancer to the effects caused by the patient's treatment—and in educating and equipping the patient to think about their overall health and how they can live a long, healthy life after cancer. Dr. Effinger goes on to explain how parents can prepare themselves and their child for this type of post-treatment care. Christy shares her personal experience with survivor care and how helpful it was for her son, while at the same time, being a big adjustment for her as his primary caregiver and health advocate. And Dr. Effinger concludes their conversation by sharing some helpful tips for parents who may not have access to a full survivor clinic. (Note: The resources Dr. Effinger mentions can be found at www.survivorshipguidelines.org.)
Josh and Kayla Boyer attended a Lighthouse retreat in 2018 with their family, including their daughter Lydia who was battling stage 4 medulloblastoma. Chris and Christy sat down with the couple to hear their story, including Lydia's initial diagnosis, which—as is the case for so many families—was hard-earned. Lydia's symptoms began in April 2016, starting in subtle ways, but getting worse over the next few months until she was finally diagnosed with cancer that had spread throughout her brain. Her parents were told that she had little chance of survival—and then after her relapse, that her survival chance was only 5%. Kayla and Josh both share about their deep faith that carried them through—including a surrender of Kayla's life to God's will. Praising God that finally this February they received those coveted letters NED (No Evidence of Disease), the Boyers still have to live in the tension of trusting God and knowing their daughter's diagnosis is aggressive and prone to relapse. But their mantra of "grace for the day" has kept them living in the moment and grateful for God's faithfulness.
Chris and Christy spoke with Becca Johnson, a Child Life Specialist on the Bone Marrow Transplant Unit at CHOA, where she has worked with both in-patient and out-patient care for seven years. Becca explains why a child might need a bone marrow transplant, and how she helps children and families throughout the lengthy process. She also details the entire process from pre-transplant through the transplant and beyond—a procedure that usually involves a hospital stay of 4-6 weeks and is very painful and isolating for the child. She shares creative ways they keep the child connected to important people in the child's life—like siblings, who are unable to visit. Lastly, she explains the simple process for getting on the bone marrow transplant registry, and the importance of volunteering for this critical procedure that saves lives. Visit bethematch.org for more information on becoming a bone marrow donor.
On this week's episode of The Lighthouse Podcast, Chris and Christy have an informative discussion with Dr. Brock, Director of Supportive Care at a local children's hospital in Atlanta. Dr. Brock explains what supportive care is and how the main mission of supportive, or palliative, care is to help kids who have a serious illness like cancer—and their families—live as well as possible. Supportive care is a relatively new field that does not replace your child's oncology team, but rather supports it, building a bigger village for your child's cancer journey. Dr. Brock dispels some of the misconceptions of palliative care and explains how the process works for children and families. She shares the best time to introduce this type of care, the qualifications for receiving supportive care, and how parents can request it if a consult has not been requested by the cancer team. She explains how the support extends to the family and includes interesting examples of palliative care. They conclude the discussion by talking about the challenges of the job, but the beauty that comes from knowing you've been able to help relieve the suffering of children and families—and even make their days better—during their cancer journey.
Chris and Christy enjoyed sitting down with a longtime friend of Lighthouse, pediatric oncology nurse Jaime Newton. Jaime served on Lighthouse summer staff several years ago—a summer that confirmed her decision in early childhood to pursue this career path after seeing the nurses care for her brother's best friend while he was being treated for leukemia. Jaime describes a day in the life of a pediatric oncology nurse, from the practical to the fun (who knew syringes could be used like that?!). She shares honestly about the hard parts of her job, but is quick to point out the beauty and the honor of walking with families through their journey. Jaime also shares how she manages her emotions, explains the "team nursing" concept, and encourages families to view their nurses as an extension of their role as their child's advocate. At Chris' request, she also offers up tips on how families can support their hard-working nurses during their child's hospital stay (hint: words matter).
Chris and Christy welcome Stephanie Fee back to the podcast—this time sharing her journey as a single mom on the childhood cancer journey. After going through her own divorce while her son was on treatment, Steph became extremely passionate about helping single moms navigate the journey of childhood cancer. She speaks of the strength these women have as they juggle all that childhood cancer involves, as well as solo parenting. Steph goes on to share her best advice for getting through it: ask for help. She and Chris discuss the help that churches can offer, as well as the importance of inviting key family and friends into your circle to help on a deeper level. Steph also shares the things that were the biggest help to her in those days, and offers ideas for others to help their friends and family on a similar journey.
Child Life Specialist Lindsay Carrick joins Chris and Christy on The Lighthouse Podcast again this week, taking a deeper dive into an important topic when it comes to childhood cancer: communication. How do you talk to a child about their cancer diagnosis? Lindsay walks us through the steps she takes as a CLS, from working with the parents, to making the tough conversations age- and developmentally appropriate, and even bringing in hands-on activities to help kids understand what is happening. She shares the importance of being "optimistically honest" with kids about their diagnosis to prevent kids from filling in the gaps of what they know with false information, and also how to talk to siblings and peers about the changes they see in the child on treatment. Chris asks Lindsay about how to preemptively address kids' fears, and they wrap up the conversation talking about end-of-life decisions and the role a CLS might take in helping families establish their child's legacy.
Christy kicks off the first part of this two-part interview with Child Life Specialist Lindsay Carrick by declaring herself Child Life's biggest fan, and as the conversation between Chris, Christy, and Lindsay continues, it's easy to see why. Child Life Specialists wear many hats, but their main goal is to be a supportive presence for patients and their families while in the hospital or clinic. Lindsay details how CLS support their patients before and during procedures, involve the parents, and ultimately try to work themselves out of a job by teaching kids coping skills they can use throughout their journey. She also shares the educational and training requirements for becoming a CLS, and talks about the importance of including even young kids in the decision-making process when it comes to the procedures they experience on their cancer journey.
Today we sit down with Roger & Angie Howie. Their daughter Faith was diagnosed at 4 years old with Leukemia (ALL). They talk through their initial reaction to the news of the diagnosis and the struggles they experienced after getting the news, including misunderstanding with other family members. Now 12 years later, the Howies are active in the childhood cancer community supporting other families going through what they went through. Roger points this drive to help others back to their time at Lighthouse and the support they felt from Lighthouse when they were going through treatment. They both share their number one piece of advice they share to newly diagnosed families.
Bojana Pencheva is a genetic counselor with a local children's hospital in Atlanta, and she sat down with Chris and Christy to talk about a fairly recent development in the world of childhood cancer: cancer predisposition programs. Bojana explains what genetic counseling is and how it can help certain patients and their families to help them reduce their increased cancer risk. She goes on to explain what is involved with the screening and the reduction risk plan that may follow, and encourages parents to advocate for this testing for their children and family if there is a family history of childhood cancers. Bojana also talks about the empowering nature of genetic counseling, giving children and teens a sense of control over their own health, especially as they transition to adulthood. She also speaks with positivity about the future of these programs in both creating registries to better help patients and to help doctors learn more about these cancer predisposition syndromes.
Stephanie Fee returns to talk about Creed and losing her son to childhood cancer. She shares her experience in hopes that it helps families walking through a similar situation. She gives an overview of what it was like for her in the early days and what has helped her cope. She talks about the importance of keeping Creed’s memory alive and gives advice to friends of those who may know someone whose child has passed away.
Chris & Christy sit down with Stephanie Fee for Part One of the story of her son Creed. Creed was born prematurely and from the moment Stephanie brought him home, until his passing, he was in and out of hospitals and on medication. For five years of his life, Stephanie was searching for answers as to what was causing him to be ill frequently only to find out he had Myelodysplastic Syndrome (MDS). When he was six, he became sick again with an autoimmune disease and was admitted to the hospital for 6 months. While in the hospital side effects caused Creed to become almost unrecognizable to Stephanie. One morning she received a call from Creed’s dad that Creed was going to have to be put on a ventilator and that she should come in before he was incubated. Creed passed away soon after at seven years old. In this episode you will hear about the strength, humor, and child like faith of Creed.
Today Chris & Christy sit down with the Wamsley family. Matt & Lindsey’s daughter Addie was suddenly diagnosed with ALL after struggling with what they thought was an ear infection. The week prior to her diagnosis, a new Phase 3 Trial had just opened up at St Jude’s. The Wamsley’s go into detail about joining this out of state trial, the goal of the trial, and the support they received from their doctors during the entire process. In this conversation, they talk about the relationship they had with their doctors and what was important to them when choosing a doctor for their daughter’s treatment. Lindsey, a licensed therapist, talks through emotions and how it is ok and normal to feel more than one emotion at a time, especially during this journey.
In this episode, we sit down with Tenise Newburg from Camp Sunshine. She opens by talking about her personal experience with camp as both a camper and then as a volunteer. She discusses the current programing at Camp Sunshine, what the value of camp is for an individual and for families, and the ways your family can get involved. Tenise digs a little deeper into what she considers one of the most important programs for the family - sibling camp. She continues by talking about the importance of safety at camp and the ways in which they keep families and children safe while on a week at camp. If you do not live in Georgia or surrounding states, she suggests researching the Children’s Oncology Camping Association International to find an oncology camp near you. Learn more about Camp Sunshine at mycampsunshine.com.
Today Chris & Christy sit down with Whitney Crosser to talk through her son’s childhood cancer journey. She first discussed when she realized something wasn't quite right with her son’s health after he spiked multiple fevers. After Wyatt’s diagnosis of Stage 4 High Risk Neuroblastoma, Whitney decided to take her son to Memorial Sloan Kettering in New York for treatment. In this episode, she discusses her family's experience at Memorial Sloan Kettering and why they chose to travel to this hospital instead of having treatments at their local children’s hospital.
As we kick off Season Two of The Lighthouse Podcast, Chris & Christy sit down with Mary Kate Snider, VP of Mission Delivery with Make a Wish Georgia. She starts by explaining the requirements for a family to receive a Make a Wish journey and the mission behind Make a Wish. In a world of Childhood Cancer where the child doesn’t get many choices, Mary Kate talks about how a main focus of Make a Wish Georgia is to give kids the choice - a choice of an experience they can get excited about. Continuing, Mary Kate explains the referral process and how Make a Wish Georgia gets in contact with families eligible for an experience. She talks about the process of talking with the child about their wish and how they make it a process and full experience not just a transactional experience. She continues to talk about volunteer opportunities and how others can get involved in raising awareness. She ends the episode by talking about what she wishes parents knew about Make a Wish Georgia.
Referral forms can be found at: Wish.org
On the final podcast of 2020, co-hosts Christy Richards and Chris Woodruff reflect upon the year that was. They talk about the good things that happened, things they appreciate in spite of the difficulties and some lessons they learned along the way. Chris and Christie then turn their attention to 2021. They discuss the value of being intentional and aligning priorities as we anticipate the new year. Instead of viewing 2021 as an opportunity to make up for all we missed in 2020, Christy encourages us to make a plan so that we don't miss out on some of the good things we experienced this year. What can we take from 2020 that will make 2021 the best year it can be? Listing out the favorite things from this year that we can carry over to the new year is helpful and will make sure we don't forget the lessons we learned. Instead of making big commitments or hoping for sweeping changes, they suggest making small changes that are more manageable and make a bigger difference over the course of time. Thinking about priorities and dreams can help us be more focused and realistic as we approach a new year. We look forward to seeing you in 2021!
In the second of two episodes, Jenny Boyett returns to the podcast to take a deeper dive into the four temperament types of Choleric (Red), Sanguine (Yellow), Phlegmatic (Green) and Melancoly (Blue). She speaks in depth about the characteristics and needs of each type and what approval, acceptance and attention looks like for every color. Jenny shares some humorous and real personal stories and hypotheticals that shed light on life situations that and how we can help our children feel loved and heard. Jenny also offers advice on how to speak into the different temperament types while walking through a season of childhood cancer. She points out how your temperament magnifies when you are in crisis and how to learn from it and manage it. Knowing your tendencies and the tendencies of your spouse and children changes the conversations you have and reduces tension and stress. Finally, Jenny gives tips on disciplining your children based on their temperament and offers encouragement to be patient and take small, intentional steps towards understanding.
Jenny Boyett joins Chris and Christy for the first of two episodes on the four temperaments. The temperaments were discovered over a thousand years ago by Hippocrates and given the greek names Choleric, Sanguine, Melancholy and Phlegmatic. These four have been assigned colors to make them easier to understand. Jenny discusses the importance of not only understanding your own temperament - for self-awareness - but knowing and understanding the temperaments of your spouse and children as well. Communication is key and knowing how to communicate to others based on their "color" can help others become the best version of themselves. In contrast to personalities, temperaments are given at birth and are hard-wired into us. They are a gift from God and cannot be changed. Temperaments can be discovered when our children are young and can help parents better guide and talk to our children. Jenny gives a high level overview of each of the four temperament types and the colors associated with each. She dives into the strengths and weaknesses of the four types and how to encourage each one.
Cliff and Tracy Atfield join the podcast to tell their own story of journeying through childhood cancer. The Atfields, now empty-nesters with a married daughter and a son who's a senior in college, take us back to 2005 to when their then 6-year old son was diagnosed with acute lymphoblastic leukemia (ALL). They recall the difficult questions they faced, both from their own minds and the mouth of their child. They discuss the difficulty of finding the balance between honesty and protection as well as the challenges of disciplining your children. The Atfields touch on the importance of flexibility while keeping things as normal as possible. They offer advice on self-care and maintaining emotional health and offer practical tips on keeping your marriage healthy in the midst of so much stress and uncertainty. Finally, they emphasize the importance of saying "yes" to people who offer to help and the absolute necessity of holding onto hope.
Tony & Sara Beth Paredes, who have lived the childhood cancer journey, join the podcast to share their family's story. Their son, Ethan, was diagnosed on his 5th birthday with Leukemia (ALL). Hear about their families struggles with the fog of childhood cancer, raising a toddler in addition to their child on treatment, and trying to create a normalcy within their family during treatment and beyond. The Paredes' discuss the unique challenges they had with their doctor and how they made the difficult decision to switch doctors. Tony talks directly to dads about the challenges he faced in the leadership role of their home. Finally, Tony & Sara Beth share some insight of what they wish they knew when the look back on their childhood cancer journey.
Stephenie Craig, Licensed Clinical Social Worker specializing in emotional/relational health, is back again with co-hosts Chris and Christy to dive further into the subject of anxiety. Stephenie defines self-care and the need for it in both women AND men. Often, taking time to care for yourself feels selfish or there's just no time when dealing with the complexities of managing a family living through childhood cancer. Stephenie reminds us there is nothing selfish about taking care of ourselves, because we can't take care of others if we don't take care of ourselves. Our bodies need rest, hydration, and fuel. Sometimes, the simple things are the first things we neglect when we're facing a crisis. Stephenie shares a strategy for mapping out self-care within your family dynamic. Rather than focusing on major life changes, she encourages us to determine simple steps we can take to manage our self-care. These small goals aren't put in place as another potential source of shame but to provide opportunity to celebrate progress. Mastering self-care will not only improve our health, but sets a powerful example for our family members to do the same. Finally, Stephenie shares tips for avoiding secondary problems by choosing healthy coping mechanisms.
Stephenie Craig, a Licensed Clinical Social Worker specializing in emotional/relational health, joins the podcast to talk about anxiety. Stephenie defines anxiety and how it works from a physiological and psychological perspective. We all feel overwhelmed at times, but anxiety makes us feel like we are out of control. Stephenie explains that all emotions serve a purpose, including anxiety. She discusses the contrast between the illusion of control and the sometimes crippling weight of anxious feelings. She explains the physical manifestations of anxiety in our lives and the necessary role breathing plays in our response to difficult circumstances. Stephenie details specific exercises anyone can do to manage their breathing as well as many other tools we can put in our anxiety management toolbox. Anxiety can make us feel shame and that we are powerless. Stephenie offers encouragement to those who feel helpless or alone.
James Ludemann, pediatric oncology nurse, is back on the podcast to share his personal story and how it led to the path he is on today. James was diagnosed with Leukemia (ALL) right after his sixteenth birthday. James talks about what it was like as a teenager to experience the diagnosis, his shock at discovering the depth and length of his treatment, and the physical toll it took on his body. He discusses how he handled his emotions during the journey, how it affected his peer relationships and what his parents did to help him get through the initial stages of his illness. James shares how his relationships with family and friends, in partnership with his personal faith, buoyed him and helped him get through. Finally, James gives some advice to parents of teenagers who are on treatment, based on his personal experience.
Tim and Leslie Day, parents of Episode 4 guest, Anna Day, join co-hosts Chris and Christy to discuss their family's childhood cancer journey from the parents' perspective. The Days recount how a routine doctor visit for their 9-month-old twins led to a diagnosis of Stage 4 Neuroblastoma. They offer insight into dealing with cancer when you don't know "what the end will look like and when it's going to be." They share how they handle the waiting, the importance of communicating what you feel, and finding the good in what is happening. They spend some time walking through how each parent processes things differently and how they've been intentional in understanding and helping each other and wrap up the episode by sharing some words of encouragement and hope.
Jeff Earnhardt, Leadership Coach and owner of Coaching with Jeff, wraps up our discussion on the Enneagram, the powerful, scientifically-validated personality typing system that teaches there are nine different ways to see people and experiences. Understanding our core motivation will help us know our core fear. The combination of these two things will unlock self-awareness. Jeff shares the final three Enneagram types. He unpacks the core fears and motivations of the Enthusiastic Visionary (7), the Active Controller (8) and the Adaptive Peacemaker (9). Jeff finishes by suggesting several resources that will help you discover your Enneagram type. You can find "The Road Back to You" here: http://bit.ly/RoadBTY You can access the RHETI Enneagram Assessment here: https://www.enneagraminstitute.com/rheti
Jeff Earnhardt, Leadership Coach and owner of Coaching with Jeff, returns to the podcast to further develop our understanding of the ancient and powerful personality typing system known as the Enneagram. In this episode, Jeff reminds us of the importance of understanding our strengths and weaknesses, our emotional triggers and how we make decisions. All of these lead to the kind of self-awareness that will help us regulate our responses to any and all situations. It’s critical to understand ourselves, but just as vital to try and understand others. Jeff takes us through types 4, 5 and 6 of the Enneagram. He reveals the motivations, core fears and world views of the the Intense Creative (4), the Quiet Specialist (5) and the Loyal Skeptic (6).
Jeff Earnhardt, Leadership Coach and owner of Coaching with Jeff, sits down with Chris and Christy to unpack the Enneagram. The Enneagram is an ancient personality typing system that lays out nine different ways to see people and circumstances. This powerful and timeless instrument helps people understand their core motivation and their greatest fear. He shares the importance of understanding ourselves before we can understand others and our relationships with them. Unlocking our core motivations and fears as well as of those closest to us can lead to more empathetic and healthier family and business relationships. In this episode, Jeff takes us through personality types one through three of nine so we can recognize ourselves and begin to apply this knowledge to our life and relationships.
Joe and Jen Moore, who have lived the childhood cancer journey, join the podcast to share their unique story. The Moore’s daughter, Macie, was diagnosed with Leukemia (ALL) when she was three years old. Hear how they processed the initial diagnosis, along with the realization that a long, two-and-a-half year treatment regimen was ahead of them. The Moore’s talk about the concerns they had in the early days after the diagnosis and two huge things God used to prepare them in advance to get through those times. They emphasize the role their church played in keeping them grounded and the vital nature of their involvement in a small group. Finally, the Moore’s elaborate on their idea of pain for a purpose and how their story has provided them opportunities to be who God created them to be.
Alan Bohnhoff, a licensed professional counselor, joins Chris and Christy to talk about parenting siblings of children on treatment. He discusses the challenges facing parents and siblings in families living through childhood cancer. Alan addresses the major issues facing parents - including guilt, stress, marriage-strain, and more. In this episode, he shares five steps for parents to help siblings manage the pressure and feelings they experience but don’t know how to process in a healthy way.
Chuck and Mary Ann Detling join the podcast to talk about their experience of living through childhood cancer. Hear how a relatively-minor injury at a neighborhood party led to the discovery and diagnosis of their oldest daughter’s inoperable brain tumor when she was six years old. In this episode, the Detlings talk about the importance of keeping things “normal” for their child, of dealing with the stress of treatment with no end date, and the critical role faith plays. They also explore the balance between trusting and having a good relationship with your doctor while being an advocate for your child through research and second opinions.
Adam Tomberlin, Director of Development at Lighthouse Family Retreat, takes on the intimidating but necessary task of fundraising. Whether for research or family support, raising funds is a critical skill to master in the fight against childhood cancer. Adam shares simple and proven strategies for generating support that don’t require a lot of experience or upfront financial investment. He emphasizes the importance of using social media to promote your fundraising as well as some do’s and don’t’s of “making an ask." Often people want to help, but don’t know how. Adam explains how to move past fear and uncertainty to unlock the potential of giving in your circle of influence. Make it easier for your family and friends to make a difference through generosity!
James Ludemann, pediatric oncology nurse, takes listeners on a deep dive into the world of childhood cancer. He explains the different types of childhood cancer, the categories they fall into, and who they affect. He also highlights some of the ways children are diagnosed and goes into detail about treatments, explaining chemotherapy, immunotherapy, radiation, surgery, and bone marrow transplants. For more information, James recommends the following resources: www.childrensoncologygroup.org, aphon.org, curechildhoodcancer.org, www.lls.org, www.amandarileyfoundation.org, alexslemonade.org, bethematch.org.
Anna Day, older sister of a childhood cancer survivor, shares her unique experience of this journey from a sibling’s perspective. Hear how she coped with her sister’s illness, the things she learned and how it has shaped her as a person. Anna recounts her frustration when she learned of the lack of funding for childhood cancer research and how it spurred her on to actually do something about it. Her passion and persistence led to the formation of a non-profit that has raised thousands of dollars for childhood cancer research. She reflects upon how her parents handled their family’s struggle and the things they did to help her better navigate the challenges she faced while her sister was on treatment. For more information, visit annasbakesalefoundation.org/
Kristin Connor, Executive Director of CURE Childhood Cancer, joins co-hosts Chris Woodruff and Christy Richards to share why the research CURE funds is so important in the fight against childhood cancer. Kristin discusses the research their organization funds as well as the support CURE offers families through financial assistance, professional counseling, meals, bereavement services and more. She also reveals CURE’s research focus as well as promising new possibilities in regards to treatments. For more information about CURE Childhood Cancer, visit curechildhoodcancer.org. For more information on Lighthouse Family Retreat, visit lighthousefamilyretreat.org or follow us on Facebook and Instagram at @lighthousefr.
Christy Richards, Lighthouse Family Retreat’s Retreat Operations Manager, shares her story of walking through childhood cancer with her own son. As she relates her family’s progression from “normal" life to diagnosis to treatment and beyond, Christy provides insights into how childhood cancer affects the whole family. She shares mistakes made, the highs and lows of their arduous journey, and what she learned along the way. In addition, co-hosts Chris Woodruff and Christy give practical tips on how you can help other families living through childhood cancer and the importance of awareness. For more information, visit lighthousefamilyretreat.org or follow us on Facebook and Instagram at @lighthousefr.
In the inaugural episode of The Lighthouse Podcast, you’ll get an inside look at Lighthouse Family Retreat from our hosts Chris Woodruff and Christy Richards. They will walk you through the mission and purpose of Lighthouse, what our retreats look like, and how this podcast is the next step in the evolution of fulfilling our mission of strengthening families living through childhood cancer. This podcast is designed to help families navigate every aspect of their childhood cancer journey. Feeling alone in your battle? Our hope is this resource will help you feel connected to a community - a community that is for you and with you whenever you need us. For more information, visit lighthousefamilyretreat.org or follow us on Facebook and Instagram at @lighthousefr.